#PNDHour Transcript

Healthcare social media transcript of the #PNDHour hashtag.
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See #PNDHour Influencers/Analytics.

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IAPMD @IAPMDglobal
Hi! This is Amanda and I am the Co-Founder and Executive Director @IAPMDglobal IAPMD - International Association for Premenstrual Disorders and I am based just outside Boston #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
Hello #pndhour! I'm Tory Eisenlohr-Moul, PhD-- I'm the Chair of the @IAPMDglobal Clinical Advisory Board and Associate Director of the Women’s Mental Health Research Program at UI Chicago. I’m the lead scientist at @clearlabuic; we use hormone experiments to study #pmdd and #pme.
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A1. Premenstrual Dysphoric Disorder (#pmdd). Premenstrual = the two weeks before menses. Dysphoria = a state of unease, dissatisfaction with life, feeling upset, and general agitation. Disorder = symptoms causing interference with life activities or extreme distress. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
A1 - #PMDD stands for Premenstrual Dysphoric Disorder. It is an often debilitating condition that affects about 2-10% of women/AFAB individuals of reproductive age. #PNDHour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A1. Premenstrual Dysphoric Disorder (#pmdd). Premenstrual = the two weeks before menses. Dysphoria = a state of unease, dissatisfaction with life, feeling upset, and general agitation. Disorder = symptoms causing interference with life activities or extreme distress. #pndhour
Victoria @user4721
RT @viciouscyclepmd:
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A1 - #PMDD stands for Premenstrual Dysphoric Disorder. It is an often debilitating condition that affects about 2-10% of women/AFAB individuals of reproductive age. #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A2. #PMDD is a hormone-sensitive emotional disorder characterized by severe distress ONLY in the two weeks before menstrual bleeding. About 5.5% of cycling individuals meet strict criteria for the disorder, which was just added to the diagnostic manual (DSM-5) in 2013. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
A1 - An estimated 5-10% of women/AFAB of reproductive age have #PMDD. This number does not account for missed or misdiagnosis nor women whose ovulatory cycle is suppressed by hormonal, chemical, or surgical means. #pndhour https://t.co/GwUjPvIxXo
Rhian Tracey @RhianTracey
RT @eisenlohr_moul: A1. Premenstrual Dysphoric Disorder (#pmdd). Premenstrual = the two weeks before menses. Dysphoria = a state of unease, dissatisfaction with life, feeling upset, and general agitation. Disorder = symptoms causing interference with life activities or extreme distress. #pndhour
IAPMD @IAPMDglobal
RT @eisenlohr_moul: A2. #PMDD is a hormone-sensitive emotional disorder characterized by severe distress ONLY in the two weeks before menstrual bleeding. About 5.5% of cycling individuals meet strict criteria for the disorder, which was just added to the diagnostic manual (DSM-5) in 2013. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A2. Because #pmdd is a relatively new diagnosis (only starting in 2013), most health care providers have never heard of it. That makes diagnosis and treatment difficult to find! #pmddpeeps #pndhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A2. #PMDD is a hormone-sensitive emotional disorder characterized by severe distress ONLY in the two weeks before menstrual bleeding. About 5.5% of cycling individuals meet strict criteria for the disorder, which was just added to the diagnostic manual (DSM-5) in 2013. #pndhour
Victoria @user4721
RT @eisenlohr_moul: A2. #PMDD is a hormone-sensitive emotional disorder characterized by severe distress ONLY in the two weeks before menstrual bleeding. About 5.5% of cycling individuals meet strict criteria for the disorder, which was just added to the diagnostic manual (DSM-5) in 2013. #pndhour
Victoria @user4721
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
A2 - 2/2 As there are about 62,549,428 in the US, an estimated 5,000,000 women/AFAB are living with #PMDD in the Unites States alone! https://t.co/GwUjPvIxXo #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A3. #PMDD by definition has to include dysphoria-- severe emotional symptoms-- as a central element, whereas #PMS does not. #PMDD emotional symptoms are severe enough to be upsetting or impairing, whereas #PMS symptoms don’t have to be. #pndhour
