#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Happy New Year and welcome to #patientchat - where patients, care partners, and advocates come together to learn from each other and discuss topics of interest to empowered patients.
Barby Ingle 📣 @BarbyIngle
RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/z…
Dr. Elise Cohen Ho @askdrho
@patientchat Happy New Year. I love #patientchat
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
AutonomicRN© @AutonomicRN
@patientchat Happy New Year! It feels like it's been a long time since the last #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules” :) #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat Hi I am Polly - an author & artist #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat I'm Nicole Rochester, physician, caregiver, patient advocate and CEO of @yourgpsdoc #patientchat
Patient Chat @patientchat
Today's #patientchat is solely informational & not a substitute for speaking with a doctor who's familiar with your medical needs and history.
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
AutonomicRN© @AutonomicRN
Kim here from Wisconsin. #raredisease and #patientientadvocate, #blogger #patientchat
Katie @katie5280
@patientchat Hi! It's Katie, breast cancer survivor & t2 diabetic. #patientchat
Dr. Elise Cohen Ho @askdrho
HI. I am a Holistic Lifestyle Coach with an extreme passion for helping people with #parenting issues, #relationship obstacles, disease management, and overall #healthyliving. I blog at https://t.co/YQlZSb7XUX #patientchat
Rheumatoid Patient @rheumpatient
Hi. I'm in the UK with rheumatoid arthritis and am involved as a patient in co-designing research projects. #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
A warm New Year’s greeting to all, Liz Kelly, where our palm trees are moving rapidly because of a freezing blast of air from the north. #patientchat
Barby Ingle 📣 @BarbyIngle
I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality Personality. Looking forward to todays chat! #CheerleaderofHOPE #patientchat https://t.co/q0aRwXqnYN
Polly Marie Fielding @FieldingPolly
@AutonomicRN @patientchat Happy new Year to you too #patientchat
Lisa Davis Budzinski @lisadbudzinski
Everyone have a great weekend no matter where you are! #HITsm Off to #patientchat
Patient Empowerment @power4patients
Happy New Year! Andrea here from PEN. Looking forward to today's chat. I need some inspiration #patientchat
Richard Zhao @richardzhao
I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat oh I am also a patient from time to time #patientchat
AutonomicRN© @AutonomicRN
@Elizabe85727641 We have plenty of freezing air here!! #patientchat
Patient Chat @patientchat
Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d
Becky Brandt RN @bbhomebody
Hi everyone🖑 Happy 2018! I'm Becky, cofounder @cpnervecenter, RN, professional #Chronicpain patient & advocate from Washington state #patientchat https://t.co/5jqAwAodRO
AutonomicRN© @AutonomicRN
@richardzhao Hi Richard! #patientchat
Tony Guerra - Pharmacy Leaders Podcast Host @tony_pharmd
RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/z…
Patient Chat @patientchat
I will introduce new Topics with T1, T2...Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @patientchat: Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d
Becky Brandt RN @bbhomebody
@richardzhao Hi Richard🖑 Happy New year! #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat Good topic #patientchat
Richard Zhao @richardzhao
@AutonomicRN Hi, Kimberly. How are you doing? #patientchat
Angela Cohen @angelee828
Hey! Angela from Wisconsin here. 👋🏽#patientchat
Richard Zhao @richardzhao
@bbhomebody Happy New Year, Becky! #patientchat
burtrosen @burtrosen
Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat
AutonomicRN© @AutonomicRN
@richardzhao I’m doing okay! Trying to stay warm, how’s the weather in Minneapolis? #patientchat
Patient Chat @patientchat
Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat
burtrosen @burtrosen
RT @patientchat: Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d
AutonomicRN© @AutonomicRN
@bbhomebody @Cpnervecenter Hey Becky! #patientchat
Patient Chat @patientchat
T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Tony Guerra - Pharmacy Leaders Podcast Host @tony_pharmd
I'm Tony Guerra from Iowa #pharmacist and #podcaster #patientchat
Richard Zhao @richardzhao
@AutonomicRN Lucky we can get above 0 within next couple days in Minneapolis #PatientChat
Polly Marie Fielding @FieldingPolly
@patientchat Do we have to be in the USA to take part? #patientchat
Rheumatoid Patient @rheumpatient
@bbhomebody @Cpnervecenter It's evening in London. I'm sat down with a cup of tea 😀. #soveryBritish #patientchat
Nigel H @Crohnoid
Good evening. Nigel in the UK. Long term IBD patient #patientchat
AutonomicRN© @AutonomicRN
@burtrosen Good to "see" you, Burt!! #patientchat
Katie @katie5280
@patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a nap, journaling, meditating…lots of free things one can do! #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @richardzhao: I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #pat
Polly Marie Fielding @FieldingPolly
@patientchat Self care for me means paying attention to my physical & mental health #patientchat
Rie Lopez, MPH @RieOfLetters
I've made it! A very drowsy Rie is popping in from the comfort of bed. #patientchat
Melissa VanHouten @melissarvh
A1 Taking a step back every now & then to regain my sanity & focus 4 a moment on something other than #Gastroparesis advocacy. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Dr. Elise Cohen Ho @askdrho
A1 Self-care is about recognizing and honoring the fact that if we do not take care of ourselves then we really have nothing to give. #patientchat
Barby Ingle 📣 @BarbyIngle
T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching, clinical trials, taking time for myself when needed, walking, taking time to improve my mental and physical well-being daily #patientchat https://t.co/UFkiJtEyEB
Angela Cohen @angelee828
@Crohnoid Hi Nigel! How’re you? #patientchat
Your GPS Doc, LLC @yourgpsdoc
T1: Self-care for me often means going easy on myself and accepting imperfect action. #patientchat https://t.co/Jj9Qn5psWT
Patient Chat @patientchat
@FieldingPolly No! #patientchat is for everyone, where ever you are :)
Rachel Voorhees @rachvoo
@patientchat T1: Knowing my limits and not pushing past them. Taking a day of rest if I need it and not judging myself for it. #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat Thank you #patientchat
AutonomicRN© @AutonomicRN
T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturing your physical and emotional health as well. We were only given one body, so we mine as well take as good of care as we can. #patientchat
Rie Lopez, MPH @RieOfLetters
@FieldingPolly @patientchat No, not at all! We welcome everyone. 😁 #patientchat
Dr. Elise Cohen Ho @askdrho
A1 Self-care that I enjoy includes getting rest, exercise, and eating well. It also includes a massage, manicure or a relaxing evening. #patientchat
Rheumatoid Patient @rheumpatient
T1: It's taking my meds, exercising when I can, doing mindfulness and managing my energy (or lack of) levels. #patientchat
Nigel H @Crohnoid
T1: To me it is not letting my condition dictate my #QOL. For keeping the body fit then I choose gardening and for the mind writing/playing guitar #PatientChat
AutonomicRN© @AutonomicRN
@RieOfLetters Yay, Rie!! Glad you were able to join! #patientchat
Patient Empowerment @power4patients
T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a break and then feeling OK about it #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality P…
Dr. Elise Cohen Ho @askdrho
We do not have to spend a lot of money in order to practice self-care. #patientchat https://t.co/K4yDKURaYE
International Pain Foundation® @powerofpain
RT @BarbyIngle: T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching…
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality P…
Polly Marie Fielding @FieldingPolly
@BarbyIngle it means also watching when I am judging myself too harshly #patientchat
Dr. Elise Cohen Ho @askdrho
RT @AutonomicRN: T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturin…
Dr. Elise Cohen Ho @askdrho
RT @rachvoo: @patientchat T1: Knowing my limits and not pushing past them. Taking a day of rest if I need it and not judging myself for it.…
Rheumatoid Patient @rheumpatient
RT @FieldingPolly: @patientchat Self care for me means paying attention to my physical & mental health #patientchat
Michele Rhee @michelerhee
Hi! Sorry to join late! I'm Michele, patient advocate from Boston. #ayacsm #raredisease #chronicillness #invisibleillness #patientchat https://t.co/vuUoYByCJN
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching…
Dr. Elise Cohen Ho @askdrho
A1 My self-care today definitely includes a nap. #patientchat
Melissa VanHouten @melissarvh
A1 Honestly, it helps me to be working & advocating for the most part. Me caring for others is a sort of self-care = purpose. #patientchat
