#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
 | Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph Excited to be a part of the #patientchat today. I've been attending a virtual #publichealth conference this week, and we received an update on communication from @CDCgov today. I hope everyone is hanging in there as best as they can. |
 | Andrea @BraveBosom @patientchat @MightyCasey Bat signal!! Please say hello if you can stop by ( : #PatientChat starting now. cc: @ePatientDave @snehadave98 @karenBRCAMTL @wilbanks @draparente @PrescriptionSM @eperakslis |
 | Patient Empowerment Network @power4patients RT @patientchat: You can find info on today’s Empowered #patientchat with @MightyCasey here: You can find info on today’s Empowered #patientchat with @MightyCasey here: https://t.co/fpXwDwJUba |
| Patient Empowerment Network @power4patients RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with others on the topic. |
| Patient Chat @patientchat Happy Friday #patientchat’ers! I’m Kara from @power4patients and I’m very excited about today’s chat with special guest @MightyCasey |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Hello, humans! This one's gon' get ... loud, I think. For "WTF #cyberhygiene" here's some 411: https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey STARTING NOW! #patientchat talking #cyberhygiene w/@MightyCasey + leaders from @BeLikeLight - you don't wanna miss this one! #BeLikeLight https://t.co/yn7pGXAaCY https://t.co/AAZAs04fT6 |
| Andrea @BraveBosom RT @cvhconsulting: Excited to be a part of the #patientchat today. I've been attending a virtual #publichealth conference this week, and we received an update on communication from @CDCgov today. I hope everyone is hanging in there as best as they can. |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: You can find info on today’s Empowered #patientchat with @MightyCasey here: You can find info on today’s Empowered #patientchat with @MightyCasey here: https://t.co/fpXwDwJUba |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Andrea @BraveBosom @cvhconsulting @CDCgov Welcome!! #PatientChat |
| Andrea @BraveBosom RT @patientchat: Join us for an Empowered #patientchat "Cyber Hygiene: Join us for an Empowered #patientchat "Cyber Hygiene: What Is It and Why Does It Matter?" on Friday 3/20 10amPT | 1pmET https://t.co/pK9o3WO3to https://t.co/KYiReul7y1 |
 | Alexa Jett 🦋 @ohhiialexa Hello #patientchat ! It’s wonderful to connect with you all this week. I’m Alexa Jett, at home (of course!) in East Texas. I’m a thyroid cancer survivor, #AYACancer (Adolescent/Young Adult) advocate, and blogger. My cats Sasha and Dewey say “meow!” 😺 |
 | PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: STARTING NOW! #patientchat talking #cyberhygiene w/@MightyCasey + leaders from @BeLikeLight - you don't wanna miss this one! #BeLikeLight https://t.co/yn7pGXAaCY https://t.co/AAZAs04fT6 |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @cvhconsulting: Excited to be a part of the #patientchat today. I've been attending a virtual #publichealth conference this week, and we received an update on communication from @CDCgov today. I hope everyone is hanging in there as best as they can. |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: Hello, humans! This one's gon' get ... loud, I think. For "WTF #cyberhygiene" here's some 411: https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Also @docolainc @GeriLynn @FS_Southwick @pfanderson |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
| Andrea @BraveBosom Starting now. I hope you can join us!!! #PatientChat #BCSM #MedX #HCSM #BTSM #medtwitter #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BraveBosom: Starting now. I hope you can join us!!! #PatientChat #BCSM #MedX #HCSM #BTSM #medtwitter #BeLikeLight |
| Andrea @BraveBosom @cvhconsulting @CDCgov #PatientChat https://t.co/bC3nWISE8M |
 | Jamie Roger @JamieRoger8 hello #PATIENTCHAT going to try to connect today, if my 4 month old allows it haha. Its been awhile. Jamie from CT |
| PF Anderson @pfanderson@disabled.social @pfanderson Patricia here, chiming in for #PatientChat and multitasking while I'm frantically trying to finish a blogpost on keeping calm and managing misinformation |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/fs20NR954d #patientchat |
| Andrea @BraveBosom @JamieRoger8 Solidarity to all parents juggling work and childcare at home right now🌟#PatientChat |
| Andrea @BraveBosom RT @patientchat: You can view our Chat Etiquette and Guidelines at https://t.co/fs20NR954d #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Cyber Hygiene: What Is It and Why Does It Matter? https://t.co/fpXwDwJUba |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph 👋I'm Christie, a #publichealth consultant and founder of https://t.co/vm0fw4fZSv. I'm tweeting from my home office in the beautiful #HudsonValley of NYS. I'm excited to be here today. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey For those of you who wonder who this loud person is ... here's a short snort: #citizenscience, #datarights, #datascience, #healthpolicy, #epatient, #bcsm, journalist, comedy health analyst (yes, really) https://t.co/8mZ6oKfUZH #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
 | Inspire @InspireIsHealth RT @patientchat: I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Jamie Roger @JamieRoger8 This is actually my norm... SAHM and full time remote worker... some days are far easier than others. I definitely have empathy for everyone in this situation NOT by choice right now. #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Inspire @InspireIsHealth Hello to #patientchat, John Novack from Inspire checking in, hoping everyone is coping as well as can be expected. |
| Patient Chat @patientchat T1: What is #CyberHygiene, anyway? #patientchat https://t.co/Y9BxSrRfYA |
 | Eran Kabakov @EranKabakov I am @erankabakov with Docola. We have a care communication platform that is enabled by a crowd sourced clearing house. #patientchat #docola #provideadigitalhumantouch |
| Andrea @BraveBosom Hi everyone! Andrea here. I'm co-founder of The Light Collective, ePatient, and security researcher. More about our roadmap here: https://t.co/Pl4JxQKjwh #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BraveBosom: Hi everyone! Andrea here. I'm co-founder of The Light Collective, ePatient, and security researcher. More about our roadmap here: https://t.co/Pl4JxQKjwh #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @patientchat: T1: T1: What is #CyberHygiene, anyway? #patientchat https://t.co/Y9BxSrRfYA |
| Andrea @BraveBosom @pfanderson Hey there! Welcome. #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @EranKabakov Welcome, Eran!! #patientchat |
 | Rev. Dr. Stacey Simpson Duke @revdrduke Hi @patientchat and fellow chatters. I'm Stacey, living with stage IV leiomyosarcoma in Ann Arbor, Michigan. Currently in treatment (been on chemo for 2+ years) and doing well. Looking forward to this #patientchat |
| Andrea @BraveBosom RT @JamieRoger8: This is actually my norm... SAHM and full time remote worker... some days are far easier than others. I definitely have empathy for everyone in this situation NOT by choice right now. #patientchat |
| Andrea @BraveBosom RT @patientchat: T1: T1: What is #CyberHygiene, anyway? #patientchat https://t.co/Y9BxSrRfYA |
| Patient Empowerment Network @power4patients @BraveBosom @JamieRoger8 Amen. At this point, I feel like people can hear my teens arguing within a 10-15 block radius of our house. In normal circumstances, we try to keep it to within 5 blocks ;) #patientchat |
 | Amanda G @LAlupusLady Hello friends glad I could make it to #patientchat today! https://t.co/Sl4Z6ywsXo |
| Alexa Jett 🦋 @ohhiialexa T1: I had to look it up, which is a good thing! It means practicing good security habits (on multiple levels) to keep your private data safe and reduce threat risks. This is a great term! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: @BraveBosom @JamieRoger8 Amen. At this point, I feel like people can hear my teens arguing within a 10-15 block radius of our house. In normal circumstances, we try to keep it to within 5 blocks ;) #patientchat |
 | Sneha Dave @snehadave98 Hi #patientchat - I won't be able to stay for too long (but thx @BraveBosom for recommending)! I lead @HA_Summit and @CCYANetwork to connect and empower young adults with chronic and rare illnesses). I hope to learn more from my fellow patient community! |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What is #CyberHygiene, anyway? #patientchat https://t.co/Y9BxSrRfYA |
| Jamie Roger @JamieRoger8 do what you have to do haha. #patientchat |
| Andrea @BraveBosom Just like we need to protect ourselves from germs, CyberHygiene is the practice of protecting our digital selves. Here's a quick overview w/ links. #PatientChat https://t.co/WinbJGgY0o |
| Rev. Dr. Stacey Simpson Duke @revdrduke I'm joining from my home, where I'm teleworking (though today is theoretically my day off) while my teenagers occupy themselves with remote learning (in actuality, they're playing the new Animal Crossing). #patientchat |
| Andrea @BraveBosom RT @BraveBosom: Hi everyone! Andrea here. I'm co-founder of The Light Collective, ePatient, and security researcher. More about our roadmap here: https://t.co/Pl4JxQKjwh #patientchat |
