#OTalk Transcript

Healthcare social media transcript of the #OTalk hashtag.
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#OTalk @OTalk_
Good evening and welcome to this evening’s #OTalk Research chat. We are delighted to welcome @naomi_gallant who will be leading our chat this evening. It’s @hooper_ek on the @OTalk_ account this evening. Who is joining us / lurking? Do say hi 👋
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Good evening and welcome to this evening’s #OTalk Research chat. We are delighted to welcome @naomi_gallant who will be leading…
Georgia Vine @GeorgiaVineOT
@OTalk_ @naomi_gallant @hooper_ek Me! #OTalk
Laura Student OT @Laura_Does
@OTalk_ @naomi_gallant @hooper_ek I'll be lurking and learning tonight 👋 #OTalk
Dr Jenny Preston MBE @preston_jenny
@OTalk_ @naomi_gallant @hooper_ek Hi everyone, really pleased to be joining in tonight #OTalk
#OTalk @OTalk_
Remember the rules of #OTalk ... don’t forget your professional code of conduct, have fun and don’t forget the # (note to self there!!)
#OTalk @OTalk_
Our host tonight is @naomi_gallant who is experiencedin conducting research with people who are living with dementia. Would you like to lead off with Q1 Naomi? #OTalk
Katja Michel @kamikatja
RT @OTalk_: #OTalk Research 3rd Dec 2019 – Inclusive research for people who lack capacity to consent https://t.co/lRKgLJtgkA
Dr Naomi Gallant @naomi_gallant
To warm us up and make sure we include everyone - Q1 which groups of people may be excluded from research due to lack of capacity to consent? #OTalk
#OTalk @OTalk_
Q1 from @naomi_gallant:
Susan Griffiths @SusanGriffiths5
@naomi_gallant Young children, PLMD #otalk
#OTalk @OTalk_
Q1 from @naomi_gallant #OTalk (I forgot to use the # already 🤭)
Dr Jenny Preston MBE @preston_jenny
@naomi_gallant People with cognitive impairments due to neurological conditions #OTalk
Dr Naomi Gallant @naomi_gallant
@SusanGriffiths5 Could you expand the acronym please? #OTalk - agreed, it’s easy in my mind to jump straight to #dementia but can be so much wider
Toukie Mortimer @ToukieM
@naomi_gallant Severe cognitive impairment #otalk
Margaret Spencer @margaretOT360
#otalk people with learning disabilities
Margaret Spencer @margaretOT360
RT @OTalk_: Good evening and welcome to this evening’s #OTalk Research chat. We are delighted to welcome @naomi_gallant who will be leading…
Susan Griffiths @SusanGriffiths5
@naomi_gallant Sorry forgot #OTalk
Sarah Fletcher-Shaw @sarahjoOT
@OTalk_ @naomi_gallant @hooper_ek Hello!! Just arrived a little late #OTalk
Caroline Powell @Carolin64109281
@OTalk_ @naomi_gallant @hooper_ek #OTalk I’m here!
Jennie Brentnall @OT_Jen
People with a lack of "capacity" to communicate in the form of ease to the researcher #OTalk
#OTalk @OTalk_
What does the acronym PLMD stand for @SusanGriffiths5 please? #OTalk
Sazzle Willow @LadySarahW1
Hi all sorry I'm late #OTalk
Dr Naomi Gallant @naomi_gallant
Really interesting! Communication it one aspect of assessing #capacity but are you suggesting from your “ “ that it is abused? #OTalk
Susan Griffiths @SusanGriffiths5
@OTalk_ profound and multiple learning difficulties #otalk
Shirley Pearce @shirleypearceot
@OTalk_ @naomi_gallant Presumably not only people with cognitive issues but those who care for them too if the person they are caring for can't consent to their information being shared etc #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant #OTalk patients with persistent Disorders of consciousness, dementia, cognitive impairments due to ABI or TBI.
Dr Naomi Gallant @naomi_gallant
Already such a variety - learning disabilities and difficulties, neurological conditions, young children, cognitive impairments including dementia #OTalk
Dr Naomi Gallant @naomi_gallant
RT @shirleypearceot: @OTalk_ @naomi_gallant Presumably not only people with cognitive issues but those who care for them too if the person…
#OTalk @OTalk_
That is an interesting point @shirleypearceot .... does anyone else have anything to add to that? #OTalk
Dr Naomi Gallant @naomi_gallant
@DukeLynsay Great examples! #OTalk
Jennie Brentnall @OT_Jen
@naomi_gallant Often for lack of resources, people who have capacity to communicate (receptive and expressive) but not in normative oral and written form will be skipped over in research not specifically directed at them but v important to them due to "capacity" #OTalk
Dr Naomi Gallant @naomi_gallant
Such great examples - Q2 what experiences do people have of including all these groups in research, and what have the barriers been? #OTalk
Shirley Pearce @shirleypearceot
@naomi_gallant And people with delirium, anyone who is unconscious, semi-conscious etc #OTalk
Susan Griffiths @SusanGriffiths5
@OT_Jen @naomi_gallant Yes I seen this with BSL users and with autistic population #OTalk
Laura Student OT @Laura_Does
@naomi_gallant #OTalk considering capacity - since it's time & decision specific - would people who have a 'fluctuating capacity' like those with some forms of dementia, be rejected from research because of the time needed to ensure their capacity?