Nigel H @Crohnoid
@angelee828 Doing OK. Thanks for asking #patientchat
Dr. Elise Cohen Ho @askdrho
RT @power4patients: T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a…
AutonomicRN© @AutonomicRN
Admitting when we need a break is half the battle! #patientchat https://t.co/XJryaUjrmF
michelleraefino @fino_rae
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Lisa Davis Budzinski @lisadbudzinski
Hi everyone! Lisa here: co-founder @Cpnervecenter Advocate for #chronicillness #patientperspective 30+ yrs exp in research & healthcare Love tech, #AI #VR #patientchat
Patient Empowerment @power4patients
@AutonomicRN Exactly! #patientchat
Richard Zhao @richardzhao
@lisadbudzinski @Cpnervecenter Hi, Lisa. How are you doing? #patientchat
Becky Brandt RN @bbhomebody
T1 It means listening to my body: Rest when I'm tired, move when I'm able, use breakthrough pain meds when needed, pay for a pedicure now and then & Say yes or say No and mean it. #patientchat
Rheumatoid Patient @rheumpatient
RT @power4patients: T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a…
Rie Lopez, MPH @RieOfLetters
T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attending medical appointments. #patientchat
Michele Rhee @michelerhee
T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to ensure I can be as healthy as possible...and to try to not feel guilty (or lazy) for doing it. #patientchat https://t.co/RaCR560q4C
AutonomicRN© @AutonomicRN
@melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps me! #patientchat
Richard Zhao @richardzhao
RT @lisadbudzinski: Hi everyone! Lisa here: co-founder @Cpnervecenter Advocate for #chronicillness #patientperspective 30+ yrs exp in resea…
Melissa VanHouten @melissarvh
RT @AutonomicRN: @melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps…
Nigel H @Crohnoid
T1: Most difficult aspect is not feeling guilty when there's so many things to be doing but I need a rest. Goes against the grain #PatientChat
AutonomicRN© @AutonomicRN
@lisadbudzinski @Cpnervecenter Hey Lisa! #patientchat
Rheumatoid Patient @rheumpatient
RT @RieOfLetters: T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attendin…
Patient Chat @patientchat
RT @michelerhee: T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to en…
Polly Marie Fielding @FieldingPolly
@patientchat This year I have resolved to eat less & exercise more as well as trying to find ways to get enough sleep #patientchat
Angela Cohen @angelee828
@patientchat T1: Somedays it means shutting out/down everything electronic. (I just did that and I’m still playing catch-up) Sometimes it means things as little as deep breaths, or as big as avoiding toxic ppl that I care deeply for. It depends on the day. #patientchat
Melissa VanHouten @melissarvh
RT @Crohnoid: T1: Most difficult aspect is not feeling guilty when there's so many things to be doing but I need a rest. Goes against the g…
AutonomicRN© @AutonomicRN
@Crohnoid @angelee828 Hi Nigel! #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up…https://t.co/af64O14k9d #patientchat
Nigel H @Crohnoid
@angelee828 @patientchat Definitely. It's amazing the difference it makes #PatientChat
Becky Brandt RN @bbhomebody
@lisadbudzinski @Cpnervecenter Mornin partner 😘#patientchat
Maggie Rogers @magthenomad
RT @RieOfLetters: T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attendin…
Michele Rhee @michelerhee
@rachvoo @patientchat It's the judging myself! I feel like I know my limits, but I feel guilty for not being able to do everything that I "should" do. #patientchat
Rie Lopez, MPH @RieOfLetters
This, right here! #selfcare should be guilt-free. #patientchat https://t.co/0dWgfhPO9S
AutonomicRN© @AutonomicRN
Sleep would be a gift from the heavens! #patientchat https://t.co/UGP2sGK4A0
Richard Zhao @richardzhao
@RieOfLetters Hi, Rie How are you doing? #patientchat
Patient Chat @patientchat
T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat
Lisa Davis Budzinski @lisadbudzinski
A1 Self-care in chronic illness is all about daily management in order to obtain a better quality of life #PatientChat https://t.co/Hc8hU1UOEL
Patient Empowerment @power4patients
RT @patientchat: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patie
AutonomicRN© @AutonomicRN
@angelee828 @patientchat Toxic people play a huge role. We have to be able to identify them and set limits. #patientchat
Polly Marie Fielding @FieldingPolly
@michelerhee Yes, so often we think we are being selfish to think about doing things for ourselves but 'selfish' meaning meeting our own needs is healthy (contrary to how we might have been brought up to believe #patientchat
Mighty Casey Quinlan @MightyCasey
WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat
ElizabethKelly, Ph.D @Elizabe85727641
T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both seem and unseen. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @FieldingPolly: @michelerhee Yes, so often we think we are being selfish to think about doing things for ourselves but 'selfish' meaning…
Heidi Grabenstatter @PatientIntv
Thank you for a great #hitsm chat. Quite sure that I am late to #patientchat. Enjoy your weekend!
AutonomicRN© @AutonomicRN
Buzz words for 2018 for everyone #qualityoflife #patientchat https://t.co/gUinrcvEgl
Michele Rhee @michelerhee
@RieOfLetters So many of us are mentioning the guilt or self-judgement we feel when taking care of ourselves! I bet none of us would ever judge someone else for doing the same. Why are we so harsh on ourselves? #patientchat
Lisa Davis Budzinski @lisadbudzinski
@melissarvh Right?! The distraction advocacy can provide is truly a self-care benefit ✨ #patientchat
Your GPS Doc, LLC @yourgpsdoc
T2: I'd like to start taking power naps and stop staying up past midnight regularly. #patientchat https://t.co/uf61kHfVFy
Rheumatoid Patient @rheumpatient
T2: In 2018 I'd like to nap less in the afternoons so I can have more time to have a life! #patientchat
Inspire @teaminspire
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @AutonomicRN: Buzz words for 2018 for everyone #qualityoflife #patientchat https://t.co/gUinrcvEgl
Mighty Casey Quinlan @MightyCasey
A1: I admit I'm not great at self-care. My escape zones are movies, books, cooking, art, music, the outdoors. A perfect day = ALL. OF. THE. THINGS. Most weeks, I get one or two at best. #PatientChat
Michele Rhee @michelerhee
@FieldingPolly It's what they say on the plane: you need to put your oxygen mask on first before you put the other person's on. But...it's hard to do in practice without feeling that guilt!! #patientchat
Angela Cohen @angelee828
@michelerhee @rachvoo @patientchat So true! So often I know I can’t, but I feel I “should”... #patientchat
Patient Chat @patientchat
@PatientIntv Hi Heidi! We're on T2, come along anytime! #patientchat
Enlightening Results @GraceCordovano
Happy Friday #patientchat! Grace, private cancer patient advocate & patient experience activist joining in late from NJ.
Katie @katie5280
@patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the past to not be beneficial. #patientchat
Barby Ingle 📣 @BarbyIngle
T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3
Mighty Casey Quinlan @MightyCasey
RT @Crohnoid: T1: Most difficult aspect is not feeling guilty when there's so many things to be doing but I need a rest. Goes against the g…
burtrosen @burtrosen
T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat
Michele Rhee @michelerhee
@AutonomicRN I need to remember this. I think of pushing my body instead of caring for my body. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@michelerhee @FieldingPolly So true! The guilt is real. #patientchat
Dr. Elise Cohen Ho @askdrho
A2 One of my 2018 #smartgoals is based on upping my fitness game. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@michelerhee @rachvoo @patientchat So so true💕 #PatientChat
Michele Rhee @michelerhee
@AskDrHo @FieldingPolly Yes!!!!! #patientchat
Polly Marie Fielding @FieldingPolly
@yourgpsdoc Since I have to eat, & sleep daily the exercise is the one I have to make more time for - disciplining myself with the other 2 will help I hope #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
AutonomicRN© @AutonomicRN
T2: I would like to start sleeping (no really, I would)! Would like to be able to take more time for #selfcare and less time for trying to stay caught up with what my body is doing to me! #patientchat
Rie Lopez, MPH @RieOfLetters
@richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat
Enlightening Results @GraceCordovano
@MightyCasey Hi Casey! Love your list. Wishing you a weekend filled w/your fav things #patientchat
Natalie 🦓 @_Nataliea
@patientchat T2. Continuing my FB detox. So much better without the deluge of information and pressure to keep up with it! #patientchat
Melissa VanHouten @melissarvh
A2 I put a lot of pressure on myself to perform. Always a battle to recognize & respect real physical limitations. #patientchat
Inspire @teaminspire
Hello to #patientchat, John Novack from Inspire, joining late, and lurking.
