#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest
Alan Brewington @abrewi3010
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Science37x @Science37x
RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/lRhU0PEGMz #patientchat
Science37x @Science37x
RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/9m9nTL83Mi
Science37x @Science37x
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hr. You can engage w/others…
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Healthcare Scene @HealthcareScene
RT @power4patients: Gotta run and get ready for #patientchat, thank you for a great #HITsm chat @HealthcareScene
Heather McCullen @H_SalemOaks
Hi #patientchat. Joining from Ann Arbor(-ish) representing @SalemOaks.
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat on #ClinicalTrials
Dr. P @not_defeated
I'm looking forward to my first #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
Hello all. I'm Shereese from Maryland #patientchat https://t.co/GEgbYz1bpl
Science37x @Science37x
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Kevin J. Fowler @gratefull080504
@gratefull080504 checking in from Chicago President Voice of the Patient I have spent over 2 years professional building awareness of #raredisease clinical trial #patientchat https://t.co/idb4PYbvi5
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Barby Ingle 📣 @BarbyIngle
I am @BarbyIngle. I am an ambassador for #cureclick and #HeroLinx clinical trial coordinators to help raise awareness about current trials being conducted for #ChronicPain diseases. #patientchat https://t.co/lOsTx3uq8V
Kareo @GoKareo
Hello #PatientChat @GoKareo stopping by the chat today
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking w/a doctor who's familiar w/your medical needs & history #patientchat
Alan Brewington @abrewi3010
Alan here. I’m a #rheum #chronicpain #mentalhealth patient who has a #photography habit as part of my story. #patientchat https://t.co/Ega80UzF2H
Nerdy Zebra @nerdymedzebra
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Richard Kreis @kreisr1
Teifecta Richard here, i care for mom (cardiac, pulmonary), BIL (epilepsy) and self (RCPS). Looking for a great chat. #patientchat #patientchat
Richard Kreis @kreisr1
RT @patientchat: Today's chat is solely informational and not a substitute for speaking w/a doctor who's familiar w/your medical needs & hi…
Mighty Casey Quinlan @MightyCasey
HAAAAIIII - Casey Q here, calling in from Jimbobwe, uh, Richmond VA. Health literacy + science maven. Write about #clinicalresearch + #citizenscience frequently. #patientchat
Nerdy Zebra @nerdymedzebra
RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/lRhU0PEGMz #patientchat
Richard Kreis @kreisr1
RT @BarbyIngle: I am @BarbyIngle. I am an ambassador for #cureclick and #HeroLinx clinical trial coordinators to help raise awareness about…
Jack Aiello @JackMAiello
Jack joining, active patient advocate but can only stay on 1/2 hour due to Stanford mtg about the same topic #patientchat
Richard Kreis @kreisr1
RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Richard Kreis @kreisr1
RT @abrewi3010: Alan here. I’m a #rheum #chronicpain #mentalhealth patient who has a #photography habit as part of my story. #patientchat h…
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/9m9nTL83Mi #patientchat
Science37x @Science37x
Hi #patientchat! We are https://t.co/4x77sdTJUP! What a great topic today! Looking forward to the conversation!
Vera Rulon FAHIMA @vrulon
Vera here from New York. Have worked in pharma, provider, payer, now have my own business #patientchat
Richard Kreis @kreisr1
RT @Science37x: Hi #patientchat! We are https://t.co/4x77sdTJUP! What a great topic today! Looking forward to the conversation!
Richard Kreis @kreisr1
RT @patientchat: I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat on #ClinicalTrials
Richard Kreis @kreisr1
RT @H_SalemOaks: Hi #patientchat. Joining from Ann Arbor(-ish) representing @SalemOaks.
Geeky Fox @TechKitsune
Geeky Fox here, I'm a Healthcare IT marketing nerd.#patientchat
Richard Kreis @kreisr1
RT @JackMAiello: Jack joining, active patient advocate but can only stay on 1/2 hour due to Stanford mtg about the same topic #patientchat
Richard Kreis @kreisr1
RT @GoKareo: Hello #PatientChat @GoKareo stopping by the chat today
Richard Kreis @kreisr1
RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/lRhU0PEGMz #patientchat
Patient Chat @patientchat
Today's #patientchat topic is Overcoming Disparity in Clinical Trials
Richard Kreis @kreisr1
RT @not_defeated: I'm looking forward to my first #patientchat
Richard Kreis @kreisr1
RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/9m9nTL83Mi
Richard Kreis @kreisr1
RT @power4patients: Gotta run and get ready for #patientchat, thank you for a great #HITsm chat @HealthcareScene
Richard Kreis @kreisr1
RT @patientchat: Here’s some handy articles on participating in tweet chats: 1) https://t.co/KMfOQkYb9y and 2) https://t.co/hTxvLlyETu #pat
Richard Kreis @kreisr1
RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/9m9nTL83Mi #patientchat
Richard Kreis @kreisr1
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hr. You can engage w/others…
Mighty Casey Quinlan @MightyCasey
@vrulon HEY GIRLFRIEND! #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is Overcoming Disparity in Clinical Trials
Richard Kreis @kreisr1
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Alan Brewington @abrewi3010
RT @patientchat: Today's #patientchat topic is Overcoming Disparity in Clinical Trials
Richard Kreis @kreisr1
RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Science37x @Science37x
RT @patientchat: Today's #patientchat topic is Overcoming Disparity in Clinical Trials
Christina Lizaso @btrfly12
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Mighty Casey Quinlan @MightyCasey
@Science37x HI THERE!! #patientchat
Christina Lizaso @btrfly12
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hr. You can engage w/others…
Patient Chat @patientchat
Today’s chat by the upcoming Clinical Trial Awareness Week (#CTAW2018) from April 30 - May 4, 2018 #patientchat
Richard Kreis @kreisr1
RT @patientchat: Today's #patientchat topic is Overcoming Disparity in Clinical Trials
Kareo @GoKareo
RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/9m9nTL83Mi #patientchat
Richard Kreis @kreisr1
RT @patientchat: Today’s chat by the upcoming Clinical Trial Awareness Week (#CTAW2018) from April 30 - May 4, 2018 #patientchat
Nigel H @Crohnoid
Hi. Nigel in a very sunny and hot UK. I'm going to lurk tonight as I will need to dip in and out #patientchat
Science37x @Science37x
@MightyCasey Hi there! And, hi @not_defeated #patientchat
Marcela Musgrove @marcela
Stopping in to say hi from Massachusetts but I know nothing about clinical trials. #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: https://t.co/lRhU0PEGMz #patientchat
Richard Kreis @kreisr1
RT @patientchat: Time to start our topics. Here comes T1: https://t.co/lRhU0PEGMz #patientchat
Vera Rulon FAHIMA @vrulon
@MightyCasey Back at 'ya!! #patientchat
Patient Chat @patientchat
T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patientchat
Richard Kreis @kreisr1
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Dr. P @not_defeated
I'm Phyllisa. Living with T2 diabetes for 7 years. Glad to meet you all. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Barby Ingle 📣 @BarbyIngle
A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of minority PTs. I think because of a lack of access 2 proper/timely care & lack of transparency in past, its harder 4 new trials 2 recruit #patientchat https://t.co/M8qcepNxgv
Richard Kreis @kreisr1
RT @Crohnoid: Hi. Nigel in a very sunny and hot UK. I'm going to lurk tonight as I will need to dip in and out #patientchat
Inspire @teaminspire
Hello, #patientchat, and Happy Friday. John Novack checking in from Inspire.
Science37x @Science37x
We do realize we went a little overboard with our punctuation, but we are happy to be able to join today's #patientchat and see two of our great Clinical Research Advocates @MightyCasey and @not_defeated
Science37x @Science37x
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Science37x @Science37x
T1. It’s all about history. Minority patient populations were long mistreated and ignored by science. This timely post from @statnews sheds some light: https://t.co/EBqUMrL46O #patientchat
Geeky Fox @TechKitsune
A1: As a minority in race and sexual orientation, don't ask don't tell is very real within these communities. You don't talk about problems and rarely ask for solutions. #patientchat https://t.co/2vDVMMYIAg
Patient Chat @patientchat
RT @BarbyIngle: A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of…
Richard Kreis @kreisr1
RT @MightyCasey: @Science37x HI THERE!! #patientchat
Richard Kreis @kreisr1
RT @Science37x: We do realize we went a little overboard with our punctuation, but we are happy to be able to join today's #patientchat and…
Alan Brewington @abrewi3010
A1 access to clinical trial information. Need access to SoMe, docs, hospitals, universities. #patientchat
Science37x @Science37x
#patientchat https://t.co/pxigOWP1Kp
Richard Kreis @kreisr1
RT @teaminspire: Hello, #patientchat, and Happy Friday. John Novack checking in from Inspire.
