#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag.
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See #WEGOHealthChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Social Health Network @socialhealthnet Welcome to the December #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by @CrzyCreoleMommy, who is an IBD #PatientLeader with lots of info to share with you today! https://t.co/zMhfyegUTl |
| Social Health Network @socialhealthnet @AshleyHattle Me too! So windy today! #wegohealthchat |
 | CPAP Babes - Stacy @Cpapbabes Hello everyone! My name is Stacy and this is my first #wegohealthchat! I am a patient advocate for people with sleep apnea and run a blog called CPAPBabes! Check it out over at https://t.co/9n5LqZzC2q. Excited to be here! |
 | Rudy Caseres @RudyCaseres Hello, I’m Rudy Caseres and I’m a mental health advocate from Los Angeles. First time #WEGOHealthChat |
| Social Health Network @socialhealthnet @RudyCaseres Welcome Rudy! It's nice to have you! #WEGOHealthChat |
| Social Health Network @socialhealthnet @Cpapbabes Yay! Welcome Stacy! So great to "meet" you! #WEGOHealthChat |
 | Deeanne @twistedpsister Hi! I'm Deeanne in Orlando and advocating for Psoriatic Arthritis and more. #wegohealthchat |
 | Alan Brewington @abrewi3010 Hello from Boise Idaho. #wegohealthchat |
| Social Health Network @socialhealthnet @spondywolfgirl Hi Deeanne! #WEGOHealthChat |
 | Whitney Petit @CfEpilepsy Time for the #WEGOHealthChat...join in! https://t.co/3GAtpsrFyT |
 | Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Love seeing everyone!! Hi everybody!!! #wegohealthchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat |
 | Ashley Hattle-Cleminshaw @AshleyHattle #WEGOHealthChat I'm Ashley and I advocate for myself and others with #clusterheadaches I recently published a book on the #braindisorder and run the monthly #CHtalk twitter chat. |
 | FUMSnow @FUMSnow #WEGOHealthChat starting now!! |
| Social Health Network @socialhealthnet But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be labeled Q1, Q2, Q3, etc & answers should be labeled A1, A2, A3, etc by you! #WEGOHealthChat |
 | Open Science @_open_science_ RT @MightyCasey: Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat |
 | Leslie Krongold, EdD @Leslie_GHF Hi, I'm Leslie from Alameda, CA and this is my first time participating in a #WEGOHealthChat |
 | MarlaMuraskoMusings @MusingsfromaSNM Hi everyone Marla from @MusingsfromaSNM Advocate for #downsyndrome #WEGOHealthChat |
 | Kristen Long @WEGOKristenL Joining from sunny CA 😎😎😎 #WEGOHealthChat https://t.co/kyJv2gHILn |
| Whitney Petit @CfEpilepsy Hey everyone! Whitney here from Dallas, Tx! Patient Leader for the #Epilepsy community 💜 #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @justagoodlife @SimonRStones @wegohealth YES! I had some on last night! #WEGOHealthChat |
| Whitney Petit @CfEpilepsy @Leslie_GHF Welcome! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @wegohealth: But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be labeled Q1, Q2, Q3, etc & answers should be labeled A1, A2, A3, etc by you! #WEGOHealthChat |
 | Angela Cohen @angelee828 @justagoodlife 👋🏽 Hi, Angela here and ready to learn from Wisconsin! #WEGOHealthChat |
 | Colin Hung @Colin_Hung RT @wegohealth: Welcome to the December #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by @CrzyCreoleMommy, who is an IBD #PatientLeader with lots of info to share with you today! https://t.co/zMhfyegUTl |
| Social Health Network @socialhealthnet As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressive #PatientLeader but she's also a new member of our 2018 Patient Leader Advisory Board! 🙌 Her work on ad boards inspired this #WEGOHealthChat. |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressive #PatientLeader but she's also a new member of our 2018 Patient Leader Advisory Board! 🙌 Her work on ad boards inspired this #WEGOHealthChat. |
| Whitney Petit @CfEpilepsy @CrzyCreoleMommy Hey Brooke! 👋🏾👋🏾 #WEGOHealthChat |
| Deeanne @twistedpsister @justagoodlife I'm doing alright. Just dealing with actual frigid temps down here! #wegohealthchat |
 | Jack Barrette @healthyjack RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressive #PatientLeader but she's also a new member of our 2018 Patient Leader Advisory Board! 🙌 Her work on ad boards inspired this #WEGOHealthChat. |
| Whitney Petit @CfEpilepsy @JackieZimm I know right!! Partayyy #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @justagoodlife Thanks! I'm also on the board of @Cluster_buster a nonprofit for #clusterheadaches #WEGOHealthChat I'm excited to join today! |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @CfEpilepsy heeeey! #wegohealthchat |
 | Dr Mary Ann Wilmarth @Back2backPT @wegohealth @CrzyCreoleMommy Hi Glad to be on the #WEGOHealthChat today! My infusion is delayed so I have some time now😁 @Back2backPT |
| Alan Brewington @abrewi3010 @justagoodlife I never know anymore. How are you? #WEGOHealthChat |
| Social Health Network @socialhealthnet Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn a thing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat |
| Angela Cohen @angelee828 @CrzyCreoleMommy Hey Brooke! 👋🏽 #WEGOHealthChat |
| Whitney Petit @CfEpilepsy @SimonRStones Hey @SimonRStones!! Glad to see you're here!! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn a thing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat |
 | CP Nerve Center @Cpnervecenter @SimonRStones @bbhomebody Hi Simon🖑 #WEGOHealthChat |
| Jack Barrette @healthyjack Looking forward to today's chat - can already tell it's going to move faaaaast. #wegohealthchat |
 | Molly Schreiber @mollyschreiber Hey all! 👋🏻#WEGOHealthChat |
| Angela Cohen @angelee828 @ingevdln Hey there! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Alright! So let's get started! Thanks @WEGOHealth for letting me take over for the next hour. #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn a thing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat |
 | MMHRC @research4mom Hi everyone - Shannon from the Maternal Mental Health Research Collaborative. #WEGOhealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some other things! I'm from LA and I love coffee! With that...I'll start with the first question. #wegohealthchat |
 | Enlightening Results 💡 @GraceCordovano Hi #wegohealthchat! Grace, private cancer patient advocate, joining from NJ. |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some other things! I'm from LA and I love coffee! With that...I'll start with the first question. #wegohealthchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters I am late, but I am here! Hello to all! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might you be able to advance your impact & monetize your brand/advocacy work? #WEGOHealthChat |
| Social Health Network @socialhealthnet Q1 is up! #WEGOHealthChat https://t.co/YuB0tlBWfZ |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q1: Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might you be able to advance your impact & monetize your brand/advocacy work? #WEGOHealthChat |
 | Pam Schilz @brite_dee RT @MightyCasey: Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat |
 | My Fabulous Boobies @MyFabBoobies Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreoleMommy |
 | NicNacPaddywack @nic_mclean Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreoleMommy |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can help you reach a bigger, broader audience. #WEGOHealthChat |
| MMHRC @research4mom RT @MyFabBoobies: Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreoleMommy |
 | Lisa Davis Budzinski @lisadbudzinski Lisa here from @Cpnervecenter sliding in a bit tardy #wegohealthchat |
| Social Health Network @socialhealthnet A1: from @CrzyCreoleMommy #WEGOHealthChat https://t.co/nTyV5ktCMW |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy My morning consists of coffee mainly. Thanks for leading the discussion today! #wegohealthchat https://t.co/jVnkQNtmSY |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A1: cont'd: A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can help you reach a bigger, broader audience. #WEGOHealthChat |
| Social Health Network @socialhealthnet @RareCandace Hey Candace! We were peepin on those pics you posted! Congrats!! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHealthChat |
| MarlaMuraskoMusings @MusingsfromaSNM RT @wegohealth: Q1 is up! #WEGOHealthChat https://t.co/YuB0tlBWfZ |
| Alan Brewington @abrewi3010 A1 I just junked my previous blog & am starting over. Trying to keep focus on quality content, create it and they will come. #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @justagoodlife Great to see you Julie! #WEGOHealthChat https://t.co/hI1kNgMKwY |
| Ashley Hattle-Cleminshaw @AshleyHattle A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking them to sponsor your blog. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5 |
| Social Health Network @socialhealthnet @abrewi3010 Were you worried about losing readership/viewers/notoriety? DId you change your URL or just the content? #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski @Cpnervecenter Hi Lisa! Better late than never ;-) #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife @Cpnervecenter Hey Julie! ✨ #WEGOHealthChat |
| Social Health Network @socialhealthnet @AshleyHattle Has this worked for you? #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @wegohealth: A1: A1: from @CrzyCreoleMommy #WEGOHealthChat https://t.co/nTyV5ktCMW |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: Issue for me is I'm more focused on driving change than I am on $$ for myself. So I'm broke-ass most of the time =) #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat |
| Social Health Network @socialhealthnet Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8 |
| NicNacPaddywack @nic_mclean RT @RonnyAllan1: |
| Lisa Davis Budzinski @lisadbudzinski @bbhomebody @Cpnervecenter Hey Pard! Always good to see you #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q1a Follow Up: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat |
| MMHRC @research4mom A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points are - but we’re in very early days #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and offline through speaking and /or events. Also, pairing up with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat |
