#NephJC Transcript
Healthcare social media transcript of the #NephJC hashtag.
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See #NephJC Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Rush Nephrology @Rush_Nephrology RT @KidneyBea_n: Join us tonight for #NephJC https://t.co/FSTe9Am8I8 |
| Rush Nephrology @Rush_Nephrology RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Ernesto LopezAlmaraz @kidney_doctor RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil #NephJC tonight at 9 pm Some Canadian $ estimates from @CADTH_ACMTS https://t.co/xWeOhT6M00 Should we even do incentre nocturnal any more? ๐ค https://t.co/kR7gaw5CXV |
 | CADTH @CADTH_ACMTS RT @hswapnil: #NephJC tonight at 9 pm Some Canadian $ estimates from @CADTH_ACMTS https://t.co/xWeOhT6M00 Should we even do incentre nocturnal any more? ๐ค https://t.co/kR7gaw5CXV |
 | Annabel Biruete ๐ฒ๐ฝ @anniebelch RT @KidneyBea_n: Join us tonight for #NephJC https://t.co/FSTe9Am8I8 |
 | Michelle Rheault @rheault_m RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Toniya Singh MD FACC @DrToniyaSingh RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Kartik Kalra MD,FNKF,FASN @kkalra_22 RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Nikhil Shah MBBS DNB(IM, Neph)๐จ๐ฆ @dr_nikhilshah Got med student @Mike_Strader (future nephron) interested in #nephjc and #nephtwitter. Maybe we can get him next year for #NSMC too. |
 | George Clinical @george_clinical RT @NephJC: #NephJC chat tonight/tomorrow Summary: https://t.co/NAbvetvGSo Full text: https://t.co/lFTvhvOign #VisualAbstract : https://t.co/mHEtv2QYnr |
 | Catherine Clase ๐ท๐ @CMClase RT @hswapnil: #NephJC tonight at 9 pm Some Canadian $ estimates from @CADTH_ACMTS https://t.co/xWeOhT6M00 Should we even do incentre nocturnal any more? ๐ค https://t.co/kR7gaw5CXV |
 | Pablo Garcia @PabloGarciaMD RT @KidneyBea_n: Join us tonight for #NephJC https://t.co/FSTe9Am8I8 |
| Pablo Garcia @PabloGarciaMD RT @NephJC: https://t.co/Gs7hTUAQna #NephJC discusses the time on dialysis and QoL: https://t.co/Gs7hTUAQna #NephJC discusses the time on dialysis and QoL: the ACTIVE trial |
 | Nephrology Journal Club @NephJC #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | AdvocatePICUFellows @ACHPRPICU RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | Nathaniel Reisinger @nephrothaniel RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | Penn Kidney @PennKidney RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | ERGOT @Johns Hopkins @ERGOT_JH RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | Matthew Sparks, MD @Nephro_Sparks RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | Bea Concepcion @KidneyBea_n RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
 | Anna Burgner MD MEHP @anna_burgner RT @KidneyBea_n: Join us tonight for #NephJC https://t.co/FSTe9Am8I8 |
 | NBLU: Renal Leaders @NBLUniv RT @NephJC: #NephJC in just under 90 minutes! Not too late to read the summary https://t.co/NAbvetvGSo or scan the #VisualAbstract https://t.co/3H4hev78Ah |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @hswapnil: #NephJC tonight at 9 pm Some Canadian $ estimates from @CADTH_ACMTS https://t.co/xWeOhT6M00 Should we even do incentre nocturnal any more? ๐ค https://t.co/kR7gaw5CXV |
 | Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Join us on tonight's #NephJC ACTIVE: Trial of โฌ๏ธ hemodialysis hours & QOL @NCCIH_Josie ๐๐ผ https://t.co/5oVBsQkLmd https://t.co/RmzQUtXEcN |
 | Gonzalo Bautista Prieto. MD ๐ช๐จ @GonzalBautistaP RT @edgarvlermamd: Join us on tonight's #NephJC ACTIVE: Trial of โฌ๏ธ hemodialysis hours & QOL @NCCIH_Josie ๐๐ผ https://t.co/5oVBsQkLmd https://t.co/RmzQUtXEcN |
| Michelle Rheault @rheault_m #NephJC in 10 minutes on outcomes in extended hemodialysis. Join us! https://t.co/eT7eq4XHvQ |
| Nephrology Journal Club @NephJC RT @rheault_m: #NephJC in 10 minutes on outcomes in extended hemodialysis. Join us! https://t.co/eT7eq4XHvQ |
 | Soy Argel @SoyArgel RT @rheault_m: #NephJC in 10 minutes on outcomes in extended hemodialysis. Join us! https://t.co/eT7eq4XHvQ |
| Nephrology Journal Club @NephJC Itโs 9 PM ET, Tuesday. Welcome to this edition of #NephJC! |
| Nephrology Journal Club @NephJC Let's get ready to rumble! #NephJC https://t.co/Wi1hIYDdl4 |
| Nephrology Journal Club @NephJC My name is Bea Concepcion, #NSMC Intern Class 2017, based in Nashville TN. I will be tonight's Journal Club host! #NephJC |
 | Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Looking forward to #nephjc this morning discussing the ACTIVE trial. interesting to @song and anyone interested in haemodialysis. |
| Matthew Sparks, MD @Nephro_Sparks RT @NephJC: Let's get ready to rumble! #NephJC https://t.co/Wi1hIYDdl4 |
| Nephrology Journal Club @NephJC Please introduce yourselves and reveal any relevant conflicts of interest (COI) #NephJC |
| Matthew Sparks, MD @Nephro_Sparks Let's do this @KidneyBea_n night on #NephJC |
 | B. Wagner, M.D. ๐บ๐ธ @Wagner_Nephro Brent Wagner, fellowship director, UT Health San Antonio. #nephjc |
| Anna Burgner MD MEHP @anna_burgner @NephJC Hi #NephJC, Anna Burgner, general nephrologist @VUMCKidney, No COI |
| Pablo Garcia @PabloGarciaMD Hi all Pablo Garcia #NSCM 2017 intern in New Brunswick, NJ. No CoI. #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Swapnil Hiremath, nephrologist from @OttawaRenal #NephJC cofounder No CoI (would do nocturnal if on RRT) https://t.co/Fo8I6Ls2is |
 | Ivy Melgarejo @IvyM808 Aloha, Ivy Melgarejo medical resident from University of Hawaii. No COI. #nephjc |
 | Silvi Shah, MD, MS @silvishah Hi this is Silvi from Cincinnati no Coi #nephJC |
| Matthew Sparks, MD @Nephro_Sparks Matt Sparks, @DukeKidney Nephrologist. looking forward to chat. No COI #nephjc |
 | Roger Rodby @NephRodby Roger Rodby, Rush Chicago. COI: Once gave Grnd Rnds on HD, premise was Time was missing link to survival #NephJC |
| Nephrology Journal Club @NephJC Hi Cathy, Matt, Pablo, Silvi! #nephjc |
| Michelle Rheault @rheault_m @NephJC Michelle here. Ped Neph UMN. No relevant COI. #NephJC |
| Matthew Sparks, MD @Nephro_Sparks @PabloGarciaMD Hi Pablo... hope you are well #nephjc |
| B. Wagner, M.D. ๐บ๐ธ @Wagner_Nephro Hello Michelle, Edgar, Swapnil, Bea, et al. #nephjc |
| Nephrology Journal Club @NephJC Hi Brent! Thanks for joining us #nephjc |
 | Kenar Jhaveri @kdjhaveri Kenar Jhaveri @HofstraKidney nephrologist no COI #nephJC |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch Annabel Biruete, dietetic intern @BSUHealth. Interested in anything that improves QoL of #dialysis patients #nephjc๐ |
 | Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD Gary Singer in STL no COI #NephJC |
 | Pravir @Proximal_Baxi Pravir Baxi, Rush Nephrology. No COI. Excited for today's discussion! #nephjc |
| Nephrology Journal Club @NephJC Hello Swap!!! #nephjc |
| Nathaniel Reisinger @nephrothaniel Nathaniel #NSMC intern & observationalist. No financial COI relevant to this discussion. #NephJC |
| B. Wagner, M.D. ๐บ๐ธ @Wagner_Nephro And Matt! #nephjc |
 | Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @gratefull080504 checking in from tonight never on #dialysis but mom + two aunts were #patientengagement #patientadvocacy consulting #NephJC https://t.co/PLAXkK8aAe |
| Matthew Sparks, MD @Nephro_Sparks @NephRodby Hi Roger. #RushRenalRule #CometoKIDNEYcon @kidneycon #nephjc |
| Nephrology Journal Club @NephJC Ivy from Hawaii! Thanks for coming! #nephjc |
 | Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD Hector Madariaga. No COI. From #PatriotsNation . Hello, everyone! #NephJC https://t.co/yZ3D6PurKA |
| Nephrology Journal Club @NephJC If you are a lurker, please don't be shy (I've been there), and introduce yourself! #NephJC |
| Nephrology Journal Club @NephJC I am a transplant nephrologist @VUMCKidney and I have no conflicts of interest. #NephJC |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @BSUHealth And #NSMC intern! #nephjc |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Edgar Lerma, Chicago based Nephrologist #NephJC https://t.co/le8FO7PNGl |
| Matthew Sparks, MD @Nephro_Sparks @KidneyCathy Hi Cathy, how is the weather in Melbourne #nephjc |
| Ivy Melgarejo @IvyM808 @NephJC Your welcome! #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @anniebelch Hi Annabel #nephjc |
 | Raymond Hsu @DrRaymondHsu @NephJC Raymond Hsu from @UCSF no COI #nephjc |
| Michelle Rheault @rheault_m @anniebelch Would extended hour dialysis put the renal dietitians out of business? #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Really looking forward to it! https://t.co/XbEFuowMzq |
| Nephrology Journal Club @NephJC Michelle, Anabel, Hector, Kenar, Gary... welcome! thanks for joining tonight #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @IvyM808 #Hawaii Hi Ivy #nephjc |
| Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD @Nephro_Sparks Hi Matt. How are you? #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @happy_kidney Karthik!! #nephjc |
| Ivy Melgarejo @IvyM808 @Nephro_Sparks @IvyM808 Hi Dr. Sparks. Glad to be back. #nephjc |
| Nephrology Journal Club @NephJC Roger, Pravir... nice to see the Rush crowd here! #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 COI: Protalix @TapCloudHealth #nephJC |
