#dsma Transcript
Healthcare social media transcript of the #dsma hashtag.
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See #dsma Influencers/Analytics.
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Ryan Dane 🇺🇦 @ryanryeguy89 @JanJava I do yes! Thank you! It's great. I used one of the pools today. Didn't wear sunscreen so I'm going to be a lobster tomorrow. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Hi everyone! Welcome to #dsma. How are you doing this evening? | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Doing great! You? #dsma | |
Dr. Phyllisa Deroze @not_defeated #DSMA twitter chat starts RIGHT NOW and I'm so excited to be here. I'm well, jetlagged though since I just arrived in the USA from Paris yesterday. | |
Janis N. Senungetuk @JanJava @DiabetesSocMed Hi! I've made it through another day, hurray! Happy to be here. #dsma | |
Brenda Bell @tmana @DiabetesSocMed Tired, need sleep (start work 0300 tomorrow), and having to nurse my phone through a full-system backup #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Welcome, Doc P. #DSMA | |
Pancreassassin @Pancreassassin Looks like I’ll be able to chat tonight! #dsma | |
NextWaveT2D @nextwavet2d Happy to be here! I took a night off from the #treadmill, so I am rested and ready for tonight! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 I'm you're doing well! Thank you for asking. Can you pass me a few peanuts? #dsma | |
StephenS @StephenSType1 Good evening everyone... don't know how long I can last at #DSMA tonight, but I'm here for the time being | |
Emilie T @SweetHiyachica @DiabetesSocMed Excited for #dsma! | |
Diabetes Social Media Advocacy @DiabetesSocMed If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊 | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Lol. I don't even remember the last time I saw peanuts at a bar. They serve chips here! Homemade! #dsma | |
Pancreassassin @Pancreassassin I'm supposed to be reading the emplyee handbook for my new job (!) but I'd rather be here. :) #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊 | |
Janis N. Senungetuk @JanJava @Pancreassassin well, of course! Glad you're here. #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @Pancreassassin Yes! This is more important. Lol! #dsma | |
Scott K. Johnson @scottkjohnson RT @DiabetesSocMed: If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊 | |
Diabetes Social Media Advocacy @DiabetesSocMed @SweetHiyachica Hi Emilie! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 lol! #dsma | |
Scott K. Johnson @scottkjohnson I'm so excited to join this week (finally)! #dsma | |
Brianna @TheChronicCon So glad I’m finally off on a Wednesday night to participate in #dsma | |
NextWaveT2D @nextwavet2d @scottkjohnson good to see you #dsma | |
Janis N. Senungetuk @JanJava @scottkjohnson happy you're here! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Time to get started. #dsma https://t.co/Dyv1WZprRR | |
John @joltdude Still no durable cure yet.... #dsma | |
Scott K. Johnson @scottkjohnson @nextwavet2d @JanJava Thanks Bill & Janis! You too! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Introductions: Name, location, connection to diabetes, and use one word to share how you feel about the stigma associated with diabetes. #dsma | |
Brianna @TheChronicCon Brianna, KC, T1D for 7.5 years. My word would be shame #dsma | |
NextWaveT2D @nextwavet2d Bill, Maryland, T2D since 2018. Stigma = Tiresome #dsma | |
Brenda Bell @tmana @T2DRemission @ryanryeguy89 @DiabetesSocMed A *bear* bar as in, Pride Week? Or as in the large mammal (or its Teddy cousin)? #dsma | |
Mike Ratrie @YOGA_O Hi All! Mike from Mount Dora, FL just a bit north of Orlando. T1D for 45 years #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Introductions: Introductions: Name, location, connection to diabetes, and use one word to share how you feel about the stigma associated with diabetes. #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Intro: Ryan, type 1 from Maryland, and one word would be annoyed. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @Pancreassassin Congratulations! You should, but we want you to #dsma with us. 😊 | |
Diabetes Social Media Advocacy @DiabetesSocMed @T1NurseFred It's been a while. Welcome back. #dsma | |
John @joltdude I miss when they used to serve peanuts at the Ground Round..... #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @StephenSType1 Hi!!! #dsma | |
Scott K. Johnson @scottkjohnson Scott, San Diego, T1D since '80, frustrated #dsma | |
Pancreassassin @Pancreassassin Courtney from Georgia. T1 for almost 22 years. I'd say I'm frustrated with the stigma around all types of #diabetes. #dsma | |
Janis N. Senungetuk @JanJava Hi, Janis from Madison, WI, T1 for 64 yrs. concerned #dsma | |
Douglas Michael Massing 🌈 ...but what do I know? @T2DRemission @tmana @ryanryeguy89 @DiabetesSocMed The bar was definitely frequented by large mammals. #bifurcation #dsma | |
Emilie T @SweetHiyachica Emilie, Indiana, T1D for 11+ years. One word to share how I feel about the stigma around diabetes: frustrated #DSMA | |
=ger= @fnjerseygirl @DiabetesSocMed ger, tucson az, T2 since 2014, annoyed. #dsma | |
Mike Ratrie @YOGA_O One word to go with Stigma? ... Really? #dsma | |
StephenS @StephenSType1 Stephen from Baltimore, T1D 28 years, write & podcast via https://t.co/LxlxPhLRr2 ~ Only one word about diabetes stigma? Infuriating #dsma | |
