#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
 | Patient Empowerment Network @power4patients RT @patientchat: Here’s a handy article on participating in tweet chats: Here’s a handy article on participating in tweet chats: https://t.co/5JyoTGvZvH #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/IqBQ0maGJ7 |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I'm looking forward to chatting with you all today #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
 | Becky Brandt DegenRN @bbhomebody Happy Friday everyone. I'm Becky from smokey WA state, RN #RareDisease patient, and advocate. #patientchat https://t.co/q5d6XjWEJE |
 | HealthSparq @HealthSparq RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Jeremy Murphy @jeremypmurphy RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/LKgjwgkw6n https://t.co/W4w3KOVsaK |
 | Vera Rulon FAHIMA @vrulon Vera here from NY. I have some direct experience in #palliativecare several years ago when my mother became terminally ill.#patientchat |
 | Kevin Freiert @K_SalemOaks @K_SalemOaks from Salem CT here. Looking forward to a great chat. #patientchat |
 | Inspire @InspireIsHealth Hi everyone, Eric Taylor, Marketing Manager at Inspire here. Happy to join the #patientchat today! |
| Patient Chat @patientchat @K_SalemOaks Hi Kevin! Great to have you here - don't forget to use #patientchat in all your tweets |
 | Katie @katie5280 @patientchat Hello! I'm Katie, an 8 year breast cancer survivor and t2 diabetic! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings, all. Casey Quinlan here, professional loudmouth on #openscience #opendata #rightcare and participatory med. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/LKgjwgkw6n |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat |
| HealthSparq @HealthSparq Hi everyone! So glad I could finally make it to #patientchat! Been a while, super busy summer so far! Looking forward to a really important discussion this morning on #chronicillness & #palliativecare |
 | STTR Cancer @sttrcancer @STTRCancer represents cancer clinicians and researchers across our 4 institutions and will be joining in on the Empowered #patientchat this morning at 10am. Make sure to tune in! #TweetChat #PalliativeCare |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @LucyAlexandria: |
| HealthSparq @HealthSparq Hey @Cambia & @CambiaGrove great topic to join in on this morning! #PatientChat |
| Patient Chat @patientchat Today's #patientchat topic is Palliative Care and Chronic Illness https://t.co/LKgjwgkw6n https://t.co/PLTiL6N4uk |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: Today's #patientchat topic is Palliative Care and Chronic Illness https://t.co/LKgjwgkw6n https://t.co/PLTiL6N4uk |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello all. I'm Shereese, healthcare strategist & patient advocate from Maryland's Eastern Shore #patientchat https://t.co/X5tkkrYVoa |
 | Lisa Davis Budzinski @lisadbudzinski Hello everyone! Lisa here from Florida. #intractablepain patient Central Pain Syndrome post-#stroke Co-founder @Cpnervecenter #patientchat |
| Patient Chat @patientchat Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: What are your thoughts on palliative care? How do you define it? #patientchat https://t.co/N6LbNjkWPO |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are your thoughts on palliative care? How do you define it? #patientchat https://t.co/N6LbNjkWPO |
 | Suzie Siegel @SuzieSiegel #Sarcoma patients: If you're interested in learning more about #palliative care, please follow today's #patientchat. (Just keep refreshing #patientchat & jump in with comments or questions.) |
| HealthSparq @HealthSparq RT @patientchat: T1: T1: What are your thoughts on palliative care? How do you define it? #patientchat https://t.co/N6LbNjkWPO |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T1: T1: What are your thoughts on palliative care? How do you define it? #patientchat https://t.co/N6LbNjkWPO |
| Kevin Freiert @K_SalemOaks @patientchat I learned from a Palliative Care specialist at @westchesterbiotechproject that it is simply the treatment/management of symptoms for any patient. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @SuzieSiegel: #Sarcoma patients: #Sarcoma patients: If you're interested in learning more about #palliative care, please follow today's #patientchat. (Just keep refreshing #patientchat & jump in with comments or questions.) |
