#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Tomorrow is the day! I know, it’s still June, but flip your calendar and it’s time for our July #MigraineChat!! Join us at 1pm ET/10am PT/6pm BST to talk about #migraine in the summer. Questions are posted on my blog: https://t.co/Wuemu2Ihop #chronicmigraine #migrainecommunity https://t.co/2I8BPwQSmd |
 | Beth Morton @beth_morton Two hours until #MigraineChat begins! Are you joining today? We are well into summer (in the northern hemisphere) so let’s chat about #migraine, how summer affects our health, & summer plans. 🏖🌞 Take a look at today’s questions: https://t.co/Wuemu2Ihop https://t.co/JNHMM5F9r2 |
 | JP Summers @authorjpsummers #migrainechat |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here! I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Here are the two most helpful chat tips: (1) **Always** remember the #MigraineChat hashtag! It helps make following the conversation easier. (2) I’ll start each question with Q1, Q2, etc. Remember to start your corresponding reply tweet with A1, A2, etc. (or quote tweet). |
| Beth Morton @beth_morton Who is joining #MigraineChat today? Introduce yourself in any way you are comfortable. I’m Beth and I’m moderating from Vermont. I moved last week… about a quarter mile down the street, but it was still a pain in the you know what. I’m finally settling in. #MigraineChat |
 | Mommy Has A Migraine @aimee1002 @beth_morton I'm here! #MigraineChat |
| Beth Morton @beth_morton Oh, Happy Canada Day to any of my neighbors to the north! #migrainechat https://t.co/H82dBfDlHr |
| Beth Morton @beth_morton @Alexandria_SZ That's toasty! Hope you're staying cool! #MigraineChat |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Hello! Thanks so much for being here! Are you still in a heatwave, too? #MigraineChat |
| Beth Morton @beth_morton @PattyAbby Ugh, the irony. You can always reply later or check the hashtag/transcript when I post it. Take care of yourself. #MigraineChat |
| Mommy Has A Migraine @aimee1002 @Alexandria_SZ @beth_morton Hi! #MigraineChat |
| Beth Morton @beth_morton Let’s get started. Keeping it light today with the topic of summer vacation and #migraine…. #MigraineChat |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Let’s get started. Keeping it light today with the topic of summer vacation and #migraine…. #MigraineChat |
| Beth Morton @beth_morton Q1. Does your #migraine pattern change with the summer season? If so, how? #MigraineChat https://t.co/l6yv8eT9FX |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q1. Does your #migraine pattern change with the summer season? If so, how? #MigraineChat https://t.co/l6yv8eT9FX |
| Beth Morton @beth_morton @InfiniteKnot Other than the heat being a bit of a trigger, I don't see much difference either. I hide on hot day and really sunny days! #MigraineChat |
| Mommy Has A Migraine @aimee1002 @beth_morton Q1. Yes, mine gets worse in the spring and summer. February is always a bad month. I don't know why, but February I always have more #migraine. I had 21 Feb 2019. #MigraineChat |
 | Rebecca @PyesMusings @beth_morton Rebecca here, tweeting from my OFFICE in DC with only mild migraine 🤞 #MigraineChat |
 | Amy Ferraro-Kick ED’s Butt @acf1973 @fabriKatie Here from New Jersey #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Sounds like you can't win! Want to join my commune in the imaginary community that is 72* year round?! #MigraineChat |
| Beth Morton @beth_morton Q2. Are you able to travel? Do you have summer vacation plans – even if only a day trip? #MigraineChat https://t.co/ReEtVSSmf0 |
| Beth Morton @beth_morton @PyesMusings I lived in DC for four hot, sticky summers! #MigraineChat |
| Beth Morton @beth_morton A2. I recently started traveling again and found once I get where I'm going, I usually settle into my normal - daily - but predictable #migraine pattern. I'm hoping to escape to the Adirondack mountains for a few days this summer. #MigraineChat |
 | Chronic night owl @OwlJourney A2. Yes, It's alot of work but I can travel I just have to have all my daily meds and rescue meds just in case, I also have medical ID bracelets just in case of a emergency! #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ Hey Dr. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A2. I recently started traveling again and found once I get where I'm going, I usually settle into my normal - daily - but predictable #migraine pattern. I'm hoping to escape to the Adirondack mountains for a few days this summer. #MigraineChat |
