#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
 | Alexa Jett 🦋 @ohhiialexa @scrufton73 @FibroFlutters Hello, nice to see you! #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited about today’s #patientchat |
 | Diverse Health Hub @DHealthhub @patientchat Hi I’m Nykema from Diverse Health Hub, happy to be here! #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Alan Brewington @abrewi3010 Alan here. Trying to finish a Annual Report that’s due by the COB today. My arthritis is hurting too. #patientchat |
 | Carly Flumer (she/her) @carlyflumer Hey guys! I’m Carly, a #AYA #thyca patient. 🦋 #patientchat |
| Alexa Jett 🦋 @ohhiialexa Hello #patientchat friends, It’s Alexa! ❤️ It was wonderful to connect with you 2 weeks ago at the Virtual Empowered Patient Chat! Happy we can be together again today. |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings, all! Loudmouthed patient activist here, also #journo #healthpolicy #healthliteracy #science And I write stuff for @power4patients #patientchat |
 | Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph Hi everyone! I'm Christie, a public health consultant and founder of How to Talk to Your Doctor. Excited to be here today. #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/fs20NR954d #patientchat |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @power4patients This is how I know we’re going to have some laughs today!! #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Patient Access: Let’s Talk Health Care Technology https://t.co/VcooGKfOFG https://t.co/FnOfs4V7p7 |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer Hello, Carly!! #patientchat https://t.co/eszrPajYis |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
 | Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is Patient Access: Today's #patientchat topic is Patient Access: Let’s Talk Health Care Technology https://t.co/VcooGKfOFG https://t.co/FnOfs4V7p7 |
| Patient Chat @patientchat T1: How has technology contributed to patients being engaged in their health care? #patientchat https://t.co/RfiJ1ZJrhA |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: How has technology contributed to patients being engaged in their health care? #patientchat https://t.co/RfiJ1ZJrhA |
| Alexa Jett 🦋 @ohhiialexa T1: Health trackers are helping with fitness goals, nutrition apps are helping with food logging. Patients can bring the data to appointments. And online portals are allowing patients to see results quicker than they used to at any time. #patientchat |
| Patient Chat @patientchat RT @ohhiialexa: T1: T1: Health trackers are helping with fitness goals, nutrition apps are helping with food logging. Patients can bring the data to appointments. And online portals are allowing patients to see results quicker than they used to at any time. #patientchat |
| Alan Brewington @abrewi3010 A1 thanks to the history stored in the internet I was able to successfully reduce a hospital bill by 40% bc I knew my rights and their money streams. Specially I learned I had a right to an audit so I could challenge charges. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: for people/patients with digital access, the explosion of telemedicine has been a big plus. For those on the don't-have side of the digital divide, which include a lot of folx designated "essential," it's a nothingburger. Equity is still MIA in #digitalmedicine #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A1 thanks to the history stored in the internet I was able to successfully reduce a hospital bill by 40% bc I knew my rights and their money streams. Specially I learned I had a right to an audit so I could challenge charges. #patientchat |
| Carly Flumer (she/her) @carlyflumer T1: In SO many ways! From telehealth to EHRs, virtual support groups, and online portals! Of course, this comes with a new level of learning that includes #digitalhealthliteracy. #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: T1: T1: In SO many ways! From telehealth to EHRs, virtual support groups, and online portals! Of course, this comes with a new level of learning that includes #digitalhealthliteracy. #patientchat |
| Diverse Health Hub @DHealthhub @patientchat T1: Patients can now access patient portals from their home. Easily request refills or ask simple questions from their home. Patients in rural areas greatly benefit as well considering telemedicine. #patientchat |
| Diverse Health Hub @DHealthhub RT @ohhiialexa: T1: T1: Health trackers are helping with fitness goals, nutrition apps are helping with food logging. Patients can bring the data to appointments. And online portals are allowing patients to see results quicker than they used to at any time. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A1: For some patients it has helped with communication and to feel more in control of their care because they can see lab results, send questions to doctors, etc. But not all patients have access - this has to be centered. #patientchat |
| Alan Brewington @abrewi3010 A1 thanks to the exposure social media has given me my health literacy rate is higher and growing daily. I’m not just stuck in an #arthritis or #chronicpain silo. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @carlyflumer: T1: T1: In SO many ways! From telehealth to EHRs, virtual support groups, and online portals! Of course, this comes with a new level of learning that includes #digitalhealthliteracy. #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A1 thanks to the exposure social media has given me my health literacy rate is higher and growing daily. I’m not just stuck in an #arthritis or #chronicpain silo. #patientchat |
