#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
– ().
See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Empowerment Network @power4patients RT @patientchat: Here’s an article with more tips for participating in tweet chats: Here’s an article with more tips for participating in tweet chats: https://t.co/5JyoTGNAnf #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with others on the topic. |
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Hi #patientchat’ers! I’m Kara from @power4patients and I’m excited about today’s chat! |
 | Carly Flumer (she/her) @carlyflumer @patientchat Hey, it’s Carly. I’m a cancer survivor. :) #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Ody @OdyO11 @patientchat Hi, I'm a patient with a rare (or rather: rarely diagnosed) disease from Europe. Patient burnout is an important topic, so I'm happy to participate in the chat today! #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
 | mary @zebrafinch RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with others on the topic. |
| mary @zebrafinch RT @patientchat: Join us for an Empowered #patientchat "Patient Experience: Join us for an Empowered #patientchat "Patient Experience: Let’s Talk Patient Burnout" on Friday 9/20 10amPT | 1pmET https://t.co/zeI5qP10s8 https://t.co/JFdhgnFiEz |
| mary @zebrafinch RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/EcT9iwfHvi #patientchat |
| mary @zebrafinch RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Inspire @InspireIsHealth RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Patient Experience: Let’s Talk Patient Burnout https://t.co/ohwSUGNsmW https://t.co/55v3VdPzqq |
| Patient Empowerment Network @power4patients @OdyO11 @patientchat Hello and welcome! We're so glad you're here. And we agree 100%, patient burnout is a very important topic to discuss #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
| mary @zebrafinch RT @abrewi3010: @HugoOC is an #epatient GOAT (greatest of all time). #patientchat #medx #WEGOHealthChat #hcsm |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at the front of every answer - hard to remember but helpful! #patientchat |
| Patient Empowerment Network @power4patients @carlyflumer @patientchat Hey Carly! Happy Friday :) #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| mary @zebrafinch Hospitals, in my experience, are really bad, non-healing, and frequently abusive places for patients with some chronic illnesses, even when the patient is in some crisis. |
 | RaquelRoschell @raquelonpurpose RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
| Carly Flumer (she/her) @carlyflumer @power4patients @patientchat Hi there! #patientchat |
| Patient Chat @patientchat T1: What are the signs that you or a loved one may be experiencing patient burnout? #patientchat https://t.co/FLivdZq4b2 |
| mary @zebrafinch RT @patientchat: Did you miss last week's Empowered #patientchat? Don't worry, check out the top tweets and highlights here: Did you miss last week's Empowered #patientchat? Don't worry, check out the top tweets and highlights here: https://t.co/NDAZjF8H43 https://t.co/fYEzgrKIW3 |
| RaquelRoschell @raquelonpurpose RT @patientchat: Today's #patientchat topic is Patient Experience: Today's #patientchat topic is Patient Experience: Let’s Talk Patient Burnout https://t.co/ohwSUGNsmW https://t.co/55v3VdPzqq |
| mary @zebrafinch RT @abrewi3010: @710dot9 is a must see! #medx #patientchat |
| mary @zebrafinch RT @patientchat: Join/Share: "Patient Experience: Join/Share: "Patient Experience: Let’s Talk Patient Burnout" Empowered #patientchat Friday 9/20 1pmET #epatient #ptexp #s4pm #hcsm #hcsmca #hcldr https://t.co/zeI5qP10s8 https://t.co/XIfMt28KA8 |
| mary @zebrafinch RT @steveathon: I haven't joined this chat before, but will be joining #patientchat this week to talk about Patient Experience and the impact of Chronic Illness on patients, friends, and family. Stay tuned. |
| mary @zebrafinch RT @patientchat: What are the signs you or a loved you may be experiencing patient burnout? Let's discuss this Friday 9/20 at 1pmET during the Empowered #patientchat https://t.co/zeI5qP10s8 https://t.co/ImDdtf1jy7 |
| RaquelRoschell @raquelonpurpose @patientchat Hello! Raquel in TX living with Arthritis and Lupus. Glad to have stumbled upon the chat. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat I would say when you’re overwhelmed with information you’re receiving from a care team. It could also be emotionally-related where treatment or caregiving starts to feel like a burden. #patientchat |
