#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Audrey R Sutton #forTinu @audreyrsutton Hey I'm Audrey. I have a date tomorrow so I got a haircut today. It was more of a trim than a full cut, but it was also less than $20 so I'm okay with that. Almost passed out after though, oops! That's what I have puppy for but I left him home #SpoonieChat https://t.co/5pqZHpVNOk |
 | Holly Smith @HollyESmith1 RT @DawnMGibson: A4: So true! #SpoonieChat https://t.co/UElWdr0jBL |
 | @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @Meryals: @DawnMGibson A6: that you can't always just push through it. Sometimes you just have to stay in bed. That just because I'm smi… |
 | Tina @Nice_White_Lady A2 It means a lot, especially for my mental health. #SpoonieChat https://t.co/VY8AI1DnV5 |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson I'm here for about 20 more minutes. @ me if you'd like that. #SpoonieChat |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @Nice_White_Lady: A2 It means a lot, especially for my mental health. #SpoonieChat https://t.co/VY8AI1DnV5 |
 | Alice’s Nightmare, DNP, NP-C @AliWonderHell #SpoonieChat A5. Again, offered no. However I DO know why I have pain and fatigue. I figured it out for myself. And I know MY health, my contributing factors and my presentation fairly well now. I function remarkably well for my issues BECAUSE I understand why and how to manage |
 | Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu A3. Having fatigue is like: ✅Being a battery on a smartphone at 3% with 4 charge-draining tasks to do ✅ Starting an extra 200m/yards behind in a 1000m/yards race ✅Always cancelling, rarely accommodated ✅Feeling from a planet with different speed defaults. #SpoonieChat https://t.co/an1OOWBasR |
| Tina @Nice_White_Lady A3 It’s like the flu without the sympathy. #SpoonieChat https://t.co/e75ryioy8M |
| Audrey R Sutton #forTinu @audreyrsutton It can mean feeling seen, but a lot of the time it feels like being judged especially when it comes to pain. The backlash from drug companies pushing opioids hurt patients&our ability to get our pain managed, especially by doctors who are too scared to prescribe any #SpoonieChat https://t.co/kpwrQWpDhQ |
| Audrey R Sutton #forTinu @audreyrsutton RT @DawnMGibson: #SpoonieChat: We're talking about the interior/personal experiences of #ChronicPain & #fatigue. |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A6: This is such an important social-physical dynamic for many of us. We need to make our choices and draw our own boundaries as often as possible. #SpoonieChat https://t.co/smLg9W1YrH |
 | #MEAction Network @MEActNet RT @Tinu: A3. Having fatigue is like: ✅Being a battery on a smartphone at 3% with 4 charge-draining tasks to do ✅ Starting an extra 200m/… |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @Nice_White_Lady: A3 It’s like the flu without the sympathy. #SpoonieChat https://t.co/e75ryioy8M |
 | ReadBetweentheLyme @readbtwnthelyme RT @DawnMGibson: Tonight's #SpoonieChat Questions 6-20-2018: Talking Chronic Pain & Fatigue: https://t.co/nlkQtXoVFe |
| #MEAction Network @MEActNet RT @Nice_White_Lady: A3 It’s like the flu without the sympathy. #SpoonieChat https://t.co/e75ryioy8M |
 | Megs @DirrtySunshine @DawnMGibson A9: I'd love to hear from people in the #spooniechat community who are trying to navigate dating while suffering from a chronic illness! I still haven't quite figured that one out. It's hard to find people who understand and/or aren't scared away. #spooniechat |
| Alice’s Nightmare, DNP, NP-C @AliWonderHell #SpoonieChat A6 the most important thing I think people should know is two-fold. 1. Those who live with these are scared to tell anyone because of stigma AND the fear of being dismissed and ignored. |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @Meryals: @DawnMGibson A9: I'd love to hear from people in the #spooniechat community who are trying to navigate dating while suffering… |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @audreyrsutton: It can mean feeling seen, but a lot of the time it feels like being judged especially when it comes to pain. The backlas… |
| Tina @Nice_White_Lady A4 It feels like my brain is gaslighting my body. I feel pain, but nothing’s broken or bruised. #SpoonieChat https://t.co/4JTxXtnAiC |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A7: I hear you. There are lots of buttons that get pressed. #SpoonieChat https://t.co/QD1Wt7XJgp |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @Nice_White_Lady: A4 It feels like my brain is gaslighting my body. I feel pain, but nothing’s broken or bruised. #SpoonieChat https://t… |