| Enlightening Results 💡 @GraceCordovano @healthyjack Hi Jack! Yes, looking forward to learning #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5 |
| Whitney Petit @CfEpilepsy RT @RonnyAllan1: |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A1a Follow Up: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and offline through speaking and /or events. Also, pairing up with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @AshleyHattle: A1: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking them to sponsor your blog. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @AshleyHattle: A1: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking them to sponsor your blog. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @wegohealth I'm at the very beginning of my blogging efforts. I focused on writing the book on #clusterheadaches first and organized a 5k last summer. We had some great sponsors for the event so I'm hoping to work with them for my blog as well. #WEGOHealthChat |
 | 💬Jen Horonjeff | #askpatients @jhoronjeff Hey folks! Jen from @savvy_coop jumping in late here from NYC! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q1a Follow Up: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @RieOfLetters @Cpnervecenter Hey Rie! Thank you 💕 #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A1a Follow Up: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and offline through speaking and /or events. Also, pairing up with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes Q1: @CrzyCreoleMommy @Wegohealth Working on selling sponsored posts (both on the blog and social media) and working on building up my YouTube video library so I can eventually get some ads running on my videos. Also need to follow up on a speaking gig inquiry! #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @abrewi3010 I did this too Alan. A lot of my previous content no longer matched my present reality. It is hard to start over again, but I am sure you will build up a great following in no time! #WEGOHealthChat |
| Social Health Network @socialhealthnet @MightyCasey You gotta Treat Yo Self! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points are - but we’re in very early days #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Yes. But you guys are getting ahead of me! LOL! Look at you patient leaders getting it! #WEGOHealthChat https://t.co/vdPchru7nr |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1 folo-up = I'm also known as an agent provocateur, take-no-prisoners voice. Won't water down to suit others, so ... #wegohealthchat |
| Ashley Hattle-Cleminshaw @AshleyHattle @wegohealth Companies who are conducting clinical trials seem to be great at sponsoring events and content. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points are - but we’re in very early days #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @AshleyHattle: A1: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking them to sponsor your blog. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: A1a Follow Up: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and offline through speaking and /or events. Also, pairing up with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5 |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: Q1a Follow Up: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat |
| Enlightening Results 💡 @GraceCordovano @justagoodlife @ingevdln Hi Julie!! #WEGOhealthchat |
| Alan Brewington @abrewi3010 @justagoodlife Thank you! You know me, can’t stay out of trouble. 2017 was about losing friends/family, needed something new and fresh. https://t.co/qvya5eKRrs #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @RonnyAllan1: |
| My Fabulous Boobies @MyFabBoobies RT @wegohealth: Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @SimonRStones: A1: |
| MMHRC @research4mom We also face the issue of stigma as not a lot of brands necessarily want to attach themselves to depressed moms - but I know there are ways around this #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @LucyAlexandria: |
| Ashley Hattle-Cleminshaw @AshleyHattle A1-2: I think guest blogging for paid publications is another way to help monetize your #advocacy efforts. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q1b Follow Up: Here's something I've been asked a lot. Are you selling out if you are monetizing your blog? #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: plus, as journo, my brand mantra = "comfort the afflicted, afflict the comfortable" which means few find fit w/my voice #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @wegohealth: Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8 |
| Social Health Network @socialhealthnet RT @AshleyHattle: A1-2: A1-2: I think guest blogging for paid publications is another way to help monetize your #advocacy efforts. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @SimonRStones: |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to your cause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat |
| Social Health Network @socialhealthnet What do you think? #WEGOHealthChat https://t.co/gRiFIoJZzC |
| Rie Lopez, MPH (she/her) @RieOfLetters @wegohealth @RonnyAllan1 This is definitely something I didn't know about! I am looking forward to learning more. Thanks for the idea, @RonnyAllan1! #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @SimonRStones: |
| Enlightening Results 💡 @GraceCordovano @justagoodlife Terrific! Hope you are feeling well. #WEGOhealthchat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A1b Follow Up: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to your cause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A1b Follow Up: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to your cause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy Tons of these opportunities came when I decided to rebrand and give some TLC to my blog. Quality content but didn't look like it was loved. #WEGOHealthChat https://t.co/PK2HLEvugU |
| MMHRC @research4mom @AshleyHattle @wegohealth I know that there are limits that Pharma has on what they can pay for along with FDA disclosure requirements #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @patientexperts I hope these brands come around to the idea. #Depression is a very real concern, especially for mom/parents of young children. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @JessicaGimeno @Cpnervecenter What the whohey?!!! With that hashtag 😊 #wegohealthchat |
| Alan Brewington @abrewi3010 @RieOfLetters Good luck to you too! My new reality didn’t match my old content either. Biggest worry is falling back into old habits. #WEGOHealthChat |
| Deeanne @twistedpsister A1b: I don't think you are. I think the harder part is choosing brands that reflect you and your work, not just there 4 $ #wegohealthchat |
| My Fabulous Boobies @MyFabBoobies This is so true! You can't serve from an empty vessel. Great point. Plus, being sick is costly as we all know. You need funding, period. https://t.co/tgVu8Nn4Dv |
| NicNacPaddywack @nic_mclean This is so true! You can't serve from an empty vessel. Great point. Plus, being sick is costly as we all know. You need funding, period. https://t.co/P51SpZqZnX |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q1b Follow Up: Q1b Follow Up: Here's something I've been asked a lot. Are you selling out if you are monetizing your blog? #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy Yes! I make it relevant to my cause and to my personal mission. (I don't like clutter so try not to accept product samples that won't be useful to me...although it's hard to say no!) #wegohealthchat |
 | Amanda Merck, MPH @AMFitnessHealth @abrewi3010 Do they come? Are you tracking? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @AshleyHattle: @wegohealth Companies who are conducting clinical trials seem to be great at sponsoring events and content. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A1b Follow Up: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to your cause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Let's get real: most industry-side $$ is focused on *their* ROI, rather than *our* theory of change, or mission to break/fix system. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @MightyCasey You are not alone! Definitely spinning the wheels right now, but I am trying to figure out where to go from here. Solidarity! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @patientexperts: @AshleyHattle @wegohealth I know that there are limits that Pharma has on what they can pay for along with FDA disclosure requirements #WEGOHealthChat |
 | Danny van Leeuwen @HealthHats A1 I let people who ask for pro bono work know my hourly rate and that I'll give them x hours a month and $0. Then they know I know I have value and freely give them a few hours. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy Agreed! #WEGOHealthChat https://t.co/PIa5CGmea8 |
| Amanda Merck, MPH @AMFitnessHealth @patientexperts @CrzyCreoleMommy Good question. I’m curious, too? #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @patientexperts @wegohealth Very good point. I was mainly thinking of researchers looking for more patients for their studies. #Advocacy blogs are a great way to reach their target audience for participants. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies That does present a lot of problems. Pharma is good to partner with but hard to get money for the partnerships. I'm still working on how to leverage those connections better. https://t.co/PwWmrfeJcY |
| NicNacPaddywack @nic_mclean That does present a lot of problems. Pharma is good to partner with but hard to get money for the partnerships. I'm still working on how to leverage those connections better. https://t.co/wSKH2qDUpW |
| MMHRC @research4mom @CrzyCreoleMommy Agree - I think it’s important to make that the main priority #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn't ALL promos) it's fine. I do limited the number I will accept per month to keep it real. #wegohealthchat @CrzyCreoleMommy |
| Social Health Network @socialhealthnet RT @Cpapbabes: Q1b: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn't ALL promos) it's fine. I do limited the number I will accept per month to keep it real. #wegohealthchat @CrzyCreoleMommy |