🖤 Just Heather 🖤 @weedswildflowrs
RT @viciouscyclepmd:
Valerie Minnich @peridotmage
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @PNDandMe:
IAPMD @IAPMDglobal
A3. Severity of symptoms is a big one. Here is a great description of the difference as described by @iapmdglobal “PMS does not require treatment or medication and does not disrupt work, home, study in the way that PMDD does” #PNDHour https://t.co/YaebfBKWTw
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A3. #PMDD by definition has to include dysphoria-- severe emotional symptoms-- as a central element, whereas #PMS does not. #PMDD emotional symptoms are severe enough to be upsetting or impairing, whereas #PMS symptoms don’t have to be. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A4. There are 11 symptoms listed in the DSM-5 definition of PMDD. In order to meet criteria, one must show cyclical changes of at least five of these symptoms, with at least one emotional symptom. #pndhour
IAPMD @IAPMDglobal
A4 - Symptoms of #PMDD occur during a week or two before menstruation and go away within a few days after bleeding begins. #PNDHour https://t.co/fy5KLkF6Sr https://t.co/aj8tvPBS4Z
IAPMD @IAPMDglobal
RT @viciouscyclepmd:
Amanda Hyde @amandaaahyde
RT @eisenlohr_moul: A2. #PMDD is a hormone-sensitive emotional disorder characterized by severe distress ONLY in the two weeks before menstrual bleeding. About 5.5% of cycling individuals meet strict criteria for the disorder, which was just added to the diagnostic manual (DSM-5) in 2013. #pndhour
Amanda Hyde @amandaaahyde
RT @IAPMDglobal: A1 - #PMDD stands for Premenstrual Dysphoric Disorder. It is an often debilitating condition that affects about 2-10% of women/AFAB individuals of reproductive age. #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A4. Core #PMDD emotional symptoms in the DSM-5: (1) mood swings, sudden sadness or tearfulness, rejection sensitivity, (2) irritability, anger, conflicts, (3) depression, hopelessness, self-deprecating thoughts, (4) anxiety, tension, on edge. One of these is required. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A4. Other symptoms:(5) decreased interest, (6) difficulty concentrating, (7) lethargy, fatigue, (8) change in appetite, (9) change in sleep, (10) feeling overwhelmed or out of control, and (11) physical symptoms of PMS. You must also have 5 total for diagnosis. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A4. The most common symptoms of #pmdd are mood swings, irritability, and feeling overwhelmed or out of control #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
I'm so glad you got the help you needed for #pmdd-- up to 75% of women feel much better on SSRIs. #pndhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A4. Core #PMDD emotional symptoms in the DSM-5: A4. Core #PMDD emotional symptoms in the DSM-5: (1) mood swings, sudden sadness or tearfulness, rejection sensitivity, (2) irritability, anger, conflicts, (3) depression, hopelessness, self-deprecating thoughts, (4) anxiety, tension, on edge. One of these is required. #pndhour
Victoria @Rayvon_V
@viciouscyclepmd @eisenlohr_moul Hey! I’ve had a sort of diagnosis of #PMDD GP said my symptoms fit, but is there a way to formally diagnose? Only treatment option suggested was low dose anti-depressants. Trying to understand if this is the long term source of anxiety, low mood or a new thing! #PNDHOUR
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
What a great question! I know that many people with #pmdd have migraines, and many do not. I believe they are separate but overlapping conditions. Menstrual migraine is typically found during estrogen withdrawal, a few days after #pmdd symptoms peak. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
This is a great question as well. There have been no studies evaluating how often #pmdd and #endo co-occur! We need to change that. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
@Cheesesplease @viciouscyclepmd We're going to get to diagnosis soon, don't worry! #pndhour
rachel is @rachellessing
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