| Matthew Sparks, MD @Nephro_Sparks @HecmagsMD Doing well. might be out for ~10 min putting kids down... #nephjc |
| Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD @anniebelch Hola, Annabel! Hope all is well. Viva Mexico! :) #nephjc |
| Pablo Garcia @PabloGarciaMD @Nephro_Sparks Hi @Nephro_Sparks good #nephjc night |
| Nephrology Journal Club @NephJC Hi Nathaniel, Karthik, Edgar! #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Forgot to include Boston tonight #nephJC https://t.co/snqMELY4en |
 | Poyan Mehr @poyanmehr Ali Poyan Mehr from Boston. Will be curiously lurking #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Fabulous crowd tonight! #NSMC interns out in full force too! #nephjc |
 | saed shawar @kidneyshower #nephjc saed shawar transplant nephrology fellow in VUMC |
 | Manasi Bapat MD, FASN, FNKF๐ฎ๐ณ๐บ๐ธ @manasib33 Manasi Bapat, renal fellow, Mount Sinai, NY #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy @Nephro_Sparks average! #nephJC https://t.co/pjU6t3odBC |
| Nephrology Journal Club @NephJC Hi Raymond, Edgar, Ali, Kevin! #nephjc |
| Roger Rodby @NephRodby Hi Matt, Bea, Edgar, Pravir, Swap, Kenar #NephJC |
| Nephrology Journal Club @NephJC Saed!!! Welcome! #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @SaedShshawar welcome to #NephJC |
| Nephrology Journal Club @NephJC Remember to add #NephJC to every tweet you want to be a part of the discussion and recorded in the journal club archive. |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @manasib33 Hi Manasi welcome@\ #nephjc |
 | nilu desai @niludesai1 Nilu desai, nephrologist @CaseKidneys no coi.#nephJC |
| Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD @SaedShshawar Welcome! #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Cathy Quinlan. Melbourne based Irish Paediatric Nephrologist and researcher #nephjc |
| Nephrology Journal Club @NephJC We recommend using tchat.io or https://t.co/rFoH4MVMzu. They filter out everything but the hashtag and add #NephJC to every tweet. |
| Nathaniel Reisinger @nephrothaniel RT @NephJC: Remember to add #NephJC to every tweet you want to be a part of the discussion and recorded in the journal club archive. |
| Silvi Shah, MD, MS @silvishah Hi Hector and Annabel! #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @niludesai1 @CaseKidneys Welcome to #NephJC! #nephjc |
| Nephrology Journal Club @NephJC One of the core goals of #NephJC is to build a personal learning network, so push that follow button often in the next hour! |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd ACTIVE: Trial of โฌ๏ธ hemodialysis hours & QOL #Nephpearls #NephJC ๐๐ผ https://t.co/5oVBsQkLmd https://t.co/MSc4KURpHe |
| Matthew Sparks, MD @Nephro_Sparks BTW... I finally participated in @GlomCon with @poyanmehr loved it #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Hi everyone esp my NSMC peeps! Doing a great job @KidneyBea_n #nephjc |
| Nephrology Journal Club @NephJC Remember to sign up for the NephJC once a week (or less) newsletter and follow us on twitter. #NephJC https://t.co/5aumn8ImwF |
| Pablo Garcia @PabloGarciaMD @anniebelch Hi Annabel #nephjc |
| Nathaniel Reisinger @nephrothaniel @manasib33 Welcome to #NephJC! |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @NephRodby Hi @NephRodby ! #nephJC |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD RT @edgarvlermamd: ACTIVE: ACTIVE: Trial of โฌ๏ธ hemodialysis hours & QOL #Nephpearls #NephJC ๐๐ผ https://t.co/5oVBsQkLmd https://t.co/MSc4KURpHe |
| Nephrology Journal Club @NephJC Nilu, welcome! What a great crowd tonight #nephjc |
| Nephrology Journal Club @NephJC Tonight's #NephJC is the ACTIVE Dialysis study looking at extended HD hours and its effect on quality of life. |
| Roger Rodby @NephRodby Nilu, @Rush_Nephrology 2011 graduate in the house #NephJC |
| Matthew Sparks, MD @Nephro_Sparks @niludesai1 Hi Nilu #nephjc |
| Nephrology Journal Club @NephJC Here is a link to the full text article kindly provided by @JASN_News free until Sept 15 #NephJC https://t.co/lFTvhvOign |
| Roger Rodby @NephRodby #NephJC |
| Nephrology Journal Club @NephJC If you haven't had a chance to read the excellent summary written by @hswapnil, here is the link #NephJC https://t.co/NAbvetvGSo |
| Matthew Sparks, MD @Nephro_Sparks ok ok. Enough with the Rush... Rush this... Rush that. #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: Here is a link to the full text article kindly provided by @JASN_News free until Sept 15 #NephJC https://t.co/lFTvhvOign |
| Silvi Shah, MD, MS @silvishah Hi Matt, Swap, Roger, Kenar, Edgar, Ali , Michelle, Karthik #nephJC |
| Nephrology Journal Club @NephJC And the visual abstract created by @KidneyBea_n #NephJC https://t.co/7zYv75SeIj |
| Nathaniel Reisinger @nephrothaniel RT @NephJC: Remember to sign up for the NephJC once a week (or less) newsletter and follow us on twitter. #NephJC https://t.co/5aumn8ImwF |
| Matthew Sparks, MD @Nephro_Sparks blah Rush... I kid I kid #nephjc |
 | rob @renalpolitics #nephJC high folks, neph from OR, no COI, read article while ago but mostly forgot :(, |
| Poyan Mehr @poyanmehr @Nephro_Sparks @GlomCon Was great seeing you, Matt #NephJC |
 | Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi #NephJC Good morning from Bangalore. This is Arvind Canchi, Nephrologist. No COI but my pts prefer lesser HD. |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD RT @NephJC: If you haven't had a chance to read the excellent summary written by @hswapnil, here is the link #NephJC https://t.co/NAbvetvGSo |
| Nephrology Journal Club @NephJC Hi Rob, hi arvind, welcome! #nephjc |
| Silvi Shah, MD, MS @silvishah @niludesai1 @CaseKidneys Hi Nilu #nephJC |
| Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD RT @Nephro_Sparks: ok ok. Enough with the Rush... Rush this... Rush that. #nephjc |
| Nephrology Journal Club @NephJC T0: To start things off, do you have patients on extended weekly HD hours (>=24hrs/wk), either in-center or home HD? #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @renalpolitics Hey Rob...How's life in Portland? #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Have you hear Michel Fischbach talk about his centre? 5/7 x 5hrs weekly. Taxi in. No dietary restrictions. Ed in centre. School in PM. https://t.co/GFLX4u2R5p |
| Roger Rodby @NephRodby Matt, finally join GlomCon and I miss it rounding? #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @arvindcanchi indeed. Maybe they are on to something? #nephjc |
| Silvi Shah, MD, MS @silvishah @manasib33 Welcome Mansai #nephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: T0: T0: To start things off, do you have patients on extended weekly HD hours (>=24hrs/wk), either in-center or home HD? #NephJC |
 | Manan Doshi @manan_doshi Hello.. #nephJC |
| rob @renalpolitics @hswapnil portland is nice as always, sunny and hot now :) works for me. #nephjc |
| Anna Burgner MD MEHP @anna_burgner @happy_kidney Dr. Golper @VUMCKidney always has interesting insights in the dialysis world!#NephJC |
| Matthew Sparks, MD @Nephro_Sparks @NephRodby missed.. Gave a tour of my #NephMadness shrine that I call my office #nephjc |
| Nephrology Journal Club @NephJC Hello Manan, thanks for joining tonight! #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy The visual abstract that sums it up. Join us at #nephjc https://t.co/dhNsTQYv7X |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil T0: Yes, we have incentre nocturnal HD run by @annlbugeja at @ootawarenal (~16 pts) + home HD (~ 40 pts) #nephjc |
 | Scherly Leon, MD @SLeonMD Hello all! Scherly Leon, nephrologist in NYC. #nephjc |
| Silvi Shah, MD, MS @silvishah @KidneyCathy @KidneyBea_n Hi Cathy! Hope things good #nephJC |
| Scherly Leon, MD @SLeonMD RT @NephJC: If you haven't had a chance to read the excellent summary written by @hswapnil, here is the link #NephJC https://t.co/NAbvetvGSo |
| Hector Madariaga, MD FASN ๐ฒ๐ฝ @HecmagsMD @manan_doshi Hello! Welcome! #nephjc |
| Nephrology Journal Club @NephJC Hi Scherly, thanks for joining us #nephjc |
| Nephrology Journal Club @NephJC Any particular indications for prescribing extended weekly HD, or is it mainly patient preference? #NephJC |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch Not directly, but pts were always clear on letting me know that they did not like longer or more dialysis sessions #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @manan_doshi Hey Manan! Welcome from across the globe... #nephjc |
 | Camilla Wong ้ปๆๆฌฃ ๐จ๐ฆ @camilla_wong @NephJC @NephJC Lurking #NephJC tonight as a geriatrician currently in Moose Factory, ON. QoL always a relevant outcome of interest in my practice |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy 1 pt on Home HD 5/7. 2 on in centre 3/7 x 3ish hrs. Most pts on PD. #nephjc https://t.co/qjnaQFw7pm |
| Matthew Sparks, MD @Nephro_Sparks T0- have to confess that I do not round on home HD patients. We do have many but @RuedigerLehrich rounds on them #nephjc |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd What have we learned from FHN Trials from @KidneyNews Jan 2016 issue #Nephpearls #NephJC ๐๐ผ https://t.co/Owe5XfbcVl https://t.co/3984zOslcB |
