#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Patient Critical Co-op @PatientCritical Looking forward! https://t.co/UtyheALAP2 |
 | Enlightening Results 💡 @GraceCordovano Happy to be spending this Friday with #patientchat! |
 | Christina Lizaso @btrfly12 RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat w/ @myopennotes here: You can find the topics we'll cover on today’s Empowered #patientchat w/ @myopennotes here: https://t.co/LKzdk5ucwx |
| Patient Chat @patientchat The Empowered #patientchat is a project of @power4patients and @intakeme |
| Patient Chat @patientchat ICYMI: Read about @power4patients new role hosting Empowered #patientchat https://t.co/J2OUBUasbn |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Guest @myopennotes is committed to making healthcare more transparent by urging HCPs to share their visit notes with patients #patientchat |
 | M&B Sciences @mbsciencesinc Love #patientchat for keeping patient voices in the spotlight when it comes to healthcare! Let's talk! |
| Patient Chat @patientchat You can find out more about OpenNotes @myopennotes and their work at https://t.co/RRuxk6UySh #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Christina Lizaso @btrfly12 Hello all. Love spending time w/ those passionate about patient empowerment at all levels. :) #patientchat |
| Patient Chat @patientchat We are so thankful to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where it is today |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Alan Brewington @abrewi3010 Alan here from smokey and hot boise Idaho. #patientchat |
| Alan Brewington @abrewi3010 RT @patientchat: We are so thankful to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where it is today |
 | Patient Empowerment Network @power4patients Happy Friday everyone! Excited to be chatting along today #patientchat |
| Enlightening Results 💡 @GraceCordovano @patientchat @power4patients Been looking forward to today's topic! #patientchat |
 | Kimberly Amelia @fireflyrn84 Hi it's Kim from WI. Autonomic dysfunction advocate, #RareDisease RN, full time patient, #patientchat |
| Patient Chat @patientchat Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history #patientchat |
 | Katie @katie5280 @patientchat Hi! I’m Katie, a 7 yr breast cancer survivor and t2 diabetic. Newly appointed to @LivingBeyondBC Young Advocate Program! #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/iUIZmqVYfv #patientchat |
 | Selina Brudnicki @sbrudnicki I'm Selina & I help patients access health records and notes. Ironically, I can't access my own due to silos so may just lurk. #patientchat |
| Patient Critical Co-op @PatientCritical Hello I'm PJ Mierau, Managing Director of https://t.co/HP5Vm5xQby, Canada's first not-for-profit member-patient co-op. #patientchat |
| Christina Lizaso @btrfly12 RT @sbrudnicki: I'm Selina & I help patients access health records and notes. Ironically, I can't access my own due to silos so may just lurk. #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is is health records and how they can be used to take charge of your care |
 | ElizabethKelly, Ph.D @Elizabe85727641 Hello everyone, Liz Kelly, patient & patient advocate, reflecting on how to #dev/#implement HC #change 2 include #aware pt. #patientchat |
| Kimberly Amelia @fireflyrn84 I also helped build an EMR for one of the hospitals I worked at. We were converting from paper to electronic #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Today's #patientchat topic is is health records and how they can be used to take charge of your care |
 | Annette McKinnon @anetto Annette here in Toronto. Have access to my hospital health records, not family Dr. #patientchat |
| Alan Brewington @abrewi3010 RT @patientchat: I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: https://t.co/LKzdk5ucwx #patientchat |
| Patient Chat @patientchat T1: What do you want your health care team to know about you and your health information? #patientchat |
| Enlightening Results 💡 @GraceCordovano Hi everyone! Grace joining from NJ. I'm a private #cancer patient advocate that deals with barriers to access daily #patientchat |
 | OpenNotes @myopennotes @fireflyrn84 Thanks Kimberly, here is the implementation toolkit, when your system is ready! https://t.co/Mq0JxGl3BI #patientchat |
| M&B Sciences @mbsciencesinc Clara Health is proud to help patients share their stories and advocate for access to care! Glad to be here. #patientchat |
| Patient Empowerment Network @power4patients T1: Everything! I think the more they know the better the team can plan the care that's right for me. #patientchat |
| Katie @katie5280 @patientchat T1: Health history & current meds would be most important. #patientchat |
| Alan Brewington @abrewi3010 T1 I work damn hard to be in this much pain, the data is mine. #patientchat |
 | HealthAdvocate @healthadvoc_ca Hi all, my GP has, upon request, printed information for myself or my team. As majority of Canada I have no digital file access #patientchat |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi guys. I'm Shereese here in Maryland. #patientchat https://t.co/10b7M3jF6F |
| Enlightening Results 💡 @GraceCordovano T1: To make informed decisions about my care, I need my 🎯 doctor’s expertise 🎯 ?'s answered 🎯 life & values included #PatientChat #hcldr https://t.co/vMM2rqtvf4 |
| Annette McKinnon @anetto T1 The care team should realize that having the information is a strong motivator for me. Once I see it I want to know meaning #patientchat |
| Kimberly Amelia @fireflyrn84 T1: it's my story, it's private, and I want access to everything a healthcare provider can see #patientchat |
| OpenNotes @myopennotes T1: Our findings say pts want to communicate better & more collaboratively w/ docs. Be part of the decision-making process #patientchat |
 | Kimberly @FinallyFiled Hello fellow advocates. Kimberly here. Happy Friday #patientchat |
| Enlightening Results 💡 @GraceCordovano T1: Doctors, ask "What are your goals for this appt today?” Welcome #patients' questions, clarify to ensure CLARITY. #PatientChat |
| Christina Lizaso @btrfly12 RT @patientchat: T1: T1: What do you want your health care team to know about you and your health information? #patientchat |
| Selina Brudnicki @sbrudnicki T1: Care team spans family practice & acute care. To make informed decisions, all need to know complete fam & medical history #patientchat https://t.co/LkSDUsc9GR |
 | Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T1: I want my team + myself to have access to all of my information so that I have optimal quality of life + outcomes #patietnchat https://t.co/H2nIcP9wWT |
| Enlightening Results 💡 @GraceCordovano T1: I am an expert in my diagnosis. You know the intricacies of the disease; I know the intricacies of daily life w/disease. #PatientChat https://t.co/iu7imBfA9m |
| Annette McKinnon @anetto T1 No one has more interest in my records than I do - I'm the solid ground anchoring the records. Without me, not significant #patientchat |
| Patient Critical Co-op @PatientCritical T1: I want team to have full access-w/my approval for unrelated specialties-& other prov's HCP's to have access if/when I move #patientchat |
| Alan Brewington @abrewi3010 T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat |
| Kimberly @FinallyFiled I want my physicians to know everything but it takes personal coordination and effort to make sure information is being shared #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T1: T1: Doctors, ask "What are your goals for this appt today?” Welcome #patients' questions, clarify to ensure CLARITY. #PatientChat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Actionable data that will help design a preventive health plan and a good foundation for communication about health goals #patientchat |
| M&B Sciences @mbsciencesinc T1: Providers should know everything about a patients history. They need to listen and slow down to gain #patients trust first. #patientchat |
