#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Breakthrough Crew @brkthrough_crew
Excited to join today's #patientchat to connect with the amazing #advocates around the globe! #patientshavepower
Patient Chat @patientchat
Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Critical Co-op @PatientCritical
Looking forward! https://t.co/UtyheALAP2
Enlightening Results @GraceCordovano
Happy to be spending this Friday with #patientchat!
Christina Lizaso @btrfly12
RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat w/ @myopennotes here: https://t.co/LKzdk5ucwx
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Patient Chat @patientchat
ICYMI: Read about @power4patients new role hosting Empowered #patientchat https://t.co/J2OUBUasbn
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
Guest @myopennotes is committed to making healthcare more transparent by urging HCPs to share their visit notes with patients #patientchat
Clara @Clara_Health
Love #patientchat for keeping patient voices in the spotlight when it comes to healthcare! Let's talk!
myUHN Patient Portal @myuhnportal
RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/UENH6hX6z9
Patient Chat @patientchat
You can find out more about OpenNotes @myopennotes and their work at https://t.co/RRuxk6UySh #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
ingevdln @ingevdln
Some #tips on #participating in #twitterchats https://t.co/nWGvPdw6sa
Christina Lizaso @btrfly12
Hello all. Love spending time w/ those passionate about patient empowerment at all levels. :) #patientchat
Patient Chat @patientchat
We are so thankful to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where it is today
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Alan Brewington @abrewi3010
Alan here from smokey and hot boise Idaho. #patientchat
Alan Brewington @abrewi3010
RT @patientchat: We are so thankful to @darlakbrown and @btrfly12 for building and bringing the #patientchat community to where it is today
Patient Empowerment @power4patients
Happy Friday everyone! Excited to be chatting along today #patientchat
Enlightening Results @GraceCordovano
@patientchat @power4patients Been looking forward to today's topic! #patientchat
Kimberly Amelia @fireflyrn84
Hi it's Kim from WI. Autonomic dysfunction advocate, #RareDisease RN, full time patient, #patientchat
Patient Chat @patientchat
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history #patientchat
Katie @katie5280
@patientchat Hi! I’m Katie, a 7 yr breast cancer survivor and t2 diabetic. Newly appointed to @LivingBeyondBC Young Advocate Program! #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/iUIZmqVYfv #patientchat
Selina Brudnicki @sbrudnicki
I'm Selina & I help patients access health records and notes. Ironically, I can't access my own due to silos so may just lurk. #patientchat
Patient Critical Co-op @PatientCritical
Hello I'm PJ Mierau, Managing Director of https://t.co/HP5Vm5xQby, Canada's first not-for-profit member-patient co-op. #patientchat
Christina Lizaso @btrfly12
RT @sbrudnicki: I'm Selina & I help patients access health records and notes. Ironically, I can't access my own due to silos so may just lu…
Patient Chat @patientchat
Today's #patientchat topic is is health records and how they can be used to take charge of your care
ElizabethKelly, Ph.D @Elizabe85727641
Hello everyone, Liz Kelly, patient & patient advocate, reflecting on how to #dev/#implement HC #change 2 include #aware pt. #patientchat
Kimberly Amelia @fireflyrn84
I also helped build an EMR for one of the hospitals I worked at. We were converting from paper to electronic #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat
Christina Lizaso @btrfly12
RT @patientchat: Today's #patientchat topic is is health records and how they can be used to take charge of your care
Breakthrough Crew @brkthrough_crew
Hello! Breakthrough Crew here passionate about connecting patients with other advocates and making voices heard in #research! #patientchat
Annette McKinnon @anetto
Annette here in Toronto. Have access to my hospital health records, not family Dr. #patientchat
Alan Brewington @abrewi3010
RT @patientchat: I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful…
Patient Chat @patientchat
Time to start our topics. Here comes T1: https://t.co/LKzdk5ucwx #patientchat
Patient Chat @patientchat
T1: What do you want your health care team to know about you and your health information? #patientchat
Enlightening Results @GraceCordovano
Hi everyone! Grace joining from NJ. I'm a private #cancer patient advocate that deals with barriers to access daily #patientchat
OpenNotes @myopennotes
@fireflyrn84 Thanks Kimberly, here is the implementation toolkit, when your system is ready! https://t.co/Mq0JxGl3BI #patientchat
Clara @Clara_Health
Clara Health is proud to help patients share their stories and advocate for access to care! Glad to be here. #patientchat
Patient Empowerment @power4patients
T1: Everything! I think the more they know the better the team can plan the care that's right for me. #patientchat
Katie @katie5280
@patientchat T1: Health history & current meds would be most important. #patientchat
Alan Brewington @abrewi3010
T1 I work damn hard to be in this much pain, the data is mine. #patientchat
Health Advocate @healthadvoc_ca
Hi all, my GP has, upon request, printed information for myself or my team. As majority of Canada I have no digital file access #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
Hi guys. I'm Shereese here in Maryland. #patientchat https://t.co/10b7M3jF6F
Enlightening Results @GraceCordovano
T1: To make informed decisions about my care, I need my 🎯 doctor’s expertise 🎯 ?'s answered 🎯 life & values included #PatientChat #hcldr https://t.co/vMM2rqtvf4
Annette McKinnon @anetto
T1 The care team should realize that having the information is a strong motivator for me. Once I see it I want to know meaning #patientchat
Kimberly Amelia @fireflyrn84
T1: it's my story, it's private, and I want access to everything a healthcare provider can see #patientchat
OpenNotes @myopennotes
T1: Our findings say pts want to communicate better & more collaboratively w/ docs. Be part of the decision-making process #patientchat
Kimberly Dahline @finallyfiled
Hello fellow advocates. Kimberly here. Happy Friday #patientchat
Enlightening Results @GraceCordovano
T1: Doctors, ask "What are your goals for this appt today?” Welcome #patients' questions, clarify to ensure CLARITY. #PatientChat
Christina Lizaso @btrfly12
RT @patientchat: T1: What do you want your health care team to know about you and your health information? #patientchat
Selina Brudnicki @sbrudnicki
T1: Care team spans family practice & acute care. To make informed decisions, all need to know complete fam & medical history #patientchat https://t.co/LkSDUsc9GR
Kevin J. Fowler @gratefull080504
T1: I want my team + myself to have access to all of my information so that I have optimal quality of life + outcomes #patietnchat https://t.co/H2nIcP9wWT
Enlightening Results @GraceCordovano
T1: I am an expert in my diagnosis. You know the intricacies of the disease; I know the intricacies of daily life w/disease. #PatientChat https://t.co/iu7imBfA9m
Annette McKinnon @anetto
T1 No one has more interest in my records than I do - I'm the solid ground anchoring the records. Without me, not significant #patientchat
Patient Critical Co-op @PatientCritical
T1: I want team to have full access-w/my approval for unrelated specialties-& other prov's HCP's to have access if/when I move #patientchat
Alan Brewington @abrewi3010
T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat
Kimberly Dahline @finallyfiled
I want my physicians to know everything but it takes personal coordination and effort to make sure information is being shared #patientchat
Mighty Casey Quinlan @MightyCasey
T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em. #patientchat
ingevdln @ingevdln
Hello all, Inge from Belgium #IBD #colitis patient #patientchat
Christina Lizaso @btrfly12
RT @GraceCordovano: T1: Doctors, ask "What are your goals for this appt today?” Welcome #patients' questions, clarify to ensure CLARITY. #P
ShereeseM, MS/MBA @ShereesePubHlth
T1 Actionable data that will help design a preventive health plan and a good foundation for communication about health goals #patientchat
Clara @Clara_Health
T1: Providers should know everything about a patients history. They need to listen and slow down to gain #patients trust first. #patientchat
Christina Lizaso @btrfly12
RT @anetto: T1 No one has more interest in my records than I do - I'm the solid ground anchoring the records. Without me, not significant #…
Christina Lizaso @btrfly12
RT @abrewi3010: T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat
CascadiaChat @CascadiaChat
So I don’t flood my regular @Cascadia followers switching to a backup chat account for #patientchat
OpenNotes @myopennotes
T1: these are great comments! Who here has access to their notes? #patientchat
Alan Brewington @abrewi3010
RT @MightyCasey: T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em.…
Christina Lizaso @btrfly12
RT @ShereesePubHlth: T1 Actionable data that will help design a preventive health plan and a good foundation for communication about health…
Enlightening Results @GraceCordovano
It seems to be unanimous: #patients are not sitting down and keeping quiet a moment longer. Drs, welcome them to the table! #patientchat https://t.co/S2NKRAjS1Y
