#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ @DawnMGibson Havin a rare condition can make it a lot harder to find ppl knowledgeable enough to have a real convo about it #SpoonieChat |
 | Dawn M Gibson @DawnMGibson RT @coffeesister: Purple #poetess, fighting #chronicillness my whole life; #disabled #spoonie, here to wish you loverly #spoonies spoons & 💜. #SpoonieChat A1 https://t.co/Zb0CB1XBeP |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A2: A2: I'm so sorry. That's as shady as it gets. BTW, you might find working with a caseworker in a Senator's office helpful. #SpoonieChat https://t.co/EFmZOUpU9R |
 | TheLittleWolfHunter @LittleWolfBlog A7: Fortunately, more abt #lupus recently, but not "there yet". Many other illnesses need to have voice on popular platforms #SpoonieChat |
| TheLittleWolfHunter @LittleWolfBlog A6: Feeling loss of trust. Loneliness and potentially, depending on the situation, issues at the workplace. :( #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @LittleWolfBlog: A7: A7: Fortunately, more abt #lupus recently, but not "there yet". Many other illnesses need to have voice on popular platforms #SpoonieChat |
 | 💖💄 Aoife ♿💜 @Aoiferocksitout @bcxx143 @DawnMGibson I've seen ppl here in the same boat as me thrive through blogging and using social media to become great advocates! #SpoonieChat |
 | Creamy Peanut Butter & Chocolate @thebaddestnuna A5: 1. We're sick cause we've done something wrong 2. Diet/exercise is a cure all 3) chronic illnesses affect everyone the same #spooniechat https://t.co/w2Xjp6FMzC |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: @bcxx143 @DawnMGibson I've seen ppl here in the same boat as me thrive through blogging and using social media to become great advocates! #SpoonieChat |
| Creamy Peanut Butter & Chocolate @thebaddestnuna RT @DawnMGibson: A2: A2: Lifestyle cause AS/Fibro/Lupus. Patients just want drugs. Patients have bad attitudes. #SpoonieChat https://t.co/KY89z8DNdE |
| TheLittleWolfHunter @LittleWolfBlog exactly #SpoonieChat https://t.co/dh1zWskNCv |
| Creamy Peanut Butter & Chocolate @thebaddestnuna RT @DawnMGibson: A6: A6: It's crushing when people think I'm flighty, lazy, or don't care about my future. #SpoonieChat https://t.co/qGIrkP91Ql |
| 💖💄 Aoife ♿💜 @Aoiferocksitout @SignyTheSage @DawnMGibson How dare we!! A6 #SpoonieChat |
| Dawn M Gibson @DawnMGibson Hey #SpoonieChat, I switched over to my phone & bed to follow your glorious tweets. Chairs & Spondy bum don't match. |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @bcxx143: @DawnMGibson A4: @DawnMGibson A4: My blog & Twitter for sure #SpoonieChat & #spoonie hashtags have given me a platform for people who WANT to hear about & support others |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A4: A4: But deciding what/where/how/when to discuss health is very freeing. 2/2 #SpoonieChat https://t.co/DiziW3Kfcx |
| Dawn M Gibson @DawnMGibson #A6: #SpoonieChat https://t.co/f2tJ3JjZAG |
| Dawn M Gibson @DawnMGibson A6: #SpoonieChat https://t.co/f2tJ3JjZAG |
 | Brittney ♈️☮️♿️💎 @bcxx143 YES ITS AMAZING 🙌🏻 https://t.co/YrvOlUlg5K |
| Creamy Peanut Butter & Chocolate @thebaddestnuna A6: the isolation especially from those I was once close with before the symptoms worsened. #SpoonieChat https://t.co/pugaC2jEOh |
 | Linda Burnett @LindaBurnett666 RT @DawnMGibson: Hey #SpoonieChat, I switched over to my phone & bed to follow your glorious tweets. Chairs & Spondy bum don't match. |
 | Dorian Dorey 💜 & ☕ @coffeesister I’ve been struggling more due to even fewer spoons than usual so have been binging @Hulu; #HandmaidsTale & #PrivatePractice. #SpoonieChat A2 https://t.co/fr0bsQEEKw |
| 💖💄 Aoife ♿💜 @Aoiferocksitout @Solo_Spoonie @DawnMGibson I am glad you have that relative in your life. Do you two rely on each other for emotional support? #SpoonieChat |
| Creamy Peanut Butter & Chocolate @thebaddestnuna A8 it helps show how chronic illnesses and disabilities affect everyone differently. No one's case is the same. #SpoonieChat https://t.co/kqjeRLFIMm |
| Dawn M Gibson @DawnMGibson A8: #SpoonieChat https://t.co/dRtZEIZ0Aj |
| Dawn M Gibson @DawnMGibson A2: #SpoonieChat https://t.co/Plody3usrf |
 | .. WIN IPHONE 7 PLUS @giveawayweeps Hello. Dawn M Gibson (DawnMGibson) :) https://t.co/Ib7sqePMHd |
| Creamy Peanut Butter & Chocolate @thebaddestnuna A10 personally have thrown myself into running my music/makeup reviews IG pages, following MUAs cause I love the creativity #SpoonieChat https://t.co/haOuWXDUyh |
| TheLittleWolfHunter @LittleWolfBlog A9: Just that they are telling their real story, and that they are engaging. Also that they respond to other spoonies! #SpoonieChat |
 | Bonnie @bonniespoonie RT @thebaddestnuna: A5: 1. We're sick cause we've done something wrong 2. Diet/exercise is a cure all 3) chronic illnesses affect everyone the same #spooniechat https://t.co/w2Xjp6FMzC |
| 💖💄 Aoife ♿💜 @Aoiferocksitout @LupieBonnie @belle_belle @JessicaGimeno @arainbowatnight We should!! It's about time one of us wrote a book and said stop this bs to abled, snake oil salespeople! #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @LittleWolfBlog: A9: A9: Just that they are telling their real story, and that they are engaging. Also that they respond to other spoonies! #SpoonieChat |
