#ayacsm Transcript

Healthcare social media transcript of the #ayacsm hashtag.
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See #ayacsm Influencers/Analytics.

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@KimMillerPhD
Hi everyone! I'm a researcher at USC in Los Angeles working on young adult cancer survivorship. #AYACSM
@KimMillerPhD
[REDACTED USER] So happy chats are back! #AYACSM
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] Hi all, I’m Stefanie Thomas a pediatric oncologist focusing on AYA Cancer @KeckMedUSC and @ChildrensLA #AYACSM
@stevegfund
RT @StefThomasMD: [REDACTED USER] Hi all, I’m Stefanie Thomas a pediatric oncologist focusing on AYA Cancer @KeckMedUSC and @ChildrensLA #AYACSM
@KimMillerPhD
[REDACTED USER] So sorry to hear that Emily; and everyone needs a break to appreciate things, right? #AYACSM
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] @COGorg sponsors the Archie Bleyer Aflac grant yearly specific to AYAs. @AlexsLemonade and @StBaldricks also support AYA research. #AYACSM
@KimMillerPhD
[REDACTED USER] A1: The US DoD has a call and one of the emphasis areas is AYA cancer. Some deadlines have passed but I believe early career grant is coming up: https://t.co/WtgGf1yOrI #AYACSM
@KimMillerPhD
[REDACTED USER] @StefThomasMD @COGorg @AlexsLemonade @StBaldricks I believe many of them do fund psychosocial and supportive care. #AYACSM
Billy Paymaster @ukfann00
I have arrived. #AYACSM
@KimMillerPhD
[REDACTED USER] And I believe this is due to the great efforts of @heycriticalmass among other advocates to get this on the agenda! #AYACSM
@KimMillerPhD
[REDACTED USER] @StefThomasMD @COGorg @AlexsLemonade @StBaldricks @stevegfund I'm getting the lag too! Anyway, whatever one says about research funding can always be repeated. It's how we survive!!! #AYACSM
@KimMillerPhD
[REDACTED USER] @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Trust me, us too with the US and our desks, lol. #AYACSM
Billy Paymaster @ukfann00
I'm also distracted with the fact this ad is targeting me on the #AYACSM thread. #HennythingsPossible https://t.co/X3lfC2vk0X
@KimMillerPhD
@StefThomasMD [REDACTED USER] @COGorg @AlexsLemonade @StBaldricks @NCICancerCtrl @AmericanCancer @ASCO @ASPHO_hq Yes, and there are some specific #YACancer Program Announcements (PAs) out now. If you search the NIH RePORT you'll find them! #AYACSM
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] I keep forgetting to use the #AYACSM tag! Twitter fail.
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] A2: I think this is where patient advisory boards are key. And many #cancerpatients and #cancersurvivors want to be involved. It’s just about building the space to include them. #AYACSM
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] A2 (2): I also think recognizing and acknowledging the non-survival outcomes and differences in this population is key. The patients know best what’s important to them. Allowing input into the questions is so important. #AYACSM
@KimMillerPhD
@StefThomasMD [REDACTED USER] A2: Agreed. Also I think it's important to be very clear at the outset what the expectations, compensation (etc) are, from both sides, to make it meaningful. I've seen it done poorly, seen it done great. #AYACSM
@KimMillerPhD
@StefThomasMD [REDACTED USER] Yes to this! Asking the right questions + studying meaningful outcomes = better science. #AYACSM
Stefanie Thomas, MD @StefThomasMD
[REDACTED USER] Great question! It’s hard, but there are a lot of organization in existence that can be partnered with.m. Meeting face to face with leadership. Explaining reasoning for wanting involvement. It can go far. Or a social media call through @StupidCancer #AYACSM
@KimMillerPhD
@PerriTutelman @StefThomasMD [REDACTED USER] Right? And yet, not everyone takes this approach. It's a lot to ask a patient to volunteer their time, especially younger ones still in the workforce and with other commitments. #AYACSM
@KimMillerPhD
[REDACTED USER] Agree with Dani. Manage expectations because most grants are funded and almost none of the first try these days in the US at least. Let everyone know it's a marathon not a sprint, but you're committed to trying. #AYACSM
@KimMillerPhD
[REDACTED USER] NOT funded that should be. WISHFUL THINKING. #AYACSM
@KimMillerPhD
[REDACTED USER] YES that's what I meant. Paylines are shrunken. Stay in Canada trust me!! I'm joining you! #AYACSM
@KimMillerPhD
[REDACTED USER] Not so brilliant; but, you sure do have a nice and committed #YACancer research community there! #AYACSM
@KimMillerPhD
@PerriTutelman [REDACTED USER] @dtayl @StefThomasMD [REDACTED USER] That's a great resource! #AYACSM
@KimMillerPhD
[REDACTED USER] @PerriTutelman Yes, in my master's public health training we called this "helicopter research" with regards to communities--fly in fly out--as in, don't be like that! #AYACSM
@KimMillerPhD
[REDACTED USER] @PerriTutelman Sold! Sign me up. I need to see some Canadian models of #YA #cancer #survivorship #care stat! #AYACSM
@KimMillerPhD
[REDACTED USER] @ThanksCancer @dtayl I learned a Korean proverb recently: keep digging your well. That's what we say in my lab; we'll hit water eventually if we focus and keep at it. #AYACSM
@KimMillerPhD
[REDACTED USER] @PerriTutelman [REDACTED USER] Awesome! And I love #Montreal. #Poutine and research! #AYACSM
@KimMillerPhD
[REDACTED USER] Excellent! Thanks Emily and all for a GREAT chat. Discussing funding is so important. See you next month! #AYACSM
@KimMillerPhD
@ThanksCancer [REDACTED USER] @dtayl Thank you. We're keeping at it. :) #AYACSM
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