#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
Profile | Tweet |
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![]() | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of… |
![]() | Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
![]() | Patient Chat @patientchat Happy Friday #patientchat’ers! I’m Kara from @power4patients and I’m excited about today’s chat with @DHealthHub |
![]() | Alexa Jett 🦋 @ohhiialexa Hello! I am Alexa Jett joining in on my first #patientchat. I am a thyroid cancer survivor, blogger, and AYA (Adolescent/Young Adult) cancer advocate. Thank you so much for having me! |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: Happy Friday #patientchat’ers! I’m Kara from @power4patients and I’m excited about today’s chat with @DHealthHub |
![]() | Your GPS Doc, LLC @yourgpsdoc @patientchat Hi! I’m Nicole Rochester- pediatrician, former caregiver to my dad, and CEO of @yourgpsdoc. It’s been a while and I may not be able to stay until the end but I’m thrilled to be here! #patientchat |
![]() | Patient Chat @patientchat We’re excited to have guest @DHealthHub here, who is dedicated to promoting cultural competence in healthcare #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with ot… |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: We’re excited to have guest @DHealthHub here, who is dedicated to promoting cultural competence in healthcare #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer Hi, I’m Carly! I’m also an #AYA #thyroidcancer survivor! #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: You can find info on today’s Empowered #patientchat with @DHealthHub here: https://t.co/NVSLPsTrqf https://t.co/vHw46SPuIK |
![]() | Patient Chat @patientchat You can find out more about @DHealthHub and their work here: https://t.co/lwBYHRZAtI #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: You can find out more about @DHealthHub and their work here: https://t.co/lwBYHRZAtI #patientchat |
![]() | Patient Empowerment Network @power4patients @carlyflumer Hi Carly! Happy Friday :) #patientchat |
![]() | Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
![]() | Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
![]() | Alan Brewington @abrewi3010 Alan here. Work is crazy so if I talk more nonsense than usual that’s why. Good news, almost 2 months without any heart procedures. Watch says I’m still in rythym. #patientchat |
![]() | Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/fs20NR954d #patientchat |
![]() | Diverse Health Hub @DHealthhub @patientchat Hello, my name is Nykema from @DHealthhub and we are thrilled to be a part of this #patientchat today. Our goal is removing #healthinequities in #healthcare. We @DHealthhub and many like-minded orgs like @power4patients have our work cut out for us. |
![]() | Patient Chat @patientchat RT @DHealthhub: @patientchat Hello, my name is Nykema from @DHealthhub and we are thrilled to be a part of this #patientchat today. Our g… |
![]() | Patient Chat @patientchat Today's #patientchat topic is Disparities in Care: Equality vs. Equity https://t.co/NVSLPsTrqf https://t.co/Bk3EwBEXXY |
![]() | Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @DHealthhub: @patientchat Hello, my name is Nykema from @DHealthhub and we are thrilled to be a part of this #patientchat today. Our g… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Hey guys! Casey Q here, loudmouthed troublemaker #epatient In a complete flurry prepping for #HDPalooza next week where I'm part of #BeLikeLight brigade talking patient data privacy in age of surveillance capitalism. Equity/equality is part of that work, too! #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpf… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: Today's #patientchat topic is Disparities in Care: Equality vs. Equity https://t.co/NVSLPsTrqf https://t.co/Bk3EwBEXXY |
![]() | Carly Flumer (she/her) @carlyflumer @power4patients Hi Andrea!! #patientchat |
![]() | Alexa Jett 🦋 @ohhiialexa @MightyCasey This is fascinating! I look forward to hearing your perspectives. #patientchat |
![]() | Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
![]() | Pamela Walters @pammor123 Hi #patientchat! Thank you for hosting this Twitter chat! |
![]() | Patient Chat @patientchat T1: What does health disparity mean to you? #patientchat https://t.co/VjhGXeeTNw |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @DHealthhub @patientchat @power4patients Hey there! Interested in what you're doing, will check out link in bio! #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T1: What does health disparity mean to you? #patientchat https://t.co/VjhGXeeTNw |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: T1: What does health disparity mean to you? #patientchat https://t.co/VjhGXeeTNw |
![]() | JeffD @PatientPower2 @patientchat Hi I'm Jeff and this is my first #patientchat. I started a blog called Power to the Patient, which discusses unmet needs of patients, that was inspired by my wife's struggles with various autoimmune conditions. |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa If you wanna know about #BeLikeLight, follow @BeLikeLight, and check out site link: https://t.co/3jhkeox5Bo #patientchat |