| NBLU: Renal Leaders @NBLUniv RT @NephJC: And the visual abstract created by @KidneyBea_n #NephJC https://t.co/7zYv75SeIj |
| Silvi Shah, MD, MS @silvishah @NephJC mostly for volume overload #nephJc |
| Nephrology Journal Club @NephJC Hi Camilla! Thanks for coming #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC We offer INHD for Wt/BP/Volume or PO4/PTH issues or QoL...Home HD mostly pt choice #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Great, busy as always, but taking a break from database entry to chill out with #nephjc! you? https://t.co/y15QS5Tlgb |
 | Les @LBEBEN RT @NephJC: Any particular indications for prescribing extended weekly HD, or is it mainly patient preference? #NephJC |
| Michelle Rheault @rheault_m @NephJC T0:If we have kids under 1 year on HD, they usually need 4-5x/week x 4 hours dialysis to allow volume for nutrition #NephJC |
| Roger Rodby @NephRodby #UsualSuspects all here! slowly growing, ANYONE new to this please recruit more new! #NephJC |
 | ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop #nephjc Good evening from Albuquerque. No COI |
 | GeriMedJC @GeriMedJC RT @NephJC: Tonight's #NephJC is the ACTIVE Dialysis study looking at extended HD hours and its effect on quality of life. |
| Anna Burgner MD MEHP @anna_burgner T0: I have patients on in center nocturnal HD. 24 hours a week. I recommend to people who want days free and don't want to do PD #NephJC |
| Matthew Sparks, MD @Nephro_Sparks @VelezNephHepato @kidney_boy @NephRodby @dhekidney We are chatting on #NephJC now... jump in |
 | Gabriel Gregorio Mendez Benitez @gabolino43 Importante https://t.co/PRAt3YsA3Y |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephRodby: #UsualSuspects all here! slowly growing, ANYONE new to this please recruit more new! #NephJC |
 | susan kjos @suziekjos Hi.This is Susan. I was on dialysis for one year. HD, then PD. I am now 21 months post transplant. Yay!!!#nephJC |
| Manasi Bapat MD, FASN, FNKF๐ฎ๐ณ๐บ๐ธ @manasib33 Thanks @nephrothaniel @hswapnil @KidneyCathy @Sil #nephjc. This is my first time here! |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy @hswapnil @annlbugeja This is why I always wish I'd spent some time in adult nephro when training instead of PICU. #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephJC We use nocturnal HD for big volume gainers as well as patient preference #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 I would Quality of life would be the goal rather than a #patientpreference #nephJC https://t.co/7rG5iTM2Zo |
| Nephrology Journal Club @NephJC Hi Susan! Thanks for joining us #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @suziekjos Congrats Susan. #nephjc |
| Roger Rodby @NephRodby We have home HD program run by @TWhittier_Rush but no nocturnal #NephJC |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd FHN: Conventional 3x/ week HD vs More frequent In center HD (ASN BRCU 2012/ Dr Depner) #Nephpearls #NephJC https://t.co/E1enOO7bxI |
| Nephrology Journal Club @NephJC RT @gratefull080504: I would Quality of life would be the goal rather than a #patientpreference #nephJC https://t.co/7rG5iTM2Zo |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Why is that? #nephJC https://t.co/aBIWviJX6T |
| nilu desai @niludesai1 @NephJC Same as @silvishah Difficult to control volume status #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @gratefull080504 what if patient preference linked to QOL? #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil In @OttawaRenal INHD was really championed by @annlbugeja - https://t.co/VZAkoC7ziL Pts do love the freedom it provides #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Find out about some of the clinical side @HookeHaleKidney #nephjc is discussing HD for the next 45 mins. |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy RT @edgarvlermamd: FHN: FHN: Conventional 3x/ week HD vs More frequent In center HD (ASN BRCU 2012/ Dr Depner) #Nephpearls #NephJC https://t.co/E1enOO7bxI |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @suziekjos thanks for joining in Susan! #nephjc |
| Roger Rodby @NephRodby Interesting that many of the nocturnal programs you all describe is for special needs not QOL #NephJC |
| Les @LBEBEN Reading literature espousing daily dialysis; very compelling if within reach. https://t.co/8sGEo6omR3 |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes @Nephro_Sparks #nephjc https://t.co/ePLMmjhiOA |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @anna_burgner: T0: T0: I have patients on in center nocturnal HD. 24 hours a week. I recommend to people who want days free and don't want to do PD #NephJC |
| Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi RT @edgarvlermamd: FHN: FHN: Conventional 3x/ week HD vs More frequent In center HD (ASN BRCU 2012/ Dr Depner) #Nephpearls #NephJC https://t.co/E1enOO7bxI |
 | TEJAS PATEL MD, FACP, FASN @GenNextMD Great @suziekjos #nephjc welcome! https://t.co/nakfw126HZ |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @gratefull080504 They said 3-4hrs x3/wk was enough for them. Cannot say all of my pts, but a big portion. #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy In centre or home HD? Any data/anecdote as to why patients prefer it? #nephjc https://t.co/voRFJQlPA6 |
| Nephrology Journal Club @NephJC Patients want to do it at night and work during the day? At least for nocturnal HD #nephjc |
| nilu desai @niludesai1 @NephJC @silvishah Also have a couple patients that work during the day and prefer nocturnal #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @hswapnil @OttawaRenal @annlbugeja Despite this study's results my noc pts feel like they "woke up from a coma" #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 It is sad to say that do not know any better the value of more frequent treatments #nephJC https://t.co/JKoSEmRTtZ |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Is that a bad thing? #nephjc https://t.co/1E2JGuIsmZ |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @GarySingerMD Indeed, @annlbugeja 's patients say the same thing... #nephjc |
| rob @renalpolitics #nephjc - curious what pts on nocturnal tend to say regarding the quality of sleep, etc. haven't met many so far. |
| Roger Rodby @NephRodby @GarySingerMD "Woke up from coma" elaborate plz #NephJC |
 | Azra Bihorac @AzraBihorac Hi everybody from Florida! No power here so I am on external battery on the dark hahaha #nephjc |
| Azra Bihorac @AzraBihorac Azra Bihorac #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy What if daily HD was assoc w/ something useful - like education/socialising - would that mk a difference? #nephjc |
| Nephrology Journal Club @NephJC Hi Azra! Wow, thanks for joining us. #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephRodby @GarySingerMD have had patients say a 'fog' lifted from their brain, heard often TBH (but #recall/selection bias) #nephjc |
| Michelle Rheault @rheault_m @AzraBihorac Stay safe! Choosing to use your precious battery life for #NephJC should win a prize or something. |
| Matthew Sparks, MD @Nephro_Sparks the dilemma arises when your reason for longer HD (lab parameter etc) has direct conflict with patients QOL #nephjc |
| Nephrology Journal Club @NephJC Is nocturnal HD offered to all patients in your program? #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Wow that's dedication! Welcome and hope you're doing ok? #nephjc https://t.co/G7NutdtWLg |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @AzraBihorac wow! glad things are not that bad...thanks for joining in #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephRodby More energy and faster post HD rebound #nephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 And linking it to being able to work contribute to self esteem #nephjc https://t.co/mqIM4eeKYc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @KidneyCathy: What if daily HD was assoc w/ something useful - like education/socialising - would that mk a difference? #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @AzraBihorac HI Azra stay stafe #nephjc |
| Nephrology Journal Club @NephJC very true RT @Nephro_Sparks: the dilemma arises when your reason for longer HD (lab parameter etc) has direct conflict with pts QOL #nephjc |
| Azra Bihorac @AzraBihorac Thank you all good here lots of fallen trees! Kudos to NephJC great visual abstract #nephjc |
| Azra Bihorac @AzraBihorac Will share with my fellows #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil QFT @Nephro_Sparks: the dilemma arises when your reason for longer HD (lab parameter etc) has direct conflict with patients QOL #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thank you @Nephro_Sparks ! #nephJC https://t.co/Zz5DEPe1v1 |
| Nephrology Journal Club @NephJC This is great to hear RT @GarySingerMD: @NephRodby More energy and faster post HD rebound #nephJC |
| Roger Rodby @NephRodby @hswapnil fog lifted meaning they sleep better than usual? #NephJC |
