#LupusChat Transcript
Healthcare social media transcript of the #LupusChat hashtag.
– ().
See #LupusChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Carly by Nature @SynceNerd_Carli #LupusChat Tiiiiiiiiiiiiime!!!!! Let's Gooooooooooooooo!!!!!!!!! https://t.co/XwGpLkxgF2 |
 | #LupusChat @Lupus_Chat Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
 | Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
| Tiffany ⁷ @TiffanyAndLupus it’s #LupusChat time y’all! I’ll be tweeting for the next hour with the online lupus and chronic illness community. Tune in, lurk, listen & learn with me today. 👋🏾💜 https://t.co/rO2BohAIMH |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Cheesecake & #LupusChat! https://t.co/XBemMABCLs |
| #LupusChat @Lupus_Chat Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. https://t.co/nYNPo7Tn6U |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: #LupusChat Tiiiiiiiiiiiiime!!!!! Let's Gooooooooooooooo!!!!!!!!! https://t.co/XwGpLkxgF2 |
| #LupusChat @Lupus_Chat Bienvenido a #LupusChat Hablaremos el papel que puede tener el cambio climático en los cuerpos y las formas que puede afectar las enfermedades crónicas. Juntos exploraremos cómo estos factores pueden afectarnos y consejos preventivos que podemos implementar en nuestra vida diaria https://t.co/Y9JZ7S99GO |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. https://t.co/nYNPo7Tn6U |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
 | Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
| #LupusChat @Lupus_Chat Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| #LupusChat @Lupus_Chat Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/6b2jtZlesb |
| #LupusChat @Lupus_Chat Click on the hashtag~> #LupusChat to join us if you are new to @Lupus_Chat & would like to know how to participate in our conversation today. https://t.co/FPilRCbyeN |
| #LupusChat @Lupus_Chat Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #lupus! https://t.co/9QQYr5aBXg |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Click on the hashtag~> #LupusChat to join us if you are new to @Lupus_Chat & would like to know how to participate in our conversation today. https://t.co/FPilRCbyeN |
| #LupusChat @Lupus_Chat Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Click on the hashtag~> #LupusChat to join us if you are new to @Lupus_Chat & would like to know how to participate in our conversation today. https://t.co/FPilRCbyeN |
 | Caring For Lupus @CaringForLupus RT @Lupus_Chat: Bienvenido a #LupusChat Hablaremos el papel que puede tener el cambio climático en los cuerpos y las formas que puede afectar las enfermedades crónicas. Juntos exploraremos cómo estos factores pueden afectarnos y consejos preventivos que podemos implementar en nuestra vida diaria https://t.co/Y9JZ7S99GO |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/6b2jtZlesb |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Click on the hashtag~> #LupusChat to join us if you are new to @Lupus_Chat & would like to know how to participate in our conversation today. https://t.co/FPilRCbyeN |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #lupus! https://t.co/9QQYr5aBXg |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| #LupusChat @Lupus_Chat Use Q1 or A1 to answer each question. This helps us connect your responses to each question in our post-chat transcript. #LupusChat https://t.co/aAMBYsW2KO |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps us connect your responses to each question in our post-chat transcript. #LupusChat https://t.co/aAMBYsW2KO |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps us connect your responses to each question in our post-chat transcript. #LupusChat https://t.co/aAMBYsW2KO |
 | RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
| #LupusChat @Lupus_Chat Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat https://t.co/qv3sOCMIjz |
| #LupusChat @Lupus_Chat As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/Ma2o5BnbGl |
| #LupusChat @Lupus_Chat Para cada pregunta de dos partes, asegúrese de agregar Q1A o A1B antes de cada una de sus respuestas. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @WhitShanay2: Maaaaann these mouth ulcers are THEE WORST! I never use to talk about em bc I was embarrassed but now I just don’t care. It’s days where I don’t wanna talk, days where I barely can eat and enjoy it! It’s terrible 😩 #lupusawareness #fucklupus #lupuschat |
| #LupusChat @Lupus_Chat Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/51TltmkG0P |
| #LupusChat @Lupus_Chat Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| #LupusChat @Lupus_Chat Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es tu emoji más usado? https://t.co/iPeohO7uTD |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/Ma2o5BnbGl |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es tu emoji más usado? https://t.co/iPeohO7uTD |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/51TltmkG0P |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Tiffany ⁷ @TiffanyAndLupus Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/Ma2o5BnbGl |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| #LupusChat @Lupus_Chat RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Caring For Lupus @CaringForLupus Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| Caring For Lupus @CaringForLupus Hola ... soy Elizabeth de NJ. Un co-anfitrión de #LupusChat Mi conexión con Lupus es a través de mi hija, ella fue diagnosticada hace tres años y le encantan los pingüinos 🐧. Mi emoji favorito es ..... 😂 https://t.co/KPYjH9wMz7 |
| Caring For Lupus @CaringForLupus RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| #LupusChat @Lupus_Chat RT @CaringForLupus: Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| Friends AgainstLupus @AgainstLupus RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Friends AgainstLupus @AgainstLupus RT @CaringForLupus: Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Bienvenido a #LupusChat Hablaremos el papel que puede tener el cambio climático en los cuerpos y las formas que puede afectar las enfermedades crónicas. Juntos exploraremos cómo estos factores pueden afectarnos y consejos preventivos que podemos implementar en nuestra vida diaria https://t.co/Y9JZ7S99GO |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
 | David Lazar, MD MPH @DrDavidLazar Hi everyone! Looking forward to #LupusChat today! |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: it’s #LupusChat time y’all! I’ll be tweeting for the next hour with the online lupus and chronic illness community. Tune in, lurk, listen & learn with me today. 👋🏾💜 https://t.co/rO2BohAIMH |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Cheesecake & #LupusChat! https://t.co/XBemMABCLs |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Before we get started let's go over some #LupusChat guidelines that help our conversation flow smoothly. https://t.co/nYNPo7Tn6U |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Antes de empezar, vamos a repasar algunas pautas #LupusChat que ayudan a que nuestra conversación fluya sin problemas. |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Si eres nuevo en @Lupus_Chat quieres saber cómo participar, sólo tienes que hacer clic en la etiqueta ~ > #LupusChat a unirse a nosotros! https://t.co/6b2jtZlesb |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Click on the hashtag~> #LupusChat to join us if you are new to @Lupus_Chat & would like to know how to participate in our conversation today. https://t.co/FPilRCbyeN |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilice la etiqueta ~> #LupusChat en cada uno de sus tweets para unirse a la conversación. Los vamos a compartir en la comunidad de #lupus! https://t.co/9QQYr5aBXg |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps us connect your responses to each question in our post-chat transcript. #LupusChat https://t.co/aAMBYsW2KO |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Utilizar Q1 o A1 para responder a cada pregunta. Esto ayuda a conectar sus respuestas a cada pregunta en nuestro post-chat #LupusChat https://t.co/qv3sOCMIjz |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: As always, please respect our featured co-hosts/guests as well as each other & save all personal questions for after #LupusChat. https://t.co/Ma2o5BnbGl |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Para cada pregunta de dos partes, asegúrese de agregar Q1A o A1B antes de cada una de sus respuestas. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Por favor, respete a nuestros invitados especiales y unos a otros y guardar todas las preguntas personales para después de #LupusChat. https://t.co/51TltmkG0P |
| RaquelRoschell @raquelonpurpose @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
 | Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Let’s get our #LupusChat party started! Can you share your name, where you are from, a little bit about yourself, and what is your most used emoji? https://t.co/C8uZmxbKqD |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Vamos a comenzar nuestra #LupusChat fiesta! ¡Comparta su nombre, ubicación, un poco sobre usted, y cuál es tu emoji más usado? https://t.co/iPeohO7uTD |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hola ... soy Elizabeth de NJ. Un co-anfitrión de #LupusChat Mi conexión con Lupus es a través de mi hija, ella fue diagnosticada hace tres años y le encantan los pingüinos 🐧. Mi emoji favorito es ..... 😂 https://t.co/KPYjH9wMz7 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @raquelonpurpose: @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
| Carly by Nature @SynceNerd_Carli Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| Carly by Nature @SynceNerd_Carli ¡Hola a todos! Soy Carly, co-anfitriona de #LupusChat, defensora de pacientes y super empollona de la ciencia. Mi emoji más usado es definitivamente 😂 porque siempre estoy bromeando. https://t.co/bYpVXYJp4g |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: Hi everyone. Christele here, Lupus patient advocate for 12 years now and one of your #LupusChat co-hosts. My fave emojis are 😐 and 😏 because I got back and forth between those 2 moods multiple times a day lol |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: Hi everyone! Looking forward to #LupusChat today! |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @DrDavidLazar So great that you're here, Dr. Lazar. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: ¡Hola a todos! Soy Carly, co-anfitriona de #LupusChat, defensora de pacientes y super empollona de la ciencia. Mi emoji más usado es definitivamente 😂 porque siempre estoy bromeando. https://t.co/bYpVXYJp4g |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE and lupus nephritis since 1995. Musician,comedian,foodie. Fave emoji is 😂😂😂 or ❤❤❤. #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: Hi everyone! Looking forward to #LupusChat today! |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Aww yay. I wanna hear all about it later! #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: Hi! My name is Tiffany & I’m your #LupusChat Co-host from New York City. I am also a co-host of a beauty podcast with 3 of my best friends called @triplebeespod. & my favorite emoji right now is 🥴 lol https://t.co/gzHg1HriJK |
| Carly by Nature @SynceNerd_Carli @DrDavidLazar Thanks for joining #LupusChat today, Dr. Lazar! We always appreciate having you with us. |
| RaquelRoschell @raquelonpurpose RT @DrDavidLazar: Hi everyone! Looking forward to #LupusChat today! |
| #LupusChat @Lupus_Chat @DrDavidLazar So great that you're here, Dr. Lazar. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: Hi... I'm Elizabeth from NJ. A #LupusChat co-host My connection to Lupus is through my daughter, she was diagnosed three years ago and she loves penguins 🐧😍. Our favorite emoji is..... 😂 https://t.co/atvfCBBZab |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: ¡Hola a todos! Soy Carly, co-anfitriona de #LupusChat, defensora de pacientes y super empollona de la ciencia. Mi emoji más usado es definitivamente 😂 porque siempre estoy bromeando. https://t.co/bYpVXYJp4g |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: Hi everyone! Looking forward to #LupusChat today! |
| David Lazar, MD MPH @DrDavidLazar I forgot to add I am in South Carolina & my most used emoji is 😘 #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
| Carly by Nature @SynceNerd_Carli @TheBigBrownGirl @Lupus_Chat Awesome! Be sure to share details with us after today's #LupusChat. We want to hear all about it! https://t.co/AKgncSgRj5 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Welcome to #LupusChat! Today we will discuss the role climate change can have on our bodies and the ways it can affect chronic illness. https://t.co/V3AUo6d8Oj |
| #LupusChat @Lupus_Chat Everyone ready? Here comes Question 1! #LupusChat https://t.co/zIClgpDLW8 |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: I forgot to add I am in South Carolina & my most used emoji is 😘 #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: I forgot to add I am in South Carolina & my most used emoji is 😘 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: I forgot to add I am in South Carolina & my most used emoji is 😘 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat Raquel in Texas. I love coffee and good food. My most used emojis are probably a smiley face or the thinking one, hearts and flowers. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: @DrDavidLazar So great that you're here, Dr. Lazar. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: Hey everyone! I'm Carly, #LupusChat Co-Host, Patient Advocate, and super science nerd. My most used emoji is definitely 😂 because I'm always cutting up. https://t.co/5mfDWA5RJJ |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat Ivey Janette,Albuquerque. Surviving SLE and lupus nephritis since 1995. Musician,comedian,foodie. Fave emoji is 😂😂😂 or ❤❤❤. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: Hi everyone! Looking forward to #LupusChat today! |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: @DrDavidLazar So great that you're here, Dr. Lazar. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: I forgot to add I am in South Carolina & my most used emoji is 😘 #LupusChat |
| #LupusChat @Lupus_Chat Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Everyone ready? Here comes Question 1! #LupusChat https://t.co/zIClgpDLW8 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Always a pleasure having you with us, Ivey! #LupusChat |
