#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Hi #patientchat’ers! I’m Kara from @power4patients and I’m excited about today’s chat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
 | Carly Flumer (she/her) @carlyflumer @patientchat @power4patients Hi Kara! Great to see you here on #patientchat! |
 | Jamie Roger @JamieRoger8 Hello #patientchat It's been awhile, but it's good to be back. Hope everyone has had a great week. Jamie from CT and @salemoaks |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/Vgxd45poj0 #patientchat |
 | Alan Brewington @abrewi3010 Alan here from Boise Idaho. I’m a #rheum #chronicpain & #mentalhealth storyteller who is ready for lunch. #patientchat |
 | Patient Empowerment Network @power4patients @JamieRoger8 @SalemOaks Hi Jamie! Glad you're back #patientchat |
| Jamie Roger @JamieRoger8 @abrewi3010 I just ate lunch and I don't feel full. I had a bagel with cream cheese and an acai bowl... might be time for a snack after #patientchat |
| Patient Empowerment Network @power4patients @abrewi3010 Hi Alan! I'm also ready for lunch :) #patientchat |
 | Lillian Lake - Host of #SoulNestingChat @llake Hi everyone! Just tuning in for today's #patientchat! I live in New England where I'm a writer, caregiver, and compassion consultant. I'm glad to be here! How is everyone today? |
| Patient Chat @patientchat Today's #patientchat topic is How Does An Empowered Patient Approach Care Coordination? https://t.co/XnMFotPhMY |
| Patient Empowerment Network @power4patients @carlyflumer @patientchat Hey Carly! Glad you're joining us! #patientchat |
| Alan Brewington @abrewi3010 @JamieRoger8 It’s always snack time, especially on fridays!! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at the front of every answer - hard to remember but helpful! #patientchat |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all. I'm Shereese here in Maryland #patientchat https://t.co/tAtxP45Qtq |
| Patient Empowerment Network @power4patients @llake Hi Lillian! We're glad you're here! #patientchat |
 | Inspire @InspireIsHealth Hello to #patientchat, John Novack from Inspire checking in. |
 | Kevin Freiert @K_SalemOaks Hello. Kevin from CT here. Looking forward to hearing more as we prepare to go have a serious visit with my mother-in-law about just this topic. #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Inspire @InspireIsHealth RT @patientchat: Today's #patientchat topic is How Does An Empowered Patient Approach Care Coordination? https://t.co/XnMFotPhMY |
| Lillian Lake - Host of #SoulNestingChat @llake @JamieRoger8 @SalemOaks Hi Jamie!! So awesome to see you twice in one week! #patientchat https://t.co/7qdG4zH9Zm |
| Alan Brewington @abrewi3010 @power4patients I will call for a pizza! #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Today's #patientchat topic is How Does An Empowered Patient Approach Care Coordination? https://t.co/XnMFotPhMY |
| Patient Chat @patientchat T1: Why is care coordination important? #patientchat https://t.co/nzEgxV11jI |
 | Sakinah Kaiser (She/Her) @themuslimhippie RT @patientchat: Today's #patientchat topic is How Does An Empowered Patient Approach Care Coordination? https://t.co/XnMFotPhMY |
| Patient Empowerment Network @power4patients @teaminspire Hi John! Happy Friday :) #patientchat |
| Jamie Roger @JamieRoger8 @llake @SalemOaks I'm so lucky! Hope the rest of your week has been good. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @ShereesePubHlth Hi beautiful Shereese! Wonderful to see you today! #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
| Jamie Roger @JamieRoger8 @teaminspire How are you doing JOhn? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T1: T1: Why is care coordination important? #patientchat https://t.co/nzEgxV11jI |
| Lillian Lake - Host of #SoulNestingChat @llake @JamieRoger8 @SalemOaks So busy I barely breathed but today I'm finally getting a break to catch up. It's all good. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat T1: LOVE this question! As a chronic disease patient, I have a LOT of medications and doctors to keep track of. Having it all coordinated makes my life easier! I love the use of patient portals & apps to keep organized. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @llake Hey Lillian. How are you? #patientchat |
| Patient Empowerment Network @power4patients @K_SalemOaks Hi Kevin! I hope this chat helps with your discussion. Looking forward to seeing you in Colorado later this summer, if your schedule allows #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T1: T1: Why is care coordination important? #patientchat https://t.co/nzEgxV11jI |
| Lillian Lake - Host of #SoulNestingChat @llake @power4patients Thank you! I'm glad I'm here, too! Like, where else would I be at 1PM ET? 😂 #patientchat |
| Jamie Roger @JamieRoger8 @llake @SalemOaks That's good, that break came at the right now. Take a breather before the weekend! #patientchat |