| Christina Lizaso @btrfly12 RT @anetto: T1 No one has more interest in my records than I do - I'm the solid ground anchoring the records. Without me, not significant #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat |
 | CascadiaChat @CascadiaChat So I don’t flood my regular @Cascadia followers switching to a backup chat account for #patientchat |
| OpenNotes @myopennotes T1: these are great comments! Who here has access to their notes? #patientchat |
| Alan Brewington @abrewi3010 RT @MightyCasey: T1: T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em. #patientchat |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T1 Actionable data that will help design a preventive health plan and a good foundation for communication about health goals #patientchat |
| Enlightening Results 💡 @GraceCordovano It seems to be unanimous: #patients are not sitting down and keeping quiet a moment longer. Drs, welcome them to the table! #patientchat https://t.co/S2NKRAjS1Y |
| Patient Chat @patientchat Topic 2 (T2:) coming up... #patientchat |
| Annette McKinnon @anetto T1 With chronic illness, people need a team. Yet the MDs and allied professionals don't communicate well. That should change #patientchat |
| Patient Chat @patientchat T2: For those who are able to read their visit notes, what are the benefits? #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey It's incredible, without the #patient, there would be no record....#patientchat |
| Patient Critical Co-op @PatientCritical T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'shp w/HCP's #patientchat |
| M&B Sciences @mbsciencesinc RT @FinallyFiled: I want my physicians to know everything but it takes personal coordination and effort to make sure information is being shared #patientchat |
| OpenNotes @myopennotes @anetto agreed. With the patient at the center feeling more in control! #OpenNotes #patientchat |
| Patient Empowerment Network @power4patients T2: Patients will be able to manage, understand, and be more engaged in their care if they can view HCPs visit notes #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @MightyCasey: T1: T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 How well does HC listen to pt? Provider expects to find a disease >trt, what if pt.'s culture not familiar wth disease? #patientchat |
| Alan Brewington @abrewi3010 T1 chronic and acute data are 2 different sets, understanding the difference is key for patient satisfaction #patientchat |
| OpenNotes @myopennotes @PatientCritical We agree! check out this paper to read more about what patients value about notes https://t.co/uEtk0eMLDV #patientchat |
| Annette McKinnon @anetto @Crohnoid Hi Nigel, some of us in Canada too. Slowly gaining access but not at GP level #patientchat |
| Kimberly @FinallyFiled Hate it when they say you can go online for results. I want to see what THEY are writing. @power4patients #patientchat |
| CascadiaChat @CascadiaChat T1 #patientchat * That I am a full member of my own care team * I need the same access to info they have * the basic #SDOH in my life https://t.co/zWIaIEHDjY |
| Katie @katie5280 @patientchat T2: To ensure that the correct “things” are noted about the visit (meaning correct conditions, body parts, etc…) #patientchat |
| Patient Critical Co-op @PatientCritical T1: A psych may not need to know all phsyical care; insurance Dr may not need access to psych. Put patient in sharing control #patientchat https://t.co/pLySj2CmtO |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: I want admission from medical-industrial complex that poly-portalitis syndrome is a thing (and an EPIDEMIC at this point) #patientchat |
| Kimberly @FinallyFiled @katie5280 @patientchat right? #patientchat |
| Selina Brudnicki @sbrudnicki T1: Absolutely. Caregivers and support systems are an important part as well. #patientchat https://t.co/7GRtSwwLJg |
| Alan Brewington @abrewi3010 T2 verification and validation that my team and I are on the same wave. #patientchat |
| M&B Sciences @mbsciencesinc T2: Reading visit notes allows patients an opportunity to see any flaws in communication that could lead to flaws in treatment. #patientchat |
| Christina Lizaso @btrfly12 RT @PatientCritical: T1: T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'shp w/HCP's #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T 2 Clarification of the narrative! #patientchat |
| Enlightening Results 💡 @GraceCordovano T2: Benefits include: •Instant recap of appt •Defines next steps •Opportunity to check accuracy •Medication instructions (#PatientChat) |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: CORRECTING MISTAKES/MIS-STATEMENTS. There's STILL an error in my breast cancer records that skews pop-health data. Dammit. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @MightyCasey: T1: T1: I want admission from medical-industrial complex that poly-portalitis syndrome is a thing (and an EPIDEMIC at this point) #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 chronic and acute data are 2 different sets, understanding the difference is key for patient satisfaction #patientchat |
| OpenNotes @myopennotes @brkthrough_crew that's right, caregivers can benefit too from having access to loved ones' notes https://t.co/liBoWU7U5l #patientchat |
| Kimberly Amelia @fireflyrn84 I have access to my notes in one portal #PatientChat https://t.co/IxmlELBUVr |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: Coordination of care plan. Participation in decision making. Sense of agency/ownership in outcome. #rightcare #s4pm #patientchat |
 | Cait DesRoches, DrPH @cmd418 @katie5280 @patientchat Yes! we have piloted a safety reporting tool. Patients help make their own care safer reading notes. #patientchat |
| Christina Lizaso @btrfly12 RT @FinallyFiled: Hate it when they say you can go online for results. I want to see what THEY are writing. @power4patients #patientchat |
| Enlightening Results 💡 @GraceCordovano T2: Access to office notes allows for sharing w/care partners. Prevents things being lost/misconstrued in translation. #PatientChat |
| Kimberly @FinallyFiled @MightyCasey And it's so hard to get those diagnosises (sp?) off your records. They are ere somewhere indelibly #patientchat |
 | kathy kastner @KathyKastner RT @anetto: T1 The care team should realize that having the information is a strong motivator for me. Once I see it I want to know meaning #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T2: check for accuracy +make corrections Ensure you + team are aligned on care plan #patientchat https://t.co/FdbfUxAkhO |
| Enlightening Results 💡 @GraceCordovano T2: Access to office notes provides an opportunity for pt self-education, empowerment, adoption of leadership vs backseat role. #PatientChat |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Benefits relate to healthy literacy level, access to care, risk/benefit ratio of provider, + SDoH. #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T2 verification and validation that my team and I are on the same wave. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up.. #patientchat |
| Cait DesRoches, DrPH @cmd418 @brkthrough_crew yep! T2. It's impossible to remember everything you hear during a visit. notes can help you remember #patientchat |
| Selina Brudnicki @sbrudnicki T2: Reading visit notes would help me remember what was said, and ensure that that we have the same shared understanding #patientchat https://t.co/7mLbySpJjy |
| Alan Brewington @abrewi3010 T1 prevent mistakes and misunderstandings of my patient story #patientchat |
| OpenNotes @myopennotes T2: Our most recent study summarizes what pts told us they like about open notes https://t.co/uEtk0eMLDV #patientchat |
| Kimberly @FinallyFiled Have any of you just logged into other care provider portals at your physician's to share information versus paper? #organize #patientchat |
