#autchat Transcript

Healthcare social media transcript of the #autchat hashtag.
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#AutChat mod @autchatmod
Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 1pm Pacific / 4pm Eastern / 8pm UTC/GMT! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW
#AutChat mod @autchatmod
#AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar.
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 1pm Pacific / 4pm Eastern / 8pm UTC/GMT! https://t…
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: #AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral…
#AutChat mod @autchatmod
We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site.
#AutChat mod @autchatmod
Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us.
#AutChat mod @autchatmod
For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvj1ZM
#AutChat mod @autchatmod
Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see them! Please capitalize it as #AutChat to make it more accessible to screenreaders.
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of not…
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see…
#AutChat mod @autchatmod
Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic, process of getting a formal diagnosis. Quick reference for this week's #AutChat questions (please wait till they're tweeted to answer): https://t.co/4VUiYomfp4
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic, process of g…
Bill Wong, OTD, OTR/L @BillWongOT
Hello folks! #autchat
Tuttleturtle @tuttleturtle42
A0: Oh hi #AutChat has told me it's Sunday. That's like, time.
Sarah Boon 🇪🇺 @Saraheboon
Q0: Hello #AutChat I’m here back again to talk about diagnosis this afternoon/tonight!
theories of minds @theoriesofminds
@autchatmod A0 Hi all! I'm a writer and #AutChat mod and I have just given myself my first quarantine haircut. It turned out not terrible! I got diagnosed a number of years ago, and thought I had the paper work and didn't. I recontacted them recently & they'd already purged their records.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Hello, I am Solveig! I can be here for a short while, but then have to attend a Zoom meeting. I am formally diagnosed, but my diagnosis process was quite intense. #AutChat A0
theories of minds @theoriesofminds
@autchatmod A0 I was considering going back to work (and still am), and if I do I will probably want to ask for some accommodations. So I might, at some point when we can all go and do things, need to go through the process again. #AutChat
#AutChat mod @autchatmod
Q1: If you have been formally diagnosed, when was it and what age? If not formally diagnosed, are you considering it? #AutChat
Speech Autist @SKP_SLP
#AutChat Hi all! I'm impressed with how regularly I've been able to attend these things now that I'm stuck at home all the time.
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Q1: If you have been formally diagnosed, when was it and what age? If not formally diagnosed, are you considering it? #AutC
HighFunctioningAutistic @AutisticHigh
@autchatmod #AutChat Q0: Hello! Newly diagnosed adult female with high functioning autism. Excited to finally find my tribe! #ActuallyAutistic #autism #ADHD
theories of minds @theoriesofminds
@autchatmod A1: It was suggested to me by a therapist at age 29 (11 years ago) and I saw someone for a formal assessment the following year. #AutChat
Bill Wong, OTD, OTR/L @BillWongOT
@autchatmod A1. This is almost 10 years ago, as I was diagnosed in August 2010. #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I was formally diagnosed when I was seven years old. #AutChat A1
Jay Genesis 🏳️‍🌈 @gndrqr98
A0: This one is a weird one for me.
HighFunctioningAutistic @AutisticHigh
@autchatmod #AutChat I was diagnosed 2.5 weeks ago at the age of 47. #AutismAwareness #autism
Project Homesick for Israel 🇮🇱 @project1enigma
A0 #AutChat hi! I might vanish soon for dinner but a bit... > 40 years old nb trans woman, plural'ish, Autistic, EDS/MCAS :) more recently returned to mostly walking instead of wheeling.
Speech Autist @SKP_SLP
#AutChat A1 I'm 33 and I got my formal diagnosis a little more than a year ago. I'd figured out I was autistic about 2 years earlier.
Sarah Boon 🇪🇺 @Saraheboon
A1: I was diagnosed at 24. Although I’ve been through the diagnostic process 3 times at age 4, 5 and 24. #AutChat
Stephanie Melnick @StephMelnick96
A0: Oops forgot about this. Stephanie, 23, Scottish asexual autistic, sci-fi and fantasy geek, can do this again now it's back at 9pm for me. Was diagnosed at 12. #AutChat
Glasgow Watch @Glasgow_Watch
RT @StephMelnick96: A0: Oops forgot about this. Stephanie, 23, Scottish asexual autistic, sci-fi and fantasy geek, can do this again now it…
#AutChat mod @autchatmod
Hi all! Reminder to tag your tweets with #AutChat so folks can see them on the tag.
