#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
FibroFlutters @FibroFlutters
Carole from FibroFlutters here #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Carly Flumer @carlyflumer
@patientchat Hey all! I’m Carly, a #cancersurvivor. #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Jamie Roger @JamieRoger8
Jamie from @SalemOaks joining today. It's been awhile #patientchat I hope everyone had a great summer
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat
Mighty Casey Quinlan @MightyCasey
HAAAIIII Loud mouth #epatient activist pushing for #opendata #openscience and #evidencebased everything here. Also write for @power4patients - actually working on this month's post in another window 🤣 #patientchat
Patient Chat @patientchat
Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story, etc.
Patient Empowerment @power4patients
RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story,…
Patient Chat @patientchat
So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat
Patient Chat @patientchat
There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/gSQ1FtjWcI #patientchat
writer sam @writersamr
Hi, 3x cancer survivor here joining for another #patientchat :)
Patient Chat @patientchat
So here we go… #patientchat
Mary MACK @MaryOCMack
Hi! Mary here joining/lurking...#patientchat
Radha @radhachitale
@patientchat Hi everyone! Radha here, comms director @KidneyCancer. #patientchat
Patient Chat @patientchat
@negronjb Hi J.B.! Don't forget to include #patientchat in all your tweets so we can all see :)
Patient Chat @patientchat
What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat
Patient Empowerment @power4patients
RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started!…
Heather McCullen @H_SalemOaks
#patientchat, as usual picking up my lunch is taking forever. I’ll join for the second half
Kim Emson @kimemson
RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story,…
Kim Emson @kimemson
RT @patientchat: So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussio…
Beth Morton @beth_morton
Hi #patientchat! Beth, joining from Vermont. I live with chronic #migraine and advocate in that community.
Amanda @LAlupusLady
Hi #patientchat Amanda joining from LA. Excited as I recently found out that I am a finalist for #WEGOHealthAwards “Best In Show: Twitter” https://t.co/BaR3aL0Fic
FibroFlutters @FibroFlutters
@LAlupusLady congratulations #patientchat
Patient Chat @patientchat
So great to see all of you this Friday! What's on your mind today? #patientchat
Amanda @LAlupusLady
How can we incorporate #kindness into our patient journey?
J.B. Negrón @negronjb
@patientchat Patient Research Partners it is just an utopic idea or it is really working? #patientchat
writer sam @writersamr
#patientchat Something I've been thinking about lately is how hard it is to not compare my circumstances with those of people who haven't had the same difficulties. Is anyone else the same and how do you keep focused on yourself and the things you have rather than what you don't?
Patient Chat @patientchat
@LAlupusLady Congrats Amanda! 🥳 #patientchat
Patient Chat @patientchat
RT @negronjb: @patientchat Patient Research Partners it is just an utopic idea or it is really working? #patientchat
Mary MACK @MaryOCMack
On my mind is USA’s continued pharmaceutical Price-gouging and the deaths it causes. #patientchat
Amanda @LAlupusLady
How can we as patients with physical conditions help our HCPs understand that our #mentalhealth matters too? #patientchat
Kim Emson @kimemson
#patientchat hi everyone! i help healthcare and patient advocacy through the power of video animations https://t.co/8SOyrnRti9
Patient Chat @patientchat
RT @writersamr: #patientchat Something I've been thinking about lately is how hard it is to not compare my circumstances with those of peop…
Janet M. Kennedy @GetSocialHealth
Your work in social media and #patientEngagement is inspiring Amanda! @LAlupusLady Thanks for all you do! #PatientChat https://t.co/WhkslPqp7S
Patient Chat @patientchat
RT @MaryOCMack: On my mind is USA’s continued pharmaceutical Price-gouging and the deaths it causes. #patientchat
Amanda @LAlupusLady