| Kimberly Amelia @fireflyrn84 T2: you know the exact thoughts of a doctor and also learn things that weren't mentioned in the appt. #patientchat |
| kathy kastner @KathyKastner RT @abrewi3010: T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat |
| Patient Chat @patientchat T3: How does access to notes help you actively share in your healthcare decision making? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: Topic 3 (T3:) coming up.. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 I do not How do I gain access? #patientchat https://t.co/z1JF8VKDAY |
 | Kim McLeod @GrandmaKim RT @PatientCritical: T1: T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'shp w/HCP's #patientchat |
| Cait DesRoches, DrPH @cmd418 @abrewi3010 @myopennotes T1 we hope #opennotes will help bring the patient story back to medicine. #patientchat |
| HealthAdvocate @healthadvoc_ca @richardzhao There isn't a robust or popular public option for rate/reviewing HCP's, though it remains a topic of interest/concern for many #patientchat |
| Christina Lizaso @btrfly12 RT @myopennotes: T2: T2: Our most recent study summarizes what pts told us they like about open notes https://t.co/uEtk0eMLDV #patientchat |
| Kimberly @FinallyFiled @Imonlyslightly I like how now there is information on what the results mean (scale) #information #patientchat |
 | Rachel Rufo @RufoRachel T2: My visit notes once said I received a surgery that I still needed to schedule! It was a huge argument to prove the truth. #patientchat |
| Annette McKinnon @anetto T2 It's a benefit to know what the Dr 'really' says. Asked about my discharge notes was told"I didn't write them for you" #patientchat |
| Enlightening Results 💡 @GraceCordovano @myopennotes Yes! Loving all my notes and records here with me...but wish they were all nicely in one spot on my ipad #dreambig #patientchat |
| M&B Sciences @mbsciencesinc RT @GraceCordovano: T2: T2: Benefits include: •Instant recap of appt •Defines next steps •Opportunity to check accuracy •Medication instructions (#PatientChat) |
| Patient Empowerment Network @power4patients @FinallyFiled Yes! I actually find myself doing this a lot #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @patientchat : How do we gain access to the notes? #patientchat https://t.co/yPymDIwjhi |
| OpenNotes @myopennotes Thanks @gratefull080504 - start here: https://t.co/8yESttIP0O let us know if you need help! #patientchat |
| Cait DesRoches, DrPH @cmd418 @GraceCordovano @myopennotes T3 - That might be coming sooner than you think! We'd love to hear more from you. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey General observation: as long as EHR companies are allowed to compete, and avoid #interop, we'll be stuck on stupid. #gmdd #s4pm #patientchat |
| Patient Empowerment Network @power4patients T3 W/access to notes I would remember what was said and suggested during an appt allowing me to participate in decision making #patientchat |
| M&B Sciences @mbsciencesinc RT @GraceCordovano: T2: T2: Access to office notes allows for sharing w/care partners. Prevents things being lost/misconstrued in translation. #PatientChat |
| Kimberly @FinallyFiled @Crohnoid YES! so important to have a system to ensure that happens. Be the squeaky wheel. #finallyfiled #advocate #patientchat |
| Alan Brewington @abrewi3010 RT @cmd418: @abrewi3010 @myopennotes T1 we hope #opennotes will help bring the patient story back to medicine. #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: Multiple pts may have same diagnosis; no 2 pts are the same. Proactively using office notes can be the differentiator #PatientChat https://t.co/AuULuVZT5T |
| Christina Lizaso @btrfly12 RT @power4patients: T3 W/access to notes I would remember what was said and suggested during an appt allowing me to participate in decision making #patientchat |
| Cait DesRoches, DrPH @cmd418 @MightyCasey right on! can patients be the inter-operable agent?? #patientchat |
| kathy kastner @KathyKastner RT @anetto: T2 It's a benefit to know what the Dr 'really' says. Asked about my discharge notes was told"I didn't write them for you" #patientchat |
| Patient Critical Co-op @PatientCritical T2: lack of access to EHR/online notes means faxes, followups dependent on patient being vigilant, paying/waiting for records #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba There's truth 2 "write it down, make it happen" When pts have access, they can collaboratively work w/ HCPs to improve health #patientchat https://t.co/0iNXv7M6NH |
| Alan Brewington @abrewi3010 T3 it helps me build my health literacy which is a constant learning and doing process. #patientchat |
| M&B Sciences @mbsciencesinc T3: We believe in the power of knowledge above all. Access to notes gives patients more power to self advocate! #patientchat #educate |
| Cait DesRoches, DrPH @cmd418 @Crohnoid t1 we have that in the US too, but it's not easy to get the records. #patientchat |
| OpenNotes @myopennotes @FinallyFiled @Crohnoid yes! Start here: https://t.co/8yESttIP0O and connect with us! #patientchat |
| Patient Empowerment Network @power4patients T3: Check out @JBBC’s advice on how to get the most out of your doctor’s visit https://t.co/48vQoE4GUA #patientchat |
| Enlightening Results 💡 @GraceCordovano @cmd418 @myopennotes anxiouslessly awaiting #patientchat |
| kathy kastner @KathyKastner RT @abrewi3010: T3 it helps me build my health literacy which is a constant learning and doing process. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey WE. ARE. ALREADY. >>> RT @cmd418: @MightyCasey right on! can patients be the inter-operable agent?? #patientchat #walkingmedicalrecord |
| Kimberly @FinallyFiled @cmd418 @Crohnoid @PatientCritical Vigilant. I like it #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: Understanding the intricacies within office notes helps patients knowledgeably file disability claims. #PatientChat |
| Kimberly Amelia @fireflyrn84 T3: I know if we're on the same page; it ensures continuity of care between disciplines #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T3: I will ask the question again @myopennotes: How do we gain access to our notes? #patientchat |
| Kimberly @FinallyFiled RT @rheumpatient: |
| Cait DesRoches, DrPH @cmd418 @MightyCasey @cmd418 How can we make that job easier? #patientchat |
 | Angela Cohen @angelee828 RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Selina Brudnicki @sbrudnicki T3: Remembering visit is a start. Discussing options, risks, & documenting for all would help in active decision-making #patientchat https://t.co/fuWwkPXLva |
| Enlightening Results 💡 @GraceCordovano Do you have access to your office notes? #patientchat https://t.co/gtHei9JoTO |
| Alan Brewington @abrewi3010 T3 there is to much waiting as a chronic patient, this gives me something constructive to engage in #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @gratefull080504 @patientchat By saying "print out your note for me" while still in exam room. #gmdd #patientchat |
| Kimberly @FinallyFiled You need to be the "axis" and "access" point (my original mantra) #finallyfiled #advocate #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @gratefull080504 @myopennotes The first line of defense is to simply ask. After that, make a formal request. #patientchat |
| Angela Cohen @angelee828 @patientchat Hi, I'm Angela diagnosed with Crohn's since 2010. Sorry I'm late! #PatientChat |
| Patient Chat @patientchat Topic 4 (T4:) coming up... #patientchat |
| OpenNotes @myopennotes Thanks @gratefull080504 start here: https://t.co/8yESttIP0O let us know if we can help! #patientchat |
| Katie @katie5280 @patientchat T3: Not everything is communicated to you, so this is a way to ask questions about things you see that you may not understand. #patientchat |
