#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empower patients.
Patient Chat @patientchat
We start out with introductions - For those joining in, please take a moment to introduce yourself. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empower patients.
Patient Chat @patientchat
Happy Friday, everyone! I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat 😊
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
@patientchat @power4patients Hi Nykema 👋 #HelloMyNameIs Lou, and I'm an Improvement Manager in Wales UK #PatientChat
Nancy Feeney, MHA, BSBM, BCPA @talliegirl
RT @patientchat: You’re invited! Join us for an Empowered #PatientChat "How is “Value” Defined in Patient Care?" on Friday 3/11 10amPT | 1pmET https://t.co/NHDjOo8Lpn https://t.co/8UPBx3ycWZ
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat @power4patients Happy Friday Nykema! I’m Jemela and I’m happy to be back here for another patient chat! #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat Hi all! It’s been a while! Annie-Danielle here (Ma vie de zèbre—My Zebra Life), francophone voice for rare disease from Montréal (Québec, Canada). Glad to be with you today! #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
@Memej99 @patientchat @power4patients Hi Jemela 👋 #PatientChat
Patient Chat @patientchat
@Memej99 @power4patients Wooo! Hi Jemela, always happy to have you join us! #patientchat
Patient Empowerment Network @power4patients
Happy Friday #patientchat! Kara here and tweeting from Charlotte, NC
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat
Patient Chat @patientchat
@ADanGrenier Hi Annie-Danielle! So happy you could tune in this Friday #patientchat
Patient Chat @patientchat
Today's #patientchat is a “How is “Value” Defined in Healthcare?” Empowered #PatientChat Topics: https://t.co/NHDjOo8Lpn
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of your answer - hard to remember but helpful #patientchat
Patient Chat @patientchat
Topic (T1) coming soon... #PatientChat
Patient Chat @patientchat
@LouWaters_QI @power4patients Thanks for joining us today, Lou! 😊 #PatientChat
Patient Chat @patientchat
T1: How do you assess "value" in your care? #PatientChat https://t.co/W3JuBBBegh
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat T1 It's in the outcome and in how I feel. Do I feel respected and at ease, safe? And if so, is my health better or maintained? Was everything done that needed to be & could it have been done better (quicker, with less pain, etc.)? #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T1: T1: How do you assess "value" in your care? #PatientChat https://t.co/W3JuBBBegh
Patient Empowerment Network @power4patients
RT @ADanGrenier: @patientchat T1 It's in the outcome and in how I feel. Do I feel respected and at ease, safe? And if so, is my health better or maintained? Was everything done that needed to be & could it have been done better (quicker, with less pain, etc.)? #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T1: I assess value in my care by a number of ways but mainly Doctor patient interaction is number one. There’s so much that you can tell from 1 or 2 visits if this is the office that will truly value you as a patient, as a human. That matters and affects everything. #patientchat
Patient Chat @patientchat
RT @ADanGrenier: @patientchat T1 It's in the outcome and in how I feel. Do I feel respected and at ease, safe? And if so, is my health better or maintained? Was everything done that needed to be & could it have been done better (quicker, with less pain, etc.)? #patientchat
Patient Chat @patientchat
RT @Memej99: @patientchat T1: @patientchat T1: I assess value in my care by a number of ways but mainly Doctor patient interaction is number one. There’s so much that you can tell from 1 or 2 visits if this is the office that will truly value you as a patient, as a human. That matters and affects everything. #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
RT @ADanGrenier: @patientchat T1 It's in the outcome and in how I feel. Do I feel respected and at ease, safe? And if so, is my health better or maintained? Was everything done that needed to be & could it have been done better (quicker, with less pain, etc.)? #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @patientchat: T1: T1: How do you assess "value" in your care? #PatientChat https://t.co/W3JuBBBegh
Patient Chat @patientchat
Topic (T2) coming soon... #PatientChat
Patient Chat @patientchat
T2: How does measuring value vary from all involved in healthcare such as patients, caregivers, physicians, health systems, etc.? #PatientChat https://t.co/BBicOjbTDN
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
@patientchat As a patient, having my concerns heard and responded to help towards a positive experience. And as my lovely friend @BrianwDolan says, time is currency in healthcare. Valuing people's time is so important #PatientChat
Patient Empowerment Network @power4patients
RT @patientchat: T2: T2: How does measuring value vary from all involved in healthcare such as patients, caregivers, physicians, health systems, etc.? #PatientChat https://t.co/BBicOjbTDN
Patient Chat @patientchat
T1: 👇🏽 #PatientChat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @ADanGrenier: @patientchat T1 It's in the outcome and in how I feel. Do I feel respected and at ease, safe? And if so, is my health better or maintained? Was everything done that needed to be & could it have been done better (quicker, with less pain, etc.)? #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T2: I believe measuring value differs to a patient than it does to healthcare because they tend to measure it in costs, whereas patients measure it more in how we are treated, How we feel, how it’s affected our health outcomes. That’s what matters to us. #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat T2 It varies because we don't necessarily seek the same thing. Physicians might seek to treat/cure & to see as many patients as possible, while patient might "just" want to suffer less have a better quality of life. Health systems usually look for efficiency. #patientchat
