#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Jack Aiello @JackMAiello
@patientchat Jack here, #myeloma pt, checking in #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat
Jamie Roger @JamieRoger8
Jamie from CT and @salemoaks I hope everyone is having a wonderful week and a productive Friday. #patientchat
Patient Chat @patientchat
Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story, etc.
Patient Empowerment @power4patients
@JackMAiello @patientchat Hi Jack @JackMAiello! We're so happy that you're here. #patientchat
Patient Chat @patientchat
So for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat
Your GPS Doc, LLC @yourgpsdoc
Hi everyone! I’m Nicole Rochester- physician, former caregiver to my dad, health advocate and CEO of @yourgpsdoc. Multitasking today but will try to keep up. #patientchat
Patient Chat @patientchat
There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/GDwe1RmIDD #patientchat
Heather McCullen @H_SalemOaks
Hi #Patientchat, Heather joining from outside of Ann Arbor. Busy day getting ready to leave for @ConferenceForum #Patients2019 (and a short vacation to Florida right after)
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: So for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion…
Patient Chat @patientchat
So here we go… What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat
Patient Empowerment @power4patients
RT @patientchat: There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/GDwe1RmIDD #patientc
Maya Northen Augelli @mayanorthen
Maya from Philly here! Mental health advocate and founder of Spread Hope Project. #patientchat
Jamie Roger @JamieRoger8
@yourgpsdoc How have you been NIcole? #patientchat
Jamie Roger @JamieRoger8
RT @H_SalemOaks: Hi #Patientchat, Heather joining from outside of Ann Arbor. Busy day getting ready to leave for @ConferenceForum #Patien
Jack Aiello @JackMAiello
@power4patients @patientchat I see you’re asking for topics but not sure I have any to suggest. #patientchat
Jamie Roger @JamieRoger8
@mayanorthen We will be in Philly the next few days for #Patients2019 #patientchat
Patient Chat @patientchat
Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g
Patient Empowerment @power4patients
Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully share in decision making with their care team. But what exactly does shared decision making look like/mean in real life? Any examples or ideas? #patientchat
I Slapped Devin Nunes and Ouiser Boudreaux @nwayne66
RT @power4patients: Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully shar…
Maya Northen Augelli @mayanorthen
@JamieRoger8 Ahhh exciting! One of these years I will make it there. I'll live vicariously through all of your tweets. :-) #patientchat
Patient Chat @patientchat
RT @power4patients: Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully shar…
Jamie Roger @JamieRoger8
@mayanorthen @salemoaks will try to get as many out there as we can. #patients2019 #patientchat
Patient Empowerment @power4patients
RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g
I Slapped Devin Nunes and Ouiser Boudreaux @nwayne66
RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g
Your GPS Doc, LLC @yourgpsdoc
I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we can do to rebuild the doctor-patient relationship. Would love your thoughts. #patientchat
Barby Ingle 📣 @BarbyIngle
Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can go dive deeper into content on the internet and in-person discussions. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 Great, Jamie! How are you? #patientchat
Patient Empowerment @power4patients
RT @yourgpsdoc: I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we…
International Pain Foundation® @powerofpain
RT @BarbyIngle: Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can…
Alan Brewington @abrewi3010
My neck surgery is Wednesday. The waiting sucks. I’m excited and grateful for this opportunity but the waiting is rough. #patientchat
Heather McCullen @H_SalemOaks
#patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months? I'm really excited for @patientexpsym check out this lineup! https://t.co/DWAONnSy7c
Jamie Roger @JamieRoger8
@yourgpsdoc I am really excited for this #tedx talk! Way to go NIcole! #patientchat
Patient Chat @patientchat
#patientchat what do you think?
