#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
– ().
See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Beth Morton @beth_morton Just under two hours until #MigraineChat begins! It is a holiday for some, but I hope you can still join us. This month we are discussing the uncertainty of life with #migraine disease. Take a look at today’s questions: https://t.co/Wuemu2Ihop |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: Just under two hours until #MigraineChat begins! It is a holiday for some, but I hope you can still join us. This month we are discussing the uncertainty of life with #migraine disease. Take a look at today’s questions: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Hello @DivaMDGarrett @Alexandria_SZ @MigraineMantras @aimee1002 @elxtric_emily @hincmanlorie & @CdnPenny. #MigraineChat starts in about 90 minutes. I hope you can join us to chat about the uncertainty of #migraine. Preview questions here: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton @HincmanLorie If it is your first time joining, don't stress out too much. The easiest thing to do is put #MigraineChat in the Twitter search bar, then hit "latest" and you'll see all the tweets. Then feel free to tweet, retweet, and reply as much as you are feeling up for! |
 | Lorie Hincman - Lorie Talks Life @HincmanLorie Hi Twitter! At 1:00 I will be joining #Migraine Chat Monday for about an hour - #MigraineChat If you'd rather not see all the feeds you can mute the hashtag #MigraineChat |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Here are the two most helpful chat tips: (1) **Always** remember the #MigraineChat hashtag! It helps make following the conversation easier. (2) I’ll start each question with Q1, Q2, etc. Remember to start your corresponding reply tweet with A1, A2, etc. (or quote tweet). |
| Beth Morton @beth_morton Who is joining #MigraineChat today? If you want, introduce yourself in any way you are comfortable. I’m your moderator, Beth. It’s a rainy day here in Vermont, but I’m finally having a small break in my migraine flare. #MigraineChat |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
 | NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
| Beth Morton @beth_morton @smithbrainz Hi Lisa, welcome! Don't forget the hashtag in later replies. Makes it easier for folks to find your responses! #MigraineChat |
| Beth Morton @beth_morton I know it's a holiday for many, so I expect a quiet hour. Let's jump in... #MigraineChat |
| Lorie Hincman - Lorie Talks Life @HincmanLorie @beth_morton Hi, this is Lorie from FL. My #Migraine has been chronic, intractable since fall of 2011. This is my first #MigraineChat🙂 |
| Beth Morton @beth_morton Q1. With migraine – or any of your comorbidities – do you tend to tackle symptoms or flares as they occur or more proactively seek treatment/answers/causes/diagnoses (as applicable)? #MigraineChat https://t.co/2hdk6eg3sQ |
| Beth Morton @beth_morton @HincmanLorie Welcome, thanks for being here, Lorie! #MigraineChat |
| Beth Morton @beth_morton @bhendykat @rainforestgardn That's a more than fair excuse to forget the hashtag! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Hi Katie!! Thanks for being here! #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie You can reply to each question if that is easier. Just start with the number, so A1 for this first one and include the hashtag (#MigraineChat) each time. Then people will be able to see each response in their feed easily! |
| Beth Morton @beth_morton A1. I go through phases. Sometimes I hope there's an underlying cause and try to rule things out/get ahead of flares. Other times, I resign myself to it *just* being #migraine and get doctor fatigue. #MigraineChat |
| Beth Morton @beth_morton @SarahLerner This is very much where I am as long as I'm not in a period of doctor fatigue. #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie I'm glad you have a diagnosis and found the community. It is an exhausting "journey" for lack of better word. #MigraineChat |
 | Krista @Kristacatlady @beth_morton Hi everyone. Sorry I am late. I am Krista from Southern Illinois. #MigraineChat |
| Beth Morton @beth_morton @sarie_ellen Take care, Sarah. Feel free to check back later when you feel better. #MigraineChat isn't going anywhere. |