Jay Genesis 🏳️‍🌈 @gndrqr98
a1: i *tried* in 2018/2019 at age 19/20. i don't want to try again.
Stephanie Melnick @StephMelnick96
A1: At the age of 12, almost 13 in 2009. So quite a while ago now. I was on a waiting list for a couple years beforehand. #AutChat
Project Homesick for Israel 🇮🇱 @project1enigma
A1 #AutChat self dx'ed in 2015 and enlisted for formal dx a few months later, provisional formal dx autumn 2015, more thorough one towards end 2016. Still I believe #SelfDxIsValid!
Andrew Morris @andrewmorrisuk
RT @AutisticHigh: @autchatmod #AutChat I was diagnosed 2.5 weeks ago at the age of 47. #AutismAwareness #autism
Project Homesick for Israel 🇮🇱 @project1enigma
RT @autchatmod: Hi all! Reminder to tag your tweets with #AutChat so folks can see them on the tag.
Carrie Hall is for #AutismAcceptanceMonth @CarrieHall1001
@autchatmod A1: I was formally diagnosed at age 44 #AutChat
Project Homesick for Israel 🇮🇱 @project1enigma
Soon #food so... perhaps cu later dear #AutChat people.
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Hi all! Reminder to tag your tweets with #AutChat so folks can see them on the tag.
#AutChat mod @autchatmod
Q2: If you actively sought a formal diagnosis, or are seeking one, what was/is the process like? #AutChat
Tuttleturtle @tuttleturtle42
A1: I got paperwork saying I'm autistic in 2011, just after college. I had known I was autistic for about a decade at that point, but hadn't had it formally written down. The formal diagnosis was a necessary formality. #AutChat
Tuttleturtle @tuttleturtle42
Previously there was either professionals saying "don't bother for someone like Tuttle", getting accommodations through different diagnoses, a completely nonsense evaluation which actively lied about me, things of that sort. Life made it so that diagnosis was required #AutChat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Q2: If you actively sought a formal diagnosis, or are seeking one, what was/is the process like? #AutChat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod #AutChat A0: Hello! Adrian here. I'm 61, referred for dx just over 2 years ago, so keen to chat with others - diagnosed & awaiting dx & undiagnosed.
Speech Autist @SKP_SLP
#AutChat A2. Short answer? It was really terrible.
Stephanie Melnick @StephMelnick96
A2(cont): Because I went to primary school in Glasgow, I was referred to all the Glasgow services. But I lived in East Renfrewshire and went to secondary there. Cause I was still in the process, this change meant it was delayed for like two years. #AutChat
Stephanie Melnick @StephMelnick96
A2: I personally didn't, but my parents did and I know a lot about what they did: basically, the teachers recommended it at my primary school. But I went to high school in a different local authority and during the transition things got complicated. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
So by the time I was diagnosed, the superintendent of public schools already said I was not allowed to attend, and he knew this was illegal, but my parents couldn't sue. I went to tons of specialists. We did not have many (or any?) autism specialists nearby. #AutChat A2 <1/?
Bill Wong, OTD, OTR/L @BillWongOT
@autchatmod A2. I was one of the lucky ones. I got screening from university's clinical psychologist. Then, I lucked out into getting someone who can get the assessment + report done within a month while not needing to pay much in the process. I am aware that others are not as lucky #autchat
Sarah Boon 🇪🇺 @Saraheboon
A2: Emotionally draining. There is more than one way to start the diagnostic process in the UK, so figuring out the best way for me took time. Also it was hard being paitent when waiting for diagnosis #AutChat
Speech Autist @SKP_SLP
#AutChat A2 Long answer: a very long waiting list. Difficulty finding someone who understood that autism looks different in adult women who mask. My truthfulness was called into question multiple times during intake and the written report on my first eval. (1/?)