| Diverse Health Hub @DHealthhub RT @carlyflumer: T1: T1: In SO many ways! From telehealth to EHRs, virtual support groups, and online portals! Of course, this comes with a new level of learning that includes #digitalhealthliteracy. #patientchat |
| Carly Flumer (she/her) @carlyflumer @scrufton73 I love having something like this! My phone dings every time I need to take a med. #thisischronicdiease #patientchat |
| Patient Empowerment Network @power4patients RT @DHealthhub: @patientchat T1: @patientchat T1: Patients can now access patient portals from their home. Easily request refills or ask simple questions from their home. Patients in rural areas greatly benefit as well considering telemedicine. #patientchat |
| Alan Brewington @abrewi3010 A1 I’m less lonely thanks to #patientchat and conferences like #Medx. |
| Patient Chat @patientchat Topic 2 (T2:) coming up... #patientchat |
 | Melissa VanHouten @melissarvh Access to the Internet & online forums has enabled patients to find credible research and tips re their conditions -- info that they can present to & discuss with their physicians if they are so inclined. Patients are no longer in total darkness re their illnesses. #PatientChat |
| Alexa Jett 🦋 @ohhiialexa @scrufton73 Yes, medication reminders are an excellent resource! #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A1 I’m less lonely thanks to #patientchat and conferences like #Medx. |
| Patient Chat @patientchat T2: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat https://t.co/DcBwxnyA1e |
 | Trisha Bundy @bundytr5 RT @melissarvh: Access to the Internet & online forums has enabled patients to find credible research and tips re their conditions -- info that they can present to & discuss with their physicians if they are so inclined. Patients are no longer in total darkness re their illnesses. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat https://t.co/DcBwxnyA1e |
 | Jeremy Murphy @jeremypmurphy RT @patientchat: Join us for an Empowered #patientchat "Patient Access: Join us for an Empowered #patientchat "Patient Access: Let's Talk About Health Care Technology" on Friday 5/29 10amPT | 1pmET https://t.co/pQSmX3lcfz https://t.co/AhWmRv4AYI |
| Diverse Health Hub @DHealthhub RT @cvhconsulting: @patientchat A1: @patientchat A1: For some patients it has helped with communication and to feel more in control of their care because they can see lab results, send questions to doctors, etc. But not all patients have access - this has to be centered. #patientchat |
 | AllStripes @_allstripes @patientchat A1: Technology is making it easier for patients to find answers for their condition or connect with others in their community from around the world. #raredisease #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T1: T1: How has technology contributed to patients being engaged in their health care? #patientchat https://t.co/RfiJ1ZJrhA |
 | Your GPS Doc, LLC @yourgpsdoc Joining late. I’m Nicole Rochester, pediatrician, former caregiver, health advocate and the CEO of @yourgpsdoc. Hi everyone! #patientchat |
| Alexa Jett 🦋 @ohhiialexa T2: I use nutrition trackers to watch my calcium levels. It’s important as a #thyroidcancer survivor to make sure I get enough in my diet. I love using Wii Fit for exercise. #patientchat |
| AllStripes @_allstripes @patientchat A2: At @rdmd, we encourage #raredisease patients to use technology to help manage their health and participate in research. Many patients see multiple specialists to manage their rare disease. We help collect, organize and update medical records on patients' behalf. #patientchat |
| Alan Brewington @abrewi3010 A2 I use my Apple Watch to track my heart and to identify pain when in #afib. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc Technology has allowed patients to be engaged in their health care through the use of telemedicine and patient portals. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @yourgpsdoc So glad you could make it, Dr. Rochester! 😊 #patientchat |
 | I'm Lonely What Can I Do @ImLonelyWCID RT @abrewi3010: A1 I’m less lonely thanks to #patientchat and conferences like #Medx. |
| Melissa VanHouten @melissarvh Every day, all day long. I embrace it b/c I see it as progress & b/c it has opened up a world of knowledge & support for me. Technology can enhance traditional care if you allow it & keep it in check. #PatientChat |
| Carly Flumer (she/her) @carlyflumer T2: Absolutely! I think I have 4 patient portals, I use apps to keep track of fitness and medicine, and most recently, I’ve experienced #telehealth appointments. #patientchat |
 | Inspire @InspireIsHealth RT @patientchat: T2: T2: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat https://t.co/DcBwxnyA1e |
| Your GPS Doc, LLC @yourgpsdoc T2: I have used telemedicine to connect with my doctor before and during the COVID-19 pandemic with great results. I also like being able to view my lab results and send my doc an email through the patient portal. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Today's #patientchat topic is Patient Access: Today's #patientchat topic is Patient Access: Let’s Talk Health Care Technology https://t.co/VcooGKfOFG https://t.co/FnOfs4V7p7 |