| Patient Empowerment Network @power4patients @MarkThomHudson @patientchat Hi Mark! Welcome #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: Why is care coordination important? #patientchat https://t.co/nzEgxV11jI |
| Alan Brewington @abrewi3010 T1 Care coordination is a great tool to ensure I have the highest possible quality of life. I spend time on improving me, not losing my checkbook #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @abrewi3010: T1 Care coordination is a great tool to ensure I have the highest possible quality of life. I spend time on improving me, not losing my checkbook #patientchat |
| Patient Empowerment Network @power4patients @abrewi3010 That sounds great. Unless you're one of those ham & pineapple people. I've never understood those toppings on pizza #patientchat |
| Kevin Freiert @K_SalemOaks T1: Drug-drug interactions. If there is not coordination, it is easy to create complications. #patientchat #pinksocks @S4PM |
| Lillian Lake - Host of #SoulNestingChat @llake @ShereesePubHlth Great! You did an awesome job guesting on #bizgalz this week! #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @llake Thanks. #patientchat |
| Alan Brewington @abrewi3010 @power4patients I love ham and pineapple! A good Hawaiian pizza makes any day better. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @abrewi3010 Hi Alan! I'm ready for lunch, too! What shall we have? #patientchat |
| Jamie Roger @JamieRoger8 #patientchat Care coordination is important for the medical team, everyone needs to stay informed. But it's also important that the #patient feels they are getting the best treatment available and that they feel everyone is working together for their sake. |
| Alan Brewington @abrewi3010 @llake Eat all the foods! #patientchat |
 | Annette McKinnon @anetto T1 Care coordination is something I wish for but it seems to be up to us and our families to do it. Family Doctors are very busy, Pharmacists don't know your 'reason for use' of certain drugs, specialists are in silos... #PatientChat (Annette in Canada) |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat T1: I'm doing this right now w/my husband's care! Sanity, communication, confidence, better overall care, organized chaos, big picture viewing. #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up... https://t.co/qn9uttgaZP #patientchat |
| Alan Brewington @abrewi3010 T1 usually staying informed is the only way to save my time and money. #patientchat |
| Inspire @InspireIsHealth RT @anetto: T1 Care coordination is something I wish for but it seems to be up to us and our families to do it. Family Doctors are very busy, Pharmacists don't know your 'reason for use' of certain drugs, specialists are in silos... #PatientChat (Annette in Canada) |
| Patient Chat @patientchat T2: How can care coordination be put into action? #patientchat https://t.co/DDtK1aAZKd |
| Lillian Lake - Host of #SoulNestingChat @llake @abrewi3010 Alrighty! I better get my bike, too, then! I'll need the workout! 😊#patientchat |
| Patient Empowerment Network @power4patients @patientchat Goal is to meet patients' needs & preferences in delivery of high-quality, high-value care. Patient's needs & preferences are known & communicated at right time to the right people & used to guide delivery of safe, appropriate, effective care #patientchat @AHRQNews |
| Lillian Lake - Host of #SoulNestingChat @llake @ShereesePubHlth You're very welcome. #patientchat |
 | Melissa VanHouten @melissarvh Coordinated care produces best patient outcomes. Specialists have different areas of focus & it's important 4 all to be updated/on same page so recommendations, medications, etc. don't conflict/negatively interact. All involved in your care need to know the goals. #PatientChat |
 | Debbie Popp @DPoppGP A1: Patients with multiple illnesses require different specialists, each offering individual treatments that could together be detrimental and even life threatening without good care coordination. #patientchat |
| Kevin Freiert @K_SalemOaks @patientchat T2: Patient/family can request it. I really think the patient should have the right to call a meeting. We need an app for that! #patientchat #pinksocks @S4PM |
| Alan Brewington @abrewi3010 @llake Haha I need the workout too so I will grab my bike too. #patientchat |
| Patient Empowerment Network @power4patients RT @melissarvh: Coordinated care produces best patient outcomes. Specialists have different areas of focus & it's important 4 all to be updated/on same page so recommendations, medications, etc. don't conflict/negatively interact. All involved in your care need to know the goals. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How can care coordination be put into action? #patientchat https://t.co/DDtK1aAZKd |
| Lillian Lake - Host of #SoulNestingChat @llake @teaminspire Hi John! Howz the week been? Good to see you checking in. #patientchat https://t.co/ez1Y0LqhAl |