Rachel Voorhees @rachvoo
@patientchat T2: I'd like to start going to bed earlier and having a more consistent morning meditation practice. Self-care is at the top of my list right now, though I struggle to keep it there when my job requires a lot of my focus/attention. #patientchat
AutonomicRN© @AutonomicRN
Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt
Heidi Grabenstatter @PatientIntv
Sorry I am late #patientchat.
AutonomicRN© @AutonomicRN
@GraceCordovano Hey Grace! #patientchat
Polly Marie Fielding @FieldingPolly
@AskDrHo I agree with doing this one. I have long watched my diet but need to focus more on this too #patientchat
burtrosen @burtrosen
@AutonomicRN so unreasonable! #patientchat
Mighty Casey Quinlan @MightyCasey
A2: Last fall I started focusing on using all of the stuff embedded in my Samsung smart watch. Tracking activity and logging food/water/sleep. Continuing that focus thru 2018. #PatientChat
Lisa Davis Budzinski @lisadbudzinski
A2 Continue to learn all that I can from many angles in healthcare, help as many people I can but reigning myself in to not overdo it #patientchat https://t.co/mmEwqMIURX
Mighty Casey Quinlan @MightyCasey
RT @burtrosen: T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat
Becky Brandt RN @bbhomebody
T2 I'd like to be done with GUILT. My body can only do so much and that should be enough! I'd like to add more Social activities, some over a virtual realm, like Patient hangouts online and some in the real world. #patientchat
AutonomicRN© @AutonomicRN
@burtrosen I know, right! #patientchat
Rachel Voorhees @rachvoo
@angelee828 @michelerhee @patientchat Same. It's helpful to know I'm not alone, but I hope we can all start to be a little kinder to ourselves #patientchat
Michele Rhee @michelerhee
T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them because I think I "should" do other things. I need to remember that I'm the expert in my own health and then act on that. #patientchat https://t.co/q4rVoZpyjC
Richard Zhao @richardzhao
@RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coast has the same cold. #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat
Dr. Elise Cohen Ho @askdrho
@rachvoo @patientchat I like to meditate for a quick session when I wake up. It helps to start the day off well. I do a second session midday. #selfcare #patientchat
Patient Empowerment @power4patients
@teaminspire Hi, John! So glad you are here. Happy New Year! #patientchat
Becky Brandt RN @bbhomebody
@melissarvh We were sure thinking the same thing on this topic! 😀 #patientchat
Lisa Davis Budzinski @lisadbudzinski
@burtrosen That’s a tough one ✨ #PatientChat
burtrosen @burtrosen
@AutonomicRN i'm learning that the hard way. I beat myself up way too often #patientchat
Polly Marie Fielding @FieldingPolly
@AutonomicRN If anyone has a good way to get natural, drug-free sleep please let me know. I have tried all the sleep hygiene #patientchat
Rachel Voorhees @rachvoo
@_Nataliea @patientchat I turned off notifications for social on my phone. It's definitely helped #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody 🙋‍♀️#patientchat
Enlightening Results @GraceCordovano
@AutonomicRN Fancy meeting you here 😜Hope all is well #patientchat
Patient Chat @patientchat
T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining your goals? #patientchat
Dr. Elise Cohen Ho @askdrho
@FieldingPolly It is really important. I spoke with one of my fitness expert friends to see how to up my game in a smart way. #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T2 Develop more patience with healthcare support staff who demonstrate a high level of incompetence when providing information, explaining bills. Health literacy is a fact; additional skills to overcome are needed. #patientchat
AutonomicRN© @AutonomicRN
@FieldingPolly I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat
Michele Rhee @michelerhee
T2: I also want to get fit enough that I could make it through the workout movie montage in a revenge movie. #patientchat https://t.co/lA4dw5DMFd
Rheumatoid Patient @rheumpatient
RT @melissarvh: A2 I put a lot of pressure on myself to perform. Always a battle to recognize & respect real physical limitations. #patient
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
AutonomicRN© @AutonomicRN
@GraceCordovano It's going... #patientchat
Barby Ingle 📣 @BarbyIngle
T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA
Rachel Voorhees @rachvoo
@AskDrHo @patientchat Nice! I was doing a short practice in the morning, but have fallen off the bandwagon. Need to start again. #patientchat
Rie Lopez, MPH @RieOfLetters
T2: I need to address some of my own guilt and feelings of failure, especially surrounding #selfcare. This is a major #Mentalhealth goal. Self care is not selfish. #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
Katie @katie5280
@patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this could be simply explaining to others that you need to take time to recharge and that may mean alone. #patientchat
Polly Marie Fielding @FieldingPolly
@michelerhee I think we are too good at shoulding on ourselves from a great height! #patientchat
Rachel Voorhees @rachvoo
@Elizabe85727641 Agreed. This is such a challenge for me. #patientchat
Maggie Rogers @magthenomad
T2: I’m really trying to work out more but also make more quiet time for myself, to read more for fun, and to meditate! I just found out that #YAcancer @FirstDescents alumni get a free lifetime of @Headspace!! And I’m loving it so far #patientchat https://t.co/qLNywhXYwP
AutonomicRN© @AutonomicRN
T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becoming more involved with social media and advocacy really helped me. #patientchat
Heidi Grabenstatter @PatientIntv
T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly, new attitude has generated new opportunities. #patientchat
Enlightening Results @GraceCordovano
@burtrosen Hi Burt! So important to remember. #patientchat
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
ElizabethKelly, Ph.D @Elizabe85727641
T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat
Becky Brandt RN @bbhomebody
T3 I'M IN LOVE with my Alexa virtual assistant. She keeps me on track with Alarms, reminders, sending messages, calendar, lists etc. Needless to say I'll be using more tech in 2018 to simplify my life. #patientchat
Your GPS Doc, LLC @yourgpsdoc
T3: I've learned I need to schedule self-care, the same way I schedule other important appointments. #patientchat https://t.co/aOMDeiiKwK
Richard Zhao @richardzhao
@lisadbudzinski @RieOfLetters With subzero temperature outside, sleeping is my self care 🤒 #PatientChat
Nigel H @Crohnoid
T2: For 2018 I want to change the emphasis of my healthcare away from #IBD (in remission) to a couple more pressing issues; I want to get involved with medical research; and I want to finally publish a book. That's probably enough to be going on with #patientchat
Rie Lopez, MPH @RieOfLetters
@burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to ourselves as we are to others. #patientchat
nik williams @unkel__snigga
RT @patientchat: T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining y…
Becky Brandt RN @bbhomebody
@AutonomicRN Ditto there😉 #PatientChat
Dr. Elise Cohen Ho @askdrho
T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be super clear on what those goals actually are. #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat I succeeded in beginning to criticise myself a bit less . My lack of healthy self esteem is a barrier to getting my goals reached but I'm working on it #patientchat
AutonomicRN© @AutonomicRN
Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat
burtrosen @burtrosen
@GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #PatientChat
Melissa VanHouten @melissarvh
A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for myself. #patientchat
Rheumatoid Patient @rheumpatient
T3: In 2017 I managed to keep up with practising mindfulness and tai chi on a daily basis. It's really helped with anxiety and keeping depression at bay. #patientchat
Rachel Voorhees @rachvoo
@patientchat T3: I cut out foods that were hurting me. It was so hard and still is, but I did it. Having the support of my mom, online support groups and my healthcare team helped me. Lack of support, lack of respect for yourself and impulsive behavior can set you back #patientchat
Enlightening Results @GraceCordovano
@RieOfLetters Hi Rie! Great to catch up here #patientchat
Patient Empowerment @power4patients
@yourgpsdoc Great idea! I do this for exercise but never to help make room for other self care goals. I'm going to start today. #patientchat
Dr. Elise Cohen Ho @askdrho
T3 Accountability is also very helpful to have when working in goals. I have joined a fitness challenge to help with my fitness goals. #patientchat
Enlightening Results @GraceCordovano
@lisadbudzinski @Cpnervecenter Hi Lisa! Catching up here...#patientchat
Mighty Casey Quinlan @MightyCasey
@GraceCordovano Hah! Will be filled with work, planning #rightcare campaigns for 2018. #PatientChat
Becky Brandt RN @bbhomebody
@katie5280 @patientchat I'm single too and I totally agree about the quiet alone time. It's actually really nice in my opinion😀 #PatientChat
Rie Lopez, MPH @RieOfLetters
@richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat
Enlightening Results @GraceCordovano
@burtrosen Epiphanies come in all shapes and sizes. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @burtrosen: @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #P
Michele Rhee @michelerhee
@magthenomad @FirstDescents @Headspace I love @FirstDescents!!!! #ayacsm #patientchat
Dr. Elise Cohen Ho @askdrho
@AutonomicRN Great point. I think self-care also should include not being afraid to ask questions and to ask for help when needed. #patientchat
Rachel Voorhees @rachvoo
@patientchat Also money can keep you from reaching your goals. Sometimes the things we need to reach our health goals are insanely expensive and not covered by insurance such as specialized physical therapy. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@GraceCordovano @Cpnervecenter Hi Grace! Doesn’t it seem like we’re doing that all the time?! 💕 #PatientChat
Barby Ingle 📣 @BarbyIngle
T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat
AutonomicRN© @AutonomicRN
@AskDrHo Totally agree! #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @michelerhee: @magthenomad @FirstDescents @Headspace I love @FirstDescents!!!! #ayacsm #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Rie Lopez, MPH @RieOfLetters
@GraceCordovano Hi Grace! Glad to see you as always. 😁 #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Rheumatoid Patient @rheumpatient
@Crohnoid What's the book going to be on? #patientchat
Patient Chat @patientchat
T4: Why is it important for care partners to prioritize self-care too? #patientchat
Melissa VanHouten @melissarvh
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Patient Empowerment @power4patients
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
Rachel Voorhees @rachvoo
@rheumpatient I've been thinking taking a tai chi since I can't participate in most other group classes #patientchat
Katie @katie5280
@patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody @katie5280 @patientchat Quiet time is my favorite! #patientchat
Inspire @teaminspire
RT @AskDrHo: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be sup…
Michele Rhee @michelerhee
@AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/goal-oriented, and I'm still working on accepting when plans change because of the things I have no control over. #patientchat
Richard Zhao @richardzhao
@RieOfLetters @lisadbudzinski I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helping me. An old Chinese way to deal with cold #PatientChat
Rheumatoid Patient @rheumpatient
@AutonomicRN Yes, I've definitely become more resilient since developing RA. It's bend or break! #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat Because if they don't look after themselves they can't look out for you too #patientchat
Mighty Casey Quinlan @MightyCasey
A3: Self care in 2017 was hard AF, thanks to stress tsunamis personal (income loss) and public (Twitler the Vulgarian in the Oval, film at 11, on blast). #patientchat
Dr. Elise Cohen Ho @askdrho
T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Inspire @teaminspire
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
Nigel H @Crohnoid
T3: Since 2010 I've treated any setbacks in my health as "experiences" and then blogging about them has helped me keep a positive attitude #PatientChat
ElizabethKelly, Ph.D @Elizabe85727641
T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to achieve them& when goals need to be changed. #patientchat
Patient Chat @patientchat
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Becky Brandt RN @bbhomebody
RT @katie5280: @patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat
burtrosen @burtrosen
@patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat
Enlightening Results @GraceCordovano
@patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in conversation w/minor complaints on weather or other inconveniences, being mindful to reframe conversations to more meaningful words. Makes a difference. #patientchat
Rie Lopez, MPH @RieOfLetters
T3: I spent most of 2017 just trying to get through it. A strong support system, being mentally 'there', and realistic goals are important components to successful behavior change. #patientchat
Patient Empowerment @power4patients
T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.co/QPFQaj8hAi #patientchat
Becky Brandt RN @bbhomebody
T4 We're all better at caring for others if we first care for ourselves. #PatientChat
Rachel Voorhees @rachvoo
@patientchat T4: If you get burnt out, you won't be able to help yourself or anyone else. We all need rest #patientchat
Melissa VanHouten @melissarvh
A4 See the toll illness takes on #caregivers in the groups. They must have time to relax & rejuvenate to be effective. #patientchat
Patient Empowerment @power4patients
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Becky Brandt RN @bbhomebody
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@AutonomicRN Those daily curve balls are a huge self-care disrupters #PatientChat
Dr. Elise Cohen Ho @askdrho
RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.…
Rheumatoid Patient @rheumpatient
@rachvoo I thought it would be bad for my knees but it's actually easy going. My knees and balance are better. It also helps slow down the mind. #patientchat
Rachel Voorhees @rachvoo
@michelerhee @AutonomicRN Same here. I've really had to learn to let things go #patientchat
Angela Cohen @angelee828
@AutonomicRN @FieldingPolly Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up every couple of hours 🙄😑 #patientchat
Your GPS Doc, LLC @yourgpsdoc
T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP
Polly Marie Fielding @FieldingPolly
@rachvoo @michelerhee @AutonomicRN 'letting go' of the past is often one of the hardest things for some of us to do #patientchat
AutonomicRN© @AutonomicRN
T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients. Care partners as in significant others, friends, family, etc need to prioritize self care because we need their help also to meet goals #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Becky Brandt RN @bbhomebody
@rheumpatient @AutonomicRN Great point- Bend or Break! Luckily I'm Flexible 😀 #PatientChat
Mighty Casey Quinlan @MightyCasey
A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting stress impacts physical + mental. Still echoing. #patientchat
Liz Szabo @LizSzabo
#PatientChat going on now. https://t.co/PlmL607hBR
Michele Rhee @michelerhee
T4: Compassion & empathy fatigue are devastating. When one person in a family gets cancer (or other major/chronic illness), everyone gets cancer (or other illness). The health of the family/carers is vital to ensuring the health of the relationships and patients. #patientchat https://t.co/wi83Fz0oQQ
Alan Kaye @stopcancernow
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
Polly Marie Fielding @FieldingPolly
@angelee828 @AutonomicRN So hard when pain prevents sleep #patientchat
Rie Lopez, MPH @RieOfLetters
@richardzhao @lisadbudzinski Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat
Alan Kaye @stopcancernow
RT @AskDrHo: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be sup…
Rachel Voorhees @rachvoo
@FieldingPolly @michelerhee @AutonomicRN For sure. I practice mindful meditation to help make it a little easier #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody @rheumpatient Me too #EhlersDanlos will do that to a person #patientchat
Heidi Grabenstatter @PatientIntv
T4: Carpenters become susceptible to underlying conditions during the stress of caring for partner or loved one. Sleep deprivation and diet are critical to stress-induced issues. #patientchat
Patient Chat @patientchat
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Michele Rhee @michelerhee
@RieOfLetters Realistic goals!! I'm so bad at that, lol. I like to say that I'm a "realistic optimist"...but I think I sometimes am just...well...overly optimistic. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @AutonomicRN: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients.…
Rheumatoid Patient @rheumpatient
@rachvoo I do tai chi from YouTube. Found a video my body is comfortable with the moves and I stick with that. #patientchat
Inspire @teaminspire
RT @Crohnoid: T3: Since 2010 I've treated any setbacks in my health as "experiences" and then blogging about them has helped me keep a posi…
AutonomicRN© @AutonomicRN
@angelee828 @FieldingPolly Sometimes you just want to scream! But, then you know that the dogs and husband will wake up... #patientchat
Lisa Davis Budzinski @lisadbudzinski
A4 I’ve learned the hard way caring for hubby 30yrs & Mom with Leukemia can take a huge toll on a body #PatientChat https://t.co/AKDHDGYA3y
ElizabethKelly, Ph.D @Elizabe85727641
T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help & support. #patientchat
Becky Brandt RN @bbhomebody
@FieldingPolly @angelee828 @AutonomicRN Poor sleep aka #Painsomnia is awful and just ruins us! #PatientChat
Rheumatoid Patient @rheumpatient
RT @michelerhee: @AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/go…
Patient Chat @patientchat
Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat
AutonomicRN© @AutonomicRN
Caregiver burnout is HUGE #patientchat https://t.co/jqbd1jmwfR
Rachel Voorhees @rachvoo