![]() | Alexa Jett 🦋 @ohhiialexa A1: That the needs of population groups, especially significantly sized ones, are being actively ignored or forgotten about. Usually lack of clinical trials are involved which means a higher mortality rate. We deserve better! #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @DubinMktgStrat @patientchat Autoimmune is the devil - so many intersecting issues, too little clinical understanding of many of 'em. #patientchat |
![]() | Diverse Health Hub @DHealthhub T1: Preventable differences in the burden of disease injury or violence to patients #patientchat |
![]() | Patient Empowerment Network @power4patients @DubinMktgStrat Hi Jeff! Welcome to the chat. Looking forward to checking out your blog. Take a look at ours as well https://t.co/SJawpfQlXF #patientchat |
![]() | Alan Brewington @abrewi3010 A1 heal disparity means to me that quality of life is linked to social determinants and income instead of a simple love of all humans. #patientchat |
![]() | JeffD @PatientPower2 @patientchat One thing I think of is how much quicker doctors dismiss women's symptoms as psychological vs. men's. #patientchat |
![]() | Alexa Jett 🦋 @ohhiialexa RT @DubinMktgStrat: @patientchat One thing I think of is how much quicker doctors dismiss women's symptoms as psychological vs. men's. #pat… |
![]() | Diverse Health Hub @DHealthhub T1: Health disparities are gaps in health outcomes or health access among different populations #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat A health disparity means unequal access to care because of something either out of or within a person’s control, such as race, ethnicity, social economic status, geographic region, education level, etc. #patientchat |
![]() | Melissa VanHouten @melissarvh Inequalities among different groups in healthcare (systemic, access, outcomes, etc.). #PatientChat |
![]() | Patient Empowerment Network @power4patients RT @DHealthhub: T1: Health disparities are gaps in health outcomes or health access among different populations #patientchat |
![]() | Pamela Walters @pammor123 #patientchat A health disparity to me means some people are not getting the care they need and deserve, due to circumstances beyond their control. |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa And if you want a Mighty Mouth POV (not speaking for Light Collective, this all me) on data privacy in age of surveillance economy, here it is: https://t.co/7EFTBC4pQ1 #patientchat |
![]() | Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat A health disparity means unequal access to care because of something either out of or within a person’s contr… |
![]() | Diverse Health Hub @DHealthhub RT @melissarvh: Inequalities among different groups in healthcare (systemic, access, outcomes, etc.). #PatientChat |
![]() | Diverse Health Hub @DHealthhub RT @pammor123: #patientchat A health disparity to me means some people are not getting the care they need and deserve, due to circumstances… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa Also, why I no longer participate on Facebook: https://t.co/6oAuQofhkX #patientchat |
![]() | Barbara Dunn @BarbaraADunn @DHealthhub T1. Health Disparity is being treated differently. When I had a back problem 30lbs heavier, there was only a discussion of losing weight. When I lost the 30 lbs, the discussion was that I had a slipped disk. Guess how long my slipped disk went untreated? You got it. #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @carlyflumer: @patientchat A health disparity means unequal access to care because of something either out of or within a person’s contr… |
![]() | JeffD @PatientPower2 @MightyCasey @patientchat I agree. Some very smart doctors get stumped by autoimmune conditions. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T1: Health disparities are differences in disease burden or outcomes between individuals of different gender, race, ethnicity, socioeconomic status, education, sexual orientation, geographic location, etc. #patientchat |
![]() | Mary MACK @MaryOCMack disparities in health and healthcare, to me, means that human beings face barriers to health and care based mostly on financial resources #patientchat |
![]() | Patient Empowerment Network @power4patients RT @yourgpsdoc: T1: Health disparities are differences in disease burden or outcomes between individuals of different gender, race, ethnici… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: Disparity is anything that prevents you, as a member of an identifiable group (race, economic, gender, all of the above, player to be named later) from getting the evidence-base healthcare you need, for anything. #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @MaryOCMack: disparities in health and healthcare, to me, means that human beings face barriers to health and care based mostly on fina… |
![]() | Patient Chat @patientchat Topic 2 (T2:) coming up... #patientchat https://t.co/4BvxdIp3cS |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @yourgpsdoc: T1: Health disparities are differences in disease burden or outcomes between individuals of different gender, race, ethnici… |
![]() | Alan Brewington @abrewi3010 A1 health disparity is how many politicians/leaders justify paternalistic medicine. They believe the only solution is a top down approach to reform, not a everyone included approach #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T1: Example is the abysmal rate of maternal mortality among women of color. #patientchat |
