#RheumChat Transcript
Healthcare social media transcript of the #RheumChat hashtag.
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See #RheumChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | ACR Simple Tasks @ACRSimpleTasks Welcome to today’s #RheumChat, co-hosted by @LupusInitiative & @IreneBlancoMD! |
| ACR Simple Tasks @ACRSimpleTasks The @LupusInitiative is an educational initiative to improve recognition & management of lupus. #RheumChat |
 | American College of Rheumatology @ACRheum Hello! ACR here for today's #RheumChat w/ @LupusInitiative & special guest @IreneBlancoMD! Who's ready? #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks Today’s topic is “Living with Lupus: The Importance of Self-Management” #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: Hello! ACR here for today's #RheumChat w/ @LupusInitiative & special guest @IreneBlancoMD! Who's ready? #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks #RheumChat will follow a Q1, A1 format. So for Q1, you would begin your response with A1 – let us know if you have any questions! |
| American College of Rheumatology @ACRheum RT @ACRSimpleTasks: Today’s topic is “Living with Lupus: Today’s topic is “Living with Lupus: The Importance of Self-Management” #RheumChat |
 | Dr. Irene Blanco @IreneBlancoMD RT @ACRSimpleTasks Welcome to today’s #RheumChat, co-hosted by @LupusInitiative & @IreneBlancoMD! |
| ACR Simple Tasks @ACRSimpleTasks Let's get started! Please take a moment to introduce yourself before our first discussion question #RheumChat |
 | The Lupus Initiative @LupusInitiative RT @LupusInitiative: Join us at 1pm ET as we talk to @IreneBlancoMD about why lupus self-management is so important! https://t.co/gYUYKLApjJ #lupus #rheumchat |
 | Rheumatology Research Foundation @RheumResearch @ACRheum @ACRSimpleTasks We're excited to join this important conversation today! #RheumChat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: Hello! ACR here for today's #RheumChat w/ @LupusInitiative & special guest @IreneBlancoMD! Who's ready? #rheumchat |
| The Lupus Initiative @LupusInitiative Good afternoon! Thank you for joining us on today's #rheumchat on Lupus Self-Management! #LupusSelfCare #Lupus |
| The Lupus Initiative @LupusInitiative RT @ACRSimpleTasks: The @LupusInitiative is an educational initiative to improve recognition & management of lupus. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD Hi everyone! I'm a rheumatologist at Montefiore Medical Center in the Bronx, NY. So happy to be with you here today #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| American College of Rheumatology @ACRheum A1. Learning to manage your lupus condition can improve your overall quality of life. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
 | Carly by Nature @SynceNerd_Carli Hey everyone! Carly here. Dx'd w/ Lupus in '11. Patient advocate, Co-Host of @Lupus_Chat #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD Hi Carly! thanks for coming and being an advocate! #rheumchat |
| The Lupus Initiative @LupusInitiative Hello Carly! #rheumchat |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Today’s topic is “Living with Lupus: Today’s topic is “Living with Lupus: The Importance of Self-Management” #RheumChat |
| American College of Rheumatology @ACRheum RT @SynceNerd_Carli: Hey everyone! Carly here. Dx'd w/ Lupus in '11. Patient advocate, Co-Host of @Lupus_Chat #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A1. Learning to manage your lupus condition can improve your overall quality of life. #RheumChat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRSimpleTasks: Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| The Lupus Initiative @LupusInitiative RT @ACRSimpleTasks: Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| Rheumatology Research Foundation @RheumResearch A2: A rheumatologist is a great place to start. A #rheum can help develop a treatment plan that's right for you. #RheumChat #RheumLife |
| Dr. Irene Blanco @IreneBlancoMD A2. Ways u can self manage: use medication trackers. Figure out if you are taking the right meds at the right times #rheumchat |
| The Lupus Initiative @LupusInitiative Check out https://t.co/NtCAp4318l for resources that give an overview of lupus SM and living with lupus #LupusSelfCare #Lupus #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A2. Use a visit planner when talking to your doc. Will keep the visit on track and make sure you ask the Q's you want answered! #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A2. Ways u can self manage: A2. Ways u can self manage: use medication trackers. Figure out if you are taking the right meds at the right times #rheumchat |
| American College of Rheumatology @ACRheum A2. Stay active. Exercise helps keep joints flexible and may prevent heart disease & strokes. #RheumChat |
| Carly by Nature @SynceNerd_Carli A1:Often ppl newly Dx'd feel loss of control. This helps regain that control. You become an equal partner in your care. Important #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A2: If u are feeling tired & stiff, you may need to get moving...look into ways you can gently get started back into activity #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A2. Use a visit planner when talking to your doc. Will keep the visit on track and make sure you ask the Q's you want answered! #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A2. Stay active. Exercise helps keep joints flexible and may prevent heart disease & strokes. #RheumChat |
| The Lupus Initiative @LupusInitiative You can find links to visit planners and symptom trackers here: https://t.co/dYOHAVzNeU #LupusSelfCare #Lupus #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli That is exactly right! Doc and patient are in this together. #rheumchat |
 | Annette McKinnon @anetto A2 It's important to have a team for your care. As you become comfortable self-managing you chose members of team very carefully #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A2: A2: If u are feeling tired & stiff, you may need to get moving...look into ways you can gently get started back into activity #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD Hi @anetto! #rheumchat |
| Carly by Nature @SynceNerd_Carli A1: No one knows your lifestyle better than you. Self mgmt helps you effectively align other aspects of your life w/ your disease #RheumChat |
| American College of Rheumatology @ACRheum A2. Avoid excess sun exposure. Sunlight can cause a lupus rash to flare & may even trigger a serious flare of the disease itself #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @anetto This is very important part of self-management! You need your "village" -- your support system! #rheumchat |
| American College of Rheumatology @ACRheum RT @anetto: A2 It's important to have a team for your care. As you become comfortable self-managing you chose members of team very carefully #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A2. Avoid excess sun exposure. Sunlight can cause a lupus rash to flare & may even trigger a serious flare of the disease itself #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Hi, joining a bit late. I'm Christele, I've had Lupus for over 10 years. #RheumChat https://t.co/Dawn0Dtpdd |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| Carly by Nature @SynceNerd_Carli @LupusInitiative Hey there! #RheumChat |
| Rheumatology Research Foundation @RheumResearch A2: "[Rheumatologists] recognize lupus doesn't manifest the same in everyone". Howard's story- https://t.co/pqkWexhleo #RheumChat #RheumLife |
| American College of Rheumatology @ACRheum RT @SynceNerd_Carli: A1: A1: No one knows your lifestyle better than you. Self mgmt helps you effectively align other aspects of your life w/ your disease #RheumChat |
| Annette McKinnon @anetto @IreneBlancoMD Sorry for lack of introduction. I am an RA patient but very interested in self-management #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @Xtel007 Hi Christele! #rheumchat |
