#autchat Transcript
Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | #AutChat mod @autchatmod Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 1pm Pacific / 4pm Eastern / 9pm UTC/GMT! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW |
| #AutChat mod @autchatmod #AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar. |
| #AutChat mod @autchatmod We post transcripts of the weekly chats to our website, https://t.co/QrdW2dQuN0. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site. |
| #AutChat mod @autchatmod Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us. |
| #AutChat mod @autchatmod For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk |
| #AutChat mod @autchatmod This #AutChat is about privacy and privacy violations, including medical information (physical health, mental health, neurodivergence-related). Remember that if talking or reading about this is upsetting or triggering, you can mute the hashtag or step away as needed. |
| #AutChat mod @autchatmod Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see them! Please capitalize it as #AutChat to make it more accessible to screenreaders. |
| #AutChat mod @autchatmod Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic, privacy and privacy violations.. Quick reference for this week's #AutChat questions (please wait till they're tweeted to answer): https://t.co/oMpidPNvJ3 |
 | Helen Rottier @helenrottier A0: I’m Helen, she/her, grad student. I’ll mostly be lurking today. #AutChat |
| Helen Rottier @helenrottier @endeverstar I just tweeted the same thing. 😂 #AutChat |
 | Ramona @QuartzDisc @autchatmod A0: Hi I’m R. Privacy is a huge deal to me and has become a bigger one after having mine violated plus hearing how corporations violate our privacies for money. #AutChat |
| #AutChat mod @autchatmod ***Please keep others’ privacy in mind when answering! Anonymize, or if that isn’t enough to protect their identity, refrain from sharing.*** #AutChat |
| #AutChat mod @autchatmod Q1: Have you ever experienced a violation of privacy, either about your neurodivergence or because someone thought your neurodivergence made it ok? Have you seen someone else’s be violated? #AutChat |
 | The Weirdos Are Out 🦇 @weirdosareout @autchatmod A0: Hi 👋 I'm Lara. My therapist recently brought up that they thought I might have ASD so i've been starting research and exploring it a little. I have some nice friends who referred me to this twitter account! #autchat |
 | Justin Ekis @jekis I’ve been reading #AutChat for a year or so, andnever picked up on the fact that the preamble asks people to capitalize the hashtag so screen readers say it correctly. Thank you. If you’re blind and participate in these chats, I’d be thrilled to get to know you. I’m blind too. |
| Ramona @QuartzDisc @autchatmod A1: Not me personally but every time I see an “autism mom” post about her kid especially when using her or their real name and/or while including un-redacted photos, I seethe. It’s so not ok to take their privacy before they’re old enough to understand the ramifications. #AutChat |
| The Weirdos Are Out 🦇 @weirdosareout @autchatmod A1: before ASD i was diagnosed with ADHD since i was a kid and I am not private about it at all. I would much rather have an easy explanation for how i function. it's just like easier for me to communicate if someone else has an idea of where i am coming from. #Autchat |
| Helen Rottier @helenrottier RT @Saraheboon: A1: |
| Helen Rottier @helenrottier RT @QuartzDisc: @autchatmod A1: @autchatmod A1: Not me personally but every time I see an “autism mom” post about her kid especially when using her or their real name and/or while including un-redacted photos, I seethe. It’s so not ok to take their privacy before they’re old enough to understand the ramifications. #AutChat |
| #AutChat mod @autchatmod Q2: Is privacy important to you? Why? What has happened as a result of privacy violations? What do you worry might happen (for you or others)? #AutChat |
 | Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Hello, I am Solveig! It *WAS* sunny, and I *WAS* going to go outside to enjoy the sun.... But it started raining the moment I set foot outside. OOPS. #AutChat A0 |
| Helen Rottier @helenrottier RT @Saraheboon: A2: |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Always. So often that it does not always occur to me that I have rights to privacy. Has someone else's privacy been violated? Yes, in very profound ways.... it's been extremely painful for the two of us. #AutChat A1 |
| The Weirdos Are Out 🦇 @weirdosareout @autchatmod A2: While i would much rather be public about ASD, I am worried that people will stop at stigma. I'm worried that people would be uncomfortable and not know how to interact or feel like it's too much work and not want to have to "explain how to be friends" in a way. #Autchat |
| Ramona @QuartzDisc @autchatmod A2: Extremely. I’m disabled and find that people often infantilize those who are ND and/or disabled, including sharing their private medical info out of “worry” or “caring” or “concern.” *shudders* Save me from another’s harmful “concern.” (Don’t want to give details.) #AutChat |
| Ramona @QuartzDisc @autisticb4mmr You jinxed it. 😂 #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @QuartzDisc So here's what happened. I always leave with an umbrella. Any time I decide to leave home without it, it rains. Today, since it was so sunny, I tried to leave without it. My fault. 😔 #AutChat |
| Ramona @QuartzDisc @autisticb4mmr That has happened to me. #AutChat |
| #AutChat mod @autchatmod Q3: Have you ever been in a position where you had to share personal details you’d rather keep private, to be believed about something neurodivergence-related? #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Yes. I'm transgender, but I am not out yet. I mean, I am on Twitter, but not offline. Additionally, for a multitude of reasons, being autistic gives me reasons for privacy to be important. Not everyone is so accepting of who I am, or what my needs are. #AutChat A2 |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr In school environments, my status of being autistic is something I keep hidden until I know I can trust a professor. I have had many educators try to force me out of classrooms because of their preconceived notions about autism, and never gave me a chance to thrive. #AutChat A2 |
