#gbdoc Transcript

Healthcare social media transcript of the #gbdoc hashtag.
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Dan M @danm695
@GbdocTChost I’m Dan, dad to 10-year-old T1D daughter who used Medronic 640g and Libre. In training 11 months. New to this chat forum - keen to support my friend @Karenjeffs who I’ve learnt so much from since DD’s diagnosis. My nickname at school was ‘Danger Mouse’ #gbdoc
Matt 🇪🇺 @T1MattT1
@GbdocTChost @Karenjeffs Hi Karen, I'm Matt, T1D since 1986 also using 640G and Libre. Dad to 2 girls neither of which has T1D so not sure how much input I'll have tonight. Various nicknames at different points in my life - obvious one would be Jacko. #gbdoc
Jimmy @jimmyeatworld50
@GbdocTChost Jimmy #T1D 30 years father of 6 ankle biters, none of which are #T1D some of my friends call me Bob 😂😂#gbdoc https://t.co/za6OXTigH4
Literal chaos 🇺🇦 @OccamRaisedHer
@GbdocTChost A1. That’s been a staple since I was diagnosed (when this was fields). Absolutely no psychological care #GBDoc
Dan M @danm695
@GbdocTChost A1: much the same experience for us, HCP did one session with DD on mental health early on in diagnosis, but nothing since, and nothing offered for the whole family to help us all adapt to our new ‘normal’ #gbdoc
Literal chaos 🇺🇦 @OccamRaisedHer
@GbdocTChost Completely agree. Treat the whole person! #gbdoc
Deborah @T1_broccoholic
@GbdocTChost Hi! I’m Deb but known to family as Zsheebs & friends as peebso. Only me in family with #t1d, MDI for 5yrs & cgm user for 6mnths #gbdoc
Deborah @T1_broccoholic
@GbdocTChost The care I received after diagnosis in Chile was absolutely fantastic but absolutely nothing since moving back to the UK 🤷🏼‍♀️ #gbdoc
Dan M @danm695
@GbdocTChost A2: For me as a parent, it’s the time and flexibility they offer us to made ad-hoc appointments, talk on the phone or email for advice and support. They have never been ‘too busy’ to provide help and support when we need(ed) it #gbdoc
Literal chaos 🇺🇦 @OccamRaisedHer
@GbdocTChost Q3. It becomes like second nature. It won’t always feel this terrifying. The tech nowadays makes some of it feel “ easy”#gbdoc
Matt 🇪🇺 @T1MattT1
@GbdocTChost A3. Try not to get too obsessed with numbers as perfection is impossible. Do your best with it but don't let it stop you enjoying life. #gbdoc
Dan M @danm695
@GbdocTChost A3: As @Karenjeffs told me about Ellie’s diagnosis when I was struggling with it all: ‘It sucks right now, it’s relentless and never ending, but YOU HAVE GOT THIS. She will be the bravest, most resilient, complete warrior and empathic young lady because of it' So true #gbdoc
Serena Coleman @LiterarySa
@GbdocTChost Was called Weed as a kid, now get Ser-mean-a if @DanielMColeman thinks I'm being mean! #gbdoc
Serena Coleman @LiterarySa
@GbdocTChost At diagnosis it was quite chaotic. Two days in hospital, then one clinic appointment with a DSN and discharged with very little info. GP was great #gbdoc
Serena Coleman @LiterarySa
@GbdocTChost Being able to email DSN in between appointments, and getting a fairly prompt response, and having been referred for 'health coaching' which is really talking therapies for long term conditions #gbdoc
Dan M @danm695
@GbdocTChost Everything she deals with every single day without complaining and just gets on with it…… so proud of how she has adapted in the past 11 months and takes it all in her stride #gbdoc
Jimmy @jimmyeatworld50
@GbdocTChost I suppose I'm proudest of managing my #T1D for 30 years and apart from a bit of wear and tear I'm doing OK 🤔🤔#gbdoc
Serena Coleman @LiterarySa
@GbdocTChost Managing my anxiety around it, although this is an improving picture #gbdoc
Matt 🇪🇺 @T1MattT1
@GbdocTChost A5. Not sure it's anything to be proud of but despite T1 had a pretty normal life really - Uni, job, kids. Always enjoy my bike rides - proud of my 200km (126 mile) one. Can't think of any positives with T1D - well it's a bit crap innit? 😄 #gbdoc
Matt 🇪🇺 @T1MattT1
@GbdocTChost Taming the beast. 😀 #gbdoc https://t.co/sChkPSloHO
#gbdoc content from Twitter.