| Michelle Rheault @rheault_m @KidneyCathy In children, extended dialysis is associated with improved growth. #NephJC https://t.co/gKY3DQHPnW https://t.co/MqdZgVcNsU |
| TEJAS PATEL MD, FACP, FASN @GenNextMD Can u Plz elaborate - not intuitive @KidneyCathy #nephjc https://t.co/B9Cxe3BK3t |
| Nephrology Journal Club @NephJC RT @rheault_m: @KidneyCathy In children, extended dialysis is associated with improved growth. #NephJC https://t.co/gKY3DQHPnW https://t.co/MqdZgVcNsU |
| Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi RT @rheault_m: @KidneyCathy In children, extended dialysis is associated with improved growth. #NephJC https://t.co/gKY3DQHPnW https://t.co/MqdZgVcNsU |
| Roger Rodby @NephRodby @hswapnil This is the issue: My son is better off the more he studies but that does not improve his QOL #NephJC |
| Nephrology Journal Club @NephJC T1: Letโs talk about the methods #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil *Associated* (sorry!) MT @rheault_m: In children, extended dialysis is associated with improved growth. #NephJC |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @NephRodby @hswapnil Better cognitive performance #Nephjc (at least from those I happened to run across over the years - small N though) |
| Silvi Shah, MD, MS @silvishah @NephJC @Nephro_Sparks I have difficulty keeping patients even for 4 hours #nephJC |
 | Gates Colbert, MD @DoctorGates Late to join. Dallas Nephrologist. #NSMC 2017. COI: Uremia eliminator MWF and TTS. #nephjc |
| Nephrology Journal Club @NephJC This was a prospective RCT to evaluate the effect of increasing weekly HD hours on QoL over 12 mos compared with standard HD. #NephJC |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop RT @NephRodby: @hswapnil This is the issue: @hswapnil This is the issue: My son is better off the more he studies but that does not improve his QOL #NephJC |
| Matthew Sparks, MD @Nephro_Sparks @DoctorGates Hi Gates #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Forgot about work! Paed neph here! Very true #nephjc https://t.co/uzEI5yOTwo |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @DoctorGates hey Gates - glad you could make it! #nephjc |
| Nephrology Journal Club @NephJC Gates! Welcome! #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil +1 indeed @NephRodby: @hswapnil This is the issue: My son is better off the more he studies but that does not improve his QOL #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Now we are speaking in relevant outcomes Thank you @rheault_m #nephJC https://t.co/uYxooFqaNc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: This was a prospective RCT to evaluate the effect of increasing weekly HD hours on QoL over 12 mos compared with standard HD. #NephJC |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephJC @NephRodby Big difference: conventional in-center pts claim to feel "better" with less time and noc pts feel "better" with longer HD #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy @sharonteosl what do you think?#nephjc |
| Nephrology Journal Club @NephJC Thoughts on QoL as the primary outcome of the largest extended HD study to date? #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: Thoughts on QoL as the primary outcome of the largest extended HD study to date? #NephJC |
| Azra Bihorac @AzraBihorac Here is my bias as AKI / critical care person- we are dealing with imperfect and imprecise techniques #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thank @ChristosArgyrop for speaking up for your patients Relevant patient outcomes #nephJC https://t.co/PNzRbhpPK9 |
| Azra Bihorac @AzraBihorac More of mediocre does not bring greatness #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil QoL as outcome: I think smart given (a) mortality benefit implausible after FHN and (b) higher cost, so better QoL = cost effective #nephjc |
| Silvi Shah, MD, MS @silvishah Patients absolutely hate dialysis - it disrupts their life - its hard to convince to extend dialysis longer #nephjc |
| TEJAS PATEL MD, FACP, FASN @GenNextMD MWF/TTS - extended HD...Still we not pee on sundays??? #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Absolutely - but need to make sure it doesn't negatively impact on education or socialisation - need to think of the whole picture. #nephjc https://t.co/7Djvahusnp |
| Azra Bihorac @AzraBihorac We need to focus on developing ng new techniques #nephjc |
| Matthew Sparks, MD @Nephro_Sparks which is why it is important to study QOL because if miserable then life extended a few years. is it worth it to them #nephjc |
| Michelle Rheault @rheault_m @hswapnil Selling an RCT of extended time dialysis in kids is difficult. Still have to think QOL for kids/families #NephJC |
| Nephrology Journal Club @NephJC pls elaborate RT @AzraBihorac: More of mediocre does not bring greatness #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Early contender for #TWOTN RT @AzraBihorac: More of mediocre does not bring greatness #nephjc |
| Azra Bihorac @AzraBihorac Not giving more of lousy ones #nephjc |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @NephJC I think it's relevant, what pts care about. My only question was about the questionnaire they used. Not familiar with it... #nephjc |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @GarySingerMD @NephJC @NephRodby #NephJc same thing happens in HD vs PD. Keeping all options on the table ensures there is something that fits every pt's preference |
| Matthew Sparks, MD @Nephro_Sparks read this #NephJC https://t.co/KYLpWyRQBD |
| Nephrology Journal Club @NephJC great point MT @Nephro_Sparks: which is why it's impt to study QOL bec if miserable then life extended a few yrs is it worth it #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Quality of Life has been after thought in US For crying out there no guidelines for fluid management! #nephJC https://t.co/cUQIACYGqy |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil #NephJC https://t.co/MkP10OKaxz |
| Pravir @Proximal_Baxi @NephJC I think its very important to study QoL in our patients #nephjc |
| Nephrology Journal Club @NephJC EQ-5D- questions on mobility, self-care, usual activities, pain/discomfort, anxiety/depression. Also a self-rating of health status #NephJC |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch RT @Nephro_Sparks: read this #NephJC https://t.co/KYLpWyRQBD |
| Azra Bihorac @AzraBihorac We are stuck as we invested in this bad relationship but we intuitively know we need to get out of it #nephjc |
| Nephrology Journal Club @NephJC EQ-5D was administered via telephone by a central interviewer blinded to treatment allocation #NephJC https://t.co/ba2ke7gk6y |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @Nephro_Sparks: which is why it is important to study QOL because if miserable then life extended a few years. is it worth it to them #nephjc |
| rob @renalpolitics @KidneyCathy #nephjc - as in obtaining education or resources on HD? could we use those hours for pt improvement? |
 | devika nair md msci @devimol i think that is key @silvishah #nephjc https://t.co/euqHQSGLd8 |
| Raymond Hsu @DrRaymondHsu I don't know this area-whether the EQ-5D is validated tool in ESRD population, especially from China #nephjc |
| Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi This thought is universal. Most of my pts prefer 2/wkd HD than 3/wk. https://t.co/uZ0zANLCek |
 | Bill Whittier @TWhittier_RUSH We've had 4 Nocturnals in the past which were in studies- did well. No Nocturnals currently. https://t.co/C5zdSHcqf7 |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @devimol @silvishah hey Devika - welcome back to #NephJC |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy How about this? Hosp taxi fr home to centre. Ed on HD. Group lunch. Taxi 2 school. Parent collects fr school. =>more HD+Ed+social #nephjc https://t.co/dgmQidpBh9 |
| Matthew Sparks, MD @Nephro_Sparks from @TWhittier_RUSH #NephJC https://t.co/kkEpRe2c3p |
| Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi #NephJc https://t.co/c8D6z5vtaZ |
| Nephrology Journal Club @NephJC Hi Devika! #nephjc |
| Azra Bihorac @AzraBihorac Since the invention of dialysis what really changed ? What is real breakthrough? #nephjc |
| Roger Rodby @NephRodby Not to say QOL is not important, but if you don't do it long enough to show clinical improvement, then how can you expect QOL better #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Good point! RT @DrRaymondHsu: I don't know this area-whether the EQ-5D is validated tool in ESRD population, especially from China #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy @silvishah The ans is not necessarily less HD tho, more how to make HD fit around life. Promote work/education in centre. #nephjc |
| Les @LBEBEN Time variables on Kt/V favor daily dialysis treatment if reimbursed. https://t.co/ssHNmBQ0xJ |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes Thank you @silvishah ! I saw how #dialysis destroy my mother's life + my aunt's A reality check #dialysis is awful #NephJC https://t.co/BRYDDI0B2E |