Renza / Diabetogenic @RenzaS Hey #DSMA! Renza here from Melbourne Australia. It's been a long time since I managed to visit DSMA land! | |
Diabetes Social Media Advocacy @DiabetesSocMed I'm Cherise (@sweetercherise), Indiana, diagnosed with LADA in 2004 and one word to describe diabetes stigma...I don't have one word to describe it. I know it makes me angry .#dsma | |
Tim @metacman Tim. T1D+celiac+hypothyro And part time punster #dsma | |
John @joltdude One word.. Hmm.. is it for the issue itself or how the folks on either side of it? #dsma | |
EiCan 💙 @eican Eileen, Saratoga, NY....no pancreas, looking forward to a transplant.....weary | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed Arrived late but doing well. Morning here in Australia, just settling in for an hour of chat and some cheese and paleo crackers (D-lunch) :P #dsma | |
John @joltdude Anger #dsma | |
Mike Ratrie @YOGA_O @StrongerThanT1D Oh that's just the pits! Sad for you! #dsma | |
Brenda Bell @tmana @joltdude I miss the Ground Round. The local one used to have a Saturday night Comedy Club #datenight #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Tonight, we are going to take a trip down memory lane. #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Tonight, we are going to take a trip down memory lane. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed Leon, Sydney - Australia, T1D LADA (2 years still insulin free), pill box maker on Etsy. One word: frustration #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Q1. How old were you when you were diagnosed with diabetes? #dsma | |
Scott K. Johnson @scottkjohnson Q1. Age 5 #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q1. How old were you when you were diagnosed with diabetes? #dsma | |
Renza / Diabetogenic @RenzaS And my one word to describe how I feel about stigma - annoyed. (Actually, the word is a swear word, but I'm trying to be nice...) #DSMA | |
Pancreassassin @Pancreassassin 1. I was 7 years old. #dsma | |
NextWaveT2D @nextwavet2d A1: 52 years young. #dsma | |
=ger= @fnjerseygirl @DiabetesSocMed 52 yrs old. #dsma | |
Emilie T @SweetHiyachica A1. 21 #DSMA | |
Janis N. Senungetuk @JanJava A1. I was 8. #dsma | |
Dr. Phyllisa Deroze @not_defeated I was 31 years old. #dsma | |
Brianna @TheChronicCon Q1: I was 18. I was home for winter break after my fist semester of college #dsma | |
StephenS @StephenSType1 Q1. I was 28, almost 29 RT @DiabetesSocMed: Q1. How old were you when you were diagnosed with diabetes? #dsma | |
Tim @metacman A1. 20 years old in the USAF stationed in Germany. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed A1: 43 #dsma | |
Mike Ratrie @YOGA_O A1. I was 19 when diagnosed with T1D #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A1. 26 in a half, with type 1. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @ryanryeguy89: @DiabetesSocMed A1. 26 in a half, with type 1. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @PWPillBox: @DiabetesSocMed A1: @DiabetesSocMed A1: 43 #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @not_defeated: I was 31 years old. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @fnjerseygirl: @DiabetesSocMed 52 yrs old. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @PWPillBox Hi Leon! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @eican I hope you get one soon. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed Hello :) #dsma | |
Brenda Bell @tmana Q1. 42 #dsma | |
Dr. Phyllisa Deroze @not_defeated Phyllisa, South Florida, T2 since 2011, and my one word about stigma is ... "death" because stigma causes some people leave this world prematurely from not taking care of themselves properly AND because stigma needs to die. Times up for diabetes stigma. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed I see people were diagnosed between the age of 10-52. I can't wait to read your response to Q2. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @SweeterCherise I hope it about misdiagnosis :P #dsma | |
Tim @metacman Re Q1 - - Wow all these late bloomers. I thought and was taught T1D was a “childhood” disease #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Q2) When you were diagnosed with diabetes, what do you remember being told to you/parent about diabetes management? #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q2) When you were diagnosed with diabetes, what do you remember being told to you/parent about diabetes management? #dsma | |
John @joltdude That its going to be a lifelong illness and ill likely end up with complications... #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed A1. I was 24. #DSMA | |
Mike Ratrie @YOGA_O @metacman A myth we are still trying to eradicate ... #dsma | |
Pancreassassin @Pancreassassin 2. It's something you'll probably have to deal with for the rest of your life. But science is amazing! Cure is sure to happen soon. #dsma | |
Scott K. Johnson @scottkjohnson Q2. Can't remember much that far back. I remember getting really sick (DKA, I assume) and spending about a week in the hospital. #dsma | |
Brianna @TheChronicCon Q2: honestly I don’t remember a lot of the details of those days. What I do remember is being told they would start with basics. Sliding scale and injections and eventually I could get a pump. #dsma | |
Mocha @ECEMocha Sorry I'm late (and haven't been on in a while!) #dsma | |