| Carly Flumer (she/her) @carlyflumer @patientchat T2: Be an #advocate for yourself! Like someone mentioned, doctors are busy, and it’s ultimately up to you to make sure everything is running smoothly. It seems like a lot, but having a friend or family member helps! #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @abrewi3010: T1 Care coordination is a great tool to ensure I have the highest possible quality of life. I spend time on improving me, not losing my checkbook #patientchat |
| Annette McKinnon @anetto T2 Sick or not you need to pay attention to details, make sure are all your Drs are copied on what's relevant, check your prescriptions for errors, tell them you just had a blood test, travel with your medication list for starters. #PatientChat @dpepe88 |
| Lillian Lake - Host of #SoulNestingChat @llake RT @JamieRoger8: #patientchat Care coordination is important for the medical team, everyone needs to stay informed. But it's also important that the #patient feels they are getting the best treatment available and that they feel everyone is working together for their sake. |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 You have to have actionable strategies. Don't talk about it; be about it. Speak to your care team, doctors, advocates, etc. Coordinating care doesn't have to be complicated; it just has to work for the patient. #patientchat |
| Kevin Freiert @K_SalemOaks T2: Some facilities try to make this happen. I know that @RoswellPark does a great job of this. #patientchat #pinksocks @S4PM |
| Alan Brewington @abrewi3010 T2 I don’t think this question can be answered yet bc we are designing new ways daily. Especially true considering how much communication techniques change #patientchat |
| Inspire @InspireIsHealth RT @melissarvh: Coordinated care produces best patient outcomes. Specialists have different areas of focus & it's important 4 all to be updated/on same page so recommendations, medications, etc. don't conflict/negatively interact. All involved in your care need to know the goals. #PatientChat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat T2: @patientchat T2: Be an #advocate for yourself! Like someone mentioned, doctors are busy, and it’s ultimately up to you to make sure everything is running smoothly. It seems like a lot, but having a friend or family member helps! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T2: T2: How can care coordination be put into action? #patientchat https://t.co/DDtK1aAZKd |
| Lillian Lake - Host of #SoulNestingChat @llake @JamieRoger8 T1 Right! Which doesn't mean everyone is necessarily in agreement (although, it's nice when that happens) but as you say, everyone is working together for the best outcome. #patientchat |
| Carly Flumer (she/her) @carlyflumer @anetto @dpepe88 Yes! I have an app that keeps track of all my medications and allergies. It’s a lifesaver! #patientchat |
| Annette McKinnon @anetto @K_SalemOaks @patientchat @S4PM Agree. When they have those 'team meetings' we need to make sure the patient or their representative/caregiver is included in the discussion. #PatientChat |
| Kevin Freiert @K_SalemOaks @abrewi3010 What we need is a way to collect the best practices and ways to implement them. #patientchat #pinksocks @S4PM |
| Patient Empowerment Network @power4patients @ShereesePubHlth Agree 100% "Don't talk about it; be about it" #patientchat https://t.co/096PEynLTv |
| Jamie Roger @JamieRoger8 RT @llake: @JamieRoger8 T1 Right! Which doesn't mean everyone is necessarily in agreement (although, it's nice when that happens) but as you say, everyone is working together for the best outcome. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @K_SalemOaks Ohhh, good luck with all that. That's a complicated situation but totally doable. (as in "been there, done that") #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @anetto @dpepe88 Yes! I have an app that keeps track of all my medications and allergies. It’s a lifesaver! #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @MarkThomHudson: T1: |
| Annette McKinnon @anetto RT @ShereesePubHlth: T2 You have to have actionable strategies. Don't talk about it; be about it. Speak to your care team, doctors, advocates, etc. Coordinating care doesn't have to be complicated; it just has to work for the patient. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @MarkThomHudson @patientchat @power4patients Hey, Mark. Good to tweet with you today. #patientchat |
| Debbie Popp @DPoppGP A2: I would love to see a global patient portal. It is not only difficult for a patient to remember which portal they have to go to to communicate with which doctor, but then we have to share tests, reports etc.. This would be a great start! #patientchat |
| Melissa VanHouten @melissarvh Ultimately, responsibility rests w/the patient. Some offices have designated care coordinators & sometimes family can help, but you are your own best advocate, and, burdensome as it may be, you must communicate w/all involved to make certain your goals are met. #PatientChat |
| Carly Flumer (she/her) @carlyflumer @anetto @K_SalemOaks @patientchat @S4PM I was just talking to someone about this! It’s about patient centricity and actually having a patient! #patientchat |