| Patient Empowerment Network @power4patients RT @ohhiialexa: T1: T1: I had to look it up, which is a good thing! It means practicing good security habits (on multiple levels) to keep your private data safe and reduce threat risks. This is a great term! #patientchat |
| Andrea @BraveBosom @revdrduke Welcome!!! #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat T1: Keeping your online information safe by taking precautions and making regular changes/updates to passwords, etc! #patientchat |
 | Jill Holdren @JillHoldren Hi everyone! I'm Jill and work with @bravebosom and @MightyCasey on The Light Collective efforts around online patient communities. #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: one of the best resource groups on this is @BeLikeLight - follow @bravebosom too, and @eperakslis, for solid, science-based info on peer community cyber-safety in age of #medmisinfo online (and ever'where else) #patientchat #cyberhygiene #BeLikeLight |
| Inspire @InspireIsHealth RT @BraveBosom: Just like we need to protect ourselves from germs, CyberHygiene is the practice of protecting our digital selves. Here's a quick overview w/ links. #PatientChat https://t.co/WinbJGgY0o |
| Andrea @BraveBosom @JillHoldren @MightyCasey Welcome, my sister from another mister!!! #PatientChat |
 | Sommer Consulting @SommerConsults Happening now on #patientchat 💡 |
| Amanda G @LAlupusLady #PatientChat “cyber hygiene” is nothing new to the immune compromised patient community. “Social distancing” is a new one but I’m used to it. Being vulnerable during a pandemic is not fun, but we can get through this together. |
| Eran Kabakov @EranKabakov I was only introduced to the term Cyber hygiene today, LOVE the term. Been teaching to my girls since they were able to converse #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @BraveBosom: Just like we need to protect ourselves from germs, CyberHygiene is the practice of protecting our digital selves. Here's a quick overview w/ links. #PatientChat https://t.co/WinbJGgY0o |
| Jill Holdren @JillHoldren RT @BraveBosom: Just like we need to protect ourselves from germs, CyberHygiene is the practice of protecting our digital selves. Here's a quick overview w/ links. #PatientChat https://t.co/WinbJGgY0o |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ohhiialexa: T1: T1: I had to look it up, which is a good thing! It means practicing good security habits (on multiple levels) to keep your private data safe and reduce threat risks. This is a great term! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: @patientchat T1: |
| Patient Chat @patientchat RT @MightyCasey: T1: T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
 | David Harlow @healthblawg Lurking & multitasking in Boston #cyberhygiene #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T1: TBH, I'd not actually heard the phrase #CyberHygiene before this #patientchat was announced! But my understanding is that it is about how we keep ourselves (and our organizations) safe in terms of online activity. |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @patientchat Saving this one! #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: T1: T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @EvidenceMatters: @patientchat T1: |
| Andrea @BraveBosom T1: YES. We're especially vulnerable as patients which is why we need to practice #cyberhygeine #PatientChat #BeLikeLight |
| Patient Chat @patientchat Topic 2 (T2:) coming up... #patientchat |
| Patient Empowerment Network @power4patients @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: T1: T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
 | The Light Collective ☀️ @BeLikeLight RT @MightyCasey: T1: T1: one of the best resource groups on this is @BeLikeLight - follow @bravebosom too, and @eperakslis, for solid, science-based info on peer community cyber-safety in age of #medmisinfo online (and ever'where else) #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat T2: How does #CyberHygiene help stop viral misinformation from spreading? #patientchat https://t.co/ogmBFiOKxF |
| Amanda G @LAlupusLady RT @power4patients: @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How does #CyberHygiene help stop viral misinformation from spreading? #patientchat https://t.co/ogmBFiOKxF |
| Eran Kabakov @EranKabakov T1: As a clinician the perspective of CyberHygeine is creating a safe online space for my patients to interact with me all along the care continuum #patientchat |
| Alexa Jett 🦋 @ohhiialexa @power4patients @LAlupusLady Agreed! Patients can feel isolated any day, not just during a pandemic. I think it’s important to have regular online gatherings and support services right now. #patientchat |
| Andrea @BraveBosom RT @MightyCasey: T1: T1: one of the best resource groups on this is @BeLikeLight - follow @bravebosom too, and @eperakslis, for solid, science-based info on peer community cyber-safety in age of #medmisinfo online (and ever'where else) #patientchat #cyberhygiene #BeLikeLight |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @BraveBosom YES. #patientchat https://t.co/LrvU2LO3wK |
| The Light Collective ☀️ @BeLikeLight RT @revdrduke: Hi @patientchat and fellow chatters. I'm Stacey, living with stage IV leiomyosarcoma in Ann Arbor, Michigan. Currently in treatment (been on chemo for 2+ years) and doing well. Looking forward to this #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: First thing all patient #peersupport communities need to work toward is GETTING OFF FACEBOOK. Sadly, yes, really. @BeLikeLight is leading efforts there, shameless plug for project I'm part of 🤣 #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: T2: T2: First thing all patient #peersupport communities need to work toward is GETTING OFF FACEBOOK. Sadly, yes, really. @BeLikeLight is leading efforts there, shameless plug for project I'm part of 🤣 #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: STARTING NOW! #patientchat talking #cyberhygiene w/@MightyCasey + leaders from @BeLikeLight - you don't wanna miss this one! #BeLikeLight https://t.co/yn7pGXAaCY https://t.co/AAZAs04fT6 |
| The Light Collective ☀️ @BeLikeLight #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: On individual level, here's the nugget from that @power4patients post I keep sharing on blast. #patientchat #cyberhygiene #BeLikeLight https://t.co/PMiGnmYBbf |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @MightyCasey: T2: T2: On individual level, here's the nugget from that @power4patients post I keep sharing on blast. #patientchat #cyberhygiene #BeLikeLight https://t.co/PMiGnmYBbf |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph Yes. Thank you, this is so true. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @cvhconsulting: @patientchat T1: @patientchat T1: Keeping your online information safe by taking precautions and making regular changes/updates to passwords, etc! #patientchat |
| Eran Kabakov @EranKabakov T2: I agree with @MightyCasey, but will expand it from leaving Facebook to any other commercial entity that is using patient information for profit #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @power4patients: @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey THIS ALL DAY ⬇️⬇️⬇️⬇️ #patientchat #cyberhygiene |
| Amanda G @LAlupusLady T2 By doing what individuals can, washing their hands and self imposed quarantine, is known as the only way we can do our part to “blunt the severity” of COVID-19 in our world. #patientchat Wash your hands. |
| Amanda G @LAlupusLady RT @ohhiialexa: @power4patients @LAlupusLady Agreed! Patients can feel isolated any day, not just during a pandemic. I think it’s important to have regular online gatherings and support services right now. #patientchat |
| The Light Collective ☀️ @BeLikeLight T2: #PeerSupport communities are a lifeline to so many of us. Unfortunately there is evidence that state actors are targeting these groups with medical misinformation. Our groups are in the trenches working on ways to protect these groups. #BeLikeLight #PatientChat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T2 (cont.): For instance, yesterday, I got a text warning that the WH was about to lock down the whole country & would call in the National Guard everywhere. It immediately sounded to me like a hoax. A quick online check confirmed that. #CyberHygiene #patientchat |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @BeLikeLight @NabbsCreekGnome, reminded me of your adventures in peer support. #patientchat |
| Amanda G @LAlupusLady RT @teaminspire: Hello to #patientchat, John Novack from Inspire checking in, hoping everyone is coping as well as can be expected. |
| The Light Collective ☀️ @BeLikeLight RT @revdrduke: @patientchat T2 (cont.): @patientchat T2 (cont.): For instance, yesterday, I got a text warning that the WH was about to lock down the whole country & would call in the National Guard everywhere. It immediately sounded to me like a hoax. A quick online check confirmed that. #CyberHygiene #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @LAlupusLady: T2 By doing what individuals can, washing their hands and self imposed quarantine, is known as the only way we can do our part to “blunt the severity” of COVID-19 in our world. #patientchat Wash your hands. |