| Ramona @QuartzDisc @theoriesofminds @autchatmod Very true. #AutChat |
| The Weirdos Are Out 🦇 @weirdosareout @autchatmod A3: It's opposite for me. A lot of the time I feel like I am desperate to explain myself and have people understand why I do something. Rather than having them invading my privacy to find out, I feel like I'm screaming into a void where no one is listening #Autchat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I have relatives who are TERFs, vote for bad people, are pro-ABA, and do not think autistics have the ability to make our own decisions and do the right thing. They are the "we communicate for them because they cannot" kind of people. I don't tell them everything. #AutChat A2 |
| Ramona @QuartzDisc @autchatmod A3: Yes. When having to apologize/explain why I don’t understand something they’re saying or why I did something or why I have stim toys or... I sometimes don’t mine but other times, I’m so resentful. #AutChat |
| Ramona @QuartzDisc @autchatmod *mind. Lol #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @subtlykawaii I had fears about coming out to people partially for this reason. I was not convinced that people would take me seriously. #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @Saraheboon Ah yes -- this is definitely another aspect of privacy. I do a lot of heavy masking when I am inn certain environments, and have very few places where I feel safe to be myself. Though I think there's only maybe one or two places I feel safe being 100% myself. #AutChat |
| #AutChat mod @autchatmod Q4: What can people do to better respect your (and others’) privacy? #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @theoriesofminds @autchatmod There's a TV news story about me. It's very hard to find -- I do not think you could google it, even with my full legal name, and find it. They interviewed me, but mostly my parents, about an accomplishment of mine. They talked a lot about my toilet training. 😣 #AutChat |
| The Weirdos Are Out 🦇 @weirdosareout @autchatmod A4: Ask all the questions, just even if you think you don't need to ask, ask. Even if it sounds like a dumb question, ask. And respect the answer if someone says no. #Autchat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @theoriesofminds @autchatmod I mean... imagine. Reporter: Solveig won a major award. Solveig's parents, they must have overcome a lot. Parents: Yes. Toilet training was hard. Reporter: I see. Let's talk more about toilet training. Me: ... 😣 #AutChat |
| Ramona @QuartzDisc @subtlykawaii @autisticb4mmr I’m not trans but I just don’t understand that attitude. How does it matter to anyone *IF* autistics don’t “know.” If a person is happier/more fulfilled as another gender or in my case, sexuality, for ANY reason, what does it matter to anyone else, including a doctor?? #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @theoriesofminds @autchatmod OMG I wish you could buy copies of "Helping Hands" by @ActualA_tistic -- it was so profound, and SO VERY MUCH ON POINT WITH THIS CHAT. I mean, I'm certain they'll have other productions you should see, and Helping Hands was streamed online. #AutChat |
| Ramona @QuartzDisc @autchatmod A4: Don’t share what’s going with me with anyone; that’s for me to share, plus you don’t know my boundaries (who I would share what with) like I do. Don’t expect me to explain things just because you “want to know.” Don’t mock me when I talk about any kind of privacy. #AutChat |
| Ramona @QuartzDisc @subtlykawaii @autisticb4mmr Not just happier/more fulfilled, but more *our/themselves.* Ran out of characters and forgot to add this on. #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Remember that I am a human being. Send tweet. #AutChat A4 |
| #AutChat mod @autchatmod Next Sunday’s #AutChat is on relationship to language. Sun Feb 23, 1pm Pacific / 4pm Eastern / 9pm UTC/GMT. https://t.co/vlPvl48hMV If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them. |
| #AutChat mod @autchatmod The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times! |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:aba] OH!!!! It's important to note that a lot of our therapies are based on getting us to throw away our boundaries, and this is not healthy. Compliance-based training that has us ignore our discomfort makes it harder for us to protect our privacy. #AutChat A4 |
| #AutChat mod @autchatmod Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/QrdW2dQuN0 Every topic we've ever run: https://t.co/F56bZKG5Jo We're happy to rerun past chats we haven't revisited in a while. |
| #AutChat mod @autchatmod Reminder: We create weekly transcripts of #AutChat using Wakelet, and post them to our website. We also link to them from our Facebook and Twitter accounts. To be excluded from transcripts, DM us. |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr You know... part of respecting our privacy means not telling our story for us all the time. When we are able to tell our own stories, we tell them more accurately. "Own voices" is important for us, too. So help us learn how to tell our own stories. #AutChat |
| Ramona @QuartzDisc RT @autisticb4mmr: You know... part of respecting our privacy means not telling our story for us all the time. When we are able to tell our own stories, we tell them more accurately. "Own voices" is important for us, too. So help us learn how to tell our own stories. #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @theoriesofminds @autchatmod This is something that is covered in the USA with the ADA Amendments Act. I'm thinking about the section on employment, but I think there might be talk of it in other places. Accommodations that are easily given, should just be given, no proof of disability needed. #AutChat |
| Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @theoriesofminds @autchatmod Like, this is written into USA law, and not just my opinion. The ADA is supposed to be as inclusive as possible, and make it as easy as possible to secure accommodations as possible. #AutChat |
 | Katherin Brown @SphericalCubes RT @autisticb4mmr: In school environments, my status of being autistic is something I keep hidden until I know I can trust a professor. I have had many educators try to force me out of classrooms because of their preconceived notions about autism, and never gave me a chance to thrive. #AutChat A2 |
#autchat content from Twitter.