#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag.
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See #WEGOHealthChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Social Health Network @socialhealthnet Welcome to today's #WEGOHealthChat! Today we're talking about recognizing #PatientLeaders! Should we recognize Patient Leaders? Who should do it? How should they do it? Have you ever been recognized? |
 | Must Stop MS! @MustStopMS RT @wegohealth: Only 5 minutes until our #WEGOHealthChat! Who is joining us today? @BarbyIngle @MustStopMS @HeadacheHeroine @pettigrew66 @MusingsfromaSNM @Shoutaboutpain https://t.co/chbUkZCkr8 |
| Social Health Network @socialhealthnet But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be labeled Q1, Q2, Q3, etc & answers should be labeled A1, A2, A3, etc by you! #WEGOHealthChat |
| Must Stop MS! @MustStopMS @wegohealth @BarbyIngle @HeadacheHeroine @pettigrew66 @MusingsfromaSNM @Shoutaboutpain Me! Me! Me! Me! #WEGOHealthChat |
 | Dr. Phyllisa Deroze @not_defeated RT @wegohealth: Welcome to today's #WEGOHealthChat! Today we're talking about recognizing #PatientLeaders! Should we recognize Patient Leaders? Who should do it? How should they do it? Have you ever been recognized? |
 | 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthchat Hi all! :) So happy to be with all of you in this exciting conversation about the #WEGOHealthAwards. |
| Must Stop MS! @MustStopMS RT @wegohealth: Welcome to today's #WEGOHealthChat! Today we're talking about recognizing #PatientLeaders! Should we recognize Patient Leaders? Who should do it? How should they do it? Have you ever been recognized? |
| Social Health Network @socialhealthnet If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! 👉🏻 https://t.co/9i1EOf6oWI |
 | Maya Northen Augelli @mayanorthen Getting ready for #WEGOHealthChat. Excuse excessive tweets please. |
| Dr. Phyllisa Deroze @not_defeated Yes, it is important, we work very hard trying to make the world a better place. #wegohealthchat https://t.co/u2HsRH5N5a |
| Social Health Network @socialhealthnet No doubt this is an exciting and crucial topic within the Patient Leader Community. So let's dive in! #WEGOHealthChat |
| Social Health Network @socialhealthnet Q1. Is it important to recognize the work Patient Leaders do? #WEGOHealthChat |
| Must Stop MS! @MustStopMS @justagoodlife @wegohealth @BarbyIngle @HeadacheHeroine @pettigrew66 @MusingsfromaSNM @Shoutaboutpain Hey there! #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthchat Sounds good @wegohealth :) |
| Must Stop MS! @MustStopMS RT @wegohealth: Q1. Is it important to recognize the work Patient Leaders do? #WEGOHealthChat |
 | Kimberly Amelia @fireflyrn84 Hey everyone! Kim here for a little bit! Missed a few :) #WEGOHealthChat |
 | Dawn M Gibson @DawnMGibson RT @wegohealth: No doubt this is an exciting and crucial topic within the Patient Leader Community. So let's dive in! #WEGOHealthChat |
 | Alan Brewington @abrewi3010 A1 it’s important to recognize quality content from any and all patient leaders. We need more #arthritis pts looking at #narcolepsy or #ME work for example. #nosilos #WEGOHealthChat |
| Must Stop MS! @MustStopMS A1 - ABSOLUTELY! There is comfort in knowing someone is fighting for you and your cause. That something is being done to make a difference. #WEGOHealthChat |
| Dr. Phyllisa Deroze @not_defeated A1. Yes, it is important because patient leaders are often doing advocacy work out of the kindness of their hearts trying to make the world a better place. #wegohealthchat https://t.co/TufGMW3gTT |
| Maya Northen Augelli @mayanorthen A1: Absolutely. Our work is important and it takes a lot of time, energy, and effort. If I do say so myself. :- ) #wegohealthchat |
 | Leslie Krongold, EdD @Leslie_GHF A1: Of course! In my immediate patient community it's vital to recognize both patient and caregiver leaders. Often patients are just too sick to become leaders or they can only play the role for awhile. #WEGOHealthchat |
 | Barby Ingle Official @BarbyIngle A1. YES, always recognize w an acknowledgement of good work at minimum ... make it a public awards when possible ... which acknowledges success and other qualities such as ability, struggle, effort, commitment & excellence. Its a great motivator too. #WEGOHealthChat https://t.co/AjxzRePShN |
| Social Health Network @socialhealthnet RT @BarbyIngle: A1. YES, always recognize w an acknowledgement of good work at minimum ... make it a public awards when possible ... which acknowledges success and other qualities such as ability, struggle, effort, commitment & excellence. Its a great motivator too. #WEGOHealthChat https://t.co/AjxzRePShN |
| Dawn M Gibson @DawnMGibson A1: Patient Leaders are the glue holding so much of health care/social movements together. #WegoHealthChat https://t.co/pWEov59q3f |
| Dawn M Gibson @DawnMGibson RT @BarbyIngle: A1. YES, always recognize w an acknowledgement of good work at minimum ... make it a public awards when possible ... which acknowledges success and other qualities such as ability, struggle, effort, commitment & excellence. Its a great motivator too. #WEGOHealthChat https://t.co/AjxzRePShN |
| Maya Northen Augelli @mayanorthen A1: Plus, I think recognition helps bring further awareness to what we do. Those maybe interested but unfamiliar with patient advocacy might be encouraged to learn more/take part. And the more of us there are, the greater impact we can make! #wegohealthchat |
 | Kristen @srvingofspprt A1. YASSS! I find #PatientLeaders rarely recognize all their hard work. They work endlessly and forget to pat themselves on the back -so I try to do it for them😊 #wegohealthchat https://t.co/CYlV3DclOy |
 | Rie Lopez, MPH (she/her) @RieOfLetters Must miss #WEGOHealthChat and #SaludTues as I try to break this #migraine. Will look over things tomorrow (I hope)! |
| Must Stop MS! @MustStopMS A1 - recognition also shows how much of a difference is being made and it’s motivation to keep at it. #WEGOHealthChat |
 | International Pain Foundation® @iPainOfficial RT @BarbyIngle: A1. YES, always recognize w an acknowledgement of good work at minimum ... make it a public awards when possible ... which acknowledges success and other qualities such as ability, struggle, effort, commitment & excellence. Its a great motivator too. #WEGOHealthChat https://t.co/AjxzRePShN |
 | Kathryn Slagle @KathrynSlagle @wegohealth A1. As patients we often feel alone. The opportunity to share our stories and be recognized as leaders can bring us together and feel less alone. #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthChat do the very same in their journeys! :) |
