#cancersm Transcript
Healthcare social media transcript of the #cancersm hashtag.
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See #cancersm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | GYN Cancer | #GYNCSM @gyncsm Welcome to #CancerSM - a passionate group of cancer survivors, caregivers, advocates and health care providers. |
| GYN Cancer | #GYNCSM @gyncsm A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll be using #CancerSM for tonight’s chat. |
 | Christina Lizaso @btrfly12 RT @gyncsm: Welcome to #CancerSM - a passionate group of cancer survivors, caregivers, advocates and health care providers. |
| Christina Lizaso @btrfly12 RT @gyncsm: A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll… |
| GYN Cancer | #GYNCSM @gyncsm Behind #gyncsm are co-moderators @womenofteal @btrfly12 health care moderators @ShannonWestin @temkins @journeycancer and mental health moderator @DrBeckerSchutte #CancerSM |
 | Dee Sparacio @womenofteal Note for #gyncsm - Please join us tonight using #CancerSM as we collaborate with other cancer hashtag |
| Dee Sparacio @womenofteal RT @gyncsm: A special welcome to those joining from this chat’s collaborating communities: #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm. We’ll… |
| GYN Cancer | #GYNCSM @gyncsm We’ll start out with brief intro’s - Please take a moment to introduce yourself. #CancerSM |
| Dee Sparacio @womenofteal Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm #CancerSM |
 | Carly Flumer (she/her) @carlyflumer @gyncsm Hi! I'm Carly - a #thyroidcancer survivor. :) #cancersm |
 | Debra Hallisey @advocatemomdad Deb Hallisey here from Advocate for Mom and Dad. Certified Caregiving Consultant who focuses on the patient's caregiver(s). #CancerSM |
| Christina Lizaso @btrfly12 Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #CancerSM |
| Dee Sparacio @womenofteal @carlyflumer @gyncsm Welcome Carly! Glad you are joining us! #CancerSM |
 | Bob Steele @steele_bob Good evening folks! Bob here in Greensboro, NC. Wife & I both cancer survivors (breast, melanoma) and active lung cancer advocates #cancersm |
| Dee Sparacio @womenofteal @advocatemomdad Hi Deb How are you? Thanks for joining us. #CancerSM |
 | Erica Bednar @EMBOSU Hi all! I'm Erica, cancer #GeneticCounselor focusing on hereditary gynecologic cancers at MD Anderson, looking forward to learning from you all this evening! #CancerSM #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm Reminder to #gyncsm - use hashtag #CancerSM to follow all of tonight’s discussion. |
| GYN Cancer | #GYNCSM @gyncsm Note - If you prefer to listen only during the chat, we'd love for you to tweet "#CancerSM" when you join - just to let us know you are here. |
| Bob Steele @steele_bob Wife rang bell for 2nd time 3 weeks ago. #cancersm |
 | Tanya Temkin @tanyaltee Hello from Berkeley! Trying to thrive with Stage 4 OvCa and be a research advocate and enjoy non-cancer things too. #cancersm |
| GYN Cancer | #GYNCSM @gyncsm Please continue intro's and welcomes - we'll start in w/ the "ground rules" :) and tips! #CancerSM |
| @LungCancerFaces Happening now! I’m doing an airport run and can’t join. Please represent #lcsm! The hashtag tonight is #cancersm | |
 | Maggie Rogers @magthenomad Maggie here 👋🏻 stage III pediatric kidney cancer survivor and #lateeffects thriver. Professionally a public health researcher working in palliative care #CancerSM |
 | Lfwohl @Lfwohl1 #CancerSM |
| Dee Sparacio @womenofteal @steele_bob That is great news. Glad you could join us tonight . #CancerSM |
| Dee Sparacio @womenofteal @tanyaltee Glad to see you again #CancerSM #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm The #CancerSM chat promotes community in a public forum. Learn more about risks/benefits via #gyncsm blog: https://t.co/TipZUv1jQy |
 | Sarah Temkin @temkins I'm a gyn oncologist joining #cancersm #gyncsm |
| Dee Sparacio @womenofteal @magthenomad So happy to have you join us tonight! #CancerSM |
| GYN Cancer | #GYNCSM @gyncsm Are you new to tweet chats? Follow hashtag #CancerSM and include it in every tweet during the next hour to engage with others about this topic. |
| Dee Sparacio @womenofteal RT @gyncsm: Are you new to tweet chats? Follow hashtag #CancerSM and include it in every tweet during the next hour to engage with others a… |
 | Nancy's Point @NancysPoint Good evening all. Nancy here. Breast cancer blogger/advocate. Looking forward to tonight's chat. #cancersm |
| Dee Sparacio @womenofteal Remember - Twitter is an open social network and posts are public. Use a Direct Messages to exchange email addresses/personal info. #CancerSM |
| Dee Sparacio @womenofteal #CancerSM tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Lfwohl @Lfwohl1 Ovarian cancer survivor. On maintenance Chemotherapy #CancerSM |
| Dee Sparacio @womenofteal @NancysPoint Thanks for joining in Nancy and for the great Blog Challenge. #CancerSM |
 | Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN Hi all! Grace here, cancer rehab nurse researcher. #CancerSM |
| GYN Cancer | #GYNCSM @gyncsm Welcome also to all those “listening in”. You can always DM or email us with questions/comments after the chat is over. #CancerSM |
| Dee Sparacio @womenofteal @Lfwohl1 Welcome. Glad you are here with us tonight. #gyncsm #CancerSM |