| Eran Kabakov @EranKabakov @revdrduke @patientchat I wish more people did the same. The amount of thoughtless forwarding of misinformation is difficult to work through. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: As longtime #journo, I know how to fact check, but it's not a skill anyone's born with. Here's a great tip sheet from Lexis-Nexis: https://t.co/UfKmFOWlTS #patientchat #cyberhygiene #BeLikeLight |
| Inspire @InspireIsHealth RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @power4patients @LAlupusLady Yes. I love that people are using this term! It is so important to stay connected -- Zoom and Facetime (and Twitter!) are so helpful. #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @EranKabakov: T2: T2: I agree with @MightyCasey, but will expand it from leaving Facebook to any other commercial entity that is using patient information for profit #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BeLikeLight: T2: T2: #PeerSupport communities are a lifeline to so many of us. Unfortunately there is evidence that state actors are targeting these groups with medical misinformation. Our groups are in the trenches working on ways to protect these groups. #BeLikeLight #PatientChat |
| Patient Chat @patientchat RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
 | Seth Rotberg @Srotberg15 RT @ohhiialexa: @power4patients @LAlupusLady Agreed! Patients can feel isolated any day, not just during a pandemic. I think it’s important to have regular online gatherings and support services right now. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @cvhconsulting Thank you! ❤️ #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T2: T2: How does #CyberHygiene help stop viral misinformation from spreading? #patientchat https://t.co/ogmBFiOKxF |
 | Sarah Greene @researchmatters RT @BeLikeLight: T2: T2: #PeerSupport communities are a lifeline to so many of us. Unfortunately there is evidence that state actors are targeting these groups with medical misinformation. Our groups are in the trenches working on ways to protect these groups. #BeLikeLight #PatientChat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T2 (cont.): It's so easy to do online research in this era. I believe our 1st defense against spreading viral misinformation is to have a high level of suspicion; our 2nd defense is to double-check information before passing it on. #CyberHygiene #patientchat |
| Patient Empowerment Network @power4patients RT @revdrduke: @patientchat T2 (cont.): @patientchat T2 (cont.): It's so easy to do online research in this era. I believe our 1st defense against spreading viral misinformation is to have a high level of suspicion; our 2nd defense is to double-check information before passing it on. #CyberHygiene #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up... #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @power4patients @LAlupusLady Excellent point. And good thoughts on how we use language. #PatientChat |
| The Light Collective ☀️ @BeLikeLight T2: We need to get cyberwoke to prevent situations like this from happening to YOUR group. #patientchat #BeLikeLight https://t.co/hqndIXFcsq |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: T2: T2: On individual level, here's the nugget from that @power4patients post I keep sharing on blast. #patientchat #cyberhygiene #BeLikeLight https://t.co/PMiGnmYBbf |
| Seth Rotberg @Srotberg15 I really like the term physical distancing instead of social distancing since we can all still socialize via video calls #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @BraveBosom: Hi everyone! Andrea here. I'm co-founder of The Light Collective, ePatient, and security researcher. More about our roadmap here: https://t.co/Pl4JxQKjwh #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T2 (cont.): @patientchat T2 (cont.): For instance, yesterday, I got a text warning that the WH was about to lock down the whole country & would call in the National Guard everywhere. It immediately sounded to me like a hoax. A quick online check confirmed that. #CyberHygiene #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @Srotberg15: I really like the term physical distancing instead of social distancing since we can all still socialize via video calls #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: When it comes to fact-checking medical information, you MUST make friends with a medical librarian! Hey @pfanderson - where can peeps hunt up a good #medlib buddy? #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: T1: T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat T3: How do people in patient communities online practice #CyberHygiene? #patientchat https://t.co/HBwRH4102V |
| Eran Kabakov @EranKabakov At https://t.co/8SqX8zJOui we developed a platform to enable clinicians to quickly aggregate pertinent information and e-prescribe to patients. This way clinicians can be part of the solution for #Cyberhygiene #patientchat #docola #provideadigitalhumantouch |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: My recommendation to link up w/folx in #medlib community I shared in T2 goes double for T3! #patientchat #cyberhygiene #BeLikeLight |
| Rev. Dr. Stacey Simpson Duke @revdrduke @EranKabakov @patientchat Truly!! And often, I just don't have the time to educate the sender. When I have the time *and* if it's someone who will listen to reason, I do, though. #CyberHygiene #patientchat |
| Alexa Jett 🦋 @ohhiialexa @Srotberg15 Yes! I do think some have taken “social distancing” a bit too far to mean don’t call/text family or friends. #patientchat |
| Patient Empowerment Network @power4patients @cvhconsulting @LAlupusLady Thanks @cvhconsulting! We're going to be pushing out a #PENPowered guide later this afternoon to help people stay connected and engaged. We'll be sure to share it with you and the whole #patientchat community. Please help us share it far and wide. |
| PF Anderson @pfanderson@disabled.social @pfanderson @EranKabakov @revdrduke @patientchat The one I've been fighting this week is the "hairdryer cure for COVID" which not only doesn't work, but ACTUALLY MAKES THINGS WORSE because it spreads the virus all over the place. It's a horrifying piece of misinformation. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: How do people in patient communities online practice #CyberHygiene? #patientchat https://t.co/HBwRH4102V |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A2: It's great for those of us who understand how to search for accurate information to share it with others. Sharing resources directly from the source (@WHO, @CDCgov, and @HopkinsMedicine) is vital right now. #patientchat |
| Patient Empowerment Network @power4patients RT @Srotberg15: I really like the term physical distancing instead of social distancing since we can all still socialize via video calls #patientchat |
 | Diverse Health Hub @DHealthhub RT @patientchat: T2: T2: How does #CyberHygiene help stop viral misinformation from spreading? #patientchat https://t.co/ogmBFiOKxF |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @pfanderson Hey, I want a medical librarian buddy! #patientchat |
| Eran Kabakov @EranKabakov @MightyCasey @pfanderson Yes! @pfanderson i would like to know where to find those #medlib experts #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: @patientchat T2: |
| Alexa Jett 🦋 @ohhiialexa T3: Strong, unique passwords. No clicking on unusual links. Careful about what information shared publicly, especially if it matches a security question on my patient portal/email. #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @ohhiialexa: T3: T3: Strong, unique passwords. No clicking on unusual links. Careful about what information shared publicly, especially if it matches a security question on my patient portal/email. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T3: T3: How do people in patient communities online practice #CyberHygiene? #patientchat https://t.co/HBwRH4102V |
| Patient Empowerment Network @power4patients RT @ohhiialexa: T3: T3: Strong, unique passwords. No clicking on unusual links. Careful about what information shared publicly, especially if it matches a security question on my patient portal/email. #patientchat |
| The Light Collective ☀️ @BeLikeLight T3: Here is a list of experts on Twitter sharing evidence-based knowledge on #Covid19. Who might we add to this list for leaders of ?#PeerSupport groups to follow? https://t.co/ZGUYcqwcHW #patientchat |
| Amanda G @LAlupusLady T3 Earlier this week, instead of going to Capitol Hill @LupusOrg held their 2020 #LupusAdvocacy Digital Summit. Many Zoom calls to connect and plan future events. Being “vulnerable” doesn’t mean that we aren’t passionate. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T3: The FB patient community in which I'm most involved maintains standards around what is posted. If someone tries to share something that is misinformed, uninformed, or unresearched, we challenge them by requesting research-based evidence. #CyberHygiene #patientchat |