| Carly by Nature @SynceNerd_Carli @raquelonpurpose @Lupus_Chat Welcome back to #LupusChat, Raquel! 💜💜 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Everyone ready? Here comes Question 1! #LupusChat https://t.co/zIClgpDLW8 |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| #LupusChat @Lupus_Chat Q1: Notas algún cambio en como se siente su cuerpo se siente de acuerdo con el clima? #LupusChat https://t.co/nii5eKSqJD |
| Carly by Nature @SynceNerd_Carli A1: Yes! I experience changes when in extreme heat or cold temperatures. I have Raynaud’s so the cold causes blood vessel constriction and the heat causes my Lupus to flare. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @DrDavidLazar Thank you for joining us today at #LupusChat Dr. Lazar! It's always a pleasure to have your knowledge and expertise in our midst. :) |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Notas algún cambio en como se siente su cuerpo se siente de acuerdo con el clima? #LupusChat https://t.co/nii5eKSqJD |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat My pleasure. Just leaving work. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: Yes! I experience changes when in extreme heat or cold temperatures. I have Raynaud’s so the cold causes blood vessel constriction and the heat causes my Lupus to flare. #LupusChat |
 | beckie @BeckieLaureano @Lupus_Chat Yes, I do. My legs and arms tend to hurt more when it’s cold. Winter is the worse for me especially at night. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: Yes! I experience changes when in extreme heat or cold temperatures. I have Raynaud’s so the cold causes blood vessel constriction and the heat causes my Lupus to flare. #LupusChat |
| Caring For Lupus @CaringForLupus A1 Yes we do notice changes on Miah depending on the weather. Miah has a rash on her nose which depending on how cold it is... It turns purple #Lupuschat |
| Carly by Nature @SynceNerd_Carli A1: si Experimento cambios cuando estoy en temperaturas extremas de calor o frío. Tengo Raynauds, por lo que el frío causa la constricción de los vasos sanguíneos y el calor hace que mi Lupus se inflame. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Tiffany ⁷ @TiffanyAndLupus A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Friends AgainstLupus @AgainstLupus RT @SynceNerd_Carli: A1: A1: Yes! I experience changes when in extreme heat or cold temperatures. I have Raynaud’s so the cold causes blood vessel constriction and the heat causes my Lupus to flare. #LupusChat |
| #LupusChat @Lupus_Chat RT @BeckieLaureano: @Lupus_Chat Yes, I do. My legs and arms tend to hurt more when it’s cold. Winter is the worse for me especially at night. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @BeckieLaureano: @Lupus_Chat Yes, I do. My legs and arms tend to hurt more when it’s cold. Winter is the worse for me especially at night. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Yes we do notice changes on Miah depending on the weather. Miah has a rash on her nose which depending on how cold it is... It turns purple #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @CaringForLupus: A1 Yes we do notice changes on Miah depending on the weather. Miah has a rash on her nose which depending on how cold it is... It turns purple #Lupuschat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: si Experimento cambios cuando estoy en temperaturas extremas de calor o frío. Tengo Raynauds, por lo que el frío causa la constricción de los vasos sanguíneos y el calor hace que mi Lupus se inflame. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Yes we do notice changes on Miah depending on the weather. Miah has a rash on her nose which depending on how cold it is... It turns purple #Lupuschat |
 | RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Bienvenido a #LupusChat Hablaremos el papel que puede tener el cambio climático en los cuerpos y las formas que puede afectar las enfermedades crónicas. Juntos exploraremos cómo estos factores pueden afectarnos y consejos preventivos que podemos implementar en nuestra vida diaria https://t.co/Y9JZ7S99GO |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q1: Q1: Notas algún cambio en como se siente su cuerpo se siente de acuerdo con el clima? #LupusChat https://t.co/nii5eKSqJD |
| #LupusChat @Lupus_Chat RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: si Experimento cambios cuando estoy en temperaturas extremas de calor o frío. Tengo Raynauds, por lo que el frío causa la constricción de los vasos sanguíneos y el calor hace que mi Lupus se inflame. #LupusChat |
| Caring For Lupus @CaringForLupus A1 Since Miah's diagnosis I have learned that Lupus patients might be sensitive to changes in barometric pressure. And that Lupus affects everyone differently. #LupusChat |
 | Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @Lupus_Chat: Q1: Q1: Notas algún cambio en como se siente su cuerpo se siente de acuerdo con el clima? #LupusChat https://t.co/nii5eKSqJD |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 @Lupus_Chat Hope work went ok for you. I'm on my way to work now, myself. #LupusChat |
| Caring For Lupus @CaringForLupus A1 Desde el diagnóstico de Miah, he aprendido que los pacientes diagnosticados con Lupus pueden ser sensibles a los cambios en la presión barométrica. Y que Lupus afecta a todos de manera diferente. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A1: A1: si Experimento cambios cuando estoy en temperaturas extremas de calor o frío. Tengo Raynauds, por lo que el frío causa la constricción de los vasos sanguíneos y el calor hace que mi Lupus se inflame. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli @Lupus_Chat It did. Stayed an extra hour to get stuff caught up. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: I also notice that my body has a difficult time in extremely hot and sunny temperatures, especially if there is high humidity. My joints ache terribly and my mobility is usually impaired. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A1: Whenever I am in the sun too long I find myself drained of all energy. My fatigue increases like a million times more and it seems to aggravate all of my lupus symptoms. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Desde el diagnóstico de Miah, he aprendido que los pacientes diagnosticados con Lupus pueden ser sensibles a los cambios en la presión barométrica. Y que Lupus afecta a todos de manera diferente. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A1 Since Miah's diagnosis I have learned that Lupus patients might be sensitive to changes in barometric pressure. And that Lupus affects everyone differently. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @seanie314 Yikes, yea it just zaps your energy, right? I hope you're able to rest today. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A1 : The sun & this Texas heat cause problems. I feel sluggish and just weird😊. Cold weather causes pain issues. #LupusChat |
 | AI｜SwolitaBot ░F░E░N░G░ ░G░U░I░D░E░ ░I░N░ ░B░I░O░ @LolitaBot613 I can legit feel the weather in my joints now. It's a bad time. |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: I also notice that my body has a difficult time in extremely hot and sunny temperatures, especially if there is high humidity. My joints ache terribly and my mobility is usually impaired. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1: A1: Yes! I experience changes when in extreme heat or cold temperatures. I have Raynaud’s so the cold causes blood vessel constriction and the heat causes my Lupus to flare. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : The sun & this Texas heat cause problems. I feel sluggish and just weird😊. Cold weather causes pain issues. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Desde el diagnóstico de Miah, he aprendido que los pacientes diagnosticados con Lupus pueden ser sensibles a los cambios en la presión barométrica. Y que Lupus afecta a todos de manera diferente. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A1: A1: Whenever I am in the sun too long I find myself drained of all energy. My fatigue increases like a million times more and it seems to aggravate all of my lupus symptoms. #LupusChat |
| beckie @BeckieLaureano RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: @seanie314 Yikes, yea it just zaps your energy, right? I hope you're able to rest today. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : The sun & this Texas heat cause problems. I feel sluggish and just weird😊. Cold weather causes pain issues. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A1. I get increased joint pain and inflammation when the weather gets cold and/or rainy. And I get lightheaded when it's really hot. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: @seanie314 Yikes, yea it just zaps your energy, right? I hope you're able to rest today. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A1: A1: Whenever I am in the sun too long I find myself drained of all energy. My fatigue increases like a million times more and it seems to aggravate all of my lupus symptoms. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : The sun & this Texas heat cause problems. I feel sluggish and just weird😊. Cold weather causes pain issues. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| #LupusChat @Lupus_Chat It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A1: A1: I also notice that my body has a difficult time in extremely hot and sunny temperatures, especially if there is high humidity. My joints ache terribly and my mobility is usually impaired. #LupusChat |
 | Rachel F F@#K LUPUS @FKLUPUS A:1 Hard to tell at times bc my symptoms don't go away, but I definitely feel much worse over all in cold weather. Paaain! Also feel like my grandmother my have been telling the truth when she said she could tell when it was going to rain bc her joints stiffened. 😬 #LupusChat https://t.co/nBsn339IJG |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A1 Since Miah's diagnosis I have learned that Lupus patients might be sensitive to changes in barometric pressure. And that Lupus affects everyone differently. #LupusChat |
| beckie @BeckieLaureano @Xtel007 @Lupus_Chat Same here. My body doesn’t so well with extreme heat. I live in El Paso, Texas and our summers are terribly hot so I normally hibernate in the summer and rarely leave home during the peak hours of the heat. #LupusChat |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A1. I get increased joint pain and inflammation when the weather gets cold and/or rainy. And I get lightheaded when it's really hot. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q1: Q1: Do you notice any changes in how your body feels according to the weather? #LupusChat https://t.co/SkYTX0pEiU |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| Carly by Nature @SynceNerd_Carli A2: Creo que los factores ambientales contribuyen significativamente a nuestra salud. Por ejemplo, un evento clave que condujo a mi diagnóstico fue cuando pasé un día en la playa con el calor y la luz solar extremos. #LupusChat |
| #LupusChat @Lupus_Chat Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:1 Hard to tell at times bc my symptoms don't go away, but I definitely feel much worse over all in cold weather. Paaain! Also feel like my grandmother my have been telling the truth when she said she could tell when it was going to rain bc her joints stiffened. 😬 #LupusChat https://t.co/nBsn339IJG |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| #LupusChat @Lupus_Chat RT @BeckieLaureano: @Xtel007 @Lupus_Chat Same here. My body doesn’t so well with extreme heat. I live in El Paso, Texas and our summers are terribly hot so I normally hibernate in the summer and rarely leave home during the peak hours of the heat. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| #LupusChat @Lupus_Chat Q2: Cuáles son algunos cambios ambientales, atmosféricos o climáticos que pueden afectar su enfermedad crónica? #LupusChat https://t.co/BjvBClWyG9 |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. Environmental changes definitely affect Lupus. I'm 100% convinced that moving to this country in the dead of winter from a perpetually hot caribbean climate is one of the factors that brought on my Lupus. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. People with chronic illnesses and/or compromised immune systems are very affected by atmospheric and climate change. Extreme heat, extreme weather events, poor air quality affects our health and threaten our well-being. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2: A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:1 Hard to tell at times bc my symptoms don't go away, but I definitely feel much worse over all in cold weather. Paaain! Also feel like my grandmother my have been telling the truth when she said she could tell when it was going to rain bc her joints stiffened. 😬 #LupusChat https://t.co/nBsn339IJG |
 | ⚖️ Renee @Renee_PLP @Lupus_Chat A1: Living in Los Angeles, the norm is warm and sunny. I can tell if it has rained overnight before I even get out of bed. Everything hurts from top to bottom and the exhaustion is off the charts. I am typically non-functional w/a big change. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| Tiffany ⁷ @TiffanyAndLupus RT @BeckieLaureano: @Xtel007 @Lupus_Chat Same here. My body doesn’t so well with extreme heat. I live in El Paso, Texas and our summers are terribly hot so I normally hibernate in the summer and rarely leave home during the peak hours of the heat. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q2: Q2: Cuáles son algunos cambios ambientales, atmosféricos o climáticos que pueden afectar su enfermedad crónica? #LupusChat https://t.co/BjvBClWyG9 |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. Environmental changes definitely affect Lupus. I'm 100% convinced that moving to this country in the dead of winter from a perpetually hot caribbean climate is one of the factors that brought on my Lupus. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: Creo que los factores ambientales contribuyen significativamente a nuestra salud. Por ejemplo, un evento clave que condujo a mi diagnóstico fue cuando pasé un día en la playa con el calor y la luz solar extremos. #LupusChat |
| Caring For Lupus @CaringForLupus A2 Lupus is a complex chronic illness. "Cold temperatures could be causing painful flare-ups as blood vessels constrict in the cold to prevent heat loss" #LupusChat https://t.co/fL7oyYGXxw |
| Caring For Lupus @CaringForLupus A2 "Storms change the barometric pressure around them frequently. Even for people with Lupus who are not bothered by the cold, these pressure changes can cause symptom flares and pain. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: I also notice that after a long airplane flight I experience changes in my health. It is quite possible that the altitude can impact ones health. Along with being sedentary for so long. #LupusChat |