@rheumpatient That's great. If I'm up for it I'm hoping to try a class. I miss out on a lot of traditional social opportunities so I'm trying to find new ways to connect with others #patientchat
Patient Chat @patientchat
T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat
Becky Brandt RN @bbhomebody
@AutonomicRN @rheumpatient Well isn't that the truth! 😉Great Comic Relief Kim #PatientChat
Patient Empowerment @power4patients
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Becky Brandt RN @bbhomebody
RT @AutonomicRN: @bbhomebody @rheumpatient Me too #EhlersDanlos will do that to a person #patientchat
saraeaton @saraeat0n
RT @patientchat: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patie
Heidi Grabenstatter @PatientIntv
Oops. I meant "carepartners, " of course :). #patientchat
AutonomicRN© @AutonomicRN
@michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat
Polly Marie Fielding @FieldingPolly
@bbhomebody @angelee828 @AutonomicRN Yes, the day after a poor night's sleep like today everything feels wrong whereas a good night & next day is better despite the weather! #patientchat
Dr. Elise Cohen Ho @askdrho
T5: When days aren’t routine we sometimes need to pivot our plans but we should always carve out some #selfcare time. Even a 10-15 minute routine will make a difference.#patientchat
Rie Lopez, MPH @RieOfLetters
I really can't say it any better than @michelerhee! #patientchat https://t.co/nJYI7ydnMp
Michele Rhee @michelerhee
@AutonomicRN It really is! I know so many families / couples that have been torn apart or stretched to the breaking point because caring and letting someone care for you are two of the hardest things in the world. #patientchat
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Melissa VanHouten @melissarvh
A5 Try to be flexible. Rest (& prepare) ahead of time & afterward but must forgive myself 4 being "out of commission" at times. #patientchat
Patient Empowerment @power4patients
T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to keep you accountable #patientchat
Lisa Davis Budzinski @lisadbudzinski
@michelerhee So very true! It happened to me #PatientChat
AutonomicRN© @AutonomicRN
@bbhomebody @rheumpatient I try :) #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat T5 Take some time out in the day for 'me' time to do what we really want to do rather than what we have to do #patientchat
Melissa VanHouten @melissarvh
RT @power4patients: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to…
Your GPS Doc, LLC @yourgpsdoc
T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://t.co/T4lyhirwwR
Becky Brandt RN @bbhomebody
@richardzhao I'd love to do that Richard. Let me know when you're healthy again and have some time😀👍 #PatientChat
Your GPS Doc, LLC @yourgpsdoc
I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4
AutonomicRN© @AutonomicRN
T5: I take my "diaper bag" filled with a pillow, blanket, my meds for the day and a change of clothes too. I never know what I'm going to need. Always make sure you are prepared for the appointments running late. Take extra medications with you. Eat and rest too! #patientchat
Lisa Davis Budzinski @lisadbudzinski
A5 It’s almost impossible. After Dr days, appts & such, it’s vital to take time the next few days for recovery #PatientChat https://t.co/z6dcdqMCgt
Mighty Casey Quinlan @MightyCasey
A5: Bonus from 20+ years on front lines of live net TV news makes me pretty impervious to sudden change in ... anything. I'll take that as a win. #patientchat
Nigel H @Crohnoid
T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you will not be seen on time (certainty in NHS), don't let that stress you and then make most of the time once in with HCP #patientchat
Rachel Voorhees @rachvoo
@patientchat Breathe. Take even just 1 minute to focus on your breath/meditate. Short pauses and check ins with yourself can help the day feel more manageable #patientchat
Katie @katie5280
@patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a book to read or activity to do while waiting in between appointment. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@power4patients Yay! We write the same thing at the same time 💕 #PatientChat
Patient Chat @patientchat
RT @rachvoo: @patientchat Breathe. Take even just 1 minute to focus on your breath/meditate. Short pauses and check ins with yourself can h…
Barby Ingle 📣 @BarbyIngle
T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv
Polly Marie Fielding @FieldingPolly
@rachvoo @patientchat Absolutely agree Rachel #patientchat
Nigel H @Crohnoid
T5: After years of OP appointments I wrote down what helps me - https://t.co/xFG4dqRSxr - I hope it might help others #patientchat
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Lisa Davis Budzinski @lisadbudzinski
RT @Crohnoid: T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you…
Melissa VanHouten @melissarvh
RT @Crohnoid: T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Michele Rhee @michelerhee
T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can just be recognizing when you need to reassess and take steps to take better or different care of yourself. #patientchat https://t.co/JIXcvnWq69
AutonomicRN© @AutonomicRN
I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for the next week. #patientchat https://t.co/PHlq20lDfa
Inspire @teaminspire
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Something Chronic @somethngchronic
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Your GPS Doc, LLC @yourgpsdoc
Great idea! #patientchat https://t.co/Zi1qadQLkO
Rachel Voorhees @rachvoo
@rheumpatient I can't do yoga either because of pelvic and spinal issues so that's why I'm hoping tai chi could work. #patientchat
Rie Lopez, MPH @RieOfLetters
T5: I am absolutely terrible when it comes to this, but I have found great satisfaction in #365teas. It's a built in reminder to slow down, at least for a cup of tea. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@michelerhee 👏👏👏👏 #PatientChat
Rheumatoid Patient @rheumpatient
@AutonomicRN @bbhomebody I did think about EDS after I tweeted that and thought I hope I don't offend anyone. Luckily patients develop a quirky sense of humour to survive this s#%t. #patientchat
Patient Empowerment @power4patients
RT @Crohnoid: T5: After years of OP appointments I wrote down what helps me - https://t.co/xFG4dqRSxr - I hope it might help others #patien
Rie Lopez, MPH @RieOfLetters
RT @AutonomicRN: T5: I take my "diaper bag" filled with a pillow, blanket, my meds for the day and a change of clothes too. I never know wh…
Lisa Davis Budzinski @lisadbudzinski
RT @Crohnoid: T5: After years of OP appointments I wrote down what helps me - https://t.co/xFG4dqRSxr - I hope it might help others #patien
Patient Empowerment @power4patients
@lisadbudzinski Great minds :) #patientchat
AutonomicRN© @AutonomicRN
One thing every day that you know is guaranteed...that is a simple thing that we all should be able to do, no matter how small. #patientchat https://t.co/kefFBAvIfv
Lisa Davis Budzinski @lisadbudzinski
If you would like #organization skills, Barby is the best!! #ExtremeTimeCheater 👇 #PatientChat https://t.co/Yi4I0BQSIA
Barby Ingle 📣 @BarbyIngle
yes, I schedule the knockdown into my schedule, knowing what will cost my #EnergyPennies shortage and preparing for it ahead of time with breaks before and after the event/doc appt, etc. #patientchat https://t.co/pZBHms4OQ2
Inspire @teaminspire
RT @Crohnoid: T5: After years of OP appointments I wrote down what helps me - https://t.co/xFG4dqRSxr - I hope it might help others #patien
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat
Barby Ingle 📣 @BarbyIngle
Thank you!!!!!!!! https://t.co/m1Qq4O30iz
Rachel Voorhees @rachvoo
@RieOfLetters I look forward to sitting down with a cup of tea before bed and when I first get to work. So soothing #patientchat
Becky Brandt RN @bbhomebody
T5 Early Prep- The day before take a shower, do hair & choose 3 outfits for comfort options. My purse is like a doctor bag & my "extra bag" has comfy loose socks, shoes & clothes. A trip for groceries is a major event, but I have everything I need #PatientChat
AutonomicRN© @AutonomicRN
@rheumpatient @bbhomebody We have to have a sense of humor to survive any medical issues, that's what keeps me going a lot of days! #patientchat
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Rheumatoid Patient @rheumpatient
@FieldingPolly @rachvoo @michelerhee @AutonomicRN I still sometimes reminisce about my my old life pre-RA. It's not helpful in the present though. #patientchat
Becky Brandt RN @bbhomebody
@AutonomicRN Great point! I need to book that down time for Sunday. 😀 #PatientChat
Lisa Davis Budzinski @lisadbudzinski
@BarbyIngle I love that you wrote #EnergyPennies !! My hubby never grasped the spoon theory so I had to change it to pennies for him ✨💕 #PatientChat
AutonomicRN© @AutonomicRN
@yourgpsdoc My motto is "have bag, will travel" #patientchat
Michele Rhee @michelerhee
CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and benefit of the doubt that we would give to others. #patientchat https://t.co/BP9C2pKl8s
Rachel Voorhees @rachvoo
@patientchat CT: First time participating in #patientchat and it was comforting to see I'm not alone in the negative thoughts/challenges I have. We're all doing the best we can.