#OTalk @OTalk_
Thank you for your broad examples so far. Here is Q2 from @naomi_gallant #OTalk
Caroline Powell @Carolin64109281
@naomi_gallant People with MND #OTalk
Dr Naomi Gallant @naomi_gallant
#Delerium is a really good example of how capacity can fluctuate - anyone have any examples of how they’ve dealt with this in research? #OTalk
Sue Mesa @sue_mesa
@shirleypearceot @OTalk_ @naomi_gallant I think carers of people who lack capacity to make specific decisions are underrepresented in research but I’m not sure how they would be excluded? #OTalk
Laura Student OT @Laura_Does
@naomi_gallant I'm hoping that makes sense 🙈 #OTalk
Jennie Brentnall @OT_Jen
People whose caregivers, or managers of the physical spaces they are in, act as gatekeepers and never allow them to be asked for consent #OTalk
Sue Mesa @sue_mesa
Very good point Laura #OTalk
Dr Naomi Gallant @naomi_gallant
Any thoughts or comments? #OTalk
#OTalk @OTalk_
This could be a potential barrier @Laura_Does ... could anyone give examples of ways they have addressed this? #OTalk
Dr Naomi Gallant @naomi_gallant
@Carolin64109281 Interesting - what have you found has caused the lack of capacity? Cognition? Communication? #OTalk
Sarah Fletcher-Shaw @sarahjoOT
@naomi_gallant Many people may be excluded which is explained by capacity to consent issues: most commonly people who have dementia, severe learning difficulties, neurological injuries and children. #Otalk
Jennie Brentnall @OT_Jen
@OTalk_ @shirleypearceot Has implications for research design. You can have research that requires active consent and participation by both, and research that allows one or other to contribute what is theirs independently #OTalk
Lynsay Duke @DukeLynsay
@OTalk_ @naomi_gallant @hooper_ek #OTalk I’m here !!
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: This could be a potential barrier @Laura_Does ... could anyone give examples of ways they have addressed this? #OTalk https://t…
Caroline Powell @Carolin64109281
@naomi_gallant #OTalk my “experience” was a project proposal for my dissertation. I focused on MND and the rapid disease progression was a barrier.
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
😱 I’m so late! I’m here 👋🏾 #OTalk
Jennie Brentnall @OT_Jen
RT @SusanGriffiths5: @OT_Jen @naomi_gallant Yes I seen this with BSL users and with autistic population #OTalk
#OTalk @OTalk_
In my experience (@hooper_ek) this can be a real problem .... people can act as gatekeepers and make assumptions without making the information accessible so that the person can make their own choice #OTalk
Sue Mesa @sue_mesa
I have conducted research with children with autism and adults with learning disability. I think the skill (and time) is the researchers are potentially the biggest barrier as it’s down to us to make the information about the research and the questions accessible #OTalk
Dr Naomi Gallant @naomi_gallant
@Carolin64109281 Did people lose capacity throughout the process of the research? #OTalk
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: In my experience (@hooper_ek) this can be a real problem .... people can act as gatekeepers and make assumptions without making…
Laura Student OT @Laura_Does
@naomi_gallant Not in research, but I've seen people considered to be lacking capacity simply because their preferred form of communication hasn't been made available to them in acute hospital setting. It's times like that, when we should step up & advocate for those people. #OTalk
Shirley Pearce @shirleypearceot
@naomi_gallant And of course capacity can fluctuate in dementia with or without delirium #OTalk
Dr Naomi Gallant @naomi_gallant
Perhaps more researchers need training from a clinical perspective - maybe an argument for more clinical researchers? #OTalk
Dr Jenny Preston MBE @preston_jenny
@Carolin64109281 @naomi_gallant There is also a perception of appropriateness, or otherwise, of including people with life limiting conditions although that perception does not necessarily come from people with MND #OTalk
#OTalk @OTalk_
Did you find a way to address this or was the project not able to progress beyond ethics? @Carolin64109281 #OTalk
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
@naomi_gallant #otalk people with dementia who may not have the ability to verbalise their opinion, some service users with Parkinson’s who again may not be able to understand. There are lots. I work with older people who I find some of them can not always engage with me.