Nerdy Zebra @nerdymedzebra
A1: I would say a combination of pulling heavily from university populations for many types of studies, and the horrific history of experimentation on POC that understandably make them not-eager to volunteer for such things... #patientchat
Cheryl @HealSuffering
Good morning from Central California. I am Cheryl and a Mental Health Advocate #patientchat https://t.co/UqdZl2ar3Q
Richard Kreis @kreisr1
RT @BarbyIngle: A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of…
Vera Rulon FAHIMA @vrulon
@patientchat A1: A couple of reasons - 1) there is a trust issue post Tuskegee, 2) there is a lack of communication and information shared with certain populations (biases, whether conscious or unconscious), 3) the value proposition is not clear #patientchat
Mighty Casey Quinlan @MightyCasey
@Science37x @not_defeated Hey, EVERYONE HERE is excited about #clinicalresearch, so ... you fit right in 😜😜 #patientchat
Science37x @Science37x
RT @TechKitsune: A1: As a minority in race and sexual orientation, don't ask don't tell is very real within these communities. You don't ta…
Richard Kreis @kreisr1
RT @TechKitsune: Geeky Fox here, I'm a Healthcare IT marketing nerd.#patientchat
Richard Kreis @kreisr1
RT @marcela: Stopping in to say hi from Massachusetts but I know nothing about clinical trials. #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Science37x @Science37x
T1. Our own @mightycasey recently wrote a 2-part series about trust in research/science and Henrietta Lacks. In Part 1 she tells the story of Ms Lacks and the #HeLa cells https://t.co/4wBR8aVtLn #patientchat
Science37x @Science37x
T1. and in part 2, @mightycasey interviews Henrietta Lacks’ grandson, David Lacks, Jr.: https://t.co/rkYP6bvIo2 #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of…
Science37x @Science37x
RT @MightyCasey: @Science37x @not_defeated Hey, EVERYONE HERE is excited about #clinicalresearch, so ... you fit right in 😜😜 #patientchat
Mighty Casey Quinlan @MightyCasey
this is a critical perspective - must be recognized, and part of our constant work for change. #patientchat https://t.co/4q2YWGU0nC
Richard Kreis @kreisr1
RT @abrewi3010: A1 access to clinical trial information. Need access to SoMe, docs, hospitals, universities. #patientchat
Science37x @Science37x
RT @vrulon: @patientchat A1: A couple of reasons - 1) there is a trust issue post Tuskegee, 2) there is a lack of communication and informa…
Alan Brewington @abrewi3010
A1 paternalistic medicine. To often the standard to compare too is a white male. #patientchat
Heather McCullen @H_SalemOaks
T1: (Justified?) Distrust as a direct result of the history of medical testing. But also the same reason any person doesn't enroll in clinical trials. No one asked them. #patientchat
Science37x @Science37x
@vrulon @patientchat Well said! #patientchat
Jack Aiello @JackMAiello
A1: Awareness, mistrust, Access/location are among numerous reasons #patientchat
Vera Rulon FAHIMA @vrulon
@Science37x @statnews Read that article. Raises serious ethical issues related to these populations. #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of…
Christina Lizaso @btrfly12
RT @H_SalemOaks: T1: (Justified?) Distrust as a direct result of the history of medical testing. But also the same reason any person doesn'…
Christina Lizaso @btrfly12
RT @Science37x: T1. Our own @mightycasey recently wrote a 2-part series about trust in research/science and Henrietta Lacks. In Part 1 she…
International Pain Foundation® @powerofpain
RT @BarbyIngle: A1: Theres mistrust when it comes 2 PTs who have been underserved & underTX'ed, there is also a disparity n recruitment of…
Science37x @Science37x
RT @MightyCasey: this is a critical perspective - must be recognized, and part of our constant work for change. #patientchat https://t.co/4…
Science37x @Science37x
RT @abrewi3010: A1 paternalistic medicine. To often the standard to compare too is a white male. #patientchat
Lore Noren @see1lorenoren
RT @TechKitsune: Geeky Fox here, I'm a Healthcare IT marketing nerd.#patientchat
Vera Rulon FAHIMA @vrulon
@H_SalemOaks Exactly. And often doctors/providers don't have enough information to share. #patientchat
Science37x @Science37x
RT @H_SalemOaks: T1: (Justified?) Distrust as a direct result of the history of medical testing. But also the same reason any person doesn'…
Mighty Casey Quinlan @MightyCasey
I'm simultaneously on a prep call for an RWJF/AcademyHealth event next week, so I'll be in'n'out ... #patientchat
Science37x @Science37x
RT @vrulon: @Science37x @statnews Read that article. Raises serious ethical issues related to these populations. #patientchat
Science37x @Science37x
RT @vrulon: @H_SalemOaks Exactly. And often doctors/providers don't have enough information to share. #patientchat
Patient Empowerment @power4patients
T1: Agree with @abrewi3010 that it's an access issue. Couple that with the mistrust that @BarbyIngle mentions and you have a recipe for disparity. #patientchat
Science37x @Science37x
RT @JackMAiello: A1: Awareness, mistrust, Access/location are among numerous reasons #patientchat
Science37x @Science37x
T1. Here’s an example: #diabetes is 2x more prevalent in Mexican-American and Puerto Rican communities vs whites, yet those groups only represent 4 percent of diabetes trial participants. https://t.co/nQRIFsa9nX #science37diabetes #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up...https://t.co/lRhU0PEGMz #patientchat
Science37x @Science37x
RT @power4patients: T1: Agree with @abrewi3010 that it's an access issue. Couple that with the mistrust that @BarbyIngle mentions and you h…
Cheryl @HealSuffering
A1 I think that it's difficult enough to fill enrollment for clinical trials in the first place. It's much more difficult to get the minorities to trust trials such as these because of their previous experiences and cultural stigma. #patientchat https://t.co/N3u1khlIv8
Science37x @Science37x
T1. Another example: #psoriasis affects all ethnicities, but research shows that certain groups are less likely to see a doctor about it: https://t.co/4vtC4UlCPX #patientchat
Janet M. Kennedy @GetSocialHealth
Good Afternoon! I saw that @ShereesePubHlth @MightyCasey and @GoKareo were here so I thought I'd drop into my first #PatientChat.
Ken Taylor @KenRayTaylor
A1: Make more awareness though advertising. Get the word to the target audience. #patientchat https://t.co/IW2DtDhhL0
Patient Chat @patientchat
T2: Why do you think it is important to diversify clinical trials? #patientchat
Kevin J. Fowler @gratefull080504
A1: Unfortunately #Clinicaltrial design is not formed with a #patientengagement strategy + people of color feel the brunt of poor design #patientchat https://t.co/toAaexQUbz
Richard Kreis @kreisr1
RT @power4patients: T1: Agree with @abrewi3010 that it's an access issue. Couple that with the mistrust that @BarbyIngle mentions and you h…
Barby Ingle 📣 @BarbyIngle
A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we dont develop diverse pool of research pts, health disparities may persist We wont know if med is safe & effective n those that ultimately use it #patientchat https://t.co/zodJXmcHNS
Richard Kreis @kreisr1
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A1: Make more awareness though advertising. Get the word to the target audience. #patientchat https://t.co/IW2DtDhhL0
Richard Kreis @kreisr1
RT @abrewi3010: A1 paternalistic medicine. To often the standard to compare too is a white male. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @Science37x: T1. It’s all about history. Minority patient populations were long mistreated and ignored by science. This timely post from…
Patient Empowerment @power4patients
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Science37x @Science37x
RT @KenRayTaylor: A1: Make more awareness though advertising. Get the word to the target audience. #patientchat https://t.co/IW2DtDhhL0
Science37x @Science37x
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Mighty Casey Quinlan @MightyCasey
RT @Science37x: T1. Here’s an example: #diabetes is 2x more prevalent in Mexican-American and Puerto Rican communities vs whites, yet thos…
Patient Empowerment @power4patients
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A1: Make more awareness though advertising. Get the word to the target audience. #patientchat https://t.co/IW2DtDhhL0
International Pain Foundation® @powerofpain
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
Science37x @Science37x
T2. It’s crucial to diversify #clinicaltrials because medications work differently in different populations and individuals. If we only study one kind of person, we are not getting all the relevant data. We are doing science a disservice. #patientchat
Science37x @Science37x
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
Science37x @Science37x
RT @gratefull080504: A1: Unfortunately #Clinicaltrial design is not formed with a #patientengagement strategy + people of color feel the b…
Geeky Fox @TechKitsune
A2: Because research isn't a one size fits all. We are all made differently but our common denominator could save us if the research is there. #patientchat
Heather McCullen @H_SalemOaks
RT @gratefull080504: A1: Unfortunately #Clinicaltrial design is not formed with a #patientengagement strategy + people of color feel the b…
Richard Kreis @kreisr1
@patientchat A2: Not Everyone fits into one mold. The more people who participate in trials the more can be helped when a treatment is found. #patientchat
Richard Kreis @kreisr1
RT @patientchat: You're invited! Join the "Overcoming Disparity in Clinical Trials" #patientchat today at 1pmET https://t.co/oSsnaW27zp htt…
Vera Rulon FAHIMA @vrulon
A2: Treatments vary in their effectiveness given the unique differences of varied populations. For example, if you don't test a new tx with an elderly population, how do you know it is going to work for them? #patientchat
Heidi Grabenstatter @PatientIntv
Hi #patientchat, this is a fantastic topic, I am sorry to be late.
