#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Happy New Year and welcome to #patientchat - where patients, care partners, and advocates come together to learn from each other and discuss topics of interest to empowered patients. |
 | Barby Ingle Official @BarbyIngle RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/zCTotIJafK |
 | Dr. Elise Ho @AskDrHo @patientchat Happy New Year. I love #patientchat |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
 | AutonomicRN© @AutonomicRN @patientchat Happy New Year! It feels like it's been a long time since the last #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules” :) #patientchat |
 | Your GPS Doc, LLC @yourgpsdoc @patientchat I'm Nicole Rochester, physician, caregiver, patient advocate and CEO of @yourgpsdoc #patientchat |
| Patient Chat @patientchat Today's #patientchat is solely informational & not a substitute for speaking with a doctor who's familiar with your medical needs and history. |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| AutonomicRN© @AutonomicRN Kim here from Wisconsin. #raredisease and #patientientadvocate, #blogger #patientchat |
 | Katie @katie5280 @patientchat Hi! It's Katie, breast cancer survivor & t2 diabetic. #patientchat |
| Dr. Elise Ho @AskDrHo HI. I am a Holistic Lifestyle Coach with an extreme passion for helping people with #parenting issues, #relationship obstacles, disease management, and overall #healthyliving. I blog at https://t.co/YQlZSb7XUX #patientchat |
 | ElizabethKelly, Ph.D @Elizabe85727641 A warm New Year’s greeting to all, Liz Kelly, where our palm trees are moving rapidly because of a freezing blast of air from the north. #patientchat |
| Barby Ingle Official @BarbyIngle I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality Personality. Looking forward to todays chat! #CheerleaderofHOPE #patientchat https://t.co/q0aRwXqnYN |
 | Lisa Davis Budzinski @lisadbudzinski Everyone have a great weekend no matter where you are! #HITsm Off to #patientchat |
 | Patient Empowerment Network @power4patients Happy New Year! Andrea here from PEN. Looking forward to today's chat. I need some inspiration #patientchat |
 | Richard Zhao @richardzhao I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #patientchat |
| AutonomicRN© @AutonomicRN @Elizabe85727641 We have plenty of freezing air here!! #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d |
| AutonomicRN© @AutonomicRN @richardzhao Hi Richard! #patientchat |
 | Memorizing Pharmacology @Tony_PharmD RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/zCTotIJafK |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d |
| Richard Zhao @richardzhao @AutonomicRN Hi, Kimberly. How are you doing? #patientchat |
 | Angela Cohen @angelee828 Hey! Angela from Wisconsin here. 👋🏽#patientchat |
| Richard Zhao @richardzhao @bbhomebody Happy New Year, Becky! #patientchat |
 | burtrosen 🟦 @burtrosen Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat |
| AutonomicRN© @AutonomicRN @richardzhao I’m doing okay! Trying to stay warm, how’s the weather in Minneapolis? #patientchat |
| Patient Chat @patientchat Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat |
| burtrosen 🟦 @burtrosen RT @patientchat: Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d |
| AutonomicRN© @AutonomicRN @bbhomebody @Cpnervecenter Hey Becky! #patientchat |
| Patient Chat @patientchat T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat |
| Memorizing Pharmacology @Tony_PharmD I'm Tony Guerra from Iowa #pharmacist and #podcaster #patientchat |
| Richard Zhao @richardzhao @AutonomicRN Lucky we can get above 0 within next couple days in Minneapolis #PatientChat |
| AutonomicRN© @AutonomicRN @burtrosen Good to "see" you, Burt!! #patientchat |
| Katie @katie5280 @patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a nap, journaling, meditating…lots of free things one can do! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @richardzhao: I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #patientchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters I've made it! A very drowsy Rie is popping in from the comfort of bed. #patientchat |
 | Melissa VanHouten @melissarvh A1 Taking a step back every now & then to regain my sanity & focus 4 a moment on something other than #Gastroparesis advocacy. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat |
| Dr. Elise Ho @AskDrHo A1 Self-care is about recognizing and honoring the fact that if we do not take care of ourselves then we really have nothing to give. #patientchat |
| Barby Ingle Official @BarbyIngle T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching, clinical trials, taking time for myself when needed, walking, taking time to improve my mental and physical well-being daily #patientchat https://t.co/UFkiJtEyEB |
| Angela Cohen @angelee828 @Crohnoid Hi Nigel! How’re you? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T1: Self-care for me often means going easy on myself and accepting imperfect action. #patientchat https://t.co/Jj9Qn5psWT |
| Patient Chat @patientchat @FieldingPolly No! #patientchat is for everyone, where ever you are :) |
| AutonomicRN© @AutonomicRN T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturing your physical and emotional health as well. We were only given one body, so we mine as well take as good of care as we can. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @FieldingPolly @patientchat No, not at all! We welcome everyone. 😁 #patientchat |
| Dr. Elise Ho @AskDrHo A1 Self-care that I enjoy includes getting rest, exercise, and eating well. It also includes a massage, manicure or a relaxing evening. #patientchat |
| AutonomicRN© @AutonomicRN @RieOfLetters Yay, Rie!! Glad you were able to join! #patientchat |
| Patient Empowerment Network @power4patients T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a break and then feeling OK about it #patientchat |
 | International Pain Foundation® @iPainOfficial RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality Personality. Looking forward to todays chat! #CheerleaderofHOPE #patientchat https://t.co/q0aRwXqnYN |
| Dr. Elise Ho @AskDrHo We do not have to spend a lot of money in order to practice self-care. #patientchat https://t.co/K4yDKURaYE |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T1: T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching, clinical trials, taking time for myself when needed, walking, taking time to improve my mental and physical well-being daily #patientchat https://t.co/UFkiJtEyEB |
| Dr. Elise Ho @AskDrHo RT @AutonomicRN: T1: T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturing your physical and emotional health as well. We were only given one body, so we mine as well take as good of care as we can. #patientchat |
 | Michele Rhee @michelerhee Hi! Sorry to join late! I'm Michele, patient advocate from Boston. #ayacsm #raredisease #chronicillness #invisibleillness #patientchat https://t.co/vuUoYByCJN |
| Dr. Elise Ho @AskDrHo A1 My self-care today definitely includes a nap. #patientchat |
| Melissa VanHouten @melissarvh A1 Honestly, it helps me to be working & advocating for the most part. Me caring for others is a sort of self-care = purpose. #patientchat |
| Dr. Elise Ho @AskDrHo RT @power4patients: T1: T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a break and then feeling OK about it #patientchat |
