#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
– ().
See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity Just in time for today’s #migrainechat! Thanks @drugstarsapp! #mychronicbrain #chronicmigraine ##TogetherWeAreStrong https://t.co/paC7id8EQT |
 | Beth Morton @beth_morton @migrainediva Oh, Jaime, I was so hoping you'd feel up to joining our #migrainechat later today. Rest up and catch it next month if you can. I hope you find some relief soon. |
| Beth Morton @beth_morton #Migraine is the 6th highest cause of #disability globally, the 2nd leading cause of years lived with disability, the leading cause of disability among all #neurological disorders, and the leading cause of disability among those aged 15-49. #migrainechat |
| Beth Morton @beth_morton Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
| Beth Morton @beth_morton And I broke my own rule #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity So excited! #migrainechat #migrainemondays #migrainechatreturns |
| Beth Morton @beth_morton @Sweepea27 Today's the day! If you're free, please join us. Just a little over an hour until we get the #migrainechat going! |
 | My Chronic Brain @mychronicbrain @hg_imagiste Caroline! We’re sorry you’re having a bed day with migraine. Want some company? #MigraineChat will start in just over an hour! Come join in?? ☺️💜 |
 | Shelby Renae @ShelbyRenae15 RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
| Shelby Renae @ShelbyRenae15 RT @beth_morton: #Migraine is the 6th highest cause of #disability globally, the 2nd leading cause of years lived with disability, the leading cause of disability among all #neurological disorders, and the leading cause of disability among those aged 15-49. #migrainechat |
| My Chronic Brain @mychronicbrain 15 minutes to go! Are you joining us today for #MigraineChat? https://t.co/SlIwLuVNId |
 | Angie Glaser @winedarkme RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
 | Maya Northen Augelli @mayanorthen RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
 | Caroline @hg_imagiste Hey my very few Twitter friends, for the next hour, I’ll be joining #Migraine Chat Monday (#migrainechat). If you’d prefer not to see these tweets in your feed, feel free to mute the hashtag. Cheers! |
 | em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 Hey Twitter friends, for the next hour, I’ll be joining #Migraine Chat Monday (#migrainechat). If you’d prefer not to see these tweets in your feed, feel free to mute the hashtag. I’d encourage you not to, though. You’ll learn a lot! (@beth_morton) |
| My Chronic Brain @mychronicbrain 3 minutes! Don't want to see #MigraineChat tweets in your timeline? No problem! Just mute the hashtag. But we hope you won't and will join us instead! |
| Beth Morton @beth_morton Hello everyone! Welcome to our first #migrainechat! If you haven’t already, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| My Chronic Brain @mychronicbrain RT @beth_morton: Hello everyone! Welcome to our first #migrainechat! If you haven’t already, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton If you are new to Twitter chats, two tips. 1) We’ll start our questions with Q1, Q2, etc. You should start your corresponding reply tweet with A1, A2, etc. 2) Always remember the hashtag! It helps for following the #migrainechat conversation. |
| My Chronic Brain @mychronicbrain RT @beth_morton: If you are new to Twitter chats, two tips. 1) We’ll start our questions with Q1, Q2, etc. You should start your corresponding reply tweet with A1, A2, etc. 2) Always remember the hashtag! It helps for following the #migrainechat conversation. |
| Beth Morton @beth_morton Before we dive into questions. Who is here today? Please introduce yourself! I’m Beth and I’ll be moderating the chat from wintry Vermont. I’ve lived with #migraine for over 20 years now. Migraining today, ugh! #migrainechat |
 | Krista @Kristacatlady Hey Twitter friends, for the next hour, I’ll be joining #Migraine Chat Monday (#migrainechat). If you’d prefer not to see these tweets in your feed, feel free to mute the hashtag. #MigraineChat |
| My Chronic Brain @mychronicbrain Hi all! This is Mia, the Editor in Chief over here at the new My Chronic Brain. I've had Chronic Migraine for 14 years. UCK. #MigraineChat |
| Krista @Kristacatlady I am Krista. I have had migraines for 38 yrs. Been chronic for about 11 yrs. #MigraineChat |
| My Chronic Brain @mychronicbrain @migrainekrista Krista! YOUR HAIR! Absolutely love it. #MigraineChat |
| Beth Morton @beth_morton @mychronicbrain Hi Mia! #migrainechat https://t.co/kDNotJjXsl |
| Beth Morton @beth_morton While you continue introductions, a few notes. This #migrainechat is purely informational. Nothing shared should be considered medical advice or a substitution for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| My Chronic Brain @mychronicbrain @hg_imagiste Woops. We broke our own rule. -> #MigraineChat |