Patient Chat @patientchat
RT @BarbyIngle: Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can…
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g
Patient Chat @patientchat
RT @H_SalemOaks: #patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months?…
Jamie Roger @JamieRoger8
@yourgpsdoc Doing well, Had a great time at #bridging2019 and looking forward to #patients2019 on Monday. Busy trying to keep the rest of my life normal in between traveling though. #patientchat #conferences #letsjustignoreeverythingelsegoingon
Mighty Casey Quinlan @MightyCasey
HEY - running in late, in usual too-many-things mode. Casey Quinlan here, Richmond VA, loudmouthed #openscience #epatient firestarter. Greetings! I'll be in'n'out, multitasking. Like I do. #patientchat
Barby Ingle 📣 @BarbyIngle
IMHO: Pain Management should be done in teams with the patient as the team leader. We should be treating the whole body, mind and spirit! #patientchat #chronicillness #chronicpainisreal #pain https://t.co/nZGoL1UwWZ
Jamie Roger @JamieRoger8
@abrewi3010 I wish you the absolute best care during your surgery and recovery, heal quickly my friend #patientchat
Your GPS Doc, LLC @yourgpsdoc
@power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/diseas, as well as the social determinants of health that will impact their ability to carry out the plan. #patientchat
Richard Zhao @richardzhao
When I talked to an pain clinic owners, I see big $$ in their eyes. #patientchat #pain
Patient Chat @patientchat
RT @yourgpsdoc: @power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/dise…
Patient Empowerment @power4patients
RT @yourgpsdoc: @power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/dise…
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 Awesome! #patientchat
Mighty Casey Quinlan @MightyCasey
On my mind, all day ever' day lately, is the utter lack of #dataprivacy for people/patients *everywhere*. IOW, even #HIPAA - the most enragingly paternalistic of "data privacy" rules EVER - hasn't prevented Big Tech from active ****ery toward ... everyone. #patientchat
Alan Brewington @abrewi3010
@yourgpsdoc Emphasis the concept of time. Caregivers are not on doc time. Without an agreed upon concept of time info will get lost. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 Thank you! ❤️❤️ I’m excited too! #patientchat
Your GPS Doc, LLC @yourgpsdoc
@abrewi3010 Ooh, Alan! I spend a lot of time talking about time. Thanks for the confirmation! #patientchat
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
@patientchat #UBI & #Disability are two big things in my mind,I have a hearing to appeal a denial of a renewal of SSI& one of the reasons I couldn't really "get evidence" is doctor's can't really do anything to improve my situation& a recent move has made finding "new" difficult #patientchat
Barby Ingle 📣 @BarbyIngle
Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through college. So when we are older, we know & understand the importance of it & use it as prevention instead of after we r already n health troubles #patientchat
HannahZachmeyer @ZachmeyerHannah
This is a great question, far too often there is a barrier in decision making between patients and care providers #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JackMAiello Oh no! #patientchat
Heather McCullen @H_SalemOaks
@MightyCasey I had a great time at #Bridging2019, but man are data scientists ... concerning. #patientchat
Patient Chat @patientchat
@BarbyIngle What's your advice for building this team? #patientchat
Patient Empowerment @power4patients
@yourgpsdoc Can't wait for this #TEDX talk!! I think a few things are always present in a positive & productive Dr-Patient relationship: empathy, active listening and mutual respect #patientchat
Patient Empowerment @power4patients
RT @patientchat: @BarbyIngle What's your advice for building this team? #patientchat
Your GPS Doc, LLC @yourgpsdoc
I agree 100%! Thanks for your input and support! #patientchat
Alan Brewington @abrewi3010
@JamieRoger8 Thank you! How are you holding up lately? #patientchat
Patient Chat @patientchat
RT @malkabethwendy: @patientchat #UBI & #Disability are two big things in my mind,I have a hearing to appeal a denial of a renewal of SSI&…
Richard Zhao @richardzhao
Conservative treatments can control #pain without serious illness. People need help to know what they are, where they are and how they treat patients #patientchat
stephen parsons @sbplama
RT @BarbyIngle: IMHO: Pain Management should be done in teams with the patient as the team leader. We should be treating the whole body, mi…
Jack Aiello @JackMAiello
Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have various tasks. Cg can help with research, record labs values, handle insurance paperwork, etc. #patientchat
HannahZachmeyer @ZachmeyerHannah
I agree, it’s good to teach this when they are younger so people aren’t playing catch up later on when it may be too late #patientchat