| Caring For Lupus @CaringForLupus A2 "Researchers believe it results from a complex equation of multiple factors. One part of the equation is your genetic makeup; another involves the hormones that regulate much of your body’s functions. A third is your environment" #LupusChat https://t.co/N4PQInriio |
| Caring For Lupus @CaringForLupus A2 "People with lupus can trace their symptoms to a number of lifestyle triggers" #LupusChat https://t.co/GiU2uCQbNC |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q1: Q1: Notas algún cambio en como se siente su cuerpo se siente de acuerdo con el clima? #LupusChat https://t.co/nii5eKSqJD |
| Caring For Lupus @CaringForLupus A2 The link between the ☀sun and Lupus flare-ups is thought to be a set of inflammatory protein molecules called cytokines" #LupusChat https://t.co/FvmGDRZ8dJ |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @DrDavidLazar Thank you for joining us today at #LupusChat Dr. Lazar! It's always a pleasure to have your knowledge and expertise in our midst. :) |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A2. People with chronic illnesses and/or compromised immune systems are very affected by atmospheric and climate change. Extreme heat, extreme weather events, poor air quality affects our health and threaten our well-being. #LupusChat |
| Caring For Lupus @CaringForLupus A2 "Los expertos dicen que la humedad puede agravar el dolor en las articulaciones" #LupusChat https://t.co/i3AAj2KuRe |
| Caring For Lupus @CaringForLupus A2 "Experts say humidity can aggravate joint soreness" #LupusChat https://t.co/3Vwvx7WGAF |
| Carly by Nature @SynceNerd_Carli A1 #LupusChat ⬇️ |
| Caring For Lupus @CaringForLupus A2 "Las temperaturas frías podrían estar causando brotes dolorosos ya que los vasos sanguíneos se contraen en el frío para evitar la pérdida de calor" #LupusChat https://t.co/KINbbB6j6Y |
| Carly by Nature @SynceNerd_Carli RT @BeckieLaureano: @Lupus_Chat Yes, I do. My legs and arms tend to hurt more when it’s cold. Winter is the worse for me especially at night. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Yes we do notice changes on Miah depending on the weather. Miah has a rash on her nose which depending on how cold it is... It turns purple #Lupuschat |
| Caring For Lupus @CaringForLupus A2 The heat and the humidity can intensify the extreme fatigue in Miah's case. It affects her to a point that she is not able to function. Every year we are not looking forward to summer #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| Carly by Nature @SynceNerd_Carli A2: También noté que después de un largo vuelo en avión, experimenté cambios en mi salud. Es muy posible que la altitud pueda impactar la salud. Junto con ser sedentarios por tanto tiempo. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A1. My body is definitely the most affected by the cold (thanks a lot, Raynauds). I’m not very sun sensitive, but I did notice over last summer that the extreme heat makes me feel super drowsy and drains my energy. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| Caring For Lupus @CaringForLupus A2 El calor y la humedad pueden intensificar la fatiga extrema en el caso de Miah. La afecta hasta el punto de que no puede funcionar. El verano es la temporada del año que menos esperamos. #LupusChat |
| ⚖️ Renee @Renee_PLP @seanie314 @Lupus_Chat I can hear the West Hollywood #Pride parade right now (I'm 1/2 block off the parade route) but I'm flaring so am staying inside. :( #LupusChat |
| Caring For Lupus @CaringForLupus A2 "Las tormentas / Lluvias cambian la presión barométrica que las rodea con frecuencia. Incluso para las personas con Lupus a quienes no les molesta el frío, estos cambios de presión pueden causar brotes de síntomas y dolor. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Since Miah's diagnosis I have learned that Lupus patients might be sensitive to changes in barometric pressure. And that Lupus affects everyone differently. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A1 Desde el diagnóstico de Miah, he aprendido que los pacientes diagnosticados con Lupus pueden ser sensibles a los cambios en la presión barométrica. Y que Lupus afecta a todos de manera diferente. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A2. Humidity. Air quality. Work environment e.g. air conditioning or heat. Elevation/altitude. Adjusting to different time zones. Long traveling. I had to spend an entire day in bed after I flew from Albuquerque to Philadelphia a few years ago. #LupusChat |
| #LupusChat @Lupus_Chat RT @lapointe67: @Lupus_Chat A1: @Lupus_Chat A1: Living in Los Angeles, the norm is warm and sunny. I can tell if it has rained overnight before I even get out of bed. Everything hurts from top to bottom and the exhaustion is off the charts. I am typically non-functional w/a big change. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 Lupus is a complex chronic illness. "Cold temperatures could be causing painful flare-ups as blood vessels constrict in the cold to prevent heat loss" #LupusChat https://t.co/fL7oyYGXxw |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: I also notice that my body has a difficult time in extremely hot and sunny temperatures, especially if there is high humidity. My joints ache terribly and my mobility is usually impaired. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A2: A2: I also notice that after a long airplane flight I experience changes in my health. It is quite possible that the altitude can impact ones health. Along with being sedentary for so long. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 "Storms change the barometric pressure around them frequently. Even for people with Lupus who are not bothered by the cold, these pressure changes can cause symptom flares and pain. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: Whenever I am in the sun too long I find myself drained of all energy. My fatigue increases like a million times more and it seems to aggravate all of my lupus symptoms. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 "Researchers believe it results from a complex equation of multiple factors. One part of the equation is your genetic makeup; another involves the hormones that regulate much of your body’s functions. A third is your environment" #LupusChat https://t.co/N4PQInriio |
| RaquelRoschell @raquelonpurpose RT @SynceNerd_Carli: A2: A2: It is my belief that environmental factors contribute significantly to our health. For example, one key event leading to my diagnosis was when I spent a day at the beach in extreme heat and sunlight. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A1 : @Lupus_Chat A1 : The sun & this Texas heat cause problems. I feel sluggish and just weird😊. Cold weather causes pain issues. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A1. I get increased joint pain and inflammation when the weather gets cold and/or rainy. And I get lightheaded when it's really hot. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: It seems many of us experience changes to our health depending on the weather. Let’s discuss what potentially causes those changes for Question 2. #LupusChat https://t.co/7KROSwedsV |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 El calor y la humedad pueden intensificar la fatiga extrema en el caso de Miah. La afecta hasta el punto de que no puede funcionar. El verano es la temporada del año que menos esperamos. #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A2: A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:1 Hard to tell at times bc my symptoms don't go away, but I definitely feel much worse over all in cold weather. Paaain! Also feel like my grandmother my have been telling the truth when she said she could tell when it was going to rain bc her joints stiffened. 😬 #LupusChat https://t.co/nBsn339IJG |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 "Experts say humidity can aggravate joint soreness" #LupusChat https://t.co/3Vwvx7WGAF |
| Carly by Nature @SynceNerd_Carli RT @BeckieLaureano: @Xtel007 @Lupus_Chat Same here. My body doesn’t so well with extreme heat. I live in El Paso, Texas and our summers are terribly hot so I normally hibernate in the summer and rarely leave home during the peak hours of the heat. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A2: A2: I also notice that after a long airplane flight I experience changes in my health. It is quite possible that the altitude can impact ones health. Along with being sedentary for so long. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @TiffanyAndLupus: A1: A1: I notice changes in my body when the weather is cold or rainy. My joints will ache and sometimes swell. Muscle pain is often increased & I usually have a hard time getting out of bed/starting my day. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: What are some environmental, atmospheric, or climate changes that may affect your chronic illness? #LupusChat https://t.co/UTnw8LzISW |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q2: Q2: Cuáles son algunos cambios ambientales, atmosféricos o climáticos que pueden afectar su enfermedad crónica? #LupusChat https://t.co/BjvBClWyG9 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. Environmental changes definitely affect Lupus. I'm 100% convinced that moving to this country in the dead of winter from a perpetually hot caribbean climate is one of the factors that brought on my Lupus. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. People with chronic illnesses and/or compromised immune systems are very affected by atmospheric and climate change. Extreme heat, extreme weather events, poor air quality affects our health and threaten our well-being. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @lapointe67: @Lupus_Chat A1: @Lupus_Chat A1: Living in Los Angeles, the norm is warm and sunny. I can tell if it has rained overnight before I even get out of bed. Everything hurts from top to bottom and the exhaustion is off the charts. I am typically non-functional w/a big change. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 Lupus is a complex chronic illness. "Cold temperatures could be causing painful flare-ups as blood vessels constrict in the cold to prevent heat loss" #LupusChat https://t.co/fL7oyYGXxw |
| #LupusChat @Lupus_Chat RT @iveyjanette_207: @Lupus_Chat A2. Humidity. Air quality. Work environment e.g. air conditioning or heat. Elevation/altitude. Adjusting to different time zones. Long traveling. I had to spend an entire day in bed after I flew from Albuquerque to Philadelphia a few years ago. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 El calor y la humedad pueden intensificar la fatiga extrema en el caso de Miah. La afecta hasta el punto de que no puede funcionar. El verano es la temporada del año que menos esperamos. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli I experienced that when I flew from Albuquerque to Philadelphia a few years ago. Even though I had a layover in Chicago. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 "Las tormentas / Lluvias cambian la presión barométrica que las rodea con frecuencia. Incluso para las personas con Lupus a quienes no les molesta el frío, estos cambios de presión pueden causar brotes de síntomas y dolor. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A2. Humidity. Air quality. Work environment e.g. air conditioning or heat. Elevation/altitude. Adjusting to different time zones. Long traveling. I had to spend an entire day in bed after I flew from Albuquerque to Philadelphia a few years ago. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 Lupus is a complex chronic illness. "Cold temperatures could be causing painful flare-ups as blood vessels constrict in the cold to prevent heat loss" #LupusChat https://t.co/fL7oyYGXxw |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. People with chronic illnesses and/or compromised immune systems are very affected by atmospheric and climate change. Extreme heat, extreme weather events, poor air quality affects our health and threaten our well-being. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. Environmental changes definitely affect Lupus. I'm 100% convinced that moving to this country in the dead of winter from a perpetually hot caribbean climate is one of the factors that brought on my Lupus. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 The heat and the humidity can intensify the extreme fatigue in Miah's case. It affects her to a point that she is not able to function. Every year we are not looking forward to summer #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A1 #LupusChat ⬇️ |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 "Las temperaturas frías podrían estar causando brotes dolorosos ya que los vasos sanguíneos se contraen en el frío para evitar la pérdida de calor" #LupusChat https://t.co/KINbbB6j6Y |
| David Lazar, MD MPH @DrDavidLazar @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A2 "People with lupus can trace their symptoms to a number of lifestyle triggers" #LupusChat https://t.co/GiU2uCQbNC |
| ⚖️ Renee @Renee_PLP @TiffanyAndLupus @Lupus_Chat A1: I am super sun-sensitive and even a quick walk in the sunshine can leave me patchy with rashes on face and arms - and lately my scalp as my hair has thinned. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: También noté que después de un largo vuelo en avión, experimenté cambios en mi salud. Es muy posible que la altitud pueda impactar la salud. Junto con ser sedentarios por tanto tiempo. #LupusChat |
 | Ayah’s for the Planet @AyahsHope Yes! Cover up #lupus |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 "Las temperaturas frías podrían estar causando brotes dolorosos ya que los vasos sanguíneos se contraen en el frío para evitar la pérdida de calor" #LupusChat https://t.co/KINbbB6j6Y |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 The heat and the humidity can intensify the extreme fatigue in Miah's case. It affects her to a point that she is not able to function. Every year we are not looking forward to summer #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Carly by Nature @SynceNerd_Carli @iveyjanette_207 Yea, it's the worst. I had a terrible experience when I flew to San Francisco a couple months ago. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @TiffanyAndLupus: A2: A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A1: A1: Whenever I am in the sun too long I find myself drained of all energy. My fatigue increases like a million times more and it seems to aggravate all of my lupus symptoms. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @SynceNerd_Carli I experienced that when I flew from Albuquerque to Philadelphia a few years ago. Even though I had a layover in Chicago. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @lapointe67: @TiffanyAndLupus @Lupus_Chat A1: @TiffanyAndLupus @Lupus_Chat A1: I am super sun-sensitive and even a quick walk in the sunshine can leave me patchy with rashes on face and arms - and lately my scalp as my hair has thinned. #LupusChat |
