#irishmed Transcript
Healthcare social media transcript of the #irishmed hashtag.
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See #irishmed Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Katy Hanlon @khanlon RT @drlfarrell: |
 | Chelsea Friend @kiwifreund Hi from #StPaul #Minnesota - #MCAS/#MCAD here, + hypermobility issues. #RareDisease #irishmed |
 | TalentCoop @TalentCoop #irishmed https://t.co/2XG9LXFLVA |
 | Bernadette Keefe MD @nxtstop1 Hi all, Bernadette Keefe MD delighted to join host, Liam and guests and each of you from Chapel Hill NC ~ #irishmed |
 | ElizabethKelly, Ph.D @Elizabe85727641 #irishmed Greetings everyone, Liz Kelly, health advocate & advocate, eager to learn with others. |
| Chelsea Friend @kiwifreund @drlfarrell He based those on a place specifically where I went to school for six years. It was featured in @NatGeo #irishmed |
| Katy Hanlon @khanlon Hello @drlfarrell, #irishmed co-hosts, and folk! I am here as aunt of now 3-year old nephew with #RareDisease who's birthday is today! 🎂 |
| Katy Hanlon @khanlon @Northamptonpod @drlfarrell Awwww thanks, Sheila! #irishmed |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 Lack information/understanding of 2016 reclassification, await responses from others. #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @EDSIreland: |
| Chelsea Friend @kiwifreund T1: I think it does. #EDS + #MCAS + #POTS are genetically related, yet so much is not known. The reclass will help in the future. #irishmed |
| Chelsea Friend @kiwifreund T1: #MCAS was only "discovered" 9 yrs ago. We can't get these subclasses yet, but can tag along with #EDS, genetically related. #irishmed |
| TalentCoop @TalentCoop RT @kiwifreund: T1: T1: #MCAS was only "discovered" 9 yrs ago. We can't get these subclasses yet, but can tag along with #EDS, genetically related. #irishmed |
| Bernadette Keefe MD @nxtstop1 T1 To my clinical eye, it still seems to be a challenge to distinguish hypermobile EDS from hypermobility syndrome #irishmed |
| TalentCoop @TalentCoop ..... 'boys jobs never done'....☺ #irishmed https://t.co/ML2nF1yP5B |
| TalentCoop @TalentCoop RT @EDSIreland: |
| Katy Hanlon @khanlon My nephews RD was visible in part, so a formal diagnosis and degree of severity workup was timely. EDS sounds just the opposite. #irishmed |
| TalentCoop @TalentCoop RT @EDSIreland: |
| TalentCoop @TalentCoop RT @drlfarrell: |
| Chelsea Friend @kiwifreund @TalentCoop Or if you are a woman who lives alone, this is your job, gender aside. #irishmed |
| TalentCoop @TalentCoop RT @drlfarrell: Hi leanne, Q1 already up, awaiting your wisdom RT @EDSIreland: |
| Bernadette Keefe MD @nxtstop1 T1 Both conditions have symptoms of varying severity, depending on the amount & type of physical activity. For instance>athlete? #irishmed |
 | World Health Innovation Summit @WHIS2020 RT @nxtstop1: T1 To my clinical eye, it still seems to be a challenge to distinguish hypermobile EDS from hypermobility syndrome #irishmed |
| Bernadette Keefe MD @nxtstop1 A point! MT @drlfarrell: T2 just thinking a particular role here f4 dentists in diagnosing #EDS; they see everyone sooner or later #irishmed |
| Chelsea Friend @kiwifreund T2: #EDS/#POTS/#MCAS travel together. Dr. Afrin says #MCAS is hugely more common than we realize; if it is, so might be EDS. #irishmed |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Knowledge base impt for listening & connecting with pt. to receive accurate Dx. & treatment #irishmed |
| Bernadette Keefe MD @nxtstop1 @nxtstop1 @drlfarrell RE dentists and #EDS > two things, bleeding tendency and loose TMJ #irishmed |
| TalentCoop @TalentCoop ...thats me...all my jobs. #girljobs ☺ #irishmed https://t.co/4LJDaBzE7v |
| Katy Hanlon @khanlon @Elizabe85727641 Yes! And for connecting with support groups and online communities. #irishmed |
| Bernadette Keefe MD @nxtstop1 @gmcrotty @nxtstop1 Good Q. Not a rheumatologist, don't know answer.... #irishmed |
 | Christine Collins MBE @christinezoo RT @EDSIreland: |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
| TalentCoop @TalentCoop RT @rachelmlynch: |
| Bernadette Keefe MD @nxtstop1 RT @rachelmlynch: |
