#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag.
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See #WEGOHealthChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Julie Croner @justagoodlife RT @JamieRoger8: @abrewi3010 @Purrfectly_Rare @Chris_Anselmo @lisadbudzinski @lbdeck @CureFA_org #patientchat #wegohealthchat |
 | Social Health Network @socialhealthnet Welcome to the November #WEGOHealthChat and thanks for joining us! As a Patient Leader, you know just how many misconceptions there are in the medical world. Today we’ll set the record straight & discuss myths about patients, epatients, doctors, healthcare, & more! https://t.co/zDufSeySYr |
 | Must Stop MS! @MustStopMS Hello all! I’m happy to make another #WEGOHealthChat ! How’s everyone? |
| Social Health Network @socialhealthnet RT @Back2backPT: Starting in just a couple of minutes... #WEGOHealthChat I'm getting ready😊👍 Are you? Come on. Join in👋 @Back2backPT @wegohealth |
| Social Health Network @socialhealthnet RT @MustStopMS: Hey all! After #ChatMS hop over to #Wegohealthchat hosted by @wegohealth |
 | Mary P. Pettigrew @pettigrew66 Hey there! It’s Mary coming to y’all from a bitterly freezing cold Dallas, TX today! ❄️💨❄️ I advocate for #MS, #IBD, #MentalHealth, etc. #WEGOHealthChat |
| Must Stop MS! @MustStopMS @justagoodlife I’m doing well thanks! It’s cold today though lol. Brrr! #wegohealthchat |
 | Leslie Krongold, EdD @Leslie_GHF Good morning from the West Coast. I'm Leslie in Alameda, CA. I produce the podcast Glass Half Full and advocate on behalf of those with neuromuscular disease but hopefully for all with chronic health conditions. #WEGOHealthChat |
 | Bill Wong, OTD, OTR/L @BillWongOT Hello everyone! #WEGOHealthChat |
| Social Health Network @socialhealthnet Today let’s run the #WEGOHealthChat a bit different: We'll discuss 5 different topics (T1, T2, T3 etc). * Part 1 of each topic will be sharing a #myth (M) about the topic * Part 2 will include following up with a #truth (T). https://t.co/uhxiIwgzSy |
 | Heather McCullen @H_SalemOaks Hi #WEGOHealthChat, Heather joining from outside of Ann Arbor |
 | sick lately, words bad (check 📌 for discord info) @bennessb Hi, #wegohealthchat! I'm Brianne, I have SFN & POTS & stenosis, and I interview people about chronic illness on my podcast, No End In Sight (https://t.co/A2oZtVCdzt) and now I also collect stories on Medium! (https://t.co/pag40rtUR7) |
| Mary P. Pettigrew @pettigrew66 RT @MustStopMS: Hello all! I’m happy to make another #WEGOHealthChat ! How’s everyone? |
| Social Health Network @socialhealthnet T1. Our first topic will be myths & truths about: Patients First up Myth #1: Share a myth (M) people have about patients. Feel free to speak generally or condition-specific. #WEGOHealthChat https://t.co/ije6fXHUnT |
 | Alan Brewington @abrewi3010 Alan here. Working on DSH payment letters right now. If you know what DSH is I’m sorry 😂#WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: T1. Our first topic will be myths & truths about: T1. Our first topic will be myths & truths about: Patients First up Myth #1: Share a myth (M) people have about patients. Feel free to speak generally or condition-specific. #WEGOHealthChat https://t.co/ije6fXHUnT |
 | Kristen @srvingofspprt Kristen here for the #WEGOHealthChat tuning in from Boston- @justagoodlife must have sent the snow because it just started snowing here 😩😩😩 |
 | Lola Ridge's Mind @ridge_mind RT @bennessb: Hi, #wegohealthchat! I'm Brianne, I have SFN & POTS & stenosis, and I interview people about chronic illness on my podcast, No End In Sight (https://t.co/A2oZtVCdzt) and now I also collect stories on Medium! (https://t.co/pag40rtUR7) |
| Mary P. Pettigrew @pettigrew66 @justagoodlife No snow here, but cold front blew in yesterday, it’s 24 degrees. Brrrr! @justagoodlife #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @bennessb: Hi, #wegohealthchat! I'm Brianne, I have SFN & POTS & stenosis, and I interview people about chronic illness on my podcast, No End In Sight (https://t.co/A2oZtVCdzt) and now I also collect stories on Medium! (https://t.co/pag40rtUR7) |
| Kristen @srvingofspprt RT @wegohealth: Today let’s run the #WEGOHealthChat a bit different: Today let’s run the #WEGOHealthChat a bit different: We'll discuss 5 different topics (T1, T2, T3 etc). * Part 1 of each topic will be sharing a #myth (M) about the topic * Part 2 will include following up with a #truth (T). https://t.co/uhxiIwgzSy |
| Mary P. Pettigrew @pettigrew66 @justagoodlife @AutonomicRN I’m so sorry to hear this. ❤️❤️❤️❤️#wegohealthchat |
| Must Stop MS! @MustStopMS M - patients aren’t as knowledgeable as others in the field. This couldn’t be any more wrong! I’ve found in several cases the patients were more knowledgeable than some on their medical teams. #WEGOHealthChat |
 | dSavannah = #disabled #MEep (#pwME) @dSavannahCreate RT @bennessb: Hi, #wegohealthchat! I'm Brianne, I have SFN & POTS & stenosis, and I interview people about chronic illness on my podcast, No End In Sight (https://t.co/A2oZtVCdzt) and now I also collect stories on Medium! (https://t.co/pag40rtUR7) |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth A1. A myth about #ActuallyAutistic individuals is that we have difficulties dealing with transitions and sudden and unexpected changes. I have to put up with that every day at my work as an occupational therapist. #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF T1. Myth: all myotonic dystrophy patients have the same symptoms. #WEGOHealthChat |
| Must Stop MS! @MustStopMS @pettigrew66 @justagoodlife Mary!!!!!! #wegohealthchat |
| Kristen @srvingofspprt As a mental health patient, my credibility is shot as soon as a doctor looks at my chart. Yes I’ve been in psychiatric treatment facilities, but no I’m not crazy and yes I know what I’m talking about. So many times I get brushed aside because of my diagnosis #WEGOHealthChat |
| Julie Croner @justagoodlife RT @BillWongOT: @wegohealth A1. A myth about #ActuallyAutistic individuals is that we have difficulties dealing with transitions and sudden and unexpected changes. I have to put up with that every day at my work as an occupational therapist. #wegohealthchat |
| Social Health Network @socialhealthnet RT @Leslie_GHF: T1. Myth: T1. Myth: all myotonic dystrophy patients have the same symptoms. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: As a mental health patient, my credibility is shot as soon as a doctor looks at my chart. Yes I’ve been in psychiatric treatment facilities, but no I’m not crazy and yes I know what I’m talking about. So many times I get brushed aside because of my diagnosis #WEGOHealthChat |
| Alan Brewington @abrewi3010 M1 patients are not experts in their disease resume. Because of this we need a paternalistic approach to medicine #WEGOHealthChat |
| Social Health Network @socialhealthnet We couldn't agree more Randy. Patients ARE the experts, they live with their condition everyday and learn things no medical book or lecture can teach! #WEGOHealthChat |
 | Ody @OdyO11 I just stumbled upon the #wegohealthchat. Very interesting topic. I'm just a patient speaking for myself - may I join? |
| sick lately, words bad (check 📌 for discord info) @bennessb T1: so I've been tweeting about this all morning kind of, but a HUGE myth that I want to talk about is the idea that if you have a good doctor and a real illness, you'll be diagnosed quickly. This is not at all true, and it causes a lot of harm to patients. #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT @srvingofspprt Good point! I know when my mom heard of the word schizophrenia for the first time, she was definitely scared as hell! #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: We couldn't agree more Randy. Patients ARE the experts, they live with their condition everyday and learn things no medical book or lecture can teach! #WEGOHealthChat |
