#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag.
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See #WEGOHealthChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Social Health Network @socialhealthnet T-30 minutes until today's #WEGOHealthChat! @HeadacheHeroine @gabehoward @PaigeRawl https://t.co/XX06XFb0C0 |
| Social Health Network @socialhealthnet Calling all #PatientLeaders and #Experts, we're ready to listen. Join us for today's #WEGOHealthChat in just 15 minutes! https://t.co/XlmLyLIpZO |
| Social Health Network @socialhealthnet It's the final countdown! Get those tweets ready everybody- 10 minutes until the #WEGOHealthChat! https://t.co/jWgo9ylMvc |
| Social Health Network @socialhealthnet Who is joining today's #WEGOHealthChat in just 5 MINUTES? @mollyschreiber @RonnyAllan1 @adamhayden @KCares4Kids @abrewi3010 Tag your fellow #PatientLeaders- let's get this party started! https://t.co/BPKA9CpcYY |
 | Whitney Petit @CfEpilepsy RT @wegohealth: Who is joining today's #WEGOHealthChat in just 5 MINUTES? @mollyschreiber @RonnyAllan1 @adamhayden @KCares4Kids @abrewi3010 Tag your fellow #PatientLeaders- let's get this party started! https://t.co/BPKA9CpcYY |
| Social Health Network @socialhealthnet 2 minutes until go time! If you're here for the chat make sure to say hi, introduce yourself & tell us where you're logging in from! #WEGOHealthChat |
 | Kayla Cares 4 Kids @KCares4Kids Andrea is here - signing in from Florida! #wegohealthchat |
| Social Health Network @socialhealthnet Welcome everyone! We're excited for today's #WEGOHealthChat. Make sure to tag your fellow #PatientLeaders because we're brainstorming BIG ideas today. |
| Social Health Network @socialhealthnet But, as always, let's go over a few ground rules to keep this chat moving smoothly! #WEGOHealthChat |
| Whitney Petit @CfEpilepsy Time for the #WEGOHealthChat come join us! |
| Social Health Network @socialhealthnet Be sure to introduce yourself! Let us know where you're from & what condition you advocate for #WEGOHealthChat |
| Social Health Network @socialhealthnet Watch the WEGO Health account for all the questions to answer during the chat #WEGOHealthChat |
| Social Health Network @socialhealthnet Each question will be labeled Q1, Q2, Q3, etc to indicate the new topic #WEGOHealthChat |
| Whitney Petit @CfEpilepsy Hi friends! Whitney here from Dallas, Tx! Happy to be here. #WEGOHealthChat |
| Social Health Network @socialhealthnet In your answers, make sure to label it to the corresponding question. So, A1 for Q1, A2 for Q2, etc #WEGOHealthChat |
| Social Health Network @socialhealthnet Here at WEGO Health, we work with so many different #PatientLeaders all over the world across condition areas #WEGOHealthChat |
 | Alan Brewington @abrewi3010 Alan here. A very tired and frustrated #caregiver #arthritis #chronicpain & #Mentalhealth patient. #WEGOHealthChat https://t.co/TEjV9GNERh |
| Whitney Petit @CfEpilepsy @JackieZimm Heyyyy Jackieee! #WEGOHealthChat |
| Social Health Network @socialhealthnet We find it extremely beneficial for leaders to come together & collaborate- there's so much we have to offer when we rise together #WEGOHealthChat |
| Whitney Petit @CfEpilepsy @justagoodlife Hey girl!!! Aw I’ve missed you all! #WEGOHealthChat |
| Kayla Cares 4 Kids @KCares4Kids We advocate for Crohn's, Juvenile Arthritis, Eosinophilic diseases, dysautonomia, Aspergers #wegohealthchat |
| Whitney Petit @CfEpilepsy https://t.co/BtEk5WjQfL.Ever! #WEGOHealthChat https://t.co/y5bPS51tXM |
 | michaels sky @michaelsky12 RT @RonnyAllan1: |
 | JP Summers @authorjpsummers JP from Green Bay, WI. I'm an Advocate for #migraine #clusterheadaches #Fibromyalgia #rheumatoidarthritis #chronicpain & kids/teen living w/#invisible illnesses #WEGOHealthChat https://t.co/GezG2MsxT9 |
| Social Health Network @socialhealthnet So let's get started- today we need a group brainstorm- because we are ready to change healthcare. We want to focus on how can pharma and healthcare companies be better partners with Patient Leaders? #WEGOHealthChat |
| Social Health Network @socialhealthnet So let's hop to it! Q1. What are current gaps and/or needs in your community that you feel could be addressed by pharma &/or healthcare companies? #WEGOHealthChat |
 | Chris Stocker @LifeofaDiabetic @justagoodlife @BarbyIngle @imstilljosh @LillyStairs @stales @EMRAnswers ut-oh, I'll try and pull double chat duty, but today is World Diabetes Day and there is an 18-hour long twitter chat. I'll see if i can handle both #WEGOHealthChat #WDDChat17 |
 | Rie Lopez, MPH (she/her) @RieOfLetters Rie here, from chilly Massachusetts. Advocate for #Fibromyalgia and #hemiplegicmigraine. Will try to keep up, but taking care of a sick six-year-old. #WEGOHealthChat |
 | Lilly Stairs @LillyStairs @justagoodlife @BarbyIngle @imstilljosh @LifeofaDiabetic @stales @EMRAnswers I have a call but am hoping to chime in after!!! #WEGOHealthChat |
| JP Summers @authorjpsummers RT @wegohealth: We find it extremely beneficial for leaders to come together & collaborate- there's so much we have to offer when we rise together #WEGOHealthChat |
| JP Summers @authorjpsummers RT @wegohealth: Here at WEGO Health, we work with so many different #PatientLeaders all over the world across condition areas #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @wegohealth: So let's hop to it! Q1. What are current gaps and/or needs in your community that you feel could be addressed by pharma &/or healthcare companies? #WEGOHealthChat |
 | Francesco Sguera @kekko1897 @RobyAsa https://t.co/xZSJ1Qj2dB |
| Alan Brewington @abrewi3010 T1 We need more active listening & communication platforms between patients & healthcare. Still speaking multiple languages #WEGOHealthChat |
| Kayla Cares 4 Kids @KCares4Kids A1: How to make it more tolerable for kids - Kayla is changing from a monthly infusion to a weekly injection - she's scared #wegohealthchat |
 | M&B Sciences @mbsciencesinc @JackieZimm Share them all! We can't find solutions unless we understand all the problems, right? #WEGOHealthChat @wegohealth |