| Alan Brewington @abrewi3010 @K_SalemOaks @S4PM I still have hope we are not designing new ideas yet. Hoping best practices is still being developed. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @carlyflumer: @anetto @dpepe88 Yes! I have an app that keeps track of all my medications and allergies. It’s a lifesaver! #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up... https://t.co/qn9uttgaZP #patientchat |
| Patient Empowerment Network @power4patients RT @melissarvh: Ultimately, responsibility rests w/the patient. Some offices have designated care coordinators & sometimes family can help, but you are your own best advocate, and, burdensome as it may be, you must communicate w/all involved to make certain your goals are met. #PatientChat |
| Patient Chat @patientchat T3: In your opinion, who is involved and responsible for coordinating care? #patientchat https://t.co/jv4HU6xgAK |
| Alan Brewington @abrewi3010 @K_SalemOaks @S4PM I wouldn’t be a good advocate if I don’t say that these collected best practices must remain free for all. No paywalls! #patientchat |
| Annette McKinnon @anetto @carlyflumer @patientchat When my dad was navigating the system on his own we assumed he wanted his independence as always, but when my sisters went with him to an appointment his Dr said "I didn't know he had people." and it makes a difference to treatment. #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @carlyflumer @power4patients @anetto @dpepe88 Thank goodness for "care" apps, right?! They make my life so much easier in caring for my husband. Right down to color-coding my calendar with his appointments. His new CGM allows me to keep track of his sugars on the go. Stress-reliever. #patientchat |
| Patient Empowerment Network @power4patients RT @anetto: @carlyflumer @patientchat When my dad was navigating the system on his own we assumed he wanted his independence as always, but when my sisters went with him to an appointment his Dr said "I didn't know he had people." and it makes a difference to treatment. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: In your opinion, who is involved and responsible for coordinating care? #patientchat https://t.co/jv4HU6xgAK |
| Patient Empowerment Network @power4patients RT @llake: @carlyflumer @power4patients @anetto @dpepe88 Thank goodness for "care" apps, right?! They make my life so much easier in caring for my husband. Right down to color-coding my calendar with his appointments. His new CGM allows me to keep track of his sugars on the go. Stress-reliever. #patientchat |
| Kevin Freiert @K_SalemOaks @llake @carlyflumer @power4patients @anetto @dpepe88 Can you suggest a couple? Which apps? #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat T2 Portals, emails, texting, apps, all help us in coordinating care. #patientchat |
 | JL Richardson @drjfpmd RT @patientchat: Today's #patientchat topic is How Does An Empowered Patient Approach Care Coordination? https://t.co/XnMFotPhMY |
| Carly Flumer (she/her) @carlyflumer @patientchat T3: Ultimately, the patient needs to make sure they’re getting what they need. ASK QUESTIONS! Don’t leave yourself in the dark not knowing because you’re too afraid. It’s your health! #patientchat |
| Alan Brewington @abrewi3010 T3 my quality of life means I’m in charge. That said, I’m not a top down patient org. Im definitely a everyone included boss. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @K_SalemOaks @patientchat @S4PM Yes, agreed. Everyone needs to get used to using Zoom (or similar) I wish I had had that year's ago when taking care of mom. #patientchat |
| Carly Flumer (she/her) @carlyflumer @anetto @patientchat My mom always went with me to my cancer treatment appointments. It was such a huge help! #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @llake: @patientchat T2 Portals, emails, texting, apps, all help us in coordinating care. #patientchat |
| Patient Empowerment Network @power4patients @patientchat It would be great if there was a better, universal system in place for this but as others have said, the onus most often falls on the patient and/or their caregiver to coordinate care #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat T3: @patientchat T3: Ultimately, the patient needs to make sure they’re getting what they need. ASK QUESTIONS! Don’t leave yourself in the dark not knowing because you’re too afraid. It’s your health! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T3: T3: In your opinion, who is involved and responsible for coordinating care? #patientchat https://t.co/jv4HU6xgAK |
| Carly Flumer (she/her) @carlyflumer @llake @power4patients @anetto @dpepe88 I have so many health apps! They’re great for coordinating appointments, looking up medical history, etc! #patientchat |
| Kevin Freiert @K_SalemOaks T3: Everyone involved!. That's a cop out though. There should be someone who suggests that and THEN EQUIPS the patient/family to take the lead. #patientchat #pinksocks @S4PM |