| mary @zebrafinch @patientchat Define the burnout pls. #patientchat Q1 |
| mary @zebrafinch RT @patientchat: I will introduce new Topics with T1, T2...Please include corresponding T# at the front of every answer - hard to remember but helpful! #patientchat |
| mary @zebrafinch RT @patientchat: T1: T1: What are the signs that you or a loved one may be experiencing patient burnout? #patientchat https://t.co/FLivdZq4b2 |
| Ody @OdyO11 @patientchat T1: I'd say signs of patient burnout can be: - not following up on new symptoms or doctor appointments - being weary of seeing new doctors - feeling negative emotions when letters related to health arrive (doctors, administrative bodies, insurances) #patientchat |
 | Alan Brewington @abrewi3010 A1 instead of working together with everyone included and advocate reverts back to an us vs them methodology. #patientchat |
| mary @zebrafinch @patientchat T1 #patientchat pls define burnout or give examples. Unsure. |
| Patient Chat @patientchat @zebrafinch Burnout can be characterized by emotional exhaustion, constant stress, and frustration of disease management #patientchat |
| Ody @OdyO11 @patientchat T1: Also, not having the energy to fight for one's access to healthcare and for one's rights. Because it's very often a fight. Especially with a rare(ly diagnosed) disorder, nothing comes easy. It's a lot of administrative work. #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat Yes, ughh I think anyone automatically feels burnout with insurance. A topic of #healthliteracy! #patientchat |
 | Melissa VanHouten @melissarvh T1 Feeling more exhausted & anxious than normal; lack of interest/motivation or feeling as if you can no longer make a difference in your situation; frustration; not taking care of your medical or personal needs. #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat Yes, and a lot of research! #patientchat |
 | Trisha Bundy @bundytr5 RT @melissarvh: T1 Feeling more exhausted & anxious than normal; lack of interest/motivation or feeling as if you can no longer make a difference in your situation; frustration; not taking care of your medical or personal needs. #patientchat |
| Ody @OdyO11 @carlyflumer @patientchat Well, and of the literacy of those who decide on your behalf, write reports on your behalf etc... You're so often at the mercy of other people and feel powerless. I think that's a driver of burnout. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are the signs that you or a loved one may be experiencing patient burnout? #patientchat https://t.co/FLivdZq4b2 |
| mary @zebrafinch @patientchat T1 #patientchat As a patient, I experience burnout primarily from seeing doctors. My illness caused a lot of subsequent problems, and doctors are generally limited—don’t listen, give too little thought and time, and most of all, resist learning, were taught poorly. |
| Ody @OdyO11 RT @patientchat: @zebrafinch Burnout can be characterized by emotional exhaustion, constant stress, and frustration of disease management #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat For sure. Comprehension is such a problem, which leads to poorer outcomes. I’m looking to change that. :) #patientchat |
| Patient Chat @patientchat T2: What are the drivers of patient burnout? #patientchat #patientchat https://t.co/doebJHQW5O |
| Patient Empowerment Network @power4patients @steveathon Hello and welcome! We're happy to have you with us today #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: What are the drivers of patient burnout? #patientchat #patientchat https://t.co/doebJHQW5O |
| Carly Flumer (she/her) @carlyflumer @patientchat Not understanding what your care team (doctors, nurses, insurance, hospitalists, etc.) are saying, feeling misunderstood, not being heard or having feelings being considered. #patientchat |
| Patient Empowerment Network @power4patients @patientchat A2: From my perspective, once you receive a diagnosis, it's always waiting for the proverbial other shoe to drop #patientchat |
| Ody @OdyO11 @carlyflumer @patientchat Yes - it's a lot of work which requires time, and it's a lot of emotional work and of feeling powerless due to the circumstances. I think patient burnout definitely is a thing. #patientchat |