RT @GetSocialHealth: Your work in social media and #patientEngagement is inspiring Amanda! @LAlupusLady Thanks for all you do! #PatientCha
Amanda @LAlupusLady
RT @patientchat: @LAlupusLady Congrats Amanda! 🥳 #patientchat
Amanda @LAlupusLady
RT @FibroFlutters: @LAlupusLady congratulations #patientchat
Kevin Freiert @K_SalemOaks
Oops... #patientchat
FibroFlutters @FibroFlutters
How the weather is affecting my pain levels, inflammation levels, psoriasis and making my hypersensitivities rage. #patientchat
Carly Flumer @carlyflumer
@writersamr YES! I have major survivor’s guilt all the time. Because I had the “good” cancer (thyroid), I feel like my journey isn’t the same compared to others, and I hate to say it, but I then try to “validate” that I actually had the disease. :/ #patientchat
Patient Chat @patientchat
RT @LAlupusLady: How can we as patients with physical conditions help our HCPs understand that our #mentalhealth matters too? #patientchat
FibroFlutters @FibroFlutters
I' ve been steamrollered 😜 #patientchat
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
Hi everyone! I'm Christie, a patient advocate and trainer from NY. #patientchat
Janet M. Kennedy @GetSocialHealth
Janet Kennedy with the Get Social Health #podcast here for #PatientChat. Very excited to announce the launch of a new podcast I'm hosting for @spencerhealth "People Always, Patients Sometimes." It's on our website (waiting for iTunes OK). https://t.co/EOpJ1UuD5C
Patient Chat @patientchat
RT @FibroFlutters: How the weather is affecting my pain levels, inflammation levels, psoriasis and making my hypersensitivities rage. #pat
FibroFlutters @FibroFlutters
@MaryOCMack yes, it is a sad state of affairs and unfair to those relying on the products #patientchat
Kevin Freiert @K_SalemOaks
@cvhconsulting Hey there. I guess it is early September. I wanted to connect with you. #patientchat
Kim Emson @kimemson
#patientchat agreed! or in general for many sufferers #patientadvocacy to #mentalHealth needs more direction, focus or consideration
Carly Flumer @carlyflumer
@LAlupusLady In the thyroid world, emotions are a huge part of remaining “stable.” I know if I’m off, sometimes my levels will be, too (which are controlled by a medication). Despite my doctor seeing these levels, it’s hard to explain to them. #patientchat
Jamie Roger @JamieRoger8
@beth_morton How have you been Beth? #patientchat
Mighty Casey Quinlan @MightyCasey
RT @LAlupusLady: How can we as patients with physical conditions help our HCPs understand that our #mentalhealth matters too? #patientchat
Jamie Roger @JamieRoger8
@LAlupusLady Congrats Amanda! #patientchat
J.B. Negrón @negronjb
@LAlupusLady There is a lot of work to do regarding taking emotions seriously. Physicians need to understand that health is not only biological but also mental and social. #patientchat
Carly Flumer @carlyflumer
@GetSocialHealth @spencerhealth Yay!! Are you doing any more of the Get Social Health episodes? #patientchat
Amanda @LAlupusLady
During a check up the specialists do their thing and yet do not ask about mental health which definitely impacts my physical health and triggers my symptoms. Wondering why coordinated care doesn’t include #mentalhealth #patientchat
Kevin Freiert @K_SalemOaks
Valid concern. What are your ideas for how prices should be set? #patientchat
Amanda @LAlupusLady
RT @JamieRoger8: @LAlupusLady Congrats Amanda! #patientchat
Mighty Casey Quinlan @MightyCasey
I'm a fan of silo-busting, so I spend a lot of time bouncing from silo to silo (#research, #epatient, #healthpolicy) and reading a metric sh^t ton of ... everything. This hit my radar hard recently: https://t.co/ru1nsa4YHI #patientchat
Jamie Roger @JamieRoger8
@LAlupusLady All care should include an aspect of #mentalhealth This is a key reason why it is often overlooked and missed. #patientchat
Amanda @LAlupusLady
RT @JamieRoger8: @LAlupusLady All care should include an aspect of #mentalhealth This is a key reason why it is often overlooked and misse…
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
@negronjb @LAlupusLady Yes. I think this goes back to the core issue of finding a doctor who will listen, and a good PCP who can help with mental health and referrals. #patientchat
Amanda @LAlupusLady
#patientchat
