#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I'm excited fro today's #patientchat
Patient Chat @patientchat
Please continue with intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Marie Ennis-O'Connor @JBBC
Just joining in on #patientchat - great topic - looking forward to discussing best practices in #patientenagement join me?
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat
Alan Brewington @abrewi3010
Alan here trying to balance work, chat, & pain. #patientchat
Jamie Holloway, PhD @jamienholloway
Hope to participate in the first part of today's #patientchat before I have to head to have a face to face chat with a patient with some questions!
Patient Chat @patientchat
Today's #patientchat topic is Best Practices in Patient Engagement https://t.co/fbCpGxhRhG
Jamie Roger @JamieRoger8
Ready for a great discussion! Looking forward to an engaging discussion to start the end to the work week #patientchat
Patient Empowerment @power4patients
@JBBC Welcome! Thanks for joining, it's great to have an expert on the topic #patientengagement #patientchat
Beth Fand Incollingo @FandIncollingo
Hi, CURE magazine editor here. We go out to patients, survivors and caregivers affected by cancer. #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Jamie Roger @JamieRoger8
@abrewi3010 Hope you are able to provide valuable insight! #patientchat
Jamie Roger @JamieRoger8
Jamie here from CT, finally a nice cool day to break up the heat waves and humidity. Hope you have all had a great week. @salemoaks #patientchat #TGIF
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Marie Ennis-O'Connor @JBBC
@power4patients I'm always learning :-) #patientchat
Patient Chat @patientchat
T1: What does good patient engagement look like to you? #patientchat https://t.co/0iTdEgPW92
Patient Empowerment @power4patients
RT @patientchat: T1: What does good patient engagement look like to you? #patientchat https://t.co/0iTdEgPW92
Becky Brandt RN @bbhomebody
Hi. Becky here from Washington state. RN , patient, advocate and new dog mom. 😀 @Cpnervecenter #patientchat https://t.co/AWsAP3aM5G
Tricia Chaney @TRCWriter
Just making it in time for #patientchat
Alan Brewington @abrewi3010
@JamieRoger8 Hope you are too! “We” makes rising our quality of life easier than “I” #patientchat
Rheumatoid Patient @rheumpatient
Hi. Joining from the UK. I have rheumatoid arthritis and am a Patient Insight Partner @ArthritisRUK and Patient Research Partner @eular_org. #patientchat
Mighty Casey Quinlan @MightyCasey
<runs in late> HAAAAIII !! Casey Quinlan here, loudmouth (@hilarious_is podcaster) patient voice on #science #healthliteracy #opendata and much more. #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T1: What does good patient engagement look like to you? #patientchat https://t.co/0iTdEgPW92
Mighty Casey Quinlan @MightyCasey
@JamieRoger8 @SalemOaks #patientchat https://t.co/z3GCOuqTLu
Becky Brandt RN @bbhomebody
@abrewi3010 Hi Alan🖐 #patientchat
Jamie Holloway, PhD @jamienholloway
T1: Good patient engagement means including the voice of all affected patients along the entire basic-translational-clinical-drug development spectrum. #patientchat
Heather McCullen @H_SalemOaks
Hi #patientchat, just got home from grabbing lunch
Jamie Holloway, PhD @jamienholloway
@MightyCasey @hilarious_is Hi Casey!!! long time, no chat! #patientchat
Geeky Fox @TechKitsune
A1: Something as simple as catching up with how my day was, listening to the problem, finding solutions, following up with me on results. Really making sure I'm ok and engaged in getting better, rather than making me feel like I'm a number. #patientchat
Mighty Casey Quinlan @MightyCasey
@jamienholloway @hilarious_is I know! <sad face> #patientchat
Alan Brewington @abrewi3010
@bbhomebody Hi 👋 #patientchat
Jabeen Ahmad @jabeenahmad01
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Jamie Roger @JamieRoger8
@abrewi3010 SO much truth in that statement #patientchat
Mighty Casey Quinlan @MightyCasey
From the Mighty Casey Media archives, this: https://t.co/g6o5KThsk0 In re #patientengagement and still true. #patientchat
Tricia Chaney @TRCWriter
T1: Improving health literacy and numeracy helps engagement. Poorly informed patients are hard to actively engage in their care. #patientchat
Barby Ingle 📣 @BarbyIngle
T1. Just like my treatment, a multi-modality approach social media, in person, in community, in public, in print, sky writting and even fortune cookies at some points. Whatever it takes #ihavethenervetobeheard #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up...https://t.co/ui85HmS4tH #patientchat