Dr Naomi Gallant @naomi_gallant
RT @shirleypearceot: @naomi_gallant And of course capacity can fluctuate in dementia with or without delirium #OTalk
JasminOT @JasminLaffy
@Carolin64109281 @naomi_gallant And did you have to change anything to account for the loss of capacity if so? #OTalk
Dr Naomi Gallant @naomi_gallant
@Laura_Does The hospital system can be a huge barrier #OTalk
Jennie Brentnall @OT_Jen
@OTalk_ @naomi_gallant Recognising both consent and assent concepts helps. Barriers include some ethics committees, institutional gatekeepers, and time taken to flexibly schedule participation with fluctuating capacity and will #OTalk
Jennie Brentnall @OT_Jen
RT @naomi_gallant: @Laura_Does The hospital system can be a huge barrier #OTalk
Dr Naomi Gallant @naomi_gallant
Systems, gatekeepers, researcher skill set - great to hear people's experiences - before we get too bogged down in the barriers Q3 how can we overcome these and ensure people without capacity to consent to research are included? #OTalk
#OTalk @OTalk_
Have you found the requirements of the ethics committee to be a barrier or facilitator in this regard? @sue_mesa #OTalk @naomi_gallant
Caroline Powell @Carolin64109281
@preston_jenny @naomi_gallant #OTalk agreed. I proposed to sample from the MND Association Research participant register and I’m not aware of how many people sign up for research when they are living with this condition.
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
@naomi_gallant #otalk I’ve never completed any research. I’m thinking a barrier might be lack of advocacy, people being in advanced stages who may have passed away before research completed or gaining consent to research......??
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Have you found the requirements of the ethics committee to be a barrier or facilitator in this regard? @sue_mesa #OTalk @naomi_
Sue Mesa @sue_mesa
@naomi_gallant Yes possibly - although many researchers were once clinicians. I think what is different is that in clinical practice you have more time to get to know the person and this is more difficult as a researcher #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant My caring hands project involved those with and without capacity. The ethics process is robust to ensure that it is in the best interest of patients without capacity to be involved. CRN Learn has online access to training in how to involve patients without capacity. #OTalk
Laura Student OT @Laura_Does
@sue_mesa Is removing the researcher as a barrier included in requirements for ethical approval for research? #OTalk
#OTalk @OTalk_
Q3 from @naomi_gallant How can we overcome these barriers and ensure that people without capacity to consent to research are included? #OTalk
Dr Jenny Preston MBE @preston_jenny
@Carolin64109281 @naomi_gallant My experience is that people with MND are really keen to be involved in research. Some excellent opportunities coming up soon 🤔 #OTalk
Dr Naomi Gallant @naomi_gallant
@OTalk_ @sue_mesa For me it was a barrier - but selling the value of hearing the voice of the people who could verbally express it seemed to make sense to the committee #OTalk
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Q3 from @naomi_gallant How can we overcome these barriers and ensure that people without capacity to consent to research are in…
Jennie Brentnall @OT_Jen
@preston_jenny @Carolin64109281 @naomi_gallant Yes, this kind of "protection" happens from multiple sources. Also with people whose actions or opinions may be presented in ways that are imperfect or embarassing (sometimes to the one saying no, rather than the individual). #OTalk
Caroline Powell @Carolin64109281
@preston_jenny @naomi_gallant #OTalk thank you. That is very exciting.
Dr Naomi Gallant @naomi_gallant
RT @DukeLynsay: @naomi_gallant My caring hands project involved those with and without capacity. The ethics process is robust to ensure tha…
Sarah Fletcher-Shaw @sarahjoOT
@OT_Jen @OTalk_ @naomi_gallant Totally agree, systems and processes are often the main barriers #OTalk
Sue Mesa @sue_mesa
@OTalk_ @naomi_gallant Yes in terms of the number of contacts/amount of time that is seen as not too onerous on the person #OTalk
Georgia Vine @GeorgiaVineOT
@naomi_gallant By reviewing ethical guidelines? #OTalk
#OTalk @OTalk_
Thanks for the signpost @DukeLynsay .... accessing training in involving people who lack capacity is an important step, and marries nicely in with GCP training too @naomi_gallant #OTalk
Dr Naomi Gallant @naomi_gallant
This was very evident in my own #research - ethics committees over complicating consent processes when the research had no impact on the people I wanted to include except me sitting in the same ward as them #OTalk
Laura Student OT @Laura_Does
@naomi_gallant Education for researchers? Time to understand and account for the needs to the research participants? #OTalk
Catherine McNulty @cathymc9781
@OTalk_ @naomi_gallant @hooper_ek Hi #OTalk
Georgia Vine @GeorgiaVineOT
@naomi_gallant #OTalk
Dr Jenny Preston MBE @preston_jenny
@sherlynmelody @naomi_gallant This is a good point but for me capacity to consent and attrition are not one and the same. However methodology and research design are key to considering all of these factors #OTalk
Shirley Pearce @shirleypearceot
@OTalk_ @Laura_Does Could you have some kind of advance directive at the beginning or when they're having a better day, to cover the period of the research project? #OTalk
Dr Naomi Gallant @naomi_gallant
RT @Laura_Does: @sue_mesa Is removing the researcher as a barrier included in requirements for ethical approval for research? #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant #OTalk If the issue you want to research directly involves, influences the treatment or is in the best interest of those lacking capacity. If we don’t involve them then we are essentially silencing their voices and experiences. Robust research proposals can enable .