| Alexa Jett 🦋 @ohhiialexa @pfanderson @EranKabakov @revdrduke @patientchat People are doing WHAT?? If hair dryers worked, wouldn’t Italy and other heavily affected countries not have the infection/death rates? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa @pfanderson Check out #medlibs t-chat - thank you @healthhashtags !! https://t.co/BIPN3Fvoo0 #patientchat #cyberhygiene |
| PF Anderson @pfanderson@disabled.social @pfanderson @EranKabakov @MightyCasey The #MedLibs hashtag is a great place to find medical librarians. I've truly been spending a huge part of my time this week answering questions from the worried well & worried ill, from ppl w/ tests in progress, ppl sharing bad info, ppl trying to protect loved ones #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @power4patients @LAlupusLady For sure! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @cvhconsulting: @patientchat A2: @patientchat A2: It's great for those of us who understand how to search for accurate information to share it with others. Sharing resources directly from the source (@WHO, @CDCgov, and @HopkinsMedicine) is vital right now. #patientchat |
| Patient Empowerment Network @power4patients RT @EvidenceMatters: |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @ohhiialexa @pfanderson @EranKabakov @revdrduke @patientchat The misinformation is endless. It's killing me, especially on Facebook. #patientchat |
 | Raya Samet is on Mastodon LibraryRaya"at"glammr.us @LibraryRaya RT @cvhconsulting: @patientchat A2: @patientchat A2: It's great for those of us who understand how to search for accurate information to share it with others. Sharing resources directly from the source (@WHO, @CDCgov, and @HopkinsMedicine) is vital right now. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T3 (cont.): On Twitter, I follow a lot of physicians, medical researchers, and public health leaders. I try to amplify information they post that would be helpful for patients who share my diagnosis. Trying to drown out the misinformation out there. #CyberHygiene #patientchat |
| Patient Empowerment Network @power4patients RT @revdrduke: @patientchat T3: @patientchat T3: The FB patient community in which I'm most involved maintains standards around what is posted. If someone tries to share something that is misinformed, uninformed, or unresearched, we challenge them by requesting research-based evidence. #CyberHygiene #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Make sure your community (wherever it is) is vetting new member applicants. There are a huuuuuge number of bad actors (state sponsored or just trolls) out there insinuating themselves into #peersupport groups #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson @revdrduke @patientchat Yes, BUT. Right now people are scared. We don't want to challenge them so much as educate them, in a way that they will hopefully be able to hear us. If they are asking us questions, that's great! How can we lead them to trust us, and ask? #PatientChat |
| Patient Empowerment Network @power4patients RT @BeLikeLight: T3: T3: Here is a list of experts on Twitter sharing evidence-based knowledge on #Covid19. Who might we add to this list for leaders of ?#PeerSupport groups to follow? https://t.co/ZGUYcqwcHW #patientchat |
 | Darla Brown @darlakbrown RT @BeLikeLight: T3: T3: Here is a list of experts on Twitter sharing evidence-based knowledge on #Covid19. Who might we add to this list for leaders of ?#PeerSupport groups to follow? https://t.co/ZGUYcqwcHW #patientchat |
| Alexa Jett 🦋 @ohhiialexa @cvhconsulting @pfanderson @EranKabakov @revdrduke @patientchat I’m still in shock!! #patientchat https://t.co/O2rkrLdk4U |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @pfanderson: @EranKabakov @MightyCasey The #MedLibs hashtag is a great place to find medical librarians. I've truly been spending a huge part of my time this week answering questions from the worried well & worried ill, from ppl w/ tests in progress, ppl sharing bad info, ppl trying to protect loved ones #PatientChat |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: T3: T3: Make sure your community (wherever it is) is vetting new member applicants. There are a huuuuuge number of bad actors (state sponsored or just trolls) out there insinuating themselves into #peersupport groups #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @cvhconsulting: @ohhiialexa @pfanderson @EranKabakov @revdrduke @patientchat The misinformation is endless. It's killing me, especially on Facebook. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up... #patientchat |
| Eran Kabakov @EranKabakov @pfanderson @MightyCasey What is your choice of technology to communicate with everyone now days? There has go to be so much repetition now days #patientchat |
 | Liz Salmi @TheLizArmy RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @cvhconsulting @ohhiialexa @pfanderson @EranKabakov @revdrduke @patientchat Why @BeLikeLight was founded, and what we're working to defeat. #PatientChat |
| The Light Collective ☀️ @BeLikeLight RT @cvhconsulting: @power4patients @LAlupusLady Yes. I love that people are using this term! It is so important to stay connected -- Zoom and Facetime (and Twitter!) are so helpful. #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @power4patients: @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @LAlupusLady: #PatientChat “cyber hygiene” is nothing new to the immune compromised patient community. “Social distancing” is a new one but I’m used to it. Being vulnerable during a pandemic is not fun, but we can get through this together. |
| PF Anderson @pfanderson@disabled.social @pfanderson #PatientChat |
| Darla Brown @darlakbrown RT @power4patients: @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: @ohhiialexa @pfanderson Check out #medlibs t-chat - thank you @healthhashtags !! https://t.co/BIPN3Fvoo0 #patientchat #cyberhygiene |
| Patient Chat @patientchat T4: What’s the connection between privacy and #CyberHygiene? #patientchat https://t.co/kxJGdYGY09 |
| PF Anderson @pfanderson@disabled.social @pfanderson @MightyCasey @ohhiialexa @healthhashtags You can find many good medical librarians through checking the chatlogs of the #Medlibs Twitter Chats #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What’s the connection between privacy and #CyberHygiene? #patientchat https://t.co/kxJGdYGY09 |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews I've been doing so much of this on my own. Actually, did not know about this one. Thanks! It takes a village! #PatientChat #MedLibs |
| Alexa Jett 🦋 @ohhiialexa T4: Privacy should be standard, but cyber hygiene is how we stay there. Just like handwashing and bathing help with infection control, it’s the same with technology. Good habits help in any field. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @EranKabakov @pfanderson I am, in no particular order, using Twitter Signal (encyrpted SMS) Slack Zoom LinkedIn Email Smoke signals (kidding, sort of) Semaphore flags (see above) #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T3 (cont.): @patientchat T3 (cont.): On Twitter, I follow a lot of physicians, medical researchers, and public health leaders. I try to amplify information they post that would be helpful for patients who share my diagnosis. Trying to drown out the misinformation out there. #CyberHygiene #patientchat |
| Eran Kabakov @EranKabakov @EvidenceMatters @ohhiialexa @power4patients @LAlupusLady And Norway Prime Minister gave a children only press conference. Which I loved that she did! https://t.co/k4irtXMm3R #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @pfanderson: @MightyCasey @ohhiialexa @healthhashtags You can find many good medical librarians through checking the chatlogs of the #Medlibs Twitter Chats #PatientChat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @pfanderson @patientchat Yes, totally. It would be so much better, though, if people asked their questions *before* posting misinformation. Because a lot of people will just look at the post or the headline and not wade through the comments challenging it. #CyberHygiene #patientchat |
| The Light Collective ☀️ @BeLikeLight T3: Check out this paper from epidemiologist @eperakslis about employing cybersecurity principles against the threat of #medmisinfo: #PatientChat #Covid19 #BeLikeLight #CyberHygiene https://t.co/EiMYccxdcq |
| PF Anderson @pfanderson@disabled.social @pfanderson @MightyCasey There is new evidence that Russian bots are actively spreading coronavirus misinformation in an attempt to undermine public health here https://t.co/defZMb2rMF #PatientChat |
| Amanda G @LAlupusLady T4 share what you are doing but not the details and locations. Be wary of new friends who want to DM you immediately. Turn off GPS if you can. Find and discover your trusted community. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: T3: T3: Make sure your community (wherever it is) is vetting new member applicants. There are a huuuuuge number of bad actors (state sponsored or just trolls) out there insinuating themselves into #peersupport groups #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat RT @pfanderson: @revdrduke @patientchat Yes, BUT. Right now people are scared. We don't want to challenge them so much as educate them, in a way that they will hopefully be able to hear us. If they are asking us questions, that's great! How can we lead them to trust us, and ask? #PatientChat |