| AutonomicRN© @AutonomicRN Admitting when we need a break is half the battle! #patientchat https://t.co/XJryaUjrmF |
 | michelleraefino @fino_rae RT @patientchat: T1: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski Hi everyone! Lisa here: co-founder @Cpnervecenter Advocate for #chronicillness #patientperspective 30+ yrs exp in research & healthcare Love tech, #AI #VR #patientchat |
| Patient Empowerment Network @power4patients @AutonomicRN Exactly! #patientchat |
| Richard Zhao @richardzhao @lisadbudzinski @Cpnervecenter Hi, Lisa. How are you doing? #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attending medical appointments. #patientchat |
| AutonomicRN© @AutonomicRN @melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps me! #patientchat |
| Michele Rhee @michelerhee T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to ensure I can be as healthy as possible...and to try to not feel guilty (or lazy) for doing it. #patientchat https://t.co/RaCR560q4C |
| Richard Zhao @richardzhao RT @lisadbudzinski: Hi everyone! Lisa here: Hi everyone! Lisa here: co-founder @Cpnervecenter Advocate for #chronicillness #patientperspective 30+ yrs exp in research & healthcare Love tech, #AI #VR #patientchat |
| Melissa VanHouten @melissarvh RT @AutonomicRN: @melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps me! #patientchat |
| AutonomicRN© @AutonomicRN @lisadbudzinski @Cpnervecenter Hey Lisa! #patientchat |
| Patient Chat @patientchat RT @michelerhee: T1: T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to ensure I can be as healthy as possible...and to try to not feel guilty (or lazy) for doing it. #patientchat https://t.co/RaCR560q4C |
| Angela Cohen @angelee828 @patientchat T1: Somedays it means shutting out/down everything electronic. (I just did that and I’m still playing catch-up) Sometimes it means things as little as deep breaths, or as big as avoiding toxic ppl that I care deeply for. It depends on the day. #patientchat |
| Melissa VanHouten @melissarvh RT @Crohnoid: T1: |
| AutonomicRN© @AutonomicRN @Crohnoid @angelee828 Hi Nigel! #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up…https://t.co/af64O14k9d #patientchat |
 | Maggie Rogers @magthenomad RT @RieOfLetters: T1: T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attending medical appointments. #patientchat |
| Michele Rhee @michelerhee @rachvoo @patientchat It's the judging myself! I feel like I know my limits, but I feel guilty for not being able to do everything that I "should" do. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters This, right here! #selfcare should be guilt-free. #patientchat https://t.co/0dWgfhPO9S |
| AutonomicRN© @AutonomicRN Sleep would be a gift from the heavens! #patientchat https://t.co/UGP2sGK4A0 |
| Richard Zhao @richardzhao @RieOfLetters Hi, Rie How are you doing? #patientchat |
| Patient Chat @patientchat T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski A1 Self-care in chronic illness is all about daily management in order to obtain a better quality of life #PatientChat https://t.co/Hc8hU1UOEL |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat |
| AutonomicRN© @AutonomicRN @angelee828 @patientchat Toxic people play a huge role. We have to be able to identify them and set limits. #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both seem and unseen. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @FieldingPolly: |
 | Heidi Grabenstatter @PatientIntv Thank you for a great #hitsm chat. Quite sure that I am late to #patientchat. Enjoy your weekend! |
| AutonomicRN© @AutonomicRN Buzz words for 2018 for everyone #qualityoflife #patientchat https://t.co/gUinrcvEgl |
| Michele Rhee @michelerhee @RieOfLetters So many of us are mentioning the guilt or self-judgement we feel when taking care of ourselves! I bet none of us would ever judge someone else for doing the same. Why are we so harsh on ourselves? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @melissarvh Right?! The distraction advocacy can provide is truly a self-care benefit ✨ #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T2: I'd like to start taking power naps and stop staying up past midnight regularly. #patientchat https://t.co/uf61kHfVFy |
 | Inspire @InspireIsHealth RT @patientchat: T1: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @AutonomicRN: Buzz words for 2018 for everyone #qualityoflife #patientchat https://t.co/gUinrcvEgl |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: I admit I'm not great at self-care. My escape zones are movies, books, cooking, art, music, the outdoors. A perfect day = ALL. OF. THE. THINGS. Most weeks, I get one or two at best. #PatientChat |
| Michele Rhee @michelerhee @FieldingPolly It's what they say on the plane: you need to put your oxygen mask on first before you put the other person's on. But...it's hard to do in practice without feeling that guilt!! #patientchat |
| Angela Cohen @angelee828 @michelerhee @rachvoo @patientchat So true! So often I know I can’t, but I feel I “should”... #patientchat |
| Patient Chat @patientchat @PatientIntv Hi Heidi! We're on T2, come along anytime! #patientchat |
 | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private cancer patient advocate & patient experience activist joining in late from NJ. |
| Katie @katie5280 @patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the past to not be beneficial. #patientchat |
| Barby Ingle Official @BarbyIngle T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3 |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @Crohnoid: T1: |
| burtrosen 🟦 @burtrosen T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat |
| Michele Rhee @michelerhee @AutonomicRN I need to remember this. I think of pushing my body instead of caring for my body. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @michelerhee @FieldingPolly So true! The guilt is real. #patientchat |
| Dr. Elise Ho @AskDrHo A2 One of my 2018 #smartgoals is based on upping my fitness game. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @michelerhee @rachvoo @patientchat So so true💕 #PatientChat |
| Michele Rhee @michelerhee @AskDrHo @FieldingPolly Yes!!!!! #patientchat |
 | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T2: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3 |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T2: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3 |
| AutonomicRN© @AutonomicRN T2: I would like to start sleeping (no really, I would)! Would like to be able to take more time for #selfcare and less time for trying to stay caught up with what my body is doing to me! #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Hi Casey! Love your list. Wishing you a weekend filled w/your fav things #patientchat |
| Melissa VanHouten @melissarvh A2 I put a lot of pressure on myself to perform. Always a battle to recognize & respect real physical limitations. #patientchat |
| Inspire @InspireIsHealth Hello to #patientchat, John Novack from Inspire, joining late, and lurking. |
| AutonomicRN© @AutonomicRN Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt |
| Heidi Grabenstatter @PatientIntv Sorry I am late #patientchat. |
| AutonomicRN© @AutonomicRN @GraceCordovano Hey Grace! #patientchat |