| Beth Morton @beth_morton Q2. When you are uncertain about a #migraine treatment (e.g. starting or stopping), how do you decide what to do? Do you rely on the advice of your doctor, friends, family, or migraine peers? Do you do your own research? #MigraineChat https://t.co/KZA25LvTce |
 | Cascadia Fire Has No Season @barkflight RT @beth_morton: Q1. With migraine – or any of your comorbidities – do you tend to tackle symptoms or flares as they occur or more proactively seek treatment/answers/causes/diagnoses (as applicable)? #MigraineChat https://t.co/2hdk6eg3sQ |
| Beth Morton @beth_morton @fabriKatie @SarahLerner Oh, yes! I get treatment fatigue, too! #MigraineChat |
| Beth Morton @beth_morton @migrainekrista Welcome, Krista. I'm glad you can join today! #MigraineChat |
| Beth Morton @beth_morton @smithbrainz These are really important points. There's more to being proactive than simply wanting to be. Lots of additional external barriers. #MigraineChat |
| Beth Morton @beth_morton @rainforestgardn @bhendykat Ugh, happens to the best of us! Feel free to lurk, join, or come back and read/respond later. I don't generate a transcript for a few days so people have time to reply just for this reason. #MigraineChat |
| Beth Morton @beth_morton @rainforestgardn That's excellent progress! #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie @bhendykat It's not a club we really *want* to be part of, buuuut, it's still a pretty good club all things considered. #MigraineChat |
| Krista @Kristacatlady #MigraineChat A2: I tend to do my own research but am open to input from my doc. I usually have a running list of meds I want to try and name a few to my doc when I am game for a new preventative. Then let him choose which one to try. I get ideas from research and mig peers. |
| Beth Morton @beth_morton Q3. People with frequent #migraine attacks deal with the uncertainty of when to take their medications (so as to avoid med overuse #headache). How do you weigh this decision? #MigraineChat https://t.co/NcaSpQMyL7 |
 | Amy Ferraro-Kick ED’s Butt @acf1973 @beth_morton I pretty much rely on the doctor. I have been dealing with this issue for so long that I will try anything. #migrainechat |
| Krista @Kristacatlady A2b: I usually only stop meds because they don't work. I use Migraine Buddy to run reports to figure out if a med has reduced frequency, duration, or intensity. Then I just ask doc to stop. #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 I’ve definitely hit treatment fatigue. #MigraineChat |
| Krista @Kristacatlady A3: I don't have any meds currently that cause MOH. When I did take meds that could cause MOH, I was very careful. I would only take them if I felt my head picking up steam. #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie That's great progress. I hope you find something to help even more in the future. #MigraineChat |
| Krista @Kristacatlady A3b: I usually wake up with a migraine and can usually tell within half an hour if things are going to get out of control so when I had moh causing meds, I would take them asap. #MigraineChat |
| Krista @Kristacatlady @fabriKatie @beth_morton Yes, it is a horrible situation to be in. And so hard to know what to do. #MigraineChat |
| Beth Morton @beth_morton Q4/5. What tips can you share for managing the unpredictability of #migraine in the workplace or school? Or for maintaining a social life with migraine amid the uncertainty of attacks? #MigraineChat Combing two Qs for time! https://t.co/6j2AOlxKta |
| Krista @Kristacatlady @bhendykat @beth_morton I had MOH twice. Both times I had no idea until it was completely out of control. Was so awful to get through. Yikes. #MigraineChat |
 | Jessie defund police fund abortions Losch💚🇺🇾🌱 @JessieLosch @beth_morton @themegansmith Oh no whoops, I’m sorry- I’m Jessie, from rainy Brooklyn. I used to be able to tell you my migraines were hormonal and weather-induced but the last few years they’ve been clustery as well. So...still figuring it all out! #migrainechat |
| Beth Morton @beth_morton @Tracy330507 Haha, cows too far out of the barn. Being from Vermont, I appreciate that early treatment analogy!! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie I needed to hear this. I need to follow this. #MigraineChat |