| mary @zebrafinch @patientchat T1 #patientchat re burnout Information overload has to be managed. I’m continually having to simplify my life, protocol, etc. Compliance is work, hourly work. Forever. Re: drs not listening, no excuse—I speak clearly. Many friends, family, are physicians! I was a bio major. |
| Melissa VanHouten @melissarvh Feeling like you have no control or that it is too much work to try to change things; overload of appointments & the travel which sometimes accompanies them; feeling like your continued care is a burden upon you & to your significant others. #patientchat |
| Alan Brewington @abrewi3010 A2 being chronic and advocate can be to much. Both are highly expensive human experiences. #patientchat |
| mary @zebrafinch Amen |
| Patient Empowerment Network @power4patients RT @melissarvh: Feeling like you have no control or that it is too much work to try to change things; overload of appointments & the travel which sometimes accompanies them; feeling like your continued care is a burden upon you & to your significant others. #patientchat |
| Carly Flumer (she/her) @carlyflumer @zebrafinch @patientchat It helps so much to have a science background! But to those who don’t, I cannot imagine. #patientchat |
| mary @zebrafinch RT @patientchat: T2: T2: What are the drivers of patient burnout? #patientchat #patientchat https://t.co/doebJHQW5O |
| mary @zebrafinch @patientchat T1 #patientchat Sorry I completely misread that. :-( |
| mary @zebrafinch RT @melissarvh: T1 Feeling more exhausted & anxious than normal; lack of interest/motivation or feeling as if you can no longer make a difference in your situation; frustration; not taking care of your medical or personal needs. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up…https://t.co/ohwSUGNsmW #patientchat |
| Patient Chat @patientchat T3: What would you like health care professionals (HCPs) to know about patient burnout? #patientchat https://t.co/zK16WkuYWL |
| Ody @OdyO11 T2: I think a main driver of patient burnout are to feel powerless, especially to be at the mercy at people who have power over you but who don't exercise care to do you justice. There's something very derogatory about that. #patientchat |
| mary @zebrafinch @patientchat T2 #patientchat drivers of burnout largely for people who don’t have public insurance—the stress of paperwork, the noncoverage, the constant fight to pay for care. doctors not caring or listening. I would add that there are few good diagnosticians. Perpetual cycle of wrong dx. |
| Carly Flumer (she/her) @carlyflumer @patientchat To take things one step at a time. To listen to us clearly and take consideration for the emotional side of care. To talk to us using language we understand. To give us a plan that will help us with our new “normal”. #patientchat |
| mary @zebrafinch RT @melissarvh: Feeling like you have no control or that it is too much work to try to change things; overload of appointments & the travel which sometimes accompanies them; feeling like your continued care is a burden upon you & to your significant others. #patientchat |
| Patient Chat @patientchat @zebrafinch No worries! You're doing great :) #patientchat |
| mary @zebrafinch RT @patientchat: T3: T3: What would you like health care professionals (HCPs) to know about patient burnout? #patientchat https://t.co/zK16WkuYWL |
| Melissa VanHouten @melissarvh T3 Patient burnout is likely similar to physician burnout. We experience the stress and burdens of meeting our health needs as well -- only we are trying to do all this while we are sometimes very ill. #patientchat |
| Ody @OdyO11 @patientchat T2: Drivers of patient burnout: - when other perceive your needs as wants repeatedly - being doubted - having to correct mistakes done out of carelessness by others all the time which affect your basic needs (there's sth. very derogatory about these) #patientchat |
 | Patient Safety 🇨🇦 @pttopt Interesting, we hear a lot of doctor burnout , which I do understand. #PatientBurnout is real too, can't do one more appointment , scan , unless my entire body is viewed as a whole , by a multidisciplinary team who actually listens to me and cares. #PatientExperience |
| Ody @OdyO11 RT @patientchat: T3: T3: What would you like health care professionals (HCPs) to know about patient burnout? #patientchat https://t.co/zK16WkuYWL |
| mary @zebrafinch @patientchat T3 #patientchat we want drs to know we do NOT WANT to be sick. We can be too tired to fight for ourselves. We need them to seek, to ask, to care. And to show it. |