 | Ostomy Diaries @ostomydiaries @wegohealth T1: (M) A common #myth about ostomy patients is that only elderly folks have to receive an #ostomy bag. Actually anyone from birth to seniors could possibly need an ostomy! #WegoHealthChat |
| Alan Brewington @abrewi3010 @justagoodlife Hi Julie! #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @justagoodlife I will tag on that- My second clinical psychologist severely underestimated my knowledge on mental health! #wegohealthchat |
| Ody @OdyO11 @justagoodlife Thanks! :) #wegohealthchat |
| Julie Croner @justagoodlife RT @ostomydiaries: @wegohealth T1: @wegohealth T1: (M) A common #myth about ostomy patients is that only elderly folks have to receive an #ostomy bag. Actually anyone from birth to seniors could possibly need an ostomy! #WegoHealthChat |
| Social Health Network @socialhealthnet RT @bennessb: T1: T1: so I've been tweeting about this all morning kind of, but a HUGE myth that I want to talk about is the idea that if you have a good doctor and a real illness, you'll be diagnosed quickly. This is not at all true, and it causes a lot of harm to patients. #wegohealthchat |
| Social Health Network @socialhealthnet T1. Our first topic will be myths & truths about: Patients Now share a #truth (T) about patients. Again, feel free to speak condition-specific or generally. #WEGOHealthChat https://t.co/6cmiQqnnb2 |
 | Sakinah Kaiser (She/Her) @themuslimhippie RT @bennessb: T1: T1: so I've been tweeting about this all morning kind of, but a HUGE myth that I want to talk about is the idea that if you have a good doctor and a real illness, you'll be diagnosed quickly. This is not at all true, and it causes a lot of harm to patients. #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: T1. Our first topic will be myths & truths about: T1. Our first topic will be myths & truths about: Patients Now share a #truth (T) about patients. Again, feel free to speak condition-specific or generally. #WEGOHealthChat https://t.co/6cmiQqnnb2 |
| Alan Brewington @abrewi3010 @OdyO11 Everyone is invited and included #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth A1. I do have my moments of being socially awkward. I also can have moments of being sensory overwhelmed. #wegohealthchat #ActuallyAutistic |
| sick lately, words bad (check 📌 for discord info) @bennessb @justagoodlife I just wrote something about it, so it's very top of mind for me! https://t.co/vwTgl8Pw8B #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 A1: two myths - 1) patients are accused of faking symptoms & accused as lazy 2) people w/ invisible symptoms who use disabled placards - society severely judges those who don’t “look” disabled - causing a patient unwarranted public shame or even worse #wegohealthchat |
| sick lately, words bad (check 📌 for discord info) @bennessb RT @srvingofspprt: As a mental health patient, my credibility is shot as soon as a doctor looks at my chart. Yes I’ve been in psychiatric treatment facilities, but no I’m not crazy and yes I know what I’m talking about. So many times I get brushed aside because of my diagnosis #WEGOHealthChat |
| Alan Brewington @abrewi3010 M1 patients don’t add value to conferences and research. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @HollyMLoughton: |
| Must Stop MS! @MustStopMS T1 - patients are the true leaders in pushing research and information. They experience the symptoms and struggles. They know their bodies and know to push when they don’t get the answers they deserve. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 @BillWongOT @wegohealth #SensoryOverload is an ongoing issue for me too! It can be quite awful to handle! #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @pettigrew66: A1: A1: two myths - 1) patients are accused of faking symptoms & accused as lazy 2) people w/ invisible symptoms who use disabled placards - society severely judges those who don’t “look” disabled - causing a patient unwarranted public shame or even worse #wegohealthchat |
| Kristen @srvingofspprt Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @MustStopMS: T1 - patients are the true leaders in pushing research and information. They experience the symptoms and struggles. They know their bodies and know to push when they don’t get the answers they deserve. #WEGOHealthChat |
| Alan Brewington @abrewi3010 T1 patients are experts TOO! #WEGOHealthChat |
| Heather McCullen @H_SalemOaks RT @srvingofspprt: Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat |
| Ody @OdyO11 T1: A common myth is that unexplained symptoms are psychogenic and that all symptoms - and especially certain patterns of symptoms - are worsened by stress. This myth often leads to mistrust and patient blaming. Unfortunately, it's common in healthcare, too. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @HollyMLoughton: |
 | RaRa 🧬 @Gnomette12 RT @Leslie_GHF: Good morning from the West Coast. I'm Leslie in Alameda, CA. I produce the podcast Glass Half Full and advocate on behalf of those with neuromuscular disease but hopefully for all with chronic health conditions. #WEGOHealthChat |
| Must Stop MS! @MustStopMS All you awesome MS patient advocates and leaders. Hop over to #wegohealthchat ! #ChatMS |
| Ody @OdyO11 RT @MustStopMS: M - patients aren’t as knowledgeable as others in the field. This couldn’t be any more wrong! I’ve found in several cases the patients were more knowledgeable than some on their medical teams. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 Excellent example!!! 👍👍#wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT @pettigrew66 @wegohealth What I have learned- I always have multiple plans in place in case I do. I figure them out when I am still calm. #wegohealthchat |
| Social Health Network @socialhealthnet T2. Our second topic: Let’s share myths & truths industry professionals (doctors, the media, HC Cos, etc) have about empowered patients. Up first, share a myth (M)! #WEGOHealthChat https://t.co/qlg18dKwQA |
| Ody @OdyO11 RT @srvingofspprt: As a mental health patient, my credibility is shot as soon as a doctor looks at my chart. Yes I’ve been in psychiatric treatment facilities, but no I’m not crazy and yes I know what I’m talking about. So many times I get brushed aside because of my diagnosis #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @MustStopMS: T1 - patients are the true leaders in pushing research and information. They experience the symptoms and struggles. They know their bodies and know to push when they don’t get the answers they deserve. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @HollyMLoughton: |
| Mary P. Pettigrew @pettigrew66 @HollyMLoughton 👍👍👍YES! #wegohealthchat |
| Ody @OdyO11 RT @srvingofspprt: Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat |
| Ody @OdyO11 RT @MustStopMS: T1 - patients are the true leaders in pushing research and information. They experience the symptoms and struggles. They know their bodies and know to push when they don’t get the answers they deserve. #WEGOHealthChat |
| Ody @OdyO11 RT @HollyMLoughton: |
| Must Stop MS! @MustStopMS RT @srvingofspprt: Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat |
