#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Petty Letty, MHA @Shopah0lliQ RT @TiffanyAndLupus: A5. As always, I look forward to my returning fall anime favorites. It’s my favorite thing to look forward to as the s… |
 | 👋🏼 @wordsbymj.bsky.social @wordsbymj @kateandcrps @TitoTitoq85 Same. #SpoonieChat |
 | TF2 mercs fleshlight 🍆 @2DMansWh0re RT @chromesthesia: @Tinu Money. I just need to have my GoFundMe and cash app signal boosted. it's my birthday month. Also not having a rand… |
 | 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ A5. My memory is in such shambles that I've lost track of shows I am watching now... So I'm not really sure... #SpoonieChat https://t.co/HXxPjSDRol |
 | TheDisabilityEnthusiast @twitchyspoonie RT @Tinu: Q9b. @DawnMGibson is a light on my life. I would be entirely lost without #SpoonieChat. I've admired her advocacy work for EVE… |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @wordsbymj: @Mae_DayJ I hear you. These days I’m just focusing on taking one thing or moment at a time. #SpoonieChat |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ @TitoTitoq85 @DawnMGibson @coffeespoonie @Tinu Thanks so much luv. You know you're always one of my favs too! 💚 #SpoonieChat |
 | Tiffany ⁷ @TiffanyAndLupus RT @twitchyspoonie: A9b. Butterflies! She shares her amazing butterflies and they bring so much joy to me whenever I see them. She's also… |
 | Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Mae_DayJ: A4. I didn't get to swim at all this summer so that's always a bummer for me. I hate getting closer to winter cause it's abso… |
| Tiffany ⁷ @TiffanyAndLupus RT @joannaspaghetti: @Tinu A7 #SpoonieChat, and MOST IMPORTANTLY!! If you're able to (and if there's good counselors), TAKE ADVANTAGE OF FR… |
| Tiffany ⁷ @TiffanyAndLupus RT @joannaspaghetti: @Tinu A7 #SpoonieChat. Your mental and physical health is more important than your grades. Remember to take care of yo… |
 | Lisa Frank @bluepoet21 A0) I’m Lisa #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @TiffanyAndLupus That's a good signal and good advice. I don't take note of that sign enough. #SpoonieChat |
| Lisa Frank @bluepoet21 A1) I want to have a better Fall season than I did last year #SpoonieChat |
| TheDisabilityEnthusiast @twitchyspoonie RT @joannaspaghetti: @Tinu A8 #SpoonieChat, it means community, connection with people who understand how devastating and destructive chron… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @joannaspaghetti Therapy can be so under-rated. I used to be scared I'd be in it forever. But my first experience was 6 weeks of weekly sessions that helped Immensely. #SpoonieChat |
| Tiffany ⁷ @TiffanyAndLupus A9b. @DawnMGibson is such a bright light in the chronic illness community. She continuously lifts up others and checks on those who are having hard times. She is joy personified and I feel blessed to call her a friend. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @twitchyspoonie: A9b. Butterflies! She shares her amazing butterflies and they bring so much joy to me whenever I see them. She's also… |
| Lisa Frank @bluepoet21 A2) doctors that listen and no insurance hassles #SpoonieChat |
 | Joanna Spaghetti @joannaspaghetti @Tinu A9 #SpoonieChat, @DawnMGibson has brought together a wonderful community with grace and compassion. When I first participated, she encouraged me to keep pushing doctors and provided me with some resources on ankylosing spondylitis, which I was looking into at the time. |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @marastories @twitchyspoonie I agree! - @DawnMGibson's butterflies are a WHOLE MOOD. I forget when it's coming every year so it feels like a lovely surprise each time. #SpoonieChat |
| Tiffany ⁷ @TiffanyAndLupus @Tinu I’m trying to be more present about how my mind and body are doing at the beginning of each day. So if I’m not having a good mental health day — I remind myself to be gentle and treat myself with kindness. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @gorgophone It's really important. I don't know if we need PSAs on TV or just more media representation or a combination of the two things but something has to change there. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @TiffanyAndLupus: A9b. @DawnMGibson is such a bright light in the chronic illness community. She continuously lifts up others and checks… |
 | Sharon the Crohnie @FragrantGrace @Tinu A7 Online school is saving my graduate work! My pace, my schedule around doctor appointments #spooniechat |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @Mae_DayJ Me too! But I know they’re coming! #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @TiffanyAndLupus @DawnMGibson What a perfect way to phrase is. Joy personified is the perfect way to describe her. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @mattbc Thanks Matt. I agree she is a treasure. #SpoonieChat |
 | Rebecca Cokley @RebeccaCokley we ❤️ @DawnMGibson . She’s made #SpoonieChat a sanctuary for folks with disabilities and chronic illness on here. Send her some love. :) |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @HiHo2go I'm a big sweater too. They said it's the fibro for me too, during the day. I HATE IT. lol but I also hurt from cold weather. I love Spring and Fall. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @lov3jonez That was so beautiful. #SpoonieChat |