Patient Empowerment @power4patients
RT @JackMAiello: Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have…
Your GPS Doc, LLC @yourgpsdoc
@JackMAiello Excellent advice! Thanks for retyping your comment. 😊 #patientchat
Boss Doctors @BossDoctors
RT @yourgpsdoc: I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we…
Jamie Roger @JamieRoger8
@abrewi3010 Not too shabby, hanging in there I suppose. Have to go to calling hours today for a friend from high school who passed and its bringing me down a bit. Scary to think that someone my age passed from a #cardiac event. #patientchat # imonly31 #distracted
Patient Chat @patientchat
Who or where can patients go to find this information? #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @BarbyIngle: Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through…
Barby Ingle 📣 @BarbyIngle
Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brainstorm and study with them, learn know and participate with your team #patientchat
HannahZachmeyer @ZachmeyerHannah
@patientchat Hi! I’m Hannah and I’m a student taking a patient care class at RIT. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 @abrewi3010 I’m so sorry, Jamie. #patientchat
Patient Empowerment @power4patients
RT @patientchat: Who or where can patients go to find this information? #patientchat https://t.co/TKokW62psz
Alan Brewington @abrewi3010
Can we quit with the #pain treatment labels. No more conservative or alternative treatment, just treat the pain based on a collaborative and individualized treatment plan. #chronicpain #patientchat #rheum
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
@patientchat They did #Disability renewal when I was in the mid of an 1100 mile move so as most of my treatments aren't covered by ins/Medicaid - joint braces, turmeric, acupressure mat, yoga, physical therapy-I haven't had steady/frequent Dr visits.I added hydrotherapy recently #patientchat
Mighty Casey Quinlan @MightyCasey
@H_SalemOaks Yeah. Lots can be learned from #data aggregation, but not enough social science/#ethics input in #datascience ... yet. #patientchat
Richard Zhao @richardzhao
@patientchat We are developing technology can help with some of such information. But, we also need help from patients to make it better. I call it collective intelligence. #patientchat
Jack Aiello @JackMAiello
@yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselves to prune your fruit trees or bring by some meals, that’s true friendship. #patientchat
Patient Chat @patientchat
RT @BarbyIngle: Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brains…
Jamie Roger @JamieRoger8
@yourgpsdoc @abrewi3010 Thanks. We were much closer in High School, have only talked a few times the last few years, but it's the realization of the situation that is mind-boggling. #patientchat #aging ?
Patient Empowerment @power4patients
On this #InternationalWomensDay2019 does anyone think there is, or has personally experienced a gender disparity in terms of achieving diagnosis, access to care and/or patient/care partner empowerment? #patientchat
Patient Empowerment @power4patients
RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselve…
Mighty Casey Quinlan @MightyCasey
@JamieRoger8 @abrewi3010 Yeah, that sucks. I'm old AF now, but remembering the wollop of losing friends in my 20s and 30s. Life is 100% fatal, live accordingly. #patientchat
Barby Ingle 📣 @BarbyIngle
Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get a chance! https://t.co/EctoBMBrtd #patientchat https://t.co/a0VSRKdlPH
Patient Chat @patientchat
"Collective intelligence" - I like that! Please keep us updated on this technology as it moves forward #patientchat
Your GPS Doc, LLC @yourgpsdoc
@BarbyIngle This is often easier said than done. So many struggle to find a PCP who will truly coordinate care. Good PCPs also struggle to keep up with clinical care, administrative tasks, EMR, etc. #patientchat
Patient Chat @patientchat
RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselve…
Patient Empowerment @power4patients
RT @richardzhao: @patientchat We are developing technology can help with some of such information. But, we also need help from patients to…
Patient Chat @patientchat
RT @power4patients: On this #InternationalWomensDay2019 does anyone think there is, or has personally experienced a gender disparity in ter…
Jamie Roger @JamieRoger8
@MightyCasey @abrewi3010 #truth #patientchat
Alan Brewington @abrewi3010
@JamieRoger8 I’m sorry to hear that! A close friend of mine from high school had a bad stroke. I know what you mean! #patientchat
Your GPS Doc, LLC @yourgpsdoc
@malkabethwendy @patientchat This sounds horrible. I hope it works out. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselve…
Patient Empowerment @power4patients
@ZachmeyerHannah @patientchat Welcome Hannah! #patientchat