Patient Empowerment @power4patients
@LAlupusLady Oops, thanks Amanda! #patientchat
J.B. Negrón @negronjb
@LAlupusLady I know it because I am a health psychologist but I am also a person with a disease so I am a wounded healer who knows the best and the worse of both words #patientchat https://t.co/bzZIf5sX52
J.B. Negrón @negronjb
RT @cvhconsulting: @negronjb @LAlupusLady Yes. I think this goes back to the core issue of finding a doctor who will listen, and a good PCP…
Janet M. Kennedy @GetSocialHealth
Yes! I produced and/or hosted 14 podcasts in the past 2 months for @spencerhealth @NCHICAorg and @ncbiotech so @GetSocialHealthhas taken a back seat for now. I am planning on a patient series this fall. #PatientChat https://t.co/DvG7WGqV4l
FibroFlutters @FibroFlutters
@JamieRoger8 @LAlupusLady very true #chronicillness often comes hand in hand with #mentalhealth #patientchat
Carly Flumer @carlyflumer
@MightyCasey How do you keep up with everything? I often feel overwhelmed!! #patientchat
FibroFlutters @FibroFlutters
@carlyflumer @MightyCasey https://t.co/ycqJnrXr8F #patientchat
Carly Flumer @carlyflumer
@GetSocialHealth @spencerhealth @NCHICAorg @ncbiotech Very cool! Feel free to DM me! I would love to know what kind of patients you’re looking for. :) #patientchat
Jamie Roger @JamieRoger8
@negronjb @LAlupusLady Knowing both sides of the battle is a huge advantage in your work. #patientchat
Beth Morton @beth_morton
@JamieRoger8 It's been a tough summer. Always looking to tweak something and hope for improvement, though. How have you been? #PatientChat
Michi Endemann @MichiEndemann
so true #patientchat greetings from Vienna, Austria
J.B. Negrón @negronjb
@cvhconsulting @LAlupusLady Agree! Active listening is crucial but sometimes it is underrated we need more flexibility and connection among health professionals #patientchat
FibroFlutters @FibroFlutters
FibroFlutters originated through a local #mentalhealth charity I was asttending who asked me to set up a #fibro group #patientchat
Mighty Casey Quinlan @MightyCasey
@carlyflumer Worked in net TV news for 20+ years, control rooms w/40+ audio/video sources up simultaneously make you learn how to split attention while maintaining focus. Not easy, or even possible every time, but ... I got skills. And a bifurcated brain 🙃#patientchat
Jamie Roger @JamieRoger8
@beth_morton I've been doing really well. A bit tired lately but nothing unbearable. I think my body is just trying to conserve energy before the conferences we have coming up. #patientchat
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
Yes 👏🏽
Mighty Casey Quinlan @MightyCasey
RT @negronjb: @LAlupusLady There is a lot of work to do regarding taking emotions seriously. Physicians need to understand that health is n…
Jamie Roger @JamieRoger8
Is anyone here attending #2019GGSummit ?? #patientchat
FibroFlutters @FibroFlutters
Also mother hosted by a #fibromyalgia charity, #mentalhealth is sensitive issue that people don't speak up about #patientchat
Kelly Anderson @kelly_archives
RT @GetSocialHealth: Yes! I produced and/or hosted 14 podcasts in the past 2 months for @spencerhealth @NCHICAorg and @ncbiotech so @GetS
J.B. Negrón @negronjb
@JamieRoger8 @LAlupusLady Thanks! But sometimes it is exhausting. It feels like no rest at all because I am either in one role or another 😅. So now I am trying to take more time for me and be one more in the quest of understanding his condition. #patientchat
Carly Flumer @carlyflumer
@MightyCasey And that’s why you’re such a strong #advocate! #patientchat
Jamie Roger @JamieRoger8
@FibroFlutters It's really unfortunate with #mentalhealth that the best treatment is starting a conversation, yet the #stigma surrounding that conversation usually prevents it from happening #patientchat
FibroFlutters @FibroFlutters
RT @JamieRoger8: @FibroFlutters It's really unfortunate with #mentalhealth that the best treatment is starting a conversation, yet the #sti
Kevin Freiert @K_SalemOaks
@MaryOCMack Very few medications came through public funding. tamoxifen is one - what else? The NIH works on basic research - understanding biology. They don't really look for new drugs. #patientchat What would perfect patent reform look like?