Patient Chat @patientchat
Topic (T3) coming soon... #PatientChat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
T2: this is a great question. What does my network think? Value at system level may be around efficiency, costs & outcomes, at service level about experience, quality of care and outcomes and to a patient, how heard and respected they feel through any treatment #PatientChat
Patient Chat @patientchat
T3: The definition of value is constantly being discussed and developed. What do you think should be top priority for all involved in healthcare when measuring value in one's care? #patientchat https://t.co/dPQKRZQ0ew
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @ADanGrenier: @patientchat T2 It varies because we don't necessarily seek the same thing. Physicians might seek to treat/cure & to see as many patients as possible, while patient might "just" want to suffer less have a better quality of life. Health systems usually look for efficiency. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @Memej99: @patientchat T2: @patientchat T2: I believe measuring value differs to a patient than it does to healthcare because they tend to measure it in costs, whereas patients measure it more in how we are treated, How we feel, how it’s affected our health outcomes. That’s what matters to us. #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat T3 Patient satisfaction. Because no matter what it means to each, if it's at the center of the discussion, things will be easier, physicians will feel like they did what's best for the patient and it will usually lead to better efficiency, as we know what we need. #patientchat
Patient Chat @patientchat
RT @ADanGrenier: @patientchat T3 Patient satisfaction. Because no matter what it means to each, if it's at the center of the discussion, things will be easier, physicians will feel like they did what's best for the patient and it will usually lead to better efficiency, as we know what we need. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @ADanGrenier: @patientchat T3 Patient satisfaction. Because no matter what it means to each, if it's at the center of the discussion, things will be easier, physicians will feel like they did what's best for the patient and it will usually lead to better efficiency, as we know what we need. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T3: T3: The definition of value is constantly being discussed and developed. What do you think should be top priority for all involved in healthcare when measuring value in one's care? #patientchat https://t.co/dPQKRZQ0ew
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
@patientchat T3: I think we need to consider as well what is value for our Healthcare practitioners. If they don't feel able to deliver high value care, that they don't have time/resources that's an early sign that patient satisfaction may not be good. #PatientChat
Patient Chat @patientchat
RT @LouWaters_QI: @patientchat T3: @patientchat T3: I think we need to consider as well what is value for our Healthcare practitioners. If they don't feel able to deliver high value care, that they don't have time/resources that's an early sign that patient satisfaction may not be good. #PatientChat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@LouWaters_QI @patientchat It’s definitely getting to be a problem that we see more and more! #patientchat
Patient Chat @patientchat
T2: 👇🏽 #PatientChat
Patient Chat @patientchat
Topic (T4) coming soon... #PatientChat
Patient Chat @patientchat
T4: Think of current trends such as telemedicine, data wearables, etc. Do you think current trends are adding value to the overall care of patients? #patientchat https://t.co/b1dU1jJmto
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T3: Patient health outcomes should be a top priority. I think improving a patient’s healthcare should always come first and once that happens everything else will fall into place. Things like patient satisfaction will then improve after patient outcomes are better. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T4: T4: Think of current trends such as telemedicine, data wearables, etc. Do you think current trends are adding value to the overall care of patients? #patientchat https://t.co/b1dU1jJmto
Patient Chat @patientchat
RT @Memej99: @patientchat T3: @patientchat T3: Patient health outcomes should be a top priority. I think improving a patient’s healthcare should always come first and once that happens everything else will fall into place. Things like patient satisfaction will then improve after patient outcomes are better. #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat T4 Not automatically, but more often than not they can add value! Wearables can show patterns in symptoms & help my team understand my situation better. Telehealth can make my life much easier & safer, too. A tool just czù it’s trendy/for the sake of it is useless. #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@Memej99 @patientchat I can think of times when my outcome couldn’t be good, yet it was the best option for me, so my satisfaction was high and it meant I didn’t need more hospital visits, so it was also efficient… not sure outcome is more important than satisfaction! Guess it depends. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @ADanGrenier: @Memej99 @patientchat I can think of times when my outcome couldn’t be good, yet it was the best option for me, so my satisfaction was high and it meant I didn’t need more hospital visits, so it was also efficient… not sure outcome is more important than satisfaction! Guess it depends. #patientchat
Patient Chat @patientchat
RT @ADanGrenier: @Memej99 @patientchat I can think of times when my outcome couldn’t be good, yet it was the best option for me, so my satisfaction was high and it meant I didn’t need more hospital visits, so it was also efficient… not sure outcome is more important than satisfaction! Guess it depends. #patientchat