| NicNacPaddywack @nic_mclean RT @SimonRStones: |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Love the insight so far! It seems like we are all on the same track of thinking. Are we ready for Q2? #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @SimonRStones: |
 | Savvy Cooperative | #AskPatients @savvy_coop RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn a thing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies https://t.co/3f02If4UUV |
| NicNacPaddywack @nic_mclean https://t.co/6tcCgndsSH |
| CPAP Babes - Stacy @Cpapbabes @AshleyHattle @patientexperts @wegohealth I wish I could find more #advocacy blogs! I find that most #sleepapnea blogs are just Q&A/Patient help. #wegohealthchat |
| Alan Brewington @abrewi3010 A1b I work in healthcare, not worried about getting paid from blog. Priority is telling my story to the best of my ability. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @CrzyCreoleMommy Hi from a fellow #AS and #rheum patient :) #wegohealthchat |
 | Maya Northen Augelli @mayanorthen Going to try to jump into #wegohealthchat on and off. Sorry for excessive tweets! |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or Non-Profit. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat |
| Social Health Network @socialhealthnet Q2 Coming at you! #WEGOHealthChat https://t.co/7sGzvzhWHA |
| Danny van Leeuwen @HealthHats @jhoronjeff good to see you here #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @CrzyCreoleMommy Frankly, I'm more focused on consulting fees than I am on monetizing any of my bespoke online content. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean That's a great strategy. I will definitely borrow that one. https://t.co/PeVE6EuwZ9 |
| Amanda Merck, MPH @AMFitnessHealth @MightyCasey True. Many mom blogs are endorsed by formula manufacturers, for example, but they promote unhealthy products. #WEGOHealthChat https://t.co/jnonKtbsAr |
| Rie Lopez, MPH (she/her) @RieOfLetters @SimonRStones @justagoodlife I need clones. Definitely lots of clones (perhaps one that is extra fond of laundry)! #WEGOHealthChat |
| Alan Brewington @abrewi3010 A2 walk your vulnerability to the edge of learning a new skill then take a breathe. Don’t make yourself uncomfortable right off. #wegohealthchat |
| Danny van Leeuwen @HealthHats A2 Protect yourself? as in health or getting ripped off or staying true to mission? #WEGOHealthChat |
| NicNacPaddywack @nic_mclean That's a great idea too. I haven't been guest blogging for years but I definitely want to get back to doing that. https://t.co/ZwG2HpTQmT |
| Ashley Hattle-Cleminshaw @AshleyHattle @MusingsfromaSNM There are several online health publications that do such as Health Central, but I love the https://t.co/BTrhUOjWyt emails that keep me up to date on paid opportunities for #freelancewriting. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Call me cynical, but my 20+ years in major media (net TV news) makes me HIGHLY SUSPICIOUS of "sponsors" for my content. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosting events. Some are great with public speaking. It’s all about what you wanna put your energy into. And how your skills can be utilized. #WEGOHealthChat |
| MMHRC @research4mom @justagoodlife Tell me about it! #WEGOhealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat |
| Danny van Leeuwen @HealthHats A2 my online content is #creativecommons #opensource #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q2a Follow Up: Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat |
| NicNacPaddywack @nic_mclean I don't think so at all. I let my audience know that I'm looking out for them as well as myself. https://t.co/IpMAhPTrtk |
| Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or Non-Profit. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @Cpapbabes: Q1b: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn't ALL promos) it's fine. I do limited the number I will accept per month to keep it real. #wegohealthchat @CrzyCreoleMommy |
| My Fabulous Boobies @MyFabBoobies RT @Cpapbabes: Q1b: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn't ALL promos) it's fine. I do limited the number I will accept per month to keep it real. #wegohealthchat @CrzyCreoleMommy |
| Alan Brewington @abrewi3010 A2 tell your story in your voice. Don’t sacrifice quality for a sound bite, you will regret that. #wegohealthchat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! Need to listen to what patients are going through to help them be more effective advocates #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that only friends & friends of friends are apart of. Our public brands are up for scrutiny. But our personal lives should be off limits. #WEGOHealthChat |
 | About IBD: Amber-Writer, Journalist, Podcast Host @aboutIBD A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChat https://t.co/r3AZQg5yFS |
| Rie Lopez, MPH (she/her) @RieOfLetters @abrewi3010 We will be completely awesome. I just know it! (And now I need to make sure I am following your blog!) #WEGOHealthChat |
| Deeanne @twistedpsister A2a: As much as I like to help others, I wouldn't be a PsA advocate if I didn't have it myself. It is who I am now #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @RieOfLetters @SimonRStones @justagoodlife Clones would be amazing. But like pre-IBD clone! LOL! #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @Cpapbabes @patientexperts @wegohealth You could start your own 😊 Are you part of any online support groups on Facebook, etc? I've found that's really helpful for me as a patient and to figure out what topics need the most attention. #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosting events. Some are great with public speaking. It’s all about what you wanna put your energy into. And how your skills can be utilized. #WEGOHealthChat |
| Alan Brewington @abrewi3010 RT @jhoronjeff: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! Need to listen to what patients are going through to help them be more effective advocates #wegohealthchat |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy I have learned not to take on more than I can handle. Of course I learned this the hard way! Hah. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for other options. I'd like to share the ones I know and trust. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey I'm happy to write on topic/assignment for other sites for $$, but my own voice/blog(s) = reactor-level nuke for anyone else! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @CrzyCreoleMommy: A1a Follow Up: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and offline through speaking and /or events. Also, pairing up with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean I do as long as I can fit it into my brand. We may be health advocates but we're people and we're speaking up for people - who live regular lives too. https://t.co/USV4TVls4m |
| Danny van Leeuwen @HealthHats A2 I'm with @MightyCasey I'm not trying to monetize website. Focusing on content. Then people come to me for consulting. But that's me #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A2a Follow Up: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that only friends & friends of friends are apart of. Our public brands are up for scrutiny. But our personal lives should be off limits. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my brand. #Wegohealthchat |
| Ashley Hattle-Cleminshaw @AshleyHattle A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and my fiance is chronic. My personal life is my brand... but also cute pics of my dog. #WEGOHealthCHat |
| Alan Brewington @abrewi3010 @RieOfLetters Right back at you 😊 #WEGOHealthChat |
| Savvy Cooperative | #AskPatients @savvy_coop RT @aboutIBD: A2: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChat https://t.co/r3AZQg5yFS |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy Q2a: Depends on the person! Everyone is different. For me: nah. My personal life is part of my brand. I don't think I would get the same impact without revealing about my personal life. Plus I don't think I could leave it out! #oversharer #wegohealthchat |
| About IBD: Amber-Writer, Journalist, Podcast Host @aboutIBD RT @SimonRStones: A2: |
| NicNacPaddywack @nic_mclean That's absolutely my next move. And it's long overdue. https://t.co/qL3LyQOGWU |
 | Christy Stone @CrohnieBologna @CrzyCreoleMommy A2: Make sure you have say over final edit. Don't let your story be edited into something it's not. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen RT @aboutIBD: A2: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChat https://t.co/r3AZQg5yFS |
| Ashley Hattle-Cleminshaw @AshleyHattle @Cpapbabes @CrzyCreoleMommy So true. Readers and other patients identify with personal stories the most. #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy Q2a: Yes! I don't usually accept people I don't know to my personal page. #wegohealthchat |
| Savvy Cooperative | #AskPatients @savvy_coop This is excellent. We need more authenticity and diversity. Don't give them what you think they want to hear. #wegohealthchat https://t.co/Q3NjBLL84J |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @CrohnieBologna: @CrzyCreoleMommy A2: @CrzyCreoleMommy A2: Make sure you have say over final edit. Don't let your story be edited into something it's not. #WEGOHealthChat |
| Social Health Network @socialhealthnet @aboutIBD This sounds like what @BreneBrown says! Are you familiar? #WEGOHealthChat |
| Alan Brewington @abrewi3010 A2b it depends no your story. I have no personal life, not much to right about. #wegohealthchat |
| NicNacPaddywack @nic_mclean Yes! It's taken me years to figure outa good balance for myself. https://t.co/6DxStxJ8li |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are the benefits to branding yourself? #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen But also this. I have separate FB/IG pages for my "brand" too. But to feel authentic, I need it to be in my voice & to be open w/it. It's a little of both. #wegohealthchat https://t.co/B31GGwqkjh |
| Jack Barrette @healthyjack RT @mayanorthen: But also this. I have separate FB/IG pages for my "brand" too. But to feel authentic, I need it to be in my voice & to be open w/it. It's a little of both. #wegohealthchat https://t.co/B31GGwqkjh |
| Social Health Network @socialhealthnet EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0 |