Brenda Bell @tmana Q2. Since I was also diagnosed w/ high blood pressure, I was given a low-sodium (1000 mg/day) diet sheet & the ADA 1600-calorie sheet #dsma | |
NextWaveT2D @nextwavet2d A2: So tough to do on Twitter! Dx told me I was a mess, change diet/exercise. Had a brief chat with a visiting pharmacist, he told me it was going to be ok, and that the drugs prescribed helped most manage. #dsma | |
Brenda Bell @tmana Q2 (cont'd) and told there'd be no way I could follow BOTH sheets at the same time, but to try to do my best to use them as guides #dsma | |
Brianna @TheChronicCon Q2: definitely got the “a cure is just 5 years away.” Speech #dsma | |
John @joltdude Yeah there was some false hope involved involving a cure.... And id be relying on a meter and a sheet of paper for the rest of my life #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A2. I would need insulin, I would need to court carbs, I would need test blood, and on and on. I was told 800 where I was at I was lucky I was still walking around. #dsma | |
Mocha @ECEMocha Q1. I was 13 y.o. #dsma | |
Tim @metacman Q2 NOTHING about counting carbs. I was taught how to count food ‘exchanges’ and given a set insulin dosage to inject 2x daily. #dsma | |
=ger= @fnjerseygirl @DiabetesSocMed Q2: i had an intern tell me and he was just very stoic. #dsma | |
StephenS @StephenSType1 Q2. Being 28 then, I actually told my parents, and made managing diabetes sound like something minor, due to my ignorance and (cont.) #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @fnjerseygirl: @DiabetesSocMed Q2: @DiabetesSocMed Q2: i had an intern tell me and he was just very stoic. #dsma | |
Janis N. Senungetuk @JanJava A2. I was told anything. The MD only spoke to my parents. My mom was told I needed to be on strict schedule&diet.I shot @ day in AM. #dsma | |
Dr. Phyllisa Deroze @not_defeated I remember being told that it will get easier and I didn't see how it could. I thought the nurse was lying to me. (I'm glad my nurse in the hospital was right, it has gotten easier). Having diabuddies help to make it easier. #DSMA | |
John @joltdude Yeah I was taught exchanges but had a really poor sliding scale #dsma | |
Brenda Bell @tmana I'm noting here some serious differences between T1, T2, and neither-T1-nor-T2 (LADA, Other) diagnoses #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed A2: Finger pricking was taught well. For most of the rest I was pointed to online resources and told to come back in 3 months :) #dsma | |
Mocha @ECEMocha Q2. So, I was in a rather unique situation. My older brother was diagnosed as T1D ~5 years earlier and was on an insulin pump. (1/) #dsma | |
DiabetesMine @DiabetesMine SO AWESOME!!! #DOC | |
Diabetes Social Media Advocacy @DiabetesSocMed @fnjerseygirl I am so sorry. 😬 #dsma | |
StephenS @StephenSType1 (cont.) and wanting to protect them #DSMA https://t.co/y7ZGhnoOuD | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @ryanryeguy89: @DiabetesSocMed A2. I would need insulin, I would need to court carbs, I would need test blood, and on and on. I was told 800 where I was at I was lucky I was still walking around. #dsma | |
Pancreassassin @Pancreassassin 2. Also, my hospital had a copy of Captain Novolin, AND a NIntendo 64, AND a really cool fountain. And I got a diabetes game for PC! #dsma | |
jess @jessakah_ @DiabetesSocMed A1. I was 7! #dsma | |
Brianna @TheChronicCon Q2: I also specifically remember theresident coming in early that first morning and telling me I would probably need insulin the rest my life. I was half a asleep and just nodded. I don’t think I fully understood what that meant. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @TKathrynSutton I didn't see this before I sent the tweet with ages. #dsma | |
John @joltdude NPH and Humalog was how I started... #dsma | |
Mike Ratrie @YOGA_O A2 - When I was diagnosed, I remember being told, "No more sugar." But, I was also told I was going to be "fine" that with my doctor's help, I could manage the disease. No scare tactics for me! #dsma | |
NextWaveT2D @nextwavet2d @thehangrywoman @DiabetesSocMed Sounds similar to my experience. #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed I was on MDI with Actrapid and Protophane (evil). Told to check my BGL four times each day. And then saw the dietitian and thought I would never, ever enjoy food again. Thankfully, I was wrong. #DSMA | |
Mocha @ECEMocha Q2. My mom had suspected I was T1D for a bit, told bro's endo & the ped. (2/) #dsma | |
Emilie T @SweetHiyachica A2. I was told by phone I was T2. At next appt., insisted on right tests, and it was T1. Then got sent to CDE to learn to use a pen and basics of T1D. I was *not* told how hard it would be to manage! #DSMA | |
=ger= @fnjerseygirl @DiabetesSocMed yeah, it sucked. i was given metformin when he knew i had IBS all my life. that was hell. then given Lantus and said to watch a video on how to inject. #dsma | |
EiCan 💙 @eican I was 35, had my pancreas removed after a Whipple. Had a tumor | |
John @joltdude Other than that I really didnt get much out of my diagnosis.. and saw a very disconnected Endo.. #dsma | |
Janis N. Senungetuk @JanJava A2. My parents were told if they were VERY careful I could live to my 20's. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Q3. During your life with diabetes, have you had a negative experience with an HCP? If so, please share #dsma | |
jess @jessakah_ @DiabetesSocMed A2. Ahh 18 years ago. They talked a lot to my mom since I was so little, but I definitely remember the “a cure is in the next 5 years” convo 😂👏🏼 nice. #dsma | |