| Alexa Jett 🦋 @ohhiialexa @revdrduke @pfanderson @EranKabakov @patientchat I never got that treatment recommended from my actual oncologists, but I did from people who saw that online. It’s very frustrating! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: We don't have to make tin foil hats, or become Ted Kaczynski (the Unabomber), my longtime rule is "don't put anything online you wouldn't want your mom/spouse to read" #patientchat #cyberhygiene #BeLikeLight |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4: This is a tough one, because we all trade some portion of our privacy for the sake of convenience and/or access. But the issue is even trickier for patients, b/c some of the privacy we're trading is our health and medical information. #CyberHygiene #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BeLikeLight: T3: T3: Check out this paper from epidemiologist @eperakslis about employing cybersecurity principles against the threat of #medmisinfo: #PatientChat #Covid19 #BeLikeLight #CyberHygiene https://t.co/EiMYccxdcq |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: @EranKabakov @pfanderson I am, in no particular order, using Twitter Signal (encyrpted SMS) Slack Zoom LinkedIn Email Smoke signals (kidding, sort of) Semaphore flags (see above) #patientchat #cyberhygiene #BeLikeLight |
| Amanda G @LAlupusLady It ain’t easy being green. You are not alone. |
| The Light Collective ☀️ @BeLikeLight Here's the backstory!! Our goal is to equip #peersupport groups with with tools and practices to counter #MedMisinfo and protect privacy. https://t.co/WmxJ3CLv1D #BeLikeLight #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @LAlupusLady: T4 share what you are doing but not the details and locations. Be wary of new friends who want to DM you immediately. Turn off GPS if you can. Find and discover your trusted community. #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @LAlupusLady: T4 share what you are doing but not the details and locations. Be wary of new friends who want to DM you immediately. Turn off GPS if you can. Find and discover your trusted community. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T4: T4: What’s the connection between privacy and #CyberHygiene? #patientchat https://t.co/kxJGdYGY09 |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4 (cont): I have gladly and willingly shared my own health updates v openly - it has helped me get info, help, and support I don't think I otherwise would've had access to, *and* it has sometimes been a source of info/help/support to other patients. #CyberHygiene #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @MightyCasey @EranKabakov We had a conversation about that yesterday. Don't forget text messages, FaceTime, Zoom alternatives, virtual worlds, Facebook, Google Docs/Sheets, blogs, and more. #PatientChat |
| Alexa Jett 🦋 @ohhiialexa Humor helps with information! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EranKabakov: @EvidenceMatters @ohhiialexa @power4patients @LAlupusLady And Norway Prime Minister gave a children only press conference. Which I loved that she did! https://t.co/k4irtXMm3R #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @cvhconsulting: @patientchat T1: @patientchat T1: Keeping your online information safe by taking precautions and making regular changes/updates to passwords, etc! #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @ohhiialexa: Humor helps with information! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: Put another way, something I've said to clients for two decades - "don't put anything in a digital message you wouldn't be OK seeing on Page 1, above the fold, of the NY Times" #patientchat #cyberhygiene |
| PF Anderson @pfanderson@disabled.social @pfanderson @EranKabakov @EvidenceMatters @ohhiialexa @power4patients @LAlupusLady That's amazing. I'm awed #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @EvidenceMatters @pfanderson @EranKabakov @revdrduke @patientchat @firstdraftnews I'm sure your resource is great, @EvidenceMatters. I still think best-practice is sharing resources directly from @CDCgov, @WHO, and @HopkinsMedicine. #patientchat |
 | Donna Cryer @DCPatient RT @LAlupusLady: T4 share what you are doing but not the details and locations. Be wary of new friends who want to DM you immediately. Turn off GPS if you can. Find and discover your trusted community. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4 (cont): But at what cost? For some ppl, sharing their health deets could jeopardize their employment, their health insurance, and/or their relationships. So it's a calculated risk. #CyberHygiene #patientchat |
| Donna Cryer @DCPatient RT @ohhiialexa: T3: T3: Strong, unique passwords. No clicking on unusual links. Careful about what information shared publicly, especially if it matches a security question on my patient portal/email. #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: T4: T4: Put another way, something I've said to clients for two decades - "don't put anything in a digital message you wouldn't be OK seeing on Page 1, above the fold, of the NY Times" #patientchat #cyberhygiene |
| Donna Cryer @DCPatient RT @power4patients: @LAlupusLady We've been using the term "Physical Distancing" instead of "Social Distancing". During this crazy time it's more important than ever to stay socially connected (albeit virtually) to maintain and protect our #Mentalhealth Thoughts? #patientchat |
| Alexa Jett 🦋 @ohhiialexa @EranKabakov @EvidenceMatters @power4patients @LAlupusLady Oh, that is so wonderful! We can’t forget that this is a very scary time for children (and adults too)! #patientchat |
 | Duke Forge @DukeForge RT @BeLikeLight: Here's the backstory!! Our goal is to equip #peersupport groups with with tools and practices to counter #MedMisinfo and protect privacy. https://t.co/WmxJ3CLv1D #BeLikeLight #PatientChat |
 | The Lupus Rainbow @thelupusrainbow RT @MightyCasey: T3: T3: Make sure your community (wherever it is) is vetting new member applicants. There are a huuuuuge number of bad actors (state sponsored or just trolls) out there insinuating themselves into #peersupport groups #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson @revdrduke @patientchat It's kind of exhausting for me when I post an evidence-based correction, and get challenged on it. Obviously, I have the evidence and can explain it, but it's still exhausting. #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Just because @eperakslis isn't here doesn't mean we can't hear from him - here's the @hilarious_is w/him from Feb. 6! https://t.co/M2381WVwEq #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat Last topic (T5:) coming up... #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @BeLikeLight: T3: T3: Check out this paper from epidemiologist @eperakslis about employing cybersecurity principles against the threat of #medmisinfo: #PatientChat #Covid19 #BeLikeLight #CyberHygiene https://t.co/EiMYccxdcq |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4 (cont): Of course most of us patients are used to having to make decisions based on a cost/benefit analysis! #CyberHygiene #patientchat |
| The Lupus Rainbow @thelupusrainbow RT @MightyCasey: THIS ALL DAY ⬇️⬇️⬇️⬇️ #patientchat #cyberhygiene |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews Which is why resources like this are a godsend. I was afraid I was going to have to make one. #PatientChat |
| Patient Chat @patientchat T5: What’s the connection between #COVID19 and #CyberHygiene? #patientchat https://t.co/zqkeiFwXNh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ohhiialexa: @revdrduke @pfanderson @EranKabakov @patientchat I never got that treatment recommended from my actual oncologists, but I did from people who saw that online. It’s very frustrating! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: What’s the connection between #COVID19 and #CyberHygiene? #patientchat https://t.co/zqkeiFwXNh |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: T4: T4: We don't have to make tin foil hats, or become Ted Kaczynski (the Unabomber), my longtime rule is "don't put anything online you wouldn't want your mom/spouse to read" #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T4: @patientchat T4: This is a tough one, because we all trade some portion of our privacy for the sake of convenience and/or access. But the issue is even trickier for patients, b/c some of the privacy we're trading is our health and medical information. #CyberHygiene #patientchat |
| The Light Collective ☀️ @BeLikeLight T4: In the #infosec (i.e. cybersecurity) world, ethical hackers think about how health data is handled. Follow: @iamthecavalry and @_DiMeSociety to learn more about resources being created in this space. #PatientChat #BeLikeLight |