| MMHRC @research4mom Oh yes. Many groups and I’m very well informed as to the issues that need to be addressed. https://t.co/ePkPM0DBxY |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @Cpapbabes Mine is too. But I do have some private social media platforms. I do separate a little bit. #wegohealthchat |
| CPAP Babes - Stacy @Cpapbabes @AshleyHattle Haha right? My brand is polka dots and cat pics. LOL. #wegohealthchat |
| Alan Brewington @abrewi3010 RT @savvy_coop: This is excellent. We need more authenticity and diversity. Don't give them what you think they want to hear. #wegohealthchat https://t.co/Q3NjBLL84J |
| Whitney Petit @CfEpilepsy Yessss! Boundaries was my word of 2017 for every area of life. I am mentally and emotionally better with them in place #WEGOHealthChat https://t.co/1Sjmzzpyl4 |
| My Fabulous Boobies @MyFabBoobies I actually don't. I struggled with that for a long time though. But I wanted to be seen as a whole person and not just the disease. https://t.co/EgF7gNdPMR |
| NicNacPaddywack @nic_mclean I actually don't. I struggled with that for a long time though. But I wanted to be seen as a whole person and not just the disease. https://t.co/XhlDu6r9rc |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social media. Designated social media pages, hashtags, themes and colorschemes. It makes it easier for people to find you and associate you with your cause. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @mayanorthen Awesome point. I'm on the cusp of creating a new "personal" account because my FB author page and current FB profile are all #clusterheadaches lately. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q2b Follow Up: Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are the benefits to branding yourself? #WEGOHealthChat |
| Deeanne @twistedpsister a2b I haven't done it yet, but have been thinking of separating my facebook account. Seems like a lot of work but worth it #wegohealthchat |
 | alishambridges.com @AlishaMBridges RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressive #PatientLeader but she's also a new member of our 2018 Patient Leader Advisory Board! 🙌 Her work on ad boards inspired this #WEGOHealthChat. |
| CPAP Babes - Stacy @Cpapbabes @savvy_coop Yassssssss #wegohealthchat |
| Danny van Leeuwen @HealthHats A2 I do have consulting work from my website recognition. Often writing and networking. I then negotiate cross-posting to my site and the clients. #WEGOHealthChat |
 | Barby Ingle Official @BarbyIngle A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take care of self first always. Set strong expectations & limits or you can get overwhelmed w so much need. #WEGOHealthChat https://t.co/h3hewQVzY7 |
| My Fabulous Boobies @MyFabBoobies This is true. Your story really matters to the folks who follow you. Don't shortchange yourself or them. https://t.co/5R2gF7J2Zo |
| NicNacPaddywack @nic_mclean This is true. Your story really matters to the folks who follow you. Don't shortchange yourself or them. https://t.co/j0ISizQKUr |
| NicNacPaddywack @nic_mclean RT @jhoronjeff: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! Need to listen to what patients are going through to help them be more effective advocates #wegohealthchat |
| alishambridges.com @AlishaMBridges RT @CrzyCreoleMommy: A1b Follow Up: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to your cause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found such great advocates who are positive and willing to help! #WEGOHealthChat https://t.co/ticykeBZI7 |
| My Fabulous Boobies @MyFabBoobies RT @jhoronjeff: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! Need to listen to what patients are going through to help them be more effective advocates #wegohealthchat |
| MMHRC @research4mom A2: That’s a big one! #wegohealthchat https://t.co/9b9Pzk3Ac3 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @justagoodlife Yes. But there are some things you can separate. It's kind of nice to do that. Just a little bit. Because our health is so intertwined, we need some personal boundaries. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A2a Follow Up: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that only friends & friends of friends are apart of. Our public brands are up for scrutiny. But our personal lives should be off limits. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: A2a Follow Up: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that only friends & friends of friends are apart of. Our public brands are up for scrutiny. But our personal lives should be off limits. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen Yes! I protest so much when others want final edits. Everyone says "that's the way it's done", but I am so against it. #wegohealthchat https://t.co/IaSm5P9V8a |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @abrewi3010 When we say "personal" life...does it have to be with persons? I don't have a social life, but my cats get a lot of play. It's not a brand thing, they're just so dang cute! #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @aboutIBD: A2: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChat https://t.co/r3AZQg5yFS |
| My Fabulous Boobies @MyFabBoobies RT @aboutIBD: A2: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChat https://t.co/r3AZQg5yFS |
| Danny van Leeuwen @HealthHats A2 my Facebook is separate with some bleed. I cross post to facebook for my friends and family. Some activists are also my friends #WEGOHealthChat |
| Enlightening Results 💡 @GraceCordovano @CrzyCreoleMommy Yes! I’m a professional private patient cancer patient advocate via my LLC, Enlightening Results #wegohealthchat |
| Alan Brewington @abrewi3010 A2 my branding is easy, I am me. No sense in making something I am not. #wegohealthchat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for other options. I'd like to share the ones I know and trust. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for other options. I'd like to share the ones I know and trust. #WEGOHealthChat |
| Danny van Leeuwen @HealthHats A2 I find LinkedIn to be my most activity cross post. Most hits, most reposts. Most comments. Who knew? #WEGOHealthChat |
| MMHRC @research4mom I have my brand and my personal personas - obviously here right now as the brand #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @SimonRStones: A2: |
| Enlightening Results 💡 @GraceCordovano @HealthHats @jhoronjeff Hi Danny! Hi Jen! Great to see you both here #WEGOhealthchat |
| NicNacPaddywack @nic_mclean RT @mayanorthen: A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my brand. #Wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @SimonRStones I actually had someone in the airport bathroom stop me and say, "You're the mommy. HIppo's mom!!! I love your blog. I don't have IBD, but my friend has Crohn's. We love it!" It scared me a little bit. Glad she didn't know my son's real name. boundries #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @mayanorthen: A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my brand. #Wegohealthchat |
| MMHRC @research4mom @HealthHats I need to try that #WEGOhealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @spondywolfgirl I did this and it is work, but it really made a huge difference. Of course, now that I am 'rebranding' so to speak, I have to do this all over again. LOL! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @AshleyHattle: A2: A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and my fiance is chronic. My personal life is my brand... but also cute pics of my dog. #WEGOHealthCHat |
| My Fabulous Boobies @MyFabBoobies RT @AshleyHattle: A2: A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and my fiance is chronic. My personal life is my brand... but also cute pics of my dog. #WEGOHealthCHat |
| Ashley Hattle-Cleminshaw @AshleyHattle @jhoronjeff @abrewi3010 OMG. I love this. I have to "limit" the number of cat and dog pics I post on my profiles. #WEGOHealthChat Maybe they need their own account. 😂 |
| Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosting events. Some are great with public speaking. It’s all about what you wanna put your energy into. And how your skills can be utilized. #WEGOHealthChat |
 | International Pain Foundation® @iPainOfficial A2b. I have separate brands made for each. I write personal health journey on personal sm and website, and community info and resources on the npo' s sm and their website. Partners can choose me or iPain, & they do for different reasons. #WEGOHealthChat https://t.co/1DhHMyk0Ie |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Another quick follow up before we move on to Q3....Q2c Follow up: Have you thought about starting an LLC or a S-Corporation? #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies That's how I feel too. I'm a real person behind the blog and the brand. https://t.co/YIHyiI5Z9F |
| NicNacPaddywack @nic_mclean That's how I feel too. I'm a real person behind the blog and the brand. https://t.co/lJpmbMsjhm |
| Danny van Leeuwen @HealthHats @mayanorthen #wegohealthchat I, on the other hand, value and welcome good editing. @ePatientDave is a fine editor. |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another way of doing business. If you are doing well w/ ur advocacy brand financially, starting an SCorp is a great way to separate u from the brand. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @wegohealth: EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0 |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A2c Follow up: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another way of doing business. If you are doing well w/ ur advocacy brand financially, starting an SCorp is a great way to separate u from the brand. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @wegohealth: EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0 |
 | JP Summers @authorjpsummers RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn a thing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen @AshleyHattle Cute pics of my dog over here too! :-) #wegohealthchat |
| Savvy Cooperative | #AskPatients @savvy_coop I guess co-ops are fundamentally off the table for a personal brand. 🤓 #wegohealthchat https://t.co/atwuVBhj04 |