| Beth Morton @beth_morton @hg_imagiste Hi Caroline! Thanks for being here! PS, my Sophie is curled up next to me, too! #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: While you continue introductions, a few notes. This #migrainechat is purely informational. Nothing shared should be considered medical advice or a substitution for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
 | Kathryn McClatchy | Unleashing the Next Chapter @Kmmcclatchy RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
| Beth Morton @beth_morton Ready for Q1? Let’s jump in! #migrainechat |
| My Chronic Brain @mychronicbrain @migrainekrista I did mine purple once too and LOVED it! But you're right, it takes so much energy to go through the process. #migrainechat |
| Beth Morton @beth_morton Q1. Where are you in your #migraine journey? Do you have a diagnosis or are you still searching for a proper one? #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 I'm really excited to be joining my first #migrainechat today!! Looking forward to meeting new #migraineurs and learning from each other. I'm Emily, joining the chat from Toronto. I'm 19, have had #migraines for 10 yrs, chronic for 4yrs, daily intractable for 1yr. |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q1. Where are you in your #migraine journey? Do you have a diagnosis or are you still searching for a proper one? #migrainechat |
 | Rie Lopez, MPH (she/her) @RieOfLetters Missing #migrainechat today because I have a #migraine. Go figure. Join in if you can! |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton I’m Jenn, I live in Northern California. I have also been Migraining for more than twenty years. So do all the adult women in my family, back in the family tree to grandma and great-grandma. My brother also gets migraines, though not #chronicmigraine. #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily Ow ow ow intractable sucks! Mine is intractable too and it's such a pain. ...oi, pun not intended. Ha ha. #MigraineChat |
| My Chronic Brain @mychronicbrain @RieOfLetters Aren't brains fun? Hope you can join us next month!! #MigraineChat |
| Beth Morton @beth_morton @hg_imagiste Your Sophie is so freakin' cute! What a great #migraine buddy! #migrainechat |
 | The Migraine Assistant @MigraineAssist @beth_morton A1: Had a diagnosis since 2015-ish (pesky New Year). #migrainechat |
| My Chronic Brain @mychronicbrain @hg_imagiste @beth_morton OMG so cute!! #migrainechat |
| Krista @Kristacatlady #migrainechat I have chronic intractable without aura. |
| My Chronic Brain @mychronicbrain @Medical_Oddity @beth_morton Glad you could join us, Jenn! My tree is filled with migraine on my mother's side. All the adult women have it. #migrainechat |
| Beth Morton @beth_morton @RieOfLetters Ugh, the irony. Take care, friend. Catch you at the next #migrainechat (and likely before)! |
| My Chronic Brain @mychronicbrain @migrainekrista How long have you been chronic? #migrainechat |
 | Achy Smile Feels Migraine @achysmileblog Hey everybody! I'm Erica over at Achy Smile and I'm excited to join today's #migrainechat!! |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A1: dx'd "officially" 1.5 yrs ago (chronic migraine w/o aura). My PCP was pretty sure I had migraines since I was 15. I was gaslighted by neurologists from 9—15, being told it was impossible for a kid to get migraines so often, I was probably making it up, etc. #MigraineChat |
| My Chronic Brain @mychronicbrain @achysmileblog Hi, Erica! So happy you could join us! #migrainechat https://t.co/cEsbYQrVjz |
| Beth Morton @beth_morton @suebouchard313 Hi Sue! Glad you could make it to the #migrainechat! It's always bittersweet to meet fellow friends with #migraine. |
| Achy Smile Feels Migraine @achysmileblog @beth_morton A1. I was diagnosed with "complicated" migraine in 2004, which was later revealed as hemiplegic migraine and migraine with brainstem aura. #migrainechat |
| The Migraine Assistant @MigraineAssist Hello all, it's Phill! (Just realized I didn't put the hashtag in my first tweet.) #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 I've had an intractable migraine now since late Feb of this year. #MigraineChat |
| Beth Morton @beth_morton Q2. Some have already touched on this, but for those with a diagnosis, what type of doctor diagnosed your #migraine disease? How long did it take you to get properly diagnosed? #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily A1a: This is painfully relateable. I was diagnosed with migraine in 2008, but when I complained that I was getting migraine every day, my dr at the time thought I was exaggerating and "had a low pain tolerance." Fw to 2016 and I'm diagnosed with Chronic Migraine... #migrainechat |