| burtrosen 🟦 @burtrosen @AutonomicRN so unreasonable! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: Last fall I started focusing on using all of the stuff embedded in my Samsung smart watch. Tracking activity and logging food/water/sleep. Continuing that focus thru 2018. #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski A2 Continue to learn all that I can from many angles in healthcare, help as many people I can but reigning myself in to not overdo it #patientchat https://t.co/mmEwqMIURX |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @burtrosen: T2: T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat |
| AutonomicRN© @AutonomicRN @burtrosen I know, right! #patientchat |
| Michele Rhee @michelerhee T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them because I think I "should" do other things. I need to remember that I'm the expert in my own health and then act on that. #patientchat https://t.co/q4rVoZpyjC |
| Richard Zhao @richardzhao @RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coast has the same cold. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat |
| Dr. Elise Ho @AskDrHo @rachvoo @patientchat I like to meditate for a quick session when I wake up. It helps to start the day off well. I do a second session midday. #selfcare #patientchat |
| Patient Empowerment Network @power4patients @teaminspire Hi, John! So glad you are here. Happy New Year! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @burtrosen That’s a tough one ✨ #PatientChat |
| burtrosen 🟦 @burtrosen @AutonomicRN i'm learning that the hard way. I beat myself up way too often #patientchat |
| AutonomicRN© @AutonomicRN @bbhomebody 🙋♀️#patientchat |
| Enlightening Results 💡 @GraceCordovano @AutonomicRN Fancy meeting you here 😜Hope all is well #patientchat |
| Patient Chat @patientchat T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining your goals? #patientchat |
| Dr. Elise Ho @AskDrHo @FieldingPolly It is really important. I spoke with one of my fitness expert friends to see how to up my game in a smart way. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Develop more patience with healthcare support staff who demonstrate a high level of incompetence when providing information, explaining bills. Health literacy is a fact; additional skills to overcome are needed. #patientchat |
| AutonomicRN© @AutonomicRN @FieldingPolly I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat |
| Michele Rhee @michelerhee T2: I also want to get fit enough that I could make it through the workout movie montage in a revenge movie. #patientchat https://t.co/lA4dw5DMFd |
| AutonomicRN© @AutonomicRN @GraceCordovano It's going... #patientchat |
| Barby Ingle Official @BarbyIngle T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA |
| Rie Lopez, MPH (she/her) @RieOfLetters T2: I need to address some of my own guilt and feelings of failure, especially surrounding #selfcare. This is a major #Mentalhealth goal. Self care is not selfish. #patientchat |
 | Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T3: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T3: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T3: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA |
| Katie @katie5280 @patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this could be simply explaining to others that you need to take time to recharge and that may mean alone. #patientchat |
| AutonomicRN© @AutonomicRN T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becoming more involved with social media and advocacy really helped me. #patientchat |
| Maggie Rogers @magthenomad T2: I’m really trying to work out more but also make more quiet time for myself, to read more for fun, and to meditate! I just found out that #YAcancer @FirstDescents alumni get a free lifetime of @Headspace!! And I’m loving it so far #patientchat https://t.co/qLNywhXYwP |
| Heidi Grabenstatter @PatientIntv T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly, new attitude has generated new opportunities. #patientchat |
| Enlightening Results 💡 @GraceCordovano @burtrosen Hi Burt! So important to remember. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3: I've learned I need to schedule self-care, the same way I schedule other important appointments. #patientchat https://t.co/aOMDeiiKwK |
| Richard Zhao @richardzhao @lisadbudzinski @RieOfLetters With subzero temperature outside, sleeping is my self care 🤒 #PatientChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to ourselves as we are to others. #patientchat |
| Dr. Elise Ho @AskDrHo T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be super clear on what those goals actually are. #patientchat |
| AutonomicRN© @AutonomicRN Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat |
| burtrosen 🟦 @burtrosen @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #PatientChat |
| Melissa VanHouten @melissarvh A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for myself. #patientchat |
| Enlightening Results 💡 @GraceCordovano @RieOfLetters Hi Rie! Great to catch up here #patientchat |
| Patient Empowerment Network @power4patients @yourgpsdoc Great idea! I do this for exercise but never to help make room for other self care goals. I'm going to start today. #patientchat |
| Dr. Elise Ho @AskDrHo T3 Accountability is also very helpful to have when working in goals. I have joined a fitness challenge to help with my fitness goals. #patientchat |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski @Cpnervecenter Hi Lisa! Catching up here...#patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano Hah! Will be filled with work, planning #rightcare campaigns for 2018. #PatientChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat |
| Enlightening Results 💡 @GraceCordovano @burtrosen Epiphanies come in all shapes and sizes. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @burtrosen: @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #PatientChat |
| Michele Rhee @michelerhee @magthenomad @FirstDescents @Headspace I love @FirstDescents!!!! #ayacsm #patientchat |
| Dr. Elise Ho @AskDrHo @AutonomicRN Great point. I think self-care also should include not being afraid to ask questions and to ask for help when needed. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Cpnervecenter Hi Grace! Doesn’t it seem like we’re doing that all the time?! 💕 #PatientChat |
| Barby Ingle Official @BarbyIngle T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat |
| AutonomicRN© @AutonomicRN @AskDrHo Totally agree! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @michelerhee: @magthenomad @FirstDescents @Headspace I love @FirstDescents!!!! #ayacsm #patientchat |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T4: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @GraceCordovano Hi Grace! Glad to see you as always. 😁 #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T4: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat |
| Patient Chat @patientchat T4: Why is it important for care partners to prioritize self-care too? #patientchat |
| Melissa VanHouten @melissarvh RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: Why is it important for care partners to prioritize self-care too? #patientchat |
| AutonomicRN© @AutonomicRN @bbhomebody @katie5280 @patientchat Quiet time is my favorite! #patientchat |
| Katie @katie5280 @patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat |
| Inspire @InspireIsHealth RT @AskDrHo: T3: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be super clear on what those goals actually are. #patientchat |
| Michele Rhee @michelerhee @AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/goal-oriented, and I'm still working on accepting when plans change because of the things I have no control over. #patientchat |
| Richard Zhao @richardzhao @RieOfLetters @lisadbudzinski I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helping me. An old Chinese way to deal with cold #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3: Self care in 2017 was hard AF, thanks to stress tsunamis personal (income loss) and public (Twitler the Vulgarian in the Oval, film at 11, on blast). #patientchat |
| Dr. Elise Ho @AskDrHo T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T4: T4: Why is it important for care partners to prioritize self-care too? #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to achieve them& when goals need to be changed. #patientchat |
| Patient Chat @patientchat RT @AskDrHo: T4: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat |
| burtrosen 🟦 @burtrosen @patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat |
| Enlightening Results 💡 @GraceCordovano @patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in conversation w/minor complaints on weather or other inconveniences, being mindful to reframe conversations to more meaningful words. Makes a difference. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T3: I spent most of 2017 just trying to get through it. A strong support system, being mentally 'there', and realistic goals are important components to successful behavior change. #patientchat |
| Patient Empowerment Network @power4patients T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.co/QPFQaj8hAi #patientchat |
| Melissa VanHouten @melissarvh A4 See the toll illness takes on #caregivers in the groups. They must have time to relax & rejuvenate to be effective. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @AskDrHo: T4: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat |
| Patient Empowerment Network @power4patients RT @AskDrHo: T4: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @AutonomicRN Those daily curve balls are a huge self-care disrupters #PatientChat |
| Dr. Elise Ho @AskDrHo RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.co/QPFQaj8hAi #patientchat |
| Angela Cohen @angelee828 @AutonomicRN @FieldingPolly Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up every couple of hours 🙄😑 #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP |
| AutonomicRN© @AutonomicRN T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients. Care partners as in significant others, friends, family, etc need to prioritize self care because we need their help also to meet goals #patientchat |
| Patient Chat @patientchat RT @yourgpsdoc: T4: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting stress impacts physical + mental. Still echoing. #patientchat |
 | Liz Szabo @LizSzabo #PatientChat going on now. https://t.co/PlmL607hBR |
| Michele Rhee @michelerhee T4: Compassion & empathy fatigue are devastating. When one person in a family gets cancer (or other major/chronic illness), everyone gets cancer (or other illness). The health of the family/carers is vital to ensuring the health of the relationships and patients. #patientchat https://t.co/wi83Fz0oQQ |
| Rie Lopez, MPH (she/her) @RieOfLetters @richardzhao @lisadbudzinski Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat |
| AutonomicRN© @AutonomicRN @bbhomebody @rheumpatient Me too #EhlersDanlos will do that to a person #patientchat |
| Heidi Grabenstatter @PatientIntv T4: Carpenters become susceptible to underlying conditions during the stress of caring for partner or loved one. Sleep deprivation and diet are critical to stress-induced issues. #patientchat |
| Patient Chat @patientchat RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat |
| Michele Rhee @michelerhee @RieOfLetters Realistic goals!! I'm so bad at that, lol. I like to say that I'm a "realistic optimist"...but I think I sometimes am just...well...overly optimistic. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @AutonomicRN: T4: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients. Care partners as in significant others, friends, family, etc need to prioritize self care because we need their help also to meet goals #patientchat |
| Inspire @InspireIsHealth RT @Crohnoid: T3: |
| AutonomicRN© @AutonomicRN @angelee828 @FieldingPolly Sometimes you just want to scream! But, then you know that the dogs and husband will wake up... #patientchat |
| Lisa Davis Budzinski @lisadbudzinski A4 I’ve learned the hard way caring for hubby 30yrs & Mom with Leukemia can take a huge toll on a body #PatientChat https://t.co/AKDHDGYA3y |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help & support. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat |
| AutonomicRN© @AutonomicRN Caregiver burnout is HUGE #patientchat https://t.co/jqbd1jmwfR |
| Patient Chat @patientchat T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat |
| Heidi Grabenstatter @PatientIntv Oops. I meant "carepartners, " of course :). #patientchat |
| AutonomicRN© @AutonomicRN @michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters I really can't say it any better than @michelerhee! #patientchat https://t.co/nJYI7ydnMp |
| Dr. Elise Ho @AskDrHo T5: When days aren’t routine we sometimes need to pivot our plans but we should always carve out some #selfcare time. Even a 10-15 minute routine will make a difference.#patientchat |
| Michele Rhee @michelerhee @AutonomicRN It really is! I know so many families / couples that have been torn apart or stretched to the breaking point because caring and letting someone care for you are two of the hardest things in the world. #patientchat |
| Melissa VanHouten @melissarvh A5 Try to be flexible. Rest (& prepare) ahead of time & afterward but must forgive myself 4 being "out of commission" at times. #patientchat |
| Patient Empowerment Network @power4patients T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to keep you accountable #patientchat |
| AutonomicRN© @AutonomicRN @bbhomebody @rheumpatient I try :) #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @michelerhee So very true! It happened to me #PatientChat |
| Melissa VanHouten @melissarvh RT @power4patients: T5: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to keep you accountable #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://t.co/T4lyhirwwR |
| Your GPS Doc, LLC @yourgpsdoc I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4 |
| AutonomicRN© @AutonomicRN T5: I take my "diaper bag" filled with a pillow, blanket, my meds for the day and a change of clothes too. I never know what I'm going to need. Always make sure you are prepared for the appointments running late. Take extra medications with you. Eat and rest too! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski A5 It’s almost impossible. After Dr days, appts & such, it’s vital to take time the next few days for recovery #PatientChat https://t.co/z6dcdqMCgt |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: Bonus from 20+ years on front lines of live net TV news makes me pretty impervious to sudden change in ... anything. I'll take that as a win. #patientchat |