Kareo @GoKareo
All patients are different, but there are unique issues based on #ethnicity. We need diverse patient participation to better understand. #PatientChat
Dr. P @not_defeated
A2. Because one group, one point of view, one type is never good when you want to create something for the masses #patientchat https://t.co/BzCEfpR1RF
ShereeseM, MS/MBA @ShereesePubHlth
T1 The clinical community has a long history of documented mistreatment of minorities. This created an equally long history of distrust. This issue has resulted in the issues we see now, not to be easily mitgated. https://t.co/P0RejxxMMs #patientchat
Patient Empowerment @power4patients
RT @Science37x: T2. It’s crucial to diversify #clinicaltrials because medications work differently in different populations and individuals…
Science37x @Science37x
T2. Again, #diabetes example: No one really knows if the treatments getting tested and approved are equally as effective for communities who haven’t had access to them: https://t.co/nQRIFsa9nX #science37diabetes #patientchat
Science37x @Science37x
RT @TechKitsune: A2: Because research isn't a one size fits all. We are all made differently but our common denominator could save us if th…
Vera Rulon FAHIMA @vrulon
@BarbyIngle That's right. Varies by age, ethnicity, etc. etc. #patientchat
Science37x @Science37x
RT @kreisr1: @patientchat A2: Not Everyone fits into one mold. The more people who participate in trials the more can be helped when a tre…
Alan Brewington @abrewi3010
A2 publish or parish meant all knowledge was good regardless if it helped a human centered issue. Diversity brings the discovery process back to human centered basis. #patientchat
Kevin J. Fowler @gratefull080504
A2: I will respond with another question "Who is the #clinicaltrial designed to serve In #KidneyDisease It is many times #africanamerican + #hispanic populations + these communities have not been engaged #patientchat https://t.co/jZgZW7tAno
Richard Kreis @kreisr1
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
ShereeseM, MS/MBA @ShereesePubHlth
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Mighty Casey Quinlan @MightyCasey
@GetSocialHealth @ShereesePubHlth @GoKareo HELLOOOO! and welcome 😎 #patientchat
Richard Kreis @kreisr1
RT @Science37x: T2. It’s crucial to diversify #clinicaltrials because medications work differently in different populations and individuals…
Liz Szabo @LizSzabo
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Patient Empowerment @power4patients
RT @TechKitsune: A2: Because research isn't a one size fits all. We are all made differently but our common denominator could save us if th…
Science37x @Science37x
RT @gratefull080504: A2: I will respond with another question "Who is the #clinicaltrial designed to serve In #KidneyDisease It is many tim…
Jack Aiello @JackMAiello
A2: For myeloma pts, blacks are dx’d 2:1 over whites. Asians at a lower rate. Medically, need to better understand diverse populations to help develop better treatments #patientchat
Janet M. Kennedy @GetSocialHealth
It seems a good idea to educate under-served populations about clinical trials to make them aware of opportunities and/or health issues. #PatientChat https://t.co/AQCoeYKoaX
Science37x @Science37x
RT @ShereesePubHlth: T1 The clinical community has a long history of documented mistreatment of minorities. This created an equally long hi…
Science37x @Science37x
RT @not_defeated: A2. Because one group, one point of view, one type is never good when you want to create something for the masses #patien
Science37x @Science37x
RT @vrulon: A2: Treatments vary in their effectiveness given the unique differences of varied populations. For example, if you don't test a…
Science37x @Science37x
RT @GoKareo: All patients are different, but there are unique issues based on #ethnicity. We need diverse patient participation to better u…
Mary MACK @MaryOCMack
T2 Diversifying is more representative of the population. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @gratefull080504: A2: I will respond with another question "Who is the #clinicaltrial designed to serve In #KidneyDisease It is many tim…
Mighty Casey Quinlan @MightyCasey
RT @Science37x: T2. Again, #diabetes example: No one really knows if the treatments getting tested and approved are equally as effective fo…
Kevin J. Fowler @gratefull080504
A2: My professional + personal interest is with #clincialtrials in #kidneydisease. African Americans + Hispanic communities suffer the burden of disease + must be represented in the design strategy #patientchat https://t.co/jZgZW7tAno
Ken Taylor @KenRayTaylor
A2: Most people would like to see the results from someone as close to being the same gene make up to our self. #patientchat https://t.co/xwdhhoYhIW
Mighty Casey Quinlan @MightyCasey
RT @ShereesePubHlth: T1 The clinical community has a long history of documented mistreatment of minorities. This created an equally long hi…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A2: Most people would like to see the results from someone as close to being the same gene make up to our self. #patientc
Mighty Casey Quinlan @MightyCasey
RT @not_defeated: A2. Because one group, one point of view, one type is never good when you want to create something for the masses #patien
Science37x @Science37x
RT @JackMAiello: A2: For myeloma pts, blacks are dx’d 2:1 over whites. Asians at a lower rate. Medically, need to better understand diverse…
Inspire @teaminspire
@patientchat From the FDA: "Diversity in Clinical Trial Participation" https://t.co/dt7ctQSVX8 T2 #patientchat
Mighty Casey Quinlan @MightyCasey
RT @vrulon: A2: Treatments vary in their effectiveness given the unique differences of varied populations. For example, if you don't test a…
Science37x @Science37x
RT @MaryOCMack: T2 Diversifying is more representative of the population. #patientchat
Richard Kreis @kreisr1
RT @GetSocialHealth: It seems a good idea to educate under-served populations about clinical trials to make them aware of opportunities and…
Christina Lizaso @btrfly12
RT @Science37x: T2. It’s crucial to diversify #clinicaltrials because medications work differently in different populations and individuals…
ShereeseM, MS/MBA @ShereesePubHlth
T2 If clinical trials are to yield useful actionable data, diversity is necessary. #Publichealth initiatives depend on info from diverse groups #patientchat
Science37x @Science37x
RT @GetSocialHealth: It seems a good idea to educate under-served populations about clinical trials to make them aware of opportunities and…
Richard Kreis @kreisr1
RT @TechKitsune: A2: Because research isn't a one size fits all. We are all made differently but our common denominator could save us if th…
Vera Rulon FAHIMA @vrulon
@gratefull080504 Great point. Same goes for so many other diseases/conditions. Clinical trial participants should reflect the diversity (down to %) of given populations who suffer these diseases. #patientchat
Science37x @Science37x
RT @gratefull080504: A2: My professional + personal interest is with #clincialtrials in #kidneydisease. African Americans + Hispanic comm…
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A2: Most people would like to see the results from someone as close to being the same gene make up to our self. #patientc
Alan Brewington @abrewi3010
A2 all humans are different, it’s time we realized and accepted this. #patientchat
Christina Lizaso @btrfly12
RT @HealSuffering: A1 I think that it's difficult enough to fill enrollment for clinical trials in the first place. It's much more difficul…
Heather McCullen @H_SalemOaks
The mission of @SalemOaks is to educate everyone about clinical trials, under-served populations are definitely part of that. #patientchat https://t.co/bskZApOAQT
Science37x @Science37x
RT @teaminspire: @patientchat From the FDA: "Diversity in Clinical Trial Participation" https://t.co/dt7ctQSVX8 T2 #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up...https://t.co/lRhU0PEGMz #patientchat
Science37x @Science37x
RT @ShereesePubHlth: T2 If clinical trials are to yield useful actionable data, diversity is necessary. #Publichealth initiatives depend on…
Richard Kreis @kreisr1
RT @patientchat: Topic 3 (T3:) coming up...https://t.co/lRhU0PEGMz #patientchat
Science37x @Science37x
RT @vrulon: @gratefull080504 Great point. Same goes for so many other diseases/conditions. Clinical trial participants should reflect the d…
Kevin J. Fowler @gratefull080504
A2: There need to be honest conversations about the lack of relationships with African American + Hispanic communities. Have to have a relationship first #patientchat https://t.co/1CjTUychyK
Richard Kreis @kreisr1
RT @MaryOCMack: T2 Diversifying is more representative of the population. #patientchat
Richard Kreis @kreisr1
RT @HealSuffering: A1 I think that it's difficult enough to fill enrollment for clinical trials in the first place. It's much more difficul…
Science37x @Science37x
Seeing so many great comments today! #patientchat
Kevin J. Fowler @gratefull080504
Yes #patientchat https://t.co/AVqAYkwlXp
Richard Kreis @kreisr1
RT @GoKareo: All patients are different, but there are unique issues based on #ethnicity. We need diverse patient participation to better u…
Patient Chat @patientchat
T3: What are some of the barriers to diversifying clinical trials? #patientchat
Christina Lizaso @btrfly12
RT @teaminspire: @patientchat From the FDA: "Diversity in Clinical Trial Participation" https://t.co/dt7ctQSVX8 T2 #patientchat
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: A2: Most people would like to see the results from someone as close to being the same gene make up to our self. #patientc
Geeky Fox @TechKitsune
