#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Tomorrow is the day! I know, it’s still June, but flip your calendar and it’s time for our July #MigraineChat!! Join us a… |
 | Beth Morton @beth_morton Two hours until #MigraineChat begins! Are you joining today? We are well into summer (in the northern hemisphere) so let’s chat about #migraine, how summer affects our health, & summer plans. 🏖🌞 Take a look at today’s questions: https://t.co/Wuemu2Ihop https://t.co/JNHMM5F9r2 |
 | JP Summers @authorjpsummers #migrainechat |
| @ RT @beth_morton: Join us for #MigraineChat this Monday at 1pm ET. Keeping it light with the topic of summertime and #migraine! (Apologies t… | |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here! I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Here are the two most helpful chat tips: (1) **Always** remember the #MigraineChat hashtag! It helps make following the conversation easier. (2) I’ll start each question with Q1, Q2, etc. Remember to start your corresponding reply tweet with A1, A2, etc. (or quote tweet). |
| Beth Morton @beth_morton Who is joining #MigraineChat today? Introduce yourself in any way you are comfortable. I’m Beth and I’m moderating from Vermont. I moved last week… about a quarter mile down the street, but it was still a pain in the you know what. I’m finally settling in. #MigraineChat |
 | Mommy Has A Migraine @aimee1002 @beth_morton I'm here! #MigraineChat |
| Beth Morton @beth_morton Oh, Happy Canada Day to any of my neighbors to the north! #migrainechat https://t.co/H82dBfDlHr |
| Beth Morton @beth_morton @Alexandria_SZ That's toasty! Hope you're staying cool! #MigraineChat |
 | What in Tarnation @PattyAbby @beth_morton I can’t join #MigraineChat because #migraine. |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] Hello! Thanks so much for being here! Are you still in a heatwave, too? #MigraineChat |
| Beth Morton @beth_morton @PattyAbby Ugh, the irony. You can always reply later or check the hashtag/transcript when I post it. Take care of yourself. #MigraineChat |
| Mommy Has A Migraine @aimee1002 @Alexandria_SZ @beth_morton Hi! #MigraineChat |
| Beth Morton @beth_morton Let’s get started. Keeping it light today with the topic of summer vacation and #migraine…. #MigraineChat |
| Beth Morton @beth_morton Q1. Does your #migraine pattern change with the summer season? If so, how? #MigraineChat https://t.co/l6yv8eT9FX |
| Beth Morton @beth_morton @InfiniteKnot Other than the heat being a bit of a trigger, I don't see much difference either. I hide on hot day and really sunny days! #MigraineChat |
| Mommy Has A Migraine @aimee1002 @beth_morton Q1. Yes, mine gets worse in the spring and summer. February is always a bad month. I don't know why, but February I always have more #migraine. I had 21 Feb 2019. #MigraineChat |
 | Rebecca @PyesMusings @beth_morton Rebecca here, tweeting from my OFFICE in DC with only mild migraine 🤞 #MigraineChat |
 | Amy Ferraro-Kick ED’s Butt @acf1973 [REDACTED USER] Here from New Jersey #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Sounds like you can't win! Want to join my commune in the imaginary community that is 72* year round?! #MigraineChat |
| Beth Morton @beth_morton Q2. Are you able to travel? Do you have summer vacation plans – even if only a day trip? #MigraineChat https://t.co/ReEtVSSmf0 |
| Beth Morton @beth_morton @PyesMusings I lived in DC for four hot, sticky summers! #MigraineChat |
| @ Oh, ouch! sorry to hear that #MigraineChat | |
| Beth Morton @beth_morton A2. I recently started traveling again and found once I get where I'm going, I usually settle into my normal - daily - but predictable #migraine pattern. I'm hoping to escape to the Adirondack mountains for a few days this summer. #MigraineChat |
 | Chronic night owl @OwlJourney A2. Yes, It's alot of work but I can travel I just have to have all my daily meds and rescue meds just in case, I also have medical ID bracelets just in case of a emergency! #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ Hey Dr. #MigraineChat |
| @ Hey, Tori from OK! #MigraineChat | |
| Beth Morton @beth_morton @OwlJourney Yes, it takes so much extra planning and preparation! I'm writing about this for our September issue of @MyChronicBrain. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot It's a balance, for sure. #MigraineChat |
| Beth Morton @beth_morton Q3. What is on your summer reading list? Do you have audio/book recommendations you can share? #MigraineChat https://t.co/SyTDhHpWnA |
| Mommy Has A Migraine @aimee1002 @beth_morton A1. Yes. I've learned what to pack. I know on planes the humidity drops significantly causing me to get dehydrated quickly, so I try to drink plenty of water before, during and after a flight. #MigraineChat |