| Lisa Davis Budzinski @lisadbudzinski T1 “#Palliativecare is specialized medical care for people with serious illness. It is appropriate at any age and at any stage in your illness” #patientchat |
| Patient Empowerment Network @power4patients T1: To me, #pallative care is all about preserving/protecting/enhancing/ensuring quality of life #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: T1: T1: To me, #pallative care is all about preserving/protecting/enhancing/ensuring quality of life #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @lisadbudzinski: T1 “#Palliativecare is specialized medical care for people with serious illness. It is appropriate at any age and at any stage in your illness” #patientchat |
| Vera Rulon FAHIMA @vrulon T1: #palliativecare meant to ease the burden of terminal illness in all respects for the person - pain, spiritual, etc. #patientchat |
 | Tricia Chaney @TRCWriter Hi all. I'm a freelance writer from the Atlanta area and a believer in #palliativecare and the importance of those who provide that care. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @MightyCasey Near Ocean City. That's the 119th St pier #patientchat |
| Inspire @InspireIsHealth RT @lisadbudzinski: T1 “#Palliativecare is specialized medical care for people with serious illness. It is appropriate at any age and at any stage in your illness” #patientchat |
| Jeremy Murphy @jeremypmurphy @patientchat A1: Palliative care is very important and helpful for helping patients and families with limited time left. It includes hospice care but not limited to that. How do we suggest it to families/friends who might need it? #patientchat |
| Inspire @InspireIsHealth RT @power4patients: T1: T1: To me, #pallative care is all about preserving/protecting/enhancing/ensuring quality of life #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @LucyAlexandria: T1: |
| Vera Rulon FAHIMA @vrulon Actually a correction - not necessarily a terminal illness - #patientchat |
 | Lillian Lake - Host of #SoulNestingChat @llake @ShereesePubHlth I didn't realize where you're from. We used to summer in St. Michaels. Beautiful area. #patientchat |
| HealthSparq @HealthSparq RT @power4patients: T1: T1: To me, #pallative care is all about preserving/protecting/enhancing/ensuring quality of life #patientchat |
 | Rev. Dr. Stacey Simpson Duke @revdrduke T1: Palliative Care is the management of pain and other disease symptoms. It is not only for end-of-life but is for any stage of treatment. #patientchat #PalliativeCare |
| Patient Chat @patientchat Topic 2 (T2:) coming up...https://t.co/q24OWvXPPM #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @patientchat T1 With an intractable Pain condition like Central Pain Syndrome I think palliative care would be a good fit but most centers shy away from conditions that aren’t cancer related #patientchat |
 | Tami Dew Rich, MBA @bostonheartmom Hi #PatientChat Tami here from o/s Boston #MedicalMama #ePatientFamilyCaregiver Just out of the PT Pool (RotatorCuff Repair Wk16) Really missing my late mom-in-law Millie today 355 days ago @ 98 she had a bad fall with multiple fx that led to her #STRehab #PalliativeCare #Hospice |
| Patient Chat @patientchat T2: Who should receive palliative care? When is it appropriate? #patientchat https://t.co/HpMHxLS6NF |
| Tami Dew Rich, MBA @bostonheartmom RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| STTR Cancer @sttrcancer T2. In a #palliativecare summit, we learned that many patients don't know palliative care is available unless they are dying. This is not the case; more education & access needs to be offered to patients in active treatment. https://t.co/EFky40TIPD #patientchat |
| Kevin Freiert @K_SalemOaks True. But there recently was a study that showed #palliativecare early on in treatment resulted in better outcomes. I'll look for reference. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A1 It appears to be different everywhere. My experience is it is helpful for those with long-term chronic illness before, but perhaps as a lead-in to hospice care. They are powerfully helpful when done well. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: Important distinction not made clear enuf yet in public discussion of #palliativecare is that it is for SERIOUS, not solely terminal, illness. #patientchat |
