#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Happy New Year and welcome to #patientchat - where patients, care partners, and advocates come together to learn from each other and discuss topics of interest to empowered patients.
Barby Ingle Official @BarbyIngle
RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/z…
Dr. Elise Ho @AskDrHo
@patientchat Happy New Year. I love #patientchat
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
AutonomicRN© @AutonomicRN
@patientchat Happy New Year! It feels like it's been a long time since the last #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules” :) #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat I'm Nicole Rochester, physician, caregiver, patient advocate and CEO of @yourgpsdoc #patientchat
Patient Chat @patientchat
Today's #patientchat is solely informational & not a substitute for speaking with a doctor who's familiar with your medical needs and history.
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
AutonomicRN© @AutonomicRN
Kim here from Wisconsin. #raredisease and #patientientadvocate, #blogger #patientchat
Katie @katie5280
@patientchat Hi! It's Katie, breast cancer survivor & t2 diabetic. #patientchat
Dr. Elise Ho @AskDrHo
HI. I am a Holistic Lifestyle Coach with an extreme passion for helping people with #parenting issues, #relationship obstacles, disease management, and overall #healthyliving. I blog at https://t.co/YQlZSb7XUX #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
A warm New Year’s greeting to all, Liz Kelly, where our palm trees are moving rapidly because of a freezing blast of air from the north. #patientchat
Barby Ingle Official @BarbyIngle
I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality Personality. Looking forward to todays chat! #CheerleaderofHOPE #patientchat https://t.co/q0aRwXqnYN
Patient Empowerment Network @power4patients
Happy New Year! Andrea here from PEN. Looking forward to today's chat. I need some inspiration #patientchat
Richard Zhao @richardzhao
I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #patientchat
AutonomicRN© @AutonomicRN
@Elizabe85727641 We have plenty of freezing air here!! #patientchat
Patient Chat @patientchat
Today's #patientchat topic is Self-Care Goals for 2018 https://t.co/af64O14k9d
AutonomicRN© @AutonomicRN
@richardzhao Hi Richard! #patientchat
Memorizing Pharmacology @Tony_PharmD
RT @patientchat: Join us in a few minutes for the first Empowered #patientchat of 2018. Info/Topics: https://t.co/af64O14k9d https://t.co/z…
Patient Chat @patientchat
I will introduce new Topics with T1, T2...Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Richard Zhao @richardzhao
@AutonomicRN Hi, Kimberly. How are you doing? #patientchat
Angela Cohen @angelee828
Hey! Angela from Wisconsin here. 👋🏽#patientchat
Richard Zhao @richardzhao
@bbhomebody Happy New Year, Becky! #patientchat
@burtrosen
Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat
AutonomicRN© @AutonomicRN
@richardzhao I’m doing okay! Trying to stay warm, how’s the weather in Minneapolis? #patientchat
Patient Chat @patientchat
Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody @Cpnervecenter Hey Becky! #patientchat
Patient Chat @patientchat
T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Memorizing Pharmacology @Tony_PharmD
I'm Tony Guerra from Iowa #pharmacist and #podcaster #patientchat
Richard Zhao @richardzhao
@AutonomicRN Lucky we can get above 0 within next couple days in Minneapolis #PatientChat
AutonomicRN© @AutonomicRN
@burtrosen Good to "see" you, Burt!! #patientchat
Katie @katie5280
@patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a nap, journaling, meditating…lots of free things one can do! #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
I've made it! A very drowsy Rie is popping in from the comfort of bed. #patientchat
Melissa VanHouten @melissarvh
A1 Taking a step back every now & then to regain my sanity & focus 4 a moment on something other than #Gastroparesis advocacy. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Dr. Elise Ho @AskDrHo
A1 Self-care is about recognizing and honoring the fact that if we do not take care of ourselves then we really have nothing to give. #patientchat
Barby Ingle Official @BarbyIngle
T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching, clinical trials, taking time for myself when needed, walking, taking time to improve my mental and physical well-being daily #patientchat https://t.co/UFkiJtEyEB
Angela Cohen @angelee828
[REDACTED USER] Hi Nigel! How’re you? #patientchat
Your GPS Doc, LLC @yourgpsdoc
T1: Self-care for me often means going easy on myself and accepting imperfect action. #patientchat https://t.co/Jj9Qn5psWT
Patient Chat @patientchat
[REDACTED USER] No! #patientchat is for everyone, where ever you are :)
AutonomicRN© @AutonomicRN
T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturing your physical and emotional health as well. We were only given one body, so we mine as well take as good of care as we can. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
[REDACTED USER] @patientchat No, not at all! We welcome everyone. 😁 #patientchat
Dr. Elise Ho @AskDrHo
A1 Self-care that I enjoy includes getting rest, exercise, and eating well. It also includes a massage, manicure or a relaxing evening. #patientchat
AutonomicRN© @AutonomicRN
@RieOfLetters Yay, Rie!! Glad you were able to join! #patientchat
Patient Empowerment Network @power4patients
T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a break and then feeling OK about it #patientchat