| Carly by Nature @SynceNerd_Carli @IreneBlancoMD Thank you for sharing your insights with us today! #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks Q3. In what areas of self-management have you found that patients struggle the most? #RheumChat |
| The Lupus Initiative @LupusInitiative Here are some links to resources on Sun Protection https://t.co/g5hQhuh1VD #LupusSelfCare #lupus #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. Self management is super important bc it translates to energy management. And with Lupus, energy levels are low to begin with #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD Q3: i think patients struggle most 1. in the beginning 2. with the new vocab 3. with the amount of meds & information given #rheumchat |
| Annette McKinnon @anetto A2 Every disease is different, but people with chronic disease have a great deal in common. More the same than different #rheumchat |
| The Lupus Initiative @LupusInitiative Great point @anetto #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: Q3: Q3: i think patients struggle most 1. in the beginning 2. with the new vocab 3. with the amount of meds & information given #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A1. It's important to learn your body, and manage your energy, which also helps to manage your health overall. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD Q3: I think it is important when giving new diagnosis to really walk with the patient step by step. Go through everything #rheumchat |
| American College of Rheumatology @ACRheum A3. Lupus can be overwhelming. Don’t try to hold in all your emotions & express yourself however you need to. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRheum: A1. Learning to manage your lupus condition can improve your overall quality of life. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: Hey everyone! Carly here. Dx'd w/ Lupus in '11. Patient advocate, Co-Host of @Lupus_Chat #RheumChat |
| Carly by Nature @SynceNerd_Carli A2: Some examples-Tracking symptoms, taking notes from and for your Dr., researching things on your own, building support system #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
| Annette McKinnon @anetto A3 When first diagnosed I struggled to find my community. Social support is a big help - online and offline #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A3. Lupus can be overwhelming. Don’t try to hold in all your emotions & express yourself however you need to. #RheumChat |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @anetto: A3 When first diagnosed I struggled to find my community. Social support is a big help - online and offline #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: Q3: Q3: I think it is important when giving new diagnosis to really walk with the patient step by step. Go through everything #rheumchat |
| Carly by Nature @SynceNerd_Carli A2: Also, staying on top of your treatment adherence. Playing an active role in your care. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @RheumResearch: A2: A2: A rheumatologist is a great place to start. A #rheum can help develop a treatment plan that's right for you. #RheumChat #RheumLife |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| The Lupus Initiative @LupusInitiative You and your doctors are a team. Links to resources to help you talk with your doctors https://t.co/dYOHAVzNeU #LupusSelfCare #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli researching things on your own is very important but always make sure that you consult w your doc. #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. It takes time and Lupus is unpredictable, but it helps to learn (and listen) to your body. Give yourself time to recharge. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD RT @Xtel007: A2. It takes time and Lupus is unpredictable, but it helps to learn (and listen) to your body. Give yourself time to recharge. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @RheumResearch: A2: A2: A rheumatologist is a great place to start. A #rheum can help develop a treatment plan that's right for you. #RheumChat #RheumLife |
| The Lupus Initiative @LupusInitiative Right, @xtel007. Self-Management isn't selfish! #LupusSelfCare #Lupus #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
 | Anne Townsend @aftjae RT @anetto: A2 It's important to have a team for your care. As you become comfortable self-managing you chose members of team very carefully #rheumchat |
| Anne Townsend @aftjae RT @anetto: A3 When first diagnosed I struggled to find my community. Social support is a big help - online and offline #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @LupusInitiative @xtel007 Agreed! It's about knowing and taking the time for you -- you need to get better, that's a process. #rheumchat |
| The Lupus Initiative @LupusInitiative #lupus https://t.co/dxboxxpdXe |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A2. Assembling a great healthcare team. Finding docs who listen to you and share your health goals. #RheumChat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A3. Lupus can be overwhelming. Don’t try to hold in all your emotions & express yourself however you need to. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: A2. Ways u can self manage: A2. Ways u can self manage: use medication trackers. Figure out if you are taking the right meds at the right times #rheumchat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: Q3: Q3: i think patients struggle most 1. in the beginning 2. with the new vocab 3. with the amount of meds & information given #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @LupusInitiative: Right, @xtel007. Self-Management isn't selfish! #LupusSelfCare #Lupus #rheumchat |
 | Caring For Lupus @CaringForLupus Hi everyone...I'm Elizabeth from NJ. A co-host of @Lupus_Chat . My ten year old daughter is a Lupus Warrior 💪 #Rheumchat https://t.co/8xxgg5eDYh |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A2: A2: Also, staying on top of your treatment adherence. Playing an active role in your care. #RheumChat |
 | Amanda G @LAlupusLady Sorry joining late Cardiac Ultrasound #RheumChat |
| American College of Rheumatology @ACRheum A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| Carly by Nature @SynceNerd_Carli A2: Often, other members of the #Lupus community help me self-manage. @Lupus_Chat sends med, exercise, selfcare reminders, etc. #RheumChat |
| The Lupus Initiative @LupusInitiative Hello @caringforlupus! #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @anetto: A2 It's important to have a team for your care. As you become comfortable self-managing you chose members of team very carefully #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A4: Stress can make #lupus worse. Getting a cold, staying up late writing a paper, owrking on deadlines All can take a toll #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: Hi everyone...I'm Elizabeth from NJ. A co-host of @Lupus_Chat . My ten year old daughter is a Lupus Warrior 💪 #Rheumchat https://t.co/8xxgg5eDYh |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. Assembling a great healthcare team. Finding docs who listen to you and share your health goals. #RheumChat |
 | OA Action Alliance @oaactionallianc A3. When in pain, walking can be hard. Develop a walking plan: make a contract with yourself, monitor and reward your progress #rheumchat |
| Annette McKinnon @anetto RT @Xtel007: A2. Assembling a great healthcare team. Finding docs who listen to you and share your health goals. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A2. It takes time and Lupus is unpredictable, but it helps to learn (and listen) to your body. Give yourself time to recharge. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A4: https://t.co/KtNTVFYETr is a great site for tips on helping to manage stress #rheumchat |
 | Geovanni Jose Peña G @geovannireuma RT @ACRheum: A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: Hi everyone! I'm a rheumatologist at Montefiore Medical Center in the Bronx, NY. So happy to be with you here today #rheumchat |