| Patient Empowerment Network @power4patients @jeremypmurphy @patientchat Having been through hospice care with my Mom, I can't say enough about what a compassionate, empathetic, supportive experience it was. Hospice care providers are the rockstars of healthcare #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @sttrcancer: T2. In a #palliativecare summit, we learned that many patients don't know palliative care is available unless they are dying. This is not the case; more education & access needs to be offered to patients in active treatment. https://t.co/EFky40TIPD #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T2: T2: Who should receive palliative care? When is it appropriate? #patientchat https://t.co/HpMHxLS6NF |
| Patient Empowerment Network @power4patients RT @sttrcancer: T2. In a #palliativecare summit, we learned that many patients don't know palliative care is available unless they are dying. This is not the case; more education & access needs to be offered to patients in active treatment. https://t.co/EFky40TIPD #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Often #pallativecare gets confused w/ other types of care, like #hospice. But it is actually the management of symptons and side effects for conditions #patientchat https://t.co/TIQ9vh8XuJ |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @ShereesePubHlth: T1 Often #pallativecare gets confused w/ other types of care, like #hospice. But it is actually the management of symptons and side effects for conditions #patientchat https://t.co/TIQ9vh8XuJ |
| Rev. Dr. Stacey Simpson Duke @revdrduke T2: Anyone suffering from pain or discomfort from disease should receive #palliativecare It is appropriate whenever the patient and her doctor determine it is needed. #patientchat |
| Tricia Chaney @TRCWriter A1: #palliativecare provides relief enough to let people have quality time with the people around them. It made a big QOL difference for my family and reduced ER trips because of better symptom management. #patientchat |
| Vera Rulon FAHIMA @vrulon T2: #PalliativeCare is for people who are having a particularly difficult time with pain, side effects of tx, spirit, etc. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake Hi everyone! Tweeting from gorgeous New England. I'm a caregiver advocate, as well as carer to a Type I #diabetic spouse owner of a compassion consultancy. #patientchat |
 | Karen Galler @Karenrosegt RT @SuzieSiegel: #Sarcoma patients: #Sarcoma patients: If you're interested in learning more about #palliative care, please follow today's #patientchat. (Just keep refreshing #patientchat & jump in with comments or questions.) |
| Lillian Lake - Host of #SoulNestingChat @llake RT @revdrduke: T1: T1: Palliative Care is the management of pain and other disease symptoms. It is not only for end-of-life but is for any stage of treatment. #patientchat #PalliativeCare |
| Patient Empowerment Network @power4patients @MightyCasey Agreed. I think this is one of the greatest myths/misperceptions about #pallativecare and perhaps why more people aren't receiving it #patientchat |
| Vera Rulon FAHIMA @vrulon @power4patients @jeremypmurphy @patientchat I completely agree having experienced home hospice with my mom, as well #patientchat #palliativecare |
| Suzie Siegel @SuzieSiegel RT @revdrduke: T2: T2: Anyone suffering from pain or discomfort from disease should receive #palliativecare It is appropriate whenever the patient and her doctor determine it is needed. #patientchat |
| Jeremy Murphy @jeremypmurphy @patientchat A2: If we’re told we only have weeks or months to live, we should pursue palliative holistic options like hospice. Some patients will rally with more health/home support and care. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: @MightyCasey Agreed. I think this is one of the greatest myths/misperceptions about #pallativecare and perhaps why more people aren't receiving it #patientchat |
| Inspire @InspireIsHealth RT @revdrduke: T2: T2: Anyone suffering from pain or discomfort from disease should receive #palliativecare It is appropriate whenever the patient and her doctor determine it is needed. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: Who should receive palliative care? When is it appropriate? #patientchat https://t.co/HpMHxLS6NF |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A. B. It has definitely evolved in this area. Frankly, it started as a nuisance but has improved to be invaluable in negotiating the care of families and individuals afflicted with an illness. #patientchat #PalliativeCare |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T2 Those individuals whose lives and ADLs are being negatively impacted by symptoms of serious conditions should receive palliative care. #patientchat https://t.co/X2U7ETSnHe |