 | CP Nerve Center @Cpnervecenter Hi. I'm Becky with @Cpnervecenter jumping in late. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @RieOfLetters Welcome Rie! Sorry to hear your youngster is under the weather today - sending get well soon vibes! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters A1: Particularly in the #hemiplegicmigraine community, we're desperate for research and better treatments. https://t.co/3RNqxnjp2w |
| Alan Brewington @abrewi3010 T1 also would like to see pharma/healthcare use their platforms to help spread all patient stories, not just the same 5 "it" or celebrity patients. Help all of us get our stories out. #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter T1 More affordable healthcare plans to choose from. If you are a senior on Medicare, the choices are great. Otherwise everyone suffers. #WEGOHealthChat |
| Chris Stocker @LifeofaDiabetic Q1 I'd say the biggest gap we have in diabetes is the need for more affordable insulin. Most people don't understand diabetes. Without insulin, I die within days, sometimes hours. Pharma can help with the pricing issue. #wegohealthchat |
| M&B Sciences @mbsciencesinc @KCares4Kids Kayla is so brave! Adults in her Kayla's shoes would likely be scared too! It is so important to acknowledge these human feelings when thinking about shaping care. #WEGOHealthChat |
| Alan Brewington @abrewi3010 @justagoodlife Thank you! #WEGOHealthChat |
 | Lisa Davis Budzinski @lisadbudzinski Sorry guys, sliding in a little tardy #WegoHealthchat https://t.co/YeDco5CVeP |
| Social Health Network @socialhealthnet Whoa- we are overwhelmed with possible answers here! Thank goodness we have #PatientLeaders like yourselves fighting for these issues everyday. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters #WEGOHealthChat 👇 https://t.co/Jvywh1frYz |
| M&B Sciences @mbsciencesinc @shawnbethea_ Yes! Imagine if they consulted patients before producing ads! It would be a win-win-win, don't you think? #WEGOHealthChat |
 | Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A little late! But hi! I’m Brooke, The Crazy Creole Mommy! I’m a health advocate from LA. I have IBD, Psoriasis, Spondylitis & trigeminal neuralgia. I’m also a mommy to a little boy and two 🐕 🐶 https://t.co/MWWt8zRLXR |
| Lisa Davis Budzinski @lisadbudzinski @JackieZimm Definitely ✨ #WEGOHealthChat |
| Alan Brewington @abrewi3010 T1 if pharma has to advertise, make advertisements based in reality & not stigma. Kids get arthritis too, not just 70 year olds with beach houses & golden retrievers. #WEGOHealthChat |
| Social Health Network @socialhealthnet Alright let's jump to Q2- we know there are gaps in healthcare- we experience them daily- but the question is, how do we fix it?! #WEGOHealthChat |
| Social Health Network @socialhealthnet Q2. What ideas do you have on how pharma & healthcare companies can better leverage patients? #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @abrewi3010: T1 if pharma has to advertise, make advertisements based in reality & not stigma. Kids get arthritis too, not just 70 year olds with beach houses & golden retrievers. #WEGOHealthChat |
 | Molly Schreiber @mollyschreiber RT @wegohealth: Who is joining today's #WEGOHealthChat in just 5 MINUTES? @mollyschreiber @RonnyAllan1 @adamhayden @KCares4Kids @abrewi3010 Tag your fellow #PatientLeaders- let's get this party started! https://t.co/BPKA9CpcYY |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A1: the price of drugs. And also the coverage or sometimes lack there of. Having to fight for meds you need to survive is awful. Having to pay for Ostomy items to simply be able to poop, is also annoying! #WEGOHealthChat https://t.co/HH0mL9431t |
| JP Summers @authorjpsummers A1: updated & correct info. in schools about health/alternative treatment options for kids/teens. Most teachers seem to believe meds should fix everything. Not the case for my teen #WEGOHealthChat https://t.co/EJlqXDeksl |
| M&B Sciences @mbsciencesinc @justagoodlife True! Many adults feel like scared little kids inside when facing hard medical news. Acknowledging that it is scary would help industry to connect to patient leaders on a more human level. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski A1 Why all of a sudden is it necessary to take 2 meds instead of 1? #WEGOHealthChat https://t.co/Mo6vtH8hoC |
 | Mika Love-Rogers, L.M.T. @mikaloverogers @wegohealth A1. I would like to see more dollars going towards cures not just new treatments. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @EMRAnswers @wegohealth Fantastic suggestion! Especially if you have food allergies, it's SO Hard to find even supplements that are safe! #WEGOHealthChat |
| Alan Brewington @abrewi3010 T2 Everyone needs to actively work in their human centered conversations. Everyone included, not just the cool kids. If you want to help, jump in! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife Hey Julie! 👋 #WegoHealthchat |
| Whitney Petit @CfEpilepsy RT @wegohealth: Q2. What ideas do you have on how pharma & healthcare companies can better leverage patients? #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @lisadbudzinski: A1 Why all of a sudden is it necessary to take 2 meds instead of 1? #WEGOHealthChat https://t.co/Mo6vtH8hoC |
| Social Health Network @socialhealthnet We loved seeing you at #health2con:) Such a crucial point- very important to put faces to the disease #WEGOHealthChat https://t.co/bny19EbLyW |
| Lisa Davis Budzinski @lisadbudzinski A1 So many aren’t taking life saving meds due to prices #WegoHealthchat |
| michaels sky @michaelsky12 RT @RonnyAllan1: |
| CP Nerve Center @Cpnervecenter T2 Stop sending me numerous duplicate papers every month/yr, let my doctor decide what I need, give me 1 longer appt every 4-6mths instead of 1 every 3mths. Fill ALL scripts for 3mths at a time #WEGOHealthChat |
| Chris Stocker @LifeofaDiabetic A2 I think pharma needs to use patients in the product development process as opposed to once something is already launched and they want to promote it. #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski @EMRAnswers @justagoodlife And that takes care of that! 💥 #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @justagoodlife What do you think about patients who are celebs? Are they positive or negative influences for the rest of the patient population? #WEGOHealthChat @wegohealth |