| Beth Morton @beth_morton @MigraineAssist It's okay! I've slipped a few times myself. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog @mychronicbrain Me too! #migrainechat https://t.co/MGt11aDAYr |
| My Chronic Brain @mychronicbrain @elxtric_emily A1b: and given a lecture about not seeking help sooner. Like, hello! #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @migrainekrista same diagnosis here!! intractable sucks :( #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineAssist Hi, Phill!! #migrainechat |
| Beth Morton @beth_morton @elxtric_emily That must have been so frustrating to have symptoms for so long, but not be believed. #migrainechat |
| My Chronic Brain @mychronicbrain A2: First diagnosed by Primary Care. Then received additional dx from Headache Specialists. #migrainechat |
| Krista @Kristacatlady A2: I was diagnosed with chronic migraine by a headache specialist. I have seen about a dozen headache specialists and neurologists since becoming chronic. #MigraineChat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q2. Some have already touched on this, but for those with a diagnosis, what type of doctor diagnosed your #migraine disease? How long did it take you to get properly diagnosed? #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Hello everyone! Welcome to our first #migrainechat! If you haven’t already, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| The Migraine Assistant @MigraineAssist @mychronicbrain @elxtric_emily DX: Episocic Migriane with Aura, without status migrainous, not intractable. It took a team of neurologists (1 attending and 2-3 residents) to diagnose. My chart says that I originally went to them for "non-specific chest pains". #migrainechat |
| Beth Morton @beth_morton @mychronicbrain @elxtric_emily I, unfortunately, also got that "should've sought more aggressive treatment sooner" lecture from a headache specialist. I'd been trialing dozens of preventives, but not the one he thought I should have been on. #migrainechat |
| My Chronic Brain @mychronicbrain @hg_imagiste @elxtric_emily Kudos to you for knowing your body! Even as an adult I'm sometimes shy about seeking second opinions. #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineAssist @elxtric_emily So, this might be an obvious question, but did you actually have chest pains? (You'd be surprised what I've found on my charts!😂) And were they ultimately related to the migraine? #migrainechat |
| Beth Morton @beth_morton @suebouchard313 No problem. Just observe if that's all you're up for today. 💜 #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A2: it took me about 9 yrs to get a 'proper' dx, from a great #migraine/#headache specialist at @WCHospital. I saw a paediatric neuro as a kid who said it was probably just stress headaches, maybe for attention, bc "kids don't get migraines like that" #MigraineChat |
| Beth Morton @beth_morton Q3. Looking back, what is something helpful you wish you’d known earlier that you’ve learned on your #migraine/#chronicmigraine journey? If you’re newly diagnosed is there something you’re struggling to navigate most? #migrainechat |
| Krista @Kristacatlady @elxtric_emily @WCHospital How amazing it would be if kids didn't have bad and/or frequent migraines. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @suebouchard313 Hi, Sue! It's wonderful that you managed to join us! I second @beth_morton: just be a quiet observer if that's all you're up for. #migrainechat |
| The Migraine Assistant @MigraineAssist @mychronicbrain @elxtric_emily Yes, and surprise. Nothing of clinical relevance. The chest pains come and I go to the ED and they do a full workup and find "nothing remarkable" but that is a whole other can of worms. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @hg_imagiste Unfortunately my parents believed him and were horrible about my migraines until the last year or so, yelling at me for making it up or exaggerating, punishing me for missing school bc of them, etc. They believe me now that I've had to take a medical leave for them. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog A2. diagnosed by a general neurologist with complicated migraine. It wasn't until I saw a migraine specialist Dx of hemiplegic migraine and migraine with brainstorm aura. I also found out I have multiple types of headache and migraine, making diagnosis difficult. #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineAssist @elxtric_emily #migrainechat https://t.co/GND4K4xnuQ |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
| My Chronic Brain @mychronicbrain @hg_imagiste For such a prevalent disease, I've heard variations of this story a lot. I'm glad the folks at @JeffHeadacheCtr were able to help! #migrainechat |