Mighty Casey Quinlan @MightyCasey
@carlyflumer I blew past advocate and set fire to #activist ... 😎 #patientchat
Mighty Casey Quinlan @MightyCasey
RT @JamieRoger8: @FibroFlutters It's really unfortunate with #mentalhealth that the best treatment is starting a conversation, yet the #sti
Jamie Roger @JamieRoger8
@negronjb @LAlupusLady Always good to know when you need to quiet one role a bit, especially when it is so easy to wear yourself down. #selfcare #selfawareness #understanding #patientchat
J.B. Negrón @negronjb
RT @JamieRoger8: @FibroFlutters It's really unfortunate with #mentalhealth that the best treatment is starting a conversation, yet the #sti
Carly Flumer @carlyflumer
It’s about 70 degrees out, but it feels more like 50. ❄️ #thyroidcancerFTW #patientchat
Mighty Casey Quinlan @MightyCasey
@JamieRoger8 @FibroFlutters One of the most solid pathways to recovery in that zone is #peersupport - check out @PoetryforPower on that. Certified Peer Specialist = totally a thing, even covered by CMS in some states. #healthfuturism #patientchat
Carly Flumer @carlyflumer
@MightyCasey Yesssss! #patientchat
Kevin Freiert @K_SalemOaks
RT @JamieRoger8: @negronjb @LAlupusLady Always good to know when you need to quiet one role a bit, especially when it is so easy to wear yo…
Amanda @LAlupusLady
RT @negronjb: @LAlupusLady I know it because I am a health psychologist but I am also a person with a disease so I am a wounded healer who…
Amanda @LAlupusLady
RT @MightyCasey: @JamieRoger8 @FibroFlutters One of the most solid pathways to recovery in that zone is #peersupport - check out @Poetryfor
Patient Empowerment @power4patients
RT @MightyCasey: @JamieRoger8 @FibroFlutters One of the most solid pathways to recovery in that zone is #peersupport - check out @Poetryfor
Kevin Freiert @K_SalemOaks
@S4PM
FibroFlutters @FibroFlutters
@JamieRoger8 Yes, you're so right and having the #combo of both from the start helped us to respect each others #anxieties #depression and #stress. We each have different #mentalhealth needs so there's always mutual respect and understanding #patientchat
FibroFlutters @FibroFlutters
RT @MightyCasey: @JamieRoger8 @FibroFlutters One of the most solid pathways to recovery in that zone is #peersupport - check out @Poetryfor
FibroFlutters @FibroFlutters
@MightyCasey @JamieRoger8 @PoetryforPower Thank you great suggestion and now followed #patientchat
Jamie Roger @JamieRoger8
@FibroFlutters BEautiful! so good to hear. #patientchat
Patient Empowerment @power4patients
@writersamr I think this is such a great question. I struggled with it as well, but from the #caregiver perspective. No matter how much I did, it never seemed to be enough. Anyone else feel this way? #patientchat
J.B. Negrón @negronjb
@JamieRoger8 @FibroFlutters This is true. For example last month I was experiencing a lot of anxiety, I visited a psychologist for the first time and he recommends me to have emergency medication just in case a Panic Attack comes back. I am a PSYCHOLOGIST and I WAS RECLUTTANT. That hits me hard #patientchat
Spencer Health Solutions @spencerhealth
Is anyone attending @eyeforpharma #efppatient summit next month? We'll be there and would love to connect. #PatientChat
FibroFlutters @FibroFlutters
@spencerhealth @eyeforpharma In London I am #efpeurope, sadly not #efpphilly #patientchat
Jamie Roger @JamieRoger8
@negronjb @FibroFlutters IMO When your background is in the #mentalhealth field it can be more difficult to realize that the services you provide regularly could also benefit yourself. When I saw a #therapist for the 1st time, I realized how much vicarious trauma I had experienced over time #patientchat