| Must Stop MS! @MustStopMS RT @KathrynSlagle: @wegohealth A1. As patients we often feel alone. The opportunity to share our stories and be recognized as leaders can bring us together and feel less alone. #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A1: Patient Leaders are participating in a multibillion dollar industry, moving patients toward treatment, and driving research. Private firms make big money doing this, often without enough experience or authenticity. #WegoHealthChat https://t.co/pWEov59q3f |
| Social Health Network @socialhealthnet Right? How often do we hear Patient Leaders ask if they are making an impact? PSA: YOU ARE! #WEGOHealthChat https://t.co/3wI2ioWWyW |
 | JOHN-MANUEL ANDRIOTE @JMAndriote A1: Not only is it important to recognize patient advocates' work, but it's also important to appropriately compensate them/us for it. Our advocacy and stories help support healthcare & pharma, so we should be regarded like other consultants & paid! :) #wegohealthchat |
 | Christina Lizaso @btrfly12 RT @wegohealth: Welcome to today's #WEGOHealthChat! Today we're talking about recognizing #PatientLeaders! Should we recognize Patient Leaders? Who should do it? How should they do it? Have you ever been recognized? |
| Must Stop MS! @MustStopMS RT @wegohealth: Right? How often do we hear Patient Leaders ask if they are making an impact? PSA: YOU ARE! #WEGOHealthChat https://t.co/3wI2ioWWyW |
| Kimberly Amelia @fireflyrn84 A1: absolutely, we work hard to advocate for our populations! #WEGOHealthChat |
 | Ken Taylor, RPIC @KenRayTaylor A1. Of course it is very important because a patient can tell you what works what doesnt work and many things that you may not have thought of to help with your situation. Recognition will also keep a patient motivated to help others. #WEGOHealthchat https://t.co/OBxZIzihA4 |
| Social Health Network @socialhealthnet @JMAndriote So true John-Manuel! This is something we're always striving for and working to educate the industry on. After all, #PatientLeaders are the future of healthcare! #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson RT @JMAndriote: A1: A1: Not only is it important to recognize patient advocates' work, but it's also important to appropriately compensate them/us for it. Our advocacy and stories help support healthcare & pharma, so we should be regarded like other consultants & paid! :) #wegohealthchat |
| Dawn M Gibson @DawnMGibson A1: Yes. Money is being made. We should get some of it. #WegoHealthChat https://t.co/KhppwObLiJ |
| Barby Ingle Official @BarbyIngle #WEGOHealthChat Good Day to all! Glad to be here and share and care!!!!!!!! @BarbyIngle @KenRayTaylor @powerofpain - #WEGOHealthAwards #LifetimeAchievement #MsCongenality #BestTeamPerformance https://t.co/93ZOwusqF3 |
| Social Health Network @socialhealthnet Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need so support the community to create change #WEGOHealthChat |
| Alan Brewington @abrewi3010 A1 recognition is a form of validation. This provides those not ready to jump into a social media confidence to try. Makes others more approachable I hope! #WEGOHealthChat |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: A1. Of course it is very important because a patient can tell you what works what doesnt work and many things that you may not have thought of to help with your situation. Recognition will also keep a patient motivated to help others. #WEGOHealthchat https://t.co/OBxZIzihA4 |
| Social Health Network @socialhealthnet Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
| Social Health Network @socialhealthnet Let's jump to Q2. What are ways that you have been recognized for the work you’ve done? #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Alright, it looks like we've reached a mutual consensus: Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
 | Mary 🌻 @HeadacheHeroine @wegohealth @BarbyIngle @MustStopMS @pettigrew66 @MusingsfromaSNM @Shoutaboutpain A little late, but I’m here! #WegoHealthChat |
| Social Health Network @socialhealthnet Yes on every level! #patientpower #WEGOHealthChat https://t.co/5neEwKGGPn |
 | Deb Andio @debbiea001 @wegohealth Goid afternoon everyone hope your all having a great day! #WEGOHealthChat |
| Deb Andio @debbiea001 #WEGOHealthchat Hi everyone So happy to be with all of you today #WEGOHealthAwards. |
| Deb Andio @debbiea001 @wegohealth A2.All humans need to be recognized in a meaningful way for their efforts. When we feel appreciated we r more likely to feel connected to the program and continue their involvement #WEGOHealthchat |
| Deb Andio @debbiea001 @wegohealth A2.All humans need to be recognized in a meaningful way for their efforts. When we feel appreciated we r more likely to feel connected. Sorry my app not working well. #WEGOHealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: Let's jump to Q2. What are ways that you have been recognized for the work you’ve done? #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF A1: As a patient leader I also see it as part of my "job" to recognize talent in my patient community and empower others to step it up. Often people need that little encouragement to truly blossom. #WEGOHealthchat |
| Mary 🌻 @HeadacheHeroine RT @wegohealth: Alright, it looks like we've reached a mutual consensus: Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
| Kristen @srvingofspprt A1. Sometimes I feel like my blog is pointless & then someone tells me how much it changed their perspective or impacted them and that small dose of support can give me the motivation to keep going #wegohealthchat |
| Alan Brewington @abrewi3010 A2 my favorite is why other patient leaders want to talk to me or use my content. Peer to peer acknowledgment is powerful. #WEGOHealthChat |
| Must Stop MS! @MustStopMS @wegohealth A2 - being nominated and winning the #WEGOHealthAwards for Best In Show Twitter! #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos @wegohealth A2. I have had a small documentary created about my life with #epilepsy and the Organization/online community that I've found @TENofficial which is such an honor and blessing! :) https://t.co/POL107gGh0 #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A1: Being chosen to attend Patient Leader conferences, training, & advisory board work has been huge for me. It builds credentials, facilitates relationships, & makes me feel appreciated. #WegoHealthChat https://t.co/HtTcIIrJqM |
| Maya Northen Augelli @mayanorthen I've been nominated for #WEGOHealthAwards, asked to guest blog on the sites of other advocates (to me that counts as recognition!). I've also been published in a couple of anthologies. #wegohealthchat |
| Dr. Phyllisa Deroze @not_defeated Just got nominated for a WEGO award this week. I’m super excited about it. #wegohealthchat https://t.co/snk9tlN5XZ |
| Social Health Network @socialhealthnet We could not agree more with Leslie! Each of us realize just how much we need support as a #PatientLeader, so it makes sense that it truly is our job to support our fellow #PatientLeaders as well! #WEGOHealthchat https://t.co/eReVG65OSV |