@cooksferryqueen @viciouscyclepmd A history of depression does not predict #pmdd, although females with depression do often report premenstrual exacerbation (#pme) of their symptoms, which is a different thing. #pndhour
Luigilackey @Luigilackey
RT @eisenlohr_moul: A4. Core #PMDD emotional symptoms in the DSM-5: A4. Core #PMDD emotional symptoms in the DSM-5: (1) mood swings, sudden sadness or tearfulness, rejection sensitivity, (2) irritability, anger, conflicts, (3) depression, hopelessness, self-deprecating thoughts, (4) anxiety, tension, on edge. One of these is required. #pndhour
Luigilackey @Luigilackey
RT @eisenlohr_moul: A2. Because #pmdd is a relatively new diagnosis (only starting in 2013), most health care providers have never heard of it. That makes diagnosis and treatment difficult to find! #pmddpeeps #pndhour
IAPMD @IAPMDglobal
RT @eisenlohr_moul: @cooksferryqueen @viciouscyclepmd A history of depression does not predict #pmdd, although females with depression do often report premenstrual exacerbation (#pme) of their symptoms, which is a different thing. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A5. Before I answer that, it’s important for me to say what I mean by “mental health disorder”. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A5. As a scientist studying the impact of hormones on the brain and behavior, I define “mental health disorder” as a disorder that is characterized by altered brain function and behavior and therefore requires research by brain experts. #pmdd fits that criteria. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A5. So yes, #pmdd is a mental health disorder, since the problem is in the brain's response to hormones-- but it is just as biological as any other medical disorder. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A5. #pmdd is characterized by ABNORMAL brain activity during NORMAL hormone changes, I’d say we need brain experts working to cure #pmdd and I’d call it a mental health disorder #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A5. Since #pmdd symptoms are ONLY present during hormone flux, gynecologists are helpful in later stages of treatment for #pmdd (medical or surgical menopause). But technically hormone function is normal in #pmdd, so we don’t call it a gynecologic/endocrine disorder. #pndhour
IAPMD @IAPMDglobal
A5 - 2/2 IAPMD is working to bridge the gap between mental health and premenstrual health. #PMDD is unique in that removing the ovaries and/or ceasing the cycling of estrogen and progesterone causes symptoms to stop. #PNDHour
IAPMD @IAPMDglobal
A6 - 1/3 While much more research is needed, #PMDD appears to be a severe negative response to the natural rise and fall of the reproductive hormones estrogen and progesterone. It is not a hormone imbalance but rather a severe #hormonesensitivity. #PNDHour
Valerie Minnich @peridotmage
RT @eisenlohr_moul: A5. #pmdd is characterized by ABNORMAL brain activity during NORMAL hormone changes, I’d say we need brain experts working to cure #pmdd and I’d call it a mental health disorder #pndhour
Valerie Minnich @peridotmage
RT @eisenlohr_moul: A5. Since #pmdd symptoms are ONLY present during hormone flux, gynecologists are helpful in later stages of treatment for #pmdd (medical or surgical menopause). But technically hormone function is normal in #pmdd, so we don’t call it a gynecologic/endocrine disorder. #pndhour
Valerie Minnich @peridotmage
RT @eisenlohr_moul: A5. So yes, #pmdd is a mental health disorder, since the problem is in the brain's response to hormones-- but it is just as biological as any other medical disorder. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @IAPMDglobal: A6 - 1/3 While much more research is needed, #PMDD appears to be a severe negative response to the natural rise and fall of the reproductive hormones estrogen and progesterone. It is not a hormone imbalance but rather a severe #hormonesensitivity. #PNDHour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A5 - 2/2 IAPMD is working to bridge the gap between mental health and premenstrual health. #PMDD is unique in that removing the ovaries and/or ceasing the cycling of estrogen and progesterone causes symptoms to stop. #PNDHour
☕️Kara Cargill ☕️🐺 @Coffee_Is_love
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
A6 - 2/3 Recent studies tell us that neurons respond differently to estrogen and progesterone in those with PMDD as opposed to those without. Possibly a combination of genetic and environmental factors and a variety of #PMDD subtypes at play. #pndhour https://t.co/bFBAbdWilk