| Christina Lizaso @btrfly12 RT @FinallyFiled: You need to be the "axis" and "access" point (my original mantra) #finallyfiled #advocate #patientchat |
| Kimberly @FinallyFiled The struggle is to keep everything in motion WHILE you are ill, medicated, sleep deprived and in pain #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @cmd418 1/ Cut patients in on $$$ minted by EHR companies + health systems selling our data to commercial interests. #patientchat |
| Patient Chat @patientchat @angelee828 glad you could join in! #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Thanks @MightyCasey but isn't there a more comprehensive approach than one visit I would like a continuum #patietnchat https://t.co/h0NAb9Ftz9 |
| OpenNotes @myopennotes T3: Our findings suggest it helps prepare better for the visit, ask better Qs & feel confident your input matters! #patientchat |
| Cait DesRoches, DrPH @cmd418 @brkthrough_crew T3 Yes, including care partners. #patientchat |
| Christina Lizaso @btrfly12 RT @FinallyFiled: The struggle is to keep everything in motion WHILE you are ill, medicated, sleep deprived and in pain #patientchat |
| Patient Chat @patientchat T4: Do you ever find information in your notes that you find confusing or worrisome? What do you do about that? #patientchat |
| Enlightening Results 💡 @GraceCordovano Dear all EHR companies and new developers: Please stop the insanity! #PatientChat #Interoperability #PtExp https://t.co/YlwSBzOt72 |
| HealthAdvocate @healthadvoc_ca T3: EG: If a parent lives remotely, access to EHR's can facilitate caregiving and the health of the parent #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T4: T4: Do you ever find information in your notes that you find confusing or worrisome? What do you do about that? #patientchat |
| Kimberly @FinallyFiled @myopennotes At the beginning of your apt, ask for time at the end to ensure you understand Everything #advocate #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @cmd418 2/ That's the dark underbelly of this, $$$ minted off our data in EHRs. Patients get no share, "consent" buried in TOS. #patientchat |
| M&B Sciences @mbsciencesinc We are LOVING this mantra from a passionate #patientadvocate! https://t.co/JwjoMjmzaf |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @ShereesePubHlth : I appreciate your response but looking for a continuum #patientchat https://t.co/hJAroap7mO |
| Annette McKinnon @anetto T3 Patients do better if they understand HCPs in real time, not 6 mos later at next appointment after research. Learning tool #patientchat |
| OpenNotes @myopennotes @healthadvoc_ca absolutely, sharing with caregivers helps everyone on the team! #patientchat |
| Enlightening Results 💡 @GraceCordovano T4: Confusing: ‘Medicalese’ above patient health literacy levels. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Opinions please; if you have open communication w/ your HCP, do you really need to view the note? #patientchat https://t.co/s0LLZcfL1l |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @myopennotes: What do you hope to learn from this chat? What are your objectives? #patientchat |
| Kimberly @FinallyFiled @anetto laughing, not laughing #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @cmd418 3/ Demand access, AND CUT, on that. Hell, AMZN or SBUX credits would work to start. Grab 'em by wallet, hearts/minds folo. #patientchat |
| OpenNotes @myopennotes T4: Note reading may not be right for everyone. This and more Qs are answered in our FAQs for patients: https://t.co/NjxcnS1m1j #patientchat |
| Enlightening Results 💡 @GraceCordovano T4: Worrisome: Incorrect medications listed, not all symptoms/side-effects captured, missing medical history/allergies #patientchat |
 | Richard Zhao @richardzhao @gratefull080504 @patientchat Will Blue bottom provide all the notes? #patientchat |
| Alan Brewington @abrewi3010 T4 I start with Dr Google. My guess is someone has probably already had the same issue as me #patientchat |
| M&B Sciences @mbsciencesinc We are LOVING this mantra from a passionate #advocate! #patientchat https://t.co/JwjoMjmzaf |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @patientchat @myopennotes : What do hope to achieve from today's chat ? #patientchat |
| Patient Critical Co-op @PatientCritical T3: Patients responsible for their health, access & advocacy as much as HCP. We need to ask for records AND educate ourselves #patientchat |
| Kimberly @FinallyFiled @ShereesePubHlth I think it's a personal decision, but I always like to know what's being written about #patientchat |
| Kimberly Amelia @fireflyrn84 @gratefull080504 @myopennotes You can submit a release of information form to gain access to your records. Some EMRs have the notes available as a standard. #patientchat |
| Cait DesRoches, DrPH @cmd418 @ShereesePubHlth we think so.It's impossible to remember everything HCP says during visit. Reading notes helps. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @gratefull080504 I was actually leading up to something. Q: Do we need access to the notes if we've established a good/honest rel. w/ the Dr.? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @gratefull080504 Talk up @myopennotes on a freakin' loop, everywhere, all points of care. THAT'S how we get notes *and* continuum. #patientchat #gmdd |
| Annette McKinnon @anetto T4 When I don't know I ask. But professionals should learn to use fewer acronyms. Not common language to say NWB, POD1 etc #patientchat |
| Christina Lizaso @btrfly12 RT @PatientCritical: T3: T3: Patients responsible for their health, access & advocacy as much as HCP. We need to ask for records AND educate ourselves #patientchat |
| Kimberly @FinallyFiled @Clara_Health Thanks. More to come on that so stay tuned. #patientchat |
| HealthAdvocate @healthadvoc_ca T4: YES. Wrong dates, wrong body parts, wrong meds. Notes written in scrawl other HCP's can't read. The list goes on. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @richardzhao @patientchat thank you Richard #patientchat |
| M&B Sciences @mbsciencesinc T4: That is why it takes a team. Talk to other patients, get a second opinion, do your own research! #patientchat |
| OpenNotes @myopennotes @gratefull080504 @patientchat Our big goal is to reach more patients so they'll ask for their notes and benefit from reading #patientchat |
| Kimberly @FinallyFiled @healthadvoc_ca Truth! #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 Wth nursing educ, data base provides base 2 understand trt choices, read/compare literature solutions 4 other trtmt choices #PatientChat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Well said! #patientchat https://t.co/oJAzUi66NB |
| Kimberly @FinallyFiled It #patientchat |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth @gratefull080504 Absolutely! Good, honest doctors still can make mistakes in notes or not be on the same page as the patient. #patientchat |
| Selina Brudnicki @sbrudnicki T4: I 'peaked' at my own record while GP left the room. Use of simpler language and my own access would be helpful. #patientchat https://t.co/x6ND6U7kLQ |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Hello, Capt. Obvious. Seeing notes allows for fuller discussion, deeper understanding, more effective partnership. #s4pm #patientchat |
| Kimberly @FinallyFiled It's hard to remember that WE are in the power position! #advocate #health #patientchat |
| Kimberly Amelia @fireflyrn84 The ultimate goal was to have all patient portals be able to 'talk' to each other. Our records would be accessible everywhere #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up... #patientchat |
 | Health Rocketer @healthrocketer RT @FinallyFiled: It's hard to remember that WE are in the power position! #advocate #health #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T3: What is the value proposition for @myopennotes ? What's in it for me? Haven't clearly understood that so far #patientchat |