| CPAP Babes - Stacy @Cpapbabes A2: I have other businesses so I just put a DBA under those for CPAPBabes. #wegohealthchat https://t.co/QBM3QZoI24 |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A2b Follow up: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social media. Designated social media pages, hashtags, themes and colorschemes. It makes it easier for people to find you and associate you with your cause. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: A2b Follow up: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social media. Designated social media pages, hashtags, themes and colorschemes. It makes it easier for people to find you and associate you with your cause. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy Sometimes I feel I share more with my health advocacy than my personal friends and family. 🤷🏾♀️ just always know your personal preferences and limits #WEGOHealthChat https://t.co/XsV4od4Ewo |
| NicNacPaddywack @nic_mclean RT @SimonRStones: |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @JessicaGimeno Financially, legally, emotionally, professionally. #WEGOHealthChat |
| Alan Brewington @abrewi3010 @jhoronjeff Good point Jen! I do take my camera and skis out on excellent adventures. That’s personal. #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @AshleyHattle: @mayanorthen Awesome point. I'm on the cusp of creating a new "personal" account because my FB author page and current FB profile are all #clusterheadaches lately. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q2b Follow Up: Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are the benefits to branding yourself? #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @CrzyCreoleMommy I have an LLC (est in '09), since I've been a hired gun (freelance) since '88. Biz entity = necessity, IMO. #wegohealthchat |
| Barby Ingle Official @BarbyIngle Hi :) jusy woke up from our iPain #HeroofHope awards dinner last night. Just in time 4 the chat. :) #WEGOHealthChat https://t.co/ImdZyKU3IK |
| Ashley Hattle-Cleminshaw @AshleyHattle #WEGOHealthChat Luckily, I haven't run into this problem a lot, but how do other #advocates cope with #trolls? |
| Maya Northen Augelli @mayanorthen A2c: I have, quite a bit. I just have to weigh the pros and cons - i.e. since right now it's all my money, is it worth the cost. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy No, not at all! These are just some of my ideas. #WEGOHealthChat https://t.co/DFUP5En2YF |
| CPAP Babes - Stacy @Cpapbabes A2 Things do get personal though. My Instagram followers make me so happy. It was SO hard for me to wait to tell them about my pregnancy! I kept being like "I can keep a secret from my FB friends but can't wait to tell me fellow CPAPBabes on Insta!!!! #wegohealthchat |
| My Fabulous Boobies @MyFabBoobies Great advice. I definitely stay as private as possible utilizing internet tools to talk to people instead of personal calls or visits. https://t.co/vmGnxrYJ26 |
| NicNacPaddywack @nic_mclean Great advice. I definitely stay as private as possible utilizing internet tools to talk to people instead of personal calls or visits. https://t.co/MluKXBlXcp |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy I plan on doing this in January. Do you have advice on the best way to approach the process? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy okay...are y'all ready for Q3? #wegohealthchat |
| Christy Stone @CrohnieBologna @mayanorthen When that final or last minute edit is the one that changes information to skew toward inaccurate, off message or disingenuous, that can and does hurt the advocates credibility. It's worth insisting. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @RieOfLetters: This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found such great advocates who are positive and willing to help! #WEGOHealthChat https://t.co/ticykeBZI7 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette? #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: @justagoodlife Yes. But there are some things you can separate. It's kind of nice to do that. Just a little bit. Because our health is so intertwined, we need some personal boundaries. #WEGOHealthChat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @abrewi3010 See!! Honestly, I do document my life, not as a blogger, but on social media. Good to show all the sides, but I'm very open. #wegohealthchat |
| CPAP Babes - Stacy @Cpapbabes @AshleyHattle Ignore em. Or try to. I still am not pleased that someone called me a "fat piggy" on YouTube in Spanish. I actually ended up turning off comments on some videos they were so mean. YouTube is the worst for trolls! #wegohealthchat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette? #WEGOHealthChat |
| Enlightening Results 💡 @GraceCordovano @CrzyCreoleMommy As a professional advocate, I carry errors & omissions liability insurance annually. #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Definitely a long ways off for me, but this is good information if you are further along. Totally in awe of @CrzyCreoleMommy right now, I won't lie. #WEGOHealthChat https://t.co/FQEh0GhYBl |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are relevant to your advocacy or following. You can reach out via social media, expos where vendors are set up, blogger events, medical conventions. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette? #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are relevant to your advocacy or following. You can reach out via social media, expos where vendors are set up, blogger events, medical conventions. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @abrewi3010: A2 my branding is easy, I am me. No sense in making something I am not. #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are relevant to your advocacy or following. You can reach out via social media, expos where vendors are set up, blogger events, medical conventions. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @Cpapbabes I'm glad I'm not the only one, but sorry to hear you're getting them too. Mine was a "fugly" comment. It's petty to insult someone's looks especially when they're doing good in the world. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @AshleyHattle I used legal zoom. It was probably a little more expensive, but it was just easier for me to do that. Get it done and move forward. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen @CrohnieBologna Yep! Too easy for our words to get misinterpreted/tossed around. I feel that enough in everyday life. I certainly don't want it in something I've written. #WegoHealthChat |
| Alan Brewington @abrewi3010 @jhoronjeff I try to be open too, especially knowing I’m not a typical patient. No sense in hiding from that fact. #wegohealthchat |
| CPAP Babes - Stacy @Cpapbabes A3: I don't know, but want to learn! I sometimes get too tired to respond to emails...I think getting better at that and powering through will help keep those sponsors around :P #wegohealthchat https://t.co/35wNGkgsag |
| NicNacPaddywack @nic_mclean I love that! I want to add that to my portfolio of offerings. Do you mind if I reach out with questions @GraceCordovano https://t.co/AirGjI0CAF |
| JP Summers @authorjpsummers I was actually an author 1st. I had tons of experience separating personal from professional on my existing media sites. When I became #chronicallyill I focused on raising awareness w/my readers since it was a bigger audience. #WEGOHealthChat https://t.co/lgwryNjykp |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @AshleyHattle Ignore, mostly. Sometimes, more ordnance is required. #WEGOHealthChat https://t.co/zrIKHbkY8E |
| Savvy Cooperative | #AskPatients @savvy_coop @CrzyCreoleMommy Well co-ops are jointly owned. So you were right, it's hard to have a jointly owned venture for a single person. But if cooperation and patient ownership is your jam, you know where to find us :) #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy If you're getting lost, follow my page and just, Quote Retweet with your answers! xo #wegohealthchat https://t.co/UaGRIV9vvp |
| NicNacPaddywack @nic_mclean I'm glad to hear that. I've been wondering how to leverage LinkedIn. https://t.co/WrrPBBb48V |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms. #WEGOHealthChat https://t.co/p4FkIitfO7 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could help my followers. I use the brand first myself. Then reach to become a brand ambassador or have them sponsor parts of my brand. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @RareCandace #WEGOHealthChat https://t.co/KOg3jgqXEB |
| Maya Northen Augelli @mayanorthen @Cpapbabes Yes, I get so excited to share things with my followers! Sometimes, they get me better than my IRL friends, since we often have our illnesses in common. #wegohealthchat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @abrewi3010 You do you!!! We're all individuals #wegohealthchat https://t.co/V5uktHgybT |
| About IBD: Amber-Writer, Journalist, Podcast Host @aboutIBD Starve them. By interacting you give them a platform. Honest criticism and debate is worth your time. Troublemakers are not. #WEGOHealthChat https://t.co/2oQ701Ldht |
| CPAP Babes - Stacy @Cpapbabes #Wegohealthchat #wegohealthCAT #webcamtoy https://t.co/NjvN7vpHCJ |
| My Fabulous Boobies @MyFabBoobies I've had similar things happen to me as well. Hey, you're "My Fabulous Boobies" I love your blog! LOL... it's wild but it makes me feel good too. https://t.co/e9UmJWiPAb |
| NicNacPaddywack @nic_mclean I've had similar things happen to me as well. Hey, you're "My Fabulous Boobies" I love your blog! LOL... it's wild but it makes me feel good too. https://t.co/gtFzf9TW6u |
 | mdshorifulislam745@gmail.com @MdShori76514808 https://t.co/FwiwqZl9F3 https://t.co/myomYD8ku6 |
 | Heidi Grabenstatter @PatientIntv @CrzyCreoleMommy Glad we are getting a "mom living with chronic disease" perspective! Important and often overlooked. I'm Heidi, mom, neuroscientist and patient living with epilepsy. Thanks for sharing #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms. #WEGOHealthChat https://t.co/p4FkIitfO7 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @savvy_coop I had been interested in working with you guys! Would love to chat later. xo #wegohealthchat |
| Alan Brewington @abrewi3010 A3 someone want to sponsor me? #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Another quick follow up before we move on to Q3....Q2c Follow up: Another quick follow up before we move on to Q3....Q2c Follow up: Have you thought about starting an LLC or a S-Corporation? #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @mayanorthen @Cpapbabes I completely agree with you. My #clusterheads (other #clusterheadache patients) are like family to me. They understand me more than anyone else. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @SimonRStones: |
