#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Join us in a few minutes for the Empowered #PatientChat. Info/Topics: https://t.co/hECyDCN5JP |
| Patient Chat @patientchat Learn more about the Empowered #patientchat series and how to participate here: https://t.co/EcT9iwfHvi |
| Patient Chat @patientchat New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with others on the topic. |
| Patient Chat @patientchat You can find the topics we’ll cover on today’s Empowered #PatientChat here: https://t.co/hECyDCN5JP |
 | Victoria (she/her/ella) @aggievic14 #hcldr |
| Patient Chat @patientchat We start out with introductions - For those joining in, please take a moment to introduce yourself. #patientchat |
 | Patient Empowerment Network @power4patients Hi #patientchat! Kara from @power4patients here and looking forward to chatting with you all today |
| Patient Chat @patientchat Happy Friday, everyone! I’m Nykema from @power4patients and I’m looking forward to today’s #PatientChat |
 | Ma vie de zèbre • A-Danielle G. @ADanGrenier RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/EcT9iwfHvi |
| Patient Chat @patientchat @aggievic14 Hi Victoria! Happy you can join us today 😊 #PatientChat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
| Patient Chat @patientchat @marleahdeank @USFComDept Welcome, Marleah! Happy you could join us today! #PatientChat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
| Patient Chat @patientchat @power4patients Always happy to have you tune in, Kara!#PatientChat |
| Patient Chat @patientchat Today's #patientchat is “Filtering Misinformation: Social Media and Your Care” https://t.co/hECyDCN5JP |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of your answer - hard to remember but helpful #patientchat |
 | Marleah Dean Kruzel, PhD @marleahdeank RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Melissa VanHouten @melissarvh RT @patientchat: Today's #patientchat is “Filtering Misinformation: Today's #patientchat is “Filtering Misinformation: Social Media and Your Care” https://t.co/hECyDCN5JP |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat is “Filtering Misinformation: Today's #patientchat is “Filtering Misinformation: Social Media and Your Care” https://t.co/hECyDCN5JP |
| Patient Chat @patientchat T1: How has social media changed patient education? #patientchat https://t.co/wkYYplUGCd |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: How has social media changed patient education? #patientchat https://t.co/wkYYplUGCd |
| Marleah Dean Kruzel, PhD @marleahdeank T1: Social media (& eHealth) has empowered patients to find and use health and medical information #patientchat #HealthComm #SoMe |
| Patient Empowerment Network @power4patients T1: Social media allows patients to connect and share with hospitals, doctors, and other patients in real-time #patientchat |
 | Vera Rulon FAHIMA @vrulon Better late than never! Vera here (not from NY any more). #patientchat |
| Patient Chat @patientchat RT @marleahdeank: T1: Social media (& eHealth) has empowered patients to find and use health and medical information #patientchat #HealthComm #SoMe |
| Vera Rulon FAHIMA @vrulon Social media has changed the way we communicate, allows us to share information, learn from each other #patientchat |
| Patient Chat @patientchat @vrulon Yes, it has allowed so many people to find a community that wouldn't have been found otherwise! #patientchat |
| Patient Chat @patientchat T2: How does social media impact the patient experience? #patientchat https://t.co/b5du9NhUK7 |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How does social media impact the patient experience? #patientchat https://t.co/b5du9NhUK7 |
| Melissa VanHouten @melissarvh Information is spread far and wide, very quickly. We can reach people online we might never have been able to reach in person. We can offer and receive real-time support and share with others who struggle with similar patient/illness challenges. #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank T2: Social media enables patients to meet similar others & share resources #patientchat #HealthComm Three example communities I'm a part of are #bcsm, #gyncsm, & #ayacsm. |
 | Lillian Lake - Host of #SoulNestingChat @llake @patientchat A1 It's better and it's not. You have to be sure of your research that you're getting accurate information. Groups/chats enable people to share their experiences, questions, & solutions. Also, keep up to date about technological advances. #PatientChat |
| Vera Rulon FAHIMA @vrulon T2: Patient experience can go either way with social media - both positive and negative perspectives about organizations, sharing of information, how to avoid pitfalls #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T2: T2: How does social media impact the patient experience? #patientchat https://t.co/b5du9NhUK7 |
