#ebnjc Transcript
Healthcare social media transcript of the #ebnjc hashtag.
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See #ebnjc Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | EBNursingBMJ @EBNursingBMJ Your hosts for tonight's chat are @heblau and @robertaheale from @EBNursingBMJ #ebnjc |
| EBNursingBMJ @EBNursingBMJ Hello & welcome to this chat - talking about inequalities in palliative care, in advance of this year's World Hospice and Palliative Care Day next Sunday 12th October. Firstly, who do we have here? Say hi and tell us where you are, and remember to use #ebnjc |
| EBNursingBMJ @EBNursingBMJ STARTING NOW!! Twitter Chat with Laura Green @heblau and Roberta Heale @robertaheale from EBN to discuss how nurses can ensure Palliative Care for all. #ebnjc https://t.co/jjXqWpTkTS |
 | Roberta Heale @robertaheale #ebnjc Hello Everyone. Welcome to the Chat @heblau Looking forward to learning from you about palliative care! |
| Roberta Heale @robertaheale #ebnjc It's Roberta, Associate Editor at EBN. I live in Canada. I'm a nurse practitioner and professor. Many research interests, including advance care planning. |
| Roberta Heale @robertaheale #ebnjc @heblau Laura, what led you to your interest in Palliative care? |
| EBNursingBMJ @EBNursingBMJ @robertaheale Hi Roberta - so, we are talking about inequalities in end of life care tonight, what are the kinds of inequalities that face people in Canada? #ebnjc |
| Roberta Heale @robertaheale #ebnjc I'd have to say the resources to allow people to receive palliative care and in the place of their choice |
| EBNursingBMJ @EBNursingBMJ Don't forget to include the hashtag #ebnjc so we can follow the conversation |
| EBNursingBMJ @EBNursingBMJ This document outlines some of the key #inequalities in the UK #whpcd19 #ebnjc https://t.co/RTei1A4dvg @hospiceuk |
| Roberta Heale @robertaheale #ebnjc @heblau Interesting...both deal with life in some format.... |
| EBNursingBMJ @EBNursingBMJ @lisakidd22 @BridgetJohnst @hospiceuk would love to hear more about this research #ebnjc #whpcd19 |
| Roberta Heale @robertaheale #ebnjc The inequalities in the UK may be different from my area. There is the physical space: rural, northern and remote to overcome. Most people have to travel to cities to receive palliative care and most options are hospitals. |
 | Dr Liz Bailey 💙 @Liz8ailey RT @EBNursingBMJ: Hello & welcome to this chat - talking about inequalities in palliative care, in advance of this year's World Hospice and Palliative Care Day next Sunday 12th October. Firstly, who do we have here? Say hi and tell us where you are, and remember to use #ebnjc |
| EBNursingBMJ @EBNursingBMJ To understand inequalities, we need to understand what the universal needs of people are as they face the end of life. Thoughts? #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ RT @lisakidd22: |
| EBNursingBMJ @EBNursingBMJ RT @heblau: |
| Roberta Heale @robertaheale #ebnjc Hopefully this is something that is improving |
| EBNursingBMJ @EBNursingBMJ @robertaheale unfortunately not rapidly enough - see this report https://t.co/44awr30oky #ebnjc |
| Roberta Heale @robertaheale #ebnjc Agree. Seems that inequalities for palliative care may mirror inequalities in other areas. Something to be aware of as healthcare providers |
| EBNursingBMJ @EBNursingBMJ @CalvinMoorley Remember to use the #ebnjc hashtag so your comments appear in the twitter chat |
| EBNursingBMJ @EBNursingBMJ What are the universal needs of people facing the end of life? #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ Don't forget to use the hashtag #ebnjc so we can see your comments |
| EBNursingBMJ @EBNursingBMJ RT @lisakidd22: |
| Roberta Heale @robertaheale #ebnjc Great to know about resources for vulnerable, hard to reach populations |
| EBNursingBMJ @EBNursingBMJ @CalvinMoorley Can you share any research in this area, Calvin #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ RT @heblau: |
| Roberta Heale @robertaheale #ebnjc The report shows that in deprived areas with as many community resources as non-deprived, there are less adequate palliative care services. So, not a resource issue...then, what might be the reasons? |
| EBNursingBMJ @EBNursingBMJ @robertaheale attitudes and beliefs? timely identification of needs? #ebnjc |
| EBNursingBMJ @EBNursingBMJ RT @robertaheale: #ebnjc The report shows that in deprived areas with as many community resources as non-deprived, there are less adequate palliative care services. So, not a resource issue...then, what might be the reasons? |
| Roberta Heale @robertaheale #ebnjc Its disheartening to still hear people worry about their dying family member becoming addicted when the morphine is used to ease their pain while dying |
| EBNursingBMJ @EBNursingBMJ RT @robertaheale: #ebnjc I'd have to say the resources to allow people to receive palliative care and in the place of their choice |
| Roberta Heale @robertaheale #ebnjc yes, and being in a deprived area, there are likely many more day-to-day issues to address beyond health care. Takes the focus off of the palliative care needs |
| Dr Liz Bailey 💙 @Liz8ailey RT @EBNursingBMJ: This document outlines some of the key #inequalities in the UK #whpcd19 #ebnjc https://t.co/RTei1A4dvg @hospiceuk |