| Dorian Dorey 💜 & ☕ @coffeesister Communicating at all is made difficult by the effects of #chronicillness, & the unsolicited advice makes it more... https://t.co/HvIFlgsNlm |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A4: A4: But deciding what/where/how/when to discuss health is very freeing. 2/2 #SpoonieChat https://t.co/DiziW3Kfcx |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A4: A4: You all know that I favor personal communication policy with preset boundaries. You can change mind... 1/2 #SpoonieChat https://t.co/DiziW3Kfcx |
| Dawn M Gibson @DawnMGibson A3: #SpoonieChat https://t.co/7QWO59Pbv6 |
| TheLittleWolfHunter @LittleWolfBlog A10: Hmmm, I do meditation 1x/day. Reminds me to be present. #SpoonieChat |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Aoiferocksitout: @DawnMGibson A5 I'm done w/ #Disability & #chronicillness myths from people who wouldn't be able to handle being in our bodies for 5 minutes #SpoonieChat |
| Dawn M Gibson @DawnMGibson We've got 9 minutes left of #SpoonieChat! Time flies when you're kicking ass. |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat https://t.co/cxzIhMX5nC |
| TheLittleWolfHunter @LittleWolfBlog @LupieBonnie HILARIOUS! Yeah. It was a busy day for me. Went to the gym on top of that. Resting now so I don't feel it later! :O #SpoonieChat |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ A5 Almost everything ppl think about #chronicillness and #Disability seems to be wrong. People tend to prefer to just ignore us #SpoonieChat https://t.co/IeWR4ivE1f |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q5: #SpoonieChat: Q5: #SpoonieChat: - What are the top 3 myths about #Disability & #ChronicIllness circulating right now? https://t.co/h4TZdLRThu |
| Brittney ♈️☮️♿️💎 @bcxx143 @Aoiferocksitout You can!! Every #spoonie can! That's the beauty of social media! Just start! #Spooniechat |
| Dorian Dorey 💜 & ☕ @coffeesister Questions asked with an open mind rather than advice offered from assumptions helps; in fact, actually being heard is huge. #SpoonieChat A4 https://t.co/RTEQe9Wh9c |
 | Tiffaannii @montreux76 @DawnMGibson A3 I was burned by a misDx a few yrs ago. I still struggle to talk even now since my health will always be somewhat mysterious #SpoonieChat |
| Dawn M Gibson @DawnMGibson Thanks for an excellent #SpoonieChat. Please follow us here: https://t.co/00QbZXWqh3 & let me know if you'd like in the closed group. |
| Dawn M Gibson @DawnMGibson #SpoonieChat, I hope to see you next week. Please be good to yourselves. Remember that you're valuable even when you can't do a thing. |
| Tiffaannii @montreux76 @DawnMGibson A4 Expressing concern, interest or curiosity is enough. I don't take for granted that everyone's comfortable w/ health talks #SpoonieChat |
| Dorian Dorey 💜 & ☕ @coffeesister #Disability’s assumed visible a #mobilityaid’s thought unneeded if mobile without, & that #spoonies can & should... https://t.co/3LYX9aKPI1 |
| Tiffaannii @montreux76 RT @DawnMGibson: A4: A4: But deciding what/where/how/when to discuss health is very freeing. 2/2 #SpoonieChat https://t.co/DiziW3Kfcx |
| Dorian Dorey 💜 & ☕ @coffeesister #Disability’s assumed visible, a #mobilityaid’s thought unneeded if mobile without, & that #spoonies can & should be vegan. #SpoonieChat A5 https://t.co/DdIu7ZBalP |
| Dorian Dorey 💜 & ☕ @coffeesister #Spoonies are often willfully misunderstood due to not being taken seriously, risking our #qualityofcare but also our lives. #SpoonieChat A6 https://t.co/NNsIVHyrbO |
| Dorian Dorey 💜 & ☕ @coffeesister #Spoonies are often willfully misunderstood due to not being taken seriously, risking our #qualityofcare but also... https://t.co/N2zU3M8kZ2 |
| Tiffaannii @montreux76 @Aoiferocksitout @DawnMGibson I... didn't know calling politicians was a thing. For insurance or anything healthwise. Curious about how the convo will go #SpoonieChat |
| Dorian Dorey 💜 & ☕ @coffeesister I’ve never seen media address the simple truth that so many of us live with undiagnosed yet still debilitating #chronicpain. #SpoonieChat A7 https://t.co/9BMd3mub7M |
| Tiffaannii @montreux76 @SignyTheSage Or young *coughs* or PoC *coughs* #SpoonieChat |
 | ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs Talking to folks on #SpoonieChat about how SJWs screaming "that's ableist bullshit" online doesnt help us the dis-abled. Makes me feel worse |
 | Laurie McCarthy @ajuryknows RT @77Rdub: I think we can all hope for a cure of remission though....I will never give up hope. #spooniechat https://t.co/Qq3Yh8eFo0 |
| Dorian Dorey 💜 & ☕ @coffeesister It’s as important to be honest about our #experiences as it is to be open to others’ but also to #share the ups & the downs. #SpoonieChat A8 https://t.co/OWDROIaRgM |
| Tiffaannii @montreux76 @DawnMGibson A7a I got to watch decompensated liver disease in both House of Cards *and* Shameless this year, which was good/bad #SpoonieChat |
#SpoonieChat content from Twitter.