| Caring For Lupus @CaringForLupus RT @ACRSimpleTasks: Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| The Lupus Initiative @LupusInitiative Resources to help reduce stress can be found here: https://t.co/g5hQhuh1VD #LupusSelfCare #Lupus #rheumchat |
| Amanda G @LAlupusLady RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| The Lupus Initiative @LupusInitiative We have compiled a list of self-management resources that #lupus fighters my find helpful - https://t.co/4kK7fO4wSa #selfcare #rheumchat https://t.co/2zZjf58uT2 |
| American College of Rheumatology @ACRheum A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A4. Meditation can help to manage stress, soft yoga or even just doing things you love! #rheumchat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: A2: A2: If u are feeling tired & stiff, you may need to get moving...look into ways you can gently get started back into activity #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: A2. Use a visit planner when talking to your doc. Will keep the visit on track and make sure you ask the Q's you want answered! #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A4: A4: Stress can make #lupus worse. Getting a cold, staying up late writing a paper, owrking on deadlines All can take a toll #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A2. Avoid excess sun exposure. Sunlight can cause a lupus rash to flare & may even trigger a serious flare of the disease itself #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A4: A4: https://t.co/KtNTVFYETr is a great site for tips on helping to manage stress #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q3. In what areas of self-management have you found that patients struggle the most? #RheumChat |
| Carly by Nature @SynceNerd_Carli @IreneBlancoMD Absolutely! I discuss all research w/my Rheumy. Helps ensure we're both looking at the latest studies and better manage my care #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @SynceNerd_Carli researching things on your own is very important but always make sure that you consult w your doc. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @LupusInitiative: You and your doctors are a team. Links to resources to help you talk with your doctors https://t.co/dYOHAVzNeU #LupusSelfCare #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| Amanda G @LAlupusLady A4 @ACRSimpleTasks techniques i use include meditation, massage and gardening to reduce stress #Lupus #RheumChat |
| The Lupus Initiative @LupusInitiative RT @IreneBlancoMD: A4: A4: Stress can make #lupus worse. Getting a cold, staying up late writing a paper, owrking on deadlines All can take a toll #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| American College of Rheumatology @ACRheum A4. Excercise can have a big impact on how you feel. Try a walk when you feel stressed. #RheumChat |
| The Lupus Initiative @LupusInitiative Yes, check out https://t.co/q6T6Yowd0h for my info on MBSR. #LupusSelfCare #Lupus #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Amanda G @LAlupusLady RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @LAlupusLady @ACRSimpleTasks Love gardening! Just don't forget your sunscreen :) #rheumchat |
| Caring For Lupus @CaringForLupus RT @ACRSimpleTasks: Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| Amanda G @LAlupusLady RT @IreneBlancoMD: A4: A4: Stress can make #lupus worse. Getting a cold, staying up late writing a paper, owrking on deadlines All can take a toll #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A1. Learning to manage your lupus condition can improve your overall quality of life. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD RT @LupusInitiative: Yes, check out https://t.co/q6T6Yowd0h for my info on MBSR. #LupusSelfCare #Lupus #rheumchat |
| Amanda G @LAlupusLady Sunscreen and a big hat! https://t.co/8itNMPaiu3 |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A4. Excercise can have a big impact on how you feel. Try a walk when you feel stressed. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. For me, time/energy management is a struggle. Not putting too much in my plate, leaving enough time to take breaks and rest. #rheumchat |
 | Catherine M Frazier @Catherinefraz37 RT @LupusInitiative: Resources to help reduce stress can be found here: Resources to help reduce stress can be found here: https://t.co/g5hQhuh1VD #LupusSelfCare #Lupus #rheumchat |
| Annette McKinnon @anetto A2 There's a talk by a 🇨🇦rheumatologist Dr Paul Fortin, on Saturday about managing #Lupus #rheumchat https://t.co/CIdTAGBtwT #eROAR |
 | Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q1. Why is it so important for people living with lupus to practice self-management? #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| The Lupus Initiative @LupusInitiative RT @RheumResearch: @ACRheum @ACRSimpleTasks We're excited to join this important conversation today! #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @LupusInitiative: We have compiled a list of self-management resources that #lupus fighters my find helpful - https://t.co/4kK7fO4wSa #selfcare #rheumchat https://t.co/2zZjf58uT2 |
 | Sexy Health Tips @sexyhealthtips RT @Xtel007: A2. Assembling a great healthcare team. Finding docs who listen to you and share your health goals. #RheumChat |
| American College of Rheumatology @ACRheum RT @RheumResearch: @ACRheum @ACRSimpleTasks We're excited to join this important conversation today! #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @IreneBlancoMD: @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| The Lupus Initiative @LupusInitiative Thank you, @anetto! #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @IreneBlancoMD: A2: A2: If u are feeling tired & stiff, you may need to get moving...look into ways you can gently get started back into activity #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @Xtel007 It's such a struggle to not take on new things! We overload ourselves and then collapse under the weight #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A1: People w/lupus have to be their own self advocates because no one knows our body like we do. Have to speak up for our needs. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A1: A1: No one knows your lifestyle better than you. Self mgmt helps you effectively align other aspects of your life w/ your disease #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: Q3: Q3: i think patients struggle most 1. in the beginning 2. with the new vocab 3. with the amount of meds & information given #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @anetto: A2 Every disease is different, but people with chronic disease have a great deal in common. More the same than different #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A3. Another issue is treatment adherence, although I think I'm doing a better job these days. Medication reminders help a lot! #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @ACRheum: A2. Avoid excess sun exposure. Sunlight can cause a lupus rash to flare & may even trigger a serious flare of the disease itself #RheumChat |
| Amanda G @LAlupusLady If you can move w/out pain walking is a good tip but what about the "bad" days? #RheumChat https://t.co/0g0KtCMZ6U |
| Tiffany ⁷ @TiffanyAndLupus RT @anetto: A3 When first diagnosed I struggled to find my community. Social support is a big help - online and offline #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: A2. Ways u can self manage: A2. Ways u can self manage: use medication trackers. Figure out if you are taking the right meds at the right times #rheumchat |
| Carly by Nature @SynceNerd_Carli A3:Biggest hurdles- treatment adherence (financial/ socioeconomic & mental reasons), finding support, assembling a good care team #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A4. Excercise can have a big impact on how you feel. Try a walk when you feel stressed. #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: A4 @ACRSimpleTasks techniques i use include meditation, massage and gardening to reduce stress #Lupus #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q2. What are ways people living with lupus can self-manage their lupus? #RheumChat |