RT @ShereesePubHlth: T2 If clinical trials are to yield useful actionable data, diversity is necessary. #Publichealth initiatives depend on…
Annette McKinnon @anetto
T2 Toronto has a very diverse population. It makes no sense to leave so many out. Fairness also plays a part. #patientchat
Richard Kreis @kreisr1
RT @gratefull080504: A2: I will respond with another question "Who is the #clinicaltrial designed to serve In #KidneyDisease It is many tim…
Science37x @Science37x
RT @H_SalemOaks: The mission of @SalemOaks is to educate everyone about clinical trials, under-served populations are definitely part of th…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: A1: Make more awareness though advertising. Get the word to the target audience. #patientchat https://t.co/IW2DtDhhL0
Science37x @Science37x
RT @patientchat: T3: What are some of the barriers to diversifying clinical trials? #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
Science37x @Science37x
RT @gratefull080504: A2: There need to be honest conversations about the lack of relationships with African American + Hispanic communities…
Dr. P @not_defeated
A1. Reading this book will provide many answers to T1. #patientchat https://t.co/wmVLxWFWkw
Science37x @Science37x
@gratefull080504 Agreed! #patientchat
Mighty Casey Quinlan @MightyCasey
RT @gratefull080504: A2: My professional + personal interest is with #clincialtrials in #kidneydisease. African Americans + Hispanic comm…
Barby Ingle 📣 @BarbyIngle
A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to NIH Blacks =12% of the US pop but only 5% of clinical trial participants & Hispanics =16% of the pop but only 1% of clinical trial participants #patientchat https://t.co/9jgG3QLlzo
Mighty Casey Quinlan @MightyCasey
RT @JackMAiello: A2: For myeloma pts, blacks are dx’d 2:1 over whites. Asians at a lower rate. Medically, need to better understand diverse…
Nerdy Zebra @nerdymedzebra
RT @not_defeated: A1. Reading this book will provide many answers to T1. #patientchat https://t.co/wmVLxWFWkw
Alan Brewington @abrewi3010
A3 get patients involved from the very beginning. We speak a diff language that scientists, let’s work together to maximize these communication expertise #patientchat
Patient Empowerment @power4patients
Slightly off topic, but have you noticed how some pharma have started to thank #clinicaltrial participants in ads & @PhRMA Go Boldy campaign is doing the same? Finally these patient pioneers are being recognized! #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @not_defeated: A1. Reading this book will provide many answers to T1. #patientchat https://t.co/wmVLxWFWkw
Mighty Casey Quinlan @MightyCasey
RT @not_defeated: A1. Reading this book will provide many answers to T1. #patientchat https://t.co/wmVLxWFWkw
Patient Empowerment @power4patients
RT @patientchat: T3: What are some of the barriers to diversifying clinical trials? #patientchat
Richard Kreis @kreisr1
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Richard Kreis @kreisr1
RT @JackMAiello: A2: For myeloma pts, blacks are dx’d 2:1 over whites. Asians at a lower rate. Medically, need to better understand diverse…
Kevin J. Fowler @gratefull080504
A1: Lack of relationships, one size fits all belief, + poor clinical design This is not limited to people of color but also other communities including whites #patientchat https://t.co/RW7LUcDH9T
Richard Kreis @kreisr1
RT @power4patients: Slightly off topic, but have you noticed how some pharma have started to thank #clinicaltrial participants in ads & @Ph
Science37x @Science37x
T3. One of the biggest barriers is trust on all sides. #patientchat
Science37x @Science37x
T3. Another is perhaps, doing the "same-old-same-old" - innovation takes effort, and cultural change does too. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Science37x @Science37x
RT @anetto: T2 Toronto has a very diverse population. It makes no sense to leave so many out. Fairness also plays a part. #patientchat
Mary MACK @MaryOCMack
T3: The population as a whole is not equally informed. #patientchat
Justin @Justinrt4444
T1 - Minority care at academic medical centers isn’t as well represented. https://t.co/ayawnNHLvl #patientchat
Dr. P @not_defeated
A3. Not understanding the barriers around why some people are resultant to join trials AND not knowing how to address those particular issues. #patientchat https://t.co/9f0vLRoD0N
Science37x @Science37x
RT @not_defeated: A1. Reading this book will provide many answers to T1. #patientchat https://t.co/wmVLxWFWkw
Kistein Monkhouse, MPA @KisteinM
@patientchat Kistein Monkhouse from @PatientOrator #patientchat
Science37x @Science37x
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Kareo @GoKareo
T3: Barriers - Awareness - Are we educating in #PrimaryCare practices enough about #ClinicalTrials? #PatientChat
Science37x @Science37x
RT @abrewi3010: A3 get patients involved from the very beginning. We speak a diff language that scientists, let’s work together to maximize…
Kevin J. Fowler @gratefull080504
A3: Relationships are the foundation to a #patientengagement strategy in #clinicaldesign for all communities #patientchat https://t.co/RW7LUcDH9T
Jack Aiello @JackMAiello
A3: At the time of CT protocol design, trials include diversity accrual goals. Yet, there is really a plans to achieve those goals since achieving overall accrual is the greatest concern. #patientchat
Science37x @Science37x
RT @gratefull080504: A1: Lack of relationships, one size fits all belief, + poor clinical design This is not limited to people of color but…
Patient Empowerment @power4patients
#patientchat
ShereeseM, MS/MBA @ShereesePubHlth
A3 And research grants are rarely given to initiatives that consider minority health and trials. I know; I've done the legwork #patientchat
Justin @Justinrt4444
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Geeky Fox @TechKitsune
A3: Lack of healthcare options face these communities. Therefore lack of understanding or knowledge about clinical trials. Also what I said earlier about not asking and not telling. #patientchat
Science37x @Science37x
RT @Justinrt4444: T1 - Minority care at academic medical centers isn’t as well represented. https://t.co/ayawnNHLvl #patientchat
Science37x @Science37x
RT @not_defeated: A3. Not understanding the barriers around why some people are resultant to join trials AND not knowing how to address tho…
Geeky Fox @TechKitsune
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Vera Rulon FAHIMA @vrulon
A3: Add to already mentioned barriers: bureaucratic processes in current trials & lack of automation (but very slowly getting better); and most importantly - not including patients in trial design. Include patients and diversity will improve. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Patient Empowerment @power4patients
RT @JackMAiello: A3: At the time of CT protocol design, trials include diversity accrual goals. Yet, there is really a plans to achieve tho…
Mighty Casey Quinlan @MightyCasey
RT @ShereesePubHlth: A3 And research grants are rarely given to initiatives that consider minority health and trials. I know; I've done the…
Alan Brewington @abrewi3010
T3 we still have a health literacy issue in our country. Poor healthcare literacy will mean in accurate communication #patientchat
Science37x @Science37x
RT @gratefull080504: A3: Relationships are the foundation to a #patientengagement strategy in #clinicaldesign for all communities #patientc
Jack Aiello @JackMAiello
Sorry, meant there is NO plan...#patientchat
Heather McCullen @H_SalemOaks
T3: Understanding our own position and not assuming we know what will work best for any person or population. Some things that may sound like "answers" are actually extremely condescending and based in preconceptions. #patientchat
Kevin J. Fowler @gratefull080504
A3 Great transparency + recognition that relationships are a priority will go a long way in improving clinical trail design #patientchat
Heather McCullen @H_SalemOaks
RT @abrewi3010: A3 get patients involved from the very beginning. We speak a diff language that scientists, let’s work together to maximize…
Christina Lizaso @btrfly12
Resources | Many FDA and NIH patient outreach resources/toolkits in English and Spanish can be found via this #SaludTues chat last year on minority participation in #clinicaltrials https://t.co/U8UjKvqWSa #patientchat
Ken Taylor @KenRayTaylor
A3: Trust is one of the biggest barriers. People dont want to feel like they are being experimented on. Many times there is no way to get the medication after the study if it did help you. #patientchat https://t.co/DevtpYsRwy
Healthcare Writers @HMNwriters
T3: Just getting to basic healthcare is a challenge. Transportation, time away from the job, fear, "what's in it for me?" all present barriers to #clinicaltrials #PatientChat
Justin @Justinrt4444
T2 - generalizability. Homogeneous enrollment = limited replicability = less useful science = less people helped. #patientchat https://t.co/0X59Le3AxI
Science37x @Science37x
@gratefull080504 Agreed, and building relationships and trust take time, effort, humility... Sadly, it is easier to do things the way they have always been done. #patientchat
Christina Lizaso @btrfly12
RT @ShereesePubHlth: A3 And research grants are rarely given to initiatives that consider minority health and trials. I know; I've done the…
Science37x @Science37x
RT @ShereesePubHlth: A3 And research grants are rarely given to initiatives that consider minority health and trials. I know; I've done the…
Kistein Monkhouse, MPA @KisteinM
A1: Often times minority patient population is left out of the conversation for clinical trials. This can be seen in tv commercials, where the minority population is often underrepresented/under-targeted. #patientchat https://t.co/6TD5tKzjjq