| Social Health Network @socialhealthnet YASSSSSS!!! #WEGOHealthChat https://t.co/wozvga5BF9 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A2: by LISTENING!! Allowing us a seat at the table. There are some companies that do that now and it’s made some serious progress! But listening is important! #listenlinda #WEGOHealthChat https://t.co/bkvNmUtHMN |
| Rie Lopez, MPH (she/her) @RieOfLetters A2: We need a much larger focus on collaboration. Get all stakeholders to the table, especially patients, and really talk. Working together, I know we can make huge improvements! #WEGOHealthChat |
| Alan Brewington @abrewi3010 T2 put patients on boards, conference planning & participation, into the classroom. Help break the health literacy & communication gap between all parties #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @ClotThickens @wegohealth We love this idea of no patient left behind! Patients aren't doctors! They shouldn't be expected to speak medical jargon. #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter RT @RonnyAllan1: |
| Social Health Network @socialhealthnet These ideas are ON POINT. Keep 'em coming. The #WEGOHealthChat inspiration is coming in hot! https://t.co/opCwFLKKY2 |
| JP Summers @authorjpsummers A2: follow a patient's journey to get the REAL insight on their medical condition. Have kids/teens w/actual medical condition on panals/commercials. They have voices too! #WEGOHealthChat https://t.co/pCzckw54uV |
| Social Health Network @socialhealthnet Oh yes, we can agree on that! #WEGOHealthChat https://t.co/JbAZyA75SH |
| michaels sky @michaelsky12 RT @RonnyAllan1: |
| Mika Love-Rogers, L.M.T. @mikaloverogers @justagoodlife A2. Start with lobbying, we will not see huge changes when big pharmaceuticals out spends advocacy groups by billions. Lobbyists slow down change unfortunately it’s all about money for big pharmaceutical. #WEGOHealthChat |
 | Josh Robbins @imstillJosh I’m here! Late. Like usual for every thing. :( #WEGOHealthChat https://t.co/kiYiO5BnLj |
 | John Lynn @techguy I think the question I'd ask is "What is a real patient?" Is it volume? Is it a special patient that can abstract for other patients? Is it chronic patients? #WEGOHealthChat https://t.co/f4SvRn4gQs |
 | Mohamad Arif Ali @mhealth1 RT @techguy: I think the question I'd ask is "What is a real patient?" Is it volume? Is it a special patient that can abstract for other patients? Is it chronic patients? #WEGOHealthChat https://t.co/f4SvRn4gQs |
| Rie Lopez, MPH (she/her) @RieOfLetters A2b: It's not enough to passively ask for engagement. Listen to us and our stories. Gain awareness of where research and treatment are lacking. We know! #WEGOHealthChat |
 | Countess FrightBat ~ Нечистый ~ CeaseFireNow @CorruptNSW RT @RonnyAllan1: |
 | Heather 🇺🇸 @ZHeatherChamp @RieOfLetters ESPECIALLY patients. Yes! #WEGOHealthChat |
 | MMHRC @research4mom @wegohealth Innovative ways to ensure that all moms are being screened for #postpartumdepression because right now it just isn't happening and women can go years without help #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @JackieZimm @shawnbethea_ I️ think a lot of us have been advocating this issue for quite a few years now✨ #WEGOHealthChat |
| Josh Robbins @imstillJosh @Cpnervecenter Thanks! ;) it’s me! ;) ha #WEGOHealthChat |
| Alan Brewington @abrewi3010 T2 @Clara_Health is an excellent example of crossing silos for the greater good. It's human centered, not profit centered. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @wegohealth The way this question is worded shows the problem with current patient/pharma relationships. They shouldn't be "leveraging patients". They should listen to patients and meeting patient needs. They should provide resources for patients to leverage! #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @RieOfLetters: A2b: A2b: It's not enough to passively ask for engagement. Listen to us and our stories. Gain awareness of where research and treatment are lacking. We know! #WEGOHealthChat |
| Josh Robbins @imstillJosh @1BendyKat Howwwwdeeeee! 🤠 #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @mikaloverogers @wegohealth But will big pharma allow that to happen? #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @RieOfLetters It's a two way street! Love this perspective. #WEGOHealthChat |
 | 💖💄 Aoife ♿💜 @Aoiferocksitout A2 Involve patients in the conversation about all aspects of healthcare. Listen to us, and pay attention to what we need! #WEGOHealthChat https://t.co/HoXtiLJQyK |
| Alan Brewington @abrewi3010 RT @Clara_Health: @wegohealth The way this question is worded shows the problem with current patient/pharma relationships. They shouldn't be "leveraging patients". They should listen to patients and meeting patient needs. They should provide resources for patients to leverage! #WEGOHealthChat |
 | Help Leila @HelpLeila RT @RonnyAllan1: |
| Rie Lopez, MPH (she/her) @RieOfLetters Yes! All of our experiences are different. We can't speak for everyone, but what we say is important! #WEGOHealthChat https://t.co/9Qh9uK3M3N |
| JP Summers @authorjpsummers YES!!! Real patients know the hardships of living w/medical conditions. No more actors UNLESS they actually have the condition #WEGOHealthChat https://t.co/lczhNqZjTh |
| Lisa Davis Budzinski @lisadbudzinski @JackieZimm @shawnbethea_ Sorry guys, that stupid I thing with iPhone ✨ #WEGOHealthChat |
| John Lynn @techguy My kids have been watching a Trolls on repeat, so this tweet reminded me of the start of the show: https://t.co/m9LJUZlcFT #WEGOHealthChat https://t.co/UemBjvz2J4 |
| Mika Love-Rogers, L.M.T. @mikaloverogers RT @RieOfLetters: A2b: A2b: It's not enough to passively ask for engagement. Listen to us and our stories. Gain awareness of where research and treatment are lacking. We know! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @ADVofSpoonieMom: YES!!! Real patients know the hardships of living w/medical conditions. No more actors UNLESS they actually have the condition #WEGOHealthChat https://t.co/lczhNqZjTh |
