#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
– ().
See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Beth Morton @beth_morton Two hours until #MigraineChat begins! Are you joining today? I finally settled on questions for the topic of #migraine and caregiving. Take a look here: https://t.co/Wuemu2Ihop |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: Two hours until #MigraineChat begins! Are you joining today? I finally settled on questions for the topic of #migraine and caregiving. Take a look here: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton @MigraineMelon @InfiniteKnot @freeandclear1 @MigraineSummit @DivaMDGarrett @Alexandria_SZ @MigraineMantras @aimee1002 @elxtric_emily @HincmanLorie @DWSKTrader @rachel7mcdonald @Jen9Cat @sociolinguista DM reminders did not go out this month due to my vacation and rough morning. #MigraineChat |
 | JP Summers @authorjpsummers RT @beth_morton: Two hours until #MigraineChat begins! Are you joining today? I finally settled on questions for the topic of #migraine and caregiving. Take a look here: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here today. I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Here are the two most helpful chat tips: (1) I’ll start each question with Q1, Q2, etc. Remember to start your corresponding reply tweet with A1, A2, etc. (or quote tweet). (2) **Always** remember the #MigraineChat hashtag! It helps make following the conversation easier. |
| Beth Morton @beth_morton Who is joining #MigraineChat today? If you want, introduce yourself in any way you are comfortable. I’m Beth and I’m moderating from Vermont. I just returned from a few days away, so apologize for not be as prepared as usual. |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Thanks for being here! It might be a quiet turn out. Stay as long as you want and duck out if you have to. Questions are always here to reply to later! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Welcome! Thanks for joining #MigraineChat! |
| Beth Morton @beth_morton Some of us have caregivers, others are caregivers, and still others could use more caregiving assistance. Hopefully, some of these questions are applicable to you. Answer in any way you feel comfortable. #MigraineChat |
| Beth Morton @beth_morton Also, these questions are in no way meant to imply that people with #migraine are a burden. I only hope these serve as a way to foster conversations about our (sometimes unique) needs and ways to achieve them. #MigraineChat |
| Beth Morton @beth_morton Q1: Do you have any type of caregiver in your life? Can you share some of the ways they support you living with #migraine? #MigraineChat |
 | Cascadia Fire Has No Season @barkflight RT @beth_morton: Also, these questions are in no way meant to imply that people with #migraine are a burden. I only hope these serve as a way to foster conversations about our (sometimes unique) needs and ways to achieve them. #MigraineChat |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Also, these questions are in no way meant to imply that people with #migraine are a burden. I only hope these serve as a way to foster conversations about our (sometimes unique) needs and ways to achieve them. #MigraineChat |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @beth_morton: Who is joining #MigraineChat today? If you want, introduce yourself in any way you are comfortable. I’m Beth and I’m moderating from Vermont. I just returned from a few days away, so apologize for not be as prepared as usual. |
 | Madeline @MadelineSedai A1. No caregiver, but my husband supports me and helps me set healthy boundaries for myself. |
| Beth Morton @beth_morton A1. I had to move back to Vermont 2 1/2 years ago to be nearer to family. My mom has had to take on a caregiving role for me. On bad #migraine days, she helps with meals, errands, laundry, for example. She almost always drives me to long-distance appointments. #MigraineChat |
| Beth Morton @beth_morton Q2: Are there challenges to receiving care/being in a care receiving role that you are willing to share? #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A1. I had to move back to Vermont 2 1/2 years ago to be nearer to family. My mom has had to take on a caregiving role for me. On bad #migraine days, she helps with meals, errands, laundry, for example. She almost always drives me to long-distance appointments. #MigraineChat |