| My Fabulous Boobies @MyFabBoobies Yes, I want to do this as soon as possible. It's long overdue. https://t.co/WCP7OQQaSN |
| NicNacPaddywack @nic_mclean Yes, I want to do this as soon as possible. It's long overdue. https://t.co/oScxlYOXsU |
| Barby Ingle Official @BarbyIngle Awesome, pics should be out from our photographer by this Sunday. #WEGOHealthChat https://t.co/uudVOw1Il4 |
| CPAP Babes - Stacy @Cpapbabes A3: I am so new that I only have one so far! (Well maybe two - not exactly an official sponsor but I made a commercial with @ResMed in exchange for a really cool travel #cpap machine - the #airmini) Mostly I work with people who align with my values and are kind #wegohealthchat https://t.co/7zYBLZYkjQ |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A2c Follow up: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another way of doing business. If you are doing well w/ ur advocacy brand financially, starting an SCorp is a great way to separate u from the brand. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could help my followers. I use the brand first myself. Then reach to become a brand ambassador or have them sponsor parts of my brand. #WEGOHealthChat |
| Social Health Network @socialhealthnet We sure can!! #WEGOHealthChat https://t.co/ASxIT8yhmi |
| CPAP Babes - Stacy @Cpapbabes Ditto! #wegohealthchat https://t.co/hDKtFtTOSp |
| JP Summers @authorjpsummers A2: when I advocate, I go as my author alias. She is the one that made me into the person I am today. Strong and ready to take on the world! #WEGOHealthChat #spoonie #invisibleillness https://t.co/AtErQgvKKD |
| NicNacPaddywack @nic_mclean Do you think an S corp is better than doing an LLC? https://t.co/hID0FV4F71 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to your brand and your demographic? #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to your brand and your demographic? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content of your work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content of your work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your community behind the scenes with influential people. They also can help legitimize your brand & advocacy work. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey THIS. ALL. DAY. >> RT @RareCandace: My entire advocacy platform is tied to shaking things up, sponsors would limit my voice. #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @AshleyHattle: #WEGOHealthChat Luckily, I haven't run into this problem a lot, but how do other #advocates cope with #trolls? |
| Maya Northen Augelli @mayanorthen @savvy_coop would also love to learn more off-chat! #wegohealthchat |
| Whitney Petit @CfEpilepsy @justagoodlife Haha I love these Trolls 😂 #WEGOHealthChat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to your brand and your demographic? #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies The few times it has happened, I just block them from everything. I won't be harrassed while I'm doing this work. https://t.co/edzlSM85KI |
| NicNacPaddywack @nic_mclean The few times it has happened, I just block them from everything. I won't be harrassed while I'm doing this work. https://t.co/eXW9TDjyFv |
| MMHRC @research4mom @CrzyCreoleMommy This is a great idea #WEGOhealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content of your work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @Cpapbabes Omg are we doing this?!? #WEGOHealthChat https://t.co/N5iwiOfz3l |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your community behind the scenes with influential people. They also can help legitimize your brand & advocacy work. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @RareCandace You bring up an important point. How do you make sure you incorporate your sponsors without pushing their product on other patients? For me, it's about patient education and access to information, so sponsors could interfere with that. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @aboutIBD: Starve them. By interacting you give them a platform. Honest criticism and debate is worth your time. Troublemakers are not. #WEGOHealthChat https://t.co/2oQ701Ldht |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy A3a: Good idea! Hey @DrHarveyKarp, as an expecting mom with #sleepapnea and #idiopathichypersomnia I am going to need more sleep than most...if you want to sponsor me with a #snoo crib I would be so happy! :P #wegohealthchat #tiredjustthinkingaboutmotherhood |
| NicNacPaddywack @nic_mclean RT @SimonRStones: |
| Maya Northen Augelli @mayanorthen This is a huge help. I haven't gotten to tthe sponsor stage yet, so excited to hear tips/thoughts/ideas! #wegohealthchat https://t.co/V51wsO1wYh |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @BarbyIngle Hi Barby! Nice to 'see' you! Sounds like #HeroOfHope Award dinner was a great time! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @nic_mclean It works for me and my financial situation. It’s a large tax payment. But it separates me personally from the brand, in case it needs to be taken over if I get sick or whatever. #WEGOhealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @jhoronjeff Yes we are!!!!! #wegohealthchat https://t.co/ubVS4TzhJP |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who you are and bring some personality into it. Make sure your brand is uniform and has a mission. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @MightyCasey: Q3: Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat |
| Danny van Leeuwen @HealthHats I'm on several Advisory Boards. I start wondering why the f***** am I there. After 5 minutes I know. Part of the deal is to open doors wider for other advocates and spread the words. #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies That's one of the things that has kept me on the sidelines politically. I know just how crazy it can be. You've got to be ready for wht comes with it. https://t.co/PUyhZ1ubTr |
| NicNacPaddywack @nic_mclean That's one of the things that has kept me on the sidelines politically. I know just how crazy it can be. You've got to be ready for wht comes with it. https://t.co/f4DsNERP4J |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who you are and bring some personality into it. Make sure your brand is uniform and has a mission. #WEGOHealthChat |
| Whitney Petit @CfEpilepsy @CrzyCreoleMommy Yes! I've worked on Advisory Boards that paid well but did nothing to help my comminty when it was over. I won't work with that company again #WEGOHealthChat |
| About IBD: Amber-Writer, Journalist, Podcast Host @aboutIBD Ah, but if it’s something that can solve a problem or increase quality of life — you are serving patients. I think the key is authenticity. #WEGOHealthChat https://t.co/Q1OrDXKpop |
| My Fabulous Boobies @MyFabBoobies Absolutely! Education is very key. And transparency. https://t.co/HvQYMmjDLO |
| NicNacPaddywack @nic_mclean Absolutely! Education is very key. And transparency. https://t.co/8fzd8p3RuP |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy Taking notes! Are you able to recommend a list of ad boards? #wegohealthchat |
| JP Summers @authorjpsummers A3: I look at who will benefit from choosing to work with a certain sponsor. Also, what's their reputation. If they have high marks, I'm more likely to work with them #WEGOHealthChat https://t.co/b0e1ThezRb |
| Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your community behind the scenes with influential people. They also can help legitimize your brand & advocacy work. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your community behind the scenes with influential people. They also can help legitimize your brand & advocacy work. #WEGOHealthChat |
| Alan Brewington @abrewi3010 @bbhomebody Big winner big winner 🙏 #wegohealthchat |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy I would love to do it! I would love to participate in research, too - there is NOT enough out there for women with #sleepapnea. Just need to learn how to get started! #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content of your work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy @nic_mclean I think about this all too often. I've run a support group for #clusterheadaches in #Denver for two years and I'm handing over the reigns in January to focus on my national efforts and being a board member of @Cluster_buster #WEGOHealthChat It's hard to let your "baby" go. |
| My Fabulous Boobies @MyFabBoobies RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content of your work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen @Cpapbabes @CrzyCreoleMommy Would also love to know this! #WegoHealthChat |
| Social Health Network @socialhealthnet @Cpapbabes @CrzyCreoleMommy It always has to start somewhere with someone! Keep doing what you're doing! #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @RareCandace Death threats?! I am so terribly sorry this happened. It isn't the first I have heard of advocates receiving them, but I seriously do not understand what makes people think it is okay to go there. Ever. #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @RonnyAllan1 @CrzyCreoleMommy @wegohealth Oh man does that mean I have to get real headshots instead of just sending them my #cpap boudoir :P #wegohealthchat |
| My Fabulous Boobies @MyFabBoobies That is such a good point! I had not considered that angle. Definitely will research more. https://t.co/FtDHDnGKct |
| NicNacPaddywack @nic_mclean That is such a good point! I had not considered that angle. Definitely will research more. https://t.co/iykz4972Xo |
| Whitney Petit @CfEpilepsy @CrzyCreoleMommy I've also worked on some Advisory Boards that I will hop on board any time they call. Got to build those relationships as well. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle RT @wegohealth: @Cpapbabes @CrzyCreoleMommy It always has to start somewhere with someone! Keep doing what you're doing! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy I know I'm moving fast with a lot of questions. But we have a lot of ground to cover. Almost done! And remember you can always look on my page to find questions or ask questions. With that said, moving on to Q4!!! #wegohealthchat |
