#Nchat Transcript
Healthcare social media transcript of the #Nchat hashtag.
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See #Nchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Mike Heil @SleepyistMike #Nchat Starts NOOOOOOOOOOOOOOOOWOWOWOWOWOWOWOOWOW |
| Mike Heil @SleepyistMike Please take a moment to introduce yourself, name, location etc. Don't forget to use #nchat otherwise we won't see what you’re saying. #Nchat |
| Mike Heil @SleepyistMike And as always answer every Q with an A. so we can follow along. If you get lost or miss a question, just ask for help. #Nchat |
| Mike Heil @SleepyistMike And do your best to always Retweet the questions, so everybody can see. Also, I hear https://t.co/xWf3EoetXp works well. Thank you. #Nchat |
| Mike Heil @SleepyistMike My name is Mike I live in Mesa, Az, I’m 33 and I was diagnosed with #Narcolepsy w/o #Cataplexy in ‘10 with very mild sleep apnea in ‘17 #Nchat |
 | Keith Harper @keith_harper Welcome to #Nchat everyone! |
 | Matthew Horsnell @matthorsnell Matt Horsnell, Nashville/Fairview TN, The World’s Strongest Person having narcolepsy with cataplexy #worldsstrongestpersonhavingnarcolepsywithcataplexy #Nchat |
| Mike Heil @SleepyistMike RT @keith_harper: What is #nchat, you ask? It’s a monthly Twitter chat for people with #narcolepsy and it starts in 2 minutes! |
| Matthew Horsnell @matthorsnell #Nchat also have obstructive sleep apnea |
| Keith Harper @keith_harper @matthorsnell Welcome Matt! Good to see you #nchat |
| Mike Heil @SleepyistMike @THEAdnAmA Dont leave me hanging #nchat |
 | Amanda ❤️ 😷 @THEAdnAmA I’m late! I’m late! Sorry! Haha. I’m amandeo. From Tennessee. N with C diagnosed 1999. #nchat |
| Mike Heil @SleepyistMike #Nchat test, cant see this tweet |
| Keith Harper @keith_harper @SleepyistMike Mike your profile pic is sideways, perhaps from the weight of all your Twitter followers. #nchat |
| Keith Harper @keith_harper Q1. It’s starting to warm up outside, which means it’s time to get in the water. Does anyone avoid swimming or other summer activities because of #Narcolepsy or Cataplexy? #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA RT @keith_harper: Q1. It’s starting to warm up outside, which means it’s time to get in the water. Does anyone avoid swimming or other summer activities because of #Narcolepsy or Cataplexy? #Nchat |
| Mike Heil @SleepyistMike #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A1. Absolutely. I don’t swim without another adult present. I’ve had cataplexy multiple times in the water. The fear that it will happen again, makes having C even more likely. #Nchat |
| Matthew Horsnell @matthorsnell A1. I avoid the oppressive heat as much as possible and most crowded outdoor recreational events during the summer #Nchat |
| Keith Harper @keith_harper @THEAdnAmA That is scary, and smart to always swim with someone else if you have #cataplexy. #nchat |
| Mike Heil @SleepyistMike A1. Hiking or going for a run right now might kill me in general in AZ weather, but the heat does make it very difficult to cool down. Sometimes I up very late just sweating for now reason. I would like to blame #Narcolepsy but idk #Nchat |
| Mike Heil @SleepyistMike @THEAdnAmA I still rock floaties #Nchat |
| Keith Harper @keith_harper @SleepyistMike Narcosweatsy #nchat |
| Amanda ❤️ 😷 @THEAdnAmA @SleepyistMike If I could find floaties that flipped me upright and kept my head above water, I’d totally get them. Haha #nchat |
| Mike Heil @SleepyistMike @keith_harper Title of my autobiography #Nchat |
| Mike Heil @SleepyistMike @THEAdnAmA I guess one around your neck might work, but that might come with more problems. I feel like we can figure this out #Nchat |
| Mike Heil @SleepyistMike RT @keith_harper: @SleepyistMike Narcosweatsy #nchat |
| Mike Heil @SleepyistMike Q2. Mike just bought a home and now spends most of his weekends working on his yard. When looking for a home or place to live, what are the requirements you need to help battle your #Narcolepsy? #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA RT @SleepyistMike: Q2. Mike just bought a home and now spends most of his weekends working on his yard. When looking for a home or place to live, what are the requirements you need to help battle your #Narcolepsy? #Nchat |