| Krista @Kristacatlady @elxtric_emily @hg_imagiste I am so sorry! It's bad enough being that sick let alone having your family doubt you. How horrible. #migrainechat |
| Beth Morton @beth_morton @sarinahoskins Welcome, Sarina!! So glad you can be here. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @mychronicbrain: 15 minutes to go! Are you joining us today for #MigraineChat? https://t.co/SlIwLuVNId |
| My Chronic Brain @mychronicbrain @achysmileblog I'm with you in the "multiple types of migraine" boat. Having your symptoms appear to bounce around does make official diagnoses harder. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @hg_imagiste I also had unhelpful treatment from 2 separate neurologists...didn't get any good treatment until I went to a headache clinic. It's so unfortunate that even neurologists are so untrained to deal with #migraine!! #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @sarinahoskins Hi, Sarina! #migrainechat |
| My Chronic Brain @mychronicbrain This 👇 #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @migrainekrista @hg_imagiste Thx for the support <3. Luckily they believe me now & are trying to help me get treatment, although they still get frustrated about it. #migrainechat |
| Beth Morton @beth_morton A3. I was episodic for about 18 years. I don't think I even realized #migraine could become *chronic* so I wish I knew to watch out for warning signs and risk factors. There may not have been anything I could have done differently, but I always wonder. #migrainechat |
| My Chronic Brain @mychronicbrain @hg_imagiste @JeffHeadacheCtr I lucked out on that front. My GP had done residency with a dr who had gone on to specialize in headache! I think it might have taken a lot longer for me to get help if he hadn't had that relationship/knowledge. #migrainechat |
| Krista @Kristacatlady I was lucky enough, or unlucky enough, to have been sick a lot growing up and went to my first headache specialist and was in an inpatient unit for migraines at 16. So I knew about headache specialists as an adult . #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog @mychronicbrain It really does. I had no idea I had multiple types. I knew I was in pain & altered consciousness is not normal. Once I could see my migraine disease from a higher level, I realized just how difficult diagnosis can be. Especially when symptoms run into each other. #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q3. Looking back, what is something helpful you wish you’d known earlier that you’ve learned on your #migraine/#chronicmigraine journey? If you’re newly diagnosed is there something you’re struggling to navigate most? #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton Also I am the Advocacy & Resources Editor for @mychronicbrain #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @hg_imagiste Ugh, my teachers were awful too sometimes. I got a lot of "you just have to push through them", "I get headaches and I still come to work", etc. Teachers should know better than to minimize a student's disability. #migrainechat |
| Beth Morton @beth_morton I love this suggestion, because I have terrible #brainfog thanks to #migraine. I tend to need someone with me for important appointments or I forget questions or miss important instructions. I also *always* have a notebook with me! #migrainechat |
| My Chronic Brain @mychronicbrain A3: When I finally saw a headache dr, he told me the very first day that there was no current cure: that this would be with me for life. I needed to know that. No one had told me that yet. It changes how you fight. At least for me. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: 15 minutes to go! Are you joining us today for #MigraineChat? https://t.co/SlIwLuVNId |
| Beth Morton @beth_morton Q4. What misconceptions do your friends/family/coworkers have about #migraine? How do you respond? #migrainechat |
| Krista @Kristacatlady @beth_morton A3: Learn about Medication Overuse Headache and make sure you dont use treatments that can cause Moh more than 10 days a month. I think docs over diagnose MOH, but it is still important to try to prevent as well. MOH is hell. #migrainechat |
| The Migraine Assistant @MigraineAssist @beth_morton A3: I wish I knew what Medication Adaptation Headache (MAH) was at the outset because I hadn't realized when I had taken the Firocet per Drs. instructions I had ended with that. #migrainechat |
| My Chronic Brain @mychronicbrain @achysmileblog Yes! On the one had, I think "It's migraine. How did you miss this?" on the other, my symptoms are so bizarre, like, how can not being able to see, or walk, or even talk right be migraine? #migrainechat |