| Eran Kabakov @EranKabakov T4: I think it is important to re-think the definition of privacy. The origin was a physical concept. e-privacy is much more complicated. I look for transparency to evaluate my e-privacy state #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T4 (cont): @patientchat T4 (cont): I have gladly and willingly shared my own health updates v openly - it has helped me get info, help, and support I don't think I otherwise would've had access to, *and* it has sometimes been a source of info/help/support to other patients. #CyberHygiene #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @BeLikeLight: T3: T3: Check out this paper from epidemiologist @eperakslis about employing cybersecurity principles against the threat of #medmisinfo: #PatientChat #Covid19 #BeLikeLight #CyberHygiene https://t.co/EiMYccxdcq |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4: Another point of connection b/t privacy & #CyberHygiene is the issue of patient medical records. I believe I'm the rightful owner of *all* of my information, and I should have access to it. It should also be easy for medical institutions of my choosing to access. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T5: While we are facing a pandemic in #COVID19 , we must not neglect our cyber hygiene at any level. Privacy is ALWAYS important, and must be safe guarded. Patients must continue to be vigilant as well. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @revdrduke @patientchat Me, too, and that's what I've been doing on Facebook with my quarantine journey. Has proven to be a lightning rod for people with questions and needing clarification. #PatientChat |
| Alexa Jett 🦋 @ohhiialexa RT @revdrduke: @patientchat T4: @patientchat T4: Another point of connection b/t privacy & #CyberHygiene is the issue of patient medical records. I believe I'm the rightful owner of *all* of my information, and I should have access to it. It should also be easy for medical institutions of my choosing to access. #patientchat |
| Sommer Consulting @SommerConsults RT @Srotberg15: I really like the term physical distancing instead of social distancing since we can all still socialize via video calls #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T4 (cont): But there are some health-related corporations that are trying to block this based on so-called "privacy" concerns. I don't actually believe they're concerned abt our privacy; I think it's about $. Every patient should have full access to his/her own data. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: HUGE global test of humanity's ability to work together to save our species. No, not hyperbole, reality. This thread will have some of my go-to sources for reliable intel on #covid19 Here's US state stats: https://t.co/ydgKQ3hEVM #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight T4: We often hear "privacy is dead." In the world of #PeerSupport, we need to start thinking about how privacy can lead to loss of life when our rights are abused. #PatientChat #BeLikeLight |
 | AllStripes @_allstripes We love this! May we continue to stay connected during this distance. #covid19 |
| Patient Empowerment Network @power4patients @patientchat We created this resource for our Network to help separate #COVID19 fact from fiction #patientchat https://t.co/hpfEFXnsMV |
 | Spectrum One @GlenBrundage RT @patientchat: T4: T4: What’s the connection between privacy and #CyberHygiene? #patientchat https://t.co/kxJGdYGY09 |
| The Light Collective ☀️ @BeLikeLight RT @power4patients: @patientchat We created this resource for our Network to help separate #COVID19 fact from fiction #patientchat https://t.co/hpfEFXnsMV |
| Patient Empowerment Network @power4patients RT @ohhiialexa: T5: T5: While we are facing a pandemic in #COVID19 , we must not neglect our cyber hygiene at any level. Privacy is ALWAYS important, and must be safe guarded. Patients must continue to be vigilant as well. #patientchat |
| The Light Collective ☀️ @BeLikeLight Excellent resource!! #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine The problem with this is that these top level source don't tend to share the cutting edge information that is good or address flurry of misunderstandings. They say "do this" but don't always explain why, don't address nuances leading susceptible folk down rabbitholes #PatientChat |
| Eran Kabakov @EranKabakov Such an important source for people during #covid19 |
| Inspire @InspireIsHealth RT @MightyCasey: T5: T5: HUGE global test of humanity's ability to work together to save our species. No, not hyperbole, reality. This thread will have some of my go-to sources for reliable intel on #covid19 Here's US state stats: https://t.co/ydgKQ3hEVM #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight Absolutely. How might we make sure those of us in the trenches quickly share knowledge back with those who can help and protect our #PeerSupport groups? #PatientChat #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Absolutely, share the good information! But when it doesn't actually address the specific question, have to go deeper or elsewhere. Also important to have conversation around WHY they are asking that question #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Our buddy @eperakslis on the Duke Forge blog w/a primer for bio-defense in a pandemic: https://t.co/Irq2g2RLcO #patientchat #cyberhygiene #BeLikeLight |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T5: The level of misinformation about #COVID19 and the ease with which it is spread is an issue of #CyberHygiene. Following doctors, medical researchers, and public health leaders on Twitter is one of the best remedies for this, imho. #patientchat |
| Amanda G @LAlupusLady T5 Everything is connected. Think the world is smaller than we realize and this pandemic will change perspective. Everyone should recognize this and acknowledge in all ways we are “connected” Thanks @MightyCasey for today’s #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @LAlupusLady: T5 Everything is connected. Think the world is smaller than we realize and this pandemic will change perspective. Everyone should recognize this and acknowledge in all ways we are “connected” Thanks @MightyCasey for today’s #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T4 (cont): @patientchat T4 (cont): But at what cost? For some ppl, sharing their health deets could jeopardize their employment, their health insurance, and/or their relationships. So it's a calculated risk. #CyberHygiene #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: @patientchat T3: @DG_Rand has an interesting paper: "Fighting COVID-19 misinformation on social media: |
| Diverse Health Hub @DHealthhub RT @patientchat: T5: T5: What’s the connection between #COVID19 and #CyberHygiene? #patientchat https://t.co/zqkeiFwXNh |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @patientchat @DG_Rand Great find! #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: https://t.co/sHBBJ6NmDt #patientchat #cyberhygiene #BeLikeLight |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @power4patients @patientchat Thank you for doing this! I think it's important to note that not all .org sites have the most up to date and valid information. I love the other listed information. #patientchat |
| Patient Empowerment Network @power4patients RT @LAlupusLady: T5 Everything is connected. Think the world is smaller than we realize and this pandemic will change perspective. Everyone should recognize this and acknowledge in all ways we are “connected” Thanks @MightyCasey for today’s #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T5 (cont): And making sure to go beyond just U.S.-based experts in these fields - Twitter made it easy to learn firsthand abt the experience of HCW in Italy, for instance, long before US media picked up the story. #CyberHygiene #patientchat |
| Patient Chat @patientchat RT @MightyCasey: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: https://t.co/sHBBJ6NmDt #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @EranKabakov @ohhiialexa @power4patients @LAlupusLady Awesome! Thanks! Learning a ton today, seeing resources shared beyond where I've been looking (which is right now mostly either hard core medical or mainstream media) #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey One of my go-to MD humans on all things evidence and science, @aaronecarroll, with @ashishkjha in @TheAtlantic https://t.co/5YG62GxrUp #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight Absolutely! Many high risk patients are facing lack of resources to support each other through #COVID19. Regardless of what platform you are on.... #PeerSupport groups support each other! #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: |
| Patient Empowerment Network @power4patients @cvhconsulting @patientchat Good point, thanks for raising it. We'll amend asap. #patientchat |