Moment Health @momenthealthapp
How do I know I have #PND ? #pndhour #mentalhealth @MentalHealth_Hr https://t.co/HPP5CeaSkC
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A6. When we use experimental methods to manipulate hormones in women with and without #PMDD, we see only women with prospectively-confirmed premenstrual symptoms (#pmdd) show a negative emotional reaction to hormone changes. Women without #pmdd don’t. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A6. Contrary to the popular culture myth of "hormone imbalance", levels of hormones are normal in people with #PMDD, but they have an abnormal mood reaction to normal hormone changes that occur across the menstrual cycle. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A6. Therefore, we say that #pmdd is an abnormal brain response to normal hormone changes, or #hormonesensitivity. #pndhour
Valerie Minnich @peridotmage
RT @IAPMDglobal: A6 - 2/3 Recent studies tell us that neurons respond differently to estrogen and progesterone in those with PMDD as opposed to those without. Possibly a combination of genetic and environmental factors and a variety of #PMDD subtypes at play. #pndhour https://t.co/bFBAbdWilk
Valerie Minnich @peridotmage
RT @IAPMDglobal: A6 - 1/3 While much more research is needed, #PMDD appears to be a severe negative response to the natural rise and fall of the reproductive hormones estrogen and progesterone. It is not a hormone imbalance but rather a severe #hormonesensitivity. #PNDHour
IAPMD @IAPMDglobal
Q6 - 3/3 Until more research is funded, we may never know. And not knowing means an epidemic without a cure. #PMDD #pndhour #WomensHealth
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
Also, please forgive my gendered language-- sometimes I still slip up and say "women" but I mean to include all individuals assigned female at birth. #pndhour
☕️Kara Cargill ☕️🐺 @Coffee_Is_love
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
RT @PNDandMe:
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A6 - 1/3 While much more research is needed, #PMDD appears to be a severe negative response to the natural rise and fall of the reproductive hormones estrogen and progesterone. It is not a hormone imbalance but rather a severe #hormonesensitivity. #PNDHour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A6 - 2/3 Recent studies tell us that neurons respond differently to estrogen and progesterone in those with PMDD as opposed to those without. Possibly a combination of genetic and environmental factors and a variety of #PMDD subtypes at play. #pndhour https://t.co/bFBAbdWilk
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: Q6 - 3/3 Until more research is funded, we may never know. And not knowing means an epidemic without a cure. #PMDD #pndhour #WomensHealth
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A6. Contrary to the popular culture myth of "hormone imbalance", levels of hormones are normal in people with #PMDD, but they have an abnormal mood reaction to normal hormone changes that occur across the menstrual cycle. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A7. No, heavy bleeding and pain that interferes with life would be better diagnosed as #dysmenorrhea. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A7. You can have dysmenorrhea and #pmdd, but the symptoms can't overlap. the #PMDD symptoms have to be separate from the menstrual bleeding-related symptoms. #pndhour
IAPMD @IAPMDglobal
A7 - While some with #PMDD may have heavy menstrual bleeding, heavy bleeding (aka Menorrhagia) is not a symptom of PMDD #PNDhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
Absolutely. At the end of the day, mental and physical health are both affected by context and biology-- there is no distinction between "mental health" and "physical health". It's all genes, environments, and their interactions. https://t.co/h0kjCq6Vmp #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A8. Track your symptoms using an app or a tracking sheet. Then take your tracking to a doctor who knows about #PMDD. We recommend that you call ahead to your doctor to ask if they have experience treating #PMDD. #pndhour
Ruth @RuthNPike
Thanks #pndhour @PNDandMe @eisenlohr_moul. That was very informative. Interesting to learn more about #pmdd.