| Katie @katie5280 @patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a book to read or activity to do while waiting in between appointment. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @power4patients Yay! We write the same thing at the same time 💕 #PatientChat |
| Barby Ingle Official @BarbyIngle T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T5: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv |
| Lisa Davis Budzinski @lisadbudzinski RT @Crohnoid: T5: |
| Melissa VanHouten @melissarvh RT @Crohnoid: T5: |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T5: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv |
| Michele Rhee @michelerhee T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can just be recognizing when you need to reassess and take steps to take better or different care of yourself. #patientchat https://t.co/JIXcvnWq69 |
| AutonomicRN© @AutonomicRN I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for the next week. #patientchat https://t.co/PHlq20lDfa |
| Inspire @InspireIsHealth RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc Great idea! #patientchat https://t.co/Zi1qadQLkO |
| Rie Lopez, MPH (she/her) @RieOfLetters T5: I am absolutely terrible when it comes to this, but I have found great satisfaction in #365teas. It's a built in reminder to slow down, at least for a cup of tea. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @michelerhee 👏👏👏👏 #PatientChat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @AutonomicRN: T5: T5: I take my "diaper bag" filled with a pillow, blanket, my meds for the day and a change of clothes too. I never know what I'm going to need. Always make sure you are prepared for the appointments running late. Take extra medications with you. Eat and rest too! #patientchat |
| Patient Empowerment Network @power4patients RT @Crohnoid: T5: |
| Lisa Davis Budzinski @lisadbudzinski RT @Crohnoid: T5: |
| Patient Empowerment Network @power4patients @lisadbudzinski Great minds :) #patientchat |
| AutonomicRN© @AutonomicRN One thing every day that you know is guaranteed...that is a simple thing that we all should be able to do, no matter how small. #patientchat https://t.co/kefFBAvIfv |
| Lisa Davis Budzinski @lisadbudzinski If you would like #organization skills, Barby is the best!! #ExtremeTimeCheater 👇 #PatientChat https://t.co/Yi4I0BQSIA |
| Barby Ingle Official @BarbyIngle yes, I schedule the knockdown into my schedule, knowing what will cost my #EnergyPennies shortage and preparing for it ahead of time with breaks before and after the event/doc appt, etc. #patientchat https://t.co/pZBHms4OQ2 |
| Inspire @InspireIsHealth RT @Crohnoid: T5: |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat |
| Barby Ingle Official @BarbyIngle Thank you!!!!!!!! https://t.co/m1Qq4O30iz |
| AutonomicRN© @AutonomicRN @rheumpatient @bbhomebody We have to have a sense of humor to survive any medical issues, that's what keeps me going a lot of days! #patientchat |
| AutonomicRN© @AutonomicRN @yourgpsdoc My motto is "have bag, will travel" #patientchat |
| Michele Rhee @michelerhee CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and benefit of the doubt that we would give to others. #patientchat https://t.co/BP9C2pKl8s |
| Lisa Davis Budzinski @lisadbudzinski @BarbyIngle I love that you wrote #EnergyPennies !! My hubby never grasped the spoon theory so I had to change it to pennies for him ✨💕 #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @AutonomicRN @rheumpatient @bbhomebody I hear that! Why my book focuses on funny as much as it does. #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski @rheumpatient @FieldingPolly @rachvoo @michelerhee @AutonomicRN It takes a period of grieving in order a ovlet go of the “old life” we once knew #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat |
| Michele Rhee @michelerhee @rachvoo @patientchat You're definitely not alone!! #patientchat |
 | Richard Kreis @kreisr1 RT @melissarvh: A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for myself. #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: T5: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to keep you accountable #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.co/QPFQaj8hAi #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat |
| Richard Kreis @kreisr1 RT @BarbyIngle: T5: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv |
 | Jeremy Murphy @jeremypmurphy RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: You're invited! Join us for an Empowered #patientchat on Friday, 1/12 at 10:00amPST | 1:00pmEST where we'll be talking about “2018 Self-Care Goals" https://t.co/af64O14k9d https://t.co/ukoNaXL8UC |
| Patient Chat @patientchat RT @michelerhee: CT: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and benefit of the doubt that we would give to others. #patientchat https://t.co/BP9C2pKl8s |
| AutonomicRN© @AutonomicRN @lisadbudzinski @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as much damage! #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T4: T4: Why is it important for care partners to prioritize self-care too? #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: T1: T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturing your physical and emotional health as well. We were only given one body, so we mine as well take as good of care as we can. #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T3: T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining your goals? #patientchat |
| Richard Kreis @kreisr1 RT @AskDrHo: A1 My self-care today definitely includes a nap. #patientchat |
| Richard Kreis @kreisr1 RT @Crohnoid: |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T2: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat |
| Barby Ingle Official @BarbyIngle Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Richard Kreis @kreisr1 RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality Personality. Looking forward to todays chat! #CheerleaderofHOPE #patientchat https://t.co/q0aRwXqnYN |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T1: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: Admitting when we need a break is half the battle! #patientchat https://t.co/XJryaUjrmF |
 | Jerry Durham @Jerry_DurhamPT RT @richardzhao: I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #patientchat |
| Richard Kreis @kreisr1 RT @michelerhee: CT: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and benefit of the doubt that we would give to others. #patientchat https://t.co/BP9C2pKl8s |
| Richard Kreis @kreisr1 RT @yourgpsdoc: T4: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP |
| Richard Kreis @kreisr1 RT @PatientIntv: T2: T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly, new attitude has generated new opportunities. #patientchat |
| AutonomicRN© @AutonomicRN @lisadbudzinski @rheumpatient @FieldingPolly @rachvoo @michelerhee The grieving period repeats itself each time we add a new diagnosis also... #patientchat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: A2 Continue to learn all that I can from many angles in healthcare, help as many people I can but reigning myself in to not overdo it #patientchat https://t.co/mmEwqMIURX |