| Dawn M Gibson @DawnMGibson A2: Being chosen to attend Patient Leader conferences, training, & advisory board work has been huge for me. It builds credentials, facilitates relationships, & makes me feel appreciated. #WegoHealthChat https://t.co/HtTcIIrJqM |
| Leslie Krongold, EdD @Leslie_GHF A2: The Muscular Dystrophy Association has recognized my work throughout the years -- some state award years ago and now I'm starting my 2nd year on their National Community Advisory Committee. #WEGOHealthchat |
| Must Stop MS! @MustStopMS A2 - the best recognition is when someone personally tells you that you’ve helped them and have made an impact in their life. #WEGOHealthChat |
| Mary 🌻 @HeadacheHeroine @wegohealth A2: I have been nominated two years in a row for the WEGO Health Awards (go nominate!!)#WEGOHealthChat |
| Maya Northen Augelli @mayanorthen This!! I share this sentiment exactly. And often, it's someone I would never have expected to hear from. Helping others and them sharing that with you is, to me, one of the best recognitions. #WegoHealthchat https://t.co/oC28O7BEoR |
| Kimberly Amelia @fireflyrn84 A2: Just being nominated for #WEGOHealthAwards is a huge recognition. Also writing blogs for other organizations and this week got listed in the chronic illness blog directory #WEGOHealthChat |
| Mary 🌻 @HeadacheHeroine @wegohealth A2: I’ve also had people email me & reach out to me to tell me they finally feel understood & that they never thought anyone else was going through something similar to them. Which always means a lot to me #WegoHealthChat |
| Kathryn Slagle @KathrynSlagle @wegohealth A2: My blog was mentioned in Epilepsy Advocate magazine! :) https://t.co/0e1rZWEjUt #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthchat A2. I have been blessed to have been nominated by several friends and family for six awards for #epilepsyawareness in #WEGOHealthAwards this year! So excited! :) |
| Deb Andio @debbiea001 @wegohealth A2. #Wegohealthchat Well I have many people that often thank me for all the work I do in raising awareness for #Osteonecrosis #osteoarthritis #Hashimoto etc and of course #wegohealthawards nominations |
| Alan Brewington @abrewi3010 A2 before dad died, he turned into my biggest fan. My brother is the accomplished writer, I was the dumb skier in the family. #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A2: Having The SAA chose me for their This AS Life Live video series has been the highlight, so far. You can see my #PainSomnia video here: https://t.co/25mrVY23q9 #WegoHealthChat https://t.co/HtTcIIrJqM |
| Barby Ingle Official @BarbyIngle A2. I have been recognized w thanks n emails cards & through other orgs w certificates ceremonies & plaques such as @wegohealth @NeuropathyAct @GlobalGenes @HITMarketingPR & in the media w top awards like #HIT100 Awards r motivating & 'payment' for my vol works #WEGOHealthChat https://t.co/wEy0ScmvQf |
| Social Health Network @socialhealthnet We create the #WEGOHealthAwards for the sole purpose of recognizing patient leaders! It's our way of saying thank you and showing support for all the work you do #WEGOHealthChat https://t.co/3jMdYgxJXx |
| Social Health Network @socialhealthnet RT @TiffanyKairos: #WEGOHealthchat A2. I have been blessed to have been nominated by several friends and family for six awards for #epilepsyawareness in #WEGOHealthAwards this year! So excited! :) |
| Deb Andio @debbiea001 @wegohealth A2. I also had a woman do a special blog post on me and my awareness which I was so honored by. #Wegohealthchat |
| JOHN-MANUEL ANDRIOTE @JMAndriote A2: I was nominated for a WeGoHealth "lifetime achievement" award, which is AWESOME! I have also been rewarded with positive reviews of my books, and was selected to attend #HealtheVoices this year. Gratitude from an individual for something I said or wrote is #1. #WEGOHealthchat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthchat A2. Being asked to speak in Podcasts about #epilepsyawareness and life with #epilepsy in order to help others understand the condition and inspire those living with the condition! Such an honor to have that opportunity! |
| Social Health Network @socialhealthnet Great point, do you guys agree? Do you prefer more personal recognition? #WEGOHealthChat https://t.co/pYZ60nF5G6 |
| Alan Brewington @abrewi3010 A2 the first time regulars at the old #hcsm chat asked me for thoughts/opinions was rewarding and validating #WEGOHealthChat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: A2. I have been recognized w thanks n emails cards & through other orgs w certificates ceremonies & plaques such as @wegohealth @NeuropathyAct @GlobalGenes @HITMarketingPR & in the media w top awards like #HIT100 Awards r motivating & 'payment' for my vol works #WEGOHealthChat https://t.co/wEy0ScmvQf |
| Dawn M Gibson @DawnMGibson A2: The recognition and support of our disease foundations helps in at least 3 ways: 1. Affirmation that we know something. 2. That we add value. 3. That we are appropriate advocacy partners. #WegoHealthChat https://t.co/HtTcIIrJqM |
| Dawn M Gibson @DawnMGibson RT @TiffanyKairos: #WEGOHealthchat A2. I have been blessed to have been nominated by several friends and family for six awards for #epilepsyawareness in #WEGOHealthAwards this year! So excited! :) |
| Must Stop MS! @MustStopMS RT @wegohealth: We create the #WEGOHealthAwards for the sole purpose of recognizing patient leaders! It's our way of saying thank you and showing support for all the work you do #WEGOHealthChat https://t.co/3jMdYgxJXx |
| Ken Taylor, RPIC @KenRayTaylor A2. I have received a #HeroOfHope award from iPain Foundation, featured magazine articles, nominations to many other awards. On the list of #HIT100 . Compliments on graphics and web design make me feel good also. #WEGOHealthChat https://t.co/5nMhJMVT1O |
| Dr. Phyllisa Deroze @not_defeated A2. I’m going to be in the fall edition of Diabetic Living Magazine. It was an honor to be asked! #wegohealthchat https://t.co/snk9tlN5XZ |
| International Pain Foundation® @iPainOfficial RT @KenRayTaylor: A2. I have received a #HeroOfHope award from iPain Foundation, featured magazine articles, nominations to many other awards. On the list of #HIT100 . Compliments on graphics and web design make me feel good also. #WEGOHealthChat https://t.co/5nMhJMVT1O |
| JOHN-MANUEL ANDRIOTE @JMAndriote @HeadacheHeroine @wegohealth .@HeadacheHeroine: Personal thank-yous from people we have touched are amazingly encouraging & humbling. #WeGoHealthChat |
| Social Health Network @socialhealthnet RT @DawnMGibson: A2: A2: The recognition and support of our disease foundations helps in at least 3 ways: 1. Affirmation that we know something. 2. That we add value. 3. That we are appropriate advocacy partners. #WegoHealthChat https://t.co/HtTcIIrJqM |