| Matthew Sparks, MD @Nephro_Sparks will @DanEdmonston or @JohnMusgrove join #NephJC maybe @NirajRKothari |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: EQ-5D- questions on mobility, self-care, usual activities, pain/discomfort, anxiety/depression. Also a self-rating of health status #NephJC |
| Gates Colbert, MD @DoctorGates Worst sales pitch ever: Hey Mr. S, how about we extend your dialysis to 6 hours AND every night. Your Phos levels will be at goal! #nephjc |
| Matthew Sparks, MD @Nephro_Sparks RT @gratefull080504: Yes Thank you @silvishah ! I saw how #dialysis destroy my mother's life + my aunt's A reality check #dialysis is awful #NephJC https://t.co/BRYDDI0B2E |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephRodby longer = longer than 24 hours/week? or longer follow up in trial? #nephjc |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @arvindcanchi #nephjc I believe that preferences may change if the big picture is explained |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Are there any #dialysis patients on this chat? #nephJC |
| Nephrology Journal Club @NephJC Authors in discussion state EQ-5D most widely used multiattribute utility instrument in the world and in CKD #nephjc |
| Nephrology Journal Club @NephJC RT @NephRodby: Not to say QOL is not important, but if you don't do it long enough to show clinical improvement, then how can you expect QOL better #NephJC |
| Raymond Hsu @DrRaymondHsu perhaps EQ-5D does not capture the types of improved QOL like sleep/wakefulness others have mentioned #nephjc |
| Nephrology Journal Club @NephJC Participants were incident/prevalent HD pts from AUS, CHN, CAN, NZL on std HD with life expectancy >6mos, no planned Ktx in 12 mos #NephJC |
| devika nair md msci @devimol more reasons for QOL to be a more regularly-measured outcome #NephJc |
| Nephrology Journal Club @NephJC Baseline characteristics: 52 yrs, 69% men, 31% DM, 66% Asian, 23% White, 88% in-center HD, 84% AVF #NephJC |
| Matthew Sparks, MD @Nephro_Sparks #Renalism #NephJC https://t.co/YtvhmeyRXV |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes this is called #patientengagement Thank you #nephJC https://t.co/mF3N5cxz6j |
| Roger Rodby @NephRodby Increased time lowered, PO4, K and raised Hgb. How can that not be good? #NephJC |
| Nephrology Journal Club @NephJC Participants randomized 1:1 using an algorithm stratified by geographical region, dialysis setting and dialysis vintage #NephJC |
| TEJAS PATEL MD, FACP, FASN @GenNextMD What about access - its destroyed...#nephjc https://t.co/Siq0ewPB2P |
| Nephrology Journal Club @NephJC Participants and physicians were not blinded as this was not feasible, but end points were assessed in a blinded fashion #NephJC |
| Nephrology Journal Club @NephJC Intervention: standard HD (at least 12 but <18 hrs/week) vs extended HD (at least 24 hrs/week), minimum 3 sessions/wk #NephJC |
| Arvind Canchi (Conjeevaram)๐ฎ๐ณ @arvindcanchi @ChristosArgyrop Out here preferences depend on the financial state of the Pt since >70% pay from their pockets. #Nephjc |
| Nephrology Journal Club @NephJC No requirements on session frequency or duration as long as total weekly HD hour requirements were fulfilledโ Any issues with this? #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Moreover was the questionnaire designed with patients ? #nephJC https://t.co/OujB45ybKt |
| Matthew Sparks, MD @Nephro_Sparks same for #NephJC @gratefull080504 @suziekjos https://t.co/zaRbf8nBu3 |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @DoctorGates You can sell it as: less pills, less dietary restrictions... but more time on dialysis #nephjc ๐ |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil More on EuroQoL 5D here https://t.co/DsL6qNTohW (but cant find validation in HD @DrRaymondHsu ) #NephJC https://t.co/wtjpXv3SxD |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thank you #NephJC https://t.co/rkv8zMlQ3X |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Possible benefit of frequent hemodialysis on sleep ๐ด quality โ๏ธ #Nephpearls #NephJC ๐๐ผ https://t.co/q69skor8aa https://t.co/5eq8NVfbB4 |
| Silvi Shah, MD, MS @silvishah @KidneyCathy @suziekjos @NephJC @Nephro_Sparks Well seeing patients- they experience fatigue post dialysis from traveling, treatment etc which wears them off - and they are back #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Right on @Nephro_Sparks ! #nephJC https://t.co/JGQsMA8ET3 |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephJC QOL important but influenced by factors other than HD time. Only 30% of pts diabetic and ethnicity diff vs US ESRD population #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC sounds like a good plan! 24 vs 12 hours is a clinically meaningful difference in treatment time per week #nephjc |
| devika nair md msci @devimol RT @DoctorGates: Worst sales pitch ever: Worst sales pitch ever: Hey Mr. S, how about we extend your dialysis to 6 hours AND every night. Your Phos levels will be at goal! #nephjc |
| Nephrology Journal Club @NephJC RT @Nephro_Sparks: same for #NephJC @gratefull080504 @suziekjos https://t.co/zaRbf8nBu3 |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Education on HD in centre. working w/ employers to arrange work on HD. Arranging time w/ kids/grandkids on HD. Creativity on HD... #nephjc https://t.co/CqCOustgXd |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @silvishah @KidneyCathy @suziekjos @NephJC @Nephro_Sparks #nephjc which is why I think that frequent HD should be home HD |
| Michelle Rheault @rheault_m RT @KidneyCathy: How about this? Hosp taxi fr home to centre. Ed on HD. Group lunch. Taxi 2 school. Parent collects fr school. =>more HD+Ed+social #nephjc https://t.co/dgmQidpBh9 |
| Nephrology Journal Club @NephJC Secondary outcomes: CV effects, QoL measured by SF-36, pt adherence, lab outcomes, medication usage. #NephJC |
| Matthew Sparks, MD @Nephro_Sparks @NephJC seems like bolus 3 sessions for 24 hours not same as 24 hrs spread over 6 days. Thinking out loud (literally) #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Or transport to centre w/ active planning to make the session useful/enjoyable for patient #nephjc https://t.co/GgtrByGPI3 |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @gratefull080504 Good point, however EQ5 dates from 1990s, before the current recognition of patient input...https://t.co/97eDH9i9P7 #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thank you representing the #patientvoice #nephJC https://t.co/CpjdPxEANJ |
| Nephrology Journal Club @NephJC Yes, exactly MT @Nephro_Sparks: @NephJC seems like bolus 3 sessions for 24 hours not same as 24 hrs spread over 6 days. #nephjc |
| Silvi Shah, MD, MS @silvishah @ChristosArgyrop @KidneyCathy @suziekjos @NephJC @Nephro_Sparks Agree- pd and home hd are better #nephJC |
| Manan Doshi @manan_doshi Besides pt reluctance, Hw do v accommodate all on frequent daily dialysis? #NephJC |
| Manan Doshi @manan_doshi We have to pick and choose. Question is hw? This is esp true in my country #NephJC |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Frequent hemodialysis ~ โฌ๏ธ HR-QOL ca. 2017 #Nephpearls #NephJC ๐๐ผ https://t.co/yS3XDgnkjT https://t.co/WEXKTQ2aY0 |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @Nephro_Sparks @NephJC Right, but 3 x week frequency more oft accepted than 6 x week (in my experience, ahem!) #nephjc |
| Nephrology Journal Club @NephJC must also think of cost! RT @manan_doshi: We have to pick and choose. Question is hw? This is esp true in my country #NephJC |
| Michelle Rheault @rheault_m @manan_doshi Would need twice as many dialysis nurses (good luck), not to mention figuring out how to pay for all that dialysis. #NephJC |
| Nephrology Journal Club @NephJC Safety outcomes: serious adverse events, dialysis vascular access events, and survival #NephJC |
| Nephrology Journal Club @NephJC Any other comments on the methods? #NephJC |
| Ivy Melgarejo @IvyM808 RT @rheault_m: @manan_doshi Would need twice as many dialysis nurses (good luck), not to mention figuring out how to pay for all that dialysis. #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 The goal is to move away from the dependence created by #hemodialysis The dependence is very insidious #nephJC https://t.co/spZCGheB0r |
| Les @LBEBEN Is time dialized absolutely tied to kt/v? Please explain math. https://t.co/2zqnJGVZxk |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch How does reimbursement work for extended in-center HD? #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Is there any adult equivalent of a play therapist or teacher to mk the session useful/enjoyable? My patients have both #nephjc |
| rob @renalpolitics @NephJC @manan_doshi #nephjc - cost is important discussion, more dialysis means more overall costs though hard to measure, and also greater environmental impact |
| nilu desai @niludesai1 @NephJC bad qol vs more bad qol #nephjc |
| Azra Bihorac @AzraBihorac @gratefull080504 cannot agree more! It is pervasive for doctors too. Too much corporate interest in my opinion #nephjc |
| Nephrology Journal Club @NephJC note that none on NxStage in this study MT @hswapnil: @Nephro_Sparks Right, but 3x wk freq more oft accepted than 6x wk #nephjc |
