#autchat Transcript

Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.

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#AutChat mod @autchatmod
Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 9pm UTC / 9pm GMT / 4pm EST! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW
#AutChat mod @autchatmod
#AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar.
#AutChat mod @autchatmod
We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site.
#AutChat mod @autchatmod
Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: This Sunday's #AutChat will be on shutdowns. Feb 17, 9pm UTC / 9pm GMT / 4pm EST. You can view questions ahead of time here: https://t.co/YbrdZ2NzWL #ActuallyAutistic
#AutChat mod @autchatmod
For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk
#AutChat mod @autchatmod
Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see them! Please capitalize it as #AutChat to make it more accessible to screenreaders.
#AutChat mod @autchatmod
Quick reference for this week's #AutChat questions (please wait till they're tweeted to answer): https://t.co/YbrdZ2vZ5d Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic, shutdowns.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 9pm UTC / 9pm GMT / 4pm EST! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: #AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk
Dr. Alyssa @yes_thattoo
A0: I'm a 26 year old autistic graduate student and I shut down more than I melt down. #AutChat
#AutChat mod @autchatmod
Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat
#AutChat mod @autchatmod
Q1: Do you have shutdowns? What is a shutdown like for you? #AutChat
pink proletariat @pinkproletariat
RT @autchatmod: Shutdowns are sometimes described like meltdowns, but turned inward: Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
FYI I participate in #AutChat by doing a search on the hashtag. When I tweet from the search results, it will automatically include the hashtag in my tweets. If I remember to do the search capitalized like #AutChat, then the tweets come out capitalized, too.
Dr. Alyssa @yes_thattoo
I do it that way too! #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I am Solveig, and I experience a lot of shutdowns... though it feels like they're decreasing in frequency. Which TBH is pretty nice. #AutChat
#AutChat mod @autchatmod
Useful info for ensuring you include the #AutChat tag and also capitalize it for screenreader accessability.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Test post -- I want to know if I can get my device to automatically capitalize #AutChat for me. The answer is yes. I can. If you've got iOS, here's what you do: General > Keyboards > Text Replacement In Phrase, write #AutChat In Shortcut, write #autchat That will fix tags.
#AutChat mod @autchatmod
Also, if you forget the tag, you can retweet your own tweet and add the tag, like this. #AutChat
Dr. Alyssa @yes_thattoo
A1: Yes. I'll get stuck, I'll be distressed and not be able to figure out how to address it or even necessarily what's wrong. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Yes, I hav shutdowns. What are they like? I think it depends on what causes the shutdown. But I get sensory overload shutdowns that feel like a ton of pressure on me from everywhere. I'll get trauma-induced shutdowns that have me staring off into space... #AutChat A1
#AutChat mod @autchatmod
Q2: What triggers a shutdown for you? If you also have meltdowns, are the triggers the same? Different? #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
But my shutdowns all involve going nonverbal. And they sometimes involve people asking me what’s wrong, and I can’t tell them. #AutChat A1
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
RT @autchatmod: Also, if you forget the tag, you can retweet your own tweet and add the tag, like this. #AutChat
A. J. Sass SAYGAY (he/they) @matokah
@Everthecrafter So relatable. I had meltdowns a lot more as a kid. Now I’ve noticed they only occur when I actively can’t get away from a stimulant that overwhelms me. Meltdowns can be a one-off due to unexpected overwhelm. Shutdowns tens to relate more to a gradual build-up. #Autchat
Kassiane @UVGKassi
A0. I'm kassiane, 36, diagnosed at 3. Also epileptic, ADHD, &have CPTSD. I cant find the actual question I'm sorry #AutChat
Dr. Alyssa @yes_thattoo
A2: Any kind of overload can cause a shutdown, as can a last-minute schedule change (especially if I try to work in the time slot a cancellation theoretically freed.) #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I get shutdowns from sensory overload. I will also get shutdowns from when people will ask me lots of questions or ask me to do lots of things in super fast pace, and I can't keep track of what's being said or done. #AutChat A2
Dr. Alyssa @yes_thattoo
A2: The causes for melt vs. shut-downs are similar for me, but if the cause *keeps going* after I've shut down I'm more likely to "explode" with the meltdown. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
The triggers for meltdowns are different. I think meltdowns come when my coping mechanism systems and objects stop working or go missing. Like if I can’t find my phone or keys or something vital that I need to get through the day. #AutChat A2
Dr. Alyssa @yes_thattoo
@mindtheflap A1: I definitely do that! Also "I thought I was going to come home and do reading for grad school, but nope. /flop" #AutChat
Dr. Alyssa @yes_thattoo
@Anne_typist Too aware, sometimes? Because my sensory stuff bothers me way more when I'm already shut down #AutChat
#AutChat mod @autchatmod
Q3: What else helps you during a shutdown? What makes shutdowns worse? #AutChat
Dr. Alyssa @yes_thattoo
@Everthecrafter @Sarahmarieob Yes I love the fight or flight. I tend to shut down (flight or maybe freeze) but if flight is cut off I'm more likely to fight. #AutChat
Jae Casper @theamazinj
@autchatmod Hi!! I am a graduate student in my last semester. I shutdown sometimes. I struggled in the past with meltdowns, but have come a long way to work out scenarios much better. I am still work in progress like everyone else is. I also enjoy painting and film. #AutChat