| Deeanne @twistedpsister Sorry to have to run. Gotta go get my son from school. I'll check in to see what all was said after :D #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat |
| MMHRC @research4mom @Cpapbabes @CrzyCreoleMommy Check out our website https://t.co/VJCrdKsZUM #WEGOhealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who you are and bring some personality into it. Make sure your brand is uniform and has a mission. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat |
| NicNacPaddywack @nic_mclean I would love to do this. But I have no idea where to start. Where do you find the boards? https://t.co/MDNSGaJlfC |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat |
| Savvy Cooperative | #AskPatients @savvy_coop @Cpapbabes @CrzyCreoleMommy Have you chatted with our friends over at @sleepapneaorg. They're amazing! #wegohealthchat |
| Whitney Petit @CfEpilepsy RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause & community. #WEGOHealthChat |
| Danny van Leeuwen @HealthHats A3 I started a YouTube channel too so people could see me speak #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who you are and bring some personality into it. Make sure your brand is uniform and has a mission. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean Ahh... very true. My media kit is woefully out of date and pitiful. On the to-do list right now. https://t.co/WX58HpNLL0 |
| MMHRC @research4mom I say this all the time. It’s always assumed that altruism will rule the day. My answer - “nope”. #wegohealthchat https://t.co/RbT9cBjiOe |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pages and clear out anything that has nothing to do wit your brand. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @RonnyAllan1: |
| Maya Northen Augelli @mayanorthen This #WegoHealthChat is 100% what I needed today. Taking notes from all you amazing advocates who have been successful at this. Thank you! |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pages and clear out anything that has nothing to do wit your brand. #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @savvy_coop @CrzyCreoleMommy @sleepapneaorg OO not yet! But I think I follow them on Insta :) #wegohealthchat |
| Enlightening Results 💡 @GraceCordovano @CrzyCreoleMommy Do you have suggestions on where/how to apply to ad boards? #wegohealthchat |
| Social Health Network @socialhealthnet @mayanorthen Yas!! That's so great to hear! #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @MightyCasey: Q3: Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @RareCandace Something I am thinking about for 2018. As a single mom, it's gonna be tough, but #IBD interrupted it and it's time to finish! Plus, it will help with my advocacy! #WEGOHealthChat |
| JP Summers @authorjpsummers RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pages and clear out anything that has nothing to do wit your brand. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @HealthHats: I'm on several Advisory Boards. I start wondering why the f***** am I there. After 5 minutes I know. Part of the deal is to open doors wider for other advocates and spread the words. #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle Q4. Stay constant, trim the waste, have good content and stay on brand w the sm accounts #WEGOHealthChat https://t.co/yWLMymEyoO |
| NicNacPaddywack @nic_mclean RT @CfEpilepsy: @CrzyCreoleMommy Yes! I've worked on Advisory Boards that paid well but did nothing to help my comminty when it was over. I won't work with that company again #WEGOHealthChat |
| 💬Jen Horonjeff | #askpatients @jhoronjeff Call me old-fashioned, but I like to be useful when I join ad boards or committees. Too many I find are in title only, which I suppose works for some, but I like to know I'm making an impact. So I try to see how I'd be useful beforehand. #wegohealthchat https://t.co/sCYKIEuivk |
| MMHRC @research4mom @CrzyCreoleMommy You have to be willing to invest and spend upfront to get your name out there - otherwise it’s way harder than it needs to be #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @Cpapbabes @RonnyAllan1 @wegohealth lol! it does help to have one on hand! #wegohealthchat |
| Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @JessicaGimeno Good one! #WEGOHealthChat |
| My Fabulous Boobies @MyFabBoobies That's a great tip. Thanks! https://t.co/4YtRI61TaS |
| NicNacPaddywack @nic_mclean That's a great tip. Thanks! https://t.co/apyeycyLPV |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @Cpapbabes @Brian_Eastwood this is your jam! Get in on this! #wegohealthchat |
| Alan Brewington @abrewi3010 RT @jhoronjeff: Call me old-fashioned, but I like to be useful when I join ad boards or committees. Too many I find are in title only, which I suppose works for some, but I like to know I'm making an impact. So I try to see how I'd be useful beforehand. #wegohealthchat https://t.co/sCYKIEuivk |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q4a Follow Up– How do you align yourself with marketing needed to gain sponsors but keep your integrity?#WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat |
| Social Health Network @socialhealthnet YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat https://t.co/TUQ5dBE9IZ |
| CPAP Babes - Stacy @Cpapbabes @BarbyIngle Yes! Consistency is key! I have a social media company as well to help keep small businsesses up to date. (Although it can be hard if your health condition makes it hard to stay on top of work!) #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause & community. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @RonnyAllan1 It's definitely a marathon, not a sprint! #wegohealthchat |
| NicNacPaddywack @nic_mclean RT @HealthHats: A3 I started a YouTube channel too so people could see me speak #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4a Follow Up– By choosing brands that are relevant to your cause and demographic. Random brand sponsorship that your followers can't benefit from just so you can make some money, doesn't help the trust factor. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pages and clear out anything that has nothing to do wit your brand. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy A4: Create engaging content that helps patients understand their condition and how to cope with the everyday struggles. Good information goes a long way and often into the hearts of those struggling the most. #WEGOHealthChat Good content will lead to fiscal value in my opinion. |
| MMHRC @research4mom RT @CrzyCreoleMommy: @RonnyAllan1 It's definitely a marathon, not a sprint! #wegohealthchat |
| MMHRC @research4mom RT @wegohealth: YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat https://t.co/TUQ5dBE9IZ |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @RareCandace Eeeee!! Pre-congrats! My husband is in law school now. So. Much. Work. #wegohealthchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: Be human first, then be a brand. Was my reco to clients before healthcare pivot, too. https://t.co/wI4BMWVBvO #wegohealthchat |
| My Fabulous Boobies @MyFabBoobies Oh wow! You're calling my name. I just found someone to help me with mine. It's just not as good as it should be. https://t.co/iMhK2pStxU |
| NicNacPaddywack @nic_mclean Oh wow! You're calling my name. I just found someone to help me with mine. It's just not as good as it should be. https://t.co/UzAEkUQ4Ha |
| Rie Lopez, MPH (she/her) @RieOfLetters Here is @justagoodlife , sharing some truth...and reminding me that I need to go and do some work on this myself. #feelingsheepish #WEGOHealthChat https://t.co/feYxW2qwlo |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy This is a topic I've been struggling with. Some patients may see our efforts as a money-making scheme. How do you approach those view points? #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q4b Follow Up– What are some steps you can take to build your value as a member to a patient advisory board or non profit advisory board?#WEGOHealthChat |
| Alan Brewington @abrewi3010 Sponsor us?? #Wegohealthchat https://t.co/TuWnwAqYuB |
| NicNacPaddywack @nic_mclean RT @RonnyAllan1: |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within your community. Don't compete, but be inclusive and engaging. #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @wegohealth: YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat https://t.co/TUQ5dBE9IZ |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy A4a: I just do my thing and hope the right sponsors come to me! But I am also careful about following guidelines for sponsorship - like making sure that posts include #ad and #sponsored. Full disclosure! #wegohealthchat |
| NicNacPaddywack @nic_mclean What is a slide pack? https://t.co/DzmsvbLaCn |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @RonnyAllan1 @RareCandace Well, my brand = bomb-thrower, so ... #WEGOHealthChat |
| Social Health Network @socialhealthnet We did a webinar about this very topic! For info about how to create your About Me page check out this guide https://t.co/N2Oa0oc3NF #WEGOHealthChat https://t.co/ga51DRbpfL |
| NicNacPaddywack @nic_mclean RT @AshleyHattle: @CrzyCreoleMommy A4: @CrzyCreoleMommy A4: Create engaging content that helps patients understand their condition and how to cope with the everyday struggles. Good information goes a long way and often into the hearts of those struggling the most. #WEGOHealthChat Good content will lead to fiscal value in my opinion. |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: Q4a Follow Up– How do you align yourself with marketing needed to gain sponsors but keep your integrity?#WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy Reaching out to the Twitter base of #clusterheadache patients and doctors has helped me as a patient and as a writer immensely. You need multiple outlets to be "seen." #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within your community. Don't compete, but be inclusive and engaging. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @AshleyHattle People are always going to have opinions about things. But if you keep it authentic, you can't really be disputed. And some of the judgements and complaints you will just have to ignore because you are probably helping more people than harming them. #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within your community. Don't compete, but be inclusive and engaging. #WEGOHealthChat |