| 💖💄 Aoife ♿💜 @Aoiferocksitout A1 Companies could donate equipment/devices, and money to help the low-income clinics in my community, including the one run at my neighborhood hospital. #WEGOHealthChat https://t.co/o69zPUG7Ru |
| CP Nerve Center @Cpnervecenter @1BendyKat I used to do a similar job as an RN case manager in home health. It's a great idea for good well rounded care. #WEGOhealthchat |
| MMHRC @research4mom @Clara_Health @justagoodlife @wegohealth It can help to raise the profile of an illness and get people talking like @chrissyteigen @BrookeShields @haydenpanettier @Alanis have all done recently for postpartum depression. Their honesty helps to destigmatize. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski A2 One size does not fit all. Esp those of us with multiple chronic conditions. Work with us, let us help you #WegoHealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy There are quite a few research and development departments within the pharmaceutical companies that are focused on this. We have to remember that the people behind these companies are scientists. #WEGOHealthChat https://t.co/QYXrmAivTr |
| John Lynn @techguy The challenge is does the "real" patient represent the entire patient population that uses that med. That's why I ask if volume matters. I do agree that not talking to patients is generally worse than talking to a subset that doesn't represent. #WEGOHealthChat https://t.co/s0evYVAqon |
 | Mary 🌻 @HeadacheHeroine Sorry I'm late to the chat today! But hi!! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters This would be amazing!! Having a healthcare coordinator would make my life so much easier! #WEGOHealthChat https://t.co/jFP0Wns2cs |
| M&B Sciences @mbsciencesinc 🙌 YES! #WEGOHealthChat Every patient journey is unique! https://t.co/nvHKoQf8aQ |
| Chris Stocker @LifeofaDiabetic @JackieZimm @1BendyKat these are things not often talked about. Hours a year spent on hold with insurance company to fill an order, then to tell them it was wrong, then to re-order, then get a pre-auth form filled out, then wait for nurse to look up labs #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter @brkthrough_crew @Clara_Health @wegohealth ABSOLUTELY! Just like everything else. 👍#WEGOhealthchat |
| Mika Love-Rogers, L.M.T. @mikaloverogers @lisadbudzinski @wegohealth No, we are in for a long road. I have hope for university systems and research. We need to rise up as a whole community in terms of lobbying. We make them billionaires why would they give that up? #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @ClotThickens: |
 | PatientLink® @MyPatientLink Absolutely! https://t.co/nbyC5tgpTw |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Based on the numbers advocates have for followers, emails and responses, I’d say that a majority of patients will relate to a fellow patient before they relate to someone playing a patient on a tv with an assumption of symptoms. #WEGOHealthChat https://t.co/mHssWWJ0DH |
| M&B Sciences @mbsciencesinc @techguy This is a great point. We think that the more patient voices you can listen to the more accurately you can create resources for that patient population. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @CrzyCreoleMommy There has always been R&D Departments for many a decade. Sometimes the federal government has such rigorous rules, most meds are unable to proceed to next necessary step ✨ #WegoHealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @patientexperts: @Clara_Health @justagoodlife @wegohealth It can help to raise the profile of an illness and get people talking like @chrissyteigen @BrookeShields @haydenpanettier @Alanis have all done recently for postpartum depression. Their honesty helps to destigmatize. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @Aoiferocksitout: A1 Companies could donate equipment/devices, and money to help the low-income clinics in my community, including the one run at my neighborhood hospital. #WEGOHealthChat https://t.co/o69zPUG7Ru |
| Lisa Davis Budzinski @lisadbudzinski @RonnyAllan1 I️ am hoping to see this day come soon✨ #WegoHealthchat |
| Social Health Network @socialhealthnet Luckily, many pharma companies see the value in working with real patients #WEGOHealthChat |
| Social Health Network @socialhealthnet Q3. What are some ways that these companies can inform the patient community about the patient-centric initiatives they are leading and/or opportunities for patients? #WEGOHealthChat |
| Whitney Petit @CfEpilepsy I’ve worked with both sides of Pharma. One that wanted me for the sake of having a “Patient” there and the other that wanted a Patient’s input every step of the way. Guess which one I continue to work with? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Exactly. I’m just saying that we have to remember that they are there, working, 7 days a week sometimes, on a single project. In some cases that project is a cure for a disease. #WEGOHealthChat https://t.co/xTfelr3CG6 |
| Lisa Davis Budzinski @lisadbudzinski @mikaloverogers @wegohealth That’s the huge catch right there. Why give up those billions of dollars 💵 for a cure. Not Being syndical, just wondering aloud ✨ #WEGOHealthChat |
| MMHRC @research4mom @justagoodlife And with all the allegations of sexual assault/harassment amongst celebs/politicians etc. right now, I'd steer clear of endorsement. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @patientexperts @justagoodlife @wegohealth @chrissyteigen @BrookeShields @haydenpanettier @Alanis They can certainly make waves in de-stigmatizing illness! @selenagomez has done wonders for #Lupus patients, @MichaelJFoxOrg for #Parkinsons and @juliannehough for #endometriosis! Perhaps pharma would listen to their patient experiences? #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @wegohealth: Q3. What are some ways that these companies can inform the patient community about the patient-centric initiatives they are leading and/or opportunities for patients? #WEGOHealthChat |
