#cancersm Transcript

Healthcare social media transcript of the #cancersm hashtag.
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GYN Cancer | #GYNCSM @gyncsm
Welcome to #CancerSM - a passionate group of cancer survivors, caregivers, advocates and health care providers.
GYN Cancer | #GYNCSM @gyncsm
A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll be using #CancerSM for tonight’s chat.
Christina Lizaso @btrfly12
RT @gyncsm: Welcome to #CancerSM - a passionate group of cancer survivors, caregivers, advocates and health care providers.
Christina Lizaso @btrfly12
RT @gyncsm: A special welcome to those joining from this chat’s collaborating communities: A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll be using #CancerSM for tonight’s chat.
GYN Cancer | #GYNCSM @gyncsm
Behind #gyncsm are co-moderators @womenofteal @btrfly12 health care moderators @ShannonWestin @temkins @journeycancer and mental health moderator @DrBeckerSchutte #CancerSM
Dee Sparacio @womenofteal
Note for #gyncsm - Please join us tonight using #CancerSM as we collaborate with other cancer hashtag
Dee Sparacio @womenofteal
RT @gyncsm: A special welcome to those joining from this chat’s collaborating communities: A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll be using #CancerSM for tonight’s chat.
GYN Cancer | #GYNCSM @gyncsm
We’ll start out with brief intro’s - Please take a moment to introduce yourself. #CancerSM
Dee Sparacio @womenofteal
RT @gyncsm: Behind #gyncsm are co-moderators @womenofteal @btrfly12 health care moderators @ShannonWestin @temkins @journeycancer and mental health moderator @DrBeckerSchutte #CancerSM
Dee Sparacio @womenofteal
Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm #CancerSM
Carly Flumer (she/her) @carlyflumer
@gyncsm Hi! I'm Carly - a #thyroidcancer survivor. :) #cancersm
Debra Hallisey @advocatemomdad
Deb Hallisey here from Advocate for Mom and Dad. Certified Caregiving Consultant who focuses on the patient's caregiver(s). #CancerSM
Dee Sparacio @womenofteal
@carlyflumer @gyncsm Welcome Carly! Glad you are joining us! #CancerSM
Christina Lizaso @btrfly12
Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #CancerSM
Bob Steele @steele_bob
Good evening folks! Bob here in Greensboro, NC. Wife & I both cancer survivors (breast, melanoma) and active lung cancer advocates #cancersm
Dee Sparacio @womenofteal
@advocatemomdad Hi Deb How are you? Thanks for joining us. #CancerSM
Erica Bednar @EMBOSU
Hi all! I'm Erica, cancer #GeneticCounselor focusing on hereditary gynecologic cancers at MD Anderson, looking forward to learning from you all this evening! #CancerSM #gyncsm
GYN Cancer | #GYNCSM @gyncsm
Reminder to #gyncsm - use hashtag #CancerSM to follow all of tonight’s discussion.
GYN Cancer | #GYNCSM @gyncsm
Note - If you prefer to listen only during the chat, we'd love for you to tweet "#CancerSM" when you join - just to let us know you are here.
Bob Steele @steele_bob
Wife rang bell for 2nd time 3 weeks ago. #cancersm
Tanya Temkin @tanyaltee
Hello from Berkeley! Trying to thrive with Stage 4 OvCa and be a research advocate and enjoy non-cancer things too. #cancersm
GYN Cancer | #GYNCSM @gyncsm
Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #CancerSM
Faces of Lung Cancer @LungCancerFaces
Happening now! I’m doing an airport run and can’t join. Please represent #lcsm! The hashtag tonight is #cancersm
Maggie Rogers @magthenomad
Maggie here 👋🏻 stage III pediatric kidney cancer survivor and #lateeffects thriver. Professionally a public health researcher working in palliative care #CancerSM
Lfwohl @Lfwohl1
#CancerSM
Dee Sparacio @womenofteal
@steele_bob That is great news. Glad you could join us tonight . #CancerSM
Dee Sparacio @womenofteal
@tanyaltee Glad to see you again #CancerSM #gyncsm
GYN Cancer | #GYNCSM @gyncsm
The #CancerSM chat promotes community in a public forum. Learn more about risks/benefits via #gyncsm blog: https://t.co/TipZUv1jQy
Sarah Temkin @temkins
I'm a gyn oncologist joining #cancersm #gyncsm
Dee Sparacio @womenofteal
@magthenomad So happy to have you join us tonight! #CancerSM
Dee Sparacio @womenofteal
RT @gyncsm: The #CancerSM chat promotes community in a public forum. Learn more about risks/benefits via #gyncsm blog: The #CancerSM chat promotes community in a public forum. Learn more about risks/benefits via #gyncsm blog: https://t.co/TipZUv1jQy
GYN Cancer | #GYNCSM @gyncsm
Are you new to tweet chats? Follow hashtag #CancerSM and include it in every tweet during the next hour to engage with others about this topic.
Dee Sparacio @womenofteal
RT @gyncsm: Are you new to tweet chats? Follow hashtag #CancerSM and include it in every tweet during the next hour to engage with others about this topic.
Nancy's Point @NancysPoint
Good evening all. Nancy here. Breast cancer blogger/advocate. Looking forward to tonight's chat. #cancersm
Dee Sparacio @womenofteal
Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info. #CancerSM
Dee Sparacio @womenofteal
#CancerSM tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history.
Lfwohl @Lfwohl1
Ovarian cancer survivor. On maintenance Chemotherapy #CancerSM
Dee Sparacio @womenofteal
@NancysPoint Thanks for joining in Nancy and for the great Blog Challenge. #CancerSM
Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN
Hi all! Grace here, cancer rehab nurse researcher. #CancerSM
GYN Cancer | #GYNCSM @gyncsm
Welcome also to all those “listening in”. You can always DM or email us with questions/comments after the chat is over. #CancerSM
Dee Sparacio @womenofteal
@Lfwohl1 Welcome. Glad you are here with us tonight. #gyncsm #CancerSM
GYN Cancer | #GYNCSM @gyncsm
#CancerSM tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history.