| Alan Brewington @abrewi3010 M2 patients are consumers who are split into market segments. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @srvingofspprt Or in my case with my second psychologist, I have some knowledge on how to manage myself. So, I want to be equal partners, instead of being told what to do. #wegohealthchat |
| Social Health Network @socialhealthnet RT @wegohealth: T2. Our second topic: T2. Our second topic: Let’s share myths & truths industry professionals (doctors, the media, HC Cos, etc) have about empowered patients. Up first, share a myth (M)! #WEGOHealthChat https://t.co/qlg18dKwQA |
| sick lately, words bad (check 📌 for discord info) @bennessb T1: A really important truth that gets lost is that patients really are trying to get better & follow their treatment protocols. It costs a lot of time, money & energy to work on your health all the time, and patients who want to get better still need breaks. #wegohealthchat |
| sick lately, words bad (check 📌 for discord info) @bennessb RT @HollyMLoughton: |
| Kristen @srvingofspprt T2 Myth: doctors don’t care. I hear this a lot, and although there are certainly some bad apples out there, I stand by my statement that this is a myth for many #WEGOHealthChat |
| Alan Brewington @abrewi3010 M2 patient stories don’t need to be apart of medical education. Industry already speaks patient #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb RT @OdyO11: T1: T1: A common myth is that unexplained symptoms are psychogenic and that all symptoms - and especially certain patterns of symptoms - are worsened by stress. This myth often leads to mistrust and patient blaming. Unfortunately, it's common in healthcare, too. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @abrewi3010 I think health professions should expand on reaching out to their own with disabilities. I mean- these folks are great resources to tap into to start. Ultimately, the professions got to reach out to the greater disability communities. #wegohealthchat |
| Ody @OdyO11 It's important to differentiate and it's important to trust and to believe patients. Not to trust patients or make them responsible for their symptoms is not helpful, only adds to the burden and leaves patients feeling helpless, dismissed and confused. #WEGOHealthChat |
| Must Stop MS! @MustStopMS M2 - patients think they know everything. Why even come to us? While in reality, A boring visit is a better visit. #WEGOHealthChat |
 | Mary Gerdt Parler:Alvarita1 @marygerdt RT @wegohealth: T1. Our first topic will be myths & truths about: T1. Our first topic will be myths & truths about: Patients First up Myth #1: Share a myth (M) people have about patients. Feel free to speak generally or condition-specific. #WEGOHealthChat https://t.co/ije6fXHUnT |
| Kristen @srvingofspprt @BillWongOT Right on, after over 10 years of running my own treatment show I deserve to be looked at as a credited source! #WEGOHealthChat |
| Mary Gerdt Parler:Alvarita1 @marygerdt RT @pettigrew66: A1: A1: two myths - 1) patients are accused of faking symptoms & accused as lazy 2) people w/ invisible symptoms who use disabled placards - society severely judges those who don’t “look” disabled - causing a patient unwarranted public shame or even worse #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF T2. Myth: Doctors have a deeper understanding of the disease. #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T2 M: Unfortunately, a lot of practitioners think that empowered patients are just the worried well/problem patients/drug seekers. This myth seriously impacts quality of care. #WEGOHealthChat |
| RaRa 🧬 @Gnomette12 RT @Leslie_GHF: T1. Myth: T1. Myth: all myotonic dystrophy patients have the same symptoms. #WEGOHealthChat |
| Must Stop MS! @MustStopMS @justagoodlife Oh yeah. I hear this a lot! #wegohealthchat |
| Social Health Network @socialhealthnet T2. Our second topic: Let’s share myths & truths industry professionals (doctors, the media, HC Cos, etc) have about empowered patients. Let's hear a truth (T) about empowered patients! #WEGOHealthChat https://t.co/690uuFaDGt |
| Social Health Network @socialhealthnet How many times have you been told to "try harder" for your treatment plan? It's certainly not always a case of trying harder! #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth I will go half and half here. I think health professions can do better to empower their own with disabilities to make differences in these professions. Efforts are there, but need to improve on consistency. #wegohealthchat |
| Social Health Network @socialhealthnet We absolutely despise hearing this one. Patient Leaders are in the trenches daily- learning all they can from creditable resources and fellow patients. They offer REAL insight and value #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: @BillWongOT Right on, after over 10 years of running my own treatment show I deserve to be looked at as a credited source! #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T2 T: On the flip side, I've had a number of specialists comment that I am calmer/more informed than some other patients, and that makes their job easier. I think this is actually it's own problem but it's awesome when docs see empowered patients as reasonable. #wegohealthchat |
| sick lately, words bad (check 📌 for discord info) @bennessb RT @wegohealth: How many times have you been told to "try harder" for your treatment plan? It's certainly not always a case of trying harder! #WEGOHealthChat |
| Alan Brewington @abrewi3010 @BillWongOT I’m all for getting the patient voice into any conversation. It needs to be an actual patient, no VP of Patient Engagement Whatever who has only had a cold 12 years ago #WEGOHealthChat |
| Must Stop MS! @MustStopMS T2 - empowered patients can help their level of care by working more closely with their doctors and developing more of a personalized care program. #WEGOHealthChat |
| Heather McCullen @H_SalemOaks RT @abrewi3010: @BillWongOT I’m all for getting the patient voice into any conversation. It needs to be an actual patient, no VP of Patient Engagement Whatever who has only had a cold 12 years ago #WEGOHealthChat |
| Ody @OdyO11 @wegohealth T2: Myth: Patients who document their symptoms, who inform themselves about medical issues and/or "doctor shop" worry themselves sick. Better not to do diagnostic testing in order not to worry the patient more & cause iatrogenic harm. #WEGOHealthChat |
| Social Health Network @socialhealthnet YES YES YES! #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth Now a real truth- professionals with disabilities can be powerful assets to serve in leadership roles in their profession. However, we shouldn’t be treated as helping them check the diversity boxes. #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 A2: Myth - There can be a condescending attitude re: we’re not the expert, therefore they often dismiss or tune us out because their “professional word” overrules ours. #wegohealthchat |
| Ody @OdyO11 RT @bennessb: T1: T1: A really important truth that gets lost is that patients really are trying to get better & follow their treatment protocols. It costs a lot of time, money & energy to work on your health all the time, and patients who want to get better still need breaks. #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @bennessb: T2 M: Unfortunately, a lot of practitioners think that empowered patients are just the worried well/problem patients/drug seekers. This myth seriously impacts quality of care. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @pettigrew66: A2: Myth - There can be a condescending attitude re: A2: Myth - There can be a condescending attitude re: we’re not the expert, therefore they often dismiss or tune us out because their “professional word” overrules ours. #wegohealthchat |