| Richard Zhao @richardzhao RT @FinallyFiled: It's hard to remember that WE are in the power position! #advocate #health #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @FinallyFiled Ex. On arrival for peds visits, I ask pediatrician 4 notes abt visit.They're ready when we leave, but I already know info #patientchat |
| OpenNotes @myopennotes @FinallyFiled yes! we want to help more patients feel that way! So they'll ask for their notes and benefit from reading #patientchat |
| Kimberly @FinallyFiled @fireflyrn84 Right, but now they don't which is why you need a well organized communication plan! #finallyfiled #organized #patientchat |
| M&B Sciences @mbsciencesinc Yes! #PatientsHavePower! Use it! https://t.co/55FuNtpywa |
| Patient Chat @patientchat T5: How can the notes be used in between visits to help manage care and keep you organized? #patientchat |
| Selina Brudnicki @sbrudnicki I'd say yes, especially if you can't remember everything that was said. #patientchat https://t.co/ZFC0nBGsUQ |
| Kimberly Amelia @fireflyrn84 T4: ask the provider if something is worrisome or confusing. Always use the portal for messages so that it's documented #patientchat |
| Patient Critical Co-op @PatientCritical T4: What contributors in this tweetchat may do about errors is different from less engaged patients. Mass education is needed. #patientchat |
 | Aurelia Cotta @AureliaCotta @sbrudnicki #patientchat T4 I find notes to be very helpful health wise and I only wish I had full access electronically to full file |
| Christina Lizaso @btrfly12 RT @patientchat: T5: T5: How can the notes be used in between visits to help manage care and keep you organized? #patientchat |
 | Christoph Trappe @CTrappe Nope. Maybe as a reminder? https://t.co/IjIOJZbbbw |
| Cait DesRoches, DrPH @cmd418 @gratefull080504 @myopennotes for patients, #opennotes has benefits related to understanding, partnership, and trust. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Have to live early today but the subject of @myopennotes was a great one Need to do my homework on understanding value #patientchat |
| Christina Lizaso @btrfly12 RT @fireflyrn84: T4: T4: ask the provider if something is worrisome or confusing. Always use the portal for messages so that it's documented #patientchat |
| M&B Sciences @mbsciencesinc Sharing the notes with other care providers can help as well! #patientchat https://t.co/zniTbOr6wx |
| Selina Brudnicki @sbrudnicki Cumbersome and provides access at one point in time? #patientchat https://t.co/JOhibIkvYk |
| OpenNotes @myopennotes @sbrudnicki studies show patients forget 50% or more of what has said in the office #patientchat |
| Angela Cohen @angelee828 T1: My health history on paper does not = me as a person. Talk to me pls. I know myself & my body. I'm part of treatment team. #patientchat |
| Annette McKinnon @anetto @notfroggie @mloxton He said he wrote them for GP. Next Q, How many ortho pts actually go to see GP post op? Unrealistic to expect this #patientchat |
| Christina Lizaso @btrfly12 RT @angelee828: T1: T1: My health history on paper does not = me as a person. Talk to me pls. I know myself & my body. I'm part of treatment team. #patientchat |
| Kimberly @FinallyFiled @patientchat It depends on what your end goal is from your notes. Data? Information? following trends? #organize #patientchat |
| Aurelia Cotta @AureliaCotta @sbrudnicki #patientchat T4 I don't find notes worrisome when I have access to a basic health dictionary of terms, or say Lab Tests Online |
| Alan Brewington @abrewi3010 T5 they should be a road map towards a higher QOL along with being a history book #patientchat |
| Cait DesRoches, DrPH @cmd418 @gratefull080504 @myopennotes providers say makes care safer, pts better prepared , not more work for HCP, better notes #patientchat |
| HealthAdvocate @healthadvoc_ca RT @myopennotes: @FinallyFiled yes! we want to help more patients feel that way! So they'll ask for their notes and benefit from reading #patientchat |
| Enlightening Results 💡 @GraceCordovano @Clara_Health Not just can help, but is absolutely necessary for coordination of care, especially in patients w/multiple co-morbidities #patientchat |
| Patient Empowerment Network @power4patients T5: Notes from one doctor can be used to help coordinate care with another HCP #patientchat |
| OpenNotes @myopennotes Open notes can help you understand your medications, remind you to make follow up appointments & schedule preventive tests #patientchat |
| M&B Sciences @mbsciencesinc Access for all! Those who can't advocate for themselves need passionate advocates working on their behalf. #patientchat https://t.co/HFrDhVlhl1 |
 | 関数星人２(ツー) @e_nvgt @ingevdln Good afternoon! Your fav. point of view maybe "#patientchat" analyized by this math robot. Thank you :) Twitter Awesome! https://t.co/RruZfrdJeQ |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Yes & nothing bc are typos from dictation, told not a problem unless record goes to court. #patientchat |
| Kimberly @FinallyFiled @ingevdln Depression can be so insidious! Glad you are aware. I was not for a looooong time. #patientchat |
| Katie @katie5280 @patientchat T4: In the past I have. I didn’t care for the way I was described, but it’s always best to speak up/ask if you have ?’s. #patientchat |
| M&B Sciences @mbsciencesinc @GraceCordovano Agreed! #patientchat |
| Kimberly @FinallyFiled @verylightnosuga Smart! Would not have thought of that. Thanks #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: My breast cancer tx records still wrong (9 yrs later). Clinicians treat you like a human if they know you'll see notes. #patientchat |
| Patient Critical Co-op @PatientCritical T5: EHR notes betwn visits can help establish proactive heatlh improvement so health isn't gauged just at appointments by HCP. #patientchat |
| Enlightening Results 💡 @GraceCordovano @ingevdln crying does not = depression; sometimes it's simply human nature and need for empathy...that's a whole other ballgame #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Reference point(s) for self-care, self-management. Calendar planning for follow-up. Sense of ownership of outcome. #patientchat |
| Kimberly @FinallyFiled @Elizabe85727641 But with insurance changing so rapidly, you don't want ANything in there that might affect you negatively. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @PatientCritical: T5: T5: EHR notes betwn visits can help establish proactive heatlh improvement so health isn't gauged just at appointments by HCP. #patientchat |
| Annette McKinnon @anetto @Elizabe85727641 What a useless answer. Doesn't a patients' health record help with treatment? #patientchat |
| Katie @katie5280 @patientchat T5: If labs/other tests are needed, you can be proactive about that. Providers don't always mention these items during visits. #patientchat |
| Enlightening Results 💡 @GraceCordovano T5: Notes may be used to prepare patients for upcoming appts with doctors, foster development of smarter question to ask. #PatientChat |
| Enlightening Results 💡 @GraceCordovano T5: Accurate office notes play a critical role in disability claims. #PatientChat |
| Patient Chat @patientchat Topic 6 (T6:) coming up... #patientchat |
| Annette McKinnon @anetto RT @MightyCasey: T4: T4: My breast cancer tx records still wrong (9 yrs later). Clinicians treat you like a human if they know you'll see notes. #patientchat |
| Cait DesRoches, DrPH @cmd418 @PatientCritical yes agree and evidence supports this. Notes can help patients know what to do between visits. #patientchat |
| Enlightening Results 💡 @GraceCordovano T5: Use notes for coordination of care to schedule appropriate follow-up appts. #PatientChat |
| Kimberly Amelia @fireflyrn84 @FinallyFiled Absolutely correct! We have access to ensure that we have what is needed for continuity. The entire exchange idea fell apart #patientchat |