Jamie Roger @JamieRoger8
@power4patients YES my OBGYN was a HUGE asshole, despite choosing to deal with women as a career he was rude, harsh, and insensitive about my diagnosis and efficiency of my treatment #patientchat
Barby Ingle 📣 @BarbyIngle
Very true, I have worked hard to create and keep my team communicating over the years ... #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JackMAiello I always advise caregivers to give friends and family members a specific list of tasks/ways in which they help. You’re right, the generic “how can I help?” typically results in no help. #patientchat
Richard Zhao @richardzhao
@patientchat Sure, I will. We also need patients from different communities to join this movement to correct the wrong setup of our healthcare system. #patientchat
HannahZachmeyer @ZachmeyerHannah
@yourgpsdoc I agree that time is important. Taking the time to fully listen and understand patient/family concerns helps build a healthy patient-caregiver relationship. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@ZachmeyerHannah I agree! Thanks for you input, Hannah. #patientchat
Patient Empowerment @power4patients
RT @yourgpsdoc: @JackMAiello I always advise caregivers to give friends and family members a specific list of tasks/ways in which they help…
Jack Aiello @JackMAiello
@richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient perspectives can easily be provided? Many pts are willing to help when asked. #patientchat
Alan Brewington @abrewi3010
@richardzhao If we want to battle #opioidstigma we need to get ride of treatment labels. #patientchat
Patient Empowerment @power4patients
RT @JackMAiello: @richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient…
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
@yourgpsdoc @patientchat Thanks,I'm a mental mess-among other parts that just don't make sense is that a part of the last ruling says to them I'll be disabled for another2years (it's really permanent things that slowly worsen but??) to say that & we'll cut money now- just seems ridiculous. #patientchat
Patient Chat @patientchat
RT @JackMAiello: @richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient…
Alice Lee @alee7095
RT @BarbyIngle: Very true, I have worked hard to create and keep my team communicating over the years ... #patientchat https://t.co/t3IVESI…
Alan Brewington @abrewi3010
@ZachmeyerHannah @yourgpsdoc Simply understanding everyone of the care teams schedule is a lost consideration in today’s healthcare. #patientchat
Patient Chat @patientchat
@JamieRoger8 Wow, just wow. #patientchat https://t.co/1AFlhSf8z3
Jerry Durham @Jerry_DurhamPT
RT @richardzhao: When I talked to an pain clinic owners, I see big $$ in their eyes. #patientchat #pain
Jamie Roger @JamieRoger8
@patientchat It was brutal. #patientchat
Richard Zhao @richardzhao
@JackMAiello @power4patients @patientchat We have #patients or just people patriciate our program, providing patient's perspective judgment. That is all. Just a couple hours of their time and get a pair of #PinkSocks of supporting #PatientCentered healthcare movement. #patientchat
Your GPS Doc, LLC @yourgpsdoc
Many have experienced gender disparities in healthcare. Even in 2019 women are sometimes disregarded as “hysterical” when reporting medical concerns me #patientchat #InternationalWomensDay
Natalie 🦓 @_Nataliea
#chronicpain sucks, but do I have the time mine/energy/whatever to do anything about it? AKA, not pursuing it and coping is potentially easier, albeit painful. #patientchat
Alice Lee @alee7095
RT @BarbyIngle: Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get…
Patient Empowerment @power4patients
RT @yourgpsdoc: Many have experienced gender disparities in healthcare. Even in 2019 women are sometimes disregarded as “hysterical” when r…
Jack Aiello @JackMAiello
@richardzhao @power4patients @patientchat You said you needed pt help. Do you bring these pts (small group 5-10) together to share what you’re doing and what perspectives you need from them. Sometimes group dynamics can be very enlightening. Check with then f2f once a year and conference call once a year. #patientchat
Patient Empowerment @power4patients
RT @JackMAiello: @richardzhao @power4patients @patientchat You said you needed pt help. Do you bring these pts (small group 5-10) together…
Richard Zhao @richardzhao
@JackMAiello @power4patients @patientchat We use technology to do it online, back to back. So, people’s opinions don’t influence others. #Patientchat
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
@yourgpsdoc @patientchat #Spodylelothesis, #Spondylitis , #POTS , #hEDS & Early onset #Osteoarthritis being the mainstay. These things don't "get better with time",nor will surgery or drugs really help #patientchat - so asking for extensive paper trails that just don't exist as "proof"=mess #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JackMAiello @richardzhao @power4patients @patientchat And consider paying for their time, the same way we pay other experts for their input and opinions. #patientchat