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
@naomi_gallant #otalk I was thinking in their best interest? Speak with family/advocate about advanced decisions?? Would they be interested in using research for e.g. to help others? Had they had any interest in ‘making things better for others’?
Dr Jenny Preston MBE @preston_jenny
@sue_mesa @naomi_gallant I’m not sure that I would agree, sorry! My qualitative research interviews allow me to get to know my participants just as well, if not even better than my clinical interviews #OTalk
Dr Naomi Gallant @naomi_gallant
RT @shirleypearceot: @OTalk_ @Laura_Does Could you have some kind of advance directive at the beginning or when they're having a better day…
#OTalk @OTalk_
There is provision under the mental capacity act to use a personal or nominated consultee in order to facilitate involvement of a person who lacks capacity @shirleypearceot @naomi_gallant #OTalk
Dr Naomi Gallant @naomi_gallant
@sherlynmelody The Mental Capacity Act stipulates using best interest decisions and people’s advances wishes - my concern is that we all too easily use the voice of the person speaking for them rather than the person themselves #OTalk
Emily Oliver, RMN, PhD @emilyoliverdem
#OTalk I think practical tips in terms of increasing possibility of capacity to consent - easy to read information guides, or video clips, communication aids, reduced environmental distraction, giving time to respond, working with families
Sue Mesa @sue_mesa
@preston_jenny @naomi_gallant That’s good to hear 🙌 #OTalk
Dr Naomi Gallant @naomi_gallant
RT @DukeLynsay: @naomi_gallant #OTalk If the issue you want to research directly involves, influences the treatment or is in the best inter…
Caroline Powell @Carolin64109281
@OTalk_ #OTalk I proposed including the carer perspectives of those recently bereaved as well.
#OTalk @OTalk_
Good point @DukeLynsay #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant #OTalk my research proposal had to have a statement about what would happen if the participants capacity changed during the time of the research.
Emily Oliver, RMN, PhD @emilyoliverdem
Having conducted a research study with pwd in acute care, I think the barriers start with ethics committee - we talk about the need to include these groups but the reality is ethics boards are still very against researching people who lack capacity #OTalk
Laura Student OT @Laura_Does
@preston_jenny @sue_mesa @naomi_gallant I wonder if there is a link between qual/quant research and how valuable the research is perceived in relation to the experiences of those who have limited/no capacity to consent? #OTalk
Dr Naomi Gallant @naomi_gallant
@preston_jenny @sue_mesa I agreed @preston_jenny , I would also add many researchers I’ve worked with have not been clinicians or were clinicians MANY years ago and haven’t used clinical skills for a long time #OTalk
Jennie Brentnall @OT_Jen
@naomi_gallant Do we need better education and guides for ethics committees (another place of limited clinician involvement)? I've encountered great advocates, ones that had a scary degree of trust in me, and ones that I never did see the ethical issue in their barrier #OTalk
Laura Student OT @Laura_Does
RT @DukeLynsay: @naomi_gallant #OTalk If the issue you want to research directly involves, influences the treatment or is in the best inter…
Jennie Brentnall @OT_Jen
RT @Laura_Does: @preston_jenny @sue_mesa @naomi_gallant I wonder if there is a link between qual/quant research and how valuable the resear…
#OTalk @OTalk_
A great practical suggestion @emilyoliverdem ... what are people’s experiences of using these methods ? #OTalk @naomi_gallant
Georgia Vine @GeorgiaVineOT
@naomi_gallant By promoting this more in the media? #OTalk
Jennie Brentnall @OT_Jen
RT @DukeLynsay: @naomi_gallant #OTalk If the issue you want to research directly involves, influences the treatment or is in the best inter…
Dr Naomi Gallant @naomi_gallant
I think the conversation is heading this way, so - Q4 what research methods or methodologies may be more inclusive for people who lack capacity to consent to participation? #OTalk
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: A great practical suggestion @emilyoliverdem ... what are people’s experiences of using these methods ? #OTalk @naomi_gallant h…
Jennie Brentnall @OT_Jen
RT @naomi_gallant: @sherlynmelody The Mental Capacity Act stipulates using best interest decisions and people’s advances wishes - my concer…
Lynsay Duke @DukeLynsay
#OTalk our Trust requires researchers to undertake good clinical practice (GCP) training prior to getting involved. That helps ethical writing of the proposal, consent/assent forms, and patient information.