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: I am @BarbyIngle President of International Pain Foundation (iPain) @powerofpain, Amazon best selling author, and Reality P…
Dr. Elise Ho @AskDrHo
We do not have to spend a lot of money in order to practice self-care. #patientchat https://t.co/K4yDKURaYE
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: T1: for me self-care is good water intake, eating healthy, following my treatment plan in between appointments, researching…
Dr. Elise Ho @AskDrHo
RT @AutonomicRN: T1: #selfcare at times is a little pampering after a long stretch of illness. But it also is paying attention and nurturin…
Michele Rhee @michelerhee
Hi! Sorry to join late! I'm Michele, patient advocate from Boston. #ayacsm #raredisease #chronicillness #invisibleillness #patientchat https://t.co/vuUoYByCJN
Dr. Elise Ho @AskDrHo
A1 My self-care today definitely includes a nap. #patientchat
Melissa VanHouten @melissarvh
A1 Honestly, it helps me to be working & advocating for the most part. Me caring for others is a sort of self-care = purpose. #patientchat
Dr. Elise Ho @AskDrHo
RT @power4patients: T1: For me self care means taking a break when I need one. The hardest part of that is actually admitting that I need a…
AutonomicRN© @AutonomicRN
Admitting when we need a break is half the battle! #patientchat https://t.co/XJryaUjrmF
michelleraefino @fino_rae
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Patient Empowerment Network @power4patients
@AutonomicRN Exactly! #patientchat
Richard Zhao @richardzhao
[REDACTED USER] @Cpnervecenter Hi, Lisa. How are you doing? #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attending medical appointments. #patientchat
Michele Rhee @michelerhee
T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to ensure I can be as healthy as possible...and to try to not feel guilty (or lazy) for doing it. #patientchat https://t.co/RaCR560q4C
AutonomicRN© @AutonomicRN
@melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps me! #patientchat
Melissa VanHouten @melissarvh
RT @AutonomicRN: @melissarvh I totally get where you're coming from! Advocacy is kind of a break from my reality and helping others, helps…
AutonomicRN© @AutonomicRN
[REDACTED USER] @Cpnervecenter Hey Lisa! #patientchat
Patient Chat @patientchat
RT @michelerhee: T1: Self-care means understanding what I need to be healthy (physically & mentally) and then doing what I need to do to en…
Angela Cohen @angelee828
@patientchat T1: Somedays it means shutting out/down everything electronic. (I just did that and I’m still playing catch-up) Sometimes it means things as little as deep breaths, or as big as avoiding toxic ppl that I care deeply for. It depends on the day. #patientchat
AutonomicRN© @AutonomicRN
[REDACTED USER] @angelee828 Hi Nigel! #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up…https://t.co/af64O14k9d #patientchat
Maggie Rogers @magthenomad
RT @RieOfLetters: T1: To me, #selfcare is listening to your own body and attending to it's needs. Taking a nap is self care, so is attendin…
Michele Rhee @michelerhee
@rachvoo @patientchat It's the judging myself! I feel like I know my limits, but I feel guilty for not being able to do everything that I "should" do. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
This, right here! #selfcare should be guilt-free. #patientchat https://t.co/0dWgfhPO9S
AutonomicRN© @AutonomicRN
Sleep would be a gift from the heavens! #patientchat https://t.co/UGP2sGK4A0
Richard Zhao @richardzhao
@RieOfLetters Hi, Rie How are you doing? #patientchat
Patient Chat @patientchat
T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patie
AutonomicRN© @AutonomicRN
@angelee828 @patientchat Toxic people play a huge role. We have to be able to identify them and set limits. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat
ElizabethKelly, Ph.D @Elizabe85727641
T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both seem and unseen. #patientchat
Heidi Grabenstatter @PatientIntv
Thank you for a great #hitsm chat. Quite sure that I am late to #patientchat. Enjoy your weekend!
AutonomicRN© @AutonomicRN
Buzz words for 2018 for everyone #qualityoflife #patientchat https://t.co/gUinrcvEgl
Michele Rhee @michelerhee
@RieOfLetters So many of us are mentioning the guilt or self-judgement we feel when taking care of ourselves! I bet none of us would ever judge someone else for doing the same. Why are we so harsh on ourselves? #patientchat
Your GPS Doc, LLC @yourgpsdoc
T2: I'd like to start taking power naps and stop staying up past midnight regularly. #patientchat https://t.co/uf61kHfVFy
Inspire @InspireIsHealth
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A1: I admit I'm not great at self-care. My escape zones are movies, books, cooking, art, music, the outdoors. A perfect day = ALL. OF. THE. THINGS. Most weeks, I get one or two at best. #PatientChat
Michele Rhee @michelerhee
[REDACTED USER] It's what they say on the plane: you need to put your oxygen mask on first before you put the other person's on. But...it's hard to do in practice without feeling that guilt!! #patientchat
Angela Cohen @angelee828
@michelerhee @rachvoo @patientchat So true! So often I know I can’t, but I feel I “should”... #patientchat
Patient Chat @patientchat
@PatientIntv Hi Heidi! We're on T2, come along anytime! #patientchat
Enlightening Results 💡 @GraceCordovano
Happy Friday #patientchat! Grace, private cancer patient advocate & patient experience activist joining in late from NJ.