| Jeremy Murphy @jeremypmurphy @patientchat For example, I have a close relative with cancer who was told she had possibly only weeks left. She would be a prime candidate who could benefit from palliative/hospice care. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up...https://t.co/q24OWvXPPM #patientchat |
| Becky Brandt DegenRN @bbhomebody @ShereesePubHlth Great Homer Simpson Gif Shereese! 😀 #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @ShereesePubHlth: T2 Those individuals whose lives and ADLs are being negatively impacted by symptoms of serious conditions should receive palliative care. #patientchat https://t.co/X2U7ETSnHe |
| Tricia Chaney @TRCWriter A2: It's appropriate for serious illness. I think many ppl don't realize you can receive palliative care and continue your regular treatment. It's not end of life care, although it can be a component of that. #patientchat |
| Patient Chat @patientchat T3: What services and benefits can palliative care specialists provide to chronic disease patients and their families? #patientchat https://t.co/tfeiT6d3ht |
| Rev. Dr. Stacey Simpson Duke @revdrduke @bbhomebody @LucyAlexandria I totally agree! Great terminology, making clear it’s not just for terminal cases or end-of-life. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @TRCWriter: A2: A2: It's appropriate for serious illness. I think many ppl don't realize you can receive palliative care and continue your regular treatment. It's not end of life care, although it can be a component of that. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T2: T2: Who should receive palliative care? When is it appropriate? #patientchat https://t.co/HpMHxLS6NF |
| Tami Dew Rich, MBA @bostonheartmom T1 💞this whole-Person definition of #PalliativeCare @power4patients Kara #PatientChat With Millie my late MIL recovering after a fall w/fractures to L6 & C4, At first it was all about Recovery+Rehab Back + Neck brace were HELL; she could not eat... Quickly shifted to her #QOL |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: T3: T3: What services and benefits can palliative care specialists provide to chronic disease patients and their families? #patientchat https://t.co/tfeiT6d3ht |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A2 The families of those with a chronic illness - long-term or not. We think of the "patient" 1st, but the care should be overlapping. We're all caregivers, the needs shift. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T2 Here’s a quick quiz: https://t.co/SVUbCTmT6l #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @lisadbudzinski: T2 Here’s a quick quiz: T2 Here’s a quick quiz: https://t.co/SVUbCTmT6l #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke T3: I feel like I still have a lot to learn about what can be offered. Pain management, obviously, but I realize there’s so much more: physical therapy? occupational therapy? resources for emotional/mental/spiritual well-being? #patientchat #palliativecare |
| Lisa Davis Budzinski @lisadbudzinski This 👇! There needs to be more awareness on the difference between #PalliativeCare & #hospice end of life care #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T3: T3: What services and benefits can palliative care specialists provide to chronic disease patients and their families? #patientchat https://t.co/tfeiT6d3ht |
| Vera Rulon FAHIMA @vrulon T3: #PalliativeCare services should include physical/pain mgt, psychological, social, spiritual, etc. in a team approach #patientchat |
| Patient Chat @patientchat RT @sttrcancer: T2. In a #palliativecare summit, we learned that many patients don't know palliative care is available unless they are dying. This is not the case; more education & access needs to be offered to patients in active treatment. https://t.co/EFky40TIPD #patientchat |
| Tricia Chaney @TRCWriter A3: Respecting patient wishes, values and goals and building treatment/symptom management around what makes life living for them. Giving caregivers tools to manage the bad times on their own. #patientchat |