| Carly Flumer (she/her) @carlyflumer @K_SalemOaks @llake @power4patients @anetto @dpepe88 Some of my doctor’s offices have apps, such as MyChart (a patient portal). I would ask! #patientchat |
| Patient Empowerment Network @power4patients @K_SalemOaks @llake @carlyflumer @anetto @dpepe88 There are some great ones here, in our guide to Patient Empowerment: https://t.co/Dj6LOCcUkS #patientchat |
| Debbie Popp @DPoppGP T3: Ultimately in my opinion it is the responsibility of the patient to coordinate a care team for themselves. The care team should include all specialists and their PCP. I would like to see the PCP take an active role in leading that team. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up… https://t.co/qn9uttgaZP #patientchat |
| Alan Brewington @abrewi3010 @K_SalemOaks @S4PM Can you explain your “cop out” statement more? Why do I need someone to equip me, doesn’t my #chronicpain already do that? #patientchat |
| Carly Flumer (she/her) @carlyflumer @power4patients @K_SalemOaks @llake @anetto @dpepe88 Love this diagram! #patientchat |
| Patient Chat @patientchat T4: What are the elements of successful care coordination? #patientchat https://t.co/eciwiW65yl |
| Alan Brewington @abrewi3010 RT @power4patients: @K_SalemOaks @llake @carlyflumer @anetto @dpepe88 There are some great ones here, in our guide to Patient Empowerment: https://t.co/Dj6LOCcUkS #patientchat |
| Patient Empowerment Network @power4patients @carlyflumer @K_SalemOaks @llake @anetto @dpepe88 This is why we created the Digital Sherpa Program. So many older patients don't know how to access apps, on-line resources and patient portals https://t.co/qqhJp6fXnG #patientchat |
| Patient Empowerment Network @power4patients RT @FacesofGP: T3: T3: Ultimately in my opinion it is the responsibility of the patient to coordinate a care team for themselves. The care team should include all specialists and their PCP. I would like to see the PCP take an active role in leading that team. #patientchat |
| Carly Flumer (she/her) @carlyflumer @MarkThomHudson @anetto @K_SalemOaks @patientchat @S4PM I would sure hope not! Having a partner should make them feel more empowered! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What are the elements of successful care coordination? #patientchat https://t.co/eciwiW65yl |
| Alan Brewington @abrewi3010 T4 communication must be active and vulnerable. Needed to help overcome any health literacy issues that might exist on the care team. #patientchat |
| Kevin Freiert @K_SalemOaks @abrewi3010 @S4PM But your chronic pain doesn't teach you how to herd the cats on your medical team. HCPs should initiate, but then they need to support the patient. Give them tools. #patientchat |
| Annette McKinnon @anetto @FacesofGP No one cares more than the patient and their friends and family. Things can get missed or patients may take a turn for the worse. It's very important for patients to be fully involved in their care. #PatientChat |
| Melissa VanHouten @melissarvh @MarkThomHudson @carlyflumer @anetto @K_SalemOaks @patientchat @S4PM Well, they had better learn to be honest and open - because I do not like information about my own life to be w/held from me. If they balk at this, I am with the wrong physicians. I wish (and intend) to be at any care plan mtg which determines my treatment path. #PatientChat |
| Carly Flumer (she/her) @carlyflumer @patientchat T4: Clear communication, answered questions, having a clear treatment plan the patient understands, accepts, and follows. Including family members if the patient feels more comfortable. #patientchat |
| Kevin Freiert @K_SalemOaks @S4PM Also - if everyone is responsible, no one is responsible. #patientchat |
| Patient Empowerment Network @power4patients @carlyflumer @K_SalemOaks @llake @anetto @dpepe88 Click through each step on the path for links to all sorts of useful apps and resources #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @K_SalemOaks @carlyflumer @power4patients @anetto @dpepe88 ListMeds keeps track of meds and doses. Easy to show the doc, etc. (it's free, so advertising but it doesn't get in the way). Search google play for caregiving apps. I use Caring Village - but still searching for perfection - right now it keeps everyone in the loop. #patientchat |
| Patient Empowerment Network @power4patients RT @anetto: @FacesofGP No one cares more than the patient and their friends and family. Things can get missed or patients may take a turn for the worse. It's very important for patients to be fully involved in their care. #PatientChat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @melissarvh: @MarkThomHudson @carlyflumer @anetto @K_SalemOaks @patientchat @S4PM Well, they had better learn to be honest and open - because I do not like information about my own life to be w/held from me. If they balk at this, I am with the wrong physicians. I wish (and intend) to be at any care plan mtg which determines my treatment path. #PatientChat |
