#ResNetSLT Transcript

Healthcare social media transcript of the #ResNetSLT hashtag.
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See #ResNetSLT Influencers/Analytics.

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Chiara Vivaldi @VivaldiC
@ReSNetSLT Hello #ResNetSLT I'm joining from London (whilst eating dinner).
Ginni ✝️ @ginni_bb
@ReSNetSLT 10 years SLT, about 4 specifically working in acute stroke inpatients, another 4 in stroke rehab (inpatients) with a mixed caseload of aphasia, dysarthria and dysphagia. #ResNetSLT
Chiara Vivaldi @VivaldiC
@ReSNetSLT ooh so many. Social support, level of other impairments (cognitive, physical etc.), previous life experience, mental outlook to name a few. #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT Wellbeing, fatigue, inner and outside support network, positive experiences, cognition #ResNetSLT
Chiara Vivaldi @VivaldiC
@SChalmersSLT @ReSNetSLT This has really been brought home to me recently, having been able to run some joint sessions with our psychology colleagues to allow patients to explore their values and emotional journeys post-stroke #ReSNetSLT #ICAP
Ginni ✝️ @ginni_bb
@VivaldiC @SChalmersSLT @ReSNetSLT #resnetslt
Ginni ✝️ @ginni_bb
@ReSNetSLT Sorry #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT As a ward we’ve looked into GAS but it’s part of an ongoing goal setting project to find the best fit, and it has to fit with Systm1 #ResNetSLT
Chiara Vivaldi @VivaldiC
@ginni_bb @ReSNetSLT Have been trying something similar for community therapy including some carer reported outcomes too e.g. caregiver burden scale #ReSNetSLT
Ginni ✝️ @ginni_bb
@heelan_phd @SusieWSLT @ReSNetSLT We use Aphasia impact questionnaire and Stroke and aphasia quality of life scale (was available on @_CityAccess - may still be?) #ResNetSLT
Ginni ✝️ @ginni_bb
@VivaldiC @ReSNetSLT Good call. We also use the COAST and Carer COAST #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT @VivaldiC We used the SAQOL-39 when we did our inpatient ICAP and it’s the outcome that showed the most improvement @e_poyner1 #ResNetSLT
Chiara Vivaldi @VivaldiC
@ReSNetSLT @ginni_bb Still early days as we've just been trying it with our telehealth #ICAPs, which are very small #ResNetSLT
Ginni ✝️ @ginni_bb
@SChalmersSLT @ReSNetSLT Our goal setting project is for the whole MDT too (also inpatient stroke rehab) #ResNetSLT
Alison bain @AlisonbainSLT
@ReSNetSLT AIQ mainly ( out with ICAP) . #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT I read up quite a bit on ICAPs before @e_poyner1 and I trialled an inpatient version. Of course VERSE doesn’t suggest early intensity is necessary, but our participant was 3 months post, so just outside the VERSE timeframe. #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT @e_poyner1 The ICAP model is nothing like our normal service delivery or the RCP target of 45 minutes a day. It’s tough to do in inpatients but tech and groups are useful tools. #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT @e_poyner1 We did 1 hour 1-1 impairment and functional goal based, 1 hour self directed using apps and the other hour was conversation training or practice (2 sessions using @BCAphasia model and practice with his wife) for 3 weeks. It was tiring for him and us! #ResNetSLT
Ginni ✝️ @ginni_bb
@SChalmersSLT @ReSNetSLT And @ErinGodecke VERSE trial which showed pluses for therapy but not significantly better when very intense early after stroke (first 12 weeks iirc) #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT They were very definite that aphasia therapy is effective but that very intense early in wasn’t statistically significantly better. #ResNetSLT
Ginni ✝️ @ginni_bb
@churrrlie @ReSNetSLT It’s an exciting service. We’ve referred into there a couple of times #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT What it and other ICAP research should feed into is stroke-specific community teams who can offer a more joined up longer term input than overworked community teams who have to cover an entire adult caseload where aphasia is just a small part #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT Our community team is great but there’s so much dysphagia out there in the community that they can’t possibly give people with chronic aphasia the time and input they need. And funding for more ICAP centres would be great. #ResNetSLT
Ginni ✝️ @ginni_bb
@churrrlie @SChalmersSLT @ReSNetSLT @ErinGodecke Yes I’m sure there are. Acute fatigue is probably a big one. And hospital is a tough place to do very intense therapy - so noisy, so much going on - bells, very unwell patients, doctors, obs and competition with other therapies for time. #ResNetSLT
Chiara Vivaldi @VivaldiC
@ginni_bb @ReSNetSLT It is difficult. We've been trying to work around that by offering the ICAP as a student placement and certainly the #ICAP 's level of intensity is not currently routine for our service. #ReSNetSLT.
Ginni ✝️ @ginni_bb
@SChalmersSLT @ReSNetSLT Yes great point! #ResNetSLT
Ginni ✝️ @ginni_bb
@SChalmersSLT @ReSNetSLT We did a good bit of education into ‘what is aphasia’ as part of our single case ICAP #ResNetSLT
Ginni ✝️ @ginni_bb
@ReSNetSLT @VivaldiC Great idea Chiara. #ResNetSLT
Ginni ✝️ @ginni_bb
@SChalmersSLT @churrrlie @ReSNetSLT @ErinGodecke Yes definitely #ResNetSLT
Ginni ✝️ @ginni_bb
@churrrlie @ReSNetSLT Yes. Our community team have a huge, partially rural patch and have some therapists who are passionate about aphasia but so many people with swallowing difficulties and no protected time for communication patients. Once ESD is over intensity is difficult to get. #ResNetSLT
Chiara Vivaldi @VivaldiC
@SusieWSLT @SChalmersSLT @ReSNetSLT Absolutely agree #ResNetSLT
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