#autchat Transcript

Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.

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#AutChat mod @autchatmod
Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 8pm UTC / 9pm BST / 4pm EDT! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW
#AutChat mod @autchatmod
#AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar.
#AutChat mod @autchatmod
We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site.
#AutChat mod @autchatmod
Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, reply here or (preferably) DM us.
#AutChat mod @autchatmod
For #AutChat announcements and weekly questions, follow this account. Reply here to receive reminder tweets. How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk
#AutChat mod @autchatmod
Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see them! Please capitalize it as #AutChat to make it more accessible to screenreaders.
#AutChat mod @autchatmod
This #autchat is on small barriers to everyday accessibility, like flickering lights in shop windows, etc. For this chat, “small barriers” mean ones that can be easily fixed, such as replacing a fluorescent bulb with an incandescent one. #autchat
#AutChat mod @autchatmod
Quick reference for this week's #AutChat questions (please wait till they're tweeted to answer): https://t.co/Zc1FFOHoOb Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic.
#AutChat mod @autchatmod
Q1: Name some barriers to everyday accessibility that you’ve run into. What problems do these barriers cause you? #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Hello, I am Solveig. I have a few barriers, needless to say! #autchat A0
#AutChat mod @autchatmod
Q2: Why are the barriers there to begin with? Do/did they serve a purpose for the people who put or keep them in place? #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
At its core, I would say a sense of understanding on the part of others that... Things that are easy for allistics can be hard for me, and things that are hard for allistics can be easy for me. #autchat A1
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Just because I'm easily doing something they perceive to be hard doesn't mean I can easily do something that they perceive to be easy. An example is that I have a hard time calling my dentist for an appointment, but I have no trouble calling my senator with concerns. #autchat A1
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@StephMelnick96 I'll sometimes walk away from websites using those "select all the cars" tests if I don't think it's worth the effort -- it takes me a long time to get through those. #autchat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@StephMelnick96 Oh I hate the beeps!!! :( #autchat
Cody Sinclair @gravityspiker
means I have to use more energy than I allotted to do a task near the upsetting item or scenario. Either way it takes up more time and attention than I would like, which can sometimes cost me later in the day. (2/2) #AutChat
#AutChat mod @autchatmod
Hi everyone! We encourage tagging your posts with #AutChat so people can see them on the tag. If you forget, you can retweet your own tweet and add "#Autchat" in the comment.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
A lot of my barriers exist because most people don't seem to understand that I would have a particular need, or why I would need those things if I've stated them. #autchat A2
Dr. Alyssa @yes_thattoo
A0 my name is alyssa, I’m an autistic grad student, and “small” barriers are usually the ones that lead to my crashing. Maybe because those are the ones I’m expected (by myself or others) to push through? #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
People seem to need to know why they're expending resources to fill a need, but they aren't always in a position to hear what we're telling them. So at its core, I would say this breakdown in communication is the root barrier that causes all other barriers. #autchat A2
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I've heard people say providing accommodations is too hard, but I'm not sure if they'd say that if they really understood WHY I needed an accommodation, and the impact it would have if I didn't have them. #autchat A2
Dr. Alyssa @yes_thattoo
A1: Inaccurate or missing descriptions of what to expect at events, so I can’t plan time/assistive tools/anything else to match up with what I’ll actually need to be doing there. #AutChat
#AutChat mod @autchatmod
Q3: What social change would need to happen for these barriers to be removed? #autchat
Dr. Alyssa @yes_thattoo
A1: background noise. I can exist with it, but it drains my energy way faster, and people tend not to get what that actually means. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@endeverstar @subtlykawaii [cn:food] Also cosigning the beverages problem. See also: being vegetarian and not knowing what to eat, having allergies without having foods properly labeled. #autchat
Cody Sinclair @gravityspiker
Other times it's because NT people simply don't notice there is to even be bothered by. That's the most frustrating one for me, since I have been told more than once that I'm complaining about nothing. (2/2) #AutChat
Cody Sinclair @gravityspiker
different needs and may experience the world in different ways. Having the norm be "how can I fix that" rather than "you must be making it up" would be great. (2/2) #AutChat
Dr. Alyssa @yes_thattoo
RT @Unuhinuii:
Dr. Alyssa @yes_thattoo
Basically this, for me too #AutChat
⍼ₑᵣᵢ𝒸 @LericDax
RT @autisticb4mmr: A lot of my barriers exist because most people don't seem to understand that I would have a particular need, or why I would need those things if I've stated them. #autchat A2
#AutChat mod @autchatmod
Q4: When a barrier can’t be directly removed, are there workarounds that someone could implement? #autchat
Alexandra @_waterandoil_