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A8. One thing I want to make clear about the daily ratings/symptom tracking: doctors do NOT do it because they don't believe you-- they do it because we need them to determine if it's #PMDD, #PME, or another disorder. We want to get you the right diagnosis and treatment! #pndhour
IAPMD @IAPMDglobal
A8 - If you think you may have #PMDD (1) check out https://t.co/m6rAGou3hf for free information, resources, and support. (2) Start tracking your cycle and symptoms using the free symptom trackers at https://t.co/tT3xystLdU #PNDhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @IAPMDglobal: A8 - If you think you may have #PMDD (1) check out https://t.co/m6rAGou3hf for free information, resources, and support. (2) Start tracking your cycle and symptoms using the free symptom trackers at https://t.co/tT3xystLdU #PNDhour
IAPMD @IAPMDglobal
A8. Once you have completed your tracking for a few months, you can find Drs recommended by others here: here: https://t.co/zhYLxbDkeZ There is also some handy print outs here: https://t.co/njgx77x2VJ #PMDD #PNDhour
IAPMD @IAPMDglobal
RT @eisenlohr_moul: A8. One thing I want to make clear about the daily ratings/symptom tracking: A8. One thing I want to make clear about the daily ratings/symptom tracking: doctors do NOT do it because they don't believe you-- they do it because we need them to determine if it's #PMDD, #PME, or another disorder. We want to get you the right diagnosis and treatment! #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A9. The first-line conservative treatment for PMDD are SSRIs (selective serotonin reuptake inhibitors, for example: sertraline)— about 60-75% of women with PMDD benefit from SSRIs. SSRIs seem to work faster in PMDD (working better than a sugar pill after about a day!). #pndhour
Luigilackey @Luigilackey
RT @PNDandMe:
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A7 - While some with #PMDD may have heavy menstrual bleeding, heavy bleeding (aka Menorrhagia) is not a symptom of PMDD #PNDhour
IAPMD @IAPMDglobal
A9 - For about 60% of those with #PMDD firstline treatment options work to manage symptoms incl SSRIs, hormones, and lifestyle changes. For 40% shutting down the ovaries through chemical or surgical means is an effective lastline treatment option. https://t.co/jjdmKk1aZs #PNDhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A9. The second-line treatment is drospirenone-containing oral contraceptive pills that contain estrogen (.02 mg of ethinyl estradiol) plus a new progestin (3mg drospirenone), taken on a 24-4 schedule (24 active pills, 4 inactive pills). These pills prevent ovulation #pndhour.
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A9. If neither SSRIs nor OCs have been effective for PMDD after a few cycles, and the cyclical symptoms are severe, a doctor can prescribe other, more intensive cycle suppression treatments to suppress the cyclical hormone changes that are known to trigger PMDD. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A9. The best-studied cycle suppression method is a monthly injection of GnRH agonist (the most-used example is called Lupron), which shut down hormone production by the ovaries, causing a reversible menopause in which your hormone levels stay very low and flat. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A9. If the GnRH agonist plus hormone addback (“menopause trial”) goes well, many people will choose to have a THBSO (removal of the uterus and both ovaries) to once-and-for-all remove the hormonal flux that causes #pmdd. #pndhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A8 - If you think you may have #PMDD (1) check out https://t.co/m6rAGou3hf for free information, resources, and support. (2) Start tracking your cycle and symptoms using the free symptom trackers at https://t.co/tT3xystLdU #PNDhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A8. Once you have completed your tracking for a few months, you can find Drs recommended by others here: here: A8. Once you have completed your tracking for a few months, you can find Drs recommended by others here: here: https://t.co/zhYLxbDkeZ There is also some handy print outs here: https://t.co/njgx77x2VJ #PMDD #PNDhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A8. One thing I want to make clear about the daily ratings/symptom tracking: A8. One thing I want to make clear about the daily ratings/symptom tracking: doctors do NOT do it because they don't believe you-- they do it because we need them to determine if it's #PMDD, #PME, or another disorder. We want to get you the right diagnosis and treatment! #pndhour
IAPMD @IAPMDglobal