| Audrey R Sutton #forTinu @audreyrsutton Honestly I just feel so tired so much of the time. Not just sleepy, but seriously bone fucking tired. Not to mention my general dizziness & having to take it fairly easy so I dont pass out. #SpoonieChat https://t.co/cVc2TPL5m8 |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu A4. Nothing I could have ever imagined when I was well is sufficient to describe my #chronicpain. It's a whole new level of bad. How do you describe pain that won't end? #SpoonieChat |
| Alice’s Nightmare, DNP, NP-C @AliWonderHell #SpoonieChat A7 work costs me the most energy. But I love what I do, so I give it until I drain myself trying to help others in the ways no one was there to help me.but it exhausts me every single day. |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @DawnMGibson: A4: #SpoonieChat https://t.co/33jbMCBnNJ |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @DawnMGibson: A4: So true! #SpoonieChat https://t.co/UElWdr0jBL |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @AliWonderHell: #SpoonieChat A4. Chronic pain...is merely my reality. I am fortunate, when my care is optimized I live at a 2-3/10. Whe… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @viaholiday: A4 when it's bad it's my left side from bottom of rib cage to down my leg being stuck in an electrical outlet on fire #Spoo… |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A7: I hear this. It's real for so many of us. #SpoonieChat https://t.co/xizJfgDfJK |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Aoiferocksitout: A4) 3) Oh yeah!! One of the kinds of abdominal pain I experience feels like the alien baby in #Alien is about to burs… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @DawnMGibson: A4: You're very generous to share this. Thanks for being open. #SpoonieChat https://t.co/ys4hjk30xo |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Aoiferocksitout: A4) 2) The only metaphors for #ChronicPain that even come close, would be Christian hell imagery, and details of never… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Aoiferocksitout: A4 18 years, 24/7 chronic pain,add an additional 6 years where it was chronic,but not non-stop. Untreated #ChronicPain… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @DawnMGibson: A4: #ChronicPain is always there. On one hand, it's drilling holes and draining energy. On the other, it's ready to bu… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @DawnMGibson: A4: There is a baseline of ache, gnawing, & hot twisting. But the breakthrough pain is ALWAYS ready to pounce like a great… |
| Alice’s Nightmare, DNP, NP-C @AliWonderHell #SpoonieChat A8. I do not ever eat many carbs during my day. I cannot afford to eat them, they will shut me down. Caffeine and low carb/high protein eating or I will not make it to the end of any given day. |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A3: #Fatigue #SpoonieChat https://t.co/yt6WlSB6JI |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson RT @AliWonderHell: #SpoonieChat A8. I do not ever eat many carbs during my day. I cannot afford to eat them, they will shut me down. Caff… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu MMJ helped so much. It's an incredible burden to live in a state where it's not legal. If I could leave I would. #SpoonieChat https://t.co/kVc3GA4zUN |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu Being ruthless with breaks. Need another. #SpoonieChat |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A6: Excellent insights into #ChronicPain. #SpoonieChat https://t.co/OoH93B1NJ7 |
| Holly Smith @HollyESmith1 RT @DawnMGibson: A6: This is such an important social-physical dynamic for many of us. We need to make our choices and draw our own bound… |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A3: #Fatigue #SpoonieChat https://t.co/AaR2BgtbcS |
 | Spoon UMB @SpoonUmb It was worth the wait! #onesheetpan meals are the Future! #dinnertime #dinnerparty #dinnertime #chicken #veggies #SpoonieChat @ChowAbroad @omarhern90 @dunkinbuddy https://t.co/QGP7c6tPDt |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A4: #ChronicPain #SpoonieChat https://t.co/GNqqIsLQj9 |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A5: #SpoonieChat https://t.co/RkVCxGab5k |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A6: #SpoonieChat https://t.co/dpl218WwoS |