| GYN Cancer | #GYNCSM @gyncsm #CancerSM tagged resources and referrals are not a substitute for speaking with your doctor who understands your needs and history. |
| Dee Sparacio @womenofteal @GraceCampbellRN Hi Grace! Thanks for joining us and for the Photo of the Day activity. #cancersm |
| Dee Sparacio @womenofteal RT @gyncsm: Welcome also to all those “listening in”. You can always DM or email us with questions/comments after the chat is over. #Cance… |
| Erica Bednar @EMBOSU RT @gyncsm: The next #GYNCSM tweetchat is tonight, Wed Aug 14, 9pmET | 8pmCT | 6pmPT. Note that we'll be using hashtag #CancerSM as we join… |
| GYN Cancer | #GYNCSM @gyncsm Tonight on #CancerSM we are discussing Finding Balance - “Cancer Life” vs. “Real Life”. Reminder to #gyncsm - use hashtag #CancerSM to follow all of tonight’s discussion. Topic 1 (T1:) is coming right up... |
| Nancy's Point @NancysPoint @womenofteal Happy to join in & thanks for participating in my challenge. It's a fun one - an example of that balance thing! #cancersm |
| Dee Sparacio @womenofteal [REDACTED USER] @CancerSurvSM Hello Vicky Welcome #CancerSM |
| GYN Cancer | #GYNCSM @gyncsm We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of your answer/comment. There are 5 #CancerSM Topic questions tonight followed by a Today I Learned (TIL) segment. |
| Dee Sparacio @womenofteal Thank you to all who have tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat #CancerSM |
 | Heather 🇺🇸 @ZHeatherChamp Good evening #CancerSM! I’m pretty medically involved: thyroid cancer survivor, 2 benign brain tumors & craniotomies, prophylactic hysterectomy due to #PTEN mutation. Whew! #btsm #rare |
| GYN Cancer | #GYNCSM @gyncsm You can find a list of the upcoming #CancerSM topic questions on our #gyncsm blog page: https://t.co/qAaI2Jxkwm |
| Dee Sparacio @womenofteal RT @gyncsm: You can find a list of the upcoming #CancerSM topic questions on our #gyncsm blog page: https://t.co/qAaI2Jxkwm |
| Dee Sparacio @womenofteal RT @gyncsm: We’ll use a Topic format with T1:, T2:, etc. posed from this handle. Include the corresponding T1:, T2:, etc. at the front of y… |
| GYN Cancer | #GYNCSM @gyncsm T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind? #cancersm |
| Christina Lizaso @btrfly12 RT @gyncsm: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind?… |
| Dee Sparacio @womenofteal RT @gyncsm: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind?… |
| Christina Lizaso @btrfly12 @ZHeatherChamp Always great to tweet along with you :) #cancersm |
 | @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Cindy joining a few minutes late. Just got in . I was Dx with #Myeloma in 2008 and In a VGPR on Maintenance therapy #mmsm #cancersm |
 | Shannon Westin, MD, MPH, FASCO @ShannonWestin Hey there! Gyn Onc from @mdandersonnews - happy to be here (a bit late!) #gyncsm #cancersm |
| Dee Sparacio @womenofteal [REDACTED USER] Welcome to the chat ! #CancerSM |
| Christina Lizaso @btrfly12 Wonderful to see everyone come together on tonight's #CancerSM - Excited to chat with both new and familiar faces. |
| Dee Sparacio @womenofteal @MyelomaTeacher You made it! Welcome Cindy. #CancerSM |
| Carly Flumer (she/her) @carlyflumer @gyncsm For me, I was working full time and in school for my masters, so I really had to prioritize my health. Cancer is super scary to hear, but the mental aspect is half of it! #bepositive #cancersm |
| Tanya Temkin @tanyaltee T1: i think of being able to do what I liked to do with my “old normal “—travel, go out in the evening to concerts, etc. Right now my consciousness is dominated by cancer related thoughts. #cancersm |
 | Hillary Andrews, PhD @HillStirSci @gyncsm Hi! I’m Hillary. I was a basic research scientist for 9 years and have recently moved into health policy (thanks in large part to #bcsm). I’m also a @CancerAdvocacy #elevateambassador connecting basic research scientists and cancer patient advocates through @cancer_TAP! #cancersm |
| Nancy's Point @NancysPoint @gyncsm T1: Balance is really hard to find when dxd as cancer sorta takes over your life, yet it's impt to try to find some. #cancersm |
| Hillary Andrews, PhD @HillStirSci RT @gyncsm: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind?… |
| Bob Steele @steele_bob T1: We try to enjoy all the small moments, esp. w/kids & grandkids. #cancersm |
| Carly Flumer (she/her) @carlyflumer @HillStirSci @gyncsm @CancerAdvocacy @cancer_TAP Hey girl!! So glad to see you here! #cancersm |
| Christina Lizaso @btrfly12 T1: I always considered myself a previvor due to family history, but after the genetic mutation diagnosis I felt much more urgency to give my own health attention vs. career and young kids #CancerSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher I try to find a balance of cancer related activities- treatment, advocacy, research.... and non- cancer related activities #cancersm |
| Maggie Rogers @magthenomad T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s about trying to find ways to do your normal life with it always lingering on the sidelines. #cancersm |
| Dee Sparacio @womenofteal @gyncsm T1 It is hard - It took a while after treatment ended to not wake up and have the first thing that came to mind be my cancer dx. So I tried to do things I enjoyed- and had the energy to do/ #CancerSM |
| Tanya Temkin @tanyaltee T1: ...and trying to move beyond being a patient to being an advocate #cancersm |