| Annette McKinnon @anetto @oaactionallianc I saw a cute app for children. It actually seemed more appealing than those for 'responsible adults' like me #rheumchat |
| The Lupus Initiative @LupusInitiative RT @ACRheum: A4. Excercise can have a big impact on how you feel. Try a walk when you feel stressed. #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @IreneBlancoMD: A4: A4: Stress can make #lupus worse. Getting a cold, staying up late writing a paper, owrking on deadlines All can take a toll #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 That's very important. A lot of time, we are left even more confused on top of feeling sick. #RheumChat https://t.co/RdQrMPk7L2 |
| Catherine M Frazier @Catherinefraz37 RT @ACRheum: A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| The Lupus Initiative @LupusInitiative Yes! @tiffanyandlupus! Take charge of your health! #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @LupusInitiative: Yes, check out https://t.co/q6T6Yowd0h for my info on MBSR. #LupusSelfCare #Lupus #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus A2: I self manage by keeping a Health journal & using a mobile app patient portal to speak with my doctors in between visits. #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: Sunscreen and a big hat! https://t.co/8itNMPaiu3 |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A4. Managing stress may help people with lupus reduce the occurrence of lupus flares and improve their overall health. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| Annette McKinnon @anetto .@LAlupusLady Found a book 30 years ago that I still look at - about isometric exercises you can do in bed to keep muscles strong #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A4. Stress is a huuuuge factor. Leads to flares and fatigue. I try to avoid it at all costs! #rheumchat |
| Amanda G @LAlupusLady A3 self-care coping w/ medicine reminders and the reality of living w/ #Lupus and the impact it takes on your entire life #RheumChat https://t.co/kcmBFceREx |
| Carly by Nature @SynceNerd_Carli A4: Stress exacerbates Lupus symptoms. I find breathing exerises, yoga, and delegating tasks helpful. We cant do it all alone #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus A4: Stress has the tendency to exacerbate the severity of my lupus symptoms & disease activity. I flare & my labs are irregular. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @IreneBlancoMD Exactly. Especially if we were used to that fast pace pre-diagnosis :( #RheumChat |
| The Lupus Initiative @LupusInitiative RT @TiffanyAndLupus: A1: A1: People w/lupus have to be their own self advocates because no one knows our body like we do. Have to speak up for our needs. #RheumChat |
| Amanda G @LAlupusLady A2 track symptoms, medicines and emotions to see what triggers and how to avoid them if possible #RheumChat https://t.co/VQtXKc5ESG |
| American College of Rheumatology @ACRheum A5. You may find comfort in lupus support groups. Speaking to others who live w/ lupus may help you feel more connected. #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
| Amanda G @LAlupusLady RT @ACRSimpleTasks: Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| OA Action Alliance @oaactionallianc @ACRheum Great tip! Walking can help manage other chronic diseases and pain all while improving mental health. #rheumchat |
| Carly by Nature @SynceNerd_Carli A4: This is where having a good support system is key. They can help w/ways to alleviate stress. Also, taking time for self care #RheumChat |
| Caring For Lupus @CaringForLupus A2 It is important to listen to your body. Having a good communication with your Rheumatologist is a must. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q4. How does stress impact lupus? What are some techniques to reduce stress? #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @LupusInitiative @xtel007 Agreed! It's about knowing and taking the time for you -- you need to get better, that's a process. #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A5: talking to ur doc re: symptoms, barriers to u taking meds, coming for appts. are all critical. We need to be on the same page #rheumchat |
| Annette McKinnon @anetto RT @IreneBlancoMD: A5: talking to ur doc re: A5: talking to ur doc re: symptoms, barriers to u taking meds, coming for appts. are all critical. We need to be on the same page #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A4: When stressed I try to find a safe quit spot. Listen to music, light some incense and take long deep breaths. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A4: A4: This is where having a good support system is key. They can help w/ways to alleviate stress. Also, taking time for self care #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: That's very important. A lot of time, we are left even more confused on top of feeling sick. #RheumChat https://t.co/RdQrMPk7L2 |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: @ACRheum YES! To your support network and to your doctor. We need to know that your need extra support, that's part of the job #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @anetto: @oaactionallianc I saw a cute app for children. It actually seemed more appealing than those for 'responsible adults' like me #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A2: A2: I self manage by keeping a Health journal & using a mobile app patient portal to speak with my doctors in between visits. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. Another issue is treatment adherence, although I think I'm doing a better job these days. Medication reminders help a lot! #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A2. Assembling a great healthcare team. Finding docs who listen to you and share your health goals. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A1: A1: People w/lupus have to be their own self advocates because no one knows our body like we do. Have to speak up for our needs. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @Xtel007 It's such a struggle to not take on new things! We overload ourselves and then collapse under the weight #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A2 It is important to listen to your body. Having a good communication with your Rheumatologist is a must. #RheumChat |
| Amanda G @LAlupusLady A5 communication is key w/ #Lupus bc many different Drs and HCPs collaborate to treat the patient #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @anetto: A2 There's a talk by a 🇨🇦rheumatologist Dr Paul Fortin, on Saturday about managing #Lupus #rheumchat https://t.co/CIdTAGBtwT #eROAR |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A5. You may find comfort in lupus support groups. Speaking to others who live w/ lupus may help you feel more connected. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A3. For me, time/energy management is a struggle. Not putting too much in my plate, leaving enough time to take breaks and rest. #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| Amanda G @LAlupusLady RT @anetto: .@LAlupusLady Found a book 30 years ago that I still look at - about isometric exercises you can do in bed to keep muscles strong #rheumchat |
| American College of Rheumatology @ACRheum A5. Your friends and family can provide support to help you keep your spirits up and cope w/ the challenges of lupus. #RheumChat |
| The Lupus Initiative @LupusInitiative For more information on finding support in your community: https://t.co/sgqzQUWPfr #LupusSelfCare #rheumchat |
| The Lupus Initiative @LupusInitiative A1: Yes @TiffanyAndLupus #SelfAdvocacy is very important! #BeFierceTakeControl - https://t.co/PhrYRdZ9zO #rheumchat https://t.co/54X9t8QIWE |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A5. You may find comfort in lupus support groups. Speaking to others who live w/ lupus may help you feel more connected. #RheumChat |