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Most of the trips I remember were to a speech therapist and a ... I had the correct word, but it's gone. Someone else. We had puzzles like tangrams and stuff that helped them to figure things about me. These were the good ones, and the visits were productive. #AutChat A2 <2/?>
Milla 😘😘💕💕 @subtlykawaii
Q1) I was diagnosed when I was three - which is very young for an autistic person. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I learned not to trust any doctor/therapist/professional who did not have toys. If you're working with kids and you don't have toys, please either get toys or stop working with kids. IDK... I'm 37 and still think this is true. #AutChat A2 <3/?>
Jay Genesis 🏳️‍🌈 @gndrqr98
a2: i did it when i still lived in germany i sought help for anxiety and asked my therapist if they also do autism diagnoses, he said all they can do is test me and give me a general direction, so that's what i did. at the same time i was also put on a waiting list for #autchat
Speech Autist @SKP_SLP
#AutChat A2 Evaluator was rude and judgmental. Told me autism is only for people who have intellectual delays. Accused me of faking "in order to avoid making an active commitment to relationships." Set me back years of therapy for anxiety and self-gaslighting.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
[cn:ABA,institutionalization] Anyways, one neurologist with no toys spent less than five minutes with me, and decided I should be institutionalized. So there were people like that. Then there were the bad ABA people. So there were good and bad professionals. #AutChat A2 <4/?>
Speech Autist @SKP_SLP
#AutChat A2 My therapist, a PsyD who had known me for 6 years, read the report and said it was BS. We went through the DSM criteria together and she diagnosed me herself. Should've just asked for that in the first place. (3/3)
Bill Wong, OTD, OTR/L @BillWongOT
@autisticb4mmr although now will be interesting times if you were a kid again. What would you have thought if you have to receive professional services via telehealth? #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
So a lot of this was just my parents making stuff up as we go, and deciding which "experts" to believe. In the end, we did get the autism diagnosis, and a better plan for what to do -- "improve quality of life" was the focus, not finding a cure. I am grateful. #AutChat A2 5/5
Tuttleturtle @tuttleturtle42
A2: The process of getting to an evaluation was awful. Lots of refusing to even think about evaluating someone who could speak, because of saying that a diagnosis wasn't worth anything for someone like that. They would be like, we know this but we won't make it formal #AutChat
Tuttleturtle @tuttleturtle42
Eval itself: Expensive. Insurance was supposed to cover it, but I think that ended up being my parents paid + submitted for reimbursement. If my parents couldn't have afforded that I couldn't have gotten an eval, no matter how necessary it was. #AutChat
Tuttleturtle @tuttleturtle42
Eval description: 3 meetings. First was talking to me + parents about me as a kid. Talked to parents separate from me. Still anxious about that 'cause my parents could have easily told things that aren't accurate in my mind. #AutChat
Tuttleturtle @tuttleturtle42
Second was 4 hours of neuropsych eval. Lots of tests. Lots of treating me like a test subject. Lots of judging me. Lots of but you are so good at all of these things implied, but not said. But mostly just testing, compressed and knowing it'll get over with. #AutChat
Tuttleturtle @tuttleturtle42
My evaluation report absolutely says things about me I think are nonsense. At the same time, I am like, I have paperwork, I can show people and they listen to the professional. It's useful. Its awful how needed it is at times. #AutChat
Tuttleturtle @tuttleturtle42
Third was going over "results". Getting paperwork. Having stuff written down that said I was autistic. Having it written down that I needed accommodations because I was disabled. Documentation. Being able to refer to this. #AutChat
Bill Wong, OTD, OTR/L @BillWongOT
@subtlykawaii I heard age 3-6 is "golden age" for autistic folks getting diagnosed. It's a good time because therapy services are more available to autistic kids than adults, theoretically speaking. #autchat
Bill Wong, OTD, OTR/L @BillWongOT
@tuttleturtle42 I had evaluation that lasted 10 hours. So, they had to break it up over 2 days. #autchat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod #AutChat A1: I was referred just over 2 years ago (at 59 y.o.) following a chat with a GP whilst I was on sick leave with stress & anxiety. "The penny had dropped" around that time; Mrs W had suggested that I might be before but I thought I probably didn't meet criteria. Doh!