| Christina Lizaso @btrfly12 T1: When scan time comes up every six months, I find it hard to balance the anxiety with other priorities. #CancerSM |
| Debra Hallisey @advocatemomdad RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s… |
| Dee Sparacio @womenofteal RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s… |
| GYN Cancer | #GYNCSM @gyncsm Topic 2 (T2:) coming up... #cancersm |
| Debra Hallisey @advocatemomdad RT @tanyaltee: T1: ...and trying to move beyond being a patient to being an advocate #cancersm |
| Carly Flumer (she/her) @carlyflumer @btrfly12 Yes! I have to get my blood tested every 3 months! I share that same anxiety. #cancersm |
| Dee Sparacio @womenofteal That is a difficult time for me too. #CancerSM |
| Christina Lizaso @btrfly12 RT @magthenomad: T1. It’s not so much about finding balance but more... rebalancing your scales. Cancer’s impacts are here to stay so it’s… |
| GYN Cancer | #GYNCSM @gyncsm T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents? Tips? #cancersm |
| Christina Lizaso @btrfly12 RT @gyncsm: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents?… |
| Dee Sparacio @womenofteal RT @gyncsm: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents?… |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @carlyflumer @btrfly12 I have been getting lab work every 4-6 weeks for the last 11 years . I still get nervous awaiting the results #cancersm |
| Tanya Temkin @tanyaltee T2: I’m childless and did my elder care before cancer onset #cancersm |
| Nancy's Point @NancysPoint T1: Finding balance means something different to each of us. #cancersm |
| Carly Flumer (she/her) @carlyflumer @gyncsm Keep a calendar handy! Between work and all of my doctors appts, it can be hard to keep track. Also, your workplace should understand and be willing to give you the time to attend appts and mental health days. #cancersm |
| Hillary Andrews, PhD @HillStirSci @carlyflumer @gyncsm @CancerAdvocacy @cancer_TAP You too!! 🤗🤗 #cancersm |
| Sarah Temkin @temkins If scans are tough it might be worth discussing the value of imaging with your doctor. They might be less necessary than you think for surveillance. All cancer is different #cancersm #gyncsm |
| Dee Sparacio @womenofteal @gyncsm T2 When I was in treatment for a recurrence I had to cut back on visiting my elderly Aunt . I ended up ordering her food from PeaPod (stop&Shop) instead of shopping myself #CancerSM |
| Dee Sparacio @womenofteal RT @NancysPoint: T1: Finding balance means something different to each of us. #cancersm |
| Dee Sparacio @womenofteal RT @carlyflumer: @gyncsm Keep a calendar handy! Between work and all of my doctors appts, it can be hard to keep track. Also, your workplac… |
| Debra Hallisey @advocatemomdad RT @womenofteal: @gyncsm T2 When I was in treatment for a recurrence I had to cut back on visiting my elderly Aunt . I ended up ordering he… |
| Christina Lizaso @btrfly12 Good point. Plus next MRI I am being clear about how I want results and my expectations. I had my scan July 22 and still have no report. #CancerSM |
| Erica Bednar @EMBOSU @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every few months) #cancersm #gencsm #gyncsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher T2 I try not to do anything cancer related before 10 am or after 7pm and on the weekends Sometimes that is not possible, but that’s my goal #cancersm |
 | TrueFaith_Living✨ @KeepItMovn2 @gyncsm How do I continue this fight and not lose myself in the battle? It’s hard for the diagnosis to not become your new normal. Quite frankly, I just want my life back. #cancersm |
| Carly Flumer (she/her) @carlyflumer @SarahTemkin Absolutely! And your doctor should be able and willing to discuss different options with you to help ease anxiety. #cancersm |
| Maggie Rogers @magthenomad T2. LOL. 🤷🏼♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have to use all of your vacation time. Try not to have a breakdown on the NYC subway, but if you do, it’s okay. #cancersm |
| Christina Lizaso @btrfly12 RT @NancysPoint: T1: Finding balance means something different to each of us. #cancersm |
| Debra Hallisey @advocatemomdad RT @MyelomaTeacher: T2 I try not to do anything cancer related before 10 am or after 7pm and on the weekends Sometimes that is not possi… |
| Christina Lizaso @btrfly12 RT @magthenomad: T2. LOL. 🤷🏼♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have t… |
| Debra Hallisey @advocatemomdad RT @magthenomad: T2. LOL. 🤷🏼♀️ with a smile? Schedule multiple appointments in the same day or after/before work hours so you don’t have t… |
 | Dawn Ford @tealbtrflies4me @carlyflumer @gyncsm Yes absolutely!! I was so thankful my workplace allowed me to work from home if I felt up to it. Never once did they say anything about my schedule. I was so thankful they were so understanding. #cancersm |
| Maggie Rogers @magthenomad RT @EMBOSU: @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every fe… |
| Dee Sparacio @womenofteal Great advice! #CancerSM |
| Tanya Temkin @tanyaltee T2: setting boundaries in your own life is a real skill! I’m still learning. #cancersm |
| Maggie Rogers @magthenomad RT @DawnHribalFord: @carlyflumer @gyncsm Yes absolutely!! I was so thankful my workplace allowed me to work from home if I felt up to it. N… |