| Christine Collins MBE @christinezoo RT @drlfarrell: |
| TalentCoop @TalentCoop RT @drlfarrell: |
| TalentCoop @TalentCoop RT @EDSIreland: |
| Bernadette Keefe MD @nxtstop1 RT @drlfarrell: |
| TalentCoop @TalentCoop RT @nxtstop1: A point! MT @drlfarrell: A point! MT @drlfarrell: T2 just thinking a particular role here f4 dentists in diagnosing #EDS; they see everyone sooner or later #irishmed |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
 | Alan Höward 🤦🏽♂️ @AhJaysusHowaya @EDSIreland One of the reasons I think forums like #irishmed are so important. Side note: Love the logotype. |
| Christine Collins MBE @christinezoo RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 T2 Imj the key is to help patients w/ symptoms. It is possible never to have definitive DX but high likelihood of helping symptoms #irishmed |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
| Chelsea Friend @kiwifreund RT @Imonlyslightly: |
| Christine Collins MBE @christinezoo RT @rachelmlynch: |
| Christine Collins MBE @christinezoo RT @nxtstop1: T1 To my clinical eye, it still seems to be a challenge to distinguish hypermobile EDS from hypermobility syndrome #irishmed |
| Bernadette Keefe MD @nxtstop1 T2 Want 2 highlight @drlfarrell point RE:dentists. Imj if everyone saw dental hygenist @ six months, dentist yearly >incr health! #irishmed |
| Bernadette Keefe MD @nxtstop1 T2 Very important for women who are hyper mobile to have eval prior to delivery RE: bleeding, Also can have pelvic /SI joint probs #irishmed |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @nxtstop1: T2 Very important for women who are hyper mobile to have eval prior to delivery RE: T2 Very important for women who are hyper mobile to have eval prior to delivery RE: bleeding, Also can have pelvic /SI joint probs #irishmed |
| Christine Collins MBE @christinezoo @drlfarrell Yes! But need multiple disciplines to be EDS aware #Irishmed T1 |
| TalentCoop @TalentCoop RT @drlfarrell: |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. Jumping in late but pleased to be included. #irishmed https://t.co/Emdu7NtnJi |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 Without knowledge of Irish medical curriculum can't offer an opinion, will learn from others. #irishmed |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @22Q11_Ireland: |
| Bernadette Keefe MD @nxtstop1 RT @drlfarrell: |
| Christine Collins MBE @christinezoo RT @Imonlyslightly: |
| TalentCoop @TalentCoop RT @astaines: |
| Bernadette Keefe MD @nxtstop1 T2 /T3 RE: Ireland too small for # of specialists, see value of preliminary #telemedicine visit w/ specialist in U.K before travel #irishmed |
 | Marie Bryne @MarieBryne RT @rachelmlynch: |
| Bernadette Keefe MD @nxtstop1 @khanlon @drlfarrell The U.S. has it's particularly misguided form of healthcare system based on profit primarily...pay to play. #Irishmed Dental coverage? No |
| Bernadette Keefe MD @nxtstop1 RT @astaines: |
| TalentCoop @TalentCoop RT @astaines: |
| TalentCoop @TalentCoop RT @SeanSaid_: |
| Alan Höward 🤦🏽♂️ @AhJaysusHowaya @22Q11_Ireland @drlfarrell T3 I'd imagine that's how fora like this and (unfortunately) Dr Google can and are playing a huge part. #IrishMed |
| Bernadette Keefe MD @nxtstop1 @mintclinicD2 @HealthIreland Perfect. Your ears must be burning. We were just lauding your speciality over here on #Irishmed where slug of vodka if you forget your Ts. |
| TalentCoop @TalentCoop RT @22Q11_Ireland: |
| Bernadette Keefe MD @nxtstop1 @astaines Look forward to reading ~. Thx #Irishmed |
| Bernadette Keefe MD @nxtstop1 RT @astaines: |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Perhapds EDS needs a "star," to get attention, gather $$, fund research. Listening to pt garners limited attention. #irishmed |
| TalentCoop @TalentCoop RT @Imonlyslightly: |
| TalentCoop @TalentCoop RT @drlfarrell: |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @22Q11_Ireland: |
 | Darryl Mackender @docfromthebush RT @astaines: |
| Chelsea Friend @kiwifreund @rachelmlynch @AceZebraROI @drlfarrell How is he's still unscathed?? #irishmed |
| Katy Hanlon @khanlon @drlfarrell I just needed an #irishmed drink, Liam;) |