Patient Chat @patientchat
Topic 2 (T2:) coming up... #patientchat
Breakthrough Crew @brkthrough_crew
T1: Patients often have such windy journeys that it is challenging to share it all in one appointment. Organization can help! #patientchat
Annette McKinnon @anetto
T1 With chronic illness, people need a team. Yet the MDs and allied professionals don't communicate well. That should change #patientchat
Patient Chat @patientchat
T2: For those who are able to read their visit notes, what are the benefits? #patientchat
Enlightening Results @GraceCordovano
@MightyCasey It's incredible, without the #patient, there would be no record....#patientchat
Patient Critical Co-op @PatientCritical
T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'shp w/HCP's #patientchat
Clara @Clara_Health
RT @FinallyFiled: I want my physicians to know everything but it takes personal coordination and effort to make sure information is being s…
OpenNotes @myopennotes
@anetto agreed. With the patient at the center feeling more in control! #OpenNotes #patientchat
Patient Empowerment @power4patients
T2: Patients will be able to manage, understand, and be more engaged in their care if they can view HCPs visit notes #patientchat
Enlightening Results @GraceCordovano
RT @MightyCasey: T1: *I* want all access, and all access-granting, privileges to ALL of my health records data. They know what I tell 'em.…
ElizabethKelly, Ph.D @Elizabe85727641
T1 How well does HC listen to pt? Provider expects to find a disease >trt, what if pt.'s culture not familiar wth disease? #patientchat
Nigel H @Crohnoid
Hi. I'm Nigel in the UK. Long term patient. Sorry I'm late. I'm hoping to learn from how you do EHR (or don't) in the US #patientchat
Alan Brewington @abrewi3010
T1 chronic and acute data are 2 different sets, understanding the difference is key for patient satisfaction #patientchat
Breakthrough Crew @brkthrough_crew
YES! You are the expert on your own health! https://t.co/KEn8BHZ2km
OpenNotes @myopennotes
@PatientCritical We agree! check out this paper to read more about what patients value about notes https://t.co/uEtk0eMLDV #patientchat
Carol McCullough @Imonlyslightly
T1 That sharing medical records can help improve care through greater cooperation, coordination, reducing poss. of error. #patientchat
Annette McKinnon @anetto
@Crohnoid Hi Nigel, some of us in Canada too. Slowly gaining access but not at GP level #patientchat
Breakthrough Crew @brkthrough_crew
Having the support of caregivers can help the patients voice shine through! #patientchat https://t.co/fd06frotSZ
Kimberly Dahline @finallyfiled
Hate it when they say you can go online for results. I want to see what THEY are writing. @power4patients #patientchat
ingevdln @ingevdln
T1: meds history and health history, my point of view on my health and disease, my personality #patientchat
CascadiaChat @CascadiaChat
T1 #patientchat * That I am a full member of my own care team * I need the same access to info they have * the basic #SDOH in my life https://t.co/zWIaIEHDjY
Katie @katie5280
@patientchat T2: To ensure that the correct “things” are noted about the visit (meaning correct conditions, body parts, etc…) #patientchat
Patient Critical Co-op @PatientCritical
T1: A psych may not need to know all phsyical care; insurance Dr may not need access to psych. Put patient in sharing control #patientchat https://t.co/pLySj2CmtO
Mighty Casey Quinlan @MightyCasey
T1: I want admission from medical-industrial complex that poly-portalitis syndrome is a thing (and an EPIDEMIC at this point) #patientchat
Nigel H @Crohnoid
@anetto Whoops! Hope I can learn from your system as well #patientchat
Kimberly Dahline @finallyfiled
@katie5280 @patientchat right? #patientchat
Selina Brudnicki @sbrudnicki
T1: Absolutely. Caregivers and support systems are an important part as well. #patientchat https://t.co/7GRtSwwLJg
Alan Brewington @abrewi3010
T2 verification and validation that my team and I are on the same wave. #patientchat
Clara @Clara_Health
T2: Reading visit notes allows patients an opportunity to see any flaws in communication that could lead to flaws in treatment. #patientchat
Christina Lizaso @btrfly12
RT @brkthrough_crew: T1: Patients often have such windy journeys that it is challenging to share it all in one appointment. Organization ca…
Christina Lizaso @btrfly12
RT @PatientCritical: T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'sh…
🦎 Sakinah🦎 @TheMuslimHippie
RT @brkthrough_crew: Having the support of caregivers can help the patients voice shine through! #patientchat https://t.co/fd06frotSZ
ShereeseM, MS/MBA @ShereesePubHlth
T 2 Clarification of the narrative! #patientchat
Enlightening Results @GraceCordovano
T2: Benefits include: •Instant recap of appt •Defines next steps •Opportunity to check accuracy •Medication instructions (#PatientChat)
Mighty Casey Quinlan @MightyCasey
T2: CORRECTING MISTAKES/MIS-STATEMENTS. There's STILL an error in my breast cancer records that skews pop-health data. Dammit. #patientchat
Enlightening Results @GraceCordovano
RT @MightyCasey: T1: I want admission from medical-industrial complex that poly-portalitis syndrome is a thing (and an EPIDEMIC at this poi…
Christina Lizaso @btrfly12
RT @abrewi3010: T1 chronic and acute data are 2 different sets, understanding the difference is key for patient satisfaction #patientchat
Breakthrough Crew @brkthrough_crew
T2: Often visits are so short that it feels like a whirlwind. Reading visit notes helps to keep new information straight. #patientchat
OpenNotes @myopennotes
@brkthrough_crew that's right, caregivers can benefit too from having access to loved ones' notes https://t.co/liBoWU7U5l #patientchat
Mighty Casey Quinlan @MightyCasey
T2: Coordination of care plan. Participation in decision making. Sense of agency/ownership in outcome. #rightcare #s4pm #patientchat
Kimberly Amelia @fireflyrn84
I have access to my notes in one portal #PatientChat https://t.co/IxmlELBUVr
Cait DesRoches @cmd418
@katie5280 @patientchat Yes! we have piloted a safety reporting tool. Patients help make their own care safer reading notes. #patientchat
Christina Lizaso @btrfly12
RT @FinallyFiled: Hate it when they say you can go online for results. I want to see what THEY are writing. @power4patients #patientchat
Enlightening Results @GraceCordovano
T2: Access to office notes allows for sharing w/care partners. Prevents things being lost/misconstrued in translation. #PatientChat
Kimberly Dahline @finallyfiled
@MightyCasey And it's so hard to get those diagnosises (sp?) off your records. They are ere somewhere indelibly #patientchat
Rheumatoid Patient @rheumpatient
RT @anetto: T1 With chronic illness, people need a team. Yet the MDs and allied professionals don't communicate well. That should change #p
kathy kastner @KathyKastner
RT @anetto: T1 The care team should realize that having the information is a strong motivator for me. Once I see it I want to know meaning…
Nigel H @Crohnoid
T1 As a matter of course all follow-up letters from appointments are sent to me so I can see what consultant is telling my GP #patientchat
Kevin J. Fowler @gratefull080504
T2: check for accuracy +make corrections Ensure you + team are aligned on care plan #patientchat https://t.co/FdbfUxAkhO
Enlightening Results @GraceCordovano
T2: Access to office notes provides an opportunity for pt self-education, empowerment, adoption of leadership vs backseat role. #PatientChat
ingevdln @ingevdln
@abrewi3010 Agree on that! #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T2 Benefits relate to healthy literacy level, access to care, risk/benefit ratio of provider, + SDoH. #patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: T2 verification and validation that my team and I are on the same wave. #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up.. #patientchat
Selina Brudnicki @sbrudnicki
T2: Reading visit notes would help me remember what was said, and ensure that that we have the same shared understanding #patientchat https://t.co/7mLbySpJjy
Cait DesRoches @cmd418
@brkthrough_crew yep! T2. It's impossible to remember everything you hear during a visit. notes can help you remember #patientchat
Alan Brewington @abrewi3010
T1 prevent mistakes and misunderstandings of my patient story #patientchat
OpenNotes @myopennotes
T2: Our most recent study summarizes what pts told us they like about open notes https://t.co/uEtk0eMLDV #patientchat
Kimberly Dahline @finallyfiled
Have any of you just logged into other care provider portals at your physician's to share information versus paper? #organize #patientchat
Rheumatoid Patient @rheumpatient
RT @power4patients: T2: Patients will be able to manage, understand, and be more engaged in their care if they can view HCPs visit notes #p
Carol McCullough @Imonlyslightly
T2 I can access some of my results.Can help patients understand them. It's also useful when you may need to watch certain diets #patientchat
Kimberly Amelia @fireflyrn84
T2: you know the exact thoughts of a doctor and also learn things that weren't mentioned in the appt. #patientchat
kathy kastner @KathyKastner
RT @abrewi3010: T1 data doesn't equal QOL. My story is my QOL of which data is a critical part of #patientchat
Patient Chat @patientchat
T3: How does access to notes help you actively share in your healthcare decision making? #patientchat