| Dawn M Gibson @DawnMGibson A2: This is huge! We are here on somebody else's shoulders, even if we don't know who they are. #WegoHealthChat https://t.co/ehP6Ccuhd3 |
| Maya Northen Augelli @mayanorthen A2: I've also been asked to write several book reviews and conduct a few interviews for @wordgathering magazine. It's run by my dad, but I'm still counting it. :-) #wegohealthchat |
| Social Health Network @socialhealthnet RT @HeadacheHeroine: @wegohealth A2: @wegohealth A2: I have been nominated two years in a row for the WEGO Health Awards (go nominate!!)#WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos @wegohealth A2. #WEGOHealthChat I would prefer knowing that I've done something positive, something good for someone else. Not for self gain. It's more about helping others and not myself. |
| Social Health Network @socialhealthnet From working with all you lovely #PatientLeaders, we've learned your energy and advocacy efforts truly come from your hearts #WEGOHealthChat https://t.co/u2uRT4P7Pe |
| Mary 🌻 @HeadacheHeroine RT @wegohealth: From working with all you lovely #PatientLeaders, we've learned your energy and advocacy efforts truly come from your hearts #WEGOHealthChat https://t.co/u2uRT4P7Pe |
| Dawn M Gibson @DawnMGibson A2: That's not a bad idea! #WegoHealthChat https://t.co/lwNPahM5eY |
| Social Health Network @socialhealthnet HA! I think we'd all be happy with that one 😏 #WEGOHealthChat https://t.co/N7ycc1aBpR |
| Barby Ingle Official @BarbyIngle @AfternoonNapper I got a REWARDS credit card for this... :) I have almost earned a cruise for 2... a few more months... whoohoo... kinda like a 'reward vacation'... that I've had to earn... ;) #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A2: So true. I've heard from many people. Makes me so happy. And I feel stronger. #WegoHealthChat https://t.co/SMisi571eZ |
| Social Health Network @socialhealthnet Let's jump to Q3. What are ways that our community can recognize Patient Leaders? #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson RT @BarbyIngle: @AfternoonNapper I got a REWARDS credit card for this... :) I have almost earned a cruise for 2... a few more months... whoohoo... kinda like a 'reward vacation'... that I've had to earn... ;) #WEGOHealthChat |
| Kristen @srvingofspprt Q3. I think it’s important to send those personal notes and reminders to your fellow Patient Leaders. Even if they are not in your immediate community #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: Let's jump to Q3. What are ways that our community can recognize Patient Leaders? #WEGOHealthChat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey <runs in wicked late, scrambles to catch up> A1: Absolutely. Someone from the patient side of the stethoscope needs to call out the amount of work patients must do to successfully navigate system, and care. #epatient #wegohealthchat |
| Kristen @srvingofspprt A3. Cont even when I’m scrolling through social media, I like to comment or send a note to remind people they are indeed making an impact. Sometimes they don’t know me so maybe that’s creepy but I like to think it helps keep them motivated 🙌🏼 #WeGoHealthChat |
 | Enlightening Results 💡 @GraceCordovano Waving hello to #WEGOHealthChat!! Duty calls so I can’t stay long but know #PatientAdvocacy is happening full steam ahead. https://t.co/HbEVkdyeJK |
| Must Stop MS! @MustStopMS A3 - recognition can be in many forms. It could be saying thank you, it could be sharing our work, it could be a nomination, and many more. #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos RT @wegohealth: From working with all you lovely #PatientLeaders, we've learned your energy and advocacy efforts truly come from your hearts #WEGOHealthChat https://t.co/u2uRT4P7Pe |
| Alan Brewington @abrewi3010 A3 share your platform and microphone regardless of silo. #patientshelpingpatients #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF A3: In my immediate patient community -- myotonic dystrophy -- patient leaders (support group leaders throughout the country) get a nice discount to attend the annual conference. It would be nice to get all expenses paid, but perhaps in time. #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A3: Advocacy recognition should come from mainstream & health spaces alike. Any fitting awards for change makers, though leaders, activists, & artists should be pursued/promoted. #WegoHealthChat https://t.co/QPklJYQXqC |
| Social Health Network @socialhealthnet RT @MustStopMS: A3 - recognition can be in many forms. It could be saying thank you, it could be sharing our work, it could be a nomination, and many more. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen RT @MustStopMS: A3 - recognition can be in many forms. It could be saying thank you, it could be sharing our work, it could be a nomination, and many more. #WEGOHealthChat |
| Mary 🌻 @HeadacheHeroine I agree! It can be a variety of things! #WEGOHealthChat https://t.co/lZClhK9vv5 |
| Social Health Network @socialhealthnet 3Q. Continued... What have you done personally to help give recognition to other Patient Leaders? #WEGOHealthChat |
 | Joshua E. Robinson @jrobinjrob @wegohealth A2: I've had 2 folks literally tell if I hadn't nagged them to go to the ER they would have died, I'v been thanked by many for never stopping raising awareness, one group made a poster of me naming me the voice and that they don't feel isolated anymore. #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A2: Computers Book agents Sizzler reels Soft wear Air miles Hotel/retreat spaces #WEGOHealthChat https://t.co/Yba9xSVQPu |
| Must Stop MS! @MustStopMS RT @wegohealth: 3Q. Continued... What have you done personally to help give recognition to other Patient Leaders? #WEGOHealthChat |
| JOHN-MANUEL ANDRIOTE @JMAndriote A3: I have started saying show me you appreciate me by giving me more work, paying me realistically for my expertise, etc., because my #HIV advocacy and my professional work as a writer & speaker are intertwined.#WeGoHealthChat |
| Barby Ingle Official @BarbyIngle A3. Yearly awards like #WEGOHealthAwards & @powerofpain #HeroOfHope awards, I like to also use #FF shout-outs, send emails, DM's or social media posts of #iSeeYouMoment, top lists, media exposure of our causes #WEGOHealthChat https://t.co/7ZOx8X6w24 |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: WHO tagged me as a patient engagement expert, invited me to global working meeting in Geneva. Also now getting invited/comped to some BIG medical research confs, like #ARM2018 + #cochrane4all. I'll take it! #science #journo #wegohealthchat |
| Social Health Network @socialhealthnet RT @JMAndriote: A3: A3: I have started saying show me you appreciate me by giving me more work, paying me realistically for my expertise, etc., because my #HIV advocacy and my professional work as a writer & speaker are intertwined.#WeGoHealthChat |