Autie - Artificial Autism Intelligence @grhluna24
RT @SKP_SLP: #AutChat A2 Evaluator was rude and judgmental. Told me autism is only for people who have intellectual delays. Accused me of f…
Milla 😘😘💕💕 @subtlykawaii
Q2) My mum sought my diagnosis for me to confirm her suspicions and get me the diagnosis so I could get help. I was too young to consent and also don't remember what happened because I was so young. #AutChat
Bill Wong, OTD, OTR/L @BillWongOT
@tuttleturtle42 when they went over the results, I was able to tell my neuropsych to cut to the chase. They didn't need to spend unnecessary time to go over assessment results about where I laid in different aspects of their assessments. #autchat
HighFunctioningAutistic @AutisticHigh
@autchatmod #AutChat A2:Waited 3mo. to get diagnosed b/c referral providers charge $3000-$6000 - no insurance. Called insurance co for list of in-network providers, waited 6wks for appt., and just got my diagnosis. I still don’t know the cost #autistic #adult #AutismAwareness
theories of minds @theoriesofminds
@autchatmod A2: Mainly the process was stressful, because I'd had so many experiences being misunderstood by therapists by that point that any interaction was stressful. #AutChat
Speech Autist @SKP_SLP
#AutChat A2 My first evaluator refused to talk to other people about what I was like as a kid. She was appalled that my wife had accompanied me to the intake. I wrote a 6-page bulleted list of reasons why I felt I was autistic and she put it aside without reading it.
#AutChat mod @autchatmod
Q3: If you actively sought a formal diagnosis, or are seeking one, is there anything you would have done differently? #AutChat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Q3: If you actively sought a formal diagnosis, or are seeking one, is there anything you would have done differently? #AutC
Speech Autist @SKP_SLP
#AutChat A2 Sometimes I have trouble accepting my therapist's Dx as "formal" even though she is qualified. But I think for verbal adults who mask, long-term getting to know someone is a necessary component of Dx.
Ryan Collis @RyanBCollis
@autchatmod A1: I was diagnosed with a learning disability in grade 5. My teacher told my parents I was too ******ed to amount to anything. In uni I got an LD diagnosis after 2nd year. Wanted a formal autism diagnosis 2 years ago, but at the same time decided to do another degree #AutChat
theories of minds @theoriesofminds
@autchatmod A2: Also, I had to take a bus then the BART then get a carshare car (it was a pre-Uber subscription kind of thing) and drive there and back in heavy traffic. That did not help my stress levels. #AutChat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
this! i have only been dxd in this context rather than like, going to strangers to go through super formal testing, it makes me doubt myself but also like... they know me way better than testers #AutChat
Bill Wong, OTD, OTR/L @BillWongOT
@autchatmod A3. My case would have been- I should trusted my gut instead of my mom. I would have found this out at least 8 months earlier... so that I might not have needed additional time to finish my clinical rotations. #autchat
Jay Genesis 🏳️‍🌈 @gndrqr98
a3: i'd take more notes before so i remember what i'm saying. i'd take more people with me who'd know about my childhood. i'd find a hospital who wouldn't literally forget about me. but there isn't that much i could have done because autism diagnoses for adults are hard #autchat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod #AutChat A2: 1st GP said treatment 4 stress & anxiety would be same anyway (with hindsight🤔hmmm) 2nd GP much more positive but didn't know pathway Fortunately I have some contacts in local vol sector. Got the details, went back & was ref'd Appt was April 8... Temp' postponed
Ryan Collis @RyanBCollis
@autchatmod So that instead became a more general diagnosis for my dyslexia and disgraphia so I could get accommodations. The papers say 'likely' autistic or something, but the testing was already above $2600 and I couldn't do both. #AutChat
Speech Autist @SKP_SLP
#AutChat A3 I would have either 1) questioned clinics more thoroughly about their experiences with adults/women/folks who mask. Not just "do you know it's different" but "tell me specifically how much experience you've had," or 2) just asked my therapist from the start.
Sarah Boon 🇪🇺 @Saraheboon
A3: Done it sooner! (Although I would have needed to work I was autistic earlier in my life) Also if my mother could go back in time, I’m confident she would get a second opinion. When assessed at 4&5, it was by the same doctors #AutChat
Speech Autist @SKP_SLP
@endeverstar #AutChat There are clinical conversations happening about how to identify autism in folks who are good at masking, and I hope this idea catches on, even though I have no idea how it would work in formal evaluation settings.