Laura Student OT @Laura_Does
@emilyoliverdem And not assuming people lack capacity simply because they appear a certain way/have a condition which would suggest they might #OTalk
Dr Jenny Preston MBE @preston_jenny
@sherlynmelody @naomi_gallant This will definitely be challenged by the ethics committee specifically in relation to the potential benefits or otherwise of research participation. This could be quite hard to argue despite the fact that all research helps others in some way #OTalk
#OTalk @OTalk_
We’re flowing nicely into Q4 from @naomi_gallant now ... please share methods and methodologies to enable inclusive research #OTalk
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
@OTalk_ @emilyoliverdem @naomi_gallant #otalk I’ve used an iPad to help a lady understand what I was asking her. She was a bit deaf but could read my questions ‘typed in 72 point font’ this helped with communication and establishing capacity.
Dr Naomi Gallant @naomi_gallant
Great advice, links in with advice from our @NIHRresearch colleagues with this blog by @volkmer_anna https://t.co/I686ScqbqW
Jennie Brentnall @OT_Jen
RT @Laura_Does: @emilyoliverdem And not assuming people lack capacity simply because they appear a certain way/have a condition which would…
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: We’re flowing nicely into Q4 from @naomi_gallant now ... please share methods and methodologies to enable inclusive research #O
Georgia Vine @GeorgiaVineOT
@naomi_gallant Case studies? #OTalk
Laura Student OT @Laura_Does
@DukeLynsay @naomi_gallant That's good. I'd hope all research involving people included this #OTalk
Dr Jenny Preston MBE @preston_jenny
@DukeLynsay @naomi_gallant That’s quite common @DukeLynsay #OTalk
Dr Naomi Gallant @naomi_gallant
Forgot the #OTalk! https://t.co/I686ScqbqW
Dr Naomi Gallant @naomi_gallant
@DukeLynsay Important to include based on what we’ve discussed #OTalk
Dr Jenny Preston MBE @preston_jenny
@emilyoliverdem I think it depends on the committee and the proposal #OTalk
Jennie Brentnall @OT_Jen
@naomi_gallant Start with the simple... Make methods accessible with multi format communication #OTalk
Dr Jenny Preston MBE @preston_jenny
@Laura_Does @sue_mesa @naomi_gallant That’s it in a nutshell #OTalk
#OTalk @OTalk_
Hi @ToukieM don’t forget to add the # to your tweets so we can see them in the chat 👍 #OTalk https://t.co/UBwBe7AnnR
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Hi @ToukieM don’t forget to add the # to your tweets so we can see them in the chat 👍 #OTalk https://t.co/UBwBe7AnnR
Lynsay Duke @DukeLynsay
@sue_mesa @naomi_gallant #OTalk .... and many researchers are still clinicians. And as clinicians we should be assessing capacity across the full spectrum of activities our patients get involved in - not just research.
Dr Naomi Gallant @naomi_gallant
RT @OT_Jen: @naomi_gallant Start with the simple... Make methods accessible with multi format communication #OTalk
Dr Naomi Gallant @naomi_gallant
@OT_Jen Any specific examples? #OTalk
Sarah Fletcher-Shaw @sarahjoOT
@OTalk_ @naomi_gallant I would consider individual case studies, carefully worded and structured interviews adapted to the individuals needs, observations and ethnographic approaches would be a starting point for considerations #OTalk
Jennie Brentnall @OT_Jen
#OTalk Accessible methods for some may include more arts based (communication)
Sarah Fletcher-Shaw @sarahjoOT
@naomi_gallant @NIHRresearch @volkmer_anna This is very helpful Thankyou #OTalk
Dr Jenny Preston MBE @preston_jenny
@OT_Jen @naomi_gallant There are opportunities for us all to get involved with your local ethics committee. I thoroughly recommend it. Joining the ethics committee was one of the best things I did as a novice researcher #OTalk
Dr Naomi Gallant @naomi_gallant
Get creative! Something we still need to tackle ethics committees with but definitely a positive movement! #OTalk
Jennie Brentnall @OT_Jen
@sarahjoOT @OTalk_ @naomi_gallant Yes, observational (I have used quite a bit) and ethnographic #OTalk
#OTalk @OTalk_
How would a person go about doing this @preston_jenny ? #OTalk @naomi_gallant
Dr Naomi Gallant @naomi_gallant
A positive suggestion to overcoming some of the barriers we discussed! #OTalk
Toukie Mortimer @ToukieM
@OTalk_ @naomi_gallant Consider the environment and involve other specialists such as speech and language therapists to support the individual with decision making and capacity to consent #otalk
Jennie Brentnall @OT_Jen
#OTalk great chat thanks. Didn't think I'd get this much of a lay in (Aus morning) but the kids have awoken and are mobile so I must move on. I look forward to reading back.