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton Hi Beth. I hope you had a fantastic trip. I had an infusion Friday. It’s been a rough couple of weeks so I likely won’t be very active in today’s #MigraineChat, however I’ll try to go back and answer some of the qs when I can leave my cave. |
| Beth Morton @beth_morton @ThkBleu Welcome!! The two main things to remember are to try to include #MigraineChat in your replies and if you are responding to the question, give the corresponding answer number so if I ask Q1, you start with A1. Don't worry too much, though, just join in!! |
| Beth Morton @beth_morton @Medical_Oddity It was a trip.... I hope you start to get some relief friend. Come back to #MigraineChat at your leisure. Hugs. |
| Beth Morton @beth_morton @PattyAbby @NHF @CoalitionCHAMP @miles4migraine @GoldenGraine @migrainediva @MigraineDisordr @CheDeco @CMLifeblog @amfmigraine @migrainesallday @MigraineAgain @headachepolicy @MigraineSummit No problem. Happy to have you here for #MigraineChat! |
| Beth Morton @beth_morton A2. The biggest challenge is for it not to change the relationship, I think. Maybe others have been more successful at that. #MigraineChat |
| Beth Morton @beth_morton Q3: Is there anything you wish your caregiver(s) better understood about living with #migraine? Anything that would improve your relationship? #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ I feel this, too. For me, I think it is partly the stigma of #migraine and chronic illness, partly the not being able to contribute in traditional ways. Probably a mess of a lot of things. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q3: Q3: Is there anything you wish your caregiver(s) better understood about living with #migraine? Anything that would improve your relationship? #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: @Alexandria_SZ I feel this, too. For me, I think it is partly the stigma of #migraine and chronic illness, partly the not being able to contribute in traditional ways. Probably a mess of a lot of things. #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Ah, yes! This is hard. #MigraineChat |
| Beth Morton @beth_morton Q4: Consider "caregiving" to be similar to job accommodations. What types of supports would you like to see made more available to people with #migraine (e.g., help with shopping, laundry, personal care, etc.)? Think creatively. #MigraineChat |
| Cascadia Fire Has No Season @barkflight RT @fabriKatie: |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q4: Q4: Consider "caregiving" to be similar to job accommodations. What types of supports would you like to see made more available to people with #migraine (e.g., help with shopping, laundry, personal care, etc.)? Think creatively. #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Sound and light proof, naturally! #MigraineChat |
| Beth Morton @beth_morton @Tracy330507 Stay tuned for Q5. I hope some of the responses will be helpful. If not, we'll work on making it a wider question. #MigraineChat |
| Beth Morton @beth_morton I also am all in with the idea of a #migraine tiny living community that has some of these service and is near health care/headache docs and balances nature and amenties. #MigraineChat |
| Beth Morton @beth_morton A4. I would like @thedizzycook to start a meal delivery service. I agree with @Alexandria_SZ that we need a #migraine-friendly cleaning service. #MigraineChat |
| Beth Morton @beth_morton Q5: In the absence of these supports, do you have tips for helping with some of these common #migraine accommodations? #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A4. I would like @thedizzycook to start a meal delivery service. I agree with @Alexandria_SZ that we need a #migraine-friendly cleaning service. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q5: Q5: In the absence of these supports, do you have tips for helping with some of these common #migraine accommodations? #MigraineChat |
| Beth Morton @beth_morton Ooops, #migrainechat |
| Beth Morton @beth_morton A5. It takes some effort, but reach out to your local social services agencies/state health advocate or even hospital patient liaison. They can connect you with any services you might be eligible for. You might find some help with cleaning or errands. #MigraineChat |
| Beth Morton @beth_morton On my good days, I try to bulk cook so I have frozen meals to pull out on bad days. #MigraineChat |
| Beth Morton @beth_morton Also, I live in a rural area and have found that non-chain pharmacies are more likely to deliver and even though I hate that big blue box store, they do grocery pick up now. (Still no delivery, I don't think.) #MigraineChat |