Katie @katie5280
@patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the past to not be beneficial. #patientchat
Barby Ingle Official @BarbyIngle
T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tempting food items that are not in my diet from the house, & increase my steps to 10k by the end of 2018 - 1 fav. quote dont tempt good people ;) #patientchat https://t.co/sXxAkxfAY3
@burtrosen
T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat
Michele Rhee @michelerhee
@AutonomicRN I need to remember this. I think of pushing my body instead of caring for my body. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@michelerhee [REDACTED USER] So true! The guilt is real. #patientchat
Dr. Elise Ho @AskDrHo
A2 One of my 2018 #smartgoals is based on upping my fitness game. #patientchat
Michele Rhee @michelerhee
@AskDrHo [REDACTED USER] Yes!!!!! #patientchat
iPain Foundation Research Projects @iPain_Research
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
AutonomicRN© @AutonomicRN
T2: I would like to start sleeping (no really, I would)! Would like to be able to take more time for #selfcare and less time for trying to stay caught up with what my body is doing to me! #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
@richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat
Enlightening Results 💡 @GraceCordovano
@MightyCasey Hi Casey! Love your list. Wishing you a weekend filled w/your fav things #patientchat
Melissa VanHouten @melissarvh
A2 I put a lot of pressure on myself to perform. Always a battle to recognize & respect real physical limitations. #patientchat
Inspire @InspireIsHealth
Hello to #patientchat, John Novack from Inspire, joining late, and lurking.
AutonomicRN© @AutonomicRN
Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt
Heidi Grabenstatter @PatientIntv
Sorry I am late #patientchat.
AutonomicRN© @AutonomicRN
@GraceCordovano Hey Grace! #patientchat
@burtrosen
@AutonomicRN so unreasonable! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A2: Last fall I started focusing on using all of the stuff embedded in my Samsung smart watch. Tracking activity and logging food/water/sleep. Continuing that focus thru 2018. #PatientChat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
RT @burtrosen: T2: better self understanding and giving my self more compassion, not beating myself up if i can't do something #patientchat
AutonomicRN© @AutonomicRN
@burtrosen I know, right! #patientchat
Michele Rhee @michelerhee
T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them because I think I "should" do other things. I need to remember that I'm the expert in my own health and then act on that. #patientchat https://t.co/q4rVoZpyjC
Richard Zhao @richardzhao
@RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coast has the same cold. #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat
Dr. Elise Ho @AskDrHo
@rachvoo @patientchat I like to meditate for a quick session when I wake up. It helps to start the day off well. I do a second session midday. #selfcare #patientchat
Patient Empowerment Network @power4patients
@teaminspire Hi, John! So glad you are here. Happy New Year! #patientchat
@burtrosen
@AutonomicRN i'm learning that the hard way. I beat myself up way too often #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody 🙋‍♀️#patientchat
Enlightening Results 💡 @GraceCordovano
@AutonomicRN Fancy meeting you here 😜Hope all is well #patientchat
Patient Chat @patientchat
T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining your goals? #patientchat
Dr. Elise Ho @AskDrHo
[REDACTED USER] It is really important. I spoke with one of my fitness expert friends to see how to up my game in a smart way. #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T2 Develop more patience with healthcare support staff who demonstrate a high level of incompetence when providing information, explaining bills. Health literacy is a fact; additional skills to overcome are needed. #patientchat
AutonomicRN© @AutonomicRN
[REDACTED USER] I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat
Michele Rhee @michelerhee
T2: I also want to get fit enough that I could make it through the workout movie montage in a revenge movie. #patientchat https://t.co/lA4dw5DMFd
AutonomicRN© @AutonomicRN
@GraceCordovano It's going... #patientchat
Barby Ingle Official @BarbyIngle
T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care. What has been challenge in past in injuries, taking on too much at 1 time, seizures, kidney stones and flares from overworking physically #patientchat https://t.co/14gKdkWnGA
Rie Lopez, MPH (she/her) @RieOfLetters
T2: I need to address some of my own guilt and feelings of failure, especially surrounding #selfcare. This is a major #Mentalhealth goal. Self care is not selfish. #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
iPain Foundation Research Projects @iPain_Research
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
Katie @katie5280
@patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this could be simply explaining to others that you need to take time to recharge and that may mean alone. #patientchat
Maggie Rogers @magthenomad
T2: I’m really trying to work out more but also make more quiet time for myself, to read more for fun, and to meditate! I just found out that #YAcancer @FirstDescents alumni get a free lifetime of @Headspace!! And I’m loving it so far #patientchat https://t.co/qLNywhXYwP
AutonomicRN© @AutonomicRN
T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becoming more involved with social media and advocacy really helped me. #patientchat
Heidi Grabenstatter @PatientIntv
T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly, new attitude has generated new opportunities. #patientchat
Enlightening Results 💡 @GraceCordovano
@burtrosen Hi Burt! So important to remember. #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat
Your GPS Doc, LLC @yourgpsdoc
T3: I've learned I need to schedule self-care, the same way I schedule other important appointments. #patientchat https://t.co/aOMDeiiKwK
Richard Zhao @richardzhao
[REDACTED USER] @RieOfLetters With subzero temperature outside, sleeping is my self care 🤒 #PatientChat
Rie Lopez, MPH (she/her) @RieOfLetters
@burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to ourselves as we are to others. #patientchat