| mary @zebrafinch T3 #patientchat Yes. We want drs to : |
| mary @zebrafinch Worn out now. Can’t continue. Thanks for this chat, always. #patientchat |
| Patient Empowerment Network @power4patients Here's a great post from our Empowered! blog "What You Should Know About Caregiver Burnout and How to Avoid It" https://t.co/QUie5MjsRf #patientchat |
| Ody @OdyO11 @patientchat T3: It is a lot of work to be a patient, both regarding time needed and emotional work. I'd like doctors to know how much work and distress sloppy or incorrect documentation can cause patients and how it contributes to patient burnout. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What would you like health care professionals (HCPs) to know about patient burnout? #patientchat https://t.co/zK16WkuYWL |
| Patient Chat @patientchat Topic 4 (T4:) coming up…https://t.co/ohwSUGNsmW #patientchat |
| Ody @OdyO11 @patientchat T3: I'd like doctors to know that believing patients, being accessible, supporting patients in their personal goals can help prevent patient burnout. I'd like doctors to ask patient how they can help ease the burden. #patientchat |
| Patient Chat @patientchat T4: What are some of the tactics you can employ to ease patient burnout? #patientchat https://t.co/mBsdDRVvK9 |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What are some of the tactics you can employ to ease patient burnout? #patientchat https://t.co/mBsdDRVvK9 |
| Patient Empowerment Network @power4patients Here's another great resource from our Empowered! blog from the fantastic @JBBC "Beating Burnout: Self-Care Strategies for Patient Advocates" https://t.co/LurN1pO3R1 #patientchat |
| Ody @OdyO11 @patientchat T2: An important driver of patient burnout is medical PTSD, retraumatization and doctors overriding consent. For patients who have a history of misdiagnosis of psychogenic illness it's a very sensitive topic when doctors assume stress/negative emotions. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat Talk with other advocates and patients in support groups both online and in-person. Often, we can find others who are good though the same thing. #patientchat |
 | Spencer Health Solutions @spencerhealth For many patients, just finding the time to arrange a visit to the doctor's office is stressful and involves arrangements with work, family, transportation. If this has to be done frequently, this can result in burnout on many parts. "Not again?" #PatientChat |
| Ody @OdyO11 @patientchat T2: Another driver of patient burnout is to constantly be seen with deficit-expecting bias, to be blamed or to be seen as incompetent, especially in encounters with doctors. And, generally: Ableism. Which is very prevalent in the medical field, unfortunately. #patientchat |
 | Sabrina Peterson @_ripheather RT @OdyO11: @patientchat T1: @patientchat T1: I'd say signs of patient burnout can be: - not following up on new symptoms or doctor appointments - being weary of seeing new doctors - feeling negative emotions when letters related to health arrive (doctors, administrative bodies, insurances) #patientchat |
| Ody @OdyO11 @patientchat T4: Find doctors who support you, and whom you can contact easily. If possible, allow for vacations, for times when the organizational side of your health management can be put aside. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up…https://t.co/ohwSUGNsmW #patientchat |
| Ody @OdyO11 RT @ZebraOrphans: |
| Carly Flumer (she/her) @carlyflumer @spencerhealth Yes, I had to tell my employer when I first started about my diagnosis. Otherwise, they would wonder why I’m taking off so often. That definitely feels like a burden. #patientchat |
| Melissa VanHouten @melissarvh T4 Don't overschedule or add unnecessary appts during particularly rough spells; talk 2 loved ones & HC providers abt your feelings & enlist their help in completing tasks if possible; do what you can when you can & don't beat yourself up abt not accomplishing enough #patientchat |
| Patient Chat @patientchat T5: Is there any technology that helps mitigate patient burnout? If not, what can be created? #patientchat https://t.co/uRPcoe79KO |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat What do you mean by deficit-expecting bias? I’ve never heard of that. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: Is there any technology that helps mitigate patient burnout? If not, what can be created? #patientchat https://t.co/uRPcoe79KO |