| Achy Smile Feels Migraine @achysmileblog A3. Counseling. I refused counseling for years because of how doctors made me feel. They made me feel the attacks were my fault because I couldn't handle life. Thing was I needed counseling to learn how to live a life with migraine. It's an emotional rollercoaster. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton My notebook comes to every appointment! When I forget it (because #brainfog) I pull out my phone and use the notes app. #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q4. What misconceptions do your friends/family/coworkers have about #migraine? How do you respond? #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A1: I wish I'd started prophylactic meds earlier— maybe gotten a handle on them before they became chronic— and been prescribed real abortives. I didn't try triptans until about a year ago. #MigraineChat |
| My Chronic Brain @mychronicbrain Can we retweet this multiple times? So relateable. #migrainechat |
 | sarina 🌻 @sarinahoskins RT @beth_morton: Q4. What misconceptions do your friends/family/coworkers have about #migraine? How do you respond? #migrainechat |
| sarina 🌻 @sarinahoskins RT @beth_morton: Q3. Looking back, what is something helpful you wish you’d known earlier that you’ve learned on your #migraine/#chronicmigraine journey? If you’re newly diagnosed is there something you’re struggling to navigate most? #migrainechat |
| sarina 🌻 @sarinahoskins RT @beth_morton: Q2. Some have already touched on this, but for those with a diagnosis, what type of doctor diagnosed your #migraine disease? How long did it take you to get properly diagnosed? #migrainechat |
| sarina 🌻 @sarinahoskins RT @beth_morton: Q1. Where are you in your #migraine journey? Do you have a diagnosis or are you still searching for a proper one? #migrainechat |
| Beth Morton @beth_morton @migrainekrista I agree. I hope there's more research into MOH in the future because it seems like we can get such mixed information even from health care professionals. Fearing MOH, I tended to under-treat my attacks & partly blame that on becoming chronic (but I can't prove that) #migrainechat |
| My Chronic Brain @mychronicbrain @hg_imagiste @JeffHeadacheCtr 15 days is the official line, I think. :) But yes, this. It doesn't make you stop fighting, you just fight differently. Knowledge is very powerful. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog A4. Migraine is a neurological disease. It is not a headache, but rather a disease with severe, unilateral headache as a possible symptom. Some people do not have headache at all with their migraine attacks. There are many types of migraine conditions. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A3b: I wish i'd understood MOH (medication overuse headache) better; I got stuck in a lot of rebound cycles because I took sooo many OTC pain meds. I still struggle with it a lot. Again, I feel that better preventive and abortive treatment could have helped that. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton Q4: I don’t think people realize that there are soooo many different kinds of migraine and that they can last for days, months of years for some of us. And that doctors really don’t know a whole lot about the causes of migraine. Much more research is needed. #migrainechat |
| My Chronic Brain @mychronicbrain A4: That I usually can't just "push through". My body won't let me. It's not a matter of will, it's a matter of my brain no longer sending the right information to my body. As @achysmileblog said, it's a neurological disease. #migrainechat |
 | Bridget Walker @bwalker1314 @beth_morton I’m Bridget from Boston MA, working on finals today #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A4: my family doesn't understand that it's a neurological disease, they think its just a headache. I also have mental health issues and they think that my anxiety is why I have these "pesky headaches". So frustrating! #migrainechat |
| The Migraine Assistant @MigraineAssist @beth_morton @migrainekrista Part of my fear with with MAH/MOA (we can debate the language later) is those who decide to take their medications inappropriately. Sumatriptan for one isn't designed to be split but it is. There are some which take... #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @mychronicbrain: A4: A4: That I usually can't just "push through". My body won't let me. It's not a matter of will, it's a matter of my brain no longer sending the right information to my body. As @achysmileblog said, it's a neurological disease. #migrainechat |
| Krista @Kristacatlady A4: having tons of migraines does not mean I am puking and in excruciating pain everytime I have a migraine. Yes, i have a lot of pain, but I am also exhausted, confused, have brain fog, am achy, can't sleep, etc. Migraines are an attack on many systems. #MigraineChat |