FibroFlutters @FibroFlutters
@negronjb @JamieRoger8 That must have been really testing, can't begin to imagine how hard it was. #patientchat
Spencer Health Solutions @spencerhealth
@FibroFlutters @eyeforpharma (Let me talk to the boss about heading to London - My favorite city!) :-) #PatientChat
FibroFlutters @FibroFlutters
RT @JamieRoger8: @negronjb @FibroFlutters IMO When your background is in the #mentalhealth field it can be more difficult to realize that t…
Tina @LivingWellPain
RT @LAlupusLady: During a check up the specialists do their thing and yet do not ask about mental health which definitely impacts my physic…
FibroFlutters @FibroFlutters
RT @negronjb: @JamieRoger8 @FibroFlutters This is true. For example last month I was experiencing a lot of anxiety, I visited a psychologis…
Spencer Health Solutions @spencerhealth
Is that because you feel you have better self-knowledge or because you feel you can treat yourself? #PatientChat https://t.co/Z5kFeeDSd7
J.B. Negrón @negronjb
@JamieRoger8 @FibroFlutters How on earth I can advocate for throwing down the stigma but then I experienced it. Then I realized that stigma would always be there and is our duty to actively fight against them when even when we are feeling afraid. Yesterday I took my first Lorazepam #patientchat 😎💪
Kevin Freiert @K_SalemOaks
@MaryOCMack So what did you mean about "regulations on new drugs and espec...?" What do you see is broken that could bring prices down? #patientchat
Jamie Roger @JamieRoger8
@spencerhealth I actually think it is more the heightened sense of awareness that you have when talking to clients that by the end of the day you are a little numb to your own needs, and a little sick of talking. #patientchat
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
@LAlupusLady There are a couple of problems. 1. Specialists don't see this as their job and 2. time is limited so even if they wanted to help patients address #mentalhealth, they would probably say they don't have time means to do so... #patientchat
J.B. Negrón @negronjb
RT @FibroFlutters: @JamieRoger8 Yes, you're so right and having the #combo of both from the start helped us to respect each others #anxieti
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
@writersamr @LAlupusLady I'm sorry no one followed through, do you feel comfortable mentioning it at your next appointment? It would be helpful as they can probably refer you to those who deal directly with cancer. Hugs. #patientchat
Kim Emson @kimemson
@JamieRoger8 @FibroFlutters I saw this awesome animation about toxic positivity it was a ted talk thing. cant find it now, but will share here when i find it. i think it describes perfectly what actually happens when people try to talk. #patientchat
FibroFlutters @FibroFlutters
@negronjb @JamieRoger8 I use relaxation & breathing techniques, but have been dealing with #chronicanxietry for approx 2 decades, I had anxiety & pain management, but #socialanxiety is something that is difficult because it sneaks up on you. No medication can help that! #patientchat
Jamie Roger @JamieRoger8
@kimemson @FibroFlutters Would love to see this. #patientchat
Spencer Health Solutions @spencerhealth
@JamieRoger8 It's also because we may compare ourselves to our patient's experiences. "My pain/issue is not as bad as (insert patient name here) so I'll just suck it up." #PatientChat
FibroFlutters @FibroFlutters
@kimemson @JamieRoger8 Great stuff, sounds different #patientchat
juana mata @MataJuanamata
Congratulations!