Dr. Elise Ho @AskDrHo
T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be super clear on what those goals actually are. #patientchat
AutonomicRN© @AutonomicRN
Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have been a TON of them on a fairly regular basis. Self care can also be how to adjust to the ever changing tides in our health. #patientchat
@burtrosen
@GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #PatientChat
Melissa VanHouten @melissarvh
A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for myself. #patientchat
Enlightening Results 💡 @GraceCordovano
@RieOfLetters Hi Rie! Great to catch up here #patientchat
Patient Empowerment Network @power4patients
@yourgpsdoc Great idea! I do this for exercise but never to help make room for other self care goals. I'm going to start today. #patientchat
Dr. Elise Ho @AskDrHo
T3 Accountability is also very helpful to have when working in goals. I have joined a fitness challenge to help with my fitness goals. #patientchat
Enlightening Results 💡 @GraceCordovano
[REDACTED USER] @Cpnervecenter Hi Lisa! Catching up here...#patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@GraceCordovano Hah! Will be filled with work, planning #rightcare campaigns for 2018. #PatientChat
Rie Lopez, MPH (she/her) @RieOfLetters
@richardzhao [REDACTED USER] Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat
Enlightening Results 💡 @GraceCordovano
@burtrosen Epiphanies come in all shapes and sizes. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
RT @burtrosen: @GraceCordovano It came to me as I was beating myself up in yoga. Kind of the opposite of what I should be doing in yoga! #P
Michele Rhee @michelerhee
@magthenomad @FirstDescents @Headspace I love @FirstDescents!!!! #ayacsm #patientchat
Dr. Elise Ho @AskDrHo
@AutonomicRN Great point. I think self-care also should include not being afraid to ask questions and to ask for help when needed. #patientchat
Barby Ingle Official @BarbyIngle
T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help others to your full potential when your not doing your best. Self-care helps you be in a good circle, face challenges and succeed in 'doing' #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat
AutonomicRN© @AutonomicRN
@AskDrHo Totally agree! #patientchat
iPain Foundation Research Projects @iPain_Research
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Rie Lopez, MPH (she/her) @RieOfLetters
@GraceCordovano Hi Grace! Glad to see you as always. 😁 #patientchat
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Patient Chat @patientchat
T4: Why is it important for care partners to prioritize self-care too? #patientchat
Melissa VanHouten @melissarvh
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Patient Empowerment Network @power4patients
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
Katie @katie5280
@patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody @katie5280 @patientchat Quiet time is my favorite! #patientchat
Inspire @InspireIsHealth
RT @AskDrHo: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be sup…
Michele Rhee @michelerhee
@AutonomicRN Yes! It's so hard when your goals/intents are messed up because of life/health/your body. I'm super type-A/goal-oriented, and I'm still working on accepting when plans change because of the things I have no control over. #patientchat
Richard Zhao @richardzhao
@RieOfLetters [REDACTED USER] I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helping me. An old Chinese way to deal with cold #PatientChat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A3: Self care in 2017 was hard AF, thanks to stress tsunamis personal (income loss) and public (Twitler the Vulgarian in the Oval, film at 11, on blast). #patientchat
Dr. Elise Ho @AskDrHo
T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Inspire @InspireIsHealth
RT @patientchat: T4: Why is it important for care partners to prioritize self-care too? #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to achieve them& when goals need to be changed. #patientchat
Patient Chat @patientchat
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
@burtrosen
@patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat
Enlightening Results 💡 @GraceCordovano
@patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in conversation w/minor complaints on weather or other inconveniences, being mindful to reframe conversations to more meaningful words. Makes a difference. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
T3: I spent most of 2017 just trying to get through it. A strong support system, being mentally 'there', and realistic goals are important components to successful behavior change. #patientchat
Patient Empowerment Network @power4patients
T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.co/QPFQaj8hAi #patientchat
Melissa VanHouten @melissarvh
A4 See the toll illness takes on #caregivers in the groups. They must have time to relax & rejuvenate to be effective. #patientchat
Patient Empowerment Network @power4patients
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Dr. Elise Ho @AskDrHo
RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.…
Angela Cohen @angelee828
@AutonomicRN [REDACTED USER] Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up every couple of hours 🙄😑 #patientchat
Your GPS Doc, LLC @yourgpsdoc
T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-care is key! #patientchat https://t.co/5m6DHLrYfP
AutonomicRN© @AutonomicRN
T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients. Care partners as in significant others, friends, family, etc need to prioritize self care because we need their help also to meet goals #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting stress impacts physical + mental. Still echoing. #patientchat
Liz Szabo @LizSzabo
#PatientChat going on now. https://t.co/PlmL607hBR
Michele Rhee @michelerhee
T4: Compassion & empathy fatigue are devastating. When one person in a family gets cancer (or other major/chronic illness), everyone gets cancer (or other illness). The health of the family/carers is vital to ensuring the health of the relationships and patients. #patientchat https://t.co/wi83Fz0oQQ
Rie Lopez, MPH (she/her) @RieOfLetters