| Must Stop MS! @MustStopMS A3b - I one way is I offer guest host spots for #ChatMS which helps people with MS make new connections and grow their support system. #WEGOHealthChat |
| Alan Brewington @abrewi3010 A3 use love and vulnerability when looking at content of others, not the amount of content. If your hairs stand up, smile, or tear up, that is a patient leader who should be celebrated #wegohealthchat |
| Deb Andio @debbiea001 @wegohealth A3. Ways to honor patient leaders , a different focus on a specific condition say on the evening news. Or a story in a local paper. Send a letter of thanks and recognition to them . And of course #WEGOHealthAwards #WEGOhealthchat |
| Social Health Network @socialhealthnet RT @BarbyIngle: A3. Yearly awards like #WEGOHealthAwards & @powerofpain #HeroOfHope awards, I like to also use #FF shout-outs, send emails, DM's or social media posts of #iSeeYouMoment, top lists, media exposure of our causes #WEGOHealthChat https://t.co/7ZOx8X6w24 |
| Dawn M Gibson @DawnMGibson A3: To boost recognition I try to: 1. nominate. 2. Shout out. 3. Tweet out links with detailed info. 4. Retweet. 5. Bring in guest hosts. 6. Promote conferences. #WegoHealthChat https://t.co/QOXVSYGHSX |
 | MarlaMuraskoMusings @MusingsfromaSNM RT @wegohealth: Alright, it looks like we've reached a mutual consensus: Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen A3: Shared their stories (with their permission!) on my blog, try to interact daily and share their tweets, posts, etc, both to promote what they're doing, and to let them know their impact. #wegohealthchat |
| Mary 🌻 @HeadacheHeroine @wegohealth A3: I’ve nominated people for WEGO Health Awards. But would love to collaborate w/ other patient leaders on social, blogs, etc to help feature their work and vice versa! #WEGOHealthChat |
| Social Health Network @socialhealthnet Such a great and "easy" way to involve others! Featuring them in blogs, posts, chats or videos is a great way to break the silos and build the patient voice #WEGOHealthChat https://t.co/vHGFsCpOmo |
| Dawn M Gibson @DawnMGibson RT @wegohealth: Such a great and "easy" way to involve others! Featuring them in blogs, posts, chats or videos is a great way to break the silos and build the patient voice #WEGOHealthChat https://t.co/vHGFsCpOmo |
| Dawn M Gibson @DawnMGibson RT @BarbyIngle: A3. Yearly awards like #WEGOHealthAwards & @powerofpain #HeroOfHope awards, I like to also use #FF shout-outs, send emails, DM's or social media posts of #iSeeYouMoment, top lists, media exposure of our causes #WEGOHealthChat https://t.co/7ZOx8X6w24 |
 | 💫 ✫ƸӜƷ✫ ♡ Vicky_Jvaj💙🌟✨🐱🦋🕊★ ☆ ི♥ྀ @Queenvick_56 RT @MustStopMS: A3 - recognition can be in many forms. It could be saying thank you, it could be sharing our work, it could be a nomination, and many more. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @DawnMGibson: A3: A3: To boost recognition I try to: 1. nominate. 2. Shout out. 3. Tweet out links with detailed info. 4. Retweet. 5. Bring in guest hosts. 6. Promote conferences. #WegoHealthChat https://t.co/QOXVSYGHSX |
| Must Stop MS! @MustStopMS A3b - simple things like sharing others blog posts or retweeting is a good way to spread exposure for other patient leaders. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3: Really like in-development patient leader training/cert materials I've been privy to via WEGO AdBd. Also #WEGOAwards program. Want to see more #epatient inclusion/recognition in guideline development. Working on that personally. #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF A3: I invite other patient leaders to talk on my podcast -- Glass Half Full! #WEGOHealthChat |
| Social Health Network @socialhealthnet Our private #PatientLeader FB Group is a tremendous way to get collaboration going. We've seen so many leaders break the silos here and work TOGETHER on projects/events! #WEGOHealthChat https://t.co/jTaRa0YDh1 https://t.co/SY3ax5BcDN |
| JOHN-MANUEL ANDRIOTE @JMAndriote A3B: I recognize other advocates by showcasing them and their work in my books, my #PsychologyToday blog, and personal communication. #wegohealthchat |
| Alan Brewington @abrewi3010 A3 some weeks/months I promote other patients more than my own voice. #wegohealthchat |
| Dawn M Gibson @DawnMGibson RT @wegohealth: Our private #PatientLeader FB Group is a tremendous way to get collaboration going. We've seen so many leaders break the silos here and work TOGETHER on projects/events! #WEGOHealthChat https://t.co/jTaRa0YDh1 https://t.co/SY3ax5BcDN |
| Ken Taylor, RPIC @KenRayTaylor A3. Recognize good actions by people doing good things. A shout out, an honorable mention. An award is great but not always necessary as to many people are doing good things. Partner w organizations that can promote recognition like a full page ad in a magazine. #WEGOHealthChat https://t.co/Uvi8yTqSCH |
| Must Stop MS! @MustStopMS @MusingsfromaSNM Hi there! #WegoHealthchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @justagoodlife You KNOW that #pharma sees me this way, so I'd rather choke 'em via SCIENCE and EVIDENCE. #WEGOHealthChat #drakaris https://t.co/yh8bKgcw9J |
| Dawn M Gibson @DawnMGibson RT @JMAndriote: A3B: A3B: I recognize other advocates by showcasing them and their work in my books, my #PsychologyToday blog, and personal communication. #wegohealthchat |
| Maya Northen Augelli @mayanorthen @wegohealth Well I'm glad I saw this because I didn't realize it existed somehow! But now I do! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle 3A cont. - create lists like the top 50 #Lupus Advocates to follow for 2018 - https://t.co/IRU7i6aqNe #WEGOHealthChat https://t.co/it9zogjxTg |
| Barby Ingle Official @BarbyIngle RT @KenRayTaylor: A3. Recognize good actions by people doing good things. A shout out, an honorable mention. An award is great but not always necessary as to many people are doing good things. Partner w organizations that can promote recognition like a full page ad in a magazine. #WEGOHealthChat https://t.co/Uvi8yTqSCH |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3b: One of my personal missions is to recognize patient leaders in ALL communities, not just my own (#bcsm). #wegohealthchat |
 | Ross @Rossco006 @srvingofspprt This is so true! Making a difference one person at a time. #WegoHealthChat |
 | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: 3A cont. - create lists like the top 50 #Lupus Advocates to follow for 2018 - https://t.co/IRU7i6aqNe #WEGOHealthChat https://t.co/it9zogjxTg |
