#bccww Transcript

Healthcare social media transcript of the #bccww hashtag.
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See #bccww Influencers/Analytics.

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BreastCancer Chat WW #BCCWW @bccww
It really matters for me that my medics listen because it’s hard to speak up sometimes. These days it’s mostly my GP for cancer related things. #bccww so what about you?
BreastCancer Chat WW #BCCWW @bccww
I also wonder how we - as patients - influence in each other in seeking help for side effects. Do we help or hinder each other? #bccww.
BreastCancer Chat WW #BCCWW @bccww
It would be good to hear as well from HCPs as well what helps them provide supportive care to patients on side effects and toxicities. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis Thanks JT. Interested in hearing from those living with mets. How do you deal with getting support any toxicities and side effects? #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis It’s good you can talk if you need to. Sometimes I think it’s our perceptions and assumptions of how our medic/nurse will react that stop us asking. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@barbieslosingit Good questions. Making that mindset come into play - advocating for ourselves - is for the good of our health. View treatment and as a partnership not junior and senior partners. Equals. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis Agree. We talk about prehab for cancer - not just physically. We could set up prehab for being your own advocate. Why it matters and how to manage it. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis I agree! I think the term is polypharmacy. Drugs for the side effects of drugs. I don’t knock it because sometimes it might be the only solution - however - there has to be a toolkit for different measures. #bccww
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis That can be quite powerful. Also a bolster when if HCP says nope not the treatment. #bccww
BreastCancer Chat WW #BCCWW @bccww
@barbieslosingit Actually yes. That makes me hopeful - good communication/practice can happen. A patients we all have our part to play in this as well. #bccww I’d tell me from 7years ago to say this is how x is affecting me...it’s not moderate to me
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
@abcdiagnosis @Hamish_McHamish @METUPUKorg Brilliant let’s collaborate! #bccww Or maybe I can do the early stage flip side 😬
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @madmeynell:
BreastCancer Chat WW #BCCWW @bccww
@madmeynell I am glad things improved for you, but I have to ask how did you feel when she said you were coping well. Having said you weren’t. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @madmeynell:
BreastCancer Chat WW #BCCWW @bccww
@AljhSandra Can I ask why? #bccww
Liza B @itsthebunk
@bccww Pinging @NicoleKuderer #bccww #bcsm #oncoalert
Liza B @itsthebunk
RT @bccww: One of the things I struggled with & still do is my overwhelming tendency to be a ‘good’ patient. Mustn’t grumble, mustn’t complain. There’s also the power imbalance. It is a psychological barrier for me & I suspect others. #bccww
BreastCancer Chat WW #BCCWW @bccww
@barbieslosingit Dammit stop being so perceptive. I didn’t hold with my family when I struggled with treatment. My pa died of cancer - I’ve said - he didn’t complain. But my view - If you can’t be a bald, nauseous constipated whinger at home there’s no hope #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
OncoAlert @OncoAlert
RT @bccww: Tonight 3/12 - let’s talk about communication. Do you avoid or have you avoided telling your oncologist about toxicities/side effects? #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @madmeynell:
BreastCancer Chat WW #BCCWW @bccww
@madmeynell It’s good that she realised you were upset but perhaps could have explained better at the time. Easy for me to say of course. HCPs are human like we all are, it’s just that feeling unheard runs the risk of people not speaking up next time #bccww
BreastCancer Chat WW #BCCWW @bccww
This is a very real truth. #bccww
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@SirenofBrixton Very true! #bccww and that’s a hard one.
BreastCancer Chat WW #BCCWW @bccww
#bccww how it should be. Good practice.
BreastCancer Chat WW #BCCWW @bccww
@harriet_3871 @barbieslosingit Really good to hear collaboration and good communication. Definitely an environment which enables. #bccww
BreastCancer Chat WW #BCCWW @bccww
@barbieslosingit There’s a grain of truth. I can’t comment on that because for me personally support groups didn’t figure during treatment. But interested in that thought, #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
Thanks all for tonight. #bccww https://t.co/jVks0ztzCk
#bccww content from Twitter.