#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Patient Chat @patientchat
ICYMI: Read about @power4patients new role hosting Empowered #patientchat https://t.co/J2OUBUasbn
Stroke Tattler @Stroketattler
Hi @nonyet777 I am a recent PhD grad. My husband had stroke in 1997 and since that time have been #patientengagement advocate #patientchat
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
nonye aghanya @nonyet777
#patientchat Happy to be a part of this chat to empower patients and clinicians with needed tools for effective communication at each visit
Patient Chat @patientchat
You may miss some #patientchat tweets from Twitter, try one of these platforms: tchat.io or https://t.co/T3Z17yZVkw
Lisa Davis Budzinski @lisadbudzinski
RT @SPBOCF: Thanks @power4patients for your #patientchat questions--such a thoughtful focus on the realities of patient experie…
Patient Chat @patientchat
We extend a special thank you to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where it is today.
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" #patientchat
Christina Lizaso @btrfly12
Hi #patientchat - I'm passionate about community engagement and health. Previvor, mom, #gyncsm, #NSGCgenepool, @Clara_Health pt advisor
Patient Empowerment @power4patients
Howdy, it's Andrea from PEN. Looking forward to today's discussion! #patientchat
Patient Chat @patientchat
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/iUIZmqVYfv #patientchat
Christina Lizaso @btrfly12
@Stroketattler so glad you could join today! #patientchat
Lisa Davis Budzinski @lisadbudzinski
Hi everyone! Lisa here, caretaker & patient Co-founder of @Cpnervecenter #patientchat
nonye aghanya @nonyet777
#patientchat Nice to meet you @stroketattler, sorry to hear that, hope he is coming along well
SPBOC Foundation @spbocf
Hi, we're focused on #ovariancancer patient's social & psychologial experience--listening in to #patientchat #gyncsm
Whitney Petit @CfEpilepsy
Join #patientchat happening now!
Alert1 Medical Alert @alert1medalert
Joining #patientchat today. As always, we're excited to learn from all of you!
Alan Brewington @abrewi3010
Alan here. Just a patient trying to do more good than harm. Plus I hate summer, can it be winter again!? #patientchat
Christina Lizaso @btrfly12
@fireflyrn84 glad to tweet along with you again :) #patientchat
Stroke Tattler @Stroketattler
@nonyet777 20 years post-stroke. John is doing well. Exemplar of burgeoning research on value of relationships in wellbeing #patientchat
Cliniconex @cliniconex
Hi everyone been a few weeks but glad to be back #patientchat
Clara @Clara_Health
We're honored to have you as an advisor! #patientchat https://t.co/66Yu4nziea
Kimberly Amelia @fireflyrn84
@btrfly12 glad to tweet with you too :) seems like its been a long time #patientchat
Kimberly Dahline @finallyfiled
Happy to be here! #advocate #litlbitadvocate #patientchat
nonye aghanya @nonyet777
#patientchat Effective communication is vital for trust development and the achievement of efficient healthcare
Wendy Holcombe @1artsychick
Hi everyone. haven't been around in a while. good to be back #patientchat
Lisa Davis Budzinski @lisadbudzinski
@Cpnervecenter Caretaker of husband for 30yrs, Mom with #leukemia, in addition to having #stroke & cancer during all this #patientchat
Christina Lizaso @btrfly12
@1artsychick :) hi #patientchat
Stroke Tattler @Stroketattler
@btrfly12 It has been a while! Getting through that last push to dissertation defence is intensive. #patientchat
Patient Chat @patientchat
Today's #patientchat topic is How To Communicate with Your Care Partner https://t.co/92CB1eNW32 https://t.co/L3OwETzQ20
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
Shereese here in Maryland. Tweeting while waiting in line at DMV. #patientchat https://t.co/fidFYaxHLW
Kimberly Amelia @fireflyrn84
I'm living with #autonomicneuropathy #raredisease and today is a great topic! #patientchat
Stroke Tattler @Stroketattler
@Cpnervecenter Hi @lisadbudzinski You are dealing with a plateful! #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is How To Communicate with Your Care Partner https://t.co/92CB1eNW32 https://t.co/L3OwETzQ20
Christina Lizaso @btrfly12
@ShereesePubHlth great use of that down time for sure :) #patientchat
Kimberly Dahline @finallyfiled
I'm Kimberly @finallyfiled. Professional Organizer helping people be their best health and information advocate #patientchat
Wendy Holcombe @1artsychick
great topic today, great to see everyone here #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Lisa Davis Budzinski @lisadbudzinski
@Stroketattler @Cpnervecenter You are as well✨ We r both taking care of hubbies #patientchat
Christina Lizaso @btrfly12
Lovely group gathering at #patientchat - come along one and all :)
CP Nerve Center @Cpnervecenter
#patientchat Hi everyone. Sorry I'm late. Had to track down my UPS package left at the neighbors house
Kimberly Amelia @fireflyrn84
@FinallyFiled, hello to a fello Kim! #patientchat
Patient Chat @patientchat
T1: What is the difference between a caregiver and a care partner? #patientchat
harriseve @harriseve
I'm working while tweetchatting <:o FT #patientnavigator; I'm NED breast ca 12 years & caregiver to NED kidney ca 2.5 years #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T1: What is the difference between a caregiver and a care partner? #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: What is the difference between a caregiver and a care partner? #patientchat
Lisa Davis Budzinski @lisadbudzinski
@fireflyrn84 That sounds very close to #CentralPainSyndrome ? @Cpnervecenter #patientchat
nonye aghanya @nonyet777
#patientchat It's important: identify individual personalities, their impact on communication. Sometimes positive:-) sometimes negative:-(
Mary MACK @MaryOCMack
#patientchat Hello. Familial cardiomyopathy and conduction disease
Wendy Holcombe @1artsychick
T1 with a care partner you are an equal in your care. with a caregiver you are just taken care of. ?? #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @patientchat: T1: What is the difference between a caregiver and a care partner? #patientchat
Stroke Tattler @Stroketattler
T1 Language and framing matters in who has power. IMO care partner is an attempt to equalize the power relationship #patientchat
Kimberly Amelia @fireflyrn84
T1: Care partner helps with dx and mgmt of issues can be md, care team; caregiver is in contact with pt and home environment #patientchat
Kimberly Dahline @finallyfiled
@1artsychick I think that's a great start. #patientchat
Kimberly Amelia @fireflyrn84
T1: However, care partner also can be caregiver if RN, CNA is home health or hospice and in the home...roles cross #patientchat
Lisa Davis Budzinski @lisadbudzinski
This is a good definition 👇#patientchat https://t.co/Nm9BN7DXQ4
Patient Empowerment @power4patients
T1: To me, the term "caregiver" implies a passive role for the person being cared for. Care partner is more inclusive #patientchat
Christina Lizaso @btrfly12
RT @Stroketattler: T1 Language and framing matters in who has power. IMO care partner is an attempt to equalize the power relationship #pa
CP Nerve Center @Cpnervecenter
#patientchat Hi forgot my intro-Im Becky, Central pain Syndrome & Postherpetic neuralgia survivor @cpnervecenter, #centralpain
Stroke Tattler @Stroketattler
@1artsychick T1That is my view too! Are we doing this together or am I in charge of your care as caregiver. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@fireflyrn84 And as a spouse or significant other✨ #patientchat
Christina Lizaso @btrfly12
RT @Stroketattler: @1artsychick T1That is my view too! Are we doing this together or am I in charge of your care as caregiver. #patientchat
Kimberly Amelia @fireflyrn84
@lisadbudzinski @fireflyrn84 I ran out of characters to put that, totally agree!! #patientchat
Lisa Davis Budzinski @lisadbudzinski
I'm a bit behind. Tweets not loading #patientchat https://t.co/h6mQotI56q
Christina Lizaso @btrfly12
T1: I think the care partner term is a good goal. Disease is a family/framily experience. #patientchat
Kimberly Dahline @finallyfiled
CP helps in making decisions about direction of care.CG helps in the follow through of that care. CP is more of an #advocate #patientchat
Melissa VanHouten @melissarvh
T1 Care partner implies an equal relationship with patient contributing to and deciding own care. #patientchat
nonye aghanya @nonyet777
#patientchat Keep in mind that unresolved patient anxieties can sometimes manifest as intrusive or unpleasant attitudes.....