 | Penny Peters @8Penny8 RT @TRCWriter: A2: A2: It's appropriate for serious illness. I think many ppl don't realize you can receive palliative care and continue your regular treatment. It's not end of life care, although it can be a component of that. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke Support for the family of the patient? Resources for medical decision-making? Help with setting up home environment for accessibility? What else? #patientchat #palliativecare |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Today's #patientchat was influenced by the recent passing of the Palliative Care and Hospice Education and Training Act (PCHETA) in the House. Learn more about PCHETA here: https://t.co/5bI768qaow https://t.co/INBE06Ba1s |
| Vera Rulon FAHIMA @vrulon My walking gallery jacket that depicts experience with my mom during home hospice #palliativecare #patientchat https://t.co/rav4bamC4n |
| Patient Chat @patientchat T4: What are the differences, if any, between palliative care, supportive care, and hospice care? #patientchat https://t.co/bqLcYiULPj |
| STTR Cancer @sttrcancer T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T4: T4: What are the differences, if any, between palliative care, supportive care, and hospice care? #patientchat https://t.co/bqLcYiULPj |
| Vera Rulon FAHIMA @vrulon I'm the one on the right #PatientChat #PalliativeCare |
| Lillian Lake - Host of #SoulNestingChat @llake RT @LucyAlexandria: |
| Tami Dew Rich, MBA @bostonheartmom @lisadbudzinski @patientchat T1 😞That’s just WRONG Lisa! It shows that the definition, use, phrase, impact of just how much #PalliativeCareHasAPRProblem #HowMightFixPalliativeCaresImageProblem #PatientChat Even @ #HebrewSrRehab /Newbridge the @harvardmed Teaching Hospital staff were uneducated abt its use |
| Patient Chat @patientchat RT @LucyAlexandria: |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @vrulon: My walking gallery jacket that depicts experience with my mom during home hospice #palliativecare #patientchat https://t.co/rav4bamC4n |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A3 A voice in the dark. A liason from what is to what can be. A bullhorn of information, directive, and compassion. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @TRCWriter: A3: A3: Respecting patient wishes, values and goals and building treatment/symptom management around what makes life living for them. Giving caregivers tools to manage the bad times on their own. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @vrulon: T3: T3: #PalliativeCare services should include physical/pain mgt, psychological, social, spiritual, etc. in a team approach #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @lisadbudzinski: This 👇! There needs to be more awareness on the difference between #PalliativeCare & #hospice end of life care #patientchat |
| Vera Rulon FAHIMA @vrulon @patientchat T4: Not an expert but suspect that #PalliativeCare is not necessarily for those who are terminal #PatientChat Is supportive care the same as palliative? |
| Rev. Dr. Stacey Simpson Duke @revdrduke T4: Hospice care is usually for end-of-life patients who are no longer seeking treatment to mitigate their disease. #palliativecare is for *anyone* in need of palliation of symptoms. #patientchat |
| Suzie Siegel @SuzieSiegel T3. #Palliativecare can include surgery, radiation and chemo if the intent is to make a cancer patient more comfortable. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @bostonheartmom @patientchat @harvardmed Exactly ✨ It’s frustrating when trying to seek treatment for better quality of life & the centers that can help aren’t even educated correctly #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke A patient can receive #palliativecare even while pursuing treatment to cure disease or extend life. #patientchat |
| Suzie Siegel @SuzieSiegel RT @sttrcancer: T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke I honestly don’t know how supportive care differs from #palliativecare. #patientchat |
| Kevin Freiert @K_SalemOaks @revdrduke #patientchat #palliativecare I learned recently about families having to go through grieving twice in cases where the patient is non-responsive for extended time. |
| Vera Rulon FAHIMA @vrulon @revdrduke My question as well. Don't they refer to the same type of care? #patientchat |
| HealthSparq @HealthSparq @sttrcancer So true - for a very long time I had only thought of #palliativecare this way - so glad to be learning even more every day! #PatientChat |