| Amanda G @LAlupusLady RT @ACRheum: A5. You may find comfort in lupus support groups. Speaking to others who live w/ lupus may help you feel more connected. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A5. Also talking to your support team, let ur family & friends know that you need some space/time/love to deal w ur #lupus #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A5: Communication & finding community is really important 4 managing my health. When diagnosed I didn’t know anyone else w/lupus #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. Communication is important because each Lupus case is so different, we're the only experts on our case. #rheumchat |
| Carly by Nature @SynceNerd_Carli A5: Communication w/your healthcare team AND your support system is important. If we aren't honest about symptoms, they wont know #RheumChat |
| Amanda G @LAlupusLady RT @ACRheum: A2. Avoid excess sun exposure. Sunlight can cause a lupus rash to flare & may even trigger a serious flare of the disease itself #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: That's very important. A lot of time, we are left even more confused on top of feeling sick. #RheumChat https://t.co/RdQrMPk7L2 |
| Amanda G @LAlupusLady RT @IreneBlancoMD: A1. Self management is an umbrella term for things you can use to get centered, talk more openly w your doctor, and feel better #rheumchat |
| Amanda G @LAlupusLady RT @IreneBlancoMD: A1. Self management is key for you to take charge of your SLE, help to better control your illness and its affect on your life #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A3:Biggest hurdles- treatment adherence (financial/ socioeconomic & mental reasons), finding support, assembling a good care team #RheumChat |
| Amanda G @LAlupusLady RT @IreneBlancoMD: A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
 | Pam @Pamdogsrule RT @ACRheum: A3. Lupus can be overwhelming. Don’t try to hold in all your emotions & express yourself however you need to. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q3. In what areas of self-management have you found that patients struggle the most? #RheumChat |
| Carly by Nature @SynceNerd_Carli A5: Because lab results don't paint a full Lupus picture, it's important to share any new symptoms or reactions w/ your Rheumy #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A5. Your friends and family can provide support to help you keep your spirits up and cope w/ the challenges of lupus. #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A5. Also talking to your support team, let ur family & friends know that you need some space/time/love to deal w ur #lupus #rheumchat |
| Amanda G @LAlupusLady RT @LupusInitiative: For more information on finding support in your community: For more information on finding support in your community: https://t.co/sgqzQUWPfr #LupusSelfCare #rheumchat |
 | SufferingtheSilence @ststogether RT @TiffanyAndLupus: A1: A1: People w/lupus have to be their own self advocates because no one knows our body like we do. Have to speak up for our needs. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5.We can't get the help and support we want if we don't make our needs known. #rheumchat |
| Carly by Nature @SynceNerd_Carli A5: An open dialogue ensures you, your Dr., and support system are on the same page. This leads to better managed care. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus A3: I struggle the most w/ adherence to my treatment plan, there are so many pills to take! Also, pain management is hard to find #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A2: A2: I self manage by keeping a Health journal & using a mobile app patient portal to speak with my doctors in between visits. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A4. Stress is a huuuuge factor. Leads to flares and fatigue. I try to avoid it at all costs! #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: Communication w/your healthcare team AND your support system is important. If we aren't honest about symptoms, they wont know #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
| Caring For Lupus @CaringForLupus A4 Art 🎨 became an important part of Miah's life her diagnosis. It helps her relax and de-stress #RheumChat https://t.co/ZXmdRARXA0 |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. Communication is important because each Lupus case is so different, we're the only experts on our case. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @ACRheum: A5. You may find comfort in lupus support groups. Speaking to others who live w/ lupus may help you feel more connected. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @LupusInitiative: A1: A1: Yes @TiffanyAndLupus #SelfAdvocacy is very important! #BeFierceTakeControl - https://t.co/PhrYRdZ9zO #rheumchat https://t.co/54X9t8QIWE |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 @anetto @oaactionallianc What is the app called? #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A5. Your friends and family can provide support to help you keep your spirits up and cope w/ the challenges of lupus. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A3: A3: I struggle the most w/ adherence to my treatment plan, there are so many pills to take! Also, pain management is hard to find #RheumChat |
| Amanda G @LAlupusLady #lupus can limit your social life bc you can't confirm due to pain... #RheumChat truth https://t.co/fwVZDuycCE |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A5.We can't get the help and support we want if we don't make our needs known. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: Communication & finding community is really important 4 managing my health. When diagnosed I didn’t know anyone else w/lupus #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A3: A3: I struggle the most w/ adherence to my treatment plan, there are so many pills to take! Also, pain management is hard to find #RheumChat |
| Annette McKinnon @anetto A4 Good sleep actually helps with stress issues, in my opinion #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A5: A5: Because lab results don't paint a full Lupus picture, it's important to share any new symptoms or reactions w/ your Rheumy #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: A5. Also talking to your support team, let ur family & friends know that you need some space/time/love to deal w ur #lupus #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: A5. Also talking to your support team, let ur family & friends know that you need some space/time/love to deal w ur #lupus #rheumchat |
| Amanda G @LAlupusLady RT @oaactionallianc: @ACRheum Great tip! Walking can help manage other chronic diseases and pain all while improving mental health. #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus A5: I am learningto be better about communicating my needs to friends & family so they know how & when to help me if needed. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: A5: talking to ur doc re: A5: talking to ur doc re: symptoms, barriers to u taking meds, coming for appts. are all critical. We need to be on the same page #rheumchat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A4: A4: https://t.co/KtNTVFYETr is a great site for tips on helping to manage stress #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A2 It is important to listen to your body. Having a good communication with your Rheumatologist is a must. #RheumChat |
| The Lupus Initiative @LupusInitiative If you are exp. symptons such as fatique, facial rash, joint pain - visit your PCP #rheumchat #selfcare #ACRFightsLupus https://t.co/B9iOupUg1Z |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A5: A5: Because lab results don't paint a full Lupus picture, it's important to share any new symptoms or reactions w/ your Rheumy #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5.We can't get the help and support we want if we don't make our needs known. #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: A4 Art 🎨 became an important part of Miah's life her diagnosis. It helps her relax and de-stress #RheumChat https://t.co/ZXmdRARXA0 |