![]() | Gnome 😷 💉(is not still around) @WildeLakeGnome And I should introduce myself... Hope. Two times cancer with a stroke and random idiopathic nuero stuff over the years. Huge believer in finding doctors that mesh with you and treat you as a whole person, not disease #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: Topic 2 (T2:) coming up... #patientchat https://t.co/4BvxdIp3cS |
![]() | Vera Rulon FAHIMA @vrulon Hello #patientchat! Better late than never. Vera here from NY! |
![]() | Patient Chat @patientchat T2: What are some examples of health disparities? How do they play a role in healthcare? #patientchat https://t.co/4hc8HX1Geu |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @MightyCasey: A1: Disparity is anything that prevents you, as a member of an identifiable group (race, economic, gender, all of the abov… |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T2: What are some examples of health disparities? How do they play a role in healthcare? #patientchat https://t.co/4hc8HX1… |
![]() | Alexa Jett 🦋 @ohhiialexa A2: In the #AYACancer community, this would mean lack of access to care that addresses our specific issues. Like fertility, psycho-social, education, and long term side effects. This should be standard. #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: T2: What are some examples of health disparities? How do they play a role in healthcare? #patientchat https://t.co/4hc8HX1… |
![]() | Patient Chat @patientchat RT @ohhiialexa: A2: In the #AYACancer community, this would mean lack of access to care that addresses our specific issues. Like fertility,… |
![]() | Pamela Walters @pammor123 @patientchat T2: Living in a rural area, lack of transportation and provider options. #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer @ohhiialexa LOVE this!! #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T2: Increased maternal mortality among women of color, decreased use of pain medication in children of color, tendency to blame symptoms on mental illness in women... I could go on and on... They lead to unnecessarily poor outcomes. #patientchat |
![]() | Alexa Jett 🦋 @ohhiialexa RT @pammor123: @patientchat T2: Living in a rural area, lack of transportation and provider options. #patientchat |
![]() | Diverse Health Hub @DHealthhub @patientchat T2: Disparities in healthcare are often viewed through the lens of race and ethnicity, but there are many facets #patientchat Examples: socioeconomic statues, age, help graphs, language, gender, disability status, citizenship status, sexual identity and orientation |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care community to communicate in #plainlanguage no matter how health literate the patient is! Communication matters in healthcare. PERIOD. #patientchat |
![]() | Mary MACK @MaryOCMack T2: There are so many examples. One example is that those in need of an organ transplant will be denied listing, if the financial criteria is not met. Everyone, however, is encouraged to be a donor #patientchat |
![]() | Patient Empowerment Network @power4patients @patientchat Here's an example from our blog: "Is Treatment Adherence & Socioeconomic Disparities in #Myeloma Creating Roadblocks to Best Care?" https://t.co/j24oPtxWzo @DHealthhub #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Patient Chat @patientchat RT @DHealthhub: @patientchat T2: Disparities in healthcare are often viewed through the lens of race and ethnicity, but there are many face… |
![]() | Vera Rulon FAHIMA @vrulon T1: Health disparity - an unequal level of healthcare based on one's socioeconomic status or race/ethnicity, or other. Includes the impact of social determinants that contribute. #patientchat |
![]() | Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Patient Chat @patientchat RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | J.B. et al., ✍️🏻 @negronjb RT @patientchat: T2: What are some examples of health disparities? How do they play a role in healthcare? #patientchat https://t.co/4hc8HX1… |
![]() | Alexa Jett 🦋 @ohhiialexa RT @MaryOCMack: T2: There are so many examples. One example is that those in need of an organ transplant will be denied listing, if the fi… |
![]() | Alexa Jett 🦋 @ohhiialexa RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @DHealthhub: @patientchat T2: Disparities in healthcare are often viewed through the lens of race and ethnicity, but there are many face… |
![]() | Diverse Health Hub @DHealthhub RT @power4patients: @patientchat Here's an example from our blog: "Is Treatment Adherence & Socioeconomic Disparities in #Myeloma Creating… |
![]() | J.B. et al., ✍️🏻 @negronjb RT @patientchat: T1: What does health disparity mean to you? #patientchat https://t.co/VjhGXeeTNw |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: @patientchat Here's an example from our blog: "Is Treatment Adherence & Socioeconomic Disparities in #Myeloma Creating… |
![]() | Your GPS Doc, LLC @yourgpsdoc @carlyflumer @patientchat AGREE! #patientchat |
![]() | Melissa VanHouten @melissarvh The term does not necessarily include the reasons for the disparity so it can mean any area where there is disparity: A greater % of women have osteoporosis than men; black women are more likely to die from breast cancer than white women. #PatientChat |