Alan Brewington @abrewi3010
T1 I think the difference relies on the individual preference of the patient. #patientchat
Patient Empowerment @power4patients
RT @melissarvh: T1 Care partner implies an equal relationship with patient contributing to and deciding own care. #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up… #patientchat
Stroke Tattler @Stroketattler
@power4patients Article talks about framing of equity: https://t.co/yf0d5aycPZ but the language principles are the same! #patientchat
Christina Lizaso @btrfly12
You may not see all the tweets, including from moderator, in Twitter search stream. Try tchat.io or other chat tools. #patientchat
SPBOC Foundation @spbocf
RT @power4patients: T1: To me, the term "caregiver" implies a passive role for the person being cared for. Care partner is more inclusive #…
Patient Chat @patientchat
RT @btrfly12: You may not see all the tweets, including from moderator, in Twitter search stream. Try tchat.io or other chat tools. #patien
Alert1 Medical Alert @alert1medalert
#patientchat https://t.co/dsimZvAhaa
Kimberly Dahline @finallyfiled
@btrfly12 Absolutely! And it is imp to know which family the pt WANTS to have included in the process and to what degree #patientchat
Elin Silveous @ElinSilveous
RT @btrfly12: T1: I think the care partner term is a good goal. Disease is a family/framily experience. #patientchat
Buy Folloŵeřs :gi @darleynapoleon
RT @FinallyFiled: @btrfly12 Absolutely! And it is imp to know which family the pt WANTS to have included in the process and to what degree…
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: You may not see all the tweets, including from moderator, in Twitter search stream. Try tchat.io or other chat tools. #patien
Patient Chat @patientchat
T2: How can you lay the groundwork for effective communication with your care partner? #patientchat
Christina Lizaso @btrfly12
RT @FinallyFiled: @btrfly12 Absolutely! And it is imp to know which family the pt WANTS to have included in the process and to what degree…
Maggie Rogers @magthenomad
RT @Stroketattler: @power4patients Article talks about framing of equity: https://t.co/yf0d5aycPZ but the language principles are the same!…
nonye aghanya @nonyet777
#patientchat Solution??...Practice compassionate care.....Effective communication helps to unravel the mystery of behavioral health
Christina Lizaso @btrfly12
RT @patientchat T2: How can you lay the groundwork for effective communication with your care partner? #patientchat
Lisa Davis Budzinski @lisadbudzinski
@Alert1MedAlert 👏👏👏👏 #patientchat
SPBOC Foundation @spbocf
Heads up #patientchat: I received a malware alert on this link from @Stroketattler ://twitter.com/Stroketattler/status/883373601017253888
Wendy Holcombe @1artsychick
P2 - I went into therapy with my care partner, this made it me feel less like a burden and helped him know how to help me #patientchat
Christina Lizaso @btrfly12
@Stroketattler link showed up weird - do you have a direct link vs. shortened URL? #patientchat
Mary MACK @MaryOCMack
Care partner is as knowledgeable as the patient #patientchat
Christina Lizaso @btrfly12
RT @1artsychick: P2 - I went into therapy with my care partner, this made it me feel less like a burden and helped him know how to help me…
Patient Critical Co-op @PatientCritical
T1: Relationships and shared care planning are necessary footings for building health not just treating disease. #patientchat
Alan Brewington @abrewi3010
T1 the biggest concern is the partner, giver, and patient receiving all the resources/info/respect needed #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: RT @patientchat T2: How can you lay the groundwork for effective communication with your care partner? #patientchat
Stroke Tattler @Stroketattler
@nonyet777 Effective communication--My point exactly when I looked at post-stroke communication #patientchat
Kimberly Amelia @fireflyrn84
T2: You have to have a good working relationship, establish trust, establish goals, and also have another person with you #patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: T1 the biggest concern is the partner, giver, and patient receiving all the resources/info/respect needed #patientchat
Stroke Tattler @Stroketattler
@nonyet777 Link to the Communication as the overlooked rehabilitation tool. https://t.co/yf0d5aycPZ #patientchat
Patient Critical Co-op @PatientCritical
Hi, PJ Mierau here for https://t.co/HP5Vm5xQby, Canada's first patient owned advocacy & education co-op (member owned :) #patientchat
Patient Empowerment @power4patients
All good relationships are based on trust, same goes for CPs. The tricky part is when the CP starts to burn out & needs help #patientchat
Maggie Rogers @magthenomad
I’ll be at the Empowered #patientchat on Fri 7/7 1pmET. Join me! https://t.co/ImHpFtgnOG via @power4patients
Melissa VanHouten @melissarvh
T2 Be patient & understanding w/each other. Do not assume your partner knows your needs/wants. Set goals & boundaries. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
A1 There is a clinical difference. CPs are also referred to as healthcare coaches. They assist w/ care coord & tracking post dx #patientchat
Kimberly Dahline @finallyfiled
@nonyet777 Completely agree. But also curious to see if compassion is the new buzzword in HC. #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @1artsychick: P2 - I went into therapy with my care partner, this made it me feel less like a burden and helped him know how to help me…
Liz Szabo @LizSzabo
Good chat on patient communication going on now. https://t.co/vYrf1ik89q
CP Nerve Center @Cpnervecenter
#patientchat T2 Be honest about your needs, wants & desires, full disclosure. We all have a different idea of a perfect partnership.
Alan Brewington @abrewi3010
T2 active listening & a continuing discussion about quality of life issues. #patientchat https://t.co/ROEvRrU1GJ
Alert1 Medical Alert @alert1medalert
It's all about effective communication! #patientchat https://t.co/UWdS4qBZoE
Patient Chat @patientchat
RT @melissarvh: T2 Be patient & understanding w/each other. Do not assume your partner knows your needs/wants. Set goals & boundaries. #pat
Christina Lizaso @btrfly12
@PatientCritical welcome :) #patientchat
Lisa Davis Budzinski @lisadbudzinski
@power4patients And be able to recognize the burn out before their health goes south #patientchat
nonye aghanya @nonyet777
#patientchat @patientchat My first hand knowledge of the anxieties of caregiver/patient experience... https://t.co/sF11vkhPGs
Stroke Tattler @Stroketattler
@power4patients T2 In my research on post stroke marriages-- burn-out is a significant problem https://t.co/yf0d5aycPZ #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
Care givers generally provide direct care and support. While its an important role, IMHO, CP has more responsibilities #patientchat
Mary MACK @MaryOCMack
#patientchat
Melissa VanHouten @melissarvh
RT @abrewi3010: T2 active listening & a continuing discussion about quality of life issues. #patientchat https://t.co/ROEvRrU1GJ
Liz Szabo @LizSzabo
RT @power4patients: T1: To me, the term "caregiver" implies a passive role for the person being cared for. Care partner is more inclusive #…
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: #patientchat T2 Be honest about your needs, wants & desires, full disclosure. We all have a different idea of a perfect…
Christina Lizaso @btrfly12
@Stroketattler looks like your URL tool is setting off alarms - love to see direct links later when you have a chance :) #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @nonyet777: #patientchat @patientchat My first hand knowledge of the anxieties of caregiver/patient experience... https://t.co/sF11vkhP…
Patient Empowerment @power4patients
T2: It's all about good communication. 8 beliefs that hold CPs back from receiving the help they need: https://t.co/cTWUJMa2A4 #patientchat
Kimberly Dahline @finallyfiled
Honest and sometimes difficult discussion is key. Allow for complete meltdowns versus "everything is ok" #finallyfiled #patientchat
Christina Lizaso @btrfly12
MT @Stroketattler T2 In my research on post stroke marriages-- burn-out is a significant problem #patientchat
Wendy Holcombe @1artsychick
T2 we have to know that it's not just the patient. it's also the carer who needs support. communication is the key #patientchat
Patient Critical Co-op @PatientCritical
Burning out is a danger for caregiving partners. Community support, time for self care and frank, open check-ins are crucial #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @power4patients: T2: It's all about good communication. 8 beliefs that hold CPs back from receiving the help they need: https://t.co/cTW…
Stroke Tattler @Stroketattler