| Dr. Irene Blanco @IreneBlancoMD @TiffanyAndLupus it's so hard to ask for help if you are used to being very self-reliant #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @anetto: A4 Good sleep actually helps with stress issues, in my opinion #rheumchat |
| Amanda G @LAlupusLady RT @LupusInitiative: If you are exp. symptons such as fatique, facial rash, joint pain - visit your PCP #rheumchat #selfcare #ACRFightsLupus https://t.co/B9iOupUg1Z |
| Amanda G @LAlupusLady RT @ACRSimpleTasks: Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A5. We should also share with our support system when we aren't feeling well and need time. Often times, we don't LOOK sick. #rheumchat |
| Annette McKinnon @anetto @Xtel007 @oaactionallianc It's called #MyLupusGuide I don't know the status of the app - I'm Saturday's tweetchat moderator. #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A6: Come to your appointment with a list of questions. I let my Drs know asap that I have questions that I’d like answers to. #RheumChat |
| American College of Rheumatology @ACRheum A6. Think of what you wanted to ask and talk to your doctor about ahead of time and write it down. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD https://t.co/KtNTVFYETr has visit trackers and tools you can use to help you talk w your doc. #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| Annette McKinnon @anetto @Xtel007 @oaactionallianc It's an inperson event in BC and a free webinar with tweetchat #eROAR #rheumchat |
| Carly by Nature @SynceNerd_Carli A6: Taking notes to your appt. helps w/time mgmt during the consultation. Guides the flow of the appt. Plus your ?s get answered #RheumChat |
| Annette McKinnon @anetto RT @IreneBlancoMD: https://t.co/KtNTVFYETr has visit trackers and tools you can use to help you talk w your doc. #rheumchat |
| Amanda G @LAlupusLady A6 bring notes, questions and if you know you need more time than usual call office before appt. #RheumChat |
| Amanda G @LAlupusLady RT @anetto: A4 Good sleep actually helps with stress issues, in my opinion #rheumchat |
| Amanda G @LAlupusLady RT @IreneBlancoMD: A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli I think taking notes during the visit is important too. It helps you to remember once u get home #rheumchat |
| Annette McKinnon @anetto @IreneBlancoMD Are people with lupus likely to develop fibromyalgia? #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @ACRSimpleTasks: Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| Caring For Lupus @CaringForLupus @ACRSimpleTasks A4 Stress can have a negative impact on a person diagnosed with Lupus Some techniques are exercise, yoga, reading, coloring etc #RheumChat https://t.co/BU9H596Z8h |
| The Lupus Initiative @LupusInitiative @oaactionallianc additional apps to help manage your lupus can be found here https://t.co/dYOHAVzNeU #LupusSelfCare #Lupus #rheumchat |
| Carly by Nature @SynceNerd_Carli A6: Inquire about ways to communicate w/your Dr. outside of appt times. Email, text, calls, patient portal, etc. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD RT @CaringForLupus: @ACRSimpleTasks A4 Stress can have a negative impact on a person diagnosed with Lupus Some techniques are exercise, yoga, reading, coloring etc #RheumChat https://t.co/BU9H596Z8h |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A5: A5: I am learningto be better about communicating my needs to friends & family so they know how & when to help me if needed. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD RT @SynceNerd_Carli: A6: A6: Inquire about ways to communicate w/your Dr. outside of appt times. Email, text, calls, patient portal, etc. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: A4 Art 🎨 became an important part of Miah's life her diagnosis. It helps her relax and de-stress #RheumChat https://t.co/ZXmdRARXA0 |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A6. Think of what you wanted to ask and talk to your doctor about ahead of time and write it down. #RheumChat |
| Amanda G @LAlupusLady A6 communicate your needs so everyone knows what to expect, if you have a lot of Qs email ahead of time. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @ACRSimpleTasks A4 Stress can have a negative impact on a person diagnosed with Lupus Some techniques are exercise, yoga, reading, coloring etc #RheumChat https://t.co/BU9H596Z8h |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Bringing a list of questions, symptoms, and concerns you want to discuss. #rheumchat |
| Caring For Lupus @CaringForLupus RT @ACRSimpleTasks: Q6. How can a person improve communication with their doctor if you only have a few minutes at each appointment? #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli Many health records systems let you email/message your doc directly! can save time on phone calls #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A6: Choose 3 main questions rate topics you want to focus on during your appointment to make the most of your short appt time. #RheumChat |
| Annette McKinnon @anetto @IreneBlancoMD As a Dr how would you feel if I gave a copy of my list, to make sure I asked all my questions (within reason) #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A6: Choose 3 main questions or topics you want to focus on during your appointment to make the most of your short appt time. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @anetto Great Q. Fibro is very common w #lupus #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Inquire about ways to communicate w/your Dr. outside of appt times. Email, text, calls, patient portal, etc. #RheumChat |
| Carly by Nature @SynceNerd_Carli @anetto @IreneBlancoMD Great question Annette! A lot of us have the dual diagnosis. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @ACRSimpleTasks A4 Stress can have a negative impact on a person diagnosed with Lupus Some techniques are exercise, yoga, reading, coloring etc #RheumChat https://t.co/BU9H596Z8h |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 A6. Some health systems enable you to communicate via a patient portal, or some are fine with emails. Ask. #rheumchat |
| Amanda G @LAlupusLady I've got Lupus Fibro and APS autoimmune condition like to "play havoc" together #RheumChat https://t.co/p8vOFQRgr6 |
| Annette McKinnon @anetto @IreneBlancoMD Is there any way to avoid developing fibro? #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @anetto I don't mind. #lupusfog is real. I want to make sure that I address everything my patient needs me to address #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus @anetto @IreneBlancoMD I was diagnosed with fibromyalgia a year after my lupus diagnosis 😔 #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A6: A6: Taking notes to your appt. helps w/time mgmt during the consultation. Guides the flow of the appt. Plus your ?s get answered #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: https://t.co/KtNTVFYETr has visit trackers and tools you can use to help you talk w your doc. #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: A6: A6: Choose 3 main questions or topics you want to focus on during your appointment to make the most of your short appt time. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: @TiffanyAndLupus it's so hard to ask for help if you are used to being very self-reliant #rheumchat |
| Amanda G @LAlupusLady RT @ACRheum: A6. Think of what you wanted to ask and talk to your doctor about ahead of time and write it down. #RheumChat |
| Caring For Lupus @CaringForLupus @ACRSimpleTasks A6 Write all your questions and concerns in advance. It also helps if someone goes with you to the appointment. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: A6: A6: Taking notes to your appt. helps w/time mgmt during the consultation. Guides the flow of the appt. Plus your ?s get answered #RheumChat |
