#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Patient Empowerment Network @power4patients RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/6xcTNM69w9 |
| Patient Empowerment Network @power4patients RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Hi #patientchat’ers! Kara here from @power4patients. I'm a brain cancer survivor and excited about starting 2019 off empowered 💪 |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
 | Kevin Freiert @K_SalemOaks Hello, Kevin from Connecticut here. I hope everyone has had a great start to 2019. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @Clara_Health |
 | Your GPS Doc, LLC @yourgpsdoc Hello and Happy New Year! I’m Nicole Rochester, a physician, former family caregiver, professional health advocate and CEO of @yourgpsdoc. It’s been a while. Great to be back. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Empowerment Network @power4patients @K_SalemOaks @SalemOaks @S4PM @savvy_coop @Clara_Health Hi Kevin, Happy New Year! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc Come join us! #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/Vgxd45poj0 #patientchat |
 | Beth Morton @beth_morton Hello! Beth, tweeting/lurking from frigid Vermont. As 2019 starts, definitely rethinking how I can empower my patient experience. #chronicmigraine #patientchat |
 | Seth Rotberg @Srotberg15 Hi everyone, this is my first time here and I am a rare disease advocate living in DC. Excited to be here and to learn and connect with others! #patientchat |
| Patient Empowerment Network @power4patients @yourgpsdoc Hi Nicole, thanks for joining us! Happy New Year :) #patientchat |
 | Inspire @InspireIsHealth Hello and Happy New Year to the #patientchat community. John Novack here from Inspire. |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful! #patientchat |
 | Jamie Roger @JamieRoger8 Happy New YEAR #patientchat Jamie from CT and @SalemOaks Come join us! #hcldr #htreads #pinksocks @abrewi3010 @Chris_Anselmo |
| Jamie Roger @JamieRoger8 @beth_morton Great to see you here @beth_morton #patientchat |
| Patient Empowerment Network @power4patients @teaminspire Hey John! Happy New Year to you! Thanks for joining us #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Starting the Year Empowered https://t.co/6xcTNM69w9 https://t.co/P9BoIrOgv6 |
| Jamie Roger @JamieRoger8 @teaminspire Happy New Year John, Hope 2019 is filled with fun conferences and awesome collaborations for you #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Empowerment Network @power4patients @Srotberg15 Hey Seth, so happy you joined us! #patientchat |
| Kevin Freiert @K_SalemOaks @beth_morton Good to see you here Beth. #patientchat |
 | Alan Brewington @abrewi3010 @JamieRoger8 @SalemOaks @Chris_Anselmo Hi! Im supposed to be in a work meeting with the boss right now. The boss is lost though. #patientchat |
| Patient Chat @patientchat T1: What are some things you can do today that will make you feel empowered all year long? #patientchat https://t.co/FCUbx0JAtS |
| Jamie Roger @JamieRoger8 @abrewi3010 @SalemOaks @Chris_Anselmo Perfect timing. Happy New Year @abrewi3010 #patientchat |
| Patient Empowerment Network @power4patients @QuinlanTurner @patientchat Welcome, Quin! #patientchat |
 | abridged @abridgedtheblog Joining the first #patientchat of 2019 — looking forward to chatting and learning about #patientempowerment |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is Starting the Year Empowered https://t.co/6xcTNM69w9 https://t.co/P9BoIrOgv6 |
 | Barby Ingle Official @BarbyIngle @patientchat Hello #patientchat here in NV, but traveling back home because I'm too sick, so may drop cell signal |
| Kevin Freiert @K_SalemOaks @Srotberg15 Hi Seth. Get ready for a fast-moving stream of thoughts. #patientchat BTW, I want to give you a call. Are you around later today? |
| Alan Brewington @abrewi3010 @JamieRoger8 @SalemOaks @Chris_Anselmo Happy New Year to you too! #patientchat |
| Jamie Roger @JamieRoger8 Connect with others who are focused on the same goals that I am. Partners in the journey through 2019. #patientchat |
| Patient Empowerment Network @power4patients @beth_morton Hi Beth! It's frigid here in Boulder, CO today too #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @BarbyIngle @patientchat Feel better, Barby! #patientchat |
| Kevin Freiert @K_SalemOaks T1: Reflect on what you want the year to look like. Relax, read something that inspires you, and write down ideas, including fun stuff. Now budget for them (time, $, whatever). Give yourself permission. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @Clara_Health |
| Inspire @InspireIsHealth RT @patientchat: T1: T1: What are some things you can do today that will make you feel empowered all year long? #patientchat https://t.co/FCUbx0JAtS |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are some things you can do today that will make you feel empowered all year long? #patientchat https://t.co/FCUbx0JAtS |
| Barby Ingle Official @BarbyIngle T1. Take care of my health first, share my story to give others hope and ideas, get/stay organized. . #patientchat |
| Jamie Roger @JamieRoger8 @BarbyIngle @patientchat Take Care, I hope that being home will help you heal. #patientchat |