| @JoyceTakako RT @DawnMGibson: A3: #Fatigue #SpoonieChat https://t.co/yt6WlSB6JI | |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson A8: #SpoonieChat https://t.co/5xzjbEFyQv |
| @JoyceTakako RT @viaholiday: A4 when it's bad it's my left side from bottom of rib cage to down my leg being stuck in an electrical outlet on fire #Spoo… | |
| Audrey R Sutton #forTinu @audreyrsutton Taking a quick break from #SpoonieChat to clean up my room while I've got the momentum from my shower moving me |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Darlings, thanks for another lovely & amazing #SpoonieChat session. I gotta bounce now, but feel free to keep answering. |
 | Chronically Undiagnosed @queenofnodx That it affects mind body and soul. I can be "resting" but still feel terrible. And not have the energy to even respond to messages or something. #SpoonieChat https://t.co/1FIeBs2zo9 |
 | Sharon the Crohnie @FragrantGrace A6 If I could control it, believe me I would. #SpoonieChat https://t.co/EVhv2A4pz3 |
 | Savvy Cooperative | #AskPatients @savvy_coop Stories needed from those who have been forced to switch to #Humira, either while taking or being newly prescribed a different med (like Cimzia, Enbrel, Remicade, etc). If that’s you, get in touch and share your #PatientExperience! #rheum #ibdchat #ibd #SpoonieChat https://t.co/qPozbj9xRV |
| Sharon the Crohnie @FragrantGrace A7 Def extended family drama. Can't put my phone on do not disturb fast enough. #SpoonieChat https://t.co/cuStArn2VZ |
| Sharon the Crohnie @FragrantGrace Tweet of the century for those suffering chronic pain and fatigue!! #SpoonieChat https://t.co/BupSFS6Y1C |
| Sharon the Crohnie @FragrantGrace A8 Put on the brakes. What matters most is done in the morning. After that it's a bonus if anything gets done. If fatigue overwhelms me, I just put on the brakes. That's it. I'm done. #SpoonieChat https://t.co/vuHMOMceWw |
 | Girls With Guts @IBDgirls RT @savvy_coop: Stories needed from those who have been forced to switch to #Humira, either while taking or being newly prescribed a differ… |
 | Angela Cohen @angelee828 RT @savvy_coop: Stories needed from those who have been forced to switch to #Humira, either while taking or being newly prescribed a differ… |
 | nobism @nobismhealth RT @savvy_coop: Stories needed from those who have been forced to switch to #Humira, either while taking or being newly prescribed a differ… |
 | chronically ill @Rdoherty102 @DawnMGibson A1 a very, very tired working girl. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A2 it just irritates me. It's a lot of "you shouldn't be in this much pain, you're scamming for drugs etc" #SpoonieChat |
| Audrey R Sutton #forTinu @audreyrsutton Some days are better than others & some are worse, but it's pretty much always there. And it makes you tired faster & your brain slower bc all of it takes a toll on you & it just grows over time, making you more tired. You don't reset every morning #SpoonieChat https://t.co/d3isnw67ag |
| chronically ill @Rdoherty102 @DawnMGibson A3 I'm tired all the time. It's hard to do basic things and I never feel rested. It's like walking around with weights on my limbs 24/7. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A4 everything hurts all the time. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A5 nope. They said I might have fibromyalgia and left it as that. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A6 it's 24/7 and I can't make it stop just cause I'm busy. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A7 being outside or with others. Anything with a big temp change or extreme emotion. It just takes a lot out of me. #SpoonieChat |
| Audrey R Sutton #forTinu @audreyrsutton From ya'll yes: pain makes you tired, the end. Well, not always the end but being in pain is exhausting so of course I'm tired. Though recently I was given the other half of my exhaustion equation, that being a diagnosis where fatigue is part of my symptoms #SpoonieChat https://t.co/X8MtOdrBVr |
| chronically ill @Rdoherty102 @DawnMGibson A8 rest!!!! Hydrate! Take care of myself. #SpoonieChat |
| chronically ill @Rdoherty102 @DawnMGibson A9 #SpoonieChat https://t.co/vYPZfAhrvo |
#SpoonieChat content from Twitter.