| Patient Empowerment Network @power4patients RT @abrewi3010: T4 communication must be active and vulnerable. Needed to help overcome any health literacy issues that might exist on the care team. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T4: T4: What are the elements of successful care coordination? #patientchat https://t.co/eciwiW65yl |
| Carly Flumer (she/her) @carlyflumer @abrewi3010 Oh my gosh, YES!! Love #healthliteracy! Such an important yet overlooked topic! #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @K_SalemOaks @carlyflumer @power4patients @anetto @dpepe88 I seriously color-code my calendar as to which doc or other treatment so at a glance I know who we're seeing and they stand out from my business appointments. #patientchat |
| Annette McKinnon @anetto @MoortgatL @patientchat I want to be a co-quarterback, not a passive passenger, even if I am not in the driver's seat. I don't have clinical experience beyond my own but I can educate myself to the limits of my ability. #PatientChat |
| Jamie Roger @JamieRoger8 RT @abrewi3010: T3 my quality of life means I’m in charge. That said, I’m not a top down patient org. Im definitely a everyone included boss. #patientchat |
| Annette McKinnon @anetto RT @K_SalemOaks: @S4PM Also - if everyone is responsible, no one is responsible. #patientchat |
| Patient Empowerment Network @power4patients RT @anetto: @MoortgatL @patientchat I want to be a co-quarterback, not a passive passenger, even if I am not in the driver's seat. I don't have clinical experience beyond my own but I can educate myself to the limits of my ability. #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @K_SalemOaks @carlyflumer @power4patients @anetto @dpepe88 I keep a thumb-drive backup at my MIL's in case I'm not w/her & in my purse in case of phone fail. I update occasionally rather than continually. The app I can pull right up at the office & make changes. Bonus: you look prepared & sets the stage for communication #patientchat |
| Alan Brewington @abrewi3010 @K_SalemOaks @S4PM Being the son of a one star general has definitely taught me how to lead cats. #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @carlyflumer @K_SalemOaks @power4patients @anetto @dpepe88 Yep! The only drawback is not all offices do & definitely, they rarely talk to each other (the portals, I mean). #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @power4patients: @carlyflumer @K_SalemOaks @llake @anetto @dpepe88 This is why we created the Digital Sherpa Program. So many older patients don't know how to access apps, on-line resources and patient portals https://t.co/qqhJp6fXnG #patientchat |
| Patient Chat @patientchat T5: How coordinated is the care experience for you? #patientchat https://t.co/10WYLrEBNM |
| Annette McKinnon @anetto @MarkThomHudson @melissarvh @carlyflumer @K_SalemOaks @patientchat @S4PM Yes, We all need to learn a) Watchful waiting b) What symptoms to look out for #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How coordinated is the care experience for you? #patientchat https://t.co/10WYLrEBNM |
| Melissa VanHouten @melissarvh @MarkThomHudson @carlyflumer @anetto @K_SalemOaks @patientchat @S4PM Actually, yes, I would love to know what they are considering & on what they base their conclusions. But not all care coordination mtgs involve this level of detail. I am asking to be in on the thinking BEFORE everything has been decided for me. #PatientChat |
| Alan Brewington @abrewi3010 @carlyflumer Health literacy needs to be apart of every conversation I think. We need to raise it and quickly so it rises with technology #patientchat |
| Debbie Popp @DPoppGP T4: Most important element is open communication. A plan of care that has been coordinated with all providers. Accessibility to all tests and notes for the team, which includes the patient. #patientchat |
| Carly Flumer (she/her) @carlyflumer @llake @K_SalemOaks @power4patients @anetto @dpepe88 Yes, I don’t like that, but I understand why. The healthcare system is too big! #patientchat |
| Annette McKinnon @anetto RT @melissarvh: @MarkThomHudson @carlyflumer @anetto @K_SalemOaks @patientchat @S4PM Actually, yes, I would love to know what they are considering & on what they base their conclusions. But not all care coordination mtgs involve this level of detail. I am asking to be in on the thinking BEFORE everything has been decided for me. #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @power4patients @carlyflumer @K_SalemOaks @anetto @dpepe88 You really do a great job at considering patients who particularly have access & learning curves. Thank you. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat T5: More than expected b/c I take matters into my own hands (and as a cancer patient, you have to with seeing so many doctors!). I have become my own #patientadvocate and I love it!! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: How coordinated is the care experience for you? #patientchat https://t.co/10WYLrEBNM |
| Alan Brewington @abrewi3010 T5 I’ve had 11 surgeries now and am still working full time, I’m guessing that means my coordination care story has been successful #patientchat |