Save the Neurotypicals @SNeurotypicals
Do you folks know about #AutChat? It's a discussion on a specific topic every Sunday afternoon. You can learn more through this account and follow the Q & A with the hashtag #AutChat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @SNeurotypicals: Do you folks know about #AutChat? It's a discussion on a specific topic every Sunday afternoon. You can learn more thro…
Tuttleturtle @tuttleturtle42
A3: I'd have tried to get a serious evaluation for ADHD alongside, rather than the claiming I was being evaluated, but then it being "well because you did well in school you couldn't have ADHD", with me now years later being ??? I don't know #autchat
theories of minds @theoriesofminds
@autchatmod A3 I'm not sure. Knowing what I know now, I would have described specific accommodations that would help, and followed through on them. But I didn't know what would help me, at the time, and the providers I saw didn't either. #AutChat
Speech Autist @SKP_SLP
@tuttleturtle42 See, I got a Dx of ADHD but not Autism for pretty much that exact reason. Because I did well in school, I couldn't possibly be autistic. #AutChat
HighFunctioningAutistic @AutisticHigh
@autchatmod #AutChat A3: I would have called @Aetna first thing. I wasted time looking at websites with lists of university clinics, etc. I found a great in-network provider because I asked for and got help from @AetnaHelp #autism #adult #AutismAwareness #ActuallyAutistic
Project Homesick for Israel 🇮🇱 @project1enigma
RT @SNeurotypicals: Do you folks know about #AutChat? It's a discussion on a specific topic every Sunday afternoon. You can learn more thro…
Tuttleturtle @tuttleturtle42
@SKP_SLP I found out as an adult that literally every year in school my teachers would ask if I was ADHD, my pediatrician said no, I was bored, and then it was dropped. Nobody evaluated me for anything and it was just always everyone knew I was somehow neurodivergent #AutChat
theories of minds @theoriesofminds
@autchatmod A3 I would especially have pushed harder to be evaluated for auditory processing issues. #AutChat
Tuttleturtle @tuttleturtle42
@SKP_SLP until I ended up in therapy because of how bullied I was where the person said she couldn't help because she didn't know how to work with autistic people. But made a huge deal about how she couldn't diagnose me. And how nobody would diagnose someone like me. #AutChat
#AutChat mod @autchatmod
Q4: For people who are currently considering seeking formal diagnosis – what other questions do you have for people who have one? #AutChat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod #AutChat A3 1\2: ConverseIy to @BillWongOT I wish that I *had* listened to my wife a few years previously. She's an experienced secondary (senior) school teacher & whilst not a specialist had worked with quite a few students with a dx. ... (cont'd)
Tuttleturtle @tuttleturtle42
@SKP_SLP So I went into an autism eval as an adult, knowing i was autistic already, needing it written down for formality, and they claimed they would eval me for ADHD too, and it was entirely because school was the only place my brain could organize itself I couldn't be ADHD #AutChat
Milla 😘😘💕💕 @subtlykawaii
Q3) If I wasn't diagnosed already, I wouldn't get one now. The stigma and ableism that comes with an autism diagnosis means I will face added barriers accessing HRT for my transition. Likewise, if I ever get the chance to, emigrating abroad pernamently down the line. #AutChat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Q4: For people who are currently considering seeking formal diagnosis – what other questions do you have for people who hav…
Bill Wong, OTD, OTR/L @BillWongOT
@subtlykawaii For me, I have fight stigma and ableism sometimes. But, because I put up a pretty good fight, at least these two don't really exist in my profession too much. #autchat
Speech Autist @SKP_SLP
RT @subtlykawaii: Q3) If I wasn't diagnosed already, I wouldn't get one now. The stigma and ableism that comes with an autism diagnosis me…
📚 lizzie huxley-jones 🍟 @littlehux
Hello all. I’m Hux, writer & editor based in London. Stim is out on 2nd April 🎉📚 ready to chat diagnoses, albeit a bit late bc I was trying to catch a fish in animal crossing.