| Friends AgainstLupus @AgainstLupus RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @lapointe67 @SynceNerd_Carli @Lupus_Chat True. I grew up in Los Angeles. June Gloom and May Gray always affected my body. Ditto going to the beach. Or when I worked in Santa Monica. #LupusChat |
| #LupusChat @Lupus_Chat RT @lapointe67: @TiffanyAndLupus @Lupus_Chat A1: @TiffanyAndLupus @Lupus_Chat A1: I am super sun-sensitive and even a quick walk in the sunshine can leave me patchy with rashes on face and arms - and lately my scalp as my hair has thinned. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @lapointe67: @TiffanyAndLupus @Lupus_Chat A1: @TiffanyAndLupus @Lupus_Chat A1: I am super sun-sensitive and even a quick walk in the sunshine can leave me patchy with rashes on face and arms - and lately my scalp as my hair has thinned. #LupusChat |
| #LupusChat @Lupus_Chat Now that we’ve identified potential environmental triggers, next, we’ll explore any preparations or preventative measures we must take to navigate through each season in Question 3. #LupusChat https://t.co/4V18rqN5wT |
| beckie @BeckieLaureano @Lupus_Chat A2: I have noticed when I visit places that are more humid, my body doesn’t hurt as much but my skin begins to react. Last year, I visited Chicago & I did a lot of walking but didn’t have as much pain as I was expecting. Also, I visited San Antonio, Texas & same thing. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| David Lazar, MD MPH @DrDavidLazar https://t.co/qdcFt2rbMd #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: https://t.co/qdcFt2rbMd #LupusChat |
| #LupusChat @Lupus_Chat Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: https://t.co/qdcFt2rbMd #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A2 : The sun causes rashes. I have allergies year round but right now the climate seems to be causing lung and breathing issues. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @SynceNerd_Carli It's even worse on the train. I always swell up really bad when I take the train from Albuquerque to LA. My flight back to Albuquerque from Philadelphia went through Dallas. Through storms. And turbulence. It triggered a flare. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus @seanie314 NYC #pride isn’t til the last Sunday in June and I just know it’s going to be unbearably hot 😭 #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Now that we’ve identified potential environmental triggers, next, we’ll explore any preparations or preventative measures we must take to navigate through each season in Question 3. #LupusChat https://t.co/4V18rqN5wT |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : The sun causes rashes. I have allergies year round but right now the climate seems to be causing lung and breathing issues. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BeckieLaureano: @Lupus_Chat A2: @Lupus_Chat A2: I have noticed when I visit places that are more humid, my body doesn’t hurt as much but my skin begins to react. Last year, I visited Chicago & I did a lot of walking but didn’t have as much pain as I was expecting. Also, I visited San Antonio, Texas & same thing. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Now that we’ve identified potential environmental triggers, next, we’ll explore any preparations or preventative measures we must take to navigate through each season in Question 3. #LupusChat https://t.co/4V18rqN5wT |
| #LupusChat @Lupus_Chat Q3: Hay algo que haga de manera diferente para prepararse para actividades al aire libre durante cada temporada? #LupusChat https://t.co/gaM7uXPuXY |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : The sun causes rashes. I have allergies year round but right now the climate seems to be causing lung and breathing issues. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @TiffanyAndLupus The sun can have negative effects on patients with autoimmune diseases. #lupuschat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: https://t.co/qdcFt2rbMd #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| Caring For Lupus @CaringForLupus RT @BeckieLaureano: @Lupus_Chat A2: @Lupus_Chat A2: I have noticed when I visit places that are more humid, my body doesn’t hurt as much but my skin begins to react. Last year, I visited Chicago & I did a lot of walking but didn’t have as much pain as I was expecting. Also, I visited San Antonio, Texas & same thing. #LupusChat |
| Caring For Lupus @CaringForLupus RT @lapointe67: @TiffanyAndLupus @Lupus_Chat A1: @TiffanyAndLupus @Lupus_Chat A1: I am super sun-sensitive and even a quick walk in the sunshine can leave me patchy with rashes on face and arms - and lately my scalp as my hair has thinned. #LupusChat |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : The sun causes rashes. I have allergies year round but right now the climate seems to be causing lung and breathing issues. #LupusChat |
 | THINA—OGKPOPSTAN.COM @ogkpopstan98 Joining!😁 - Thina - Houston, TX - photographer+graphic designer - 💋 #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Please include the hashtag ~> #LupusChat in EACH of your tweet responses to join the conversation. This is how we see your responses & share them with the online #lupus community! https://t.co/ISBb3wjjlv |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Use Q1 or A1 to answer each question. This helps us connect your responses to each question in our post-chat transcript. #LupusChat https://t.co/aAMBYsW2KO |
| Caring For Lupus @CaringForLupus RT @iveyjanette_207: @Lupus_Chat A2. Humidity. Air quality. Work environment e.g. air conditioning or heat. Elevation/altitude. Adjusting to different time zones. Long traveling. I had to spend an entire day in bed after I flew from Albuquerque to Philadelphia a few years ago. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q3: Q3: Hay algo que haga de manera diferente para prepararse para actividades al aire libre durante cada temporada? #LupusChat https://t.co/gaM7uXPuXY |
| Caring For Lupus @CaringForLupus A3 During warm days, Miah is uses the @MissionCooling towel. When activated with water it cools to 30 degrees below average body temperature in under 30 seconds. It is chemical free and UPF 50 #LupusChat https://t.co/dOFTDwDnjL |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. Summers, I load up on sunscreen. I love sunscreen sprays for my legs and arms. It’s also important to stay hydrated and cool. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. During Fall/Spring, when it’s “nice” out according to everyone else, I have to remind myself that I usually still need a light coat and scarf. #LupusChat |
| Caring For Lupus @CaringForLupus RT @xthina_etc: Joining!😁 - Thina - Houston, TX - photographer+graphic designer - 💋 #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
| beckie @BeckieLaureano @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A3. During Fall/Spring, when it’s “nice” out according to everyone else, I have to remind myself that I usually still need a light coat and scarf. #LupusChat |
| ⚖️ Renee @Renee_PLP @Xtel007 @Lupus_Chat A2: Yes. I know when we have big fires burning (sadly we have 'fire season' here), I tend to develop pleurisy. Big jumps or big drops in temp usually = more fatigue and joint pain. #LupusChat |
| Caring For Lupus @CaringForLupus A3 Durante los días cálidos, Miah utiliza la toalla @MissionCooling. Cuando se activa con agua, se enfría a 30 grados por debajo de la temperatura corporal promedio en menos de 30 segundos. Es libre de químicos y UPF 50. #LupusChat https://t.co/BZO8fJug8R |
| Caring For Lupus @CaringForLupus RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:3 Not much I do for the warm weather. There's only so much to put on and uh take off. Sunscreen & hats🤷 If I'm going to be in the cold, I have to bundle, bundle, bundle, especially with Raynaud's. It takes no time for me to turn blue even with layers at times. #LupusChat https://t.co/duPzNWM56O |
| Tiffany ⁷ @TiffanyAndLupus A3: For sunny weather, I make sure to apply sunscreen under my makeup & reapply with a spray throughout the day. I have a parasol and several wide brim hats. I also carry a small spritzer bottle of water in my purse so I don't overheat outdoors. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 During warm days, Miah is uses the @MissionCooling towel. When activated with water it cools to 30 degrees below average body temperature in under 30 seconds. It is chemical free and UPF 50 #LupusChat https://t.co/dOFTDwDnjL |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. Summers, I load up on sunscreen. I love sunscreen sprays for my legs and arms. It’s also important to stay hydrated and cool. #LupusChat |
| Caring For Lupus @CaringForLupus A3 Miah has different types UPF50 hats for the seasons. #LupusChat https://t.co/RdncykyUCQ |
| #LupusChat @Lupus_Chat RT @Xtel007: A3. During Fall/Spring, when it’s “nice” out according to everyone else, I have to remind myself that I usually still need a light coat and scarf. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A1 MOST DEFINITELY. I’m always dealing with sweaty yet clammy skin in the summer time, since I’m always going from hot to cold so quickly and so many times a day😞 I called off of work today b/c of the heat... #LupusChat |
| #LupusChat @Lupus_Chat RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Caring For Lupus @CaringForLupus A3 Miah tiene diferentes tipos de sombreros UPF50 para las estaciones. #LupusChat https://t.co/dyyDJ73osM |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:3 Not much I do for the warm weather. There's only so much to put on and uh take off. Sunscreen & hats🤷 If I'm going to be in the cold, I have to bundle, bundle, bundle, especially with Raynaud's. It takes no time for me to turn blue even with layers at times. #LupusChat https://t.co/duPzNWM56O |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: For sunny weather, I make sure to apply sunscreen under my makeup & reapply with a spray throughout the day. I have a parasol and several wide brim hats. I also carry a small spritzer bottle of water in my purse so I don't overheat outdoors. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: For sunny weather, I make sure to apply sunscreen under my makeup & reapply with a spray throughout the day. I have a parasol and several wide brim hats. I also carry a small spritzer bottle of water in my purse so I don't overheat outdoors. #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A1 MOST DEFINITELY. I’m always dealing with sweaty yet clammy skin in the summer time, since I’m always going from hot to cold so quickly and so many times a day😞 I called off of work today b/c of the heat... #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Miah tiene diferentes tipos de sombreros UPF50 para las estaciones. #LupusChat https://t.co/dyyDJ73osM |
| #LupusChat @Lupus_Chat RT @xthina_etc: Joining!😁 - Thina - Houston, TX - photographer+graphic designer - 💋 #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Durante los días cálidos, Miah utiliza la toalla @MissionCooling. Cuando se activa con agua, se enfría a 30 grados por debajo de la temperatura corporal promedio en menos de 30 segundos. Es libre de químicos y UPF 50. #LupusChat https://t.co/BZO8fJug8R |
| David Lazar, MD MPH @DrDavidLazar @CaringForLupus Hats, long sleeve shirts, pants that are high in sun protection are great options. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: When the temperature will be colder, or even if I’m going to a heavily air conditioned space, I usually dress with long sleeves and bring hand warmers if possible. #LupusChat |
| #LupusChat @Lupus_Chat We’ve covered the physical changes weather can have on us. For Question 4, let’s examine other ways environmental factors can impact our well-being. #LupusChat https://t.co/HrJw4dqfqR |
| Tiffany ⁷ @TiffanyAndLupus A3: I use @Supergoop sunscreen in various different forms. It works gently on my sensitive skin & they have a sunscreen spray version for those who wear makeup and need to reapply sunscreen. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A3 Miah has different types UPF50 hats for the seasons. #LupusChat https://t.co/RdncykyUCQ |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @CaringForLupus Hats, long sleeve shirts, pants that are high in sun protection are great options. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: I use @Supergoop sunscreen in various different forms. It works gently on my sensitive skin & they have a sunscreen spray version for those who wear makeup and need to reapply sunscreen. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: There are even several brands that make UV protective clothing - Uniqlo is one that is on the affordable side. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A2 hot temperatures tend to give me little colds and flare-ups easily since my body is struggling to keep up with rapid changes and cold temperatures make all my joints achy to where I become best friends with Icy Hot😑 #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: Cuando la temperatura sea más fría, o incluso si voy a un espacio con aire acondicionado, por lo general me visto con mangas largas y, si es posible, traigo calentadores para las manos. #LupusChat |