 | U-M Rogel Cancer Center @UMRogelCancer RT @revdrduke: @patientchat T5: @patientchat T5: The level of misinformation about #COVID19 and the ease with which it is spread is an issue of #CyberHygiene. Following doctors, medical researchers, and public health leaders on Twitter is one of the best remedies for this, imho. #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: One of my go-to MD humans on all things evidence and science, @aaronecarroll, with @ashishkjha in @TheAtlantic https://t.co/5YG62GxrUp #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @LAlupusLady: T5 Everything is connected. Think the world is smaller than we realize and this pandemic will change perspective. Everyone should recognize this and acknowledge in all ways we are “connected” Thanks @MightyCasey for today’s #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @MightyCasey: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: https://t.co/sHBBJ6NmDt #patientchat #cyberhygiene #BeLikeLight |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Yes. If it's not on these sites, there's a good chance there it's not true or they don't have data on it yet. Given the times we live in, sometimes "we don't know yet" has to suffice. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T5 (cont): Though the level of noise and misinformation is high, our cyberconnection actually makes it easier than ever to do basic research and to learn directly from actual experts. In other words, #CyberHygiene isn't just about defense; it can be proactive. #patientchat |
| Andrea @BraveBosom RT @snehadave98: Hi #patientchat - I won't be able to stay for too long (but thx @BraveBosom for recommending)! I lead @HA_Summit and @CCYANetwork to connect and empower young adults with chronic and rare illnesses). I hope to learn more from my fellow patient community! |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews YES!!! This!! And answering and soothing in public for one person has been getting read and shared by many others. Creating a network of calm, informed people. #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @power4patients @patientchat Thank you for being open to feedback! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: T5: T5: HUGE global test of humanity's ability to work together to save our species. No, not hyperbole, reality. This thread will have some of my go-to sources for reliable intel on #covid19 Here's US state stats: https://t.co/ydgKQ3hEVM #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @cvhconsulting: @power4patients @patientchat Thank you for doing this! I think it's important to note that not all .org sites have the most up to date and valid information. I love the other listed information. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @power4patients: @patientchat We created this resource for our Network to help separate #COVID19 fact from fiction #patientchat https://t.co/hpfEFXnsMV |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Some very practical tips on cleaning ALL OF THE THINGS in our #COVID19 world, from @WIRED https://t.co/9H1cdyH8uo #patientchat #cyberhygiene #BeLikeLight |
| Amanda G @LAlupusLady RT @MightyCasey: Some very practical tips on cleaning ALL OF THE THINGS in our #COVID19 world, from @WIRED https://t.co/9H1cdyH8uo #patientchat #cyberhygiene #BeLikeLight |
| U-M Rogel Cancer Center @UMRogelCancer Great point @revdrduke! We're working hard to provide well sourced information about #COVID19 to our audiences. @theNCI and @ACSNews has a wealth of information specifically for #cancer patients. And there's lots of great reporting, also, from the country's top news outlets. |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @Srotberg15 I would like to hear more about how this is working. My choir is also trying to practice over Zoom. Tricky! #PatientChat |
| Alexa Jett 🦋 @ohhiialexa @revdrduke @patientchat This brings up a good point for me. Even with social media showing us Italy’s #COVID19 realities, why didn’t society (and still don’t) heed the warnings? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @revdrduke: @patientchat T5: @patientchat T5: The level of misinformation about #COVID19 and the ease with which it is spread is an issue of #CyberHygiene. Following doctors, medical researchers, and public health leaders on Twitter is one of the best remedies for this, imho. #patientchat |
| Andrea @BraveBosom Wow excellent resource. I look forward to digging in and learning about this more! #PatientChat |
 | Liza B @itsthebunk RT @MightyCasey: T5: T5: HUGE global test of humanity's ability to work together to save our species. No, not hyperbole, reality. This thread will have some of my go-to sources for reliable intel on #covid19 Here's US state stats: https://t.co/ydgKQ3hEVM #patientchat #cyberhygiene #BeLikeLight |
| PF Anderson @pfanderson@disabled.social @pfanderson @BeLikeLight I would like to see a collaborative document co-editing and shared. So a bunch of us who are doing this can do it together in real time, and have a central information sharing place to go #PatientChat |
| Alexa Jett 🦋 @ohhiialexa @pfanderson @EvidenceMatters @Srotberg15 Choir practice over Zoom? I love it! I did exercise class over Zoom. We just have to get creative. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @revdrduke @ohhiialexa @pfanderson @EranKabakov @patientchat It's so true. I had to walk away. People I respect sharing shit articles pushed me over the edge. We have to take care of ourselves! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @BeLikeLight Example: Resources by and for Disability Communities in the Time of COVID-19 https://t.co/9ZjLcajqgZ #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: Our buddy @eperakslis on the Duke Forge blog w/a primer for bio-defense in a pandemic: Our buddy @eperakslis on the Duke Forge blog w/a primer for bio-defense in a pandemic: https://t.co/Irq2g2RLcO #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Bottom line, for me, is always "start where you are, use what you have, do what you can" on ... anything. For #COVID19, physical distancing combined w/digital touch/outreach is keeping me sane. Kindness = salvation. #patientchat #cyberhygiene #BeLikeLight |
| Amanda G @LAlupusLady RT @MightyCasey: T5: T5: Bottom line, for me, is always "start where you are, use what you have, do what you can" on ... anything. For #COVID19, physical distancing combined w/digital touch/outreach is keeping me sane. Kindness = salvation. #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat Thanks so much @MightyCasey for sharing your insights and being our special guest for today’s #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @revdrduke @patientchat Yes, BUT. Again. I really would like to see healthcare professionals stop saying things like "I'm freaked out" and instead say, "Yes, it's scary, and I worry, too, but this is what I'm doing." #PatientChat |
| The Light Collective ☀️ @BeLikeLight Here is a fantastic open source resource developed by @CatchTheBaby. How might we include resources for digital PPE to protect ourselves online and practice good #CyberHygiene during #COVID19 response? #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @revdrduke: @patientchat T5: @patientchat T5: The level of misinformation about #COVID19 and the ease with which it is spread is an issue of #CyberHygiene. Following doctors, medical researchers, and public health leaders on Twitter is one of the best remedies for this, imho. #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @pfanderson: @BeLikeLight Example: @BeLikeLight Example: Resources by and for Disability Communities in the Time of COVID-19 https://t.co/9ZjLcajqgZ #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: From our buddies at #HCLDR (hi @Colin_Hung !!) a recent t-chat on medical misinformation is highly useful: https://t.co/sHBBJ6NmDt #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @pfanderson: @BeLikeLight I would like to see a collaborative document co-editing and shared. So a bunch of us who are doing this can do it together in real time, and have a central information sharing place to go #PatientChat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime. |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @MightyCasey: One of my go-to MD humans on all things evidence and science, @aaronecarroll, with @ashishkjha in @TheAtlantic https://t.co/5YG62GxrUp #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Alexa Jett 🦋 @ohhiialexa Thank you to @patientchat, @power4patients, @MightyCasey, @BeLikeLight, and everyone else for #patientchat today! |
| Inspire @InspireIsHealth RT @BeLikeLight: Here is a fantastic open source resource developed by @CatchTheBaby. How might we include resources for digital PPE to protect ourselves online and practice good #CyberHygiene during #COVID19 response? #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa @revdrduke @patientchat IMO too much finger-waving on statistics, too little relatable human storytelling. IOW, "here's how to keep nona (grandmom) safe" plays better than "DON'T TOUCH NONA" - humans are herd/pack animals who tell stories to interpret the world. #patientchat #COVID19 #cyberhygiene |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BeLikeLight: Here is a fantastic open source resource developed by @CatchTheBaby. How might we include resources for digital PPE to protect ourselves online and practice good #CyberHygiene during #COVID19 response? #PatientChat |
| Inspire @InspireIsHealth RT @MightyCasey: T5: T5: Bottom line, for me, is always "start where you are, use what you have, do what you can" on ... anything. For #COVID19, physical distancing combined w/digital touch/outreach is keeping me sane. Kindness = salvation. #patientchat #cyberhygiene #BeLikeLight |