| Chronic night owl @OwlJourney #MigraineChat |
| @ @beth_morton A3: I'm re-reading Moby-Dick again. I love that book! And it takes a long time to read so it should last me all summer. If not, I'll start Les Miserables again. I can turn to audiobook versions during a #migraine attack #MigraineChat | |
| @ RT @Alexandria_SZ: @beth_morton A3: I'm re-reading Moby-Dick again. I love that book! And it takes a long time to read so it should last me… | |
| Mommy Has A Migraine @aimee1002 @beth_morton A1. I have a 6-year-old, and I'm trying to get back into reading adult books. I'm re-reading a romance novel that has long been a favorite. I'm listening to it on Audible. However 20 years later it seems really cheesy. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot @SarahLerner Yeah, I find if I can travel and replicate as much of my home environment, I do better. So visiting friends or staying at hotels that have small kitchen, etc. #MigraineChat |
| Beth Morton @beth_morton A3. I read a really good book (Circe) recently and everything else is coming up short. I'm struggling to get into something new. I love audiobooks for #migraine days, though. #MigraineChat |
| Mommy Has A Migraine @aimee1002 @Alexandria_SZ Yes it does. My cousin is an Airline Hostess with #chronicmigraines and she is able to avoid some by drinking water constantly. #MigraineChat |
| Beth Morton @beth_morton @aimee1002 These sound perfect for #migraine days when you don't really want to focus fully, though! #MigraineChat |
| Beth Morton @beth_morton This book is excellent! I hope you don't have to wait too long. #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Croomsky @beth_morton I am on Harry Potter Book 3 #MigraineChat |
| Beth Morton @beth_morton @acf1973 @Croomsky I could re-read Harry Potter forever. I hear the audiobooks are wonderful, too! #MigraineChat |
| Beth Morton @beth_morton Q4. What is on your summer TV – or movie – binge watching list? Do you have any recommendations for #migraine days? #MigraineChat https://t.co/fRnjaIkALr |
| Beth Morton @beth_morton [REDACTED USER] Oooh, noted. Thanks! #MigraineChat |
| @ChronicallyCope @acf1973 @beth_morton #MigraineChat anyone wish Madame Pomfrey existed in our world? I bet the wizarding world migraine remedies exceed ours currently... **day dreaming** #migraine | |
| Beth Morton @beth_morton @Croomsky @acf1973 Me! 🙋♀️#MigraineChat |
| Beth Morton @beth_morton I just signed up for Starz so I could watch the rest of Outlander! #MigraineChat |
| Rebecca @PyesMusings @beth_morton I travel as little as possible, but am about to fly cross-country with my 2 small children for a family reunion. It will be lovely, and my family will help out with the kids, which is great, and the flights won’t actually last forever 😆 #MigraineChat |
| Beth Morton @beth_morton A4. I'm sucked into Outlander at the moment. Excited for S3 of Stranger Things this week! And sad that Jane the Virgin is almost over. #MigraineChat |
 | Matt•😷 @mhill0425 @beth_morton What are some things you do to mitigate symptoms and try to have some semblance of normal life when dealing with migraine? Any tips of things to try(I know everyone is different and results can vary) #MigraineChat |
| Mommy Has A Migraine @aimee1002 @beth_morton Outlander is awesome!!!!!!!! I'm re-watching it. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot I'm now into the women's World Cup! Are you following that at all? #MigraineChat |
| Beth Morton @beth_morton @SarahLerner Adding Fleabag to my list. Dead to Me was so good! #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @SarahLerner @beth_morton I have to finish Dead To Me and Big Brother just started. #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves Wow! Alaska is on my bucket list. I hope you have a wonderful trip. Report back, please! #MigraineChat |
| Rebecca @PyesMusings @beth_morton Just finished Mary Robinette Kowal’s Lady Astronaut series. The narrator has severe social anxiety and occasional sound-like-migraines; the latter aren’t a plot point, but the former is, and is handled really well IMO. Also getting back into Tamora Pierce. #migrainechat |
 | No thank you I've had enough 2020 @VeryFeministy @beth_morton Super curious about experiences post-general anesthesia. I've had it 3x and both times had a total break from migraines for some time after. Any one else had something similar? #migraine #migrainechat |
| Beth Morton @beth_morton @mhill0425 This is a tough question I want to think more about after the chat. If I don't reply. Remind me, ok? #MigraineChat |
| Beth Morton @beth_morton This is excellent... the plans and good neuro parts! Have a fantastic summer! #MigraineChat |