| Ody @OdyO11 RT @melissarvh: T3 Patient burnout is likely similar to physician burnout. We experience the stress and burdens of meeting our health needs as well -- only we are trying to do all this while we are sometimes very ill. #patientchat |
| Sabrina Peterson @_ripheather RT @ZebraOrphans: |
| Ody @OdyO11 RT @patientchat: T5: T5: Is there any technology that helps mitigate patient burnout? If not, what can be created? #patientchat https://t.co/uRPcoe79KO |
 | Patient Critical Co-op @PatientCritical Meant to take part in this chat but -haha- am experiencing a touch of #patientburnout myself after wading through policies and administration in medical/education system this week. Looking forward to reading what others experience and how they cope! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: Is there any technology that helps mitigate patient burnout? If not, what can be created? #patientchat https://t.co/uRPcoe79KO |
| Sabrina Peterson @_ripheather RT @ZebraOrphans: |
| Carly Flumer (she/her) @carlyflumer @patientchat I use the calendar on my phone religiously for everything. There are different apps to help manage emotions, but I think it would be profitable to have apps developed for specific diseases, especially in the world of #rare, #chronic, & oncology. #patientchat |
 | Belarusian Spy @MalkaBeth A1: #patientchat Arguments occurring over things that they don't have strong opinions on & sleep patterns changing . |
| Ody @OdyO11 @patientchat T5: Online support groups can help - to vent, to share advice and experiences. #patientchat |
| Patient Chat @patientchat #patientchat |
| Melissa VanHouten @melissarvh T5 I long for #telemedicine visits, love the patient portal, & rely on my online friends & support groups to help me mentally process and cope with the difficulties of being a patient. #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat And in person! Shoutout to my support group with @ThyCaInc! ❤️ #patientchat |
| Patient Chat @patientchat Topic 6 (T6:) coming up…https://t.co/ohwSUGNsmW #patientchat |
| Belarusian Spy @MalkaBeth A2: #patientchat economic poverty causing deprevation or greater hardship in getting the basics for living, interpersonal relationship problems, medical scheduling difficulties like phone tag to try & make or reschedule appointments & worsening symptoms. |
| Ody @OdyO11 @ZebraOrphans Yes! I wish this would be differentiated, and I wish there would be resources available that don't mix this up. E.g. access to psychologists for coping with patient burnout, without the risk that it's treated as if stress would cause your symptoms. #patientchat |
| Carly Flumer (she/her) @carlyflumer @melissarvh Yes, I have at least 4 different portals, which have been lifesaving! #patientchat |
| Patient Chat @patientchat T6: Let’s not forget about care partners, what are some tips to help pre-empt care partner burnout? #patientchat https://t.co/DRsE3kxB7N |
| Ody @OdyO11 @carlyflumer @patientchat I mean to be seen as if you're not coping well, as if you're stressed, anxious, depressed, when in fact you aren't. As if you can't be knowledgeable about your disorder or body, or as if it's detrimental that you get in touch with other patients/read research. #patientchat |
| Belarusian Spy @MalkaBeth A3: That it's often not the medical problems that are the greatest burden,it's deprevation level poverty which makes it at times impossible to be "fully & promptly compliant"poverty problems aren't what we expect you to fix but to allow for the extra time they need. #patientchat |
| Ody @OdyO11 @carlyflumer @patientchat In other words: As if you're doing something detrimental to yourself. It's a way of gaslighting, of being treated as if you weren't competent - in matter that directly affect yourself: your body perception, your feelings, your coping. #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat Ahh, yes, that’s common for sure #patientchat |
| Ody @OdyO11 @patientchat T6: Don't feel guilty about what you can't do. Don't blame your partner and don't be disappointed when your partner can't do things (this will cause arguments). Look after yourself. Find new things you can enjoy together. #patientchat |
| Melissa VanHouten @melissarvh RT @ZebraOrphans: |
| Belarusian Spy @MalkaBeth T5: #patientchat - online appointment scheduling of all medical & other aid programs- including transportation assistance would help. Likewise virtual appointments from home as an option would help. |