| Richard Kreis @kreisr1 RT @AskDrHo: T3: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be super clear on what those goals actually are. #patientchat |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both seem and unseen. #patientchat |
| Melissa VanHouten @melissarvh CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sails. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| Rie Lopez, MPH (she/her) @RieOfLetters @rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sipping thing, whereas coffee seems to speed up everything. I really need the serenity! LOL #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat |
| Richard Kreis @kreisr1 RT @BarbyIngle: T4: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat |
| Jeremy Murphy @jeremypmurphy RT @yourgpsdoc: T4: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #rva #patientchat |
| Jeremy Murphy @jeremypmurphy RT @AskDrHo: T4: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat |
| Richard Kreis @kreisr1 RT @michelerhee: T5: T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can just be recognizing when you need to reassess and take steps to take better or different care of yourself. #patientchat https://t.co/JIXcvnWq69 |
| Patient Chat @patientchat RT @yourgpsdoc: CT: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| ElizabethKelly, Ph.D @Elizabe85727641 T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a regular bases within SDOH of person/community. #patientchat |
| Richard Kreis @kreisr1 RT @RieOfLetters: This, right here! #selfcare should be guilt-free. #patientchat https://t.co/0dWgfhPO9S |
| Richard Kreis @kreisr1 RT @angelee828: @AutonomicRN @FieldingPolly Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up every couple of hours 🙄😑 #patientchat |
| Dr. Elise Ho @AskDrHo T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar. #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: T1: T1: Self-care for me often means going easy on myself and accepting imperfect action. #patientchat https://t.co/Jj9Qn5psWT |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T2 Develop more patience with healthcare support staff who demonstrate a high level of incompetence when providing information, explaining bills. Health literacy is a fact; additional skills to overcome are needed. #patientchat |
 | healing.ly @livehealingly RT @melissarvh: CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sails. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Richard Kreis @kreisr1 RT @burtrosen: @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #PatientChat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: CT: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| Richard Kreis @kreisr1 RT @lisadbudzinski: A4 I’ve learned the hard way caring for hubby 30yrs & Mom with Leukemia can take a huge toll on a body #PatientChat https://t.co/AKDHDGYA3y |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4 |
| Patient Empowerment Network @power4patients CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss. I also learned that I'm not the only one that finds it hard to admit when I need a break #patientchat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: @BarbyIngle I love that you wrote #EnergyPennies !! My hubby never grasped the spoon theory so I had to change it to pennies for him ✨💕 #PatientChat |
| Richard Kreis @kreisr1 RT @Crohnoid: T5: |
| Angela Cohen @angelee828 @patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing support from the online #chronicillness & #ibd communities. Self doubt is always there, but I know I have ppl in my corner online and IRL #patientchat |
| Richard Kreis @kreisr1 RT @melissarvh: CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sails. #patientchat |
| Inspire @InspireIsHealth @patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of the term “MacGyvering” used often by @pamressler. Patients and caregivers often have to be MacGyver, out of necessity. #PatientChat |
| Richard Kreis @kreisr1 RT @patientchat: New to tweet chats? Follow the hashtag #patientchat and make sure to include it in every tweet during the next hour. You can engage with others on the topic. |
| Richard Kreis @kreisr1 RT @AutonomicRN: @rheumpatient @bbhomebody We have to have a sense of humor to survive any medical issues, that's what keeps me going a lot of days! #patientchat |
| AutonomicRN© @AutonomicRN CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to be flexible and we need to not feel like we failed if we can't stick to a routine. As long as we are taking care of ourselves overall, that's #1 #patientchat |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to achieve them& when goals need to be changed. #patientchat |
| Melissa VanHouten @melissarvh Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: I'll be at the Empowered #patientchat on Fri 1/12 at 10amPT | 1pmET. Join me! https://t.co/tfI33Z4mw6 via @power4patients |
| Richard Kreis @kreisr1 RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Richard Kreis @kreisr1 RT @AutonomicRN: @lisadbudzinski @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as much damage! #patientchat |
| Patient Chat @patientchat Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @PatientIntv: Sorry I am late #patientchat. |
| Barby Ingle Official @BarbyIngle CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| Richard Kreis @kreisr1 RT @rheumpatient: |
| AutonomicRN© @AutonomicRN @rachvoo @lisadbudzinski @rheumpatient @FieldingPolly @michelerhee I’m with you 110% #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: In our first #patientchat of 2018, we'll be discussing our self-care goals for the next year and how we can accomplish these goals Friday, Jan 12th at 10am PT | 1pm ET. Join us! https://t.co/TcgWFfSKwK |
| Melissa VanHouten @melissarvh RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @michelerhee: @AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/goal-oriented, and I'm still working on accepting when plans change because of the things I have no control over. #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: T2: T2: I'd like to start taking power naps and stop staying up past midnight regularly. #patientchat https://t.co/uf61kHfVFy |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat T1: @patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a nap, journaling, meditating…lots of free things one can do! #patientchat |
| Richard Kreis @kreisr1 RT @teaminspire: @patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of the term “MacGyvering” used often by @pamressler. Patients and caregivers often have to be MacGyver, out of necessity. #PatientChat |
| Jeremy Murphy @jeremypmurphy RT @BarbyIngle: T4: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat |
| Richard Kreis @kreisr1 RT @melissarvh: Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: @patientchat T3: @patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in conversation w/minor complaints on weather or other inconveniences, being mindful to reframe conversations to more meaningful words. Makes a difference. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: CT: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| Richard Kreis @kreisr1 RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a regular bases within SDOH of person/community. #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: CT: CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss. I also learned that I'm not the only one that finds it hard to admit when I need a break #patientchat |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat T5: @patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a book to read or activity to do while waiting in between appointment. #patientchat |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: CT: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| Richard Kreis @kreisr1 RT @AutonomicRN: CT: CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to be flexible and we need to not feel like we failed if we can't stick to a routine. As long as we are taking care of ourselves overall, that's #1 #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Jeremy Murphy @jeremypmurphy RT @BarbyIngle: T5: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Richard Kreis @kreisr1 RT @MightyCasey: CT: CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #rva #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: A5 It’s almost impossible. After Dr days, appts & such, it’s vital to take time the next few days for recovery #PatientChat https://t.co/z6dcdqMCgt |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @rheumpatient: |
| Richard Kreis @kreisr1 RT @richardzhao: @RieOfLetters @lisadbudzinski I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helping me. An old Chinese way to deal with cold #PatientChat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: T3: T3: I've learned I need to schedule self-care, the same way I schedule other important appointments. #patientchat https://t.co/aOMDeiiKwK |
| Rie Lopez, MPH (she/her) @RieOfLetters @CathyChes I'm in #patientchat, Cathy. The topic is self care. 😁 |
| Richard Kreis @kreisr1 RT @patientchat: Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat |
| Jeremy Murphy @jeremypmurphy RT @yourgpsdoc: CT: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| Richard Kreis @kreisr1 RT @RieOfLetters: I really can't say it any better than @michelerhee! #patientchat https://t.co/nJYI7ydnMp |
| Heidi Grabenstatter @PatientIntv CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thought that was bedtime). #patientchat |
| Katie @katie5280 @patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat T4: @patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: T3: T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becoming more involved with social media and advocacy really helped me. #patientchat |
| Richard Kreis @kreisr1 RT @BarbyIngle: CT: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| Richard Kreis @kreisr1 RT @lisadbudzinski: If you would like #organization skills, Barby is the best!! #ExtremeTimeCheater 👇 #PatientChat https://t.co/Yi4I0BQSIA |
| Katie @katie5280 RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
 | Bonnie Collins @bonnielcollins3 RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj |
| Richard Kreis @kreisr1 RT @BarbyIngle: T3: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA |
| Richard Kreis @kreisr1 RT @burtrosen: @patientchat T4: @patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat |
| Richard Kreis @kreisr1 RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules” :) #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: I will introduce new Topics with T1, T2...Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Bonnie Collins @bonnielcollins3 RT @BarbyIngle: CT: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| Lisa Davis Budzinski @lisadbudzinski RT @BarbyIngle: CT: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim |
| AutonomicRN© @AutonomicRN RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @richardzhao: @RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coast has the same cold. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @richardzhao: @lisadbudzinski @Cpnervecenter Hi, Lisa. How are you doing? #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for the next week. #patientchat https://t.co/PHlq20lDfa |
| Richard Kreis @kreisr1 RT @angelee828: @patientchat T3: @patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing support from the online #chronicillness & #ibd communities. Self doubt is always there, but I know I have ppl in my corner online and IRL #patientchat |
| Richard Kreis @kreisr1 RT @AskDrHo: T6: T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar. #patientchat |
| Richard Kreis @kreisr1 RT @RieOfLetters: @rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sipping thing, whereas coffee seems to speed up everything. I really need the serenity! LOL #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat |
| Richard Kreis @kreisr1 RT @FieldingPolly: |
| Jeremy Murphy @jeremypmurphy RT @power4patients: CT: CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss. I also learned that I'm not the only one that finds it hard to admit when I need a break #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @teaminspire @patientchat @pamressler Yes!! We are forced to find hacks #PatientChat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: @rheumpatient @FieldingPolly @rachvoo @michelerhee @AutonomicRN It takes a period of grieving in order a ovlet go of the “old life” we once knew #PatientChat |
| Richard Kreis @kreisr1 RT @RieOfLetters: @richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @patientchat Happy New Year! It feels like it's been a long time since the last #patientchat |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt |
| Richard Kreis @kreisr1 RT @FieldingPolly: |
| Richard Kreis @kreisr1 RT @patientchat: Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat |
| Barby Ingle Official @BarbyIngle @lisadbudzinski My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I re-purposed the Energy Penny story my cheer coach taught me to the #EnergyPennyPrinciple for living life with chronic pain. #patientchat |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat T2: @patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the past to not be beneficial. #patientchat |
| Richard Kreis @kreisr1 RT @PatientIntv: CT: CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thought that was bedtime). #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @bbhomebody @rheumpatient Me too #EhlersDanlos will do that to a person #patientchat |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat CT: @patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat |
| Richard Kreis @kreisr1 RT @MightyCasey: A4: A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting stress impacts physical + mental. Still echoing. #patientchat |
| Richard Kreis @kreisr1 RT @burtrosen: @AutonomicRN i'm learning that the hard way. I beat myself up way too often #patientchat |
| Richard Kreis @kreisr1 RT @FieldingPolly: |
| Richard Kreis @kreisr1 RT @Crohnoid: |
| Richard Kreis @kreisr1 RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Richard Kreis @kreisr1 RT @LizSzabo: #PatientChat going on now. https://t.co/PlmL607hBR |
| Richard Kreis @kreisr1 RT @yourgpsdoc: T5: T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://t.co/T4lyhirwwR |
| Richard Kreis @kreisr1 RT @katie5280: @patientchat T3: @patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this could be simply explaining to others that you need to take time to recharge and that may mean alone. #patientchat |