Mighty Casey Quinlan @MightyCasey
@AutonomicRN @rheumpatient @bbhomebody I hear that! Why my book focuses on funny as much as it does. #PatientChat
Lisa Davis Budzinski @lisadbudzinski
@rheumpatient @FieldingPolly @rachvoo @michelerhee @AutonomicRN It takes a period of grieving in order a ovlet go of the “old life” we once knew #PatientChat
Patient Empowerment @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Tye Gaddis @tyegaddls
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: yes, I schedule the knockdown into my schedule, knowing what will cost my #EnergyPennies shortage and preparing for it ahea…
Richard Kreis @kreisr1
RT @melissarvh: A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for mysel…
Michele Rhee @michelerhee
@rachvoo @patientchat You're definitely not alone!! #patientchat
Richard Kreis @kreisr1
RT @power4patients: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to…
Polly Marie Fielding @FieldingPolly
@patientchat CT I learned from others on the chat today the need for me to develop greater patience. Thank you for this hour #patientchat
Richard Kreis @kreisr1
RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.…
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Richard Kreis @kreisr1
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Jeremy Murphy @jeremypmurphy
RT @patientchat: You're invited! Join us for an Empowered #patientchat on Friday, 1/12 at 10:00amPST | 1:00pmEST where we'll be talking abo…
Patient Chat @patientchat
RT @michelerhee: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and b…
AutonomicRN© @AutonomicRN
@lisadbudzinski @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as much damage! #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturin…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining y…
Richard Kreis @kreisr1
RT @AskDrHo: A1 My self-care today definitely includes a nap. #patientchat
Richard Kreis @kreisr1
RT @Crohnoid: Good evening. Nigel in the UK. Long term IBD patient #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patie
Barby Ingle 📣 @BarbyIngle
Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality P…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Richard Kreis @kreisr1
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Richard Kreis @kreisr1
RT @AutonomicRN: Admitting when we need a break is half the battle! #patientchat https://t.co/XJryaUjrmF
Jerry Durham @Jerry_DurhamPT
RT @richardzhao: I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #pat
Rachel Voorhees @rachvoo
@lisadbudzinski @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Yes. And sometimes even then, the grief comes and goes. Especially when I see people doing things I wish I was doing #patientchat
Richard Kreis @kreisr1
RT @michelerhee: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and b…
Richard Kreis @kreisr1
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Richard Kreis @kreisr1
RT @bbhomebody: T4 We're all better at caring for others if we first care for ourselves. #PatientChat
Richard Kreis @kreisr1
RT @PatientIntv: T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly,…
Richard Kreis @kreisr1
RT @lisadbudzinski: A2 Continue to learn all that I can from many angles in healthcare, help as many people I can but reigning myself in to…
AutonomicRN© @AutonomicRN
@lisadbudzinski @rheumpatient @FieldingPolly @rachvoo @michelerhee The grieving period repeats itself each time we add a new diagnosis also... #patientchat
Richard Kreis @kreisr1
RT @AskDrHo: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be sup…
Richard Kreis @kreisr1
RT @Elizabe85727641: T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both see…
Richard Kreis @kreisr1
RT @rachvoo: @patientchat CT: First time participating in #patientchat and it was comforting to see I'm not alone in the negative thoughts/…
Melissa VanHouten @melissarvh
CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sails. #patientchat
Your GPS Doc, LLC @yourgpsdoc
CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN
Jeremy Murphy @jeremypmurphy
RT @rachvoo: @patientchat Breathe. Take even just 1 minute to focus on your breath/meditate. Short pauses and check ins with yourself can h…
Richard Kreis @kreisr1
RT @rachvoo: @patientchat Breathe. Take even just 1 minute to focus on your breath/meditate. Short pauses and check ins with yourself can h…
Rie Lopez, MPH @RieOfLetters
@rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sipping thing, whereas coffee seems to speed up everything. I really need the serenity! LOL #patientchat
Richard Kreis @kreisr1
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Richard Kreis @kreisr1
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Richard Kreis @kreisr1
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Jeremy Murphy @jeremypmurphy
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Jeremy Murphy @jeremypmurphy
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Mighty Casey Quinlan @MightyCasey
CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #rva #patientchat
Richard Kreis @kreisr1
RT @michelerhee: T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can jus…
Patient Chat @patientchat
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
ElizabethKelly, Ph.D @Elizabe85727641
T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a regular bases within SDOH of person/community. #patientchat
Richard Kreis @kreisr1
RT @RieOfLetters: This, right here! #selfcare should be guilt-free. #patientchat https://t.co/0dWgfhPO9S
Richard Kreis @kreisr1
RT @angelee828: @AutonomicRN @FieldingPolly Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up…
Dr. Elise Cohen Ho @askdrho
T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar. #patientchat
Richard Kreis @kreisr1
RT @yourgpsdoc: T1: Self-care for me often means going easy on myself and accepting imperfect action. #patientchat https://t.co/Jj9Qn5psWT
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Richard Kreis @kreisr1
RT @Elizabe85727641: T2 Develop more patience with healthcare support staff who demonstrate a high level of incompetence when providing inf…
healing.ly @livehealingly
RT @melissarvh: CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sa…
Your GPS Doc, LLC @yourgpsdoc
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @bbhomebody: T2 I'd like to be done with GUILT. My body can only do so much and that should be enough! I'd like to add more Social acti…
Richard Kreis @kreisr1
RT @burtrosen: @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #P
Richard Kreis @kreisr1
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @lisadbudzinski: A4 I’ve learned the hard way caring for hubby 30yrs & Mom with Leukemia can take a huge toll on a body #PatientChat htt…
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat
Richard Kreis @kreisr1
RT @yourgpsdoc: I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4
Rheumatoid Patient @rheumpatient
@PatientIntv Haha. I was wondering what carpentry had to do with it?! #patientchat
Patient Empowerment @power4patients
CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss. I also learned that I'm not the only one that finds it hard to admit when I need a break #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: @BarbyIngle I love that you wrote #EnergyPennies !! My hubby never grasped the spoon theory so I had to change it to pe…
Richard Kreis @kreisr1
RT @Crohnoid: T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you…
Angela Cohen @angelee828
@patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing support from the online #chronicillness & #ibd communities. Self doubt is always there, but I know I have ppl in my corner online and IRL #patientchat
Richard Kreis @kreisr1
RT @melissarvh: CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sa…
Inspire @teaminspire
@patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of the term “MacGyvering” used often by @pamressler. Patients and caregivers often have to be MacGyver, out of necessity. #PatientChat
Richard Kreis @kreisr1
RT @patientchat: New to tweet chats? Follow the hashtag #patientchat and make sure to include it in every tweet during the next hour. You c…
Richard Kreis @kreisr1
RT @rachvoo: @RieOfLetters I look forward to sitting down with a cup of tea before bed and when I first get to work. So soothing #patientch
Richard Kreis @kreisr1
RT @AutonomicRN: @rheumpatient @bbhomebody We have to have a sense of humor to survive any medical issues, that's what keeps me going a lot…
AutonomicRN© @AutonomicRN
CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to be flexible and we need to not feel like we failed if we can't stick to a routine. As long as we are taking care of ourselves overall, that's #1 #patientchat
Richard Kreis @kreisr1
RT @Elizabe85727641: T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to a…
Melissa VanHouten @melissarvh
Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: I'll be at the Empowered #patientchat on Fri 1/12 at 10amPT | 1pmET. Join me! https://t.co/tfI33Z4mw6 via @power4patients
Richard Kreis @kreisr1
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @AutonomicRN: @lisadbudzinski @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as…
Patient Chat @patientchat
Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP
Richard Kreis @kreisr1
RT @PatientIntv: Sorry I am late #patientchat.