| Patient Critical Co-op @PatientCritical @Ctzen_Improver Whatever works, it’s time to do that and recharge. Can’t be there for others if you don’t take care of yourself. Very important to recognize the early signs of burnout - much easier to deal with before burnout gets a solid hold into you. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Belarusian Spy @MalkaBeth A3: #patientchat currently I'm trying to fix water pipe leaks as I cope with my car that's not running & I maybe needing spinal surgery - the spinal problems are slow moving& the water leaks far more urgent. |
| Ody @OdyO11 @patientchat T5: A quick and easy options to ask your doctor a question would be very helpful (e.g. via Email), without having to struggle with gate-keeping receptionists first. Also, the option to proofread and correct mistakes in medical reports. #patientchat |
 | Dethwench Professional Services @dethwench This study of #StrokeSurvivor in #CzechRepublic found that #patients who used animal assisted therapy (AAT) "felt better after AAT sessions" than control group https://t.co/HQ74VJnLbz #researchers used dogs in the #study #publichealth #patientchat #PatientExperience #openaccess https://t.co/yoAp0b66a5 |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Belarusian Spy @MalkaBeth T5- #patientchat - I had a followup appointment delayed by over 2 months recently over phone tag rounds...so online scheduling would have moved up my appointment by said 2 +months. |
| Carly Flumer (she/her) @carlyflumer @patientchat CT: Patient and caregiver burden is real. It’s important for us to express ourselves in ways that help us feel understood & communicate if we need help. Our health status is already burdening, especially in the oncology world. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime. |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour. |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, October 4th. Hope to see you there! https://t.co/cu0O3a0R9I |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Melissa VanHouten @melissarvh RT @patientchat: The next Empowered #patientchat will be Friday, October 4th. Hope to see you there! https://t.co/cu0O3a0R9I |
| Ody @OdyO11 @patientchat CT: It's important to differentiate between patient burnout and the symptoms of the disorder. I wish there was support available which differentiated, without risking that symptoms of the disorder are dismissed by doctors as "caused by stress". #patientchat |
| Belarusian Spy @MalkaBeth T6: allow time to heal from routine medical appointments & routes to do so- eating a meal out or seeing a movie/live theater during that day or afterwards as a celebration/treat to ease things helps. #patientchat |
| Ody @OdyO11 @patientchat T2: Having health problems that aren't easily diagnosed is a huge driver of patient burnout. Be it rare(ly diagnosed) disorders or unusual representations. It means to be dismissed, disbelieved, to search for knowledgeable doctors, to travel far for appointments. #patientchat |
| Ody @OdyO11 @patientchat T2: Having a little known disorder means having to explain all the time, receiving little empathy, being doubted, disbelieved and encountering expectations you can't meet. It means there are no decision algorithms in place for diagnoses, therapy, aids. #patientchat |
| Belarusian Spy @MalkaBeth RT @OdyO11: @patientchat T2: @patientchat T2: Having health problems that aren't easily diagnosed is a huge driver of patient burnout. Be it rare(ly diagnosed) disorders or unusual representations. It means to be dismissed, disbelieved, to search for knowledgeable doctors, to travel far for appointments. #patientchat |
 | Sommer Consulting @SommerConsults RT @patientchat: The next Empowered #patientchat will be Friday, October 4th. Hope to see you there! https://t.co/cu0O3a0R9I |
| Ody @OdyO11 @patientchat T2: When your disorder is so rare that medical professionals and deciders aren't familiar with it and don't have decision algorithms, there will often be wrong decisions. You'll have a lot of work to correct these mistakes and you'll have to fight for everything. #patientchat |
| Ody @OdyO11 RT @melissarvh: Feeling like you have no control or that it is too much work to try to change things; overload of appointments & the travel which sometimes accompanies them; feeling like your continued care is a burden upon you & to your significant others. #patientchat |
#patientchat content from Twitter.