| Beth Morton @beth_morton Q6. The bucket theory of #migraine triggers posits that we get an attack when our “bucket” is overloaded with our personal triggers. However, the number/combination of triggers can vary each attack. Do you find this to be true? How do you manage the inconsistency? #MigraineChat https://t.co/rOYDAx0ImI |
| Beth Morton @beth_morton @sarie_ellen SOMEBODY INVENT A MIGRAINE MEDICATION CRYSTAL BALL!! YES, I'M YELLING. #MigraineChat |
| Amy Ferraro-Kick ED’s Butt @acf1973 @beth_morton I think it just depends. I can get a migraine for no reason that I can think of or many reasons. It depends on the day. #MigraineChat |
| Krista @Kristacatlady A6: it is somewhat true. I have little clue about why I get the vast majority of attacks. I do tend to get worse around June and Nov though. Those are both times of lots of changes in stress, schedule, weather. So I just know things will be harder then. #MigraineChat |
| Lorie Hincman - Lorie Talks Life @HincmanLorie A6 Triggers are my most frustrating topic within #Migraine. I've eliminated everything and brought it back. Not one is a definite. #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie Same. I am eternally frustrated by my triggers. I'm starting to relax on worrying and tracking in hopes *that* was a trigger! Trigger Fatigue? #MigraineChat |
| Krista @Kristacatlady A6b: I don't know what to do though other than increase self care. Increasing movement, eating better, etc has no impact on my migraines, so I just try to do the things that help me cope better mentally. Meditate, read, not schedule a lot, etc. #MigraineChat |
| Beth Morton @beth_morton @migrainekrista I love this advice, Krista! I think it is all we can do when triggers are mysterious. #MigraineChat |
| Beth Morton @beth_morton Q7/CT: Big question: How do you deal with the uncertainty of the future with a (chronic) illness like #migraine? Share some things that help you maintain hope. #MigraineChat https://t.co/tWFGoYMIi9 |
| Krista @Kristacatlady @HincmanLorie Yup, it's so frustrating. Mine just follow a schedule. Currently I usually have 2-3 days of migraines, 1 day off. Severe one usually on Sun. So confusing what is up with my body. #MigraineChat |
| Lorie Hincman - Lorie Talks Life @HincmanLorie @bhendykat Sometimes I feel people want me to have a trigger so the blame for the #Migraine is on me. #MigraineChat |
| Beth Morton @beth_morton @HincmanLorie @bhendykat There's truth to this. It's part of the stigma of #migraine, unfortunately. That's when you remind them the difference between a trigger and cause. It's still a neurological disease. Triggers don't cause migraine. #MigraineChat |
| Krista @Kristacatlady A7: I honestly don't think I would be any happier with my life if I didn't have chronic migraine. I try to do what I can to improve my mental & physical wellbeing. I can't really think about what I will do if I get worse. I will just deal with it if it happens. #MigraineChat |
| Beth Morton @beth_morton @HemingwayMuse I think that's about the best we can do and healthy answer! #MigraineChat |
| Krista @Kristacatlady @bhendykat @HincmanLorie Right?! Breathing is a trigger. 😂 #MigraineChat |
 | Sarah @sarie_ellen RT @beth_morton: Q6. The bucket theory of #migraine triggers posits that we get an attack when our “bucket” is overloaded with our personal triggers. However, the number/combination of triggers can vary each attack. Do you find this to be true? How do you manage the inconsistency? #MigraineChat https://t.co/rOYDAx0ImI |
| Lorie Hincman - Lorie Talks Life @HincmanLorie A7 I don't think #Migraine will get better. I hope it doesn't get worse. Life is worth living whatever it brings me. #MigraineChat |
| Beth Morton @beth_morton Thanks so much for joining today. Please keep responding as you feel up to it. I'm hoping (again) to have next month’s #MigraineChat cover new treatments and feature two guest hosts: a patient and physician perspective. I hope you’ll join us. |
| Beth Morton @beth_morton Just a note, I’m considering phasing out DM reminders due to time. For those who receive them, I’ll send you a message soon asking if you’d prefer a tweet reminder or no reminder. All - please consider setting a standing calendar reminder for #MigraineChat! |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: Just a note, I’m considering phasing out DM reminders due to time. For those who receive them, I’ll send you a message soon asking if you’d prefer a tweet reminder or no reminder. All - please consider setting a standing calendar reminder for #MigraineChat! |