Barby Ingle 📣 @BarbyIngle
CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim
Richard Kreis @kreisr1
RT @rheumpatient: @FieldingPolly @rachvoo @michelerhee @AutonomicRN I still sometimes reminisce about my my old life pre-RA. It's not helpf…
Richard Kreis @kreisr1
RT @rachvoo: @michelerhee @AutonomicRN Same here. I've really had to learn to let things go #patientchat
Richard Kreis @kreisr1
RT @patientchat: In our first #patientchat of 2018, we'll be discussing our self-care goals for the next year and how we can accomplish the…
AutonomicRN© @AutonomicRN
@rachvoo @lisadbudzinski @rheumpatient @FieldingPolly @michelerhee I’m with you 110% #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @michelerhee: @AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/go…
Richard Kreis @kreisr1
RT @yourgpsdoc: T2: I'd like to start taking power naps and stop staying up past midnight regularly. #patientchat https://t.co/uf61kHfVFy
Richard Kreis @kreisr1
RT @katie5280: @patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a na…
Richard Kreis @kreisr1
RT @teaminspire: @patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of…
Jeremy Murphy @jeremypmurphy
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Richard Kreis @kreisr1
RT @melissarvh: Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat
Richard Kreis @kreisr1
RT @GraceCordovano: @patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in c…
Richard Kreis @kreisr1
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
International Pain Foundation® @powerofpain
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Richard Kreis @kreisr1
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patie
International Pain Foundation® @powerofpain
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @Elizabe85727641: T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a r…
Richard Kreis @kreisr1
RT @power4patients: CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss.…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a bo…
Richard Kreis @kreisr1
RT @AutonomicRN: CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Jeremy Murphy @jeremypmurphy
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Lisa Davis Budzinski @lisadbudzinski
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @MightyCasey: CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #r
Richard Kreis @kreisr1
RT @patientchat: Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: A5 It’s almost impossible. After Dr days, appts & such, it’s vital to take time the next few days for recovery #Patient
Jeremy Murphy @jeremypmurphy
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @rheumpatient: @AutonomicRN Yes, I've definitely become more resilient since developing RA. It's bend or break! #patientchat
Richard Kreis @kreisr1
RT @richardzhao: @RieOfLetters @lisadbudzinski I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helpi…
Jeremy Murphy @jeremypmurphy
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patie
Richard Kreis @kreisr1
RT @yourgpsdoc: T3: I've learned I need to schedule self-care, the same way I schedule other important appointments. #patientchat https://t…
Rie Lopez, MPH @RieOfLetters
@CathyChes I'm in #patientchat, Cathy. The topic is self care. 😁
Richard Kreis @kreisr1
RT @patientchat: Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat
Jeremy Murphy @jeremypmurphy
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Richard Kreis @kreisr1
RT @RieOfLetters: I really can't say it any better than @michelerhee! #patientchat https://t.co/nJYI7ydnMp
Rheumatoid Patient @rheumpatient
@Crohnoid @AutonomicRN @bbhomebody Probably just stressed out or worried about saying the wrong thing and getting a patient complaint. #patientchat
Richard Kreis @kreisr1
RT @_Nataliea: @patientchat T2. Continuing my FB detox. So much better without the deluge of information and pressure to keep up with it! #…
Heidi Grabenstatter @PatientIntv
CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thought that was bedtime). #patientchat
Katie @katie5280
@patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat
Rheumatoid Patient @rheumpatient
RT @rachvoo: @lisadbudzinski @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Yes. And sometimes even then, the grief comes and goes.…
Inspire @teaminspire
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becomin…
Richard Kreis @kreisr1
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Jodi Dragon @JodiOrvisDragon
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Richard Kreis @kreisr1
RT @lisadbudzinski: If you would like #organization skills, Barby is the best!! #ExtremeTimeCheater 👇 #PatientChat https://t.co/Yi4I0BQSIA
Katie @katie5280
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Covfefe Collins @bonnielcollins3
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
Richard Kreis @kreisr1
RT @burtrosen: @patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat
Richard Kreis @kreisr1
RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules” :) #patientchat
Richard Kreis @kreisr1
RT @patientchat: I will introduce new Topics with T1, T2...Please include corresponding T# at front of answer - hard to remember but helpfu…
Covfefe Collins @bonnielcollins3
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Becky Brandt RN @bbhomebody
CT Thanks for the wonderful patient support everyone. Heres To Health and Comfort in 2018 #PatientChat https://t.co/F9OdX4fdM3
Lisa Davis Budzinski @lisadbudzinski
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
AutonomicRN© @AutonomicRN
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @richardzhao: @RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coa…
Lisa Davis Budzinski @lisadbudzinski
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Nigel H @Crohnoid
CT I tend to use the "educated ostrich" approach to keep on an even keel with my health - I am fully aware of a couple of issues that are life threatening but I choose to distract myself (bury my head) in order to keep a positive attitude. Has worked so far #patientchat
Richard Kreis @kreisr1
RT @richardzhao: @lisadbudzinski @Cpnervecenter Hi, Lisa. How are you doing? #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for…
Richard Kreis @kreisr1
RT @angelee828: @patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing suppo…
Richard Kreis @kreisr1
RT @AskDrHo: T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar…
Richard Kreis @kreisr1
RT @RieOfLetters: @rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sippi…
Richard Kreis @kreisr1
RT @patientchat: Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat
Richard Kreis @kreisr1
RT @FieldingPolly: @patientchat oh I am also a patient from time to time #patientchat
Carol Bush @TheSocialNurse
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Rheumatoid Patient @rheumpatient
RT @Crohnoid: T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you…
Jeremy Murphy @jeremypmurphy
RT @power4patients: CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss.…
Suzanne Morton @drscdonnelly
RT @Crohnoid: T5: Manage your expectations of OP appointments and manage the way they run. By that I mean allow for the likelihood that you…
Lisa Davis Budzinski @lisadbudzinski
@teaminspire @patientchat @pamressler Yes!! We are forced to find hacks #PatientChat
Richard Kreis @kreisr1
RT @lisadbudzinski: @rheumpatient @FieldingPolly @rachvoo @michelerhee @AutonomicRN It takes a period of grieving in order a ovlet go of th…
Richard Kreis @kreisr1
RT @RieOfLetters: @richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best f…
Richard Kreis @kreisr1
RT @rachvoo: @lisadbudzinski @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Yes. And sometimes even then, the grief comes and goes.…
Richard Kreis @kreisr1
RT @AutonomicRN: @patientchat Happy New Year! It feels like it's been a long time since the last #patientchat
Richard Kreis @kreisr1
RT @Elizabe85727641: T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt
Richard Kreis @kreisr1
RT @FieldingPolly: @yourgpsdoc Since I have to eat, & sleep daily the exercise is the one I have to make more time for - disciplining mysel…
Barby Ingle 📣 @BarbyIngle
@lisadbudzinski My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I re-purposed the Energy Penny story my cheer coach taught me to the #EnergyPennyPrinciple for living life with chronic pain. #patientchat
Richard Kreis @kreisr1
RT @patientchat: Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat
Richard Kreis @kreisr1
RT @bbhomebody: CT Thanks for the wonderful patient support everyone. Heres To Health and Comfort in 2018 #PatientChat https://t.co/F9OdX4…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the p…
Richard Kreis @kreisr1
RT @PatientIntv: CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thoug…
Richard Kreis @kreisr1