| Kimberly @FinallyFiled @GraceCordovano @ingevdln My poor husband! Ice cream helps solve most "just a sad day" blues #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano @ingevdln Yeah, it's like MD was saying "there's no crying in HEALTHCARE!" <<< Tom Hanks voice #patientchat |
| Enlightening Results 💡 @GraceCordovano T5: Use notes as a reference for questions regarding medication dosing. #PatientChat |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Bc MD's not share notes I copy and take between providers, notes serve as bases for further lit research via NLM online. #patientchat |
| Cait DesRoches, DrPH @cmd418 @GraceCordovano we agree! #patientchat |
| Kimberly @FinallyFiled @GraceCordovano OMG LOVE! #hilarious #patientchat |
| Patient Chat @patientchat T6: Have you ever found an inaccuracy in your notes? Is there a role for patients to play in the safety of care? #patientchat |
| M&B Sciences @mbsciencesinc T5: Most visits end with some advice o instruction for treatment and symptom management. Keeping track improves compliance! #patientchat |
 | Natalie 🦓 @_Nataliea #patientchat T5 @ craniofacial clinic a few years ago. Neuro I've seen since I was 12 looks at chart, at me. "Why is that on your chart?" |
| Kimberly @FinallyFiled @Clara_Health This is where a few minutes at the end of apt helps! #askfortime #patientchat |
| Selina Brudnicki @sbrudnicki .@gratefull080504 Can't speak for @myopennotes, but here are some findings that may help: https://t.co/a7amfskKzo #patientchat https://t.co/TxAG8wx6qo |
| Christina Lizaso @btrfly12 RT @Elizabe85727641: T5 Bc MD's not share notes I copy and take between providers, notes serve as bases for further lit research via NLM online. #patientchat |
| Kimberly Amelia @fireflyrn84 T5: notes can be used with other disciplines at other facilities. Also to put together a timeline of the records. #patientchat |
| Kimberly @FinallyFiled @_Nataliea Really? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6: Errors in my own records; saw errors in my 'rents records when I was care manager; have heard countless stories of others. #patientchat |
| HealthAdvocate @healthadvoc_ca T6: Have had 4 experiences where treatment/med was going to be inappropriately dispensed, if not caught by a 3rd party. #patientchat |
| Christina Lizaso @btrfly12 RT @Clara_Health: T5: T5: Most visits end with some advice o instruction for treatment and symptom management. Keeping track improves compliance! #patientchat |
| Annette McKinnon @anetto T5 Would have made a spreadsheet of lab tests back when first diagnosed. Would help me to know symptom relationship to QOL #patientchat |
| Angela Cohen @angelee828 T2: Knowing if you are accurately communicating w/your Dr. or if changes are needed. IMO good communication is vital to care. #patientchat |
| Enlightening Results 💡 @GraceCordovano T6: Pt medical histories & prescription regimens are often incorrect. Critical to have missing/incorrect info corrected asap #PatientChat |
| Christina Lizaso @btrfly12 RT @FinallyFiled: @Clara_Health This is where a few minutes at the end of apt helps! #askfortime #patientchat |
| CascadiaChat @CascadiaChat Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient saw it #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6: Beyond just records, people/patients need to speak up when they see/hear ANYTHING that needs their input or correction. #patientchat |
| Patient Critical Co-op @PatientCritical T6: ALWAYS a role for patients to play in safety of care. It's a patient's LIFE & they deserve oversight & review of their care #patientchat |
| OpenNotes @myopennotes Our #patientsafety team is learning that note reading can help make care safer. Learn more: https://t.co/Ao2gVeVGSZ #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @CascadiaChat: Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient saw it #patientchat |
| M&B Sciences @mbsciencesinc T6: Patients and caregivers are the best regulators of safety in #healthcare! If they don't advocate who will? #patientchat https://t.co/cwxYC358R0 |
| Patient Empowerment Network @power4patients T6: Pts know their health best & by checking their HR for errors they could prevent the wrong diagnosis, treatment or surgery #patientchat |
| Kimberly Amelia @fireflyrn84 @sbrudnicki It is cumbersome, but if you need specific records that is the only way to do it if the notes aren't available in EHR. #patientchat |
| Alan Brewington @abrewi3010 T6 there better be a role for me to play in safety or else Heath care owes me a bunch of money In refunds #patientchat |
| Christina Lizaso @btrfly12 RT @healthadvoc_ca: T6: T6: Have had 4 experiences where treatment/med was going to be inappropriately dispensed, if not caught by a 3rd party. #patientchat |
| OpenNotes @myopennotes T6: By reviewing your notes, you can identify mistakes and make sure your record is accurate https://t.co/Ao2gVeVGSZ #patientchat |
| Enlightening Results 💡 @GraceCordovano T6: Yes, I have an anaphylactic allergy to morphin that is frequently missing from my medical history. Big prob w/ surgery #patientchat |
| Annette McKinnon @anetto T6 Discovered that one of my diagnoses was not listed on my chart. Drs think 'syndromes' less important? Big Omission #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T6: T6: Pt medical histories & prescription regimens are often incorrect. Critical to have missing/incorrect info corrected asap #PatientChat |
| Christina Lizaso @btrfly12 RT @CascadiaChat: Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient saw it #patientchat |
| Christina Lizaso @btrfly12 RT @MightyCasey: T6: T6: Beyond just records, people/patients need to speak up when they see/hear ANYTHING that needs their input or correction. #patientchat |
| Kimberly @FinallyFiled like the difference between tenitis and tendonitis! Quite different #spellcheckissue? #patientchat |
| Kimberly @FinallyFiled @GraceCordovano I guess! #patientchat |
| Kimberly Amelia @fireflyrn84 We do need to advocate for others. They deserve the same access and care as we all do. #patientchat https://t.co/x5n5EAzzEa |
| kathy kastner @KathyKastner Yep - in between doctor appointments we live our lives #patientchat https://t.co/fUIw2WGji6 |
| Patient Chat @patientchat Topic 7 (T7:) coming up... #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T6 Yes, found Rx errors from mail order Rx company, called company rep & reported immediately, then used local Rx #patientchat |
| Kimberly @FinallyFiled Loving all the comments and insights. Always learn so much from you! #love #patientchat |
| Patient Critical Co-op @PatientCritical T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough being sick. #patientchat |
| M&B Sciences @mbsciencesinc RT @fireflyrn84: We do need to advocate for others. They deserve the same access and care as we all do. #patientchat https://t.co/x5n5EAzzEa |
| Alan Brewington @abrewi3010 T6 our HC system is currently designed as a work in progress. Mistakes will happen, it's the fixing of them that's harder than #patientchat |
| Christina Lizaso @btrfly12 RT @PatientCritical: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough being sick. #patientchat |
| Patient Chat @patientchat T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T7: T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patientchat |
| Katie @katie5280 @patientchat T6: Nope, but the pt plays a very important part by verifying treatments and meds needed & to ensure they are accurate. #patientchat |
| Kimberly Amelia @fireflyrn84 If the provider knows you have access to notes regularly, they word things more carefully. Have noticed a difference at times. https://t.co/bC3XTePoiI |
| Kimberly @FinallyFiled Remember that you are driving the bus. #patientchat |
| Christina Lizaso @btrfly12 #patientchat https://t.co/JJ4iPWpNnH |