| Dee Sparacio @womenofteal @KeepItMovn2 @gyncsm I felt the same way when I was in treatment. I felt I had no control. Totally understand #CancerSM |
| Christina Lizaso @btrfly12 I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #CancerSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin RT @EMBOSU: @carlyflumer @btrfly12 "Scanxiety" is real--definitely an important consideration, since it's often an interval thing (every fe… |
| Tanya Temkin @tanyaltee RT @btrfly12: I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #Canc… |
| Nancy's Point @NancysPoint Think we all are! RT @tanyaltee: T2: setting boundaries in your own life is a real skill! I’m still learning. #cancersm |
| GYN Cancer | #GYNCSM @gyncsm T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activity? #cancersm |
 | Henning Willers, MD, FASTRO @HenningWillers @carlyflumer @SarahTemkin just strolling by this chat ... ask whether your doctor may be willing to see you right after imaging to do a prelim review, so you don't have to go home and be anxious and wait for results/next visit (we typically offer surveillance CT and visit same day) #cancersm |
| Dee Sparacio @womenofteal I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM |
| Christina Lizaso @btrfly12 RT @gyncsm: T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activi… |
 | Amanda Crowell Itliong @MIShouldTalk T2: Since my 3rd recurrence I’ve been disabled and spend my extra time/energy volunteering. Focusing on cancer related work means they understand when I’m sick. #cancersm |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin T3: There are growing data to support exercise to prevent cancer recurrence - and you get the bonus of stress relief!! #gyncsm #cancersm |
| Dee Sparacio @womenofteal RT @gyncsm: T3: After diagnosis, did you change how you ate or how much you exercised? Did you start a new activity or stop doing an activi… |
| Tanya Temkin @tanyaltee T2: yes!! And expectations can be different but not lowered. #cancersm |
| Carly Flumer (she/her) @carlyflumer @gyncsm I remained exercising because I knew it was important. It helped keep my energy up and I felt strong even though I was going through something that made me feel weak mentally. #cancersm |
| Dee Sparacio @womenofteal [REDACTED USER] @gyncsm [REDACTED USER] Welcome Dani! So happy you could join in tonight. #CancerSM |
| Maggie Rogers @magthenomad T3. I defer to those that have memories before cancer... #childhoodcancer problems. But when I started getting secondary skin cancers, I became very vigilant about sun screen (even in the winter!) every day #cancersm |
| Lfwohl @Lfwohl1 I was an avid tennis player and gave it up as I am too tired. Not liking my new normal #CancerSM |
| Nancy's Point @NancysPoint Same here! Few chats RT @womenofteal: I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM |
| Dee Sparacio @womenofteal @HenningWillers @carlyflumer @SarahTemkin Feel free to stay a while..#CancerSM |
| Christina Lizaso @btrfly12 Giving yourself permission to say "no" to things and choosing who to surround yourself with becomes more important. #cancersm |
| Heather 🇺🇸 @ZHeatherChamp RT @gyncsm: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents?… |
| Dee Sparacio @womenofteal RT @ShannonWestin: T3: There are growing data to support exercise to prevent cancer recurrence - and you get the bonus of stress relief!! #… |
| Maggie Rogers @magthenomad @HenningWillers @carlyflumer @SarahTemkin ... wait... is that a legit option? My last breast MRI, I literally got results in the mail about needing a biopsy before a human doctor even called me back. #cancersm |
 | Monica Bryant, Esq. @CancerAttorney T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state leave, etc. sometimes it can feel like asking for a favor, but those who are eligible should remember it’s a right! @TriageCancer has resources to help! #CancerSM |
| Dee Sparacio @womenofteal T2 I didn't exercise during my initial treatment but did during treatment for my recurrence. What a difference that made. #CancerSM |
| Christina Lizaso @btrfly12 RT @womenofteal: I try to not do advocacy stuff on the weekend - I have a 9-5 schedule - except for chats LOL #CancerSM https://t.co/azkktu… |
| Tanya Temkin @tanyaltee T3: Eatingwas something I did when I had an appetite. Gave up coffee, alcohol, and eventually red meat. But I still indulge from time to time in the best pork adobo and pancit I’ve ever had. #cancersm |
| Heather 🇺🇸 @ZHeatherChamp @gyncsm A1: I had no idea, in 2003, how DIFFICULT it would be to find balance. I still haven’t found it yet! #CancerSM |
| Dee Sparacio @womenofteal RT @magthenomad: T3. I defer to those that have memories before cancer... #childhoodcancer problems. But when I started getting secondary s… |
| Debra Hallisey @advocatemomdad RT @NavSurvivorship: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state… |
| Christina Lizaso @btrfly12 RT @NavSurvivorship: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state… |
 | Alicia C. Staley @stales RT @gyncsm: T2: In what ways do you balance your treatment/healthcare schedule with work and/or taking care of children or elderly parents?… |
| Alicia C. Staley @stales RT @gyncsm: T1: When you think about finding a balance in your life after a cancer-related or tumor-related diagnosis, what comes to mind?… |
