#autchat Transcript
Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | #AutChat mod @autchatmod Welcome to #autchat, a weekly chat for autistic & similar people Sundays 8pm UTC / 9pm BST / 4pm EDT! https://t.co/rRrhi8Ysri |
| #AutChat mod @autchatmod #autchat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc) |
| #AutChat mod @autchatmod #autchat hosts chats on many topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW |
| #AutChat mod @autchatmod #autchat welcomes autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar. |
| #AutChat mod @autchatmod #autchat posts transcripts of the weekly chats; please tell @autchatmod if you don’t want your tweets included. |
| #AutChat mod @autchatmod For #autchat announcements and weekly questions, follow this account. Reply here to receive reminder tweets. |
| #AutChat mod @autchatmod How to participate in #autchat and other twitter chats: https://t.co/SkuXgvACRk |
| #AutChat mod @autchatmod Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, A2, etc and include "#autchat" so others see them! |
 | Ujaranza Cervanak @ucervanak RT @autchatmod: Welcome to #autchat, a weekly chat for autistic & similar people Sundays 8pm UTC / 9pm BST / 4pm EDT! https://t.co/rRrhi8Ysri |
| #AutChat mod @autchatmod Today’s #autchat is on research. |
| #AutChat mod @autchatmod Q0: Introduce yourself! Say anything you like about yourself or your interest in #autchat or in today's topic. |
| Ujaranza Cervanak @ucervanak RT @autchatmod: Today’s #autchat is on research. |
 | Aria Sky @mamautistic36 Check @autchatmod's account for questions! Not showing up on-tag again for some reason. #autchat |
 | Joy’s Daughter @TheHealstorian RT @autchatmod: Today’s #autchat is on research. |
 | Hannah @hannzii @autchatmod #autchat Q0. Hi I'm Hannah, currently waiting for AS dx I'm doing an MEd in Autism and then hopefully a PhD..its my current Special Interest |
 | Nicole Radziwiłł @nicoleradziwill A0: The intro part always makes me super nervous and so I always skip it. #autchat |
| Aria Sky @mamautistic36 A0: Aria Sky, 34yo late-dx Autistic USian, mother, musician, writer. Research is very interesting to me. #autchat https://t.co/x3wBXVASq0 |
| Joy’s Daughter @TheHealstorian Hey #autchat fam! https://t.co/l1TTwmuA2J |
| #AutChat mod @autchatmod I'll tweet from both accounts today and see about bribing twitter into not censoring @autchatmod from the tag. #autchat |
| #AutChat mod @autchatmod Today's #autchat is on research. |
| Aria Sky @mamautistic36 Even quoting @autchatmod account makes it not show up on-tag. This is ridiculous! #autchat https://t.co/6BwQ3f9UW6 |
| Aria Sky @mamautistic36 A0: Aria Sky, 34yo late-dx Autistic USian, mother, musician, writer. Research is very interesting to me. #autchat |
| #AutChat mod @autchatmod Q1 What autism research would you like to hear more about? Less about? #autchat |
| Joy’s Daughter @TheHealstorian Q0 Julia Joy, 33, ActuallyAutistic Single mom of an Aspie, History Lover, Legislative Researcher. #autchat |
| Hannah @hannzii @theoriesofminds #autchat A1. At the moment I'm really interested in hearing about #ActuallyAutistic people's experiences of being autistic. |
| Aria Sky @mamautistic36 A1.1: I'd love there to be more studies about how to support Autistics in practical day-to-day situations & why allistics + #autchat |
| Joy’s Daughter @TheHealstorian A1 Need more focus in #autism research on better quality of life, no more on cures! #autchat |
| Aria Sky @mamautistic36 A1.2: + misunderstand/don't like us. What can be done to combat their damaging assumptions and such. #autchat |
| Aria Sky @mamautistic36 A1.3: I think there should be less research on "cures" - yes some Autistics want one, but that shouldn't be the main topic of study #autchat |
| Hannah @hannzii This is the angle I'm leaning towards in my MEd and hopefully PhD...I'd love to just interview a load of #ActuallyAutistic people for a book https://t.co/DasWcebsgT |
 | Jasmine Stairs (is supposed to be on Hiatus) @snazel @theoriesofminds Q1: less— cure narratives, how can we make dating work, how to make us act normal. #autchat |
| Aria Sky @mamautistic36 RT @photon_barrier: A1: |