Alan Brewington @abrewi3010
A1 patient engagement happens when everyone is included. The entire team is a part of my QOL journey. #patientchat
Patient Empowerment @power4patients
T1: I think #patientengagement and #patientempowerment are synonymous. An empowered patient is engaged and an engaged patient is empowered. #patientchat
Patient Chat @patientchat
T2: Should all patients be engaged? What do we have to gain? What do we have to lose if we aren’t engaged? #patientchat https://t.co/ni6B6iJX4B
Patient Empowerment @power4patients
RT @TRCWriter: T1: Improving health literacy and numeracy helps engagement. Poorly informed patients are hard to actively engage in their c…
Becky Brandt RN @bbhomebody
T1- Patients have a comfortable relationship with their healthcare providers, discussions are 2 sided and decisions are made together, for everything! #patientchat
Patient Empowerment @power4patients
RT @MightyCasey: From the Mighty Casey Media archives, this: https://t.co/g6o5KThsk0 In re #patientengagement and still true. #patientchat
Melissa VanHouten @melissarvh
T1 Forgot the hashtag! #PatientChat
Heather McCullen @H_SalemOaks
Just realized that it doesn't appear to b syncing with twitter properly (again) catching up in https://t.co/RsjjDciSuD now #patientchat
Patient Chat @patientchat
RT @bbhomebody: T1- Patients have a comfortable relationship with their healthcare providers, discussions are 2 sided and decisions are mad…
Your GPS Doc, LLC @yourgpsdoc
Hi, I’m Nicole Rochester, physician, former caregiver, and CEO of Your GPS Doc, LLC. Late to the party today. It’s been awhile since I could join and I’ve missed you all! #patientchat
Jamie Roger @JamieRoger8
#patientchat is #notworking right now for me!
Rheumatoid Patient @rheumpatient
@H_SalemOaks I thought it was just me having that problem. I don't even know what the first question is! Will try https://t.co/oAKdm8KW5h. Thanks. #patientchat
Becky Brandt RN @bbhomebody
@JamieRoger8 @Cpnervecenter Thanks so much! I love her to pieces already😀💖 #patientchat
Mighty Casey Quinlan @MightyCasey
A1: Simple - it's an open dialogue between patient-person and clinical-person, with an equally open heart/mind on both sides. Start there FTW. Always. Just don't forget the #science (that's on both sides, too). #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T2: Should all patients be engaged? What do we have to gain? What do we have to lose if we aren’t engaged? #patientchat ht…
Alan Brewington @abrewi3010
A1 me smiling while I take my #percocet because I still have hope for controlling my #chronicpain. That’s patient engagement. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T2: Should all patients be engaged? What do we have to gain? What do we have to lose if we aren’t engaged? #patientchat ht…
Jamie Roger @JamieRoger8
@abrewi3010 it's impactful to say your QoL journey, not your journey to a cure or your journey through treatment #patientchate #patientchat
Heather McCullen @H_SalemOaks
@JamieRoger8 @JamieRoger8 try it on https://t.co/RsjjDciSuD #patientchat
Becky Brandt RN @bbhomebody
@BarbyIngle Hi Barby- I vote Yes to fortune cookies! 😀 #patientchat
Your GPS Doc, LLC @yourgpsdoc
A1: Good patient engagement means putting the patient FIRST and at the CENTER of all discussions and care decisions. It means taking the time to discover what is important for the patient and their caregivers. #patientchat
Jamie Roger @JamieRoger8
RT @patientchat: T2: Should all patients be engaged? What do we have to gain? What do we have to lose if we aren’t engaged? #patientchat ht…
Patient Empowerment @power4patients
RT @yourgpsdoc: A1: Good patient engagement means putting the patient FIRST and at the CENTER of all discussions and care decisions. It mea…
Beth Fand Incollingo @FandIncollingo
Engaged patients ask their doctors lots of questions, which can help immensely with treatment decisions and at-home care. #patientchat
Melissa VanHouten @melissarvh
T2 Well, I cannot make that decision for others but I believe it improves outcomes & patient satisfaction. Also believe HC providers should make every attempt to find ways to comfortably engage every patient. #PatientChat
Barby Ingle 📣 @BarbyIngle
T2. At different levels, not all are comfortable sharing personal info or having a spotlight, some even have something to lose like wc being too active or engaged. #patientchat
Tricia Chaney @TRCWriter