Christina Lizaso @btrfly12
RT @Justinrt4444: T1 - Minority care at academic medical centers isn’t as well represented. https://t.co/ayawnNHLvl #patientchat
Science37x @Science37x
RT @TechKitsune: A3: Lack of healthcare options face these communities. Therefore lack of understanding or knowledge about clinical trials.…
Patient Chat @patientchat
Topic 4 (T4:) coming up...https://t.co/lRhU0PEGMz #patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: A3 get patients involved from the very beginning. We speak a diff language that scientists, let’s work together to maximize…
Science37x @Science37x
RT @H_SalemOaks: T3: Understanding our own position and not assuming we know what will work best for any person or population. Some things…
Science37x @Science37x
RT @gratefull080504: A3 Great transparency + recognition that relationships are a priority will go a long way in improving clinical trail d…
Alan Brewington @abrewi3010
T3 the fear of failure even though failure can be an invaluable piece of knowledge #patientchat
Science37x @Science37x
RT @btrfly12: Resources | Many FDA and NIH patient outreach resources/toolkits in English and Spanish can be found via this #SaludTues chat…
Christina Lizaso @btrfly12
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Science37x @Science37x
RT @KenRayTaylor: A3: Trust is one of the biggest barriers. People dont want to feel like they are being experimented on. Many times there…
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A3: Trust is one of the biggest barriers. People dont want to feel like they are being experimented on. Many times there…
Science37x @Science37x
RT @HMNwriters: T3: Just getting to basic healthcare is a challenge. Transportation, time away from the job, fear, "what's in it for me?" a…
Christina Lizaso @btrfly12
RT @anetto: T2 Toronto has a very diverse population. It makes no sense to leave so many out. Fairness also plays a part. #patientchat
Patient Chat @patientchat
T4: How can researchers improve engagement and recruitment of minority patient populations? #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @patientchat: T4: How can researchers improve engagement and recruitment of minority patient populations? #patientchat
Kevin J. Fowler @gratefull080504
@Science37x : You nailed it Building trust takes times + can't be forced or rushed. You get it!! #patientchat https://t.co/6R0JljyhfA
Christina Lizaso @btrfly12
RT @Science37x: @gratefull080504 Agreed, and building relationships and trust take time, effort, humility... Sadly, it is easier to do thin…
Science37x @Science37x
RT @patientchat: Topic 4 (T4:) coming up...https://t.co/lRhU0PEGMz #patientchat
Annette McKinnon @anetto
T3. People running #clinicaltrials need to allow more recruitment time to include under represented voices. You can’t just expect this to happen. There are real barriers that can be overcome with good strategies. #patientengagement #patientchat
Mighty Casey Quinlan @MightyCasey
@Science37x @gratefull080504 The dreaded "We've always done it this way" syndrome .... #patientchat
Christina Lizaso @btrfly12
RT @HMNwriters: T3: Just getting to basic healthcare is a challenge. Transportation, time away from the job, fear, "what's in it for me?" a…
ShereeseM, MS/MBA @ShereesePubHlth
RT @anetto: T3. People running #clinicaltrials need to allow more recruitment time to include under represented voices. You can’t just expe…
Kareo @GoKareo
RT @btrfly12: Resources | Many FDA and NIH patient outreach resources/toolkits in English and Spanish can be found via this #SaludTues chat…
Mighty Casey Quinlan @MightyCasey
RT @Science37x: @gratefull080504 Agreed, and building relationships and trust take time, effort, humility... Sadly, it is easier to do thin…
Kistein Monkhouse, MPA @KisteinM
Q2: It’s important to diversify clinical trials since neglecting segments of the population ultimately affects overall population health outcomes. #patientchat https://t.co/cewx7Bu4qz
Ken Taylor @KenRayTaylor
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Science37x @Science37x
@gratefull080504 We try! Thank you! :) #patientchat
Science37x @Science37x
RT @gratefull080504: @Science37x : You nailed it Building trust takes times + can't be forced or rushed. You get it!! #patientchat https:/…
Jack Aiello @JackMAiello
Sorry but gotta leave this great discussion. Will look at final chat log later. #patientchat
Science37x @Science37x
RT @MightyCasey: @Science37x @gratefull080504 The dreaded "We've always done it this way" syndrome .... #patientchat
Mighty Casey Quinlan @MightyCasey
@gratefull080504 @Science37x Why I'm working for 'em!! #patientchat
Science37x @Science37x
RT @patientchat: T4: How can researchers improve engagement and recruitment of minority patient populations? #patientchat
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A3: Trust is one of the biggest barriers. People dont want to feel like they are being experimented on. Many times there…
International Pain Foundation® @powerofpain
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Science37x @Science37x
RT @abrewi3010: T3 the fear of failure even though failure can be an invaluable piece of knowledge #patientchat
Christina Lizaso @btrfly12
RT @vrulon: A3: Add to already mentioned barriers: bureaucratic processes in current trials & lack of automation (but very slowly getting b…
Patient Empowerment @power4patients
T3: Overcoming barriers requires open communication on all sides. For patients & caregivers this means health literacy is more essential than ever. Our #ClinicalTrial Mythbusters series aims to help: https://t.co/yaxZVxPeM1 #patientchat
Geeky Fox @TechKitsune
A4: Give them more information, more outreach can go a long way. Minority communities may be closed off but they are surprisingly some of the most open when a new idea is presented in a way that is understanding, helpful, and transparent. #patientchat
Cheryl @HealSuffering
Genetic differences among people from underrepresented populations can lead to different responses to certain medications. According to the NMA "someone of African descent may respond to a drug differently than someone of Hispanic or Asian descent" #patientchat https://t.co/wQatOwTqpV
Science37x @Science37x
RT @anetto: T3. People running #clinicaltrials need to allow more recruitment time to include under represented voices. You can’t just expe…
Vera Rulon FAHIMA @vrulon
@KisteinM Great point. Diversity needs to start from the beginning. #patientchat
Science37x @Science37x
T4. Abandoning assumptions and embracing listening is so important. #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Christina Lizaso @btrfly12
RT @anetto: T3. People running #clinicaltrials need to allow more recruitment time to include under represented voices. You can’t just expe…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: A3: Trust is one of the biggest barriers. People dont want to feel like they are being experimented on. Many times there…
Science37x @Science37x
RT @power4patients: T3: Overcoming barriers requires open communication on all sides. For patients & caregivers this means health literacy…
Science37x @Science37x
RT @MightyCasey: @gratefull080504 @Science37x Why I'm working for 'em!! #patientchat
Janet M. Kennedy @GetSocialHealth
RT @power4patients: T3: Overcoming barriers requires open communication on all sides. For patients & caregivers this means health literacy…
Alan Brewington @abrewi3010
A4 Ask “how might we...” instead of “you must do...” #patientchat
Kistein Monkhouse, MPA @KisteinM
A3: barriers to diversifying clinical trials can be locations I.e reaching those living in rural areas. #patientchat https://t.co/D2Ny4C6tPd
Healthcare Writers @HMNwriters
RT @BarbyIngle: A3: Lack of outreach from trial creators 2 minorities, distrust of people n leader positions, lack funds/time According to…
Science37x @Science37x
@MightyCasey @gratefull080504 And it's why we love having you! #patientchat
Patient Empowerment @power4patients
RT @patientchat: T4: How can researchers improve engagement and recruitment of minority patient populations? #patientchat
Vera Rulon FAHIMA @vrulon
@MightyCasey @Science37x @gratefull080504 Absolutely. Was a great cause of angst trying to implement an automated trials system... #patientchat
Science37x @Science37x
RT @TechKitsune: A4: Give them more information, more outreach can go a long way. Minority communities may be closed off but they are surpr…
Barby Ingle 📣 @BarbyIngle
A4: Improvements can come from collected data on # of people at zip codes had particular DX and who treated them. Clinical Trial coordinators could use this data to help facilitate trial recruitment & engage minority providers to help raise awareness as well #patientchat https://t.co/Uwp0WTNaI9
Science37x @Science37x
RT @HealSuffering: Genetic differences among people from underrepresented populations can lead to different responses to certain medication…
Christina Lizaso @btrfly12
RT @TechKitsune: A4: Give them more information, more outreach can go a long way. Minority communities may be closed off but they are surpr…
Geeky Fox @TechKitsune
RT @Science37x: T4. Abandoning assumptions and embracing listening is so important. #patientchat
Kevin J. Fowler @gratefull080504
A4: This is not really that difficult Make a commitment to developing long term relationships with patient communities Humility is required. Check your ego at the door + be willing to listen + learn #patientchat https://t.co/h1zXVbgyTR
Vera Rulon FAHIMA @vrulon
A4: Here's an example where a pediatric population was included and diversity in age improved. Perhaps an approach for minorities? #patientchat https://t.co/1TbHUJnVdx