| Dee Sparacio @womenofteal @Lfwohl1 It sure is tough giving up things - my friend switched to pickle ball - a bit easier for them. #CancerSM |
| Maggie Rogers @magthenomad @NavSurvivorship @TriageCancer @CancerAndCareer is another great one for that type of info #cancersm |
| Alicia C. Staley @stales RT @womenofteal: @gyncsm T1 It is hard - It took a while after treatment ended to not wake up and have the first thing that came to mind be… |
| Alicia C. Staley @stales RT @NancysPoint: @gyncsm T1: Balance is really hard to find when dxd as cancer sorta takes over your life, yet it's impt to try to find som… |
| Dee Sparacio @womenofteal RT @btrfly12: Giving yourself permission to say "no" to things and choosing who to surround yourself with becomes more important. #cancersm |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN T3: Also some evidence that exercise helps mitigate treatment-related symptoms (fatigue, poor balance, etc). #gyncsm #cancersm |
| Dee Sparacio @womenofteal RT @NavSurvivorship: T2: when it comes to work you may need to avail yourself of legal benefits like reasonable accommodations, FMLA/state… |
| Henning Willers, MD, FASTRO @HenningWillers @magthenomad @carlyflumer @SarahTemkin I'd say it depends on imaging type and your doc. For breast MRI I honestly do not know. It may not be possible to get a immediate read and visit I offer same day chest CT or brain MRI (and occasionally PET) for #lungcancer and visit right after #cancersm |
| Nancy's Point @NancysPoint T3: You gotta cut yourself some slack. Exercise is always important. As is healthy eating. Sometimes neither is doable. That's ok. #cancersm |
| GYN Cancer | #GYNCSM @gyncsm Topic 4 (T4:) coming up... #cancersm https://t.co/qAaI2Jxkwm |
| Heather 🇺🇸 @ZHeatherChamp @gyncsm A2: Just started a new job in April. First job since brain tumor in 2011, I’m terrified how my appts and scheduling will progress. 🙏🏻 #btsm #pten #CancerSM |
| Debra Hallisey @advocatemomdad RT @NancysPoint: T3: You gotta cut yourself some slack. Exercise is always important. As is healthy eating. Sometimes neither is doable. Th… |
| TrueFaith_Living✨ @KeepItMovn2 @gyncsm T2: I’m still on treatment but working full-time to keep benefits for myself and two kids. We self-schedule so I don’t schedule myself on clinic days and no more than 2 shifts in a row. I also schedule 4-5 days off in a row at least once a month. #cancersm |
| Dee Sparacio @womenofteal RT @magthenomad: @NavSurvivorship @TriageCancer @CancerAndCareer is another great one for that type of info #cancersm |
| Maggie Rogers @magthenomad @tanyaltee Casually drinking red wine during this chat 🍷 we all gotta have something! #cancersm |
| Bob Steele @steele_bob Exercise has become a huge challenge for JoAnn due to severe chronic spine pain and weight gain from steroids. Need a trainer. #cancersm |
| Dee Sparacio @womenofteal T3 After my recurrence we got a dog - big step for me . She is full of energy so we started doing agility. She is much faster than I am and I don't have to jump over obstacles. #CancerSM |
| GYN Cancer | #GYNCSM @gyncsm T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #cancersm |
| Amanda Crowell Itliong @MIShouldTalk T3 I’ve had to adjust my food and exercise based on what I’m able to eat and do because of treatments/surgery. It would be awesome if I could always get better at exercise, but brain tumors have caused falls. #cancersm |
| Tanya Temkin @tanyaltee T3: The NP on my Onc team says “ moderation in all things...including moderation m” |
| Dee Sparacio @womenofteal @magthenomad @tanyaltee I am drinking Earl Grey Tea. #CancerSM |
| Dee Sparacio @womenofteal RT @gyncsm: T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #can… |
| Christina Lizaso @btrfly12 T3: Seeing a nutritionist is on my list after adding a Thyroid scan baseline to my health list. I've been slowing taking care of things since diagnosis but a little slower than I should be. #cancersm |
 | Alexa Jett 🦋 @ohhiialexa T3: Actually, pre-diagnosis I started making changes. There was about a 2.5 month gap from real suspicion to starting treatment. I wanted to be in a good place before I got there, so I started taking diet and exercise seriously. #cancersm |
| Carly Flumer (she/her) @carlyflumer @gyncsm I was scared at first to share anything. But I slowly started to share on social media, and I got so much support. I enjoy sharing my #cancerjourney story and hearing others! #cancersm |
| Christina Lizaso @btrfly12 RT @gyncsm: T4: How much of your "cancer life" do you share with those in your life that haven't been impacted by cancer or a tumor? #can… |
| Heather 🇺🇸 @ZHeatherChamp @gyncsm A4: I talk about the brain tumors A LOT. I think it freaks ppl out, but I gotta talk abt them. Also talk about breast cancer risk too. There’s more than BRCA & I’m gonna say it! LOL 😉 #btsm #bcsm #pten #CancerSM |
| Dee Sparacio @womenofteal T3: I had a few gastro issues after treatment - found I needed to add more fiber to my diet. That made a big difference #CancerSM |
| Nancy's Point @NancysPoint T4: Surprisingly perhaps, not that much. Not sure if many read my blog even. #cancersm |
| Christina Lizaso @btrfly12 RT @womenofteal: T3 After my recurrence we got a dog - big step for me . She is full of energy so we started doing agility. She is much fas… |