T2: all pts should be engaged as much as possible. They carry increasing burden of cost & have to live w/QOL outcomes of their illness and treatment. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @MightyCasey: A1: Simple - it's an open dialogue between patient-person and clinical-person, with an equally open heart/mind on both sid…
Tricia Chaney @TRCWriter
RT @yourgpsdoc: A1: Good patient engagement means putting the patient FIRST and at the CENTER of all discussions and care decisions. It mea…
Your GPS Doc, LLC @yourgpsdoc
@bbhomebody @Cpnervecenter She’s adorable! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @FandIncollingo: Engaged patients ask their doctors lots of questions, which can help immensely with treatment decisions and at-home car…
Alan Brewington @abrewi3010
@JamieRoger8 I’m not greedy, a higher QOL keeps me fighting which is all I want and control. A cure will happen by someone else’s journey, I’m not a scientist. #patientchat
Jamie Roger @JamieRoger8
@MightyCasey @SalemOaks NOT A BAD THING #patientchat #allthegifs #enjoylife
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T1: I think #patientengagement and #patientempowerment are synonymous. An empowered patient is engaged and an engaged p…
Patient Chat @patientchat
RT @FandIncollingo: Engaged patients ask their doctors lots of questions, which can help immensely with treatment decisions and at-home car…
Becky Brandt RN @bbhomebody
@yourgpsdoc @Cpnervecenter Awww thanks! I agree-I can't stop picking her up! #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up...https://t.co/ui85HmS4tH #patientchat
Jamie Roger @JamieRoger8
RT @yourgpsdoc: A1: Good patient engagement means putting the patient FIRST and at the CENTER of all discussions and care decisions. It mea…
Patient Chat @patientchat
T3: Where do you think meaningful patient engagement falls short? #patientchat https://t.co/MdxPDpAGdz
Patient Empowerment @power4patients
RT @patientchat: T3: Where do you think meaningful patient engagement falls short? #patientchat https://t.co/MdxPDpAGdz
Mighty Casey Quinlan @MightyCasey
A2: not every patient can be engaged. It depends on capacity for each individual human. F'rinstance, my 'rents in last few years of lives - I was engaged, and they trusted me. #dementia - the struggle is real #patientchat
Alan Brewington @abrewi3010
A2 all patients don’t need to be engaged. Our healthcare system needs to evolve so engagement is a choice, not a need like right now. #patientchat
Patient Empowerment @power4patients
T3: Health literacy -- specifically lack thereof -- is the biggest barrier to meaningful #patientengagement and #patientempowerment #patientchat
Your GPS Doc, LLC @yourgpsdoc
A2: If at all possible, yes all patients should be engaged. Without engagement, decisions are made for you without your input. I recognize there are times when engagement may seem like a burden to patients, who are just trying to get better. #patientchat
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
RT @power4patients: T3: Health literacy -- specifically lack thereof -- is the biggest barrier to meaningful #patientengagement and #patien
Jamie Roger @JamieRoger8
@abrewi3010 Interesting perspective on the topic. #patientchat
Alan Brewington @abrewi3010
A3 until healthcare is a human right the caring will always be lacking. Can’t engage without caring. #patientchat
Becky Brandt RN @bbhomebody
T3 Length of appointments is a big failure! Sometimes 15 min is fine, but when I have problems I need the appropriate time to discuss them! Also, alternative treatments should be covered! It's crazy how much insurance holds us back! #patientchat
Geeky Fox @TechKitsune
A3: Sorry had a hiccup. It falls short when assumed everything is ok. Or when we aren't engaged and things fall wayside. Also sometimes automation to make things easier gets annoying and robotic, like it's our babysitter instead of helping us and the clinician. #patientchat
Barby Ingle 📣 @BarbyIngle
T3. PTs following movements blindly, trying to have too many challenges as a focus, and investing more than they have to give putting themselves in a flare trying to keep up w others. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@abrewi3010 Alan, you’ve sparked my curiosity. What does a healthcare system look like where the patient doesn’t need to engage? #patientchat
Alan Brewington @abrewi3010
@JamieRoger8 🙏🙏🙏🙏 #patientchat
Beth Fand Incollingo @FandIncollingo