| Social Health Network @socialhealthnet Jumping to Q4! Is recognition more meaningful when it comes from other patients or when it comes from the healthcare industry? #WEGOHealthChat |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthChat A3. Podcasts are a great way to help capture the ears of many and offer inspiration to others in the healthcare community. Perhaps offer Patient Leaders Podcast Interviews to for others to watch/listen to. |
| Social Health Network @socialhealthnet @mayanorthen YES! Come join! Anyone with a WEGO Health Account is welcome to join this inspiring, energizing group! #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Jumping to Q4! Is recognition more meaningful when it comes from other patients or when it comes from the healthcare industry? #WEGOHealthChat |
| Deb Andio @debbiea001 @wegohealth A3 continued a paycheck would also be nice. And I have given shout outs and nominated others because I read what they do. And I appreciate their work to their cause #WegoHealthchat |
| Dr. Phyllisa Deroze @not_defeated @wegohealth A4. Both are equally important. #wegohealthchat |
| Must Stop MS! @MustStopMS A4 - to me, recognition is more meaningful coming from other patients because that is who we are fighting and working hard to help. The goal is to be a patient voice and to be there for support. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen A4: I think it depends on the type of recognition. From fellow patients, feeling like I help them is the best recognition there is. But from the industry, feeling like we're being heard & able to drive change is v. important. #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF A3: It varies. Sometimes it's just the sense of the person I get after "following" them for awhile. They represent a voice I want to showcase -- positive, explores alternative healing modalities.. Or if they speak to a theme I'm exploring. #WEGOHealthChat https://t.co/FKQ4A1Br4m |
| Alan Brewington @abrewi3010 A4 most definitely when it comes from other patients/individuals. Awards can be a popularity contest, patients operate from their spirit and soul first. #WEGOHealthChat |
| Mary 🌻 @HeadacheHeroine @wegohealth A4: they are both meaningful in different ways. Recognition from patient leaders means a lot because I feel supported by people similar to myself. Recognition from healthcare means a lot because it means they’re actually listening! #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A4: Patient recognition is so different from industry recognition. W/patients, it's more personal, like we're friends, family, or fellow travelers. But my followers can't fully fund my work. Industry is more about policy, research, & funding. #WegoHealthChat https://t.co/FJMus5mMg1 |
| Ross @Rossco006 Yes! Yes! Yes! The work the Patient Leader does is the heartbeat and is critical to everything that builds outwards from what they are tirelessly doing. #WEGOHealthChat https://t.co/lhu15XoePj |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Somebody else mentioned the elephant in the room: MONEY, HONEY. That's the form of recognition that still needs to get traction. And pimping my follower list to #pharma ain't it. #fypm #wegohealthchat |
| MarlaMuraskoMusings @MusingsfromaSNM RT @KenRayTaylor: A3. Recognize good actions by people doing good things. A shout out, an honorable mention. An award is great but not always necessary as to many people are doing good things. Partner w organizations that can promote recognition like a full page ad in a magazine. #WEGOHealthChat https://t.co/Uvi8yTqSCH |
| Barby Ingle Official @BarbyIngle A4. I think recognition is great no matter where it comes from. When it comes from a friend it carries 1 meaning, when its industry its another meaning, from a rival org another meaning, but when it comes from another PT the weight of the meaning is more for me #WEGOHealthChat https://t.co/3uGupuUdhi |
| Must Stop MS! @MustStopMS A4 - if you are working for the patients and patient voice, there is no better recognition than from those who you are working alongside. #WEGOHealthChat |
| JOHN-MANUEL ANDRIOTE @JMAndriote A4: Recognition feels more meaningful to me coming from an individual, though that person may work for pharma or another healthcare entity. #wegohealthchat |
| Dawn M Gibson @DawnMGibson A4: My followers are who/what gets me into the room with corporations, foundations, & governments. I NEVER forget this & I ALWAYS mention them in any room I'm in. #WEGOHealthChat https://t.co/FJMus5mMg1 |
| Maya Northen Augelli @mayanorthen RT @HeadacheHeroine: @wegohealth A4: @wegohealth A4: they are both meaningful in different ways. Recognition from patient leaders means a lot because I feel supported by people similar to myself. Recognition from healthcare means a lot because it means they’re actually listening! #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: Industry, but ONLY if it's attached to not-astroturfed $$. Peer/community recognition is actually the credibility chip that attracts industry attention. But I'll only deal w/#pharma that's 110% committed to #patientsincluded #wegohealthchat |
| Dawn M Gibson @DawnMGibson RT @BarbyIngle: 3A cont. - create lists like the top 50 #Lupus Advocates to follow for 2018 - https://t.co/IRU7i6aqNe #WEGOHealthChat https://t.co/it9zogjxTg |
| Ross @Rossco006 @wegohealth Hey everyone! Sorry couldn’t get here in time but I’m joining for the last few moments anyway! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle @ZHeatherChamp @wegohealth I am going to go look up more info on Cowden Syndrome and LDD after the chat... thanks for sharing something new with me. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen RT @DawnMGibson: A4: A4: My followers are who/what gets me into the room with corporations, foundations, & governments. I NEVER forget this & I ALWAYS mention them in any room I'm in. #WEGOHealthChat https://t.co/FJMus5mMg1 |
| Dawn M Gibson @DawnMGibson It's always great to see you @Rossco006! #WegoHealthChat https://t.co/jXav8eK9vW |
| Joshua E. Robinson @jrobinjrob A4: Both would be great, but I think patients are most important, or to me they are. #WEGOHealthChat 0 replies 0 retweets 0 likes https://t.co/LtR9WDE7oa |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos @wegohealth A4. I would say both are meaningful because receiving recognition from patients lets you know that you are impacting them in a motivating and inspiring way. That you are helping them along their journeys positively. #WEGOHealthChat |
| Social Health Network @socialhealthnet Alright, so today we discussed just how important recognizing fellow #PatientLeaders is so for for Q5, tag some Patient Leaders who deserve some love today and tell us why! #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @HeadacheHeroine: @wegohealth A4: @wegohealth A4: they are both meaningful in different ways. Recognition from patient leaders means a lot because I feel supported by people similar to myself. Recognition from healthcare means a lot because it means they’re actually listening! #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Alright, so today we discussed just how important recognizing fellow #PatientLeaders is so for for Q5, tag some Patient Leaders who deserve some love today and tell us why! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle @Rossco006 @wegohealth welcome ROSS!!!!!! #WEGOHealthChat |