![]() | Mary MACK @MaryOCMack 1 in 4 deceased organ donors never could have received if tables had been turned. #patientchat |
![]() | Patient Chat @patientchat Topic 3 (T3:) coming up... #patientchat |
![]() | JeffD @PatientPower2 @power4patients Thanks Alexa. I will check out your blog. Mine is at https://t.co/OLc6kinlbM. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: I feel like whole US healthcare system is one big disparity. YMMV on crank. Since even well-insured people can wind up down a rabbit hole with poor care coordination, episodic nature of our system. All about billing, not so much about actual care. #patientchat |
![]() | Vera Rulon FAHIMA @vrulon T2: Clinical trials - we also need to consider physiological differences, make sure participants reflect diversity. Example: pain meds used for the elderly, genetic variations in the treatment of asthma, blood thinner meds & enzyme metabolization in African Americans #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @vrulon: T2: Clinical trials - we also need to consider physiological differences, make sure participants reflect diversity. Example: pa… |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @MightyCasey: A2: I feel like whole US healthcare system is one big disparity. YMMV on crank. Since even well-insured people can wind up… |
![]() | Patient Chat @patientchat T3: What is the difference between health equality and health equity? #patientchat https://t.co/MhDFsxS5Jk |
![]() | Barbara Dunn @BarbaraADunn @melissarvh T2. Individuals with Mental Health issues #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: T3: What is the difference between health equality and health equity? #patientchat https://t.co/MhDFsxS5Jk |
![]() | Alexa Jett 🦋 @ohhiialexa RT @vrulon: T2: Clinical trials - we also need to consider physiological differences, make sure participants reflect diversity. Example: pa… |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T3: What is the difference between health equality and health equity? #patientchat https://t.co/MhDFsxS5Jk |
![]() | Alexa Jett 🦋 @ohhiialexa A3: A way I look at this is access to resources in your region. My area has too few mental health resources for the population, and that actually impacts our mortality rate. Mental health IS health! #patientchat |
![]() | Alan Brewington @abrewi3010 A2 thanks to President Orangeman I think politics is turning into a health disparity. Only those within a political party deserve care is his standard. #patientchat |
![]() | JeffD @PatientPower2 @vrulon @ohhiialexa And I'm not sure how much these physiological differences are being taught in medical school. I also think some we're still learning about. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T3: Health equality is everyone receiving the same care. Health equity is each person receiving the care and resources that they need. #patientchat |
![]() | A.n.n. @fireflyann RT @patientchat: Join us for an Empowered #patientchat "Disparities in Care: Equality vs Equity" w/ @DHealthHub on Friday 2/7 10amPT | 1pmE… |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat Equity is what patients need to be healthy. Equality is everyone actually getting those needs met at an equal level. #patientchat |
![]() | Diverse Health Hub @DHealthhub T3: Health equity is a process and health equality is an outcome of that process Health Equality= sameness Health Ineqaulity= unfair Health Equity= fairness Health Inequity= unfair or unjust #patientchat |
![]() | Melissa VanHouten @melissarvh Inequality is just a gap, an uneven distribution of something, whereas inequity implies an unfairness or injustice of some sort. We could redirect efforts/resources to achieve equity, perhaps. #PatientChat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3: Same equality/equity metric as overall societal one. "Everyone can get care" is POV of system side, but where rubber meets road? Not so much. "Go to the ED" is not effective primary care. Image: @IISCBlog #patientchat https://t.co/Tcl0GUaCgV |
![]() | Alan Brewington @abrewi3010 A3 the value our culture puts on quality of life vs a market based health economy #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @DHealthhub: T3: Health equity is a process and health equality is an outcome of that process Health Equality= sameness Health Ineqau… |
![]() | Diverse Health Hub @DHealthhub T3: Understanding the difference between health equality and health equity is important to ensure resources are directed appropriately #patientchat |
![]() | Vera Rulon FAHIMA @vrulon T3: Nice visual expressing the difference between equity vs equality. Equality doesn't necessarily mean equity. #patientchat https://t.co/i0tdpZdSjd https://t.co/azlTgjP4TE |
![]() | Patient Empowerment Network @power4patients @patientchat A3: As they say, a picture says 1000 words & the pic used in #patientchat promo sums this ? up really well. Equality means everyone receives the same care, equity is helping people get whatever they need to achieve their best health https://t.co/C5wUs75vU7 |
![]() | Patient Empowerment Network @power4patients RT @DHealthhub: T3: Understanding the difference between health equality and health equity is important to ensure resources are directed ap… |
![]() | Diverse Health Hub @DHealthhub RT @yourgpsdoc: T3: Health equality is everyone receiving the same care. Health equity is each person receiving the care and resources that… |