Amanda @LAlupusLady
Reach out to people in the community, churches and schools. #patientchat https://t.co/qkJZjfkUIa
Patient Chat @patientchat
@JackMAiello Thanks for stopping by Jack! Have a great weekend #patientchat
Christina Lizaso @btrfly12
RT @BarbyIngle: A4: Improvements can come from collected data on # of people at zip codes had particular DX and who treated them. Clinical…
Janet M. Kennedy @GetSocialHealth
Get in the social media game, people! Minorities are well represented in Social Media so start sharing your messages! #PatientChat https://t.co/OEvczcXNn2
Christina Lizaso @btrfly12
RT @abrewi3010: A4 Ask “how might we...” instead of “you must do...” #patientchat
Christina Lizaso @btrfly12
RT @GetSocialHealth: Get in the social media game, people! Minorities are well represented in Social Media so start sharing your messages!…
Christina Lizaso @btrfly12
RT @LAlupusLady: Reach out to people in the community, churches and schools. #patientchat https://t.co/qkJZjfkUIa
Mary MACK @MaryOCMack
T4: Make sure every community's primary care docs and clinics are informed of clinical trials recruiting. #patientchat
Alan Brewington @abrewi3010
T4 go old school, LISTEN! #patientchat
Heather McCullen @H_SalemOaks
RT @abrewi3010: A4 Ask “how might we...” instead of “you must do...” #patientchat
Science37x @Science37x
RT @KisteinM: A3: barriers to diversifying clinical trials can be locations I.e reaching those living in rural areas. #patientchat https://…
Vera Rulon FAHIMA @vrulon
@LAlupusLady For sure. That's where people hold great #trust and can help #patientchat
Kistein Monkhouse, MPA @KisteinM
A3: cultural competency is a huge barrier in clinical trials. I.e are you meeting patients at their levels, is staff/recruiters speaking the language, comprehends the make disparities that vulnerable populations face, etc.. #patientchat https://t.co/D2Ny4C6tPd
Amanda @LAlupusLady
RT @vrulon: @LAlupusLady For sure. That's where people hold great #trust and can help #patientchat
Science37x @Science37x
@KisteinM Yes! That is one of the things we are working to revolutionize here at https://t.co/HzX7BzdX4V #patientchat
Dr. P @not_defeated
A4. Try first to understand the culture. For example, Religious people in the South aren't going to participate in anything that inferers w/ Sunday service & Bible Study. #patientchat https://t.co/rvd3NzejT4
Science37x @Science37x
RT @gratefull080504: A4: This is not really that difficult Make a commitment to developing long term relationships with patient communitie…
Kevin J. Fowler @gratefull080504
A4 The @FDA + @ASN formed the Kidney Health Initiate to address the lack of innovation in #kidneydisease @ASNKidney is committed to developing a #patietnvoice strategy #patientchat
Science37x @Science37x
RT @vrulon: A4: Here's an example where a pediatric population was included and diversity in age improved. Perhaps an approach for minoriti…
Ken Taylor @KenRayTaylor
A4: Create interactive recruitment tools that make people want to participate and target the population your after. #patientchat https://t.co/Ug8KUE9wF3
Science37x @Science37x
RT @LAlupusLady: Reach out to people in the community, churches and schools. #patientchat https://t.co/qkJZjfkUIa
Vera Rulon FAHIMA @vrulon
@GetSocialHealth Ha ha! In the past researchers were mortified that clinical trial participants were discussing their clinical trials on SoMe... so much for blinded studies!! #patientchat
Science37x @Science37x
RT @GetSocialHealth: Get in the social media game, people! Minorities are well represented in Social Media so start sharing your messages!…
Science37x @Science37x
RT @MaryOCMack: T4: Make sure every community's primary care docs and clinics are informed of clinical trials recruiting. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@KisteinM This is a huge problem . Many clinical trial teams have no buy-in to underserved communities and there's no attempt to include person who do have that buy-in. #patientchat
Katie @katie5280
@patientchat T1: Agreed! It can be challenging to find information on current trials. #patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A4: Create interactive recruitment tools that make people want to participate and target the population your after. #pati
Heidi Grabenstatter @PatientIntv
T4: Patient portals should prompt individuals when relevant trials become available. Extend reach beyond University to rural and urban hospitals with consistent, standardized platforms. Also notify at appt. #patientchat https://t.co/Tckv95D3Y1
Patient Chat @patientchat
Topic 5 (T5:) coming up...https://t.co/lRhU0PEGMz #patientchat
Inspire @teaminspire
@LAlupusLady T4 We second that. We see some successful efforts among our nonprofit partners in connecting to patients/caregivers via civic and church groups. Connecting on their turf seems to increase hard-to-gain trust. #patientchat
Science37x @Science37x
RT @KisteinM: A3: cultural competency is a huge barrier in clinical trials. I.e are you meeting patients at their levels, is staff/recruite…
Janet M. Kennedy @GetSocialHealth
How about Health Information Stations in Public Libraries? Screen with website links, and info that can be emailed home or printed to take to the physician? #PatientChat
Vera Rulon FAHIMA @vrulon
@not_defeated Excellent point. #culture is paramount to understanding what makes a group tick and further helps get the message across. #patientchat
Science37x @Science37x
RT @not_defeated: A4. Try first to understand the culture. For example, Religious people in the South aren't going to participate in anythi…
Amanda @LAlupusLady
RT @teaminspire: @LAlupusLady T4 We second that. We see some successful efforts among our nonprofit partners in connecting to patients/car…
Patient Chat @patientchat
T5: How will those tactics be used across different ages, races and genders? #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@katie5280 @patientchat Yeah, https://t.co/zBNNACQC0A needs a serious overhaul #patientchat
Science37x @Science37x
RT @gratefull080504: A4 The @FDA + @ASN formed the Kidney Health Initiate to address the lack of innovation in #kidneydisease @ASNKidney i…
Science37x @Science37x
RT @KenRayTaylor: A4: Create interactive recruitment tools that make people want to participate and target the population your after. #pati
Christina Lizaso @btrfly12
RT @gratefull080504: A4 The @FDA + @ASN formed the Kidney Health Initiate to address the lack of innovation in #kidneydisease @ASNKidney i…
Mighty Casey Quinlan @MightyCasey
RT @ShereesePubHlth: @KisteinM This is a huge problem . Many clinical trial teams have no buy-in to underserved communities and there's no…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: A4: Create interactive recruitment tools that make people want to participate and target the population your after. #pati
Kevin J. Fowler @gratefull080504
@ShereesePubHlth : The @ASNKidney is committed to changing this dynamic #patientchat https://t.co/BsfJ8MutEa
Mighty Casey Quinlan @MightyCasey
RT @power4patients: T3: Overcoming barriers requires open communication on all sides. For patients & caregivers this means health literacy…
Science37x @Science37x
RT @vrulon: @GetSocialHealth Ha ha! In the past researchers were mortified that clinical trial participants were discussing their clinical…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A4: Improvements can come from collected data on # of people at zip codes had particular DX and who treated them. Clinical…
ShereeseM, MS/MBA @ShereesePubHlth
RT @gratefull080504: @ShereesePubHlth : The @ASNKidney is committed to changing this dynamic #patientchat https://t.co/BsfJ8MutEa
Science37x @Science37x
RT @ShereesePubHlth: @KisteinM This is a huge problem . Many clinical trial teams have no buy-in to underserved communities and there's no…
Christina Lizaso @btrfly12
RT @MaryOCMack: T4: Make sure every community's primary care docs and clinics are informed of clinical trials recruiting. #patientchat
Science37x @Science37x
RT @PatientIntv: T4: Patient portals should prompt individuals when relevant trials become available. Extend reach beyond University to ru…
International Pain Foundation® @powerofpain
RT @BarbyIngle: A4: Improvements can come from collected data on # of people at zip codes had particular DX and who treated them. Clinical…
Science37x @Science37x
RT @teaminspire: @LAlupusLady T4 We second that. We see some successful efforts among our nonprofit partners in connecting to patients/car…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A4: Create interactive recruitment tools that make people want to participate and target the population your after. #pati
Science37x @Science37x
RT @GetSocialHealth: How about Health Information Stations in Public Libraries? Screen with website links, and info that can be emailed hom…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: A4: Improvements can come from collected data on # of people at zip codes had particular DX and who treated them. Clinical…
Christina Lizaso @btrfly12
RT @PatientIntv: T4: Patient portals should prompt individuals when relevant trials become available. Extend reach beyond University to ru…
Science37x @Science37x
RT @vrulon: @not_defeated Excellent point. #culture is paramount to understanding what makes a group tick and further helps get the message…
Science37x @Science37x
RT @patientchat: T5: How will those tactics be used across different ages, races and genders? #patientchat
Vote November 6th @JECallender
@patientchat That last one above is the key to me. Need to recruit more diversity in mindset, thinking, and behavior toward designing trials. This will help gain a more comprehensive diversity. #patientchat