| HealthSparq @HealthSparq RT @sttrcancer: T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T3 #PalliativeCare provides relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. #patientchat |
| Kevin Freiert @K_SalemOaks #patientchat @hcldr #hitsm @WTFix |
| Patient Chat @patientchat T5: How can a patient ask or learn more about palliative care? HCPs: How can you approach patients about palliative care? #patientchat https://t.co/GPVGqmT4Om |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: T4: T4: What are the differences, if any, between palliative care, supportive care, and hospice care? #patientchat https://t.co/bqLcYiULPj |
 | Dr. Holly Harris @bluelobsta RT @sttrcancer: T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Vera Rulon FAHIMA @vrulon @LucyAlexandria That's interesting. Are the terms converging then? #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T5: How can a patient ask or learn more about palliative care? HCPs: T5: How can a patient ask or learn more about palliative care? HCPs: How can you approach patients about palliative care? #patientchat https://t.co/GPVGqmT4Om |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @lisadbudzinski: T3 #PalliativeCare provides relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. #patientchat |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @SuzieSiegel: T3. #Palliativecare can include surgery, radiation and chemo if the intent is to make a cancer patient more comfortable. #patientchat |
| STTR Cancer @sttrcancer T5. The @theNCI offers excellent resources on #palliativecare (https://t.co/ciPmv1Vkr2) which are informative for both #patients and HCPs. We need to create more open dialogue between patients and HCPs surrounding palliative care to increase education and awareness. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @revdrduke @bbhomebody @LucyAlexandria That’s still the problem nowadays. The misconception that it’s only for end of life conditions #patientchat |
 | Marivaux @MarivauxLaVie RT @ShereesePubHlth: T1 Often #pallativecare gets confused w/ other types of care, like #hospice. But it is actually the management of symptons and side effects for conditions #patientchat https://t.co/TIQ9vh8XuJ |
| Tami Dew Rich, MBA @bostonheartmom T3 Palliative Care Specialists can help people develop realistic achievable goals around their #ADLs #QOL in balance with limiting factors such as #SDOH #PatientChat Although some say PC is “only for serious illness” it’s been useful in my son’s postOp Open♥️Surgical care #CHD |
| Vera Rulon FAHIMA @vrulon @revdrduke @LucyAlexandria just mentioned that #hospice care is now starting to be practiced at any time during an illness in the UK... are the terms converging? #patientchat #PalliativeCare |
| Kevin Freiert @K_SalemOaks @vrulon @LucyAlexandria An important question is how health insurers are defining the terms. #patientchat #palliativecare |
| Rev. Dr. Stacey Simpson Duke @revdrduke T5: A patient can learn more about #palliativecare through online research (as an e-patient, I always start with that!) and of course by asking her doctor. Patient navigators would also be a great resource. #patientchat |
| Suzie Siegel @SuzieSiegel RT @sttrcancer: T5. The @theNCI offers excellent resources on #palliativecare (https://t.co/ciPmv1Vkr2) which are informative for both #patients and HCPs. We need to create more open dialogue between patients and HCPs surrounding palliative care to increase education and awareness. #patientchat |
| Suzie Siegel @SuzieSiegel RT @revdrduke: T5: T5: A patient can learn more about #palliativecare through online research (as an e-patient, I always start with that!) and of course by asking her doctor. Patient navigators would also be a great resource. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @vrulon @LucyAlexandria I have seen this in the U.S. occasionally as well. People intentionally going into hospice care for only a brief time, for extra support and care during intense recovery or rehabilitation. Especially when there isn’t good home support. #patientchat |
| Vera Rulon FAHIMA @vrulon @LucyAlexandria Yes... my mother was in #homehospice I'm not so sure about terms as it's the care that people who need it that is most important #patientchat #palliativecare |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat @jeremypmurphy A5 Carers get caught up in "caring" & resistant to service - as though its a sign of failure or "the end".Community & healthcare can step up. Carers & patients can't know everything. Approach should be compassionate & not judgmental - allow for a feeling of success. #patientchat |