| Patient Empowerment Network @power4patients @patientchat To help bridge the #digitaldivide, we created #DigitalSherpa Program to help seniors become tech savvy w/ the help of university students. Thanks to our partners @MoffittNews @CancerSupportHQ, we've been able to reach thousands of #cancer patients & care partners #patientchat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer I think I have 4 too! Gotta catch them all like Pokémon 😂 #patientchat https://t.co/ThJ031jgmn |
| Carly Flumer (she/her) @carlyflumer @power4patients @patientchat @MoffittNews @CancerSupportHQ Yesss! Love this program!! #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up... #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: I have a smartwatch, used it more before I got trapped in the house due to TKA and then COVID, but will start using it daily again as I emerge - MASKED, ALWAYS - from Miss Havisham's Bunker. Also have a Kardia heart monitor. #patientchat |
| Patient Chat @patientchat T3: What are the challenges or barriers to patients accessing health care technology? #patientchat https://t.co/pIjI8U0WGU |
| Diverse Health Hub @DHealthhub @patientchat T2: Yes, I enjoy the ease of the patient portals. It reminds me to contact my physician when a medication is running low & I have the ability to review my lab results before my next follow up. It sort of takes away some of the anxiety when returning for a follow up. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T2: While some seniors shy away from technology, it can be a great tool to keep them connected to their providers and engaged in their health care journey. Adult children (and grandchildren) can be a tremendous help when necessary. #patientchat |
| Diverse Health Hub @DHealthhub RT @power4patients: @patientchat To help bridge the #digitaldivide, we created #DigitalSherpa Program to help seniors become tech savvy w/ the help of university students. Thanks to our partners @MoffittNews @CancerSupportHQ, we've been able to reach thousands of #cancer patients & care partners #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What are the challenges or barriers to patients accessing health care technology? #patientchat https://t.co/pIjI8U0WGU |
| AllStripes @_allstripes @patientchat A3: Not all patients and caregivers are comfortable using technology to manage their care. It is important to address any concerns about security and privacy of sensitive health records. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: I'll also admit that, other than geezerdom and a fat a$$, I'm pretty darn healthy. For which I am grateful. Digital tools help me stay that way. But I don't have a perfect record 🤣 #patientchat |
| Alan Brewington @abrewi3010 A3 cost and reimbursement. Technology isn’t cheap or easily accessed by all. Worse, to many payers don’t deem tech medically necessary so they won’t pay. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat Not everyone is as engaged with technology because of the #digitaldivide. Technology can be a burden if not understood. Also, #healthliteracy translates to the technological side of healthcare, too. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3: Some challenges to accessing technology include socioeconomic barriers (access to WiFi, smartphones/tablets, etc.). Patients with cognitive disabilities, including dementia, may have difficulty utilizing technology. Lastly, some have privacy concerns. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T3: T3: What are the challenges or barriers to patients accessing health care technology? #patientchat https://t.co/pIjI8U0WGU |
| Alan Brewington @abrewi3010 A3 technology is only a tool, it isn’t a cure all or a perfect diagnostic creation. To many expect tech to diagnose and cure them before their 30 min or less pizza arrives. #patientchat |
| Patient Chat @patientchat @SoniaSu_ @kitstoheart Hi Sonia! Happy you could join in today! #patientchat |
| Alexa Jett 🦋 @ohhiialexa T3: Expense and location. I live rurally, and my internet can be spotty. Some smaller health care systems don’t have portals (or good ones) yet either. Plus fitness trackers or apps can be expensive! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @SoniaSu_ @patientchat Yeah, when I was in early days of breast cancer journey, the ginormous binders of "resource material" were like WHUMP And about as useful as a doorstop, really. 2008 => 2020, progress made. But medicine is still too wedded to paper, in all things. #patientchat |
| Diverse Health Hub @DHealthhub RT @carlyflumer: @patientchat Not everyone is as engaged with technology because of the #digitaldivide. Technology can be a burden if not understood. Also, #healthliteracy translates to the technological side of healthcare, too. #patientchat |
 | Marcela Musgrove @marcela @patientchat T2 I personally have used telehealth appointments, mychart portal and symptom trackers though not on a regular basis. I had an app which encouraged me to walk more as well. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat T3: There are many barriers. Language. Not having access to the technology (no smart phone or computer). No internet access. Not understanding how to use the systems. Fear of medical care in general, then adding an additional layer of confusion. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up... #patientchat |
| Melissa VanHouten @melissarvh Technical issues & difficulty of implementing; lack of access to Internet, mobile devices, telehealth, etc.; complicated systems; hesitancy (on the part of patients & docs) to change; perception that it lacks "human touch" #PatientChat |