| EBNursingBMJ @EBNursingBMJ RT @robertaheale: #ebnjc yes, and being in a deprived area, there are likely many more day-to-day issues to address beyond health care. Takes the focus off of the palliative care needs |
| Roberta Heale @robertaheale #ebnjc About 7 years ago a palliative care initiative was launched in my province (Ontario). Nurse Practitioners, working on a palliative care team, provide services to hospital, hospice and homes. Able to provide care to vulnerable and hard-to-reach people |
 | MAGICYL @Team_MAGICYL Late to chat but our work on dignity therapy for CYP with life limiting conditions rekevant ti chat #ebnjc |
| MAGICYL @Team_MAGICYL RT @EBNursingBMJ: To understand inequalities, we need to understand what the universal needs of people are as they face the end of life. Thoughts? #ebnjc #whpcd19 |
| MAGICYL @Team_MAGICYL What were key messages from review? #ebnjc |
| EBNursingBMJ @EBNursingBMJ A key priority for this year's #whpcd19 is to raise the profile of palliative care inequalities in your country - what would you say is the number one thing that needs to change? #ebnjc |
| Roberta Heale @robertaheale #ebnjc That's horrible! I can't imagine how difficult the deaths are for them. |
| Roberta Heale @robertaheale #ebnjc Although it is improving, I think better service to people in their homes. |
| MAGICYL @Team_MAGICYL Recognising end if life care is essential across the life soan #ebnjc |
| MAGICYL @Team_MAGICYL Many isuses such as uncertain illness trajectories, paternalism, lack of appropriate interventions .....#ebnjc |
| Roberta Heale @robertaheale #ebnjc 1/2 Palliative care is broadly defined and people are brought into the program well before they are in the last stages of dying...so that's good. However, they are strict about providing service in some cases |
| Roberta Heale @robertaheale #ebnjc 2/2 for example, refused to add one of my patients to the program because her family wanted to keep her hydrated by IV or nasogastric tube. |
| EBNursingBMJ @EBNursingBMJ @robertaheale outreach services are essential if palliative care is to be accessed in a range of settings - is there a potential role for telehealth in areas where distances to services prevent access? #ebnjc #whpcd19 |
| Roberta Heale @robertaheale #ebnjc absolutely! Telehealth is already utilized for things like medication updates etc. Many times, it's the actual physical care that is lacking in the community. |
| Roberta Heale @robertaheale #ebnjc Yes, that's what I thought. But hydration was a 'no go' for their program. I've asked them to review policies. |
| Roberta Heale @robertaheale #ebnjc @heblau Has there been any change in Cambodia toward better palliative care, since you were there? |
| Roberta Heale @robertaheale #ebnjc Great resource!! |
| MAGICYL @Team_MAGICYL Here is our review abstract for anyone interested #ebnjc https://t.co/LppSMgWnbr |
| Roberta Heale @robertaheale RT @heblau: |
| Roberta Heale @robertaheale #ebnjc wonderful! This is a great resource |
| MAGICYL @Team_MAGICYL Agree good to network have tweeted our review #ebnjc |
| EBNursingBMJ @EBNursingBMJ RT @heblau: |
| EBNursingBMJ @EBNursingBMJ RT @heblau: |
| Roberta Heale @robertaheale #ebnjc So the issue is very complex. Not enough preventative care, not enough screening, monitoring and treatment all leads to late ca diagnosis and horrible, painful death. Tragic |
| EBNursingBMJ @EBNursingBMJ With just under 10 minutes to go and so many interesting threads, what are your thoughts on the biggest priority for widening access to palliative care? #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ @josmith175 Great, glad you could join us - biggest priority in your opinion for improving access to palliative care? #ebnjc |
| EBNursingBMJ @EBNursingBMJ @bridgetjohnst Fascinating - any publications or blogs to share in advance of World Hospice & Palliative Care Day? #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ RT @BridgetJohnst: |
| Roberta Heale @robertaheale #ebnjc Internationally, access to medication for adequate pain and symptom management is essential |
| Dr Liz Bailey 💙 @Liz8ailey RT @EBNursingBMJ: With just under 10 minutes to go and so many interesting threads, what are your thoughts on the biggest priority for widening access to palliative care? #ebnjc #whpcd19 |
| EBNursingBMJ @EBNursingBMJ RT @robertaheale: #ebnjc Internationally, access to medication for adequate pain and symptom management is essential |
| Roberta Heale @robertaheale #ebnjc Great to see you on the chat @josmith175 !! |
| EBNursingBMJ @EBNursingBMJ Eek where has that hour gone? Last thoughts before we go and apply a warm compress to our aching eyes? #ebnjc |
| Roberta Heale @robertaheale RT @heblau: |
 | Adj Prof Karen Price, 20-22 RACGP Past Prez @brookmanknight RT @heblau: |
 | Andrew Flannery @andyflan #ebnjc intresting chat |
| Roberta Heale @robertaheale #ebnjc Thanks for all the comments and links to reports and articles. Great resources! |
| EBNursingBMJ @EBNursingBMJ Thank you so much for joining and giving us your time and thoughts - watch this space for a post-chat summary #ebnjc and remember to follow #whpcd19 on 12th October to find out more about this global day of action |
 | Sue Newsome @suenewse99 RT @heblau: |
 | Wilfred McSherry @WilfredMcSherr1 RT @josmith175: |
#ebnjc content from Twitter.