Dee Sparacio @womenofteal
@GraceCampbellRN Hi Grace! Thanks for joining us and for the Photo of the Day activity. #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: Welcome also to all those “listening in”. You can always DM or email us with questions/comments after the chat is over. #CancerSM
Erica Bednar @EMBOSU
RT @gyncsm: The next #GYNCSM tweetchat is tonight, Wed Aug 14, 9pmET | 8pmCT | 6pmPT. Note that we'll be using hashtag #CancerSM as we join with other cancer hashtags to discuss "Finding Balance". Learn more: https://t.co/qAaI2Jxkwm https://t.co/DpRNPjXT8d
GYN Cancer | #GYNCSM @gyncsm
Tonight on #CancerSM we are discussing Finding Balance - “Cancer Life” vs. “Real Life”. Reminder to #gyncsm - use hashtag #CancerSM to follow all of tonight’s discussion. Topic 1 (T1:) is coming right up...
Nancy's Point @NancysPoint
@womenofteal Happy to join in & thanks for participating in my challenge. It's a fun one - an example of that balance thing! #cancersm
Dee Sparacio @womenofteal
@vickyyyf @CancerSurvSM Hello Vicky Welcome #CancerSM
GYN Cancer | #GYNCSM @gyncsm
We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of your answer/comment. There are 5 #CancerSM Topic questions tonight followed by a Today I Learned (TIL) segment.
Dee Sparacio @womenofteal
Thank you to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat #CancerSM
Heather 🇺🇸 @ZHeatherChamp
Good evening #CancerSM! I’m pretty medically involved: thyroid cancer survivor, 2 benign brain tumors & craniotomies, prophylactic hysterectomy due to #PTEN mutation. Whew! #btsm #rare
GYN Cancer | #GYNCSM @gyncsm
You can find a list of the upcoming #CancerSM topic questions on our #gyncsm blog page: https://t.co/qAaI2Jxkwm
Dee Sparacio @womenofteal
RT @gyncsm: You can find a list of the upcoming #CancerSM topic questions on our #gyncsm blog page: You can find a list of the upcoming #CancerSM topic questions on our #gyncsm blog page: https://t.co/qAaI2Jxkwm
Maggie Rogers @magthenomad
ALL cancer peeps - not just gyn - join this chat right now! #ayacsm #childhoodcancer
Dee Sparacio @womenofteal
RT @gyncsm: We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of your answer/comment. There are 5 #CancerSM Topic questions tonight followed by a Today I Learned (TIL) segment.
GYN Cancer | #GYNCSM @gyncsm
T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm
Christina Lizaso @btrfly12
RT @gyncsm: T1: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: T1: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm
Susan Said Alghamdi @alghamdi_susan
Hi all Dr Susan Gynaecology oncologist from Saudi Arabia thanks for having me #CancerSM
Christina Lizaso @btrfly12
@ZHeatherChamp Always great to tweet along with you :) #cancersm
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher
Cindy joining a few minutes late. Just got in . I was Dx with #Myeloma in 2008 and In a VGPR on Maintenance therapy #mmsm #cancersm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
Hey there! Gyn Onc from @mdandersonnews - happy to be here (a bit late!) #gyncsm #cancersm
Dee Sparacio @womenofteal
@alghamdi_susan Welcome to the chat ! #CancerSM
Christina Lizaso @btrfly12
Wonderful to see everyone come together on tonight's #CancerSM - Excited to chat with both new and familiar faces.
Dee Sparacio @womenofteal
@MyelomaTeacher You made it! Welcome Cindy. #CancerSM
Carly Flumer (she/her) @carlyflumer
@gyncsm For me, I was working full time and in school for my masters, so I really had to prioritize my health. Cancer is super scary to hear, but the mental aspect is half of it! #bepositive #cancersm
Tanya Temkin @tanyaltee
T1: i think of being able to do what I liked to do with my “old normal “—travel, go out in the evening to concerts, etc. Right now my consciousness is dominated by cancer related thoughts. #cancersm
Hillary (Stires) Andrews, PhD @HillStirSci
@gyncsm Hi! I’m Hillary. I was a basic research scientist for 9 years and have recently moved into health policy (thanks in large part to #bcsm). I’m also a @CancerAdvocacy #elevateambassador connecting basic research scientists and cancer patient advocates through @cancer_TAP! #cancersm
Nancy's Point @NancysPoint
@gyncsm T1: Balance is really hard to find when dxd as cancer sorta takes over your life, yet it's impt to try to find some. #cancersm
Hillary (Stires) Andrews, PhD @HillStirSci
RT @gyncsm: T1: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm
Susan Said Alghamdi @alghamdi_susan
Thank you all for the warm and great welcoming #CancerSM
Bob Steele @steele_bob
T1: We try to enjoy all the small moments, esp. w/kids & grandkids. #cancersm
Carly Flumer (she/her) @carlyflumer
@HillStirSci @gyncsm @CancerAdvocacy @cancer_TAP Hey girl!! So glad to see you here! #cancersm
Christina Lizaso @btrfly12
T1: I always considered myself a previvor due to family history, but after the genetic mutation diagnosis I felt much more urgency to give my own health attention vs. career and young kids #CancerSM
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher
I try to find a balance of cancer related activities- treatment, advocacy, research.... and non- cancer related activities #cancersm
Maggie Rogers @magthenomad
T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s about trying to find ways to do your normal life with it always lingering on the sidelines. #cancersm
Dee Sparacio @womenofteal
@gyncsm T1 It is hard - It took a while after treatment ended to not wake up and have the first thing that came to mind be my cancer dx. So I tried to do things I enjoyed- and had the energy to do/ #CancerSM
Billie Jo Bogden @BogdenJo
RT @btrfly12: Wonderful to see everyone come together on tonight's #CancerSM - Excited to chat with both new and familiar faces.