Jamie Roger @JamieRoger8
@spencerhealth Truth. When in reality, we all have our own battles and even if they seem similar on the surface, they way we are affected COMPLETELY differs. We all need an outlet, and we all need to be aware that sometimes we have to find that outlet. #patientchat
J.B. Negrón @negronjb
@spencerhealth You can know the theory/practice but when your body starts to feel the symptoms, oh boy it is a different story. In my case it makes me realize "damn I am also vulnerable" #patientchat https://t.co/FtvCv67u7r
Patient Chat @patientchat
Greatly enjoyed our free flow discussion this week. Almost time to start gathering your Closing Thoughts for today's chat. #patientchat
Jamie Roger @JamieRoger8
#PREACH #vulnerability #stigma #mentalhealth #patientchat
Jamie Roger @JamieRoger8
@patientchat Woah woah woah, now back up a minute... how is it already time for closing thoughts? #patientchat
FibroFlutters @FibroFlutters
@patientchat that went fast #patientchat
J.B. Negrón @negronjb
RT @FibroFlutters: @negronjb @JamieRoger8 I use relaxation & breathing techniques, but have been dealing with #chronicanxietry for approx 2…
J.B. Negrón @negronjb
RT @JamieRoger8: @negronjb @FibroFlutters IMO When your background is in the #mentalhealth field it can be more difficult to realize that t…
Mighty Casey Quinlan @MightyCasey
@JamieRoger8 @kimemson @FibroFlutters One of the many reasons I embrace my loud/snarky side on the regular is I have zero use for "positivity" as a mental model. I'd prefer to make my anger a controlled, focused, white-hot torch to burn through obstacles to human rights in healthcare. #patientchat
Nigel H @Crohnoid
Sorry I'm very late. Been quite busy today. Drug infusion + signing up for 2 research trials into #crohnsdisease #patientchat
FibroFlutters @FibroFlutters
@JamieRoger8 @patientchat haha my sentiments too convo just getting going LOL great to chat though #patientchat
J.B. Negrón @negronjb
RT @JamieRoger8: @negronjb @LAlupusLady Always good to know when you need to quiet one role a bit, especially when it is so easy to wear yo…
FibroFlutters @FibroFlutters
@MightyCasey @JamieRoger8 @kimemson I started to get that way when I began advocating at conferences channelling it to better use #patientchat
Jamie Roger @JamieRoger8
In other very exciting news, @salemoaks has finally launched their introductory podcast, @ImDevPodcast !! Give it a listen and let us know what you think! #patientchat #pinksocks @S4PM https://t.co/CkaljddOQW
Janet M. Kennedy @GetSocialHealth
I am a fortunate person in that I don't deal with any #Chronicillness issues. That said - some #BPPV Vertigo last weekend made me realize how awful life would be if that were my "normal." Health Warriors - I salute you! #PatientChat
Patient Chat @patientchat
Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat
Mighty Casey Quinlan @MightyCasey
Totally out of left field (my specialty!) but I was at @defcon for the 1st time last month and it was LIT AF. @DC_BHV was IN. SANE. https://t.co/2wUyTwhzjf Can't wait to go back next year. #iamthecavalry #cyberwoke #patientchat
J.B. Negrón @negronjb
@patientchat For a quality care, more time in the consultation is needed... and also for #patientchat ... LOL 😜 https://t.co/hKNpNI4ekW
J.B. Negrón @negronjb
RT @LAlupusLady: How can we as patients with physical conditions help our HCPs understand that our #mentalhealth matters too? #patientchat
FibroFlutters @FibroFlutters
Just in case... here's my site https://t.co/ZFTjjAcGXs #patientchat
Jamie Roger @JamieRoger8
@GetSocialHealth a solid dose of Vertigo is enough to really make you appreciate when you don't have it. #patientchat #empoweredpatient #strength
Sonia @Hawkins65S