| The Migraine Assistant @MigraineAssist @beth_morton @migrainekrista it every day as if it is a preventative medication. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @mychronicbrain @achysmileblog exactly! I can't just pop an advil and push through, no matter how much I want to. #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily Illnesses like anxiety and depression are common co-morbidities of migraine! It doesn't help that super intense pain plus disability can make those worse. If I had a dollar for every time someone assumed my migraine is from my anxiety... #migrainechat |
| Beth Morton @beth_morton @migrainekrista Yeah, and likewise... sometimes we're out and about and look normal, but feel like absolute trash on the inside. We're just doing what we have to do. That's life with invisible #chronicillness. #migrainechat |
| Krista @Kristacatlady A4: I wish people understood that even when I don't have a migraine, I am always in danger of getting one. Leaving the house, lights, noises, smells, concentration, etc can all trigger one. I am almost always noise and light sensitive. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 RT @beth_morton: @migrainekrista Yeah, and likewise... sometimes we're out and about and look normal, but feel like absolute trash on the inside. We're just doing what we have to do. That's life with invisible #chronicillness. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @migrainekrista: A4: A4: I wish people understood that even when I don't have a migraine, I am always in danger of getting one. Leaving the house, lights, noises, smells, concentration, etc can all trigger one. I am almost always noise and light sensitive. #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: @migrainekrista Yeah, and likewise... sometimes we're out and about and look normal, but feel like absolute trash on the inside. We're just doing what we have to do. That's life with invisible #chronicillness. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @elxtric_emily: @mychronicbrain @achysmileblog exactly! I can't just pop an advil and push through, no matter how much I want to. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @migrainekrista: A4: A4: having tons of migraines does not mean I am puking and in excruciating pain everytime I have a migraine. Yes, i have a lot of pain, but I am also exhausted, confused, have brain fog, am achy, can't sleep, etc. Migraines are an attack on many systems. #MigraineChat |
| Beth Morton @beth_morton @migrainekrista Yes, this! For me, it's a constant game of decisions, dodging triggers, minimizing risk of triggering an attack. I try not to overthink and exacerbate my anxiety, but it's HARD! #migrainechat |
| My Chronic Brain @mychronicbrain @sarinahoskins Wow, you were still quite young! #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @mychronicbrain Absolutely! I grew up with migraines as well as an eating disorder, depression, panic attacks...they all sort of weave together after a point, but they're also separate issues!!! Since becoming intractable the depression has been awful. It's hard to deal with both! #migrainechat |
| Beth Morton @beth_morton Q6. Is there anything that you think doctors/researchers/advocates aren’t discussing enough in the larger #migraine conversation that needs more attention: e.g., research, treatment, social, emotional, physical, or financial needs? #migrainechat |
| Krista @Kristacatlady And we have to leave the house when we feel like trash or we would rarely leave the house. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A6: definitely the emotional aspect of it, and the way it isolates us!!! It's so hard to live with this pain and the associated symptoms. #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q6. Is there anything that you think doctors/researchers/advocates aren’t discussing enough in the larger #migraine conversation that needs more attention: e.g., research, treatment, social, emotional, physical, or financial needs? #migrainechat |
| Bridget Walker @bwalker1314 @beth_morton I wish I knew I was going to be introduced to many people including health care professionals who did not understand my diagnosis, and I would need to advocate of myself even if it meant confronting an expert in the field. #migrainechat |
| My Chronic Brain @mychronicbrain @hg_imagiste I think it's hard for people to understand there isn't a "cure" yet. We might find good management tools, but as of now, Migraine is a forever diagnosis. #migrainechat |
| My Chronic Brain @mychronicbrain @ruminmycoffee Hi, Hunter! What an awful place to get your first migraine. (...I suppose there isn't really a good place) #migrainechat |
| Beth Morton @beth_morton @llyndseybelle I'm there, too. I still don't have a very effective preventive, so I get daily #migraine attacks. Deciding which ones to treat with acute meds is always fun. 🙄 #migrainechat |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton I was just in Urgent Care and had to walk the doctor and nurse through my diagnosis and usual treatment. They had seen migraine patients before, but the host of symptoms that come with my dxs were apparently new to them. #migrainechat |