Tanya Temkin @tanyaltee
T1: ...and trying to move beyond being a patient to being an advocate #cancersm
Christina Lizaso @btrfly12
T1: When scan time comes up every six months, I find it hard to balance the anxiety with other priorities. #CancerSM
Debra Hallisey @advocatemomdad
RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s about trying to find ways to do your normal life with it always lingering on the sidelines. #cancersm
Dee Sparacio @womenofteal
RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s about trying to find ways to do your normal life with it always lingering on the sidelines. #cancersm
GYN Cancer | #GYNCSM @gyncsm
Topic 2 (T2:) coming up... #cancersm
Debra Hallisey @advocatemomdad
RT @tanyaltee: T1: T1: ...and trying to move beyond being a patient to being an advocate #cancersm
Susan Said Alghamdi @alghamdi_susan
I think it is a team work between clinician , patients and health educators , family also plays an important role in the treatment plan #CancerSM
Carly Flumer (she/her) @carlyflumer
@btrfly12 Yes! I have to get my blood tested every 3 months! I share that same anxiety. #cancersm
Dee Sparacio @womenofteal
That is a difficult time for me too. #CancerSM
Christina Lizaso @btrfly12
RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s about trying to find ways to do your normal life with it always lingering on the sidelines. #cancersm
GYN Cancer | #GYNCSM @gyncsm
T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm
Christina Lizaso @btrfly12
RT @gyncsm: T2: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm
Susan Said Alghamdi @alghamdi_susan
RT @tanyaltee: T1: T1: ...and trying to move beyond being a patient to being an advocate #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: T2: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher
@carlyflumer @btrfly12 I have been getting lab work every 4-6 weeks for the last 11 years . I still get nervous awaiting the results #cancersm
Tanya Temkin @tanyaltee
T2: I’m childless and did my elder care before cancer onset #cancersm
Nancy's Point @NancysPoint
T1: Finding balance means something different to each of us. #cancersm
Carly Flumer (she/her) @carlyflumer
@gyncsm Keep a calendar handy! Between work and all of my doctors appts, it can be hard to keep track. Also, your workplace should understand and be willing to give you the time to attend appts and mental health days. #cancersm
Hillary (Stires) Andrews, PhD @HillStirSci
@carlyflumer @gyncsm @CancerAdvocacy @cancer_TAP You too!! 🤗🤗 #cancersm
Sarah Temkin @temkins
If scans are tough it might be worth discussing the value of imaging with your doctor. They might be less necessary than you think for surveillance. All cancer is different #cancersm #gyncsm
Dee Sparacio @womenofteal
@gyncsm T2 When I was in treatment for a recurrence I had to cut back on visiting my elderly Aunt . I ended up ordering her food from PeaPod (stop&Shop) instead of shopping myself #CancerSM
Dee Sparacio @womenofteal
RT @NancysPoint: T1: T1: Finding balance means something different to each of us. #cancersm
Dee Sparacio @womenofteal
RT @carlyflumer: @gyncsm Keep a calendar handy! Between work and all of my doctors appts, it can be hard to keep track. Also, your workplace should understand and be willing to give you the time to attend appts and mental health days. #cancersm
Debra Hallisey @advocatemomdad
RT @womenofteal: @gyncsm T2 When I was in treatment for a recurrence I had to cut back on visiting my elderly Aunt . I ended up ordering her food from PeaPod (stop&Shop) instead of shopping myself #CancerSM
Christina Lizaso @btrfly12
Good point. Plus next MRI I am being clear about how I want results and my expectations. I had my scan July 22 and still have no report. #CancerSM
Erica Bednar @EMBOSU
@carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every few months) #cancersm #gencsm #gyncsm
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher
T2 I try not to do anything cancer related before 10 am or after 7pm and on the weekends Sometimes that is not possible, but that’s my goal #cancersm
TrueFaith_Living✨ @KeepItMovn2
@gyncsm How do I continue this fight and not lose myself in the battle? It’s hard for the diagnosis to not become your new normal. Quite frankly, I just want my life back. #cancersm
Carly Flumer (she/her) @carlyflumer
@SarahTemkin Absolutely! And your doctor should be able and willing to discuss different options with you to help ease anxiety. #cancersm
Maggie Rogers @magthenomad
T2. LOL. 🤷🏼‍♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have to use all of your vacation time. Try not to have a breakdown on the NYC subway, but if you do, it’s okay. #cancersm
Christina Lizaso @btrfly12
RT @NancysPoint: T1: T1: Finding balance means something different to each of us. #cancersm
Debra Hallisey @advocatemomdad
RT @MyelomaTeacher: T2 I try not to do anything cancer related before 10 am or after 7pm and on the weekends Sometimes that is not possible, but that’s my goal #cancersm
Susan Said Alghamdi @alghamdi_susan
RT @EMBOSU: @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every few months) #cancersm #gencsm #gyncsm
Christina Lizaso @btrfly12
RT @magthenomad: T2. LOL. 🤷🏼‍♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have to use all of your vacation time. Try not to have a breakdown on the NYC subway, but if you do, it’s okay. #cancersm
Debra Hallisey @advocatemomdad
RT @magthenomad: T2. LOL. 🤷🏼‍♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have to use all of your vacation time. Try not to have a breakdown on the NYC subway, but if you do, it’s okay. #cancersm
Dawn Ford @tealbtrflies4me
@carlyflumer @gyncsm Yes absolutely!! I was so thankful my workplace allowed me to work from home if I felt up to it. Never once did they say anything about my schedule. I was so thankful they were so understanding. #cancersm
Maggie Rogers @magthenomad
RT @EMBOSU: @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every few months) #cancersm #gencsm #gyncsm
Dee Sparacio @womenofteal
Great advice! #CancerSM
Tanya Temkin @tanyaltee
T2: setting boundaries in your own life is a real skill! I’m still learning. #cancersm
Maggie Rogers @magthenomad
RT @DawnHribalFord: @carlyflumer @gyncsm Yes absolutely!! I was so thankful my workplace allowed me to work from home if I felt up to it. Never once did they say anything about my schedule. I was so thankful they were so understanding. #cancersm
Dee Sparacio @womenofteal
@KeepItMovn2 @gyncsm I felt the same way when I was in treatment. I felt I had no control. Totally understand #CancerSM
Christina Lizaso @btrfly12
I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #CancerSM
Shannon Westin, MD, MPH, FASCO @ShannonWestin
RT @EMBOSU: @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every few months) #cancersm #gencsm #gyncsm
Tanya Temkin @tanyaltee
RT @btrfly12: I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #CancerSM
Nancy's Point @NancysPoint
Think we all are! RT @tanyaltee: T2: setting boundaries in your own life is a real skill! I’m still learning. #cancersm
GYN Cancer | #GYNCSM @gyncsm
T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activity? #cancersm
Dani Taylor (She/Her) @danimarietaylor
@gyncsm Hi! I'm Dani. 5 years ago I finished treatment for colorectal cancer. I'm now a social worker working for the amazing @yacancercanada. They're an organization that support #ayacancer patients in Canada with a range of programming. #CancerSM