Dr Jenny Preston MBE @preston_jenny
@naomi_gallant I think that depends on the research question. I worry about choosing methodologies ahead of the question. Whatever the methodology there needs to be a genuine need for the research and for evidence that all ethical principles are being adhered to #OTalk
Dr Naomi Gallant @naomi_gallant
I’m a great advocate for Dementia Care Mapping - non-intrusive and yer sensitive to non-verbal expressions of well-being and ill-being - and very OT friendly as it includes participation and engagement #OTalk #researchmethods
#OTalk @OTalk_
Have you found accessible ways to include people who lack capacity in quantitative studies such as RCTs? #OTalk @naomi_gallant @OT_Jen @sarahjoOT
Dr Naomi Gallant @naomi_gallant
@ToukieM @OTalk_ Absolutely - the Mental Capacity Act supports enabling a person to have every opportunity available to understand and communicate the decision #OTalk
Dr Jenny Preston MBE @preston_jenny
@DukeLynsay @sue_mesa @naomi_gallant Hear hear @DukeLynsay #OTalk
Dr Naomi Gallant @naomi_gallant
@OT_Jen Thanks for your valuable contribution @OT_Jen #OTalk
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Have you found accessible ways to include people who lack capacity in quantitative studies such as RCTs? #OTalk @naomi_gallant
#OTalk @OTalk_
@OT_Jen Thanks for joining us from Australia @OT_Jen #OTalk
Dr Jenny Preston MBE @preston_jenny
@OTalk_ @naomi_gallant Speak to your local R&D Lead or Manager, then apply for vacancies as they occur. You get access to all sorts of training into the bargain #OTalk
Dr Naomi Gallant @naomi_gallant
Fantastic conversation tonight! To wrap up let’s think about Q5 - what can we offer as occupational therapy researchers to include more people who lack capacity to consent to participate? #OTalk
#OTalk @OTalk_
Final 10 minutes of our chat now #OTalk ... time for one more question from @naomi_gallant?
Dr Naomi Gallant @naomi_gallant
How to get involved in local ethics committees and advocate for the inclusion of people who may be unnecessarily excluded from #research #OTalk
Laura Student OT @Laura_Does
@naomi_gallant @ToukieM @OTalk_ Assuming there's expectation to follow MCA rules to the T in research, I'd like to see that mirrored in practice. #OTalk
#OTalk @OTalk_
Q5 from @naomi_gallant #OTalk
Sue Mesa @sue_mesa
@preston_jenny @OTalk_ @naomi_gallant Great advice 👍#OTalk
#OTalk @OTalk_
Don’t forget to add the # @sarahjoOT so we can join in with your comments. Thank you 😊 #OTalk
Lynsay Duke @DukeLynsay
#OTalk https://t.co/vSEUjkIpAx.
Dr Jenny Preston MBE @preston_jenny
@naomi_gallant Is it about the research questions and how we make research accessible to wider groups. If someone genuinely doesn’t have capacity to consent then I’m not sure how we get round that #OTalk
RCOT Older People @RCOT_OP
RT @OTalk_: Q5 from @naomi_gallant #OTalk https://t.co/saeZWoJaUS
RCOT Older People @RCOT_OP
RT @naomi_gallant: How to get involved in local ethics committees and advocate for the inclusion of people who may be unnecessarily exclude…
Sarah Fletcher-Shaw @sarahjoOT
@naomi_gallant I think as OT’s we are in a very privileged position, we are able to combine our creative skills with our communication skills, taking a holistic approach to assess each persons involvement in research on an individual basis and work out how best to facilitate engagement #OTalk
Dr Naomi Gallant @naomi_gallant
RT @sarahjoOT: @naomi_gallant I think as OT’s we are in a very privileged position, we are able to combine our creative skills with our com…
Graham Walker @OT_Graham
@naomi_gallant If research is focussed on assessment or intervention which is likely in their best interest and we work with carers to gain their consent that could work to be more inclusive #OTalk
Shirley Pearce @shirleypearceot
@OTalk_ @naomi_gallant Education? Of the mindset-changing kind, to highlight the importance of this. Research that is too limited by issues such as this can effectively be skewed #OTalk
Dr Naomi Gallant @naomi_gallant
@preston_jenny Very true - but if we have a question where we want to view or understanding of a person who cannot consent to participate perhaps we need to have more access to methods which can be inclusive and still give a valid and reliable answer? #OTalk
Sarah Fletcher-Shaw @sarahjoOT
@OTalk_ Oops forgot on this one!! I was too in the moment #OTalk
Dr Naomi Gallant @naomi_gallant
@shirleypearceot @OTalk_ I agree - still a long way for #research to go! #OTalk
Sarah Fletcher-Shaw @sarahjoOT
@preston_jenny @naomi_gallant I totally agree... I think we are in a strong position as OT’s to make our research more accessible to wider groups #OTalk
#OTalk @OTalk_
As long as the research needs to involve people who lack capacity the mental capacity act can enable participation by using a nominated consultee .... but .... the researcher MUST attend to the responses of the participant i.e. ensure that assent is present #OTalk
Dr Jenny Preston MBE @preston_jenny
RT @OTalk_: As long as the research needs to involve people who lack capacity the mental capacity act can enable participation by using a n…
#OTalk @OTalk_
Any final thoughts on tonight’s #OTalk topic? #OTalk @naomi_gallant
Autie - Artificial Autism Intelligence @grhluna24
RT @sue_mesa: I have conducted research with children with autism and adults with learning disability. I think the skill (and time) is the…
Dr Naomi Gallant @naomi_gallant
@preston_jenny Does a person need to be able to communicate their consent to be able to participate? My participants mostly wouldn’t have known they were involved in research - we used the principles of assent for NOK, but it meant their experiences of care were captured #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant #OTalk I agree it’s about how we can be creative in our study designs and enabling all of our patients to be involved in research. Using our knowledge to support and facilitate, along with our SALT colleagues a way for them to understand and comment/question and be involved.