True, @MightyCasey. Caregivers need to be engaged, too. We recently published this article that encourages caregivers to bring questions to doctors' appointments and take good notes. https://t.co/L4kEjMhTzm #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up...https://t.co/ui85HmS4tH #patientchat
Mighty Casey Quinlan @MightyCasey
A3: another archive thang, this one straight from @power4patients (and yours truly, their #healthliteracy + #sciencenews reporter): https://t.co/JdelALXdlm #patientchat
Your GPS Doc, LLC @yourgpsdoc
A3: I think many healthcare organizations use #patientengagement as a buzz word so they can say they checked the box. It needs to be genuine and guided by what patients actually say they want and need. #patientchat
Patient Empowerment @power4patients
@MightyCasey Agreed. We should be talking in terms of patient AND carepartner engagement. Sometimes it's both and sometimes it's up to one or the other. Care partners are often overlooked and underutilized in #patietnengagement #patientchat
Patient Empowerment @power4patients
RT @MightyCasey: A3: another archive thang, this one straight from @power4patients (and yours truly, their #healthliteracy + #sciencenews r…
Alan Brewington @abrewi3010
@yourgpsdoc When I can go to a doctor without filing out 12 forms on my insurance and payment options. #patientchat
Patient Empowerment @power4patients
RT @FandIncollingo: True, @MightyCasey. Caregivers need to be engaged, too. We recently published this article that encourages caregivers t…
Tricia Chaney @TRCWriter
T3: I agree with all the other answers and would add lack of time as a barrier as well. #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T3: Where do you think meaningful patient engagement falls short? #patientchat https://t.co/MdxPDpAGdz
Patient Chat @patientchat
T4: What are some high-impact patient engagement strategies? #patientchat https://t.co/N43b1iY9iz
Your GPS Doc, LLC @yourgpsdoc
RT @FandIncollingo: True, @MightyCasey. Caregivers need to be engaged, too. We recently published this article that encourages caregivers t…
Patient Empowerment @power4patients
RT @patientchat: T4: What are some high-impact patient engagement strategies? #patientchat https://t.co/N43b1iY9iz
Melissa VanHouten @melissarvh
T3 Not sure it is individualized enough. Not a one approach fits all. Patients & providers must be open and willing to communicate and try new approaches when old standards fail. #patientchat
Alan Brewington @abrewi3010
@yourgpsdoc When healthcare designs solutions for me as a specific human, not part of a market share. #patientchat
Your GPS Doc, LLC @yourgpsdoc
Absolutely true! #patientchat
Jamie Roger @JamieRoger8
RT @power4patients: @MightyCasey Agreed. We should be talking in terms of patient AND carepartner engagement. Sometimes it's both and somet…
AutonomicRN© @AutonomicRN
So sorry to be missing #patientchat today!! Doctors...you know how it goes! Just wanted to say hi 👋 to everyone 😊
Barby Ingle 📣 @BarbyIngle
T4. Never give up, know you don't have to be perfect, don't give up 1 person is a win, do it your way at your level and ability. Don't hurt yourself to help another. #patientchat
Becky Brandt RN @bbhomebody
@AutonomicRN Hi Kimmy-poo! 💖 #patientchat
Geeky Fox @TechKitsune
A4: Though I don't really use one, things like fit bit and texting in my generation really help. I get texts for my refills which reminds me to get them or when I need to go in. Simple yet useful in reminding me to do something. Tech wise. #patientchat
Alan Brewington @abrewi3010
A4 get caregivers involved more. #patientchat
Your GPS Doc, LLC @yourgpsdoc
A4: As a physician, something I found to be powerfully effective and simple to implement was to say at the end of every encounter, "What questions can I answer for you today?" This (rather than the alternative, "Do you have any questions?") led to meaningful convos. #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up...https://t.co/ui85HmS4tH #patientchat
Your GPS Doc, LLC @yourgpsdoc
I second this! #patientchat
Alan Brewington @abrewi3010
A4 get patients involved in medical schools along with design thinking methodology. #patientchat
Patient Chat @patientchat
T5: Tell us about your experiences, learnings, and tips for successful patient engagement. #patientchat https://t.co/jaarrGOkh0
#DigitalHealth Futurist 👨‍💻 @ManeeshJuneja
RT @MightyCasey: A2: not every patient can be engaged. It depends on capacity for each individual human. F'rinstance, my 'rents in last few…
Patient Empowerment @power4patients