RT @AutonomicRN: @bbhomebody @rheumpatient Me too #EhlersDanlos will do that to a person #patientchat
Richard Kreis @kreisr1
RT @katie5280: @patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat
Richard Kreis @kreisr1
RT @MightyCasey: A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting s…
Richard Kreis @kreisr1
RT @burtrosen: @AutonomicRN i'm learning that the hard way. I beat myself up way too often #patientchat
Richard Kreis @kreisr1
RT @FieldingPolly: @patientchat CT I learned from others on the chat today the need for me to develop greater patience. Thank you for this…
Richard Kreis @kreisr1
RT @Crohnoid: CT I tend to use the "educated ostrich" approach to keep on an even keel with my health - I am fully aware of a couple of iss…
Rheumatoid Patient @rheumpatient
@AutonomicRN Yes, appointments are like buses: nothing for a while and then they all come at once! #patientchat
Richard Kreis @kreisr1
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Richard Kreis @kreisr1
RT @LizSzabo: #PatientChat going on now. https://t.co/PlmL607hBR
Richard Kreis @kreisr1
RT @yourgpsdoc: T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this co…
Richard Kreis @kreisr1
RT @richardzhao: @lisadbudzinski @RieOfLetters With subzero temperature outside, sleeping is my self care 🤒 #PatientChat
Richard Kreis @kreisr1
RT @patientchat: @FieldingPolly No! #patientchat is for everyone, where ever you are :)
Richard Kreis @kreisr1
RT @burtrosen: Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat
Richard Kreis @kreisr1
RT @yourgpsdoc: Great idea! #patientchat https://t.co/Zi1qadQLkO
Rachel Voorhees @rachvoo
@RieOfLetters Yes, exactly haha. Me too! #patientchat
Carol Bush @TheSocialNurse
Ooopsies...got my time zone on my calendar wrong...I'll dig through the transcript and join you all next week! #patientchat
Michele Rhee @michelerhee
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Rie Lopez, MPH @RieOfLetters
CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea and more sleep for me! #selfcare #patientchat
Michele Rhee @michelerhee
@patientchat Thank you so much for hosting!! This was amazing! #patientchat
Becky Brandt RN @bbhomebody
@djuba52 @amazon #Alexa helps so much more than I ever imagined. And she learns new things all the time. You'll love It! #PatientChat
Richard Kreis @kreisr1
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
Richard Kreis @kreisr1
RT @BarbyIngle: @lisadbudzinski My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I…
Richard Kreis @kreisr1
RT @FieldingPolly: @patientchat Because if they don't look after themselves they can't look out for you too #patientchat
Richard Kreis @kreisr1
RT @rachvoo: @_Nataliea @patientchat I turned off notifications for social on my phone. It's definitely helped #patientchat
Lisa Davis Budzinski @lisadbudzinski
@rachvoo @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Definitely. That’s why it’s important to go through the stages of grief in order to handle such situations 💕 or it can eat ya alive desperately missing what we once were pre-illness #PatientChat
Richard Kreis @kreisr1
RT @Elizabe85727641: T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help &…
Richard Kreis @kreisr1
RT @patientchat: Topic 2 (T2:) coming up…https://t.co/af64O14k9d #patientchat
Rie Lopez, MPH @RieOfLetters
Thought you might like this @CathyChes 😁😁😁 https://t.co/jECuuI9Y8D
Richard Kreis @kreisr1
RT @RieOfLetters: CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea…
Richard Kreis @kreisr1
RT @AutonomicRN: @yourgpsdoc My motto is "have bag, will travel" #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: @power4patients Yay! We write the same thing at the same time 💕 #PatientChat
Richard Kreis @kreisr1
RT @bbhomebody: @djuba52 @amazon #Alexa helps so much more than I ever imagined. And she learns new things all the time. You'll love It!…
Richard Kreis @kreisr1
RT @lisadbudzinski: @AutonomicRN Those daily curve balls are a huge self-care disrupters #PatientChat
Richard Kreis @kreisr1
RT @RieOfLetters: @burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to o…
Richard Kreis @kreisr1
RT @bbhomebody: @richardzhao Hi Richard🖑 Happy New year! #patientchat
Jenny Toovey @girlabroad83
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
AutonomicRN© @AutonomicRN
@rheumpatient Ugh! More like a convoy! #patientchat
Richard Kreis @kreisr1
RT @rachvoo: @rheumpatient I've been thinking taking a tai chi since I can't participate in most other group classes #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: @FieldingPolly I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat
Richard Kreis @kreisr1
RT @michelerhee: T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them beca…
Richard Kreis @kreisr1
RT @AutonomicRN: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients.…
Richard Kreis @kreisr1
RT @melissarvh: A1 Taking a step back every now & then to regain my sanity & focus 4 a moment on something other than #Gastroparesis advoca…
Richard Kreis @kreisr1
RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
Richard Kreis @kreisr1
RT @MightyCasey: WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat
Lisa Davis Budzinski @lisadbudzinski
RT @Elizabe85727641: T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a r…
AutonomicRN© @AutonomicRN
@lisadbudzinski @rachvoo @rheumpatient @FieldingPolly @michelerhee Soooooo true! #patientchat
Richard Kreis @kreisr1
RT @lisadbudzinski: @rachvoo @rheumpatient @FieldingPolly @michelerhee @AutonomicRN Definitely. That’s why it’s important to go through the…
Richard Kreis @kreisr1
RT @AutonomicRN: @lisadbudzinski @rheumpatient @FieldingPolly @rachvoo @michelerhee The grieving period repeats itself each time we add a n…
Richard Kreis @kreisr1
RT @rachvoo: @rheumpatient I can't do yoga either because of pelvic and spinal issues so that's why I'm hoping tai chi could work. #patient
Richard Kreis @kreisr1
RT @yourgpsdoc: @michelerhee @FieldingPolly So true! The guilt is real. #patientchat
Richard Kreis @kreisr1
RT @MightyCasey: A3: Self care in 2017 was hard AF, thanks to stress tsunamis personal (income loss) and public (Twitler the Vulgarian in t…
Richard Kreis @kreisr1
RT @RieOfLetters: @CathyChes I'm in #patientchat, Cathy. The topic is self care. 😁
Richard Kreis @kreisr1
RT @power4patients: @teaminspire Hi, John! So glad you are here. Happy New Year! #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: @michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat
Richard Kreis @kreisr1
RT @GraceCordovano: @burtrosen Epiphanies come in all shapes and sizes. #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: @rheumpatient Ugh! More like a convoy! #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Richard Kreis @kreisr1
RT @FieldingPolly: @angelee828 @AutonomicRN So hard when pain prevents sleep #patientchat
Rie Lopez, MPH @RieOfLetters
I suppose I should get out of bed and pick up the girls from school!I'll definitely need to catch up on all the #patientchat tweets I know that I missed.
Michele Rhee @michelerhee
@lisadbudzinski @rachvoo @rheumpatient @FieldingPolly @AutonomicRN I realized that I was grieving for the person that I had been, the person I thought I should have been. I had to come to terms with the loss of that person with each new diagnosis. But I love the person I am now & the work I do! So, I have really come to terms. #patientchat
Ian Ouderkerk @ianoudrkerk694
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Angela Cohen @angelee828
@patientchat T5: I love my #AppleWatch bc it has the breathe app right on it, I take my headphones, charger & all necessary toiletries at all times. I’ve also gotten on the floor (if needed) when my #POTS or #Arthritis has been too bad. I do what’s needed. 🤷🏻‍♀️ #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao Hi Richard🖑 Happy New year! #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao @lisadbudzinski Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao @lisadbudzinski Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao I'd love to do that Richard. Let me know when you're healthy again and have some time😀👍 #PatientChat
AutonomicRN© @AutonomicRN
@michelerhee @lisadbudzinski @rachvoo @rheumpatient @FieldingPolly I can definitely relate to that. It took a lot of grieving to all of sudden realize that my disease had given me something to be thankful for. My advocacy, blogging, and whole new found group of friends are really great things that have come out of the grief! #patientchat
Lisa Davis Budzinski @lisadbudzinski
@michelerhee @rachvoo @rheumpatient @FieldingPolly @AutonomicRN You have now reached the ultimate pentacle of self-growth in spite of illness ✨ #PatientChat
Angela Cohen @angelee828
Thanks for yet another enlightening #patientchat 😃
Heidi Grabenstatter @PatientIntv
Thanks for hosting and for all who contributed at #patientchat.
#patientchat content from Twitter.