@richardzhao [REDACTED USER] Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody [REDACTED USER] Me too #EhlersDanlos will do that to a person #patientchat
Heidi Grabenstatter @PatientIntv
T4: Carpenters become susceptible to underlying conditions during the stress of caring for partner or loved one. Sleep deprivation and diet are critical to stress-induced issues. #patientchat
Patient Chat @patientchat
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Michele Rhee @michelerhee
@RieOfLetters Realistic goals!! I'm so bad at that, lol. I like to say that I'm a "realistic optimist"...but I think I sometimes am just...well...overly optimistic. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @AutonomicRN: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients.…
AutonomicRN© @AutonomicRN
@angelee828 [REDACTED USER] Sometimes you just want to scream! But, then you know that the dogs and husband will wake up... #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help & support. #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat
AutonomicRN© @AutonomicRN
Caregiver burnout is HUGE #patientchat https://t.co/jqbd1jmwfR
Patient Chat @patientchat
T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one? #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Heidi Grabenstatter @PatientIntv
Oops. I meant "carepartners, " of course :). #patientchat
AutonomicRN© @AutonomicRN
@michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat
Dr. Elise Ho @AskDrHo
T5: When days aren’t routine we sometimes need to pivot our plans but we should always carve out some #selfcare time. Even a 10-15 minute routine will make a difference.#patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
I really can't say it any better than @michelerhee! #patientchat https://t.co/nJYI7ydnMp
Michele Rhee @michelerhee
@AutonomicRN It really is! I know so many families / couples that have been torn apart or stretched to the breaking point because caring and letting someone care for you are two of the hardest things in the world. #patientchat
Melissa VanHouten @melissarvh
A5 Try to be flexible. Rest (& prepare) ahead of time & afterward but must forgive myself 4 being "out of commission" at times. #patientchat
Patient Empowerment Network @power4patients
T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to keep you accountable #patientchat
AutonomicRN© @AutonomicRN
@bbhomebody [REDACTED USER] I try :) #patientchat
Melissa VanHouten @melissarvh
RT @power4patients: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to…
Your GPS Doc, LLC @yourgpsdoc
T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://t.co/T4lyhirwwR
Your GPS Doc, LLC @yourgpsdoc
I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4
AutonomicRN© @AutonomicRN
T5: I take my "diaper bag" filled with a pillow, blanket, my meds for the day and a change of clothes too. I never know what I'm going to need. Always make sure you are prepared for the appointments running late. Take extra medications with you. Eat and rest too! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A5: Bonus from 20+ years on front lines of live net TV news makes me pretty impervious to sudden change in ... anything. I'll take that as a win. #patientchat
Katie @katie5280
@patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a book to read or activity to do while waiting in between appointment. #patientchat
Barby Ingle Official @BarbyIngle
T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical ability & still accomplish it all, as an #ExtremeTimeCheater organizing it all is my superpower, so I am a bit lucky too #patientchat https://t.co/n1QaBUuuXv
iPain Foundation Research Projects @iPain_Research
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Michele Rhee @michelerhee
T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can just be recognizing when you need to reassess and take steps to take better or different care of yourself. #patientchat https://t.co/JIXcvnWq69
AutonomicRN© @AutonomicRN
I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for the next week. #patientchat https://t.co/PHlq20lDfa
Inspire @InspireIsHealth
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Your GPS Doc, LLC @yourgpsdoc
Great idea! #patientchat https://t.co/Zi1qadQLkO
Rie Lopez, MPH (she/her) @RieOfLetters
T5: I am absolutely terrible when it comes to this, but I have found great satisfaction in #365teas. It's a built in reminder to slow down, at least for a cup of tea. #patientchat
Patient Empowerment Network @power4patients
[REDACTED USER] Great minds :) #patientchat
AutonomicRN© @AutonomicRN
One thing every day that you know is guaranteed...that is a simple thing that we all should be able to do, no matter how small. #patientchat https://t.co/kefFBAvIfv
Barby Ingle Official @BarbyIngle
yes, I schedule the knockdown into my schedule, knowing what will cost my #EnergyPennies shortage and preparing for it ahead of time with breaks before and after the event/doc appt, etc. #patientchat https://t.co/pZBHms4OQ2
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with CT: #patientchat
AutonomicRN© @AutonomicRN
[REDACTED USER] @bbhomebody We have to have a sense of humor to survive any medical issues, that's what keeps me going a lot of days! #patientchat
AutonomicRN© @AutonomicRN
@yourgpsdoc My motto is "have bag, will travel" #patientchat
Michele Rhee @michelerhee
CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and benefit of the doubt that we would give to others. #patientchat https://t.co/BP9C2pKl8s
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@AutonomicRN [REDACTED USER] @bbhomebody I hear that! Why my book focuses on funny as much as it does. #PatientChat
Patient Empowerment Network @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Richard Kreis @kreisr1
RT @melissarvh: A3 More successful when I ignore naysayers & focus on what I know 2 be attainable & helpful. I can think & decide for mysel…
Michele Rhee @michelerhee
@rachvoo @patientchat You're definitely not alone!! #patientchat
Richard Kreis @kreisr1
RT @power4patients: T5: Easier said than done but try to make time for breaks/down time and schedule recovery days, find a partner/buddy to…
Richard Kreis @kreisr1
RT @power4patients: T4: Only when we first help ourselves can we effectively help others. Check out 10 tips for caregivers here: https://t.…