John @joltdude I *was* the youngest patient he had.... And it didnt really help... #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q3. During your life with diabetes, have you had a negative experience with an HCP? If so, please share #dsma | |
Mocha @ECEMocha Q2. Went in on a Friday for a quick pee in a cup test (which ended up being a bowl, since they were all out of urine sample cups) (3/) #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @thehangrywoman @DiabetesSocMed Two PDFs introducing me to T1D and also links to resources for loved ones. #dsma | |
=ger= @fnjerseygirl @DiabetesSocMed Q3: see previous tweet to you. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed This is horrible. #dsma | |
Pancreassassin @Pancreassassin 3. LOL, so much negativity. #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A3. So far no! But my Endo is retiring next month so I have one last appointment next week with him. #dsma | |
John @joltdude BTW is someone using todays chat in some form of research study? #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @fnjerseygirl Not good at all. Did you change HCPs? #dsma | |
Mocha @ECEMocha Q2. Official lab draw the next day (Saturday). Put on Humalog & Ultra Lente same day. Two weeks later, I was on an insulin pump (4/4) #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @JanJava Wow (sorry I'm the text equivalent of speechless) #dsma | |
Brianna @TheChronicCon Q3: I saw an internal med doc early on. He was used you the older population and T2. He was nice. It just wasn’t a good fit. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @ryanryeguy89: @DiabetesSocMed A3. So far no! But my Endo is retiring next month so I have one last appointment next week with him. #dsma | |
StephenS @StephenSType1 Q3. Oh yes, with two endos. One didn't give me any guidance about managing diabetes, the other yelled at me when I asked a question #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @PWPillBox: @thehangrywoman @DiabetesSocMed Two PDFs introducing me to T1D and also links to resources for loved ones. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @jessakah_: @DiabetesSocMed A2. Ahh 18 years ago. They talked a lot to my mom since I was so little, but I definitely remember the “a cure is in the next 5 years” convo 😂👏🏼 nice. #dsma | |
Pancreassassin @Pancreassassin 3b In the ER for abdominal pain, doc suggested high BG=organ swelling, causing pain. Yeah. It was a 10 cm uterine fibroid. #DSMA | |
Janis N. Senungetuk @JanJava A3. Yes. In my teens I was told if I didn't stay on strict diet I'd be dead in 5 yrs. MD only lectured me & only spoke w my mom. #dsma | |
NextWaveT2D @nextwavet2d A3: My numbers came down pretty quickly, and my HCP and I have had a good working relationship. Sounds pretty boring, and right now, I feel comfortable with that. #dsma | |
=ger= @fnjerseygirl @DiabetesSocMed i had no choice in who i got. hubz works for a teaching hospital so we get new interns every 6 months. i hate telling my history to them over and over. ugh. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @SweeterCherise A3: Being an insulin-free T1D means HCPs who are unaware of LADA ALWAYS ask "Are you sure you're Type 1?" No easier way to annoy a diabetic than to challenge their Type. #dsma | |
John @joltdude Anyone have the orange/apple demonstration? #dsma | |
Mocha @ECEMocha Q3. Yes. Many. I often end up never going back to the practice (not just the HCP) if possible. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed @KayeVanessa HOLA! Welcome. #dsma | |
Pancreassassin @Pancreassassin @joltdude YES! I remember sitting in my grandma's kitchen and we were both injecting oranges to practice. Lol. #dsma | |
Tim @metacman A3. One HCP actually took me off insulin altogether and put me on a fish diet. The HCP was convinced fish oils would control BG. After 2 days of BG over 400 I started insulin again. #dsma | |
Mocha @ECEMocha Q3. I refuse to go back to the same hospital network that did my MFM and all my pregnancy, labor, delivery stuff. Never. Again. #dsma | |
jess @jessakah_ @DiabetesSocMed A3. When I was about 10 or so, was hospitalized with DKA & one of the doctors made me cry because they scared me, told me my brain was swelling and I could die. I was 10..... I had no idea what I was doing. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @SweeterCherise A3: I was diagnosed after getting a mild DKA. The hospital 'experts' misdiagnosed me as Type 2. It was my GP doctor who was smart enough to get the autoimmune blood tests done #dsma | |
Dr. Phyllisa Deroze @not_defeated Yep, too many to name. Here's one...Once a HCP treated me very poorly, then upon learning that I have a PhD, the HCP completely changed her attitude (from nasty to pleasant) and asked for help with her dissertation. 🙄 #DSMA | |
Diabetes Social Media Advocacy @DiabetesSocMed @ECEMocha It’s been a long time! Nice to ‘see’ you again. #dsma | |
James Elliott @Jandelliott @Pancreassassin @joltdude I've heard a nurse say that they had a patient get confused; was injecting into the orange and eating the orange. Stopped using that education technique after that one! #dsma | |
Brenda Bell @tmana Q3. Yes: I was sent to a pulmonologist for some tests. He had mostly general patients. He treated me as if I were a *thing*... #dsma | |