| My Chronic Brain @mychronicbrain "When I have a migraine, my world stops " #migrainechat |
 | elle ⚢ @artangeIII RT @beth_morton: @llyndseybelle I'm there, too. I still don't have a very effective preventive, so I get daily #migraine attacks. Deciding which ones to treat with acute meds is always fun. 🙄 #migrainechat |
| My Chronic Brain @mychronicbrain @ruminmycoffee No. No, no, no, you went to band class after? I am cringing just thinking about that! #migrainechat |
| Beth Morton @beth_morton @hg_imagiste Haha, I echo this TED talk. I've seen too many of these articles lately about compliance when access is the issue. Finding a headache specialist is hard. Finding a mental health provider with #migraine knowledge (or #chronicpain at minimum) is next to impossible). #migrainechat |
 | 🇵🇸🏵 @anyonetough RT @beth_morton: Q4. What misconceptions do your friends/family/coworkers have about #migraine? How do you respond? #migrainechat |
| Krista @Kristacatlady @beth_morton A6: that we need access to proper care. Many of us would be so much better with access to iv treatment (I.e. The kinds of treatment they offer at places like Jefferson like lidocaine and ketamine) but so many of us cannot get it where we live. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @hg_imagiste Finding one in my area that both accepts insurance and has space is nearly impossible. I've been on a waiting lists for 4 years. Four. YEARS. That isn't even me being specific about the individual needing to know about chronic pain or migraine. Access is an issue. #migrainechat |
| Beth Morton @beth_morton That’s a wrap on our hour, but keep chatting if you want to stick around! Thank you all for joining in our first #migrainechat Monday. If we can figure out the technology, we’ll tweet out a link to a chat transcript as soon as it is ready. Feel free to DM me w/any feedback. |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: That’s a wrap on our hour, but keep chatting if you want to stick around! Thank you all for joining in our first #migrainechat Monday. If we can figure out the technology, we’ll tweet out a link to a chat transcript as soon as it is ready. Feel free to DM me w/any feedback. |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity Q6: I think that doctors in general need to know more about migraine. All of the body systems can trigger symptoms so we need a refresher for some and a broader educational campaign. Advocacy: it’s vital that we tell our elected office it’s more than just a headache.#migrainechat |
| My Chronic Brain @mychronicbrain That wraps #migrainechat! We loved getting to know you all a bit better. Our DMs are always open to you! |
| My Chronic Brain @mychronicbrain @hg_imagiste @bwalker1314 @beth_morton That is a terrific idea. I should talk to my headache specialist about getting one. Usually he wants me in his office, but on weekends I'm stuck! #migrainechat |
| Krista @Kristacatlady @beth_morton A6: I wish docs would stop telling me to go ti the ER. I am not going to a bright, loud place where, last time I went, I had to wait 8hr to get treatment. I would rather puke and be in pain at home, thank you. #migrainechat |
| Beth Morton @beth_morton Our next #migrainechat will be on January 7th 2019!! Mark your calendars now. https://t.co/ZCNuXEzwc4 |
| Bridget Walker @bwalker1314 @beth_morton Q4 I always tell anyone who does not understand, headache is a symptom of a migraine attack, but NEVER a synonym for Migraine Disease. I also tell people Migraine is like a snowflake. The manifestation of symptoms differ from person to person. #MigraineChat |
| My Chronic Brain @mychronicbrain @migrainekrista @beth_morton If the treatment in the ER worked for me that would be another story... #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Our next #migrainechat will be on January 7th 2019!! Mark your calendars now. https://t.co/ZCNuXEzwc4 |
| My Chronic Brain @mychronicbrain @hg_imagiste @beth_morton Your home practice would boom! 😂#migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @beth_morton Thanks for joining, Jenn! #migrainechat |
| Beth Morton @beth_morton @ZebraOrphans If only.... 🙄 #migrainechat |
| My Chronic Brain @mychronicbrain @ZebraOrphans If only... #migrainechat https://t.co/nfoNfCzvRt |
| Bridget Walker @bwalker1314 RT @Medical_Oddity: @beth_morton Q4: @beth_morton Q4: I don’t think people realize that there are soooo many different kinds of migraine and that they can last for days, months of years for some of us. And that doctors really don’t know a whole lot about the causes of migraine. Much more research is needed. #migrainechat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Our next #migrainechat will be on January 7th 2019!! Mark your calendars now. https://t.co/ZCNuXEzwc4 |
