#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Lia Pas @lia_pas RT @audreyrsutton: BEING DISABLED IS NOT A BAD THING! It is just an acknowledgement of my reality. And needing a cane/wheelchair is okay too. If it's a choice between them & not doing something, using a mobility device is the right choice. That's why they're called that! #spooniechat https://t.co/ND0lBPcAzT |
 | 💖💄 Aoife ♿💜 @Aoiferocksitout @LupieBonnie Thank you Bonnie, I hope it will be helpful to people! <3 #SpoonieChat |
 | Dawn M Gibson @DawnMGibson A1: #SpoonieChat https://t.co/fAwdZJZeZ6 |
| Dawn M Gibson @DawnMGibson A5: #SpoonieChat https://t.co/3dwXqyqzkt |
 | Brigit Young @BrigitYoung @DawnMGibson A3: No, not my own health story. But that's part of why my book has a protagonist with chronic pain! Tillie is a child dealing with pain way before I did, but I want kids to see that character. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A8: #SpoonieChat https://t.co/Opc21CPEXG |
 | Audrey R Sutton @audreyrsutton You have created a community! And for those of us who are easily isolated, that is SO important #SpoonieChat https://t.co/WK1qRTtOuN |
| Dawn M Gibson @DawnMGibson A9: #SpoonieChat https://t.co/y8GLh2THtp |
| Brigit Young @BrigitYoung @DawnMGibson A4: I think we/them need to find comfort and confidence in our own struggles and speak about them. Seems simple perhaps, but it's harder than it sounds! Us artists also need to continue to include characters with invisible/visible disabilities as much as possible. #spooniechat |
 | ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. That I really am unwell very often enough (at least 1x a week) to have to keep postponing and cancelling appointments which i then suffer guilt from doing so. That just time spent on recovery e.g. therapies, selfcare is really time-consuming. #SpoonieChat |
| Dawn M Gibson @DawnMGibson & tart cherry juice, good thoughts, being vegan, eating only meat, & exercising until we drop! #SpoonieChat https://t.co/56NaBFatQs |
| Dawn M Gibson @DawnMGibson RT @BrigitYoung: @DawnMGibson A4: @DawnMGibson A4: I think we/them need to find comfort and confidence in our own struggles and speak about them. Seems simple perhaps, but it's harder than it sounds! Us artists also need to continue to include characters with invisible/visible disabilities as much as possible. #spooniechat |
| Dawn M Gibson @DawnMGibson I'm here for a few more minutes. @ me if you feel like it. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A8: #SpoonieChat https://t.co/YNXmkbgjFp |
| Dawn M Gibson @DawnMGibson RT @avalon: A8. That I really am unwell very often enough (at least 1x a week) to have to keep postponing and cancelling appointments which i then suffer guilt from doing so. That just time spent on recovery e.g. therapies, selfcare is really time-consuming. #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. That I had to stop working a salaried fulltime job a decade ago (cos of depression) and freelance few yrs after, that just volunteer work caused me to develop another illness, and was something i needed sabbaticals from. I'm a workaholic. If i could work I would. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @BrigitYoung: @DawnMGibson A3: @DawnMGibson A3: No, not my own health story. But that's part of why my book has a protagonist with chronic pain! Tillie is a child dealing with pain way before I did, but I want kids to see that character. #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @DawnMGibson: I'm here for a few more minutes. @ me if you feel like it. #SpoonieChat |
| Brigit Young @BrigitYoung A5: Sigh. That ppl with #disability or #chronicillness are 1) Exaggerating 2) Lazy 3) Killjoys (“Come on! Come out tonight!” Etc) #SpoonieChat https://t.co/C5eXJeJteU |
 | Lily Blaze / Artist / Writer 🎨 ✍️ @neonvagabond @DawnMGibson Q3, non-fiction articles about what's called a "wild child." Children who grew up without learning how to talk, mostly because of abuse, and how they survived, #spooniechat |
| Dawn M Gibson @DawnMGibson RT @avalon: A8. That I had to stop working a salaried fulltime job a decade ago (cos of depression) and freelance few yrs after, that just volunteer work caused me to develop another illness, and was something i needed sabbaticals from. I'm a workaholic. If i could work I would. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @BrigitYoung: A5: A5: Sigh. That ppl with #disability or #chronicillness are 1) Exaggerating 2) Lazy 3) Killjoys (“Come on! Come out tonight!” Etc) #SpoonieChat https://t.co/C5eXJeJteU |
| Dawn M Gibson @DawnMGibson RT @neonvagabond: @DawnMGibson Q3, non-fiction articles about what's called a "wild child." Children who grew up without learning how to talk, mostly because of abuse, and how they survived, #spooniechat |
| Dawn M Gibson @DawnMGibson @BrigitYoung Thanks! Takes one to know one. So glad we were able to spend time together tonight. #SpoonieChat |