 | Dolores Richards @joyfulkira Hi Everyone! Jumping into the convo #PatientChat |
| Vera Rulon FAHIMA @vrulon T5: Our local health and social services were an excellent resource #palliativecare #patientchat |
| Tami Dew Rich, MBA @bostonheartmom T2 YES @sttrcancer THIS! Coming up with operational definitions of #PalliativeCare & teaching ALL front line Pt Care/Pt Facing staff what it can look like will go a looonnng way to both fixing its image problem and helping MANY MORE People who can benefit from it #PatientChat |
| Rev. Dr. Stacey Simpson Duke @revdrduke Yep! TBH, I still cringe when I hear that my #chemo is #palliative because I reflexively associate that with end-of-life/nothing more can be done, whereas I hope my treatments are extending my life. #patientchat |
| Suzie Siegel @SuzieSiegel T5. Because #palliativecare is a broad term, you also can ask for specific services, such as: Do you offer pet therapy? Is massage available? Do you have a pain management team? It's also good to ask about services earlier, if possible. #patientchat |
| Patient Chat @patientchat BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Lisa Davis Budzinski @lisadbudzinski @revdrduke And that in itself is stressful to a patient ✨ #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: BONUS: BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Inspire @InspireIsHealth RT @revdrduke: T5: T5: A patient can learn more about #palliativecare through online research (as an e-patient, I always start with that!) and of course by asking her doctor. Patient navigators would also be a great resource. #patientchat |
| Vera Rulon FAHIMA @vrulon @lisadbudzinski @revdrduke I so agree... #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: BONUS: BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Vera Rulon FAHIMA @vrulon @patientchat BONUS: Full disclosure - I haven't read PCHETA - I'd like to read it 1st before answering this question... #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T5 Here’s a printable that can be given to Drs, patients, caretakers, family: https://t.co/a8WW5sSeGG #patientchat |
| Vera Rulon FAHIMA @vrulon @patientchat Although - education is paramount in #palliativecare #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @lisadbudzinski: T5 Here’s a printable that can be given to Drs, patients, caretakers, family: T5 Here’s a printable that can be given to Drs, patients, caretakers, family: https://t.co/a8WW5sSeGG #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @patientchat: BONUS: BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @SuzieSiegel: T5. Because #palliativecare is a broad term, you also can ask for specific services, such as: T5. Because #palliativecare is a broad term, you also can ask for specific services, such as: Do you offer pet therapy? Is massage available? Do you have a pain management team? It's also good to ask about services earlier, if possible. #patientchat |
| Dolores Richards @joyfulkira Care with Dignity #PalliativeCare #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @revdrduke: Yep! TBH, I still cringe when I hear that my #chemo is #palliative because I reflexively associate that with end-of-life/nothing more can be done, whereas I hope my treatments are extending my life. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @bostonheartmom: T2 YES @sttrcancer THIS! Coming up with operational definitions of #PalliativeCare & teaching ALL front line Pt Care/Pt Facing staff what it can look like will go a looonnng way to both fixing its image problem and helping MANY MORE People who can benefit from it #PatientChat |
| Tami Dew Rich, MBA @bostonheartmom RT @patientchat: BONUS: BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Lillian Lake - Host of #SoulNestingChat @llake @bostonheartmom @sttrcancer Agree wholeheartedly. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @bostonheartmom: T3 Palliative Care Specialists can help people develop realistic achievable goals around their #ADLs #QOL in balance with limiting factors such as #SDOH #PatientChat Although some say PC is “only for serious illness” it’s been useful in my son’s postOp Open♥️Surgical care #CHD |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Tami Dew Rich, MBA @bostonheartmom RT @LucyAlexandria: |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: BONUS: BONUS: As empowered patients and care partners, what can we do to move Palliative Care and Hospice Education and Training Act (PCHETA) along? #patientchat https://t.co/vcNpQjMCSf |