| Patient Chat @patientchat T4: What approaches do you think can improve patient access to technology? #patientchat https://t.co/GYQJlXAAAn |
 | Annette McKinnon @anetto @patientchat T3 Some of the barriers are actually physical. Go down the hall to the left, 2nd door on the left, wait to be acknowledged, then fill out a lengthy form, go home, and we will send you a code to access the portal (and fill in your info all over again) #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: <clears throat> THE DIGITAL DIVIDE. Access to digital tools, even something as basic as a notebook or tablet device, is beyond the reach of too many, still. Smartphones are expensive, to acquire and to use. Digital divide is still wide. https://t.co/flFhyuqgfw #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @SoniaSu_ @patientchat Wow. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What approaches do you think can improve patient access to technology? #patientchat https://t.co/GYQJlXAAAn |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @ohhiialexa: T3: T3: Expense and location. I live rurally, and my internet can be spotty. Some smaller health care systems don’t have portals (or good ones) yet either. Plus fitness trackers or apps can be expensive! #patientchat |
| Alexa Jett 🦋 @ohhiialexa T4: Getting better internet access and education for everyone, regardless of zipcode or area. My town has a lot of chronic health issues, including poor access to mental health services. I am hoping telehealth can fill in the gap. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T4: T4: What approaches do you think can improve patient access to technology? #patientchat https://t.co/GYQJlXAAAn |
| Diverse Health Hub @DHealthhub @patientchat T3: Just like others are saying, not all patients are comfortable and fluent with technology. There will also be privacy concerns. We must push #digitalhealthliteracy. Other patients may not have the income to have access to a sufficient device. #patientchat |
| Patient Empowerment Network @power4patients RT @ohhiialexa: T4: T4: Getting better internet access and education for everyone, regardless of zipcode or area. My town has a lot of chronic health issues, including poor access to mental health services. I am hoping telehealth can fill in the gap. #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @DHealthhub: @patientchat T3: @patientchat T3: Just like others are saying, not all patients are comfortable and fluent with technology. There will also be privacy concerns. We must push #digitalhealthliteracy. Other patients may not have the income to have access to a sufficient device. #patientchat |
| Annette McKinnon @anetto T3 I may be unable to get wifi access, or have a private place to look at my information. Maybe my kids need to use our one computer all day. However any way is better than talking to the dragon at the gate (mean secretary) Save me please! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T4: Increased access to free WiFi in the home, outreach by HCPs, demos in the office, text reminders to sign up, view results, etc. #patientchat |
| Alan Brewington @abrewi3010 A4 I think we need to ask, how might we increase engagement across social economic boundaries? Tech does no good if patient doesn’t want to be engaged. #patientchat |
| Diverse Health Hub @DHealthhub RT @yourgpsdoc: T4: T4: Increased access to free WiFi in the home, outreach by HCPs, demos in the office, text reminders to sign up, view results, etc. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat T4: This is a tough question. The most marginalized will struggle to find the funds for smart phones and regular service. Community health workers can help/home visiting services. We need to advocate for coverage through medicaid. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Case in point - buddy, retired WaPo writer, lives rural. His access = satellite broadband, which is laggy AF. No Zoom capability. Zero cell signal. Service is so bad from ISP that *I* am headed out there to re-wire from dish to house. (I'm fmr broadcast engineer) #patientchat |
| Annette McKinnon @anetto T3 We need a better way to help patients become health literate. Why is this not part of the core curriculum in our schools? What is more important? #patientchat |
| Melissa VanHouten @melissarvh Training; clear instructions & communication; education about what constitutes credible sources vs misinformation; flat-out access to Internet/phone/other devices; gradual transitioning to new systems & willingness to adjust these as necessary. #PatientChat |
| Alan Brewington @abrewi3010 A4 we still need to raise medical literacy rates and patient speak literacy rate among docs. #patientchat |
| AllStripes @_allstripes A4: We were glad to see telecommunications companies step up during the pandemic to provide free basic internet to low-income households, especially with schools and libraries closed. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up... #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: T4: T4: Increased access to free WiFi in the home, outreach by HCPs, demos in the office, text reminders to sign up, view results, etc. #patientchat |
| Alan Brewington @abrewi3010 A4 if a patient has to choose between a smart phone or rent, which are they going to pick? Food or a IPad? #patientchat |