 | Heather McCullen @H_SalemOaks RT @K_SalemOaks: T1: T1: Reflect on what you want the year to look like. Relax, read something that inspires you, and write down ideas, including fun stuff. Now budget for them (time, $, whatever). Give yourself permission. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @Clara_Health |
| Patient Empowerment Network @power4patients Hope you feel better soon, @BarbyIngle! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T1: Having a clear understanding of your (or your care partner's) medical history is a great start to being empowered. Update your medication list, update any recent hospitalizations, surgical procedures, new doctors, new health insurance, etc. #patientchat |
| Patient Empowerment Network @power4patients RT @BarbyIngle: T1. Take care of my health first, share my story to give others hope and ideas, get/stay organized. . #patientchat |
| Alan Brewington @abrewi3010 A1 we all are lots of hurt but that doesn’t mean we aren’t entitled to a good life! It’s popular to say it’s ok not to be ok, it’s also ok to be ok. Start from this point of view and look forward to life. #patientchat |
| Jamie Roger @JamieRoger8 RT @yourgpsdoc: T1: T1: Having a clear understanding of your (or your care partner's) medical history is a great start to being empowered. Update your medication list, update any recent hospitalizations, surgical procedures, new doctors, new health insurance, etc. #patientchat |
| Patient Chat @patientchat RT @yourgpsdoc: T1: T1: Having a clear understanding of your (or your care partner's) medical history is a great start to being empowered. Update your medication list, update any recent hospitalizations, surgical procedures, new doctors, new health insurance, etc. #patientchat |
| Kevin Freiert @K_SalemOaks T1: Release the strong grip on control. Decide to treat every experience as a learning opportunity. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @clara_health |
 | Dr. Kelly Shanahan @stage4kelly T1: set up google alerts for your disease so you can keep up with what’s new #patientchat |
| abridged @abridgedtheblog T1: I have new health insurance this year — this week I am making sure I understand the financial side of stuff and how it will impact healthcare decisions (who is in-network/out of network, funding better Rx prices, etc) #patientchat |
| Patient Empowerment Network @power4patients Checking out our Empowered Patient Toolkit is a good way to get started https://t.co/DrCnGtVZ6g #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @stage4kelly: T1: T1: set up google alerts for your disease so you can keep up with what’s new #patientchat |
| Your GPS Doc, LLC @yourgpsdoc I love this! #patientchat |
| Seth Rotberg @Srotberg15 T1. One of the biggest thing to do is connect with others going through a similar situation. Whenever I connect with another younger person in the rare disease space it always inspires me to do more for the community. #patientchat |
| Alan Brewington @abrewi3010 A1 look for new challenges. Make a chronic relationship with someone outside your disease silo. #patientchat |
| Dr. Kelly Shanahan @stage4kelly RT @power4patients: Checking out our Empowered Patient Toolkit is a good way to get started https://t.co/DrCnGtVZ6g #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up... #patientchat https://t.co/950AJPZclr |
| Patient Empowerment Network @power4patients @K_SalemOaks @SalemOaks @S4PM @savvy_coop @Clara_Health Love this one. I find the older I get, the more aware I am of my need to control things. And, in the immortal words of G.I. Joe, "knowing is half the battle!" #patientchat |
| abridged @abridgedtheblog RT @power4patients: Checking out our Empowered Patient Toolkit is a good way to get started https://t.co/DrCnGtVZ6g #patientchat |
| Patient Chat @patientchat T2: What strategies, tips, or tools can/do you use to be more empowered in your health? #patientchat https://t.co/AMbpuad6C0 |
| Seth Rotberg @Srotberg15 @stage4kelly Such a great idea that I currently do. The great thing about Google Alerts are getting daily or weekly updates on what’s happening in your community or area(s) of interest. #patientchat |
| Patient Empowerment Network @power4patients @Srotberg15 Agree 100%! #patientchat |
 | Maya Northen Augelli @mayanorthen Late to #patientchat but hoping to jump in soon! |
| Patient Empowerment Network @power4patients RT @abridgedtheblog: T1: T1: I have new health insurance this year — this week I am making sure I understand the financial side of stuff and how it will impact healthcare decisions (who is in-network/out of network, funding better Rx prices, etc) #patientchat |
| Jamie Roger @JamieRoger8 @patientchat Set goals, make plans, don't put appointments off. Be present in your health on a daily basis and make choices that reflect where you want to be. #patientchat #empowered #choices |
| Kevin Freiert @K_SalemOaks T2 Establish a routine but don't beat yourself up if life messes it up. Just turn back to the routine. It could be exercise, therapy, eating habits, reading, sleep, or most importantly "free time." #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @clara_health |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: What strategies, tips, or tools can/do you use to be more empowered in your health? #patientchat https://t.co/AMbpuad6C0 |