Mighty Casey Quinlan @MightyCasey
Truer words were never spoken! It's like spelunking in a dark cave, that site. Or Where's-Waldo, but Waldo's missing. #patientchat https://t.co/MvXCSxzX1Z
Alan Brewington @abrewi3010
T5 active listening, active communication, asking how might we doesn’t care about gender, minority status, race, etc. it only cares about human centered solutions #patientchat
Science37x @Science37x
T5. When you abandon assumptions & embrace listening, you open yourself up to learning from different people/populations. Ask THEM what’s important to them, to better serve them. #patientchat
Barby Ingle 📣 @BarbyIngle
A5: The data of the people who are tracked for specific conditions can be used in recruitment, marketing to those PTs specifically, and developing treatment options through trials that help the actual PT population at greatest risk for disease complications #patientchat https://t.co/afeE6nGmi3
Alicia C. Staley @stales
RT @Science37x: T1. Here’s an example: #diabetes is 2x more prevalent in Mexican-American and Puerto Rican communities vs whites, yet thos…
Science37x @Science37x
RT @JECallender: @patientchat That last one above is the key to me. Need to recruit more diversity in mindset, thinking, and behavior towar…
Heather McCullen @H_SalemOaks
RT @abrewi3010: T5 active listening, active communication, asking how might we doesn’t care about gender, minority status, race, etc. it on…
Patient Empowerment @power4patients
T4: Diversity is critically important but we have to keep in mind that overall < 5% of eligible patients participate in #clinicaltrials. LESS THAN 5%! I think the solution partially lies in telling the stories of "patient pioneers" Here's 1: https://t.co/piF4SW3mU4 #patientchat
Kistein Monkhouse, MPA @KisteinM
A4: Invest more into reaching, engaging and recruiting minority populations. Collaborate with non traditional partners such as community based organizations, as well as minority patient advocacy groups, religious organization,etc. #patientchat https://t.co/iDtn9M2BTP
Patient Empowerment @power4patients
RT @abrewi3010: T5 active listening, active communication, asking how might we doesn’t care about gender, minority status, race, etc. it on…
Annette McKinnon @anetto
@Justinrt4444 Yes, and look at representation of minorities among researchers and clinicians as well. We want to see ourselves represented on team. #PatientChat
Mighty Casey Quinlan @MightyCasey
RT @Science37x: T5. When you abandon assumptions & embrace listening, you open yourself up to learning from different people/populations. A…
Kevin J. Fowler @gratefull080504
A5: @patientchat : That is the inherent problem of moving to tactics first without a #patientengagement strategy Strategy first if you want to address root issues not symptoms #patientchat https://t.co/pD7OwwziMu
ShereeseM, MS/MBA @ShereesePubHlth
@MightyCasey If memory serves, they're currently operating on 33% of their original budget but I've been contemplating sending them an unsolicited proposal to update it. #patientchat
Geeky Fox @TechKitsune
A5: At some point everyone has a story and wants to be listened to. Outreach in communities is impactful because it is human interaction with the thought of helping someone who didn't know there were opportunities. #patientchat #HITsm
Cheryl @HealSuffering
Underrepresented populations in minority and rural communities may not have adequate information to participate in clinical trials. In addition, the lack of info may lead them to believe it would cost them to partake. #patientchat https://t.co/Hm7hRx1xsR
Katie @katie5280
@patientchat T4: Specifically market to areas with those populations, especially rural areas. Not everyone uses social media, so sending flyers or info via USPS could be helpful. #patientchat
Science37x @Science37x
RT @BarbyIngle: A5: The data of the people who are tracked for specific conditions can be used in recruitment, marketing to those PTs speci…
Alicia C. Staley @stales
RT @Science37x: T5. When you abandon assumptions & embrace listening, you open yourself up to learning from different people/populations. A…
Jamie Roger @JamieRoger8
Sorry I'm late to the party #patientchat Jamie here from CT, representing @salemoaks
Science37x @Science37x
RT @power4patients: T4: Diversity is critically important but we have to keep in mind that overall < 5% of eligible patients participate in…
Science37x @Science37x
RT @KisteinM: A4: Invest more into reaching, engaging and recruiting minority populations. Collaborate with non traditional partners such a…
Mighty Casey Quinlan @MightyCasey
@ShereesePubHlth Brave woman! Go for it #patientchat
Science37x @Science37x
RT @anetto: @Justinrt4444 Yes, and look at representation of minorities among researchers and clinicians as well. We want to see ourselves…
Dr. P @not_defeated
A5. You have to know your audience. For my diabetes support group, I have snacks & a play area for kids because I want moms to be able to attend. Something that small goes a long way. Understand the person you want to attract. #patientchat https://t.co/zRmca1L5wj
Science37x @Science37x
RT @gratefull080504: A5: @patientchat : That is the inherent problem of moving to tactics first without a #patientengagement strategy Strat…
Kareo @GoKareo
RT @HealSuffering: Underrepresented populations in minority and rural communities may not have adequate information to participate in clini…
Science37x @Science37x
RT @TechKitsune: A5: At some point everyone has a story and wants to be listened to. Outreach in communities is impactful because it is hum…
Kevin J. Fowler @gratefull080504
A5: #patientengagement strategy, strategy, strategy, etc. #patientchat https://t.co/pD7OwwziMu
Christina Lizaso @btrfly12
RT @anetto: @Justinrt4444 Yes, and look at representation of minorities among researchers and clinicians as well. We want to see ourselves…
Mighty Casey Quinlan @MightyCasey
RT @katie5280: @patientchat T4: Specifically market to areas with those populations, especially rural areas. Not everyone uses social media…
Christina Lizaso @btrfly12
RT @power4patients: T4: Diversity is critically important but we have to keep in mind that overall < 5% of eligible patients participate in…
Mighty Casey Quinlan @MightyCasey
RT @gratefull080504: A5: @patientchat : That is the inherent problem of moving to tactics first without a #patientengagement strategy Strat…
Patient Chat @patientchat
Topic 6 (T6:) coming up...https://t.co/lRhU0PEGMz #patientchat
Science37x @Science37x
RT @not_defeated: A5. You have to know your audience. For my diabetes support group, I have snacks & a play area for kids because I want mo…
Claire @clairehsnyman
RT @BarbyIngle: A2: Clinical trials need 2 better mirror PTs who will b the user. Especially on DX that appear diff n minority pops. If we…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: A5: The data of the people who are tracked for specific conditions can be used in recruitment, marketing to those PTs speci…
Vera Rulon FAHIMA @vrulon
@anetto @Justinrt4444 That's a very important point. A report by the Sullivan Commission discusses the importance of diversity in the health professions. Titled: MISSING PERSONS: MINORITIES IN THE HEALTH PROFESSIONS #patientchat https://t.co/R4BJEOS0KP
Patient Chat @patientchat
T6: What stakeholders should be involved ensuring diverse clinical trials? What is their role and how can they collaborate? #patientchat
Vera Rulon FAHIMA @vrulon
T5: @not_defeated mentioned #culture - apply tactics that work with a given population after understanding their needs & wants - @iCANResearch is a great example - also leveraging the communication channels that resonate #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @vrulon: @anetto @Justinrt4444 That's a very important point. A report by the Sullivan Commission discusses the importance of diversity…
Jamie Roger @JamieRoger8
RT @vrulon: @gratefull080504 Great point. Same goes for so many other diseases/conditions. Clinical trial participants should reflect the d…
Ken Taylor @KenRayTaylor
A5: Use the tracked data to form your media in a more meaningful way so it sounds like your talking to me and target the population your after. #patientchat https://t.co/jTlUYc4L0l
Heather McCullen @H_SalemOaks
@HealSuffering This is a problem in general. Making information more available is critical. #patientchat
Annette McKinnon @anetto
@PatientIntv Agree with @patientlntv. Portals might make a great way to inform people about trials and to raise health literacy. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T6: What stakeholders should be involved ensuring diverse clinical trials? What is their role and how can they collaborate…
Kistein Monkhouse, MPA @KisteinM
A5: Study the population carefully, target populations by incorporating #Sdoh. Gender disparities differs greatly from age disparities and race disparities. #patientchat https://t.co/WdXE3xCXjh
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A5: Use the tracked data to form your media in a more meaningful way so it sounds like your talking to me and target the…
Christina Lizaso @btrfly12
RT @TechKitsune: A5: At some point everyone has a story and wants to be listened to. Outreach in communities is impactful because it is hum…
Barby Ingle 📣 @BarbyIngle
A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that disease, patients, caregivers #patientchat https://t.co/Y2mAIdqZg1
Mighty Casey Quinlan @MightyCasey
General observation: PPRNs (Patient Powered Research Networks) and CDRNs (Clinical Data Research Networks) are emerging community-facing, have seen tangible diversity within them. #clinicalresearch #patientchat
Patient Empowerment @power4patients