| Carly Flumer (she/her) @carlyflumer T4: Increasing #digitalhealth literacy. Apparently, this is my answer to everything. 😂 #patientchat |
| Annette McKinnon @anetto T4. We need to look at Wi-Fi access as an essential service for everyone in our country or province. If your access to healthcare is going to depend on your access to broadband, that’s unfair and inequitable #patientchat |
| Your GPS Doc, LLC @yourgpsdoc I would LOVE to be part of a health literacy curriculum development program in schools!! 🤗 #patientchat |
| Alexa Jett 🦋 @ohhiialexa @Ataxia_and_Me Love Cymru ❤️ 🏴 Internet improvements are needed all around the world! #patientchat |
| Patient Chat @patientchat T5: Have you used technology more as a result of COVID-19? If so, what technology? #patientchat https://t.co/uT6SRPaJvT |
| Alan Brewington @abrewi3010 RT @anetto: T4. We need to look at Wi-Fi access as an essential service for everyone in our country or province. If your access to healthcare is going to depend on your access to broadband, that’s unfair and inequitable #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: Have you used technology more as a result of COVID-19? If so, what technology? #patientchat https://t.co/uT6SRPaJvT |
| Alexa Jett 🦋 @ohhiialexa RT @abrewi3010: A4 if a patient has to choose between a smart phone or rent, which are they going to pick? Food or a IPad? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @cvhconsulting: @patientchat T4: @patientchat T4: This is a tough question. The most marginalized will struggle to find the funds for smart phones and regular service. Community health workers can help/home visiting services. We need to advocate for coverage through medicaid. #patientchat |
 | trapdinawrpool @trapdinawrpool RT @anetto: T4. We need to look at Wi-Fi access as an essential service for everyone in our country or province. If your access to healthcare is going to depend on your access to broadband, that’s unfair and inequitable #patientchat |
| Carly Flumer (she/her) @carlyflumer @yourgpsdoc I second that!! #patientchat |
| AllStripes @_allstripes A5: We have seen many #raredisease conferences go online, including #NTSADVFC2020 hosted by @NTSAD and #RDDS2020 hosted by @GlobalGenes. This increases the number of people who can access information, learn and ask questions of researchers and foundation leaders. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T5: I’ve used telehealth visits, which I hope are here to stay. I’m a proud member of the @LacunaLoft family, which are all virtual activities, #COVID19 or not! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: There has to be some kind of guarantee of digital access as a civil/civic right, for starters. Too many people w/out enough income to pay high cost of even smartphone, much less home ISP. In US, in current political climate, file that under 'fat chance." #patientchat |
| Carly Flumer (she/her) @carlyflumer T5: Almost all of my appointments have been virtual, so it’s been a change. I actually don’t mind it. #immunocompromisedlife #patientchat |
| Alan Brewington @abrewi3010 @SoniaSu_ Maybe, just maybe, this pandemic will start a new conversation about what is a human right and what is a consumer right. Maybe we can bring the human right definition to match the 21st century ideals. #patientchat |
| Annette McKinnon @anetto T5 Now I am dreaming of faces in little boxes. We all have the same real estate in our Zoom chats and meetings. #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: @SoniaSu_ Maybe, just maybe, this pandemic will start a new conversation about what is a human right and what is a consumer right. Maybe we can bring the human right definition to match the 21st century ideals. #patientchat |
| Annette McKinnon @anetto RT @MightyCasey: T4: T4: There has to be some kind of guarantee of digital access as a civil/civic right, for starters. Too many people w/out enough income to pay high cost of even smartphone, much less home ISP. In US, in current political climate, file that under 'fat chance." #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @rdmd My provider (VZW) just announced they're ending that program this Sunday ... so YMMV on that one. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T5: I was a fairly heavy user of technology pre-COVID, but many of my clients are using telemedicine for the first time. #Caregivers are using tech to communicate with their loved ones in hospitals and nursing homes. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey I think this is an important topic. With the world getting increasingly more digital, technology must be a right. #patientchat |
| Alan Brewington @abrewi3010 A5 I’ve had several telehealth experiences thanks to #Covid_19. My first ever FaceTime call. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @ohhiialexa: @MightyCasey I think this is an important topic. With the world getting increasingly more digital, technology must be a right. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @abrewi3010: @SoniaSu_ Maybe, just maybe, this pandemic will start a new conversation about what is a human right and what is a consumer right. Maybe we can bring the human right definition to match the 21st century ideals. #patientchat |