| Jamie Roger @JamieRoger8 @mayanorthen I hope you are planning your yoga instructor funded road trip for 2019! #patientchat |
| Alan Brewington @abrewi3010 A2 information is neither good nor bad. However lack of information is the basis for almost all anxiety and stress. #patientchat |
| Jamie Roger @JamieRoger8 RT @K_SalemOaks: T2 Establish a routine but don't beat yourself up if life messes it up. Just turn back to the routine. It could be exercise, therapy, eating habits, reading, sleep, or most importantly "free time." #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @clara_health |
| Your GPS Doc, LLC @yourgpsdoc T2: I'm a strong believer of writing things down (or typing them in your smartphone). Take notes at medical appointments. Don't expect that you will remember everything. Also ask questions and demand (politely) lay terminology. #patientchat |
| Barby Ingle Official @BarbyIngle T2 The tool most needed for me to be most empowered is good communication between me and my care team, caregivers and family. #patientchat |
| Patient Chat @patientchat RT @JamieRoger8: @patientchat Set goals, make plans, don't put appointments off. Be present in your health on a daily basis and make choices that reflect where you want to be. #patientchat #empowered #choices |
| abridged @abridgedtheblog #patientchat t2: keeping a health journal to track symptoms, activity level, what meds I’m taking... helps me to feel more confident during Dr apts. |
| Jamie Roger @JamieRoger8 Keep those channels opeN. #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 Sadly, I'm on the phone for the jobby job. But I am slowly working on that road trip plan! #patientchat |
| Kevin Freiert @K_SalemOaks T2: I find that I strive to keep my numbers where I want them on my fitbit. I was really happy to see my cardiovascular health score tick up a notch last night. My point - measure those things you want to work. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @Clara_Health |
| Dr. Kelly Shanahan @stage4kelly T2: for my personal health I’m committing to eating better and exercising more - and am scheduling workouts/classes in my calendar to prioritize them. #patientchat |
| Alan Brewington @abrewi3010 A2 doctors, nurses (especially nurses), therapists, etc are human too. Honest & active listening on both sides develops stronger and more productive relationships. #patientchat |
| Beth Morton @beth_morton I stay current on research and treatments. I think about things I haven't tried recently that I can try again, maybe it'll work differently now. I'm thinking about ways I can expand my health care team (difficult in rural New England, but still trying....). #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen Don't let the year slip by, keep making plans! #patientchat |
| Patient Empowerment Network @power4patients Focusing on improving health literacy is fundamental to being #empowered. Lots of resources out there to help you. We love this tip sheet from the fab @MightyCasey https://t.co/rdYWisA5OX #patientchat |
| Kevin Freiert @K_SalemOaks This is so true Alan. We encourage docs to understand what is going on in patients' lives. It's a two way street. #patientchat |
| Patient Empowerment Network @power4patients RT @abridgedtheblog: #patientchat t2: #patientchat t2: keeping a health journal to track symptoms, activity level, what meds I’m taking... helps me to feel more confident during Dr apts. |
| Seth Rotberg @Srotberg15 T2: I’ve started being more honest and open with myself and others on how I’m doing. If I’m having a tough day I won’t respond with the typical “good, how are you?” It’s important to accept vulnerability. #patientchat |
| Alan Brewington @abrewi3010 RT @K_SalemOaks: This is so true Alan. We encourage docs to understand what is going on in patients' lives. It's a two way street. #patientchat |
| Jamie Roger @JamieRoger8 PREACH! #okaytonotbeokay #vulnerability #human #patientchat |
| Patient Empowerment Network @power4patients @BarbyIngle Agreed. It's hard to find a problem for which good communication is the wrong solution. #patientchat |
| Inspire @InspireIsHealth RT @power4patients: Focusing on improving health literacy is fundamental to being #empowered. Lots of resources out there to help you. We love this tip sheet from the fab @MightyCasey https://t.co/rdYWisA5OX #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 Definitely working on the plans! I'm excited for 2019! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: Focusing on improving health literacy is fundamental to being #empowered. Lots of resources out there to help you. We love this tip sheet from the fab @MightyCasey https://t.co/rdYWisA5OX #patientchat |
| Alan Brewington @abrewi3010 A2 realize our #healthcare system is to big and bloated, mistakes will happen. Picking our advocacy battles becomes more important! #patientchat |
| Barby Ingle Official @BarbyIngle RT @power4patients: @BarbyIngle Agreed. It's hard to find a problem for which good communication is the wrong solution. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up... #patientchat https://t.co/950AJPZclr |