| Joy’s Daughter @TheHealstorian A1 Most research centered upperclass white male children. This slants the understanding of autism. #autchat |
| Joy’s Daughter @TheHealstorian A1 Need more research on adults, females, people of color, the poor. Genetic research! #autchat |
| Jasmine Stairs (is supposed to be on Hiatus) @snazel @theoriesofminds Q1: More: comorbity with mood disorders and treatment, comorbity with epilepsy, analaysis of language acquisition and retention. #autchat |
| Nicole Radziwiłł @nicoleradziwill A1: I think we need a better place to publish... e.g. Journal of Neurodiversity. Not taking things from med/psych perspective. #autchat |
| Joy’s Daughter @TheHealstorian @hannzii It's so frustrating. That's why so many ppl aren't diagnosed. They don't fit the "profile". It may look different in diff pop #autchat |
| Hannah @hannzii #autchat A1.2 and less about 'curing' autism. More focus on accepting neurodiversity in general and appreciating streangths of autism https://t.co/DasWcebsgT |
| Nicole Radziwiłł @nicoleradziwill A1: In fact I would volunteer to be editor if there was a group of ppl who could provide additional energy & buffer my exec dysfxn #autchat |
| Joy’s Daughter @TheHealstorian RT @nicoleradziwill: A1: A1: I think we need a better place to publish... e.g. Journal of Neurodiversity. Not taking things from med/psych perspective. #autchat |
| #AutChat mod @autchatmod Q2 Where do you (or have you) read about autism research? Are there sources you recommend? Disrecommend? #autchat |
| Joy’s Daughter @TheHealstorian RT @autchatmod: Q2 Where do you (or have you) read about autism research? Are there sources you recommend? Disrecommend? #autchat |
| Aria Sky @mamautistic36 A2: I mostly read about research as it's shared by other Autistics on twitter. Has provided a buffer so far. #autchat |
| Nicole Radziwiłł @nicoleradziwill A2: Respond to this thread if you'd be interested in being on a review/production team for a Journal of Neurodiversity :) #autchat |
 | Autietype @aspietype RT @nicoleradziwill: A1: A1: I think we need a better place to publish... e.g. Journal of Neurodiversity. Not taking things from med/psych perspective. #autchat |
| Hannah @hannzii @theoriesofminds #autchat A2. I've read a lot of journal articles and it's really mixed. I really like Tony Attwood, he's really interesting on AS and girls |
 | Zarifa Roberson 🇧🇸♍️ 💙💛🐩 @zarifaroberson RT @nicoleradziwill: A1: A1: I think we need a better place to publish... e.g. Journal of Neurodiversity. Not taking things from med/psych perspective. #autchat |
| Joy’s Daughter @TheHealstorian @autchatmod A2 This book changed my world! Highly recommend to anyone who wants to understand neurodiversity, autism, ADHD, 2e, etc. #autchat https://t.co/lLQjWUK89T |
| Hannah @hannzii @nicoleradziwill Yes I would def! I'm happy to write/edit etc. #autchat |
 | Sarah Owl @OwlStory A0 I am bad at doing research. I work in a library. I was a history major. I am self dx' d with autism and have SPD and ADHD dx's. #autchat https://t.co/CWyXn8rZcZ |
| Hannah @hannzii @theoriesofminds #Autchat A2.2 There are some great books written by autistic people, like Wynn Lawson and M for Autism etc. |
| Sarah Owl @OwlStory A1 More: adults, comorbidities, research done by autistic researchers.... More on siblings. #autchat https://t.co/5SmtPekrVV |
| Sarah Owl @OwlStory A1b Less: parents (unless autistic) #autchat |
| Aria Sky @mamautistic36 I love reading Sparrow Jones' stuff. His blog is Unstrange Mind and he often covers recent studies (good and bad). #autchat |
| Sarah Owl @OwlStory A3 I'm... bad at research. Great at evaluating sources, though. I haven't done research in a while. #autchat https://t.co/LTLjAiZP4o |
| #AutChat mod @autchatmod Q3 Are there things you find confusing or puzzling when reading about autism research? #autchat |
| Sarah Owl @OwlStory A3b I helped my sister on a research paper on autism and NT siblings, though. It was fascinating. #autchat |
| Sarah Owl @OwlStory Real A3 Why they don't actually ask autistic people. So many assumptions. But it has been a while. #autchat https://t.co/dMONL3dRl0 |