Patient Empowerment @power4patients
RT @yourgpsdoc: @JackMAiello @richardzhao @power4patients @patientchat And consider paying for their time, the same way we pay other expert…
Barby Ingle 📣 @BarbyIngle
If you would like to donate to a charity that is doing great things and is rated platinum (the highest GuideStar rating) for transparency - Every penny counts! - https://t.co/30O8p0LoO3 #patientchat https://t.co/FvGjw5j4Te
Patient Chat @patientchat
Greatly enjoyed our free flow discussion this week. Almost time to start gathering your Closing Thoughts (CT:) for today's chat. #patientchat
Richard Zhao @richardzhao
@yourgpsdoc @JackMAiello @power4patients @patientchat We had volunteers to help us on that front as well. #Patientchat
Your GPS Doc, LLC @yourgpsdoc
@richardzhao @JackMAiello @power4patients @patientchat @wegohealth is doing a great job organizing patient advocates/experts in a meaningful way. #patientchat
PX Symposium @patientexpsym
RT @H_SalemOaks: #patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months?…
Barby Ingle 📣 @BarbyIngle
#SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out https://t.co/aBxf3J6RF6 for how @BarbyIngle does it! #patientchat https://t.co/WPdEsQcSHW
Patient Empowerment @power4patients
RT @yourgpsdoc: @richardzhao @JackMAiello @power4patients @patientchat @wegohealth is doing a great job organizing patient advocates/expert…
Alan Brewington @abrewi3010
It’s ok to be ok please remember! To often patients forget this. #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: #SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out http…
International Pain Foundation® @powerofpain
RT @BarbyIngle: If you would like to donate to a charity that is doing great things and is rated platinum (the highest GuideStar rating) fo…
International Pain Foundation® @powerofpain
RT @BarbyIngle: Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get…
International Pain Foundation® @powerofpain
RT @BarbyIngle: Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brains…
International Pain Foundation® @powerofpain
RT @BarbyIngle: Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through…
Patient Empowerment @power4patients
RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat
Richard Zhao @richardzhao
If people only talk about changing #healthcare system without doing any contribution, that’s just complaining in my eyes. #PatientCare #Patientchat #PatientCentered
International Pain Foundation® @powerofpain
RT @BarbyIngle: IMHO: Pain Management should be done in teams with the patient as the team leader. We should be treating the whole body, mi…
Patient Chat @patientchat
RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat
Mighty Casey Quinlan @MightyCasey
@JamieRoger8 @patientchat Sadly, there are a pernicious, and small (gratefully) subset of assholes in #obgyn. And even more sadly, some of 'em are women. #patientchat
Jack Aiello @JackMAiello
@richardzhao @power4patients @patientchat Maybe “influencing others” is ok when getting folks together. Pts may say “I hadn’t thought of that” or “My experience was different”. Pick the right pts who are able to represent themselves and others (e.g. maybe support group led, or are active on social media). #patientchat
Barby Ingle 📣 @BarbyIngle
RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
When paperwork trails are harder to get for disability than jobs are for ableds to the point where ableds become disabled often #UBI is overdue #patientchat
Alan Brewington @abrewi3010
RT @BarbyIngle: #SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out http…
Patient Chat @patientchat
Also, feel free to share links to your blogs or other good sites that you are passionate about :) #patientchat
Mighty Casey Quinlan @MightyCasey
@richardzhao I've seen zero real-life instances calling for healthcare system change fm anyone unwilling to participate in creating that change. Real-world, tho, those of us who ARE showing up, doing work, ain't valued by the system itself. At least not enough to compensate us. #patientchat
Your GPS Doc, LLC @yourgpsdoc
CT: Time is a significant barrier to building effective doctor-patient relationships. We must all have an understanding of time and ways we can efficiently bridge the gap and make meaningful connections. #patientchat
Jack Aiello @JackMAiello
@patientchat Gotta leave a few minutes early. Thanks for hosting. #patientchat
Patient Empowerment @power4patients
Whenever I get discouraged I think about how far we've come with #PatientEmpowerment. As evidenced by this #patientchat we still have a long way to go but we've made progress & that gives me hope & inspiration to keep going. This group give us endless hope & inspiration. TY all!