| Jamie Roger @JamieRoger8 @mayanorthen WHere is your first stop going to be? #patientchat #empowered #community #LiveLife |
| Maya Northen Augelli @mayanorthen Yes! I actually corrected myself on this recently. Started to tell someone I was good and then said "actually no that's not true." #patientchat |
| Patient Chat @patientchat T3: What advice do you have for people newly diagnosed with a chronic illness? How can they be empowered right from the start and throughout their journey? #patientchat https://t.co/Ic3fBVGr3Q |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What advice do you have for people newly diagnosed with a chronic illness? How can they be empowered right from the start and throughout their journey? #patientchat https://t.co/Ic3fBVGr3Q |
 | IFFGD @IFFGD RT @patientchat: T3: T3: What advice do you have for people newly diagnosed with a chronic illness? How can they be empowered right from the start and throughout their journey? #patientchat https://t.co/Ic3fBVGr3Q |
| abridged @abridgedtheblog #patientchat t2: I go through phases of symptom tracking. Sometimes on an app or online... this year I went old-school with a small notebook https://t.co/VxAjpL2ViQ |
| Patient Empowerment Network @power4patients RT @abridgedtheblog: #patientchat t2: #patientchat t2: I go through phases of symptom tracking. Sometimes on an app or online... this year I went old-school with a small notebook https://t.co/VxAjpL2ViQ |
| Alan Brewington @abrewi3010 A3 life is easier if you ask “how might we...?” Vs I’m doing this. #patientchat |
| Alan Brewington @abrewi3010 Meeting time. Happy ideation time!!! #patientchat |
| Jamie Roger @JamieRoger8 @patientchat Embrace your story, your experiences, and your choices. This is your life. #patientchat |
| Kevin Freiert @K_SalemOaks T3:" You are not the only one. Let's find some others who have this condition together. " #patientchat #pinksocks |
| Dr. Kelly Shanahan @stage4kelly T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
| Seth Rotberg @Srotberg15 T3: Take action and use your results as motivation to fight back. More importantly, know you are not alone and to find both online and in person support to connect with others in your community. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T3: T3: What advice do you have for people newly diagnosed with a chronic illness? How can they be empowered right from the start and throughout their journey? #patientchat https://t.co/Ic3fBVGr3Q |
 | ALS Advocacy @alsadvocacy RT @stage4kelly: T3: T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
| Patient Empowerment Network @power4patients RT @stage4kelly: T3: T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
| Patient Empowerment Network @power4patients RT @K_SalemOaks: T3:" You are not the only one. Let's find some others who have this condition together. " #patientchat #pinksocks |
| Patient Chat @patientchat RT @stage4kelly: T3: T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3: Learn all that you can about your illness. You will be the expert and are just as important as the doctor and others on your medical team. Ask questions. Engage with other patients and advocates. Know that you are not alone. #patientchat |
| Inspire @InspireIsHealth RT @K_SalemOaks: T3:" You are not the only one. Let's find some others who have this condition together. " #patientchat #pinksocks |
| abridged @abridgedtheblog #patientchat t3: find communities of support that can direct patients to good (reliable, science-based, reputable...) resources. |
| Your GPS Doc, LLC @yourgpsdoc @stage4kelly So true! #patientchat |
| Barby Ingle Official @BarbyIngle T3. Newly Dx'ed.... learn bio-psych-social approach to your condition, keep journal, stay organized as you go, keep open mind, multi-tx approaches tend to do better. Ask questions. How will this affect my future tx needs. #patientchat |
| Beth Morton @beth_morton Find their patient community online, on social media. Use them as resources. Learn everything you can from trusted sources (this is where I think health literacy comes in...). If possible, find a doctor(s) who is a partner in their care. #patientchat |
| IFFGD @IFFGD @patientchat A3: It's important to find your community. With #SoMe, patients have more access to each other than ever before. Being able to share experiences with someone who understands can give newly-diagnosed patients the confidence to take charge of their care. #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen Awesome. Start connecting with yoga studios now so that you have more options when you are finally ready to go. #patientchat #makingplans |
| IFFGD @IFFGD RT @beth_morton: Find their patient community online, on social media. Use them as resources. Learn everything you can from trusted sources (this is where I think health literacy comes in...). If possible, find a doctor(s) who is a partner in their care. #patientchat |
| Maya Northen Augelli @mayanorthen A3: Find a community (either official or unofficial) of others with your illness. It helps to know you're not alone, and often, connecting with others can help if you're not sure how/are apprehensive of getting started. #patientchat |