| #LupusChat @Lupus_Chat Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: When the temperature will be colder, or even if I’m going to a heavily air conditioned space, I usually dress with long sleeves and bring hand warmers if possible. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: I use @Supergoop sunscreen in various different forms. It works gently on my sensitive skin & they have a sunscreen spray version for those who wear makeup and need to reapply sunscreen. #LupusChat |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: We’ve covered the physical changes weather can have on us. For Question 4, let’s examine other ways environmental factors can impact our well-being. #LupusChat https://t.co/HrJw4dqfqR |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: I use @Supergoop sunscreen in various different forms. It works gently on my sensitive skin & they have a sunscreen spray version for those who wear makeup and need to reapply sunscreen. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: There are even several brands that make UV protective clothing - Uniqlo is one that is on the affordable side. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @DrDavidLazar: @CaringForLupus Hats, long sleeve shirts, pants that are high in sun protection are great options. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: We’ve covered the physical changes weather can have on us. For Question 4, let’s examine other ways environmental factors can impact our well-being. #LupusChat https://t.co/HrJw4dqfqR |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Cuando la temperatura sea más fría, o incluso si voy a un espacio con aire acondicionado, por lo general me visto con mangas largas y, si es posible, traigo calentadores para las manos. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 During warm days, Miah is uses the @MissionCooling towel. When activated with water it cools to 30 degrees below average body temperature in under 30 seconds. It is chemical free and UPF 50 #LupusChat https://t.co/dOFTDwDnjL |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A3 : In the summer I don't go sleeveless. If I am taking a walk I wear long sleeves - light material. I wear hats if possible & sunscreen. Winter - I limit my outdoor walks. Use indoor work out. I wear gloves & extra pairs of socks. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. Summers, I load up on sunscreen. I love sunscreen sprays for my legs and arms. It’s also important to stay hydrated and cool. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: When the temperature will be colder, or even if I’m going to a heavily air conditioned space, I usually dress with long sleeves and bring hand warmers if possible. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: 📌🗓 Our next #LupusChat discussion is tomorrow, Sunday June 9th at 3PM Eastern Time. Join us to explore how weather affects those of us living with chronic illness. ⛈❄️🌤 Together, we’ll discuss the role environmental factors have on our wellbeing. See you there! https://t.co/0OZ5R3esSh |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. During Fall/Spring, when it’s “nice” out according to everyone else, I have to remind myself that I usually still need a light coat and scarf. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A2 hot temperatures tend to give me little colds and flare-ups easily since my body is struggling to keep up with rapid changes and cold temperatures make all my joints achy to where I become best friends with Icy Hot😑 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| beckie @BeckieLaureano @Lupus_Chat A3: As I get older, I notice Lupus has taken a greater affect on my body. I get more tired easily than before. I am a HR manager & work about 50 hours a week & it takes all weekend to regain my strength to prepare for the upcoming work week #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: Joining!😁 - Thina - Houston, TX - photographer+graphic designer - 💋 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: @CaringForLupus Hats, long sleeve shirts, pants that are high in sun protection are great options. #LupusChat |
| #LupusChat @Lupus_Chat Q4: Ha experimentado reacciones mentales o emocionales dependiendo a los cambios en el clima? Si te sientes cómodo, por favor comparte. #LupusChat https://t.co/6SHM0wyNlH |
 | suzannelynnn @monidoooosch RT @FKLUPUS: A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 Miah has different types UPF50 hats for the seasons. #LupusChat https://t.co/RdncykyUCQ |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Seasonal depression is real ok. And before I even knew about that term, I always had a history of just feeling better during the warmer months, I have more energy and I’m happier. #LupusChat |
| Carly by Nature @SynceNerd_Carli @xthina_etc Welcome back to #LupusChat Thina! |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: Joining!😁 - Thina - Houston, TX - photographer+graphic designer - 💋 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : In the summer I don't go sleeveless. If I am taking a walk I wear long sleeves - light material. I wear hats if possible & sunscreen. Winter - I limit my outdoor walks. Use indoor work out. I wear gloves & extra pairs of socks. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: Hay algo que haga de manera diferente para prepararse para actividades al aire libre durante cada temporada? #LupusChat https://t.co/gaM7uXPuXY |
| RaquelRoschell @raquelonpurpose RT @Xtel007: A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. Summers, I load up on sunscreen. I love sunscreen sprays for my legs and arms. It’s also important to stay hydrated and cool. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A3 During warm days, Miah is uses the @MissionCooling towel. When activated with water it cools to 30 degrees below average body temperature in under 30 seconds. It is chemical free and UPF 50 #LupusChat https://t.co/dOFTDwDnjL |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @SynceNerd_Carli It's even worse on the train. I always swell up really bad when I take the train from Albuquerque to LA. My flight back to Albuquerque from Philadelphia went through Dallas. Through storms. And turbulence. It triggered a flare. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @raquelonpurpose: @Lupus_Chat A2 : @Lupus_Chat A2 : The sun causes rashes. I have allergies year round but right now the climate seems to be causing lung and breathing issues. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| Friends AgainstLupus @AgainstLupus RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| Tiffany ⁷ @TiffanyAndLupus @OhVeronica9 @DavidGotJokes lol, we usually have 5-6 questions during #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: If I’ll be in extreme heat or sunlight for longer than 20 minutes, I am sure to wear a hat and to protect my face. I might also opt for long pants instead of shorts. #LupusChat |
| #LupusChat @Lupus_Chat RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: As I get older, I notice Lupus has taken a greater affect on my body. I get more tired easily than before. I am a HR manager & work about 50 hours a week & it takes all weekend to regain my strength to prepare for the upcoming work week #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A4. Seasonal depression is real ok. And before I even knew about that term, I always had a history of just feeling better during the warmer months, I have more energy and I’m happier. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: If I’ll be in extreme heat or sunlight for longer than 20 minutes, I am sure to wear a hat and to protect my face. I might also opt for long pants instead of shorts. #LupusChat |
| Carly by Nature @SynceNerd_Carli @mrschrislopez @Lupus_Chat Welcome to #LupusChat. Thanks for joining us today. Sorry to hear of your diagnosis, but please feel free to reach out to us at any time. We're here. 💜 |
| Carly by Nature @SynceNerd_Carli A3: Si estaré en condiciones de calor extremo o luz solar durante más de 20 minutos, estoy seguro de usar un sombrero y protegerme la cara. También podría optar por pantalones largos en lugar de pantalones cortos. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q3: Q3: Is there anything you do differently to prepare for outdoor activities throughout each season? #LupusChat https://t.co/pOnHLaE4F4 |
| Carly by Nature @SynceNerd_Carli RT @BeckieLaureano: @Lupus_Chat A2: @Lupus_Chat A2: I have noticed when I visit places that are more humid, my body doesn’t hurt as much but my skin begins to react. Last year, I visited Chicago & I did a lot of walking but didn’t have as much pain as I was expecting. Also, I visited San Antonio, Texas & same thing. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Now that we’ve identified potential environmental triggers, next, we’ll explore any preparations or preventative measures we must take to navigate through each season in Question 3. #LupusChat https://t.co/4V18rqN5wT |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @lapointe67 @SynceNerd_Carli @Lupus_Chat True. I grew up in Los Angeles. June Gloom and May Gray always affected my body. Ditto going to the beach. Or when I worked in Santa Monica. #LupusChat |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A3 I always carry a small umbrella, sunscreen, and pain meds w/me in the sun. I avoid going out if possible when it’s raining like crazy and if I do go out, I make sure to not get wet. I stay buried under layers of blankets in a hot house in the winter. #LupusChat |
| ⚖️ Renee @Renee_PLP @Lupus_Chat Hey! Renee in West Hollywood, CA (Los Angeles). I work for a TV network, am owned by 2 cats and enjoy painting and reading. I'm listening to the happy sounds of the Pride Parade go by during today's #LupusChat. :) |
| Carly by Nature @SynceNerd_Carli A3: Hot or cold, I have to wear sunscreen almost daily. Indoor lighting can also affect my Lupus and cause a rash or even SLE manifestations like aches and pains. I also use cooling cloths. #LupusChat |
| RaquelRoschell @raquelonpurpose RT @xthina_etc: A2 hot temperatures tend to give me little colds and flare-ups easily since my body is struggling to keep up with rapid changes and cold temperatures make all my joints achy to where I become best friends with Icy Hot😑 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A3: In really cold weather I live in sweatsuits while home, my heating pad goes everywhere with me lol. I wear layers if I have to venture outside. and hot epsom salt baths for cold days with achy joints/bones. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. I make sure to wear light colored clothing during the summer months. And SPF 110 is a must! Plus water and Gatorade to keep hydrated. During the winter,I dress in layers. It can get extremely cold here in New Mexico. #LupusChat |
| Carly by Nature @SynceNerd_Carli @CaringForLupus @MissionCooling I use these also. One of the best additions on extremely hot days! They have saved me plenty of times from passing out. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @CaringForLupus Hats, long sleeve shirts, pants that are high in sun protection are great options. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @lapointe67: @Lupus_Chat Hey! Renee in West Hollywood, CA (Los Angeles). I work for a TV network, am owned by 2 cats and enjoy painting and reading. I'm listening to the happy sounds of the Pride Parade go by during today's #LupusChat. :) |
| Caring For Lupus @CaringForLupus @DrDavidLazar A3 yes 😊. In addition we use SunGuard; a laundry aid that washes UV protection into clothes #LupusChat https://t.co/7DzISawm7Q |
 | Eshia Mercedes @LadyGuyton_ RT @TiffanyAndLupus: A2: A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A3 I always carry a small umbrella, sunscreen, and pain meds w/me in the sun. I avoid going out if possible when it’s raining like crazy and if I do go out, I make sure to not get wet. I stay buried under layers of blankets in a hot house in the winter. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:2 I noticed I feel like death warmed over after being in the sun. It doesn't take long. My energy is completely zapped by the 🌞. I can't really function in the cold. Didn't notice until I moved to a warmer climate. I can't even tolerate ice packs, should've known. #LupusChat https://t.co/G6tjm0Ay2s |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:3 Not much I do for the warm weather. There's only so much to put on and uh take off. Sunscreen & hats🤷 If I'm going to be in the cold, I have to bundle, bundle, bundle, especially with Raynaud's. It takes no time for me to turn blue even with layers at times. #LupusChat https://t.co/duPzNWM56O |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Miah has different types UPF50 hats for the seasons. #LupusChat https://t.co/RdncykyUCQ |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: For sunny weather, I make sure to apply sunscreen under my makeup & reapply with a spray throughout the day. I have a parasol and several wide brim hats. I also carry a small spritzer bottle of water in my purse so I don't overheat outdoors. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A4. Seasonal depression is real ok. And before I even knew about that term, I always had a history of just feeling better during the warmer months, I have more energy and I’m happier. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A3 Miah tiene diferentes tipos de sombreros UPF50 para las estaciones. #LupusChat https://t.co/dyyDJ73osM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: We’ve covered the physical changes weather can have on us. For Question 4, let’s examine other ways environmental factors can impact our well-being. #LupusChat https://t.co/HrJw4dqfqR |
| Eshia Mercedes @LadyGuyton_ RT @BeckieLaureano: @Lupus_Chat Yes, I do. My legs and arms tend to hurt more when it’s cold. Winter is the worse for me especially at night. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: Remember to check your state guidelines on the level of window tint for patients with autoimmune disease #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @lapointe67: @Lupus_Chat Hey! Renee in West Hollywood, CA (Los Angeles). I work for a TV network, am owned by 2 cats and enjoy painting and reading. I'm listening to the happy sounds of the Pride Parade go by during today's #LupusChat. :) |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A3 I always carry a small umbrella, sunscreen, and pain meds w/me in the sun. I avoid going out if possible when it’s raining like crazy and if I do go out, I make sure to not get wet. I stay buried under layers of blankets in a hot house in the winter. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. I make sure to wear light colored clothing during the summer months. And SPF 110 is a must! Plus water and Gatorade to keep hydrated. During the winter,I dress in layers. It can get extremely cold here in New Mexico. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @DrDavidLazar A3 yes 😊. In addition we use SunGuard; a laundry aid that washes UV protection into clothes #LupusChat https://t.co/7DzISawm7Q |
| Eshia Mercedes @LadyGuyton_ RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: For me, unfortunately I try to avoid going out in the heat. I limit all my activities. If I do have an activity that will being in the heat, I normally will rest the following day and do nothing but stay in bed. My body needs the rest. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A4. I get really sad when the weather is cold and/or rainy. Sometimes in tears. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Si estaré en condiciones de calor extremo o luz solar durante más de 20 minutos, estoy seguro de usar un sombrero y protegerme la cara. También podría optar por pantalones largos en lugar de pantalones cortos. #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A3 I always carry a small umbrella, sunscreen, and pain meds w/me in the sun. I avoid going out if possible when it’s raining like crazy and if I do go out, I make sure to not get wet. I stay buried under layers of blankets in a hot house in the winter. #LupusChat |