| Carly by Nature @SynceNerd_Carli @IreneBlancoMD Yes! Taking notes or recording audio of the consult (w/permission) has been helpful to me. Esp since brain fog happens often. #RheumChat |
| The Lupus Initiative @LupusInitiative Very true, @caringforlupus #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @anetto Not really. We don't really know what causes Fibro in patients w rheumatic diseases. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @ACRSimpleTasks A6 Write all your questions and concerns in advance. It also helps if someone goes with you to the appointment. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @anetto I don't mind. #lupusfog is real. I want to make sure that I address everything my patient needs me to address #rheumchat |
| Amanda G @LAlupusLady RT @IreneBlancoMD: @anetto I don't mind. #lupusfog is real. I want to make sure that I address everything my patient needs me to address #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @anetto: @IreneBlancoMD As a Dr how would you feel if I gave a copy of my list, to make sure I asked all my questions (within reason) #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: @anetto I don't mind. #lupusfog is real. I want to make sure that I address everything my patient needs me to address #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus @IreneBlancoMD Yes, I am the matriarch figure in my home so it has been very difficult for me to go from caregiver to recipient of care 😔 #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @Xtel007: A6. Some health systems enable you to communicate via a patient portal, or some are fine with emails. Ask. #rheumchat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A5. Also talking to your support team, let ur family & friends know that you need some space/time/love to deal w ur #lupus #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A5. We should also share with our support system when we aren't feeling well and need time. Often times, we don't LOOK sick. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @anetto Great Q. Fibro is very common w #lupus #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A6: A6: Choose 3 main questions or topics you want to focus on during your appointment to make the most of your short appt time. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: @SynceNerd_Carli I think taking notes during the visit is important too. It helps you to remember once u get home #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @anetto: @IreneBlancoMD As a Dr how would you feel if I gave a copy of my list, to make sure I asked all my questions (within reason) #rheumchat |
| Caring For Lupus @CaringForLupus RT @ACRSimpleTasks: Q5. Why is communication so important in successfully managing lupus? #RheumChat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @Xtel007: A6. Some health systems enable you to communicate via a patient portal, or some are fine with emails. Ask. #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: @anetto I don't mind. #lupusfog is real. I want to make sure that I address everything my patient needs me to address #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: @IreneBlancoMD Yes! Taking notes or recording audio of the consult (w/permission) has been helpful to me. Esp since brain fog happens often. #RheumChat |
| The Lupus Initiative @LupusInitiative @tiffanyandlupus, so challanging to switch roles, but so important. You need to make sure you take care of yourself, too! #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @TiffanyAndLupus think of it this way. If you don't take care of yourself, you can;t take care of others. #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @LupusInitiative: @tiffanyandlupus, so challanging to switch roles, but so important. You need to make sure you take care of yourself, too! #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: @TiffanyAndLupus think of it this way. If you don't take care of yourself, you can;t take care of others. #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks Q7. Where can individuals go to find resources to help them self-manage lupus? #RheumChat |
| Carly by Nature @SynceNerd_Carli @IreneBlancoMD Yes! I was so happy once my hospitals enabled this feature. Previously, I was lucky and some Rheums were ok with text or email. #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @IreneBlancoMD: @TiffanyAndLupus it's so hard to ask for help if you are used to being very self-reliant #rheumchat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @TiffanyAndLupus: @IreneBlancoMD Yes, I am the matriarch figure in my home so it has been very difficult for me to go from caregiver to recipient of care 😔 #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @LupusInitiative: @tiffanyandlupus, so challanging to switch roles, but so important. You need to make sure you take care of yourself, too! #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: @IreneBlancoMD Yes, I am the matriarch figure in my home so it has been very difficult for me to go from caregiver to recipient of care 😔 #RheumChat |
| Amanda G @LAlupusLady You have to put on your oxygen mask first... #RheumChat https://t.co/Z93DEdgXAQ |
| American College of Rheumatology @ACRheum A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD A7: https://t.co/KtNTVFYETr is a newly created site for patients to find tools on self management! #rheumchat |
| Amanda G @LAlupusLady RT @ACRSimpleTasks: Q7. Where can individuals go to find resources to help them self-manage lupus? #RheumChat |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Agreed! #RheumChat https://t.co/SWjslgCBPx |
| The Lupus Initiative @LupusInitiative Talk to your doctors about ways to self-manage your lupus and visit https://t.co/HSLSJhUbVN #LupusSelfCare #rheumchat |
 | Cheryl Koehn @CherylKoehn @ACEJointHealth @anetto Hmmmm. I don’t “manage” myself, I practice self-care. Better term and what literature reflects today #rheumchat |
| Caring For Lupus @CaringForLupus @ACRSimpleTasks A5 Communication is vital. Creating a support system; family members, friends, coworkers that uplifts your spirit is important #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Q7. Where can individuals go to find resources to help them self-manage lupus? #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Q7. Where can individuals go to find resources to help them self-manage lupus? #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: A7: A7: https://t.co/KtNTVFYETr is a newly created site for patients to find tools on self management! #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus A7: Try searching for lupus related health apps on your mobile device. #RheumChat |
| Caring For Lupus @CaringForLupus RT @ACRSimpleTasks: Q7. Where can individuals go to find resources to help them self-manage lupus? #RheumChat |
| Caring For Lupus @CaringForLupus RT @ACRheum: A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A7: A7: https://t.co/KtNTVFYETr is a newly created site for patients to find tools on self management! #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A7: There are several national lupus organizations that have online resources for how to manage lupus: @LupusResearch & @LupusOrg #RheumChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A7: A7: Try searching for lupus related health apps on your mobile device. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @IreneBlancoMD: A7: A7: https://t.co/KtNTVFYETr is a newly created site for patients to find tools on self management! #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRheum: A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @CaringForLupus: @ACRSimpleTasks A5 Communication is vital. Creating a support system; family members, friends, coworkers that uplifts your spirit is important #RheumChat |
| Amanda G @LAlupusLady A7 sharing https://t.co/yd6n99OKTp #RheumChat |
| Amanda G @LAlupusLady RT @ACRheum: A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Amanda G @LAlupusLady RT @LupusInitiative: Talk to your doctors about ways to self-manage your lupus and visit https://t.co/HSLSJhUbVN #LupusSelfCare #rheumchat |
