#autchat Transcript

Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.

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#AutChat mod @autchatmod
Welcome to #autchat, a weekly chat for autistic & similar people Sundays 9pm UTC/GMT / 4pm EST! https://t.co/rRrhi8Ysri #autchat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW
#AutChat mod @autchatmod
#autchat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar.
#AutChat mod @autchatmod
#autchat posts transcripts of the weekly chats; please tell @autchatmod if you don’t want your tweets included. For announcements and weekly questions, follow this account. Reply here to receive reminder tweets.
#AutChat mod @autchatmod
How to participate in #autchat and other twitter chats: https://t.co/SkuXgvACRk
#AutChat mod @autchatmod
Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#autchat" so others see them!   Quick reference for this week's #autchat questions (please wait till they're tweeted to answer):  https://t.co/9TLVNWnaIm
#AutChat mod @autchatmod
Q0: Introduce yourself—say anything you like about yourself or your interest in #autchat or in today's topic: Coping with grief.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Hello, I am Solveig! Warning to followers that today's #autchat may be triggering depending on what's discussed. Be safe 💖 https://t.co/RF6AOz7Vbt
#AutChat mod @autchatmod
Q1 What kinds of grief have you had to deal with? Share as much or as little as you’re comfortable with. Some examples: Death in the family; death of a pet; grieving after a diagnosis; a major job-related disappointment. #autchat
Aria Sky @mamautistic36
A0: Aria Sky, Autistic USian mama, musician, writer, etc. I'm going to do my best to participate in #autchat today. Still struggling with communication, it's been hard work lately more than usual. Might not check notifications until later. https://t.co/SXpkZQ6LPg
Aria Sky @mamautistic36
"Coping with Grief" #Autchat today. https://t.co/RWdWfjwxgq
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@endeverstar I am glad they are helpful! 😸 #autchat
Northern. @TheMainstand
#Autchat A1 About 10 years ago, over 2 years, my cat , my uncle, my dad, and my mum died.
Aria Sky @mamautistic36
CW: Various losses causing grief A1: Loss of trust after being lied to, sudden loss of friends for unknown reasons, my favorite grandparents' deaths, deaths of many pets, multiple miscarriages, & unexpectedly finding out that we had no food money. #Autchat https://t.co/MykvqtArmP
#AutChat mod @autchatmod
Q2 Are there ways you cope with grief differently from neurotypical people? Similarly? Do you think there are advantages/disadvantages in how you cope with grief? #autchat
Alice’s Nightmare, DNP, NP-C @AliWonderHell
Q0 I am Alice. My primary interest is trying to connect with a world that makes sense to me finally (autistic). Grief is one of the major themes of my family. Five years ago, this family of autistics lost one of our own. He would have turned 16 this spring. #autchat
Alice’s Nightmare, DNP, NP-C @AliWonderHell
Q1. I am a Hospice nurse. I live the grieving process professionally because I lived it personally. Of all that I have lost, my son’s death changed me and all of my family. Elijah was 10. #autchat
Northern. @TheMainstand
#Autchat A2 Bereavement is bigger than autism/nt. It affects people completely, and any and all reactions are acceptable. Personally, I was very close to my emotions, I cried everyday for weeks. Other people didn't, they stored it up.
Aria Sky @mamautistic36
A2: Yes. I tend to be very level-headed at first and it can often take me weeks or even months to realize that I'm grieving or remember why. I've written in my blog about some of the other differences I've noticed: https://t.co/tCw2VujhaN #Autchat https://t.co/NyAPPIRQzc
#AutChat mod @autchatmod
Q3 Have you run into criticism or conflict with others in how you cope with grief? #autchat
Aria Sky @mamautistic36
The not showing many outwards signs (at least not that allistics/nonautistics) can easily recognize as grief is a big part for me. #autchat
Aria Sky @mamautistic36
A3: Yes! Very much. I've mainly been accused of not grieving enough or at all. For acting as though I "don't even care" when I actually care deeply. I gave more details about those situations in my blog post about grieving (linked in A2). #Autchat https://t.co/6E3EDk721d
Aria Sky @mamautistic36
A1: Oh, 9/11 was a big one. It was during my freshman year of college and I was very far away from my family (a couple thousand miles). Was a horrible time in general. #autchat
Northern. @TheMainstand
#autchat A3 , not that I know of. Usually bereavement and grief is an area where different reactions are acceptable.