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: Any final thoughts on tonight’s #OTalk topic? #OTalk @naomi_gallant
💚🇯🇲 𝕊𝕙𝕖𝕣𝕝𝕪𝕟 🇬🇧💚 @sherlynmelody
@OTalk_ @naomi_gallant #otalk this has been very interesting. Thank you for this chat 👋🏾
Dr Naomi Gallant @naomi_gallant
RT @OTalk_: As long as the research needs to involve people who lack capacity the mental capacity act can enable participation by using a n…
Dr Jenny Preston MBE @preston_jenny
RT @naomi_gallant: @preston_jenny Does a person need to be able to communicate their consent to be able to participate? My participants mos…
#OTalk @OTalk_
Well, that’s all we’ve got time for tonight #OTalk. Thank you for all of your contributions and to @naomi_gallant for leading this lively chat. Look out for the transcript which will be posted in a few days.
Shirley Pearce @shirleypearceot
@OTalk_ @naomi_gallant Lots of food for thought - thank you #OTalk
Dr Naomi Gallant @naomi_gallant
Thanks for joining #OTalk tonight... an encouraging thought to end on by @sarahjoOT
Sarah Fletcher-Shaw @sarahjoOT
@OTalk_ @naomi_gallant Thankyou very much #OTalk
Dr Jenny Preston MBE @preston_jenny
@DukeLynsay @naomi_gallant Additionally our psychology colleagues can give very helpful guidance and support re capacity to consent both in clinical practice and research #OTalk
Lynsay Duke @DukeLynsay
@naomi_gallant #OTalk my research gained assent/ agreement of involvement from the NOK following them being involved in the information giving process.
Laura Student OT @Laura_Does
@OTalk_ @naomi_gallant Thank you #OTalk
Caroline Powell @Carolin64109281
RT @OTalk_: Well, that’s all we’ve got time for tonight #OTalk. Thank you for all of your contributions and to @naomi_gallant for leading t…
Lynsay Duke @DukeLynsay
@OTalk_ @naomi_gallant Thanks all! #OTalk
Dr Jenny Preston MBE @preston_jenny
@OTalk_ @naomi_gallant Thanks everyone, that was very stimulating and thought provoking tonight. I look forward to seeing lots of occupational therapists joining ethics committees 🤔 #OTalk. Thanks @hooper_ek and @naomi_gallant great job 👏👏
#OTalk @OTalk_
This was our final #OTalk Research of the year .... thank you to everyone who has contributed during the research chats over the past 12 months. The regular @OTalk team will be back next. Good night all @hooper_ek signing off 👋
Dr Naomi Gallant @naomi_gallant
What an enjoyable discussion! I too look forward to an influx of OTs on research ethics committees 😂. Thank you for all the really insightful and valuable contributions #OTalk
Nikki Daniels @NikkiDResearch
RT @OTalk_: This was our final #OTalk Research of the year .... thank you to everyone who has contributed during the research chats over th…
Toukie Mortimer @ToukieM
RT @naomi_gallant: @ToukieM @OTalk_ Absolutely - the Mental Capacity Act supports enabling a person to have every opportunity available to…
Dr Jenny Preston MBE @preston_jenny
RT @naomi_gallant: What an enjoyable discussion! I too look forward to an influx of OTs on research ethics committees 😂. Thank you for all…
Nikki Daniels @NikkiDanielsOT
RT @OTalk_: This was our final #OTalk Research of the year .... thank you to everyone who has contributed during the research chats over th…
sarahkbingler @sarahkbingler
RT @naomi_gallant: What an enjoyable discussion! I too look forward to an influx of OTs on research ethics committees 😂. Thank you for all…
Dr Mary Birken @MaryBirken
Sorry to have missed the last 2019 #OTalkresearch . Looking forward to 2020 #otalkresesearch tweetchats @MOT1ON_Research members are planning to book some more in!