| Beth Morton @beth_morton Q5. Can you share a favorite summertime recipe – maybe something #migraine friendly? #MigraineChat https://t.co/LPhBBhGlAT |
| Beth Morton @beth_morton @chocoolate20 Same. I hope you are staying cool. Has it been warm out your way? #MigraineChat |
| Beth Morton @beth_morton A5. I don't have any recipes per se, but recommend following @thedizzycook for great #migraine-friendly ideas. For me, summer means allll the fresh fruits and berries! Summer is short in Vermont, so you have to enjoy/cook/bake with local produce while you can! #MigraineChat |
| Beth Morton @beth_morton Q6. Let’s pause for a mid-year reflection. How has 2019 been for you so far? Is there anything #migraine related that our group can assist you with? #MigraineChat https://t.co/Q902Eo6OoM |
| Chronic night owl @OwlJourney A4. Brooklyn nine-nine is so awesome to watch all day. A5. Ice pops are my go to and smoothies great for staying hydrated! #MigraineChat |
| Chronic night owl @OwlJourney A6. 2019 has been crazy as heck for me. #migraine really put me through some stuff and really had my whole family family concerned but thankfully I made it through. #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ @beth_morton I have had horrible, migraines. In the hospital with droopy face caused by a migraine. Starting Botox soon. #MigraineChat |
| Beth Morton @beth_morton @OwlJourney I'm hope the second half is more peaceful! #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] Thank you for joining! I hope the rest of 2019 is good to you! #MigraineChat |
| Beth Morton @beth_morton @acf1973 @Alexandria_SZ I hope Botox brings relief. For me it took a few rounds. Sending you wishes for a better second half of 2019. #MigraineChat |
| Beth Morton @beth_morton Any tips? #MigraineChat |
| Beth Morton @beth_morton Closing Thoughts (CT): Did you learn anything today? Please know that feedback is also welcome. Feel free to tweet or DM me. Thanks for a great #MigraineChat! https://t.co/HeEgnK4NZN |
| Amy Ferraro-Kick ED’s Butt @acf1973 @Alexandria_SZ @beth_morton Thanks. I hope so. I tried it a few years ago and it didn’t but we are trying again. #MigraineChat |
 | Pia @MoretoreadO @beth_morton Q6. 2019 has been a lot better than 2018 except the last couple of months we have had rain almost every day. Do you cope with weather migraines differently than other triggers? #migrainechat |
| @ @InfiniteKnot @beth_morton Yes. You are not alone, and that's one thing I've learned since I found the #migraine and #chronicillness community. There are so many of us out there (and here on Twitter). #MigraineChat | |
| Beth Morton @beth_morton @MoretoreadO Weather is tricky for me. I haven't found a way to deal with it other than be prepared and try to avoid other triggers so as not to "pile them on." #MigraineChat |
| Beth Morton @beth_morton Thanks everyone! I'll post a transcript in a few days. Feel free to keep adding replies. Would you like to get chat reminders (or stop getting reminders)? Sign up here: https://t.co/r8qaMONddk #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] Yes! #MigraineChat |
| @ChronicallyCope @beth_morton #MigraineChat A6 2019 I took control over my chronic refractory #migraine & chronic intractable #cluster. I choose how to navigate this disease. I decide what treatments. It's my body. Thanks to Aimovig, Zomig, & paradoxical reactions for the life lessons! My body first. | |
| Beth Morton @beth_morton @Alexandria_SZ Thanks for joining today. Stay cool! See you next #MigraineChat! |
| @ RT @Alexandria_SZ: @InfiniteKnot @beth_morton Yes. You are not alone, and that's one thing I've learned since I found the #migraine and #ch… | |
| @ My dr says Botox only helps relax the muscles in the face, head, and neck -- and doesn't do anything at all for the actual trigeminal nerve inflammation that causes #migraine pain -- but I don't have the insurance to cover it. I hope it helps you this time around #MigraineChat | |
| @ RT @Croomsky: @beth_morton #MigraineChat A6 2019 I took control over my chronic refractory #migraine & chronic intractable #cluster. I cho… | |
| @ I didn't realize the #migraine and #chronicillness communities were so separated from the rest of Twitter till I began managing @MigraineMantras early in 2018. What a challenge to connect people from such vastly different groups. Glad to see you hear at #MigraineChat | |
 | Krista @Kristacatlady A1: Hi everyone! Sorry I missed #MigraineChat. I do get more intense migraines in the summer. So I have higher pain levels. Frequency doesn't seem to change though. |
| Krista @Kristacatlady A2: no, I don't usually travel. I wanted to go on a day trip or two but my migraine pattern has changed and so it just isn't possible. My hubby teaches though so he is home most of the summer so that is super fun. I am outside St Louis by the way. #MigraineChat |