| Kevin Freiert @K_SalemOaks T3: I have a friend who became a paraplegic within minutes when he had a spinal aneurism. His life immediately changed forever. He pragmatically made adjustments. It wasn't defeat - it was new. He still had struggle, but his attitude pulled him through. #patientchat #pinksocks |
| IFFGD @IFFGD RT @abridgedtheblog: #patientchat t3: #patientchat t3: find communities of support that can direct patients to good (reliable, science-based, reputable...) resources. |
| Patient Chat @patientchat RT @IFFGD: @patientchat A3: @patientchat A3: It's important to find your community. With #SoMe, patients have more access to each other than ever before. Being able to share experiences with someone who understands can give newly-diagnosed patients the confidence to take charge of their care. #patientchat |
 | Bob Tufts @TuftsB A3 - Best thing I did at diagnosis was to not go into fetal position, say "why me?"and hide that I had cancer. I reached out, got valuable information that I could use to ask pertinent questions to my oncologist #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up... #patientchat https://t.co/950AJPZclr |
| Patient Empowerment Network @power4patients T3 Be an active participant, speak-up, gather info/evidence re: disease/rx options, know when to get a 2nd opinion/new doctor, ask ???'s (come prepared to appts), leverage resources, own that you are the expert on you, & know you don't have to do any of this alone #patientchat |
| Patient Empowerment Network @power4patients RT @mayanorthen: A3: A3: Find a community (either official or unofficial) of others with your illness. It helps to know you're not alone, and often, connecting with others can help if you're not sure how/are apprehensive of getting started. #patientchat |
| Patient Empowerment Network @power4patients RT @IFFGD: @patientchat A3: @patientchat A3: It's important to find your community. With #SoMe, patients have more access to each other than ever before. Being able to share experiences with someone who understands can give newly-diagnosed patients the confidence to take charge of their care. #patientchat |
| Patient Chat @patientchat T4: What can you do to encourage friends, family, and others to be more empowered in their health? #patientchat https://t.co/Wfl3CFfwCw |
| Patient Empowerment Network @power4patients RT @beth_morton: Find their patient community online, on social media. Use them as resources. Learn everything you can from trusted sources (this is where I think health literacy comes in...). If possible, find a doctor(s) who is a partner in their care. #patientchat |
| Kevin Freiert @K_SalemOaks T4: Learn. Learn. Learn. Learn what is normal for your age and what changes might signal a problem. Learn what is expected for your illness or affliction. Learn what you can do to manage your life no matter your situation. #patientchat #pinksocks |
| Patient Empowerment Network @power4patients RT @TuftsB: A3 - Best thing I did at diagnosis was to not go into fetal position, say "why me?"and hide that I had cancer. I reached out, got valuable information that I could use to ask pertinent questions to my oncologist #patientchat |
| Patient Empowerment Network @power4patients @TuftsB Well said and done! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What can you do to encourage friends, family, and others to be more empowered in their health? #patientchat https://t.co/Wfl3CFfwCw |
| Maya Northen Augelli @mayanorthen A4: I think the more we share our stories and experiences of how we've become more empowered, it encourages others. Also (if you're able), being there to help them if they're not sure how to start/apprehensive/nervous to go it alone helps. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T4: I have a weekly Facebook Live show where I discuss tips to help patients and family caregivers navigate the healthcare system and effectively advocate for themselves. We each can do our part to encourage and uplift others. #patientchat |
| Dr. Kelly Shanahan @stage4kelly T3: get a second opinion, especially if rare or advanced disease #patientchat |
| Bob Tufts @TuftsB A4 - Be sure thst as a caregiver you also take care of yourself! #patientchat |
| Maya Northen Augelli @mayanorthen A4: &share resources. I think often, people don't feel empowered b/c they don't know how to be - i.e. they don't see opportunities to do so, know organizations & groups they can connect with, etc. The more we share resources & educate, the more it can help others! #patientchat |
| IFFGD @IFFGD RT @mayanorthen: A4: A4: I think the more we share our stories and experiences of how we've become more empowered, it encourages others. Also (if you're able), being there to help them if they're not sure how to start/apprehensive/nervous to go it alone helps. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc All of this! #patientchat |
| Barby Ingle Official @BarbyIngle T4. To inspire others to be empowered in their health, I live my best life and follow any advice myself that I would give them. Its important to be the chief of staff of your medical team #patientchat |