@Cpnervecenter Yes-- the research on relationships in illness is clear-- being able to talk openly is protective https://t.co/yf0d5aycPZ #patientchat
SPBOC Foundation @spbocf
T2 Frank conversation about the hard stuff up front - set a tone where no relevant topics are taboo, including death #patientchat
Alan Brewington @abrewi3010
T2 understand mistakes will happen. Mistakes are correctable #patientchat
Patient Empowerment @power4patients
@lisadbudzinski Agreed! #patientchat
Christina Lizaso @btrfly12
RT @power4patients: T2: It's all about good communication. 8 beliefs that hold CPs back from receiving the help they need: https://t.co/cTW…
Maggie Rogers @magthenomad
T1 For care partners the relationship is mutually beneficial. It's a balance of care where both individuals are useful/helpful! #patientchat https://t.co/AApTxWDU7Q
Liz Szabo @LizSzabo
RT @btrfly12: MT @Stroketattler T2 In my research on post stroke marriages-- burn-out is a significant problem #patientchat
Christina Lizaso @btrfly12
RT @SPBOCF: T2 Frank conversation about the hard stuff up front - set a tone where no relevant topics are taboo, including death #patientc
Kimberly Dahline @finallyfiled
@SPBOCF Absolutely! #patientchat
Liz Szabo @LizSzabo
RT @PatientCritical: Burning out is a danger for caregiving partners. Community support, time for self care and frank, open check-ins are c…
Patient Chat @patientchat
Topic 3 (T3:) coming up… #patientchat
Stroke Tattler @Stroketattler
@PatientCritical There is a really good article about being overwhelmed/role overload sinking marriages too! #patientchat
Patient Empowerment @power4patients
RT @SPBOCF: T2 Frank conversation about the hard stuff up front - set a tone where no relevant topics are taboo, including death #patientc
Glen McCammon @glenmccammon
The health care system is complex. A care partner by your side, helping you navigate will lead to better outcomes #patientchat
Kimberly Dahline @finallyfiled
Curious to know how you choose a CP or a CG? #patientchat
z 🦜 @zebrafinch
RT @btrfly12: You may not see all the tweets, including from moderator, in Twitter search stream. Try tchat.io or other chat tools. #patien
nonye aghanya @nonyet777
#patientchat @FinallyFiled Absolutely, the new trend: empathy/compassion which results in varying communication style to alleviate anxiety
Lisa Davis Budzinski @lisadbudzinski
T2 Comprehensive report & paperwork of dx + understanding how to carry out daily care. Communication is key #patientchat
Patient Chat @patientchat
T3: How can patients overcome possible communication barriers with their care partners? And vice versa? #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T3: How can patients overcome possible communication barriers with their care partners? And vice versa? #patientchat
Kimberly Amelia @fireflyrn84
@GlenMcCammon absolutely correct! I'm an RN and if I wasn't I would be lost and would not know how to navigate the system #patientchat
Patient Empowerment @power4patients
RT @patientchat: T3: How can patients overcome possible communication barriers with their care partners? And vice versa? #patientchat
Whitney Petit @CfEpilepsy
RT @GlenMcCammon: The health care system is complex. A care partner by your side, helping you navigate will lead to better outcomes #patien
Kimberly Dahline @finallyfiled
@GlenMcCammon Spot on. Or if a CP is not willing of avail, finding the right people to educate or navigate. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
A2.Be by being forthright w/ Dx, Tx, & expectations. Communication is a 2-way street. Trust is also.#patientchat
Stroke Tattler @Stroketattler
@GlenMcCammon Absolutely -- married people have much better cancer outcomes than single, widowed etc https://t.co/yf0d5aycPZ #patientchat
Kimberly Amelia @fireflyrn84
T3: Be honestest, truthful, discuss expectations; involve others case manager, social worker, utilize resources, I have too #patientchat
Kimberly Dahline @finallyfiled
@fireflyrn84 @GlenMcCammon Right? sad that many times it's baptism by fire and vertical learning curve. #patientchat
harriseve @harriseve
did I hear "navigate?" #patientchat #patientnavigator https://t.co/sLkLfa0OOZ
nonye aghanya @nonyet777
#patientchat Remember to joke with patients, it goes a long way to alleviate anxiety for both clinicians and patients
Stroke Tattler @Stroketattler
T3-- we need a new way of studying how relationships influence outcomes-- See Feeney article https://t.co/yf0d5aycPZ #patientchat
Julie Drury @solidfooting
Important question. Difficult to answer bc of the imbalance in power dynamics and lack of unbiased patient/family support in care settings https://t.co/KpRxbu5a2C
Lisa Davis Budzinski @lisadbudzinski
RT @patientchat: T3: How can patients overcome possible communication barriers with their care partners? And vice versa? #patientchat
Kimberly Amelia @fireflyrn84
@harriseve you absolutely heard "navigate" its a maze and there isn't a map, it's cruel at times and doesn't help the patients #patientchat
Maggie Rogers @magthenomad
T2: Be open about expectations, needs, wants. Make sure communication is open in both directions, after all it's a partnership! #patientchat https://t.co/SRleisF185
Stroke Tattler @Stroketattler
@harriseve I think care-partners do a much better job of navigating! Two heads working together #patientchat
Christina Lizaso @btrfly12
RT @fireflyrn84: @harriseve you absolutely heard "navigate" its a maze and there isn't a map, it's cruel at times and doesn't help the pati…
Sherry Reynolds 🌟 @Cascadia
Sherry from sunny Seattle (30 days rain free) Director Center 4 Health Innovation co-designing health with patients + providers @patientchat https://t.co/JEjYE1sp2p
Liz Szabo @LizSzabo
Patients often need help navigating health system -- from a child, a spouse, a friend. https://t.co/lNxyNfiWmP
Kimberly Dahline @finallyfiled
@fireflyrn84 @harriseve to say nothing of the insurance side! #patientchat
Alan Brewington @abrewi3010
T3 realize mistakes will happen. Keep anger under control. Breaks from medicine when possibl. Ice cream runs. #patientchat https://t.co/Ada0PeEksP
Sherry Reynolds 🌟 @Cascadia
Sherry from sunny Seattle (30 days rain free) Director Center 4 Health Innovation co-designing health with patients + providers #patientchat https://t.co/JEjYE1sp2p
Melissa VanHouten @melissarvh
T3 Make sure both understand pertinent medical terms/issues & recognize short & long-term goals. Adjust @ 1st sign of problem #patientchat
Stroke Tattler @Stroketattler
@fireflyrn84 @harriseve RIght navigating health system difficult for professionals, now try that with stroke! NOT ALONE thanks! #patientchat
Azella C. Collins @azella_c
RT @nonyet777: #patientchat Solution??...Practice compassionate care.....Effective communication helps to unravel the mystery of behavioral…
Mary MACK @MaryOCMack
The medical system is a true labyrinth #patientchat
Wendy Holcombe @1artsychick
T3 you may need a 3rd party to overcome communication barriers #patientchat
Patient Chat @patientchat
@Cascadia Hi Sherry! Don't forget to include #patientchat in your tweets :)
nonye aghanya @nonyet777
#patientchat Body language goes a long way in conveying empathy, intent and build trust, there are strategic clinician/patient comm. tools
Lisa Davis Budzinski @lisadbudzinski
T3 This is a hard one. Pt may not be thinking clearly due to condition #patientchat
Glen McCammon @glenmccammon
@FinallyFiled @fireflyrn84 It's sad that it takes being a health care insider who knows the system & the jargon to get the care everyone deserves #patientchat #equity
Liz Szabo @LizSzabo
RT @MaryOCMack: The medical system is a true labyrinth #patientchat
Liz Szabo @LizSzabo
RT @1artsychick: T3 you may need a 3rd party to overcome communication barriers #patientchat
Kimberly Amelia @fireflyrn84
@FinallyFiled @fireflyrn84 @harriseve Absolutely, that's another ballgame in itself! Blog coming Monday @patientslikeme by me #patientchat
Liz Szabo @LizSzabo
RT @GlenMcCammon: @FinallyFiled @fireflyrn84 It's sad that it takes being a health care insider who knows the system & the jargon to…
Alan Brewington @abrewi3010
T3 have some fun too! Care covers fun, not always about sick or broken #patientchat
Kimberly Dahline @finallyfiled
@lisadbudzinski Or THINK they are clearer than they are! #patientchat
Patient Empowerment @power4patients
T3: Dad was my Mom's main CG & both really struggled w/ communicating their emotional needs. Neither wanted to upset the other #patientchat
Lisa Davis Budzinski @lisadbudzinski
T3 There is a certain sense of nuance that CG/CP need to have #patientchat
Christina Lizaso @btrfly12
RT @melissarvh: T3 Make sure both understand pertinent medical terms/issues & recognize short & long-term goals. Adjust @ 1st sign of probl…
harriseve @harriseve