| Beth Morton @beth_morton Q6: A little behind... sorry. Last question: For those with #migraine who are additionally caregivers to others (with any illness, etc.), what tips can you share about pacing yourself and managing the caregiver role with #migraine? #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Some might require age or income limits or some designation of disability, but I learned there are lots of hidden services (in my state, at least - I hope there are in others). #MigraineChat |
| Beth Morton @beth_morton Hey all, my internet just disconnected! So I'll wrap up #MigraineChat chat here. Next month is tentatively scheduled to cover new treatments and include two guest co-hosts, a patient and headache specialist. Mark your calendar for Sept 2 (Labor Day). |
 | Jessie defund police fund abortions Losch💚🇺🇾🌱 @JessieLosch I am the kind of migraine pain-med-level where I still have the pain, but I don’t actually care about it. #MigraineChat |
 | Amanda Casanova @acasanova10 How to get more #rest with #migraines https://t.co/lyoi1MPW4D #dizzies #Migrainechat #sleep https://t.co/jmMXZgzyTm |
 | MyHealthyClick ↖ @Myhealthyclick Is Cipro Good For Sinus Infection? https://t.co/MX7oFuH6WL #Cipro #Sinus #MigraineChat https://t.co/WhYzjRC6o3 |
 | Royal Beautee @theroyalbeautee I get a migraine almost every other day during the summer and I’m tired of it #MigraineChat |
 | NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: @Tracy330507 Stay tuned for Q5. I hope some of the responses will be helpful. If not, we'll work on making it a wider question. #MigraineChat |
| Beth Morton @beth_morton We had a good turnout for the August #MigraineChat, but it was a little smaller due to vacations, #migraine attacks, & various other reasons. Know you can always join the conversation late. Before I post the transcript, I'll link the questions again for another chance to reply. |
| Beth Morton @beth_morton https://t.co/uqHghWNqlX |
| Beth Morton @beth_morton https://t.co/YP0ETlPFEY |
| Beth Morton @beth_morton Don't forget to use the #MigraineChat hashtag in your reply. I'll create the transcript by Friday and share it out. The next chat in on Monday, Sept. 2nd (Labor Day). Mark your calendar for 1pm ET. |
| Beth Morton @beth_morton https://t.co/I1VZaOrx72 |
| Beth Morton @beth_morton https://t.co/jHi0kGdD7E |
| Beth Morton @beth_morton https://t.co/cbTjWNyPL8 |
| Beth Morton @beth_morton https://t.co/4vkC45A7KP |
| Beth Morton @beth_morton @Allie75177173 I think we all feel this. Wanting to do more on good days, but worrying it might result in a bad day is a super hard balance to strike. #MigraineChat |
| Beth Morton @beth_morton Ahhh! A topic after my own heart! Unfortunately, I have an appointment scheduled smack in the middle. I'll reply after, promise! FYI, I have a #MigraineChat on this topic planned. |
 | Krista @Kristacatlady @beth_morton A1: My husband has been an amazing caregiver. He asks me what he can do to help several times a day. He picks up meds, grocery shops, helps around the house, takes me to appts, etc. Like so many here, I feel like a burden though he never acts like I am. #MigraineChat |
| Krista @Kristacatlady @beth_morton A2: I miss being able to care for myself more. It terrifies me what will happen to me if something happens to him. I don't know what I will do. He's all I have. #MigraineChat |
| Krista @Kristacatlady @beth_morton A5: This certainly won't work for many, but my husband knows the things that help me when I am sick so he will ask specific questions such as "can I make you some toast?" rather than open ended questions. #MigraineChat |
| Krista @Kristacatlady @beth_morton This is helpful b/c open ended questions can overwhelm me when I have a bad migraine. It is also important to our relationship that I ask for help instead of trying to do things myself. He feels powerless when I am sick and it helps him if I allow him to help me. #MigraineChat |
| Krista @Kristacatlady @MigraineMelon @beth_morton I know a man who has a menu lined list of things that he might need when he is sick (crackers, Gatorade, ice pack, heating pad, meds, etc) so that he can just point to things he needs when he is sick. Such a great idea. #MigraineChat |
| Amanda Casanova @acasanova10 How to get more #rest with #migraines https://t.co/KzODEMPmpC… #dizzies #Migrainechat #sleep #vestibularmigraine @vestibularveda |
#migrainechat content from Twitter.