@autchatmod Plus if they snap it feels like it's at me instead of outside stressors. At that point, I'm done and I have to go somewhere calm and alone to recoup #AutChat
Cody Sinclair @gravityspiker
A4: I usually either avoid / put off the task as long as possible, or isolate myself to build up an energy reserve of some sort in the day(s) beforehand. I have to block out time to have a meltdown / shutdown or some other recovery period sometimes also. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
If I need something else that nobody else seems to need, I would hope that people would understand that I still need it. Also, if I'm experiencing discomfort that other people aren't... my discomfort is still real and valid. #autchat A3
Alexandra @_waterandoil_
@autchatmod A1: poor emotional articulation in group efforts--either too low (not mentioning) or too high (ranting&complaining). I get easily overwhelmed, and it completely scatters my focus #AutChat
Alexandra @_waterandoil_
@autchatmod A1 cont. Plus if they snap it feels like it's at me instead of outside stressors. At that point, I'm done and I have to leave and go somewhere calm and alone to recoup #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
It's when this "we never realized anyone would have a problem with this" translates into "we're not sure why we would offer a solution, so we won't" becomes super problematic. #autchat A2
Michau van Speyk @MEEKSVS
RT @autchatmod: Q4: Q4: When a barrier can’t be directly removed, are there workarounds that someone could implement? #autchat
Michau van Speyk @MEEKSVS
RT @autchatmod: Q3: Q3: What social change would need to happen for these barriers to be removed? #autchat
Michau van Speyk @MEEKSVS
RT @autisticb4mmr: It's when this "we never realized anyone would have a problem with this" translates into "we're not sure why we would offer a solution, so we won't" becomes super problematic. #autchat A2
Michau van Speyk @MEEKSVS
RT @autisticb4mmr: If I need something else that nobody else seems to need, I would hope that people would understand that I still need it. Also, if I'm experiencing discomfort that other people aren't... my discomfort is still real and valid. #autchat A3
CLE change the world @Bluebirdlouise
@autchatmod A1 #autchat literally, barriers. Those car parks where you have to take a ticket quickly then a barrier beeps at you while you wait for it to go up so you can drive under praying it doesn’t fall on you. they are terrifying.
Alexandra @_waterandoil_
@autchatmod cont. Plus if they snap it feels like it's at me instead of outside stressors. At that point, I'm done and I have to go somewhere calm and alone to recoup #AutChat
#AutChat mod @autchatmod
The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times!
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
I would say that right now, one seemingly insurmountable barrier has to do with large tech companies who don't speak directly with their users anymore. @Twitter @facebook @Google all have major accessibility barriers, but we can't fix them without 2-way conversations #autchat A4
#AutChat mod @autchatmod
Next Sunday’s #AutChat is on mood disorders. Sun Oct 21, 8pm UTC / 9pm BST / 4pm EDT. https://t.co/KJpJJMMOQt If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them.
#AutChat mod @autchatmod
Reminder: We create weekly transcripts of #AutChat using Wakelet, and post them to our website. We also link to them from our Facebook and Twitter accounts. To be excluded from transcripts, reply here or (preferably) DM us.
#AutChat mod @autchatmod
Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/QrdW2dQuN0 Every topic we've ever run: https://t.co/F56bZKG5Jo We're happy to rerun past chats we haven't revisited in a while.
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Help article: Here are the instructions to help you with your problem Help article: Was this helpful? Me: Nope Help article: What was the problem? Me: Missing information (1/2) #autchat A4
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Help article: Thanks, we'll make it better! Me: How are you going to make it better if you don't know what information is missing? Aren't you gonna let me tell you?!? Help article: Thanks, we'll make it better! Me: ..... #autchat A4 @facebook @twitter @google this is a call-out
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
Also companies that will only talk to you about certain issues over the phone, assuming that you have access to a phone and you don't have verbal speech processing issues. @PayPal and @Netflix you're being called out here for being inaccessible. #autchat A4
Easter 💮 Jenn @jlms_qkw
RT @autisticb4mmr: I would say that right now, one seemingly insurmountable barrier has to do with large tech companies who don't speak directly with their users anymore. @Twitter @facebook @Google all have major accessibility barriers, but we can't fix them without 2-way conversations #autchat A4
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@StephMelnick96 Oh that reminds me -- when I pinch zoom on a website and it expands the ads to block all the content? The only workaround is adblock. #autchat A1
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@endeverstar My cat is also currently helping me out with #autchat
Alexandra @_waterandoil_
@autchatmod A3: a more thorough and empathetic understanding of the people who need these changes as well as understanding the value of supporting groups that may be different but are nonetheless part of our larger community and therefore affect the health of it&everyone in it. #AutChat
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr
@AmericanAir You too -- this is a call-out. Not providing direct email support means that I have trouble accessing help when I need it. I can't always dial a 1-800 number, and sometimes your web form is too complicated to use. #autchat A4
#autchat content from Twitter.