as a navigator I hope 2B out of work someday but I'm not optimistic RT @MaryOCMack: The medical system is a true labyrinth #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up… #patientchat
nonye aghanya @nonyet777
#patientchat clinicians have the responsibility to recognize pt traits and behaviors, communicate effectively, to reduce patient's anxiety
Glen McCammon @glenmccammon
@patientchat Find a common language and a common understanding for what good health care and outcomes look like #patientchat
Patient Empowerment @power4patients
RT @1artsychick: T3 you may need a 3rd party to overcome communication barriers #patientchat
Stroke Tattler @Stroketattler
T3 When care partners relationship is good, they are more likely to interpret those communication errors as errors not hurtful #patientchat
SPBOC Foundation @spbocf
RT @power4patients: T3: Dad was my Mom's main CG & both really struggled w/ communicating their emotional needs. Neither wanted to upset th…
Melissa VanHouten @melissarvh
RT @GlenMcCammon: @patientchat Find a common language and a common understanding for what good health care and outcomes look like #patientc
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@btrfly12 @patientchat YES! #patientchat
Patient Chat @patientchat
T4: What are some tips and resources to help patients better communicate with their care partner? #patientchat
nonye aghanya @nonyet777
RT @Stroketattler: T3 When care partners relationship is good, they are more likely to interpret those communication errors as errors not h…
Christina Lizaso @btrfly12
@fireflyrn84 please post w/ #patientchat tagged when it comes out :)
Christina Lizaso @btrfly12
RT @patientchat: T4: What are some tips and resources to help patients better communicate with their care partner? #patientchat
Patient Empowerment @power4patients
RT @patientchat: T4: What are some tips and resources to help patients better communicate with their care partner? #patientchat
Kimberly Dahline @finallyfiled
@ZHeatherChamp @btrfly12 @patientchat Sometimes I wonder if hubby and I were at the same apt! #patientchat
Kimberly Amelia @fireflyrn84
@btrfly12 I will, it actually will be a three part series eventually! #patientchat
Wendy Holcombe @1artsychick
RT @FinallyFiled: @ZHeatherChamp @btrfly12 @patientchat Sometimes I wonder if hubby and I were at the same apt! #patientchat
Christina Lizaso @btrfly12
T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Patient Critical Co-op @PatientCritical
T3 HCP's (all #alliedhealth) are learning language of #patientengagement along with patients. It's OUR job to ask Qs, explore #patientchat
Lisa Davis Budzinski @lisadbudzinski
@btrfly12 @fireflyrn84 Yes we would love to see/read it! #patientchat @patientslikeme
Patient Empowerment @power4patients
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Melissa VanHouten @melissarvh
T4 https://t.co/p0y9Lm4kT6 has some excellent information as well as chats and support meetings. #patientchat
Stroke Tattler @Stroketattler
@patientchat T4 IMO there needs to be much better research on improving caregiver/ receiver relationships #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
A1: While I feel both are patient-centered, a "partner" reinforces TEAM aspect. I'm stronger w/another beside me. #patientchat #btsm #pten
Patient Chat @patientchat
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Christina Lizaso @btrfly12
T4: Find #caregiving discussion and cancer-specific resource links via past #gyncsm chat: https://t.co/SGJru8BaU0 #patientchat
Lisa Davis Budzinski @lisadbudzinski
@PatientCritical Exactly ✨ #patientchat
Kimberly Dahline @finallyfiled
Language is critical! #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @melissarvh: T4 https://t.co/p0y9Lm4kT6 has some excellent information as well as chats and support meetings. #patientchat
Texas Tempest @nebulouswonder
RT @GlenMcCammon: @FinallyFiled @fireflyrn84 It's sad that it takes being a health care insider who knows the system & the jargon to…
Wendy Holcombe @1artsychick
T4 Don't hold things in. Talk. Realize you are in this together. #patientchat
Kimberly Amelia @fireflyrn84
T4: Always have someone with you, another set of ears always help; use the internet, get resourceful when out of resources #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: T4: Find #caregiving discussion and cancer-specific resource links via past #gyncsm chat: https://t.co/SGJru8BaU0 #patientch
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@patientchat A2: Use mainly *I* statements. Share what you need, want, feel, even fear. #btsm #pten #rare #patientchat
nonye aghanya @nonyet777
#patientchat Cops/doctors. vital members of the community, have the chance to fight mistrust https://t.co/g349M1kLjz (a small blog I wrote)
Patient Empowerment @power4patients
T4: Difficult to be an empowered patient without empowered CP/CGs, here are our top tips: https://t.co/qwY5CYqu2h #patientchat
Christina Lizaso @btrfly12
RT @GlenMcCammon: @patientchat Find a common language and a common understanding for what good health care and outcomes look like #patientc
Christina Lizaso @btrfly12
RT @Stroketattler: T3 When care partners relationship is good, they are more likely to interpret those communication errors as errors not h…
Patient Empowerment @power4patients
RT @fireflyrn84: T4: Always have someone with you, another set of ears always help; use the internet, get resourceful when out of resources…
Stroke Tattler @Stroketattler
@FinallyFiled T4 It is more than language-- it is also how language is interpreted, positively/ negatively #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@FinallyFiled What do you mean? #patientchat
Patient Empowerment @power4patients
@1artsychick Critically important! #patientchat
Kimberly Amelia @fireflyrn84
T4: Remember that your care partner is on your team too and they want to do the best they can; reality checks are okay to do #patientchat
CP Nerve Center @Cpnervecenter
#patientchat T4 Internet offers loads of info re: caregiving, being a great patient and support for all. What a difference a decade makes!
Patient Empowerment @power4patients
RT @btrfly12: T4: Find #caregiving discussion and cancer-specific resource links via past #gyncsm chat: https://t.co/SGJru8BaU0 #patientch
Glen McCammon @glenmccammon
A good care partner means being an active participant who is not afraid to ask questions & get involved in all aspects of care #patientchat
Christina Lizaso @btrfly12
RT @ZHeatherChamp: A1: While I feel both are patient-centered, a "partner" reinforces TEAM aspect. I'm stronger w/another beside me. #patie
Maggie Rogers @magthenomad
T4: let's not forget support groups that can help both partners. We often forget how important connection is #patientchat https://t.co/o8ScZwe1T2
Kimberly Dahline @finallyfiled
@Stroketattler @FinallyFiled Absolutely. There could be a whole dissertation on the "language" of treating chronic illness #patientchat
Stroke Tattler @Stroketattler
@1artsychick Yes-- Relationship and illness research clear that talking openly about illness & relationship is best #patientchat
Katie @katie5280
@patientchat Late as usual! I'm Katie, a 7-year breast cancer survivor & t2 diabetic! #patientchat
Christina Lizaso @btrfly12
RT @ZHeatherChamp: @patientchat A2: Use mainly *I* statements. Share what you need, want, feel, even fear. #btsm #pten #rare #patientchat
SPBOC Foundation @spbocf
RT @power4patients: T4: Difficult to be an empowered patient without empowered CP/CGs, here are our top tips: https://t.co/qwY5CYqu2h #pati
Lisa Davis Budzinski @lisadbudzinski
T4 Use resources that are available. There is more help out there nowadays than ever before #patientchat
Alan Brewington @abrewi3010
T4 it's just a bad day, not a bad life. @ArthritisFdn for #arthritis patients. #patientchat https://t.co/6qN4o3kS8f
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: #patientchat T4 Internet offers loads of info re: caregiving, being a great patient and support for all. What a differen…
Patient Chat @patientchat
@katie5280 Welcome back Katie! #patientchat
Maggie Rogers @magthenomad
quoting for emphasis! "get resourceful when out of resources" #patientchat https://t.co/4NxVdE7Tnl
Patient Empowerment @power4patients
@katie5280 @patientchat Welcome, Katie! #patientchat
Christina Lizaso @btrfly12
RT @fireflyrn84: T4: Remember that your care partner is on your team too and they want to do the best they can; reality checks are okay to…
Katie @katie5280
@patientchat T1: To me, caregiver = someone who give care, care partner = one who advises on care. #patientchat
Stroke Tattler @Stroketattler
@FinallyFiled Yes! I would say several dissertations. But we really need the knowledge now! #patientchat
Mary MACK @MaryOCMack
T4. Someti #patientchat
Christina Lizaso @btrfly12
@katie5280 welcome :) #patientchat