RT @FibroFlutters: Just in case... here's my site https://t.co/ZFTjjAcGXs #patientchat
Jamie Roger @JamieRoger8
@SalemOaks is going to be a bit busy in the coming weeks... but we hope we are able to see some of you on our adventures. Check out this article to see where we will be and send us a message if you want to meet up! #patientchat https://t.co/oQmyllahoG
FibroFlutters @FibroFlutters
@negronjb @patientchat 😂 #patientchat
Christie F. VanHorne, M.Ed, MPH @cvhconsulting
@writersamr @LAlupusLady Yes. 💯. You absolutely shouldn't have to, they should include mental health screenings at each appointment. You deserve better. #patientchat
Jamie Roger @JamieRoger8
RT @FibroFlutters: Just in case... here's my site https://t.co/ZFTjjAcGXs #patientchat
Nigel H @Crohnoid
I'm passionate about raising awareness of #bileacidmalabsorption. It is a debilitating condition that many HCPs seem to be oblivious to. I was told about it but didn't realise! I wrote about my experience here - https://t.co/zcKMh4DR4y #patientchat
Jamie Roger @JamieRoger8
It was good to be back for #patientchat this week. I hope everyone continues the conversations and spreading awareness.
writer sam @writersamr
Interesting #patientchat today - unfortunately not surprising that mental health came up so much. I'm starting my PhD in the link between expressive writing and psycho-oncology soon, so please follow me if you want to know more, or take a look at my blog https://t.co/4uXMi3GH9h
Mighty Casey Quinlan @MightyCasey
Getting my 1st #DEFCON badge was nerd heaven for me #patientchat https://t.co/3Eq7iVOsq6
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat! I will tweet out the transcript about 15 minutes past the hour.
Patient Empowerment @power4patients
RT @patientchat: Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat
FibroFlutters @FibroFlutters
My closing thought is that it doesn't matter what caused your #mentalheath issue or which type it is, talking helps #patientchat
Michi Endemann @MichiEndemann
talking abt, promot conferences, healtcare social media and many more interesting things #hcsmeu #doctors20 for DACH region -- see @medtermine
J.B. Negrón @negronjb
Here is the site of my Startup: https://t.co/ZMOnRbt6gZ We are trying to break the taboo around sex in rheumatic diseases #patientchat 🙂
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, September 20th at 1pm ET | 10am PT Hope to see you there! https://t.co/ohwSUGNsmW
Patient Empowerment @power4patients
RT @FibroFlutters: @negronjb @JamieRoger8 I use relaxation & breathing techniques, but have been dealing with #chronicanxietry for approx 2…
Patient Chat @patientchat
Interested in co-hosting an Empowered #patientchat? Reach out to us here or through @power4patients
J.B. Negrón @negronjb
RT @FibroFlutters: My closing thought is that it doesn't matter what caused your #mentalheath issue or which type it is, talking helps #pat
FibroFlutters @FibroFlutters
@negronjb interesting subject for #chronic #EDS #zebras like me 😜 #patientchat
J.B. Negrón @negronjb
RT @patientchat: Interested in co-hosting an Empowered #patientchat? Reach out to us here or through @power4patients
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Jamie Roger @JamieRoger8
Right at the end of #2019GGSummit I'll try to pop in to say hello at least! #patientchat
Mighty Casey Quinlan @MightyCasey
RT @negronjb: Here is the site of my Startup: https://t.co/ZMOnRbt6gZ We are trying to break the taboo around sex in rheumatic diseases #pa
Kim Emson @kimemson
@JamieRoger8 @FibroFlutters Found it. It’s RSA not ted, so that’s why I couldn’t find it. https://t.co/ylusAUYvEh #patientchat if you wanna know how to help your loved one with #mentalhealth must watch.