| Patient Empowerment Network @power4patients @llake @carlyflumer @K_SalemOaks @anetto @dpepe88 Thanks so much! #patientchat |
 | Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T1: Care coordination is essential for #chronicillness #patients. We often have several specialists, even sub-specialists. This helps avoid repeating tests. Sometimes they are in different hospitals. Even across state lines. #patientchat |
| Melissa VanHouten @melissarvh RT @anetto: @MarkThomHudson @melissarvh @carlyflumer @K_SalemOaks @patientchat @S4PM Yes, We all need to learn a) Watchful waiting b) What symptoms to look out for #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @carlyflumer @power4patients @anetto @dpepe88 Yes! It prompted me to upgrade my phone so I can put all this together. Keeping my business coordinated and Mark's care was stressing me out. Which reminds me I need to load a "care log" for easy "remembering of questions, answers, & changes. #patientchat |
| Carly Flumer (she/her) @carlyflumer @abrewi3010 That’s incredible! Congrats! 💪 #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @power4patients @carlyflumer @K_SalemOaks @anetto @dpepe88 You're welcome. I never endorse unless I mean it. 😊#patientchat |
| Annette McKinnon @anetto @FacesofGP 90% of complaints to the Ontario Patient Ombudsman's Office deal with information and communication. H/T @SolidFooting from yesterday's panel #OMDESC19 #PatientChat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @FacesofGP: T4: T4: Most important element is open communication. A plan of care that has been coordinated with all providers. Accessibility to all tests and notes for the team, which includes the patient. #patientchat |
| Alan Brewington @abrewi3010 @carlyflumer Thanks 🙏 #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @carlyflumer @K_SalemOaks @power4patients @anetto @dpepe88 Yup. I get it & actually appreciate it in the long run. In the short run, it can be confusing. I'm good with it, but the big guy isn't as tech savvy & gets frustrated. So much work to self-care & caregiving. It's all in the details. #patientchat |
| Debbie Popp @DPoppGP T5: I find that Care Coordination is not something that many wish to participate in. I have literally heard, "well he's not on staff here, so I will try to talk with him, but can make no promises". I request continually things to be shared and not done. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @carlyflumer @patientchat T5 Awww. Sending you love & encouragement. Sounds like you have a good handle on it all. #patientchat |
| Annette McKinnon @anetto #PatientChat Shift to patient and caregiver PARTNERSHIP #codesign NOT ENGAGEMENT |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat T5 For me personally, it goes okay but I'm good w/tech. My spouse - not so much so he gets confused. He's getting better at it - forced immersion & becoming more comfortable. 😄#patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alan Brewington @abrewi3010 CT much like our illnesses, not care agreement will ever be normal or straightforward. We have to work hard for it but we have earned it. #patientchat |
| Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T2: Alas, #patients are often their own care coordinator. It can be overwhelming, but decreases things getting "lost in translation" going through a middle man. We need PAID care coordinators who can get things done faster and easier. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat T4 Clear communication, patience, learning to stand in your power. #patientchat https://t.co/EXgX8jHUkU |
| Kevin Freiert @K_SalemOaks I appreciated the discussion and good ideas. Thanks for app and tool recommendations. Have a great weekend #patientchat https://t.co/812WrEzMgo |
| Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: Ultimately, responsibility rests w/the patient. Some offices have designated care coordinators & sometimes family can help, but you are your own best advocate, and, burdensome as it may be, you must communicate w/all involved to make certain your goals are met. #PatientChat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @double_whammied Thank you. I think you're pretty awesome as well for sharing your journey. #patientchat #HITsm |
| Carly Flumer (she/her) @carlyflumer @patientchat CT: Take care of yourself in the best way you can. Find different ways to keep everything organized. Download apps, calendars, make lists, etc. Ask for help and ask questions. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Inspire @InspireIsHealth RT @anetto: #PatientChat Shift to patient and caregiver PARTNERSHIP #codesign NOT ENGAGEMENT |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime. |
| Patient Empowerment Network @power4patients CT: Coordinated care is a critical component of patient empowerment. Whether it's initiated by you or your HCP it's important that you stay actively involved. Ask ?'s, engage your support team, self advocate. And always remember that we're here to help! #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat CT: @patientchat CT: Take care of yourself in the best way you can. Find different ways to keep everything organized. Download apps, calendars, make lists, etc. Ask for help and ask questions. #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour. |