| Beth Morton @beth_morton @OwlJourney Yes, it takes so much extra planning and preparation! I'm writing about this for our September issue of @MyChronicBrain. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot It's a balance, for sure. #MigraineChat |
| Beth Morton @beth_morton Q3. What is on your summer reading list? Do you have audio/book recommendations you can share? #MigraineChat https://t.co/SyTDhHpWnA |
| Mommy Has A Migraine @aimee1002 @beth_morton A1. Yes. I've learned what to pack. I know on planes the humidity drops significantly causing me to get dehydrated quickly, so I try to drink plenty of water before, during and after a flight. #MigraineChat |
| Chronic night owl @OwlJourney #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ @beth_morton A3: I'm re-reading Moby-Dick again. I love that book! And it takes a long time to read so it should last me all summer. If not, I'll start Les Miserables again. I can turn to audiobook versions during a #migraine attack #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @Alexandria_SZ: @beth_morton A3: @beth_morton A3: I'm re-reading Moby-Dick again. I love that book! And it takes a long time to read so it should last me all summer. If not, I'll start Les Miserables again. I can turn to audiobook versions during a #migraine attack #MigraineChat |
| Mommy Has A Migraine @aimee1002 @beth_morton A1. I have a 6-year-old, and I'm trying to get back into reading adult books. I'm re-reading a romance novel that has long been a favorite. I'm listening to it on Audible. However 20 years later it seems really cheesy. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot @SarahLerner Yeah, I find if I can travel and replicate as much of my home environment, I do better. So visiting friends or staying at hotels that have small kitchen, etc. #MigraineChat |
| Beth Morton @beth_morton A3. I read a really good book (Circe) recently and everything else is coming up short. I'm struggling to get into something new. I love audiobooks for #migraine days, though. #MigraineChat |
| Mommy Has A Migraine @aimee1002 @Alexandria_SZ Yes it does. My cousin is an Airline Hostess with #chronicmigraines and she is able to avoid some by drinking water constantly. #MigraineChat |
| Beth Morton @beth_morton @aimee1002 These sound perfect for #migraine days when you don't really want to focus fully, though! #MigraineChat |
| Beth Morton @beth_morton This book is excellent! I hope you don't have to wait too long. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: @aimee1002 These sound perfect for #migraine days when you don't really want to focus fully, though! #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Croomsky @beth_morton I am on Harry Potter Book 3 #MigraineChat |
| Beth Morton @beth_morton @acf1973 @Croomsky I could re-read Harry Potter forever. I hear the audiobooks are wonderful, too! #MigraineChat |
| Beth Morton @beth_morton Q4. What is on your summer TV – or movie – binge watching list? Do you have any recommendations for #migraine days? #MigraineChat https://t.co/fRnjaIkALr |
| Beth Morton @beth_morton @fabriKatie Oooh, noted. Thanks! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q4. What is on your summer TV – or movie – binge watching list? Do you have any recommendations for #migraine days? #MigraineChat https://t.co/fRnjaIkALr |
| Beth Morton @beth_morton @Croomsky @acf1973 Me! 🙋♀️#MigraineChat |
| Beth Morton @beth_morton I just signed up for Starz so I could watch the rest of Outlander! #MigraineChat |
| Rebecca @PyesMusings @beth_morton I travel as little as possible, but am about to fly cross-country with my 2 small children for a family reunion. It will be lovely, and my family will help out with the kids, which is great, and the flights won’t actually last forever 😆 #MigraineChat |
| Beth Morton @beth_morton A4. I'm sucked into Outlander at the moment. Excited for S3 of Stranger Things this week! And sad that Jane the Virgin is almost over. #MigraineChat |
 | Matt•😷 @mhill0425 @beth_morton What are some things you do to mitigate symptoms and try to have some semblance of normal life when dealing with migraine? Any tips of things to try(I know everyone is different and results can vary) #MigraineChat |
| Mommy Has A Migraine @aimee1002 @beth_morton Outlander is awesome!!!!!!!! I'm re-watching it. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot I'm now into the women's World Cup! Are you following that at all? #MigraineChat |