| Josh Robbins @imstillJosh A1-3 Me acting like I know what yall talking another but I’m reading from the bttm. #WEGOHealthChat https://t.co/pYueDr8N2o |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @Clara_Health: @patientexperts @justagoodlife @wegohealth @chrissyteigen @BrookeShields @haydenpanettier @Alanis They can certainly make waves in de-stigmatizing illness! @selenagomez has done wonders for #Lupus patients, @MichaelJFoxOrg for #Parkinsons and @juliannehough for #endometriosis! Perhaps pharma would listen to their patient experiences? #WEGOHealthChat |
| Alan Brewington @abrewi3010 .Celebrities, like you mentioned, don't fret over decisions like taking your meds or eating. Or paying rent vs meds. Patient leaders give a greater look at patient life. Celebs are amazing at opening the stigma door. #WegoHealthchat https://t.co/QMRAFM6HJa |
| Kayla Cares 4 Kids @KCares4Kids A3. Get the word out through places like WEGO Health, organizations like Arthritis Foundation, Crohns & Colitis Found. #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski @CrzyCreoleMommy Yes, we could figure out a way to rally around the scientists that are doing the hard tasks day in & day out ✨ #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @justagoodlife @techguy My little one loves loooooooves Poppy! It's a cute movie! #WEGOHealthChat |
| Mika Love-Rogers, L.M.T. @mikaloverogers @wegohealth A3. Start with the largest advocacy groups and work their way down to doctors as well. #WEGOHealthChat |
| MMHRC @research4mom @justagoodlife Absolutely. Patient leaders must be at the table! #WEGOHealthChat |
| Chris Stocker @LifeofaDiabetic A3 - Pharma knows where their patients are at. If not, it takes 5 seconds to Google something or look something up on Twitter. I get spammed all day long, try this, try that, share this statement, etc. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3: lately we’ve seen pharma companies sponsoring patient led groups or advisory boards in specific diseases. Pharma companies like @JanssenUS have funded groups & a health conference for advocates. The platform is there to be able to share their resources. #WEGOHealthChat https://t.co/iRUrGukNuf |
| John Lynn @techguy @JackieZimm Sorry. I didn't see the context. Just a fly by #WEGOHealthChat In the commercial point of view, it's all about what enhances action. Would a real patient encourage more action? |
| M&B Sciences @mbsciencesinc @CfEpilepsy Thank you for sharing this. It's great to see that patients won't tolerate being used by industry! What ways can industry best support the patients they work with in your opinion? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @wegohealth: Luckily, many pharma companies see the value in working with real patients #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter @lisadbudzinski @mikaloverogers @wegohealth You're totally right! Why give up your moneymaker for a cure! That's where having a HEART comes is. A little GRINCHY isn't it. #WEGOhealthchat https://t.co/Mh2NaicFa3 |
| Josh Robbins @imstillJosh A3: I think we need to stop believing that Pharma owes us anything. They are business and we are lucky for the u industry. #WEGOHealthChat #savingmylifeaswespeak |
| CP Nerve Center @Cpnervecenter RT @lisadbudzinski: @mikaloverogers @wegohealth That’s the huge catch right there. Why give up those billions of dollars 💵 for a cure. Not Being syndical, just wondering aloud ✨ #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @CfEpilepsy That’s wonderful!! 👏👏👏 Now how can the rest of us with other conditions help pharma line you? #WEGOHealthChat |
 | Savvy Cooperative | #AskPatients @savvy_coop @wegohealth A2. First step towards fixing the gaps is to recognize that the solutions will not come from a board room or office in DC. They will come from spending time in the trenches with the #patients who have the purest motivation to find real & deliverable solutions. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: @lisadbudzinski @mikaloverogers @wegohealth You're totally right! Why give up your moneymaker for a cure! That's where having a HEART comes is. A little GRINCHY isn't it. #WEGOhealthchat https://t.co/Mh2NaicFa3 |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Based on the numbers advocates have for followers, emails and responses, I’d say that a majority of patients will relate to a fellow patient before they relate to someone playing a patient on a tv with an assumption of symptoms. #WEGOHealthChat https://t.co/mHssWWJ0DH |
| M&B Sciences @mbsciencesinc @LifeofaDiabetic They might know where you are to spam you, but where should companies go to meet patients as equals, to truly collaborate for better care options? #WEGOHealthChat @wegohealth |
| MMHRC @research4mom @justagoodlife I also think there needs to be greater recognition that patients must be compensated for their time and input - assuming altruism gets me mad as hell #WEGOHealthChat |
| Josh Robbins @imstillJosh Once we see the passion of these ppl, relationships build between Pharma and patients. #WEGOHealthChat https://t.co/DEe99gTKok |
| Mika Love-Rogers, L.M.T. @mikaloverogers @techguy Real patient is the hard part & reaching so many diseases, I have 6 possible 7 #autoimmunediseases so its tough. #WEGOHealthChat |
| Alan Brewington @abrewi3010 T3 if done right, patients will know. Built it and they will come. News travels fast in patient communities. #WegoHealthchat https://t.co/wmcy2DLNGw |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @savvy_coop: @wegohealth A2. First step towards fixing the gaps is to recognize that the solutions will not come from a board room or office in DC. They will come from spending time in the trenches with the #patients who have the purest motivation to find real & deliverable solutions. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @Clara_Health: @LifeofaDiabetic They might know where you are to spam you, but where should companies go to meet patients as equals, to truly collaborate for better care options? #WEGOHealthChat @wegohealth |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @patientexperts: @justagoodlife I also think there needs to be greater recognition that patients must be compensated for their time and input - assuming altruism gets me mad as hell #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @brkthrough_crew @Cpnervecenter @mikaloverogers @wegohealth Yes! 👏👏👏 #WegoHealthchat |