Tuttleturtle @tuttleturtle42
@subtlykawaii This is absolutely a thing that people need to take into account I think, and it is so often missed in discussions. The question isn't only can you get a diagnosis, it's whether the cost of getting a diagnosis or not getting one is higher #AutChat
josefina 🧼🐇 @kriemhildsrache
A1: i was diagnosed at around age 3 (the diagnosis was ignored until i sought one later in life), and then after a long process that went from ages 19/20 to 22. i’m considering seeing a psychiatrist here when things calm down to finally get a bloody report. #AutChat
📚 lizzie huxley-jones 🍟 @littlehux
A1. I got diagnosed at 28 privately. I went through NHS but got repeatedly misdx as BPD until the psych I was referred to for DBT said you’re so clearly autistic, I don’t get it. #autchat
📚 lizzie huxley-jones 🍟 @littlehux
A1 (contd). I did a GoFundMe to help raise funds for my private dx. They said they knew after 5 mins, partly bc I’d sent through a 13 page dossier of how I fit the criteria (p autistic in of itself) #autchat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod @BillWongOT #AutChat A3 2\2: We were discussing my dad (hugely attached to routine) & she said maybe he was autistic, saying this was a characteristic I said, maybe, hang on, so am I Then found lots of reasons why I thought I wasn't autistic; *no issue with it*, thought I wouldn't get dx🙄
Milla 😘😘💕💕 @subtlykawaii
@tuttleturtle42 Yep. In fairness to my mum she did what was right at the time with the evidence she had. Most people don't know barriers like the two I mentiomed exist - even many autistic adults. Hence why it's important they know so they can make an informed decision. #AutChat
📚 lizzie huxley-jones 🍟 @littlehux
A2. The process was difficult with the NHS, I’ll be honest. I was told I didn’t have autism bc I had been on a plane, never mind that it was travelling for my special interest or any of the details on how I coped #autchat
josefina 🧼🐇 @kriemhildsrache
A2: horrible. emotionally gruelling. i was on the nhs waiting list; passed the pre-assessment really quickly but the actual assessment never happened. they warned me about how long it’d take so i tried to go private (cont.) #AutChat
Speech Autist @SKP_SLP
#AutChat A3 An advantage to being Dxed during therapy instead of formal eval: Dx does not show up in my medical history. I have a complicated heart condition and I do not need some doctor assuming I can't make choices about my own heart and body.
📚 lizzie huxley-jones 🍟 @littlehux
A2 (contd) actually it was such a kerfuffle that I did a video about the process. Pls note I filmed it like 3 years ago and haven’t watched it since so terminology could be outdated etc etc #autchat https://t.co/XGwJ6jNiVy
📚 lizzie huxley-jones 🍟 @littlehux
A2 (contd). When I got my autism dx I went back to the psych kept misdxing me and gave him a small bollocking, telling him what he’d been spotting in the young women he saw was probably autism not BPD. He agreed. #autchat
📚 lizzie huxley-jones 🍟 @littlehux
A2 (contd) He told me he’d began retraining in light of me basically taking him to task about it, and earlier this year I found out he has an autism clinic and diagnosed one of my pals. He once called me a “tough cookie” 💪🏼 🍪 #autchat
Milla 😘😘💕💕 @subtlykawaii
@SKP_SLP And as relevant as ever thanks to COVID-19. #AutChat
Rosalin2495 @rosalin2495
RT @SNeurotypicals: Do you folks know about #AutChat? It's a discussion on a specific topic every Sunday afternoon. You can learn more thro…
📚 lizzie huxley-jones 🍟 @littlehux
@endeverstar honestly I just think it’s “person with a certain age with emotions we don’t get” kind of mindset that causes that overapplication in autistics particularly, especially the lack of research in trauma & autism #autchat
Speech Autist @SKP_SLP
@littlehux That is amazing. I really wish I could do that with the person who misdiagnosed me but 1) I'm way too much of a coward and 2) I don't think she would respond as well. Nicely done! #AutChat
Tuttleturtle @tuttleturtle42
@SKP_SLP What level of your therapist saying you have this do you consider being Dxed during therapy? I've never been able to figure that out, and there are other things I never have been able to figure out if I should say if I've been Dxed or not, 'cause of during therapy #AutChat
#AutChat mod @autchatmod
Next Sunday’s #AutChat is on sexuality and asexuality. Sun Mar 29, 1pm Pacific / 4pm Eastern / 8pm UTC/GMT. https://t.co/zAZcYZYWdR If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them.