| #LupusChat @Lupus_Chat RT @lapointe67: @Lupus_Chat Hey! Renee in West Hollywood, CA (Los Angeles). I work for a TV network, am owned by 2 cats and enjoy painting and reading. I'm listening to the happy sounds of the Pride Parade go by during today's #LupusChat. :) |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A4 I’m very whiny to my close ones and moody overall when I’m feeling uncomfortable from having to constantly adapt to constantly changing temperatures since it makes me just want to cancel everything for the day. I’m working on it though😛😅 #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A3: A3: In really cold weather I live in sweatsuits while home, my heating pad goes everywhere with me lol. I wear layers if I have to venture outside. and hot epsom salt baths for cold days with achy joints/bones. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: Hot or cold, I have to wear sunscreen almost daily. Indoor lighting can also affect my Lupus and cause a rash or even SLE manifestations like aches and pains. I also use cooling cloths. #LupusChat |
| Carly by Nature @SynceNerd_Carli A3: calor o frío, tengo que usar protector solar casi a diario. La iluminación interior también puede afectar mi Lupus y causar una erupción o incluso manifestaciones de LES como dolores y molestias. También uso paños de refrigeración. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @DrDavidLazar A3 yes 😊. In addition we use SunGuard; a laundry aid that washes UV protection into clothes #LupusChat https://t.co/7DzISawm7Q |
| #LupusChat @Lupus_Chat Because the weather can have serious impacts on our health, it is important to seek help when necessary. Let’s discuss this more in Question 5. #LupusChat https://t.co/UtG5XnGYm3 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat *That was A3*. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A4 I’m very whiny to my close ones and moody overall when I’m feeling uncomfortable from having to constantly adapt to constantly changing temperatures since it makes me just want to cancel everything for the day. I’m working on it though😛😅 #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @iveyjanette_207: @Lupus_Chat A4. I get really sad when the weather is cold and/or rainy. Sometimes in tears. #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A4 I’m very whiny to my close ones and moody overall when I’m feeling uncomfortable from having to constantly adapt to constantly changing temperatures since it makes me just want to cancel everything for the day. I’m working on it though😛😅 #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A3: A3: calor o frío, tengo que usar protector solar casi a diario. La iluminación interior también puede afectar mi Lupus y causar una erupción o incluso manifestaciones de LES como dolores y molestias. También uso paños de refrigeración. #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Because the weather can have serious impacts on our health, it is important to seek help when necessary. Let’s discuss this more in Question 5. #LupusChat https://t.co/UtG5XnGYm3 |
| Caring For Lupus @CaringForLupus @DrDavidLazar A3 we added medical tinted windows to our car due to her photosensitivity #LupusChat https://t.co/zFjqBZLnZp |
 | sophie @sophieshore2 Q: what ways help with hair thinning? All of these treatments are kicking my ass and i don’t know what to do #LupusChat |
| #LupusChat @Lupus_Chat Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: In really cold weather I live in sweatsuits while home, my heating pad goes everywhere with me lol. I wear layers if I have to venture outside. and hot epsom salt baths for cold days with achy joints/bones. #LupusChat |
| ⚖️ Renee @Renee_PLP @Lupus_Chat A4: When weather changes quickly, my pain & fatigue spike. It's hard not to feel down when you can barely function. I try to remind myself that it's temporary but staying positive can be a challenge. I try to be honest w/my dr about it so she can monitor & adjust meds.#LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Because the weather can have serious impacts on our health, it is important to seek help when necessary. Let’s discuss this more in Question 5. #LupusChat https://t.co/UtG5XnGYm3 |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @DrDavidLazar A3 we added medical tinted windows to our car due to her photosensitivity #LupusChat https://t.co/zFjqBZLnZp |
| #LupusChat @Lupus_Chat Q5: Ha discutido la forma en que el clima afecta su salud con los miembros de su equipo médico? Cómo respondieron? #LupusChat https://t.co/2yVLkMIKEL |
| Carly by Nature @SynceNerd_Carli A4: Yes, my depression is intensified during the fall and winter months. I still experience it during other seasons, but it hits harder toward the end of the year when we lose hours of sunlight. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. My rheumie knows about how the cold and Raynauds affect me. She doesn’t feel it’s serious enough to prescribe something for it (although she will if I push). #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. As for the sun and the heat, she’s always cautioned me and I’m the one who initially dismissed it lol. She’s adamant about sunscreen use and limiting sun exposure. #LupusChat |
| #LupusChat @Lupus_Chat RT @lapointe67: @Lupus_Chat A4: @Lupus_Chat A4: When weather changes quickly, my pain & fatigue spike. It's hard not to feel down when you can barely function. I try to remind myself that it's temporary but staying positive can be a challenge. I try to be honest w/my dr about it so she can monitor & adjust meds.#LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| #LupusChat @Lupus_Chat RT @CaringForLupus: @DrDavidLazar A3 we added medical tinted windows to our car due to her photosensitivity #LupusChat https://t.co/zFjqBZLnZp |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @DrDavidLazar A3 we added medical tinted windows to our car due to her photosensitivity #LupusChat https://t.co/zFjqBZLnZp |
| Tiffany ⁷ @TiffanyAndLupus RT @lapointe67: @Lupus_Chat A4: @Lupus_Chat A4: When weather changes quickly, my pain & fatigue spike. It's hard not to feel down when you can barely function. I try to remind myself that it's temporary but staying positive can be a challenge. I try to be honest w/my dr about it so she can monitor & adjust meds.#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Because the weather can have serious impacts on our health, it is important to seek help when necessary. Let’s discuss this more in Question 5. #LupusChat https://t.co/UtG5XnGYm3 |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Ha discutido la forma en que el clima afecta su salud con los miembros de su equipo médico? Cómo respondieron? #LupusChat https://t.co/2yVLkMIKEL |
| Caring For Lupus @CaringForLupus RT @lapointe67: @Lupus_Chat A4: @Lupus_Chat A4: When weather changes quickly, my pain & fatigue spike. It's hard not to feel down when you can barely function. I try to remind myself that it's temporary but staying positive can be a challenge. I try to be honest w/my dr about it so she can monitor & adjust meds.#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. My rheumie knows about how the cold and Raynauds affect me. She doesn’t feel it’s serious enough to prescribe something for it (although she will if I push). #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q5: Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Yes, my depression is intensified during the fall and winter months. I still experience it during other seasons, but it hits harder toward the end of the year when we lose hours of sunlight. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: calor o frío, tengo que usar protector solar casi a diario. La iluminación interior también puede afectar mi Lupus y causar una erupción o incluso manifestaciones de LES como dolores y molestias. También uso paños de refrigeración. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. As for the sun and the heat, she’s always cautioned me and I’m the one who initially dismissed it lol. She’s adamant about sunscreen use and limiting sun exposure. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| Caring For Lupus @CaringForLupus RT @xthina_etc: A4 I’m very whiny to my close ones and moody overall when I’m feeling uncomfortable from having to constantly adapt to constantly changing temperatures since it makes me just want to cancel everything for the day. I’m working on it though😛😅 #LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A3: A3: In really cold weather I live in sweatsuits while home, my heating pad goes everywhere with me lol. I wear layers if I have to venture outside. and hot epsom salt baths for cold days with achy joints/bones. #LupusChat |
| Caring For Lupus @CaringForLupus RT @lapointe67: @Lupus_Chat Hey! Renee in West Hollywood, CA (Los Angeles). I work for a TV network, am owned by 2 cats and enjoy painting and reading. I'm listening to the happy sounds of the Pride Parade go by during today's #LupusChat. :) |
| Carly by Nature @SynceNerd_Carli @sophieshore2 Hi Sophie. Thanks for joining our chat today. We'll be sure to pose this question to the community so members can offer suggestions. #LupusChat |
| Caring For Lupus @CaringForLupus RT @xthina_etc: A3 I always carry a small umbrella, sunscreen, and pain meds w/me in the sun. I avoid going out if possible when it’s raining like crazy and if I do go out, I make sure to not get wet. I stay buried under layers of blankets in a hot house in the winter. #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A3: A3: If I’ll be in extreme heat or sunlight for longer than 20 minutes, I am sure to wear a hat and to protect my face. I might also opt for long pants instead of shorts. #LupusChat |
| Caring For Lupus @CaringForLupus RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: As I get older, I notice Lupus has taken a greater affect on my body. I get more tired easily than before. I am a HR manager & work about 50 hours a week & it takes all weekend to regain my strength to prepare for the upcoming work week #LupusChat |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: Ha experimentado reacciones mentales o emocionales dependiendo a los cambios en el clima? Si te sientes cómodo, por favor comparte. #LupusChat https://t.co/6SHM0wyNlH |
| Caring For Lupus @CaringForLupus RT @Lupus_Chat: Q4: Q4: Have you experienced mental or emotional reactions to changes in the weather? If you feel comfortable, please share. #LupusChat https://t.co/Fy8lJkd5mM |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Because the weather can have serious impacts on our health, it is important to seek help when necessary. Let’s discuss this more in Question 5. #LupusChat https://t.co/UtG5XnGYm3 |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Yes, my depression is intensified during the fall and winter months. I still experience it during other seasons, but it hits harder toward the end of the year when we lose hours of sunlight. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar RT @CaringForLupus: @DrDavidLazar A3 we added medical tinted windows to our car due to her photosensitivity #LupusChat https://t.co/zFjqBZLnZp |
| RaquelRoschell @raquelonpurpose RT @CaringForLupus: A3 Miah has different types UPF50 hats for the seasons. #LupusChat https://t.co/RdncykyUCQ |
| Tiffany ⁷ @TiffanyAndLupus A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A4: A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A5 Both my nephrologist and rheumatologist says that I have to lessen activities that could put any stress on me (physically mentally and emotionally) during challenging times for a lupie. I’ve managed to accept that as my way of life now and it’s done me well so far👍🏼 #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q5: Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| Carly by Nature @SynceNerd_Carli A4: Sí, mi depresión se intensifica durante los meses de otoño e invierno. Todavía lo experimento durante otras temporadas, pero es más fuerte hacia el final del año cuando perdemos horas de luz solar. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Yes, my depression is intensified during the fall and winter months. I still experience it during other seasons, but it hits harder toward the end of the year when we lose hours of sunlight. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. My rheumie knows about how the cold and Raynauds affect me. She doesn’t feel it’s serious enough to prescribe something for it (although she will if I push). #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| #LupusChat @Lupus_Chat RT @Xtel007: A5. As for the sun and the heat, she’s always cautioned me and I’m the one who initially dismissed it lol. She’s adamant about sunscreen use and limiting sun exposure. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A4: A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A5 Both my nephrologist and rheumatologist says that I have to lessen activities that could put any stress on me (physically mentally and emotionally) during challenging times for a lupie. I’ve managed to accept that as my way of life now and it’s done me well so far👍🏼 #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Sí, mi depresión se intensifica durante los meses de otoño e invierno. Todavía lo experimento durante otras temporadas, pero es más fuerte hacia el final del año cuando perdemos horas de luz solar. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A4: A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @FKLUPUS: A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. As for the sun and the heat, she’s always cautioned me and I’m the one who initially dismissed it lol. She’s adamant about sunscreen use and limiting sun exposure. #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5. My rheumie knows about how the cold and Raynauds affect me. She doesn’t feel it’s serious enough to prescribe something for it (although she will if I push). #LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Ha discutido la forma en que el clima afecta su salud con los miembros de su equipo médico? Cómo respondieron? #LupusChat https://t.co/2yVLkMIKEL |