| Heather 🇺🇸 @ZHeatherChamp @megsnuggets @gyncsm Love that! #CancerSM |
| Tanya Temkin @tanyaltee T4: hard to say. Most people I know have personal experience of cancer or a family member with cancer...or they are previvors! #cancersm |
| Dee Sparacio @womenofteal RT @ohhiialexa: T3: Actually, pre-diagnosis I started making changes. There was about a 2.5 month gap from real suspicion to starting treat… |
| Monica Bryant, Esq. @CancerAttorney @NancysPoint We read it! #cancersm |
| Dee Sparacio @womenofteal @NancysPoint I do !!!! #CancerSM |
| Heather 🇺🇸 @ZHeatherChamp @MIShouldTalk Do you have a brain tumor? #CancerSM |
| Nancy's Point @NancysPoint Have you looked into LiveStrong at the Y? RT @steele_bob: Exercise has become a huge challenge for JoAnn...Need a trainer. #cancersm |
| Maggie Rogers @magthenomad T4. Very little. Except in writing (twitter, blogs) but usually strangers are reading those. Absolutely NOTHING about my experiences with #lateeffects. It freaks people out (cancer from cancer treatment?) and I’m still emotional talking about it #cancersm |
| Dawn Ford @tealbtrflies4me @gyncsm I tell my hubby whatever I am thinking or feeling. With my Mom and Grandmother I am more reserved. They understand but also don't understand. They can take things out of context which just creates more issues that I don't want to have to deal with. #cancersm |
| Bob Steele @steele_bob T4: We're both active lung cancer advocates. Don't miss many opps to talk about cancer research funding. :) #cancersm |
| Dee Sparacio @womenofteal T4 When we moved a few years ago I didn't tell anyone about my dx even as my advocacy work increased. Eventually though I I shared my story. #CancerSM |
| Tanya Temkin @tanyaltee Y yo tambien! |
| Nancy's Point @NancysPoint Well, thank you! RT @NavSurvivorship We read it! #cancersm |
| Monica Bryant, Esq. @CancerAttorney Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and people should be empowered to know they have choices! https://t.co/ltMxWp6ZBd #cancersm |
| Dee Sparacio @womenofteal Great suggestion. Or @CancerSupportHQ has some after treatment programs #CancerSM |
| Christina Lizaso @btrfly12 T4: I used to kinda keep cancer-land on Twitter and other on Facebook but they both blur now. In person, I sometimes chat about. I do go online mostly to converse with those who "get it". #cancersm |
| Christina Lizaso @btrfly12 RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and… |
| Debra Hallisey @advocatemomdad RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and… |
 | Cancer Hope Network @CancerHopeNet So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps others. #cancersm |
| Alexa Jett 🦋 @ohhiialexa T4: At this point, I share everything. As a #thyroidcancer AND #ayacancer patient, there are unfortunate myths like “good cancer” or “it’s easier when you’re young”. I have to step up and be part of the culture change! #cancersm |
| Dee Sparacio @womenofteal RT @NavSurvivorship: Disclosure is SUCH a personal decision and there is no one right answer. BUT, there can be long term ramifications and… |
| Dee Sparacio @womenofteal RT @btrfly12: T4: I used to kinda keep cancer-land on Twitter and other on Facebook but they both blur now. In person, I sometimes chat abo… |
| Maggie Rogers @magthenomad T4. I also tried to be shady and not tell anyone at work but I outed myself bc of Twitter and essentially got outed by a coworker with good intentions. I work in cancer-related heath-care so it’s complicated. I don’t want to speak about my personal trauma at work #cancersm |
| Dee Sparacio @womenofteal RT @CancerHopeNet: So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps oth… |
| GYN Cancer | #GYNCSM @gyncsm T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, personal needs, work needs and a desire to advocate for yourself and others? #cancersm |
| Nancy's Point @NancysPoint Aw, thanks, Dee. Was referring to my family. Just a couple read as far as I know. Rarely discuss cancer. RT @womenofteal I do !!! #CancerSM |
| Carly Flumer (she/her) @carlyflumer @ohhiialexa I am both of those, too!! “Good cancer” drives me crazy!!!! We gotta stick together. ❤️ #cancersm |
| Cancer Hope Network @CancerHopeNet RT @btrfly12: I like how one person put it - that your new "normal" is not better or worse. Just different and will be an adjustment. #Canc… |
| Tanya Temkin @tanyaltee T4: I’ve been re-establishing relationships with extended family I haven’t seen in years! I’m more interested in what’s happening in their lives than talking to them about cancer. But I’ve discussed BRCA with each of them. #cancersm |
| Bob Steele @steele_bob @NancysPoint @steele_bob Prior to recent recurrence/illness we went to a gym via Silver Sneakers. Need a specialist trainer now. #cancersm |
| Debra Hallisey @advocatemomdad RT @tanyaltee: T4: I’ve been re-establishing relationships with extended family I haven’t seen in years! I’m more interested in what’s hap… |
| Christina Lizaso @btrfly12 RT @CancerHopeNet: So many of our #SupportVolunteers say the same/similar thing. Finding meaning in a way that works for them and helps oth… |
| Cancer Hope Network @CancerHopeNet @womenofteal So glad you make an exception! The #cancersm apqce is better for it! 🥰 |
| Dee Sparacio @womenofteal @ohhiialexa Thank you - I am sure your story and will help change things. #CancerSM |