| abridged @abridgedtheblog #patientchat t4: being more open about my illness and the challenges I’ve faced (especially as an undiagnosed/rare disease patient, most medical folks aren’t sure what to do with me) has led to good convos about how others are doing. Encouraging each other to keep moving forward. |
 | Ody @OdyO11 T3: Learn what you can about your chronic illness. Get in touch with experts experienced in treating it. Learn how to find, read and assess research/publications. Find other patients and learn from each other's experiences. #patientchat |
| Jamie Roger @JamieRoger8 @yourgpsdoc How do I get to this? I'd be interested in watching. #patientchat |
| Inspire @InspireIsHealth RT @Rose_of_Sharon8: |
| Patient Chat @patientchat RT @Rose_of_Sharon8: |
| Patient Empowerment Network @power4patients T4: Part of it is explaning WHY it's critical to be #empowered & helping them understand how dramatically outcomes can change (for the better!) when they become empowered. @JBBC breaks it down here: https://t.co/eFRsY3pDGW #patientchat |
| Jamie Roger @JamieRoger8 RT @BarbyIngle: T4. To inspire others to be empowered in their health, I live my best life and follow any advice myself that I would give them. Its important to be the chief of staff of your medical team #patientchat |
| Patient Empowerment Network @power4patients RT @Rose_of_Sharon8: |
| IFFGD @IFFGD @patientchat A4 Leading by example can help family members, friends, and others. If you are openly empowered and proactive about your own health, this can encourage your loved ones to take greater interest in theirs. #patientchat |
| Patient Empowerment Network @power4patients RT @BarbyIngle: T4. To inspire others to be empowered in their health, I live my best life and follow any advice myself that I would give them. Its important to be the chief of staff of your medical team #patientchat |
| Jamie Roger @JamieRoger8 RT @power4patients: T4: T4: Part of it is explaning WHY it's critical to be #empowered & helping them understand how dramatically outcomes can change (for the better!) when they become empowered. @JBBC breaks it down here: https://t.co/eFRsY3pDGW #patientchat |
| IFFGD @IFFGD RT @abridgedtheblog: #patientchat t4: #patientchat t4: being more open about my illness and the challenges I’ve faced (especially as an undiagnosed/rare disease patient, most medical folks aren’t sure what to do with me) has led to good convos about how others are doing. Encouraging each other to keep moving forward. |
| Your GPS Doc, LLC @yourgpsdoc @JamieRoger8 https://t.co/kynNvvSCnF Every Monday at 8pm EST. I'd love for all of you to join me! #patientchat |
| IFFGD @IFFGD RT @BreastDense: |
| Maya Northen Augelli @mayanorthen I LOVE the phrase "Chief of Staff of your own medical team." #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @IFFGD: @patientchat A4 Leading by example can help family members, friends, and others. If you are openly empowered and proactive about your own health, this can encourage your loved ones to take greater interest in theirs. #patientchat |
| Patient Empowerment Network @power4patients @stage4kelly This is so critical! #patientchat |
| IFFGD @IFFGD RT @mayanorthen: A3: A3: Find a community (either official or unofficial) of others with your illness. It helps to know you're not alone, and often, connecting with others can help if you're not sure how/are apprehensive of getting started. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T4: T4: Part of it is explaning WHY it's critical to be #empowered & helping them understand how dramatically outcomes can change (for the better!) when they become empowered. @JBBC breaks it down here: https://t.co/eFRsY3pDGW #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: @JamieRoger8 https://t.co/kynNvvSCnF Every Monday at 8pm EST. I'd love for all of you to join me! #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 I'll be in Boston area in June for the #OvernightWalk too, so I might be able to pop into some places around the area/on the way to touch base personally in advance, which would be amazing! #patientchat #makingplans |
| Jamie Roger @JamieRoger8 RT @yourgpsdoc: @JamieRoger8 https://t.co/kynNvvSCnF Every Monday at 8pm EST. I'd love for all of you to join me! #patientchat |
| Patient Chat @patientchat #patientchat |
| Kevin Freiert @K_SalemOaks RT @BarbyIngle: T4. To inspire others to be empowered in their health, I live my best life and follow any advice myself that I would give them. Its important to be the chief of staff of your medical team #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up... #patientchat https://t.co/950AJPZclr |
| Jamie Roger @JamieRoger8 @mayanorthen I live about two hours from Boston, if you travel this way, we have a spare bedroom thats available. #patientchat #community |
| Ody @OdyO11 A4: Tell them to trust their own body perception. If you feel that something is not right, keep searching for answers. #patientchat |
 | Brad C @bcowdin34 RT @TuftsB: A3 - Best thing I did at diagnosis was to not go into fetal position, say "why me?"and hide that I had cancer. I reached out, got valuable information that I could use to ask pertinent questions to my oncologist #patientchat |