| Carly by Nature @SynceNerd_Carli RT @lapointe67: @Lupus_Chat A4: @Lupus_Chat A4: When weather changes quickly, my pain & fatigue spike. It's hard not to feel down when you can barely function. I try to remind myself that it's temporary but staying positive can be a challenge. I try to be honest w/my dr about it so she can monitor & adjust meds.#LupusChat |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Q5: Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| Carly by Nature @SynceNerd_Carli A4: Also, the rain has an impact on my mood as well. Because of all of this, last year, I was sure to schedule frequent appointments with my therapist. It was helpful. #LupusChat |
| #LupusChat @Lupus_Chat Stay tuned! Our last #LupusChat question is next. https://t.co/BMasyNveBM |
| Carly by Nature @SynceNerd_Carli RT @xthina_etc: A5 Both my nephrologist and rheumatologist says that I have to lessen activities that could put any stress on me (physically mentally and emotionally) during challenging times for a lupie. I’ve managed to accept that as my way of life now and it’s done me well so far👍🏼 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A5: I have talked about how the weather affects my health with several of my healthcare specialists. My rheum & nephrologist always remind me to take precautions & taper up steroids if needed. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Stay tuned! Our last #LupusChat question is next. https://t.co/BMasyNveBM |
| Carly by Nature @SynceNerd_Carli RT @Lupus_Chat: Stay tuned! Our last #LupusChat question is next. https://t.co/BMasyNveBM |
| Carly by Nature @SynceNerd_Carli A4: Además, la lluvia también tiene un impacto en mi estado de ánimo. Debido a todo esto, el año pasado, estaba seguro de programar citas frecuentes con mi terapeuta. Fue de ayuda #LupusChat |
| #LupusChat @Lupus_Chat Q6: Can you offer any tips or suggestions to others in the community to assist with weather-induced mental, physical, or emotional manifestations of symptoms? #LupusChat https://t.co/315KTHj1qd |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: I have talked about how the weather affects my health with several of my healthcare specialists. My rheum & nephrologist always remind me to take precautions & taper up steroids if needed. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:5 I have discussed the way the weather impacts my health with my physicians. I've gotten some common sense advise like protecting my skin, don't isolate (SAD), etc. I don't know that there is much more they can say/do. 🤷 #LupusChat https://t.co/XiOxMFrgsI |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: Q6: Q6: Can you offer any tips or suggestions to others in the community to assist with weather-induced mental, physical, or emotional manifestations of symptoms? #LupusChat https://t.co/315KTHj1qd |
| Tiffany ⁷ @TiffanyAndLupus A5: My dermatologist reminds me to use sun protection endlessly. I once had a horrible discoid skin reaction on my face because I forgot my sunscreen and didn't have an umbrella. I still have scars from it. *cries* #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Summer is approaching, so a good sun hat and cute parasol are needed (I’m still working on procuring mine lol). Make sure to wear sunscreen and reapply (still working on that too). Drink plenty of water, limit sun exposure. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. For cold temperatures, dress in layers, make sure to cover your head (please read that in a Haitian accent), use those hot pack hand warmers. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:5 I have discussed the way the weather impacts my health with my physicians. I've gotten some common sense advise like protecting my skin, don't isolate (SAD), etc. I don't know that there is much more they can say/do. 🤷 #LupusChat https://t.co/XiOxMFrgsI |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A4 : I was actually about tweet about this. Yes - I have found myself battling an episode of depression that was a precursor to a flare as it got warmer. It has been way more pronounced and affected by whole body and emotional health. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A5 Both my nephrologist and rheumatologist says that I have to lessen activities that could put any stress on me (physically mentally and emotionally) during challenging times for a lupie. I’ve managed to accept that as my way of life now and it’s done me well so far👍🏼 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Also, the rain has an impact on my mood as well. Because of all of this, last year, I was sure to schedule frequent appointments with my therapist. It was helpful. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Also, the rain has an impact on my mood as well. Because of all of this, last year, I was sure to schedule frequent appointments with my therapist. It was helpful. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: I have talked about how the weather affects my health with several of my healthcare specialists. My rheum & nephrologist always remind me to take precautions & taper up steroids if needed. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A4: A4: Además, la lluvia también tiene un impacto en mi estado de ánimo. Debido a todo esto, el año pasado, estaba seguro de programar citas frecuentes con mi terapeuta. Fue de ayuda #LupusChat |
| #LupusChat @Lupus_Chat RT @FKLUPUS: A:5 I have discussed the way the weather impacts my health with my physicians. I've gotten some common sense advise like protecting my skin, don't isolate (SAD), etc. I don't know that there is much more they can say/do. 🤷 #LupusChat https://t.co/XiOxMFrgsI |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A5: A5: My dermatologist reminds me to use sun protection endlessly. I once had a horrible discoid skin reaction on my face because I forgot my sunscreen and didn't have an umbrella. I still have scars from it. *cries* #LupusChat |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Stay tuned! Our last #LupusChat question is next. https://t.co/BMasyNveBM |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Q6: Q6: Can you offer any tips or suggestions to others in the community to assist with weather-induced mental, physical, or emotional manifestations of symptoms? #LupusChat https://t.co/315KTHj1qd |
| THINA—OGKPOPSTAN.COM @ogkpopstan98 A6 ALWAYS👏🏼BE👏🏼AWARE👏🏼OF👏🏼THE👏🏼WEATHER! And also, be aware of the settings of places you’ll be so you can be well-prepared to adapt as you go👍🏼💜 #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q6: Q6: Can you offer any tips or suggestions to others in the community to assist with weather-induced mental, physical, or emotional manifestations of symptoms? #LupusChat https://t.co/315KTHj1qd |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. Summer is approaching, so a good sun hat and cute parasol are needed (I’m still working on procuring mine lol). Make sure to wear sunscreen and reapply (still working on that too). Drink plenty of water, limit sun exposure. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A5: Nope. Not at all. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: A6. For cold temperatures, dress in layers, make sure to cover your head (please read that in a Haitian accent), use those hot pack hand warmers. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Q5: Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I was actually about tweet about this. Yes - I have found myself battling an episode of depression that was a precursor to a flare as it got warmer. It has been way more pronounced and affected by whole body and emotional health. #LupusChat |
| David Lazar, MD MPH @DrDavidLazar @TiffanyAndLupus @Xtel007 IMO Anxiety & stress can worsen autoimmune disease activity & trigger flares #LupusChat |
| #LupusChat @Lupus_Chat RT @xthina_etc: A6 ALWAYS👏🏼BE👏🏼AWARE👏🏼OF👏🏼THE👏🏼WEATHER! And also, be aware of the settings of places you’ll be so you can be well-prepared to adapt as you go👍🏼💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: @TiffanyAndLupus @Xtel007 IMO Anxiety & stress can worsen autoimmune disease activity & trigger flares #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @DrDavidLazar: @TiffanyAndLupus @Xtel007 IMO Anxiety & stress can worsen autoimmune disease activity & trigger flares #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: Yes! My first Rheumatologist brought it up to me. I’ve also discussed the impacts of the weather on my health with my Dermatologist, Therapist, and Neurologist. #LupusChat |
| Rachel F F@#K LUPUS @FKLUPUS A:6 Exercise common sense. If you need to stay indoors, do so. Don't push yourself too hard. #LupusChat https://t.co/7U0TOI8KzE |
| Caring For Lupus @CaringForLupus A5 The humidity affects Miah tremendously. One of the recommendations by her doctor to be included on her 504 plan was that she needed to be in a air-conditioned room. #LupusChat https://t.co/hOwofw5RHj |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A4: A4: Also, the rain has an impact on my mood as well. Because of all of this, last year, I was sure to schedule frequent appointments with my therapist. It was helpful. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @FKLUPUS: A:6 Exercise common sense. If you need to stay indoors, do so. Don't push yourself too hard. #LupusChat https://t.co/7U0TOI8KzE |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A4: A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A5: A5: Yes! My first Rheumatologist brought it up to me. I’ve also discussed the impacts of the weather on my health with my Dermatologist, Therapist, and Neurologist. #LupusChat |
| Caring For Lupus @CaringForLupus RT @DrDavidLazar: @TiffanyAndLupus @Xtel007 IMO Anxiety & stress can worsen autoimmune disease activity & trigger flares #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A5. Never have. And after last month's inflammation that put me in the hospital,I should have. The flare was partially weather-related. #LupusChat |
| #LupusChat @Lupus_Chat Q6: Puede ofrecer algún consejo o sugerencia a otros miembros de la comunidad para ayudarlo con las manifestaciones mentales, físicas o emocionales de los síntomas inducidas por el clima? #LupusChat https://t.co/wzriCMCjB6 |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Stay tuned! Our last #LupusChat question is next. https://t.co/BMasyNveBM |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @iveyjanette_207: @Lupus_Chat A5. Never have. And after last month's inflammation that put me in the hospital,I should have. The flare was partially weather-related. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A5 The humidity affects Miah tremendously. One of the recommendations by her doctor to be included on her 504 plan was that she needed to be in a air-conditioned room. #LupusChat https://t.co/hOwofw5RHj |
| #LupusChat @Lupus_Chat RT @DrDavidLazar: @TiffanyAndLupus @Xtel007 IMO Anxiety & stress can worsen autoimmune disease activity & trigger flares #LupusChat |
| Carly by Nature @SynceNerd_Carli A5: ¡Sí! Mi primer reumatólogo me lo trajo. También he discutido los impactos del clima en mi salud con mi dermatólogo, terapeuta y neurólogo. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus A6: Talk to someone, anyone you feel comfortable and safe with if you find yourself feeling emotionally affected by weather or climate changes. Find a friend, family member, your doctor, or a therapist. It helps to get those thoughts out. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A5: @Lupus_Chat A5: Nope. Not at all. #LupusChat |
| Caring For Lupus @CaringForLupus A6 Whenever you have symptoms, write down where you were and what you were doing or eating to track possible patterns #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: Yes! My first Rheumatologist brought it up to me. I’ve also discussed the impacts of the weather on my health with my Dermatologist, Therapist, and Neurologist. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: Talk to someone, anyone you feel comfortable and safe with if you find yourself feeling emotionally affected by weather or climate changes. Find a friend, family member, your doctor, or a therapist. It helps to get those thoughts out. #LupusChat |
| #LupusChat @Lupus_Chat RT @SynceNerd_Carli: A5: A5: ¡Sí! Mi primer reumatólogo me lo trajo. También he discutido los impactos del clima en mi salud con mi dermatólogo, terapeuta y neurólogo. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Lupus_Chat: Q6: Q6: Can you offer any tips or suggestions to others in the community to assist with weather-induced mental, physical, or emotional manifestations of symptoms? #LupusChat https://t.co/315KTHj1qd |
| #LupusChat @Lupus_Chat We thank each of you for joining our #LupusChat discussion on weather-related to chronic illness today! We appreciate all that you’ve shared with us. https://t.co/PIyxetvZ3A |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. Summer is approaching, so a good sun hat and cute parasol are needed (I’m still working on procuring mine lol). Make sure to wear sunscreen and reapply (still working on that too). Drink plenty of water, limit sun exposure. #LupusChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @Lupus_Chat: We thank each of you for joining our #LupusChat discussion on weather-related to chronic illness today! We appreciate all that you’ve shared with us. https://t.co/PIyxetvZ3A |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Not really weather-related, but I'm so freaking out of it today. Great #LupusChat, thanks for joining, everyone. Gonna make some bechamel real quick to put this mac in the oven, and then lie down and pass out. https://t.co/xdCNdsiLkp |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. For cold temperatures, dress in layers, make sure to cover your head (please read that in a Haitian accent), use those hot pack hand warmers. #LupusChat |
| Caring For Lupus @CaringForLupus A6 Wear a sunscreen with UVA/UVB protection and an SPF of at least 35 when you go outside. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @FKLUPUS: A:6 Exercise common sense. If you need to stay indoors, do so. Don't push yourself too hard. #LupusChat https://t.co/7U0TOI8KzE |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 @Lupus_Chat A6. Pay attention to your body! And especially when the weather changes. This is especially essential if you live in an area with high humidity or in high altitudes. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: Yes! My first Rheumatologist brought it up to me. I’ve also discussed the impacts of the weather on my health with my Dermatologist, Therapist, and Neurologist. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A4: A4: Like @Xtel007 mentioned seasonal depression IS REAL. When the weather is extreme it causes the symptoms of my chronic illness to flare. When I don't feel well physically my anxiety & depression also flare. #LupusChat |