| Melissa VanHouten @melissarvh I haven't, but many members of my online communities have. They've had little choice but 2 try telehealth visits & rely on portal/email communication w/docs, as COVID stopped their normal way of engaging. Hope the tech boost is 1 good thing 2 come from this pandemic. #PatientChat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph Or they don't speak English or need someone who understands sign language. How are they expected to navigate care and appointments? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @Ataxia_and_Me @OxPharmaGenesis Thanks! #patientchat |
| Carly Flumer (she/her) @carlyflumer @ohhiialexa @LacunaLoft I just started getting their emails, along with @ElephantsTea! Yay for more #supportgroups! #AYAlife #patientchat |
| Patient Chat @patientchat Last topic (T6:) coming up... #patientchat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer @LacunaLoft @ElephantsTea I have so much fun with both of them!! #patientchat |
| Alan Brewington @abrewi3010 RT @cvhconsulting: Or they don't speak English or need someone who understands sign language. How are they expected to navigate care and appointments? #patientchat |
| Annette McKinnon @anetto T5 I strongly favour virtual visits and I have had four so far. Despite my enthusiasm in principle only two were helpful. Sometimes what you need has to be a face-to-face experience. #patientchat |
| Patient Empowerment Network @power4patients @patientchat We've been reaching patients virtually via online communication tools for 10+ years, including webinars and engaging video content. Our mission to empower patients is now more important than ever, especially through access and education programs like #DigitalSherpa #patientchat |
| Patient Chat @patientchat T6: What do you hope for the future of health care technology? #patientchat https://t.co/LBRjhmmlMy |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: @patientchat We've been reaching patients virtually via online communication tools for 10+ years, including webinars and engaging video content. Our mission to empower patients is now more important than ever, especially through access and education programs like #DigitalSherpa #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: Have you used technology more as a result of COVID-19? If so, what technology? #patientchat https://t.co/uT6SRPaJvT |
| Alexa Jett 🦋 @ohhiialexa T6: Improving health portals (for both patient and care team’s sake!), more collaboration with patients to develop health tech, and I hope the cost of wearable technologies will go down so they become more accessible. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: First time I sent an instant message using digital tech was ... wait for it ... 1980. So I've been geeky since before geeky was cool. But I recognize the privilege I have to continue to explore new tech. Everybody counts, or nobody counts. Access for all. #patientchat |
| Diverse Health Hub @DHealthhub @patientchat T5: Yes, I have actually diagnosed myself with Zoom fatigue lol. However, I don’t mind the change, I’ve drawn closer to people and have grown to appreciate a virtual community. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Zoom. Isn't EVERYONE? #patientchat |
| AllStripes @_allstripes A6: We hope that healthcare technology continues to shift towards making patients real partners in designing new tools and ideas. This means involving patients and caregivers in the process and considering how technology can impact their quality of life. #patientchat #RareDisease |
| Your GPS Doc, LLC @yourgpsdoc T6: I hope that telemedicine remains widely available post-COVID19 and that visits are covered by ALL health insurance companies without restrictive policies. I hope that basic WiFi access is provided to every household. I hope that technology is used to unite. #patientchat |
| Diverse Health Hub @DHealthhub RT @anetto: T3 We need a better way to help patients become health literate. Why is this not part of the core curriculum in our schools? What is more important? #patientchat |
| Carly Flumer (she/her) @carlyflumer T6: I hope that telehealth visits continue, as well as support groups. There are too many physical, economic, and social barriers that can be broken down by technology. But, we need to make technology work for us as patients and not the other way around. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey I read this as a haiku #patientchat |
| Patient Empowerment Network @power4patients @patientchat We continue to innovate & provide our network w/ access to educational & empowerment programming in a digital & easy-to-use format. The needs of #cancer community don’t stop for a pandemic and neither do we. Our resources are available free 24/ 7/365 #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: T6: T6: I hope that telehealth visits continue, as well as support groups. There are too many physical, economic, and social barriers that can be broken down by technology. But, we need to make technology work for us as patients and not the other way around. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: @patientchat We continue to innovate & provide our network w/ access to educational & empowerment programming in a digital & easy-to-use format. The needs of #cancer community don’t stop for a pandemic and neither do we. Our resources are available free 24/ 7/365 #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: T6: T6: I hope that telemedicine remains widely available post-COVID19 and that visits are covered by ALL health insurance companies without restrictive policies. I hope that basic WiFi access is provided to every household. I hope that technology is used to unite. #patientchat |