Patient Chat @patientchat
Topic (T5) coming soon... #PatientChat
Patient Chat @patientchat
T5: As the definition of value continues to evolve in healthcare, what steps can you take to ensure your voice is heard? Do you have advice for other patients who are struggling to have their voices heard? #patientchat https://t.co/7570dG7tnK
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T4: Yes! I think with the added technology of wearables and telemedicine, patients are able to send data to their doctors & it’s changing the way we do medicine. It’s helping people who might be extremely far away, still be connected. So yes it’s adding value. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @patientchat: T5: T5: As the definition of value continues to evolve in healthcare, what steps can you take to ensure your voice is heard? Do you have advice for other patients who are struggling to have their voices heard? #patientchat https://t.co/7570dG7tnK
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat T5 I'm very active as a patient partner in research projets, future HCW education and with health establishments. I'm also advocating on social media and discuss with HCWs. Do interviews with traditional media as well. It takes time but there are ways to be heard! #patientchat
Patient Chat @patientchat
I wanted to share something from @power4patients. PEN’s Thyroid Cancer Network Manager, @carlyflumer has put together a checklist for those seeking to find value in their care. Check it out: https://t.co/X7MnuUtlYx #PatientChat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @patientchat: I wanted to share something from @power4patients. PEN’s Thyroid Cancer Network Manager, @carlyflumer has put together a checklist for those seeking to find value in their care. Check it out: https://t.co/X7MnuUtlYx #PatientChat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T5: I will continue to Advocate for myself & others & keep up with the changing healthcare info. For those who have trouble finding their voice, I’d say, You have a story & yours is just as important as anyone else’s. It needs to be heard. #patientchat
Patient Chat @patientchat
RT @Memej99: @patientchat T5: @patientchat T5: I will continue to Advocate for myself & others & keep up with the changing healthcare info. For those who have trouble finding their voice, I’d say, You have a story & yours is just as important as anyone else’s. It needs to be heard. #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat
Ma vie de zèbre • A-Danielle G. @ADanGrenier
@patientchat CT The main takeaway I think is, the patient needs to advocate for themselves or their loved ones to ensure they get the value they seek out of their care. Working together with healthcare workers and the systems in place is an important way to improve this. #patientchat
Patient Chat @patientchat
RT @ADanGrenier: @patientchat CT The main takeaway I think is, the patient needs to advocate for themselves or their loved ones to ensure they get the value they seek out of their care. Working together with healthcare workers and the systems in place is an important way to improve this. #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat T5: I’d also say to those struggling to find their voices, For those who may have a #chronicillness or condition, Reach out to someone with a similar condition like yours who’s story or Advocacy you admire, and ask them for tips on sharing your story. #patientchat
Patient Chat @patientchat
#PatientChat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime.
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @ADanGrenier: @patientchat CT The main takeaway I think is, the patient needs to advocate for themselves or their loved ones to ensure they get the value they seek out of their care. Working together with healthcare workers and the systems in place is an important way to improve this. #patientchat
Lou Waters (she/her) 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇪🇺🏳️‍🌈🏳️‍⚧ @LouWaters_QI
RT @Memej99: @patientchat T5: @patientchat T5: I’d also say to those struggling to find their voices, For those who may have a #chronicillness or condition, Reach out to someone with a similar condition like yours who’s story or Advocacy you admire, and ask them for tips on sharing your story. #patientchat
Patient Chat @patientchat
RT @Memej99: @patientchat T5: @patientchat T5: I’d also say to those struggling to find their voices, For those who may have a #chronicillness or condition, Reach out to someone with a similar condition like yours who’s story or Advocacy you admire, and ask them for tips on sharing your story. #patientchat
Patient Chat @patientchat
Keep the conversation going between chats with hashtag #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat CT: Patient value can be defined in many ways. Sharing your story is helpful in defining your own value and Advocating for yourself will help you to do that. Finding your voice isn’t always easy, but there are people who can and will help you! #patientchat
John Novack @J2Novack
RT @patientchat: T4: T4: Think of current trends such as telemedicine, data wearables, etc. Do you think current trends are adding value to the overall care of patients? #patientchat https://t.co/b1dU1jJmto
Memej99-SickleCellLifeOfMemej @Memej99
RT @patientchat: Keep the conversation going between chats with hashtag #patientchat
Memej99-SickleCellLifeOfMemej @Memej99
@patientchat @power4patients Thank You! Great #patientchat today!🙋🏿‍♀️
Memej99-SickleCellLifeOfMemej @Memej99
RT @ADanGrenier: @patientchat CT The main takeaway I think is, the patient needs to advocate for themselves or their loved ones to ensure they get the value they seek out of their care. Working together with healthcare workers and the systems in place is an important way to improve this. #patientchat
Patient Chat @patientchat
@Memej99 @power4patients Thank you so much, Jemela! #patientchat
#patientchat content from Twitter.