| Patient Empowerment Network @power4patients RT @abrewi3010: CT much like our illnesses, not care agreement will ever be normal or straightforward. We have to work hard for it but we have earned it. #patientchat |
| Patient Empowerment Network @power4patients RT @MarkThomHudson: @patientchat T5: |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, July 12th https://t.co/lCmrmWDInm Hope to see you there! |
| Patient Empowerment Network @power4patients RT @llake: @patientchat T4 Clear communication, patience, learning to stand in your power. #patientchat https://t.co/EXgX8jHUkU |
| Melissa VanHouten @melissarvh RT @patientchat: The next Empowered #patientchat will be Friday, July 12th https://t.co/lCmrmWDInm Hope to see you there! |
| Patient Chat @patientchat Schedule Note: For the remainder of the summer, we will only have one #patientchat a month. Chats will be July 12 and August 9 |
| Lillian Lake - Host of #SoulNestingChat @llake RT @MarkThomHudson: @patientchat T5: |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T3: It depends on the office, your relationship with them and provider. Some are more helpful than others. I don't think it's being stubborn. Rather, resources (staff), and their overall awareness of what #chronicillness #patients need. #patientchat |
| Debbie Popp @DPoppGP CT: Patients must be self-advocates, coordinate their team and encourage open communication with all. Our lives depend on this being successful! A professional coordinator would be ideal. #patientchat |
 | Jodeme Goldhar 🇨🇦🌐 @JodemeGoldhar RT @anetto: #PatientChat Shift to patient and caregiver PARTNERSHIP #codesign NOT ENGAGEMENT |
 | Lung Cancer #1 cancer killer of women @VirginiaMByrne Yes! #lcsm #hcsm |
| Lillian Lake - Host of #SoulNestingChat @llake @MoortgatL @patientchat T3 As a patient I feel the responsibility is largely mine. Any stakeholder involved shares a piece. My spouse & I share his as it's so involved. It's the way we survive working & caring. #patientchat |
 | Ody @OdyO11 Oh, I missed #patientchat! I will try to answer now, anyways. :) I am a patient from Europe with a complex, rarely diagnosed disorder. |
 | Double Whammy @double_whammied RT @ShereesePubHlth: @double_whammied Thank you. I think you're pretty awesome as well for sharing your journey. #patientchat #HITsm |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat CT: I was reminded to create a digital log of medical visits, as well as thoughts, questions, & feelings. #patientchat |
| Ody @OdyO11 @patientchat Care coordination is important so that responsibilities and roles are clear and important medical needs don't fall through the cracks because nobody feels responsible. Also, in order to save costs (not the same blood test two days later at another specialist). #patientchat |
| Ody @OdyO11 @patientchat T2: Communication is key. Unfortunately, doctors often don't have the time to get in touch with each other. So it's up to the patients to doctors which role they would hope for them to play in their care. #patientchat |
| Ody @OdyO11 @patientchat T2: A good concept is an expert (which might be further away) for specialized knowledge and local doctors who see the patient regularly, document and implement the therapies recommended by the expert. #patientchat |
 | Marni Cartelli @Purrfectly_Rare I'm sorry #patientchat to miss today but having a really bad go of post op issues By the way I thought throwing up stunk- doing it after having your neck/back operated on is a thousand times worse! I cant wait to read through the responses & comment when I'm feeling better! |
| Ody @OdyO11 @patientchat T3: In a perfect world, this would be an interdisciplinary center with expertise. Another option would be the PCP together with experts. In reality, it's often the patients (or carers) themselves. #patientchat |
| Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T4: Successful care coordination is... Specialists reading each others notes before/during follow-ups. Including, labs, radiology, and recently started medication(s). Less chance of being stuck between strong opposing views and choosing. #patientchat |
| Ody @OdyO11 @patientchat T4: Listening to the patient and believing the patient. Correct documentation to which the patient has access (and option to correct mistakes). Communication with the patient and between experts/different medical specialties. Respecting patient agency&autonomy. #patientchat |
| Ody @OdyO11 @patientchat T5: At one point during my medical odyssey, my PCP and I decided that I would coordinate my case. He recommended me to do so. I had more time to search for experts. I am hoping to get access to a multidisciplinary center for more coordinated care. #patientchat |
#patientchat content from Twitter.