| Cait DesRoches, DrPH @cmd418 @abrewi3010 I think that's a generous description. good to know we're working on it together. #patientchat |
| OpenNotes @myopennotes T7 Our advice is: it’s ok to ask! Your voice matters. Get inspired by these wonderful patient activists https://t.co/UkkSeEuYtW #patientchat |
| Angela Cohen @angelee828 T3: w/multiple conditions, notes help me keep track of what the meds and plan is w/one dr, to make notes for the next dr appt. #patientchat |
| Enlightening Results 💡 @GraceCordovano T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR information. #PatientChat |
| Patient Empowerment Network @power4patients T7: Contact the office and see if they have a form they require for making amendments to your medical records, most do. #patientchat |
| M&B Sciences @mbsciencesinc T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat |
| Alan Brewington @abrewi3010 T6 notes can be a positive thing too let's remember. If used correctly benefit can be had by all. #patientchat |
| Kimberly @FinallyFiled @angelee828 Awesome. Snaps for being such an advocate! #patientchat |
 | HealthSparq @HealthSparq RT @patientchat: T7: T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patientchat |
 | 🌟 Sherry Reynolds ✨ Person-Centered Health @Cascadia T7 It shouldn’t be patients job to have to ask for their health info - It should be standard practice to always provide them #patientchat https://t.co/gTxSkaOnMP |
| Richard Zhao @richardzhao RT @Clara_Health: T7: T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat |
| Patient Chat @patientchat RT @GraceCordovano: T7: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR information. #PatientChat |
| Enlightening Results 💡 @GraceCordovano T7:Always request your records after each appt/test. They belong to YOU. They are necessary for YOUR health success. #PatientChat. |
| kathy kastner @KathyKastner RT @PatientCritical: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough being sick. #patientchat |
| Katie @katie5280 @patientchat ? T7: Don’t be afraid! Simply request & say, “I noticed something wasn’t right & I would like my visit notes, please…” #patientchat |
| OpenNotes @myopennotes We believe patients asking for their notes will help things move faster https://t.co/8yESttIP0O #patientchat |
| Patient Critical Co-op @PatientCritical T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& responsibility #patientchat |
| Christina Lizaso @btrfly12 RT @myopennotes: T7 Our advice is: T7 Our advice is: it’s ok to ask! Your voice matters. Get inspired by these wonderful patient activists https://t.co/UkkSeEuYtW #patientchat |
| Katie @katie5280 @patientchat T7: A lot of visit notes are placed on patient portals so there may not be a need to ask. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @katie5280: @patientchat T7: @patientchat T7: A lot of visit notes are placed on patient portals so there may not be a need to ask. #patientchat |
| Christina Lizaso @btrfly12 RT @Clara_Health: T7: T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat |
| Alan Brewington @abrewi3010 @cmd418 If the system was horrible none of us would be on twitter complaining. It needs work for sure. Important to tell entire story #patientchat |
| Kimberly @FinallyFiled Asking for information shows your providers you are an active participant in your care #advocate #patientchat |
| Patient Empowerment Network @power4patients RT @PatientCritical: T7: T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& responsibility #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T7:Always request your records after each appt/test. They belong to YOU. They are necessary for YOUR health success. #PatientChat. |
| Patient Critical Co-op @PatientCritical T7: Society taught them to get checkups & NOW needs to teach them to ask questions, advocate & own their rights. Grassroots. #patientchat |
| Annette McKinnon @anetto T7 Easy to ask if the hospital or office has a patient portal. Signing up is easy. Many have built in patient education links. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T7 #Assess level of knowledge/literacy, seek health goals/outcomes/support, #collaborate wth pt to dev skills over time #patientchat |
| Kimberly @FinallyFiled @anetto Good point about information links. #patientchat |
| OpenNotes @myopennotes @PatientCritical it's our sense that many patients don't even know notes exist, can you help us spread the word? #patientchat |
| kathy kastner @KathyKastner Yep- in between them doctors appts we live our lives;-) https://t.co/o4mfe6dTdX |
| Selina Brudnicki @sbrudnicki T7: If you don't ask, you don't get. Is inaccuracy significant & could it impact your safety & care? Consolidated voice helps. #patientchat https://t.co/w9UO30o81X |
| Christina Lizaso @btrfly12 RT @FinallyFiled: Asking for information shows your providers you are an active participant in your care #advocate #patientchat |
| Christina Lizaso @btrfly12 RT @PatientCritical: T7: T7: Society taught them to get checkups & NOW needs to teach them to ask questions, advocate & own their rights. Grassroots. #patientchat |
| Cait DesRoches, DrPH @cmd418 @katie5280 @patientchat T7 70 organizations share visit notes on patient portal.many more piloting.but we need to get to ALL #patientchat |
| CascadiaChat @CascadiaChat This! Meet people where they are, Use the tools they are familiar with. Determine their goals (not just adherence to your plan) #PatientChat https://t.co/mqNMcel78w |
| Annette McKinnon @anetto T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care #patientchat |
| HealthAdvocate @healthadvoc_ca T7: Teaching large segments of socieity requires an 'after school special' level of awareness to kick off patient awareness :) #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @cmd418: @katie5280 @patientchat T7 70 organizations share visit notes on patient portal.many more piloting.but we need to get to ALL #patientchat |
| Kimberly @FinallyFiled @Crohnoid What system ar you using? Love to hear more about it! #patientchat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
| Selina Brudnicki @sbrudnicki Agree and speaks to need for easier access for all patients. Saves both patient and admin time. #patientchat https://t.co/mqxgRmU9AS |
| kathy kastner @KathyKastner RT @myopennotes: @PatientCritical it's our sense that many patients don't even know notes exist, can you help us spread the word? #patientchat |
| Christina Lizaso @btrfly12 RT @anetto: T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care #patientchat |
| OpenNotes @myopennotes @anetto yes! we also think a lot of patients don't know about patient portals - it's part of our messaging, part of our work! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @fireflyrn84 Exactly. You become human to them, and they to you, has been my direct experience w/note sharing. #patientchat |
| Alan Brewington @abrewi3010 T7 start asking just out of curiosity, to learn the process. When you need something in future then it will be easier #patientchat |
| Christina Lizaso @btrfly12 RT @MightyCasey: @fireflyrn84 Exactly. You become human to them, and they to you, has been my direct experience w/note sharing. #patientchat |
 | Inspire @InspireIsHealth RT @FinallyFiled: Asking for information shows your providers you are an active participant in your care #advocate #patientchat |
| Inspire @InspireIsHealth RT @abrewi3010: @cmd418 If the system was horrible none of us would be on twitter complaining. It needs work for sure. Important to tell entire story #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Cait DesRoches, DrPH @cmd418 @sbrudnicki T7 new data shows you're right. its a time saver for HCP and pts. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T7: Make "nothing about me without me" your mantra. Also "whose life is it, anyway?" #patientchat |