| Patient Chat @patientchat RT @melissarvh: Information is spread far and wide, very quickly. We can reach people online we might never have been able to reach in person. We can offer and receive real-time support and share with others who struggle with similar patient/illness challenges. #patientchat |
| Vera Rulon FAHIMA @vrulon @aggievic14 That's fascinating. Recognizing certain things in yourself can lead to an important diagnosis. #patientchat |
| Patient Chat @patientchat Topic (T3) coming soon... #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat Tweeting from New England today as a caregiver and patient. #PatientChat |
| Melissa VanHouten @melissarvh In my view, it lessens isolation & builds confidence. Patients are armed with knowledge and support -- not just from medical professionals but also from others actually living the experience. #patientchat |
| Patient Chat @patientchat T3: What do’s and don’ts have you learned while using social media to help navigate your care? #patientchat https://t.co/46CpuXOuY9 |
 | Marni Cartelli @Purrfectly_Rare A2 #patientchat I think social media has the ability to empower & validate patients But We have 2B careful bc it also has the ability 2 alienate 1 another if we forget that each person's experience is valid, even if it is polar opposite 2 UR own (even w same condition) |
| Patient Empowerment Network @power4patients RT @melissarvh: In my view, it lessens isolation & builds confidence. Patients are armed with knowledge and support -- not just from medical professionals but also from others actually living the experience. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What do’s and don’ts have you learned while using social media to help navigate your care? #patientchat https://t.co/46CpuXOuY9 |
| Patient Empowerment Network @power4patients T3: Don’t believe everything you hear. Do consult with your doctor on what you learned to make sure you’re getting the best care for you #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A3 I reach out to diabetes educators & diabetics often when I have questions about sensors & pumps. Or looking for similar experiences. I don't discount anyone's experience. I do honor everyone's stories. #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank T3: One “do” is using @FacingOurRisk XRAY program. It provides guidelines for examining cancer research-related news & info. It helps you learn how to assess reliable online health info. You can learn more here: https://t.co/2y44NWepnu #HealthComm |
| Melissa VanHouten @melissarvh Do listen & learn from other patients and turn to them for help & support, but do not take everything you read as gospel. Check the science and consult with your physicians before leaping. #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank T3: A “don’t” is being careful of information overload. Whether I’m searching for health/medical info for myself or others, I've learned it's important to provide a timeline/timeframe, so that I don’t get overwhelmed with too much info. #patientchat #HealthComm |
| Patient Chat @patientchat RT @power4patients: T3: T3: Don’t believe everything you hear. Do consult with your doctor on what you learned to make sure you’re getting the best care for you #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A2 The biggie for me is finding those who are courageous in sharing as it empowers all of us. It makes us bolder & more confident in healthcare arenas where we can be overwhelmed by those who know more or think they know more. #patientchat |
| Patient Chat @patientchat Topic (T4) coming soon... #PatientChat |
| Patient Chat @patientchat T4:What are some challenges and benefits of the “power” of social media? #PatientChat https://t.co/50x3ykHD5G |
| Vera Rulon FAHIMA @vrulon T3: Personally, I don't use social media for personal information, more general. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @marleahdeank That's a good point. It's easy to quickly do down a rabbit hole and forget where you began or even what specifically you were looking for. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T4:What are some challenges and benefits of the “power” of social media? #PatientChat https://t.co/50x3ykHD5G |
| Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: Do listen & learn from other patients and turn to them for help & support, but do not take everything you read as gospel. Check the science and consult with your physicians before leaping. #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank T4: One challenge can be sharing & discussing online health info/social media info with providers. I have found in my research but also experience as a patient that being able to explain the source of info & why it is relevant can help that conversation. #HealthComm #patientchat |