| Tami Dew Rich, MBA @bostonheartmom RT @LucyAlexandria: |
| Vera Rulon FAHIMA @vrulon CT: When people are in agony, no matter at what stage or reason related to their illness, #PalliativeCare can make the difference in #QualityOfLife #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @ShereesePubHlth: T2 Those individuals whose lives and ADLs are being negatively impacted by symptoms of serious conditions should receive palliative care. #patientchat https://t.co/X2U7ETSnHe |
| Lisa Davis Budzinski @lisadbudzinski CT: #PalliativeCare is different from hospice. Hospice is end of life care. Palliative care is for a better quality of life. So #EOL is different than #QOL in terms of care✨ #patientchat |
| Vera Rulon FAHIMA @vrulon Thank you for the great #patientchat on an important topic: #PalliativeCare |
| Suzie Siegel @SuzieSiegel CT: I should make up a list of all the services & other things that "my" hospitals offer so that I don't forget. Their "palliative" teams may have a narrower focus. I'm also doing this for my home b/c when I'm in pain I may forget. #patientchat |
| STTR Cancer @sttrcancer CT: Thank you @PatientChat for hosting such a wonderful discussion #PatientChat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour |
| Lisa Davis Budzinski @lisadbudzinski Everyone have a wonderful weekend no matter where you are ✨ #patientchat |
 | Joe Babaian 🇺🇦 @JoeBabaian RT @revdrduke: T1: T1: Palliative Care is the management of pain and other disease symptoms. It is not only for end-of-life but is for any stage of treatment. #patientchat #PalliativeCare |
| Patient Empowerment Network @power4patients RT @sttrcancer: T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @sttrcancer: T4. We’ve found that many patients have misconceptions surrounding #palliativecare, and associate it with dying. Palliative care is for any stage of disease and aims to improve quality of life through emotional support, pain management, ect. https://t.co/GMVzrp84mU #patientchat |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, September 7th https://t.co/fbCpGxhRhG Hope to see you there! |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: The next Empowered #patientchat will be Friday, September 7th https://t.co/fbCpGxhRhG Hope to see you there! |
| Patient Chat @patientchat @sttrcancer So glad you could join! #patientchat |
| Inspire @InspireIsHealth #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
 | Parijat - On 🧵s & 🐘 & 💙sky @ParijatDesh The worst advice anyone can give a couple going through #infertility, #fertilitytreatment or #highriskpregnancy is, "You have no control". It is unhelpful & just plain wrong. On this episode, I share with you exactly why and & what to do. https://t.co/W15bIb2j3K #patientchat https://t.co/l3WjOcLNub |
| Patient Chat @patientchat @beth_morton We missed you! Hopefully you ca make the next one on Sept. 7th! #patientchat |
| Inspire @InspireIsHealth Thank you everyone for the great #patientchat today. Have a great weekend! |
 | Terri Lewis, PhD #GratefulToBeVaccinated in TN-6 @tal7291 RT @lisadbudzinski: This 👇! There needs to be more awareness on the difference between #PalliativeCare & #hospice end of life care #patientchat |
 | Richard Kreis @kreisr1 RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Tami Dew Rich, MBA @bostonheartmom CT Gr8 #PatientChat I’ve learned so much! I know there’s a separate #PalliativeCareChat HT @rfberry but since my own #CaregiverX with palli care is limited, I like how this sort of overlapped (@Twitter #Healthcare #hcldr #s4pm #PtRevolution chats are where I learn the MOST😉) |
| Rev. Dr. Stacey Simpson Duke @revdrduke CT: Even though I know that #palliativecare is for any stage of treatment, I still tend to reflexively associate it with end-of-life. I’m grateful for patients, advocates, caregivers, and others for helping me learn and grow in my understanding. #patientchat |
 | Clara Rose Crocker @ClaraRose23 RT @revdrduke: T1: T1: Palliative Care is the management of pain and other disease symptoms. It is not only for end-of-life but is for any stage of treatment. #patientchat #PalliativeCare |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
#patientchat content from Twitter.