![]() | Vera Rulon FAHIMA @vrulon @MightyCasey @IISCBlog Ha! Just posted the same image. #patientchat (great minds) |
![]() | Patient Empowerment Network @power4patients RT @DHealthhub: T3: Health equity is a process and health equality is an outcome of that process Health Equality= sameness Health Ineqau… |
![]() | Inspire @InspireIsHealth RT @patientchat: T3: What is the difference between health equality and health equity? #patientchat https://t.co/MhDFsxS5Jk |
![]() | Mary MACK @MaryOCMack T3 Equality is everyone is treated the same. Equity would include needed accommodations to reach an equal outcome. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @power4patients: @patientchat A3: As they say, a picture says 1000 words & the pic used in #patientchat promo sums this ? up really wel… |
![]() | A.n.n. @fireflyann And even for people who are educated, speaking at a freshman in high school level can make absorbing information easier - especially in high stress moments. or "talk so a teenager could understand" |
![]() | Pamela Walters @pammor123 @patientchat T3: I wasn't really too sure about this, so it's nice to learn from everyone's responses! #patientchat |
![]() | Patient Chat @patientchat Topic 4 (T4:) coming up... #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer @pammor123 @patientchat I learned it in school, but I had to look it up myself! Shows how important it is. :) #patientchat |
![]() | Patient Chat @patientchat T4: What can be done to achieve health equity? What challenges need to be addressed? #patientchat https://t.co/Kd2ZPTuOOy |
![]() | Douglas Michael Massing 🌈 ...but what do I know? @T2DRemission @MightyCasey I’m reminded of @ZDoggMD’s description of EHR systems as glorified cash registers #PatientChat |
![]() | Alexa Jett 🦋 @ohhiialexa A4: We need EVEN MORE room for patient feedback and advocates. While I while I think this has improved, there is a LONG way to go. AYA’s are still not recognized as an actual group by some areas of medicine. #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T4: What can be done to achieve health equity? What challenges need to be addressed? #patientchat https://t.co/Kd2ZPTuOOy |
![]() | Diverse Health Hub @DHealthhub RT @patientchat: T4: What can be done to achieve health equity? What challenges need to be addressed? #patientchat https://t.co/Kd2ZPTuOOy |
![]() | Alan Brewington @abrewi3010 A3 I think new payment models are moving away from equity and going into an actuarially complicated equality based method. Being sick doesn’t matter as long as services are provide equally. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @T2DRemission @ZDoggMD He's right - they're a ledger system, not a clinical management system. #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat I would say ask patients what they need and don’t assume. Communication is already lacking, so find ways to bring the patient into the conversation. Patient-centered healthcare is where it’s at!! #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T4: First we have to acknowledge the problem, then institute far-reaching policies to address it. We won’t make progress without helping front-line HCPs see their own implicit biases (and own up to their explicit ones). #patientchat |
![]() | Melissa VanHouten @melissarvh So many challenges - socioeconomic, racial and ethnic, cultural, geographical, & others. Need to address individual circumstances, search for reasons behind the inequities (finances, prejudices, education, etc.), & develop genuine solutions for the root cause. #PatientChat |
![]() | Pamela Walters @pammor123 T4: Provider education, continued discussion/awareness around this issue so people understand that lives are at stake. #patientchat |
![]() | Diverse Health Hub @DHealthhub T4: Community-based participatory research to support cross-cultural partnerships We have the big challenge of overcoming biases ahead of us #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: Stand back, imma step on this land mine. We need actual, national, universal health coverage. Everybody in, nobody out. No trap doors, no surprise billing, no co-pays, no f'ing deductibles. If you wanna be special, buy extra-coverage insurance. But NOT required #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @carlyflumer: @patientchat I would say ask patients what they need and don’t assume. Communication is already lacking, so find ways to b… |
![]() | Diverse Health Hub @DHealthhub @patientchat T3: #Clinicaltrial participation in order to impact broader populations #patientchat |
![]() | Patient Empowerment Network @power4patients @patientchat There was some great research at #ASH19 looking at what happens when race-associated #myeloma risks are prioritized. In order to overcome disparities we need to make it a priority https://t.co/HnRgQkfeUP @DHealthhub #patientchat |
![]() | Alan Brewington @abrewi3010 A4 vote, vote, and vote again. This is especially true for local elections. Equity is an easier sell on a local level than national. Unfortunately national elections are more dynamic which draws interest. #patientchat |
![]() | Patient Empowerment Network @power4patients RT @abrewi3010: A4 vote, vote, and vote again. This is especially true for local elections. Equity is an easier sell on a local level than… |