| Alan Brewington @abrewi3010 T2 patients are not waiting! We are designers, researchers, teachers, organizers who are just getting started #WEGOHealthChat |
| Mary Gerdt Parler:Alvarita1 @marygerdt Absolutely! |
| Social Health Network @socialhealthnet T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals. What's a myth (M) about doctors and healthcare professionals? #WEGOHealthChat https://t.co/4wji9cu1YK |
| Bill Wong, OTD, OTR/L @BillWongOT @pettigrew66 It took me several years to establish myself as one in my profession. I can’t imagine how much longer that would be without social media! #wegohealthchat |
 | Jamie Roger @JamieRoger8 Lost track of time but glad to be here for #WEGOHealthChat. Jamie from CT and @SalemOaks Hope everyone is having a good day, and if your in the northeast that your staying warm! |
| sick lately, words bad (check 📌 for discord info) @bennessb T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Social Health Network @socialhealthnet RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Ody @OdyO11 @wegohealth T2: Truth: Patients with unusual symptoms and certain symptom patterns will face a lot of bias and dismissal. If they wouldn't inform themselves, take matters into their own hands and search for doctors who think scientifically, they might never get diagnosed. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Jamie Roger @JamieRoger8 RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF T2 Myth adjustment. I missed the focus on "empowered patients." 🙄 Sometimes I wonder if I'm perceived as the "difficult patient" b/c I question and bring extensive lists to visits. #wegohealthchat |
| Jamie Roger @JamieRoger8 @justagoodlife @SalemOaks Hi Julie! #wegohealthchat |
| Alan Brewington @abrewi3010 M3 Doctors only care about their Mercedes and boats, not patients. They don’t need to continue their education. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 A2: Truth - Patients are passionately invested in their care & the care for others. We do our best to be involved, researching top reputable findings & explore ways to empower ourselves, to make a difference by sharing experiences & using our voices! #wegohealthchat |
 | Julia Huckle @julia_just_1 Patients and caregivers are also trying to balance having and enjoying life. It is a professional’s job but our lives! We don’t get to move on to the next thing, leave at end of day, take vacations, etc. |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth This time I will speak from health professional side. A myth I found out over the years is that many of my peers have their own disabilities they have to deal with. #wegohealthchat |
 | A. Bird @ABird_Tweets RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Social Health Network @socialhealthnet RT @RonnyAllan1: |
| Jamie Roger @JamieRoger8 @Leslie_GHF I certainly hope that doesn’t make you a “difficult patient”. We should all be heard and listened to... it’s OUR health that’s being discussed #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @wegohealth: We absolutely despise hearing this one. Patient Leaders are in the trenches daily- learning all they can from creditable resources and fellow patients. They offer REAL insight and value #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @abrewi3010: @BillWongOT I’m all for getting the patient voice into any conversation. It needs to be an actual patient, no VP of Patient Engagement Whatever who has only had a cold 12 years ago #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF @wegohealth Oh, I guess I was reading your mind. #wegohealthchat |
| Must Stop MS! @MustStopMS M3 - a big one I see is doctors don’t care and will only push medications from companies they are getting paid to do. I can’t say this never happens, but majority of doctors want to help. #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals. What's a myth (M) about doctors and healthcare professionals? #WEGOHealthChat https://t.co/4wji9cu1YK |
| Ody @OdyO11 @wegohealth T2: Misconceptions about informed patients and assumptions that unusual symptoms or certain patterns of physical symptoms must be psychogenic do real harm, contribute to diagnostic error and lead to systemic discrimination. This is insufficiently researched. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth And myth number 2- there are students out in the field who are still trying to learn. So patients need to be extra patient when they are treated by students. #wegohealthchat |
| Alan Brewington @abrewi3010 @JamieRoger8 @SalemOaks 👋 hello!!’ #WEGOHealthChat |
| Social Health Network @socialhealthnet T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals. Ok, time for a truth (T) about doctors and healthcare professionals. #WEGOHealthChat https://t.co/Hr7PUa4bYD |
| Ody @OdyO11 RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Kristen @srvingofspprt T3 TRUTH Doctors are people too. They’re tired, overworked and dealing with personal issues just like you. They are people trying to do their job the best they can. They got into the profession to help others. ***most of them at least, again always a bad apple #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals. Ok, time for a truth (T) about doctors and healthcare professionals. #WEGOHealthChat https://t.co/Hr7PUa4bYD |
| Ostomy Diaries @ostomydiaries @wegohealth T2: (T) A truth about empowered patients is, we do our homework. We can sift through reputable data online. We don’t believe everything “Google says.” You can trust us, because we know our bodies and we know our facts! #WegoHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T3: This is the exact flipside of the myth I shared, but it's also true that not every doctor will try to help you. Some doctors are burnt out or don't know about rare conditions or are hamstrung by insurance protocols. Find a doctor who wants to help you. #WEGOHealthChat |
| Must Stop MS! @MustStopMS T3 - doctors are there to help. If you have a doctor you don’t feel comfortable with then change. Being comfortable with your medical team is crucial! #WEGOHealthChat |
 | Dr Mary Ann Wilmarth @Back2backPT T1: Myth: Patients are made up of individual systems or worse yet, parts, ie, respiratory, muscular, lymphatic, circulatory; knee, wrist, TMJ, kidney, etc &these function in isolation😱 (You don't want Healthcare providers who do this!) #WEGOHealthChat @Back2backPT @wegohealth |
| Kristen @srvingofspprt TRUTH if you don’t like your doctor or feel your needs aren’t being met, you can find a new one. It’s a hassle yes but overall I think patients forget the doctor is a service, if your plumber stinks you get a new one! Same with your medical team #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth Truth- I read this from my Facebook and twitter friends a lot- caregiver burden is a real thing amongst health professionals. Burnouts happen! #wegohealthchat |
| Social Health Network @socialhealthnet RT @BillWongOT: @wegohealth And myth number 2- there are students out in the field who are still trying to learn. So patients need to be extra patient when they are treated by students. #wegohealthchat |