T4: Besides engaging care partners more, here's a toolkit we created to help #patientengagement: https://t.co/hzxEF67ZqF #patientchat
Mighty Casey Quinlan @MightyCasey
A3: pretty much everywhere. It's difficult to make appointments. #HIPAA is misinterpreted WILDLY by most providers. Portals are a sh*t show (poly-portalitis syndrome much?). CLIPBOARDS. F***ING CLIPBOARDS. #patientchat
#DigitalHealth Futurist 👨‍💻 @ManeeshJuneja
RT @MightyCasey: A1: Simple - it's an open dialogue between patient-person and clinical-person, with an equally open heart/mind on both sid…
Patient Empowerment @power4patients
RT @patientchat: T5: Tell us about your experiences, learnings, and tips for successful patient engagement. #patientchat https://t.co/jaarr…
#DigitalHealth Futurist 👨‍💻 @ManeeshJuneja
RT @TechKitsune: A4: Though I don't really use one, things like fit bit and texting in my generation really help. I get texts for my refill…
Mighty Casey Quinlan @MightyCasey
A3: and let's not talk about COST or ACCESS issues for millions of folks in the USofA. Wowzer. #patientchat
Becky Brandt RN @bbhomebody
T4 Longer appt times can help ALOT! Bring notes &/or keep daily pain journal(include temp, barometric pressure activity level, meds etc) to prove your points. #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: A4: As a physician, something I found to be powerfully effective and simple to implement was to say at the end of every enc…
Marie Ennis-O'Connor @JBBC
Agree! #patientchat
#DigitalHealth Futurist 👨‍💻 @ManeeshJuneja
RT @abrewi3010: A4 get patients involved in medical schools along with design thinking methodology. #patientchat
Becky Brandt RN @bbhomebody
RT @power4patients: T4: Besides engaging care partners more, here's a toolkit we created to help #patientengagement: https://t.co/hzxEF67Zq…
Alan Brewington @abrewi3010
RT @JBBC: Agree! #patientchat https://t.co/dVeNB6XS59
Tricia Chaney @TRCWriter
T4: leverage technology for improved communication and efficiency to have more time w/pts and keep in touch out of office. But fine line between engaging and being impersonal w/technology. #patientchat
Becky Brandt RN @bbhomebody
@TechKitsune Awesome! I want texts! I'll have to ask about that! #patientchat
Geeky Fox @TechKitsune
T5: As stated before, texting, listening, follow up. Worst Drs I've had were ones telling me I'm too young. Best ones refer me just to check on my concerns, even if it's nothing. Best ones chat, worst ones stare at a screen and look like they want to leave. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @TRCWriter: T4: leverage technology for improved communication and efficiency to have more time w/pts and keep in touch out of office. B…
Your GPS Doc, LLC @yourgpsdoc
A5: When people know that you genuinely care about them and have their best interest as your priority, engagement happens naturally. Patients and caregivers are no different. We make these things too difficult. #patientchat
Patient Empowerment @power4patients
T5: Here are some great tips from @JBBC on our blog: https://t.co/7GRFXJxHwx #patientengagement #patientchat
Becky Brandt RN @bbhomebody
@yourgpsdoc @patientchat I love that! Open ended questions can get the discussion going! 👍👍👍#patientchat
Mighty Casey Quinlan @MightyCasey
A4: might sound like outta left field, but WHAT ABOUT UNIVERSAL COVERAGE. Like, everybody in, nobody out, fo' realsies. That's Job 1 on this topic. Many Americans avoid #healthcare system entirely due to cost panic (totally justified). #patientchat
Mighty Casey Quinlan @MightyCasey
RT @power4patients: T5: Here are some great tips from @JBBC on our blog: https://t.co/7GRFXJxHwx #patientengagement #patientchat
Alan Brewington @abrewi3010
A5 mistakes happen, sometimes often. These are human centered mistakes which means there are human centered solutions. Work the problem, solutions will happen. #patientchat
Patient Chat @patientchat
Topic 6 (T6:) coming up...https://t.co/ui85HmS4tH #patientchat
Mighty Casey Quinlan @MightyCasey
A4: hard to feel "engaged" by system that seems dedicated to wallet biopsies and wealth transfer on blast. #patientchat
Alan Brewington @abrewi3010
RT @power4patients: T5: Here are some great tips from @JBBC on our blog: https://t.co/7GRFXJxHwx #patientengagement #patientchat
Patient Chat @patientchat
T6: How can we enable more patients to become engaged in their care? What are the barriers? #patientchat https://t.co/SMz5ozVQhf
Alan Brewington @abrewi3010