![]() | Diverse Health Hub @DHealthhub @patientchat T3: Talk to other community partners and members who represent the population or communities of interest #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey OMFG I love this. HT @DHealthHub #s4pm #patientchat #clinicalresearch #clinicaltrials |
![]() | Diverse Health Hub @DHealthhub RT @power4patients: @patientchat There was some great research at #ASH19 looking at what happens when race-associated #myeloma risks are pr… |
![]() | laminopathies support group @laminopathies T4. For-Profit mechanisms and motives sabotage equality and equity. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: @patientchat There was some great research at #ASH19 looking at what happens when race-associated #myeloma risks are pr… |
![]() | Alexa Jett 🦋 @ohhiialexa RT @laminopathies: T4. For-Profit mechanisms and motives sabotage equality and equity. #patientchat |
![]() | Alan Brewington @abrewi3010 A4 we need to invade conferences and classrooms with health equity ideas and methodology. Take the sting out of the lofty idea of health equity. Make it real. #patientchat |
![]() | Patient Empowerment Network @power4patients RT @abrewi3010: A4 we need to invade conferences and classrooms with health equity ideas and methodology. Take the sting out of the lofty i… |
![]() | Vera Rulon FAHIMA @vrulon T4: Health equity requires a complete change in culture, confronting #unconsciousbias, and understand the unique differences in cultures. #patientchat |
![]() | Diverse Health Hub @DHealthhub RT @vrulon: T4: Health equity requires a complete change in culture, confronting #unconsciousbias, and understand the unique differences in… |
![]() | Alan Brewington @abrewi3010 RT @MightyCasey: A4: Stand back, imma step on this land mine. We need actual, national, universal health coverage. Everybody in, nobody ou… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @abrewi3010: A4 we need to invade conferences and classrooms with health equity ideas and methodology. Take the sting out of the lofty i… |
![]() | Patient Empowerment Network @power4patients RT @vrulon: T4: Health equity requires a complete change in culture, confronting #unconsciousbias, and understand the unique differences in… |
![]() | Beth Morton @beth_morton Adding to all the other great answers, disparity can come from the stigma of disease. And stigma obviously comes from the context of the stereotypes of who gets a disease and the worth those people have in funding/research/treatment. #PatientChat |
![]() | Patient Empowerment Network @power4patients RT @beth_morton: Adding to all the other great answers, disparity can come from the stigma of disease. And stigma obviously comes from the… |
![]() | Vera Rulon FAHIMA @vrulon @abrewi3010 Agree. Make it part of the dialogue. #patientchat |
![]() | Alexa Jett 🦋 @ohhiialexa RT @beth_morton: Adding to all the other great answers, disparity can come from the stigma of disease. And stigma obviously comes from the… |
![]() | Patient Chat @patientchat Topic 5 (T5:) coming up... #patientchat |
@TamLobban RT @power4patients: @patientchat There was some great research at #ASH19 looking at what happens when race-associated #myeloma risks are pr… | |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @power4patients: @patientchat There was some great research at #ASH19 looking at what happens when race-associated #myeloma risks are pr… |
![]() | Your GPS Doc, LLC @yourgpsdoc Yes! 100% #patientchat |
![]() | Patient Chat @patientchat T5: Do you know of any successful initiatives that are reducing health disparities? #patientchat https://t.co/aVEszzxPSv |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T5: Do you know of any successful initiatives that are reducing health disparities? #patientchat https://t.co/aVEszzxPSv |
![]() | Alexa Jett 🦋 @ohhiialexa A5: I’m going to call the forming of AYA clinics within cancer hospitals a great initiative. These are a safe havens for #AYACancer patients to openly discuss problems and get specific solutions. #patientchat |
![]() | Patient Chat @patientchat #patientchat |
![]() | Alan Brewington @abrewi3010 A4 we need to get out of our silos. Study what it’s like to go thru our healthcare system as a woman, gay, trans, or POC. What’s everyone story, not just ours. In addition, study cystic fibrosis vs rheum vs narcolepsy. #patientchat |
![]() | A.n.n. @fireflyann #PatientChat @manjuggm @EnvRhet @mending_stories |
![]() | Your GPS Doc, LLC @yourgpsdoc T5: Hmm... I’m sure there are some... #patientchat https://t.co/JmlONWMMZK |
![]() | Beth Morton @beth_morton I'll make a pitch for recognizing #stigma again. In the #migraine community, we talk about it a lot because it effects the way the disease is perceive & therefore, funding for innovation and HCPs who want to go into #headache medicine. #PatientChat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @patientchat A4 Ask the people who need the services what they need - separate responses from those who are on the outside of a disease. And that includes healthcare providers - they have related info, but unless they live a challenge, it isn't their challenge. #PatientChat |