| Bridget Walker @bwalker1314 @Medical_Oddity @beth_morton Agreed, unfortunately I talk to so many people who do not think Migraine is a valid diagnosis. They believe it is caused by many of our triggers rather than a genetically determined neurological disease that is out of our control. #migrainechat |
| Beth Morton @beth_morton @Medical_Oddity I was talking with a friend recently about a dream doctor who knew everything about everything, like how all our systems worked together. So we didn't have to try to coordinate things btw various specialists ourselves. Sigh. Someday. Somewhere. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @Medical_Oddity #migrainechat https://t.co/F3Jf8cMQgw |
| Beth Morton @beth_morton #MigraineChat Social Media Transcript December 3rd 2018 https://t.co/1xgsT0LfQH via @symplur |
| Beth Morton @beth_morton Top Influencers of #migrainechat 👉 https://t.co/w2rS0MJIUN |
| Achy Smile Feels Migraine @achysmileblog @beth_morton thank you for headlining #migrainechat today! |
 | Adele Jayde @hawkeye2_ A3. I wish that I had gotten into a habit of creating a migraine/headache diary when I was younger bc it would have been easier to get in the habit when I was a kid and not as busy as now that I work FT and have other health issues. #migrainechat |
| Adele Jayde @hawkeye2_ People saying they’re from being on electronics but I’ve had them since before I had computers/phones. The other is that people don’t realise the day after one the brain fog lingers and you can be just as spaced out as mid-migraine. I just try to educate people. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @ZebraOrphans: |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: @beth_morton @Medical_Oddity #migrainechat https://t.co/F3Jf8cMQgw |
| My Chronic Brain @mychronicbrain @hawkeye2_ It's awesome that you take the time to educate those around you. It helps make the world better for all of us! As for that lingering brain fog, UGH. #migrainechat |
| The Migraine Assistant @MigraineAssist RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
 | Jill Piggott @JillPiggott Disease progression: I think too few patients & MDs understand that EACH DAY w/ #migraine primes the brain for more migraine. Effective treatment can help stave off progression & we need to be aggressive about getting care. #migrainechat |
| Jill Piggott @JillPiggott We need MDs/insurers/SSDI to know that chronic = continual #migraine. But I find it helps ME to know it, too. 1) I'm not making this up & 2) my sometimes-terrible-frustration is NORMAL, given 48 yrs of continual migraine! #migrainechat |
 | Jessie Miller Unboxings and More @JessLj1 RT @beth_morton: Today is #InternationalDayofDisabledPersons. What better day to launch our #migrainechat? Did you know that @WHO ranks severe migraine in the highest class of disability, alongside active psychosis, quadriplegia, and dementia? |
 | Katie M Golden @GoldenGraine RT @mychronicbrain: TOMORROW is #MigraineChat!! 1pm EST (6 GMT). Snuggle into a warm blanket and join us! https://t.co/AH6hETl5FM |
 | DrugStars @drugstarsapp @Medical_Oddity Thanks for the support 💪 - What is #MigraineChat by the way? |
 | Democracy Over Demagogues @freeandclear1 RT @beth_morton: Our next #migrainechat will be on January 7th 2019!! Mark your calendars now. https://t.co/ZCNuXEzwc4 |
| Democracy Over Demagogues @freeandclear1 RT @beth_morton: A3. I was episodic for about 18 years. I don't think I even realized #migraine could become *chronic* so I wish I knew to watch out for warning signs and risk factors. There may not have been anything I could have done differently, but I always wonder. #migrainechat |
| Democracy Over Demagogues @freeandclear1 RT @beth_morton: #Migraine is the 6th highest cause of #disability globally, the 2nd leading cause of years lived with disability, the leading cause of disability among all #neurological disorders, and the leading cause of disability among those aged 15-49. #migrainechat |
 | heather pound @mpound2016 @migrainekrista @beth_morton I am just joining the universe of migraine pain. I could not agree with you more. I feel like staying home and hiding in the dark is the best way to deal. #migrainechat |
| heather pound @mpound2016 RT @migrainekrista: @beth_morton A6: @beth_morton A6: I wish docs would stop telling me to go ti the ER. I am not going to a bright, loud place where, last time I went, I had to wait 8hr to get treatment. I would rather puke and be in pain at home, thank you. #migrainechat |
| heather pound @mpound2016 RT @beth_morton: Our next #migrainechat will be on January 7th 2019!! Mark your calendars now. https://t.co/ZCNuXEzwc4 |
#migrainechat content from Twitter.