Henning Willers, MD @HenningWillers
@carlyflumer @SarahTemkin just strolling by this chat ... ask whether your doctor may be willing to see you right after imaging to do a prelim review, so you don't have to go home and be anxious and wait for results/next visit (we typically offer surveillance CT and visit same day) #cancersm
Dee Sparacio @womenofteal
I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM
Christina Lizaso @btrfly12
RT @gyncsm: T3: T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activity? #cancersm
Amanda Crowell Itliong @MIShouldTalk
T2: Since my 3rd recurrence I’ve been disabled and spend my extra time/energy volunteering. Focusing on cancer related work means they understand when I’m sick. #cancersm
Shannon Westin, MD, MPH, FASCO @ShannonWestin
T3: There are growing data to support exercise to prevent cancer recurrence - and you get the bonus of stress relief!! #gyncsm #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: T3: T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activity? #cancersm
Tanya Temkin @tanyaltee
T2: yes!! And expectations can be different but not lowered. #cancersm
Carly Flumer (she/her) @carlyflumer
@gyncsm I remained exercising because I knew it was important. It helped keep my energy up and I felt strong even though I was going through something that made me feel weak mentally. #cancersm
Dee Sparacio @womenofteal
@danimarietaylor @gyncsm @yacancercanada Welcome Dani! So happy you could join in tonight. #CancerSM
Maggie Rogers @magthenomad
T3. I defer to those that have memories before cancer... #childhoodcancer problems. But when I started getting secondary skin cancers, I became very vigilant about sun screen (even in the winter!) every day #cancersm
Lfwohl @Lfwohl1
I was an avid tennis player and gave it up as I am too tired. Not liking my new normal #CancerSM
Nancy's Point @NancysPoint
Same here! Few chats RT @womenofteal: I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM
Dee Sparacio @womenofteal
@HenningWillers @carlyflumer @SarahTemkin Feel free to stay a while..#CancerSM
Christina Lizaso @btrfly12
Giving yourself permission to say "no" to things and choosing who to surround yourself with becomes more important. #cancersm
Heather 🇺🇸 @ZHeatherChamp
RT @gyncsm: T2: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm
Dee Sparacio @womenofteal
RT @ShannonWestin: T3: T3: There are growing data to support exercise to prevent cancer recurrence - and you get the bonus of stress relief!! #gyncsm #cancersm
Maggie Rogers @magthenomad
@HenningWillers @carlyflumer @SarahTemkin ... wait... is that a legit option? My last breast MRI, I literally got results in the mail about needing a biopsy before a human doctor even called me back. #cancersm
Monica Bryant, Esq. @CancerAttorney
T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state leave, etc. sometimes it can feel like asking for a favor, but those who are eligible should remember it’s a right! @TriageCancer has resources to help! #CancerSM
Dee Sparacio @womenofteal
T2 I didn't exercise during my initial treatment but did during treatment for my recurrence. What a difference that made. #CancerSM
Your Fav Virtual Doctor 🩺 @DrCSWilliam
RT @ShannonWestin: T3: T3: There are growing data to support exercise to prevent cancer recurrence - and you get the bonus of stress relief!! #gyncsm #cancersm
Christina Lizaso @btrfly12
RT @womenofteal: I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM
Tanya Temkin @tanyaltee
T3: Eatingwas something I did when I had an appetite. Gave up coffee, alcohol, and eventually red meat. But I still indulge from time to time in the best pork adobo and pancit I’ve ever had. #cancersm
Heather 🇺🇸 @ZHeatherChamp
@gyncsm A1: I had no idea, in 2003, how DIFFICULT it would be to find balance. I still haven’t found it yet! #CancerSM
Dee Sparacio @womenofteal
RT @magthenomad: T3. I defer to those that have memories before cancer... #childhoodcancer problems. But when I started getting secondary skin cancers, I became very vigilant about sun screen (even in the winter!) every day #cancersm
Debra Hallisey @advocatemomdad
RT @NavSurvivorship: T2: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state leave, etc. sometimes it can feel like asking for a favor, but those who are eligible should remember it’s a right! @TriageCancer has resources to help! #CancerSM
Susan Said Alghamdi @alghamdi_susan
I think as clinicians we need to help our patients to creat a form of balance between cancer and life , we need to focus more on their emotional needs rather than focusing on scans and blood tests #CancerSM
Christina Lizaso @btrfly12
RT @NavSurvivorship: T2: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state leave, etc. sometimes it can feel like asking for a favor, but those who are eligible should remember it’s a right! @TriageCancer has resources to help! #CancerSM
Alicia C. Staley @stales
RT @gyncsm: T2: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm
Dee Sparacio @womenofteal
@Lfwohl1 It sure is tough giving up things - my friend switched to pickle ball - a bit easier for them. #CancerSM
Alicia C. Staley @stales
RT @gyncsm: T1: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm
Maggie Rogers @magthenomad
@NavSurvivorship @TriageCancer @CancerAndCareer is another great one for that type of info #cancersm
Alicia C. Staley @stales
RT @womenofteal: @gyncsm T1 It is hard - It took a while after treatment ended to not wake up and have the first thing that came to mind be my cancer dx. So I tried to do things I enjoyed- and had the energy to do/ #CancerSM
Christina Lizaso @btrfly12
RT @alghamdi_susan: I think as clinicians we need to help our patients to creat a form of balance between cancer and life , we need to focus more on their emotional needs rather than focusing on scans and blood tests #CancerSM
Alicia C. Staley @stales
RT @NancysPoint: @gyncsm T1: @gyncsm T1: Balance is really hard to find when dxd as cancer sorta takes over your life, yet it's impt to try to find some. #cancersm
Debra Hallisey @advocatemomdad
RT @alghamdi_susan: I think as clinicians we need to help our patients to creat a form of balance between cancer and life , we need to focus more on their emotional needs rather than focusing on scans and blood tests #CancerSM
Dee Sparacio @womenofteal
RT @btrfly12: Giving yourself permission to say "no" to things and choosing who to surround yourself with becomes more important. #cancersm
Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN
T3: Also some evidence that exercise helps mitigate treatment-related symptoms (fatigue, poor balance, etc). #gyncsm #cancersm
Dee Sparacio @womenofteal
RT @NavSurvivorship: T2: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state leave, etc. sometimes it can feel like asking for a favor, but those who are eligible should remember it’s a right! @TriageCancer has resources to help! #CancerSM
Henning Willers, MD @HenningWillers
@magthenomad @carlyflumer @SarahTemkin I'd say it depends on imaging type and your doc. For breast MRI I honestly do not know. It may not be possible to get a immediate read and visit I offer same day chest CT or brain MRI (and occasionally PET) for #lungcancer and visit right after #cancersm
Nancy's Point @NancysPoint
T3: You gotta cut yourself some slack. Exercise is always important. As is healthy eating. Sometimes neither is doable. That's ok. #cancersm