| Patient Empowerment Network @power4patients T4: Some benefits include the ability to access on-demand support, resources, and information, and a challenge is the spreading of misinformation #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T4:What are some challenges and benefits of the “power” of social media? #PatientChat https://t.co/50x3ykHD5G |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A4 Learning something before your healthcare provider does can be challenging. Challenge: People will attack you for your beliefs, practices, and real-time experiences. #PatientChat |
| Melissa VanHouten @melissarvh Bad info spreads as quickly as good, so learn 2 distinguish. Also, while pt support groups can be helpful, it can be overwhelming 2 read the stories - has an emotional impact & also comes w/the danger of believing your situation/solution is (will be) exactly the same #patientchat |
| Patient Chat @patientchat Topic 5 (T5) coming soon... #PatientChat |
| Vera Rulon FAHIMA @vrulon T3: SoMe benefits - broaden network, access to info, etc. Challenges - misinformation, trolls, personal information #patientchat |
| Patient Chat @patientchat @Crohnoid No worries, we're always happy you can make it! #PatientChat |
| Patient Chat @patientchat T5: How can we better equip patients, care partners, and advocates to identify misinformation? #patientchat https://t.co/VYWOdMzfv7 |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A4b A benefit can be camaraderie, developing personal relationships, support each other during challenges and defeats. #PatientChat |
| Marleah Dean Kruzel, PhD @marleahdeank T4: As I mentioned earlier, the biggest benefit for me #community. I learn so much from others & appreciate connecting with those with similar experiences. #bcsm #ayacsm #gyncsm |
| Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: In my view, it lessens isolation & builds confidence. Patients are armed with knowledge and support -- not just from medical professionals but also from others actually living the experience. #patientchat |
 | Jenn Schropp @Endo_Jenn @patientchat A4. Connecting with people who "get it" is a great benefit. The downside is that there will always be internet trolls trying to tear you down. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How can we better equip patients, care partners, and advocates to identify misinformation? #patientchat https://t.co/VYWOdMzfv7 |
| Lillian Lake - Host of #SoulNestingChat @llake @power4patients T3 Don't believe everything your doctor says - if it doesn't sound like it fits your situation, question "authority". #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T5: T5: How can we better equip patients, care partners, and advocates to identify misinformation? #patientchat https://t.co/VYWOdMzfv7 |
| Marleah Dean Kruzel, PhD @marleahdeank T5: As patients, we can learn how to decipher/navigate social media & online health info. I teach this in my undergrad classes. Also, the more providers are willing to talk about info in consultations, the more equipped patients will become in assessing health info. #patientchat |
| Melissa VanHouten @melissarvh We try to direct patients to credible disease-related nonprofits, medical universities, & gov't sites. We also encourage members to ask questions & raise topics directly w/their physicians for confirmation. Look for scientific citations & not ads or product sales. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat @power4patients T5 Open communication is key. Compare notes. Anyone can be honestly misinformed or otherwise informed. Be discerning about all information. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Melissa VanHouten @melissarvh RT @llake: @patientchat @power4patients T5 Open communication is key. Compare notes. Anyone can be honestly misinformed or otherwise informed. Be discerning about all information. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: We try to direct patients to credible disease-related nonprofits, medical universities, & gov't sites. We also encourage members to ask questions & raise topics directly w/their physicians for confirmation. Look for scientific citations & not ads or product sales. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @marleahdeank: T5: As patients, we can learn how to decipher/navigate social media & online health info. I teach this in my undergrad classes. Also, the more providers are willing to talk about info in consultations, the more equipped patients will become in assessing health info. #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank @melissarvh Yes! For example, here's one website from NCI on "How to find cancer resources you can trust." https://t.co/oi5BzEugBR. #HealthComm #patientchat |