ingevdln @ingevdln
@sbrudnicki Agree #patientchat
kathy kastner @KathyKastner
RT @brkthrough_crew: T1: Patients often have such windy journeys that it is challenging to share it all in one appointment. Organization ca…
ShereeseM, MS/MBA @ShereesePubHlth
RT @patientchat: Topic 3 (T3:) coming up.. #patientchat
Kevin J. Fowler @gratefull080504
I do not How do I gain access? #patientchat https://t.co/z1JF8VKDAY
Kim McLeod @grandmakim
RT @PatientCritical: T1: I want my team to know I value co-developining #healthcare, shared-decision making in care plans, authentic rel'sh…
Cait DesRoches @cmd418
@abrewi3010 @myopennotes T1 we hope #opennotes will help bring the patient story back to medicine. #patientchat
Health Advocate @healthadvoc_ca
@richardzhao There isn't a robust or popular public option for rate/reviewing HCP's, though it remains a topic of interest/concern for many #patientchat
Nigel H @Crohnoid
T2 Especially important when you have multiple conditions and need to make sure each consultant is co-ordinated with the others #patientchat
Christina Lizaso @btrfly12
RT @myopennotes: T2: Our most recent study summarizes what pts told us they like about open notes https://t.co/uEtk0eMLDV #patientchat
Kimberly Dahline @finallyfiled
@Imonlyslightly I like how now there is information on what the results mean (scale) #information #patientchat
Carol McCullough @Imonlyslightly
RT @GraceCordovano: T2: Benefits include: •Instant recap of appt •Defines next steps •Opportunity to check accuracy •Medication instruc…
Rachel Basso @rachelbasso
T2: My visit notes once said I received a surgery that I still needed to schedule! It was a huge argument to prove the truth. #patientchat
Annette McKinnon @anetto
T2 It's a benefit to know what the Dr 'really' says. Asked about my discharge notes was told"I didn't write them for you" #patientchat
Enlightening Results @GraceCordovano
@myopennotes Yes! Loving all my notes and records here with me...but wish they were all nicely in one spot on my ipad #dreambig #patientchat
Clara @Clara_Health
RT @GraceCordovano: T2: Benefits include: •Instant recap of appt •Defines next steps •Opportunity to check accuracy •Medication instruc…
Patient Empowerment @power4patients
@FinallyFiled Yes! I actually find myself doing this a lot #patientchat
Kevin J. Fowler @gratefull080504
@patientchat : How do we gain access to the notes? #patientchat https://t.co/yPymDIwjhi
Carol McCullough @Imonlyslightly
RT @CascadiaChat: T1 #patientchat * That I am a full member of my own care team * I need the same access to info they have * the b…
OpenNotes @myopennotes
Thanks @gratefull080504 - start here: https://t.co/8yESttIP0O let us know if you need help! #patientchat
Cait DesRoches @cmd418
@GraceCordovano @myopennotes T3 - That might be coming sooner than you think! We'd love to hear more from you. #patientchat
Mighty Casey Quinlan @MightyCasey
General observation: as long as EHR companies are allowed to compete, and avoid #interop, we'll be stuck on stupid. #gmdd #s4pm #patientchat
Patient Empowerment @power4patients
T3 W/access to notes I would remember what was said and suggested during an appt allowing me to participate in decision making #patientchat
Clara @Clara_Health
RT @GraceCordovano: T2: Access to office notes allows for sharing w/care partners. Prevents things being lost/misconstrued in translation.…
Kimberly Dahline @finallyfiled
@Crohnoid YES! so important to have a system to ensure that happens. Be the squeaky wheel. #finallyfiled #advocate #patientchat
Alan Brewington @abrewi3010
RT @cmd418: @abrewi3010 @myopennotes T1 we hope #opennotes will help bring the patient story back to medicine. #patientchat
Enlightening Results @GraceCordovano
T3: Multiple pts may have same diagnosis; no 2 pts are the same. Proactively using office notes can be the differentiator #PatientChat https://t.co/AuULuVZT5T
ingevdln @ingevdln
@anetto 😱OMG! #patientchat
Christina Lizaso @btrfly12
RT @power4patients: T3 W/access to notes I would remember what was said and suggested during an appt allowing me to participate in decision…
Cait DesRoches @cmd418
@MightyCasey right on! can patients be the inter-operable agent?? #patientchat
Nigel H @Crohnoid
T1 In UK we have right to access all our medical records either to view or to have printouts on payment of a fee #patientchat
kathy kastner @KathyKastner
RT @anetto: T2 It's a benefit to know what the Dr 'really' says. Asked about my discharge notes was told"I didn't write them for you" #pati
Great North Care @greatnorthcare
RT @Imonlyslightly: T1 That sharing medical records can help improve care through greater cooperation, coordination, reducing poss. of err…
Patient Critical Co-op @PatientCritical
T2: lack of access to EHR/online notes means faxes, followups dependent on patient being vigilant, paying/waiting for records #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
There's truth 2 "write it down, make it happen" When pts have access, they can collaboratively work w/ HCPs to improve health #patientchat https://t.co/0iNXv7M6NH
Alan Brewington @abrewi3010
T3 it helps me build my health literacy which is a constant learning and doing process. #patientchat
Clara @Clara_Health
T3: We believe in the power of knowledge above all. Access to notes gives patients more power to self advocate! #patientchat #educate
Cait DesRoches @cmd418
@Crohnoid t1 we have that in the US too, but it's not easy to get the records. #patientchat
OpenNotes @myopennotes
@FinallyFiled @Crohnoid yes! Start here: https://t.co/8yESttIP0O and connect with us! #patientchat
Patient Empowerment @power4patients
T3: Check out @JBBC’s advice on how to get the most out of your doctor’s visit https://t.co/48vQoE4GUA #patientchat
Enlightening Results @GraceCordovano
@cmd418 @myopennotes anxiouslessly awaiting #patientchat
kathy kastner @KathyKastner
RT @abrewi3010: T3 it helps me build my health literacy which is a constant learning and doing process. #patientchat
Mighty Casey Quinlan @MightyCasey
WE. ARE. ALREADY. >>> RT @cmd418: @MightyCasey right on! can patients be the inter-operable agent?? #patientchat #walkingmedicalrecord
Kimberly Dahline @finallyfiled
@cmd418 @Crohnoid @PatientCritical Vigilant. I like it #patientchat
Rheumatoid Patient @rheumpatient
@Crohnoid Same here but it's not always accurate IMO. How do you go about correcting that? #patientchat
Enlightening Results @GraceCordovano
T3: Understanding the intricacies within office notes helps patients knowledgeably file disability claims. #PatientChat
Kimberly Amelia @fireflyrn84
T3: I know if we're on the same page; it ensures continuity of care between disciplines #patientchat
Kevin J. Fowler @gratefull080504
T3: I will ask the question again @myopennotes: How do we gain access to our notes? #patientchat
Kimberly Dahline @finallyfiled
RT @rheumpatient: @Crohnoid Same here but it's not always accurate IMO. How do you go about correcting that? #patientchat
Cait DesRoches @cmd418
@MightyCasey @cmd418 How can we make that job easier? #patientchat
Rheumatoid Patient @rheumpatient
RT @gratefull080504: T2: check for accuracy +make corrections Ensure you + team are aligned on care plan #patientchat https://t.co/FdbfUxA…
Angela Cohen @angelee828
RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Carol McCullough @Imonlyslightly
@FinallyFiled There are links to info on results on PatientView. So it's possible. #patientchat
Selina Brudnicki @sbrudnicki
T3: Remembering visit is a start. Discussing options, risks, & documenting for all would help in active decision-making #patientchat https://t.co/fuWwkPXLva
Enlightening Results @GraceCordovano
Do you have access to your office notes? #patientchat https://t.co/gtHei9JoTO
Mighty Casey Quinlan @MightyCasey
@gratefull080504 @patientchat By saying "print out your note for me" while still in exam room. #gmdd #patientchat
Alan Brewington @abrewi3010
T3 there is to much waiting as a chronic patient, this gives me something constructive to engage in #patientchat
Carol McCullough @Imonlyslightly
RT @abrewi3010: T3 it helps me build my health literacy which is a constant learning and doing process. #patientchat
Kimberly Dahline @finallyfiled
You need to be the "axis" and "access" point (my original mantra) #finallyfiled #advocate #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@gratefull080504 @myopennotes The first line of defense is to simply ask. After that, make a formal request. #patientchat
Angela Cohen @angelee828
@patientchat Hi, I'm Angela diagnosed with Crohn's since 2010. Sorry I'm late! #PatientChat
Breakthrough Crew @brkthrough_crew
T3: Patients and poviders are only part of the care team that provides well rounded care. Access to notes loop in others. #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up... #patientchat
OpenNotes @myopennotes
Thanks @gratefull080504 start here: https://t.co/8yESttIP0O let us know if we can help! #patientchat
Katie @katie5280
@patientchat T3: Not everything is communicated to you, so this is a way to ask questions about things you see that you may not understand. #patientchat
Christina Lizaso @btrfly12
RT @FinallyFiled: You need to be the "axis" and "access" point (my original mantra) #finallyfiled #advocate #patientchat
Mighty Casey Quinlan @MightyCasey
@cmd418 1/ Cut patients in on $$$ minted by EHR companies + health systems selling our data to commercial interests. #patientchat