GYN Cancer | #GYNCSM @gyncsm
Topic 4 (T4:) coming up... #cancersm https://t.co/qAaI2Jxkwm
Heather 🇺🇸 @ZHeatherChamp
@gyncsm A2: Just started a new job in April. First job since brain tumor in 2011, I’m terrified how my appts and scheduling will progress. 🙏🏻 #btsm #pten #CancerSM
Debra Hallisey @advocatemomdad
RT @NancysPoint: T3: T3: You gotta cut yourself some slack. Exercise is always important. As is healthy eating. Sometimes neither is doable. That's ok. #cancersm
Dee Sparacio @womenofteal
RT @alghamdi_susan: I think as clinicians we need to help our patients to creat a form of balance between cancer and life , we need to focus more on their emotional needs rather than focusing on scans and blood tests #CancerSM
TrueFaith_Living✨ @KeepItMovn2
@gyncsm T2: I’m still on treatment but working full-time to keep benefits for myself and two kids. We self-schedule so I don’t schedule myself on clinic days and no more than 2 shifts in a row. I also schedule 4-5 days off in a row at least once a month. #cancersm
Dee Sparacio @womenofteal
RT @magthenomad: @NavSurvivorship @TriageCancer @CancerAndCareer is another great one for that type of info #cancersm
Maggie Rogers @magthenomad
@tanyaltee Casually drinking red wine during this chat 🍷 we all gotta have something! #cancersm
Bob Steele @steele_bob
Exercise has become a huge challenge for JoAnn due to severe chronic spine pain and weight gain from steroids. Need a trainer. #cancersm
Dee Sparacio @womenofteal
T3 After my recurrence we got a dog - big step for me . She is full of energy so we started doing agility. She is much faster than I am and I don't have to jump over obstacles. #CancerSM
GYN Cancer | #GYNCSM @gyncsm
T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #cancersm
Amanda Crowell Itliong @MIShouldTalk
T3 I’ve had to adjust my food and exercise based on what I’m able to eat and do because of treatments/surgery. It would be awesome if I could always get better at exercise, but brain tumors have caused falls. #cancersm
Dani Taylor (She/Her) @danimarietaylor
@gyncsm How I find balance is forever changing. I, like many, have found a career in onc. after my own dx. It complicates how I find my balance. RN, it's less about finding 'cancer-free' spaces & more being at peace with the many feelings of cancer (including good ones). #cancersm
Susan Said Alghamdi @alghamdi_susan
Good news from our cancer clinic, I have many survivors who passed the five years survivorship and graduated from our cancer clinic with honour #CancerSM
Tanya Temkin @tanyaltee
T3: The NP on my Onc team says “ moderation in all things...including moderation m”
Dee Sparacio @womenofteal
@magthenomad @tanyaltee I am drinking Earl Grey Tea. #CancerSM
Dani Taylor (She/Her) @danimarietaylor
@magthenomad Love this, Maggie. #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: T4: T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #cancersm
Christina Lizaso @btrfly12
T3: Seeing a nutritionist is on my list after adding a Thyroid scan baseline to my health list. I've been slowing taking care of things since diagnosis but a little slower than I should be. #cancersm
Alexa Jett 🦋 @ohhiialexa
T3: Actually, pre-diagnosis I started making changes. There was about a 2.5 month gap from real suspicion to starting treatment. I wanted to be in a good place before I got there, so I started taking diet and exercise seriously. #cancersm
Carly Flumer (she/her) @carlyflumer
@gyncsm I was scared at first to share anything. But I slowly started to share on social media, and I got so much support. I enjoy sharing my #cancerjourney story and hearing others! #cancersm
Christina Lizaso @btrfly12
RT @danimarietaylor: @gyncsm How I find balance is forever changing. I, like many, have found a career in onc. after my own dx. It complicates how I find my balance. RN, it's less about finding 'cancer-free' spaces & more being at peace with the many feelings of cancer (including good ones). #cancersm
Christina Lizaso @btrfly12
RT @gyncsm: T4: T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #cancersm
Heather 🇺🇸 @ZHeatherChamp
@gyncsm A4: I talk about the brain tumors A LOT. I think it freaks ppl out, but I gotta talk abt them. Also talk about breast cancer risk too. There’s more than BRCA & I’m gonna say it! LOL 😉 #btsm #bcsm #pten #CancerSM
Dee Sparacio @womenofteal
T3: I had a few gastro issues after treatment - found I needed to add more fiber to my diet. That made a big difference #CancerSM
Christina Lizaso @btrfly12
RT @womenofteal: T3 After my recurrence we got a dog - big step for me . She is full of energy so we started doing agility. She is much faster than I am and I don't have to jump over obstacles. #CancerSM
Nancy's Point @NancysPoint
T4: Surprisingly perhaps, not that much. Not sure if many read my blog even. #cancersm
Dee Sparacio @womenofteal
RT @danimarietaylor: @gyncsm How I find balance is forever changing. I, like many, have found a career in onc. after my own dx. It complicates how I find my balance. RN, it's less about finding 'cancer-free' spaces & more being at peace with the many feelings of cancer (including good ones). #cancersm
Heather 🇺🇸 @ZHeatherChamp
@megsnuggets @gyncsm Love that! #CancerSM
Susan Said Alghamdi @alghamdi_susan
Great
Tanya Temkin @tanyaltee
T4: hard to say. Most people I know have personal experience of cancer or a family member with cancer...or they are previvors! #cancersm
Dee Sparacio @womenofteal
RT @ohhiialexa: T3: T3: Actually, pre-diagnosis I started making changes. There was about a 2.5 month gap from real suspicion to starting treatment. I wanted to be in a good place before I got there, so I started taking diet and exercise seriously. #cancersm
Flemming Rasmussen @fgrazz
@steele_bob Awesome to hear #cancersm
Monica Bryant, Esq. @CancerAttorney
@NancysPoint We read it! #cancersm
Dee Sparacio @womenofteal
@NancysPoint I do !!!! #CancerSM
Dani Taylor (She/Her) @danimarietaylor
@gyncsm I've been privileged that all of my employers in my post-cancer career have known about and valued my diagnosis. While it is still challenging to schedule around heavy screening periods, I've been able to figure out accommodations that make sense. That is a big help. #cancersm
Heather 🇺🇸 @ZHeatherChamp
@MIShouldTalk Do you have a brain tumor? #CancerSM
Nancy's Point @NancysPoint
Have you looked into LiveStrong at the Y? RT @steele_bob: Exercise has become a huge challenge for JoAnn...Need a trainer. #cancersm
Maggie Rogers @magthenomad
T4. Very little. Except in writing (twitter, blogs) but usually strangers are reading those. Absolutely NOTHING about my experiences with #lateeffects. It freaks people out (cancer from cancer treatment?) and I’m still emotional talking about it #cancersm
Dawn Ford @tealbtrflies4me
@gyncsm I tell my hubby whatever I am thinking or feeling. With my Mom and Grandmother I am more reserved. They understand but also don't understand. They can take things out of context which just creates more issues that I don't want to have to deal with. #cancersm
Bob Steele @steele_bob
T4: We're both active lung cancer advocates. Don't miss many opps to talk about cancer research funding. :) #cancersm
Dee Sparacio @womenofteal
T4 When we moved a few years ago I didn't tell anyone about my dx even as my advocacy work increased. Eventually though I I shared my story. #CancerSM
Tanya Temkin @tanyaltee
Y yo tambien!