| Melissa VanHouten @melissarvh RT @marleahdeank: @melissarvh Yes! For example, here's one website from NCI on "How to find cancer resources you can trust." https://t.co/oi5BzEugBR. #HealthComm #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @marleahdeank "Strategic thinking" comes to mind. We don't have to know everything as caregivers or patients but know what is useful to be discerning advocates & patients. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Patient Chat @patientchat RT @marleahdeank: @melissarvh Yes! For example, here's one website from NCI on "How to find cancer resources you can trust." https://t.co/oi5BzEugBR. #HealthComm #patientchat |
| Marleah Dean Kruzel, PhD @marleahdeank Some practical advice for discussing online health info w/ healthcare providers based on research include: 1) be assertive, be prepared, & be specific. #HealthComm #patientchat (source: https://t.co/8SMN7kzP2f) |
| Patient Chat @patientchat RT @marleahdeank: Some practical advice for discussing online health info w/ healthcare providers based on research include: Some practical advice for discussing online health info w/ healthcare providers based on research include: 1) be assertive, be prepared, & be specific. #HealthComm #patientchat (source: https://t.co/8SMN7kzP2f) |
 | Barby Ingle Official @BarbyIngle RT @Purrfectly_Rare: A2 #patientchat I think social media has the ability to empower & validate patients But We have 2B careful bc it also has the ability 2 alienate 1 another if we forget that each person's experience is valid, even if it is polar opposite 2 UR own (even w same condition) |
| Lillian Lake - Host of #SoulNestingChat @llake RT @marleahdeank: Some practical advice for discussing online health info w/ healthcare providers based on research include: Some practical advice for discussing online health info w/ healthcare providers based on research include: 1) be assertive, be prepared, & be specific. #HealthComm #patientchat (source: https://t.co/8SMN7kzP2f) |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Lillian Lake - Host of #SoulNestingChat @llake RT @marleahdeank: @melissarvh Yes! For example, here's one website from NCI on "How to find cancer resources you can trust." https://t.co/oi5BzEugBR. #HealthComm #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
 | Memej99-SickleCellLifeOfMemej @Memej99 OMG, I completely 4got about #patientchat 2day!☹️ I blame sleep & leg pain, FYI. But it's such a fun learning experience & now I have to wait until next Friday.🙄 Which I probably can't do, bc WOW, next wk is FULL y'all! I'm tired just thinking about it!🥱 #SickleCellLifeOfMemej |
| Patient Chat @patientchat Have you heard of Twitter Spaces? If so, would you be open to having a special Empowered #PatientChat on Spaces? |
| Patient Chat @patientchat Stat tuned for our next Empowered #PatientChat on Friday, February 25th @ 10 AM PT/ 1 PM ET! https://t.co/mYFUj5DAGA |
 | Valarie Traynham @MyelomaValarie RT @power4patients: T3: T3: Don’t believe everything you hear. Do consult with your doctor on what you learned to make sure you’re getting the best care for you #patientchat |
 | Patient Empowerment vzw @Empowermentvzw RT @patientchat: T4:What are some challenges and benefits of the “power” of social media? #PatientChat https://t.co/50x3ykHD5G |
| Memej99-SickleCellLifeOfMemej @Memej99 RT @patientchat: Stat tuned for our next Empowered #PatientChat on Friday, February 25th @ 10 AM PT/ 1 PM ET! https://t.co/mYFUj5DAGA |
| Memej99-SickleCellLifeOfMemej @Memej99 RT @patientchat: Have you heard of Twitter Spaces? If so, would you be open to having a special Empowered #PatientChat on Spaces? |
 | Christina Lizaso @btrfly12 RT @marleahdeank: Some practical advice for discussing online health info w/ healthcare providers based on research include: Some practical advice for discussing online health info w/ healthcare providers based on research include: 1) be assertive, be prepared, & be specific. #HealthComm #patientchat (source: https://t.co/8SMN7kzP2f) |
| Christina Lizaso @btrfly12 RT @melissarvh: In my view, it lessens isolation & builds confidence. Patients are armed with knowledge and support -- not just from medical professionals but also from others actually living the experience. #patientchat |
| Christina Lizaso @btrfly12 RT @marleahdeank: T2: Social media enables patients to meet similar others & share resources #patientchat #HealthComm Three example communities I'm a part of are #bcsm, #gyncsm, & #ayacsm. |
#patientchat content from Twitter.