| Hannah @hannzii @theoriesofminds #autchat A3. Not so much confusing/puzzling but one thing that bugs me is reading US based research and the language used! |
| Aria Sky @mamautistic36 @photon_barrier Yes! That's what I do too. I'm not sure I'm ready or have the spoons to seek out research on my own quite yet. #autchat |
| Sarah Owl @OwlStory @textuallimits I agree with that. #autchat |
| Aria Sky @mamautistic36 A3: Sometimes the language can be difficult to get through. Especially the constant "with autism" & pathologizations. #autchat |
| Hannah @hannzii @theoriesofminds #autchat A3.2 I think one of the problems is that the funding goes to the sciency cure stuff and not to the qualitative stuff that we want.. |
| Hannah @hannzii @endeverstar @mamautistic36 what about 'retardation'? #autchat |
| Aria Sky @mamautistic36 @textuallimits Right? If you want to know about a group of people, it's usually helpful to learn from them. #autchat |
| Hannah @hannzii @theoriesofminds #autchat A3.3. what about the lack of empathy from NTs to #actuallyautistic people? This is starting to be talked about now. |
| Aria Sky @mamautistic36 @textuallimits Yep! Also people who don't understand how adjectives work or think autism is a horrible awful thing. #autchat |
| Aria Sky @mamautistic36 @hannzii @theoriesofminds Yes! I'd love to see more research about allistics and their lack of empathy for us. Also how they fail to communicate + #autchat |
| Aria Sky @mamautistic36 @hannzii @theoriesofminds + appropriately when attempting to (deficiently) communicate with us. That'd be great to have more research about. #autchat |
 | EyesLikeEels @eyeslikeeels #autchat I'm very tired of genetic/risk factor research getting funded at the expense of research helping living breathing people https://t.co/OWVgM2LhlT |
| EyesLikeEels @eyeslikeeels #autchat I've been reviewing research for over a decade and suggest looking at journal articles through local library websites when possible https://t.co/MMHJUdtagt |
 | Connie @Connierific A1. More about adults getting a dx later in life. Much less about cure or recovery. #autchat |
| EyesLikeEels @eyeslikeeels RT @autchatmod: Q1 What autism research would you like to hear more about? Less about? #autchat |
| EyesLikeEels @eyeslikeeels RT @autchatmod: Q2 Where do you (or have you) read about autism research? Are there sources you recommend? Disrecommend? #autchat |
| EyesLikeEels @eyeslikeeels I find the disconnect between groups (parents, advocates, professionals, researchers) and lack of progress over time baffling #autchat https://t.co/OQR1vauoFX |
| #AutChat mod @autchatmod Q4 Have you ever participated in autism research (as a researcher, participant, or otherwise)? What was your experience like? #autchat |
| EyesLikeEels @eyeslikeeels I'm concerned that a lot of autism researchers don't understand autism and there is a lack of rigor in research generally #autchat |
| Nicole Radziwiłł @nicoleradziwill A4: I respond to as many research surveys as I can to support the community. All experiences very professional. #autchat |
| Hannah @hannzii @autchatmod #autchat A4. I've done some reflection on my practice (teaching at an AS college) and am doing some research at the moment |
| EyesLikeEels @eyeslikeeels RT @Unuhinuii: @snazel @theoriesofminds also: |
| EyesLikeEels @eyeslikeeels RT @Unuhinuii: |
| Aria Sky @mamautistic36 We need more research done on why allistics think that their way is the only/best way to be & their needs are the only normal. #autchat https://t.co/qZql1rIs4F |
| Hannah @hannzii @autchatmod #autchat A4.1 I couldn't get ethical approval at MSc level to actually talk to #actuallyautistic people! Too vulnerable... |
| Connie @Connierific A0: Quirky un-dx'd (might work on that this summer) middle aged woman. #autchat |
 | Schroedinger's Coup @VoxVisual RT @mamautistic36: We need more research done on why allistics think that their way is the only/best way to be & their needs are the only normal. #autchat https://t.co/qZql1rIs4F |
| Aria Sky @mamautistic36 A4.1: I'm feeling snarky today, but I have participated in research & have had good experiences😊 #autchat |