| Keith Harper @keith_harper RT @SleepyistMike: Q2. Mike just bought a home and now spends most of his weekends working on his yard. When looking for a home or place to live, what are the requirements you need to help battle your #Narcolepsy? #Nchat |
| Mike Heil @SleepyistMike A2. New appliances, I moved into my house in February, still can't get the ice maker to work. #Nchat |
| Mike Heil @SleepyistMike A2. Oh and a lawn, I'm an old man and yard work keeps me out of jail. #Nchat |
| Keith Harper @keith_harper @SleepyistMike A1. I don’t really have any requirements based around narcolepsy — in New York it’s more of “what am I willing to sacrifice to stuff my family into the biggest tiny space possible” lol. #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A2. I initially said no stairs - but ended up getting a split level. Oops. Haha. Main living space is all upstairs so at least I’m not wasting energy going up/down all day. #Nchat |
| Mike Heil @SleepyistMike A2. Oh, and the master bedroom has to face the EAST so the sunlight wakes me up. It's a feeling. #Nchat |
| Keith Harper @keith_harper @SleepyistMike Have you yelled at any kids to get off it yet? #Nchat |
| Mike Heil @SleepyistMike @keith_harper That sounds like hell #Nchat |
| Mike Heil @SleepyistMike @keith_harper Twice #nchat GOD IT FELT GOOD |
| Mike Heil @SleepyistMike @THEAdnAmA I need ice in my boozz..... I mean lemonade #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA @SleepyistMike It’s amazing how much light alters my sleep/wake patterns. We bought those WiFi light bulbs and there is a “sunrise” setting. So we mimick the sun coming up each morning. #nchat |
| Matthew Horsnell @matthorsnell A2. A/C, window shades, fan, still trying to train kids to clean the dishes. #Nchat |
| Keith Harper @keith_harper @SleepyistMike Life is hell my friend! Actually we have a very nice apartment, and life is good—I cannot complain #lol #Nchat |
| Mike Heil @SleepyistMike @THEAdnAmA I had those before and they ROCKED! #Nchat |
| Keith Harper @keith_harper @matthorsnell A/C is so important, that I do not understand how humans survived the summer before its invention. #Nchat |
| Mike Heil @SleepyistMike @keith_harper @matthorsnell Depends on where they were, they not have. #Nchat |
| Keith Harper @keith_harper Q3. From the audience: How common is it to build a tolerance to day and night time medications? Do you rotate a group of medications periodically? #Nchat |
| Mike Heil @SleepyistMike RT @keith_harper: Q3. From the audience: Q3. From the audience: How common is it to build a tolerance to day and night time medications? Do you rotate a group of medications periodically? #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA RT @keith_harper: Q3. From the audience: Q3. From the audience: How common is it to build a tolerance to day and night time medications? Do you rotate a group of medications periodically? #Nchat |
| Keith Harper @keith_harper @SleepyistMike @matthorsnell Totally. People in like 1920s NYC used to sleep in the park—insane! #Nchat |
| Mike Heil @SleepyistMike A3. I don't have medication at the moment, but when I was on one for a year I didn't feel a tolerance, but I did I would speak with my doctor first. #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A3. With daytime meds, it seems more like I tend to experience more side effects the longer I’m on them. Eventually the effectiveness vs side effect ratio swings too far and I end up off meds. Haven’t noticed that with night meds though. #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A3 again. I don’t really rotate. I’m unable to take most daytime med options, so ive got few others to switch to. But I do occasionally take a “holiday” from the night meds. Usually because I forget to order them in time. Haha #Nchat |
| Mike Heil @SleepyistMike @THEAdnAmA I hear about the "holiday " seems to help #Nchat |
| Matthew Horsnell @matthorsnell A3. Tolerance on stimulants is tricky. I’ve decided to go with the lower octane route and embrace the naps. Looking forward to pitlotisant when it comes out #Nchat |
| Mike Heil @SleepyistMike @matthorsnell Did you check to see if you qualify for the clinical trail they're doing for pitlotisant in your area? #nchat |
| Matthew Horsnell @matthorsnell @SleepyistMike #Nchat not available in Tennessee last time I checked |
| Mike Heil @SleepyistMike Q4. What are some of your favorite ways to connect with other people with #Narcolepsy? (Online or IRL). #Nchat |