| Alan Brewington @abrewi3010 @justagoodlife @BillWongOT There is still to much fake engagement or patient use as window dressing. It still amazes me there are Patient Experience panels/content with no actual patient involvement. Some people’s conferences... 😜 #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: T3 TRUTH Doctors are people too. They’re tired, overworked and dealing with personal issues just like you. They are people trying to do their job the best they can. They got into the profession to help others. ***most of them at least, again always a bad apple #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @ostomydiaries: @wegohealth T2: @wegohealth T2: (T) A truth about empowered patients is, we do our homework. We can sift through reputable data online. We don’t believe everything “Google says.” You can trust us, because we know our bodies and we know our facts! #WegoHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @ostomydiaries: @wegohealth T2: @wegohealth T2: (T) A truth about empowered patients is, we do our homework. We can sift through reputable data online. We don’t believe everything “Google says.” You can trust us, because we know our bodies and we know our facts! #WegoHealthChat |
| Ody @OdyO11 @wegohealth T3: A myth about doctors is that they are certain in what they do, that medicine has all the answers and that diagnostic constructs are a given. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @scrufton73: |
| Bill Wong, OTD, OTR/L @BillWongOT RT @Back2backPT: T1: Myth: T1: Myth: Patients are made up of individual systems or worse yet, parts, ie, respiratory, muscular, lymphatic, circulatory; knee, wrist, TMJ, kidney, etc &these function in isolation😱 (You don't want Healthcare providers who do this!) #WEGOHealthChat @Back2backPT @wegohealth |
| Ody @OdyO11 RT @ostomydiaries: @wegohealth T2: @wegohealth T2: (T) A truth about empowered patients is, we do our homework. We can sift through reputable data online. We don’t believe everything “Google says.” You can trust us, because we know our bodies and we know our facts! #WegoHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: TRUTH if you don’t like your doctor or feel your needs aren’t being met, you can find a new one. It’s a hassle yes but overall I think patients forget the doctor is a service, if your plumber stinks you get a new one! Same with your medical team #WEGOHealthChat |
| Heather McCullen @H_SalemOaks RT @scrufton73: |
| Social Health Network @socialhealthnet RT @srvingofspprt: T3 TRUTH Doctors are people too. They’re tired, overworked and dealing with personal issues just like you. They are people trying to do their job the best they can. They got into the profession to help others. ***most of them at least, again always a bad apple #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @scrufton73: |
| Bill Wong, OTD, OTR/L @BillWongOT RT @OdyO11: @wegohealth T3: @wegohealth T3: A myth about doctors is that they are certain in what they do, that medicine has all the answers and that diagnostic constructs are a given. #WEGOHealthChat |
| Social Health Network @socialhealthnet T4. Let's talk about care, treatment, and/or medication. Can you share a common myth (M) about this topic? Again, feel free to speak generally or condition-specific. #WEGOHealthChat https://t.co/1YgOgQrCbd |
 | Mary🦄 Gurney, RPh, PhD, BCPA, FAPhA @rphteach RT @srvingofspprt: TRUTH if you don’t like your doctor or feel your needs aren’t being met, you can find a new one. It’s a hassle yes but overall I think patients forget the doctor is a service, if your plumber stinks you get a new one! Same with your medical team #WEGOHealthChat |
| Mary🦄 Gurney, RPh, PhD, BCPA, FAPhA @rphteach RT @Back2backPT: T1: Myth: T1: Myth: Patients are made up of individual systems or worse yet, parts, ie, respiratory, muscular, lymphatic, circulatory; knee, wrist, TMJ, kidney, etc &these function in isolation😱 (You don't want Healthcare providers who do this!) #WEGOHealthChat @Back2backPT @wegohealth |
| Alan Brewington @abrewi3010 T3 doctors are people too. To often they take the heat because we hurt but never get the credit to when the pain leaves/management #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T4 M: I think a lot of healthy folks believe that there are effective treatment options for every diagnosis and that is... definitely not true. This myth leaves a lot of patients unsupported by skeptical friends, family & colleagues. #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth M4. Once you are on meds, you need meds forever. I took anti-anxiety meds for 2 years. But now I am meds free for 5+ now. I am good at maintaining my #mentalhealth #wegohealthchat |
| Julie Croner @justagoodlife RT @BillWongOT: @wegohealth M4. Once you are on meds, you need meds forever. I took anti-anxiety meds for 2 years. But now I am meds free for 5+ now. I am good at maintaining my #mentalhealth #wegohealthchat |
| Leslie Krongold, EdD @Leslie_GHF T3. Truth: Just like any group of people, there are doctors and healthcare professionals who truly care and go above and beyond expectations. I'm happy to have met many who listen to me and integrate what I have to offer for a broader understanding of my disease. #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: T4. Let's talk about care, treatment, and/or medication. Can you share a common myth (M) about this topic? Again, feel free to speak generally or condition-specific. #WEGOHealthChat https://t.co/1YgOgQrCbd |
| sick lately, words bad (check 📌 for discord info) @bennessb @T2DRemission I totally agree. I think the media does us a huge disservice by misrepresenting diagnosis on tv & movies, and then doctors usually do not have the time to explain the process thoroughly. So patients don't have a way to evaluate if they're getting good care. #wegohealthchat |
| Alan Brewington @abrewi3010 Myth 4 patient compliance/adherence is an accurate measure. If #WEGOHealthChat |
| Ody @OdyO11 @wegohealth T4: It's a dangerous myth that worsening of symptoms is a sign that an alternative treatment is working. It's also a myth that demonizing alternative treatments is in the best interest of patients. #WEGOHealthChat |
| Julie Croner @justagoodlife RT @scrufton73: |
| Social Health Network @socialhealthnet T4. Let's talk about care, treatment, and/or medication. Ok, time for a truth (T) about this topic! #WEGOHealthChat https://t.co/btnr6mD95E |
 | Anna Parsons @_akpars_ RT @wegohealth: T2. Our second topic: T2. Our second topic: Let’s share myths & truths industry professionals (doctors, the media, HC Cos, etc) have about empowered patients. Let's hear a truth (T) about empowered patients! #WEGOHealthChat https://t.co/690uuFaDGt |
| Bill Wong, OTD, OTR/L @BillWongOT RT @bennessb: T4 M: I think a lot of healthy folks believe that there are effective treatment options for every diagnosis and that is... definitely not true. This myth leaves a lot of patients unsupported by skeptical friends, family & colleagues. #wegohealthchat |
| Must Stop MS! @MustStopMS M4 - one I hate hearing is that there will never be cures because there’s no money in that. #WEGOHealthChat |
| Dr Mary Ann Wilmarth @Back2backPT T1 T- If a patient is in your office, there's a reason: they're not well & have stopped their life to see you, the Healthcare provider. Look the pt in eyes & LISTEN‼️Patients know their bodies best. The history is of utmost importance! #WEGOHealthChat @Back2backPT @wegohealth |