Kimberly Dahline @finallyfiled
The struggle is to keep everything in motion WHILE you are ill, medicated, sleep deprived and in pain #patientchat
Breakthrough Crew @brkthrough_crew
RT @FinallyFiled: You need to be the "axis" and "access" point (my original mantra) #finallyfiled #advocate #patientchat
Patient Chat @patientchat
@angelee828 glad you could join in! #patientchat
Kevin J. Fowler @gratefull080504
Thanks @MightyCasey but isn't there a more comprehensive approach than one visit I would like a continuum #patietnchat https://t.co/h0NAb9Ftz9
Richard Harris @doobarz
Hi everyone, Richard here, dx Ulcerative colitis, now permanent ileostomy #patientchat
OpenNotes @myopennotes
T3: Our findings suggest it helps prepare better for the visit, ask better Qs & feel confident your input matters! #patientchat
Cait DesRoches @cmd418
@brkthrough_crew T3 Yes, including care partners. #patientchat
Christina Lizaso @btrfly12
RT @FinallyFiled: The struggle is to keep everything in motion WHILE you are ill, medicated, sleep deprived and in pain #patientchat
Patient Chat @patientchat
T4: Do you ever find information in your notes that you find confusing or worrisome? What do you do about that? #patientchat
Enlightening Results @GraceCordovano
Dear all EHR companies and new developers: Please stop the insanity! #PatientChat #Interoperability #PtExp https://t.co/YlwSBzOt72
Health Advocate @healthadvoc_ca
T3: EG: If a parent lives remotely, access to EHR's can facilitate caregiving and the health of the parent #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T4: Do you ever find information in your notes that you find confusing or worrisome? What do you do about that? #patientch
Kimberly Dahline @finallyfiled
@myopennotes At the beginning of your apt, ask for time at the end to ensure you understand Everything #advocate #patientchat
Mighty Casey Quinlan @MightyCasey
@cmd418 2/ That's the dark underbelly of this, $$$ minted off our data in EHRs. Patients get no share, "consent" buried in TOS. #patientchat
Clara @Clara_Health
We are LOVING this mantra from a passionate #patientadvocate! https://t.co/JwjoMjmzaf
Kevin J. Fowler @gratefull080504
@ShereesePubHlth : I appreciate your response but looking for a continuum #patientchat https://t.co/hJAroap7mO
Annette McKinnon @anetto
T3 Patients do better if they understand HCPs in real time, not 6 mos later at next appointment after research. Learning tool #patientchat
OpenNotes @myopennotes
@healthadvoc_ca absolutely, sharing with caregivers helps everyone on the team! #patientchat
Enlightening Results @GraceCordovano
T4: Confusing: ‘Medicalese’ above patient health literacy levels. #patientchat
ingevdln @ingevdln
RT @MightyCasey: General observation: as long as EHR companies are allowed to compete, and avoid #interop, we'll be stuck on stupid. #gmdd
ShereeseM, MS/MBA @ShereesePubHlth
Opinions please; if you have open communication w/ your HCP, do you really need to view the note? #patientchat https://t.co/s0LLZcfL1l
Kevin J. Fowler @gratefull080504
@myopennotes: What do you hope to learn from this chat? What are your objectives? #patientchat
Kimberly Dahline @finallyfiled
@anetto laughing, not laughing #patientchat
Mighty Casey Quinlan @MightyCasey
@cmd418 3/ Demand access, AND CUT, on that. Hell, AMZN or SBUX credits would work to start. Grab 'em by wallet, hearts/minds folo. #patientchat
OpenNotes @myopennotes
T4: Note reading may not be right for everyone. This and more Qs are answered in our FAQs for patients: https://t.co/NjxcnS1m1j #patientchat
Enlightening Results @GraceCordovano
T4: Worrisome: Incorrect medications listed, not all symptoms/side-effects captured, missing medical history/allergies #patientchat
Richard Zhao @richardzhao
@gratefull080504 @patientchat Will Blue bottom provide all the notes? #patientchat
Alan Brewington @abrewi3010
T4 I start with Dr Google. My guess is someone has probably already had the same issue as me #patientchat
Clara @Clara_Health
We are LOVING this mantra from a passionate #advocate! #patientchat https://t.co/JwjoMjmzaf
Kevin J. Fowler @gratefull080504
@patientchat @myopennotes : What do hope to achieve from today's chat ? #patientchat
Patient Critical Co-op @PatientCritical
T3: Patients responsible for their health, access & advocacy as much as HCP. We need to ask for records AND educate ourselves #patientchat
Kimberly Dahline @finallyfiled
@ShereesePubHlth I think it's a personal decision, but I always like to know what's being written about #patientchat
Clara @Clara_Health
RT @brkthrough_crew: T1: Patients often have such windy journeys that it is challenging to share it all in one appointment. Organization ca…
Kimberly Amelia @fireflyrn84
@gratefull080504 @myopennotes You can submit a release of information form to gain access to your records. Some EMRs have the notes available as a standard. #patientchat
Cait DesRoches @cmd418
@ShereesePubHlth we think so.It's impossible to remember everything HCP says during visit. Reading notes helps. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@gratefull080504 I was actually leading up to something. Q: Do we need access to the notes if we've established a good/honest rel. w/ the Dr.? #patientchat
Carol McCullough @Imonlyslightly
T3 Sense of ownership. Being reminded of what we are told in clinic. Self-management. Decreasing risk of miscommunication #patientchat
Mighty Casey Quinlan @MightyCasey
@gratefull080504 Talk up @myopennotes on a freakin' loop, everywhere, all points of care. THAT'S how we get notes *and* continuum. #patientchat #gmdd
Rheumatoid Patient @rheumpatient
RT @GraceCordovano: T4: Worrisome: Incorrect medications listed, not all symptoms/side-effects captured, missing medical history/allergies…
Annette McKinnon @anetto
T4 When I don't know I ask. But professionals should learn to use fewer acronyms. Not common language to say NWB, POD1 etc #patientchat
Christina Lizaso @btrfly12
RT @PatientCritical: T3: Patients responsible for their health, access & advocacy as much as HCP. We need to ask for records AND educate ou…
Kevin J. Fowler @gratefull080504
@richardzhao @patientchat thank you Richard #patientchat
Kimberly Dahline @finallyfiled
@Clara_Health Thanks. More to come on that so stay tuned. #patientchat
Health Advocate @healthadvoc_ca
T4: YES. Wrong dates, wrong body parts, wrong meds. Notes written in scrawl other HCP's can't read. The list goes on. #patientchat
Clara @Clara_Health
T4: That is why it takes a team. Talk to other patients, get a second opinion, do your own research! #patientchat
OpenNotes @myopennotes
@gratefull080504 @patientchat Our big goal is to reach more patients so they'll ask for their notes and benefit from reading #patientchat
Kimberly Dahline @finallyfiled
@healthadvoc_ca Truth! #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T3 Wth nursing educ, data base provides base 2 understand trt choices, read/compare literature solutions 4 other trtmt choices #PatientChat
Kevin J. Fowler @gratefull080504
Well said! #patientchat https://t.co/oJAzUi66NB
Kimberly Dahline @finallyfiled
It #patientchat
Enlightening Results @GraceCordovano
@ShereesePubHlth @gratefull080504 Absolutely! Good, honest doctors still can make mistakes in notes or not be on the same page as the patient. #patientchat
Selina Brudnicki @sbrudnicki
T4: I 'peaked' at my own record while GP left the room. Use of simpler language and my own access would be helpful. #patientchat https://t.co/x6ND6U7kLQ
Mighty Casey Quinlan @MightyCasey
T3: Hello, Capt. Obvious. Seeing notes allows for fuller discussion, deeper understanding, more effective partnership. #s4pm #patientchat
Kimberly Dahline @finallyfiled
It's hard to remember that WE are in the power position! #advocate #health #patientchat
Kimberly Amelia @fireflyrn84
The ultimate goal was to have all patient portals be able to 'talk' to each other. Our records would be accessible everywhere #patientchat
Breakthrough Crew @brkthrough_crew
RT @PatientCritical: T3: Patients responsible for their health, access & advocacy as much as HCP. We need to ask for records AND educate ou…
Breakthrough Crew @brkthrough_crew
RT @Clara_Health: We are LOVING this mantra from a passionate #advocate! #patientchat https://t.co/JwjoMjmzaf
Patient Chat @patientchat
Topic 5 (T5:) coming up... #patientchat
Health Rocketer @healthrocketer
RT @FinallyFiled: It's hard to remember that WE are in the power position! #advocate #health #patientchat
Kevin J. Fowler @gratefull080504
T3: What is the value proposition for @myopennotes ? What's in it for me? Haven't clearly understood that so far #patientchat
Rheumatoid Patient @rheumpatient
RT @healthadvoc_ca: T4: YES. Wrong dates, wrong body parts, wrong meds. Notes written in scrawl other HCP's can't read. The list goes on. #…
Richard Zhao @richardzhao
RT @FinallyFiled: It's hard to remember that WE are in the power position! #advocate #health #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@FinallyFiled Ex. On arrival for peds visits, I ask pediatrician 4 notes abt visit.They're ready when we leave, but I already know info #patientchat
OpenNotes @myopennotes
@FinallyFiled yes! we want to help more patients feel that way! So they'll ask for their notes and benefit from reading #patientchat
Kimberly Dahline @finallyfiled