| Keith Harper @keith_harper RT @SleepyistMike: Q4. What are some of your favorite ways to connect with other people with #Narcolepsy? (Online or IRL). #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA @SleepyistMike @matthorsnell I’d be interested in that! Had to ditch nuvigil recently because it was causing chest pain. #nchat |
| Amanda ❤️ 😷 @THEAdnAmA RT @SleepyistMike: Q4. What are some of your favorite ways to connect with other people with #Narcolepsy? (Online or IRL). #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A4. Twitter #NCHAT of course. And Facebook groups. #Nchat |
| Mike Heil @SleepyistMike A4. Doing a live #Nchat / #Facetweet with my pal @keith_harper at @NarcolepsyNtwrk annual conference. Which hashtag are we using? #Nchat |
| Mike Heil @SleepyistMike @THEAdnAmA Good answer, your $5 is on the way #nchat |
| Keith Harper @keith_harper @SleepyistMike A4. Great question! Support groups are an awesome way to connect IRL, and of course the annual @NarcolepsyNtwrk conference is as well. For online support, there are many, many Facebook groups (including our own at https://t.co/4ZjECb5yyb). And of course #Nchat |
| Mike Heil @SleepyistMike RT @keith_harper: @SleepyistMike A4. Great question! Support groups are an awesome way to connect IRL, and of course the annual @NarcolepsyNtwrk conference is as well. For online support, there are many, many Facebook groups (including our own at https://t.co/4ZjECb5yyb). And of course #Nchat |
| Keith Harper @keith_harper @SleepyistMike @NarcolepsyNtwrk BOTH—go big or go home. We should discuss lol #Nchat |
| Matthew Horsnell @matthorsnell A4. Instagram has been great meeting new PWN. I’ve made some great connections through outreach projects like #knownarcolepsy and through my work with @project_sleep. Conferences is my next step #Nchat |
| Mike Heil @SleepyistMike @matthorsnell @project_sleep Cant wait #nchat |
| Keith Harper @keith_harper @SleepyistMike @matthorsnell @project_sleep You’re doing great work Matt, keep it up! #Nchat |
| Keith Harper @keith_harper Q5. Ok, fun question time. When it’s hot out, do you prefer a frozen margarita, an iced coffee, an iced covfefe, or … what else do you drink when it’s hot out? #Nchat |
| Mike Heil @SleepyistMike @matthorsnell @keith_harper @project_sleep Its just nice to see another dude with #Narcolepsy, we seem rare . #Nchat |
| Mike Heil @SleepyistMike RT @keith_harper: Q5. Ok, fun question time. When it’s hot out, do you prefer a frozen margarita, an iced coffee, an iced covfefe, or … what else do you drink when it’s hot out? #Nchat |
| Matthew Horsnell @matthorsnell @SleepyistMike @keith_harper @project_sleep #Nchat we are unique for sure |
| Mike Heil @SleepyistMike A5. Beer 9 times out of 10 #nchat |
| Matthew Horsnell @matthorsnell A5. I’m a sucker for a sweet iced tea, don’t drink alcohol, and an ice cold Dr Pepper sounds awesome right now. #Nchat |
| Keith Harper @keith_harper Hey #nchat thanks for participating! It means a lot to us that you show up every month. It really does. See you in July @THEAdnAmA @SleepyistMike @matthorsnell |
| Mike Heil @SleepyistMike I know there was not a lot of us today but thank you so much for coming, as long as I get at least one person o show I will do #Nchat forever. Enjoy your weekend. |
| Mike Heil @SleepyistMike RT @keith_harper: Hey #nchat thanks for participating! It means a lot to us that you show up every month. It really does. See you in July @THEAdnAmA @SleepyistMike @matthorsnell |
| Mike Heil @SleepyistMike @matthorsnell Dr. Pepper all day #nchat |
| Amanda ❤️ 😷 @THEAdnAmA RT @keith_harper: Q5. Ok, fun question time. When it’s hot out, do you prefer a frozen margarita, an iced coffee, an iced covfefe, or … what else do you drink when it’s hot out? #Nchat |
| Amanda ❤️ 😷 @THEAdnAmA A5 margarita all the way! Haha #Nchat |
 | Chris Buzak @buzork @keith_harper @SleepyistMike Learnt quickly that just because the city allows backyard fire pits doesn’t mean I should have one. At least not by myself. #Nchat #friendlyfire #narcolepsynono |
| Keith Harper @keith_harper RT @SleepyistMike: I know there was not a lot of us today but thank you so much for coming, as long as I get at least one person o show I will do #Nchat forever. Enjoy your weekend. |
#Nchat content from Twitter.