| Dee Sparacio @womenofteal RT @gyncsm: T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, person… |
| Christina Lizaso @btrfly12 RT @gyncsm: T5: How soon after your diagnosis did you start volunteering and/or sharing your story? How do you balance family needs, person… |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher T4 Being an advocate I openly share with anyone who is interested. I try not to clog up my personal FB page with all Myeloma stuff. I’ve created a separate Myeloma page.#cancersm |
| Alexa Jett 🦋 @ohhiialexa RT @btrfly12: T1: When scan time comes up every six months, I find it hard to balance the anxiety with other priorities. #CancerSM |
| Nancy's Point @NancysPoint @steele_bob Hope you can find a good, qualified trainer then. #cancersm |
| Carly Flumer (she/her) @carlyflumer @gyncsm I was scared to research anything when I was diagnosed. Now that I’m in remission, I’m doing a lot more research online, listening to podcasts, & networking with the #cancercommunity (LOVE!). I’m looking forward to a future in #patientengagement! #cancersm |
| Dee Sparacio @womenofteal T5 I went to a @livestrong survivor summit a year after my dx and my volunteering and advocacy grew from that experience. I learned I could make a difference and knowledge was powerful #cancersm |
| Debra Hallisey @advocatemomdad Knowledge IS power. |
| Tanya Temkin @tanyaltee T5: I had to stop working because of cumulative effects of chemo, brain surgery (benign meningioma) and PTSD. Before that I was a data analyst and managed research projects. Research Advocacy is how I can benefit myself and others #cancersm |
| GYN Cancer | #GYNCSM @gyncsm Really loved having you all join along for #cancersm We like to wrap up by share closing thoughts on the chat topic. You can start your tweet with “TIL:” standing for Today I Learned... |
| Alexa Jett 🦋 @ohhiialexa T5: Exactly 2 years! I went from not wanting to talk about it at all, to realizing I needed to. I’m still trying to figure out the balance part. But hey, aren’t we all? 😉#cancersm |
 | Triage Cancer @TriageCancer @tanyaltee Good for you! If you’re ever interested in other types of advocacy check out https://t.co/vqYCgT8cE5 #cancersm |
| Dee Sparacio @womenofteal [REDACTED USER] @gyncsm It is important that you make those decisions about how and what to share. I always ask if my family members want to take part in advocacy events- walks, dinners . And if they say no I am not disappointed . #CancerSM |
| Dee Sparacio @womenofteal RT @tanyaltee: T5: I had to stop working because of cumulative effects of chemo, brain surgery (benign meningioma) and PTSD. Before that I… |
| Dee Sparacio @womenofteal RT @gyncsm: Really loved having you all join along for #cancersm We like to wrap up by share closing thoughts on the chat topic. You can s… |
 | Sarah Cassidy @CassidyFish2 @magthenomad That “but if you do, it’s ok” fits for so many situations. Give yourself grace. #cancersm |
| Christina Lizaso @btrfly12 Advocate burnout is real - for your own care and in your more general patient advocacy. @JBBC is doing some writing on this. Important topic. #cancersm |
| Bob Steele @steele_bob We raised $198K at our Greensboro 5K last Nov. We'll exceed $200K this year. It's our 12th year and the funding has grown every yr #cancersm |
| Debra Hallisey @advocatemomdad RT @CassidyFish2: @magthenomad That “but if you do, it’s ok” fits for so many situations. Give yourself grace. #cancersm |
| Christina Lizaso @btrfly12 RT @womenofteal: [REDACTED USER] @gyncsm It is important that you make those decisions about how and what to share. I always ask if my fam… |
| Heather 🇺🇸 @ZHeatherChamp TIL (relearned) - that I’m not alone! #CancerSM |
| Christina Lizaso @btrfly12 @steele_bob Awesome! #cancersm |
| Maggie Rogers @magthenomad T5. I was the face of #childhoodcancer - always accepting invites to speak. After #lateeffects from tx, I didn't speak about it for 7 years. I felt like I failed survivorship. Now you can find me angry tweeting about cancer and NOT talking to my family/friends about it #cancersm |
| Maggie Rogers @magthenomad RT @btrfly12: Advocate burnout is real - for your own care and in your more general patient advocacy. @JBBC is doing some writing on this.… |
| Tanya Temkin @tanyaltee TIL: how people accept cancer as part of their experience but don’t let it define them!! #cancersm |
| Debra Hallisey @advocatemomdad RT @tanyaltee: TIL: how people accept cancer as part of their experience but don’t let it define them!! #cancersm |
| Nancy's Point @NancysPoint Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at a time. #cancersm |
| Erica Bednar @EMBOSU TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important consideration for anyone whose life is touched by cancer: from previvors to those no longer in active treatment/survivorship #cancersm #endcancer |
| Maggie Rogers @magthenomad [REDACTED USER] @gyncsm [REDACTED USER] I had a similar experience after participating in @FirstDescents - all of a sudden my voice was empowered and my story was important. #cancersm |
| Bob Steele @steele_bob RT @ZHeatherChamp: TIL (relearned) - that I’m not alone! #CancerSM |
| Dee Sparacio @womenofteal TIL That although we have different types of cancer we all deal with the same issues- balancing parts of our life, anxiety about test results and finding what brings happiness in our lives. #cancersm |