Janis N. Senungetuk @JanJava @joltdude Yes! I saw my mom doing that just before she gave me a shot for the first time. #dsma | |
Emilie T @SweetHiyachica A3. Most negative is that ERs don't know anything about T1D. Last time, they didn't let me have insulin for 6 hours when my BG was over 300. Actually in patient was horrible, too. #DSMA | |
John @joltdude I got a review of the orange/apple technique before I was admitted to the hospital ... Already had *experience* with injections though #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed The response from Q3 varies between types and age. A lot of you did not have a positive experience. We are going to circle back in a few. #dsma | |
Pancreassassin @Pancreassassin 3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma | |
Mike Ratrie @YOGA_O A3 - The biggest negative experiences I've with HCPs are when shopping for a new Endo after nearly 40 years as a T1D, one nurse declared that I couldn't be T1D because I wasn't diagnosed as a child. 1/ #dsma | |
Janis N. Senungetuk @JanJava RT @Pancreassassin: 3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma | |
StephenS @StephenSType1 RT @Pancreassassin: 3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Q4. During your life with diabetes, have you had a positive experience with an HCP? If so, please share. #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q4. During your life with diabetes, have you had a positive experience with an HCP? If so, please share. #dsma | |
StephenS @StephenSType1 Q4. Definitely Yes... my current endocrinologist is the best. I've never done better managing my diabetes. Funny how that works #dsma | |
John @joltdude Most positive experience I had was somehow ending up with a hospital Endo after having no insurance... #dsma | |
Brenda Bell @tmana @DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma | |
Mike Ratrie @YOGA_O A3 - part deux. Last year I had an ortho who was pretty insistent on giving me a cortisone shot; he was dismissive of my high BG concerns. Sadly, he won me over and I spent nearly a month @ 200+ #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A4. All the time! My Endo takes great interest in my life outside of diabetes. It's more than just an office visit. #dsma | |
Emilie T @SweetHiyachica @mydiabeticheart Oh yeah! Me, too! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @tmana: @DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma | |
Pancreassassin @Pancreassassin 4. I love my endo who is on sabbatical. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed A4: Very happy with my health care team now. Very supportive and open to challenge. I'm even telling them the meds to put me on :P #dsma | |
John @joltdude Actually seemed to understand where iv been, what im doing, and tried other things untill he said.. You need a pump... #dsma | |
Tim @metacman A4. Both my last two Endos have been great: trusting, listening, caring, encouraging. Never condescending. #dsma | |
John @joltdude Answered my questions, answered my emails, and returned my calls.. and didnt play games with refills #dsma | |
Janis N. Senungetuk @JanJava A4. YES! I have a wonderful experience w a CDE who several times kept we alive w sample insulin when I had no $. . #dsma | |
Pancreassassin @Pancreassassin 4. My pediatric endo was the best though. No offense to current endo, but she was the bomb DOT COM #dsma | |
John @joltdude I had a clinic PCP who was refilling my insulin scripts as I was waiting 6+ months to see an endo #dsma | |
Pancreassassin @Pancreassassin Also, oh hey, I'm supposed to email my endo today... #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @ryanryeguy89: @DiabetesSocMed A4. All the time! My Endo takes great interest in my life outside of diabetes. It's more than just an office visit. #dsma | |
Brent @bgarner8988 @DiabetesSocMed A4. Love my current endo. Very supportive of Looping, newer technology, keto, driving to Canada to buy insulin, etc. #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed YES! I've been seeing the same endo for almost 18 years and have never had a bad experience with her. She is simply awesome - completely understands that it's my diabetes and I need to do things my way. And she always supports that. #DSMA | |
Brenda Bell @tmana I think I'm going to have to reboot the computer to finish the phone backup... Back in a bit (maybe) #dsma | |
Dr. Phyllisa Deroze @not_defeated Yes, once my Endo gave me some free samples when I was strapped and couldn't afford diabetes managment. #DSMA | |
Brianna @TheChronicCon Q4: I love my team now. Everyone is great. My NP and Endo are great and I adore the LPN who works with my NP. She makes me smile every visit. Since I’m not moving around now I can build a relationship with my team. #dsma | |
Mike Ratrie @YOGA_O A4 - My diagnosis doctor (internist) & last two Endos have been really great. They have treated me as an adult who can make my own decisions; they provide the expert advice. #dsma | |
John @joltdude Unfortunately I have more problems with the front office staff than I do with my HCPs... #dsma | |
Janis N. Senungetuk @JanJava A4. Also have a great endo for 10 years! He really listened to me and understood my frustrations. We became good friends. #dsma | |
jess @jessakah_ @DiabetesSocMed A4. My endo’s have all been incredible. I have had 3, 2 pediatric and now that I’m 25, an “adult doctor”, and they never make me feel inferior or guilty. I can talk to my Dr about anything, my current PCP is also incredible. I’m truly lucky!! #dsma | |