RT @MightyCasey: A4: might sound like outta left field, but WHAT ABOUT UNIVERSAL COVERAGE. Like, everybody in, nobody out, fo' realsies. Th…
Lanzule Inc. @lanzule
RT @power4patients: T3: Health literacy -- specifically lack thereof -- is the biggest barrier to meaningful #patientengagement and #patien
Patient Empowerment @power4patients
RT @patientchat: T6: How can we enable more patients to become engaged in their care? What are the barriers? #patientchat https://t.co/SMz5…
Mighty Casey Quinlan @MightyCasey
A5: My general rule re MD/NP selection is "youngest female clinician in practice" - has worked out well most of the time. #patientchat
Beth Fand Incollingo @FandIncollingo
RT @power4patients: T4: Besides engaging care partners more, here's a toolkit we created to help #patientengagement: https://t.co/hzxEF67Zq…
Becky Brandt RN @bbhomebody
T5 Getting to know my doctor as a human with a life is so important, and vice versa, especially after we've spent a decade together! Notes, notes, notes-Keep track of EVERYTHING! And Be kind if you can, we all have our moments, but kindness gets me further. #patientchat
Alan Brewington @abrewi3010
A5 doctors, nurses, pharmacy are not our enemy, they are our friends & fighters. Communication stops when we think otherwise #patientchat
#DigitalHealth Futurist 👨‍💻 @ManeeshJuneja
RT @MightyCasey: A4: might sound like outta left field, but WHAT ABOUT UNIVERSAL COVERAGE. Like, everybody in, nobody out, fo' realsies. Th…
Patient Empowerment @power4patients
@abrewi3010 Well said, sir! #patientengagement #patientchat
Your GPS Doc, LLC @yourgpsdoc
A6: Some of the barriers to patient engagement are poor access to care, poor health literacy, low-empathy providers, and a ridiculously complicated healthcare system. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @abrewi3010: A5 doctors, nurses, pharmacy are not our enemy, they are our friends & fighters. Communication stops when we think otherwis…
Nancy Kusmaul, PhD, MSW @nancy_kusmaul
But also acknowledging and openly discussing when patients and caregivers have different goals. #patientchat
Nancy Kusmaul, PhD, MSW @nancy_kusmaul
RT @FandIncollingo: True, @MightyCasey. Caregivers need to be engaged, too. We recently published this article that encourages caregivers t…
Becky Brandt RN @bbhomebody
@MightyCasey 👍👍👍Nice approach! #patientchat
Mighty Casey Quinlan @MightyCasey
A5: Another tack I take is bringing in my own questions, with research to add context to those questions. Also, for planned visits where labs will be part of discussion ... BLOOD DRAW DAYS AHEAD. Let's have DATA vs "make another folo-up appt" 🙄 #patientchat
Alan Brewington @abrewi3010
@power4patients Thank you 🙏🙏🙏 #patientchat
Barby Ingle 📣 @BarbyIngle
T5. Be yourself. If it's too much it's ok. We are not meant to do everything #patientchat
Geeky Fox @TechKitsune
A6: Asking questions, some people are nervous about voicing concerns. I have to pry my mom a million times to tell DRs what's wrong. That feeling of being a burden sometimes carries over to visits. #patientchat
Nancy Kusmaul, PhD, MSW @nancy_kusmaul
Hi #patientchat! Coming in late to this one. I'm an assistant professor in Social Work who studies #PatientExperience and direct care staff experiences in #healthcare organizations. #organizationalculture #traumainformed
Geeky Fox @TechKitsune
@TRCWriter Meee too, and then people get surprised that someone my age had a heart attack, or that kids get cancer. Age has nothing to do with it sometimes. It just happens. #patientchat
Tricia Chaney @TRCWriter
RT @nancy_kusmaul: But also acknowledging and openly discussing when patients and caregivers have different goals. #patientchat https://t.…
Barby Ingle 📣 @BarbyIngle
T6. Teach them how to organize, their pt responsibilities, how to communicate effectively w their providers #patientchat
Mighty Casey Quinlan @MightyCasey
A5: All of which is to say 1. Do your homework 2. Ask questions 'til you get answers you understand 3. Look for younger clinicians who get #epatient POV 4. Suggest improvements if you see an opportunity 5. Show up, team up, work it #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T6: How can we enable more patients to become engaged in their care? What are the barriers? #patientchat https://t.co/SMz5…
Patient Chat @patientchat
Time to start sharing closing thoughts (CT:) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T5: Tell us about your experiences, learnings, and tips for successful patient engagement. #patientchat https://t.co/jaarr…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T4: What are some high-impact patient engagement strategies? #patientchat https://t.co/N43b1iY9iz