Dani Taylor (She/Her) @danimarietaylor
@btrfly12 Oh, I'm familiar with this waiting game. The worst! #cancersm
Susan Said Alghamdi @alghamdi_susan
I think sharing will make a huge difference , especially with loved ones #CancerSM
Nancy's Point @NancysPoint
Well, thank you! RT @NavSurvivorship We read it! #cancersm
Monica Bryant, Esq. @CancerAttorney
Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and people should be empowered to know they have choices! https://t.co/ltMxWp6ZBd #cancersm
Dee Sparacio @womenofteal
Great suggestion. Or @CancerSupportHQ has some after treatment programs #CancerSM
Christina Lizaso @btrfly12
T4: I used to kinda keep cancer-land on Twitter and other on Facebook but they both blur now. In person, I sometimes chat about. I do go online mostly to converse with those who "get it". #cancersm
Christina Lizaso @btrfly12
RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and people should be empowered to know they have choices! https://t.co/ltMxWp6ZBd #cancersm
Debra Hallisey @advocatemomdad
RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and people should be empowered to know they have choices! https://t.co/ltMxWp6ZBd #cancersm
Cancer Hope Network @CancerHopeNet
So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps others. #cancersm
Alexa Jett 🦋 @ohhiialexa
T4: At this point, I share everything. As a #thyroidcancer AND #ayacancer patient, there are unfortunate myths like “good cancer” or “it’s easier when you’re young”. I have to step up and be part of the culture change! #cancersm
Dee Sparacio @womenofteal
RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and people should be empowered to know they have choices! https://t.co/ltMxWp6ZBd #cancersm
Dee Sparacio @womenofteal
RT @btrfly12: T4: T4: I used to kinda keep cancer-land on Twitter and other on Facebook but they both blur now. In person, I sometimes chat about. I do go online mostly to converse with those who "get it". #cancersm
Maggie Rogers @magthenomad
T4. I also tried to be shady and not tell anyone at work but I outed myself bc of Twitter and essentially got outed by a coworker with good intentions. I work in cancer-related heath-care so it’s complicated. I don’t want to speak about my personal trauma at work #cancersm
Dee Sparacio @womenofteal
RT @CancerHopeNet: So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps others. #cancersm
GYN Cancer | #GYNCSM @gyncsm
T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, personal needs, work needs and a desire to advocate for yourself and others? #cancersm
Dani Taylor (She/Her) @danimarietaylor
@gyncsm This has been a big challenge for me! During my time with my tumour and in treatment, eating was extremely hard. My emotional relationship with food has intensified, which is something I wouldn't have predicted during treatment. #cancersm
Nancy's Point @NancysPoint
Aw, thanks, Dee. Was referring to my family. Just a couple read as far as I know. Rarely discuss cancer. RT @womenofteal I do !!! #CancerSM
Carly Flumer (she/her) @carlyflumer
@ohhiialexa I am both of those, too!! “Good cancer” drives me crazy!!!! We gotta stick together. ❤️ #cancersm
Cancer Hope Network @CancerHopeNet
RT @btrfly12: I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #CancerSM
Tanya Temkin @tanyaltee
T4: I’ve been re-establishing relationships with extended family I haven’t seen in years! I’m more interested in what’s happening in their lives than talking to them about cancer. But I’ve discussed BRCA with each of them. #cancersm
Bob Steele @steele_bob
@NancysPoint @steele_bob Prior to recent recurrence/illness we went to a gym via Silver Sneakers. Need a specialist trainer now. #cancersm
Debra Hallisey @advocatemomdad
RT @tanyaltee: T4: T4: I’ve been re-establishing relationships with extended family I haven’t seen in years! I’m more interested in what’s happening in their lives than talking to them about cancer. But I’ve discussed BRCA with each of them. #cancersm
Christina Lizaso @btrfly12
RT @CancerHopeNet: So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps others. #cancersm
Cancer Hope Network @CancerHopeNet
@womenofteal So glad you make an exception! The #cancersm apqce is better for it! 🥰
Dee Sparacio @womenofteal
@ohhiialexa Thank you - I am sure your story and will help change things. #CancerSM
Dee Sparacio @womenofteal
RT @gyncsm: T5: T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, personal needs, work needs and a desire to advocate for yourself and others? #cancersm
Christina Lizaso @btrfly12
RT @gyncsm: T5: T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, personal needs, work needs and a desire to advocate for yourself and others? #cancersm
@MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher
T4 Being an advocate I openly share with anyone who is interested. I try not to clog up my personal FB page with all Myeloma stuff. I’ve created a separate Myeloma page.#cancersm
Alexa Jett 🦋 @ohhiialexa
RT @btrfly12: T1: T1: When scan time comes up every six months, I find it hard to balance the anxiety with other priorities. #CancerSM
Nancy's Point @NancysPoint
@steele_bob Hope you can find a good, qualified trainer then. #cancersm
Carly Flumer (she/her) @carlyflumer
@gyncsm I was scared to research anything when I was diagnosed. Now that I’m in remission, I’m doing a lot more research online, listening to podcasts, & networking with the #cancercommunity (LOVE!). I’m looking forward to a future in #patientengagement! #cancersm
Dani Taylor (She/Her) @danimarietaylor
@gyncsm It's not a secret and when it has benefit for advocacy and similar causes, I'm happy to provide a patient voice. But I know my boundaries. You'll rarely hear me talk about my partner and my family in relation to cancer. That part is for me. #cancersm
Dee Sparacio @womenofteal
T5 I went to a @livestrong survivor summit a year after my dx and my volunteering and advocacy grew from that experience. I learned I could make a difference and knowledge was powerful #cancersm
Debra Hallisey @advocatemomdad
Knowledge IS power.