| Alan Brewington @abrewi3010 A6 I hope we can start teaching #designthinking in high school. Let’s get new thinkers new ways of design life. Once this happens tools like technology will have a new life. New thinking expands the creative use of tools. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: What do you hope for the future of health care technology? #patientchat https://t.co/LBRjhmmlMy |
| Annette McKinnon @anetto T6 I hope for more control of my healthcare technology experiences in the future. There should be broad patient consultation and co-creation in the way this is rolled out and around the conventions we will all be using. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: @patientchat To help bridge the #digitaldivide, we created #DigitalSherpa Program to help seniors become tech savvy w/ the help of university students. Thanks to our partners @MoffittNews @CancerSupportHQ, we've been able to reach thousands of #cancer patients & care partners #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @abrewi3010: A6 I hope we can start teaching #designthinking in high school. Let’s get new thinkers new ways of design life. Once this happens tools like technology will have a new life. New thinking expands the creative use of tools. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat T6: Equity. Equity. Equity. More services after hours, access to internet and technology covered by insurance, and services available in multiple languages. (for starters) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6: I think our current sitch - which is, no kidding, possible front end of an extinction event if we don't get serious about working as a species vs as [insert nationality here] - makes tech critical factor infrastructure for human survival. Again, not kidding. #patientchat |
| Melissa VanHouten @melissarvh That it is readily available & accessible to all who desire it; docs are fairly reimbursed for telehealth visits; docs & patients are trained in its proper use; & it never lacks the personalization that in-person contact affords. More & better! #PatientChat |
| Your GPS Doc, LLC @yourgpsdoc RT @melissarvh: That it is readily available & accessible to all who desire it; docs are fairly reimbursed for telehealth visits; docs & patients are trained in its proper use; & it never lacks the personalization that in-person contact affords. More & better! #PatientChat |
| Your GPS Doc, LLC @yourgpsdoc RT @cvhconsulting: @patientchat T6: @patientchat T6: Equity. Equity. Equity. More services after hours, access to internet and technology covered by insurance, and services available in multiple languages. (for starters) #patientchat |
| Carly Flumer (she/her) @carlyflumer @anetto Yes! Using patients in the development of anything healthcare-related is key to creating better health outcomes. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6a: That said, I think patient communities can show leadership by proving national borders are meaningless when addressing issues that impact human health. #patientchat |
| AllStripes @_allstripes RT @carlyflumer: T6: T6: I hope that telehealth visits continue, as well as support groups. There are too many physical, economic, and social barriers that can be broken down by technology. But, we need to make technology work for us as patients and not the other way around. #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @MightyCasey: T6a: T6a: That said, I think patient communities can show leadership by proving national borders are meaningless when addressing issues that impact human health. #patientchat |
| Alan Brewington @abrewi3010 A6 the quicker we implement the methodology of Everyone Included the better. #patientchat |
| Melissa VanHouten @melissarvh RT @carlyflumer: T6: T6: I hope that telehealth visits continue, as well as support groups. There are too many physical, economic, and social barriers that can be broken down by technology. But, we need to make technology work for us as patients and not the other way around. #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A6 the quicker we implement the methodology of Everyone Included the better. #patientchat |
| Diverse Health Hub @DHealthhub T6: Health care technology should be accessed by all no matter the socioeconomic status or any social determinat. We should push digital health literacy among upcoming medical professionals and patients. If done right, I hope we can eliminate various disparities. #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T6: T6: What do you hope for the future of health care technology? #patientchat https://t.co/LBRjhmmlMy |
| Alexa Jett 🦋 @ohhiialexa RT @DHealthhub: T6: T6: Health care technology should be accessed by all no matter the socioeconomic status or any social determinat. We should push digital health literacy among upcoming medical professionals and patients. If done right, I hope we can eliminate various disparities. #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T5: T5: Have you used technology more as a result of COVID-19? If so, what technology? #patientchat https://t.co/uT6SRPaJvT |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T3: T3: What are the challenges or barriers to patients accessing health care technology? #patientchat https://t.co/pIjI8U0WGU |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T2: T2: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat https://t.co/DcBwxnyA1e |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Diverse Health Hub @DHealthhub RT @cvhconsulting: @patientchat T6: @patientchat T6: Equity. Equity. Equity. More services after hours, access to internet and technology covered by insurance, and services available in multiple languages. (for starters) #patientchat |