@fireflyrn84 Right, but now they don't which is why you need a well organized communication plan! #finallyfiled #organized #patientchat
Clara @Clara_Health
Yes! #PatientsHavePower! Use it! https://t.co/55FuNtpywa
Patient Chat @patientchat
T5: How can the notes be used in between visits to help manage care and keep you organized? #patientchat
Selina Brudnicki @sbrudnicki
I'd say yes, especially if you can't remember everything that was said. #patientchat https://t.co/ZFC0nBGsUQ
Kimberly Amelia @fireflyrn84
T4: ask the provider if something is worrisome or confusing. Always use the portal for messages so that it's documented #patientchat
Patient Critical Co-op @PatientCritical
T4: What contributors in this tweetchat may do about errors is different from less engaged patients. Mass education is needed. #patientchat
Aurelia Cotta @AureliaCotta
@sbrudnicki #patientchat T4 I find notes to be very helpful health wise and I only wish I had full access electronically to full file
Christina Lizaso @btrfly12
RT @patientchat: T5: How can the notes be used in between visits to help manage care and keep you organized? #patientchat
Christoph Trappe @ctrappe
Nope. Maybe as a reminder? https://t.co/IjIOJZbbbw
Cait DesRoches @cmd418
@gratefull080504 @myopennotes for patients, #opennotes has benefits related to understanding, partnership, and trust. #patientchat
Christina Lizaso @btrfly12
RT @fireflyrn84: T4: ask the provider if something is worrisome or confusing. Always use the portal for messages so that it's documented #…
Kevin J. Fowler @gratefull080504
Have to live early today but the subject of @myopennotes was a great one Need to do my homework on understanding value #patientchat
Clara @Clara_Health
Sharing the notes with other care providers can help as well! #patientchat https://t.co/zniTbOr6wx
Selina Brudnicki @sbrudnicki
Cumbersome and provides access at one point in time? #patientchat https://t.co/JOhibIkvYk
OpenNotes @myopennotes
@sbrudnicki studies show patients forget 50% or more of what has said in the office #patientchat
Angela Cohen @angelee828
T1: My health history on paper does not = me as a person. Talk to me pls. I know myself & my body. I'm part of treatment team. #patientchat
Annette McKinnon @anetto
@notfroggie @mloxton He said he wrote them for GP. Next Q, How many ortho pts actually go to see GP post op? Unrealistic to expect this #patientchat
Christina Lizaso @btrfly12
RT @angelee828: T1: My health history on paper does not = me as a person. Talk to me pls. I know myself & my body. I'm part of treatment te…
Kimberly Dahline @finallyfiled
@patientchat It depends on what your end goal is from your notes. Data? Information? following trends? #organize #patientchat
Aurelia Cotta @AureliaCotta
@sbrudnicki #patientchat T4 I don't find notes worrisome when I have access to a basic health dictionary of terms, or say Lab Tests Online
Alan Brewington @abrewi3010
T5 they should be a road map towards a higher QOL along with being a history book #patientchat
Cait DesRoches @cmd418
@gratefull080504 @myopennotes providers say makes care safer, pts better prepared , not more work for HCP, better notes #patientchat
ingevdln @ingevdln
T4: I once read: 'depressive thoughts' and was in shock. I didn't feel depressed but had one moment of crying. We discussed it #patientchat
Nigel H @Crohnoid
T4 Does sometimes seem like information overload. I find drawing diagrams or timelines helps me make sense of multiple threads #patientchat https://t.co/8TKGKMY7e4
Health Advocate @healthadvoc_ca
RT @myopennotes: @FinallyFiled yes! we want to help more patients feel that way! So they'll ask for their notes and benefit from reading #…
Enlightening Results @GraceCordovano
@Clara_Health Not just can help, but is absolutely necessary for coordination of care, especially in patients w/multiple co-morbidities #patientchat
Carol McCullough @Imonlyslightly
T4 I might have been worried when 1st diagnosed with LTC but I know what is normal for for me & if long term stable = fine #patientchat
Patient Empowerment @power4patients
T5: Notes from one doctor can be used to help coordinate care with another HCP #patientchat
OpenNotes @myopennotes
Open notes can help you understand your medications, remind you to make follow up appointments & schedule preventive tests #patientchat
Clara @Clara_Health
Access for all! Those who can't advocate for themselves need passionate advocates working on their behalf. #patientchat https://t.co/HFrDhVlhl1
Math Mountains @e_nvgt
@ingevdln Good afternoon! Your fav. point of view maybe "#patientchat" analyized by this math robot. Thank you :) Twitter Awesome! https://t.co/RruZfrdJeQ
ElizabethKelly, Ph.D @Elizabe85727641
T4 Yes & nothing bc are typos from dictation, told not a problem unless record goes to court. #patientchat
Kimberly Dahline @finallyfiled
@ingevdln Depression can be so insidious! Glad you are aware. I was not for a looooong time. #patientchat
Katie @katie5280
@patientchat T4: In the past I have. I didn’t care for the way I was described, but it’s always best to speak up/ask if you have ?’s. #patientchat
Clara @Clara_Health
@GraceCordovano Agreed! #patientchat
Kimberly Dahline @finallyfiled
@verylightnosuga Smart! Would not have thought of that. Thanks #patientchat
Mighty Casey Quinlan @MightyCasey
T4: My breast cancer tx records still wrong (9 yrs later). Clinicians treat you like a human if they know you'll see notes. #patientchat
Patient Critical Co-op @PatientCritical
T5: EHR notes betwn visits can help establish proactive heatlh improvement so health isn't gauged just at appointments by HCP. #patientchat
Enlightening Results @GraceCordovano
@ingevdln crying does not = depression; sometimes it's simply human nature and need for empathy...that's a whole other ballgame #patientchat
Carol McCullough @Imonlyslightly
RT @PatientCritical: T4: What contributors in this tweetchat may do about errors is different from less engaged patients. Mass education is…
Mighty Casey Quinlan @MightyCasey
T5: Reference point(s) for self-care, self-management. Calendar planning for follow-up. Sense of ownership of outcome. #patientchat
Kimberly Dahline @finallyfiled
@Elizabe85727641 But with insurance changing so rapidly, you don't want ANything in there that might affect you negatively. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @PatientCritical: T5: EHR notes betwn visits can help establish proactive heatlh improvement so health isn't gauged just at appointments…
Annette McKinnon @anetto
@Elizabe85727641 What a useless answer. Doesn't a patients' health record help with treatment? #patientchat
Katie @katie5280
@patientchat T5: If labs/other tests are needed, you can be proactive about that. Providers don't always mention these items during visits. #patientchat
BUY FOLLO₩ERS :xnz @kaleysalvitti
RT @anetto: @Elizabe85727641 What a useless answer. Doesn't a patients' health record help with treatment? #patientchat
Enlightening Results @GraceCordovano
T5: Notes may be used to prepare patients for upcoming appts with doctors, foster development of smarter question to ask. #PatientChat
Enlightening Results @GraceCordovano
T5: Accurate office notes play a critical role in disability claims. #PatientChat
Patient Chat @patientchat
Topic 6 (T6:) coming up... #patientchat
Annette McKinnon @anetto
RT @MightyCasey: T4: My breast cancer tx records still wrong (9 yrs later). Clinicians treat you like a human if they know you'll see notes…
Cait DesRoches @cmd418
@PatientCritical yes agree and evidence supports this. Notes can help patients know what to do between visits. #patientchat
Enlightening Results @GraceCordovano
T5: Use notes for coordination of care to schedule appropriate follow-up appts. #PatientChat
Kimberly Amelia @fireflyrn84
@FinallyFiled Absolutely correct! We have access to ensure that we have what is needed for continuity. The entire exchange idea fell apart #patientchat
Kimberly Dahline @finallyfiled
@GraceCordovano @ingevdln My poor husband! Ice cream helps solve most "just a sad day" blues #patientchat
Mighty Casey Quinlan @MightyCasey
@GraceCordovano @ingevdln Yeah, it's like MD was saying "there's no crying in HEALTHCARE!" <<< Tom Hanks voice #patientchat
Enlightening Results @GraceCordovano
T5: Use notes as a reference for questions regarding medication dosing. #PatientChat
Carol McCullough @Imonlyslightly
RT @myopennotes: Open notes can help you understand your medications, remind you to make follow up appointments & schedule preventive tests…
ElizabethKelly, Ph.D @Elizabe85727641
T5 Bc MD's not share notes I copy and take between providers, notes serve as bases for further lit research via NLM online. #patientchat
Nigel H @Crohnoid
T4 Does anyone sound record / video their consultations? And if so does your HCP expect to keep a copy for their records? #patientchat
Cait DesRoches @cmd418
@GraceCordovano we agree! #patientchat
Kimberly Dahline @finallyfiled
@GraceCordovano OMG LOVE! #hilarious #patientchat
Patient Chat @patientchat
T6: Have you ever found an inaccuracy in your notes? Is there a role for patients to play in the safety of care? #patientchat
Clara @Clara_Health
T5: Most visits end with some advice o instruction for treatment and symptom management. Keeping track improves compliance! #patientchat
Natalie 🦓 @_Nataliea
#patientchat T5 @ craniofacial clinic a few years ago. Neuro I've seen since I was 12 looks at chart, at me. "Why is that on your chart?"