| Brigit Young @BrigitYoung This enormous and beautiful community of people should not have their authentic stories, realities, and inner lives be invisible in society. #SpoonieChat https://t.co/GTXfPCOflW |
| Brigit Young @BrigitYoung @DawnMGibson A7: Yes. I feel much if society’s critical voice in my own head. “It’s not that bad,” “Work through the pain,” etc. I am working to think “I need this help and it should be given to me.” #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. That my med insurance when i could pay it didnt cover mental illness (after not being able to work, couldnt pay it). I cant get insured again, neither medical nor life, until im 3 yrs off meds, even tho my illness is *chronic* i.e. lifetime. #SpoonieChat |
| Brigit Young @BrigitYoung @DawnMGibson A8: Fibromyalgia pain can change month to month, day to day and hour to hour. If we seem ok one minute that doesn’t mean we are the next. Also, we want to do things that just don’t make sense for us to do when we might flare or are flAring. #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. That the default insurance we get fr (Singapore) government - Medishield - will not cover medical costs due to selfharm, suicide which are symptoms of mental illnesses even if diagnosed before such incidences. That not every medication is subsidised by the govt. #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @audreyrsutton: BEING DISABLED IS NOT A BAD THING! It is just an acknowledgement of my reality. And needing a cane/wheelchair is okay too. If it's a choice between them & not doing something, using a mobility device is the right choice. That's why they're called that! #spooniechat https://t.co/ND0lBPcAzT |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @BrigitYoung: @DawnMGibson A8: @DawnMGibson A8: Fibromyalgia pain can change month to month, day to day and hour to hour. If we seem ok one minute that doesn’t mean we are the next. Also, we want to do things that just don’t make sense for us to do when we might flare or are flAring. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @BrigitYoung: @DawnMGibson A8: @DawnMGibson A8: Fibromyalgia pain can change month to month, day to day and hour to hour. If we seem ok one minute that doesn’t mean we are the next. Also, we want to do things that just don’t make sense for us to do when we might flare or are flAring. #SpoonieChat |
| Dawn M Gibson @DawnMGibson Night-night, #SpoonieChat! I love you all. |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @BrigitYoung: A5: A5: Sigh. That ppl with #disability or #chronicillness are 1) Exaggerating 2) Lazy 3) Killjoys (“Come on! Come out tonight!” Etc) #SpoonieChat https://t.co/C5eXJeJteU |
| Brigit Young @BrigitYoung @DawnMGibson A9: @DawnMGibson is a leader in the growing movement for the invisible to be visible, and she brings those suffering from isolation into a community of sharing and camaraderie. #SpoonieChat |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. When i cry cos of anxiety attack/depressive episode/painflare, just simple gestures of love like fetching me food and drink and tissues, and hugging me or holding my hand*, mean a great deal #SpoonieChat *touch may be painful or traumatising to some spoonies so do ask 1st |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs A8. That the world is different to those of us with disabilities, and details usually taken for granted by abled folks are big deals to us that we need to know of/prepare for in advance. That what may be simple can be very complicated, painful, huge tasks to us. #SpoonieChat |
 | Joyce Takako たかこ ♿️🤢💜 @JoyceTakako RT @Aoiferocksitout: A6 They harm. They become the narrative on all things #Disability. They become policy, and law. This is why we can never stop dispelling these myths. #SpoonieChat https://t.co/E4ZTzkSFH1 |
 | Charlotte ציפּורה Issyvoo @CIssyvoo #SpoonieChat No, never, nowhere, ever. Part of my story is that my chronic pain was caused by child abusers. Never ever have I seen any representation of a reality like mine. https://t.co/CKrP9wAGJj |
| Charlotte ציפּורה Issyvoo @CIssyvoo I think they should just let us tell our own stories, and amplify them, rather than speaking for us. Advocating, yes. Speaking for us, not. #SpoonieChat https://t.co/oTEBL7BBUz |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @DawnMGibson: A5: Common misconceptions about re: A5: Common misconceptions about re: #Disability & #ChronicIllness include: 1. Patients are just lazy and can get better if they want to. 2. Patients just want drugs or sympathy. 3. Patients exaggerate the severity of limitations. #SpoonieChat https://t.co/nFTAoAEBnR |
 | L (Mutant and Proud) ♿️ 🏳️🌈 @KitsunenoYoukai RT @DawnMGibson: A5: Common misconceptions about re: A5: Common misconceptions about re: #Disability & #ChronicIllness include: 1. Patients are just lazy and can get better if they want to. 2. Patients just want drugs or sympathy. 3. Patients exaggerate the severity of limitations. #SpoonieChat https://t.co/nFTAoAEBnR |