Janis N. Senungetuk @JanJava RT @not_defeated: Yes, once my Endo gave me some free samples when I was strapped and couldn't afford diabetes managment. #DSMA | |
Matt Maggio @MaggioMatt Sleeper issue No. 1 of 2020: Americans risking death due to unaffordability of life-essential meds due to skyrocketed prices. #insulin | |
Diabetes Social Media Advocacy @DiabetesSocMed It is good to see that everyone has had a positive experience with an HCP. We are going to go back to Q3...well, kind of. #dsma | |
John @joltdude Very different than that Sick Call appt at my Primary Care's office with a HCP that flat out lied in my EHR ... Said HCP blocks in PHR #dsma | |
Brianna @TheChronicCon Q4: my NP always makes it a point to say something like “thank you letting me participate in your care. I know this is 24/7 and it’s not easy.” #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @not_defeated @JanJava Love the freebies. I was travelling to the USA and feared the honeymoon would end while over there so my Endo gave me insulin pens and a crash course on injecting, just in case #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Q5. If you could provide feedback on the negative interaction with the HCP, what would it be, and why? #dsma | |
Emilie T @SweetHiyachica A4. The CDE I saw at diagnosis was very nice and encouraging and patient. My family and I had planned a big road trip, and she encouraged us to still go. She went back to school, and now she's my NP! #DSMA | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q5. If you could provide feedback on the negative interaction with the HCP, what would it be, and why? #dsma | |
John @joltdude Have every right to see my own data... And fire your reception desk.... #dsma | |
David Strain @DocStrain To anyone in the UK complaining about the NHS, imagine if this was your idea of a good doctor experience. | |
Mike Ratrie @YOGA_O @T2DRemission I initially started to educate my primary, but then I realized my education effort wasn't going to be well-received. I now keep my primary in a lane. #DSMA | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A5. I can't answer this question since so far it hasn't happened. #dsma | |
jess @jessakah_ @DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all :-) #dsma | |
John @joltdude @ryanrhyguy89 Your lucky... #dsma | |
Brenda Bell @tmana Q5. Consults are there for your expertise... but they're no less people than your regular patients #dsma | |
Pancreassassin @Pancreassassin 5. I'm sorry if they didn't adequately cover diabetes in your med school, but if you have a question, I can probably answer it. ;) #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed A5 Get educated! Misdiagnosis is so common and all it takes is for people to understand that a Type 2 diagnosis (no known cause) is the last conclusion to make, not the first. #dsma | |
jess @jessakah_ This this this this this #dsma | |
StephenS @StephenSType1 Q5. I'd remind them that I'm the patient and it's my diabetes. And I might show them this: https://t.co/b29KKxXuOU #dsma | |
John @joltdude Oh man.. I forgot about the Plastic Surgeon from Hades when I was younger .. Before DIabetes... Told me to Shut the eff up as a child #dsma | |
Tim @metacman A5. Never trust a quack quack quack. But seriously don’t be afraid to get a second opinion. Especially with major issues or changes to treatment. #dsma | |
Brenda Bell @tmana I've SO had that experience, tho NOT d-related RT @jessakah_: @DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all : #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed A5. I would remind them that their words and actions stay in our minds for a long time. And that I am doing the very best I can at that moment. #DSMA | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @tmana: I've SO had that experience, tho NOT d-related RT @jessakah_: I've SO had that experience, tho NOT d-related RT @jessakah_: @DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all : #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @RenzaS: @DiabetesSocMed A5. I would remind them that their words and actions stay in our minds for a long time. And that I am doing the very best I can at that moment. #DSMA | |
John @joltdude Did not ask, did not say Can you be quiet so i can work.. No.. Told a youngish kid to Shut the eff up in front of my mother.. #dsma | |
Hope Warshaw RD CDCES @HopeWarshaw RT @RenzaS: Hey #DSMA! Renza here from Melbourne Australia. It's been a long time since I managed to visit DSMA land! | |
Mocha @ECEMocha Q4. My current endo is pretty awesome. He's good about working with me (not just giving directions) #dsma | |
Brenda Bell @tmana @joltdude My dad would have told that doc where to get off, in No Uncertain Terms. He made sure our docs treated us as intelligent ppl #dsma | |
NextWaveT2D @nextwavet2d A5: Y’know, although I had a negative experience, it really motivated me to do well (and in a way, it still does), so I guess the feedback would, be: you didn’t break me, but I don’t think this approach is for most people. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Amen! This happens way too often. #dsma | |
Brenda Bell @tmana Dang, I think I need to do a total shut down and reboot, not just a warm boot... #dsma | |