Kimberly Dahline @finallyfiled
@Clara_Health This is where a few minutes at the end of apt helps! #askfortime #patientchat
Selina Brudnicki @sbrudnicki
.@gratefull080504 Can't speak for @myopennotes, but here are some findings that may help: https://t.co/a7amfskKzo #patientchat https://t.co/TxAG8wx6qo
Christina Lizaso @btrfly12
RT @Elizabe85727641: T5 Bc MD's not share notes I copy and take between providers, notes serve as bases for further lit research via NLM on…
Kimberly Amelia @fireflyrn84
T5: notes can be used with other disciplines at other facilities. Also to put together a timeline of the records. #patientchat
Kimberly Dahline @finallyfiled
@_Nataliea Really? #patientchat
Mighty Casey Quinlan @MightyCasey
T6: Errors in my own records; saw errors in my 'rents records when I was care manager; have heard countless stories of others. #patientchat
Natalie 🦓 @_Nataliea
#patientchat T6 @ craniofacial clinic a few years ago. Neuro I've seen since I was 12 looks at chart, at me. "Why is that on your chart?"
Health Advocate @healthadvoc_ca
T6: Have had 4 experiences where treatment/med was going to be inappropriately dispensed, if not caught by a 3rd party. #patientchat
Annette McKinnon @anetto
T5 Would have made a spreadsheet of lab tests back when first diagnosed. Would help me to know symptom relationship to QOL #patientchat
Christina Lizaso @btrfly12
RT @Clara_Health: T5: Most visits end with some advice o instruction for treatment and symptom management. Keeping track improves complianc…
ingevdln @ingevdln
T6: #patientchat https://t.co/MuNeWRpdcY
Angela Cohen @angelee828
T2: Knowing if you are accurately communicating w/your Dr. or if changes are needed. IMO good communication is vital to care. #patientchat
Enlightening Results @GraceCordovano
T6: Pt medical histories & prescription regimens are often incorrect. Critical to have missing/incorrect info corrected asap #PatientChat
Christina Lizaso @btrfly12
RT @FinallyFiled: @Clara_Health This is where a few minutes at the end of apt helps! #askfortime #patientchat
CascadiaChat @CascadiaChat
Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient saw it #patientchat
Mighty Casey Quinlan @MightyCasey
T6: Beyond just records, people/patients need to speak up when they see/hear ANYTHING that needs their input or correction. #patientchat
Patient Critical Co-op @PatientCritical
T6: ALWAYS a role for patients to play in safety of care. It's a patient's LIFE & they deserve oversight & review of their care #patientchat
OpenNotes @myopennotes
Our #patientsafety team is learning that note reading can help make care safer. Learn more: https://t.co/Ao2gVeVGSZ #patientchat
Mighty Casey Quinlan @MightyCasey
RT @CascadiaChat: Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient…
Clara @Clara_Health
T6: Patients and caregivers are the best regulators of safety in #healthcare! If they don't advocate who will? #patientchat https://t.co/cwxYC358R0
Patient Empowerment @power4patients
T6: Pts know their health best & by checking their HR for errors they could prevent the wrong diagnosis, treatment or surgery #patientchat
Kimberly Amelia @fireflyrn84
@sbrudnicki It is cumbersome, but if you need specific records that is the only way to do it if the notes aren't available in EHR. #patientchat
ingevdln @ingevdln
RT @Clara_Health: T6: Patients and caregivers are the best regulators of safety in #healthcare! If they don't advocate who will?…
Alan Brewington @abrewi3010
T6 there better be a role for me to play in safety or else Heath care owes me a bunch of money In refunds #patientchat
Natalie 🦓 @_Nataliea
#patientchat T6 it's a diagnosis that MAKES NO SENSE in context of other diagnoses. I think it was slapped on at Urgent Care sometime?
Christina Lizaso @btrfly12
RT @healthadvoc_ca: T6: Have had 4 experiences where treatment/med was going to be inappropriately dispensed, if not caught by a 3rd party.…
OpenNotes @myopennotes
T6: By reviewing your notes, you can identify mistakes and make sure your record is accurate https://t.co/Ao2gVeVGSZ #patientchat
Carol McCullough @Imonlyslightly
T5 Ordering repeat prescriptions, appointment reminders. I am sure there are many more potential benefits for continuing care #patientchat
Enlightening Results @GraceCordovano
T6: Yes, I have an anaphylactic allergy to morphin that is frequently missing from my medical history. Big prob w/ surgery #patientchat
Annette McKinnon @anetto
T6 Discovered that one of my diagnoses was not listed on my chart. Drs think 'syndromes' less important? Big Omission #patientchat
Breakthrough Crew @brkthrough_crew
T6: Patient safety should be the primary focus of each provider interaction! Patients should demand no less than the best! #patientchat
Christina Lizaso @btrfly12
RT @GraceCordovano: T6: Pt medical histories & prescription regimens are often incorrect. Critical to have missing/incorrect info corrected…
Christina Lizaso @btrfly12
RT @CascadiaChat: Benefits of having access to health info - 1st Biopsy didn’t have enough cells for results. Care team missed it, patient…
Christina Lizaso @btrfly12
RT @MightyCasey: T6: Beyond just records, people/patients need to speak up when they see/hear ANYTHING that needs their input or correction…
Kimberly Dahline @finallyfiled
like the difference between tenitis and tendonitis! Quite different #spellcheckissue? #patientchat
Kimberly Dahline @finallyfiled
@GraceCordovano I guess! #patientchat
Kimberly Amelia @fireflyrn84
We do need to advocate for others. They deserve the same access and care as we all do. #patientchat https://t.co/x5n5EAzzEa
kathy kastner @KathyKastner
Yep - in between doctor appointments we live our lives #patientchat https://t.co/fUIw2WGji6
Patient Chat @patientchat
Topic 7 (T7:) coming up... #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T6 Yes, found Rx errors from mail order Rx company, called company rep & reported immediately, then used local Rx #patientchat
Kimberly Dahline @finallyfiled
Loving all the comments and insights. Always learn so much from you! #love #patientchat
Patient Critical Co-op @PatientCritical
T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough being sick. #patientchat
Clara @Clara_Health
RT @fireflyrn84: We do need to advocate for others. They deserve the same access and care as we all do. #patientchat https://t.co/x5n5EAzzEa
Alan Brewington @abrewi3010
T6 our HC system is currently designed as a work in progress. Mistakes will happen, it's the fixing of them that's harder than #patientchat
Christina Lizaso @btrfly12
RT @PatientCritical: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough bein…
Patient Chat @patientchat
T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patien
Katie @katie5280
@patientchat T6: Nope, but the pt plays a very important part by verifying treatments and meds needed & to ensure they are accurate. #patientchat
Kimberly Amelia @fireflyrn84
If the provider knows you have access to notes regularly, they word things more carefully. Have noticed a difference at times. https://t.co/bC3XTePoiI
ingevdln @ingevdln
RT @PatientCritical: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough bein…
Kimberly Dahline @finallyfiled
Remember that you are driving the bus. #patientchat
Christina Lizaso @btrfly12
#patientchat https://t.co/JJ4iPWpNnH
Cait DesRoches @cmd418
@abrewi3010 I think that's a generous description. good to know we're working on it together. #patientchat
Nigel H @Crohnoid
T6 I do occassionally find inaccuracies and then email consultant to point out the issue #patientchat
Carol McCullough @Imonlyslightly
T6 I found a plethora of inaccuracies in notes from 1 hospital 2006-2008. Requesting written copies helped source problems. #patientchat
OpenNotes @myopennotes
T7 Our advice is: it’s ok to ask! Your voice matters. Get inspired by these wonderful patient activists https://t.co/UkkSeEuYtW #patientchat
Angela Cohen @angelee828
T3: w/multiple conditions, notes help me keep track of what the meds and plan is w/one dr, to make notes for the next dr appt. #patientchat
Rheumatoid Patient @rheumpatient
RT @power4patients: T6: Pts know their health best & by checking their HR for errors they could prevent the wrong diagnosis, treatment or s…
Enlightening Results @GraceCordovano
T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR information. #PatientChat
Patient Empowerment @power4patients
T7: Contact the office and see if they have a form they require for making amendments to your medical records, most do. #patientchat
Clara @Clara_Health
T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat
Alan Brewington @abrewi3010
T6 notes can be a positive thing too let's remember. If used correctly benefit can be had by all. #patientchat
Kimberly Dahline @finallyfiled
@angelee828 Awesome. Snaps for being such an advocate! #patientchat
Carol McCullough @Imonlyslightly
RT @angelee828: T3: w/multiple conditions, notes help me keep track of what the meds and plan is w/one dr, to make notes for the next dr ap…
HealthSparq @HealthSparq
RT @patientchat: T7: What’s your advice for patients who might be a little scared to ask for their notes or bring up an inaccuracy? #patien
Sherry Reynolds 🌟 @Cascadia
T7 It shouldn’t be patients job to have to ask for their health info - It should be standard practice to always provide them #patientchat https://t.co/gTxSkaOnMP
Richard Zhao @richardzhao
RT @Clara_Health: T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat
Patient Chat @patientchat
RT @GraceCordovano: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR inform…
Enlightening Results @GraceCordovano
T7:Always request your records after each appt/test. They belong to YOU. They are necessary for YOUR health success. #PatientChat.