 | 👀 Belle, #ProtectICWA #IndigenousCreature #NAVRA @bellesapepper37 RT @bennessb: T4 M: I think a lot of healthy folks believe that there are effective treatment options for every diagnosis and that is... definitely not true. This myth leaves a lot of patients unsupported by skeptical friends, family & colleagues. #wegohealthchat |
| Must Stop MS! @MustStopMS M4 - also that medicines adjust poison our bodies and therefore keep us sick. #WEGOHealthChat |
| Anna Parsons @_akpars_ RT @wegohealth: How many times have you been told to "try harder" for your treatment plan? It's certainly not always a case of trying harder! #WEGOHealthChat |
| Must Stop MS! @MustStopMS T4 - treatments help. They help. They help. They help! Not all work for everyone. That’s why it’s important to find your personalized method of care. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 A3: Myth - all doctors don’t give patients sufficient time during appointments; they don’t see the patient as an actual “person” w/ valuable stories/experiences to improve overall patient care. #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @bennessb: T3: T3: a huge myth about doctors is that if they don't know what's wrong with you then it means that they don't really believe you or that they're not trying to help. Back to my first point, diagnosis is complicated & it's not always the doc's fault! #wegohealthchat |
| Ody @OdyO11 @wegohealth T4: The truth is: It's often patients with contested and underresearched conditions who might try alternative treatments, especially when they feel dismissed by doctors. Their conditions need more research, not contempt and stereotype thinking. #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T4 T: you are not weak for needing medication, mobility aids, rest, etc. to improve your quality of life! #wegohealthchat |
| Social Health Network @socialhealthnet We hear this a LOT from Patient Leaders. It's vital to remember no body is alike, thus no treatment plan can be! #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth Another myth... once you figure out what disabilities you have, you are entitled to accommodations for work or school. Finding dx is half the battle, you have to find out how they affect you so that you can find out what accommodations you need. #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @OdyO11: @wegohealth T4: @wegohealth T4: It's a dangerous myth that worsening of symptoms is a sign that an alternative treatment is working. It's also a myth that demonizing alternative treatments is in the best interest of patients. #WEGOHealthChat |
| Alan Brewington @abrewi3010 M4 with today’s technology all diseases should be cured by now. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 👍😁👍 I was going to say the same thing! Some doctors definitely do fall into this category, yet ithers definitely do not. #wegohealthchat |
| Ody @OdyO11 RT @wegohealth: We hear this a LOT from Patient Leaders. It's vital to remember no body is alike, thus no treatment plan can be! #WEGOHealthChat |
 | Shanon McQuitty @shanonmc RT @srvingofspprt: TRUTH if you don’t like your doctor or feel your needs aren’t being met, you can find a new one. It’s a hassle yes but overall I think patients forget the doctor is a service, if your plumber stinks you get a new one! Same with your medical team #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth Truth- we are more than capable to manage our own care. We just need to know how our issues affect us from the inside and out. We also need abilities to make informed decisions. #wegohealthchat |
 | Sue is on hiatus 🕯🌷🧹 @SueLahna RT @bennessb: T4 T: you are not weak for needing medication, mobility aids, rest, etc. to improve your quality of life! #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @BillWongOT: @pettigrew66 It took me several years to establish myself as one in my profession. I can’t imagine how much longer that would be without social media! #wegohealthchat |
| Heather McCullen @H_SalemOaks @abrewi3010 Follow up myth: they're not cured because of some sort of conspiracy #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @wegohealth: We hear this a LOT from Patient Leaders. It's vital to remember no body is alike, thus no treatment plan can be! #WEGOHealthChat |
| Kristen @srvingofspprt MYTH treatment means you’re cured. Especially in the mental health/eating disorder space, I’ve been through three rounds of treatment and see a team regularly- doesn’t mean I’m cured by any means! It’s still a daily battle #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @bennessb: T4 T: you are not weak for needing medication, mobility aids, rest, etc. to improve your quality of life! #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @srvingofspprt: MYTH treatment means you’re cured. Especially in the mental health/eating disorder space, I’ve been through three rounds of treatment and see a team regularly- doesn’t mean I’m cured by any means! It’s still a daily battle #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @pettigrew66: 👍😁👍 I was going to say the same thing! Some doctors definitely do fall into this category, yet ithers definitely do not. #wegohealthchat |
| Social Health Network @socialhealthnet T5. For our last set of myths/truths – let’s talk about social media. What’s a myth (M) about social media when it comes to patient communities? #WEGOHealthChat https://t.co/CfkvkYcdlS |
| sick lately, words bad (check 📌 for discord info) @bennessb T5: it is a huge myth that you can't make real friends or get real support from online communities. Sometimes it's the only place to find people who really do get it. #wegohealthchat |
 | dov @DovZeller RT @bennessb: T4 M: I think a lot of healthy folks believe that there are effective treatment options for every diagnosis and that is... definitely not true. This myth leaves a lot of patients unsupported by skeptical friends, family & colleagues. #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @scrufton73: |
| Must Stop MS! @MustStopMS RT @srvingofspprt: MYTH treatment means you’re cured. Especially in the mental health/eating disorder space, I’ve been through three rounds of treatment and see a team regularly- doesn’t mean I’m cured by any means! It’s still a daily battle #WEGOHealthChat |
| Alan Brewington @abrewi3010 M5 social media has no added value to this conversation #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF T4 Myth: Since there is no cure/treatment for myotonic dystrophy, there's little I can do to help my situation. #wegohealthchat |
| Must Stop MS! @MustStopMS M5 - a big thing about social media is anyone can create an account or group or page or whatever. Not all info shared is factual. In actuality, much information can be dangerous to those looking for answers. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 A4: Truth - Re: care, treatment & medication... Patients are not a “one size fits all.” What works for you may not work for me. Proper steps & patience must be taken to find a good fit. This topic is HUGE for me & I’ve continued to speak out on it for years. #wegohealthchat |
| Ody @OdyO11 @wegohealth T5: It's a myth that patients will worry themselves sicker when they interact with other patients & hear about other's course of symptoms. It's also a myth that it's dysfunctional when patients identify with their disability. #WEGOHealthChat |
| Bill Wong, OTD, OTR/L @BillWongOT @wegohealth Myth- we can get stereotyped into working in certain career sectors! But as our social media communities show, we work in different industries! #wegohealthchat |