#patientchat
Jamie Roger @JamieRoger8
RT @TechKitsune: A5: At some point everyone has a story and wants to be listened to. Outreach in communities is impactful because it is hum…
ShereeseM, MS/MBA @ShereesePubHlth
RT @MightyCasey: General observation: PPRNs (Patient Powered Research Networks) and CDRNs (Clinical Data Research Networks) are emerging co…
Kevin J. Fowler @gratefull080504
A5: I will respond with another question @patientchat Who are trying to serve with your clinical trial? If you can answer that truthfully, you know who your stakeholders are #patientchat https://t.co/tR7nztOMf5
Vote November 6th @JECallender
@vrulon @GetSocialHealth Are we assigning too much weight to blinding? Is blinding even possible these days? Traditional beliefs about blinding can shut down discussions about innovation. Maybe challenge beliefs here? #patientchat
Jamie Roger @JamieRoger8
RT @not_defeated: A5. You have to know your audience. For my diabetes support group, I have snacks & a play area for kids because I want mo…
Patient Chat @patientchat
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
Kevin J. Fowler @gratefull080504
#patientchat Have to run Thanks @patientchat
Mary MACK @MaryOCMack
T5: pay people for joining #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
T6 All of them! #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
Christina Lizaso @btrfly12
RT @MightyCasey: General observation: PPRNs (Patient Powered Research Networks) and CDRNs (Clinical Data Research Networks) are emerging co…
Jamie Roger @JamieRoger8
@not_defeated Awesome setuo, not to mention the amount of stress that decreases for your participants. #patientchat #human #relationships
Patient Chat @patientchat
RT @gratefull080504: A5: I will respond with another question @patientchat Who are trying to serve with your clinical trial? If you can a…
Science37x @Science37x
Type 2 Diabetes research hasn’t always represented everyone. You can change that #T2D #diabetes https://t.co/hwReBcg0Hg #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @Science37x: Type 2 Diabetes research hasn’t always represented everyone. You can change that #T2D #diabetes https://t.co/hwReBcg0Hg #pa
Cheryl @HealSuffering
Communication and understanding of cultural practices could possibly improve participation in clinical trials. Translators that understand the cultural idiosyncracies that may exist regarding medical care could help increase diversity. #patientchat https://t.co/2XHJNgVxT5
Science37x @Science37x
RT @vrulon: @anetto @Justinrt4444 That's a very important point. A report by the Sullivan Commission discusses the importance of diversity…
Science37x @Science37x
RT @patientchat: T6: What stakeholders should be involved ensuring diverse clinical trials? What is their role and how can they collaborate…
Science37x @Science37x
RT @vrulon: T5: @not_defeated mentioned #culture - apply tactics that work with a given population after understanding their needs & wants…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A5: The data of the people who are tracked for specific conditions can be used in recruitment, marketing to those PTs speci…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: A5: Use the tracked data to form your media in a more meaningful way so it sounds like your talking to me and target the…
Patient Chat @patientchat
@gratefull080504 Thank you for joining Kevin - enjoy your weekend! #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
Science37x @Science37x
RT @KisteinM: A5: Study the population carefully, target populations by incorporating #Sdoh. Gender disparities differs greatly from age di…
Science37x @Science37x
RT @MightyCasey: General observation: PPRNs (Patient Powered Research Networks) and CDRNs (Clinical Data Research Networks) are emerging co…
Science37x @Science37x
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
International Pain Foundation® @powerofpain
RT @BarbyIngle: A5: The data of the people who are tracked for specific conditions can be used in recruitment, marketing to those PTs speci…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A5: Use the tracked data to form your media in a more meaningful way so it sounds like your talking to me and target the…
International Pain Foundation® @powerofpain
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
Science37x @Science37x
RT @gratefull080504: A5: I will respond with another question @patientchat Who are trying to serve with your clinical trial? If you can a…
Vera Rulon FAHIMA @vrulon
@patientchat A6: Stakeholders - #patients & their #caregivers - ID what matters, communities/churches - disseminate information & improve #trust, #researchers - provide information & reduce biases in their circles, #regulators - ensure regs that protect #patientchat
Patient Chat @patientchat
RT @HealSuffering: Communication and understanding of cultural practices could possibly improve participation in clinical trials. Translato…
Science37x @Science37x
RT @HealSuffering: Communication and understanding of cultural practices could possibly improve participation in clinical trials. Translato…
Science37x @Science37x
RT @vrulon: @patientchat A6: Stakeholders - #patients & their #caregivers - ID what matters, communities/churches - disseminate information…
Mighty Casey Quinlan @MightyCasey
RT @Science37x: Type 2 Diabetes research hasn’t always represented everyone. You can change that #T2D #diabetes https://t.co/hwReBcg0Hg #pa
Cheryl @HealSuffering
@H_SalemOaks So true. There needs to be cooperation between personal physicians and the clinic running the trials. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @not_defeated: A5. You have to know your audience. For my diabetes support group, I have snacks & a play area for kids because I want mo…
Science37x @Science37x
@patientchat @gratefull080504 Great chatting with you, Kevin! #patientchat
Vera Rulon FAHIMA @vrulon
@JECallender @GetSocialHealth Couldn't agree more. #challenge #patientchat
Geeky Fox @TechKitsune
RT @BarbyIngle: A6: Stakeholders should include the trial coordinators, researchers, data collection companies, NPO patient orgs for that d…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T6: What stakeholders should be involved ensuring diverse clinical trials? What is their role and how can they collaborate…
Ken Taylor @KenRayTaylor
A6: Trial coordinators , patient organizations, patients and care givers should be involved. #patientchat https://t.co/hZo5RKiLMa
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Alan Brewington @abrewi3010
A6 before stakeholders are identified lets spend more time on the trial question. We need better/more human centered quests for QOL. #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T5: How will those tactics be used across different ages, races and genders? #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T4: How can researchers improve engagement and recruitment of minority patient populations? #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T3: What are some of the barriers to diversifying clinical trials? #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T2: Why do you think it is important to diversify clinical trials? #patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: A6: Trial coordinators , patient organizations, patients and care givers should be involved. #patientchat https://t.co/hZ…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T1: Why do you think there is so much disparity in enrollment of minority patient populations in clinical trials? #patient
Kistein Monkhouse, MPA @KisteinM
👌There’s a clear divide between those that are privileged to be a part of the conversation let alone the trials themselves. #LGBTQ populations 👋 #elderly #racial and #ethnic #minorities 👋 #poverty stricken populations 👋#patientchat https://t.co/JnLn4zW482
Science37x @Science37x
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: A6: Trial coordinators , patient organizations, patients and care givers should be involved. #patientchat https://t.co/hZ…
ShereeseM, MS/MBA @ShereesePubHlth
RT @KisteinM: 👌There’s a clear divide between those that are privileged to be a part of the conversation let alone the trials themselves. #…
Science37x @Science37x
RT @KisteinM: 👌There’s a clear divide between those that are privileged to be a part of the conversation let alone the trials themselves. #…
Christina Lizaso @btrfly12
Closing Thoughts - Ala today's #HITsm chat earlier, don't underestimate the power of storytelling in bringing about change. Increasing diversity in #clinicaltrials won't just happen - needs champions and thoughtful collaboration. #patientchat
Jamie Roger @JamieRoger8
@HealSuffering @H_SalemOaks Having worked in a clinic that had mediocre communication between the clinical trial #researchers and the clinical staff, it is CRUCIAL that everyone is on the same page. Otherwise #patients get lost or aren't treated with the best care. #patientchat #brokensystem
Regina Holliday @ReginaHolliday
RT @KisteinM: A3: cultural competency is a huge barrier in clinical trials. I.e are you meeting patients at their levels, is staff/recruite…
Regina Holliday @ReginaHolliday
RT @KisteinM: A3: barriers to diversifying clinical trials can be locations I.e reaching those living in rural areas. #patientchat https://…
Regina Holliday @ReginaHolliday
RT @vrulon: A3: Add to already mentioned barriers: bureaucratic processes in current trials & lack of automation (but very slowly getting b…
Regina Holliday @ReginaHolliday
RT @ShereesePubHlth: @KisteinM This is a huge problem . Many clinical trial teams have no buy-in to underserved communities and there's no…
#patientchat content from Twitter.