Dr. Alyssa @yes_thattoo
A3: Time, mostly -- I've got to wait the shutdown out. If someone I trust can help me get to a quiet place and arrange for food that is also good. #AutChat
Dr. Alyssa @yes_thattoo
@endeverstar Yes, if you're a person I trust, please help me get home if I shutdown away from home! #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@endeverstar @yes_thattoo @mindtheflap Ahh my problem is I will say "It has been a long day, I must now sleep..." Then I will get home and stare into space instead of actually sleeping. #AutChat
Jae Casper @theamazinj
@autchatmod Yes, this is an important distinction to make. #AutChat
Dr. Alyssa @yes_thattoo
@autisticb4mmr @endeverstar @mindtheflap I also do the this and it is a not great #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
AAC will help me during some meltdowns. If I can just decide to stop talking altogether, and if my environment allows me to do that, that's ideal. But when people get too aggressive about trying to help me and understand what's going on, that is hard. #AutChat
Tiara ☀️🌻☀️ @Tiara_Princess7
RT @autchatmod: Shutdowns are sometimes described like meltdowns, but turned inward: Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat
Ava Gurba (she/her) @Ava_Nicole23
A0 hi my name is Ava I'm currently an undergraduate almost graduate student studying neuroscience with ASD. I experience both shutdowns and meltdowns, but I think I have meltdowns more frequently #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Something important I’ll add. Some people will think that making physical contact will be helpful. It is and it isn’t. So if someone takes my hand and holds it, it’ll make the shutdown worse. If they invite me to hold hands, and I accept/initiate, that’s helpful. #AutChat A3
Ava Gurba (she/her) @Ava_Nicole23
@yes_thattoo It's the same for me too, but I think I meltdown first and then the shutdown happens at the last straw #AutChat
#AutChat mod @autchatmod
Q4: How do other people respond when you have a shutdown? What could they do to be more helpful? #AutChat
Tiara ☀️🌻☀️ @Tiara_Princess7
RT @Anne_typist:
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Something I'm thinking about is that I very rarely melt down in public. So for me, meltdowns and shutdowns are almost always equally invisible. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@Anne_typist @autchatmod Yes, this whole list applies to me, too! #AutChat
Jae Casper @theamazinj
@autchatmod A1: shutdowns can happen when I become overloaded & confused I just cannot communicate whatsoever. It can get frustrating & people around me may have to stay away from me. I Iike to stay focused to avoid Being all over the place cause that’s when stuff happens. #AutChat
Dr. Alyssa @yes_thattoo
A4: So many people can't read me at all and therefore act like normal. If normal means interacting with me and asking me to do stuff, this is going to be a problem. #AutChat
Dr. Alyssa @yes_thattoo
A4: Ideally, leave me the heck alone. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Okay... here's what can help me in a shutdown. Please give me one or more of the above: Hot tea Food Stuffed animal Blanket My bag Fidgets Soft chairs or sofas are nice And don't make me respond to stuff. At least nothing beyond a head nod for yes or no. #AutChat A3
Tiara ☀️🌻☀️ @Tiara_Princess7
@autchatmod A4: They say that I look scared due to my staring and lack of expression. They shouldn't comment on my staring or my lack of observation of what is going on around me. I am tired and overwhelmed and don't like to observe things around me during shutdowns. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@willaful @Everthecrafter @mindtheflap I tweeted something about shutdowns, and I got in a lot of trouble because of it. :( I basically said "The trouble with shutdowns is that you can't tell anyone you're in shutdown, because you're in shutdown." And then I got told off for not saying something about it! #AutChat
Dr. Alyssa @yes_thattoo
@willaful @endeverstar @autisticb4mmr I *might* be able to handle yes/no with head nods, and I *might* be able to do more with access to typing, but if it can possibly wait it should and even if it can't it might have to. Decidey part may be broke #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
A lot of my shutdowns come from when people place lots of demands on me, like when they need me to answer questions faster and louder, and I can't, no matter how hard I try. It would be helpful if people didn't always insist I "just speak up" because I can't. #AutChat A4
#AutChat mod @autchatmod
The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times!
#AutChat mod @autchatmod
Next Sunday’s #AutChat is on service dogs/emotional support animals. Sun Feb 24, 9pm UTC / 9pm GMT / 4pm EST. Questions TBA. https://t.co/9ZsqWd8orz If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them.
#AutChat mod @autchatmod
Reminder: We create weekly transcripts of #AutChat using Wakelet, and post them to our website. We also link to them from our Facebook and Twitter accounts. To be excluded from transcripts, DM us.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4
#AutChat mod @autchatmod
Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/QrdW2e85Ey Every topic we've ever run: https://t.co/F56bZKXGAW We're happy to rerun past chats we haven't revisited in a while.
Dr. Alyssa @yes_thattoo
RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4
Mykki is Writing @OnTh3Cusp
RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4
Heather Ure @riotheatherrr
RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Also... If I don't want to talk, don't take put personally. If I want to be alone, don't take it personally. Sometimes you've gotta wait it out. I'll come back and usually be my cheerful self in the end, if I'm given enough space. #AutChat A4
#autchat content from Twitter.