#bccww Transcript
Healthcare social media transcript of the #bccww hashtag.
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See #bccww Influencers/Analytics.
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BreastCancer Chat WW #BCCWW @bccww It really matters for me that my medics listen because it’s hard to speak up sometimes. These days it’s mostly my GP for cancer related things. #bccww so what about you? | |
BreastCancer Chat WW #BCCWW @bccww I also wonder how we - as patients - influence in each other in seeking help for side effects. Do we help or hinder each other? #bccww. | |
BreastCancer Chat WW #BCCWW @bccww It would be good to hear as well from HCPs as well what helps them provide supportive care to patients on side effects and toxicities. #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis Thanks JT. Interested in hearing from those living with mets. How do you deal with getting support any toxicities and side effects? #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis It’s good you can talk if you need to. Sometimes I think it’s our perceptions and assumptions of how our medic/nurse will react that stop us asking. #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @barbieslosingit Good questions. Making that mindset come into play - advocating for ourselves - is for the good of our health. View treatment and as a partnership not junior and senior partners. Equals. #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis Agree. We talk about prehab for cancer - not just physically. We could set up prehab for being your own advocate. Why it matters and how to manage it. #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis I agree! I think the term is polypharmacy. Drugs for the side effects of drugs. I don’t knock it because sometimes it might be the only solution - however - there has to be a toolkit for different measures. #bccww | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis That can be quite powerful. Also a bolster when if HCP says nope not the treatment. #bccww | |
BreastCancer Chat WW #BCCWW @bccww @barbieslosingit Actually yes. That makes me hopeful - good communication/practice can happen. A patients we all have our part to play in this as well. #bccww I’d tell me from 7years ago to say this is how x is affecting me...it’s not moderate to me | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww @abcdiagnosis @Hamish_McHamish @METUPUKorg Brilliant let’s collaborate! #bccww Or maybe I can do the early stage flip side 😬 | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @madmeynell: | |
BreastCancer Chat WW #BCCWW @bccww @madmeynell I am glad things improved for you, but I have to ask how did you feel when she said you were coping well. Having said you weren’t. #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @madmeynell: | |
BreastCancer Chat WW #BCCWW @bccww @AljhSandra Can I ask why? #bccww | |
Liza B @itsthebunk @bccww Pinging @NicoleKuderer #bccww #bcsm #oncoalert | |
Liza B @itsthebunk RT @bccww: One of the things I struggled with & still do is my overwhelming tendency to be a ‘good’ patient. Mustn’t grumble, mustn’t complain. There’s also the power imbalance. It is a psychological barrier for me & I suspect others. #bccww | |
BreastCancer Chat WW #BCCWW @bccww @barbieslosingit Dammit stop being so perceptive. I didn’t hold with my family when I struggled with treatment. My pa died of cancer - I’ve said - he didn’t complain. But my view - If you can’t be a bald, nauseous constipated whinger at home there’s no hope #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
OncoAlert @OncoAlert RT @bccww: Tonight 3/12 - let’s talk about communication. Do you avoid or have you avoided telling your oncologist about toxicities/side effects? #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww RT @madmeynell: | |
BreastCancer Chat WW #BCCWW @bccww @madmeynell It’s good that she realised you were upset but perhaps could have explained better at the time. Easy for me to say of course. HCPs are human like we all are, it’s just that feeling unheard runs the risk of people not speaking up next time #bccww | |
BreastCancer Chat WW #BCCWW @bccww This is a very real truth. #bccww | |
BreastCancer Chat WW #BCCWW @bccww @SirenofBrixton Very true! #bccww and that’s a hard one. | |
BreastCancer Chat WW #BCCWW @bccww #bccww how it should be. Good practice. | |
BreastCancer Chat WW #BCCWW @bccww @harriet_3871 @barbieslosingit Really good to hear collaboration and good communication. Definitely an environment which enables. #bccww | |
BreastCancer Chat WW #BCCWW @bccww @barbieslosingit There’s a grain of truth. I can’t comment on that because for me personally support groups didn’t figure during treatment. But interested in that thought, #bccww | |
BreastCancer Chat WW #BCCWW @bccww RT @abcdiagnosis: | |
BreastCancer Chat WW #BCCWW @bccww Thanks all for tonight. #bccww https://t.co/jVks0ztzCk |
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