A9 - While our clinical advisory board is in the process of updating https://t.co/jjdmKk1aZs is a good starting point to treatment options for #PMDD #pndhour @eisenlohr_moul
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A9 - For about 60% of those with #PMDD firstline treatment options work to manage symptoms incl SSRIs, hormones, and lifestyle changes. For 40% shutting down the ovaries through chemical or surgical means is an effective lastline treatment option. https://t.co/jjdmKk1aZs #PNDhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A10. Definitely check out the peer support at @iapmdglobal, and find a provider who is familiar with #PMDD through the iapmd provider directory. https://t.co/cdHOglKoxQ #pndhour
IAPMD @IAPMDglobal
If you are considering hysterectomy with removal of ovaries for #PMDD there is a great @facebook support group at https://t.co/MDhBLq7qdK. We'll be launching a non-facebook support group on https://t.co/f2MUqvzvOa with @teaminspire in 2019! #PNDhour #peersupport
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A10. Definitely check out the peer support at @iapmdglobal, and find a provider who is familiar with #PMDD through the iapmd provider directory. https://t.co/cdHOglKoxQ #pndhour
IAPMD @IAPMDglobal
A10. Get free group and one-on-one support at https://t.co/d94AFISs7k! Our trained peer support providers are here to help navigate #PMDD diagnosis and treatment while offering compassionate and informed support 💚 #PNDHour #PeerSupport
Adrienne Pastula @ThePmddBlog
Do you have any recommended changes to the current diagnostic criteria for #pmdd or for diagnosing #pme based on emerging research? @eisenlohr_moul @viciouscyclepmd @IAPMDglobal #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
Given the strong emerging evidence that #pme has a different course and treatment response to #pmdd, I think that #pme should be made into a specifier for other disorders-- e.g., "major depression with premenstrual exacerbation" #pndhour
IAPMD @IAPMDglobal
A11 - https://t.co/m6rAGou3hf provides evidence-based information and resources for anyone wanting to know more about #PMDD and #PME :-) #PNDHour
IAPMD @IAPMDglobal
A12. Find free group and individual support at https://t.co/d94AFISs7k! We are also launching a community on https://t.co/jbTmFGab89 with @teaminspire in 2019 💚 Subscribe at https://t.co/IplbMnxNVf to stay connected. #PMDD #PNDHour
Victoria @Rayvon_V
RT @eisenlohr_moul: A4. Core #PMDD emotional symptoms in the DSM-5: A4. Core #PMDD emotional symptoms in the DSM-5: (1) mood swings, sudden sadness or tearfulness, rejection sensitivity, (2) irritability, anger, conflicts, (3) depression, hopelessness, self-deprecating thoughts, (4) anxiety, tension, on edge. One of these is required. #pndhour
PMDDOZ @pmddoz
RT @viciouscyclepmd:
IAPMD @IAPMDglobal
A13 - 1/3 Whether you start with your Primary Care Physician or Mental Health Provider, your medical team should be working together to get you the correct diagnosis and treatment for your disorder. #PMDD #pndhour
PMDDOZ @pmddoz
RT @eisenlohr_moul: A2. Because #pmdd is a relatively new diagnosis (only starting in 2013), most health care providers have never heard of it. That makes diagnosis and treatment difficult to find! #pmddpeeps #pndhour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A10. Get free group and one-on-one support at https://t.co/d94AFISs7k! Our trained peer support providers are here to help navigate #PMDD diagnosis and treatment while offering compassionate and informed support 💚 #PNDHour #PeerSupport
PMDDOZ @pmddoz
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A13. #PME is a more common but still disabling disorder. PME happens when someone with a chronic psych disorder has symptoms all the time that are troubling, but develops much more distressing/disabling symptoms in the premenstrual or menstrual weeks. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A13. To meet DSM-5 diagnostic criteria (est 2013) for #PMDD, you must have daily ratings to show that you have at least 1 emotional symptoms (and at least 5 symptoms total) that follow a cyclical pattern becoming severe premenstrually, then "shutting off" during menses. #pndhour
PMDDOZ @pmddoz
RT @IAPMDglobal: A1 - #PMDD stands for Premenstrual Dysphoric Disorder. It is an often debilitating condition that affects about 2-10% of women/AFAB individuals of reproductive age. #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A13. I study #PME and the role of hormones in that premenstrual disorder. Let me know if you have questions about #pme-- it seems that the hormonal causes and treatments for #PME are different to #pmdd. #pndhour
IAPMD @IAPMDglobal