Tanya Temkin @tanyaltee
T5: I had to stop working because of cumulative effects of chemo, brain surgery (benign meningioma) and PTSD. Before that I was a data analyst and managed research projects. Research Advocacy is how I can benefit myself and others #cancersm
GYN Cancer | #GYNCSM @gyncsm
Really loved having you all join along for #cancersm We like to wrap up by share closing thoughts on the chat topic. You can start your tweet with “TIL:” standing for Today I Learned...
Alexa Jett 🦋 @ohhiialexa
T5: Exactly 2 years! I went from not wanting to talk about it at all, to realizing I needed to. I’m still trying to figure out the balance part. But hey, aren’t we all? 😉#cancersm
Triage Cancer @TriageCancer
@tanyaltee Good for you! If you’re ever interested in other types of advocacy check out https://t.co/vqYCgT8cE5 #cancersm
Dani Taylor (She/Her) @danimarietaylor
@gyncsm During my dx, I performed some stand-up about it as a way to battle my shame around a colorectal dx. Then, quiet when I felt lost in the hurt. After attending a retreat with @yacancercanada almost 2 years after my dx, it really activated me as a patient voice. #cancersm
Dee Sparacio @womenofteal
@danimarietaylor @gyncsm It is important that you make those decisions about how and what to share. I always ask if my family members want to take part in advocacy events- walks, dinners . And if they say no I am not disappointed . #CancerSM
Dee Sparacio @womenofteal
RT @tanyaltee: T5: T5: I had to stop working because of cumulative effects of chemo, brain surgery (benign meningioma) and PTSD. Before that I was a data analyst and managed research projects. Research Advocacy is how I can benefit myself and others #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: Really loved having you all join along for #cancersm We like to wrap up by share closing thoughts on the chat topic. You can start your tweet with “TIL:” standing for Today I Learned...
Sarah Cassidy @CassidyFish2
@magthenomad That “but if you do, it’s ok” fits for so many situations. Give yourself grace. #cancersm
Christina Lizaso @btrfly12
Advocate burnout is real - for your own care and in your more general patient advocacy. @JBBC is doing some writing on this. Important topic. #cancersm
Susan Said Alghamdi @alghamdi_susan
TIL: How great are our patients , they gave us hope , peace and love #CancerSM
Bob Steele @steele_bob
We raised $198K at our Greensboro 5K last Nov. We'll exceed $200K this year. It's our 12th year and the funding has grown every yr #cancersm
Debra Hallisey @advocatemomdad
RT @CassidyFish2: @magthenomad That “but if you do, it’s ok” fits for so many situations. Give yourself grace. #cancersm
Christina Lizaso @btrfly12
RT @womenofteal: @danimarietaylor @gyncsm It is important that you make those decisions about how and what to share. I always ask if my family members want to take part in advocacy events- walks, dinners . And if they say no I am not disappointed . #CancerSM
Heather 🇺🇸 @ZHeatherChamp
TIL (relearned) - that I’m not alone! #CancerSM
Christina Lizaso @btrfly12
@steele_bob Awesome! #cancersm
Maggie Rogers @magthenomad
T5. I was the face of #childhoodcancer - always accepting invites to speak. After #lateeffects from tx, I didn't speak about it for 7 years. I felt like I failed survivorship. Now you can find me angry tweeting about cancer and NOT talking to my family/friends about it #cancersm
Maggie Rogers @magthenomad
RT @btrfly12: Advocate burnout is real - for your own care and in your more general patient advocacy. @JBBC is doing some writing on this. Important topic. #cancersm
Tanya Temkin @tanyaltee
TIL: how people accept cancer as part of their experience but don’t let it define them!! #cancersm
Susan Said Alghamdi @alghamdi_susan
RT @ZHeatherChamp: TIL (relearned) - that I’m not alone! #CancerSM
Debra Hallisey @advocatemomdad
RT @tanyaltee: TIL: TIL: how people accept cancer as part of their experience but don’t let it define them!! #cancersm
Nancy's Point @NancysPoint
Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at a time. #cancersm
Erica Bednar @EMBOSU
TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important consideration for anyone whose life is touched by cancer: from previvors to those no longer in active treatment/survivorship #cancersm #endcancer
Maggie Rogers @magthenomad
@danimarietaylor @gyncsm @yacancercanada I had a similar experience after participating in @FirstDescents - all of a sudden my voice was empowered and my story was important. #cancersm
Bob Steele @steele_bob
RT @ZHeatherChamp: TIL (relearned) - that I’m not alone! #CancerSM
Dee Sparacio @womenofteal
TIL That although we have different types of cancer we all deal with the same issues- balancing parts of our life, anxiety about test results and finding what brings happiness in our lives. #cancersm
Bob Steele @steele_bob
RT @NancysPoint: Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at a time. #cancersm
Debra Hallisey @advocatemomdad
RT @EMBOSU: TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important consideration for anyone whose life is touched by cancer: from previvors to those no longer in active treatment/survivorship #cancersm #endcancer
Susan Said Alghamdi @alghamdi_susan
TIL:Remission is living peaceful life , wish you all a peaceful life that you strongly deserve, bless you 🙏🏻 #CancerSM
Bob Steele @steele_bob
RT @alghamdi_susan: TIL:Remission is living peaceful life , wish you all a peaceful life that you strongly deserve, bless you 🙏🏻 #CancerSM
Christina Lizaso @btrfly12
Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change things up, take breaks, let some things go. :) #cancersm
Susan Said Alghamdi @alghamdi_susan
RT @womenofteal: TIL That although we have different types of cancer we all deal with the same issues- balancing parts of our life, anxiety about test results and finding what brings happiness in our lives. #cancersm
Carly Flumer (she/her) @carlyflumer
@magthenomad @danimarietaylor @gyncsm @yacancercanada @FirstDescents I have thought about doing an even with them! Did you like it? #cancersm
Debra Hallisey @advocatemomdad
RT @btrfly12: Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change things up, take breaks, let some things go. :) #cancersm