Kimberly Dahline @finallyfiled
@ZHeatherChamp @FinallyFiled million definitions of language Interpretations, meanings almost have to define language itself #patientchat
Erin Miller @LazarexaErin
T4 Education about ct's generally and specifically what your ct options are is the key to good communication @LazarexCF #patientchat
Christina Lizaso @btrfly12
RT @lisadbudzinski: T4 Use resources that are available. There is more help out there nowadays than ever before #patientchat
nonye aghanya @nonyet777
#patientchat first hand knowledge on clinician/patient anxiety.. an eye opener for me...so wrote a guidebook www. ptdrsimpletips. com
Alan Brewington @abrewi3010
T4 communication is an active learning process. Don't be afraid to say I don't know/understand #patientchat
MommaMarDee @b1e56df9ce6549f
RT @PatientCritical: Burning out is a danger for caregiving partners. Community support, time for self care and frank, open check-ins are c…
Patient Empowerment @power4patients
RT @abrewi3010: T4 communication is an active learning process. Don't be afraid to say I don't know/understand #patientchat
nonye aghanya @nonyet777
RT @abrewi3010: T4 communication is an active learning process. Don't be afraid to say I don't know/understand #patientchat
Stroke Tattler @Stroketattler
@katie5280 @patientchat IMO care partner collaborative-- patient/partner working together on illness management &relationship #patientchat
Patient Critical Co-op @PatientCritical
T4: ask Q's, be inclusive not defensive asking for change, share learning, find community support & let it support you back #patientchat https://t.co/WMmeKqHr3t
Christina Lizaso @btrfly12
RT @abrewi3010: T4 communication is an active learning process. Don't be afraid to say I don't know/understand #patientchat
Patient Critical Co-op @PatientCritical
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Kimberly Dahline @finallyfiled
@Stroketattler @FinallyFiled I think it comes forth in discussions. Tone, intention, hot button words #patientchat
Katie @katie5280
@patientchat T2: Do research and have questions ready prior to appointment. #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up… #patientchat
harriseve @harriseve
T4 ask for permission, then RECORD appt on your phone #patientchat https://t.co/kgx0uG5H7k
Katie @katie5280
@GlenMcCammon @patientchat Great answer! #patientchat
Mary MACK @MaryOCMack
T4 Sometimes my husband brings things up that only he notices. Like hardly breathing at night #patientchat
Maggie Rogers @magthenomad
RT @PatientCritical: T4: ask Q's, be inclusive not defensive asking for change, share learning, find community support & let it support…
Maggie Rogers @magthenomad
RT @PatientCritical: T4: ask Q's, be inclusive not defensive asking for change, share learning, find community support & let it support…
Lisa Davis Budzinski @lisadbudzinski
T4 Do not underestimate the power of a therapist to help w/communication skills #patientchat
Maggie Rogers @magthenomad
RT @abrewi3010: T4 communication is an active learning process. Don't be afraid to say I don't know/understand #patientchat
Patient Chat @patientchat
T5: What can care partners do if they need help? #patientchat
nonye aghanya @nonyet777
RT @ZHeatherChamp: @patientchat A2: Use mainly *I* statements. Share what you need, want, feel, even fear. #btsm #pten #rare #patientchat
Patient Empowerment @power4patients
RT @patientchat: T5: What can care partners do if they need help? #patientchat
Wendy Holcombe @1artsychick
@MaryOCMack yes!! #patientchat
Mary MACK @MaryOCMack
T4. Brings things to the doctor's attention that might be important. #patientchat
Alan Brewington @abrewi3010
RT @lisadbudzinski: T4 Do not underestimate the power of a therapist to help w/communication skills #patientchat
Kimberly Dahline @finallyfiled
@patientchat And at the beginning of the apt, ask for time to recap. remember they are there for you #patientchat
Maggie Rogers @magthenomad
RT @FinallyFiled: @Stroketattler @FinallyFiled Absolutely. There could be a whole dissertation on the "language" of treating chronic illnes…
Stroke Tattler @Stroketattler
@FinallyFiled Yes! In my research, rolling eyes/ hurtful communication interpreted differently in high quality relationships #patientchat
Maggie Rogers @magthenomad
RT @GlenMcCammon: A good care partner means being an active participant who is not afraid to ask questions & get involved in all aspects of…
Kimberly Amelia @fireflyrn84
T5: Ask your co-workers, have a second opinion, also same as with patients, have a sit down discussion and reframe situation #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T5: What can care partners do if they need help? #patientchat
Patient Critical Co-op @PatientCritical
T4: nerves & stress block the brain/ ask your Dr to write down issues, treatment plan and results of your meeting. They will! #patientchat
Kimberly Dahline @finallyfiled
@MaryOCMack isn't that the greatest? #patientchat
Wendy Holcombe @1artsychick
T5: care partners need to be able to ask for help. to have respite. have this set up before you need it #patientchat
Katie @katie5280
@patientchat T3: Speak up when something isn’t understood; ask for specific examples to describe feelings of any kind. #patientchat
Mary MACK @MaryOCMack
T5. Call the doctor and have a chat about feeling overwhelmed. #patientchat
Kimberly Dahline @finallyfiled
Awesome comments everyone! Learning so much #patientchat
Christina Lizaso @btrfly12
@MaryOCMack exactly, there are things you don't notice about yourself that those closest to you do notice. #patientchat
Maggie Rogers @magthenomad
T5: The first step to getting help is ASKING for help! #patientchat https://t.co/cSchuiVc27
Christina Lizaso @btrfly12
@lisadbudzinski we all need help being better communicators - and with care partners the stakes are high, so use resources :) #patientchat
burtrosen @burtrosen
Burt here from @HealthSparq sorry to be so late, especially for one of my favorite chats! #patientchat
Kimberly Dahline @finallyfiled
@Stroketattler @FinallyFiled another biggie? silence. Spent lots of time understanding that it isn't always a bad thing! #patientchat
Alan Brewington @abrewi3010
T5 there is no "if", they mostly will. Understand that everyone needs help so much sure commutation allows for that #patientchat https://t.co/HGJRBdh7MQ
Christina Lizaso @btrfly12
RT @1artsychick: T5: care partners need to be able to ask for help. to have respite. have this set up before you need it #patientchat
Lisa Davis Budzinski @lisadbudzinski
T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Patient Critical Co-op @PatientCritical
RT @fireflyrn84: T5: Ask your co-workers, have a second opinion, also same as with patients, have a sit down discussion and reframe situati…
Wendy Holcombe @1artsychick
RT @lisadbudzinski: T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Patient Empowerment @power4patients
T5: CPs need their own support system to lean on & willingness to ask for help/respite when needed https://t.co/qwY5CYqu2h #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: @lisadbudzinski we all need help being better communicators - and with care partners the stakes are high, so use resources :)…
Melissa VanHouten @melissarvh
T5 Take respites, time 4 themselves; communicate w/ other medical pros & care partners for ideas/help; recognize need 4 help #patientchat
Patient Empowerment @power4patients
RT @lisadbudzinski: T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Christina Lizaso @btrfly12
@burtrosen @HealthSparq welcome :) #patientchat
Katie @katie5280
@patientchat T4: Sometimes it’s asking how they want to be communicated to. #patientchat
Health Sharer @healthsharer
RT @lisadbudzinski: T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Patient Empowerment @power4patients
RT @btrfly12: @lisadbudzinski we all need help being better communicators - and with care partners the stakes are high, so use resources :)…
Melissa VanHouten @melissarvh
RT @lisadbudzinski: T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Patient Empowerment @power4patients
RT @melissarvh: T5 Take respites, time 4 themselves; communicate w/ other medical pros & care partners for ideas/help; recognize need 4 hel…
Alert1 Medical Alert @alert1medalert
Everyone needs time to recharge to avoid burnout. #patientchat https://t.co/REjKMg0AgI
Erin Miller @LazarexaErin
Find out what experience your doc has with clinical trials. There are many resources out there for them as well. #patientchat
Alan Brewington @abrewi3010
T5 Quality of life discussions need to be about caregivers/partners too. Needs refreshing just like for patients #patientchat
Patient Empowerment @power4patients
RT @LazarexaErin: Find out what experience your doc has with clinical trials. There are many resources out there for them as well. #patient