Breakthrough Crew @brkthrough_crew
T7: We can't make positive change without doing the things that scare us! Face your fears and better your life. #patientchat #patientpower
kathy kastner @KathyKastner
RT @PatientCritical: T6: Patients need to hear about/develop skills to advocate for themselves while healthy: it's overwhelming enough bein…
Katie @katie5280
@patientchat ? T7: Don’t be afraid! Simply request & say, “I noticed something wasn’t right & I would like my visit notes, please…” #patientchat
Rheumatoid Patient @rheumpatient
@GraceCordovano So dangerous for that info to be missing #patientchat
OpenNotes @myopennotes
We believe patients asking for their notes will help things move faster https://t.co/8yESttIP0O #patientchat
Patient Critical Co-op @PatientCritical
T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& responsibility #patientchat
Patient Empowerment @power4patients
RT @brkthrough_crew: T7: We can't make positive change without doing the things that scare us! Face your fears and better your life. #patie
Christina Lizaso @btrfly12
RT @myopennotes: T7 Our advice is: it’s ok to ask! Your voice matters. Get inspired by these wonderful patient activists https://t.co/UkkSe…
Katie @katie5280
@patientchat T7: A lot of visit notes are placed on patient portals so there may not be a need to ask. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @katie5280: @patientchat T7: A lot of visit notes are placed on patient portals so there may not be a need to ask. #patientchat
Christina Lizaso @btrfly12
RT @Clara_Health: T7: We want to remind patients that #PatientsHavePower! You are the expert of your own health! #patientchat
Alan Brewington @abrewi3010
@cmd418 If the system was horrible none of us would be on twitter complaining. It needs work for sure. Important to tell entire story #patientchat
Kimberly Dahline @finallyfiled
Asking for information shows your providers you are an active participant in your care #advocate #patientchat
Patient Empowerment @power4patients
RT @PatientCritical: T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& respo…
Christina Lizaso @btrfly12
RT @GraceCordovano: T7:Always request your records after each appt/test. They belong to YOU. They are necessary for YOUR health success. #P
Patient Critical Co-op @PatientCritical
T7: Society taught them to get checkups & NOW needs to teach them to ask questions, advocate & own their rights. Grassroots. #patientchat
Annette McKinnon @anetto
T7 Easy to ask if the hospital or office has a patient portal. Signing up is easy. Many have built in patient education links. #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T7 #Assess level of knowledge/literacy, seek health goals/outcomes/support, #collaborate wth pt to dev skills over time #patientchat
Kimberly Dahline @finallyfiled
@anetto Good point about information links. #patientchat
OpenNotes @myopennotes
@PatientCritical it's our sense that many patients don't even know notes exist, can you help us spread the word? #patientchat
kathy kastner @KathyKastner
Yep- in between them doctors appts we live our lives;-) https://t.co/o4mfe6dTdX
Selina Brudnicki @sbrudnicki
T7: If you don't ask, you don't get. Is inaccuracy significant & could it impact your safety & care? Consolidated voice helps. #patientchat https://t.co/w9UO30o81X
Christina Lizaso @btrfly12
RT @FinallyFiled: Asking for information shows your providers you are an active participant in your care #advocate #patientchat
Nigel H @Crohnoid
T5 I keep a running record of all appointments, follow-up letters, procedures and test withhyperlinks to original reports etc #patientchat
Christina Lizaso @btrfly12
RT @PatientCritical: T7: Society taught them to get checkups & NOW needs to teach them to ask questions, advocate & own their rights. Grass…
Cait DesRoches @cmd418
@katie5280 @patientchat T7 70 organizations share visit notes on patient portal.many more piloting.but we need to get to ALL #patientchat
CascadiaChat @CascadiaChat
This! Meet people where they are, Use the tools they are familiar with. Determine their goals (not just adherence to your plan) #PatientChat https://t.co/mqNMcel78w
Annette McKinnon @anetto
T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care #patientchat
Health Advocate @healthadvoc_ca
T7: Teaching large segments of socieity requires an 'after school special' level of awareness to kick off patient awareness :) #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @cmd418: @katie5280 @patientchat T7 70 organizations share visit notes on patient portal.many more piloting.but we need to get to ALL #p
Kimberly Dahline @finallyfiled
@Crohnoid What system ar you using? Love to hear more about it! #patientchat
Christina Lizaso @btrfly12
RT @Crohnoid: T5 I keep a running record of all appointments, follow-up letters, procedures and test withhyperlinks to original reports etc…
Selina Brudnicki @sbrudnicki
Agree and speaks to need for easier access for all patients. Saves both patient and admin time. #patientchat https://t.co/mqxgRmU9AS
kathy kastner @KathyKastner
RT @myopennotes: @PatientCritical it's our sense that many patients don't even know notes exist, can you help us spread the word? #patientc
Christina Lizaso @btrfly12
RT @anetto: T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care…
OpenNotes @myopennotes
@anetto yes! we also think a lot of patients don't know about patient portals - it's part of our messaging, part of our work! #patientchat
Mighty Casey Quinlan @MightyCasey
@fireflyrn84 Exactly. You become human to them, and they to you, has been my direct experience w/note sharing. #patientchat
Alan Brewington @abrewi3010
T7 start asking just out of curiosity, to learn the process. When you need something in future then it will be easier #patientchat
Christina Lizaso @btrfly12
RT @MightyCasey: @fireflyrn84 Exactly. You become human to them, and they to you, has been my direct experience w/note sharing. #patientchat
Inspire @teaminspire
RT @FinallyFiled: Asking for information shows your providers you are an active participant in your care #advocate #patientchat
Inspire @teaminspire
RT @abrewi3010: @cmd418 If the system was horrible none of us would be on twitter complaining. It needs work for sure. Important to…
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Cait DesRoches @cmd418
@sbrudnicki T7 new data shows you're right. its a time saver for HCP and pts. #patientchat
Mighty Casey Quinlan @MightyCasey
T7: Make "nothing about me without me" your mantra. Also "whose life is it, anyway?" #patientchat
Kat McDavitt @katmcdavitt
RT @GraceCordovano: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR inform…
Nigel H @Crohnoid
T7 Your life might depend upon it. It's your right to see what is held in your file. You are the ultimate expert in your health #patientchat
Kimberly Dahline @finallyfiled
@MightyCasey Love this! Can I quote you in a future blog? #patientchat
Annette McKinnon @anetto
@fireflyrn84 @sbrudnicki Did that once. Cost $100+ and info I got was low quality, mostly a disappointment. (helped not to be in a crisis) #patientchat
Kimberly Amelia @fireflyrn84
T6: our records are the basis that everything goes from. If something is incorrect it can be lethal (ex: omitting allergy) #patientchat
Patient Critical Co-op @PatientCritical
That's what @patientcritical is for: educating patients on rights, responsibilities, providing info & giving them a real voice #patientchat https://t.co/T3jJrRUEiM
Rheumatoid Patient @rheumpatient
@power4patients As far as I'm aware, nothing like that exists at any of the UK hospitals or GP surgeries I have been to. #patientchat
Carol McCullough @Imonlyslightly
T7 Improving culture, education, seeing benefits of using records should make it easier to ask for them or point out an error. #patientchat
Angela Cohen @angelee828
@FinallyFiled Awww, shucks. Thanks! 😃#patientchat
Christina Lizaso @btrfly12
CT: Staring at my "health bag", reminded not to wait until things are urgent, to start gathering notes/asking for access now. #patientchat
Christina Lizaso @btrfly12
RT @Crohnoid: T7 Your life might depend upon it. It's your right to see what is held in your file. You are the ultimate expert in your heal…
Parijat Deshpande, CTP, CCTPI @ParijatDesh
The little-known strategy to get the right #prenatal care w/o feeling pushed out the door #pregnancy #patientchat https://t.co/Hp8w8TnHBY https://t.co/zNY2uDpBLR
Selina Brudnicki @sbrudnicki
Was it a scanned document that was hand-written? #patientchat https://t.co/DlieWoThtv