Jigme Datse Yli-Rask @datsemultimedia
A0: #autchat I'm Jigme, and I'm not sure what to say here. I am autistic, and have enough experience with dealing with grief. I seem to "do it differently" though I don't really know about that. I just think I need to look at this somewhat. https://t.co/p6YyC52h5V
Aria Sky @mamautistic36
@theoriesofminds @autchatmod Looking back, I'm extremely thankful I had an obvious illness on 9/11 and the day or two following because I probably avoided some of the grieving social expectations. It was far more socially acceptable for me to hide in my dorm room! #autchat
Aria Sky @mamautistic36
@theoriesofminds @autchatmod Oh! Yes. Going through practical aspects of what needs to happen next now that *insert grief-inducing occurrance* has happened is a huge part of my immediate reaction. #autchat
#AutChat mod @autchatmod
Q4 What has been helpful to you in coping with grief? #autchat
Aria Sky @mamautistic36
A4: Researching. All the things. Usually I go into deep researching mode about everything relating to whatever has happened. Then if it's a shared grief I can offer informational support to others, which can smooth social occasions a bit, but it mainly helps me. #autchat https://t.co/uR3eCMXqrB
Northern. @TheMainstand
#autchat A4 Firstly, I'm only answering with respect to bereavement I experienced. A teddy bear, not a significant one, but it helped. Booze and drugs didn't help at all. Other people expressing their thoughts and feelings, even almost strangers, helped
Aria Sky @mamautistic36
A4.2: Sleeping extra can help too. Being around people who expect me to talk about my feelings is usually a horrible ordeal (I have no words for my feelings most of the time - especially not immediately upon or soon after feeling them). #autchat
Heather Ure @riotheatherrr
RT @autchatmod: Q4 What has been helpful to you in coping with grief? #autchat
Aria Sky @mamautistic36
A4.3: So, avoiding other people is often important when I'm processing and/or grieving. #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
[cn:ableism] Honestly the one thing I have been grieving mostly is being told I can't go to public school because I'm autistic. #autchat A1 https://t.co/p0SoqBEynh
Jigme Datse Yli-Rask @datsemultimedia
CW: Death stuff (some related stuff too) A1.0: #autchat This probably comes up as a lot of different things. My sister's husband took his own life, two dogs in my life have died (one found dead, the other "put down" in old age), multiple family members have died. https://t.co/JdM9dDbdmv
Aria Sky @mamautistic36
These are all very helpful for me too! Not necessarily running specifically, but physical activity in general. Walking through the woods with a book is a particularly good combination for me 💜✨ #autchat https://t.co/f3rY72pXfW
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
[cn:death,loss of pets] I could go on all day about this but will not. Tho I also suffered the loss of grandparents and 2 cats #autchat A1
Heather Ure @riotheatherrr
Whoops, I forgot the HT. #autchat https://t.co/1HcE9DpShk
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I can't talk about things right away. I can't ever. Like, you'll ask me what's wrong and I'll say idk when I really do. #autchat A2 https://t.co/TqJDuz3dFf
Jigme Datse Yli-Rask @datsemultimedia
A2.1: #autchat I think that outwardly people don't see the emotion that I am feeling. The feelings are there. Also one thing that I have found is rather different with me has been that I really don't do the "don't speak ill of the dead" part, and I think that annoys many people
Jigme Datse Yli-Rask @datsemultimedia
A2.0: #autchat This is hard to say. I think from the outside it can look very different. I have been taught how "weak" it is to cry and that sort of thing, and often told that I shouldn't say emotional stuff. So I think on the outside it looks very different. https://t.co/js89kOeImQ
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I'll want to play games or tell jokes or do other things and then come back to my grief later. #autchat A2
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
It's in my IEP that I get goofy and silly when I'm stressed out and it is true. There is an element of hyperactivity too #autchat A2
Jigme Datse Yli-Rask @datsemultimedia
A3.0: #autchat I seem to have run into "conflict" in the sense that no one will really talk to me. But then again, no one talks to me most of the time anyway. So I don't know that it's "grief" related. It makes some of the grieving process a lot more difficult. https://t.co/dfl65qNDVc
#AutChat mod @autchatmod
The scheduled #autchat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times.
#AutChat mod @autchatmod
Next Sunday’s #autchat is on gender identity. Sun Feb 25, 9pm UTC/GMT / 4pm EST. If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them to participate. (Neurotypical people are welcome to read along!)
#AutChat mod @autchatmod
We'll also be posting chat reminders and storifys to our Facebook page: https://t.co/nFxb0YPhhD #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@theoriesofminds @autchatmod This this this!!! Me too! It takes me longer to process emotions, and trying to get me to confront them early triggers shutdowns #autchat A2
#AutChat mod @autchatmod
We're looking for volunteers who've attended 2+ #autchat chats to help write q's on: • Motor differences • Echolalia • Flirting • Co-existing sight or hearing issues • Personality disorders • Psychosis • Coping in careers that aren’t stereotypically autism-friendly
Jigme Datse Yli-Rask @datsemultimedia
A4.0: #autchat I find that I need to talk about stuff, or write about stuff. I think that is a common thing. But it seems like we really don't want to talk about how we are dealing with grief in this society. "Just get over it" seems to be the message. https://t.co/hSMfWi4qv6
#AutChat mod @autchatmod
If you have personal experience with one or more of these, and are interested in helping write questions but aren't sure how to go about it, we can help. Reply or DM if interested (we might take a day or so to respond) #autchat https://t.co/uDaoqkdXK1
Northern. @TheMainstand
#autchat Thanks for the opportunity to talk. I am reading all the chat
Alice’s Nightmare, DNP, NP-C @AliWonderHell
#autchat A3. There is an interesting dichotomy to this question. I was warned by social workers and therapists that most would abandon us for not “getting over it” in the second year of our grief. My ex and his flying monkeys target my grief process to call me crazy
Why? Why Not? @BehindThisLens
RT @autchatmod: We're looking for volunteers who've attended 2+ #autchat chats to help write q's on: • Motor differences • Echolalia • Flirting • Co-existing sight or hearing issues • Personality disorders • Psychosis • Coping in careers that aren’t stereotypically autism-friendly
Heather Ure @riotheatherrr
RT @autchatmod: We're looking for volunteers who've attended 2+ #autchat chats to help write q's on: • Motor differences • Echolalia • Flirting • Co-existing sight or hearing issues • Personality disorders • Psychosis • Coping in careers that aren’t stereotypically autism-friendly
#autchat content from Twitter.