| Matthew Sparks, MD @Nephro_Sparks @KidneyCathy exercise for an hour or so while on. #nephjc |
| Raymond Hsu @DrRaymondHsu @KidneyCathy sadly, TV with headphones #nephjc |
| Nephrology Journal Club @NephJC RT @renalpolitics: @NephJC @manan_doshi #nephjc - cost is important discussion, more dialysis means more overall costs though hard to measure, and also greater environmental impact |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy @gratefull080504 V true. But what if going into HD was really enjoyable? Working/studying twds a degree. Good food provided. Free transport... #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC imp as more dialysis bad for access: https://t.co/y6HBv4fvD2 & residual fn: https://t.co/ArZwWgRluz #nephjc |
| Manasi Bapat MD, FASN, FNKF๐ฎ๐ณ๐บ๐ธ @manasib33 If focus is only on QOL, then patients with for eg GN would only be taking diuretics, so agree with focusing on big picture #nephjc |
| Nephrology Journal Club @NephJC T2: Let's move on to the results. What they found. #NephJC |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Frequent in-center & nocturnal hemodialysis did not significantly change TSH, FT4, or FT3 #Nephpearls #NephJC ๐๐ผ https://t.co/AbDzUYrIa7 |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Then maybe the questionnaire needs to be revised By extension I have now questions about the conclusions drawn from study #nephJC https://t.co/OKWFXqBXOJ |
| Nephrology Journal Club @NephJC Study enrolled the planned 200 participants and randomized 100 pts to each group. 195 pts had analyzable EQ-5D QoL assessments #NephJC |
 | CAPN-ANPC @CAPNeph RT @KidneyCathy: Is there any adult equivalent of a play therapist or teacher to mk the session useful/enjoyable? My patients have both #nephjc |
| Nephrology Journal Club @NephJC Delivered treatments were nicely separated between groups (median 24 vs 12 hrs) #NephJC |
| Nephrology Journal Club @NephJC Predominantly achieved by longer treatment sessions rather than increased session frequency #NephJC https://t.co/L9EfzPWRDM |
| Silvi Shah, MD, MS @silvishah @LBEBEN It's not- at times when extending treatment is required due to volume overload - difficult to convince patients #nephJC |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @KidneyCathy Maybe this... https://t.co/IwppdDSk9m #nephjc |
| Nephrology Journal Club @NephJC Hi Paul! Great seeing you here! #nephjc |
| Nephrology Journal Club @NephJC Complete and partial adherence to intervention much lower in extended group #NephJC |
| Roger Rodby @NephRodby I'm torn, is QOL the perfect outcome measure or the worst? #NephJC |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @KidneyCathy Can't make it work if your commute time is 2 hours as happens frequently in rural areas #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @PJ1081 @devimol @silvishah yup, shown here: https://t.co/zxlZ2ypdo3 (and welcome to #NephJC) |
| Nephrology Journal Club @NephJC Complete adherence (std vs extended) 74-78% vs 95-98% and partial adherence 78-81% vs 98-99%. Anyone surprised? #NephJC https://t.co/HMwBavwrnU |
| CAPN-ANPC @CAPNeph RT @NephRodby: I'm torn, is QOL the perfect outcome measure or the worst? #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: Delivered treatments were nicely separated between groups (median 24 vs 12 hrs) #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 The US LDOs have employed this model to prevent #patientempowerment #nephJC https://t.co/I8hcmgDkhD |
| devika nair md msci @devimol recruited some ID involvement for #nephjc :) https://t.co/rl9SP6Jyes |
| Nephrology Journal Club @NephJC Also quite dependent on the instrument used RT @NephRodby: I'm torn, is QOL the perfect outcome measure or the worst? #NephJC |
 | John Musgrove @JohnMusgrove Hello all! John Musgrove first year fellow from @DukeKidney also #ChronicLurker with no COI #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thank you @Nephro_Sparks for creating the environment #nephJC https://t.co/RiekadwQRg |
| Matthew Sparks, MD @Nephro_Sparks @PJ1081 @devimol @silvishah thanks for joining paul #NephJC #Antibiotics |
| Azra Bihorac @AzraBihorac Cannot imagine how hard and interruptive for someone's life it is to spend all that time bound for machine #nephjc |
| Nephrology Journal Club @NephJC Keep those ID docs close! Always needed! RT @devimol: recruited some ID involvement for #nephjc :) https://t.co/MkokzEy5ZB |
| Nephrology Journal Club @NephJC Hi John! Welcome and thanks for joining! #nephjc |
| Nephrology Journal Club @NephJC Agree! RT @AzraBihorac: Cannot imagine how hard and interruptive for someone's life it is to spend all that time bound for machine #nephjc |
 | Robert Hopkins @ARAdultImmDoc RT @Nephro_Sparks: same for #NephJC @gratefull080504 @suziekjos https://t.co/zaRbf8nBu3 |
| TEJAS PATEL MD, FACP, FASN @GenNextMD RT @KidneyCathy: Education on HD in centre. working w/ employers to arrange work on HD. Arranging time w/ kids/grandkids on HD. Creativity on HD... #nephjc https://t.co/CqCOustgXd |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @renalpolitics @NephJC @manan_doshi Here is one attempt (very meticulous, PDF) https://t.co/JnQ1NzOgRa from @CADTH_ACMTS #NephJC https://t.co/7vDFy2GixL |
| Azra Bihorac @AzraBihorac I see dialysis as a temporary and palliative therapy- a bridge to something different or better. #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD Part of the problem is @CMSGov considers giving Nepro or Zone bars to pts #inducement https://t.co/XRYyKSyFAq |
| Azra Bihorac @AzraBihorac Until we invent true kidney replacement #nephjc |
| Gates Colbert, MD @DoctorGates @NephJC Ext adherence is SO HIGH because the patients have no other time for life activities. Their commitment is chair time, muy mal QOL #NephJC |
| Azra Bihorac @AzraBihorac But where is enthusiasm #nephjc |
| Nephrology Journal Club @NephJC Anyone surprised adherence pretty low in extended HD group? I'm not #nephjc |
| Cathy Quinlan @CathyQuinlan.bsky.social @KidneyCathy Wouldn't appeal to me - but agree that it's a good idea! And thinking of HD time as productive is a great start! https://t.co/TenlHbtCZO |
| Matthew Sparks, MD @Nephro_Sparks RT @JohnMusgrove: Hello all! John Musgrove first year fellow from @DukeKidney also #ChronicLurker with no COI #NephJC |
| Roger Rodby @NephRodby help me out, were extended pts doing extended daily, nocturnal, or more frequent? (sry) #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 My guess is the QOL measures were never developed with patients so I question the relevance of this study #nephJC https://t.co/UaTsALcgPF |
 | Pushkar @pargekar @NephRodby If the N=1 it is perfect. If not, then... #NephJC |
| Nathaniel Reisinger @nephrothaniel @NephJC Impressively few patients <12h. Would be interesting to see differences w/ 9h/wk which is typical among those I see #nephjc |
| Azra Bihorac @AzraBihorac But where is enthusiasm and energy in nephrology community for that? #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @JohnMusgrove @DukeKidney Welcome JOhn! (#BowTiesAreCool https://t.co/5231OtVnF4 ) #nephjc |
| Ivy Melgarejo @IvyM808 RT @NephJC: Anyone surprised adherence pretty low in extended HD group? I'm not #nephjc |
| Silvi Shah, MD, MS @silvishah @JohnMusgrove @Nephro_Sparks @DukeKidney Welcome John #NephJC |
| Nephrology Journal Club @NephJC mostly long hrs 3x/week RT @NephRodby: help me out, were extended pts doing extended daily, nocturnal, or more frequent? (sry) #NephJC |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @NephJC Not really #nephjc |
| devika nair md msci @devimol @NephRodby i have also been debating this. perhaps our current QOL measures are outdated and we need to reassess #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephRodby extended 3 x week (8 hours) some at home, some in center #nephjc |
| Nephrology Journal Club @NephJC QoL at 12 mos decreased in both groups with no significant difference between the two. Even for prespecified subgroup analyses. #NephJC https://t.co/nJb5St3sa6 |
| Pravir @Proximal_Baxi @ChristosArgyrop @NephJC agree, not surprised #nephjc |
| TEJAS PATEL MD, FACP, FASN @GenNextMD QOL gaining more importance as hard end points difficult to meet....#NephJC #ACA https://t.co/mJuj5i0VFj |
| Matthew Sparks, MD @Nephro_Sparks plenty of enthusiasm :) RT @AzraBihorac: But where is enthusiasm and energy in nephrology community for that? #nephjc |
| Ivy Melgarejo @IvyM808 @devimol @NephRodby Is it time to device a new tool? #nephjc |
| Silvi Shah, MD, MS @silvishah @NephJC I am assuming mortality was not measured - better lab parameters does not necessarily mean improved survival #nephJC |
| Nephrology Journal Club @NephJC Great question RT @IvyM808: @devimol @NephRodby Is it time to device a new tool? #nephjc |
| Matthew Sparks, MD @Nephro_Sparks another comment from @Kimmyrocks47Kim on HD #NephJC https://t.co/4oGYCnIqoG |
| Nephrology Journal Club @NephJC Using the SF-36 form, they did note a small significant difference particularly in physical component summary scores. #NephJC |