![]() | Heather McCullen @H_SalemOaks RT @beth_morton: I'll make a pitch for recognizing #stigma again. In the #migraine community, we talk about it a lot because it effects the… |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T5: Do you know of any successful initiatives that are reducing health disparities? #patientchat https://t.co/aVEszzxPSv |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat I blog for a few orgs who are looking to bring awareness to #thyroidcancer! Awareness is the first step in bringing about equality! #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: OK, stand back again, this time it's a thread! First, here's PubMed re cancer disparity reduction in SC (2013) https://t.co/gpHtZDjnKz #patientchat |
![]() | Carly Flumer (she/her) @carlyflumer @patientchat Also, @_OurOdyssey_ is bringing awareness to all of us zebras (#chronic and #rare)!! #tribelife #patientchat |
![]() | Alan Brewington @abrewi3010 A5 you have to give credit to the original @StanfordMedX group, @nickdawson @larrychu @HugoOC @itsthebunk, Sara, Britt and so many more. They brought health equity/everyone included to the conversation originally #patientchat |
![]() | Patient Empowerment Network @power4patients RT @abrewi3010: A5 you have to give credit to the original @StanfordMedX group, @nickdawson @larrychu @HugoOC @itsthebunk, Sara, Britt and… |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @patientchat A5 Studies of Native Americans with diabetes. They are a group that seem to have a disproportionate number of diabetics. #PatientChat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: Next, here's @Health_Affairs on evaluating disparity reduction strategies involving social determinants (2015) https://t.co/3aPTfc1gzB #patientchat #SDOH |
![]() | Vera Rulon FAHIMA @vrulon T5: Raising awareness is key. The chief medical officer at Pfizer tells the story of speaking at a church in the AA community about diabetes. One person came to her later and said "you were right, I do have a touch of sugar" Reaching one person at a time. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: Then we have PubMed on the why of evaluating disparities research (2019) https://t.co/Fv0E8XvILJ #patientchat #science #research #SDOH |
![]() | Diverse Health Hub @DHealthhub T5: @IFD_AHA https://t.co/2rFZNrerpi #patientchat |
![]() | Vera Rulon FAHIMA @vrulon @carlyflumer @patientchat Agree and just posted something about that as well. #patientchat |
![]() | Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
![]() | JeffD @PatientPower2 @vrulon @power4patients Dr. Jerome Groopman in his book How Doctor's Think (https://t.co/JMxrE4GjMO) writes that med students need to be taught how their biases creep into their decision making. #patientchat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @DHealthhub: T3: Health equity is a process and health equality is an outcome of that process Health Equality= sameness Health Ineqau… |
![]() | Vera Rulon FAHIMA @vrulon T5: Are there initiatives that show some data on improvement in equity? Am curious and would think this would be quite important. #patientchat |
![]() | Melissa VanHouten @melissarvh T5 Successful initiatives? Well, that sounds large-scale, but smaller efforts can help, too. Grps like Angel Flight that provide transportation 2 those in remote area or financial need, training programs 4 docs, & building a clinic in a small community, can all help. #PatientChat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: Next up, Advancing Health Equity, @AdvHealthEquity - they've got some input on best practices https://t.co/iR0s0t20wx #patientchat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @yourgpsdoc @carlyflumer @patientchat Hi!!! So great to see you here. A real treat. I hope all is well. #PatientChat |
![]() | Pamela Walters @pammor123 @patientchat T5: #patientchat Better ensures all of the individual's physical and mental needs are being met, and improving quality of life. Also building trust in the system, so people seek help when they need it. |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: T5 Successful initiatives? Well, that sounds large-scale, but smaller efforts can help, too. Grps like Angel Flight that pr… |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @vrulon: T5: Are there initiatives that show some data on improvement in equity? Am curious and would think this would be quite importan… |
![]() | Alexa Jett 🦋 @ohhiialexa CT: I am happy to see that we are all on the same page regarding this topic. It makes me optimistic that we can make more headway in 2020! #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @DubinMktgStrat @vrulon @power4patients I LOVED this book! #patientchat |
![]() | Barbara Dunn @BarbaraADunn @patientchat T5. Standard protocols should be examined for implicit bias. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @llake @carlyflumer @patientchat Hi Lillian! #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: And then we've got the Case Center for Reducing Health Disparities, @reducedisparity https://t.co/PBe8s3XemB They got lotsa stuff there #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT… |
![]() | Vera Rulon FAHIMA @vrulon CT: Achieving #healthequity must be an ongoing effort. Educate, advocate, change culture... hold healthcare system to account (and change reimbursement) #patientchat |