| EyesLikeEels @eyeslikeeels RT @Unuhinuii: |
| Hannah @hannzii @autchatmod #autchat A4.2 For my MEd diss next yr I'm hoping to research autism attitudes/experiences in Fiji/Cambodia/Thailand... |
| Connie @Connierific @hautdesert Behave you! #autchat |
| EyesLikeEels @eyeslikeeels RT @photon_barrier: A1 2: |
| Aria Sky @mamautistic36 A4.2: I have felt respected by all the researchers I've personally encountered (online, primarily) & have been asked for input by. #autchat |
| EyesLikeEels @eyeslikeeels RT @TheHealstorian: @hannzii It's so frustrating. That's why so many ppl aren't diagnosed. They don't fit the "profile". It may look different in diff pop #autchat |
| Jasmine Stairs (is supposed to be on Hiatus) @snazel @Unuhinuii @9teacups @theoriesofminds And it helps when I feel that I don't fit "the profile" and thus maybe am not #ActuallyAutistic #autchat |
| #AutChat mod @autchatmod Q5 (Optional) Post a link to an research-related article or resource that you recommend. #autchat |
| Sarah Owl @OwlStory #autchat I'm sick so not typing clearly. |
| Schroedinger's Coup @VoxVisual RT @photon_barrier: A1: |
| Sarah Owl @OwlStory A4. No. #autchat https://t.co/Tt8kaCWf5r |
| EyesLikeEels @eyeslikeeels #autchat I get really upset by how the media reports on autism research and then also how it is misinterpreted so often https://t.co/JcxfIj62qW |
 | Dr Elizabeth Upton @erupton RT @mamautistic36: We need more research done on why allistics think that their way is the only/best way to be & their needs are the only normal. #autchat https://t.co/qZql1rIs4F |
| Hannah @hannzii @theoriesofminds #Autchat A5. On empathy (and written by an autistic researcher) https://t.co/NYzabyqN5K |
| Dr Elizabeth Upton @erupton RT @Unuhinuii: |
| EyesLikeEels @eyeslikeeels RT @photon_barrier: A3 4: |
| Joy’s Daughter @TheHealstorian RT @hannzii: @theoriesofminds #Autchat A5. On empathy (and written by an autistic researcher) https://t.co/NYzabyqN5K |
| EyesLikeEels @eyeslikeeels RT @Unuhinuii: |
| Joy’s Daughter @TheHealstorian RT @Unuhinuii: |
| Joy’s Daughter @TheHealstorian RT @mamautistic36: We need more research done on why allistics think that their way is the only/best way to be & their needs are the only normal. #autchat https://t.co/qZql1rIs4F |
| Aria Sky @mamautistic36 A5: This link has links to a bunch of decent autism studies. Still working my way through it: https://t.co/ZpbR31O35Q #autchat |
| #AutChat mod @autchatmod The scheduled #autchat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times! |
| #AutChat mod @autchatmod Next Sunday’s #autchat is on friendships. Jun 4, 8pm UTC / 9pm BST / 4pm EDT. |
| #AutChat mod @autchatmod Feel free to suggest ideas for #autchat topics (or offer to help write questions)! |
| EyesLikeEels @eyeslikeeels all of the above and I also participate in a research advisory group #autchat https://t.co/q2RioRR0qm |
| Joy’s Daughter @TheHealstorian RT @mamautistic36: A5: This link has links to a bunch of decent autism studies. Still working my way through it: A5: This link has links to a bunch of decent autism studies. Still working my way through it: https://t.co/ZpbR31O35Q #autchat |
| EyesLikeEels @eyeslikeeels https://t.co/v0odDKl1t4 let me know if this loads, supports from #ActuallyAutistic POV #autchat https://t.co/DuzfGrEpuB |
| Schroedinger's Coup @VoxVisual Same here! https://t.co/HPSDDcBnI0 |
 | CLE change the world @Bluebirdlouise RT @nicoleradziwill: A2: A2: Respond to this thread if you'd be interested in being on a review/production team for a Journal of Neurodiversity :) #autchat |
| Aria Sky @mamautistic36 Yes. I would absolutely love to know the answer to this! #autchat https://t.co/SHH1u0Ixop |
| CLE change the world @Bluebirdlouise RT @nicoleradziwill: A1: A1: In fact I would volunteer to be editor if there was a group of ppl who could provide additional energy & buffer my exec dysfxn #autchat |
 | 😷 #REDinstead 🔻 @alannarwhitney RT @TheHealstorian: @hannzii It's so frustrating. That's why so many ppl aren't diagnosed. They don't fit the "profile". It may look different in diff pop #autchat |
#autchat content from Twitter.