| Ken Taylor, RPIC @KenRayTaylor A4. Both are meaningful. However an organization can be doing it for there own good and patients can be haters. A nomination process can help filter some of these obstacles making it more genuine, fair and transparent for all. #WEGOHealthChat https://t.co/ZDG5lPmRoP |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos @wegohealth #WEGOHealthChat And when receiving recognition from the healthcare industry, it gives you confidence to know that you are on the right path to helping those individuals in the best way that you can. |
 | VeganOstomy @VeganOstomy @wegohealth A3: Share, share, share their content! The hard work of a patient leader, or any advocate for that matter, means little if it isn't reaching anyone! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle RT @KenRayTaylor: A4. Both are meaningful. However an organization can be doing it for there own good and patients can be haters. A nomination process can help filter some of these obstacles making it more genuine, fair and transparent for all. #WEGOHealthChat https://t.co/ZDG5lPmRoP |
 | Hopkins Nursing @JHUNursing @wegohealth Hey #WEGOHealthChat! Patient leaders are so important! Check out #EquityNowChat to learn about #CommunityViolence and what nurses and #PublicHealth professionals can do about it. |
| Dawn M Gibson @DawnMGibson A5: @Kirstie_Schultz was the very first supporter of my #SpoonieChat. +They work at the frontier of sexual health, equality, and disability identity. #WEGOHealthChat https://t.co/bAvQ68aRa6 |
| Ross @Rossco006 @DawnMGibson Thanks Dawn! #WEGOHealthChat |
| Dawn M Gibson @DawnMGibson A5: @mattbc fights everyday for disabled & #Medicaid patients. +He recently saved my bacon. #WEGOHealthChat https://t.co/bAvQ68aRa6 |
| Must Stop MS! @MustStopMS A5 - there are so many! @Aintnoshamepain for chronic pain, @dev71 @iConquerMS @LiveWiseMS @DaveHead40 @mspals and many others for MS. @TiffanyAndLupus for Lupus. I can’t possibly name them all! #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ZHeatherChamp Been there, much of my own time in the #epatient activist game. It's reality for most chronic/rare condition patient activists. Opportunities I get are never for me, they're for the millions who I can tip off to new science. #WEGOHealthChat |
| Deb Andio @debbiea001 @HeadacheHeroine @wegohealth A4. #WEGOHealthChat A4: they are both important in different ways. Recognition from patient leaders means a lot because I feel supported by my pears. Recognition from healthcare means a lot because it means someone cares enough to listen to me and take notice of the cause. |
| Joshua E. Robinson @jrobinjrob @wegohealth I suck at twitter, sorry #WEGOHealthChat 0 replies 0 retweets 0 likes |
 | Tiffany ⁷ @TiffanyAndLupus RT @MustStopMS: A5 - there are so many! @Aintnoshamepain for chronic pain, @dev71 @iConquerMS @LiveWiseMS @DaveHead40 @mspals and many others for MS. @TiffanyAndLupus for Lupus. I can’t possibly name them all! #WEGOHealthChat |
 | Edvaldo Martins Rosa @edy_chef Treehouse Sakurai #MyDoctorsPrescription #WEGOHealthChat https://t.co/ISfhaNejFt |
| Barby Ingle Official @BarbyIngle A5. Hey everybody go follow these advocates... they are doing great work! @KenRayTaylor @unitedadvocacy @JodiOrvisDragon @poziamradio @BrennanSpiegel @Colin_Hung @LilMesican @duffynyc @LacyFowler417 @drlfarrell @GpGQueen @techguy @Kcbrooks76Kelly @ShereesePubHlth #WEGOHealthChat https://t.co/Bge1XP4vkL |
| Social Health Network @socialhealthnet Whew, that hour went quickly! We have a few more moments, so let's begin to wrap up. Use CT to share with us any closing thoughts you have from today's chat. #WEGOHealthchat |
| Ross @Rossco006 In past I have been recognized by organizations such as @wegohealth and others but it’s the ones who reach out through my blog and say thank you for making me realize I’m not alone! Or how they reach out with a personal thank you! Those mean the most to me. #WEGOHealthChat https://t.co/TZ0vLPnU2h |
| Alan Brewington @abrewi3010 A5 Big love to @theproject3x5 @RieOfLetters @bbhomebody @EmilysEntourage @afreshchapter @danamlewis @ProstheticMedic @RemRunner @GinaMcGalliard @nickdawson @GraceCordovano @carolinegleich #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @abrewi3010: A5 Big love to @theproject3x5 @RieOfLetters @bbhomebody @EmilysEntourage @afreshchapter @danamlewis @ProstheticMedic @RemRunner @GinaMcGalliard @nickdawson @GraceCordovano @carolinegleich #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @BarbyIngle: A5. Hey everybody go follow these advocates... they are doing great work! @KenRayTaylor @unitedadvocacy @JodiOrvisDragon @poziamradio @BrennanSpiegel @Colin_Hung @LilMesican @duffynyc @LacyFowler417 @drlfarrell @GpGQueen @techguy @Kcbrooks76Kelly @ShereesePubHlth #WEGOHealthChat https://t.co/Bge1XP4vkL |
| Social Health Network @socialhealthnet Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/jTaRa0YDh1 |
| Must Stop MS! @MustStopMS A5 - had the pleasure of meeting @MusingsfromaSNM @PaigeRawl @insideoutostomy @gabehoward29 and others last year too at #WEGOHealthAwards #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @MustStopMS: A5 - had the pleasure of meeting @MusingsfromaSNM @PaigeRawl @insideoutostomy @gabehoward29 and others last year too at #WEGOHealthAwards #WEGOHealthChat |
| Ross @Rossco006 @justagoodlife @wegohealth Wish I could have gotten here earlier but I was driving. #WEGOHealthChat |
| Social Health Network @socialhealthnet Don't forget, we have #WEGOHealthChat the second Tuesday of every month at 1pm ET. Mark it on your calendar 📆! |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ZHeatherChamp @wegohealth is a good way to start - it's where pretty much all of US got our start! #WEGOHealthChat |
| Alan Brewington @abrewi3010 Ct it’s just a bad day not life! #WEGOHealthChat |
| Social Health Network @socialhealthnet @Rossco006 @justagoodlife safety first my friend! We always have next month's #WEGOHealthChat! |
| Must Stop MS! @MustStopMS RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/jTaRa0YDh1 |
| Must Stop MS! @MustStopMS Great chat today. Thank you @wegohealth. It was nice chatting with everyone! #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @MightyCasey: @ZHeatherChamp @wegohealth is a good way to start - it's where pretty much all of US got our start! #WEGOHealthChat |