| Annette McKinnon @anetto RT @DHealthhub: T6: T6: Health care technology should be accessed by all no matter the socioeconomic status or any social determinat. We should push digital health literacy among upcoming medical professionals and patients. If done right, I hope we can eliminate various disparities. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6b: Emergence of groups like @BeLikeLight and @_DiMeSociety - including emerging allyship - shows that patient community and tech/sci community will team up to save humanity. While tackling issues of #surveillanceeconomy + #dataprivacy Stay tuned for updates. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alexa Jett 🦋 @ohhiialexa CT: Techology MUST be accessible and patients MUST be part of developing services for our community! #patientchat |
| Annette McKinnon @anetto RT @MightyCasey: T6b: T6b: Emergence of groups like @BeLikeLight and @_DiMeSociety - including emerging allyship - shows that patient community and tech/sci community will team up to save humanity. While tackling issues of #surveillanceeconomy + #dataprivacy Stay tuned for updates. #patientchat |
| Melissa VanHouten @melissarvh RT @ohhiialexa: CT: CT: Techology MUST be accessible and patients MUST be part of developing services for our community! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc CT: Technology is a vital part of the future of healthcare. We must not only ensure that ALL have access but that we do the work of improving health literacy so the use of tech is meaningful. #patientchat |
| Alan Brewington @abrewi3010 CT just because someone has $2509 in their account doesn’t mean they have access to a $1509 IPad. It’s much more complicated. We need more conversation about why healthcare is a human right vs a checkbook right. #patientchat |
| Annette McKinnon @anetto RT @ohhiialexa: CT: CT: Techology MUST be accessible and patients MUST be part of developing services for our community! #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @yourgpsdoc: CT: CT: Technology is a vital part of the future of healthcare. We must not only ensure that ALL have access but that we do the work of improving health literacy so the use of tech is meaningful. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Your GPS Doc, LLC @yourgpsdoc RT @DHealthhub: T6: T6: Health care technology should be accessed by all no matter the socioeconomic status or any social determinat. We should push digital health literacy among upcoming medical professionals and patients. If done right, I hope we can eliminate various disparities. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6c: This'll take EVERYBODY. Start where you are. Use what you have. Do what you can. Lather, rinse, repeat. #patientchat https://t.co/6GVRv7QySW |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Annette McKinnon @anetto RT @MightyCasey: T6c: T6c: This'll take EVERYBODY. Start where you are. Use what you have. Do what you can. Lather, rinse, repeat. #patientchat https://t.co/6GVRv7QySW |
 | Allison Sullivan @_allisulli RT @anetto: T3 We need a better way to help patients become health literate. Why is this not part of the core curriculum in our schools? What is more important? #patientchat |
| Diverse Health Hub @DHealthhub @patientchat CT: There are clear barriers to moving forward with health care technology, but also clear benefits. We have to push digital health literacy now and beware of the digital divide. This topic was insightful, great chat! #patientchat |
| Patient Chat @patientchat We hope to see you on June 12th as NORD @RareDiseases joins us for an “Ending Isolation: Tips for Connecting & Resources for Support" #patientchat https://t.co/BGtJtD6B5i https://t.co/9W1qsfWZgb |
 | Who Wants To Bury A Billionaire? @Wangenstein RT @anetto: T4. We need to look at Wi-Fi access as an essential service for everyone in our country or province. If your access to healthcare is going to depend on your access to broadband, that’s unfair and inequitable #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat @power4patients Thanks for another awesome #patientchat! |
| Patient Chat @patientchat @yourgpsdoc @power4patients Thanks for stopping by! #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
 | Elephants and Tea @ElephantsTea RT @ohhiialexa: @carlyflumer @LacunaLoft @ElephantsTea I have so much fun with both of them!! #patientchat |
| Elephants and Tea @ElephantsTea RT @carlyflumer: @ohhiialexa @LacunaLoft I just started getting their emails, along with @ElephantsTea! Yay for more #supportgroups! #AYAlife #patientchat |
 | Laurie Myers (she/her) @lauriemyersHL RT @scrufton73: |
| Laurie Myers (she/her) @lauriemyersHL #Healthliteracy matters as we improve #technology in #healthcare |
| Laurie Myers (she/her) @lauriemyersHL RT @yourgpsdoc: CT: CT: Technology is a vital part of the future of healthcare. We must not only ensure that ALL have access but that we do the work of improving health literacy so the use of tech is meaningful. #patientchat |
#patientchat content from Twitter.