RCOT Neuro Practice @RCOT_NP
RT @RCOT_NP: Have any of you seen the driving pathway developed by the Scottish AHP group? A really excellent piece of work that is equally…
UoS Occupational Therapy @TherapyUos
@TherapyUos are late to this party 🙄 but really look forward to the transcript as we prepare a mini research conference for our 1years - showcasing local OT research @sarah_lou2222 @LottyBrooks
Student Platform OT @SPOTeurope
RT @OTalk_: Have you found accessible ways to include people who lack capacity in quantitative studies such as RCTs? #OTalk @naomi_gallant
Student Platform OT @SPOTeurope
RT @OTalk_: Thanks for the signpost @DukeLynsay .... accessing training in involving people who lack capacity is an important step, and mar…
Student Platform OT @SPOTeurope
Thank you! We have enjoyed every single one! #otalk
#OTalk @OTalk_
#OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Temantfulini @LindelwaMamba
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Prof Diane Cox @dianecox61
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
JasminOT @JasminLaffy
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Catherine McNulty @cathymc9781
@OTalk_ @naomi_gallant Will try catch up online #OTalk
NSNF @ukstrokenursing
RT @RCOT_NP: Have any of you seen the driving pathway developed by the Scottish AHP group? A really excellent piece of work that is equally…
Dr Catriona Connell @DrCConnell
RT @naomi_gallant: Fantastic conversation tonight! To wrap up let’s think about Q5 - what can we offer as occupational therapy researchers…
Dr Catriona Connell @DrCConnell
@naomi_gallant Another great @OTalk_ #otalk that I need to get through the transcript of. Can you ping it to me???
Kevin Breitman @kbreitman27
RT @OTalk_: There is provision under the mental capacity act to use a personal or nominated consultee in order to facilitate involvement of…
Jacqui Bingham @JacquiBingham
RT @emilyoliverdem: Having conducted a research study with pwd in acute care, I think the barriers start with ethics committee - we talk ab…
Prof Diane Cox @dianecox61
RT @preston_jenny: @sherlynmelody @naomi_gallant This is a good point but for me capacity to consent and attrition are not one and the same…
Prof Diane Cox @dianecox61
RT @preston_jenny: @naomi_gallant I think that depends on the research question. I worry about choosing methodologies ahead of the questio…
Susan Griffiths @SusanGriffiths5
I am hosting next week #OTalk - very excited! I hope you can all join me in what will hopefully be an interesting discussion around the reality of using evidence based OT interventions in practice🤞🤞
Dr Naomi Gallant @naomi_gallant
@DrCConnell @OTalk_ @OTalk_ @hooper_ek will be giving us details of the transcript soon 😊#OTalk
Catherine Evans @catevans10
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
LUC - Cast Your Vote 12.12.19 @LUC_autism
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Rachel Booth 💚 @OT_rach
#OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by ⁦@SusanGriffiths5https://t.co/R3rliWHGNb
#OTalk @OTalk_
#OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA
Nat Jones @natlouj
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA
Stephen Ashford @StephenAshford3
RT @DukeLynsay: #OTalk our Trust requires researchers to undertake good clinical practice (GCP) training prior to getting involved. That he…
Jamie Cardell @OTJme
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA
Michael A @AdamsM_J
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
imee luga @ImeeLuga
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT | OTalk hosted by @SusanGriffiths5 https://t.co/QbRXTH27sA
Rachel Ravey McLoughlin @RachelRaveyMcL
RT @naomi_gallant: To warm us up and make sure we include everyone - Q1 which groups of people may be excluded from research due to lack of…
Nikki Daniels @NikkiDanielsOT
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Bethan Whittingham @WhittinghamBeth
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
SCFT Allied Health Professionals @sct_ahp
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Cathy Maguire @CathyMaguire17
RT @OTalk_: #OTalk 10th Dec 2019 The importance of evidence-based practice in OT https://t.co/QbRXTH27sA
Cathy Maguire @CathyMaguire17
RT @SusanGriffiths5: I am hosting next week #OTalk - very excited! I hope you can all join me in what will hopefully be an interesting disc…
Donna Cook @DonnaCo80206339
RT @naomi_gallant: To warm us up and make sure we include everyone - Q1 which groups of people may be excluded from research due to lack of…
Sarah Fletcher-Shaw @sarahjoOT
@Hudds_Uni_OT second years... this definitely one for you!!
#OTalk content from Twitter.