Patient Chat @patientchat
RT @yourgpsdoc: CT: Time is a significant barrier to building effective doctor-patient relationships. We must all have an understanding of…
Patient Empowerment @power4patients
RT @patientchat: Also, feel free to share links to your blogs or other good sites that you are passionate about :) #patientchat
Barby Ingle 📣 @BarbyIngle
CT: We are all individual and need find what works for us personally... use others ideas to come up with a plan that works for us. Dont be guilt-ed into any treatment that you are not OK with. Study, learn and be the best You, You can be. #patientchat
Patient Chat @patientchat
@JackMAiello Thanks for stopping by Jack! #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour
lillian lake @llake
@malkabethwendy @patientchat Wow! I hope you have support negotiating your way through this. #patientchat
Your GPS Doc, LLC @yourgpsdoc
I do a weekly Facebook Live show Mondays at 8pm ET, Navigator Nuggets™️, where I provide useful tips about navigating the healthcare system. We have a wonderful and engaging dialogue. Please join us! https://t.co/kynNvvSCnF #patientchat
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, March 22nd at 1pm ET | 10am PT. Hope to see you there! https://t.co/LU6GVBkYLX
Your GPS Doc, LLC @yourgpsdoc
RT @MightyCasey: @richardzhao I've seen zero real-life instances calling for healthcare system change fm anyone unwilling to participate in…
Patient Chat @patientchat
RT @yourgpsdoc: I do a weekly Facebook Live show Mondays at 8pm ET, Navigator Nuggets™️, where I provide useful tips about navigating the h…
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: Whenever I get discouraged I think about how far we've come with #PatientEmpowerment. As evidenced by this #patientchat
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
lillian lake @llake
Absolutely. I love this! #patientchat
Patient Empowerment @power4patients
RT @llake: Absolutely. I love this! #patientchat https://t.co/rR5i9fWmFb
Your GPS Doc, LLC @yourgpsdoc
@patientchat Thanks for a wonderful discussion! #patientchat
Patient Empowerment @power4patients
RT @patientchat: The next Empowered #patientchat will be Friday, March 22nd at 1pm ET | 10am PT. Hope to see you there! https://t.co/LU6GVB…
lillian lake @llake
RT @JackMAiello: Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have…
♿🔯 ❌Grundfest-Frigeri #GiveAssangeANobel @malkabethwendy
@llake @patientchat I have my husband who's in some ways more #disabled than I am. I have people online I talk with & that's really about it. I called up a legal entity to help -they never called back. If I'm denied then by August's end - we'll both be dead- it's that simple #patientchat
Robin R @rhrousu
@patientchat Doctors need to give specific, detailed info in writing about recovery, aftercare, and restrictions well before a procedure “he won’t be able to drive for two wks, needs a walker & can’t sleep in a waterbed” would have been helpful to know BEFORE the day of discharge #patientchat
#patientchat content from Twitter.