| Richard Kreis @kreisr1 RT @richardzhao: @lisadbudzinski @RieOfLetters With subzero temperature outside, sleeping is my self care 🤒 #PatientChat |
| Richard Kreis @kreisr1 RT @patientchat: @FieldingPolly No! #patientchat is for everyone, where ever you are :) |
| Richard Kreis @kreisr1 RT @burtrosen: Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: Great idea! #patientchat https://t.co/Zi1qadQLkO |
| Michele Rhee @michelerhee RT @yourgpsdoc: CT: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| Rie Lopez, MPH (she/her) @RieOfLetters CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea and more sleep for me! #selfcare #patientchat |
| Michele Rhee @michelerhee @patientchat Thank you so much for hosting!! This was amazing! #patientchat |
| Richard Kreis @kreisr1 RT @BarbyIngle: T2: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3 |
| Richard Kreis @kreisr1 RT @BarbyIngle: @lisadbudzinski My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I re-purposed the Energy Penny story my cheer coach taught me to the #EnergyPennyPrinciple for living life with chronic pain. #patientchat |
| Richard Kreis @kreisr1 RT @FieldingPolly: |
| Lisa Davis Budzinski @lisadbudzinski @rachvoo @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Definitely. That’s why it’s important to go through the stages of grief in order to handle such situations 💕 or it can eat ya alive desperately missing what we once were pre-illness #PatientChat |
| Richard Kreis @kreisr1 RT @Elizabe85727641: T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help & support. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Topic 2 (T2:) coming up…https://t.co/af64O14k9d #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Thought you might like this @CathyChes 😁😁😁 https://t.co/jECuuI9Y8D |
| Richard Kreis @kreisr1 RT @RieOfLetters: CT: CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea and more sleep for me! #selfcare #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @yourgpsdoc My motto is "have bag, will travel" #patientchat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: @power4patients Yay! We write the same thing at the same time 💕 #PatientChat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: @AutonomicRN Those daily curve balls are a huge self-care disrupters #PatientChat |
| Richard Kreis @kreisr1 RT @RieOfLetters: @burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to ourselves as we are to others. #patientchat |
| AutonomicRN© @AutonomicRN @rheumpatient Ugh! More like a convoy! #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @FieldingPolly I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat |
| Richard Kreis @kreisr1 RT @michelerhee: T2: T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them because I think I "should" do other things. I need to remember that I'm the expert in my own health and then act on that. #patientchat https://t.co/q4rVoZpyjC |
| Richard Kreis @kreisr1 RT @AutonomicRN: T4: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients. Care partners as in significant others, friends, family, etc need to prioritize self care because we need their help also to meet goals #patientchat |
| Richard Kreis @kreisr1 RT @melissarvh: A1 Taking a step back every now & then to regain my sanity & focus 4 a moment on something other than #Gastroparesis advocacy. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Richard Kreis @kreisr1 RT @MightyCasey: WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski RT @Elizabe85727641: T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a regular bases within SDOH of person/community. #patientchat |
| AutonomicRN© @AutonomicRN @lisadbudzinski @rachvoo @rheumpatient @FieldingPolly @michelerhee Soooooo true! #patientchat |
| Richard Kreis @kreisr1 RT @lisadbudzinski: @rachvoo @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Definitely. That’s why it’s important to go through the stages of grief in order to handle such situations 💕 or it can eat ya alive desperately missing what we once were pre-illness #PatientChat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @lisadbudzinski @rheumpatient @FieldingPolly @rachvoo @michelerhee The grieving period repeats itself each time we add a new diagnosis also... #patientchat |
| Richard Kreis @kreisr1 RT @yourgpsdoc: @michelerhee @FieldingPolly So true! The guilt is real. #patientchat |
| Richard Kreis @kreisr1 RT @MightyCasey: A3: A3: Self care in 2017 was hard AF, thanks to stress tsunamis personal (income loss) and public (Twitler the Vulgarian in the Oval, film at 11, on blast). #patientchat |
| Richard Kreis @kreisr1 RT @RieOfLetters: @CathyChes I'm in #patientchat, Cathy. The topic is self care. 😁 |
| Richard Kreis @kreisr1 RT @power4patients: @teaminspire Hi, John! So glad you are here. Happy New Year! #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: @burtrosen Epiphanies come in all shapes and sizes. #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @rheumpatient Ugh! More like a convoy! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @yourgpsdoc: CT: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN |
| Richard Kreis @kreisr1 RT @FieldingPolly: |
| Rie Lopez, MPH (she/her) @RieOfLetters I suppose I should get out of bed and pick up the girls from school!I'll definitely need to catch up on all the #patientchat tweets I know that I missed. |
| Michele Rhee @michelerhee @lisadbudzinski @rachvoo @rheumpatient @FieldingPolly @AutonomicRN I realized that I was grieving for the person that I had been, the person I thought I should have been. I had to come to terms with the loss of that person with each new diagnosis. But I love the person I am now & the work I do! So, I have really come to terms. #patientchat |
| Angela Cohen @angelee828 @patientchat T5: I love my #AppleWatch bc it has the breathe app right on it, I take my headphones, charger & all necessary toiletries at all times. I’ve also gotten on the floor (if needed) when my #POTS or #Arthritis has been too bad. I do what’s needed. 🤷🏻♀️ #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! bbhomebody: @richardzhao Hi Richard🖑 Happy New year! #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! RieOfLetters: @richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! RieOfLetters: @richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! RieOfLetters: @richardzhao @lisadbudzinski Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! bbhomebody: @richardzhao I'd love to do that Richard. Let me know when you're healthy again and have some time😀👍 #PatientChat |
| AutonomicRN© @AutonomicRN @michelerhee @lisadbudzinski @rachvoo @rheumpatient @FieldingPolly I can definitely relate to that. It took a lot of grieving to all of sudden realize that my disease had given me something to be thankful for. My advocacy, blogging, and whole new found group of friends are really great things that have come out of the grief! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @michelerhee @rachvoo @rheumpatient @FieldingPolly @AutonomicRN You have now reached the ultimate pentacle of self-growth in spite of illness ✨ #PatientChat |
| Angela Cohen @angelee828 Thanks for yet another enlightening #patientchat 😃 |
| Heidi Grabenstatter @PatientIntv Thanks for hosting and for all who contributed at #patientchat. |
#patientchat content from Twitter.