Dee Sparacio @womenofteal
RT @btrfly12: Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change things up, take breaks, let some things go. :) #cancersm
Nancy's Point @NancysPoint
Thanks everybody. Enjoyed the chat. TY, @btrfly12 & @womenofteal. Good night! #cancersm
Sarah Cassidy @CassidyFish2
Such a good reminder for those of us who “mean well.” Let your friend/colleague/family member dictate. Sit on your hands, delete drafts and tape your mouth if you need to! Sometimes, #love is silence. #cancersm
Alexa Jett 🦋 @ohhiialexa
Not so much a TIL, but more “today I am reminded” that we all struggle and are trying to navigate the aftermath of cancer. I am so thankful for this #cancersm chat for the connection and encouragement! Let’s keep working together!! ❤️
Dani Taylor (She/Her) @danimarietaylor
@magthenomad @gyncsm @yacancercanada @FirstDescents Absolutely! My role at @yacancercanada has been to organize a program called #yacctivist that is centred around sharing more of the #ayacancer voice. Tomorrow, 15 people from across Canada are flying in for a training weekend in Toronto. I'm so excited!! #cancersm
GYN Cancer | #GYNCSM @gyncsm
Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla
Dee Sparacio @womenofteal
RT @gyncsm: Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla
Bob Steele @steele_bob
Best to all! Hope to see you again next month. #cancersm
Bob Steele @steele_bob
RT @gyncsm: Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla
Sarah Cassidy @CassidyFish2
@NancysPoint Me too! It’s amazing! #cancersm
Dee Sparacio @womenofteal
Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #CancerSM #gyncsm
Dani Taylor (She/Her) @danimarietaylor
@carlyflumer @magthenomad @gyncsm @yacancercanada @FirstDescents I have only heard excellent feedback about @FirstDescents programming! Haven't been myself, but have many friends that are head-over-heels for them. #cancersm #ayacsm
GYN Cancer | #GYNCSM @gyncsm
September is Childhood Cancer Awareness and Gynecologic Cancer Awareness. Probably others too? Feel free to share any upcoming educational campaigns so we can all support. #CancerSM
Dee Sparacio @womenofteal
RT @gyncsm: September is Childhood Cancer Awareness and Gynecologic Cancer Awareness. Probably others too? Feel free to share any upcoming educational campaigns so we can all support. #CancerSM
Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN
RT @gyncsm: Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla
GYN Cancer | #GYNCSM @gyncsm
As always, remember to tweet things of interest with cancer hashtags to keep the conversation going between chats. #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm #CancerSM
Dawn Ford @tealbtrflies4me
@gyncsm TIL: I am not alone. Also that I may never be able to balance everything I want to. It can be tough at times but I just have to keep putting one foot in front of the other. I will just take it one day at a time. #cancersm
Susan Said Alghamdi @alghamdi_susan
Great , thanks
Dee Sparacio @womenofteal
Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #CancerSM
Tanya Temkin @tanyaltee
What a breadth of professional and personal experience is reflected here. Thanks to all and to our very capable moderators. #cancersm
Dee Sparacio @womenofteal
RT @DawnHribalFord: @gyncsm TIL: @gyncsm TIL: I am not alone. Also that I may never be able to balance everything I want to. It can be tough at times but I just have to keep putting one foot in front of the other. I will just take it one day at a time. #cancersm
Dee Sparacio @womenofteal
RT @gyncsm: As always, remember to tweet things of interest with cancer hashtags to keep the conversation going between chats. #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm #CancerSM
Bob Steele @steele_bob
RT @tanyaltee: What a breadth of professional and personal experience is reflected here. Thanks to all and to our very capable moderators. #cancersm
Christina Lizaso @btrfly12
RT @ohhiialexa: Not so much a TIL, but more “today I am reminded” that we all struggle and are trying to navigate the aftermath of cancer. I am so thankful for this #cancersm chat for the connection and encouragement! Let’s keep working together!! ❤️
Dee Sparacio @womenofteal
@tanyaltee Thank you for joining in and offering you insights. #CancerSM
Susan Said Alghamdi @alghamdi_susan
Thanks for the spirit
Shannon Westin, MD, MPH, FASCO @ShannonWestin
Thank you @womenofteal and @btrfly12
Christina Lizaso @btrfly12
RT @womenofteal: TIL That although we have different types of cancer we all deal with the same issues- balancing parts of our life, anxiety about test results and finding what brings happiness in our lives. #cancersm
TrueFaith_Living✨ @KeepItMovn2
This!!!!!!
Christina Lizaso @btrfly12
RT @EMBOSU: TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important consideration for anyone whose life is touched by cancer: from previvors to those no longer in active treatment/survivorship #cancersm #endcancer
Christina Lizaso @btrfly12
RT @NancysPoint: Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at a time. #cancersm
GYN Cancer | #GYNCSM @gyncsm
September is also Thyroid Cancer Awareness Month #cancersM
Dee Sparacio @womenofteal
Thanks @btrfly12 for the great job moderating tonight . A pleasure working with you. #gyncsm #CancerSM
Cancer Hope Network @CancerHopeNet
Miss part of the #cancersm chat like we did? Check out @womenofteal’s recap or start scrolling!
Dani Taylor (She/Her) @danimarietaylor
@tanyaltee Absolutely! Great tweetchat, sad to have come in late but grateful to have taken part. Thank you! #cancersm
GYN Cancer | #GYNCSM @gyncsm
Thank you everyone for sharing of yourself on tonight's #cancersm chat.
Susan Said Alghamdi @alghamdi_susan
Thanks for having me , I am glad
Sarah Temkin @temkins
RT @ShannonWestin: Thank you @womenofteal and @btrfly12
Dee Sparacio @womenofteal
RT @gyncsm: Thank you everyone for sharing of yourself on tonight's #cancersm chat.
Dee Sparacio @womenofteal
@danimarietaylor @tanyaltee We're glad you were able to stop by. #CancerSM
Christina Lizaso @btrfly12
RT @gyncsm: Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla
#cancersm content from Twitter.