| @ I'll be following you, too, as soon as I get over there to that account today. #MigraineChat | |
| Krista @Kristacatlady @beth_morton @acf1973 @Croomsky #Migrainechat I highly recommend the British version of the Harry Pooter audio books. I bought it for cheap on eBay and have been listening to it for ages. Am on book 6. It is so well done. The ends of the books can be a bit much with all the yelling, but volume is ok otherwise |
| Krista @Kristacatlady A4 #MigraineChat I watch a lot of intense tv when I am sick. Either trashy reality TV from Bravo on Hulu or crime stuff. It distracts me from the pain. I am excited the next season of Wentworth is coming on Netflix later this month. One of my favorite shows. |
| Krista @Kristacatlady [REDACTED USER] @beth_morton That sounds good. Going to see if my library has it. #MigraineChat |
| Krista @Kristacatlady @VeryFeministy @beth_morton Lidocaine, ketamine, & propofol infusions are helpful to some people with migraine (all 3 are anesthetics). It is hard to find someone willing to do them and bill insurance. Jefferson Clinic in Philadelphia does. I have never tried them but keep hoping tk. #MigraineChat |
| Krista @Kristacatlady @Alexandria_SZ @beth_morton Yes! 1 c cherries (or berries) , 1 c greens, 1/2-1 banana, 1 T Tumeric, 1 T cinnamon, 1 T chia seeds, 1 c milk (any kind works), choc protein powder=yumtastic. It's like a milkshake. #MigraineChat |
| Krista @Kristacatlady A5: #MigraineChat homeade watermelon or melon popsicles. Tons of great recipes on Pinterest. Basically just puree melon and mix with strawberries or kiwi or other fruit and freeze. Voila! |
| Krista @Kristacatlady @acf1973 @Alexandria_SZ @beth_morton I hope it helps. It helps keep the severe ones less frequent for me. Been gettng Botox for about 10yr. Can take 3 rounds before you see effects. Best of luck. #MigraineChat |
| Krista @Kristacatlady @SarahLerner @beth_morton I am so sorry to hear this. It took 10 days of dhe for them to break my migraine cycle when I had it done several years ago. Added steroids and anti seizure meds via iv can be helpful. Ketamine, propofol, or lidocaine infusions help some. #MigraineChat |
| Rebecca @PyesMusings @beth_morton I’ve been eating a ton of basic salad. Generally with grape tomatoes and perline mozzarella to minimize time standing at the counter! I feel like the extra veg and water have been helping maybe. #MigraineChat |
| Rebecca @PyesMusings @SarahLerner @beth_morton I keep my phone etc. red-shifted (night mode, or whatever it’s called), wear sunglasses whenever I’m outside and sometimes inside, and don’t try to do things when they hurt. But I suspect that’s all JV stuff from your perspective; really hope you find some relief! #MigraineChat |
| Rebecca @PyesMusings @beth_morton Looking up 🤞 Some combination of aimovig, dropping some other meds, and daily walks seem to be helping a lot. Now it’s too hot to walk without triggering an attack by the time I get my kids out the door in the morning 😭 #MigraineChat |
| What in Tarnation @PattyAbby @beth_morton Tips for weather related #migraines especially for us folks in the south. This spring/summer has been horrible and I want to move to the desert 🌵#MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] That sounds delicious. I think too many triggers for me, but I may improvise a little. #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] Adding all these to my watchlist. I need Hulu and HBO. I think I've exhausted my free trials! 😁 #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] All brilliant tips. Thanks for sharing! Isn't it amazing how much more planning goes into leaving the house with #migraine? #MigraineChat |
| Beth Morton @beth_morton [REDACTED USER] Yes, short comedies are the best for #migraine days! I apparently am the last person to see Schitt's Creek. Putting it on my watchlist! #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves I need a pin that says "neurologically fascinating!" #MigraineChat |
| Beth Morton @beth_morton @hazelmaddie Same. I try not to miss the days when I begged for that weather (too much). #MigraineChat |
| Beth Morton @beth_morton @PyesMusings Excellent news! Here's to 2019 continuing on a positive trend! #MigraineChat |
| Beth Morton @beth_morton @migrainekrista That sounds easy, refreshing, and delicious. Heading to Pinterest.... Thanks for the idea! #MigraineChat |
 | dov @DovZeller RT @beth_morton: @rachel_x_graves I need a pin that says "neurologically fascinating!" #MigraineChat |
 | Rued Gestures @RuedGestures RT @beth_morton: Hi, @migrainemelon @infiniteknot @freeandclear1 & @MigraineSummit! Is your calendar clear for Monday's #MigraineChat? We'r… |
#migrainechat content from Twitter.