| Caring For Lupus @CaringForLupus RT @FKLUPUS: A:4 I've experienced SAD (Seasonal Affective Disorder). Cold weather depression definitely sets in. I just want to be surrounded by people and my dog. Summer I'm happier but if it's too hot I'm irritated & want everyone, other than my dog, to leave me alone😂 #LupusChat https://t.co/JWELXpTuA2 |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A6 Whenever you have symptoms, write down where you were and what you were doing or eating to track possible patterns #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A6 Wear a sunscreen with UVA/UVB protection and an SPF of at least 35 when you go outside. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @iveyjanette_207: @Lupus_Chat A6. Pay attention to your body! And especially when the weather changes. This is especially essential if you live in an area with high humidity or in high altitudes. #LupusChat |
| #LupusChat @Lupus_Chat Our next #LupusChat discussion will be Sunday, June 23rd at 3 PM Eastern Time. Stay tuned for our upcoming topic announcement & remember to mark your calendars to save the date! https://t.co/Dt20whQ3Fl |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A6 : Getting honest with myself a while back & working on it consistently has made a difference. Having tools that work for me is a lifesaver. Be kind to you. Take the time you need. It can come in waves & knowing how to care for you is everything.#LupusChat |
| #LupusChat @Lupus_Chat Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/XhupOKplHH |
 | Jerry Schutt @Steph_Jerryy 👀 mac n cheese u say... |
| Tiffany ⁷ @TiffanyAndLupus A6: My advice is to listen to your body. It will often send us warning signals if we're pushing our body past its limits. It's better to listen and take precautions to play it safe instead of pushing and learning why we shouldn't have after repercussions. #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A6 Whenever you have symptoms, write down where you were and what you were doing or eating to track possible patterns #LupusChat |
| #LupusChat @Lupus_Chat RT @CaringForLupus: A6 Wear a sunscreen with UVA/UVB protection and an SPF of at least 35 when you go outside. #LupusChat |
| #LupusChat @Lupus_Chat RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : Getting honest with myself a while back & working on it consistently has made a difference. Having tools that work for me is a lifesaver. Be kind to you. Take the time you need. It can come in waves & knowing how to care for you is everything.#LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: My advice is to listen to your body. It will often send us warning signals if we're pushing our body past its limits. It's better to listen and take precautions to play it safe instead of pushing and learning why we shouldn't have after repercussions. #LupusChat |
| #LupusChat @Lupus_Chat RT @TiffanyAndLupus: A6: A6: My advice is to listen to your body. It will often send us warning signals if we're pushing our body past its limits. It's better to listen and take precautions to play it safe instead of pushing and learning why we shouldn't have after repercussions. #LupusChat |
| #LupusChat @Lupus_Chat RT @Xtel007: Not really weather-related, but I'm so freaking out of it today. Great #LupusChat, thanks for joining, everyone. Gonna make some bechamel real quick to put this mac in the oven, and then lie down and pass out. https://t.co/xdCNdsiLkp |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: We thank each of you for joining our #LupusChat discussion on weather-related to chronic illness today! We appreciate all that you’ve shared with us. https://t.co/PIyxetvZ3A |
| #LupusChat @Lupus_Chat RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/XhupOKplHH |
| Caring For Lupus @CaringForLupus RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : Getting honest with myself a while back & working on it consistently has made a difference. Having tools that work for me is a lifesaver. Be kind to you. Take the time you need. It can come in waves & knowing how to care for you is everything.#LupusChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Talk to someone, anyone you feel comfortable and safe with if you find yourself feeling emotionally affected by weather or climate changes. Find a friend, family member, your doctor, or a therapist. It helps to get those thoughts out. #LupusChat |
| RaquelRoschell @raquelonpurpose @Lupus_Chat A6 : I know everyone doesn't have this option but I closed our nonprofit for the summer so I can rest, refresh and rejuvenate. Y'all....I didn't know how much by whole self needed it. Makes me cry. I have put alot on this person. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : I know everyone doesn't have this option but I closed our nonprofit for the summer so I can rest, refresh and rejuvenate. Y'all....I didn't know how much by whole self needed it. Makes me cry. I have put alot on this person. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @TiffanyAndLupus: A6: A6: My advice is to listen to your body. It will often send us warning signals if we're pushing our body past its limits. It's better to listen and take precautions to play it safe instead of pushing and learning why we shouldn't have after repercussions. #LupusChat |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday! https://t.co/XhupOKplHH |
| Ivey McClelland(she/her)❤❤❤❤ @iveyjanette_207 RT @Lupus_Chat: Our next #LupusChat discussion will be Sunday, June 23rd at 3 PM Eastern Time. Stay tuned for our upcoming topic announcement & remember to mark your calendars to save the date! https://t.co/Dt20whQ3Fl |
| Carly by Nature @SynceNerd_Carli A6: If the sun or heat is an issue for you, try the cooling cloths that athletes use. They work for me. Also, wear wide brimmed hats or visors, apply sunscreen generously. Drink water and TAKE YOUR MEDICINE! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A6 : @Lupus_Chat A6 : Getting honest with myself a while back & working on it consistently has made a difference. Having tools that work for me is a lifesaver. Be kind to you. Take the time you need. It can come in waves & knowing how to care for you is everything.#LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: If the sun or heat is an issue for you, try the cooling cloths that athletes use. They work for me. Also, wear wide brimmed hats or visors, apply sunscreen generously. Drink water and TAKE YOUR MEDICINE! #LupusChat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A6: A6: If the sun or heat is an issue for you, try the cooling cloths that athletes use. They work for me. Also, wear wide brimmed hats or visors, apply sunscreen generously. Drink water and TAKE YOUR MEDICINE! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A5 The humidity affects Miah tremendously. One of the recommendations by her doctor to be included on her 504 plan was that she needed to be in a air-conditioned room. #LupusChat https://t.co/hOwofw5RHj |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A6 ALWAYS👏🏼BE👏🏼AWARE👏🏼OF👏🏼THE👏🏼WEATHER! And also, be aware of the settings of places you’ll be so you can be well-prepared to adapt as you go👍🏼💜 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A4 : @Lupus_Chat A4 : I was actually about tweet about this. Yes - I have found myself battling an episode of depression that was a precursor to a flare as it got warmer. It has been way more pronounced and affected by whole body and emotional health. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A4: A4: Además, la lluvia también tiene un impacto en mi estado de ánimo. Debido a todo esto, el año pasado, estaba seguro de programar citas frecuentes con mi terapeuta. Fue de ayuda #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A4 I’m very whiny to my close ones and moody overall when I’m feeling uncomfortable from having to constantly adapt to constantly changing temperatures since it makes me just want to cancel everything for the day. I’m working on it though😛😅 #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @DrDavidLazar A3 yes 😊. In addition we use SunGuard; a laundry aid that washes UV protection into clothes #LupusChat https://t.co/7DzISawm7Q |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: Hot or cold, I have to wear sunscreen almost daily. Indoor lighting can also affect my Lupus and cause a rash or even SLE manifestations like aches and pains. I also use cooling cloths. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3: A3: If I’ll be in extreme heat or sunlight for longer than 20 minutes, I am sure to wear a hat and to protect my face. I might also opt for long pants instead of shorts. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Si el sol o el calor son un problema para usted, pruebe los paños de enfriamiento que usan los atletas. Trabajan para mi Además, use sombreros o viseras de ala ancha, aplique el protector solar generosamente. ¡Bebe agua y TOMA TU MEDICINA! #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @BeckieLaureano: @Lupus_Chat A3: @Lupus_Chat A3: As I get older, I notice Lupus has taken a greater affect on my body. I get more tired easily than before. I am a HR manager & work about 50 hours a week & it takes all weekend to regain my strength to prepare for the upcoming work week #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @raquelonpurpose: @Lupus_Chat A3 : @Lupus_Chat A3 : In the summer I don't go sleeveless. If I am taking a walk I wear long sleeves - light material. I wear hats if possible & sunscreen. Winter - I limit my outdoor walks. Use indoor work out. I wear gloves & extra pairs of socks. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @xthina_etc: A1 MOST DEFINITELY. I’m always dealing with sweaty yet clammy skin in the summer time, since I’m always going from hot to cold so quickly and so many times a day😞 I called off of work today b/c of the heat... #LupusChat |
| Caring For Lupus @CaringForLupus RT @Xtel007: A6. For cold temperatures, dress in layers, make sure to cover your head (please read that in a Haitian accent), use those hot pack hand warmers. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @lapointe67: @Xtel007 @Lupus_Chat A2: @Xtel007 @Lupus_Chat A2: Yes. I know when we have big fires burning (sadly we have 'fire season' here), I tend to develop pleurisy. Big jumps or big drops in temp usually = more fatigue and joint pain. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. During Fall/Spring, when it’s “nice” out according to everyone else, I have to remind myself that I usually still need a light coat and scarf. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A3. In the winter, I load up on long sleeves and sweaters and scarves and hats. I’ve also used hot hand warmer packs on the really bad days. #LupusChat |
 | Cher harris7💜 @Cherharris7 RT @SynceNerd_Carli: A4: A4: Yes, my depression is intensified during the fall and winter months. I still experience it during other seasons, but it hits harder toward the end of the year when we lose hours of sunlight. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @DrDavidLazar: https://t.co/qdcFt2rbMd #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @TiffanyAndLupus: A2: A2: Sunlight definitely affects those with lupus. Direct sun exposure can trigger lupus disease activity. It's important for us to wear high spf sunscreen with uva/uvb coverage #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 "Experts say humidity can aggravate joint soreness" #LupusChat https://t.co/3Vwvx7WGAF |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 The link between the ☀sun and Lupus flare-ups is thought to be a set of inflammatory protein molecules called cytokines" #LupusChat https://t.co/FvmGDRZ8dJ |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 "People with lupus can trace their symptoms to a number of lifestyle triggers" #LupusChat https://t.co/GiU2uCQbNC |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A2: A2: I also notice that after a long airplane flight I experience changes in my health. It is quite possible that the altitude can impact ones health. Along with being sedentary for so long. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 "Researchers believe it results from a complex equation of multiple factors. One part of the equation is your genetic makeup; another involves the hormones that regulate much of your body’s functions. A third is your environment" #LupusChat https://t.co/N4PQInriio |
| Tiffany ⁷ @TiffanyAndLupus RT @lapointe67: @Lupus_Chat A1: @Lupus_Chat A1: Living in Los Angeles, the norm is warm and sunny. I can tell if it has rained overnight before I even get out of bed. Everything hurts from top to bottom and the exhaustion is off the charts. I am typically non-functional w/a big change. #LupusChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 "Storms change the barometric pressure around them frequently. Even for people with Lupus who are not bothered by the cold, these pressure changes can cause symptom flares and pain. #LupusChat |
| Cher harris7💜 @Cherharris7 RT @Lupus_Chat: Q5: Q5: Have you discussed the way the weather impacts your health with members of your medical team? How did they respond? #LupusChat https://t.co/N3l9Jic96F |
| Carly by Nature @SynceNerd_Carli A6: For colder climates, dress warmer, but also invest in the disposable hand warmers and a good pair of gloves and socks. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: Para climas más fríos, vestir con más calor, pero también invertir en los calentadores de manos desechables y un buen par de guantes y calcetines. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: También encontré que al enfrentar la depresión (desencadenada por temporadas o de otra manera), algo que redecora o cambia el diseño en ciertas áreas de mi hogar, me ayuda un poco. Además, haciendo cambios manejables a mi rutina. #LupusChat |
| Carly by Nature @SynceNerd_Carli A6: I’ve also found that when facing depression (triggered by seasons or otherwise), something redecorating or changing the layout in certain areas of my home, helps me a bit. Also, making manageable changes to my routine. #LupusChat |
| RaquelRoschell @raquelonpurpose Wonderful chat today. It felt intimate and personal. Thanks💜💐😊. #LupusChat |
| RarasNoInvisibles @NoInvisibles RT @Lupus_Chat: Q3: Q3: Hay algo que haga de manera diferente para prepararse para actividades al aire libre durante cada temporada? #LupusChat https://t.co/gaM7uXPuXY |
#LupusChat content from Twitter.