| Danny van Leeuwen @HealthHats A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can muster. React to ideas not people. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy With a minute left, I'm gonna post the last question. But please keep chatting and catching up on the other questions if you can. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Q5 – Final Question: What are 5 goals you can make right now to advance your impact for the coming year? #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @CrzyCreoleMommy: Q5 – Final Question: Q5 – Final Question: What are 5 goals you can make right now to advance your impact for the coming year? #WEGOHealthChat |
| Enlightening Results 💡 @GraceCordovano What a great, resourceful chat! Thanks #WEGOHealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @Cpapbabes YES! #WEGOHEALTHCHAT |
| NicNacPaddywack @nic_mclean RT @FibroFlutters: |
| Angela Cohen @angelee828 Thanks @wegohealth and @CrzyCreoleMommy for such a fantastic chat today. I gained valuable tips from everyone!! #wegohealthchat |
| Christy Stone @CrohnieBologna @CrzyCreoleMommy A4 I would classify myself as swimming up stream. I'm over here doing my own thing, collaborating where I can, boosting other good sources within my community, reaching out to other disease types. Strength in good information & authenticity. Do good. Be good. #WEGOHealthChat |
| Social Health Network @socialhealthnet Yes! Join us in our Facebook group! #WEGOHealthChat https://t.co/jJdxDE32jS |
| NicNacPaddywack @nic_mclean RT @CrzyCreoleMommy: @AshleyHattle People are always going to have opinions about things. But if you keep it authentic, you can't really be disputed. And some of the judgements and complaints you will just have to ignore because you are probably helping more people than harming them. #WEGOHealthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @CrzyCreoleMommy I'm not sure who to credit with this quote, but "You're not doing anything if you're not being criticized" has helped my mindset a lot. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @AshleyHattle Yes, I think people forget that not everyone is on FB or Twitter or Instagram, exclusively. #wegohealthchat |
| Alan Brewington @abrewi3010 @wegohealth No worried at all. Changed URL, everything. Just walked away from the old. #WegoHealthChat |
| Dr Mary Ann Wilmarth @Back2backPT @wegohealth I concur. I have done a lot with all forms of media with my full time profession. It is critical to maintain your or your brand or company’s message & voice. A word or edit here or there can change the entire meaning! #WEGOhealthchat @wegohealth @Back2backPT @CrohnieBologna |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy #Q5: Get consistent with writing, get better at answering emails, consistent outreach, taking action on things I know I need to do to advance and take care of myself and my son, who is coming in May! #wegohealthchat |
| Danny van Leeuwen @HealthHats A5: 1 continue to develop my resource center. 2. SHow up. 3. Give my health the time it deserves. 4 When my honey says she wants to do something with me the answer is YES #WEGOHealthChat |
| NicNacPaddywack @nic_mclean RT @HealthHats: A4a Advisory boards: A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can muster. React to ideas not people. #WEGOHealthChat |
| Alan Brewington @abrewi3010 @bbhomebody Mmmmmmm coffee #Wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy Thank you so much for chatting with me guys! I know I had a lot of questions, but I wanted to cover a lot of ground! Hope you got something to take with you. Thank yous o much @wegohealth for letting me take over! Looking forward to the next year on the Ad Board! #wegohealthchat |
| Danny van Leeuwen @HealthHats Bye. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @justagoodlife @bbhomebody For me, this is the hardest part, selling myself. I never felt very comfortable with it in my pre #chronicillness life. As always, I am a work in progress. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @JessicaGimeno Yes. With my background and resources in legislation, policy has become a big part of my advocacy. health laws are very important! #WEGOHEalthChat |
| Ashley Hattle-Cleminshaw @AshleyHattle @Cpapbabes @CrzyCreoleMommy What she said ^ Staying consistent is difficult when life (especially life with a serious health condition) throws you curve balls every day. #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen Consistency is where I struggle. Tons of excitement and ideas followed by #MECFS exhaustion & #depression. Always an up and down battle. #wegohealthchat https://t.co/bDTI57DkA9 |
| Social Health Network @socialhealthnet @CrzyCreoleMommy We loved having you! Thank you for sharing your knowledge bombs! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle I choose my gigs based on my health conditions, limitations, and look for long-term turnarounds in case of flares. #WEGOHealthChat https://t.co/jzQJ7ovsU6 |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @Cpapbabes Congratulations! Take some time after the baby and then jump right back on the horse!!! And boy moms ROCK!!!! LOL! #WEGOHealthChat |
| CPAP Babes - Stacy @Cpapbabes @CrzyCreoleMommy @AshleyHattle Yes! My Facebook audiences and Instagram audiences are SO different! (The Instagram audience loved the shirt that had the word "effing", the FB ones thought it was too profane!) #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Tons of amazing and valuable information to go over in today's #wegohealthchat! Thanks so much for the fantastic tips everyone. Special thanks to @CrzyCreoleMommy , who is absolutely wonderful!! |
| Social Health Network @socialhealthnet Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Ashley Hattle-Cleminshaw @AshleyHattle RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Savvy Cooperative | #AskPatients @savvy_coop 1 - Choose integrity no matter what 2 - Help elevate diverse voices 3 - Listen more than we speak 4 - Celebrate success of others and ourselves 5 - Cultivate a community of empowered patient-owners to restore power back to patients. #wegohealthchat https://t.co/8ViPQja0zB |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @AshleyHattle Yes! I grew up with parents who work in the entertainment business, so my crusty exterior is thick. But it's important to have! Everybody has an opinion. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @CrohnieBologna YES! Collaborations are important. And always keeping what's important at the forefront of your mind! #WEGOHealthChat |
| Savvy Cooperative | #AskPatients @savvy_coop Great advice! #wegohealthchat https://t.co/9xx3a7JU3v |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @angelee828 @wegohealth Thanks for tuning in and participating! xo #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @GraceCordovano So glad you got something out of it! xo #WEGOHealthChat |
| Social Health Network @socialhealthnet Don't forget, we have #wegohealthchat the first Tuesday of every month at 1pm ET. Mark it on your calendar 📆! |
| Ashley Hattle-Cleminshaw @AshleyHattle Thank you @wegohealth and @CrzyCreoleMommy for today's #WEGOHealthChat There was a lot of useful information and advice that I'm excited to implement in the new year. https://t.co/ESAD6a1KG3 |
| Christy Stone @CrohnieBologna @CrzyCreoleMommy A5: 1. Invest more in myself 2. Care less about personal consequences 3. Push the publish button and carry on 4. Goals + Reason + Reality = Balance 5. Be kinder to myself. Calm the perfectionist #WEGOHealthChat |
| Social Health Network @socialhealthnet @CrohnieBologna @CrzyCreoleMommy #4! Love it #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @savvy_coop Love this! #wegohealthchat |
| Social Health Network @socialhealthnet Make sure to follow today's hosts: @CrzyCreoleMommy! Thank you SO much Brooke for leading this discussion and sharing some of your insider knowledge! 💡 #WEGOHealthChat |
| Christy Stone @CrohnieBologna @CrzyCreoleMommy @wegohealth Thank you Brooke. As always, lovely to chat with you. Always take something thoughtful away from time together. Great job moderating. #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @justagoodlife @Cpapbabes Yes! Family comes first. Health comes first! Plus, those new babies need time to adjust to the new world, and you need time to adjust to mommy hood. Take your time! Also don't be afraid if your advocacy evolves. #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more often, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @RieOfLetters Thank you so much for joining! I'm so glad you got some useful stuff! xoxo #WEGOHealthChat |
| Maya Northen Augelli @mayanorthen @HealthHats @ePatientDave Oh I do too. But I've had people who refuse to show me the final edits before it goes "live", and I want to see them. Thank you for the recommendation. Always good to have them! #wegohealthchat |
| Ashley Hattle-Cleminshaw @AshleyHattle @GoldenGraine I wish I'd tagged you earlier. The #WEGOHealthChat is a monthly talk on #advocacy for health conditions. It's on the 1st Tuesday of every month. I learned a lot today! |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @wegohealth thanks y'all! xoxoxo #wegohealthchat https://t.co/kghjYuodBg |
 | Heather 🇺🇸 @ZHeatherChamp @CrzyCreoleMommy I would love to know how to do this! #WEGOHealthChat |
 | Brian Eastwood @Brian_Eastwood @wegohealth (marks it on calendar) #wegohealthchat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @JessicaGimeno @wegohealth Aww thanks for joining! xo #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v |
| Heather 🇺🇸 @ZHeatherChamp @CrzyCreoleMommy Sponsors in what way? For what purpose? #WEGOHealthChat |
| Social Health Network @socialhealthnet @AshleyHattle @GoldenGraine So glad you joined us today! #WEGOHealthChat |
| Brooke Abbott aka The Crazy Creole Mommy @CrzyCreoleMommy @justagoodlife So, I totally read that as, WH:WHITE HOUSE. And I was like, ummm...not many people work or have worked in the White House, so, why is that a criteria?! LOL!!! #NeedMoreCoffee #WEGOHealthChat |
| Heather 🇺🇸 @ZHeatherChamp @CrzyCreoleMommy Who’s “they”? I’m desperate to earn money since denied disability. Help! #WEGOHealthChat |
#WEGOHealthChat content from Twitter.