| Social Health Network @socialhealthnet Whew, this chat is flying by! Q4: Which pharma or healthcare companies do a great job of engaging patients #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters A3: If you want to increase awareness on patient-centered initiatives, reach out to Patient Leaders and those active in the community. Advertise. Sponsormeet-ups & conferences, chats, etc. #WEGOHealthChat https://t.co/7oMzR20NnW |
| Chris Stocker @LifeofaDiabetic @Clara_Health @wegohealth It's the same thing. It's the message that's different. It's my inbox. Just don't send me a spam message. Say hello or something first #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @CrzyCreoleMommy: Based on the numbers advocates have for followers, emails and responses, I’d say that a majority of patients will relate to a fellow patient before they relate to someone playing a patient on a tv with an assumption of symptoms. #WEGOHealthChat https://t.co/mHssWWJ0DH |
| Lisa Davis Budzinski @lisadbudzinski This 👇is amazing! #WegoHealthchat https://t.co/Q75OOZDg9O |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Yes!! Send them some coffee & donuts or a better cut in the budget...something!! #WEGOhealthchat https://t.co/myoT8RIoOL |
| Alan Brewington @abrewi3010 T3 ask patient leaders in chats like this for names. Attend conferences like #Medx to explore newer ways patients & healthcare can collaborate. Always ask "how might we...?" #WegoHealthchat https://t.co/wmcy2DLNGw |
| Lisa Davis Budzinski @lisadbudzinski RT @RieOfLetters: A3: A3: If you want to increase awareness on patient-centered initiatives, reach out to Patient Leaders and those active in the community. Advertise. Sponsormeet-ups & conferences, chats, etc. #WEGOHealthChat https://t.co/7oMzR20NnW |
| Josh Robbins @imstillJosh .@RebeccaGenin @JanssenUS !!!! @carolinepavis yasss! 🤠👨🏻💻 https://t.co/Q2T8UfnUr4 |
| Josh Robbins @imstillJosh #WEGOhealthchat https://t.co/s7usUii2wF |
| Social Health Network @socialhealthnet Q4 cont. What do these companies do that sets them apart from others? #WEGOHealthChat |
| Mika Love-Rogers, L.M.T. @mikaloverogers @patientexperts @justagoodlife They pay athletes & actor portrayal huge dollars. Use real patients that could actually use the money. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @1BendyKat @JackieZimm @gfreefun @BlueShieldCA The age of digital health is slowly approaching, and we need to make sure that as it develops, patients are ingrained in the foundation of #digitalhealth! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @wegohealth: Q4 cont. What do these companies do that sets them apart from others? #WEGOHealthChat |
| Social Health Network @socialhealthnet Q4 cont. Make sure to tag them so we can celebrate their patient-centricity! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @patientexperts: @justagoodlife I also think there needs to be greater recognition that patients must be compensated for their time and input - assuming altruism gets me mad as hell #WEGOHealthChat |
| Kayla Cares 4 Kids @KCares4Kids A4 Impressed with AbbVie. A day after doc placed orders, they called & will send nurse to teach Kayla how to do injection #wegohealthchat |
| CP Nerve Center @Cpnervecenter T3 Companies could share patient opportunities at every Doc appt, every pharmacy pick up and each billing statement. Giving us the option to join Patient-centric opportunities is simple with chronic patients, because we repeat every month at many points. #WegoHealthchat |
| Alan Brewington @abrewi3010 @savvy_coop @wegohealth I would reword that to say solutions could come from boardrooms, CEOs, universities, or patients. Patients don't care about the where, they just want a cure. Cures will only come from "how might we...?" #WegoHealthchat |
| Whitney Petit @CfEpilepsy RT @wegohealth: Whew, this chat is flying by! Q4: Which pharma or healthcare companies do a great job of engaging patients #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @abrewi3010 So agree! There are many health chats that we all could be reached. Conferences are hard to get to if you aren’t employed though #WEGOHealthChat |
| Mika Love-Rogers, L.M.T. @mikaloverogers @brkthrough_crew @Cpnervecenter @lisadbudzinski @wegohealth I agree but their bottom line is most important to their board members & shareholders. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc Thank you @shawnbethea_! It's a two way street! We couldn't collaborate with patients without brave vocal #patientleaders like you willing to share your story with us! #WEGOHealthChat https://t.co/F76lims1gv |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4: so @AbbVieUS & @pfizer have had advisory boards, funded patient 2 patient talks, etc that all give patient leaders opportunities to share what is happening in their disease communities. #WEGOhealthchat https://t.co/dorppLWFhc |
| Rie Lopez, MPH (she/her) @RieOfLetters @patientexperts @justagoodlife I'm pretty altruistic, as a rule, but there's a point. I cannot feed my kids or help support my family if I give away my labor. #WEGOHealthChat |
 | Show The Truth @STTactivism Abortion is not healthcare. Abortion is the intentional killing of innocent human beings, which can never be considered "healthy" or "care." #WEGOHealthChat #Healthcare #health #womenshealth #prolife https://t.co/C0Bkl3Bi1t |
| M&B Sciences @mbsciencesinc YES! The patient is the expert of their own care! No one knows patient needs better than patients themselves! #WEGOHealthChat https://t.co/ah9w33wdC8 |
 | nobism @nobismhealth RT @RonnyAllan1: |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4: (cont’d) health based pr companies like @TonicLC seek out patient leaders to bring to their clients in pharma and healthcare. So they are an excellent bridge. #WEGOHealthChat https://t.co/dorppLWFhc |
| JP Summers @authorjpsummers RT @Clara_Health: YES! The patient is the expert of their own care! No one knows patient needs better than patients themselves! #WEGOHealthChat https://t.co/ah9w33wdC8 |
| Chris Stocker @LifeofaDiabetic I tell people in Pharma all the time. I understand there's red tape and everything needs to be regulated and every tweet needs to be reviewed. But you know what doesn't? Using the search feature to just listen. Shhhh....just listen #wegohealthchat |