| Bob Steele @steele_bob RT @NancysPoint: Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at… |
| Debra Hallisey @advocatemomdad RT @EMBOSU: TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important conside… |
| Christina Lizaso @btrfly12 Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change things up, take breaks, let some things go. :) #cancersm |
| Carly Flumer (she/her) @carlyflumer @magthenomad [REDACTED USER] @gyncsm [REDACTED USER] @FirstDescents I have thought about doing an even with them! Did you like it? #cancersm |
| Debra Hallisey @advocatemomdad RT @btrfly12: Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change… |
| Dee Sparacio @womenofteal RT @btrfly12: Let's all give ourselves permission to make decisions about balance as we go - and not guilt ourselves when we need to change… |
| Nancy's Point @NancysPoint Thanks everybody. Enjoyed the chat. TY, @btrfly12 & @womenofteal. Good night! #cancersm |
| Sarah Cassidy @CassidyFish2 Such a good reminder for those of us who “mean well.” Let your friend/colleague/family member dictate. Sit on your hands, delete drafts and tape your mouth if you need to! Sometimes, #love is silence. #cancersm |
| Alexa Jett 🦋 @ohhiialexa Not so much a TIL, but more “today I am reminded” that we all struggle and are trying to navigate the aftermath of cancer. I am so thankful for this #cancersm chat for the connection and encouragement! Let’s keep working together!! ❤️ |
| GYN Cancer | #GYNCSM @gyncsm Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and Ovarian Cancer Connections". You can learn more about other cancer/healthcare chats here: https://t.co/wYqfAZSAla |
| Bob Steele @steele_bob Best to all! Hope to see you again next month. #cancersm |
| Sarah Cassidy @CassidyFish2 @NancysPoint Me too! It’s amazing! #cancersm |
| Dee Sparacio @womenofteal Remember to check https://t.co/Df2f7Okp35 for a transcript of the chat and resources #CancerSM #gyncsm |
| GYN Cancer | #GYNCSM @gyncsm September is Childhood Cancer Awareness and Gynecologic Cancer Awareness. Probably others too? Feel free to share any upcoming educational campaigns so we can all support. #CancerSM |
| Dee Sparacio @womenofteal RT @gyncsm: September is Childhood Cancer Awareness and Gynecologic Cancer Awareness. Probably others too? Feel free to share any upcoming… |
| Dr. Grace Campbell, PhD, MSW, RN, CRRN, FARN @GraceCampbellRN RT @gyncsm: Thanks to everyone for the wonderful #CancerSM conversation. Our next #gyncsm chat will be Wed Sept 11th 9pmET on "Breast and… |
| GYN Cancer | #GYNCSM @gyncsm As always, remember to tweet things of interest with cancer hashtags to keep the conversation going between chats. #gyncsm #bcsm #lcsm #btsm #mmsm #ayacsm #CancerSM |
| Dawn Ford @tealbtrflies4me @gyncsm TIL: I am not alone. Also that I may never be able to balance everything I want to. It can be tough at times but I just have to keep putting one foot in front of the other. I will just take it one day at a time. #cancersm |
| Dee Sparacio @womenofteal Grateful for our #gyncsm co-moderators! @btrfly12 @ShannonWestin @temkins @journeycancer @DrBeckerSchutte #CancerSM |
| Tanya Temkin @tanyaltee What a breadth of professional and personal experience is reflected here. Thanks to all and to our very capable moderators. #cancersm |
| Dee Sparacio @womenofteal RT @DawnHribalFord: @gyncsm TIL: I am not alone. Also that I may never be able to balance everything I want to. It can be tough at times bu… |
| Bob Steele @steele_bob RT @tanyaltee: What a breadth of professional and personal experience is reflected here. Thanks to all and to our very capable moderators.… |
| Christina Lizaso @btrfly12 RT @ohhiialexa: Not so much a TIL, but more “today I am reminded” that we all struggle and are trying to navigate the aftermath of cancer.… |
| Dee Sparacio @womenofteal @tanyaltee Thank you for joining in and offering you insights. #CancerSM |
| Shannon Westin, MD, MPH, FASCO @ShannonWestin Thank you @womenofteal and @btrfly12 |
| Christina Lizaso @btrfly12 RT @womenofteal: TIL That although we have different types of cancer we all deal with the same issues- balancing parts of our life, anxiety… |
| TrueFaith_Living✨ @KeepItMovn2 This!!!!!! |
| Christina Lizaso @btrfly12 RT @EMBOSU: TIL that finding a balance, or a new normal, is a process that takes times and many different forms + it's an important conside… |
| Christina Lizaso @btrfly12 RT @NancysPoint: Balance is a fluctuating thing, maybe not even possible to achieve post dx. Just do your best w/stuff. Really is 1 day at… |
| GYN Cancer | #GYNCSM @gyncsm September is also Thyroid Cancer Awareness Month #cancersM |
| Dee Sparacio @womenofteal Thanks @btrfly12 for the great job moderating tonight . A pleasure working with you. #gyncsm #CancerSM |
| Cancer Hope Network @CancerHopeNet Miss part of the #cancersm chat like we did? Check out @womenofteal’s recap or start scrolling! |
| GYN Cancer | #GYNCSM @gyncsm Thank you everyone for sharing of yourself on tonight's #cancersm chat. |
| Dee Sparacio @womenofteal RT @gyncsm: Thank you everyone for sharing of yourself on tonight's #cancersm chat. |
| Dee Sparacio @womenofteal [REDACTED USER] @tanyaltee We're glad you were able to stop by. #CancerSM |
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