Patient Empowerment @power4patients
RT @MightyCasey: A5: All of which is to say 1. Do your homework 2. Ask questions 'til you get answers you understand 3. Look for younger c…
Mighty Casey Quinlan @MightyCasey
@bbhomebody #patientchat https://t.co/q4ui3mYT5G
Patient Empowerment @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT:) on what you learned, were reminded of or can implement. Start your tweet with…
Nancy Kusmaul, PhD, MSW @nancy_kusmaul
@MightyCasey I love your strategies, but don't assume an older clinician won't embrace #epatient POV. There can be incorrect assumptions in both directions. #patientchat
Alan Brewington @abrewi3010
A6 promote more human centered empathy vs balance sheet competition. Promote more conferences like #medx that operated under “everyone included” #patientchat
Becky Brandt RN @bbhomebody
T6 We need to share our experience & #patientperspectives with other patients-we learn ALOT from one another. Being our own best advocate is important, and teaching others about what we need is imperative, especially caregivers, family, & friends. #patientchat
Your GPS Doc, LLC @yourgpsdoc
CT: Patient engagment is not a buzz word for marketing brochures and board room conversations. It's a REAL thing and involves REAL people who need healthcare providers and systems to show up for them in a genuine manner. #patientchat
Annette McKinnon @anetto
T6 People are more likely to be become engaged in their care if they are working to a known goal and receive some encouragement #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: CT: Patient engagment is not a buzz word for marketing brochures and board room conversations. It's a REAL thing and involv…
Patient Empowerment @power4patients
CT: empathy + health literacy + open dialogue + care partner involvement = #patientengagement #patientchat
nobism @nobismhealth
RT @nancy_kusmaul: Hi #patientchat! Coming in late to this one. I'm an assistant professor in Social Work who studies #PatientExperience
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour
Mighty Casey Quinlan @MightyCasey
A6: In US, it's access and cost. Universal coverage, with REAL access, partic to primary care and DENTAL, is where we gotta start. Everything else is downstream from there. #rightcare #patientchat
Geeky Fox @TechKitsune
CT: Age shouldn't be a factor in not checking. Clinicians need tools like texting and other ways to engage. More questions possibly more answers. @yourgpsdoc said it best, it's not a buzzword! #patientchat
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, Sept. 21st at 1pm ET | 10am PT https://t.co/oj5JnnzN5p Hope to see you there!
Alan Brewington @abrewi3010
CT we all got lots of hurt which means we will have bad days, weeks. That said, we still have a right to lots of fun. It’s ok to be ok too! #patientchat
Becky Brandt RN @bbhomebody
CT We all have an important story. Share your story and listen to others to learn even more. You always have a say in the details of your treatment plan. Fight for what you need and ask others to fight for you if you're tired. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat Thanks for a wonderful #patientchat!
Patient Chat @patientchat
So glad I got to spend some time w/ you all thinking about healthcare and how to make it better. Have a great weekend everyone! #patientchat
Patient Chat @patientchat
RT @bbhomebody: CT We all have an important story. Share your story and listen to others to learn even more. You always have a say in the d…
Becky Brandt RN @bbhomebody
@anetto Great point! Goals are so important! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @bbhomebody: CT We all have an important story. Share your story and listen to others to learn even more. You always have a say in the d…
Jeremy Murphy @jeremypmurphy
RT @patientchat: The next Empowered #patientchat will be Friday, Sept. 21st at 1pm ET | 10am PT https://t.co/oj5JnnzN5p Hope to see you the…
Tricia Chaney @TRCWriter
T6: More wellness focus. I find I don’t want to engage with providers because they only seem interested in giving advice if I’m sick. Keep pts healthy & build relationship so they can come to u when sick. #patientchat
Lanzule Inc. @lanzule
RT @yourgpsdoc: A1: Good patient engagement means putting the patient FIRST and at the CENTER of all discussions and care decisions. It mea…
#patientchat content from Twitter.