 | Mariah Leach @MariahForward @justagoodlife @ZHeatherChamp I ran a weekly series on my blog called Facing Forward - over 100 people answered the same set of questions w/ the goal of seeing how we were similar, how we were different, and what we could learn from one another! Check it out here: https://t.co/3va0g2Xuvj #WEGOHealthChat |
 | NY Statewide Peer Network @CNY_Connections RT @wegohealth: Q1. Is it important to recognize the work Patient Leaders do? #WEGOHealthChat |
| Must Stop MS! @MustStopMS CT - Patient Leaders are important. The patient voice is more important now than it ever has been. Together we can make a difference! #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: Alright, it looks like we've reached a mutual consensus: Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
| Ken Taylor, RPIC @KenRayTaylor A5 @BarbyIngle @poziamradio @LilMesican @justagoodlife @duffynyc @LAlupusLady @Rossco006 are some of the #PatientLeaders that deserve some love for the advocacy they provide for the the health community. #WEGOHealthChat https://t.co/SPUs3ae8g0 |
| Ross @Rossco006 @TiffanyKairos @wegohealth Yes! With you 110%!!! #WEGOHealthChat |
| Deb Andio @debbiea001 @MustStopMS @wegohealth @MusingsfromaSNM @PaigeRawl @insideoutostomy @gabehoward29 A5. Shout out to great patient leaders like @JMAndroite @Justagoodlife @smalltownbusy @MightyCasey sorry if I left out anyone #WegoHealthchat |
 | Daniel G Garza @iamdanielggarza RT @wegohealth: Alright, so today we discussed just how important recognizing fellow #PatientLeaders is so for for Q5, tag some Patient Leaders who deserve some love today and tell us why! #WEGOHealthChat |
| Daniel G Garza @iamdanielggarza RT @BarbyIngle: A5. Hey everybody go follow these advocates... they are doing great work! @KenRayTaylor @unitedadvocacy @JodiOrvisDragon @poziamradio @BrennanSpiegel @Colin_Hung @LilMesican @duffynyc @LacyFowler417 @drlfarrell @GpGQueen @techguy @Kcbrooks76Kelly @ShereesePubHlth #WEGOHealthChat https://t.co/Bge1XP4vkL |
| Daniel G Garza @iamdanielggarza RT @KenRayTaylor: A5 @BarbyIngle @poziamradio @LilMesican @justagoodlife @duffynyc @LAlupusLady @Rossco006 are some of the #PatientLeaders that deserve some love for the advocacy they provide for the the health community. #WEGOHealthChat https://t.co/SPUs3ae8g0 |
 | «̊͡♡͡»̊͡⌣͡ MizzJuggy⌣͡ «̊͡♡͡»̊͡ @LoopyLozza1187 #Pulse Reggie #WEGOHealthChat Anthony Romero Pokemon Trainer https://t.co/E8ovFPocQw |
| Ross @Rossco006 @KenRayTaylor @BarbyIngle @poziamradio @LilMesican @justagoodlife @duffynyc @LAlupusLady Thanks Ken! I think we’d all agree that we do the work we do because we genuinely care about each other and want to see people getting better. #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: Jumping to Q4! Is recognition more meaningful when it comes from other patients or when it comes from the healthcare industry? #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: Welcome to today's #WEGOHealthChat! Today we're talking about recognizing #PatientLeaders! Should we recognize Patient Leaders? Who should do it? How should they do it? Have you ever been recognized? |
| 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos #WEGOHealthChat A5. Super Shout-Out: @BarbyIngle @justagoodlife @duffynyc @ItsOnlyABruise @AlishaMBridges @hchang316 @Rossco006 @JackieZimm! |
 | S_Army 💣🌈 @BTSArmy58205725 Daisy #WEGOHealthChat Jason Garrett Metroid #CapitalsParade https://t.co/9KJQVHIUsN |
| Barby Ingle Official @BarbyIngle RT @TiffanyKairos: #WEGOHealthChat A5. Super Shout-Out: #WEGOHealthChat A5. Super Shout-Out: @BarbyIngle @justagoodlife @duffynyc @ItsOnlyABruise @AlishaMBridges @hchang316 @Rossco006 @JackieZimm! |
 | Natan Valdes @goddesstranny Ridley #PokemonLetsGo #WEGOHealthChat #Pulse Jason Garrett Metroid https://t.co/7tLhZdVtF3 |
 | Amanda G @LAlupusLady Nice to be in such good company. #WEGOHealthChat #PatientLeaders https://t.co/AQZtfsmBnX |
| Ross @Rossco006 A3: Although I have nominated others for #WEGOHealthAwards I also like to reach out and personally thank them. I also like to every so often feature them on my blog or give them a shout out through social media. #WEGOHealthChat https://t.co/8FonEzh2VQ |
 | fransuarDantas @fransuardantas Metroid #culturefirst #FairFares #WarriorsParade #WEGOHealthChat https://t.co/y6vjpDhnZy |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: 3Q. Continued... What have you done personally to help give recognition to other Patient Leaders? #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: Alright, so today we discussed just how important recognizing fellow #PatientLeaders is so for for Q5, tag some Patient Leaders who deserve some love today and tell us why! #WEGOHealthChat |
| Ross @Rossco006 RT @wegohealth: Alright, it looks like we've reached a mutual consensus: Alright, it looks like we've reached a mutual consensus: Patient Leaders NEED to be recognized. For motivation, validation & let's not forget- #PatientLeaders are the future of healthcare. We need t0 support the community to create change #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @HeadacheHeroine: @wegohealth A3: @wegohealth A3: I’ve nominated people for WEGO Health Awards. But would love to collaborate w/ other patient leaders on social, blogs, etc to help feature their work and vice versa! #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: From working with all you lovely #PatientLeaders, we've learned your energy and advocacy efforts truly come from your hearts #WEGOHealthChat https://t.co/u2uRT4P7Pe |
 | Flemming Rasmussen @fgrazz RT @MightyCasey: Somebody else mentioned the elephant in the room: Somebody else mentioned the elephant in the room: MONEY, HONEY. That's the form of recognition that still needs to get traction. And pimping my follower list to #pharma ain't it. #fypm #wegohealthchat |
| NY Statewide Peer Network @CNY_Connections RT @wegohealth: We create the #WEGOHealthAwards for the sole purpose of recognizing patient leaders! It's our way of saying thank you and showing support for all the work you do #WEGOHealthChat https://t.co/3jMdYgxJXx |
| NY Statewide Peer Network @CNY_Connections RT @TiffanyKairos: #WEGOHealthChat A3. Podcasts are a great way to help capture the ears of many and offer inspiration to others in the healthcare community. Perhaps offer Patient Leaders Podcast Interviews to for others to watch/listen to. |
| NY Statewide Peer Network @CNY_Connections RT @MustStopMS: A2 - the best recognition is when someone personally tells you that you’ve helped them and have made an impact in their life. #WEGOHealthChat |
| NY Statewide Peer Network @CNY_Connections RT @Leslie_GHF: A1: A1: As a patient leader I also see it as part of my "job" to recognize talent in my patient community and empower others to step it up. Often people need that little encouragement to truly blossom. #WEGOHealthchat |
#WEGOHealthChat content from Twitter.