| Patient Chat @patientchat @ohhiialexa @power4patients @MightyCasey @BeLikeLight Thank you for joining! Hope you have a great weekend #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Saying "We don't know yet" is not an answer that will comfort the folk who are scared. They need a richer conversation. If we don't do that with and for them, they will do it themselves. And that's what's happening. #PatientChat |
| The Light Collective ☀️ @BeLikeLight Breaking news relevant to our discussions. Follow: @AndreaCoravos. #PatientChat |
| Patient Chat @patientchat We’ll be back in two weeks for another Empowered #patientchat. Hope to see you there! |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey WHOA DANG THAT FLEW BY FAST 🤣🤣🤣🤣 #patientchat #cyberhygiene #BeLikeLight |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BeLikeLight: Breaking news relevant to our discussions. Follow: Breaking news relevant to our discussions. Follow: @AndreaCoravos. #PatientChat |
| Rev. Dr. Stacey Simpson Duke @revdrduke RT @UMRogelCancer: Great point @revdrduke! We're working hard to provide well sourced information about #COVID19 to our audiences. @theNCI and @ACSNews has a wealth of information specifically for #cancer patients. And there's lots of great reporting, also, from the country's top news outlets. |
| The Light Collective ☀️ @BeLikeLight Thank you so much #PatientChat for hosting this critical discussion about #CyberHygiene! #COVID19 #BeLikeLight @MightyCasey |
| PF Anderson @pfanderson@disabled.social @pfanderson @MightyCasey @WIRED And here I am writing a post where I assure people they don't need to, except for self-soothing or under specific circumstances #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Have you looked at the @WHO resources? They have some great myth-buster posts. Maybe not everything you're looking for, but still helpful: https://t.co/lUcfmPQvOK #patientchat |
| Andrea @BraveBosom RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| Andrea @BraveBosom RT @EvidenceMatters: |
| Patient Chat @patientchat @BeLikeLight @MightyCasey So happy you could join today! #patientchat |
| Andrea @BraveBosom RT @EvidenceMatters: |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @revdrduke @patientchat Wow, excellent. I’m more a hard data learner, and this was a great reminder that storytelling/emotions is a great educational resource. (Don’t touch Nona still!! 😂) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @pfanderson @WIRED HAHAHAHAHA! True, but cleaning can be definitely self-soothing. Just don't breath in bleach fumes!!! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @ohhiialexa @revdrduke @patientchat How to keep nona safe is an easier sell 🤣🤣 #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Yep! I'm using them. Just saying that limiting our responses to only the party line won't work for all people or in all circumstances. MUST be open to conversations that start where the person is at, and work from there. #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BeLikeLight: Thank you so much #PatientChat for hosting this critical discussion about #CyberHygiene! #COVID19 #BeLikeLight @MightyCasey |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @EvidenceMatters: |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @revdrduke @patientchat #KeepNonaSafe ! 😂😂 #patientchat |
| The Light Collective ☀️ @BeLikeLight RT @revdrduke: @patientchat T2: @patientchat T2: One basic #CyberHygiene habit I practice is not to pass on a post, a text, or a graphic, without double-checking its validity. I maintain a high level of suspicion, especially for things that stoke alarmism (or things that sound too good to be true!). #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @EvidenceMatters @cvhconsulting @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine There. Thank you. Yes. We have to be willing to have these conversations with people in a way that will reassure them. Not just shut down the conversation. Need to not just point them to resources, but translate, explain, interpret, navigate how this applies to them #PatientChat |
| Andrea @BraveBosom RT @BeLikeLight: Thank you so much #PatientChat for hosting this critical discussion about #CyberHygiene! #COVID19 #BeLikeLight @MightyCasey |
| Andrea @BraveBosom RT @BeLikeLight: Breaking news relevant to our discussions. Follow: Breaking news relevant to our discussions. Follow: @AndreaCoravos. #PatientChat |
| Andrea @BraveBosom RT @pfanderson: @BeLikeLight I would like to see a collaborative document co-editing and shared. So a bunch of us who are doing this can do it together in real time, and have a central information sharing place to go #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Then we're not being honest. We can acknowledge people's fear without giving them misinformation for the sake of giving them information. That is dangerous. #patientchat |
| Andrea @BraveBosom RT @MightyCasey: T1: T1: I'm not sharing this just because I wrote it for @power4patients - it's part of my #healthliteracy mission to make sure digital information is sound, science-based, and CURRENT. https://t.co/Nkq81SEhG3 #patientchat #cyberhygiene #BeLikeLight |
| Andrea @BraveBosom RT @cvhconsulting: @patientchat T1: @patientchat T1: Keeping your online information safe by taking precautions and making regular changes/updates to passwords, etc! #patientchat |
| Alexa Jett 🦋 @ohhiialexa @revdrduke @patientchat Good point. @marklewismd has been an awesome resource during #COVID19 and has gifted my feed with iconic tweets. Dr. Lewis, might need to get you on TV ASAP!! #patientchat |
| Andrea @BraveBosom RT @Srotberg15: I really like the term physical distancing instead of social distancing since we can all still socialize via video calls #patientchat |
| Andrea @BraveBosom RT @BeLikeLight: Here is a fantastic open source resource developed by @CatchTheBaby. How might we include resources for digital PPE to protect ourselves online and practice good #CyberHygiene during #COVID19 response? #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine I didn't say we should shut down the conversation. I said we should be careful not to give information for the sake of giving information if we don't have data. I agree 120% that we have to reassure people and help to explain. #patientchat |
| Andrea @BraveBosom RT @revdrduke: Hi @patientchat and fellow chatters. I'm Stacey, living with stage IV leiomyosarcoma in Ann Arbor, Michigan. Currently in treatment (been on chemo for 2+ years) and doing well. Looking forward to this #patientchat |
| Alexa Jett 🦋 @ohhiialexa @EvidenceMatters @MightyCasey @revdrduke @patientchat Very interesting, thanks! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Ah, okay. You see, I encounter an awful lot of people who were handed the official sources by an HCP, and the conversation stopped right there. At that point, they go off on their own. I'm grateful when they ask me. #PatientChat |
| Andrea @BraveBosom RT @UMRogelCancer: Great point @revdrduke! We're working hard to provide well sourced information about #COVID19 to our audiences. @theNCI and @ACSNews has a wealth of information specifically for #cancer patients. And there's lots of great reporting, also, from the country's top news outlets. |
| Andrea @BraveBosom RT @revdrduke: @patientchat T5: @patientchat T5: The level of misinformation about #COVID19 and the ease with which it is spread is an issue of #CyberHygiene. Following doctors, medical researchers, and public health leaders on Twitter is one of the best remedies for this, imho. #patientchat |
| Andrea @BraveBosom RT @ohhiialexa: @revdrduke @patientchat This brings up a good point for me. Even with social media showing us Italy’s #COVID19 realities, why didn’t society (and still don’t) heed the warnings? #patientchat |
| Andrea @BraveBosom RT @EvidenceMatters: |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @pfanderson @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine Glad we clarified that -- it's not what I'm saying. I hosted a Myth Buster webinar earlier this week. It was a great way to provide information in a safe and fun way. I had time for Q&A at the end. I'm also grateful when people ask me! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @cvhconsulting @EvidenceMatters @EranKabakov @revdrduke @patientchat @firstdraftnews @CDCgov @WHO @HopkinsMedicine I never ever recommended giving people misinformation. I'm a librarian, for pity's sake. I'm just saying there is more information than what is available from the big sources, and not to stop with those. I end up helping a lot of patients whose docs stopped there #PatientChat |
| Patient Empowerment Network @power4patients RT @MightyCasey: Some very practical tips on cleaning ALL OF THE THINGS in our #COVID19 world, from @WIRED https://t.co/9H1cdyH8uo #patientchat #cyberhygiene #BeLikeLight |
| The Light Collective ☀️ @BeLikeLight RT @EvidenceMatters: |
| The Light Collective ☀️ @BeLikeLight RT @BeLikeLight: Here is a fantastic open source resource developed by @CatchTheBaby. How might we include resources for digital PPE to protect ourselves online and practice good #CyberHygiene during #COVID19 response? #PatientChat |
#patientchat content from Twitter.