| Sharon the Crohnie @FragrantGrace @Tinu A9 It is hard to place a value on identity, growth, & perspective I am grateful to Dawn and everyone here at #SpoonieChat |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @gorgophone @Tinu God, THIS #SpoonieChat |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 Love you, @DawnMGibson! |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @wordsbymj @gorgophone Did that not strike a huge chord? I've been thinking about that since I read it. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @FragrantGrace: @Tinu A9 It is hard to place a value on identity, growth, & perspective I am grateful to Dawn and everyone here at #Sp… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @RebeccaCokley: we ❤️ @DawnMGibson . She’s made #SpoonieChat a sanctuary for folks with disabilities and chronic illness on here. Send h… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @TonyaWithAPen YES. Man I hate bugs with the passion of a billion white hot suns. #SpoonieChat |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ A9. So I got Hot scrambled eggs for brains But I'll never forget meeting my WebAuntie-because at the time I wondered why that was her Tumblr name lol. But it's 💯 who she is! @DawnMGibson became my true gateway to the kindest sides of the Spoonie/nerd/blerd Twitter #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @FragrantGrace I'm so scared to do that. I don't know what's wrong with me lol. My sister did it. I'm petrified. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @TiffanyAndLupus You're so wise. I'm going to start doing this. It can replaced the ritual I used to have of internally yelling at myself for getting up late. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @TiffanyAndLupus: @Tinu I’m trying to be more present about how my mind and body are doing at the beginning of each day. So if I’m not h… |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @Tinu @gorgophone YES. It’s hard to feel loved when people dismiss your needs. It’s hard to reconcile the people you love being good people who can treat you so badly. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Mae_DayJ: A9. So I got Hot scrambled eggs for brains But I'll never forget meeting my WebAuntie-because at the time I wondered why tha… |
 | @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Thanks for all the love! It always feels great to know that I've made a difference. I got sick in 2001. Founded #SpoonieChat in 2012. Became The Dude's #Alz caregiver in 2016. And now I'm starting over again. It's game on, after some more rest... #Disability |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @Mae_DayJ Do you know that I just put that together? lol How is your brain always beating me? Lovely words. Thanks for being here and sharing those thoughts. #SpoonieChat |
| TheDisabilityEnthusiast @twitchyspoonie RT @RebeccaCokley: we ❤️ @DawnMGibson . She’s made #SpoonieChat a sanctuary for folks with disabilities and chronic illness on here. Send h… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @FragrantGrace @wordsbymj LOL misread that earlier and didn't realize you were talking to @DawnMGibson. I agree. I don't know what I would do without this place. It's truly my pleasure Sharon. #SpoonieChat |
| Joanna Spaghetti @joannaspaghetti RT @TiffanyAndLupus: A3. Losing interest in things I usually enjoy — for me, is usually a signal that depression is waxing high. I try to g… |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ All the truest, fairest, and realest people I've met were met thru her for Facts! #SpoonieChat https://t.co/hDPMFT7qXM |
 | Kathy Flaherty @ConnConnection @Tinu Sending 💜 to @DawnMGibson who has shown so much love and support to the #SpoonieChat community. |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @joannaspaghetti: @Tinu A8 #SpoonieChat, it means community, connection with people who understand how devastating and destructive chron… |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ @Tinu Very happy to! She is amazing and so worth our time and support! #SpoonieChat |
 | Anne Johansen @AnneJohansen16 RT @RebeccaCokley: we ❤️ @DawnMGibson . She’s made #SpoonieChat a sanctuary for folks with disabilities and chronic illness on here. Send h… |
 | Body Autonomy Advocacy Acct. @DisDatinChat RT @Mae_DayJ: A9. So I got Hot scrambled eggs for brains But I'll never forget meeting my WebAuntie-because at the time I wondered why tha… |
 | 🏰💚House of Pharmaceutica📺⚕️ @ChronicLoaf_ RT @Mae_DayJ: A9. So I got Hot scrambled eggs for brains But I'll never forget meeting my WebAuntie-because at the time I wondered why tha… |
| Body Autonomy Advocacy Acct. @DisDatinChat RT @Tinu: Q9. As you may know, our #SpoonieChat founder & community leader is going through a hard time at the moment. If you would pleas… |
| 🏰💚House of Pharmaceutica📺⚕️ @ChronicLoaf_ RT @Tinu: Q9. As you may know, our #SpoonieChat founder & community leader is going through a hard time at the moment. If you would pleas… |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Tinu: Q9. As you may know, our #SpoonieChat founder & community leader is going through a hard time at the moment. If you would pleas… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @TonyaWithAPen I HATE IT when people say I'm too sensitive. Especially people who enjoy the fruit of that sensitivity. They love when I comfort them or write them something. Or when I get a cold and they don't because I'm a walking early warning system. Grrr. #SpoonieChat |