Christina Lizaso @btrfly12
Self-care is important. It is not selfish. Always remember that :) #patientchat
burtrosen @burtrosen
T5: much like all patients can learn a lot from #SoMe #carepartners can find a lot of support online as well #patientchat
Alan Brewington @abrewi3010
RT @Alert1MedAlert: Everyone needs time to recharge to avoid burnout. #patientchat https://t.co/REjKMg0AgI
Patient Critical Co-op @PatientCritical
T5: Too many of us have massive blind spots in self care. Having a plan can make the difference between collapsing & coping #patientchat https://t.co/wFPUH13QNf
Patient Empowerment @power4patients
RT @burtrosen: T5: much like all patients can learn a lot from #SoMe #carepartners can find a lot of support online as well #patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: T5 Quality of life discussions need to be about caregivers/partners too. Needs refreshing just like for patients #patientch
nonye aghanya @nonyet777
#patientchat Possible Clinician impression of intrusive care giver....https://t.co/EkEH9bPXFU
Kimberly Dahline @finallyfiled
@Alert1MedAlert Ice cream always helps! really, really GOOD ice cream #patientchat
Wendy Holcombe @1artsychick
T5 Don't hesitate to get psychological help when needed. Both CG and patient #patientchat
Christina Lizaso @btrfly12
RT @burtrosen: T5: much like all patients can learn a lot from #SoMe #carepartners can find a lot of support online as well #patientchat
Christina Lizaso @btrfly12
RT @1artsychick: T5 Don't hesitate to get psychological help when needed. Both CG and patient #patientchat
Kimberly Amelia @fireflyrn84
T5: Patient and care partner both can suffer from burnout, sometimes a break is needed, may need a different provider #patientchat
Lisa Davis Budzinski @lisadbudzinski
Caring for another should never feel like a huge burden or weight on shoulders. Red flag if this appears #patientchat
Stroke Tattler @Stroketattler
@PatientCritical Easy to have perspective when you have had enough sleep, less role overload https://t.co/yf0d5aycPZ #patientchat
burtrosen @burtrosen
T4: I find that the same binder i use for my drs with all of my tests etc, can be valuable for my caregivers or partners too #patientchat
Patient Empowerment @power4patients
@btrfly12 Very wise words! #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @abrewi3010: T5 Quality of life discussions need to be about caregivers/partners too. Needs refreshing just like for patients #patientch
Patient Empowerment @power4patients
RT @Stroketattler: @PatientCritical Easy to have perspective when you have had enough sleep, less role overload https://t.co/yf0d5aycPZ #pa
Patient Empowerment @power4patients
RT @fireflyrn84: T5: Patient and care partner both can suffer from burnout, sometimes a break is needed, may need a different provider #pat
Katie @katie5280
@patientchat T5: Simply say that they need help. #patientchat
Patient Empowerment @power4patients
RT @1artsychick: T5 Don't hesitate to get psychological help when needed. Both CG and patient #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @burtrosen: T4: I find that the same binder i use for my drs with all of my tests etc, can be valuable for my caregivers or partners too…
Patient Critical Co-op @PatientCritical
T5: Advocate for mental health across the board. It grinds everyone down & we need to put supports in place early, for everyone #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @burtrosen: T4: I find that the same binder i use for my drs with all of my tests etc, can be valuable for my caregivers or partners too…
Strong Mama @realstrongmama
Patient Chat on Twitter https://t.co/fqURBmxiVl #patientchat https://t.co/iiwoqd6Wl5
ShereeseM, MS/MBA @ShereesePubHlth
RT @lisadbudzinski: Caring for another should never feel like a huge burden or weight on shoulders. Red flag if this appears #patientchat
burtrosen @burtrosen
this was from early on in treatment #patientchat https://t.co/tGla2f9jCw
Stroke Tattler @Stroketattler
@1artsychick Found that stroke survivors and spouses who had access to relationship counselling did better. #patientchat
Community Engagement @mayoclinic_cenr
RT @btrfly12: Self-care is important. It is not selfish. Always remember that :) #patientchat
Lisa Davis Budzinski @lisadbudzinski
@burtrosen Always use that valuable medical folder or USB ✨ #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Patient Empowerment @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Christina Lizaso @btrfly12
RT @burtrosen: T4: I find that the same binder i use for my drs with all of my tests etc, can be valuable for my caregivers or partners too…
Maggie Rogers @magthenomad
T5: Seek out other caregivers/care partners - they've all been there before. Burn out is real. Help can be found. #patientchat
Erin Miller @LazarexaErin
Nurses can be a great source of information, advice and comfort. They were for me. #patientchat
Alert1 Medical Alert @alert1medalert
@FinallyFiled Ice cream is pretty great! #patientchat
nonye aghanya @nonyet777
#patientchat @patientchat Simple tips in my guide book... work like a charm in reducing patient anxiety, promoting productive relationship
Kimberly Dahline @finallyfiled
@lisadbudzinski @burtrosen Curios to know how your organize on the usb or paper files #patientchat
CP Nerve Center @Cpnervecenter
#patientchat T5 I recently found "Support Groups Central" for online support meetings. I don't even have to leave the house.
Christina Lizaso @btrfly12
RT @Stroketattler: @1artsychick Found that stroke survivors and spouses who had access to relationship counselling did better. #patientch
burtrosen @burtrosen
@lisadbudzinski if only i could get it all electronically to put on USB without taking the photos myself! #patientchat
Christina Lizaso @btrfly12
RT @magthenomad: T5: Seek out other caregivers/care partners - they've all been there before. Burn out is real. Help can be found. #patient
Wendy Holcombe @1artsychick
CT Great chat. Thanks to all for all the information. I will reach out to my CP with the resources that were given here! #patientchat
Christina Lizaso @btrfly12
RT @LazarexaErin: Nurses can be a great source of information, advice and comfort. They were for me. #patientchat
nonye aghanya @nonyet777
RT @btrfly12: Self-care is important. It is not selfish. Always remember that :) #patientchat
Mary MACK @MaryOCMack
T5. We've had to learn together to be strong but polite advocates. My husband is also funny so we laugh a lot #patientchat
Stroke Tattler @Stroketattler
Final thought-- Enough sleep/ less role overload can put totally different perspective on same problem. https://t.co/yf0d5aycPZ #patientchat
Richard Kreis @kreisr1
RT @patientchat: T3: How can patients overcome possible communication barriers with their care partners? And vice versa? #patientchat
Richard Kreis @kreisr1
RT @patientchat: T4: What are some tips and resources to help patients better communicate with their care partner? #patientchat
Richard Kreis @kreisr1
RT @btrfly12: You may not see all the tweets, including from moderator, in Twitter search stream. Try tchat.io or other chat tools. #patien
Richard Kreis @kreisr1
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Richard Kreis @kreisr1
RT @patientchat: T5: What can care partners do if they need help? #patientchat
Lisa Davis Budzinski @lisadbudzinski
@burtrosen I know right?! 😊 #patientchat It would be invaluable to have someone to do that
Richard Kreis @kreisr1
RT @patientchat: T1: What is the difference between a caregiver and a care partner? #patientchat
Kimberly Dahline @finallyfiled
@burtrosen @lisadbudzinski we should chat online later. finallyfiled@gmail.com #patientchat
Katie @katie5280
@power4patients I never thought of it that way. #patientchat
Maggie Rogers @magthenomad
T4: let's not forget support groups that can help both partners. We often forget how important connection is #patientchat
Patient Empowerment @power4patients
RT @LazarexaErin: Nurses can be a great source of information, advice and comfort. They were for me. #patientchat
Richard Kreis @kreisr1
RT @patientchat: I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful…
Richard Kreis @kreisr1
RT @Stroketattler: @1artsychick T1That is my view too! Are we doing this together or am I in charge of your care as caregiver. #patientchat
Maggie Rogers @magthenomad
T2: Be open about expectations, needs, wants. Make sure communication is open in both directions, after all it's a partnership! #patientchat
Richard Kreis @kreisr1
RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/92CB1eNW32
Mary MACK @MaryOCMack
T5. A sense of humor even when things are tense goes a long way #patientchat
Richard Kreis @kreisr1
RT @btrfly12: Self-care is important. It is not selfish. Always remember that :) #patientchat