#AutChat mod @autchatmod
The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times!
Speech Autist @SKP_SLP
@subtlykawaii Oh yes that is a whole new rabbit hole we all get to deal with. #AutChat
Adrianz Wall #FBPE @AdrianzWall
@autchatmod #AutChat A4 1\2: At this end of the proceedings I feel it's mainly about "having an answer"; what we've read\heard over the last 2 years feels like autism probably describes what I'd always thought of as simply "separate things about me where I don't fit in easily" ... (cont'd)
#AutChat mod @autchatmod
Reminder: We create weekly transcripts of #AutChat using Wakelet, and post them to our website. We also link to them from our Facebook and Twitter accounts. To be excluded from transcripts, DM us.
#AutChat mod @autchatmod
Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/QrdW2e85Ey Every topic we've ever run: https://t.co/F56bZKXGAW We're happy to rerun past chats we haven't revisited in a while.
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Next Sunday’s #AutChat is on sexuality and asexuality. Sun Mar 29, 1pm Pacific / 4pm Eastern / 8pm UTC/GMT. https://t.co/…
📚 lizzie huxley-jones 🍟 @littlehux
A3. Not personally because I was quite insistent and willing to tell them they were wrong, but I do wish I’d recontacted the woman who dxd me as not-autistic bc she worked exclusively with kids (lol I know) so she’s probably missing girl kids too #autchat
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times!
⚡️ home-o qui vixit ⚡️ increasingly cyborg @endeverstar
RT @autchatmod: Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/Q…
josefina 🧼🐇 @kriemhildsrache
A2: my dad had all sorts of prejudices about autism (he screamed at me when i proposed the idea of a diagnosis in 2015), so i couldn’t borrow the money to go private. then when he died i opened up about the process to my mum which i had already started, and (cont.) #AutChat
EC 🐾🌴✏🎨🎬🌊🐺🦋 @Siennapup1024
@autchatmod A0: I'm a writer, prior to getting my own diagnosis, I did research on autism for about a year and a half. Since then, it's been an ongoing learning experience. #AutChat
📚 lizzie huxley-jones 🍟 @littlehux
A2 (contd) one thing I’d say that I find commonly with NHS autism practices my friends go to is that they are Bad at communication. No confirmation that referral arrived, no yes you’re on the waitlist, it’ll be x months. Autistics need that & the NHS has to adapt. #autchat
Project Homesick for Israel 🇮🇱 @project1enigma
#AutChat answer to an A4 question.
josefina 🧼🐇 @kriemhildsrache
A2: until 2017 i only had that pre-assessment, my mum’s memories of the early assessment and PLENTY of friends and other people’s feedback, as well as things that i found online that made me realise that yes this is who i am. then in 2017 my former psychiatrist (cont.) #AutChat
Zack Budryk @BudrykZack
I'm Zack, I'm a reporter in the Washington, D.C. area who covers political and disability news for @thehill and my first novel, "Judith," came out in 2016. I was formally diagnosed my freshman year of high school in 2003. https://t.co/PKOt3aZMS4
EC 🐾🌴✏🎨🎬🌊🐺🦋 @Siennapup1024
@autchatmod It's been 2 years(going on 3), at the beginning of my late 20s. #AutChat
josefina 🧼🐇 @kriemhildsrache
A2: finally wrote me a diagnosis but it was very brief, it was mostly so that i could get the right adjustments at oxford. many people in chile and elsewhere get these sorts of diagnoses that are nothing more than a few words. it’s v invalidating. wow this was long #AutChat
EC 🐾🌴✏🎨🎬🌊🐺🦋 @Siennapup1024
@autchatmod A2:Process was extremely long, took years, one of the main reasons was not being able to get a referral. Got a recommendation only to find out insurance policy didn't cover it. Took a year to find a place that worked out. #AutChat
josefina 🧼🐇 @kriemhildsrache
A3: it’s not about what i would’ve done differently but what systemic failures there were that made a quick, thorough diagnosis impossible. i’m privileged to have been able to have that one option even though the psychiatrist hasn’t been supportive. i did all i could #AutChat
#autchat content from Twitter.