| Patient Chat @patientchat T5: How can @patientchat and @power4patients help you be more empowered in 2019? #patientchat https://t.co/QwHdsA4jBS |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How can @patientchat and @power4patients help you be more empowered in 2019? #patientchat https://t.co/QwHdsA4jBS |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey <runs in MAD late> HAAAIIIII! Whaddi miss? <reads furiously> #patientchat |
| Jamie Roger @JamieRoger8 Keep doing #patientchat. Maybe on the off weeks we can do the open discussion like we did a few months ago. That would keep the discussion going every week and maybe some people who don't always remember to join will be present. #patientchat |
| Heather McCullen @H_SalemOaks RT @JamieRoger8: Keep doing #patientchat. Maybe on the off weeks we can do the open discussion like we did a few months ago. That would keep the discussion going every week and maybe some people who don't always remember to join will be present. #patientchat |
| Patient Empowerment Network @power4patients @BreastDense @patientchat Love this. I'm going to start today! #patientchat |
 | Dahlborg HealthCARING Leadership Group (DHLG) ♥️ @tdahlborg RT @TuftsB: A3 - Best thing I did at diagnosis was to not go into fetal position, say "why me?"and hide that I had cancer. I reached out, got valuable information that I could use to ask pertinent questions to my oncologist #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 Ah where? DEFINITELY going to work on the road trip coming your way to meet up! #patientchat |
| Jamie Roger @JamieRoger8 @MightyCasey It's been a good chat, hope you are able to catch up! #patientchat Nice to see you! |
| Ody @OdyO11 RT @Rose_of_Sharon8: |
| Your GPS Doc, LLC @yourgpsdoc T5: Keep doing what you're doing! You provide a wealth of useful information and #patientchat is a great way to connect with others, feel empowered, and get great tips. #patientchat |
| Patient Chat @patientchat RT @BreastDense: |
| Maya Northen Augelli @mayanorthen @JamieRoger8 by the way you can DM that if you don't want to tweet out your home town to everyone lol. #patientchat |
 | Cameron J. Navy @navy_cameron RT @BarbyIngle: T4. To inspire others to be empowered in their health, I live my best life and follow any advice myself that I would give them. Its important to be the chief of staff of your medical team #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen In CT, along the shoreline. #patientchat |
| abridged @abridgedtheblog T5: #patientchat I appreciate the @patientchat and @power4patients community because it connects providers and patients - a unique space for open dialog and info sharing. |
| Barby Ingle Official @BarbyIngle T5. Continue topical chats and convos to share knowledge, motivation, determination and support for the health community. #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 Ah! That's excellent, that's an area I'd love to visit! #patientchat |
 | Mary P. Pettigrew @pettigrew66 RT @patientchat: T4: T4: What can you do to encourage friends, family, and others to be more empowered in their health? #patientchat https://t.co/Wfl3CFfwCw |
| Maya Northen Augelli @mayanorthen A5: YES! The community, the chats, the support and motivation are amazing! #patientchat |
| abridged @abridgedtheblog T5: #Patientchat this might exist but if not, I would love to see the group crowdsource some favorite resources (creating documents like favorite tracking apps, or best practices for appointments - both or and provider side) |
| Ody @OdyO11 RT @yourgpsdoc: T3: T3: Learn all that you can about your illness. You will be the expert and are just as important as the doctor and others on your medical team. Ask questions. Engage with other patients and advocates. Know that you are not alone. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey CLIFF'S NOTES FROM YOURS TRULY: A1: <have you MET me? I'm kinda empowered, on blast, 24/7/365> A2: Stickin' w/teaching clinical team participatory medicine; also stickin' w/2018 #keto + #swimming regimen A3: Find your evidence-based #epatient tribe! #patientchat |
| Kevin Freiert @K_SalemOaks T5: Partner with other organizations. There is a wonderful movement going on, let's avoid fragmentation of effort. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @clara_health |
| Bob Tufts @TuftsB A5 - it is difficult and expensive for patients to attend conferences. When you or members of the community go, act as our eyes and ears at these events, make sure thst the patient voice is heard. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @K_SalemOaks: T5: T5: Partner with other organizations. There is a wonderful movement going on, let's avoid fragmentation of effort. #patientchat #pinksocks @salemoaks @S4PM @savvy_coop @clara_health |
 | Annette McKinnon @anetto T5 It might be good to have a chat about the #NextSteps. What you do after you are comfortable with your own disease and want to change aspects of the health care and health delivery system. #patientchat |
| Patient Chat @patientchat @abridgedtheblog We created a Path to Empowerment that shares these resources in our Empowered #patientchat Facebook group. You can join here: https://t.co/WanYPmwChh :) |