| Roger Rodby @NephRodby @NephJC "long hrs 3X/week" wonder how QOL would be if extended were all nocturnal? #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @GarySingerMD : please explain #nephJC https://t.co/moWqBvk6Hc |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @Proximal_Baxi @NephJC Same thing with PD. Motivated pts who can fit in their lifestyle will think it is great. Everybody else will say screw this #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC indeed. but 78% adherence to 24 hours a week not bad...#NephJC https://t.co/S1xxHFji1O |
| rob @renalpolitics @NephJC #nephjc - any data on what difference means?, seems hard to translate these small differences into a discussion with patients or real life |
| Les @LBEBEN Better access required for daily dialysis. Survival data solicited with respect. https://t.co/Ap3uYlapWo |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @GenNextMD: QOL gaining more importance as hard end points difficult to meet....#NephJC #ACA https://t.co/mJuj5i0VFj |
| Nephrology Journal Club @NephJC I couldn't tell if this was nocturnal RT @NephRodby: "long hrs 3X/week" wonder how QOL would be if extended were all nocturnal? #NephJC |
| Silvi Shah, MD, MS @silvishah @hswapnil @NephJC It would be good to know the education and socioeconomic status of the patient population #nephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @devimol great point #iPhoneX https://t.co/RHMeO8kvdf |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Great point #nephJC https://t.co/RHMeO8kvdf |
| Anna Burgner MD MEHP @anna_burgner Interesting question. My in center nocturnal patients don't sleep well and still have many QOL complaints. #NephJC https://t.co/sYMXXTm2GV |
| TEJAS PATEL MD, FACP, FASN @GenNextMD U had me at bow tie ๐...#nephjc https://t.co/GDs7WLt23C |
| Silvi Shah, MD, MS @silvishah @GenNextMD @hswapnil Qol is important but how we define it is more crucial #nephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC @NephRodby mostly day. 3 in std and 10 in extended were nocturnal... #nephjc |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @gratefull080504 @GarySingerMD Is it consider inducement? Isn't more a metric (i.e., albumin) to qualify to get ONS? #nephjc |
| Nephrology Journal Club @NephJC @renalpolitics: authors state SF-36 diff they found slightly below level that is suggested as a "minimally impt difference in CKD" #nephjc |
| nilu desai @niludesai1 @NephJC To me that's the whole study in a nutshell.. if patients felt better(better qol) they would stick with it #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @GarySingerMD : The LDOs are much insidious than that #nephJC https://t.co/O6zcdLN9Wk |
| Nephrology Journal Club @NephJC Yes! RT @niludesai1: To me that's the whole study in a nutshell.. if patients felt better(better qol) they would stick with it #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @silvishah Always, but why SES? Arguably in ANZ/Canada (not sure of China) at least healthcare = universal... #nephjc |
| Gates Colbert, MD @DoctorGates QOL means different things for different pts. Some want great numbers, to have lifeTime. Others want short HD to get back to Now. #nephjc |
| TEJAS PATEL MD, FACP, FASN @GenNextMD @silvishah Agreed... Devil in the detail.. Harder soft end point...#nephjc https://t.co/AHY5YmeKHX |
| Nathaniel Reisinger @nephrothaniel QOL is paramount. I'm very disappointed in lack of significance of regression of LV mass #NephJC |
| Nephrology Journal Club @NephJC RT @anna_burgner: Interesting question. My in center nocturnal patients don't sleep well and still have many QOL complaints. #NephJC https://t.co/sYMXXTm2GV |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: Yes! RT @niludesai1: Yes! RT @niludesai1: To me that's the whole study in a nutshell.. if patients felt better(better qol) they would stick with it #nephjc |
| Nephrology Journal Club @NephJC T3: Discussion: What do these findings mean to you and your patients? #NephJC |
| Manan Doshi @manan_doshi Access complications expected in frequent dialysis, not sure of longer 3X dialysis #Nephjc @hswapnil |
| Silvi Shah, MD, MS @silvishah @hswapnil Compliance at times also depend on education, insurance and Se status #nephJc |
| Nephrology Journal Club @NephJC Anyone surprised by the results of this study? #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 How much was this study sponsored by industry ?#nephJC |
| Nephrology Journal Club @NephJC RT @DoctorGates: QOL means different things for different pts. Some want great numbers, to have lifeTime. Others want short HD to get back to Now. #nephjc |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Achieving more frequent and longer dialysis w/ the Wearable Artificial Kidney #NephJC ๐๐ผ https://t.co/o0ge2iIZdU https://t.co/gbAH4EDzp5 |
| Nathaniel Reisinger @nephrothaniel I think many of us hung our hat on this as the key to driving down cardiovascular mortality for ESRD patients #NephJC |
| devika nair md msci @devimol SF-36 serms validated for mood/physical health in kidney dz. are we missing other measures? is it more valid for the extreme cases? #NephJc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @anna_burgner I think @annlbugeja uses the occasional sleeping med. Also no TVs, Quiet/dark + less often RN rounding @nephrodby #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @anniebelch @gratefull080504 Yes - need albumin < 3.6 but why not give everyone extra protein with HD? #Nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Let's allow the patients define QOL #nephJC https://t.co/JSsa1ek7Lm |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Yes. Dogma overturned in fact RT @VelezNephHepato: #nephjc so the dogma about more time is better is now in question? #nephjc |
| Nephrology Journal Club @NephJC RT @nephrothaniel: I think many of us hung our hat on this as the key to driving down cardiovascular mortality for ESRD patients #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Yes (adherence/concordance) RT @silvishah: @hswapnil Compliance at times also depend on education, insurance and Se status #nephJc |
| Roger Rodby @NephRodby I am surprised because I really thought time is the missing link and it would make people feel better enough to justify #NephJC |
| Nathaniel Reisinger @nephrothaniel I'm curious as to whether the effect size was limited by patient characteristics. #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 I question the relevance of this study based upon a questionable foundation #nephJC https://t.co/fRn4WDUoCD |
| Roger Rodby @NephRodby It always gets back to the Tissan (correct) French experience with survival #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @gratefull080504 funded by NHMRC (Australia version of NIH) + some funding from Baxter... #nephjc |
| Silvi Shah, MD, MS @silvishah @NephJC Not very convinced #nephJC |
| Nephrology Journal Club @NephJC Tassin experience in France RT @NephRodby: It always gets back to the Tissan (correct) French experience with survival #NephJC |
| Anna Burgner MD MEHP @anna_burgner @hswapnil @annlbugeja @NephRodby We do all that but it is still not sleeping in your own bed at home #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @anna_burgner: @hswapnil @annlbugeja @NephRodby We do all that but it is still not sleeping in your own bed at home #NephJC |
| Raymond Hsu @DrRaymondHsu it's possible the study population is too healthy & have too high QOL, so unable to improve upon much with intervention #nephjc |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch I wonder if pts had dietary restrictions and if so were they liberalized d/t decreased P and K? #nephjc |
| Roger Rodby @NephRodby I am a middle molecule guy, time helps more than membrane, hard to abandon dogma #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC @NephRodby thats why we do Trials. Observational = selection bias + confounding... #nephjc |
| Nathaniel Reisinger @nephrothaniel The LV mass index for patients in the FHN was in the 130s-140s compared with ACTIVE with patients in the 105 range #NephJC |
| Nephrology Journal Club @NephJC Would this study change how you practice? #NephJC |
| Raymond Hsu @DrRaymondHsu Table 1: they seem healthier than my average pt. also lots of fistulas (impressive) #nephjc |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @NephJC @NephRodby Great data! But that's the way they've always done it... not true change of treatment, right? #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Plausible IMO MT @DrRaymondHsu: it's possible the study population is too healthy/high QOL, so unable to improve upon much #nephjc |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @NephRodby #nephjc Time is the missing link - think about your son (or my 1st grade daughter) again. He likes the grades but it limits other activities |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thanks @Nephro_Sparks You get it #nephJC https://t.co/DKUpViyOAM |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd I'm wondering if this dogma would be addressed in an upcoming @goKDIGO Conference ๐ช๐ธ #NephJC https://t.co/hN2cUADkJq https://t.co/sRAWzAlKb0 |