| Carly by Nature @SynceNerd_Carli A7: Orgs like @LupusOrg, @LupusResearch & @LADAOrg. Communities like @Lupus_Chat. All very helpful in different ways w/self mgmt #RheumChat |
| Amanda G @LAlupusLady RT @CherylKoehn: @ACEJointHealth @anetto Hmmmm. I don’t “manage” myself, I practice self-care. Better term and what literature reflects today #rheumchat |
| Annette McKinnon @anetto RT @CherylKoehn: @ACEJointHealth @anetto Hmmmm. I don’t “manage” myself, I practice self-care. Better term and what literature reflects today #rheumchat |
| The Lupus Initiative @LupusInitiative A7: You can start here: https://t.co/4kK7fO4wSa for more information on lupus self-management. @LupusSelfCare #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus A7: I also like the lupus pre-appointment checklist at https://t.co/HRbMbtVPJV #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A7: A7: Orgs like @LupusOrg, @LupusResearch & @LADAOrg. Communities like @Lupus_Chat. All very helpful in different ways w/self mgmt #RheumChat |
| Caring For Lupus @CaringForLupus RT @TiffanyAndLupus: A6: A6: Come to your appointment with a list of questions. I let my Drs know asap that I have questions that I’d like answers to. #RheumChat |
| Caring For Lupus @CaringForLupus RT @IreneBlancoMD: A6:Make sure to come w a list of things you want to discuss. Keep it open. Check things off as you go #rheumchat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli dont forget @LupusInitiative :) #rheumchat |
| Carly by Nature @SynceNerd_Carli A7: Lupus and Health tracker apps in the App Store & Google Play Store. Advancements in Tech help w/managing your care #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @LupusInitiative: A7: You can start here: A7: You can start here: https://t.co/4kK7fO4wSa for more information on lupus self-management. @LupusSelfCare #rheumchat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A7: A7: Orgs like @LupusOrg, @LupusResearch & @LADAOrg. Communities like @Lupus_Chat. All very helpful in different ways w/self mgmt #RheumChat |
| Annette McKinnon @anetto RT @ACRheum: A7. Check out the @LupusInitiative's Self Management resources page at https://t.co/3gcYZByyGf. #RheumChat |
| Tiffany ⁷ @TiffanyAndLupus RT @SynceNerd_Carli: A7: A7: Lupus and Health tracker apps in the App Store & Google Play Store. Advancements in Tech help w/managing your care #RheumChat |
| Carly by Nature @SynceNerd_Carli A7: Members of Support groups and online communities can help you remain accountable and increase treatment adherence. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @SynceNerd_Carli dont forget @LupusInitiative :) #rheumchat |
| Caring For Lupus @CaringForLupus RT @ACRheum: A4. Mediation, mindfulness, and Mindfulness-Based Stress Reduction (MBSR) are techniques that may help people manage stress. #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A7: A7: I also like the lupus pre-appointment checklist at https://t.co/HRbMbtVPJV #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @TiffanyAndLupus: A7: There are several national lupus organizations that have online resources for how to manage lupus: A7: There are several national lupus organizations that have online resources for how to manage lupus: @LupusResearch & @LupusOrg #RheumChat |
| Carly by Nature @SynceNerd_Carli RT @CaringForLupus: @ACRSimpleTasks A5 Communication is vital. Creating a support system; family members, friends, coworkers that uplifts your spirit is important #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @SynceNerd_Carli https://t.co/KtNTVFYETr is the link on the site to find support groups and communities near you! #rheumchat |
| Caring For Lupus @CaringForLupus RT @SynceNerd_Carli: A7: A7: Lupus and Health tracker apps in the App Store & Google Play Store. Advancements in Tech help w/managing your care #RheumChat |
| ACR Simple Tasks @ACRSimpleTasks Thanks to everyone who joined the #RheumChat today – especially our co-hosts @LupusInitiative & @IreneBlancoMD! |
| American College of Rheumatology @ACRheum What a great chat! Thanks for joining! Stay tuned for postings on our next #RheumChat 11/16! |
| Carly by Nature @SynceNerd_Carli A7: Social media is a valuable tool in helping w/managing my care & also connecting w/ Healthcare professionals & other patients #RheumChat |
| Dr. Irene Blanco @IreneBlancoMD @ACRSimpleTasks @LupusInitiative thanks so much for having me!!! #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @ACRSimpleTasks: Thanks to everyone who joined the #RheumChat today – especially our co-hosts @LupusInitiative & @IreneBlancoMD! |
 | 💜Gabz with a Z💜 @gabbiecarrera RT @LAlupusLady: #lupus can limit your social life bc you can't confirm due to pain... #RheumChat truth https://t.co/fwVZDuycCE |
| The Lupus Initiative @LupusInitiative Thank you@IreneBlancoMD, @ACRSimple Tasks and @ACRRheum, as well as everyone else who joined in! #lupusselfcare #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus RT @ACRSimpleTasks: Thanks to everyone who joined the #RheumChat today – especially our co-hosts @LupusInitiative & @IreneBlancoMD! |
| ACR Simple Tasks @ACRSimpleTasks Do you have topics you would like to see in the #RheumChat this year? Tweet them to us or emailing them to pr@rheumatology.org! |
| Annette McKinnon @anetto @IreneBlancoMD @SynceNerd_Carli Is there another site beyond qub me? - I get a security warning on my computer #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @IreneBlancoMD: @ACRSimpleTasks @LupusInitiative thanks so much for having me!!! #rheumchat |
| ACR Simple Tasks @ACRSimpleTasks RT @ACRheum: What a great chat! Thanks for joining! Stay tuned for postings on our next #RheumChat 11/16! |
 | Susan H. Lin, ScD, OTR/L, FAOTA, FACRM @SusanLinOT As an #OccupationalTherapist I appreciate your perspective and like it! #rheumchat https://t.co/EhOGZeJ01B |
| The Lupus Initiative @LupusInitiative It was great to hear how you take care of yourself and help manage your lupus! #LupusSelfCare #Lupus #rheumchat |
| Tiffany ⁷ @TiffanyAndLupus @ACRSimpleTasks @LupusInitiative @IreneBlancoMD Thank you so much for hosting this conversation today! #RheumChat shared a lot of affirming insights. |
| Carly by Nature @SynceNerd_Carli Many thanks to @ACRSimpleTasks, @IreneBlancoMD & @LupusInitiative for hosting this #RheumChat! Always good talking/learning more about Lupus |
| The Lupus Initiative @LupusInitiative @anetto, @ireneblancomd was linking here: https://t.co/dYOHAVzNeU #rheumchat |
| Annette McKinnon @anetto Thank you. Useful tools for #lupus https://t.co/JTRIMi11Qo |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @SynceNerd_Carli That is exactly right! Doc and patient are in this together. #rheumchat |
| Carly by Nature @SynceNerd_Carli RT @IreneBlancoMD: @SynceNerd_Carli I think taking notes during the visit is important too. It helps you to remember once u get home #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @IreneBlancoMD: A5. Communication is imp to let the important people in ur life know what you are feeling and need #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: A7 sharing https://t.co/yd6n99OKTp #RheumChat |
| Catherine M Frazier @Catherinefraz37 RT @LupusInitiative: Very true, @caringforlupus #rheumchat |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: You have to put on your oxygen mask first... #RheumChat https://t.co/Z93DEdgXAQ |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: #lupus can limit your social life bc you can't confirm due to pain... #RheumChat truth https://t.co/fwVZDuycCE |
| Catherine M Frazier @Catherinefraz37 RT @LAlupusLady: I've got Lupus Fibro and APS autoimmune condition like to "play havoc" together #RheumChat https://t.co/p8vOFQRgr6 |
| Catherine M Frazier @Catherinefraz37 RT @LupusInitiative: A7: You can start here: A7: You can start here: https://t.co/4kK7fO4wSa for more information on lupus self-management. @LupusSelfCare #rheumchat |
#RheumChat content from Twitter.