| M&B Sciences @mbsciencesinc WE. Key word here. At the end of the day patients and industry will only change healthcare for the better by working together as a team! #WEGOHealthChat https://t.co/pXPi9o82zo |
| JP Summers @authorjpsummers RT @wegohealth: Luckily, many pharma companies see the value in working with real patients #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @RonnyAllan1 @IpsenGroup Yes, I’ve seen the #PatientsIncluded trademark on a few companies & #MedX I️ just wish they could offer stipends for us to meet at conferences & such #WEGOHealthChat I️ mean, I’ve lost my way of life, my career, my house Not sure many realize this type of impact |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4: (cont’d) and last but not least, @JanssenUS & @JNJCares have made it a mission to create patient led platforms, summits, conferences for patient leaders, ad boards across disease communities. Even ones they don’t make a drug for. They get sprinkled donuts! #WEGOHealthChat https://t.co/dorppLWFhc |
| Whitney Petit @CfEpilepsy A4: I would name drop but I’m under too many contracts right now lol!! I’ll answer next month. #WEGOHealthChat |
 | Christina @Christinaofs RT @STTactivism: Abortion is not healthcare. Abortion is the intentional killing of innocent human beings, which can never be considered "healthy" or "care." #WEGOHealthChat #Healthcare #health #womenshealth #prolife https://t.co/C0Bkl3Bi1t |
| Mika Love-Rogers, L.M.T. @mikaloverogers RT @ClotThickens: |
| Alan Brewington @abrewi3010 RT @Clara_Health: WE. Key word here. At the end of the day patients and industry will only change healthcare for the better by working together as a team! #WEGOHealthChat https://t.co/pXPi9o82zo |
 | Al Raimundo @asraimun A2: Co-design things with us! Make options that sense to who we are, we are experts in our lived experience. #WEGOHealthChat https://t.co/BM1dByp0jd |
| JP Summers @authorjpsummers RT @CrzyCreoleMommy: A4: A4: (cont’d) and last but not least, @JanssenUS & @JNJCares have made it a mission to create patient led platforms, summits, conferences for patient leaders, ad boards across disease communities. Even ones they don’t make a drug for. They get sprinkled donuts! #WEGOHealthChat https://t.co/dorppLWFhc |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @lisadbudzinski: @RonnyAllan1 @IpsenGroup Yes, I’ve seen the #PatientsIncluded trademark on a few companies & #MedX I️ just wish they could offer stipends for us to meet at conferences & such #WEGOHealthChat I️ mean, I’ve lost my way of life, my career, my house Not sure many realize this type of impact |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @RieOfLetters: @patientexperts @justagoodlife I'm pretty altruistic, as a rule, but there's a point. I cannot feed my kids or help support my family if I give away my labor. #WEGOHealthChat |
| Al Raimundo @asraimun @wegohealth A4: really love working with @Shireplc on their Binge Eating Disorder program. #WEGOHealthChat |
| Social Health Network @socialhealthnet Alright time for one more question #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter @lisadbudzinski @abrewi3010 With todays tech, patients could easily join in from home, if they're unable to attend personally. How do we make this a reality? #WEGOhealthchat |
| CP Nerve Center @Cpnervecenter RT @lisadbudzinski: @abrewi3010 So agree! There are many health chats that we all could be reached. Conferences are hard to get to if you aren’t employed though #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @Clara_Health: Thank you @shawnbethea_! It's a two way street! We couldn't collaborate with patients without brave vocal #patientleaders like you willing to share your story with us! #WEGOHealthChat https://t.co/F76lims1gv |
| Savvy Cooperative | #AskPatients @savvy_coop @wegohealth Q3. Since pharma includes #patientinsights in all decisions, the #patientpartners they've worked with to help drive real-world solutions will take these opportunities back to their communities. That's how it always works, right? Right? 🙃 #WEGOHealthChat #IsThisRealLife |
| Social Health Network @socialhealthnet Q5. What do you think is an appropriate way(s) for WEGO Health to help support pharma and healthcare companies patient advocacy programs & initiatives? What is the value? #WEGOHealthChat |
| M&B Sciences @mbsciencesinc @asraimun Love this answer! LOVE IT! #WEGOHealthChat |
| Whitney Petit @CfEpilepsy @justagoodlife Hahah I'm just trying to be like you when I grow up #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @KCares4Kids: A4 Impressed with AbbVie. A day after doc placed orders, they called & will send nurse to teach Kayla how to do injection #wegohealthchat |
| Josh Robbins @imstillJosh XoXo working for ya J today! Xo #WEGOHealthChat #bye #lookclose https://t.co/cxoZmtfS6A |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: @lisadbudzinski @abrewi3010 With todays tech, patients could easily join in from home, if they're unable to attend personally. How do we make this a reality? #WEGOhealthchat |
| Al Raimundo @asraimun A5: I think transparency is important, and thinking through what you are supporting and why. Be intentional with it. #WEGOHealthChat https://t.co/1U5y1IRrM6 |
| M&B Sciences @mbsciencesinc @wegohealth Creating opportunities for patient leaders and healthcare companies to come together in collaborative discussions like this one here is a great start to further collaboration! #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @wegohealth: Q5. What do you think is an appropriate way(s) for WEGO Health to help support pharma and healthcare companies patient advocacy programs & initiatives? What is the value? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Yes. It is a double edge sword tho. The high profile actor or athlete will get the average American to pay attention. Promotes awareness and helps get grant/research dollars funneled to that particular cause. #WEGOHealthChat https://t.co/GAUnjpvotF |