 | @httorg@bsky.social @HTTOrganizers RT @Tinu: Q9. As you may know, our #SpoonieChat founder & community leader is going through a hard time at the moment. If you would pleas… |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @Tinu @gorgophone I know. It’s hard for me to understand the apathy because I’m a serious empath. I wouldn’t need even half the explanations I’ve given to others, but I’d certainly be appreciative and respectful if someone was patient and kind enough to share them. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @Mae_DayJ I had to write mine down. There's no other way. I put what night they're on, whether I DVR'd so I don't end up with four different copies of the same show LOL. I'm a mess too. #SpoonieChat |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ @TonyaWithAPen If you are not seeing a therapist. Seeing one can really help you make progress... You get stuck in cycles and your behavior will become part of it too Because when they hurt you you will react or recoil... It gets hard to make progress during conflict #SpoonieChat |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @Tinu @TonyaWithAPen Me too. And what a great observation: “Especially people who enjoy the fruit of that sensitivity. They love when I comfort them or write them something.” So true. Where do they think it comes from? #SpoonieChat |
| Body Autonomy Advocacy Acct. @DisDatinChat RT @Tinu: Q8. What does #SpoonieChat mean to you? Or if you’re new, how are you enjoying the experience? |
| 🏰💚House of Pharmaceutica📺⚕️ @ChronicLoaf_ RT @Tinu: Q8. What does #SpoonieChat mean to you? Or if you’re new, how are you enjoying the experience? |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Malka_G: .@DawnMGibson has given so much to so many people. She built the wonderful #SpoonieChat community and devoted herself to carin… |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj @Tinu I hear you. The relentless bad policy announcements alone have been getting unbearable. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @estarianne @Mae_DayJ I get too bored. I think if I was in less pain or had my own kids or was driving again, it wouldnt matter as much. #SpoonieChat |
| 👋🏼 @wordsbymj.bsky.social @wordsbymj Okay, my blood sugar has bottomed out. I started crashing awhile ago but didn’t want to miss the conversation. Looking forward to revisiting chat questions after I eat 😊 #SpoonieChat |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson I'm not a #dementia caregiver any more. The Dude has died, we've cleaned out his room, & left #MemoryCare behind. Description: A view between two buildings from the parking lot, where The Dude used to live. |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Dementia patients are hard on their possessions. We had to throw out almost everything in his room. We left the therapy dog, outerwear, & a few books. #Disability #SpoonieChat #Alz https://t.co/bYcWgGhLin |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson The gifts we left for The Dude's team. Description: Two Bath & Body Works shopping bags, crochet topped hand towels, pack of Thank You cards, & two bottles of soap. #Disability #SpoonieChat #Alz https://t.co/1S3CX86IrC |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson We weren't permitted to give the staff gifts while The Dude was there, but they don't work for us any more. So we left them a few nice soaps, towels, & other useful items. #Disability #SpoonieChat #Alz |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson I wish I could give them each 1 million dollars. That's what they deserve. I wish I had the words to tell them what they've done for us. #Disability #SpoonieChat #Alz |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Description: A wall decal meant to look like a Monarch Butterfly, on The Dude's wall. We put some up for him to have something to see if he woke up. #Disability #SpoonieChat #Alz https://t.co/VXlIHf6aVn |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Description: Buddy, The Dude's stuffed therapy dog sits on his dresser, with his thick framed glasses, & other personal items. #Disability #SpoonieChat #Alz https://t.co/LlF9IttSnY |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson Description: Buddy, the tricolor stuffed "Beagle" puppy on the couch at the #MemoryCare. That's where I left him. #Disability #SpoonieChat #Alz https://t.co/vE9I8tpIXz |
 | Bear ♿🥄 @BearAndBradley @gh0ulpvnk @Tinu Urban Studies. I want to do local activism and government stuff. Helping people. We will see how it goes! #SpoonieChat |
 | Supremely Feminine Scourge™ @ArtistAstrid @Tinu A2. I felt this question hard. I wish I could have caffeine. I wish I could stay outside in the rain or snow for an hour. I wish pushing myself for 1 day didn't mean I'll be exhausted for 4. #SpoonieChat |
| @dawnmgibson.bsky.social @spooniechat.bsky.social @DawnMGibson We're meeting the Funeral Director tomorrow, to get our paperwork, etc. #Disability #SpoonieChat #Alz |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @joannaspaghetti: @Tinu A8 #SpoonieChat, it means community, connection with people who understand how devastating and destructive chron… |
| 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @Tinu: Q8. What does #SpoonieChat mean to you? Or if you’re new, how are you enjoying the experience? |
 | 💖💄 Aoife #ForTinu ♿💜 @Aoiferocksitout @marastories @Tinu Oooooh, yes! Enjoy having no upstairs neighbors! #SpoonieChat |
| 💖💄 Aoife #ForTinu ♿💜 @Aoiferocksitout @Tinu A1 I'm hoping some things begin to improve. Summer really hurts, winter hurts now, so spring and fall are what's up these days! September is still really hot here, especially in the last few years, so we'll all see. #SpoonieChat |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu RT @Aoiferocksitout: @Tinu A1 I'm hoping some things begin to improve. Summer really hurts, winter hurts now, so spring and fall are what… |
| Tinu Abayomi-Paul aka Empress of Twerk. NO DMs @Tinu @Aoiferocksitout ugh. Remember when September was fall-ish? I loved Septembers in Maryland until like 2010. #SpoonieChat |
#SpoonieChat content from Twitter.