| Heather McCullen @H_SalemOaks RT @OdyO11: @wegohealth T5: @wegohealth T5: It's a myth that patients will worry themselves sicker when they interact with other patients & hear about other's course of symptoms. It's also a myth that it's dysfunctional when patients identify with their disability. #WEGOHealthChat |
| Social Health Network @socialhealthnet T5. For our last set of myths/truths – let’s talk about social media. You know it- time for a truth (T) about social media when it comes to patient communities! #WEGOHealthChat https://t.co/I01fM59hUK |
| 👀 Belle, #ProtectICWA #IndigenousCreature #NAVRA @bellesapepper37 RT @bennessb: T5: it is a huge myth that you can't make real friends or get real support from online communities. Sometimes it's the only place to find people who really do get it. #wegohealthchat |
| Social Health Network @socialhealthnet RT @MustStopMS: M5 - a big thing about social media is anyone can create an account or group or page or whatever. Not all info shared is factual. In actuality, much information can be dangerous to those looking for answers. #WEGOHealthChat |
| Must Stop MS! @MustStopMS T5 - social media is a great way to connect with other patients, advocates, leaders. I get most help talking to others dealing with the same things I am. There’s no better way to learn than to talk to those in the fight with you. #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T5 T: Online communities are one of the best places to learn how to talk about your experience with chronic illness. In order to explain it to people who don't get it, it helps A LOT to talk to lots of people who do get it. Social media is perfect for that. #WEGOHealthChat |
| Must Stop MS! @MustStopMS T5 - support system 24/7/365. #WEGOHealthChat |
| Social Health Network @socialhealthnet HA! This is great Alan 😂😂#WEGOHealthChat |
| Ody @OdyO11 @wegohealth T5: The truth is: Being chronically ill and/or disabled isn't shameful. It's one part of a patient's identity that impacts a patient's life. It's helpful to be understood, to share struggles and questions, solutions and answers and to support each other. #WEGOHealthChat |
| Social Health Network @socialhealthnet Retweet if you agree! #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @bennessb: T5 T: Online communities are one of the best places to learn how to talk about your experience with chronic illness. In order to explain it to people who don't get it, it helps A LOT to talk to lots of people who do get it. Social media is perfect for that. #WEGOHealthChat |
| Social Health Network @socialhealthnet Who knew all of these myths and truths could teach us so much about each other's conditions in just an hour?! #WEGOHealthChat |
| Dr Mary Ann Wilmarth @Back2backPT T2 T- Just as no 2patients or Diagnoses are alike, no 2 doctors are alike. Some MDS do better than others w/empowered pts, even when you adjust 4 personality. Burnout plays role w/shorter visits too; even tho empowered pts should help🤷♀️ #WEGOHealthChat @Back2backPT @wegohealth |
| Ody @OdyO11 RT @bennessb: T5 T: Online communities are one of the best places to learn how to talk about your experience with chronic illness. In order to explain it to people who don't get it, it helps A LOT to talk to lots of people who do get it. Social media is perfect for that. #WEGOHealthChat |
| Social Health Network @socialhealthnet T6. For our last topic, we want to hear your advice! What do you do when you hear someone discuss one of these myths as a truth? What actions do you take- do you step in and educate or let them walk away? #WEGOHealthChat https://t.co/YruxFDbUyz |
| Must Stop MS! @MustStopMS RT @wegohealth: Retweet if you agree! #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF RT @wegohealth: Retweet if you agree! #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 A5: Myth - All patient communities on social media are full of pity parties, egos, false information & negativity. (Truth = some groups are like this, yet many are not & are the total opposite)! #wegohealthchat |
| Must Stop MS! @MustStopMS @justagoodlife Same. It was an awesome chat! Thank you @wegohealth ! #wegohealthchat |
| Mary P. Pettigrew @pettigrew66 RT @wegohealth: T5. For our last set of myths/truths – let’s talk about social media. What’s a myth (M) about social media when it comes to patient communities? #WEGOHealthChat https://t.co/CfkvkYcdlS |
| Mary P. Pettigrew @pettigrew66 RT @OdyO11: @wegohealth T5: @wegohealth T5: It's a myth that patients will worry themselves sicker when they interact with other patients & hear about other's course of symptoms. It's also a myth that it's dysfunctional when patients identify with their disability. #WEGOHealthChat |
| sick lately, words bad (check 📌 for discord info) @bennessb T6: I'm in a place now where I usually step in right away when I hear somebody say something false about patients. I've interviewed 60+ people and I draw on those stories to explain why something is a myth and how it hurts people. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @MustStopMS: T5 - social media is a great way to connect with other patients, advocates, leaders. I get most help talking to others dealing with the same things I am. There’s no better way to learn than to talk to those in the fight with you. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @bennessb: T6: T6: I'm in a place now where I usually step in right away when I hear somebody say something false about patients. I've interviewed 60+ people and I draw on those stories to explain why something is a myth and how it hurts people. #WEGOHealthChat |
| Dr Mary Ann Wilmarth @Back2backPT T3 Myth- All doctors & Healthcare workers are created equal. If they have the same credentials, then you can expect the same level of care regardless of where you are. #WEGOHealthChat @Back2backPT @wegohealth |
| Mary P. Pettigrew @pettigrew66 This was a terrific topic! Thank you! ❤️😍👍 I’d love to see a “Part 2” segment on this... I’ll bet we’ve all got much more to share on the subject! #wegohealthchat |
| Ody @OdyO11 @wegohealth T6: I try to challenge myths that can harm patients. It's not easy though, as there often is a lot of bias, especially when myths are socially accepted or even inbuilt in medical training. I think sometimes it's better to ask critical questions instead. #WEGOHealthChat |
| Must Stop MS! @MustStopMS T6 - I do step in as much as possible and also provide sources to back me up. I couldn’t have it on my conscious knowing someone could take action on potential dangerous advice and I could have at least tried to prevent it. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 RT @bennessb: T6: T6: I'm in a place now where I usually step in right away when I hear somebody say something false about patients. I've interviewed 60+ people and I draw on those stories to explain why something is a myth and how it hurts people. #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: T6. For our last topic, we want to hear your advice! What do you do when you hear someone discuss one of these myths as a truth? What actions do you take- do you step in and educate or let them walk away? #WEGOHealthChat https://t.co/YruxFDbUyz |
| Social Health Network @socialhealthnet RT @MustStopMS: T6 - I do step in as much as possible and also provide sources to back me up. I couldn’t have it on my conscious knowing someone could take action on potential dangerous advice and I could have at least tried to prevent it. #WEGOHealthChat |