| Beth Morton @beth_morton @SarahLerner Adding Fleabag to my list. Dead to Me was so good! #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @SarahLerner @beth_morton I have to finish Dead To Me and Big Brother just started. #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves Wow! Alaska is on my bucket list. I hope you have a wonderful trip. Report back, please! #MigraineChat |
| Rebecca @PyesMusings @beth_morton Just finished Mary Robinette Kowal’s Lady Astronaut series. The narrator has severe social anxiety and occasional sound-like-migraines; the latter aren’t a plot point, but the former is, and is handled really well IMO. Also getting back into Tamora Pierce. #migrainechat |
 | No thank you I've had enough 2020 @VeryFeministy @beth_morton Super curious about experiences post-general anesthesia. I've had it 3x and both times had a total break from migraines for some time after. Any one else had something similar? #migraine #migrainechat |
| Beth Morton @beth_morton @mhill0425 This is a tough question I want to think more about after the chat. If I don't reply. Remind me, ok? #MigraineChat |
| Beth Morton @beth_morton This is excellent... the plans and good neuro parts! Have a fantastic summer! #MigraineChat |
| Beth Morton @beth_morton Q5. Can you share a favorite summertime recipe – maybe something #migraine friendly? #MigraineChat https://t.co/LPhBBhGlAT |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q5. Can you share a favorite summertime recipe – maybe something #migraine friendly? #MigraineChat https://t.co/LPhBBhGlAT |
| Beth Morton @beth_morton @chocoolate20 Same. I hope you are staying cool. Has it been warm out your way? #MigraineChat |
| Beth Morton @beth_morton A5. I don't have any recipes per se, but recommend following @thedizzycook for great #migraine-friendly ideas. For me, summer means allll the fresh fruits and berries! Summer is short in Vermont, so you have to enjoy/cook/bake with local produce while you can! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A5. I don't have any recipes per se, but recommend following @thedizzycook for great #migraine-friendly ideas. For me, summer means allll the fresh fruits and berries! Summer is short in Vermont, so you have to enjoy/cook/bake with local produce while you can! #MigraineChat |
| Beth Morton @beth_morton Q6. Let’s pause for a mid-year reflection. How has 2019 been for you so far? Is there anything #migraine related that our group can assist you with? #MigraineChat https://t.co/Q902Eo6OoM |
| Chronic night owl @OwlJourney A4. Brooklyn nine-nine is so awesome to watch all day. A5. Ice pops are my go to and smoothies great for staying hydrated! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q6. Let’s pause for a mid-year reflection. How has 2019 been for you so far? Is there anything #migraine related that our group can assist you with? #MigraineChat https://t.co/Q902Eo6OoM |
| Chronic night owl @OwlJourney A6. 2019 has been crazy as heck for me. #migraine really put me through some stuff and really had my whole family family concerned but thankfully I made it through. #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ @beth_morton I have had horrible, migraines. In the hospital with droopy face caused by a migraine. Starting Botox soon. #MigraineChat |
| Beth Morton @beth_morton @OwlJourney I'm hope the second half is more peaceful! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Thank you for joining! I hope the rest of 2019 is good to you! #MigraineChat |
| Beth Morton @beth_morton @acf1973 @Alexandria_SZ I hope Botox brings relief. For me it took a few rounds. Sending you wishes for a better second half of 2019. #MigraineChat |
| Beth Morton @beth_morton Any tips? #MigraineChat |
| Beth Morton @beth_morton Closing Thoughts (CT): Did you learn anything today? Please know that feedback is also welcome. Feel free to tweet or DM me. Thanks for a great #MigraineChat! https://t.co/HeEgnK4NZN |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ @beth_morton Thanks. I hope so. I tried it a few years ago and it didn’t but we are trying again. #MigraineChat |
 | Pia @MoretoreadO @beth_morton Q6. 2019 has been a lot better than 2018 except the last couple of months we have had rain almost every day. Do you cope with weather migraines differently than other triggers? #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ @InfiniteKnot @beth_morton Yes. You are not alone, and that's one thing I've learned since I found the #migraine and #chronicillness community. There are so many of us out there (and here on Twitter). #MigraineChat |