 | Kat Kovalchik McDavitt @katmcdavitt RT @GraceCordovano: T7: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR information. #PatientChat |
| Kimberly @FinallyFiled @MightyCasey Love this! Can I quote you in a future blog? #patientchat |
| Annette McKinnon @anetto @fireflyrn84 @sbrudnicki Did that once. Cost $100+ and info I got was low quality, mostly a disappointment. (helped not to be in a crisis) #patientchat |
| Kimberly Amelia @fireflyrn84 T6: our records are the basis that everything goes from. If something is incorrect it can be lethal (ex: omitting allergy) #patientchat |
| Patient Critical Co-op @PatientCritical That's what @patientcritical is for: educating patients on rights, responsibilities, providing info & giving them a real voice #patientchat https://t.co/T3jJrRUEiM |
| Angela Cohen @angelee828 @FinallyFiled Awww, shucks. Thanks! 😃#patientchat |
| Christina Lizaso @btrfly12 CT: Staring at my "health bag", reminded not to wait until things are urgent, to start gathering notes/asking for access now. #patientchat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
 | Parijat - On 🧵s & 🐘 & 💙sky @ParijatDesh The little-known strategy to get the right #prenatal care w/o feeling pushed out the door #pregnancy #patientchat https://t.co/Hp8w8TnHBY https://t.co/zNY2uDpBLR |
| Selina Brudnicki @sbrudnicki Was it a scanned document that was hand-written? #patientchat https://t.co/DlieWoThtv |
| Alan Brewington @abrewi3010 CT remember our story is a collection of positive & negative. Human created problems have human designed solutions #patientchat |
| Kimberly @FinallyFiled Glad to hear from everyone who is empowering themselves in their HC journey. You are all inspirations! Thanks #patientchat |
 | kent @kent_pal2 If you chat about #patientchat Chat channel - free https://t.co/90lXzS2kKc |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba #patientchat https://t.co/PBGZfw6DZY |
| OpenNotes @myopennotes @btrfly12 maybe you can ask for them on paper until your health system gets started with #OpenNotes #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 CT Thinking about change is very different from developing a plan for change, implementing, being inclusive/aware of receiver. #patientchat |
| Kimberly Amelia @fireflyrn84 T7: if there is an inaccuracy in your record, it will follow you forever. There is no shame in bringing it up; it's a right #patientchat |
| Christina Lizaso @btrfly12 RT @fireflyrn84: T7: T7: if there is an inaccuracy in your record, it will follow you forever. There is no shame in bringing it up; it's a right #patientchat |
| CascadiaChat @CascadiaChat @rheumpatient @power4patients Here is how to get records corrected in NHS system https://t.co/jW6qxUb6St #patientchat https://t.co/RLwokAXrEn |
| Angela Cohen @angelee828 RT @PatientCritical: T7: T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& responsibility #patientchat |
 | Jeri Burtchell @FingoHead RT @anetto: T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care #patientchat |
| Kimberly @FinallyFiled @fireflyrn84 Beautifully stated #patientchat |
| Jeri Burtchell @FingoHead RT @Clara_Health: T1: T1: Providers should know everything about a patients history. They need to listen and slow down to gain #patients trust first. #patientchat |
| OpenNotes @myopennotes Thank you everyone, this was great! Please message us on Twitter or https://t.co/gAdITeGxGX with other Qs #patientchat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime. |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @GraceCordovano: T7: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR information. #PatientChat |
| Patient Chat @patientchat Thank you @myopennotes & @cmd418 for sharing your insights and working toward every patient gaining access their health records #patientchat |
 | I Love Dogs @_iheartdogs_ Dogs…Cheaper Than Therapy Grab it=> https://t.co/qVU8VyL0Be #dogtanktop #dogtshirt #dogsweatshirts #dogvneck #dogmug #patientchat https://t.co/2i7e1O7ZZm |
| Kimberly @FinallyFiled @patientchat @power4patients Thank YOU for another fabulous Friday chat. Love these #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. |
| Selina Brudnicki @sbrudnicki CT: Patient access to notes requires respectful relationship betw patients & providers to make it meaningful & collaborative #patientchat https://t.co/jp3xjTrrFd |
| OpenNotes @myopennotes @patientchat @cmd418 thank you for organizing! #patientchat |
| Cait DesRoches, DrPH @cmd418 @patientchat you're welcome! please reach out with any unanswered questions. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @FinallyFiled Sure. Everything I say here is open access. I walk my "open data" talk =) #patientchat |
| Patient Critical Co-op @PatientCritical CT: We all need to push co-design of better EHR/public education to create patients literate in use of well-built EHR's in care #patientchat |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, September 8 at 1pmET https://t.co/ASykeLdQBH |
| OpenNotes @myopennotes @PatientCritical it can only get better #patientsincluded #patientchat |
| kent @kent_pal2 If you chat on the theme " #patientchat " Free chat channel https://t.co/90lXzS2kKc |
| Selina Brudnicki @sbrudnicki Thanks @patientchat and @myopennotes for hosting! #patientchat https://t.co/jp3xjTrrFd |
| Patient Critical Co-op @PatientCritical Thanks for hosting a great #patientchat, @patientchat! Talks like this open the door to faster, better change in #healthare. https://t.co/8lDfXdHrxz |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| CascadiaChat @CascadiaChat Wow what a fast, engaging, actually fun #patientchat - always grateful when I learn, have to think and get to share - a model for health. https://t.co/XuKsYCJRn4 |
| Christina Lizaso @btrfly12 RT @PatientCritical: CT: CT: We all need to push co-design of better EHR/public education to create patients literate in use of well-built EHR's in care #patientchat |
| Jeri Burtchell @FingoHead Inaccuracies can be life-threatening. One of my patient portals had incorrect drug allergies listed. #patientchat https://t.co/3gvARGvQ7N |
| Kimberly Amelia @fireflyrn84 CT: we all need to remember that our records should be utilized to benefit us. Great chat everyone !!#patientchat |
 | Quoth the Pigeon @quoththepigeon The vanity of shining in conversation is usually subversive of its own desires. #patientchat |
 | Vamp Kris @vamp_kris2102 GMC Terrain FWD 4dr SLE 1 (2012) #GMC https://t.co/dwjX8xJFIM 2012 GMC Terrain FWD 4dr SLE 1 80604 Miles Carbon #patientchat https://t.co/9odXYKt7l3 |
| Christina Lizaso @btrfly12 RT @FingoHead: Inaccuracies can be life-threatening. One of my patient portals had incorrect drug allergies listed. #patientchat https://t.co/3gvARGvQ7N |
| Kimberly Amelia @fireflyrn84 @richardzhao @gratefull080504 @patientchat I know only a select few providers of mine have blue button; it would be awesome if they all did #patientchat |
| kent @kent_pal2 Let's chat with the theme of #patientchat Chat channel [free] https://t.co/90lXzS2kKc |
| Kimberly Amelia @fireflyrn84 @myopennotes I did the implementation as well. Was the nurse lead for training all nurses and ancillary staff. #patientchat |
| kent @kent_pal2 If you talk about " #patientchat " Anonymous chat channel (free) https://t.co/90lXzS2kKc |
| Patient Chat @patientchat @angelee828 @PatientCritical Glad you could join today's #patientchat! Hope to see you at the next one on Sept. 8th https://t.co/5TjNi8OGL4 |
| Patient Chat @patientchat @ingevdln Thank you for joining today's #patientchat! Hope to see you at the next one on Sept. 8th https://t.co/5TjNi8OGL4 #patientchat |
| Patient Chat @patientchat @GraceCordovano Thank you for your amazing insights during today's #patientchat Hope you can join the next one 9/8 https://t.co/5TjNi8OGL4 |
| kent @kent_pal2 Talk of " #patientchat " on free chat Chat channel https://t.co/90lXzS2kKc |
#patientchat content from Twitter.