| Mika Love-Rogers, L.M.T. @mikaloverogers @wegohealth That’s an answer that needs lots of thought from me. @wegohealth does a wonderful job. Will have to email that answer later. #WEGOHealthChat |
| M&B Sciences @mbsciencesinc Meet patients where they are! #WEGOHealthChat https://t.co/Y4ClkzhYrS |
| Alan Brewington @abrewi3010 T4 what ever company is asking "how might we..." instead of "how might I..." must be the minimum standard. Human centered design, not balance sheet design. #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter @justagoodlife I TOTALLY AGREE JULIE! I thought of Medx too. Great example of patient inclusion for EVERYTHING! #WEGOhealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski @RonnyAllan1 @IpsenGroup That would be great to have stipends offered. Put your money where your mouth is, so to speak. It would actually show a commitment to and understanding of the patient community. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @Cpnervecenter @abrewi3010 Very true but we’re still in the age of meeting IRL at conferences & meetings to make a bigger impact in networking #WEGOHealthChat That puts many of us at a disadvantage. Great minds but bodies are failing ✨ |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @mikaloverogers: @wegohealth That’s an answer that needs lots of thought from me. @wegohealth does a wonderful job. Will have to email that answer later. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @Clara_Health: @wegohealth Creating opportunities for patient leaders and healthcare companies to come together in collaborative discussions like this one here is a great start to further collaboration! #WEGOHealthChat |
| CP Nerve Center @Cpnervecenter RT @lisadbudzinski: @Cpnervecenter @abrewi3010 Very true but we’re still in the age of meeting IRL at conferences & meetings to make a bigger impact in networking #WEGOHealthChat That puts many of us at a disadvantage. Great minds but bodies are failing ✨ |
| CP Nerve Center @Cpnervecenter RT @Clara_Health: Meet patients where they are! #WEGOHealthChat https://t.co/Y4ClkzhYrS |
| Rie Lopez, MPH (she/her) @RieOfLetters Yes! We're so lucky to have increasing access to technology! Let's use it! #WEGOHealthChat https://t.co/MAMxUoq85o |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A5: creating more relationships with these pharma and healthcare groups, so that you can be the bridge that funnels patient leaders to these ad boards, and patient 2 patient groups, etc. #WEGOhealthchat https://t.co/nnE2lJbHaD |
| CP Nerve Center @Cpnervecenter RT @RieOfLetters: @lisadbudzinski @RonnyAllan1 @IpsenGroup That would be great to have stipends offered. Put your money where your mouth is, so to speak. It would actually show a commitment to and understanding of the patient community. #WEGOHealthChat |
| Alan Brewington @abrewi3010 We still need IRL contact. How might we ensure equal access to human contact is difficult? Tech helps, but it's not the cure all. #WEGOHealthChat https://t.co/fn4CyJlEf7 |
| JP Summers @authorjpsummers @wegohealth The past 2yrs @Excedrin used virtual reality and 360° videos that mimic certain migraineurs symptoms (ex.aura) during an attack. People w/o #migraine should watch at least 1 of those videos! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @RonnyAllan1 I️ would love to know the ones that do 💞 so I️ could stop beating my head against the wall 😉I️ think I’ve written to 5 already for 2018 asking why not offer stipends #WegoHealthchat |
| Lisa Davis Budzinski @lisadbudzinski RT @ADVofSpoonieMom: @wegohealth The past 2yrs @Excedrin used virtual reality and 360° videos that mimic certain migraineurs symptoms (ex.aura) during an attack. People w/o #migraine should watch at least 1 of those videos! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @CrzyCreoleMommy: A5: A5: creating more relationships with these pharma and healthcare groups, so that you can be the bridge that funnels patient leaders to these ad boards, and patient 2 patient groups, etc. #WEGOhealthchat https://t.co/nnE2lJbHaD |
| Alan Brewington @abrewi3010 T5 give @justagoodlife a rise! #WEGOhealthchat https://t.co/StzLwpFMrs |
| Social Health Network @socialhealthnet WOW! Who is feeling energized after that #WEGOHealthChat? |
| Social Health Network @socialhealthnet We always look forward to our #WEGOHealthChat with all of you. Remember, you are changing healthcare! One day at a time. |
| Lisa Davis Budzinski @lisadbudzinski @wegohealth A5 Help connect us to them, let them know the wealth of knowledge we have to help them progress in a mutually beneficial way #WEGOHealthChat |
| Social Health Network @socialhealthnet Make sure to stay connected with fellow #PatientLeaders by joining our #PatientLeader FB group. It's a great way to keep communicating, sharing ideas & supporting one another #WEGOHealthChat https://t.co/eprPx4ezZ2 |
| Whitney Petit @CfEpilepsy RT @wegohealth: Make sure to stay connected with fellow #PatientLeaders by joining our #PatientLeader FB group. It's a great way to keep communicating, sharing ideas & supporting one another #WEGOHealthChat https://t.co/eprPx4ezZ2 |
| M&B Sciences @mbsciencesinc Thanks for a great chat @wegohealth! As always, we would love to hear from any and all patient leaders who have more to share- DM us anytime with your feedback or needs! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @abrewi3010 IRL contact is so important!! Not just for us and our mental health, but it is important for visibility and that irreplaceable human connection. #WEGOHealthChat |
| Savvy Cooperative | #AskPatients @savvy_coop @wegohealth Q4. Companies really interested in #partientdriven solutions have a few things in common. They include a diverse #patientvoice at the START of the project, recognize disease isn't confined to a clinic, a hospital room, or a pill & value #patientinsights fairly #WEGOHealthChat |
| Alan Brewington @abrewi3010 RT @RieOfLetters: @abrewi3010 IRL contact is so important!! Not just for us and our mental health, but it is important for visibility and that irreplaceable human connection. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski Everyone have a great rest of the week no matter where you are ✨ #WegoHealthchat |
#WEGOHealthChat content from Twitter.