A13 - 2/2 There are no blood tests that can diagnose #PMDD. To get an accurate assessment, you will need to provide a detailed history of your symptoms including frequency and severity #pndhour https://t.co/GX4O45lP92
Victoria @Rayvon_V
RT @IAPMDglobal: A8 - If you think you may have #PMDD (1) check out https://t.co/m6rAGou3hf for free information, resources, and support. (2) Start tracking your cycle and symptoms using the free symptom trackers at https://t.co/tT3xystLdU #PNDhour
PMDDOZ @pmddoz
RT @IAPMDglobal: A10. Get free group and one-on-one support at https://t.co/d94AFISs7k! Our trained peer support providers are here to help navigate #PMDD diagnosis and treatment while offering compassionate and informed support 💚 #PNDHour #PeerSupport
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A11 - https://t.co/m6rAGou3hf provides evidence-based information and resources for anyone wanting to know more about #PMDD and #PME :-) #PNDHour
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @IAPMDglobal: A12. Find free group and individual support at https://t.co/d94AFISs7k! We are also launching a community on https://t.co/jbTmFGab89 with @teaminspire in 2019 💚 Subscribe at https://t.co/IplbMnxNVf to stay connected. #PMDD #PNDHour
IAPMD @IAPMDglobal
A13 - 3/3 PMDD can not be diagnosed via blood, hormone, or saliva test. These tests can, however, rule out any underlying disorders including hormone imbalance or thyroid issues. The only way to test for #PMDD is by tracking symptoms for a minimum of two cycles or more #PNDHour
PMDDOZ @pmddoz
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A14. In the only study to use daily ratings to diagnose #PMDD, they found that that was NOT an elevated risk of #PND among those with #PMDD.. This is probably because PMDD and PND are driven by different mechanisms. See this paper: https://t.co/vTE4q2VK0h #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
A14. However, since both #pmdd and #pnd have subtypes that are not well understood yet, it is very possible that there are subtypes of pmdd and pnd that overlap-- we just don’t know yet. #pndhour
PMDDOZ @pmddoz
RT @eisenlohr_moul: A6. Therefore, we say that #pmdd is an abnormal brain response to normal hormone changes, or #hormonesensitivity. #pndhour
IAPMD @IAPMDglobal
Unsure if you have #PMDD or #PME? Take the PMDD Self-Screen at https://t.co/UXXLPV5GQk #PNDHour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
RT @IAPMDglobal: Unsure if you have #PMDD or #PME? Take the PMDD Self-Screen at https://t.co/UXXLPV5GQk #PNDHour
PMDDOZ @pmddoz
RT @IAPMDglobal: A1 - An estimated 5-10% of women/AFAB of reproductive age have #PMDD. This number does not account for missed or misdiagnosis nor women whose ovulatory cycle is suppressed by hormonal, chemical, or surgical means. #pndhour https://t.co/GwUjPvIxXo
PMDDOZ @pmddoz
RT @IAPMDglobal: A8 - If you think you may have #PMDD (1) check out https://t.co/m6rAGou3hf for free information, resources, and support. (2) Start tracking your cycle and symptoms using the free symptom trackers at https://t.co/tT3xystLdU #PNDhour
IAPMD @IAPMDglobal
Is there a link between #PND/#PPD and #PMDD? See @eisenlohr_moul answer below! #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
There is definitely evidence that #pmdd worsens with age, and it's possible that this is due to pregnancies somehow increasing #hormonesensitivity. #pndhour
Valerie Minnich @peridotmage
RT @viciouscyclepmd:
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
It's also possible that the treatment-resistant subtypes of #pmdd and #pnd overlap. More work needed! #pndhour @IAPMDglobal
Gabrielle Rocha Rios, MA (She/Her) @IntPsyGabrielle
RT @eisenlohr_moul: A13. To meet DSM-5 diagnostic criteria (est 2013) for #PMDD, you must have daily ratings to show that you have at least 1 emotional symptoms (and at least 5 symptoms total) that follow a cyclical pattern becoming severe premenstrually, then "shutting off" during menses. #pndhour
IAPMD @IAPMDglobal
A14 - While research does not show a link between #PND/#PPD and #PMDD doctors should provide a similar standard screening for women/AFAB of reproductive age. #PMDD is often misdiagnosed as other mental health conditions. Screening would expidite diagnosis and treatment. #pndhour
Tory Eisenlohr-Moul, PhD (CLEAR Lab) @eisenlohr_moul
@IAPMDglobal And subtypes of each disorder should be further studied to see if treatment-resistant women with #hormonesensitivity disorders of #pnd #pmdd might overlap to a greater degree than those who respond well to SSRIs, which are first-line treatments for both disorders. #pndhour
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