John @joltdude Brenda: Got Karmic Revenge a few times.... #dsma | |
Janis N. Senungetuk @JanJava A5. I'd tell him to listen & make an attempt 2 hear what I was saying. Leave all of his disbelief at the exam room door & start fresh. #dsma | |
Mocha @ECEMocha Q5. I wouldn't even know where to begin. #dsma | |
Dr. Phyllisa Deroze @not_defeated 5. The degrees that I have should never be an indicator as to how well I am treated. #DSMA I think it's important that we are all treated with good care. | |
StephenS @StephenSType1 RT @JanJava: A5. I'd tell him to listen & make an attempt 2 hear what I was saying. Leave all of his disbelief at the exam room door & start fresh. #dsma | |
Janis N. Senungetuk @JanJava RT @not_defeated: 5. The degrees that I have should never be an indicator as to how well I am treated. #DSMA I think it's important that we are all treated with good care. | |
Diabetes Social Media Advocacy @DiabetesSocMed @Carriellaandgaz I am so sorry to hear that. I hope you were able to find someone who understands you and your diabetes now. #dsma | |
Hope Warshaw RD CDCES @HopeWarshaw FYI y’all...Today 1A NPR radio show was focused on insulin pricing. I’m on a plane to CLT. Listening to the podcast now. A rep from @AmDiabetesAssn is on with parent of child with #T1D #dsma @NPR | |
Mike Ratrie @YOGA_O A5 - Feedback for negative HCP experience? 1 - Get some continuing Ed creds b4 spouting out nonsense 2 - Chronic condition means I spend over 60,000 hours a year with this condition, so don't dismiss my experience #dsma | |
Emilie T @SweetHiyachica A5. Everyone in ER needs to train on T1D and DKA. There should be floor nurses who take extra training in T1D and assign those to T1D patients. And they should let me use my pump while I'm an in patient! #DSMA | |
Hope Warshaw RD CDCES @HopeWarshaw RT @tmana: @DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma | |
Hope Warshaw RD CDCES @HopeWarshaw RT @JanJava: A4. YES! I have a wonderful experience w a CDE who several times kept we alive w sample insulin when I had no $. . #dsma | |
Tim @metacman RT @DiabetesSocMed: Amazing feedback: Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed We have time for one or two more questions. I cannot keep up! This is an amazing conversation. #dsma | |
John @joltdude Yeah there is a lot of... When in doubt, blame Diabetes and the patient for everything wrong... #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @T2DRemission @DiabetesSocMed If there is a chart saying you cannot get on the ride after this age, it is wrong :) #dsma | |
Mike Ratrie @YOGA_O Some things to consider if you're a HCP struggling with connecting with your patients #DSMA | |
jess @jessakah_ I haven’t participated in a #dsma talk in a WHILE and I’m so glad this is the one I came back to ☺️☺️☺️ | |
Diabetes Social Media Advocacy @DiabetesSocMed Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma | |
Renza / Diabetogenic @RenzaS RT @DiabetesSocMed: Amazing feedback: Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma | |
StephenS @StephenSType1 RT @DiabetesSocMed: Q6. True or false: Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma | |
Janis N. Senungetuk @JanJava RT @DiabetesSocMed: Q6. True or false: Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma | |
John @joltdude false #dsma | |
Pancreassassin @Pancreassassin 6. False. I've heard some real zingers in my day that still sting to this day. #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @SweeterCherise A6: False. Words matter and contribute to diabetic burnout is used poorly. That can not only hurt, it can kill. #dsma | |
NextWaveT2D @nextwavet2d A6: False, words hurt, but if they do hurt, I’m not going to let you have the last word. #dsma | |
Janis N. Senungetuk @JanJava A7. False. Words can do lots of damage! #dsma | |
Brianna @TheChronicCon Q6: false. Words hurt. A lot. #dsma | |
Mike Ratrie @YOGA_O That's a great success story! #DSMA | |
John @joltdude Some words are the equivalent of verbal assault.. #dsma | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma | |
Janis N. Senungetuk @JanJava RT @joltdude: Some words are the equivalent of verbal assault.. #dsma | |
Brenda Bell @tmana 6. They hurt in different ways. Names can empower you or oppress you, or overwhelm you. They can tag you and make you insignificant #dsma | |
StephenS @StephenSType1 Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma | |
Janis N. Senungetuk @JanJava RT @ryanryeguy89: @DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma | |
StephenS @StephenSType1 RT @joltdude: Some words are the equivalent of verbal assault.. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @ryanryeguy89: @DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma | |
John @joltdude Though the reverse can be just as damaging.. Sugarcoating something and making it seem "minor" #dsma | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @joltdude You said 'sugarcoating' in a D-forum hehehe :) #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA | |
Brenda Bell @tmana Q6. May I invoke Godwin's Law by mentioning a word, starts with "n", and refers to Americans with ancestors from sub-Saharan Africa? #dsma | |
Renza / Diabetogenic @RenzaS RT @StephenSType1: Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma | |
Renza / Diabetogenic @RenzaS RT @PWPillBox: @SweeterCherise A6: @SweeterCherise A6: False. Words matter and contribute to diabetic burnout is used poorly. That can not only hurt, it can kill. #dsma | |