| Your GPS Doc, LLC @yourgpsdoc @TuftsB Excellent point! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Cliff's Notes Part Deux: A4: Uhhh, that's kinda what I do all day, ever' day, on blast. Ref A1 😜 A5: Since @power4patients lets me write for their site ... WE GOT THIS! #patientchat |
| abridged @abridgedtheblog RT @patientchat: @abridgedtheblog We created a Path to Empowerment that shares these resources in our Empowered #patientchat Facebook group. You can join here: https://t.co/WanYPmwChh :) |
| Patient Chat @patientchat @anetto Great idea! Will keep in mind for 2019 #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| abridged @abridgedtheblog Ct: thanks for a great #patientchat, hope everyone’s 2018 is off to a good start. |
| Patient Empowerment Network @power4patients @abridgedtheblog We created a resource guide "The Path to Patient Empowerment". It's meant to be a guide that we keep adding to. Let us know what you think and what we should add: https://t.co/Dj6LOCcUkS #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey More context on A3: take a look at @healthhashtags to see where condition community for your new dx gathers on Twitter. Look at who are most vocal in patient community in that condition community. Also, DO NOT trust Facebook re patient communities. <see next for why> #patientchat |
| Your GPS Doc, LLC @yourgpsdoc CT: There are many ways to be empowered- ask questions, learn all you can about your disease, recognize you are the expert for your body, connect with others, partner with healthcare professionals who listen to you and value your input. #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: More context on A3: More context on A3: take a look at @healthhashtags to see where condition community for your new dx gathers on Twitter. Look at who are most vocal in patient community in that condition community. Also, DO NOT trust Facebook re patient communities. <see next for why> #patientchat |
| Ody @OdyO11 #patientchat I learned today that #patientchat takes place at this time. :) Hello everybody! Nice to meet you here! |
| Patient Chat @patientchat CT: In 2019 we are thinking of starting something new for #patientchat to keep empowerment in mind in between chats - a book club! POLL: Would you be up for a #patientchat book club? |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey More on A3: in re Facebook, their #dataprivacy f*&kery, specific to health/patient data shared in Closed groups, has put people's data out in the wild/open market, disclosing PHI without consent, for $$, since jump. So NOT FACEBOOK. #patientchat #cyberwoke |
| Bob Tufts @TuftsB CT - No matter what disease we have , we all have experiences regarding care ,cost and comfort that can be shared and help others in need. Pay it forward. #patientchat |
| Patient Chat @patientchat @OdyO11 Hi there! We're here every other Friday at 1pm ET | 10am PT - hope to see you again! #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime. |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey HMU if you want more info. Follow #cyberwoke to watch ongoing discussion of issue, and our search for solutions. #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour. |
| Your GPS Doc, LLC @yourgpsdoc @patientchat As long as the book is available on Audible! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat Thanks for another awesome #patientchat! |
| Patient Chat @patientchat We hope you all can join us again in two weeks for the next #patientchat on January 25th https://t.co/sbIlCbBRw0 |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy WOW. Stumbled upon the tailend of #patientchat and found this gem. Love it and widely applicable advice for everyone regardless of health status methinks. #QoL #selfcare |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
 | John Novack @J2Novack RT @BreastDense: |
| John Novack @J2Novack RT @patientchat: We hope you all can join us again in two weeks for the next #patientchat on January 25th https://t.co/sbIlCbBRw0 |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stage4kelly: T3: T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
| Maya Northen Augelli @mayanorthen LOVE it!! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: We hope you all can join us again in two weeks for the next #patientchat on January 25th https://t.co/sbIlCbBRw0 |
| Jamie Roger @JamieRoger8 Thank you #patientchat @patientchat @power4patients for todays chat and starting off the new year #Empowered Hope everyone is inspired to take control of the new year, and everything that it brings your way. |
 | Vera Rulon FAHIMA @vrulon #patientchat sorry to have missed the chat today! Had a client call I needed to attend. Looking forward to a recap!!! @patientchat |
 | Laura Sweet 🌊🏳️🌈🏳️⚧️🦬🐾 @laurasweetjane RT @stage4kelly: T3: T3: learn everything you can about your disease. Your doc may be an expert in medicine but you’re an expert in you.if it’s advanced cancer, and you see a general onc, you may know more about your particular type of cancer than she does. #patientchat |
 | one person @PatientObservr RT @beth_morton: Hello! Beth, tweeting/lurking from frigid Vermont. As 2019 starts, definitely rethinking how I can empower my patient experience. #chronicmigraine #patientchat |
#patientchat content from Twitter.