Kimberly Amelia @fireflyrn84
CT: Care partners and patients alike, both need to be treated equally with respect. This is a relationship and needs care too #patientchat
Richard Kreis @kreisr1
RT @patientchat: T2: How can you lay the groundwork for effective communication with your care partner? #patientchat
Richard Kreis @kreisr1
RT @Stroketattler: T1 Language and framing matters in who has power. IMO care partner is an attempt to equalize the power relationship #pa
Stroke Tattler @Stroketattler
RT @Cpnervecenter: #patientchat T5 I recently found "Support Groups Central" for online support meetings. I don't even have to leave the h…
burtrosen @burtrosen
@LazarexaErin i keep learning that nurses are the true heroes of #healthcare and help untangle the mess and bring the #empathy for so many! #patientchat
Maggie Rogers @magthenomad
T1 For care partners the relationship is mutually beneficial. It's a balance of care where both individuals are useful/helpful! #patientchat
Richard Kreis @kreisr1
RT @patientchat: Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & his…
Erin Miller @LazarexaErin
Laughter is a huge stress reliever when it's a laugh or cry situation. #patientchat
Richard Kreis @kreisr1
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Christina Lizaso @btrfly12
RT @magthenomad: T4: let's not forget support groups that can help both partners. We often forget how important connection is #patientchat
Richard Kreis @kreisr1
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the nxt hr. You can engage w/ others…
Richard Kreis @kreisr1
RT @patientchat: Topic 2 (T2:) coming up… #patientchat
Richard Kreis @kreisr1
RT @patientchat: Topic 3 (T3:) coming up… #patientchat
Richard Kreis @kreisr1
RT @patientchat: Time to start our topics. Here comes T1: #patientchat
Richard Kreis @kreisr1
RT @Stroketattler: @power4patients Article talks about framing of equity: https://t.co/yf0d5aycPZ but the language principles are the same!…
Christina Lizaso @btrfly12
RT @fireflyrn84: CT: Care partners and patients alike, both need to be treated equally with respect. This is a relationship and needs care…
Kimberly Dahline @finallyfiled
@lisadbudzinski @burtrosen like a professional organizer? lol I get it. it's a nightmare coordinating/sharing info #patientchat
Richard Kreis @kreisr1
RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Richard Kreis @kreisr1
RT @fireflyrn84: @btrfly12 I will, it actually will be a three part series eventually! #patientchat
Stroke Tattler @Stroketattler
@Cpnervecenter Online support can be used more often! #patientchat
Richard Kreis @kreisr1
RT @patientchat: Topic 5 (T5:) coming up… #patientchat
Richard Kreis @kreisr1
RT @PatientCritical: Burning out is a danger for caregiving partners. Community support, time for self care and frank, open check-ins are c…
Richard Kreis @kreisr1
RT @btrfly12: T4: Find #caregiving discussion and cancer-specific resource links via past #gyncsm chat: https://t.co/SGJru8BaU0 #patientch
Richard Kreis @kreisr1
RT @patientchat: Topic 4 (T4:) coming up… #patientchat
Richard Kreis @kreisr1
RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules" #patientchat
Katie @katie5280
@patientchat CT: This was a great, thought-provoking chat. Some great ideas were shared today. #patientchat
Patient Critical Co-op @PatientCritical
RT @burtrosen: @LazarexaErin i keep learning that nurses are the true heroes of #healthcare and help untangle the mess and bring t…
Richard Kreis @kreisr1
RT @patientchat: You may miss some #patientchat tweets from Twitter, try one of these platforms: tchat.io or https://t.co/T3Z17yZVkw
Richard Kreis @kreisr1
RT @patientchat: We extend a special thank you to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where…
Richard Kreis @kreisr1
RT @patientchat: ICYMI: Read about @power4patients new role hosting Empowered #patientchat https://t.co/J2OUBUasbn
Richard Kreis @kreisr1
RT @patientchat: I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
burtrosen @burtrosen
@lisadbudzinski new business opportunity? digital binders for patients? sounds like a work around to a broken system but whatever! #patientchat
Richard Kreis @kreisr1
RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/92CB1eNW32 #ptexp #hcsm #wordsmatter #c
Richard Kreis @kreisr1
RT @patientchat: The Empowered #patientchat is a project of @power4patients and @intakeme
Richard Kreis @kreisr1
RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/UENH6hX6z9
Lisa Davis Budzinski @lisadbudzinski
@FinallyFiled @burtrosen Other than a masters degree in organizing (joking) A system will reveal itself. By Drs, by condition and so forth #patientchat
Richard Kreis @kreisr1
RT @btrfly12: RT @patientchat T2: How can you lay the groundwork for effective communication with your care partner? #patientchat
Richard Kreis @kreisr1
RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/iUIZmqVYfv #patientchat
Kimberly Dahline @finallyfiled
When you are in the process, it's hard to remember that you are driving the bus! most imp ? What do YOU want? #patientchat
Richard Kreis @kreisr1
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Richard Kreis @kreisr1
RT @btrfly12: @lisadbudzinski we all need help being better communicators - and with care partners the stakes are high, so use resources :)…
Richard Kreis @kreisr1
RT @lisadbudzinski: T4 Do not underestimate the power of a therapist to help w/communication skills #patientchat
Richard Kreis @kreisr1
RT @btrfly12: T1: I think the care partner term is a good goal. Disease is a family/framily experience. #patientchat
Richard Kreis @kreisr1
RT @patientchat: Today's #patientchat topic is How To Communicate with Your Care Partner https://t.co/92CB1eNW32 https://t.co/L3OwETzQ20
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: #patientchat T5 I recently found "Support Groups Central" for online support meetings. I don't even have to leave the h…
Richard Kreis @kreisr1
RT @btrfly12: Lovely group gathering at #patientchat - come along one and all :)
Mark&Patti Clifford @markjohn1
RT @patientchat: We extend a special thank you to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where…
Richard Kreis @kreisr1
RT @btrfly12: Hi #patientchat - I'm passionate about community engagement and health. Previvor, mom, #gyncsm, #NSGCgenepool, @Clara_Health
Richard Kreis @kreisr1
RT @lisadbudzinski: T5 Carers need to keep 👀 on their own health. Take time away, entrust help from others on healthcare team #patientchat
Richard Kreis @kreisr1
RT @btrfly12: Today at 1pmET - Join the #patientchat on communicating with your care partner https://t.co/BuQSZEumIM #caregiver #caregivers
Kimberly Dahline @finallyfiled
@LazarexaErin again, or really good ice cream! #patientchat
Christina Lizaso @btrfly12
RT @FinallyFiled: When you are in the process, it's hard to remember that you are driving the bus! most imp ? What do YOU want? #patientchat
Richard Kreis @kreisr1
RT @power4patients: T1: To me, the term "caregiver" implies a passive role for the person being cared for. Care partner is more inclusive #…
burtrosen @burtrosen
@MaryOCMack helps to #humanizehealthcare and make things easier! #patientchat
Maggie Rogers @magthenomad
How can we better connect #caregivers/care partners to the resources they need? A lot is out there, but it's easy to get lost #patientchat
Candace @RareCandace
Hi tweeters, lurking in the background but wanted to say hello! #patientchat
Richard Kreis @kreisr1
RT @btrfly12: MT @Stroketattler T2 In my research on post stroke marriages-- burn-out is a significant problem #patientchat
Melissa VanHouten @melissarvh
Thank you for hosting another engaging and educational chat! I always look forward to these! #patientchat
Stroke Tattler @Stroketattler
RT @magthenomad: How can we better connect #caregivers/care partners to the resources they need? A lot is out there, but it's easy to get l…
Richard Kreis @kreisr1
RT @power4patients: T2: It's all about good communication. 8 beliefs that hold CPs back from receiving the help they need: https://t.co/cTW…
Richard Kreis @kreisr1
RT @lisadbudzinski: T4 Use resources that are available. There is more help out there nowadays than ever before #patientchat
Erin Miller @LazarexaErin
It is easy to have self-doubt in caregiver role as patients can be in pain and demanding. It's important to have a close friend #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: Caring for another should never feel like a huge burden or weight on shoulders. Red flag if this appears #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great! Reach out to @power4patients and @patientchat anytime. #patientchat
Christina Lizaso @btrfly12
CT: Always greatly appreciate the time and insights of those who join #patientchat Have a lovely weekend all.