![]() | Patient Empowerment Network @power4patients RT @DHealthhub: T5: @IFD_AHA https://t.co/2rFZNrerpi #patientchat https://t.co/SnZyXkincO |
![]() | Alan Brewington @abrewi3010 CT Healthcare happens today and tomorrow, not yesterday. Yesterday is a learning tool so we can match our strong desire for a continued improvement in our quality of life. #patientchat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @DubinMktgStrat @vrulon @power4patients I'll put it on my "to read" list. Biases are not a bad thing if we examine them and see what is real. When they are activated indiscriminately they become a problem. #patientchat |
![]() | Patient Empowerment Network @power4patients RT @abrewi3010: CT Healthcare happens today and tomorrow, not yesterday. Yesterday is a learning tool so we can match our strong desire for… |
![]() | Mary MACK @MaryOCMack CT: As long as the backdrop of healthcare in The USA remains For-Profit, there will be no equality or equity. #patientchat |
![]() | Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime! |
![]() | Diverse Health Hub @DHealthhub CT: Moving forward we should not be afraid to tackle health disparities. Let’s continue to raise awareness and continue this dialogue around the important topic of #healthinequity #patientchat |
![]() | Patient Chat @patientchat Thank you so much @DHealthHub for sharing your insights and being our special guest for today’s #patientchat |
![]() | Vera Rulon FAHIMA @vrulon @ohhiialexa @DubinMktgStrat That you both for your thoughts. This is paramount. @RickiDOVE - you would appreciate this conversation #patientchat |
![]() | Patient Empowerment Network @power4patients RT @DHealthhub: CT: Moving forward we should not be afraid to tackle health disparities. Let’s continue to raise awareness and continue thi… |
![]() | Your GPS Doc, LLC @yourgpsdoc CT: Health disparities are woven into our HC system and the only way we will fix it is through acknowledgement and sincere efforts to involve the individuals who are impacted. #patientchat |
![]() | Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
![]() | Your GPS Doc, LLC @yourgpsdoc @patientchat @DHealthhub Great #patientchat. Thank you! |
![]() | Patient Chat @patientchat @yourgpsdoc @DHealthhub Thank you for joining in! #patientchat |
![]() | Diverse Health Hub @DHealthhub It was superb to be a part of this #patientchat today. @DHealthhub continues to spotlight disparities for a variety of diseases impacting vulnerable populations. We believe access to diverse perspective/ideas like those shared today cultivated culturally competent communities. |
![]() | JeffD @PatientPower2 @llake @vrulon @power4patients Yes, in all fairness given the limited time doctors have with each patient they need to take shortcuts (i.e. heuristics) to figure out what's going on with patients and biases can be useful. I think too often these biases lead to the wrong answers though. #patientchat |
![]() | Vera Rulon FAHIMA @vrulon Signing off. Thanks for another great #patientchat!!! |
![]() | Patient Chat @patientchat We’ll be back in two weeks for another Empowered #patientchat on February 21st. Hope to see you there! https://t.co/lLrD3P2eUC |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @yourgpsdoc @carlyflumer @patientchat Hi! 🐧 #patientchat |
![]() | Vera Rulon FAHIMA @vrulon RT @carlyflumer: @patientchat Health literacy, I think, could be argued as a disparity. However, I also think it’s up to the health care co… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey CT: I kinda live in this zone, both as an activist and a journo. Oh, and a policy wonk, since I wind up doing that some, too. I'm all about "everybody in, nobody out" in access, research, system design. With some Arthur Ashe spin. #patientchat https://t.co/VZx9moMzSK |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @DubinMktgStrat @vrulon @power4patients Hmmm. That's tricky. Shortcuts can lead to death. But I get your point. #patientchat |
![]() | laminopathies support group @laminopathies RT @MaryOCMack: T2: There are so many examples. One example is that those in need of an organ transplant will be denied listing, if the fi… |
![]() | laminopathies support group @laminopathies RT @MaryOCMack: 1 in 4 deceased organ donors never could have received if tables had been turned. #patientchat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: We’ll be back in two weeks for another Empowered #patientchat on February 21st. Hope to see you there! https://t.co/lLrD3P… |
![]() | Lillian Lake - Host of #SoulNestingChat @llake @patientchat I will be on a min-vacation! See you in the Twittersphere, however. Have a super weekend everyone! #patientchat |
![]() | Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Thank you so much @DHealthHub for sharing your insights and being our special guest for today’s #patientchat |
![]() | Patient Empowerment Network @power4patients Thanks everyone for joining today's #patientchat! Have a great weekend |
![]() | Amanda G @LAlupusLady Fog happens. Going back through the @patientchat conversation. #patientchat |
![]() | Csilla @Csilla008 RT @melissarvh: T5 Successful initiatives? Well, that sounds large-scale, but smaller efforts can help, too. Grps like Angel Flight that pr… |
![]() | Patient Chat @patientchat Disparities in Care: Equality vs. Equity #patientchat Transcript February 7th 2020 https://t.co/gSv6ksp32C via @symplur |