| Social Health Network @socialhealthnet Whew, that hour went quickly! We have a few more moments, so let's begin to wrap up. Use CT to share with us any closing thoughts you have from today's chat. #WEGOHealthChat |
| Ostomy Diaries @ostomydiaries @wegohealth T6 (A): That’s what advocacy is all about! There is always a polite way to guide someone to the truth. Never forget, you had to learn at some point too. I’m thankful for other patients/advocates who spoke truth to me! #SpeakTruth #BeKind #WegoHealthChat |
| Alan Brewington @abrewi3010 T6 start a conversation, in the end isn’t that what advocacy is? #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @ostomydiaries: @wegohealth T6 (A): @wegohealth T6 (A): That’s what advocacy is all about! There is always a polite way to guide someone to the truth. Never forget, you had to learn at some point too. I’m thankful for other patients/advocates who spoke truth to me! #SpeakTruth #BeKind #WegoHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Whew, that hour went quickly! We have a few more moments, so let's begin to wrap up. Use CT to share with us any closing thoughts you have from today's chat. #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF My biggest challenge is with my #patient community when they lose #hope and hang on to the idea of a #cure. All of my #advocacy efforts I have them in mind - Radical #selfcare helps! Find a #passion, explore different #healing modalities, and don't give up. #WEGOHealthChat |
| Must Stop MS! @MustStopMS CT - no matter the topic there are many misconceptions out there. Research as much as you can before making decisions that affect your healthcare. With Knowledge you have everything to gain and nothing to lose. #WEGOHealthChat |
| Julie Croner @justagoodlife RT @Leslie_GHF: My biggest challenge is with my #patient community when they lose #hope and hang on to the idea of a #cure. All of my #advocacy efforts I have them in mind - Radical #selfcare helps! Find a #passion, explore different #healing modalities, and don't give up. #WEGOHealthChat |
| Julie Croner @justagoodlife RT @scrufton73: |
| sick lately, words bad (check 📌 for discord info) @bennessb CT: I didn't know any of this stuff when I first started getting sick. So as frustrated as I am by many of these myths (and truths!), I think it's important to remember that most people don't know better chronic illness is not at all represented in media. #wegohealthchat |
| Alan Brewington @abrewi3010 Advocacy requires active listening and return communication. Flirting but with more work than fun. Conversations change the world. #WEGOHealthChat |
| Dr Mary Ann Wilmarth @Back2backPT T3 T- It's important to research, shop around, interview for your doctor's & Healthcare providers, esp. as patient w/chronicillnesses. This is a major investment in your life! Don't underestimate "bedside manner" either: very important. #WEGOHealthChat @Back2backPT @wegohealth |
| Social Health Network @socialhealthnet Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Ody @OdyO11 @wegohealth CT: Myths can harm patients, especially when they are inbuilt in medical training and aren't challenged by research. They can lead to bias, discrimination and cause harm. Misunderstanding by family, friends and the public adds to the burden. #WEGOHealthChat |
| Mary P. Pettigrew @pettigrew66 @BillWongOT @wegohealth That’s very important! I could definitely add a few more tools to my list of ways to deal with #SensoryOverload when it hits - especially when you think you’re prepared & it hits unexpectedly! #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Must Stop MS! @MustStopMS So glad I was able to make today. Thanks everyone! #WEGOHealthChat |
 | Litsa Dremousis 🐳 @LitsaDremousis Oh, dear god, this is SO true: |
| Ody @OdyO11 RT @bennessb: T4 T: you are not weak for needing medication, mobility aids, rest, etc. to improve your quality of life! #wegohealthchat |
| Ody @OdyO11 RT @bennessb: CT: I didn't know any of this stuff when I first started getting sick. So as frustrated as I am by many of these myths (and truths!), I think it's important to remember that most people don't know better chronic illness is not at all represented in media. #wegohealthchat |
| Bill Wong, OTD, OTR/L @BillWongOT RT @pettigrew66: @BillWongOT @wegohealth That’s very important! I could definitely add a few more tools to my list of ways to deal with #SensoryOverload when it hits - especially when you think you’re prepared & it hits unexpectedly! #wegohealthchat |
| Social Health Network @socialhealthnet Don't forget, we have #WEGOHealthChat the second Tuesday of every month at 1pm ET. Mark it on your calendar 📆! |
 | Guilherme Lamounier 🐔🚩⚛️⏳ @guilamour RT @MustStopMS: CT - no matter the topic there are many misconceptions out there. Research as much as you can before making decisions that affect your healthcare. With Knowledge you have everything to gain and nothing to lose. #WEGOHealthChat |
 | #AbolitionNow Jess (She/her) @jtressn10 RT @bennessb: @justagoodlife I just wrote something about it, so it's very top of mind for me! https://t.co/vwTgl8Pw8B #wegohealthchat |
| #AbolitionNow Jess (She/her) @jtressn10 RT @bennessb: T1: T1: so I've been tweeting about this all morning kind of, but a HUGE myth that I want to talk about is the idea that if you have a good doctor and a real illness, you'll be diagnosed quickly. This is not at all true, and it causes a lot of harm to patients. #wegohealthchat |
| Ody @OdyO11 RT @Back2backPT: T1 T- If a patient is in your office, there's a reason: T1 T- If a patient is in your office, there's a reason: they're not well & have stopped their life to see you, the Healthcare provider. Look the pt in eyes & LISTEN‼️Patients know their bodies best. The history is of utmost importance! #WEGOHealthChat @Back2backPT @wegohealth |
 | Tiffany Vogt @TVWatchtower RT @bennessb: T1: T1: so I've been tweeting about this all morning kind of, but a HUGE myth that I want to talk about is the idea that if you have a good doctor and a real illness, you'll be diagnosed quickly. This is not at all true, and it causes a lot of harm to patients. #wegohealthchat |
| Tiffany Vogt @TVWatchtower RT @bennessb: @justagoodlife I just wrote something about it, so it's very top of mind for me! https://t.co/vwTgl8Pw8B #wegohealthchat |
| Ody @OdyO11 RT @bennessb: @T2DRemission I totally agree. I think the media does us a huge disservice by misrepresenting diagnosis on tv & movies, and then doctors usually do not have the time to explain the process thoroughly. So patients don't have a way to evaluate if they're getting good care. #wegohealthchat |
| Ody @OdyO11 RT @bennessb: T4 M: I think a lot of healthy folks believe that there are effective treatment options for every diagnosis and that is... definitely not true. This myth leaves a lot of patients unsupported by skeptical friends, family & colleagues. #wegohealthchat |
| 👀 Belle, #ProtectICWA #IndigenousCreature #NAVRA @bellesapepper37 RT @bennessb: CT: I didn't know any of this stuff when I first started getting sick. So as frustrated as I am by many of these myths (and truths!), I think it's important to remember that most people don't know better chronic illness is not at all represented in media. #wegohealthchat |
| Ody @OdyO11 RT @Back2backPT: T1: Myth: T1: Myth: Patients are made up of individual systems or worse yet, parts, ie, respiratory, muscular, lymphatic, circulatory; knee, wrist, TMJ, kidney, etc &these function in isolation😱 (You don't want Healthcare providers who do this!) #WEGOHealthChat @Back2backPT @wegohealth |
#WEGOHealthChat content from Twitter.