| Krista @Kristacatlady @HemingwayMuse @beth_morton Yes, I live very much in the present. Unfortunately, if I have to look at my past or future, it tends to be overwhelming emotionally so I try not to. So my focus on the present isn't entirely healthy, but I am tryng to stay sane. #MigraineChat |
| Beth Morton @beth_morton @SarahLerner I struggle with this a lot. And it probably adds to my anxiety and migraines, unfortunately. I'm working on it, but support is a big factor. #MigraineChat |
 | Madeline @MadelineSedai Right now I’m working closely with my neurologist, but with each new treatment, I try to find studies to double check. I do this because I found out a previous DR prescribed a medication that was well below the recommended amount. |
| Krista @Kristacatlady @bhendykat @SarahLerner I also feel this. In addition, in the past, I went back to school after getting somr better and got so much sicker than I was to begin with. So I would be terrified that that would happen again. #MigraineChat |
| Krista @Kristacatlady @HemingwayMuse @bhendykat @beth_morton I was able to continue taking the meds that caused MOH after I got through MOH. Each time my doc told me I could start taking the med again a few months later. I used a wall calendar to note when I took the med to make it easy to see when I could take it. #MigraineChat |
| Beth Morton @beth_morton @AnitaM86 I think with migraine that's fair. It was sort of a trick question as often there is no underlying cause per se. Best we can do is look for good treatments and manage symptoms. #MigraineChat |
| Beth Morton @beth_morton Just want to clarify that I snuck "cause" in there for some comorbidities and the off chance people have had a diagnosis other than a primary headache like #migraine. |
| Beth Morton @beth_morton @SarahLerner This is pretty much me and I've started to think it's not worth trying to figure out what makes me go from low to moderate migraine. It just does. A big spike on the other hand, might have a clearer trigger. #MigraineChat |
 | Rachel Graves @rachel_x_graves @beth_morton I thought my symptoms were at peak weirdness, but apparently not. I'm hoping this is a reaction to increasing a med or some kind of virus, but worried it might be a #fibro/#migraine flare that is going to keep happening. #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves Eek, that sounds rough. I hope it is just a short and minor setback. 💜 #MigraineChat |
 | Sarah @TeamSJTeinert Worst migraine in years today 🤯🤯 #MigraineChat #myhealth #migrainetrust @MigraineTrust |
 | Sino’s Mama @sinosmama When you wake up with a migraine, you know it’s gonna be a long day. #migraine #MigraineChat |
| Sarah @TeamSJTeinert Head still pounding - migraines are possibly the worst thing I’ve ever felt #MAW2019 #MigraineAwarenessWeek #MigraineChat #knockmyheadoff |
| Sarah @TeamSJTeinert https://t.co/CH7EV3yayy @Pretty52 ..this is an amazing read and shows the truth surrounding migraines and people who suffer with them x #MigraineAwarenessWeek #migrainechat #MAW2019 |
 | Emma Barrett @emmafhbarrett Excellent article, it's #MAW2019 please read what it's really like living with migraine. |
| Sarah @TeamSJTeinert Another day, another migraine....will my life ever be normal?!? 🤷🏽♀️🤯 #MAW2019 #MigraineAwarenessWeek #MigraineChat #migraine @MigraineTrust |
| Sarah @TeamSJTeinert Currently changing medication after being advised I’d been on the wrong medication for months.....how many of you has this happened to? #migraine #MigraineAwarenessWeek #MigraineChat |
| Sarah @TeamSJTeinert How do people work with migraine? #MigraineAwarenessWeek #migraine #MigraineChat #migrainetrust @MigraineTrust #chronicillness #chronicmigraine |
| Sarah @TeamSJTeinert Head is absolutely throbbing. @NHSEngland say they can’t help for a week even though they have the letter from my neurologist stating next steps! I’m losing the will... @MigraineTrust #MigraineChat #MAW2019 #MigraineAwarenessWeek #migraine |
#migrainechat content from Twitter.