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Richard Kreis @kreisr1
RT @BarbyIngle: T5: I keep a color coded calendar on my computer-phone so I can move tasks around as needed depending on my physical abilit…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Jeremy Murphy @jeremypmurphy
RT @patientchat: You're invited! Join us for an Empowered #patientchat on Friday, 1/12 at 10:00amPST | 1:00pmEST where we'll be talking abo…
Patient Chat @patientchat
RT @michelerhee: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and b…
AutonomicRN© @AutonomicRN
[REDACTED USER] @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as much damage! #patientchat
Richard Kreis @kreisr1
RT @AskDrHo: A1 My self-care today definitely includes a nap. #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: T2: For 2018, what would like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patie
Barby Ingle Official @BarbyIngle
Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Jeremy Murphy @jeremypmurphy
RT @patientchat: T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat
Richard Kreis @kreisr1
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet with…
Jerry Durham @Jerry_DurhamPT
RT @richardzhao: I am Richard from Minneapolis. Doing #PatientSentiment project that will be used for guidance for selecting providers #pat
Richard Kreis @kreisr1
RT @michelerhee: CT: all of us need to be kinder to ourselves when we practice self-care. We need to give ourselves the same kindness and b…
Richard Kreis @kreisr1
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Richard Kreis @kreisr1
RT @PatientIntv: T2: Ambitious/ kinda scary aims for work. . . still follow my passions, but make sure that I am happy and well. Amazingly,…
AutonomicRN© @AutonomicRN
[REDACTED USER] [REDACTED USER] [REDACTED USER] @rachvoo @michelerhee The grieving period repeats itself each time we add a new diagnosis also... #patientchat
Richard Kreis @kreisr1
RT @AskDrHo: T3: The more specific you are in exactly how to reach your goals the better chance for success. Equally important is to be sup…
Richard Kreis @kreisr1
RT @Elizabe85727641: T1 “Self-Care,” in healthcare upholds the value of both the patient & and everyone involved in that process, both see…
Melissa VanHouten @melissarvh
CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sails. #patientchat
Your GPS Doc, LLC @yourgpsdoc
CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #patientchat https://t.co/4tPsBUF4FN
Rie Lopez, MPH (she/her) @RieOfLetters
@rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sipping thing, whereas coffee seems to speed up everything. I really need the serenity! LOL #patientchat
Richard Kreis @kreisr1
RT @patientchat: T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or a loved one?…
Richard Kreis @kreisr1
RT @AutonomicRN: Even being the expert in our own health, doesn't mean that we aren't dealt curve balls along the way. For me there have be…
Richard Kreis @kreisr1
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Jeremy Murphy @jeremypmurphy
RT @yourgpsdoc: T4: Statistics show the health of care partners often declines faster than the person to whom they're providing care. Self-…
Jeremy Murphy @jeremypmurphy
RT @AskDrHo: T4: Care partners need to prioritize self-care because it is impossible to pour from an empty cup. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #rva #patientchat
Richard Kreis @kreisr1
RT @michelerhee: T5: I don't think we need a self-care "routine" at all. Expecting to have a routine is too much. I think self-care can jus…
Patient Chat @patientchat
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
ElizabethKelly, Ph.D @Elizabe85727641
T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a regular bases within SDOH of person/community. #patientchat
Richard Kreis @kreisr1
RT @angelee828: @AutonomicRN [REDACTED USER] Right? If it’s not my #autonomicdysfunction it’s my #POTS or #Crohns or #Arthritis waking me up…
Dr. Elise Ho @AskDrHo
T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Your GPS Doc, LLC @yourgpsdoc
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat
Richard Kreis @kreisr1
RT @yourgpsdoc: I love the concept of recovery days! #patientchat https://t.co/DoErMj17g4
Patient Empowerment Network @power4patients
CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss. I also learned that I'm not the only one that finds it hard to admit when I need a break #patientchat
Angela Cohen @angelee828
@patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing support from the online #chronicillness & #ibd communities. Self doubt is always there, but I know I have ppl in my corner online and IRL #patientchat
Richard Kreis @kreisr1
RT @melissarvh: CT Be willing 2 step back & alter plans at drop of hat when life/illness interferes w/o that creating stress. Adjust the sa…
Inspire @InspireIsHealth
@patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of the term “MacGyvering” used often by @pamressler. Patients and caregivers often have to be MacGyver, out of necessity. #PatientChat
Richard Kreis @kreisr1
RT @patientchat: New to tweet chats? Follow the hashtag #patientchat and make sure to include it in every tweet during the next hour. You c…
AutonomicRN© @AutonomicRN
CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to be flexible and we need to not feel like we failed if we can't stick to a routine. As long as we are taking care of ourselves overall, that's #1 #patientchat
Richard Kreis @kreisr1
RT @Elizabe85727641: T4 Self-Care is another way to validate the value of the patient, keep them involved in setting health goals, how to a…
Melissa VanHouten @melissarvh
Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: I'll be at the Empowered #patientchat on Fri 1/12 at 10amPT | 1pmET. Join me! https://t.co/tfI33Z4mw6 via @power4patients
Richard Kreis @kreisr1
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @AutonomicRN: [REDACTED USER] @BarbyIngle I think if I was frustrated that I might throw the spoons across the room! Pennies won't do as…
Patient Chat @patientchat
Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-person care with @sixuntilme https://t.co/HmFypNu3WP
Richard Kreis @kreisr1
RT @PatientIntv: Sorry I am late #patientchat.