Janis N. Senungetuk @JanJava RT @StephenSType1: Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma | |
Tim @metacman @joltdude I will definitely be using that (sugarcoating) in a future #DDJD #DSMA | |
Emilie T @SweetHiyachica A6. True and false. Sometimes what people say really gets to me. Depends on the person and their attitude. #DSMA | |
Diabetes Social Media Advocacy @DiabetesSocMed RT @RenzaS: @DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA | |
The Practical Diabetic (Leon Tribe) @PracticalDeeb @SweeterCherise The irony of a typo in a post about 'words matter' is not lost on me. #dsma | |
Janis N. Senungetuk @JanJava RT @SweetHiyachica: A6. True and false. Sometimes what people say really gets to me. Depends on the person and their attitude. #DSMA | |
Mike Ratrie @YOGA_O A6 - Kinda false. While I can choose to give certain words power and make others powerless on a personal level, words used incorrectly can cause others to have a skewed image of who I am and can lead to negative consequences. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed We ran out of time. I had one more question. #dsma https://t.co/dSutymrNev | |
Diabetes Social Media Advocacy @DiabetesSocMed Closing thoughts...#dsma | |
Janis N. Senungetuk @JanJava @DiabetesSocMed next week! #dsma | |
jess @jessakah_ @DiabetesSocMed A6. False. Ive been incredibly vulnerable my entire life with this disease and in high school, I had gotten into fights with people for making fun of me and my insulin pump. I developed other mental issues from things people have said to me, just one being diabulimia #dsma | |
Dr. Phyllisa Deroze @not_defeated @DiabetesSocMed false. Words do hurt. #dsma | |
jess @jessakah_ RT @RenzaS: @DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Save it for opening next week. #dsma | |
=ger= @fnjerseygirl @DiabetesSocMed all i know is i have flareups all the time cuz i have conflicting diseases/disorders and haven't a clue what to eat anymore. it really sucks alot. #dsma | |
StephenS @StephenSType1 Closing: Super chat. Grateful for people who understand. Thank you @SweeterCherise, and I still owe you #dsma | |
Renza / Diabetogenic @RenzaS @DiabetesSocMed Always lovely to pop into #DSMA. Thanks for the chat! (And for highlighting just why #languagematters!) | |
Tim @metacman Great session tonight. Please plan a similar memory lane #dsma soon. Thanks👏🏻👍🏻 | |
Janis N. Senungetuk @JanJava Closing: Remember to BE KIND to yourself & others, but also PERSIST & RESIST hate! LOVE WINS! #dsma | |
Brianna @TheChronicCon Closing... so glad I was able to chat tonight #DSMA | |
Mike Ratrie @YOGA_O @DiabetesSocMed But how happy you'll be in the future when you're in need of a question ... #DSMA | |
Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed CT: I loved this topic! We should do it at least twice a year. Different questions each time. #dsma | |
Janis N. Senungetuk @JanJava Thank you Cherise! Very good chat! #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed CT: Great conversation as always. I learned a lot and wanted to hug a lot of you. Please do not be a stranger, we hope to see you next week. #dsma https://t.co/srHzXarTBo | |
Emilie T @SweetHiyachica CT: Wow, where did that hour go?! Had trouble keeping up, but great questions and great responses! So happy so many could make it to #DSMA tonight. | |
Janis N. Senungetuk @JanJava RT @YOGA_O: @DiabetesSocMed But how happy you'll be in the future when you're in need of a question ... #DSMA | |
Diabetes Social Media Advocacy @DiabetesSocMed @YOGA_O True! I am going to use it next week. #dsma | |
Mike Ratrie @YOGA_O CT: Thanks for a wonderful hosting. I've been off for the last few weeks, so it was great to "see" you and everyone else this week. #dsma | |
Diabetes Social Media Advocacy @DiabetesSocMed Thank you! I am adding it to the list. #dsma | |
jess @jessakah_ I missed #dsma so much 😭😭😭 so nice to speak with people who just get it sometimes. And this weeks prompted questions were amazing. Hope to be back next week!! ❤️❤️ | |
Janis N. Senungetuk @JanJava RT @YOGA_O: CT: CT: Thanks for a wonderful hosting. I've been off for the last few weeks, so it was great to "see" you and everyone else this week. #dsma | |
NextWaveT2D @nextwavet2d Closing: had a great time tonight! So impressed with all the stories of overcoming adversity in the HCP setting. I hope everyone, even those that did not have a chance to reply, got something out of tonight. See you next week. #dsma | |
Brenda Bell @tmana I need to figure out if I need to back up my contacts b/c it's an Android phone and Google manages them anyway... #dsma | |
Mike Ratrie @YOGA_O I was just reading that the heroes are those who do these things ... #DSMA | |
Michelle Litchman, PhD, FNP @MichLitch 🙌🏽 Great tips for HCPs on how to support people with diabetes! I’ll add one. I always try to treat my own patients the way I want HCPs to treat my immigrant deaf mother. Kindness and patience (and an interpreter when needed) is key for excellent communication. #DSMA | |
Scott K. Johnson @scottkjohnson RT @nextwavet2d: Closing: Closing: had a great time tonight! So impressed with all the stories of overcoming adversity in the HCP setting. I hope everyone, even those that did not have a chance to reply, got something out of tonight. See you next week. #dsma |
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