 | 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Spoonie Chat Questions 6-13-2018: Spoonie Chat Questions 6-13-2018: - @DawnMGibson founded the The Original #SpoonieChat in 2013 and can be... https://t.co/YCOdJa0cMI |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: The #SpoonieChat mascot cordially invites you to join us. She even got her hair brushed & cut for the occasion. https://t.co/wjJLxHfzCZ |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q1: #SpoonieChat: Q1: #SpoonieChat: - Introduce yourself & share what’s happening in your world in a way you’re comfortable... https://t.co/ZS582anKRN |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Good evening & welcome to #SpoonieChat. I'm Dawn, the founder of this community. You can learn more about me here: https://t.co/k0FjH5r5bJ https://t.co/RbOprLDChl |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q2: #SpoonieChat: - Please name some health story lines that shaped your view of patients? Ex: Q2: #SpoonieChat: - Please name some health story lines that shaped your view of patients? Ex: literature,... https://t.co/NOYodsj6yQ |
 | Easter 💮 Jenn @jlms_qkw RT @DawnMGibson: Q1: #SpoonieChat: Q1: #SpoonieChat: - Introduce yourself & share what’s happening in your world in a way you’re comfortable... https://t.co/ZS582anKRN |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A2: A2: I've never seen #Spondylitis on TV or in film. #SpoonieChat https://t.co/uSoYBGBrQp |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q3: #SpoonieChat: - Have you seen anything like your health story represented? How was it? Ex: Q3: #SpoonieChat: - Have you seen anything like your health story represented? How was it? Ex: literature,... https://t.co/A9rG6XOAkJ |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q4: Q4: #SpoonieChat: How should storytellers & advocates use social media & other platforms to represent our stories? https://t.co/FJotkNSWpI |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q5: #SpoonieChat: Q5: #SpoonieChat: - What are the top 3 myths/misconceptions about #Disability & #ChronicIllness? https://t.co/7Pi4xv2vUW |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q4: #SpoonieChat: Q4: #SpoonieChat: - How should storytellers & advocates use social media & other platforms to represent... https://t.co/wGaT5CT4VT |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A5: Common misconceptions about re: A5: Common misconceptions about re: #Disability & #ChronicIllness include: 1. Patients are just lazy and can get better if they want to. 2. Patients just want drugs or sympathy. 3. Patients exaggerate the severity of limitations. #SpoonieChat https://t.co/nFTAoAEBnR |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q6: #SpoonieChat: Q6: #SpoonieChat: - Why do myths/misconceptions about #Disability & #ChronicIllness matter? https://t.co/FtUfb9rqEG |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A4: A4: #SpoonieChat https://t.co/scItse3T8y |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: A6: A6: Misconceptions about health & ability lead to faulty judgments about character, needs, and ability. #SpoonieChat https://t.co/dAc6geYjLo |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q7: #SpoonieChat: Q7: #SpoonieChat: - Do myths/misconceptions about #Disability & #ChronicIllness prevent or interfere with... https://t.co/Cs6Vy1Z2GY |
| Easter 💮 Jenn @jlms_qkw RT @DawnMGibson: The #SpoonieChat mascot cordially invites you to join us. She even got her hair brushed & cut for the occasion. https://t.co/wjJLxHfzCZ |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q8: #SpoonieChat: Q8: #SpoonieChat: - What do you want people to understand about your health situation. Feel free to... https://t.co/D4ZV1T7Qm4 |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @DawnMGibson: Q9: #SpoonieChat: Q9: #SpoonieChat: - I’m preparing a new fundraiser. Please reply to this tweet with reasons why my work... https://t.co/zXnpiveFu5 |
 | chronically ill @Rdoherty102 @DawnMGibson A4 tell the truth. There's good days & bad days. And it's okay to have both. Both are normal. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A5 1) we can't do ANYTHING EVER. 2) we whine because we can/enjoy it. 3) we use our illnesses as excuses. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A6 people believe in the wrong things & stop listening to what we actually say cause they think we are lying instead. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A7 yep. I am not on any pain meds cause my doctors think I'm too young to be in this much pain. They literally don't believe my pain rating. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A8 I work my ass off to be "normal" im weak & in pain daily, it just fluctuates but I do my best to push through & live my live anyways. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A9 it's a way to connect to others that experience the same thing that we do. #SpoonieChat |
#SpoonieChat content from Twitter.