| Katy Hanlon @khanlon Forgot #Irishmed 🤗 https://t.co/PJT7ZzUEiu |
| Bernadette Keefe MD @nxtstop1 @mintclinicD2 @drlfarrell Be lovely if you could elaborate as I'm not a dentist. The hashtag to respond to all is #Irishmed ~ Many thanks ~ |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
| Bernadette Keefe MD @nxtstop1 T4 Physiotherapists are number one. Also should have mentioned, they see the most hypermobile EDS @NatalieMurphEDS @EDSIreland #irishmed |
| TalentCoop @TalentCoop RT @nxtstop1: T4 Physiotherapists are number one. Also should have mentioned, they see the most hypermobile EDS @NatalieMurphEDS @EDSIreland #irishmed |
| Christine Collins MBE @christinezoo @rachelmlynch @22Q11_Ireland @drlfarrell If more awareness & coordination/communication, could a 2ndry centre supported by a 3ry centre manage most cases? #irishmed |
| TalentCoop @TalentCoop RT @22Q11_Ireland: |
| TalentCoop @TalentCoop RT @22Q11_Ireland: |
| Chelsea Friend @kiwifreund T5: I have a hard time being believed. I attribute some of that to being female. Female = hysterical, even w/my 1,200 pgs records #irishmed |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Research & $$, accurate dx, multiple-discipline support services/groups. #irishmed. |
| Bernadette Keefe MD @nxtstop1 RT @Elizabe85727641: T5 Research & $$, accurate dx, multiple-discipline support services/groups. #irishmed. |
| Katy Hanlon @khanlon @drlfarrell T5 My nephew's RD is visible so he will need to continue to develop a strong sense of self and have loving friends and family. #irishmed |
| TalentCoop @TalentCoop RT @EDSIreland: |
| TalentCoop @TalentCoop RT @drlfarrell: |
| ElizabethKelly, Ph.D @Elizabe85727641 CT Interesting topic & discussion, illustrates impt of listening to Pt. & thinking outside the box.#irishmed |
| Christine Collins MBE @christinezoo @rachelmlynch @22Q11_Ireland @drlfarrell EDS Diagnostic path being looked at in England. Any interest in looking at patient experience/clinician perspective in Ireland? #irishmed |
| Alan Höward 🤦🏽♂️ @AhJaysusHowaya T5 #IrishMed Role for social/digital media, forums, supports, sharing. But nervous that they also attract the snake oil and unscrupulous? |
| Marie Bryne @MarieBryne RT @drlfarrell: |
| TalentCoop @TalentCoop RT @drlfarrell: |
| TalentCoop @TalentCoop RT @Imonlyslightly: |
| Katy Hanlon @khanlon A final Happy Birthday #Irishmed shout out to my sweet, strong, RD, 3-year old nephew, Ronan! |
| TalentCoop @TalentCoop RT @drlfarrell: |
| Chelsea Friend @kiwifreund At one point I was in a hospital bed, crying by myself but with weird relief because (I thought) I had a dx (it was wrong) #irishmed https://t.co/xp5MSgHAw3 |
| Christine Collins MBE @christinezoo @drlfarrell Need that perspective: and to find solutions: come to workshop 7 June Grosvenor Hall https://t.co/AJC3Jz2yvr #irishmed |
| TalentCoop @TalentCoop RT @khanlon: A final Happy Birthday #Irishmed shout out to my sweet, strong, RD, 3-year old nephew, Ronan! |
| Bernadette Keefe MD @nxtstop1 Thanks to Liam @drlfarrell and to the #EDS guests hosts and to each of you for this discussion of rare disease/EDS diagnosis - #irishmed |
| TalentCoop @TalentCoop @khanlon Hey Ronan..Happy birthday 🎂🎶👏 #irishmed https://t.co/Mngqv5G4zW |
| Alan Höward 🤦🏽♂️ @AhJaysusHowaya T5 #IrishMed How do the patients, HCPs and especially researchers find the critical mass of patients to engage comprehensively? |
| TalentCoop @TalentCoop RT @drlfarrell: |
| Christine Collins MBE @christinezoo RT @drlfarrell: |
| Christine Collins MBE @christinezoo RT @drlfarrell: |
| Christine Collins MBE @christinezoo RT @22Q11_Ireland: |
| Christine Collins MBE @christinezoo RT @EDSIreland: |
| Alan Höward 🤦🏽♂️ @AhJaysusHowaya @rachelmlynch I'm learning that from things on here. And sickens me how media professionals assist same by targeting and search strategies. #IrishMed |
| Christine Collins MBE @christinezoo RT @drlfarrell: |
| Marie Bryne @MarieBryne RT @Imonlyslightly: |
| Alan Höward 🤦🏽♂️ @AhJaysusHowaya Final #irishmed share for tonite. And I'm afraid it's off-topic ( so no T), but thought you'd like. https://t.co/6nppmaemrZ |
#irishmed content from Twitter.