Barby Ingle Official @BarbyIngle
CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give ourselves the best self-care possible - and know when to ask for help. #patientchat https://t.co/QhQwnqErim
AutonomicRN© @AutonomicRN
@rachvoo [REDACTED USER] [REDACTED USER] [REDACTED USER] @michelerhee I’m with you 110% #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T1: It means taking time for yourself doing something you enjoy. It could be going for a walk/hike, taking a na…
Richard Kreis @kreisr1
RT @teaminspire: @patientchat T5 The fantastic replies here that describe creative solutions, health hacks to varying degrees, remind me of…
Jeremy Murphy @jeremypmurphy
RT @BarbyIngle: T4: You have to show others ur willing to help urself before they will b willing to invest help in you. Also, you cant help…
Richard Kreis @kreisr1
RT @melissarvh: Many thanks to @PatientChat for a fabulous chat to start the new year off right! #patientchat
Richard Kreis @kreisr1
RT @GraceCordovano: @patientchat T3: Practicing patience & positivity. Easy to find things to complain about. Instead of filling lulls in c…
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Richard Kreis @kreisr1
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patie
International Pain Foundation® @iPainOfficial
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @Elizabe85727641: T6 Include wellness practices in the HC payment system, relate wellness to everyday normal practices, reward it on a r…
Richard Kreis @kreisr1
RT @power4patients: CT: I am going to schedule wellness time in my calendar (not just exercise) and to treat it like an appt I can't miss.…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T5: Planning ahead. Self-care doesn't need to mean all day. Sometimes 5 minutes can be enough or bringing a bo…
Richard Kreis @kreisr1
RT @AutonomicRN: CT: Yay for starting back up in the New Year! Self care is something that we all need to be mindful of. Our goals need to…
iPain Foundation Research Projects @iPain_Research
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @MightyCasey: CT: Start where you are, use what you have, do what you can. The late, great Arthur Ashe is still one of my hero-gurus. #r
Richard Kreis @kreisr1
RT @patientchat: Topic 4 (T4:) coming up…https://t.co/af64O14k9d #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @richardzhao: @RieOfLetters [REDACTED USER] I had to explain relatives in San Francisco not to visit me during winter. Ginger tea helpi…
Rie Lopez, MPH (she/her) @RieOfLetters
@CathyChes I'm in #patientchat, Cathy. The topic is self care. 😁
Richard Kreis @kreisr1
RT @patientchat: Great group gathering. So glad to have you each here. Topic 1 (T1:) coming up... #patientchat
Jeremy Murphy @jeremypmurphy
RT @yourgpsdoc: CT: Self-care is not optional. We must not feel guilty and can't take care of others if we aren't caring for ourselves. #pa
Heidi Grabenstatter @PatientIntv
CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thought that was bedtime). #patientchat
Katie @katie5280
@patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat
Richard Kreis @kreisr1
RT @katie5280: @patientchat T4: If you don’t take the time to fill your bucket, you won’t be able to fill anyone else’s. #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: T3: Straight up honest...2017 wasn't a good year for self care of any sorts at least physically. Emotionally, just becomin…
Richard Kreis @kreisr1
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
Katie @katie5280
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
@bonnielcollins3
RT @BarbyIngle: Thanks, here is a graphic about it - https://t.co/oWmJCnOTnh #EnergyPennyPrinciple #PatientChat https://t.co/2arbGjXyqj
Richard Kreis @kreisr1
RT @BarbyIngle: T3: self motivation helped me succeed in 2017. I will keep doing what I can and add a little at a time to up my self-care.…
Richard Kreis @kreisr1
RT @burtrosen: @patientchat T4: for their state of mind. They can’t provide good care if they don’t have some balance. #PatientChat
@bonnielcollins3
RT @BarbyIngle: CT: We must get organized, we must communicate with our caregivers, and we must find our motivation & inspiration to give o…
AutonomicRN© @AutonomicRN
RT @patientchat: Join us for the next Empowered #patientchat on Friday, January 26th at 1pm ET | 10am PT where we’ll be discussing whole-pe…
Richard Kreis @kreisr1
RT @richardzhao: @RieOfLetters Thanks. The whole family got it. I am the last one. I was on a call one hour ago. My counterpart in east coa…
Richard Kreis @kreisr1
RT @richardzhao: [REDACTED USER] @Cpnervecenter Hi, Lisa. How are you doing? #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: I'm always knocked down for a couple days afterwards! Then there are the weeks where I have appts 4 days. Count me out for…
Richard Kreis @kreisr1
RT @angelee828: @patientchat T3: I had to learn how to do a lot of things alone. Now I take solace in the quiet time. I found amazing suppo…
Richard Kreis @kreisr1
RT @AskDrHo: T6: Make self-care and wellness part of your daily, weekly and monthly plans by planning it. Get it scheduled on your calendar…
Richard Kreis @kreisr1
RT @RieOfLetters: @rachvoo That is great! It sure seems like it would start off any day on a more positive note! I find that tea is a sippi…
Richard Kreis @kreisr1
RT @patientchat: Topic 3 (T3:) coming up…https://t.co/af64O14k9d #patientchat
Richard Kreis @kreisr1
RT @RieOfLetters: @richardzhao [REDACTED USER] Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best f…
Richard Kreis @kreisr1
RT @AutonomicRN: @patientchat Happy New Year! It feels like it's been a long time since the last #patientchat
Richard Kreis @kreisr1
RT @Elizabe85727641: T3 Maintaining a regular exercise schedule, encouraged to continue because have more energy & endurance. #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: Great point! We can't beat ourselves up over things we can't do. #patientchat https://t.co/c0n3RivOwt
Barby Ingle Official @BarbyIngle
[REDACTED USER] My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I re-purposed the Energy Penny story my cheer coach taught me to the #EnergyPennyPrinciple for living life with chronic pain. #patientchat
Richard Kreis @kreisr1