Alan Brewington @abrewi3010
CT remember our story is a collection of positive & negative. Human created problems have human designed solutions #patientchat
Kimberly Dahline @finallyfiled
Glad to hear from everyone who is empowering themselves in their HC journey. You are all inspirations! Thanks #patientchat
kent @kent_pal2
If you chat about #patientchat Chat channel - free https://t.co/90lXzS2kKc
ShereeseM, MS/MBA @ShereesePubHlth
#patientchat https://t.co/PBGZfw6DZY
OpenNotes @myopennotes
@btrfly12 maybe you can ask for them on paper until your health system gets started with #OpenNotes #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
CT Thinking about change is very different from developing a plan for change, implementing, being inclusive/aware of receiver. #patientchat
Kimberly Amelia @fireflyrn84
T7: if there is an inaccuracy in your record, it will follow you forever. There is no shame in bringing it up; it's a right #patientchat
Christina Lizaso @btrfly12
RT @fireflyrn84: T7: if there is an inaccuracy in your record, it will follow you forever. There is no shame in bringing it up; it's a righ…
CascadiaChat @CascadiaChat
@rheumpatient @power4patients Here is how to get records corrected in NHS system https://t.co/jW6qxUb6St #patientchat https://t.co/RLwokAXrEn
Angela Cohen @angelee828
RT @PatientCritical: T7: Patients unsure abt requesting notes bring up inaccuracies w/HCP's need to know it's OK and their *right*--& respo…
Jeri Burtchell @fingohead
RT @anetto: T7 Important to realize that In shared decision making you really need information to participate fully in decisions about care…
Kimberly Dahline @finallyfiled
@fireflyrn84 Beautifully stated #patientchat
Nigel H @Crohnoid
To get ready for this chat I put some notes together on my experiences of medical notes in the #NHS - https://t.co/LRvpy5MQ8h #patientchat
Angela Cohen @angelee828
RT @brkthrough_crew: T7: We can't make positive change without doing the things that scare us! Face your fears and better your life. #patie
Jeri Burtchell @fingohead
RT @Clara_Health: T1: Providers should know everything about a patients history. They need to listen and slow down to gain #patients trust…
OpenNotes @myopennotes
Thank you everyone, this was great! Please message us on Twitter or https://t.co/gAdITeGxGX with other Qs #patientchat
Christina Lizaso @btrfly12
RT @Crohnoid: To get ready for this chat I put some notes together on my experiences of medical notes in the #NHS - https://t.co/LRvpy5MQ8h…
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Tinu @Tinu
RT @GraceCordovano: T7: Without you, the patient, none of the other healthcare stakeholders exist. Stop being afraid to ask for YOUR inform…
Patient Chat @patientchat
Thank you @myopennotes & @cmd418 for sharing your insights and working toward every patient gaining access their health records #patientchat
I Love Dogs @_iheartdogs_
Dogs…Cheaper Than Therapy Grab it=> https://t.co/qVU8VyL0Be #dogtanktop #dogtshirt #dogsweatshirts #dogvneck #dogmug #patientchat https://t.co/2i7e1O7ZZm
Kimberly Dahline @finallyfiled
@patientchat @power4patients Thank YOU for another fabulous Friday chat. Love these #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
ingevdln @ingevdln
sharing knowledge and experience #healthcare #patientengagement #sharingiscaring #partnership in healthcare https://t.co/8Gm6rf5Caz
Selina Brudnicki @sbrudnicki
CT: Patient access to notes requires respectful relationship betw patients & providers to make it meaningful & collaborative #patientchat https://t.co/jp3xjTrrFd
OpenNotes @myopennotes
@patientchat @cmd418 thank you for organizing! #patientchat
Cait DesRoches @cmd418
@patientchat you're welcome! please reach out with any unanswered questions. #patientchat
Mighty Casey Quinlan @MightyCasey
@FinallyFiled Sure. Everything I say here is open access. I walk my "open data" talk =) #patientchat
Patient Critical Co-op @PatientCritical
CT: We all need to push co-design of better EHR/public education to create patients literate in use of well-built EHR's in care #patientchat
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, September 8 at 1pmET https://t.co/ASykeLdQBH
OpenNotes @myopennotes
@PatientCritical it can only get better #patientsincluded #patientchat
kent @kent_pal2
If you chat on the theme " #patientchat " Free chat channel https://t.co/90lXzS2kKc
Selina Brudnicki @sbrudnicki
Thanks @patientchat and @myopennotes for hosting! #patientchat https://t.co/jp3xjTrrFd
Patient Critical Co-op @PatientCritical
Thanks for hosting a great #patientchat, @patientchat! Talks like this open the door to faster, better change in #healthare. https://t.co/8lDfXdHrxz
ingevdln @ingevdln
Thx for sharing experiences ... leads to new insights #patientchat nice weekend to all of you!
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Steve Bell @jammysax
Please follow Ally-health care expert. Period https://t.co/CfM8U0nJbg
Norma A. Padrón @normapadron_
RT @myopennotes: We believe patients asking for their notes will help things move faster https://t.co/8yESttIP0O #patientchat
CascadiaChat @CascadiaChat
Wow what a fast, engaging, actually fun #patientchat - always grateful when I learn, have to think and get to share - a model for health. https://t.co/XuKsYCJRn4
Nigel H @Crohnoid
If in doubt draw a diagram. They're a great way of communicating a lot of data quickly and working out what's going on #patientchat https://t.co/oc64stS1xJ
Christina Lizaso @btrfly12
RT @PatientCritical: CT: We all need to push co-design of better EHR/public education to create patients literate in use of well-built EHR'…
Jeri Burtchell @fingohead
Inaccuracies can be life-threatening. One of my patient portals had incorrect drug allergies listed. #patientchat https://t.co/3gvARGvQ7N
Kimberly Amelia @fireflyrn84
CT: we all need to remember that our records should be utilized to benefit us. Great chat everyone !!#patientchat
Quoth the Pigeon @quoththepigeon
The vanity of shining in conversation is usually subversive of its own desires. #patientchat
Vamp Kris @vamp_kris2102
GMC Terrain FWD 4dr SLE 1 (2012) #GMC https://t.co/dwjX8xJFIM 2012 GMC Terrain FWD 4dr SLE 1 80604 Miles Carbon #patientchat https://t.co/9odXYKt7l3
Christina Lizaso @btrfly12
RT @FingoHead: Inaccuracies can be life-threatening. One of my patient portals had incorrect drug allergies listed. #patientchat https://t.…
Carol McCullough @Imonlyslightly
A member of staff in a Complaints Department refused to correct misinformation related to my care. Feeling miffed again. https://t.co/N0J6abbpim
Rheumatoid Patient @rheumpatient
RT @GraceCordovano: T7:Always request your records after each appt/test. They belong to YOU. They are necessary for YOUR health success. #P
Kimberly Amelia @fireflyrn84
@richardzhao @gratefull080504 @patientchat I know only a select few providers of mine have blue button; it would be awesome if they all did #patientchat
kent @kent_pal2
Let's chat with the theme of #patientchat Chat channel [free] https://t.co/90lXzS2kKc
Carol McCullough @Imonlyslightly
RT @fireflyrn84: T7: if there is an inaccuracy in your record, it will follow you forever. There is no shame in bringing it up; it's a righ…
ingevdln @ingevdln
So true, crying isn't always a sign of weakness, it 's simply human! #humannature #empathy #crying https://t.co/WYeIpQvJYt
Kimberly Amelia @fireflyrn84
@myopennotes I did the implementation as well. Was the nurse lead for training all nurses and ancillary staff. #patientchat
kent @kent_pal2
If you talk about " #patientchat " Anonymous chat channel (free) https://t.co/90lXzS2kKc
Patient Chat @patientchat
@angelee828 @PatientCritical Glad you could join today's #patientchat! Hope to see you at the next one on Sept. 8th https://t.co/5TjNi8OGL4
Patient Chat @patientchat
@ingevdln Thank you for joining today's #patientchat! Hope to see you at the next one on Sept. 8th https://t.co/5TjNi8OGL4 #patientchat
Darla Brown @darlakbrown
@patientchat @btrfly12 😊 thank you for carrying the #PatientChat banner forward!
Patient Chat @patientchat
@GraceCordovano Thank you for your amazing insights during today's #patientchat Hope you can join the next one 9/8 https://t.co/5TjNi8OGL4
kent @kent_pal2
Talk of " #patientchat " on free chat Chat channel https://t.co/90lXzS2kKc
faatje @faatnurse
RT @ingevdln: So true, crying isn't always a sign of weakness, it 's simply human! #humannature #empathy #crying https://t.co/WYeIpQvJYt
#patientchat content from Twitter.