FibroFlutters @FibroFlutters
RT @patientchat: Interested in co-hosting an Empowered #patientchat? Reach out to us here or through @power4patients
Janet M. Kennedy @GetSocialHealth
I look forward to following the podcast (I also gave you some new Twitter followers)! #PatientChat https://t.co/tDrfG21LFT
Jamie Roger @JamieRoger8
@kimemson @FibroFlutters Thanks #patientchat
Jamie Roger @JamieRoger8
@GetSocialHealth WOooo always a plus. I hope you enjoy the podcast. The next episode will be out soon and features the wonderful @DavidFajgenbaum talking about his own battle and his new book! #patientchat
Cipher In Equality @cipherEquality
RT @patientchat: There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/gSQ1FtjWcI #patientc
John @joltdude
@patientchat People are getting really sick and dying due to preventable diseases and also dying from lack of access and affordable life saving meds such as insulin, epi, just to name a few #patientchat
FibroFlutters @FibroFlutters
@JamieRoger8 @kimemson @negronjb @MightyCasey @GetSocialHealth @spencerhealth @power4patients @patientchat thank you #patientchat
FibroFlutters @FibroFlutters
Apologies if I missed you not enough characters for tweet but thanks everyone #patientchat
J.B. Negrón @negronjb
RT @kimemson: @JamieRoger8 @FibroFlutters Found it. It’s RSA not ted, so that’s why I couldn’t find it. https://t.co/ylusAUYvEh #patientcha
FibroFlutters @FibroFlutters
RT @kimemson: @JamieRoger8 @FibroFlutters Found it. It’s RSA not ted, so that’s why I couldn’t find it. https://t.co/ylusAUYvEh #patientcha
John @joltdude
@patientchat True universal and unfettered access to our PHR/EHR with the ability to export and import it from different providers, clinics, and hospital chains and be able to take it all with you #patientchat
Jamie Roger @JamieRoger8
Great video on the difference between empathy and sympathy. WOrth the watch!! #patientchat #hcldr #htreads #pinksocks @s4pm #carechat
FibroFlutters @FibroFlutters
@kimemson @JamieRoger8 Thank you for seeking it out #patientchat
J.B. Negrón @negronjb
RT @joltdude: @patientchat People are getting really sick and dying due to preventable diseases and also dying from lack of access and affo…
Spencer Health Solutions @spencerhealth
Our "People Always, Patients Sometimes" #podcast will be covering stories about the importance of having patients front & center in clinical trials. If you have a suggestion for a guest or topic, please email podcast@spencerhealthsolutions.com. Thanks! #PatientChat https://t.co/M6zn8bm1fl
Inspire @teaminspire
RT @MightyCasey: I'm a fan of silo-busting, so I spend a lot of time bouncing from silo to silo (#research, #epatient, #healthpolicy) and r…
J.B. Negrón @negronjb
RT @cvhconsulting: @writersamr @LAlupusLady Yes. 💯. You absolutely shouldn't have to, they should include mental health screenings at each…
FibroFlutters @FibroFlutters
RT @spencerhealth: Our "People Always, Patients Sometimes" #podcast will be covering stories about the importance of having patients front…
Jamie Roger @JamieRoger8
RT @spencerhealth: Our "People Always, Patients Sometimes" #podcast will be covering stories about the importance of having patients front…
Richard Kreis @kreisr1
RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started!…
J.B. Negrón @negronjb
RT @spencerhealth: Our "People Always, Patients Sometimes" #podcast will be covering stories about the importance of having patients front…
Sonia @Hawkins65S
RT @spencerhealth: Our "People Always, Patients Sometimes" #podcast will be covering stories about the importance of having patients front…
#patientchat content from Twitter.