| Beth Morton @beth_morton @MoretoreadO Weather is tricky for me. I haven't found a way to deal with it other than be prepared and try to avoid other triggers so as not to "pile them on." #MigraineChat |
| Beth Morton @beth_morton Thanks everyone! I'll post a transcript in a few days. Feel free to keep adding replies. Would you like to get chat reminders (or stop getting reminders)? Sign up here: https://t.co/r8qaMONddk #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Yes! #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Thanks for joining today. Stay cool! See you next #MigraineChat! |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @Alexandria_SZ: @InfiniteKnot @beth_morton Yes. You are not alone, and that's one thing I've learned since I found the #migraine and #chronicillness community. There are so many of us out there (and here on Twitter). #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ My dr says Botox only helps relax the muscles in the face, head, and neck -- and doesn't do anything at all for the actual trigeminal nerve inflammation that causes #migraine pain -- but I don't have the insurance to cover it. I hope it helps you this time around #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ I didn't realize the #migraine and #chronicillness communities were so separated from the rest of Twitter till I began managing @MigraineMantras early in 2018. What a challenge to connect people from such vastly different groups. Glad to see you hear at #MigraineChat |
 | Krista @Kristacatlady A1: Hi everyone! Sorry I missed #MigraineChat. I do get more intense migraines in the summer. So I have higher pain levels. Frequency doesn't seem to change though. |
| Krista @Kristacatlady A2: no, I don't usually travel. I wanted to go on a day trip or two but my migraine pattern has changed and so it just isn't possible. My hubby teaches though so he is home most of the summer so that is super fun. I am outside St Louis by the way. #MigraineChat |
| Krista @Kristacatlady @beth_morton @acf1973 @Croomsky #Migrainechat I highly recommend the British version of the Harry Pooter audio books. I bought it for cheap on eBay and have been listening to it for ages. Am on book 6. It is so well done. The ends of the books can be a bit much with all the yelling, but volume is ok otherwise |
| Krista @Kristacatlady A4 #MigraineChat I watch a lot of intense tv when I am sick. Either trashy reality TV from Bravo on Hulu or crime stuff. It distracts me from the pain. I am excited the next season of Wentworth is coming on Netflix later this month. One of my favorite shows. |
| Krista @Kristacatlady @fabriKatie @beth_morton That sounds good. Going to see if my library has it. #MigraineChat |
| Krista @Kristacatlady @VeryFeministy @beth_morton Lidocaine, ketamine, & propofol infusions are helpful to some people with migraine (all 3 are anesthetics). It is hard to find someone willing to do them and bill insurance. Jefferson Clinic in Philadelphia does. I have never tried them but keep hoping tk. #MigraineChat |
| Krista @Kristacatlady @Alexandria_SZ @beth_morton Yes! 1 c cherries (or berries) , 1 c greens, 1/2-1 banana, 1 T Tumeric, 1 T cinnamon, 1 T chia seeds, 1 c milk (any kind works), choc protein powder=yumtastic. It's like a milkshake. #MigraineChat |
| Krista @Kristacatlady A5: #MigraineChat homeade watermelon or melon popsicles. Tons of great recipes on Pinterest. Basically just puree melon and mix with strawberries or kiwi or other fruit and freeze. Voila! |
| Krista @Kristacatlady @acf1973 @Alexandria_SZ @beth_morton I hope it helps. It helps keep the severe ones less frequent for me. Been gettng Botox for about 10yr. Can take 3 rounds before you see effects. Best of luck. #MigraineChat |
| Krista @Kristacatlady @SarahLerner @beth_morton I am so sorry to hear this. It took 10 days of dhe for them to break my migraine cycle when I had it done several years ago. Added steroids and anti seizure meds via iv can be helpful. Ketamine, propofol, or lidocaine infusions help some. #MigraineChat |
| Rebecca @PyesMusings @beth_morton I’ve been eating a ton of basic salad. Generally with grape tomatoes and perline mozzarella to minimize time standing at the counter! I feel like the extra veg and water have been helping maybe. #MigraineChat |
| Rebecca @PyesMusings @SarahLerner @beth_morton I keep my phone etc. red-shifted (night mode, or whatever it’s called), wear sunglasses whenever I’m outside and sometimes inside, and don’t try to do things when they hurt. But I suspect that’s all JV stuff from your perspective; really hope you find some relief! #MigraineChat |