nonye aghanya @nonyet777
#patientchat @patientchat effective clinician/patient communication is the mainstay for optimal healthcare https://t.co/rI5I0y1BTM
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
burtrosen @burtrosen
@FinallyFiled @lisadbudzinski might be dumb but i dread even punching the holes to file the test results in a binder. make it easy for me! #patientchat
Kimberly Dahline @finallyfiled
Thank you everyone. Wishing you good days ahead! #patientchat
Richard Kreis @kreisr1
RT @power4patients: T4: Difficult to be an empowered patient without empowered CP/CGs, here are our top tips: https://t.co/qwY5CYqu2h #pati
Richard Kreis @kreisr1
RT @power4patients: T5: CPs need their own support system to lean on & willingness to ask for help/respite when needed https://t.co/qwY5CYq…
Christina Lizaso @btrfly12
@RareCandace :) #patientchat
Richard Kreis @kreisr1
RT @power4patients: Howdy, it's Andrea from PEN. Looking forward to today's discussion! #patientchat
Lisa Davis Budzinski @lisadbudzinski
@burtrosen Definitely ✨ I have few that use USBs right now so that was a waste of time. Even at the hospital! #patientchat
Alert1 Medical Alert @alert1medalert
Yes! #patientchat https://t.co/QCTPFXrntb
Melissa VanHouten @melissarvh
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
Richard Kreis @kreisr1
RT @Stroketattler: I apologize to followers. I am going to participate in a tweetchat-- #patientchat so there will be a flurry of #patiente
Stroke Tattler @Stroketattler
@magthenomad Right, it is difficult to figure out what resources you actually need in a surfeit of Internet resources #patientchat
Richard Kreis @kreisr1
RT @melissarvh: T2 Be patient & understanding w/each other. Do not assume your partner knows your needs/wants. Set goals & boundaries. #pat
Richard Kreis @kreisr1
RT @lisadbudzinski: T3 This is a hard one. Pt may not be thinking clearly due to condition #patientchat
Patient Chat @patientchat
Empowered #patientchat schedule note: The remaining summer chat will be Friday, August 4 at 1pmET https://t.co/jHKbXCdgWM
Richard Kreis @kreisr1
RT @btrfly12: @Stroketattler so glad you could join today! #patientchat
Richard Kreis @kreisr1
RT @btrfly12: @MaryOCMack exactly, there are things you don't notice about yourself that those closest to you do notice. #patientchat
Richard Kreis @kreisr1
RT @MaryOCMack: T4 Sometimes my husband brings things up that only he notices. Like hardly breathing at night #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Empowered #patientchat schedule note: The remaining summer chat will be Friday, August 4 at 1pmET https://t.co/jHKbXCdgWM
Christina Lizaso @btrfly12
RT @patientchat: Empowered #patientchat schedule note: The remaining summer chat will be Friday, August 4 at 1pmET https://t.co/jHKbXCdgWM
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Richard Kreis @kreisr1
RT @1artsychick: Hi everyone. haven't been around in a while. good to be back #patientchat
Richard Kreis @kreisr1
RT @power4patients: All good relationships are based on trust, same goes for CPs. The tricky part is when the CP starts to burn out & needs…
Richard Kreis @kreisr1
RT @lisadbudzinski: @power4patients And be able to recognize the burn out before their health goes south #patientchat
nonye aghanya @nonyet777
#patientchat Thanks to all for such a wonderful and enlightening chat!!
Richard Kreis @kreisr1
RT @lisadbudzinski: T2 Comprehensive report & paperwork of dx + understanding how to carry out daily care. Communication is key #patientchat
Patient Critical Co-op @PatientCritical
Thanks for a great #patientchat all, take care of ypurselves out there :)
Richard Kreis @kreisr1
RT @btrfly12: @burtrosen @HealthSparq welcome :) #patientchat
Richard Kreis @kreisr1
RT @btrfly12: #patientchat #mhstigma https://t.co/7mA1DW47Cv
Simply Mom @mommashelping
RT @Cpnervecenter: #patientchat T5 I recently found "Support Groups Central" for online support meetings. I don't even have to leave the h…
CP Nerve Center @Cpnervecenter
#patientchat CT It pays to open up and speak honestly. It's your one & only life(probably 😀) and u deserve adequate, compassionate care.
Richard Kreis @kreisr1
RT @lisadbudzinski: T3 There is a certain sense of nuance that CG/CP need to have #patientchat
Richard Kreis @kreisr1
RT @ShereesePubHlth: Shereese here in Maryland. Tweeting while waiting in line at DMV. #patientchat https://t.co/fidFYaxHLW
Richard Kreis @kreisr1
RT @btrfly12: @ShereesePubHlth great use of that down time for sure :) #patientchat
Richard Kreis @kreisr1
RT @power4patients: Here’s an article with more tips for participating in tweet chats: https://t.co/I9PaP8XZCy #patientchat
Richard Kreis @kreisr1
RT @burtrosen: T4: I find that the same binder i use for my drs with all of my tests etc, can be valuable for my caregivers or partners too…
Richard Kreis @kreisr1
RT @lisadbudzinski: @burtrosen Always use that valuable medical folder or USB ✨ #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: Hi everyone! Lisa here, caretaker & patient Co-founder of @Cpnervecenter #patientchat
Patient Chat @patientchat
RT @Cpnervecenter: #patientchat CT It pays to open up and speak honestly. It's your one & only life(probably 😀) and u deserve adequate, com…
Richard Kreis @kreisr1
RT @btrfly12: @PatientCritical welcome :) #patientchat
Richard Kreis @kreisr1
RT @PatientCritical: Hi, PJ Mierau here for https://t.co/HP5Vm5xQby, Canada's first patient owned advocacy & education co-op (member owned…
Patient Chat @patientchat
You can read about @power4patients role hosting Empowered #patientchat here: https://t.co/J2OUBUasbn
Stroke Tattler @Stroketattler
@nonyet777 @patientchat Thanks for the chat! Enjoy the rest of your Friday and the weekend. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@MaryOCMack Yes! Laughing is the best free medicine that can save relationships ✨ #patientchat
Richard Kreis @kreisr1
RT @patientchat: How do you communicate with your care partner/giver? Let's discuss Fri 7/7, 1pmET #patientchat
Richard Kreis @kreisr1
RT @patientchat: Join #patientchat Fri 7/7 1pmET as we discuss communicating with care partners https://t.co/RvsYU4QaQz
Patient Empowerment @power4patients
T5: Whether you're a caregiver, care partner, or somewhere in between, you play a critical role! https://t.co/7dDPJDBnQW #patientchat
burtrosen @burtrosen
@Cpnervecenter @LazarexaErin its true. im a harsh critic of this messed up system but nurses (and some Drs) bring humanity to an inhuman process #patientchat
Patient Empowerment @power4patients
RT @patientchat: Join #patientchat Fri 7/7 1pmET as we discuss communicating with care partners https://t.co/RvsYU4QaQz
Candace @RareCandace
RT @power4patients: T5: Whether you're a caregiver, care partner, or somewhere in between, you play a critical role! https://t.co/7dDPJDBnQ…
Candace @RareCandace
RT @magthenomad: T2: Be open about expectations, needs, wants. Make sure communication is open in both directions, after all it's a partner…
Community Engagement @mayoclinic_cenr
Alice Tolbert Coombs, M.D. - Empowering Patients its the key #patientchat https://t.co/Ivz2f7Uyyx
Mommy's Cancer @MommysCancer
RT @btrfly12: T4: General caregiving resources: @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction #patientchat
Alert1 Medical Alert @alert1medalert
CT: there's a whole community on Twitter who cares! It's great to see such a support system here. #patientchat
Lisa Davis Budzinski @lisadbudzinski
Another wonderful #patientchat with a lot of info & resources! Thank you everyone ✨ https://t.co/FQ4KoEJndr
RebekahS.M. @rebekahangove
RT @mayoclinic_cenr: Alice Tolbert Coombs, M.D. - Empowering Patients its the key #patientchat https://t.co/Ivz2f7Uyyx
burtrosen @burtrosen
this is such a great and authentic chat. i am sorry that i missed some of it. Have a great weekend everyone and thanks! #patientchat
Patient Chat @patientchat
@Stroketattler @nonyet777 Enjoy your weekend @Stroketattler ! #patientchat
Christina Lizaso @btrfly12
RT @power4patients: T5: Whether you're a caregiver, care partner, or somewhere in between, you play a critical role! https://t.co/7dDPJDBnQ…
Patient Empowerment @power4patients
Thanks everyone for another great chat. Have a good weekend! #patientchat
CP Nerve Center @Cpnervecenter
#patientchat Wonderful Chat! Thanks everyone. Happy Weekend. https://t.co/A0ek0Q1t5Z
Erin Miller @LazarexaErin
Thank you ... that was great! #patientchat
Alert1 Medical Alert @alert1medalert
@Cpnervecenter What a beautiful picture! #patientchat
Maggie Rogers @magthenomad
RT @LazarexaErin: Nurses can be a great source of information, advice and comfort. They were for me. #patientchat
#patientchat content from Twitter.