RT @patientchat: Topic 5 (T5:) coming up…https://t.co/af64O14k9d #patientchat
Richard Kreis @kreisr1
RT @katie5280: @patientchat T2: I am eliminating people who don’t fully support me & participating in activities that have proven in the p…
Richard Kreis @kreisr1
RT @PatientIntv: CT: No more excuses. I should be able to prioritize life's responsibilities to include time for taking care of me (I thoug…
Richard Kreis @kreisr1
RT @AutonomicRN: @bbhomebody [REDACTED USER] Me too #EhlersDanlos will do that to a person #patientchat
Richard Kreis @kreisr1
RT @katie5280: @patientchat CT: Self-care is no longer a luxury. It's a must! #patientchat
Richard Kreis @kreisr1
RT @MightyCasey: A4: ooof. That brings up ghosts. I was frontline care manager for my 'rents '00 thru '02, bankrupted me and left lasting s…
Richard Kreis @kreisr1
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Richard Kreis @kreisr1
RT @LizSzabo: #PatientChat going on now. https://t.co/PlmL607hBR
Richard Kreis @kreisr1
RT @yourgpsdoc: T5: Scheduling self-care will make it harder to neglect yourself when you're busy doing other things. #patientchat https://…
Richard Kreis @kreisr1
RT @katie5280: @patientchat T3: Although I have a busy life, as a single person, self-care is easy for me to achieve. Succeeding in this co…
Richard Kreis @kreisr1
RT @patientchat: [REDACTED USER] No! #patientchat is for everyone, where ever you are :)
Richard Kreis @kreisr1
RT @burtrosen: Hi all, excited to be here today but i might be lurking since i'm multi-tasking with "work" stuff! #patientchat
Richard Kreis @kreisr1
RT @yourgpsdoc: Great idea! #patientchat https://t.co/Zi1qadQLkO
Rie Lopez, MPH (she/her) @RieOfLetters
CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea and more sleep for me! #selfcare #patientchat
Michele Rhee @michelerhee
@patientchat Thank you so much for hosting!! This was amazing! #patientchat
Richard Kreis @kreisr1
RT @BarbyIngle: T2: to feel better I will continue w keto & exercise program until I lose 15 more lbs so I will up my self-care, remove tem…
Richard Kreis @kreisr1
RT @BarbyIngle: [REDACTED USER] My cheerleading coach taught me a similar idea in the 80's.... every good idea is stolen from a thief. ;) I…
Richard Kreis @kreisr1
RT @Elizabe85727641: T5 Recognize that change is & will happen, broaden thinking & planning to include these possibilities, ask for help &…
Richard Kreis @kreisr1
RT @RieOfLetters: CT: I am definitely going to work on taking my own advice. 😜 It's okay to say no and it is okay to ask for help. More tea…
Richard Kreis @kreisr1
RT @AutonomicRN: @yourgpsdoc My motto is "have bag, will travel" #patientchat
Richard Kreis @kreisr1
RT @RieOfLetters: @burtrosen @AutonomicRN I feel this so hard, Burt. It's such a challenge to break out of these habits and be as good to o…
AutonomicRN© @AutonomicRN
[REDACTED USER] Ugh! More like a convoy! #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: [REDACTED USER] I have too, a good night is three hours of sleep. My #autonomicdysfunction symptoms keep me up! #patientchat
Richard Kreis @kreisr1
RT @michelerhee: T2: For 2018, I want to actually do what I know I should do. I know my body's and my mind's limits, but I ignore them beca…
Richard Kreis @kreisr1
RT @AutonomicRN: T4: Care partners as in HCP need to prioritize self care so that they can be giving the best care to us as their patients.…
Richard Kreis @kreisr1
RT @MightyCasey: WiFi = working!! On my way to BOS for #rightcare #mlk leadership meeting. Haaaiiii!! #PatientChat
AutonomicRN© @AutonomicRN
[REDACTED USER] @rachvoo [REDACTED USER] [REDACTED USER] @michelerhee Soooooo true! #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: [REDACTED USER] [REDACTED USER] [REDACTED USER] @rachvoo @michelerhee The grieving period repeats itself each time we add a n…
Richard Kreis @kreisr1
RT @AutonomicRN: @michelerhee @RieOfLetters Overly optimistic is sometimes raising the the bar just a little too high #patientchat
Richard Kreis @kreisr1
RT @AutonomicRN: [REDACTED USER] Ugh! More like a convoy! #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
I suppose I should get out of bed and pick up the girls from school!I'll definitely need to catch up on all the #patientchat tweets I know that I missed.
Michele Rhee @michelerhee
[REDACTED USER] @rachvoo [REDACTED USER] [REDACTED USER] @AutonomicRN I realized that I was grieving for the person that I had been, the person I thought I should have been. I had to come to terms with the loss of that person with each new diagnosis. But I love the person I am now & the work I do! So, I have really come to terms. #patientchat
Angela Cohen @angelee828
@patientchat T5: I love my #AppleWatch bc it has the breathe app right on it, I take my headphones, charger & all necessary toiletries at all times. I’ve also gotten on the floor (if needed) when my #POTS or #Arthritis has been too bad. I do what’s needed. 🤷🏻‍♀️ #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao Hi Richard🖑 Happy New year! #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao Still recovering from this virus, Richard. It's really a massive energy suck. Hope you are well! #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao [REDACTED USER] Yikes Richard! Those cold temperatures are so hard. My heated blanket is currently my best friend. #patientchat
Richard Zhao @richardzhao
Thanks for the mention! RieOfLetters: @richardzhao [REDACTED USER] Mmmm... Ginger tea is really fantastic. I have quite a stockpile of it here. #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao I'd love to do that Richard. Let me know when you're healthy again and have some time😀👍 #PatientChat
AutonomicRN© @AutonomicRN
@michelerhee [REDACTED USER] @rachvoo [REDACTED USER] [REDACTED USER] I can definitely relate to that. It took a lot of grieving to all of sudden realize that my disease had given me something to be thankful for. My advocacy, blogging, and whole new found group of friends are really great things that have come out of the grief! #patientchat
Angela Cohen @angelee828
Thanks for yet another enlightening #patientchat 😃
Heidi Grabenstatter @PatientIntv
Thanks for hosting and for all who contributed at #patientchat.
#patientchat content from Twitter.