| Nephrology Journal Club @NephJC Agree, also w/ higher bl QoL RT @DrRaymondHsu: Table 1: they seem healthier than my average pt. also lots of fistulas (impressive) #nephjc |
| TEJAS PATEL MD, FACP, FASN @GenNextMD Close ... Tassin, France @NephRodby - u r correct https://t.co/Bp0etsZUJE |
| Nephrology Journal Club @NephJC Time is almost up. Final thoughts? #NephJC |
| Nathaniel Reisinger @nephrothaniel Would suggest this is a healthier population at baseline compared to other trials of dialysis length. #NephJC |
| Nephrology Journal Club @NephJC To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephJC As an ex pat Canadian living in the US the study patients are very different from my patients #NephJC |
| Nephrology Journal Club @NephJC How many times has a patient negotiated with you on having their HD time cut, even by 15 mins? #NephJC |
| Pravir @Proximal_Baxi @NephJC sometimes every time I round #nephjc |
| nilu desai @niludesai1 RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| rob @renalpolitics #nephjc See #transplantation. |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @nephrothaniel still the FHN nocturnal did not show LV mass regression https://t.co/PQHcXDORla #nephjc |
| Nephrology Journal Club @NephJC Overall a well done study that showed no significant benefit on an important outcome #NephJC |
| Silvi Shah, MD, MS @silvishah In current times it's critical to keep patients perspective and preferences - and aim for shared decision making #nephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| Azra Bihorac @AzraBihorac I think we often miss the complexity of complete lack of kidney, a critical conductor of homeostasis #nephjc |
| Ivy Melgarejo @IvyM808 RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @renalpolitics: #nephjc See #transplantation. |
| Azra Bihorac @AzraBihorac Qol focuses on simple #nephjc |
| Pushkar @pargekar @NephJC Every time I round on every patient #NephJC |
| Roger Rodby @NephRodby @hswapnil So you are convinced more time is not better? Look at K, PO4, Hgb. #NephJC |
| Matthew Sparks, MD @Nephro_Sparks Fantastic chat thanks @KidneyBea_n for hosting Thanks @gratefull080504 @suziekjos et al for driving home patient centered outcomes #NephJC |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @NephJC Every week #nephJC |
| Matthew Sparks, MD @Nephro_Sparks RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| devika nair md msci @devimol "clinically-relevant" may be different for us vs patients. and "clinically-relevant" isn't always statistically significant #NephJc |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @NephRodby And if one is not willing to do 6x3 then 8x3 does not deliver freedom from dietary (esp fluid) restrictions #nephjc |
| Nephrology Journal Club @NephJC RT @devimol: "clinically-relevant" may be different for us vs patients. and "clinically-relevant" isn't always statistically significant #NephJc |
| Roger Rodby @NephRodby RT @IvyM808 RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| Azra Bihorac @AzraBihorac cachexia, catabolism, cognitive decline, accelerated aging, you name it . Not cured with current HD technology #nephjc |
| Nephrology Journal Club @NephJC RT @AzraBihorac: cachexia, catabolism, cognitive decline, accelerated aging, you name it . Not cured with current HD technology #nephjc |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 After a half of century of approval in US why is QOL still an afterthought in #dialysis? The answer is very apparent + is immoral #nephJC https://t.co/GqCkPqFR9F |
| Ivy Melgarejo @IvyM808 RT @devimol: "clinically-relevant" may be different for us vs patients. and "clinically-relevant" isn't always statistically significant #NephJc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephJC indeed. Cue @Song_Initiative https://t.co/Lw3Q4qNj2w #dialysisFreeTime #NephJC https://t.co/BLnP7vyvgm |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch @NephJC I saw it several times while doing research at the clinic, especially if they had IDH, cramps, etc... #nephjc |
| Gates Colbert, MD @DoctorGates I think preventing VoL has so many benefits for #ESRD pts. Less fatigue with lower UF goals. Continue to educate and empower pts #nephjc |
| Nephrology Journal Club @NephJC RT @devimol: "clinically-relevant" may be diff for us vs pts. and "clinically-relevant" isn't always statistically significant #NephJc |
| Anna Burgner MD MEHP @anna_burgner Thanks for a great chat @KidneyBea_n! #NephJC |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD RT @hswapnil: @NephJC indeed. Cue @Song_Initiative https://t.co/Lw3Q4qNj2w #dialysisFreeTime #NephJC https://t.co/BLnP7vyvgm |
| Annabel Biruete ๐ฒ๐ฝ @anniebelch RT @NephRodby: RT @IvyM808 RT @NephJC: RT @IvyM808 RT @NephJC: To me, this study validates something we all know- patients do not like being on dialysis, plain and simple. #NephJC |
| Roger Rodby @NephRodby @gratefull080504 Do you consider QOL of anti-HTNives over BP effect? #NephJC |
| Nephrology Journal Club @NephJC Thanks everyone for joining us tonight! #NephJC |
| Nephrology Journal Club @NephJC I'd like to remind everyone that there will be a BST chat tomorrow at 8 PM with @DrMattGB at the helm. #NephJC |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Typical prescriptions for short daily and nocturnal hemodialysis #Nephpearls #NephJC https://t.co/wThPdb3Sar |
| Nephrology Journal Club @NephJC By the numbers, from @healthhashtags- great chat! Thanks everyone! #NephJC https://t.co/OgqPqTexxF |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephRodby would personally do nocturnal home HD (8 hours daily). But: let patients decide. Can't say longer = definitely better now #nephjc |
| devika nair md msci @devimol @NephJC we <3 you @KidneyBea_n ! #NephJc |
| TEJAS PATEL MD, FACP, FASN @GenNextMD Gr8 chat .. @hswapnil @Nephro_Sparks @NephRodby @silvishah @rheault_m @ChristosArgyrop @gratefull080504 @DrRaymondHsu and ALL Thx #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @hswapnil @NephRodby Also, longer = more expensive. Should society pay for something that does not increase survival or QoL? #nephjc |
| Gonzalo Bautista Prieto. MD ๐ช๐จ @GonzalBautistaP RT @edgarvlermamd: Typical prescriptions for short daily and nocturnal hemodialysis #Nephpearls #NephJC https://t.co/wThPdb3Sar |
| Nephrology Journal Club @NephJC thanks @devimol and paul! RT @devimol: @NephJC we <3 you @KidneyBea_n ! #NephJc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Fabulous job @kidneybea_n ! RT @NephJC: Thanks everyone for joining us tonight! #NephJC |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop Actually the way I would do a HD time QoL study would be as a series of n-of-1 RCT. Not a parallel design #nephjc |
| Gary Singer @GarySingerMD@med-mastodon.com @GarySingerMD @hswapnil @NephRodby The key is getting patients to do home dialysis whenever possible #NephJC |
| Roger Rodby @NephRodby @hswapnil Me too, but if you were betting man, perfect trial, nocturnal 40 hr/week vs incenter 12/wk? really believe no better? #NephJC |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @NephRodby : The question is best asked to #dialysis patients I have never been on #dialysis knock on wood #nephJC https://t.co/cXLWHrmLG3 |
| Raymond Hsu @DrRaymondHsu RT @hswapnil: More on EuroQoL 5D here https://t.co/DsL6qNTohW (but cant find validation in HD @DrRaymondHsu ) #NephJC https://t.co/wtjpXv3SxD |
| Matthew Sparks, MD @Nephro_Sparks The numbers: 547 Tweets. 86 Participants. September 11th 2017. More #NephJC ๐ here https://t.co/VPMlgoX9ed via @symplur |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil Endorse. long = not for everyone MT @ChristosArgyrop: Actually the way I would do a series of n-of-1 RCT. Not a parallel design #nephjc |
| Silvi Shah, MD, MS @silvishah Thanks for great chat @KidneyBea_n #nephJC |
| Nephrology Journal Club @NephJC RT @Nephro_Sparks: The numbers: 547 Tweets. 86 Participants. September 11th 2017. More #NephJC ๐ here https://t.co/171AmYvfzl via @symplur |
| Roger Rodby @NephRodby Admittedly I take a paternalistic approach, not fair to patients #NephJC |
| B. Wagner, M.D. ๐บ๐ธ @Wagner_Nephro Thanks! #NephJC |
| Nephrology Journal Club @NephJC RT @NephJC: I'd like to remind everyone that there will be a BST chat tomorrow at 8 PM with @DrMattGB at the helm. #NephJC |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil @NephRodby Academic Q. Given TiME RCT termination, this is the best we get AFAIK https://t.co/rle1emTcqa #nephjc |
| Swapnil Hiremath @hswapnil@bsky.social @hswapnil RT @NephJC: I'd like to remind everyone that there will be a BST chat tomorrow at 8 PM with @DrMattGB at the helm. #NephJC |
| Edgar V. Lerma ๐ต๐ญ @edgarvlermamd Frequent hemodialysis ~ โฌ๏ธ HR-QOL ca. 2017 #Nephpearls #NephJC ๐๐ผ https://t.co/yS3XDgnkjT https://t.co/FrIssCwYAY |
| ChristosArgyropoulos MD, PhD PharmanukerInChief @ChristosArgyrop @hswapnil @NephRodby Let me point out that our kidneys do not work for 4 hours x3/week. #nephjc |
 | Luis Montiel Roa @luismontielroa RT @gabolino43: Importante https://t.co/PRAt3YsA3Y |
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