| Rebecca @PyesMusings @beth_morton Looking up 🤞 Some combination of aimovig, dropping some other meds, and daily walks seem to be helping a lot. Now it’s too hot to walk without triggering an attack by the time I get my kids out the door in the morning 😭 #MigraineChat |
 | Migraine, Chronic Illness, Mental Health @MigraineMantras RT @Alexandria_SZ: I didn't realize the #migraine and #chronicillness communities were so separated from the rest of Twitter till I began managing @MigraineMantras early in 2018. What a challenge to connect people from such vastly different groups. Glad to see you hear at #MigraineChat |
 | What in Tarnation @PattyAbby @beth_morton Tips for weather related #migraines especially for us folks in the south. This spring/summer has been horrible and I want to move to the desert 🌵#MigraineChat |
 | Adele Jayde @hawkeye2_ A4. I like to rewatch 20min comedies on migraine days as you don’t need to concentrate hard. So things like Brooklyn Nine Nine, The Good Place, Schitt’s Creek, etc. |
| Adele Jayde @hawkeye2_ A2. I find my migraines lessen when I travel (probably due to less stress) but they can pop up due to exhaustion, dehydration or sometimes randomly so I make sure to always have my meds on me (and a letter from my doctor if I’m going o/seas!) as well as hot/cold patches. 1/2 |
 | JenX 👻 @Jen9Cat @migrainekrista A5 #MigraineChat Oh yes, popsicles. I juice English cucumbers, make a simple syrup w/it, put it & strawberries in the blender, & use my #zoku to make them. I still have frozen cucumber juice! I might have to do this tonight. Ty for the reminder! |
| JenX 👻 @Jen9Cat @beth_morton A5. #migrainechat I buy shaved brussel sprouts in a bag. Cup of those, 1 tsp of Brianna's poppy seed dressing (mix well), add 1T each of sunflower seeds & dried cranberries (or raisins & pumpkin seeds, whatever). If I need protein, half a can of skipjack tuna is added. |
| JenX 👻 @Jen9Cat @beth_morton A5 #migrainechat Container of less sugar #Chobani strawberry or blueberry Greek yogurt, 2 oz of plain 2% yogurt, & 1T chia seeds. If I'm feeling fancy, I add the same fruit as the flavor of yogurt. IF I have it! 😂 |
| JenX 👻 @Jen9Cat @beth_morton Oh man. Everyone keeps talking about Outlander. I may have to bite the bullet & sign up for Starz . . . Also, def Big Little Lies, Handmaid's Tale, Catch-22 & all the reruns of Brooklyn 99. They NEVER get old 😁 A4. #migrainechat |
| Beth Morton @beth_morton @Jen9Cat That sounds delicious. I think too many triggers for me, but I may improvise a little. #MigraineChat |
| Beth Morton @beth_morton @Jen9Cat Adding all these to my watchlist. I need Hulu and HBO. I think I've exhausted my free trials! 😁 #MigraineChat |
| Beth Morton @beth_morton @hawkeye2_ All brilliant tips. Thanks for sharing! Isn't it amazing how much more planning goes into leaving the house with #migraine? #MigraineChat |
| Beth Morton @beth_morton @hawkeye2_ Yes, short comedies are the best for #migraine days! I apparently am the last person to see Schitt's Creek. Putting it on my watchlist! #MigraineChat |
| JenX 👻 @Jen9Cat @beth_morton I feel you. There's a lot of sharing of accounts between me & friends & my bro 😁 #migrainechat |
| Beth Morton @beth_morton @rachel_x_graves I need a pin that says "neurologically fascinating!" #MigraineChat |
| Beth Morton @beth_morton @hazelmaddie Same. I try not to miss the days when I begged for that weather (too much). #MigraineChat |
| Beth Morton @beth_morton @PyesMusings Excellent news! Here's to 2019 continuing on a positive trend! #MigraineChat |
| Beth Morton @beth_morton @migrainekrista That sounds easy, refreshing, and delicious. Heading to Pinterest.... Thanks for the idea! #MigraineChat |
 | dov @DovZeller RT @beth_morton: @rachel_x_graves I need a pin that says "neurologically fascinating!" #MigraineChat |
 | Rued Gestures @RuedGestures RT @beth_morton: Hi, @migrainemelon @infiniteknot @freeandclear1 & @MigraineSummit! Is your calendar clear for Monday's #MigraineChat? We're going to talk summer vacation & what it means for our #migraine brains! I hope you can join (1pm ET). Questions are posted here: https://t.co/Wuemu2Ihop https://t.co/Jqjj9wVZ2N |
 | Shades for Migraine @shades4migraine RT @beth_morton: Who is joining #MigraineChat today? Introduce yourself in any way you are comfortable. I’m Beth and I’m moderating from Vermont. I moved last week… about a quarter mile down the street, but it was still a pain in the you know what. I’m finally settling in. #MigraineChat |
 | Nathalie Sheridan *also on Bluesky @NASheridan RT @treatablyme: |
#migrainechat content from Twitter.